21/08/2012 BBC Wales Today


21/08/2012

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Welcome to Wales Today. Our top story: Yvonne Briscoe from

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Flintshire has rented a flat in England so she can access the

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cancer drugs unavailable in Wales. I have paid my taxes for as many

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years as I can think of so why should some people get this drug

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Our other headlines tonight: Kate was brain damaged at birth after

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being misdiagnosed. The cost of medical negligence

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cases has doubled over the last three years.

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A tale of two head teachers working either side of the border and what

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An exhausted Matthew Maynard arrives at the Oval after cycling

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from Cardiff in memory of his son Tom. And 70 years ago tonight, the

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young Second World War pilot from Carmarthenshire who crashed in the

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Good evening. Does where you live affect the treatment you receive? A

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woman from Flintshire says she's become a health refugee in order to

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access a drug that could prolong her life. Bowel cancer patient

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Yvonne Briscoe has rented a flat in Stockport in Greater Manchester so

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she can receive the drug Cetuximab, which isn't routinely available in

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She is an unlikely looking refuge you but that is how Yvonne Briscoe

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says she feels. She has fled Wales on paper at least in order to get a

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drug that might hold her cancer at bay. They would rather be focusing

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on their dogs, getting them ready for shows, but she says that she is

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backing the system and so has the answer is renting a flat over the

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border in land -- in Manchester. They said the funding wasn't

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available for Cetuximab in Wales. How did you react to that?

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I thought, well I'm going to have to try and get this another way.

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Bristol the consultant at Christie's. He told me that I've

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got to get my MP on side to help me fight for funding in Wales. He said,

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you're only other alternative is to move to England. Ought to win the

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property in England and try and get the funding that way. -- or to rent

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a property. Christie is the largest cancer

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centre in the UK. Until now, Yvonne Briscoe's treatment has been done

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at the Ann Clwyd's much smaller centre. -- Ann Clwyd Hospital.

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Doctors they don't have access to the cancer drugs fund. It pays for

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treatments that are not fully approved by regulators.

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I want to prolong my life for as long as I possibly can.

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And you don't believe that without it, you will be able to?

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Probably not. Because it is a big step to take,

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is under it? Yes. It is a big step to take but

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anybody in my position, I think you would go all-out to fight. To

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prolong your life for as long as you possibly can.

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In a statement, the nine macros as regulators found the drug could

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potentially cost tens of thousands of pounds. The Welsh government

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All Yvonne Briscoe knows is that specialists in Manchester think it

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is worth a shot and there, unlike in Wales, they are able to try.

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Earlier I spoke to Andrew Wilson, the chief executive of the Rarer

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Cancers Foundation in London. I asked him if we really suffered

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from a postcode lottery in Wales when it comes to cancer.

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Absolutely. We produced a report earlier this year which shows that

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a patient in England is five times more likely to obtain the drug that

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there clinician wishes to prescribe than a patient in Wales.

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In a statement, the Betsi Cadwaladr Health Board said that regulators,

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not just in Wales but in England and Scotland, found this stroke

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could potentially cost tens of thousands of pounds but then only

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delay the cancer by a matter of weeks. That's true, isn't it? We

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are buying a matter of a few weeks, here.

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We may be buying a few months or a few years. Real Life data is

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completely different in a lot of cases than trial data. This has

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actually been proven in a vast number of cases. Not specifically

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for bowel cancer but for other cancers. So it is a very difficult

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answer -- question to answer. In terms of cost, yes, the cost is

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high. We all really have the right, I suppose, to the best drugs that

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are available for our illness and the time.

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Which is like saying, let's write a blank cheque to the pharmaceutical

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companies? It's not because don't forget that

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again, we are talking about end of life drugs. These drugs are third

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line at the moment, they are used at the end of life, later on, if

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they are proven to be successful, would then be used in the second

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and first line. It is an improving situation which changes.

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This isn't a drug that is approved by the National Institute of

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Clinical excellence. It is approved for use but not

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approved by a nice, that is correct. In England we have the cancer drugs

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front. This was set up in 2010 with a budget of �200 million a year.

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This fund was set up exactly for this purpose, for goods which are

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being used which are either and licensed or used when a licence has

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been granted but baby used for a different indication.

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And this is the critical difference between England and Wales? We don't

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have that funding Wales? That is correct. It has helped over

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16,000 patients in England since it started. That is a lot of people.

