0:00:16 > 0:00:18MUSIC: Lose Yourself by Eminem
0:00:18 > 0:00:20I'm Grace, and I love running.
0:00:20 > 0:00:24I'm about to take part in the most important race of my life,
0:00:24 > 0:00:27but I'm facing an extra challenge.
0:00:27 > 0:00:29I have a lung disease called cystic fibrosis.
0:00:31 > 0:00:33I'm Cerys, and I love music.
0:00:33 > 0:00:36I'm preparing for the most important exam of my life.
0:00:36 > 0:00:38I have cystic fibrosis too...
0:00:38 > 0:00:40- And breathe out. - SHE EXHALES
0:00:40 > 0:00:41..and have my own big challenge -
0:00:41 > 0:00:45to take more responsibility for my medications.
0:00:45 > 0:00:48It's hard for us to do the things that other kids do.
0:00:48 > 0:00:50- We have loads of treatments. - SHE EXHALES
0:00:50 > 0:00:53We sometimes spend weeks in hospital.
0:00:53 > 0:00:56And we take mountains of medicine.
0:00:56 > 0:01:00But we are determined not to let cystic fibrosis get in our way.
0:01:00 > 0:01:03- BOTH:- So, to prepare for the challenge of our lives...
0:01:03 > 0:01:05Come on, Grace, really give it everything!
0:01:05 > 0:01:07..we take a deep breath.
0:01:07 > 0:01:10MUSIC: Roar by Katy Perry
0:01:10 > 0:01:11This is my family -
0:01:11 > 0:01:14my mum, brother and dad.
0:01:14 > 0:01:16He's a runner too.
0:01:16 > 0:01:19I love running because there's always something to aim for -
0:01:19 > 0:01:21to get a new PB or to try and win a race.
0:01:21 > 0:01:24CHEERING AND APPLAUSE I've joined a running club.
0:01:24 > 0:01:26We've been training really hard.
0:01:26 > 0:01:30In the summer, we do track and 1,500m, 800m,
0:01:30 > 0:01:35and, in the winter, we do seriously muddy cross-country, which is great.
0:01:35 > 0:01:38This is my room and these are my trophies,
0:01:38 > 0:01:41and I think this is the one that I'm most proud of
0:01:41 > 0:01:45cos it's from the Brighton Mini Mile two years ago,
0:01:45 > 0:01:47which was then.
0:01:47 > 0:01:48I wasn't expecting to win it.
0:01:48 > 0:01:50I had never done any running before,
0:01:50 > 0:01:53and then I won and I was, like, flabbergasted,
0:01:53 > 0:01:57and so, the next year, I entered it again, but I was a year older,
0:01:57 > 0:01:59and therefore in a higher age group,
0:01:59 > 0:02:02and came second, which I was really proud of.
0:02:02 > 0:02:04This race inspired me to become a runner
0:02:04 > 0:02:07and it's my last year at under-13.
0:02:07 > 0:02:09I've got a lot to prove to myself.
0:02:09 > 0:02:11MUSIC: Fight Song by Rachel Platten
0:02:11 > 0:02:15This is the race I really want to win more than any other race.
0:02:15 > 0:02:18Obviously, because of my cystic fibrosis
0:02:18 > 0:02:22I have lots obstacles to overcome, but I always carry on with training
0:02:22 > 0:02:24because I just don't want it to control my life.
0:02:24 > 0:02:26I just want to forget about it and move on.
0:02:26 > 0:02:29And...action!
0:02:29 > 0:02:31I'm Cerys and I love music.
0:02:31 > 0:02:33Come on, now, go to bed.
0:02:33 > 0:02:34This is my mum...
0:02:34 > 0:02:35A coiled spring!
0:02:35 > 0:02:37..and this is my dad.
0:02:37 > 0:02:39I play three instruments -
0:02:39 > 0:02:42the tenor horn, the piano and the trombone -
0:02:42 > 0:02:45and these are my music certificates.
0:02:45 > 0:02:48Quite a lot of work has gone into all of these.
0:02:48 > 0:02:50I've been playing music
0:02:50 > 0:02:51since I was tiny
0:02:51 > 0:02:53but I've got some big challenges ahead.
0:02:53 > 0:02:57I've got my Grade Five trombone exam coming up.
0:02:57 > 0:03:00Having CF, it's kind of like an extra obstacle for me to pass
0:03:00 > 0:03:04because sometimes I can get out of breath quicker
0:03:04 > 0:03:06playing my instruments than other people would,
0:03:06 > 0:03:10especially if I'm not healthy and I'm not well.
0:03:10 > 0:03:13On top of that, I've got a concert to prepare for,
0:03:13 > 0:03:15and there's an added pressure.
0:03:15 > 0:03:18On the concert day, I'll have to take quite a lot of medication,
0:03:18 > 0:03:22and this is the very first time I'll be doing all of it on my own.
