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Notes on Blindness

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RUSTLING

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Hello. Testing, testing, testing.

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Testing, testing.

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I'm ready...

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..Daddy...

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Daddy! Daddy!

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CHILD HUMS SOFTLY

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Say "hello, hello, hello".

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Hello, hello, hello.

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This is cassette one, track one.

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10th July 1983.

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Have we begun yet?

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Disembodied voices.

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22nd February.

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Speaking out of nowhere. 1984.

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Disappearing into nowhere.

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Cassette three.

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Thank you very much for the tape...

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Everything was... Waterlogged...

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Immobile.

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Hello, and welcome to...

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VOICES OVERLAP

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Can't we just cut back?

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-It's a long time ago, isn't it?

-Hmm.

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How difficult it is to remember the detail.

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It's late.

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We were married on 1st November '79.

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Oh, you were driving, of course.

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Well, you certainly weren't driving!

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-We just took off down to...

-We got to Chichester.

-Oh, that was it.

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Chich... No. Was it?

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-Where did we go, then?

-On the southern edge of the...

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-What was it called again?

-It began with a C.

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-Cirencester.

-Ah!

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-That was it.

-Cirencester?

-Cirencester.

-Yeah.

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That's a long way.

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That ghastly B&B.

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It was quite the worst place we've ever stayed in.

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-I don't remember it being so bad.

-It was horrible.

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Do you remember the way the tide came in?

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Right up the main street.

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It took the form of a dark black disc...

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..which slowly progressed across the field of vision.

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It went very quickly.

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The doctors said that the eye was so badly traumatised from...

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from previous surgery...

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..that all we'll be able to do is to preserve a little bit of sight.

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Of course, you never believe that.

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You keep on hoping.

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-That was the final eye operation.

-Yes.

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BABY GURGLES

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You were just out of hospital when Tom was born.

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Smiling.

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He's smiling at you.

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DOOR OPENS

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I still had that little bit of vision.

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I would see a flicker of a shadow across the window

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-as you moved across it.

-Yeah.

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If I stood underneath the central light in the room,

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I could tell if it was on or off.

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The stars had gone, the moon had gone.

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I must be able to see the sun, mustn't I?

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I didn't think it would last long.

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Here we are again.

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Another part of Imogen Hull's tape, side two.

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Now, then...

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Imogen.

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She was thrilled. I mean, you know, as an older sister,

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loving a little brother.

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I don't think she realised what was going on.

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BABY CRIES

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The little drop of the Father

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on thy little beloved forehead...

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BABY WAILS

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The little drop of the Son on your forehead, beloved one.

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The little drop of the Spirit on your forehead, beloved one.

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There was nobody much around in the university.

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LOW CONVERSATION

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I could hear one of my friends saying,

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"You know that John Hull's going completely blind?"

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Stopping and hearing that...

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Oh!

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Thoughts just came tumbling into my mind.

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What about my reading, my research?

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What about my teaching?

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How am I going to teach?

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How am I going to lecture without any notes?

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I went up to my office and sat there.

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The students will be here in about five weeks.

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Now...

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..how am I going to do this?

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A social worker told me about all the things they could offer.

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Hmm.

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For your first white cane.

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There were special holiday homes for blind people.

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Maybe I'd like to have a dog and...

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Then she said, "Well, you need a mobility course."

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I remember saying, "No, I'm not doing that.

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"I haven't got time."

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I mean, most people would have made the time.

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I was just too busy keeping up with everything.

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Well, you were also stubborn.

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You were sort of in furious denial.

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'The only thing I was interested in

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'was how to function as a blind academic.

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'That, nobody knew.'

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What have you got? Ah, The Long Surrender.

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Autumn Conquest...

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'I needed to have serious books recorded sensibly.'

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What about anthropology and sociology?

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'All that was basically available in the United Kingdom

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'was detective novels and romantic fiction.'

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Well, I'm interested in reading contemporary social sciences.

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No, look, how do blind people read big books?

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'They said, "They don't."'

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Anyway, I'll sort it out, so thanks for your advice.

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'They don't.

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'That was it.

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'I didn't buy that.

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'I had a tape recorder, of course.

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'I had cassettes.'

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Is that the microphone? Yes.

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Is it on?

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That makes a difference, doesn't it?

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HE CLEARS HIS THROAT

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Testing, testing, testing.

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Today is Tuesday, and I'm wondering if this machine will record or not.

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TAPE REWINDS

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RECORDING: 'Testing, testing.

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'Today is Tuesday,

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'and I'm wondering if this machine will record or not.'

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The first thing I did was build up

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a team of people to record books for me.

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How did you get that going?

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I can't quite remember but it became an absolute business.

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I had up to 30 of them working for me at one stage.

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The books would come back on cassettes.

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Hundreds of cassettes.

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Hundreds!

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That was transformative.

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Down on this level.

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One...two...

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three.

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'I spent, I suppose,

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'the next two or three years learning all of those little tricks.

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'With ingenuity and a little bit of help,

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'they were problems that COULD be solved.'

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-RECORDING:

-'..Meaning is an operation of intentionality...'

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The truth is that, although in a way it was so devastating,

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I did enjoy it.

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I was entirely occupied.

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It wasn't until the final tiny bit of light sensation

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slowly disappeared

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that my mood changed.