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Thank you. The body of a soldier from

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Llanharan was one of three to be flown back to the UK today. 20-

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year-old Jamie Shadrake died from gunshot wounds while serving with

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1st Battalion Grenadier Guards in Helmand Province last week. His

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family described him as a Over 100,000 fewer passengers flew

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from Cardiff Airport in the first half of this year - compared to the

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same period last year. The airport says the drop in passenger numbers

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is down to the decision made by BMI The cost of medical negligence

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payouts by the NHS in Wales almost doubled over the past three years,

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rising by �18 million. Figures obtained by BBC Wales show failures

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such as botched operations and misdiagnoses cost taxpayers �38

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million in the 12 months to April 2012. The rise has led the Welsh

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government to put aside an extra �16 million to cover possible

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compensation claims. Nick Palit Kate Pierce was nine months old

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when she developed pneumococcal meningitis but was wrongly

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diagnosed. A junior doctor at Wrexham Maelor hospital said it was

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tonsilitis but that mistake left her severely brain damaged.

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She has problems during a steep -- during her sleep which means that

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she stopped breathing so we need to be awake for watching her

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physically, 24 hours a day. It is a massive strain, seeing how poorly

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she is. At six-years-old, she needs round

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the clock care, both at home, and at school. Figures provided to the

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BBC for a Freedom of Information request showed cases settled by

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Betsi Cadwaladr Health Board more than doubled in the last three

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years and totalled �22.8 million - by far the largest of all Welsh

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health boards. But the increase is nationwide and across Wales more

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than 1,100 cases have been settled in the last three years by six out

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of our seven health boards. Abertawe Bro Morgannwg is still

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collating its statistics but more than �84 million was paid out by

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all the remaining health boards, that's a rise of more than �18

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million. I'm very concerned that the Welsh

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government's record-breaking budget cuts are having an impact on the

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increase in cases of these sort. It can't be a coincidence we have seen

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a doubling over the last few years over the amounts paid out whilst at

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the same time, these record- breaking budget cuts.

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The Welsh Government has had to set aside an extra �16 million for

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clinical negligence into a fund known as the risk pool. That works

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as insurance for health boards who are reimbursed for claims exceeding

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�25,000. They also say 'no win, no fee' solicitors have made claims

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larger. But one solicitor specialising in the field says

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costs have gone up for a variety of reasons.

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Life expectancies are changing and increasing significantly so

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obviously, these annual payments are made for longer. Added to that

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the cost of nursing and specialist care on a year-by-year basis. Those

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care costs have gone up and also the cost of specialist equipment,

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those costs have gone up. Meanwhile the amount of compensation Kate

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receives is still to be decided, but the family's solicitor said it

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is likely to be a seven figure sum. Clinical negligence costs the NHS

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dear but it's the victim that Patients needing emergency or

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unplanned medical care won't be able to get treatment at Neath Port

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Talbot hospital from midnight. People dialling 999 or those

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referred by their GP will instead be taken to hospitals in Swansea or

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Bridgend. The local Health Board says it's making the changes

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because there aren't enough sufficiently experienced doctors

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GCSE results are out on Thursday and all this week, we're taking an

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in depth look at the qualification system here and over the border.

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There's talk of scrapping GCSEs in England and discussions about

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whether Wales should go its own way. Our Education Correspondent, Nicola

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Smith has been to meet one couple with a unique perspective about

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what's on offer right now and what Meet Paula and Craig Dickson.

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They'll both headteachers but every morning, they leave home to run

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daily different secondary schools. Greg is in charge at a typical

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Welsh comprehensive, performing well with just under 1,000 pupils.

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Paula Dixon runs a girls' school on the Wirral. It is an academy and

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not controlled by a local authority. Different schools united by the

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fact that their pupils study GCSEs. Critics and's wary. Been --

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although he is clear he would rather be part of the Welsh

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education system, he is uncomfortable with the idea being

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discussed right no of Wales only qualifications.

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For Wales to go completely it's a way would be high risk. High risk

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for our learners, particularly in the context where we are. We have

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got to make sure that they leave us all they leave their Fe college

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with qualifications that are recognised and with the same value

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that other learners are requiring across the border so I would urge

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60 miles away, Prenton High School for girls is already in the middle

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of significant change. Since converting to academy status, it

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:12:56.:12:57.

has more freedom to opt in or out of the national curriculum.

