0:00:25 > 0:00:27SHE SINGS:
0:00:40 > 0:00:43Shimoye, can you get me two paracetamol, please?
0:01:10 > 0:01:11Love you, darling.
0:01:14 > 0:01:17HE RAPS:
0:01:26 > 0:01:27Warrs?
0:01:27 > 0:01:29WARREN: Yeah?
0:01:34 > 0:01:36- SHE GROANS - What's up?
0:01:36 > 0:01:38SHIMOYE: You OK?
0:01:38 > 0:01:40- SHE INHALES - No.
0:01:40 > 0:01:41- Why?- I'm tired.
0:01:43 > 0:01:45Well, do you not want to get up?
0:01:45 > 0:01:47Uh-uh, I don't feel like getting up.
0:01:47 > 0:01:48I'm in pain at the minute.
0:01:49 > 0:01:51Have you taken your morning pills?
0:01:51 > 0:01:53No, I needed to have a cup of tea first.
0:01:53 > 0:01:56SHE GROANS I'll make that for you.
0:01:56 > 0:01:58What kind of tea do you want?
0:01:58 > 0:02:00- The usual coffee.- OK.
0:02:05 > 0:02:08'My name is Shimoye, I'm 13 years old.
0:02:08 > 0:02:11'I've been a carer for my mum
0:02:11 > 0:02:13'for about six years.'
0:02:14 > 0:02:15MUM CALLS
0:02:15 > 0:02:16Yeah, Mum?
0:02:18 > 0:02:20'When I first started caring for her,
0:02:20 > 0:02:23'I felt happy because I knew I could look after my mum.
0:02:23 > 0:02:26'I'd be able to show my mum how much she means to me
0:02:26 > 0:02:28'and how much I do love her, and stuff.'
0:02:30 > 0:02:31'And then I felt sad at the same time
0:02:31 > 0:02:35'cos obviously I didn't get to play the child role any more, so...
0:02:35 > 0:02:39'And then I felt angry that she got the disease, and stuff.'
0:02:40 > 0:02:42Put it there, thank you.
0:02:42 > 0:02:45'She has an incurable disease called CPS,
0:02:45 > 0:02:46'which stands for...
0:02:49 > 0:02:52'She has to live with pain for the rest of her life.'
0:02:52 > 0:02:53You OK?
0:02:53 > 0:02:56No, I want to take the pill, cos my back is killing me now.
0:02:56 > 0:03:00But I need to eat. You know I can't take any of the pills
0:03:00 > 0:03:01- unless I eat, innit?- Mm-hm.
0:03:03 > 0:03:05You do the washing? You put the machine on yet?
0:03:05 > 0:03:07- Mm-hm.- Are you all right?
0:03:07 > 0:03:09- Yeah.- You look tired, babe.
0:03:09 > 0:03:11I'm very tired, but it's fine.
0:03:14 > 0:03:16'Well, it's just me and my mum, alone,
0:03:16 > 0:03:19'so I'm the main person that she has to come to whenever she's
0:03:19 > 0:03:21'in pain, or if she is worried, or she needs help,
0:03:21 > 0:03:24'or something like that.'
0:03:24 > 0:03:26Sometimes...
0:03:26 > 0:03:28my mum might be in a better mood,
0:03:28 > 0:03:31or she might be in a worse mood...
0:03:31 > 0:03:33depending on how the day is.
0:03:37 > 0:03:40SHE GRUNTS
0:03:40 > 0:03:41Are the pills kicking in?
0:03:42 > 0:03:46No, I'm feeling... I'm having a bit of a snap in my head.
0:03:46 > 0:03:47- Headache?- Yeah.
0:03:48 > 0:03:50Oh, please, not now.
0:03:51 > 0:03:53'It's scary sometimes...'
0:03:53 > 0:03:54MUM GROANS
0:03:54 > 0:03:56'..what I'm doing.
0:03:56 > 0:03:58'What on earth is going on inside her?'
0:03:58 > 0:04:00SHE GROANS
0:04:00 > 0:04:01I think I need to get up...
0:04:02 > 0:04:05..and get some fresh air, otherwise I'll...
0:04:05 > 0:04:06Do you want to go outside?
0:04:06 > 0:04:08Yeah, I don't want to be in this bed.
0:04:08 > 0:04:11Well, then you can come with me when I go to Nanny's.
