15/03/2017 Look North (East Yorkshire and Lincolnshire)


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15/03/2017

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Good evening and welcome to BBC Look North.

:00:00.:00:00.

The headlines from us this Wednesday night.

:00:07.:00:08.

The family battling the rare brain disease that

:00:09.:00:10.

killed their mother - four out of seven of her

:00:11.:00:12.

When you tell them about Huntington's they don't know what it

:00:13.:00:25.

is. It is not very nice to have to describe to people.

:00:26.:00:28.

After hospitals lose more than 100 patient referrals,

:00:29.:00:30.

there are claims health bosses tried to keep their mistake quiet.

:00:31.:00:35.

They had been aware of some of these problems since May and June of 2016

:00:36.:00:44.

and clearly that is too long a period of time for patients to be

:00:45.:00:46.

unaware of this issue. The East Yorkshire tennis player

:00:47.:00:48.

Kyle Edmund is threatened with rape and murder on Facebook,

:00:49.:00:51.

after losing to Novac Djokovic. The threats were utterly vile but

:00:52.:01:01.

sadly all too common in this day and age. They are often made by gamblers

:01:02.:01:06.

who have lost money on the outcome of the match.

:01:07.:01:08.

And the actor Colin McFarlane takes on Lincolnshire County Council over

:01:09.:01:11.

Josh Beasley from Bridlington was ten when his mum died

:01:12.:01:31.

Anne Beasley had Huntington's Disease and it destroyed her brain.

:01:32.:01:34.

Her death brought with it a devastating realisation

:01:35.:01:37.

for the family that all of her seven children had a 50-50

:01:38.:01:40.

Last year Josh - who is now 19 - tested positive for Huntington's -

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as have three of his brothers and sisters.

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He's now trying to raise money for research into the disease.

:01:54.:01:56.

This is me who has been tested positive, Matthew has

:01:57.:02:02.

When Josh's mum had her seven children she didn't know she had

:02:03.:02:09.

She died aged just 48 and had genetically passed the disease on.

:02:10.:02:19.

Two children are clear, one is still to be tested and four,

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What I remember, it was when her movement was shaking.

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It is awful, there's not enough awareness for it, there is no cure.

:02:32.:02:39.

When you tell people, they do not know what it is.

:02:40.:02:43.

It is not nice to have to describe to people that it takes

:02:44.:02:46.

Huntington's disease is an inherited disorder that causes the death

:02:47.:02:52.

The damage to the brain leads to a gradual physical

:02:53.:02:56.

Each person whose parent has Huntington's disease

:02:57.:03:02.

has a 50-50 chance of inheriting the faulty gene responsible.

:03:03.:03:06.

Everyone who inherits the faulty gene will, at some stage,

:03:07.:03:08.

develop the disease - usually between the

:03:09.:03:12.

A lot of these young people are growing up in a family

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where they have a parent parent with the illness so

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they're watching something that may happen to them the feature, which is

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obviously quite a frightening prospect.

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You can either curl up into a ball or you can just

:03:35.:03:37.

That's what I'm trying to do and raise awareness for the disease.

:03:38.:03:41.

She says the family try to support each other.

:03:42.:03:45.

When I got my results it was such a relief,

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the straightaway after that

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That's the only thing you can do but it's always

:03:50.:03:55.

Somebody is always having a difficult time and have all got to

:03:56.:04:04.

try and pull through from each other.

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But it is really difficult because there's so many with it.

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And Josh is trying to get on with his life.

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He starts university next year and is fundraising

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Earlier I spoke to Josh, and I started by asking

:04:13.:04:18.

when he found out his mother had the disease.

:04:19.:04:20.

All my life she's had the symptoms of Huntingdon's.

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So I've only really known her since she had the symptoms.

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I've not known her before she before she

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How did you cope with losing your mum at the age of

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Obviously it's an awful thing to have to go through for anyone but

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I've got a big family and we're close and good friends.

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You have to be 18 to get your genetic test.

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I was the mindset of getting tested straightaway just for peace of mind.

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Did you think that you would end up being positive?

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It's 50-50, so it could go either way but it just

:05:04.:05:21.

thought I would like the peace of mind to know

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How have you dealt with knowing that you have

:05:25.:05:27.

