MS Society Lifeline


MS Society

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I've often put myself

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in extreme situations

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for the sheer thrill of it.

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That's me hurling myself off the highest bungee jump in the world.

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But I think the scariest moment in my life

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was when I was diagnosed with multiple sclerosis.

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It was a real shock to my family

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when I had to break the news to them. None of us saw this coming.

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I'd just become a father and was determined to not be beaten by it.

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But MS is unpredictable, which means I never know how or when

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it's going to affect me - whether problems with my vision,

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sensitivity to hot and cold, numbness, fatigue -

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and that's just something my family and I

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now have to think about every day.

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I'm not unusual getting MS in my 20s.

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But most people with the condition are actually women, like Charlotte.

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When I was probably about 20,

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I started having some funny sensations in my eye -

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like a hair or something was in there.

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I kept fiddling and trying to get it out.

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I had no idea what was round the corner.

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After experiencing more worrying symptoms,

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she saw a specialist who diagnosed the problem.

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She had MS.

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Most of the time, her symptoms are mild.

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But she lives with the constant threat of relapse,

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never knowing when one will strike.

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Is it going to happen tomorrow, is it going to be next week,

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is it going to be at Christmas?

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When's it going to happen? We just don't know.

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When I'm at my worst point, it's just horrible. It's like being...

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It's like being a rag doll.

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I'm stuck in bed, I can't move,

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but your brain is still the same

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so you're trapped in this body that's just not working.

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And she lives with the knowledge

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that the next relapse may be one she doesn't recover from -

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something that is distressing for any mother to contemplate.

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Will I always be able to walk them to school?

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Will I be able to drive?

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When they graduate or get married...

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All the special things that you want to see...

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I don't know what my future holds

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so I just have to be grateful for every day with them.

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When I was diagnosed, I'd barely heard of MS.

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But in the UK, 100,000 people live with the uncertainty

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of this long-term condition.

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And MS has a profound effect on at least two million people -

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the family, the friends and the carers of those with MS.

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A diagnosis can easily leave you

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feeling like you're out there on your own.

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That's why the MS Society is there,

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fighting to help people with MS keep control of their lives.

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Lynsey Page is the proud mother of four-year-old Alba.

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She's aware that MS can add to the usual challenges of motherhood.

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When a relapse hits, the simple things are no longer simple.

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I've seen myself go from being fairly able,

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dotting about the kitchen, to sitting on the floor

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cos it comes on so quickly.

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It's devastating when that happens.

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To explain to your daughter that Mummy has to have a sit down,

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Mummy can't take you to the park today...

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When a relapse is in full swing,

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the emotional pressure can become unbearable.

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And inevitably, those closest sometimes take the strain.

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It's like a volcano.

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It'll build up and build up and build up and then all of a sudden,

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my husband has got this explosion to deal with,

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of tears and anger.

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That's the hidden part about MS.

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You don't see how much a person can be struggling underneath.

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Learning to adapt can be a real challenge.

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Thankfully, the MS Society understands the pressures

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you find yourself under.

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And that's why they offer a whole range of services to help -

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from a freephone helpline

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to a network of hundreds of branches around the UK.

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Drop-in centres, like this one in Bromley, offer a unique setting

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for people with MS to get support -

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especially as the condition progresses,

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when being active can become difficult.

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These centres are absolute lifelines for people with MS,

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their families and carers.

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People say it's a unique place for them to come to,

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to share experiences with people just like them.

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And they find this important, and a way in which

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they feel they're putting less pressure on their families.

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The charity is also one of the world's foremost

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not-for-profit funders of research to find a cure for MS.

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We want to see an end to MS - a world free of its effects.

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Until we arrive at that point, we will do all we can

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to provide the support, the help and the friendship to people with MS,

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making sure that they know

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they do not have to face this awful condition alone.

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I did spend lots of time feeling that

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I really needed to talk to somebody.

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I needed to talk to my mum, my sister and...

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so I used to...go to them and cry,

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then I could see the terror in their eyes

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and I used to think, "This is horrible. I shouldn't...

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"I feel guilty about trying to talk to them about it,

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"because they're obviously upset about it as well."

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Fortunately, the MS Society has counsellors, who know that sometimes

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it's important to be able to offload to someone outside the family.

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Finding the MS Helpline was excellent.

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I could phone that number, speak to a stranger, offload,

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have my tears, have my rant,

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put the phone down and feel better.

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With her strength deteriorating,

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Lynsey found that it was getting harder

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to keep up with her growing daughter Alba.

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Again, the MS Society was able to make life easier,

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with a grant for a mobility scooter.

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Without the MS Society having the grant system in place,

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I don't even want to imagine what my life would have been like.

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I think it would've been pretty easy to slip into quite a dark place.

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'Alba and my scooter have their own love affair.

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'She loves the freedom that it allows me to have with her.'

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Lynsey's husband had given up work to care for her and Alba.

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That meant the family couldn't afford holidays.

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But an MS Society grant made it possible for them

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to experience a necessary respite from the daily challenges of MS.

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It was like winning the lottery.

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You get a holiday from your day-to-day worries,

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your struggles against...

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just trying to live a normal life.

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And when you come back from holiday, it's not so hard.

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Everything just seems a little bit easier.

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There is a way that you can really make a difference to people

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who are living with multiple sclerosis.

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The MS Society is the leading UK charity for people with MS.

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Whether it's the helpline,

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the 300 local branches bringing people together,

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grants for family breaks

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or their support for groundbreaking research to find a cure,

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you can help them to carry on this vital work.

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Please go to the website...

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..to find out where to donate.

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If you haven't got internet access, please call...

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If you can't get through the first time, please, please keep trying.

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You can also donate £10 by texting...

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Texts cost £10, plus your

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standard network message charge.

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And the whole £10

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goes to the MS Society.

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Full terms and conditions

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can be found at bbc.co.uk/lifeline

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Telephone calls are free

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from most landlines.

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Some networks and mobile operators

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will charge for these calls.

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Or if you'd like to post a donation,

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please make your cheque payable to

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the Multiple Sclerosis Society

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and send it to...

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..writing "MS Society"

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on the back of the envelope.

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And if you want the charity to claim

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Gift Aid on your donation, please

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include an e-mail or postal address

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so they can send you

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a Gift Aid form.

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Thank you.

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