The Sick Children's Trust Lifeline


The Sick Children's Trust

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For any child with an illness,

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staying in hospital can be a frightening experience.

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It's a feeling I remember all too well.

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When I was three years old I had an illness

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which meant I had

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to spend a lot of time at Sheffield Children's Hospital.

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I was fortunate in that my family lived nearby

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and were able to come in and look after me.

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Unfortunately not all children are so lucky

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to have their families nearby when they're seriously ill in hospital.

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And as a parent I know how terrible it would be

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to be unable to be in hospital with my child when they needed me most.

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This is Elsie.

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Just after her second birthday she was rushed into hospital

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when her health suddenly deteriorated.

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Doctors soon confirmed her family's worst fears.

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She was diagnosed with a rare form of leukaemia.

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My husband and I

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just broke down into tears,

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which was the beginning of a lot of tears.

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I was completely terrified for my daughter.

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We immediately said, "Is she going to die?"

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And the doctors won't say no to that question,

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but we had to try and be calm

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because we had a very young child, and she was frightened.

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Elsie's best chance of survival

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meant she needed to be rushed to a specialist unit

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70 miles away at Addenbrooke's Hospital in Cambridge.

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The treatment would involve four or five rounds

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of very hard-hitting chemotherapy.

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Which would mean pretty much continuous hospitalisation

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for a period of six months.

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She was in an absolutely terrible state.

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There was so many nights where I thought

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she's not going to make it through tonight, she's too weak.

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Not only did the family have to come to terms with Elsie's illness,

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but how they would cope practically and financially

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to be constantly by their daughter's side,

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miles away from home.

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We felt absolutely that as parents we had to be there,

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by her bedside.

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'Are you listening to Teddy's chest?'

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And to complicate things

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I was nearly eight months pregnant at the time,

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and we had a business,

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so we had to think about how we could pay our bills.

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It just seemed totally insurmountable,

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just didn't know what to do.

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For many children with a serious illness, the best possible care

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is in specialist centres around the country.

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And this may involve travelling to hospitals

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that are a long way from home

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adding an extra burden

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to what is already an extremely distressing time.

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This is where The Sick Children's Trust helps.

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They are a charity working to keep families together

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by providing free home-from-home accommodation.

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Last year eight-year-old Enna was diagnosed with a brain tumour.

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Me and my husband

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were just crying and cuddling her,

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and you are scared, you're numb, and you can't stop crying

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because you think, "How long have I got left with her?"

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We thought she was going to die.

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I'm sorry.

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Just two days later Enna underwent surgery to remove the tumour.

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But this was just the start of the family's ordeal.

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It would be a 16-month process,

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and Enna would have to have radiotherapy and chemotherapy.

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It's horrendous to see your child be strapped into

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a plastic mask that is completely immovable.

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It is not nice.

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And Enna wanted Mum and Dad there with her,

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she wanted us both to be very close.

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As an out-patient Enna would initially have to travel

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for miles every day from home to undergo treatment.

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In between her being sick and throwing up,

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travelling up and down in a car

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would not have made her feel any better at all.

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So of course practicalities start jumping in and you are thinking,

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"Where are we going to stay? What are we going to do?

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"How much would it cost us as a family?"

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They faced the prospect of not being able

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to stay together as a family to support their daughter

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when she needed them.

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But fortunately there was a charity close at hand to help.

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The Sick Children's Trust

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have eight houses like this one across the UK

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that can accommodate up to 116 families a night,

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every day of the year.

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They provide a warm, comfortable and relaxing environment

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for families who need to be near their child every step of the way.

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Joy is the house manager at Acorn House,

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just one of The Sick Children's Trust's

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homes from home at Addenbrooke's Hospital.

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Acorn House is a sanctuary for families,

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because it gives them their private room

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where they can gather their thoughts,

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there is a lovely lounge,

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playroom,

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huge big kitchen-cum-dining room.

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It gives them

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reassurance they are minutes away from their sick child

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when they're going through such a traumatic time.

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As well as providing practical assistance

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Jo and her team are on hand to provide emotional support.

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Whether they want to cry, share their experience with us,

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or just sit and relax and have a cup of coffee,

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we are here whatever they need.

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They can talk to other families that are in the same situation,

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and that is reassuring for them, because they realise

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they are not the only ones going through this.

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Over the last 30 years

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The Sick Children's Trust has helped over 40,000 families

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offering support and stability

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and enabling them to stay together

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at exactly the time they need each other the most.

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The Sick Children's Trust enabled Charlotte and her family

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to stay by Elsie's side for the entire time

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she was being treated at Addenbrooke's Hospital.

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I can see you.

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Without the Sick Children's Trust

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I just don't know how we could have survived that period.

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Emotionally, financially, practically.

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Let me see some pictures.

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And during their stay

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Acorn House became the first home for their new baby.

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They call it a home from home, and it really is.

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It was about being right there, all together, as a family.

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And that's what The Sick Children's Trust enabled us to do.

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And that's how we got through.

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After nine months of treatment

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Elsie has now made a remarkable recovery.

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She's just learnt to swim.

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She just did all the races at sports day.

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She's a really amazing little girl.

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For 16 months every time Enna needed treatment

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The Sick Children's Trust was there for her and her family.

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They just said, "There's a room, it's fine, come and stay with us,"

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and it makes the whole thing a little bit more bearable.

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And they sort of go through the journey with you.

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They're just amazing people.

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Just last month Enna finished her final treatment of chemotherapy,

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and is now well on the way to recovery.

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We're just looking forward to getting on with our lives,

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and we just so grateful that she's going to be OK,

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we can't explain really how grateful we are

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to everybody who has helped us along the way.

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The Sick Children's Trust helps over 3,000 families a year,

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but with their waiting list growing every day

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the charity desperately needs to open more houses

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to help families stay together,

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and this is where you can make a real difference.

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Please go to the website bbc.co.uk/lifeline

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where you can make a donation.

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If you don't have access to the internet than call 0800 011 011.

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And if you can't get through, please keep trying.

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You can also donate £10 by texting GIVE to 70121.

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Texts costs £10 plus your standard network message charge

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and the whole £10 goes to The Sick Children's Trust.

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Full terms and conditions can be found at bbc.co.uk/lifeline.

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Telephone calls are free from most land lines,

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some networks and mobile operators will charge for these calls.

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Or if you'd like to post a donation

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please make your cheque payable to The Sick Children's Trust

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and send it to Freepost, BBC Lifeline Appeal,

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writing The Sick Children's Trust on the back of the envelope.

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Remember, if you are a UK taxpayer

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the charity can collect Gift Aid on your donation worth another 25%.

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Just send in a note

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to say you want your donation to be subject Gift Aid

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and include the date, your full name and address.

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Thank you very much.

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Subtitles by Red Bee Media Ltd

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