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BELL CHIMES

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Do you remember that day in Shrewsbury,

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when I caught a glimpse of a...?

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Of a church spire?

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Yeah.

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I think that's the last thing you ever saw.

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That's probably true.

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BIRDSONG

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BREATHING

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SHARP SNAP

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HE SIGHS

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WIND BLOWS

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Dad?

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Hey!

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I had a dream.

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You had a dream?

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I had a dream that I got some dinner

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but it didn't have at all very much nice stuff in it,

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and I lost it again.

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Wow.

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Was that the end?

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And you...

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-He's telling me about a dream he had.

-Oh...

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Now, then. It'll be cloudy throughout the evening,

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and a big patch of wind

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on the satellite picture just coming over...

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CANE TAPS

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What now?

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What next?

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I'd learnt how to lecture without notes.

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Learnt how to recognise the students by their voices.

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The cassettes were pouring in faster than I could read them.

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All of that was done.

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It was at that point

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I realised...

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..I had to think about blindness...

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..because if I didn't understand it...

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..it would defeat me.

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CASSETTE WHIRS

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This is cassette one, track one.

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Um...

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Notes on blindness.

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And this is 21st June 1983.

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After nearly three years of blindness,

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I find that the pictures in the gallery of my mind

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have dimmed somewhat.

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People and places that I know and love so well.

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Memories of my early life spent in Australia.

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So I found with great distress

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that I could no longer remember easily what my wife looked like.

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Or what my daughter Imogen looked like.

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I found that memories of photographs

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were more easily recaptured.

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The case of my daughter Imogen -

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I have a wide range of visual memories of her.

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Of Thomas, now nearly three,

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I have a few very vague impressions

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based upon the first six or nine months of his life,

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before I lost sight altogether.

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And of Elizabeth, I have no visual memories at all and never have had.

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CASSETTE WHIRS

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KNOCK ON DOOR

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Just a minute.

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I am concerned...

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..to understand blindness...

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..to seek its meaning...

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..to retain the fullness of my humanity.

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CANE TAPS

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We need to know what kind of necessity is it.

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Is it a psychological necessity?

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Is it logical?

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Is it a historical necessity?

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'A note on smiles.

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'Nearly every time I smile, I'm conscious of smiling.

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'I mean, I'm conscious of the movement, even, one might say,

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'the effort of smiling.

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'I think the reason is that there is no returning smile.

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'One never gets anything for one's own smiles.

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'One is sending off dead letters.

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'Consequently, I can feel myself stopping smiling.

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'Or I think I can.

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'I must ask someone close to me whether this is true or not.'

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A note on Thomas's awareness of my blindness.

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-TV:

-He sadly wandered off into the mountains,

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knowing that he could never look into the beautiful eyes

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of Rapunzel again.

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Thomas asked me, why was he blind?

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Because his eyes were poorly.

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My eyes are poorly.

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He said to me in a very serious and probing voice,

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"Are you blind?"

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"Yes, I am."

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"Your eyes are closed."

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"Yes, but even when I open my eyes, I still can't see."

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"Can't you see the pictures? I can see the pictures."

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"Your eyes aren't poorly."

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I put my hand over his eyes and held his eyes closed.

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"Now can you see?" I said.

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He said no.

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"Now?" "Yes, I can see now.

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"Yes, my eyes aren't poorly."

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I am reminded of being in Wales with Imogen, when she said to me...

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"..Daddy, if I cried and my tears fell on your eyes,

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"would you be able to see again?"

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This thought she had got, I'm sure, from Rapunzel.

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-TV:

-..And they lived happily ever after.

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Cassette two, track one.

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A strange experience with a faith healer.

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On Thursday evening,

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we stopped at the Indian restaurant in Bristol Street.

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I hope everything is to your satisfaction.

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May I?

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'I took him to be a waiter who worked in the restaurant.

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'He asked me if I was completely blind...

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'..how long I had been blind, the cause of my blindness was.'

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Well, um, in one way or another,

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I suppose I've been fighting against blindness most of my life.

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Please, go on.

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When I was a child, I lost my sight for the first time.

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I've had all sorts of operations and gradually sight simply faded away.

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Why do you ask?

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And now you see nothing?

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Nothing. I don't see anything now.

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And yet you still wear glasses.

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Silly really, isn't it?

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I'd feel rather undressed without my glasses.

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Tell me, do you still hope that you will see again?

0:23:520:23:56

No, I don't hold out hope.

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The doctors have told me it's quite impossible.

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And you believe them?

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'He told me about some of the marvellous cures he had done,'

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'including cancer.

0:24:090:24:11

'My sight is dependent upon my will and he, through hypnotherapy,

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'could help to restore my will.'

0:24:160:24:18

I see.

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JOHN LAUGHS

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Could you restore a leg lost in a traffic accident?

0:24:230:24:27

You have no eyes?

0:24:270:24:29

Are they gone?

0:24:290:24:30

It's just a mass of jelly.

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Willpower cannot restore it.

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God, he was speechless.

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He was absolutely speechless!

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But, John, do you think it's got to the point

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where you don't really want to get your sight back?

0:24:530:24:56

What makes you say that?

0:24:560:24:58

You always seem to be so happy.

