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I've often put myself | 0:00:11 | 0:00:12 | |
in extreme situations | 0:00:12 | 0:00:13 | |
for the sheer thrill of it. | 0:00:13 | 0:00:15 | |
That's me hurling myself off the highest bungee jump in the world. | 0:00:15 | 0:00:18 | |
But I think the scariest moment in my life | 0:00:21 | 0:00:24 | |
was when I was diagnosed with multiple sclerosis. | 0:00:24 | 0:00:27 | |
It was a real shock to my family | 0:00:27 | 0:00:29 | |
when I had to break the news to them. None of us saw this coming. | 0:00:29 | 0:00:32 | |
I'd just become a father and was determined to not be beaten by it. | 0:00:32 | 0:00:36 | |
But MS is unpredictable, which means I never know how or when | 0:00:36 | 0:00:39 | |
it's going to affect me - whether problems with my vision, | 0:00:39 | 0:00:42 | |
sensitivity to hot and cold, numbness, fatigue - | 0:00:42 | 0:00:45 | |
and that's just something my family and I | 0:00:45 | 0:00:47 | |
now have to think about every day. | 0:00:47 | 0:00:49 | |
I'm not unusual getting MS in my 20s. | 0:00:49 | 0:00:53 | |
But most people with the condition are actually women, like Charlotte. | 0:00:53 | 0:00:57 | |
When I was probably about 20, | 0:00:57 | 0:01:00 | |
I started having some funny sensations in my eye - | 0:01:00 | 0:01:03 | |
like a hair or something was in there. | 0:01:03 | 0:01:05 | |
I kept fiddling and trying to get it out. | 0:01:05 | 0:01:08 | |
I had no idea what was round the corner. | 0:01:08 | 0:01:10 | |
After experiencing more worrying symptoms, | 0:01:12 | 0:01:14 | |
she saw a specialist who diagnosed the problem. | 0:01:14 | 0:01:17 | |
She had MS. | 0:01:17 | 0:01:18 | |
Most of the time, her symptoms are mild. | 0:01:18 | 0:01:21 | |
But she lives with the constant threat of relapse, | 0:01:21 | 0:01:23 | |
never knowing when one will strike. | 0:01:23 | 0:01:25 | |
Is it going to happen tomorrow, is it going to be next week, | 0:01:25 | 0:01:27 | |
is it going to be at Christmas? | 0:01:27 | 0:01:29 | |
When's it going to happen? We just don't know. | 0:01:29 | 0:01:31 | |
When I'm at my worst point, it's just horrible. It's like being... | 0:01:34 | 0:01:39 | |
It's like being a rag doll. | 0:01:39 | 0:01:41 | |
I'm stuck in bed, I can't move, | 0:01:41 | 0:01:44 | |
but your brain is still the same | 0:01:44 | 0:01:46 | |
so you're trapped in this body that's just not working. | 0:01:46 | 0:01:49 | |
And she lives with the knowledge | 0:01:49 | 0:01:51 | |
that the next relapse may be one she doesn't recover from - | 0:01:51 | 0:01:54 | |
something that is distressing for any mother to contemplate. | 0:01:54 | 0:01:58 | |
Will I always be able to walk them to school? | 0:02:00 | 0:02:03 | |
Will I be able to drive? | 0:02:03 | 0:02:05 | |
When they graduate or get married... | 0:02:05 | 0:02:09 | |
All the special things that you want to see... | 0:02:09 | 0:02:12 | |
I don't know what my future holds | 0:02:13 | 0:02:16 | |
so I just have to be grateful for every day with them. | 0:02:16 | 0:02:20 | |
When I was diagnosed, I'd barely heard of MS. | 0:02:23 | 0:02:26 | |
But in the UK, 100,000 people live with the uncertainty | 0:02:26 | 0:02:29 | |
of this long-term condition. | 0:02:29 | 0:02:31 | |
And MS has a profound effect on at least two million people - | 0:02:31 | 0:02:35 | |
the family, the friends and the carers of those with MS. | 0:02:35 | 0:02:38 | |
A diagnosis can easily leave you | 0:02:38 | 0:02:40 | |
feeling like you're out there on your own. | 0:02:40 | 0:02:43 | |
That's why the MS Society is there, | 0:02:43 | 0:02:45 | |
fighting to help people with MS keep control of their lives. | 0:02:45 | 0:02:48 | |