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Headteacher Paula Dixon welcomes the new freedoms but doesn't

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believe in changing GCSEs as well. She argues they are still the best

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judge of every child's ability and is uncomfortable with the idea of

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Michael Gove to scrap the and. At the moment, we are losing our

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way a little bit. We have to go back to what it used to be like

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with O-levels, perhaps, and sees it -- and CSC's. I think that was a

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soundbite that shouldn't have happened. Everybody is being led

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off down that path and maybe it won't happen. I think they are

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changing things quickly in the English system.

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The Department for Education says fundamental reform for GCSEs is

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needed so they match the best in Back in Wales, I meet this family.

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Chloe is doing her GCSEs, Sophie has just finished her first year.

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Lee and Helen are happy that the decisions the what government is

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making on qualifications and think it is right to keep modular

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assessment at GCSE. England is dropping it for courses starting in

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September. They welcome the policy to offer at least 30 subject to

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each pupil at GCSE. Despite that support, it is funding they really

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want to talk about. Very disappointed with the funding

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available to Welsh schools. It is quite a significant amount, over

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�600 per people. There is a lot of benefits for that extra money,

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facilities available to for the children and also to go to the

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school itself. The was government serves it is

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encouraged -- it has encouraged local authorities to dig -- to

:14:42.:14:52.
:14:52.:14:55.

dedicate 85% of its budgets to School funding is a subject the

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Pierce family from Birkenhead have pretty strong views on, too. They

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are aware of the funding gap with Wales, describing the shortfall as

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grossly unfair. Holly has just finished her GCSEs but she could

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have gone to the local grammar school or comprehensives and Wales

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surprised Wales doesn't offer its peoples more choice of school.

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I think children should have a choice, not just to sort of plot

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along, thinking, I'm going to go to this or that school, when they

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should be saying, I could be going to that school but I'm going to

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look at going to another school. I think that motivates or might

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motivate the children. The Welsh government says it is

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committed to the developments of the comprehensive system, which it

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believes can ride -- provides for the needs of everyone. Two

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different governments and four viewpoints on the situation now in

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the future. Will GCSEs be part of Tomorrow night, I'll business

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correspondent will be finding out if GCSEs are preparing young people

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for the world of work. Back to tonight and much more to

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come. And 70 years ago tonight, the second world war pilot from

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Carmarthenshire who lost his life in Scotland.

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Seven years ago Rob Davies broke his back during a rugby match in

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his home town of Brecon. The accident left him permanently in a

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wheelchair. While he was in hospital, he discovered table

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tennis and has gone on to represent Great Britain around the world,

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most recently at the European Championships where he won silver.

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This will be the 28-year-old's first Paralympic Games. Carwyn

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Jones went to see him in action. It requires speed and stamina and Rob

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Davies have them both in spades. Five days a week, every week, you

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will find in training at the table. He makes it look effortless but at

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every turn, Rob is pushing his body to the limit. He even has to stop

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the racket to his wrist. Sat at a table in the wheelchair,

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you have to control the wheel chair back and forth and you have the

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skill level to use your wrist, if you can. I can only use it a little

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bit. Just using what you can, really, to play the best you can.

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And it is that defiance and perseverance that has led to a

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glittering medal tally. He has competed in the world and European

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Championships but there is one trophy in the Cabinet that gives

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you a clue to where his sporting career could have led. In his teens,

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he played rugby for his home town of Brecon and it was during a home

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match in 2005 that his life was to change forever.

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I caught my neck on the other front row's neck and felt a tingling all

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down my body. I was still holding onto the shoulders of the front row

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when it happened and I was burnt -- about to go back down into the

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scrum but I was gasping for air. They thought, something isn't right.

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Rob had broken his neck and was airlifted to hospital. In a twist

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of fate, the air ambulance had already been called to his twin

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brother, Richard, who had had a car crash just half-an-hour earlier

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while on route to Brecon to watch Rob play. Richard made a full

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recovery but his brother spent nearly a year in hospital.

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It was bad the first few months. Intensive care and things like that.

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He was fighting for survival to start with. He did really well.

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At the time, I wasn't sure what the outcome would be. I probably

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thought I was going to walk again, to be honest. I probably thought

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that for months and months after. Probably when I left drivers still

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in hope that I would walk again. It is not the case.