0:24:590:25:02

You seem to be functioning so well.

0:25:020:25:04

Oh, Liz. If only you knew half the truth.

0:25:070:25:11

Of course I want my sight back.

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I will never accept the human losses of blindness.

0:25:170:25:22

Every time I wake up,

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I lose my sight.

0:25:460:25:47

Last night, I dreamt that my sight improved.

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I had the most intense picture of Thomas as a cuddly little boy.

0:25:590:26:06

In my dream, I said to myself,

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"There you are, you see.

0:26:110:26:13

"In good light you can still manage fairly well."

0:26:130:26:17

My waking reflection is that my dreaming life

0:26:250:26:29

is still denying the reality.

0:26:290:26:31

-NEWS REPORT:

-..The heavy swell breaking onto the rocks,

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five were swept into the sea, three from one group

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and two from another. The Sennen and Penlee lifeboats

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were sent to search the area, and a Royal Navy helicopter...

0:26:450:26:48

CHILD SINGS

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Page 104.

0:26:580:27:00

This text is an interesting example in the dialogue

0:27:000:27:03

of the limitations of a theology of vision...

0:27:030:27:07

Give us an H.

0:27:090:27:10

Give us an A.

0:27:100:27:12

Give us a P.

0:27:120:27:14

Give us another P.

0:27:140:27:16

Give us a Y.

0:27:160:27:17

Happy Xmas.

0:27:170:27:19

JOHN CHUCKLES

0:27:190:27:21

Because now it's party time!

0:27:210:27:23

CHILD HUMS JINGLE BELLS

0:27:230:27:25

Immy!

0:27:270:27:28

Come here for a minute.

0:27:290:27:31

Hello, hello, hello. Look what I've found. Another one of these.

0:27:350:27:39

What's this, Tom?

0:27:410:27:42

-Oh, I know what this is.

-What?

0:27:420:27:45

When you hold it up to the light,

0:27:450:27:47

you can see all the colours really brightly, and it's beautiful.

0:27:470:27:50

Look.

0:27:500:27:51

It's nice.

0:27:530:27:55

What I remember about you most vividly

0:27:560:27:59

in those years was your amazing practicality.

0:27:590:28:03

You never expressed regret.

0:28:030:28:05

You just got on with the next thing,

0:28:050:28:09

step by step.

0:28:090:28:11

The way you did that, I always thought, was quite incredible.

0:28:120:28:16

MUSIC: Dedicated To The One I Love

0:28:210:28:24

Would you take Imagine by John Lennon? An obvious choice?

0:28:240:28:28

Dylan. I'd take Dylan.

0:28:290:28:31

Well, I know, but I mean there, one is completely stuck.

0:28:310:28:35

-I know what you'd take, and I know what we'd both take.

-What?

0:28:350:28:38

Jacqueline du Pre playing Elgar's cello whatsit.

0:28:380:28:42

-Yes, there we are.

-There we are. I think we've got one.

0:28:420:28:46

# Each night before you go to bed, my baby

0:28:490:28:55

# Whisper a little prayer for me, my baby

0:28:550:29:02

# And tell all the stars above

0:29:020:29:09

# This is dedicated to the one I love. #

0:29:090:29:12

SPLOSHING

0:29:170:29:20

DRIPPING AND SPLOSHING

0:29:200:29:24

WATER ROARS

0:30:080:30:11

A huge wave crashed down, separating us all.

0:30:180:30:21

There was debris of floating merchandise and dead bodies.

0:30:240:30:29

I searched for them everywhere in despair, and found nothing.

0:30:310:30:35

It was hopeless. They simply disappeared.

0:30:390:30:43

Somebody had reminded me that part of the human brain

0:31:080:31:13

specialises in the reception and processing of visual material.

0:31:130:31:20

Now, I would like to know what happens to that part of the brain

0:31:240:31:28

when optic stimulation ceases.

0:31:280:31:30

Could this perhaps account for the sense of suffering

0:31:350:31:39

I have experienced over the past year or two?

0:31:390:31:42

The feeling I'm describing is a sense of hunger,

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of aridity.

0:31:500:31:52

A feeling that one's brain longs for optic stimulation,

0:31:570:32:01

as the body longs for food.

0:32:010:32:04

The brain itself thirsts for that to which it is accustomed.

0:32:090:32:14

Part of my brain is dying.

0:32:200:32:22

Say merry Christmas to Millie.

0:32:300:32:32

Merry Christmas.

0:32:320:32:34

Merry Christmas, Susan. Merry Christmas, Chris.

0:32:340:32:37

What's that? My word!

0:32:400:32:43

What is it, Tom?

0:32:430:32:44

What is this?

0:32:470:32:48

CHILD'S INDISTINCT REPLY

0:32:480:32:50

Good Lord!

0:32:500:32:52

'That particular Christmas was the worst one.'

0:32:530:32:56

-Look at me.

-What is it?

0:32:560:32:59

-What is it?

-I don't know. I think it's probably bubble bath.

0:33:000:33:04

Father Christmas must have smelt you all the way from the North Pole!

0:33:050:33:08

'I was stuck.

0:33:110:33:12

'I couldn't get up and leave.

0:33:140:33:17

'How could I walk out on Christmas Day?'

0:33:180:33:21

-No.