Lynsey Page is the proud mother of four-year-old Alba. | 0:02:51 | 0:02:55 | |
She's aware that MS can add to the usual challenges of motherhood. | 0:02:55 | 0:02:59 | |
When a relapse hits, the simple things are no longer simple. | 0:02:59 | 0:03:07 | |
I've seen myself go from being fairly able, | 0:03:07 | 0:03:11 | |
dotting about the kitchen, to sitting on the floor | 0:03:11 | 0:03:14 | |
cos it comes on so quickly. | 0:03:14 | 0:03:17 | |
It's devastating when that happens. | 0:03:17 | 0:03:19 | |
To explain to your daughter that Mummy has to have a sit down, | 0:03:19 | 0:03:23 | |
Mummy can't take you to the park today... | 0:03:23 | 0:03:25 | |
When a relapse is in full swing, | 0:03:27 | 0:03:29 | |
the emotional pressure can become unbearable. | 0:03:29 | 0:03:31 | |
And inevitably, those closest sometimes take the strain. | 0:03:31 | 0:03:35 | |
It's like a volcano. | 0:03:37 | 0:03:39 | |
It'll build up and build up and build up and then all of a sudden, | 0:03:39 | 0:03:44 | |
my husband has got this explosion to deal with, | 0:03:44 | 0:03:47 | |
of tears and anger. | 0:03:47 | 0:03:50 | |
That's the hidden part about MS. | 0:03:50 | 0:03:52 | |
You don't see how much a person can be struggling underneath. | 0:03:52 | 0:03:56 | |
Learning to adapt can be a real challenge. | 0:03:58 | 0:04:00 | |
Thankfully, the MS Society understands the pressures | 0:04:00 | 0:04:03 | |
you find yourself under. | 0:04:03 | 0:04:04 | |
And that's why they offer a whole range of services to help - | 0:04:04 | 0:04:07 | |
from a freephone helpline | 0:04:07 | 0:04:09 | |
to a network of hundreds of branches around the UK. | 0:04:09 | 0:04:12 | |
Drop-in centres, like this one in Bromley, offer a unique setting | 0:04:15 | 0:04:18 | |
for people with MS to get support - | 0:04:18 | 0:04:21 | |
especially as the condition progresses, | 0:04:21 | 0:04:23 | |
when being active can become difficult. | 0:04:23 | 0:04:26 | |
These centres are absolute lifelines for people with MS, | 0:04:30 | 0:04:35 | |
their families and carers. | 0:04:35 | 0:04:37 | |
People say it's a unique place for them to come to, | 0:04:37 | 0:04:40 | |
to share experiences with people just like them. | 0:04:40 | 0:04:43 | |
And they find this important, and a way in which | 0:04:43 | 0:04:46 | |
they feel they're putting less pressure on their families. | 0:04:46 | 0:04:50 | |
The charity is also one of the world's foremost | 0:04:52 | 0:04:55 | |
not-for-profit funders of research to find a cure for MS. | 0:04:55 | 0:04:59 | |
We want to see an end to MS - a world free of its effects. | 0:04:59 | 0:05:05 | |
Until we arrive at that point, we will do all we can | 0:05:05 | 0:05:09 | |
to provide the support, the help and the friendship to people with MS, | 0:05:09 | 0:05:14 | |
making sure that they know | 0:05:14 | 0:05:16 | |
they do not have to face this awful condition alone. | 0:05:16 | 0:05:19 | |
I did spend lots of time feeling that | 0:05:21 | 0:05:25 | |
I really needed to talk to somebody. | 0:05:25 | 0:05:27 | |
I needed to talk to my mum, my sister and... | 0:05:27 | 0:05:30 | |
so I used to...go to them and cry, | 0:05:30 | 0:05:34 | |
then I could see the terror in their eyes | 0:05:34 | 0:05:37 | |
and I used to think, "This is horrible. I shouldn't... | 0:05:37 | 0:05:40 | |
"I feel guilty about trying to talk to them about it, | 0:05:40 | 0:05:44 | |
"because they're obviously upset about it as well." | 0:05:44 | 0:05:47 | |
Fortunately, the MS Society has counsellors, who know that sometimes | 0:05:48 | 0:05:52 | |
it's important to be able to offload to someone outside the family. | 0:05:52 | 0:05:56 | |
Finding the MS Helpline was excellent. | 0:05:57 | 0:06:00 | |