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Rob was first introduced to table tennis through Welsh table tennis

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medal winner, Sarah head. He took some persuading.

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He laughed at me and was like, table tennis? I was like, OK, fair

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enough. Can you not stand losing to a girl? That was it.

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And there was no turning back. A robber is now at the top of his

:19:25.:19:29.

game and although this will be his first Paralympics, he says he have

:19:29.:19:39.
:19:39.:19:39.

got the medal podium squarely in his sights.

:19:39.:19:43.

Yesterday they set off on a bike ride of a 150 miles from Cardiff to

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the Oval, a journey in memory of cricketer Tom Maynard. This

:19:46.:19:49.

afternoon his father Matthew led the 29 cyclists onto the field just

:19:49.:19:54.

ahead of a memorial match in honour of his son.

:19:54.:19:59.

A clearly emotional and exhausted Matthew Maynard. After cycling 160

:19:59.:20:05.

miles, he received his son's county cap and show it. He and another --

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a number of other people from the cricketing community, joined him on

:20:09.:20:13.

the bike ride. They left Cardiff yesterday and arrived at the Oval

:20:13.:20:17.

this afternoon before a memorial match got under way.

:20:17.:20:22.

The reason we were doing this to create the Tom Maynard Trust,

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particularly in the last hour coming into the ground, the reality

:20:25.:20:30.

at home and the emotion was palpable. Matthew has found this

:20:30.:20:34.

very challenging. Done an incredible job. Most of the

:20:34.:20:39.

cyclists, none of us will really cyclists. Navigating our way

:20:39.:20:44.

through London was a bit hairy. The cyclist rate money for a trust

:20:44.:20:48.

set up in Tom Maynard's main, to help aspiring and disadvantage

:20:48.:20:54.

cricketers. The 23-year-old was found dead at a railway track in

:20:54.:21:00.

London's Wimbledon station in June. He started his career at Glamorgan

:21:00.:21:04.

and later joined Surrey. Today his former counties met. As a tribute,

:21:04.:21:10.

they both for shirts bearing his squad number and name.

:21:10.:21:14.

He was such a great lad, it was an opportunity to put something back

:21:14.:21:20.

and do something in his memory. Tattooed on his arm, Matthew

:21:20.:21:30.

Maynard now has his son's name and the words, forever in our hearts.

:21:30.:21:35.

Surrey have just finished they innings, scoring 219 for 9 after 40

:21:35.:21:45.

overs. Glamorgan have scored a run without loss.

:21:45.:21:48.

There will be no test cricket in Cardiff next year but the Swalec

:21:48.:21:51.

Stadium is to host the opening game of the prestigious Champions Trophy

:21:51.:21:53.

between holders India and South Africa. The limited-overs

:21:53.:21:56.

competition is being held in June 2013. Five matches will be played

:21:56.:22:02.

in Cardiff including England versus New Zealand.

:22:02.:22:06.

It is I it -- it is a high six- figure sum and coupled with the

:22:06.:22:09.

one-day international next year, six international days next year,

:22:09.:22:17.

it will be an important part of our projections.

:22:17.:22:20.

This weekend's race meeting in Tregaron is the latest casualty of

:22:20.:22:23.

the wet summer. The three day trotting event draws thousands to

:22:23.:22:25.

mid Wales every year. Friday's action has been cancelled

:22:25.:22:28.

altogether. Saturday and Sunday's races will take place in the Amman

:22:28.:22:33.

70 years ago today a group of Second World War airmen set out on

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a training flight that was to end in tragedy, their plane crashing in

:22:36.:22:39.

the Cairngorm Mountains in Scotland. At the controls was pilot Sergeant

:22:39.:22:43.

John Llewelyn from Carmarthenshire. Surprisingly, much of the wreckage

:22:43.:22:47.

is still on the mountain. Kevin Keane has been up Ben Macdui, the

:22:47.:22:57.
:22:57.:22:58.

Uks second highest peak, to 4,000 ft high, on a windswept

:22:58.:23:00.

Cairngorms mountain-top and aircraft wreckage litters the

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landscape. Look at the bald. The thread is

:23:07.:23:14.

still there. It has been in these elements. That is incredible. This

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is an engine. There were two on the aircraft. There is another further

:23:18.:23:24.

up the hill. Amazing it is still here, still in the river.