0:04:11 > 0:04:13Yeah, I'll maybe do that, yeah.
0:04:13 > 0:04:14Give me a kiss.
0:04:16 > 0:04:17Give me a hug.
0:04:17 > 0:04:19MUM MOANS
0:04:20 > 0:04:23I hope I'm not hurting... Making you feel pain or anything.
0:04:23 > 0:04:24No...
0:04:25 > 0:04:27..I feel better, actually.
0:04:27 > 0:04:32# The pain I feel, yeah, is so deep
0:04:33 > 0:04:37# It squeezes my heart so bad
0:04:37 > 0:04:41# And it leaves me in a state of shock
0:04:41 > 0:04:44# Sometimes I wonder
0:04:44 > 0:04:48# What it's like for you. #
0:04:56 > 0:05:00I'll get these out, you go do your teeth. Just go. Out!
0:05:01 > 0:05:04'I'm Chloe, I care for my mum,
0:05:04 > 0:05:06'I'm 13 years old.'
0:05:06 > 0:05:08- CHLOE WHINES - Be careful, they'll still be hot.
0:05:08 > 0:05:12- I know. I have a system so you can sometimes just go.- Oh, yeah, yeah.
0:05:12 > 0:05:15Normally, it's the mother telling the child off,
0:05:15 > 0:05:17but this is sort of reversed,
0:05:17 > 0:05:20so I'm telling her off more.
0:05:20 > 0:05:22I'm just staying at home
0:05:22 > 0:05:25and going with my mum to the doctor's today,
0:05:25 > 0:05:28instead of going to school.
0:05:31 > 0:05:34'I've been doing this for as long as I can remember, really.'
0:05:36 > 0:05:40'It's got a lot harder because her condition has deteriorated.'
0:05:41 > 0:05:43Aren't you meant to wear this in bed, as well?
0:05:45 > 0:05:47No idea.
0:05:47 > 0:05:48The ankle's a bit swollen -
0:05:48 > 0:05:50I'm going to have to open it up a bit further, sorry.
0:05:50 > 0:05:52'My mum has dislocating hips,
0:05:52 > 0:05:55'a bad back and fibromyalgia.
0:05:56 > 0:05:59'Fibromyalgia is a chronic pain disease.
0:06:00 > 0:06:03'It tells your body that something really, really hurts
0:06:03 > 0:06:05'when it doesn't really hurt.
0:06:05 > 0:06:07'So, like, if somebody just tapped you,
0:06:07 > 0:06:11'it might feel like they punched you.'
0:06:12 > 0:06:13Whoa!
0:06:13 > 0:06:15There's a hole there, Mum.
0:06:15 > 0:06:18'My mum, I feel, is getting worse, not better.
0:06:18 > 0:06:20'Her conditions are deteriorating.
0:06:21 > 0:06:24'She would say there's more bad days than good days.
0:06:25 > 0:06:29'She recently developed a peanut and nut allergy,
0:06:29 > 0:06:31'so she's come to get that checked out.'
0:06:41 > 0:06:44People see the physical side, where you're tired.
0:06:44 > 0:06:46They don't ever see the emotional side,
0:06:46 > 0:06:49that it's hard on you as a person,
0:06:49 > 0:06:53because you're seeing someone you love in pain.
0:06:53 > 0:06:54How was it, Mum?
0:06:54 > 0:06:56Not too bad.
0:06:57 > 0:06:58Any new medication?
0:06:58 > 0:07:01No, but they've got to refer me to the allergy clinic,
0:07:01 > 0:07:03and I may need an EpiPen.
0:07:03 > 0:07:05INDISTINCT
0:07:05 > 0:07:07Yeah, all right.
0:07:08 > 0:07:12'It's so hard to see it getting worse,
0:07:12 > 0:07:14'so it's very important for me
0:07:14 > 0:07:19'just to have that time just to find a way of dealing with it.'
0:07:19 > 0:07:21It's cold outside.
0:07:21 > 0:07:24Couldn't you have got an appointment in the summer?
0:07:26 > 0:07:28'Things like poems and stories,
0:07:28 > 0:07:32'it gives me a chance to just let out my feelings.'
0:07:40 > 0:07:42When I'm stressed,
0:07:42 > 0:07:45I write poems in my imaginary box.
0:07:45 > 0:07:47Words are my friends.