Obviously it's an awful thing to have to be told that one

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day you will suffer something like that

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but I have a close family and

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It has made it easier with the fundraising

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But nobody gives you any sort of time frame?

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It could be a couple of years down the line at 20 or 40

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There's no saying when it will be, just one day

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So you need to live your life to the full?

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Does it affect you on a daily basis?

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Obviously everyone has their bad days and it's

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the same with this, you have days when you think about it more than

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Some days you just put it to the back of your mind.

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I know you're doing some fantastic fundraising.

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You have a big event coming up on the 3rd of June.

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I'm organising a charity event in Bridlington

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Will hopefully get the music down there and just raise some money for

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I wish you well for the third as well.

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The Crown Prosecution Service has confirmed that it has received files

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from eleven police forces, including Lincolnshire,

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in relation to 2015 General Election campaign expenses.

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Last year the Lincoln MP Karl McCartney said he had handed

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over the details of his expenses to the force.

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The inquiries centre on the Conservative Party's national

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The CPS will now decide if any charges should be brought.

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Mr McCartney says he's done nothing wrong.

:07:05.:07:12.

Network Rail says cancellations and delays to Hull services this

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morning were because of deliberate damage to cables.

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The company say track-side cable was placed across the tracks

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at Hessle East Junction and then a train ran it.

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Hull has been given ?5 million of extra money to help more

:07:23.:07:28.

Yorkshire Cancer Research says the city has a higher than average

:07:29.:07:32.

The funding will help diagnose cancer earlier.

:07:33.:07:39.

Hospital bosses in North Lincolnshire have been accused

:07:40.:07:41.

of hiding the fact they'd lost around one hundred

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The delay has meant some people may have had to wait months

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for urgent medical treatment because they were never put

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Our health correspondent Vicky Johnson reports.

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When Alison 's dad David had problems with his eye he was

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referred by his optician is an urgent case to Scunthorpe hospital.

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That was last April and he has still heard nothing. Yesterday the pain

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was so bad that Allison taken straight to hospital. They said

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yesterday was an ulcer behind his eye that could affect his brain. I'm

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not happy. I am upset to my dad is upset. He is a portly man and he has

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had to go into hospital which has devastated him today. -- poorly man.

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His Chevelle is one of several that have gone missing since North

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Lincolnshire adopted a new system last year. The chairman was invited

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to the scrutiny committee this morning. Two of those cases were

:08:54.:09:02.

cancer queries and they are in ongoing treatment. Patients are

:09:03.:09:09.

overseen by the GP or dentist and optician. If more specialist care is

:09:10.:09:14.

needed they are referred to a consultant at the hospital. The

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hospital is then supposed to get in touch with the patient and give them

:09:18.:09:21.

an appointment and take over the care. That is where the problem has

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happened. The details of at least 100 patients have been lost and

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never referred. Health bosses were first alerted to the problem last

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May when this surgery realised more than 50 of the patients had not been

:09:37.:09:41.

referred on. Is there no way a flagging this up? It has also been a

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puzzle how you can track your parcel to Amazon but you cannot track your

:09:50.:09:54.

patient through the MHS. Managers have chosen not to let other

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potential patients until now. It sounds like a Disney more about

:10:00.:10:02.

saving face than protecting patients. I am sorry and we have

:10:03.:10:08.

apologised to the public that this has raised its head is a problem. It

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generally hasn't been about saving face and it has been about being

:10:13.:10:19.

trying to get a definitive answer to a problem with patients who were not

:10:20.:10:24.

registered and have got the patient they deserve. The trust deals with

:10:25.:10:29.

around 90,000 patient referrals per year and most go without a hitch. As

:10:30.:10:35.

Allison Parks had dads hospital bag it has emerged that at least another

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50 patients have today contacted the hospital 's helpline about their Mr

:10:42.:10:47.

referrals. -- they're missed referrals.

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The woman who helped make this information public

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is Councillor Holly Mumby-Croft, who leads the North Linolnshire

:10:55.:10:57.

We saw her briefly in Vicky's report.

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I asked her why we were only finding out about these

:11:06.:11:08.

Clearly the trust made mention today in the health scrutiny meeting

:11:09.:11:12.

that they had been aware some of these

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problems since May/June 2016 and clearly that is too long

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a period of time for patients to be unaware of this issue.