0:03:22 > 0:03:26I have done bits of it before, but not for the whole day.
0:03:26 > 0:03:28I kind of know what to do -
0:03:28 > 0:03:32it's just that responsibility, as well.
0:03:32 > 0:03:35So, as I prepare for the exam and concert...
0:03:35 > 0:03:37..and I get ready for my race,
0:03:37 > 0:03:39we can never escape our cystic fibrosis.
0:03:39 > 0:03:41MUSIC: Pompeii by Bastille
0:03:41 > 0:03:44We were born with this lung disease. You can't catch it.
0:03:44 > 0:03:48People with Cystic Fibrosis - CF - look like everybody else,
0:03:48 > 0:03:51even though we have a very serious condition.
0:03:51 > 0:03:55It causes our bodies to create thick mucus in our lungs.
0:03:56 > 0:03:58This can make it hard for us to breathe.
0:03:58 > 0:04:01- HEAVY BREATHING - It can make us sick and tired
0:04:01 > 0:04:04and sometimes we have to stay in hospital.
0:04:04 > 0:04:08There isn't a cure but there are lots of treatments we can do.
0:04:08 > 0:04:10These treatments keep us alive.
0:04:12 > 0:04:16If I'd, like, known what it was like without CF,
0:04:16 > 0:04:19I'd probably feel a lot more, like, depressed all the time
0:04:19 > 0:04:22but cos I, just, like... That's just how it is
0:04:22 > 0:04:25and I don't really know what it's like not to have it,
0:04:25 > 0:04:28it's just kind of, like, normal.
0:04:28 > 0:04:31I don't like having CF, but I can't let it beat me,
0:04:31 > 0:04:36and I want to life as normal a life as I can, as possible.
0:04:37 > 0:04:40'There are lots of things we have to do every single day
0:04:40 > 0:04:44'to fight our cystic fibrosis, including using a nebulizer.
0:04:45 > 0:04:48'This machine turns my medicine into a mist
0:04:48 > 0:04:51'which I breathe deep into my lungs.
0:04:51 > 0:04:53'It helps loosen the mucus that's stuck inside.'
0:04:55 > 0:04:58It's quite boring and repetitive.
0:04:58 > 0:05:01'And that's just the start of it! Next, I do physio.
0:05:03 > 0:05:07'This is a series of lung exercises that shakes up the mucus inside,
0:05:07 > 0:05:10'and no, my mum's not hitting me -
0:05:10 > 0:05:13'she's helping stop the mucus from settling and getting infected.'
0:05:13 > 0:05:15Higher, higher. Good girl.
0:05:15 > 0:05:17'By the time I've got to school,
0:05:17 > 0:05:22'I've already done an hour and a half's worth of CF-related things.'
0:05:22 > 0:05:26It wastes time and you can't, like, just be, like,
0:05:26 > 0:05:28free like everyone else.
0:05:28 > 0:05:32I'm really happy because I've done my two sessions of physio
0:05:32 > 0:05:34so I won't have to do any more for today.
0:05:34 > 0:05:36- Apart from this. - SHE SCREAMS
0:05:36 > 0:05:42I use nebulizers too, but my physio is a little bit different.
0:05:42 > 0:05:45Well, this is my physio vest... MACHINE RUMBLES
0:05:45 > 0:05:47..and, basically, it shakes a lot and it's really loud,
0:05:47 > 0:05:49erm, so, erm... HER VOICE VIBRATES
0:05:49 > 0:05:52..and it, basically, just, like.. getting up all the mucus
0:05:52 > 0:05:55and stopping it from settling right at the bottom of my lungs.
0:05:55 > 0:05:58It's really weird, and if I have it after I've eaten,
0:05:58 > 0:06:00it makes me feel a bit sick, obviously.
0:06:00 > 0:06:03I have to do it twice a day, normally for about 25 minutes.
0:06:03 > 0:06:06It kind of, erm, aches,
0:06:06 > 0:06:09and it makes your back a bit achy and stuff after a while.
0:06:09 > 0:06:12I have to do some treatment before school
0:06:12 > 0:06:16and then some after school, and it means I have to get up quite early.
0:06:16 > 0:06:19It's quite hard to fit around homework and things.
0:06:19 > 0:06:22We depend on a lot of other medicines too.
0:06:22 > 0:06:25And this is my medicine cupboard.
0:06:25 > 0:06:27# Yeah-eah-eah-eah Yo... #
0:06:27 > 0:06:30This is my Salbutamol inhaler.
0:06:30 > 0:06:32This one's my Creon tablets.
0:06:32 > 0:06:33This is Gaviscon...
0:06:33 > 0:06:35These are my Azithromycin tablets.
0:06:35 > 0:06:37- ..my Movicol...- Salt tablets.