-You know?

0:33:210:33:22

But I couldn't stay either.

0:33:240:33:26

How do I look in these?

0:33:260:33:28

You look terrific.

0:33:280:33:31

-Did Father Christmas leave those? Are they comfy?

-Yeah.

0:33:310:33:35

-Are they warm?

-Yes.

-Are they?

0:33:350:33:38

What colour are they?

0:33:390:33:42

-They're ever so nice, aren't they?

-Are they a good fit?

0:33:430:33:46

Special winter slippers.

0:33:460:33:48

Go and look at yourself in the mirror.

0:33:500:33:53

That was when you came up to me and said, "You look dreadful.

0:34:080:34:11

"Why don't you go into the office?"

0:34:110:34:14

Just go to work.

0:34:150:34:17

Just go.

0:34:180:34:19

TOY CHIMES

0:34:230:34:26

CHILDREN CHATTER

0:34:260:34:28

DOOR CLOSES

0:34:350:34:37

RAIN FALLS

0:34:460:34:49

I had a desperate feeling of being enclosed...

0:34:540:34:57

..having to get out. I must get out.

0:34:590:35:02

WIND HOWLS

0:35:040:35:06

I had only gone about 100 yards when I was aware of

0:35:060:35:11

a growing feeling of doubt and uncertainty.

0:35:110:35:14

I was intensely aware of the fact that I was going through nothing.

0:35:190:35:24

Through an intensely cold nothing.

0:35:260:35:28

Going nowhere.

0:35:300:35:31

Of being entirely alone.

0:35:330:35:35

I turned around and walked back to the house.

0:35:420:35:46

ON PIANO: Away In A Manger

0:35:480:35:51

I felt as if I was banging my head, my whole body,

0:36:010:36:04

against the wall of blindness.

0:36:040:36:07

A desperate need to break through this curtain, this veil,

0:36:090:36:13

which surrounded me, to come out into the world of light out there.

0:36:130:36:18

How could this happen to me?

0:36:290:36:31

Who could ask me to go through this?

0:36:340:36:36

Who had the right to deprive me of the sight of my children

0:36:380:36:41

at Christmas time?

0:36:410:36:43

The image that often called to me

0:36:490:36:52

during the early days of my blindness

0:36:520:36:55

came back to me with such force.

0:36:550:36:58

I was in a little coal truck in a mine shaft,

0:36:590:37:03

being trundled deeper and deeper into the mine.

0:37:030:37:07

Were we just out of control?

0:37:100:37:12

Was there nobody in a position to stop it?

0:37:120:37:15

Would it just go on and on?

0:37:150:37:17

I had to get out. I had to jump out. I had to run back.

0:37:170:37:20

But, no, it remorselessly carried me even deeper and deeper and deeper.

0:37:200:37:25

INTENSE THUNDERING

0:37:250:37:28

I think this idea of you going away into another world

0:37:510:37:55

where I couldn't be was... That was awful. That was...

0:37:550:38:00

Shall I scratch my eyes out?

0:38:080:38:10

Shall I come with you into this world?

0:38:100:38:13

I somehow feel that if I were to accept this thing,

0:38:170:38:21

if I were to enter into acquiescence...

0:38:210:38:24

..then I would die.

0:38:250:38:27

Because it would be as if my ability to resist, my will to resist,

0:38:300:38:35

were broken.

0:38:350:38:37

On the other hand, not to accept seems futile

0:38:430:38:48

because what one is refusing to accept is a fact.

0:38:480:38:53

And now what I have to face is...

0:38:590:39:03

..the thought that there is no escape.

0:39:040:39:07

The thought that I shall now just go on

0:39:090:39:11

with another 20, 30 or even more years of this.

0:39:110:39:16

RECORDER CLICKS OFF

0:39:250:39:27

One fights back by adopting tiny techniques.

0:39:420:39:45

Familiarity, predictability,

0:39:470:39:50

the same objects, the same little movements of the hands.

0:39:500:39:53

One has to establish some kind of environment -

0:39:570:40:00

a study, a room, a route,

0:40:000:40:02

a passage - over which one can establish some kind of territory.

0:40:020:40:07

'I am not particularly conscious of being blind while I am at work.

0:40:110:40:15

'When I'm at work, all my students have to come into MY world

0:40:170:40:21

'of ideas and concepts and language.'

0:40:210:40:24

OK, let's start with the very oldest or most ancient of these.

0:40:240:40:28

That's the very first conflict, faith.

0:40:280:40:32

'The essence of the thing is planning, initiatives

0:40:320:40:35

'and active participation.

0:40:350:40:38

'The moment I sink into passivity and irrelevance,

0:40:380:40:42

'then I'm done for.'

0:40:420:40:45

Tomorrow it will be reasonably sunny,

0:40:470:40:50

reasonably cold, reasonably hot, reasonably everything.

0:40:500:40:54

In fact, I don't know at all.

0:40:540:40:56

And that is the end of the news.

0:40:560:40:59

Dong! Dong! Dong!

0:40:590:41:01

RAIN FALLS

0:41:150:41:18

A note on the experience of hearing rain falling.

0:41:250:41:29

This evening I came out the front door of the house

0:41:340:41:37

and it was raining.