0:07:49 > 0:07:52They comfort me when I feel alone.
0:07:52 > 0:07:54Words help me cope,
0:07:54 > 0:07:56stop me from being frantic.
0:07:57 > 0:07:59I'm surrounded.
0:07:59 > 0:08:01I'm surrounded by words.
0:08:01 > 0:08:04Surrounded by words.
0:08:07 > 0:08:10Surrounded, surrounded...
0:08:11 > 0:08:12..surrounded by words.
0:08:12 > 0:08:15# Surrounded by words. #
0:08:24 > 0:08:25'My name is Warren,
0:08:25 > 0:08:29'I'm 14, and I'm a young carer because I look after my mum.
0:08:31 > 0:08:32'My mum says I am her legs,
0:08:32 > 0:08:36'because I have to do things that Mum can't do all the time.
0:08:37 > 0:08:39'She has type 1 diabetes,'
0:08:39 > 0:08:42'which means she has no feeling in her legs and her hands.'
0:08:45 > 0:08:47- Does it hurt?- No, course it doesn't.
0:08:49 > 0:08:53'She has to inject herself with insulin every morning
0:08:53 > 0:08:55'to keep her blood sugar levels low.
0:08:58 > 0:09:01'I've been doing this for about four or five years now.
0:09:03 > 0:09:07'Well, I feel like she spent all those years looking after me,
0:09:07 > 0:09:09'I guess now it's my turn -
0:09:09 > 0:09:11'kind of like returning a favour.'
0:09:11 > 0:09:13KETTLE BOILS
0:09:16 > 0:09:18'The first time I remember my mum going to the hospital,
0:09:18 > 0:09:20'I was, like, eight,
0:09:20 > 0:09:22'and that's when I started paying more attention
0:09:22 > 0:09:24'to what I had to do for Mum.
0:09:29 > 0:09:32I guess at the beginning it was quite difficult,
0:09:32 > 0:09:35but now I'm older I'm getting quite into it.
0:09:36 > 0:09:40If her blood sugar is too low, she would usually ask me
0:09:40 > 0:09:41to get her some Lucozade,
0:09:41 > 0:09:43and if her blood sugar is too high,
0:09:43 > 0:09:47she would usually ask me to go make her a couple of cups of tea.
0:09:47 > 0:09:49- Mum?- Oh, thank you.
0:09:50 > 0:09:52- You're not even done.- Lovely.
0:09:52 > 0:09:55Can you go out to the pharmacy and get my medication?
0:10:01 > 0:10:05Even though I might not want to do it, if I say no, my mum can't go.
0:10:05 > 0:10:09Just give that to your mum, all right? Thank you very much.
0:10:11 > 0:10:12Mum?
0:10:14 > 0:10:16# When I see my mum in pain I always come around
0:10:16 > 0:10:19# But what if I'm not there? That's all I think about
0:10:19 > 0:10:21# Every second, every minute, every hour, every day
0:10:21 > 0:10:23# Every cheer, every smile, every heartache, every pain
0:10:23 > 0:10:26# We share every one of these with a special connection
0:10:26 > 0:10:29# And every bit of pain like a lovely heart infection
0:10:29 > 0:10:30# When I see my mum in pain
0:10:30 > 0:10:32# I always come around. #
0:10:34 > 0:10:37Hopefully today is going to be a...
0:10:37 > 0:10:40fun, exciting, and...
0:10:40 > 0:10:43also a much easier day than other days,
0:10:43 > 0:10:45so that, erm...
0:10:45 > 0:10:47I can look after Mum properly,
0:10:47 > 0:10:50and she's not upset, or angry, or anything like that.
0:10:54 > 0:10:55That's all right. Just do...
0:10:55 > 0:10:58I just want this... This is the most...bit.
0:10:58 > 0:11:01Just the rubbish, cos I keep stepping in it, and I don't want to.
0:11:02 > 0:11:04Cos, listen, I'm hungry, so you just oven it.
0:11:04 > 0:11:06SHIMOYE LAUGHS
0:11:07 > 0:11:10You press it. Just use here.
0:11:10 > 0:11:12- Yeah, there you go, press it. - Yay!
0:11:12 > 0:11:13Yeah, that's it - see?
0:11:15 > 0:11:18So do the other one like that. There you go, that's bigger.
0:11:19 > 0:11:23Yeah? So you can give that, say, another two minutes?