0:06:37 > 0:06:39..antibiotics...
0:06:39 > 0:06:40Omeprazole tablets.
0:06:40 > 0:06:42..and this is my Montelukast...
0:06:42 > 0:06:43Vitamin E tablets.
0:06:43 > 0:06:46..and this is my other antibiotics.
0:06:46 > 0:06:48Vitamin A and D capsules.
0:06:48 > 0:06:49This is my Domperidome...
0:06:49 > 0:06:52That goes in the nebulizer.
0:06:52 > 0:06:54..and this is probably the biggest pill I have to take,
0:06:54 > 0:06:56and it absolutely stinks.
0:06:56 > 0:07:01The one I dislike the most is this one, which is my salt neb.
0:07:01 > 0:07:05It makes me gag and cough a lot whilst I'm having my physio,
0:07:05 > 0:07:07so I don't really like that.
0:07:07 > 0:07:11That's about 2,700 pills a month between both of us.
0:07:16 > 0:07:20Playing my brass instruments is like a treatment for my CF as well
0:07:20 > 0:07:23because when I blow into the instruments,
0:07:23 > 0:07:27it can help with my lungs and help it get any yuck off my chest,
0:07:27 > 0:07:28a bit like physio.
0:07:28 > 0:07:31I still need to do the physio treatment, just to make sure,
0:07:31 > 0:07:34but the brass does help a lot.
0:07:34 > 0:07:35I love brass anyway.
0:07:35 > 0:07:38I still think I'd still play it if I didn't have CF.
0:07:38 > 0:07:41It's kind of lucky that playing brass instruments does help as well.
0:07:43 > 0:07:46'My best friend Evie is in my orchestra too.
0:07:46 > 0:07:48'She knows all about my cystic fibrosis
0:07:48 > 0:07:52'and how I want to do my own treatments on concert day.'
0:07:52 > 0:07:53It's, like, a really big step
0:07:53 > 0:07:55because I'll have to take my nebulizer
0:07:55 > 0:07:57for the first time on my own.
0:07:57 > 0:07:59Would you come and help me with that?
0:07:59 > 0:08:02Yeah, sure, I'll always be there for you when you need.
0:08:02 > 0:08:05As a friend, I need to know, like, correctly,
0:08:05 > 0:08:08what I need to do with you, because I don't want to go wrong.
0:08:08 > 0:08:12Erm, well, I've learnt how to put my nebulizer together
0:08:12 > 0:08:14and do all the medicine and things,
0:08:14 > 0:08:17but it would be really nice if you could just supervise me
0:08:17 > 0:08:21- and make sure I don't feel lonely and just chat to me.- Yeah.
0:08:21 > 0:08:23OK, I'll just make sure that you don't feel nervous
0:08:23 > 0:08:25about doing it on your own.
0:08:25 > 0:08:26OK, thanks.
0:08:29 > 0:08:33I haven't really told anybody at my running club about CF.
0:08:33 > 0:08:34I didn't really tell them
0:08:34 > 0:08:36because I just didn't want to make a big thing about it
0:08:36 > 0:08:40and I just didn't really want to be, like, different from everybody else.
0:08:41 > 0:08:44'But, as my big race approaches, I've decided it's time to
0:08:44 > 0:08:47'tell my friend and running partner, Betty,
0:08:47 > 0:08:49'so we're heading out for a pizza.'
0:08:50 > 0:08:52Yeah, they've got better players but...
0:08:52 > 0:08:54'OK, I've got to spit it out.'
0:08:54 > 0:08:57- ..there's something about the way they play.- 'Here goes nothing.'
0:08:57 > 0:09:01- I have a chest condition called cystic fibrosis...- Oh.
0:09:01 > 0:09:03..and, if I get a cough or something,
0:09:03 > 0:09:05it can get really bad really quickly.
0:09:05 > 0:09:07Then, sometimes, I have to go into hospital to get...
0:09:07 > 0:09:09To have, like, more... Erm, like...
0:09:09 > 0:09:13- Attention and, just, yeah...- Yeah, like more antibiotics and things.
0:09:13 > 0:09:16How did you get the condition? Were you just born with it?
0:09:16 > 0:09:18Yeah, it's genetic,
0:09:18 > 0:09:20so, like, if one of my parents has one of the genes...
0:09:20 > 0:09:22- Oh.- ..and then my other...
0:09:22 > 0:09:25and then my other parent also has it, then it's quite likely that...
0:09:25 > 0:09:27- You'll... OK.- Yeah.
0:09:27 > 0:09:31'I was really, really nervous before I told Betty about CF, but'
0:09:31 > 0:09:32I think it went well.
0:09:32 > 0:09:36I like the way she, kind of, didn't make a big deal about it.
0:09:36 > 0:09:39Like, she was curious, but it wasn't like a huge thing.
