Tina Evans Taith Fawr y Dyn Bach


Tina Evans

Similar Content

Browse content similar to Tina Evans. Check below for episodes and series from the same categories and more!

Transcript


LineFromTo

-*

0:00:000:00:00

-I'm James Lusted.

0:00:020:00:04

-I'm 26 and I have Diastrophic

-Dysplasia, a rare form of dwarfism.

0:00:040:00:09

-I live at home with my parents

-and brother Phil.

0:00:090:00:13

-Phil has the same condition as me.

0:00:130:00:15

-I don't allow my disability

-to hold me back.

0:00:150:00:19

-In fact, I hate the word disabled.

0:00:190:00:21

-In this series, I'll travel Wales

-to meet other disabled people...

0:00:210:00:26

-..to experience life

-through their eyes.

0:00:270:00:30

-I'm in Cardiff today.

0:00:450:00:47

-I travelled down from Colwyn Bay.

0:00:470:00:49

-It took about four hours.

0:00:490:00:51

-I don't mind. I like driving.

0:00:520:00:54

-We've come to meet Tina,

-who has the condition Ataxia.

0:00:550:00:59

-It's a rare condition.

0:01:000:01:02

-Tina works for Disability Wales.

0:01:020:01:04

-We're visiting her today

-at work in Caerphilly.

0:01:050:01:09

-We'll have a chat about her work,

-her role with Disability Wales...

0:01:110:01:16

-..and about her life too.

0:01:170:01:19

-Disability Wales was established as

-an independent organization in 1972.

0:01:350:01:40

-It has a unique role in Wales.

0:01:400:01:42

-It promotes rights, equality and

-independence for disabled people.

0:01:420:01:48

-Tina enjoys working here.

0:01:480:01:50

-Coming to work

-in an office is different.

0:01:500:01:53

-When you work at home...

0:01:530:01:56

-..you just do the work.

0:01:560:01:58

-There's no-one there

-to have some banter and fun.

0:01:590:02:03

-Everyone works hard.

0:02:030:02:06

-But you get breaks for a cup

-of tea, a chat and some fun.

0:02:070:02:13

-Hello, Tina.

0:02:260:02:27

-Hello, Tina.

-

-Hi!

0:02:270:02:28

-How are you? I'm James.

0:02:280:02:28

-How are you? I'm James.

-

-It's nice to meet you.

0:02:280:02:30

-And you. How are you?

0:02:300:02:31

-And you. How are you?

-

-Fine.

0:02:310:02:32

-Are you busy today?

0:02:320:02:34

-Yes, like every day.

0:02:340:02:36

-Good.

0:02:360:02:37

-So you work here every day.

0:02:380:02:40

-Yes. Would you like a look round?

0:02:400:02:42

-Yes, great.

0:02:420:02:44

-Tina works on a project...

0:02:450:02:46

-..to raise

-Disability Wales's profile online...

0:02:470:02:50

-..and show disabled people

-the advantages of the Internet.

0:02:510:02:55

-How long have you worked here?

0:02:560:02:58

-I've been here

-about a year and a half.

0:02:580:03:01

-Do you enjoy it?

0:03:020:03:03

-I do.

0:03:030:03:04

-My role involves a lot of work.

0:03:060:03:08

-I do something different every day.

0:03:080:03:12

-It keeps me going.

0:03:120:03:14

-Tina's project hopes to ensure...

0:03:150:03:17

-..that disabled people are included

-in digital developments.

0:03:170:03:22

-This will be vital

-when the benefits system changes.

0:03:230:03:26

-When Universal Credit begins,

-everyone will have to claim online.

0:03:270:03:32

-With Universal Credit coming

-over the next few years...

0:03:320:03:36

-..disabled people

-will need to be digital.

0:03:360:03:39

-It's frightening for people. A lot

-of disabled people can't afford it.

0:03:390:03:44

-We run the project with the Welsh

-Government and Communities 2.0.

0:03:450:03:50

-We're able to talk to disabled

-people and to their groups...

0:03:500:03:54

-..and get them online

-and using the Internet.

0:03:550:03:58

-According to a survey, 40%

-of disabled people aren't online.

0:03:580:04:03

-That's why it's important

-for this project to happen.

0:04:040:04:09

-As a disabled person myself...

0:04:090:04:12

-..I know the obstacles

-that people have to face.

0:04:130:04:18

-I'm glad to work here

-as part of the organization...

0:04:200:04:25

-..and fight to try

-to break the barriers.

0:04:250:04:30

-After finishing work...