0:11:24 > 0:11:26Thank you.
0:11:26 > 0:11:29I don't like... If I cook, I don't like tasting it first.
0:11:29 > 0:11:31- Mm, that's good.- Is it nice? - It's nice.
0:11:31 > 0:11:32Yay!
0:11:32 > 0:11:34Oh, this is the dumpling you made.
0:11:34 > 0:11:36Oh, look, it turned squidgy.
0:11:36 > 0:11:38I know that.
0:11:38 > 0:11:41- When I took it, I was like, "Ugh." - No, I like it, though.
0:11:41 > 0:11:43That's, like, your signature...
0:11:43 > 0:11:45Your signature dumpling. It's juicy.
0:11:45 > 0:11:47'She can be really, really happy,
0:11:47 > 0:11:49'and then, just like that, it's just,
0:11:49 > 0:11:52'all of a sudden she's in this really super-depressed mood.'
0:11:52 > 0:11:54I don't want to talk, Shimoye, the way I'm feeling right now.
0:11:54 > 0:11:55Are you that tired?
0:11:55 > 0:11:58- Not really tired.- Ill?
0:11:58 > 0:12:00- I'm just in pain.- Oh.
0:12:05 > 0:12:07These ones.
0:12:08 > 0:12:10Mum?
0:12:13 > 0:12:15She said she was OK, but, erm...
0:12:17 > 0:12:18..I have to always double-check
0:12:18 > 0:12:20before I go to my bed or something,
0:12:20 > 0:12:23cos I obviously have to wake up early for school tomorrow.
0:12:27 > 0:12:28It's now midnight.
0:12:28 > 0:12:32I have to make tea for Mum.
0:12:34 > 0:12:38Yeah, so this is, like, the third cup of tea
0:12:38 > 0:12:40I've made for Mum.
0:12:40 > 0:12:41See?
0:12:41 > 0:12:43The kettle was still kind of warm.
0:12:45 > 0:12:48My mum woke up during the night, and I heard her,
0:12:48 > 0:12:51and then I didn't go back to sleep till I knew she was safe.
0:12:51 > 0:12:56And then I was watching, because from my bedroom...
0:12:59 > 0:13:04..I can see straight to her bedroom.
0:13:04 > 0:13:08Puts my mind at rest cos I can make sure that she's OK.
0:13:08 > 0:13:11And then I'm tired the next day for school.
0:13:14 > 0:13:18'I'm on crutches today because I've sprained by foot.
0:13:18 > 0:13:21'Sometimes my mum is in so much pain I can't even
0:13:21 > 0:13:23'give her a hug before going to school.'
0:13:23 > 0:13:25See you later, princess.
0:13:25 > 0:13:27DOG WHINES
0:13:27 > 0:13:30I suppose it's a good enough day that we can at least hug each other,
0:13:30 > 0:13:31which is good.
0:13:31 > 0:13:33OK, have a good day.
0:13:39 > 0:13:41Things are getting on top of me.
0:13:41 > 0:13:43I'm going to speak with Ms Sloan, my school nurse.
0:13:44 > 0:13:48Last night was quite hard because, erm...
0:13:48 > 0:13:50when I'm on crutches, it's hard anyway,
0:13:50 > 0:13:53and then I was worried about my mum, as well as being in pain,
0:13:53 > 0:13:54so it was quite difficult.
0:13:54 > 0:13:57- A difficult night for you, as well? - Yeah.
0:13:57 > 0:13:59At the moment, my mum's getting worse, not better,
0:13:59 > 0:14:01so it's quite hard.
0:14:01 > 0:14:03As Mum's pain is a bit worse,
0:14:03 > 0:14:06we need to make sure that we're there for you.
0:14:06 > 0:14:08And the more support you need, the more we'll give you.
0:14:08 > 0:14:13If we can get you into a place in school where you're relaxed,
0:14:13 > 0:14:17where you know that you could go and take that time out,
0:14:17 > 0:14:18and you can have fun at break.
0:14:18 > 0:14:22- Yeah.- That's what it's all about, isn't it?- Yeah.- Yeah?
0:14:25 > 0:14:28It was a lot harder than I wanted it to be today,
0:14:28 > 0:14:30but I've got through the day,
0:14:30 > 0:14:34I've powered on, and I've stayed in all my classes,
0:14:34 > 0:14:38taking all the learning I could in.