0:09:39 > 0:09:42'It feels good to have told Betty about my condition,
0:09:42 > 0:09:44'but the one thing I'd love to do, but can't,
0:09:44 > 0:09:47'is sit and chat with someone who actually has CF -
0:09:47 > 0:09:50'someone who knows what it's really like.'
0:09:50 > 0:09:53It's not a good idea for two people with CF to meet
0:09:53 > 0:09:56because there's a risk of cross-infection.
0:09:56 > 0:09:58This means we might pass bugs to each other,
0:09:58 > 0:10:00which could make us ill,
0:10:00 > 0:10:03so, no matter how much we want to meet...
0:10:03 > 0:10:05..cystic fibrosis will always get in the way.
0:10:06 > 0:10:09'But Cerys and I have found a solution -
0:10:09 > 0:10:11'we'll chat through our computers!' COMPUTER BEEPS
0:10:11 > 0:10:13Here we go!
0:10:13 > 0:10:14Hello.
0:10:14 > 0:10:16Hi. How are you?
0:10:16 > 0:10:18I'm good. How about you?
0:10:18 > 0:10:19Yeah, cool.
0:10:19 > 0:10:23'It's great to speak to someone dealing with the stuff as me.'
0:10:23 > 0:10:26Do you have to go into, erm, hospital that much?
0:10:26 > 0:10:30Erm, well, the last time was about a year ago,
0:10:30 > 0:10:32a year and a bit ago.
0:10:32 > 0:10:33How about you?
0:10:33 > 0:10:36Erm, well, I went in just before Christmas.
0:10:36 > 0:10:39Were you in hospital over Christmas, then?
0:10:39 > 0:10:41Erm, no, it was just before, luckily,
0:10:41 > 0:10:42so I got back from hospital
0:10:42 > 0:10:44just to have the last two weeks of school
0:10:44 > 0:10:45before Christmas holidays.
0:10:45 > 0:10:48Do you find it hard to go on sleepovers and stuff
0:10:48 > 0:10:50and, like, fitting it around, like, treatments?
0:10:50 > 0:10:53Yeah, last time I went on a sleepover,
0:10:53 > 0:10:55I had to do physio,
0:10:55 > 0:10:57and all my friends wanted to know,
0:10:57 > 0:11:01like, what it was and why I was doing it
0:11:01 > 0:11:03and yeah, it's quite hard to fit it in.
0:11:03 > 0:11:07Does CF make you, like, determined to do better?
0:11:07 > 0:11:08I think so, yeah. What about you?
0:11:08 > 0:11:10Do you think that as well?
0:11:10 > 0:11:12Yeah, like, cystic fibrosis isn't going to beat me.
0:11:14 > 0:11:17'After speaking with Cerys, I feel more determined than ever.'
0:11:19 > 0:11:20Are you ready to go, Dad?
0:11:20 > 0:11:21Yeah, I'm ready.
0:11:25 > 0:11:28'Dad is helping me prepare for my big Brighton race.
0:11:31 > 0:11:35'In one way, cystic fibrosis really motivates me to go running -
0:11:35 > 0:11:39'it's just such great treatment for my chest.'
0:11:39 > 0:11:43So, we'll down there, around there, up the steep hill,
0:11:43 > 0:11:47I'll time you, and then we'll do it again and again and again,
0:11:47 > 0:11:49and we've got to keep the same time all the way.
0:11:49 > 0:11:50Go!
0:11:50 > 0:11:53'When I'm running, especially in the longer distances,
0:11:53 > 0:11:56'my CF sometimes makes my chest hurt a bit'
0:11:56 > 0:11:59but, erm, I just try to make that motivate me to go faster.
0:11:59 > 0:12:01Good, you're on target. Keep going.
0:12:01 > 0:12:04'The faster I run, the sooner the pain will be over.'
0:12:04 > 0:12:05Push it! Attack!
0:12:05 > 0:12:0750, 1, 2...
0:12:07 > 0:12:09Bang.
0:12:09 > 0:12:10So, have a quick breather, now.
0:12:10 > 0:12:12- How was it?- It was cool.
0:12:12 > 0:12:14- Chest?- A bit tight but..
0:12:14 > 0:12:15Bit tight.
0:12:15 > 0:12:17- It always is.- Yeah.
0:12:17 > 0:12:19Go!
0:12:19 > 0:12:21'Dad pushes me quite hard and helps me do my best...'
0:12:21 > 0:12:2324, 25... On target.
0:12:23 > 0:12:25Right, attack it!
0:12:25 > 0:12:27'..but he's very competitive.'
0:12:27 > 0:12:29She's already better than me at swimming -
0:12:29 > 0:12:30she can smash me in the pool -
0:12:30 > 0:12:33and there is no way, being a very competitive dad,
0:12:33 > 0:12:36that I'm going to allow her to beat me on the track as well.