0:41:370:41:38

I stood for a few minutes, lost in the beauty of it.

0:41:420:41:46

Rain brings out the contours of what's around you...

0:41:480:41:54

..in that it introduces

0:41:560:41:58

a blanket

0:41:580:42:00

of differentiated and specialised sound...

0:42:000:42:05

..which fills the whole of the audible environment.

0:42:070:42:10

SPATTERING

0:42:110:42:14

THUDDING

0:42:160:42:19

DRIPPING

0:42:210:42:24

SPLASHING

0:42:260:42:29

SPATTERING

0:42:330:42:36

If only there could be something equivalent to rain falling inside...

0:42:360:42:40

..then the whole of a room would take on shape and dimension.

0:42:420:42:48

SPLATTERING

0:42:480:42:51

Instead of being isolated, cut off,

0:42:520:42:56

preoccupied internally...

0:42:560:42:58

..you are presented with a world.

0:43:000:43:02

You are related to a world.

0:43:050:43:08

You are addressed by a world.

0:43:080:43:10

Why should this experience strike one as being beautiful?

0:43:170:43:22

Cognition is beautiful.

0:43:240:43:26

It is beautiful to know.

0:43:270:43:29

Well, I must thank you again for your tape from all of you.

0:43:370:43:43

You, Thomas, and Lizzie, and Imogen too.

0:43:430:43:47

How are you getting along?

0:43:470:43:49

We'd love to see you some time.

0:43:490:43:51

We don't realise how the time passes.

0:43:510:43:55

Anyhow, thank you again.

0:43:560:43:58

I hope you'll have the time to come out here to see us.

0:43:580:44:02

Hello, Grandpa and Grandma.

0:44:080:44:10

I hope you're fine, because we're having a wonderful time here.

0:44:100:44:13

Do send love to all the other relatives in Australia.

0:44:130:44:17

CHIMING

0:44:170:44:19

Now it's time for the morning concert.

0:44:190:44:22

(One, two, three.)

0:44:230:44:25

# Sparkle, evening star

0:44:250:44:28

# I've seen you there... #

0:44:280:44:31

MOUTH ORGAN PLAYS

0:44:310:44:32

# ..High above the ground

0:44:320:44:34

# You sit and stare

0:44:340:44:38

# Star bright

0:44:380:44:40

# Gleaming white

0:44:400:44:43

# I wonder if you hear my song tonight. #

0:44:430:44:48

MOUTH ORGAN PLAYS

0:44:480:44:51

-Beautiful.

-That was good, Immy. That worked quite well.

0:44:520:44:55

I've got one of them!

0:44:580:45:01

-RECORDING: Beautiful.

-That was good, Immy. That worked quite well.

0:45:020:45:06

Well, Mum and Dad, I hope you enjoy that

0:45:100:45:13

as an authentic bit of children's production.

0:45:130:45:16

I should perhaps also add we will not be able to come to Australia...

0:45:180:45:22

..because I do feel that the lack of mobility and of activity...

0:45:250:45:30

..would be difficult for me to put up with.

0:45:320:45:35

I'm sure you'll understand, Dad.

0:45:400:45:42

CHILDREN SHOUT

0:45:420:45:46

Well, I must stop now and get this off to you.

0:45:510:45:54

Lots of love to all of you from all of us. Bye now.

0:45:540:45:57

MUSIC PLAYS

0:46:110:46:13

Read on.

0:46:130:46:15

The grass and the plants, and it was...

0:46:150:46:19

What does that little sign mean?

0:46:190:46:22

Do it again on my hand.

0:46:220:46:24

Like this?

0:46:290:46:30

Yeah.

0:46:310:46:33

It's a comma.

0:46:330:46:35

-What does that mean?

-It means you pause.

0:46:350:46:38

Where does it have it?

0:46:380:46:40

On Friday night, putting Thomas to bed,

0:46:420:46:45

I had a long and detailed discussion with him

0:46:450:46:48

about my blindness.

0:46:480:46:50

"Will you always be blind?" he said.

0:46:500:46:54

"Yes, always."

0:46:540:46:56

"Couldn't the doctors stop it?"

0:46:570:46:59

"The doctors tried."

0:46:590:47:02

I explained about the retina,

0:47:040:47:06

how it sometimes tears and comes off from the back of the eye.

0:47:060:47:10

"What did they say?"

0:47:120:47:14

"Well, they just said, 'Sorry, Mr Hull,

0:47:150:47:18

"'we can't do any more for you.'"

0:47:180:47:20

"Why doesn't God help you?"

0:47:220:47:24

"God does help me...in lots of ways."

0:47:260:47:29

"How?"

0:47:300:47:32

"Well, he makes me strong and gives me courage."

0:47:320:47:36

"But he doesn't help you to get your eyes back."

0:47:370:47:40

Our Father, who art in heaven

0:47:420:47:46

Hallowed be thy name

0:47:460:47:48

Thy kingdom come

0:47:480:47:50

Thy will be done on earth as it is in heaven

0:47:500:47:53

Give us this day...

0:47:530:47:56

Yes, there have been times when I have been angry with God.

0:47:560:48:00

Unreasonably so, I suppose.

0:48:030:48:06

Sometimes one's emotions spill over...

0:48:090:48:13

..but I don't regard faith as a sort of a...