0:14:38 > 0:14:40All I have to do is think that...
0:14:42 > 0:14:45..I will have good days and bad days.
0:14:47 > 0:14:49You can never tell which one it'll be.
0:14:50 > 0:14:54I just hope tomorrow's better, not worse.
0:14:58 > 0:15:03'The pressure of balancing school and caring is quite topsy-turvy.'
0:15:05 > 0:15:08I have to stay strong not just for myself, but for my mum,
0:15:08 > 0:15:12and I'm just trying my hardest to make sure she doesn't worry.
0:15:12 > 0:15:15I don't think I'd be able to live with that.
0:15:15 > 0:15:17When my mum gets just a cold, I feel like,
0:15:17 > 0:15:19"I can't even cope with you right now."
0:15:19 > 0:15:21Do you know what I mean?
0:15:21 > 0:15:24Yeah, go on, just rip it off. Aah!
0:15:24 > 0:15:27- Ohh!- You said just rip it off, I'm sorry!
0:15:27 > 0:15:28Go on.
0:15:28 > 0:15:31Yeah, there you go. Thank you, darling.
0:15:31 > 0:15:33Kiss.
0:15:33 > 0:15:34SHIMOYE CHUCKLES
0:15:34 > 0:15:35MUM PRETENDS TO CRY
0:15:35 > 0:15:37Mummy's going to cry, give Mum a hug.
0:15:37 > 0:15:39Ahh...
0:15:39 > 0:15:42I love you, thank you.
0:15:42 > 0:15:45'Having the roles switched, so the child having to be
0:15:45 > 0:15:48'the carer of the adult, what you lose is being able to have a
0:15:48 > 0:15:53'normal childhood and having someone that you can depend on.
0:15:53 > 0:15:55'But from that, you gain the independence,
0:15:55 > 0:15:59'the ability to do certain things that you didn't think you could,
0:15:59 > 0:16:02'and being self-reliant.
0:16:02 > 0:16:05'Having to deal with emotions, you're able to control them
0:16:05 > 0:16:08'and become a stronger person, being able to not just be
0:16:08 > 0:16:10'strong for yourself, but also for the parent
0:16:10 > 0:16:12'that you look after.
0:16:14 > 0:16:16'Balancing schoolwork, housework and everything,
0:16:16 > 0:16:18'it is a difficult task.'
0:16:18 > 0:16:22That's just my job. I have to get through the good times and the bad.
0:16:24 > 0:16:28'Today, I'm going with my mum to see an eye specialist,
0:16:28 > 0:16:30'because her condition is getting worse.'
0:16:30 > 0:16:32So, if you look at my left ear now.
0:16:34 > 0:16:37Things have looked a little bit more bearable this year.
0:16:37 > 0:16:40There is a risk of you losing your central vision.
0:16:40 > 0:16:43You do have to be conscious of that going forwards, I'm afraid.
0:16:49 > 0:16:52'It worries me a lot if her eyesight continues to get bad.
0:16:54 > 0:16:57'Driving is a very big part of Mum's life.
0:16:57 > 0:16:59'She really doesn't like public transport,
0:16:59 > 0:17:02'especially with her bad leg, having to stand around a lot.'
0:17:02 > 0:17:04Cheers.
0:17:04 > 0:17:06Are you worried that I might go blind,
0:17:06 > 0:17:08and then I wouldn't be able to take you anywhere?
0:17:08 > 0:17:10- Does that bother you? - Yeah.
0:17:14 > 0:17:18'To be able to go out skating takes a huge weight off my shoulders.'
0:17:21 > 0:17:23# Skating down ramps, jumping off gaps
0:17:23 > 0:17:25# Shooting basketball or playing PS4
0:17:25 > 0:17:28# These are things I do when my mum's not telling me
0:17:28 > 0:17:30# To go make food or make some tea
0:17:30 > 0:17:32# When the day is through this is how I kick back
0:17:32 > 0:17:34# This how I relax, then I do an ollie
0:17:34 > 0:17:36# And kick back into a kickflip
0:17:36 > 0:17:38# This is it and this is how I chill. #
0:17:42 > 0:17:43Oh, no.
0:17:43 > 0:17:45Warrs?
0:17:45 > 0:17:48Wait, Mum, can I have, like, five minutes, and then I'll go?