0:12:36 > 0:12:39'But can he beat my 52 seconds?' Three, two, one, go.
0:12:39 > 0:12:41'It's payback time!'
0:12:41 > 0:12:42Come on, Dad. Go faster!
0:12:44 > 0:12:45He's doing OK.
0:12:45 > 0:12:48Faster, Dad. Come on, you're nearly there.
0:12:48 > 0:12:50HE GRUNTS 54.
0:12:50 > 0:12:5154.
0:12:51 > 0:12:5354 seconds.
0:12:53 > 0:12:54So you beat me?
0:12:54 > 0:12:56Wow! That's amazing, Grace.
0:12:57 > 0:13:00Rock on, Brighton. Here we come.
0:13:00 > 0:13:02- BELL RINGS - Hello, Mrs Williams, is it possible
0:13:02 > 0:13:04you can send Cerys down, please?
0:13:04 > 0:13:07She's got a hospital appointment this morning. Thank you.
0:13:07 > 0:13:11'Today, I've got to leave school and go to the hospital for clinic.
0:13:11 > 0:13:13'Every eight weeks, I meet with my team of doctors
0:13:13 > 0:13:16'who check up on my CF and see how my lungs are doing.'
0:13:16 > 0:13:19How are you feeling about the clinic, today, Cerys?
0:13:19 > 0:13:22Erm, I'm feeling that I don't want to go.
0:13:22 > 0:13:24I'll probably get bored.
0:13:25 > 0:13:28'Most kids would like any excuse to get out of school,
0:13:28 > 0:13:31'but I'd rather be anywhere than here.'
0:13:31 > 0:13:34- So, how's the old music going? How's it going?- Good.
0:13:34 > 0:13:36So what have you got coming up?
0:13:36 > 0:13:39Erm, I've got my Grade Five trombone coming up.
0:13:39 > 0:13:42- Trombone?- I thought you were doing the tenor...- Horn.- ..horn.
0:13:42 > 0:13:44- Yeah.- And now you're doing the trombone as well?- Yeah.
0:13:44 > 0:13:46And do you think that it's helped with your chest,
0:13:46 > 0:13:48- do you think, all that blowing? - Yeah.- Yeah?
0:13:48 > 0:13:51'A crucial part of my checkup is the lung function test.'
0:13:51 > 0:13:53- SHE EXHALES - 'That's when they measure
0:13:53 > 0:13:56'how much of lungs I'm able to use.
0:13:56 > 0:13:59'A low score could be a sign of infection,
0:13:59 > 0:14:02'and this could mean a stay in hospital for two weeks,
0:14:02 > 0:14:04'so I'm hoping for a high score.'
0:14:04 > 0:14:07Brilliant. Your lung function is excellent.
0:14:07 > 0:14:09- 99% predicted so...- Oh, yay.
0:14:09 > 0:14:12- Well done, Cerys.- ..really, really, really excellent lung function.
0:14:12 > 0:14:15All this brass instrument playing is really helping, isn't it?
0:14:15 > 0:14:17- That's the most you've ever done. - Excellent.
0:14:17 > 0:14:21- It is the biggest.- It's the best ever. All right.- Bye.- Take care.
0:14:21 > 0:14:24- THEY LAUGH - Bye.
0:14:25 > 0:14:30I got the highest lung function I've ever had before in my life.
0:14:30 > 0:14:33'That was just the first part of my visit -
0:14:33 > 0:14:34'there's always so long to wait -
0:14:34 > 0:14:36'but I have ways of passing the time!'
0:14:36 > 0:14:38MUSIC: Shake It Off by Taylor Swift
0:14:38 > 0:14:40# Cos the players gonna play, play, play, play, play
0:14:40 > 0:14:42# And the haters gonna hate, hate, hate, hate, hate
0:14:42 > 0:14:45# Baby, I'm just gonna shake, shake, shake, shake, shake
0:14:45 > 0:14:47# I shake it off I shake if off... #
0:14:47 > 0:14:49KNOCK AT DOOR
0:14:50 > 0:14:53- Hello. - THEY CHUCKLE
0:14:53 > 0:14:55'Nearly busted.'
0:14:55 > 0:14:58WHISTLE BLOWS 'I've been training hard
0:14:58 > 0:15:00'in preparation for the Brighton race,
0:15:00 > 0:15:03'but I've had a bit of a set-back.
0:15:03 > 0:15:05'When I'm running, sometimes it hurts a little bit.'
0:15:05 > 0:15:10It didn't use to but, recently, it kind of aches a bit,
0:15:10 > 0:15:14and I feel a bit more short of breath than I did before.
0:15:14 > 0:15:18Yesterday, I coughed up a bit of blood, as well,
0:15:18 > 0:15:21so it will be useful to know what's causing that.