0:48:150:48:18

A shield against the ordinary ups and downs of human life.

0:48:180:48:22

Why shouldn't it happen to me?

0:48:260:48:28

So now at last we come to this...

0:48:340:48:37

..great problem, this question.

0:48:380:48:41

The problem of mutual understanding.

0:48:430:48:45

How can blind and sighted people truly understand each other?

0:48:470:48:51

How can men understand women?

0:48:530:48:55

How can the rich understand the poor?

0:48:550:48:59

How can the old understand the young?

0:48:590:49:03

Can we have insight into other people?

0:49:040:49:07

This is the great question

0:49:090:49:11

upon which the unity of our humanity hangs.

0:49:110:49:14

'The last two days have been particularly peaceful and happy.

0:49:270:49:31

'Two long days with Marilyn,

0:49:330:49:35

'and it was one of the best times I've had playing with the children.'

0:49:350:49:41

Yes, Thomas! Wow! Don't go falling off, will you?

0:49:410:49:45

'My health is very much better than it was at Christmas time.

0:49:460:49:50

'Perhaps blindness won't cut me off after all.'

0:50:020:50:06

Was I going to live in reality or live in nostalgia?

0:50:180:50:22

Over a period of weeks, months maybe,

0:50:260:50:28

the decision hardened in me.

0:50:280:50:32

I would not live in nostalgia

0:50:340:50:37

but would live in reality...

0:50:370:50:39

..and would become blind.

0:50:410:50:43

FOOTSTEPS

0:51:020:51:05

Wow.

0:51:100:51:11

-It's a long drop.

-Yeah.

0:51:110:51:14

What's that bit in the middle?

0:51:140:51:17

Are you all right, darling?

0:51:200:51:23

Yeah.

0:51:230:51:24

'I wanted my parents to know me as a blind person.

0:52:010:52:05

'I wanted them to somehow recognise me and accept me.'

0:52:080:52:13

Every year, we used to go and pick cherry plums and bring them home,

0:52:160:52:19

and Mother made cherry plum jam by the dozen.

0:52:190:52:23

SHE LAUGHS

0:52:230:52:24

I can remember rows and rows of the jam!

0:52:240:52:27

-Say, "Hello, Grandma".

-Hello, Grandma.

0:52:300:52:34

'Of course, they were delighted with the children.

0:52:340:52:37

'But I think they were shocked.'

0:52:380:52:41

..Absolutely scandalised...

0:52:420:52:45

'It was like...

0:52:450:52:47

'..having to get to know me all over again.'

0:52:480:52:52

-It's a nice photo, that.

-Yes.

0:52:540:52:58

We have a photo of us sitting up in this car out in our backyard.

0:52:590:53:03

That's right.

0:53:030:53:05

How strangely coloured photographs fade.

0:53:080:53:12

It's all laid out like a professional poet!

0:53:170:53:21

"Poems to my mother."

0:53:230:53:25

Ah, to my mother?

0:53:250:53:27

Not to my mother and father.

0:53:270:53:29

-Interesting.

-To my mother.

0:53:290:53:32

'I never had a close relationship with my father.

0:53:360:53:39

'I don't know what he thought of it all.

0:53:430:53:45

'I walked down to the shops with him.

0:53:480:53:50

'We went to buy some bread and butter.

0:53:530:53:56

'It was the first time I touched him on that visit.

0:53:580:54:01

'And I was shocked at how fragile he was.

0:54:030:54:06

'How slowly he moved along.

0:54:080:54:11

'And as we went along,

0:54:150:54:17

'he with his blind son at his elbow...

0:54:170:54:21

'..I wondered what was going on in his mind

0:54:230:54:26

'but we didn't talk about it.

0:54:260:54:28

'I wish I'd known.

0:54:300:54:32

'I wish I did know.'

0:54:320:54:34

CHILDREN SING HAPPILY

0:54:410:54:43

It was a strange thing, John, wasn't it?

0:55:210:55:24

That Dad came from England and married an Australian girl,

0:55:240:55:29

and you were born in Australia and married an English girl.

0:55:290:55:33

-Yes, it's just that.

-Yeah.

0:55:330:55:35

He's a good father, then.

0:55:380:55:40

'I remember she's sitting next to me, cuddling up quite close.

0:55:440:55:49

'"John," she said, "I have to come up close to you now

0:55:490:55:52

'"because there's no other way we can get in contact, is there?"

0:55:520:55:56

'I said, "Yes, Mother, but that's all right."

0:55:560:56:00

'Dear old Mother.

0:56:090:56:11

'What's it like for you?'

0:56:110:56:13

PIERCING SCREAM

0:56:200:56:24

Where are you?

0:56:290:56:31

CHILD CRIES

0:56:310:56:34

It's all right.

0:56:420:56:44

-Is she hurt?

-Oh, dear...

0:56:470:56:50

-What happened?

-She shut her finger in the door.

0:56:500:56:53

Oh...

0:56:530:56:55

'I remember taking her little hand.'

0:56:550:56:58

CHILD CRIES

0:57:010:57:03

'Painful for the child but no harm done, really.'

0:57:050:57:09

That's a good girl. Try to stretch out your fingers a little bit.

0:57:090:57:12

It'll be fine, love.