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When did you know and would you consider yourself the

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I was made aware several days before the 6th of

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I was fully briefed at that point and my

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media release would happen on the 6th of March.

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When that didn't happen I began immediately to ask

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I then took the decision on the Wednesday, that

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would be two days after that, to invoke

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legislation to require the

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chief executive of the Northern Lincs and Goole Hospital

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Trust and chief officer of the commissioning group

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-- clinical commissioning group to attend scrutiny because I was

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sufficiently concerned that this needs to be discussed and patience

:12:09.:12:10.

needed to be represented and that will important questions need to be

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asked of these people and that that needed to be in a public

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Were it not for you forcing that I am then maybe they wouldn't have

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It is very serious. I am not in a position to comment on when or if

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the trust would have made this public. That clearly we as a health

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scrutiny panel took this very seriously, we took it seriously

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enough that for the first time we invoked the legislation and required

:12:46.:12:50.

their attendance. If the trust knows about something like this so serious

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possibly going back a year and they don't do anything about it until you

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as a whistle-blower forced their hand, what trust can people have in

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the trust? Clearly people's trust and concern will be damaged at this

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point. I think that it's logical assumption. It is our job as a

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health scrutiny panel to really strengthen the voice of our

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residents and our patients and to do everything we can to work with the

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trust and understand what has happened and get those reassurances

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that it can never, ever happen to patients again and to continue to be

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the voice of patients and hold the trust to account.

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You have heard the story. If you have been affected by this and maybe

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have been waiting for an appointment, what do you think of

:13:46.:13:48.

how this is being handled by their health bosses and the trust? What

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experience have you had? Have they already been in touch? Have you had

:13:55.:13:58.

any indication that you're one of the people who has not had a

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referral? Still ahead tonight:

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The East Yorkshire tennis player Kyle Edmund is threatened with rape

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and murder on Facebook, And the actor Colin McFarlane takes

:14:21.:14:22.

on Lincolnshire County Council over Phil Elridge took this photo

:14:23.:14:31.

of Woodhall Spa at Pet Wood Hotel. He really is off all this week and I

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gather you are doing his radio show this week. He is a skiver. I think

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maybe the award has gone to his head. Nobody is complaining. Nice to

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have you here. We got up to 16 degrees and quite a few spots in

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East Yorkshire and Lincolnshire. At the changes for tomorrow. It will

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not be as warm as the. More applied around. Not a bad day. Things will

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turn unsettled for Friday and the weekend. High has dominated our

:15:22.:15:26.

weather but lots of these areas of low pressure. Lots of France heading

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our way for Friday. Isa buyers tightly packed so some blustery

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conditions as well. It has been lovely out there, barely a cloud in

:15:36.:15:40.

the sky which helped attempt just get up to the mid teens. It will be

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a fine evening with long clear spells and remaining dry and fine

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overnight. We might see a little more cloud creep towards the end of

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the night. Temperatures falling back to around 7 degrees are a degrees. A

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light breeze. The sun will rise at around quarter past six in the

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morning and set at seven minutes past six in the evening. We will

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start the day was spells of sunshine and through the morning we will have

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the best of the sunny spells. Gradually throughout the day we will

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see a bit more cloud. Tomorrow will be a little more cloudy and breezy

:16:18.:16:22.

and more cool as well. The rain from the North will stay to the north of

:16:23.:16:25.

us until tomorrow evening and then will be very light and patchy when

:16:26.:16:32.

it arrives. 16 degrees today. It will be cooler tomorrow at around 11

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degrees 12 degrees. A cool start of the day with the touch of frost and

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places on Friday. A windy day developing with Wayne for the

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afternoon. Not a complete wash-out for the weekend. There will be some

:16:46.:16:49.

spells of wet and windy weather and really quite blustery throughout.

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The tennis player Kyle Edmund has revealed he's been threatened

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with murder and rape in messages on social media.

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The 46th ranked player in the world - who is from East Yorkshire -

:17:07.:17:10.

highlighted the posts on his Facebook page

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after being knocked out of a tournament in California.

:17:13.:17:14.

Commentators says it has become common for sport stars

:17:15.:17:16.

Sarah Walton has more on this, and just a warning there is some

:17:17.:17:20.

Kyle Edmund is seen as one of tennis's up and coming stars.