0:17:49 > 0:17:51Er...maybe.
0:17:51 > 0:17:52What do you mean, "Maybe"?
0:17:52 > 0:17:54My friends are getting really annoyed
0:17:54 > 0:17:57cos I keep leaving...
0:17:57 > 0:18:00every time we finally get somewhere in the missions,
0:18:00 > 0:18:01I have to leave.
0:18:03 > 0:18:05Oh, careful, son! Thank you.
0:18:05 > 0:18:07Thank you very much.
0:18:12 > 0:18:14'I feel like sometimes it does get too much,
0:18:14 > 0:18:17'and I just have to take some time out.
0:18:18 > 0:18:21Is there something that upset you this week, Chloe?
0:18:21 > 0:18:23My mum had this really bad day where she couldn't walk
0:18:23 > 0:18:26or use her legs at all,
0:18:26 > 0:18:30so she had to, like, crawl around the house,
0:18:30 > 0:18:34and I had to carry everything in for her cos she couldn't hold anything.
0:18:34 > 0:18:35So it was quite hard.
0:18:38 > 0:18:42Sometimes I feel when we go out to play, when I feel Mum's
0:18:42 > 0:18:45having a bad day, then you're not your joyful self and that.
0:18:45 > 0:18:47It's cos I'm not really thinking about...
0:18:47 > 0:18:49Maybe thinking about my mum, and...
0:18:49 > 0:18:52- what if she falls or something? - Yeah.
0:18:52 > 0:18:54Push, foot, up.
0:18:56 > 0:19:00I don't know if everything is going to be the same when I go home.
0:19:03 > 0:19:06Life, for me, is a roller-coaster.
0:19:09 > 0:19:11I've got used to its ups and downs.
0:19:14 > 0:19:16This happens to me every day.
0:19:17 > 0:19:19Lean and grab.
0:19:19 > 0:19:22'Within a minute, my feelings can change.'
0:19:25 > 0:19:27I just don't know what's coming next.
0:19:30 > 0:19:33I don't know if everything's going to be the same when I go home.
0:19:37 > 0:19:38Chloe, darling.
0:19:55 > 0:19:58This is the evening medication.
0:20:03 > 0:20:08Most of them are the same amount each day.
0:20:08 > 0:20:12I think I worked it out to be about 36 tablets in a day.
0:20:12 > 0:20:14On a good day.
0:20:16 > 0:20:18On a bad day, I think it's about...
0:20:18 > 0:20:20- 42 or something? - Something like that, yeah.
0:20:22 > 0:20:24- Shimoye?- Yeah?
0:20:27 > 0:20:29What happened last night?
0:20:29 > 0:20:31- I felt like I was having a stroke, to be honest.- Really?
0:20:31 > 0:20:33I called the doctor this morning,
0:20:33 > 0:20:38and they said that I need to watch myself for the rest of the day.
0:20:38 > 0:20:42I want you now to just, kind of, focus on me, like, for the day.
0:20:42 > 0:20:44I know how to check if you have a stroke.
0:20:44 > 0:20:47- You know how to do it? - I learnt at school.
0:20:47 > 0:20:49You aren't tipsy or topsy-turvy or anything?
0:20:49 > 0:20:52- No.- So, they're fine. - OK, and what else?
0:20:52 > 0:20:54- You're speaking to me normally right now.- OK.
0:20:54 > 0:20:56- Yeah, well, I was doing this... - MUM MUMBLES
0:20:56 > 0:21:00Yes, it's best if you exercise your face, so that it doesn't, like...
0:21:00 > 0:21:02Yeah, like this, you mean. That's it.
0:21:02 > 0:21:05I just need for you to just look... Look me in the eyes,
0:21:05 > 0:21:08- say, "Mum, you're sick." - MUM CHUCKLES
0:21:08 > 0:21:11- Oh, baby. - I know you'll be fine.
0:21:11 > 0:21:14I will be fine. I just don't want you worry.
0:21:16 > 0:21:18'If I'm feeling upset, I'd listen to music.
0:21:18 > 0:21:21'If I'm happy, I want to listen to music.
0:21:21 > 0:21:22'If, like, whatever I'm doing,
0:21:22 > 0:21:26'most of the time I feel, like, the need to listen to music.'
0:21:28 > 0:21:31You know what? This is what I need to do more often, like, fun.