0:57:120:57:14

'That was a frightening moment.

0:57:160:57:18

'The discovery that you're useless is not a nice discovery...

0:57:210:57:24

'..for any father to make.'

0:57:260:57:28

-You all right?

-Yes.

0:57:350:57:37

You just look a bit... Do you want some water?

0:57:440:57:47

I'm all right.

0:57:470:57:49

MUFFLED CONVERSATION

0:58:180:58:20

-..When will it come?

-When will what come?

0:59:010:59:04

The speaking bit.

0:59:040:59:06

We have to speak, darling.

0:59:060:59:08

Just like a telephone.

0:59:080:59:10

-Do you know what this is called?

-What?

0:59:100:59:12

It's called a tape recorder.

0:59:120:59:14

See that going round inside there?

0:59:140:59:16

It's making little records,

0:59:160:59:18

and your voice and my voice are on it.

0:59:180:59:21

Say, "Hello, hello, hello".

0:59:210:59:23

Hello, hello, hello.

0:59:230:59:25

RECORDER CLICKS OFF

0:59:290:59:32

RECORDED CLICKS ON

0:59:460:59:48

TAPE WINDS

0:59:480:59:51

I knew that this was the first time I'd seen her.

1:00:181:00:21

I stared at her, full of wonder...

1:00:241:00:26

..taking in every detail of her face.

1:00:281:00:31

I thought, so this is her.

1:00:341:00:36

This is she.

1:00:361:00:39

These are those lovely luminous brown eyes.

1:00:421:00:45

This is that smile that they all talk about.

1:00:461:00:49

Everything went black again.

1:01:001:01:03

TAPE WINDS

1:01:031:01:05

I was back in consciousness...

1:01:071:01:09

..and in blindness...

1:01:111:01:13

..and I realised with a shock...

1:01:151:01:17

..that it had been a dream.

1:01:191:01:21

I got sick of recording this one so I've stopped.

1:01:261:01:29

CHILD SINGS

1:01:341:01:36

When I was last here,

1:02:061:02:09

many of my best-remembered places...

1:02:091:02:12

..were already fading.

1:02:131:02:15

Somehow...

1:02:251:02:26

..I expected Melbourne to be there.

1:02:281:02:31

That's stupid, isn't it?

1:02:361:02:37

Just move in. Just move in.

1:02:421:02:46

You want to take your kids and say,

1:02:501:02:53

"This is the beach we used to come to.

1:02:531:02:55

"That's the place where we used to play footy.

1:03:001:03:02

"This is the school I went to."

1:03:061:03:08

But there was nothing there.

1:03:131:03:15

Just people's hands and voices.

1:03:181:03:20

The feel of the car on the road.

1:03:231:03:25

The wind, of course.

1:03:271:03:30

Walking along somewhere, never quite knew where.

1:03:301:03:33

That's really all there was.

1:03:361:03:38

I didn't somehow expect it.

1:03:441:03:47

I didn't anticipate that.

1:03:471:03:50

I don't know why.

1:03:511:03:53

CAMERA SHUTTER CLICKS

1:03:561:03:58

Tom!

1:04:021:04:03

Come along. What are you doing?

1:04:031:04:06

The house itself...

1:04:191:04:21

What was it like?

1:04:271:04:28

Where did I sleep?

1:04:371:04:39

I can't remember much.

1:04:491:04:51

This is too difficult.

1:05:081:05:10

I don't remember.

1:05:161:05:18

Isn't that strange?

1:05:211:05:23

Oh, I just don't remember.

1:05:291:05:31

'It was exactly that moment.

1:05:381:05:40

'The world is lost.

1:05:421:05:44

'And it wasn't just the Melbourne I knew that was lost.

1:05:541:05:59

'I myself was lost.

1:06:001:06:02

'I began to be terribly afraid...

1:06:061:06:08

'..that something would be broken between us

1:06:101:06:12

'which could not be healed.

1:06:121:06:14

'That you were disappearing into a world where I could not follow.'

1:06:211:06:25

THUNDER RUMBLES

1:06:411:06:44

Everything was just tumbling down.

1:06:441:06:47

We knew we wouldn't go back, didn't we?

1:07:071:07:09

We will never do this again.

1:07:181:07:20

I have returned home with a feeling of immense relief.

1:07:521:07:56

To be again in a familiar house, surrounded by familiar objects...

1:08:001:08:03

..to have in my mind a mental picture of the environment

1:08:101:08:14

in the streets and city around me

1:08:141:08:17

is like having the world restored to me again.

1:08:171:08:21

Three...

1:08:231:08:24

..two...

1:08:271:08:28

..one! Here I come, ready or not.

1:08:301:08:33

Now, let me see.

1:08:491:08:52

'Never have I done the washing up with such happiness.

1:08:521:08:55

'I got up this morning and made Marilyn a cup of tea...

1:08:561:09:00

'..feeling so grateful...

1:09:021:09:04

'..that I could move freely, that I knew where things were,

1:09:051:09:08

'that I could act.'

1:09:081:09:11

Is he behind the curtain?

1:09:111:09:13

No, not there, either.

1:09:151:09:17

'That I was coming out of that shadow land of passivity...'

1:09:171:09:21

Where could he be?

1:09:211:09:23

'..into personal action and life again.'