0:04:310:04:33

-..Tina has invited me

-to her flat in the Bay for a chat.

0:04:330:04:37

-It's a lovely flat.

-How long have you lived here?

0:04:390:04:43

-I moved here

-about three and half years ago.

0:04:430:04:47

-Does someone come in

-to help you occasionally?

0:04:470:04:51

-A carer comes on Tuesday

-and Wednesday evenings...

0:04:510:04:56

-..to help me go to the gym.

0:04:560:04:58

-When I'm in the gym,

-she can help the trainer...

0:04:590:05:03

-..with things like

-getting me on the equipment.

0:05:030:05:07

-I also have someone who helps

-a few mornings and nights.

0:05:080:05:13

-For example, if it rains...

0:05:140:05:16

-..they help me

-get in the car faster.

0:05:160:05:19

-As well as the gym,

-Tina is very fond of music.

0:05:200:05:24

-She often goes to concerts.

0:05:250:05:28

-Tell me about going to gigs

-and festivals with the chair.

0:05:280:05:32

-Have you had good experiences

-or difficulties sometimes?

0:05:330:05:37

-Not so far.

0:05:370:05:38

-I think because I'm so laid-back...

0:05:380:05:41

-..my experiences have been alright.

0:05:420:05:45

-If there are steps somewhere...

0:05:470:05:50

-..people will often

-just carry me in.

0:05:500:05:53

-It's probably

-not the right thing to do.

0:05:540:05:58

-There should be access...

0:05:580:06:01

-..for able-bodied

-and disabled people to go anywhere.

0:06:010:06:06

-But if I want to get into a gig...

0:06:070:06:09

-..if I really want

-to see someone singing live...

0:06:100:06:15

-..if someone even throws me in,

-I'm happy.

0:06:150:06:19

-I'll go in to see them

-any way I can.

0:06:190:06:23

-Tina hasn't always

-had to use a wheelchair.

0:06:240:06:27

-I got the diagnosis when I was 16.

0:06:280:06:30

-Before that,

-I was able to walk and run.

0:06:310:06:34

-When I walked round school

-during break with my friends...

0:06:370:06:43

-..I noticed

-that I was bumping into them.

0:06:440:06:49

-When I was 16, I laughed about it.

0:06:510:06:54

-My friends said, "Walk straight!"

0:06:550:06:57

-I'd laugh, not really

-understanding what was wrong.

0:06:570:07:01

-When I closed my eyes

-for prayers in assembly...

0:07:020:07:07

-..I lost my balance.

0:07:080:07:10

-I went to the doctor's for tests.

0:07:110:07:14

-Six months later, I found out

-that I had Friedreich's Ataxia.

0:07:160:07:22

-After university...

0:07:240:07:26

-..I decided it would be better

-to give in and use the chair.

0:07:260:07:31

-I realized it hadn't actually

-made me a disabled person.

0:07:320:07:38

-It gave me more freedom.

0:07:400:07:42

-I'd reached the point...

0:07:430:07:45

-..that I didn't enjoy shopping

-or going out for a drink...

0:07:450:07:50

-..because I lost my balance so much.

0:07:520:07:54

-I had pains in my knee.

0:07:540:07:57

-Once I gave in to the wheelchair...

0:07:580:08:00

-..I was free to do anything.

0:08:000:08:03

-What exactly is Friedreich's Ataxia?

0:08:040:08:06

-It's a neurological condition.

0:08:070:08:09

-It affects the nervous system.

0:08:090:08:12

-If you think about it, the nervous

-system goes throughout the body.

0:08:120:08:17

-So it affects the legs, balance...

0:08:170:08:19

-..co-ordination.

0:08:190:08:21

-If you offered me a Polo now...

0:08:220:08:25

-..it would take me some time

-to pick it up...

0:08:260:08:29

-..because my co-ordination

-is affected.

0:08:290:08:32

-It can affect hearing,

-sight and speech.

0:08:340:08:39

-I'm conscious of my speech.

0:08:400:08:42

-But I've been

-to several conferences...

0:08:420:08:46

-..and met many people

-with the same condition.

0:08:460:08:49

-I know my speech

-is much better than many others.

0:08:490:08:54

-That keeps me positive.

0:08:550:08:57

-Since working for Disability Wales,

-Tina has adopted their thinking.

0:08:580:09:03

-She feels that her surroundings,

-not condition, make her disabled.

0:09:030:09:08

-A person is disabled

-because of society and attitudes...

0:09:090:09:14

-..and difficulties such as access.

0:09:140:09:18

-That makes me think...