:23:24.:23:28.

Over a large area, hundreds of small fragments from this crash

:23:28.:23:37.

remain where they fell, many of them still recognisable. It was an

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Avro Anson like this that crashed in the dark in 1942. Thousands were

:23:42.:23:47.

made and hundreds lost in similar circumstances. Many through pilot

:23:47.:23:52.

in experience and many through mechanical failure.

:23:52.:23:56.

There is literally hundreds of aircraft crashes or over Scotland,

:23:56.:24:03.

from the borders to Sky, to the far north. We lost so many a true, it

:24:03.:24:08.

was incredible. These were young plants, joining the air force and

:24:08.:24:12.

learning to fly. They had to fly very quickly.

:24:13.:24:18.

Piloting the plane was a young man from Carmarthen. John Llewelyn had

:24:18.:24:23.

been a successful fighter pilot but was on a training flight. His

:24:23.:24:27.

nephew, who studied the crash, believes many of the planes were

:24:27.:24:31.

not sufficiently maintained. The priority were frontline

:24:32.:24:37.

aircraft. Training aircraft were used a lot. They had a lot of

:24:37.:24:42.

accidents with them. That is the irony. It was a training accident

:24:42.:24:45.

that cost him his life. This is one of the few flights --

:24:45.:24:50.

sites in Scotland with a memorial to mark what happened here. Five

:24:50.:24:54.

people died in this crash alone. All that was recovered with the

:24:54.:24:58.

bodies. All across the UK, there are hundreds of sites just like

:24:58.:25:02.

this one, each with their own unique story to tell but each being

:25:02.:25:12.
:25:12.:25:14.

Sue Charles is down by the river Sue Charles is down by the river

:25:14.:25:21.

It is a lovely evening to be by the river. River levels quite high

:25:21.:25:25.

across Wales because we have had so much rain fall over the past couple

:25:25.:25:29.

of days. Today was a day of sunshine and showers and bravely it

:25:29.:25:33.

is more of the same tomorrow. If we take a look at the radar picture,

:25:33.:25:37.

we can see the showers today. Running diagonally from

:25:37.:25:42.

Pembrokeshire to Wrexham. Some sharp showers was thunder. Some of

:25:42.:25:46.

us avoided the showers completely. This evening, the showers should

:25:46.:25:50.

peter out. Just a few lingering. It will remain cloudy overnight and

:25:51.:25:55.

the clout acts like a blanket, holding up the temperatures.

:25:55.:25:59.

Staying in double figures right across Wales. A muddy night to come

:25:59.:26:04.

but not as muddy as recent night. Tomorrow morning, it's the story of

:26:04.:26:07.

sunshine and showers developing through the day but fewer shares

:26:07.:26:11.

than today and they will be lighter as well with more in the way of

:26:11.:26:15.

sunshine in between the showers. Quite a breezy day, particularly

:26:15.:26:20.

blustery along the coast. Strong south-westerly winds along Cardigan

:26:20.:26:25.

Bay. Top temperatures between 17 Celsius on Anglesey and 20 selfless

:26:26.:26:33.

in Cardiff. -- 20 Celsius. Thursday, another dry start to the day. It

:26:33.:26:36.

should stay fairly bright for much of the day but cloud encroaches

:26:36.:26:40.

from the West through Thursday and that is a sign of what is to come

:26:40.:26:44.

because if we take a look at the pressure charge for Friday, we see

:26:44.:26:48.

an angry area of low pressure pushing in from the Atlantic. That

:26:48.:26:53.

is holding wet and windy weather for the start of the bank holiday

:26:53.:26:57.

weekend. Wet and windy at times in the outlook for the weekend. Not

:26:57.:27:01.

looking particularly promising for Friday and Saturday. It is not

:27:01.:27:05.

looking like a complete washout for the bank holiday weekend but

:27:05.:27:08.

certainly worth making the most of any sunshine over the next couple

:27:08.:27:13.

of days for rowing or any other outdoor activities because it is

:27:13.:27:23.
:27:23.:27:23.

There is further pressure on the Chancellor George Osborne after new

:27:23.:27:27.

figures show a surprise increase in government borrowing this July.

:27:27.:27:32.

There was a deficit of �600 million at a time of year when there is

:27:32.:27:38.

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