0:21:31 > 0:21:33- You know when I used to come out and walk?- Mm-hm.
0:21:33 > 0:21:35It's because I kind of get...
0:21:35 > 0:21:37The pain kind of prevents me from wanting to come out.
0:21:37 > 0:21:39You just sort of...
0:21:39 > 0:21:41don't want to see anyone, really.
0:21:41 > 0:21:45'There's always that one song that expresses how you feel
0:21:45 > 0:21:46'on a day-to-day basis.
0:21:46 > 0:21:49'It's like a waterfall of feelings that just flow out of you
0:21:49 > 0:21:51'once you listen to it.'
0:21:51 > 0:21:52- You're playing Transformer.- What?
0:21:52 > 0:21:54No, I'm not!
0:21:54 > 0:21:55# I can transform... #
0:21:55 > 0:21:58- Isn't that what's playing?- No. - All right, let me hear.
0:21:58 > 0:21:59- You don't know the song.- OK.
0:22:01 > 0:22:04# My life is surrounded by sound
0:22:05 > 0:22:10# It makes me so happy to hear it
0:22:10 > 0:22:13# Sound waves post through my ears
0:22:13 > 0:22:17# So close I can feel it
0:22:19 > 0:22:27# All I love to do is be surrounded by sound
0:22:27 > 0:22:29# Surrounded
0:22:29 > 0:22:31# Surrounded
0:22:31 > 0:22:35# Surrounded by sound. #
0:22:41 > 0:22:44# I got my angel now
0:22:44 > 0:22:47# It's like I've been awakened
0:22:47 > 0:22:50# Every rule I had you breaking
0:22:50 > 0:22:54# I'm surrounded by your embrace
0:22:54 > 0:22:56# I can see your halo
0:22:56 > 0:22:57# Halo
0:22:57 > 0:22:59# Halo
0:22:59 > 0:23:00# Oooh. #
0:23:00 > 0:23:03Can you massage Mum's feet for me, darling?
0:23:03 > 0:23:04Yeah.
0:23:06 > 0:23:08'Caring for my mum for most of my life,
0:23:08 > 0:23:11'I feel like that's bonded us a lot closer together.'
0:23:12 > 0:23:15- Doing that just helps to get the circulation going.- Yeah.
0:23:17 > 0:23:20'I've seen her in, like, almost any scenario, happy, sad...'
0:23:20 > 0:23:22Keep going.
0:23:22 > 0:23:24'..angry, in pain,
0:23:24 > 0:23:26'and I don't feel like a lot of other kids
0:23:26 > 0:23:28- 'would understand that...' - That's it.
0:23:29 > 0:23:33'..to see their mother unwell or in so much pain as my mum has been.'
0:23:34 > 0:23:36Amazing.
0:23:36 > 0:23:38The doctors would be proud of you.
0:23:40 > 0:23:41Warrs, can you make Mum a cup of tea?
0:23:41 > 0:23:42HE MOANS
0:23:42 > 0:23:46Just boil the kettle and top this up for me, please.
0:23:47 > 0:23:49Warren, you're going to spill my tea.
0:23:49 > 0:23:51I'm not going to spill it.
0:23:51 > 0:23:54Five years of tea balancing, I know what I'm doing.
0:23:54 > 0:23:56SHE LAUGHS
0:23:57 > 0:23:59Thank you, son!
0:24:00 > 0:24:03I'm wondering whether this snow they're talking about
0:24:03 > 0:24:04is going to happen.
0:24:04 > 0:24:06It's got to drop to at least zero.
0:24:08 > 0:24:10If necessary and I have to stay inside,
0:24:10 > 0:24:12we could somehow get round it.
0:24:12 > 0:24:14- Or put skis on my wheelchair.- Yeah!
0:24:14 > 0:24:16That would be funny.
0:24:17 > 0:24:19You're quite special.
0:24:20 > 0:24:23And if it wasn't for you, my life would be really boring.
0:24:24 > 0:24:26Really normal.
0:24:26 > 0:24:27Oh, thanks, darling.