0:09:190:09:22

-..yes, keep on living.

0:09:220:09:25

-The problem isn't the fact

-that I have Ataxia.

0:09:260:09:30

-The problem

-is that society is as it is.

0:09:310:09:34

-If I had access to every shop,

-pub or whatever...

0:09:350:09:40

-..being in a wheelchair

-wouldn't be a problem.

0:09:440:09:49

-Tina and her friends are going

-to a rowing centre in Llandysul...

0:09:530:09:58

-..to practise their kayaking skills.

0:09:580:10:01

-You're strangling me!

0:10:020:10:03

-You're strangling me!

-

-Sorry!

0:10:030:10:04

-A year ago, Sarah and I

-decided to buy a kayak.

0:10:060:10:11

-We've got a double seat on it.

0:10:120:10:14

-In three months, we're doing

-a challenge to raise money.

0:10:160:10:21

-We have to paddle for 30 miles.

0:10:230:10:25

-I can't get her feet in!

0:10:260:10:28

-We're in!

0:10:310:10:32

-We're raising money for Ataxia.

0:10:320:10:35

-OK?

0:10:420:10:43

-Since I've had the condition...

0:10:450:10:48

-..I think I'm more sporty...

0:10:480:10:50

-..probably to fight it.

0:10:510:10:53

-Ooh!

0:10:540:10:55

-Whoa!

0:10:550:10:56

-I've always liked

-doing outdoorsy things.

0:10:570:11:01

-My friends enjoy it too.

0:11:010:11:04

-When I see them doing that kind

-of thing, I want to join in too.

0:11:040:11:09

-I think that's why

-we decided on the kayak.

0:11:120:11:15

-It's something I can do.

0:11:150:11:18

-I don't have to use my legs.

0:11:180:11:21

-.

0:11:270:11:27

-Subtitles

0:11:310:11:31

-Subtitles

-

-Subtitles

0:11:310:11:33

-At Crundale Hall, Pembrokeshire...

0:11:330:11:35

-..Tina is going to speak

-at a conference for disabled people.

0:11:360:11:40

-I've come to support her.

0:11:400:11:42

-I've come to talk about the project

-I'm running with Disability Wales.

0:11:430:11:49

-I'm trying to get

-more disabled people...

0:11:510:11:54

-..to want to go online

-and use a computer.

0:11:540:11:58

-We have this event today.

0:12:010:12:03

-I thought it was

-a perfect opportunity...

0:12:030:12:07

-..for me to talk to everyone...

0:12:080:12:10

-..and try to get them all on board.

0:12:100:12:13

-Sometimes, I get

-a little nervous beforehand.

0:12:130:12:17

-But once I'm in front of everyone,

-I just open my mouth...

0:12:170:12:21

-..and it all comes out.

0:12:210:12:23

-I like to go out

-and meet different people.

0:12:230:12:28

-It makes the work more interesting.

0:12:280:12:31

-Technology is changing

-and evolving so quickly.

0:12:310:12:36

-We're all forced

-to keep up with it...

0:12:360:12:39

-..especially now with Universal

-Credit they're rolling out soon.

0:12:390:12:44

-We're all going

-to be phased to claim online.

0:12:450:12:48

-So it's important

-that we all work together...

0:12:490:12:53

-..and try to get online

-before this is rolled out.

0:12:530:12:57

-After working hard all week...

0:13:020:13:04

-..a favourite weekend activity

-for Tina...

0:13:050:13:08

-..is watching the rugby

-at Parc Y Scarlets with her father.

0:13:090:13:13

-Dad and I have season tickets.

0:13:170:13:19

-We've had them for about ten years.

0:13:200:13:23

-After I finished college,

-Dad asked...

0:13:240:13:27

-.."Do you want to go

-to a match this weekend?"

0:13:270:13:30

-So we bought them.

0:13:310:13:33

-There's a match

-almost every fortnight.

0:13:330:13:37

-It's something to do

-on weekends with Dad.

0:13:380:13:41

-Mam sometimes comes too.

0:13:430:13:45

-I went to my first match

-when I was 13.

0:13:460:13:49

-I've been hooked ever since.

0:13:500:13:52

-Hello! Are you alright?

0:13:530:13:55

-Hello.

0:13:550:13:56

-You haven't been for a while.

0:13:560:13:59

-We usually turn up

-when they kick off.

0:13:590:14:02

-But as you see...

0:14:040:14:05

-..we're actually on time today.

0:14:060:14:08

-It's a change for us.