:17:21.:17:27.

But world number two Novak Djokovic proved to be too much

:17:28.:17:29.

for him at the weekend, and he was knocked out

:17:30.:17:32.

But in the hours that followed his defeat,

:17:33.:17:35.

Kyle says he received abusive messages on Facebook.

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The posts include threats of violent murder and rape

:17:38.:17:39.

as well as derogatory remarks about his appearance.

:17:40.:17:46.

And commentators say other British players have been

:17:47.:17:48.

The threats made against Kyle Edmund were utterly vile but sadly all too

:17:49.:17:52.

They are often made by gamblers who have lost money

:17:53.:17:56.

Johanna Konta has spoken about it in the past,

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She has talked about the death threats, she has received

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and the threats made against her own family.

:18:04.:18:05.

Sadly, for women, it's often far worse than it is for men,

:18:06.:18:12.

as was the case here with Kyle Edmund.

:18:13.:18:13.

Many threats contain a hint of sexual violence.

:18:14.:18:15.

Even Wimbledon winner Andy Murray has described abuse he received

:18:16.:18:18.

online as vile and no longer uses Twitter on a regular basis.

:18:19.:18:22.

The Lawn Tennis Association, the sport's governing body

:18:23.:18:25.

"Professional players are responsible for reporting acts

:18:26.:18:28.

of online bullying to the respective social media outlets.

:18:29.:18:32.

But online threats are illegal and those targeted can

:18:33.:18:35.

The Crown Prosecution Service recognises is a very serious

:18:36.:18:51.

criminal offence. Last year severe penalties were increased. The

:18:52.:18:55.

maximum sentence has gone up and is now in excess of two years. The last

:18:56.:19:01.

year so there has been a tenfold increase of police prosecuting

:19:02.:19:02.

exactly the of abuse. Kyle told Look North this morning

:19:03.:19:06.

that he won't comment any further as he has no time to spend

:19:07.:19:10.

on negative issues. He's now focusing on his next

:19:11.:19:12.

tournament in Miami People living at the Humberston

:19:13.:19:14.

Fitties chalet park near Cleethorpes say they're being kept in the dark

:19:15.:19:22.

over council plans This afternoon North East

:19:23.:19:25.

Lincolnshire Council agreed to start negotiations

:19:26.:19:28.

with an unnamed bidder. But chalet owners, who put

:19:29.:19:29.

forward their own community bid, Lincolnshire County Council has been

:19:30.:19:50.

told it must reconsider its decision to switch off streetlights overnight

:19:51.:19:57.

to save money. I have been speaking to the Hollywood actor Colin

:19:58.:20:05.

McFarlane and the crystal responsible to -- councillor

:20:06.:20:08.

responsible for the switch. Last year - people in Lincoln

:20:09.:20:11.

started to see their streetlights being switched off -

:20:12.:20:14.

at night... Then after a campaign

:20:15.:20:17.

by local residents - the lights were kept

:20:18.:20:20.

on until midnight. Across Lincolnshire -

:20:21.:20:22.

42,000 street lights are now switched off at night -

:20:23.:20:32.

with 1,000 permanently switched off...It's designed

:20:33.:20:42.

to save the County Council But it's not switched-off

:20:43.:20:45.

the criticism...Right across the county -

:20:46.:20:47.

where the lights have been adjusted People have been saying they are

:20:48.:20:58.

concerned about safety, particularly people walking alone during those

:20:59.:21:04.

times. Possibly about increased crime. Some have cited Windows in

:21:05.:21:08.

vehicles being smashed. Not everyone is

:21:09.:21:11.

against the changes - but campaigners hope

:21:12.:21:13.

the County Council The actor Colin McFarlane what a

:21:14.:21:26.

rethink on this from lecture County Council. Richard Davies is the

:21:27.:21:29.

councillor responsible for the switch. -- Lincolnshire. I asked the

:21:30.:21:36.

councillor if they put the lights back on what else would have to go.

:21:37.:21:41.