1:09:231:09:27

Got you!

1:09:281:09:30

THEY LAUGH

1:09:301:09:32

BABY GURGLES

1:09:401:09:43

BABY CRIES

1:09:471:09:49

September 22nd 1985.

1:09:591:10:02

I love the thrill of him...

1:10:081:10:11

..the way I can slightly sense when he's looking at me now.

1:10:121:10:16

I also like feeling his little nose and holding one foot.

1:10:191:10:23

I love holding his little hands and putting my own hand

1:10:271:10:30

on the warmth of his head.

1:10:301:10:32

The feel of him as I have him over my shoulder.

1:10:321:10:36

It's seven o'clock and time for Radio 8 and here's your host,

1:10:451:10:49

Immy Hull!

1:10:491:10:50

It will be drizzly today with occasional intervals of sun.

1:10:501:10:55

Later on in the day...

1:10:551:10:57

Two or three times this week I have taken Thomas to school.

1:10:571:11:01

Perhaps I'd say, he has taken me.

1:11:011:11:04

And he is getting quite good at guiding me, although unreliable.

1:11:041:11:08

Right, let's have a look at you.

1:11:111:11:13

'We also have a way of saying goodbye

1:11:131:11:16

'which is the equivalent of waving.

1:11:161:11:20

'As he runs off through the playground he shouts out "bye".'

1:11:201:11:25

Bye!

1:11:251:11:26

'And I shout "bye".'

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-Bye.

-Bye!

1:11:281:11:30

'And we keep up this echoing chorus

1:11:301:11:34

'until his voice becomes faint.'

1:11:341:11:36

Bye!

1:11:401:11:42

Bye!

1:11:421:11:44

'I love this.'

1:11:451:11:46

I had said to myself that I would learn to live with blindness

1:12:021:12:06

but I would never accept it.

1:12:061:12:08

Now I find that there's been a strange kind of change

1:12:141:12:17

in the state of my brain.

1:12:171:12:20

It's as if now, being denied the stimulus of the outside world,

1:12:261:12:30

the thing has turned in upon itself

1:12:301:12:34

in order to find inner resources.

1:12:341:12:36

Occasionally I go home in the evening and I feel as if my mind

1:12:441:12:47

is almost blown with new ideas and new horizons.

1:12:471:12:51

I find myself connecting more, remembering more,

1:12:561:12:59

making more links in my mind between the various things I've read

1:12:591:13:03

and learned all my life.

1:13:031:13:05

I now feel clearer, more excited, more adventurous,

1:13:081:13:13

more confident intellectually than I've ever felt in my life.

1:13:131:13:17

THUNDER CRASHES

1:13:191:13:22

There is something so totally purging about blindness

1:13:261:13:31

that one either is destroyed or renewed.

1:13:311:13:35

Your consciousness is evacuated.

1:13:391:13:42

Your past memories, your interests,

1:13:511:13:55

your perception of time.

1:13:551:13:57

Place itself.

1:14:001:14:02

The world itself.

1:14:031:14:05

One must recreate one's life.

1:14:131:14:16

In my case, fortunately,

1:14:191:14:22

I had a central core around which to recreate it.

1:14:221:14:26

That was my good fortune.

1:14:291:14:32

FOOTSTEPS

1:14:431:14:46

CANE TAPS

1:14:501:14:53

ORGAN MUSIC PLAYS

1:14:591:15:02

FOOTSTEPS APPROACH

1:15:061:15:09

You all right there, John?

1:15:121:15:14

-Anything I can help you with?

-No, I'm fine.

1:15:141:15:17

ORGAN MUSIC SWELLS

1:15:221:15:25

The whole place was just throbbing.

1:16:061:16:09

You know, you could feel the pews vibrating with it.

1:16:111:16:14

Suddenly I had the most intense feeling...

1:16:191:16:22

..that God was approaching me.

1:16:251:16:27

And I just had this vivid, vivid sense

1:16:331:16:38

of the divine presence.

1:16:381:16:41

Now, He'd come

1:16:461:16:49

sort of swooping in

1:16:491:16:52

from some great business he'd been up to, intergalactically!

1:16:521:16:56

That's ridiculous, darling!

1:16:561:16:58

Well, you know, that's how it seemed.

1:16:581:17:00

He had made a special visit.

1:17:001:17:03

And He threw a dark cloak over me.

1:17:101:17:13

And then...

1:17:211:17:22

..the most remarkable thing was...

1:17:231:17:26

..that He didn't...He couldn't leave.

1:17:281:17:31

He was there, just waiting.

1:17:311:17:33

And I said, "I'll be fine.

1:17:371:17:39

"Don't worry about me."

1:17:391:17:41

And in that pause I had a sense...

1:17:501:17:52

..of such grace...

1:17:551:17:57

..and I thought, that's it.

1:18:011:18:03

It's a gift.

1:18:031:18:05

It's not a gift I want.

1:18:071:18:10

It's not a gift that I want my children to have.

1:18:101:18:12

But it is a gift.

1:18:121:18:14

So the question is...

1:18:211:18:23

..not why have I got it, but what can I do with it?

1:18:241:18:28

WAVES CRASH

1:18:451:18:48

SEABIRDS CRY

1:18:541:18:56

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