0:14:080:14:10

-It's great here, with room

-for disabled people to sit.

0:14:120:14:16

-The view is better

-than anywhere in the stadium.

0:14:170:14:21

-So I'm happy.

0:14:210:14:22

-While they enjoy the game,

-I meet Tina's mother...

0:14:230:14:27

-..to find out how the family

-dealt with the news...

0:14:270:14:30

-..that Tina has a condition

-that will shorten her life.

0:14:310:14:34

-Hello. How are you?

0:14:350:14:36

-Hello. How are you?

-

-Come in.

0:14:360:14:37

-Thanks. Nice to meet you.

0:14:370:14:38

-Thanks. Nice to meet you.

-

-And you too.

0:14:380:14:39

-She started to get rather shaky

-and clumsy when she walked.

0:14:410:14:47

-She was sent for a CT brain scan.

0:14:480:14:50

-That came back fine.

0:14:520:14:54

-There was nothing wrong there.

0:14:540:14:56

-Then she was sent to a specialist.

0:14:570:15:00

-He told her to walk in front of him.

0:15:030:15:05

-He said that he thought

-he knew what was wrong.

0:15:050:15:09

-"I can tell you what I think it is

-and there's no cure."

0:15:090:15:13

-I didn't know what to say.

0:15:140:15:16

-It was a shock to hear that,

-with Tina looking at me.

0:15:170:15:21

-I couldn't ask him anything.

0:15:220:15:25

-He said Friedreich's Ataxia.

0:15:270:15:30

-I'd never heard of it.

0:15:300:15:32

-We read about it.

0:15:330:15:36

-Things didn't look good.

0:15:370:15:39

-We just hoped it wasn't that.

0:15:410:15:43

-How did Tina cope

-with the diagnosis?

0:15:440:15:47

-I remember telling her.

0:15:490:15:51

-She broke down and cried.

0:15:510:15:53

-We were all very upset.

0:15:550:15:57

-But she has coped very well.

0:15:590:16:01

-She carried on.

0:16:020:16:05

-I don't think she looked it up.

0:16:050:16:07

-She didn't want

-to talk about it much.

0:16:070:16:11

-She just wanted to keep going.

0:16:110:16:14

-We said, "Carry on with your life."

0:16:150:16:17

-We couldn't say that everything

-would be fine...

0:16:170:16:20

-..because we weren't sure.

0:16:210:16:22

-But she has coped very well.

0:16:230:16:24

-She has difficult days,

-as we all do.

0:16:260:16:29

-But she has every right

-to feel low at times, as we all do.

0:16:290:16:34

-Do you worry about her?

0:16:350:16:38

-Yes, we worry about her

-all the time.

0:16:380:16:41

-Everyone worries

-about their children.

0:16:410:16:44

-We do worry.

0:16:450:16:46

-She's on my mind first thing in

-the morning and last thing at night.

0:16:460:16:51

-But we're there to support her,

-whatever she wants to do.

0:16:520:16:57

-It's Tina's birthday soon.

0:16:580:17:00

-Is it a special milestone for you?

0:17:000:17:03

-Yes, it is important...

0:17:030:17:05

-..because of her illness.

0:17:070:17:09

-We don't know

-what's round the corner.

0:17:090:17:12

-None of us know

-what's round the corner.

0:17:120:17:15

-We try to celebrate.

0:17:150:17:17

-Tina enjoys herself anyway.

0:17:170:17:19

-It's any excuse

-to celebrate for Tina!

0:17:200:17:23

-The big day is here.

0:17:270:17:28

-Tina has been busy

-preparing various activities...

0:17:290:17:33

-..to celebrate this important day.

0:17:330:17:35

-We're going out in Cardiff...

0:17:370:17:40

-..on a mother and daughter day.

0:17:410:17:43

-We're celebrating my birthday too.

0:17:440:17:46

-We have a treasure hunt later.

0:17:470:17:49

-We'll have a few drinks

-throughout the day.

0:17:510:17:55

-I don't think anyone

-will be sober by the end.

0:17:560:18:01

-A lot of my friends

-see it as just another year.

0:18:020:18:07

-But I see a birthday

-as something to celebrate.

0:18:090:18:13

-It's important to me.

0:18:140:18:16

-Next year, I'll be 30.

0:18:170:18:19

-It'll be a milestone for me.

0:18:190:18:21

-With Ataxia...

0:18:250:18:26

-..a lot of people don't see 30.

0:18:280:18:30

-So it's a big thing.

0:18:300:18:32

-I think it's a big deal

-for my mother.