We would have less money to spend on filling potholes and taking care of

:21:42.:21:44.

the elderly and issues around schools and education would go. The

:21:45.:21:49.

fact is we talk to the public of Lincolnshire on a regular basis and

:21:50.:21:53.

we have 77 councillors covering the whole county and this is not the top

:21:54.:21:55.

priority for the people of Lincolnshire. Colin, you would

:21:56.:22:01.

rather see these other things cut? You don't need to cut other things,

:22:02.:22:05.

you just need to have a conversation with the public and that is not

:22:06.:22:09.

happening. That is what I would like to see happening and a lot of other

:22:10.:22:14.

bodies would like to see happening. We need to sit around a table and

:22:15.:22:18.

work this out. Have you had a conversation? We have been having

:22:19.:22:25.

this conversation for many years. We started this project over two years

:22:26.:22:29.

ago and has units rolled out to the vast majority of the county and by

:22:30.:22:32.

the end of the month the project will be completed. I don't think the

:22:33.:22:38.

council will actually top. Cardiff County Council had a 18 month pilot

:22:39.:22:42.

and then made a decision. There has been nothing like that and

:22:43.:22:47.

Lincolnshire. We have been piloting this Lincolnshire for nearly 20

:22:48.:22:51.

years. One of the reasons we can't convert light is a lot of them are

:22:52.:22:58.

very high efficiency. The harsh reality is I am not sure we need to

:22:59.:23:07.

start discussing temperature. I think I can make all the points I

:23:08.:23:11.

want to make so I am writing an article about this. I would love to

:23:12.:23:14.

come back and have a proper conversation. I think you're making

:23:15.:23:19.

a lot of mistakes Lincolnshire and I will come back another chat with

:23:20.:23:26.

you. The police have not seen an increase in crime in some areas it

:23:27.:23:28.

is in original action in burglary crime. -- has seen a reduction.

:23:29.:23:37.

There's not been a drop in crime and less people are going out. There is

:23:38.:23:42.

actually an increase in burglaries. It is the fear of crime and the

:23:43.:23:47.

Chief Constable has just been appointed came out and said I

:23:48.:23:51.

understand that this at the of crime in Lincoln and you need to lobby the

:23:52.:23:56.

council. I'm here to lobby the council and be the voice for those

:23:57.:24:00.

people who are unafraid to go out. It is disingenuous to say there has

:24:01.:24:03.

been an increase in crime and that is not of their reflection

:24:04.:24:11.

nationally. For you to come onto mainstream national media for you to

:24:12.:24:13.

say there is increasing crime because of this is not fair and is

:24:14.:24:17.

the kind of scaremongering we do not need healing Lincolnshire. There has

:24:18.:24:21.

not been an increase in crime. It is not fair. There is a fear of crime

:24:22.:24:26.

and that is just as valid as crime itself. But you have just said there

:24:27.:24:31.

is an increasing crime and that is not true, Colin. However you want to

:24:32.:24:37.

look at the statistics. You're scaring people and the people of

:24:38.:24:42.

Lincolnshire are a better than sound bite politics and skiers. -- and

:24:43.:24:55.

scaring them. Technology is developing and there is no national

:24:56.:24:58.

policy so councils up and down the country are all doing different

:24:59.:25:00.

things and frankly wasting a lot of money. Thank you, gentlemen. A

:25:01.:25:13.

lively debate. We are very keen for you views on this about having

:25:14.:25:16.

streetlights of light and having them done and are turned off

:25:17.:25:19.

altogether. If you want to comment we will have some comments tomorrow

:25:20.:25:21.

night. Let's get a recap of the national

:25:22.:25:24.

and regional headlines. Chancellor Phillip Hammond makes

:25:25.:25:26.

a U-turn on his budget plan to raise After Goole, Scunthorpe

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and Grimsby hospitals lose more than 100 patient referrals,

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there are claims health bosses tried Tomorrow's weather: Bright

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and sunny spells at first. But the cloud will come

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in from the northwest throughout the day -

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still mainly dry for most of it. Top temperatures in the afternoon

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will get up to around 12 Celsius. On this once to patient referrals

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being lost. Paul says he was told his referral in neurology and had

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been lost and it was only when he rang up his GP that I find out.

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Diane says surely patient's relatives should chase up

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appointments as the NHS is very busy. Pam says there is no trust and

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I I think they believe people will die and therefore bring down the

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list. Another correspondent says I'm sure many people waiting must have

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tried to chase what was going on a fobbed off with excuses or even told

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not to try as there is no time? Thank you very much for watching.

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See you later on.

:26:41.:26:45.