I could phone that number, speak to a stranger, offload, | 0:06:00 | 0:06:05 | |
have my tears, have my rant, | 0:06:05 | 0:06:08 | |
put the phone down and feel better. | 0:06:08 | 0:06:10 | |
With her strength deteriorating, | 0:06:11 | 0:06:13 | |
Lynsey found that it was getting harder | 0:06:13 | 0:06:15 | |
to keep up with her growing daughter Alba. | 0:06:15 | 0:06:18 | |
Again, the MS Society was able to make life easier, | 0:06:19 | 0:06:23 | |
with a grant for a mobility scooter. | 0:06:23 | 0:06:25 | |
Without the MS Society having the grant system in place, | 0:06:25 | 0:06:29 | |
I don't even want to imagine what my life would have been like. | 0:06:29 | 0:06:32 | |
I think it would've been pretty easy to slip into quite a dark place. | 0:06:32 | 0:06:37 | |
'Alba and my scooter have their own love affair. | 0:06:37 | 0:06:41 | |
'She loves the freedom that it allows me to have with her.' | 0:06:41 | 0:06:46 | |
Lynsey's husband had given up work to care for her and Alba. | 0:06:46 | 0:06:50 | |
That meant the family couldn't afford holidays. | 0:06:50 | 0:06:53 | |
But an MS Society grant made it possible for them | 0:06:53 | 0:06:57 | |
to experience a necessary respite from the daily challenges of MS. | 0:06:57 | 0:07:02 | |
It was like winning the lottery. | 0:07:02 | 0:07:04 | |
You get a holiday from your day-to-day worries, | 0:07:04 | 0:07:06 | |
your struggles against... | 0:07:06 | 0:07:09 | |
just trying to live a normal life. | 0:07:09 | 0:07:12 | |
And when you come back from holiday, it's not so hard. | 0:07:12 | 0:07:16 | |
Everything just seems a little bit easier. | 0:07:16 | 0:07:19 | |
There is a way that you can really make a difference to people | 0:07:21 | 0:07:24 | |
who are living with multiple sclerosis. | 0:07:24 | 0:07:27 | |
The MS Society is the leading UK charity for people with MS. | 0:07:27 | 0:07:30 | |
Whether it's the helpline, | 0:07:30 | 0:07:32 | |
the 300 local branches bringing people together, | 0:07:32 | 0:07:35 | |
grants for family breaks | 0:07:35 | 0:07:36 | |
or their support for groundbreaking research to find a cure, | 0:07:36 | 0:07:40 | |
you can help them to carry on this vital work. | 0:07:40 | 0:07:44 | |
Please go to the website... | 0:07:44 | 0:07:46 | |
..to find out where to donate. | 0:07:48 | 0:07:50 | |
If you haven't got internet access, please call... | 0:07:50 | 0:07:53 | |
If you can't get through the first time, please, please keep trying. | 0:07:55 | 0:07:59 | |
You can also donate £10 by texting... | 0:07:59 | 0:08:01 | |
Texts cost £10, plus your | 0:08:05 | 0:08:07 | |
standard network message charge. | 0:08:07 | 0:08:09 | |
And the whole £10 | 0:08:09 | 0:08:10 | |
goes to the MS Society. | 0:08:10 | 0:08:12 | |
Full terms and conditions | 0:08:12 | 0:08:13 | |
can be found at bbc.co.uk/lifeline | 0:08:13 | 0:08:17 | |
Telephone calls are free | 0:08:17 | 0:08:19 | |
from most landlines. | 0:08:19 | 0:08:20 | |
Some networks and mobile operators | 0:08:20 | 0:08:22 | |
will charge for these calls. | 0:08:22 | 0:08:24 | |
Or if you'd like to post a donation, | 0:08:24 | 0:08:26 | |
please make your cheque payable to | 0:08:26 | 0:08:28 | |
the Multiple Sclerosis Society | 0:08:28 | 0:08:29 | |
and send it to... | 0:08:29 | 0:08:31 | |
..writing "MS Society" | 0:08:33 | 0:08:34 | |
on the back of the envelope. | 0:08:34 | 0:08:36 | |
And if you want the charity to claim | 0:08:36 | 0:08:38 | |
Gift Aid on your donation, please | 0:08:38 | 0:08:39 | |
include an e-mail or postal address | 0:08:39 | 0:08:41 | |
so they can send you | 0:08:41 | 0:08:43 | |
a Gift Aid form. | 0:08:43 | 0:08:44 | |
Thank you. | 0:08:44 | 0:08:46 |