0:15:22 > 0:15:25'The doctors are concerned and need to know what's going on,
0:15:25 > 0:15:27'so I'm going to the hospital.
0:15:27 > 0:15:29'I'm having a CT scan,
0:15:29 > 0:15:32'which is a machine that can take detailed pictures of my lungs.
0:15:32 > 0:15:36'The doctors can look at the images and see what's going on inside me.'
0:15:40 > 0:15:42All right, that's everything.
0:15:42 > 0:15:44'But I also need an operation.'
0:15:44 > 0:15:46- I'm quite nervous now. - Yeah, of course you are.
0:15:46 > 0:15:49'I'm having a bronchoscopy -'
0:15:49 > 0:15:52that's when they put a camera into my lungs to see what's there.
0:15:52 > 0:15:56They'll even take a sample of mucus, to see if it's infected.
0:15:58 > 0:16:00'Well, I feel very hungry,
0:16:00 > 0:16:03'because I haven't been able to eat since 7.30,'
0:16:03 > 0:16:05but, most of all, I feel quite nervous.
0:16:07 > 0:16:10'This is it.'
0:16:10 > 0:16:12MUSIC: Wings by Birdy
0:16:16 > 0:16:19# Sunlight comes creeping in
0:16:19 > 0:16:22# Illuminates our skin
0:16:22 > 0:16:24# We watch the day go by
0:16:24 > 0:16:27# Stories of all we did... #
0:16:27 > 0:16:29How do you feel now?
0:16:29 > 0:16:30Tired.
0:16:30 > 0:16:33# It made me think of you... #
0:16:33 > 0:16:35Want to go to sleep?
0:16:41 > 0:16:44Cerys, tomorrow, you've got to do this for yourself,
0:16:44 > 0:16:45- haven't you?- Mm-hm.
0:16:45 > 0:16:48'Because I'll be responsible for my own treatments on concert day,
0:16:48 > 0:16:51'Mum wants to double-check that I know what I'm doing.'
0:16:51 > 0:16:54- Calm. Right, Cerys, are you listening to me?- Mm-hmm.
0:16:54 > 0:16:57- So, remember you need to wash your hands first.- Yeah.
0:16:57 > 0:16:59OK, and, just, what do you do?
0:16:59 > 0:17:01- Twist the top?- Twist the top.
0:17:01 > 0:17:03OK, well done. Job done.
0:17:03 > 0:17:08It's quite a big responsibility and it can be a bit scary
0:17:08 > 0:17:10to know that you have to deal with all of this.
0:17:10 > 0:17:13I need to make sure I do it properly.
0:17:13 > 0:17:15'Finally, the day I've been preparing for.'
0:17:15 > 0:17:19- You've got the meds.- Meds in there, neb in there. OK?- Mm-hm.
0:17:19 > 0:17:20Have a good time.
0:17:22 > 0:17:26'On top of doing my own treatments, I have an extra challenge.
0:17:26 > 0:17:29'There is another child here with CF - Samuel.
0:17:29 > 0:17:32'We need to avoid each other in these busy hallways.
0:17:32 > 0:17:35'If we meet, we could make each other ill.
0:17:35 > 0:17:36'We have to be really careful,
0:17:36 > 0:17:39'and even plan to sit on different-coloured chairs
0:17:39 > 0:17:40'so we don't pass germs to each other.
0:17:42 > 0:17:44'And it's my turn to rehearse.
0:17:44 > 0:17:46'I'm glad Evie's here.'
0:17:49 > 0:17:52- Thanks for helping me with this. - That's OK.
0:17:54 > 0:17:56'I've got to stay focused on my treatments.
0:17:56 > 0:17:59'They can take ages and it's really boring.'
0:18:03 > 0:18:06That's just, like, one of the first things I've got to do.
0:18:06 > 0:18:08I've still got to remember all my Creon with my lunch
0:18:08 > 0:18:10and things like that.
0:18:10 > 0:18:12What happens if you do forget?
0:18:12 > 0:18:15Erm, I'll get really bad stomach pains if I forget to have them.
0:18:15 > 0:18:18'I take pills with my food
0:18:18 > 0:18:21'because cystic fibrosis affects my tummy as well as my lungs.
0:18:21 > 0:18:23'I have to work out how many tablets to take
0:18:23 > 0:18:26'depending on the amount of fat in what I'm eating.'
0:18:26 > 0:18:30So, this is, like - I don't know - about 13g of fat,
0:18:30 > 0:18:36so I need one Creon for every 5g and 13 is closer to 15 than 10.
0:18:36 > 0:18:38'It's an important calculation.'
0:18:38 > 0:18:41I think that the reason that you're really good at maths is
0:18:41 > 0:18:44because you have to do maths every single day.
0:18:44 > 0:18:49You have to take pills and you have to work it out using your brain.
0:18:51 > 0:18:53Do the tablets taste of anything?
