27/05/2013 BBC Wales Today


27/05/2013

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of a ten-year-old girl from carefully have won their fight to

:00:18.:00:24.

get extra funding to pay for their daughter's help. The family wanted

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to move to a system of direct payments, available in other parts

:00:28.:00:30.

of the UK, but the local social services department couldn't agree

:00:31.:00:37.

who should pay. Ten-year-old Poppy has a condition

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called Warburg micro-syndrome. She is blind and unable to walk or talk.

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She has to be fed by a tube into her stomach. For two years, her mum and

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dad have been fighting to get more financial support to care for her at

:00:52.:00:56.

home. They want to move on to a system of direct payment used in

:00:56.:01:02.

other parts of the UK. But neither the health board or local social

:01:02.:01:07.

services would take responsibility for the cost. Because she is tube

:01:07.:01:12.

fed, and they say that needs to be done by a nurse, therefore they

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won't give us payments because they won't use part of their budget to

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pay for nursing needs. Where is the health side said that tube feeding

:01:22.:01:26.

isn't a nursing need, and anyone can do it. We featured the couple's

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struggle last month, and no social services have said they will

:01:31.:01:36.

authorise direct payments. It means the world our family. It will mean a

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better quality of the Poppy, with more help, people being able to help

:01:43.:01:49.

us get to School, Bath, maybe swim more, do therapy her and things.

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family hope that this will help other families facing the same

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battle for funding. The local MP wants the local government to look

:02:03.:02:08.

into the issue of when health board and social services claim it is the

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others job to help. Crews were called to Alexander hotel

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in London this morning after a fire started in the roof will stop no one

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was injured. The extent of the damage is confined to the top floor

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in terms of smoke and fire damage. There was a lot of water damage and

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the rest of the Hotel because there was a lot of water used to put out

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the fire, and that has had to soak down through the building, and it

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has gone through all the floors. We anticipate the hotel will be closed

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for at least four weeks. Thank God we managed to get people out of the

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building very fast through the good officers and my staff, we were able

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to get them accommodated in the nearby hotel on the promenade.

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On the opening day of the Eisteddfod in Pembrokeshire, the festival has

:02:59.:03:02.

been discussing how it should develop in the future to attract

:03:02.:03:06.

more visitors. A new fund has been set-up to encourage people to use

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Welsh services online. It wasn't the weather that the

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organiser would have wanted, but away from the mud and the mice,

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there were debates on how best to improve the Eisteddfod experience.

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It is hoped that changes will attract additional visitors dash up

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to 20,000 more each year. People tell us we need to strengthen this

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festival. Not a place passed by whilst the children compete, but to

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provide an exciting experience. You'll be beloved, with innovative

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ideas, such as a technology Pavilion, longer days, more

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performance tents, and so on. Ensuring the Welsh language thrives

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in a digital age is the aim of a new fund announced today. The minister

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responsible for the language says three quarters of �1 million will be

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made available over the next three years to help develop services on

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phones, tablet and the web. We want to in courage people do come forward

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with ideas for social media opportunities which can be developed

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through the medium of Welsh. We want to ensure that young people

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particularly have the opportunity to live their lives through the medium

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of Welsh. Just over 16,500 turned up today, down 7000 on last year's

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opening day. �1.5 million is to be spent

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protecting Welsh wildlife after a report warned wildlife was facing

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increasing pressure from climate change, loss of habitat and disease.

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Welsh Government says the money will be used to strengthen the

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environment against climate change. Some rugby news for you and the

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British and Irish Lions fly out to Hong Kong later head of their tour

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of Australia. They will play the Barbarians at the weekend before

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heading down under. 15 Welsh players are in the touring party. They have

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an extra time together, having not been involved in end of season club

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finals. The players coming into the squad are battle hardened. They are

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coming in with confidence, but a lot of the Welsh players have had two

:05:31.:05:36.

weeks together as well, and we have trained them pretty hard. We have

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got up to a level intensity and expectation, to gain awareness and

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understanding. It will be interesting to see between the two

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sets of players who hits the ground running the best.

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It has been a fairly wet and miserable day for many of us. Let's

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get a full check on the weather the bank holiday for many of us, but

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at least we have had some dry and bright weather, and the rain will

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start to clear as we go through this evening. It will slowly but surely

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move further inland and linger on along the border. The wind is much

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lighter, temperatures getting down to around six Celsius, so it will be

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a chilly night. The rain will be more stubborn the further inland you

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are. A few showers could be heavy at times. Temperatures disappointing

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for the time of year, ranging from 11 to 12 Celsius, but the wind will

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