0:24:40 > 0:24:43# My mum's a friend, a close friend
0:24:43 > 0:24:46# It's painful to see her like this
0:24:46 > 0:24:49# Like being punched in the heart
0:24:49 > 0:24:51# I wonder what it's like for her
0:24:51 > 0:24:55# Every second, every minute of every day
0:24:58 > 0:25:02# People say it won't make a difference to me how she feels
0:25:02 > 0:25:04# But they're wrong
0:25:04 > 0:25:09# When you're that close, even one tear of theirs can make you cry
0:25:09 > 0:25:12# Especially me and my mum
0:25:12 > 0:25:15# Seeing her in agony is painful in itself. #
0:25:21 > 0:25:23Since there's only been two of us,
0:25:23 > 0:25:25Mum has always been very special to me.
0:25:25 > 0:25:27She's the only parent that I've had that's been
0:25:27 > 0:25:29there for, like, everything.
0:25:30 > 0:25:32Even though my dad doesn't live with me,
0:25:32 > 0:25:35I still see him a lot, and he's still, like, a really great dad.
0:25:35 > 0:25:38It would have been good if he was here, but he's not.
0:25:39 > 0:25:42It puts a lot more pressure and, like, work onto me.
0:25:45 > 0:25:47What would I do without you?
0:25:47 > 0:25:48We're such a team.
0:25:51 > 0:25:53# 14 and I'm still getting through it
0:25:53 > 0:25:55# It's not hard when you were born to do it
0:25:55 > 0:25:57# I'm not saying it's an easy life
0:25:57 > 0:25:59# But it's a life that's worth the fight
0:25:59 > 0:26:02# Stress, agony, pain, I guess it's OK when
0:26:02 > 0:26:03# You know they're OK
0:26:03 > 0:26:05# Normal life's just supposed to be this way
0:26:05 > 0:26:07# But I guess it's OK You know what I'm saying?
0:26:07 > 0:26:09# She needs me like a student needs a teacher
0:26:09 > 0:26:11# We go together like a church and a preacher
0:26:11 > 0:26:13# She needs me when she's happy or sad
0:26:13 > 0:26:15# I guess being a carer ain't that bad. #
0:26:17 > 0:26:19'Today, I'm going to visit my nan.
0:26:21 > 0:26:23'She's one of the most caring people I've seen.
0:26:23 > 0:26:25- Stop it! - 'She's a big role model.'
0:26:25 > 0:26:27And what about me?
0:26:27 > 0:26:28NAN LAUGHS
0:26:29 > 0:26:32'I just want to see my mum happy, genuinely.
0:26:32 > 0:26:34'It's hard to know she's in pain because
0:26:34 > 0:26:36'she's so good at blocking it out.'
0:26:36 > 0:26:37NAN LAUGHS
0:26:37 > 0:26:40'Her being happy, it's just nice to see cos then I know
0:26:40 > 0:26:42'she's OK for the time being.'
0:26:44 > 0:26:48# The role I have as a carer
0:26:49 > 0:26:52# It isn't hard at all
0:26:52 > 0:26:57# I see these things every day
0:26:57 > 0:27:00# They're like obstacles rolling my way
0:27:00 > 0:27:04# I know the strength I have. #
0:27:07 > 0:27:09'There's big news in my life.
0:27:09 > 0:27:12'My mum's boyfriend, Steve, has moved in.'
0:27:12 > 0:27:15- Here you go, Steve, these are for you.- Thank you.
0:27:15 > 0:27:17'I'm quite pleased with how it's worked out.
0:27:17 > 0:27:20'Having him round makes it easier for me,
0:27:20 > 0:27:24'and it's made my mum happy, and she hasn't been happy for a while
0:27:24 > 0:27:26'cos of her condition, and she's just so excited about it.
0:27:28 > 0:27:31'It's nice to see her happy with someone.'
0:27:31 > 0:27:33# Take a look at my life
0:27:35 > 0:27:38# It's different, but it's great
0:27:38 > 0:27:40# I can't always have a kid's life
0:27:43 > 0:27:44# But this my fate
0:27:46 > 0:27:48# We're helping others through life
0:27:49 > 0:27:52# These are the cards we were dealt
0:27:53 > 0:27:55# If we play them right, we could win
0:27:59 > 0:28:02# We are determined to win. #
0:28:05 > 0:28:07Ah, sorry!
0:28:07 > 0:28:08LAUGHTER
0:28:08 > 0:28:10Oh, I'm sorry.
0:28:10 > 0:28:11Right, OK!
0:28:16 > 0:28:18Oh, finally!
0:28:18 > 0:28:19- That was great.- Ah!