0:18:53 > 0:18:56Some of the medicines I have, there's, like, no coating on them,
0:18:56 > 0:18:59so I put them in my mouth and they taste disgusting.
0:18:59 > 0:19:00How disgusting is it?
0:19:00 > 0:19:02Oh...
0:19:02 > 0:19:05Well, I know this sounds a bit weird but it tastes a bit like soap
0:19:05 > 0:19:08in your mouth, and it's just really weird. Oh, it's horrible.
0:19:10 > 0:19:12'As part of my physiotherapy,
0:19:12 > 0:19:16'we jump up and down to loosen the mucus in my lungs.'
0:19:16 > 0:19:18Ha-ha-ha-ha!
0:19:18 > 0:19:22Three, two, one... Ha-ha!
0:19:22 > 0:19:24'I've done it! Bring on the concert.'
0:19:33 > 0:19:35CHEERING
0:19:38 > 0:19:42- Cerys...- Hello, well done.- Hello. - Are you all right?- Yeah.- Well done.
0:19:42 > 0:19:44'I feel, like, more grown-up
0:19:44 > 0:19:47'after doing my treatments on my own today.'
0:19:47 > 0:19:49I know that I can do it on my own now
0:19:49 > 0:19:53and I don't always need my parents to supervise me.
0:19:53 > 0:19:55'Now I can concentrate on my exam.'
0:19:59 > 0:20:03'I'm off to meet one of my favourite doctors, Dr Chin.
0:20:03 > 0:20:06'He's a runner too, and we always compare times.'
0:20:06 > 0:20:08- How are you?- Cool.
0:20:08 > 0:20:12Erm, and your 5K PB is not quite as quick as mine yet
0:20:12 > 0:20:14but it's getting there, isn't it?
0:20:14 > 0:20:16Cos I've been tracking you on Parkrun.
0:20:17 > 0:20:20Erm, so tell me about the pain,
0:20:20 > 0:20:22and does it hurt while you're running?
0:20:22 > 0:20:25A little bit, yeah, and sometimes, after I go running,
0:20:25 > 0:20:28my chest feels tighter and it does hurt more when I breathe in.
0:20:28 > 0:20:31Your chest feels tighter sort of in a lung way or in a...?
0:20:31 > 0:20:33- Erm, lung way.- Yeah, OK.
0:20:33 > 0:20:37- And can you give me a sniff? - SHE EXHALES
0:20:37 > 0:20:39No, in. How many times have we done this?
0:20:39 > 0:20:42- Gordon Bennett! Good. - GRACE'S MUM LAUGHS
0:20:42 > 0:20:46'Dr Chin has got the results from my operation and CT scan.'
0:20:46 > 0:20:48Your CT, which I'm sure you want to look at,
0:20:48 > 0:20:50looks pretty good, actually.
0:20:50 > 0:20:52- Does it?- Yeah, it does. - Oh, that's a relief.
0:20:52 > 0:20:55Your chest is structurally normal.
0:20:55 > 0:20:57There's nothing that I'm worried about, looking at it.
0:20:57 > 0:21:00There's no great blocks of infection or anything like that.
0:21:00 > 0:21:01I think we're in a good place.
0:21:01 > 0:21:04I don't think we're quite on top of exactly what's happening,
0:21:04 > 0:21:06but I think there are interventions to make today
0:21:06 > 0:21:09that will hopefully improve things.
0:21:09 > 0:21:10Is that sort of...?
0:21:10 > 0:21:12Oh, very good news, yeah.
0:21:12 > 0:21:14Yeah, all right, I'll leave you to it.
0:21:16 > 0:21:19'The lung function was about the same as it was last time,'
0:21:19 > 0:21:22which is looking good for the race in Brighton.
0:21:22 > 0:21:25'So I can keep training, even if it hurts.'
0:21:25 > 0:21:28SHE PLAYS: Gonna Fly Now/Rocky Theme
0:21:33 > 0:21:36MUSIC FADES IN: Gonna Fly Now by Bill Conti
0:21:36 > 0:21:37Keep it going. Come on, guys.
0:21:37 > 0:21:40All the way, all the way, all the way!
0:21:40 > 0:21:4234, 35, brilliant!
0:21:44 > 0:21:46Even though I've been training hard,
0:21:46 > 0:21:48I'm worried I'm just not fast enough.
0:21:48 > 0:21:50Dad wants to help motivate me
0:21:50 > 0:21:54by researching the recent race times of my competition.
0:21:54 > 0:21:57So, look, why don't you look up that girl who beat you?
0:21:57 > 0:21:59See what she's actually been doing this year.
0:21:59 > 0:22:04Oh, wow, she's got 5.29 - mine's 5.45.
0:22:04 > 0:22:06That was a few days ago.
0:22:06 > 0:22:09- Yeah.- She's improving, isn't she?