0:18:330:18:36

-I've spoken to her about it.

0:18:380:18:40

-Maybe she sees it as another day.

0:18:410:18:43

-But maybe she wouldn't tell me

-if she saw it as something bigger.

0:18:440:18:49

-It's not something

-one really wants to talks about.

0:18:490:18:53

-Well done, you made it to 30.

-You haven't died yet!

0:18:540:18:59

-Here we go!

0:19:050:19:06

-We'll enjoy ourselves!

0:19:070:19:09

-The girls have reached Cardiff

-and head for the first pub.

0:19:100:19:15

-We've known Tina

-since we were small.

0:19:200:19:23

-We went to school in Pontyberem.

-Our garden was next to theirs.

0:19:230:19:27

-They lived behind us.

0:19:280:19:29

-They lived behind us.

-

-We jumped over the fence to play.

0:19:290:19:31

-My sister's a physiotherapist

-and I do sports massage.

0:19:320:19:36

-We try to get Tina to strengthen

-her muscles, to help her movement.

0:19:360:19:41

-We've done that over the years.

0:19:410:19:43

-Now we just help, say if she wants

-to get out of the chair.

0:19:440:19:48

-We're quite safe, so she trusts us.

0:19:490:19:51

-We don't drink a lot when we go out.

0:19:510:19:54

-We're the designated pushers!

0:19:540:19:56

-Everyone splits up into teams,

-mothers against daughters...

0:19:570:20:02

-..and start the treasure hunt

-organized by Tina.

0:20:020:20:05

-So, game on!

0:20:060:20:07

-Game on!

0:20:080:20:09

-But this isn't

-an ordinary treasure hunt.

0:20:100:20:14

-Smile!

0:20:150:20:17

-Hang on, how do you do it

-in one throw?

0:20:190:20:22

-After three!

0:20:240:20:25

-I've come to Cardiff

-to join in the celebrations.

0:20:280:20:31

-But as the only man

-with 16 women...

0:20:310:20:34

-..I've brought my girlfriend Chloe

-along to look after me.

0:20:350:20:39

-Happy birthday!

0:20:410:20:42

-Hello!

0:20:420:20:43

-Thank you!

0:20:450:20:46

-This is Chloe.

0:20:460:20:48

-Hi!

0:20:480:20:49

-Are you having a good day?

0:20:490:20:51

-Are you having a good day?

-

-It's a great day.

0:20:510:20:52

-We're halfway through

-the treasure hunt.

0:20:520:20:56

-We're having a break.

0:20:570:21:00

-Is the competition going well?

0:21:000:21:02

-Yes, it's game on.

0:21:030:21:04

-We have to beat the mothers.

0:21:050:21:07

-This is my best friend.

0:21:110:21:12

-This is my best friend.

-

-Hello, how are you?

0:21:120:21:13

-Nice to meet you.

0:21:130:21:15

-Sarah and I have been friends

-since we were four.

0:21:150:21:19

-Basically, she can't get rid of me!

0:21:200:21:23

-I think I've celebrated

-every birthday with Tina...

0:21:240:21:28

-..since we were three years old.

0:21:290:21:31

-Since we were three.

0:21:310:21:33

-Tina enjoys celebrating anything.

0:21:330:21:36

-Tina would celebrate opening

-a bottle of pop if she could.

0:21:360:21:41

-Because we're not sure...

0:21:420:21:44

-..how many birthdays

-any of us have ahead of us...

0:21:440:21:48

-..birthdays are important.

0:21:490:21:51

-She feels that every birthday

-is an achievement.

0:21:510:21:55

-That she's reached a goal.

0:21:550:21:57

-Every birthday is priceless.

0:21:580:22:00

-We have one more challenge

-in the treasure hunt...

0:22:020:22:06

-..before relaxing.

0:22:070:22:09

-The cancan

-and a picture as a memento.

0:22:100:22:12

-It's a bit of fun!

0:22:200:22:21

-Tina and her family's positive

-attitude have changed my outlook.

0:22:230:22:28

-Over time, the health of people with

-Friedreich's Ataxia deteriorates.

0:22:280:22:33

-Tina appreciates and enjoys

-every second of her life.

0:22:330:22:37

-We should all enjoy life

-and appreciate what we have.

0:22:370:22:41

-The way she copes with her condition

-shows her strong character...

0:22:410:22:46

-..her love for life and appreciation

-of what is important.

0:22:460:22:51

-S4C Subtitles by Gwead

0:23:060:23:08

-.

0:23:080:23:08

Download Subtitles

SRT

ASS