0:22:09 > 0:22:11That's her new time.
0:22:11 > 0:22:15- Wow.- See, this isn't really helping me at all.- Sorry, sorry.
0:22:15 > 0:22:17I'm just going to do the best I can.
0:22:17 > 0:22:19Yeah, that's all you can do.
0:22:19 > 0:22:20Just give it everything,
0:22:20 > 0:22:23- and the most important thing is to try and beat your personal best.- OK.
0:22:26 > 0:22:28'My exam day has arrived!'
0:22:30 > 0:22:32'And my race day is finally here.'
0:22:34 > 0:22:36I think she's feeling very nervous.
0:22:36 > 0:22:38She's very quiet this morning.
0:22:38 > 0:22:40She hasn't slept very well either.
0:22:40 > 0:22:43Take those deep breaths, and have those positive thoughts
0:22:43 > 0:22:44and you will be fine.
0:22:46 > 0:22:49'It's still really early, but we're already on our way to Brighton.'
0:22:51 > 0:22:54Have you got everything you need. Music?
0:22:54 > 0:22:57PHONE BEEPS
0:23:00 > 0:23:02'At last, we've arrived.
0:23:02 > 0:23:06'The atmosphere is great and there's lots of different races going on.'
0:23:06 > 0:23:09Don't be fazed by anybody, Grace. Just give it everything, OK?
0:23:09 > 0:23:11- Yeah.- Believe you can win. - PHONE BEEPS
0:23:11 > 0:23:13That early morning rain has long since disappeared
0:23:13 > 0:23:16and we're getting some very fast times indeed...
0:23:18 > 0:23:21- Morning.- What piece are you going to play first?
0:23:21 > 0:23:22Low C.
0:23:22 > 0:23:25'I check in with Mrs Bennett, my music teacher,
0:23:25 > 0:23:27'and sit and wait for my turn.
0:23:28 > 0:23:32'But my nerves have got the better of me. I need some air.'
0:23:33 > 0:23:35Before an exam, I always feel really sick,
0:23:35 > 0:23:40and sometimes I get butterflies in my tummy and I start shaking.
0:23:42 > 0:23:43- Are you all right, Cerys?- Yeah.
0:23:43 > 0:23:47- Come and tell me how you're feeling. - Erm, nervous.
0:23:47 > 0:23:48Big breaths.
0:23:52 > 0:23:54OK, you're going to be great.
0:23:54 > 0:23:58- You've done all the work. That's all you need to do.- OK.
0:23:58 > 0:23:59- OK, good luck.- Thank you.
0:23:59 > 0:24:01Yup, we're ready to go.
0:24:03 > 0:24:06- Make sure you've got your music. - Yep, thanks.
0:24:06 > 0:24:09- All set. Shall I get the door for you?- Oh, thanks.
0:24:09 > 0:24:11So you don't bash your trombone.
0:24:15 > 0:24:17MUSIC: Black Magic by Little Mix
0:24:17 > 0:24:20# All the girls on the block knocking at my door
0:24:20 > 0:24:23# Wanna know what it is make the boys want more... #
0:24:23 > 0:24:25I've been working for so long for this -
0:24:25 > 0:24:26about six minutes of running -
0:24:26 > 0:24:28and it just seems crazy that I worked this hard
0:24:28 > 0:24:30for six minutes of my life,
0:24:30 > 0:24:32but it's a really important six minutes,
0:24:32 > 0:24:34so I just hope it goes well.
0:24:34 > 0:24:38'And to add to the excitement, I bump into one of my heroes -
0:24:38 > 0:24:39'Olympic runner Jo Pavey.'
0:24:40 > 0:24:43I understand you've got your race later today.
0:24:43 > 0:24:45- Erm, yeah.- Yeah, but... - I'm really nervous about it.
0:24:45 > 0:24:48I'd say don't be worried about it because, if you get a few nerves,
0:24:48 > 0:24:49that's actually beneficial -
0:24:49 > 0:24:52if you channel them in the right direction,
0:24:52 > 0:24:53it actually helps you run faster.
0:24:53 > 0:24:55- OK, bye, Grace. Good luck.- Thanks.
0:24:55 > 0:24:57Lovely to meet you, and I hope you have a really good run.
0:24:57 > 0:24:59- You too.- Yeah, go for it.- Thank you.
0:24:59 > 0:25:02- GRACE PLAYS TROMBONE - It's nervy waiting for her
0:25:02 > 0:25:04but she's worked hard.
0:25:04 > 0:25:05I know she can do it -
0:25:05 > 0:25:09it's whether she can do it in the right place at the right time,
0:25:09 > 0:25:10which is now.
0:25:13 > 0:25:16- She's smiling.- Hello.- How was it?
0:25:16 > 0:25:17OK.
0:25:17 > 0:25:20'I went in and I felt really nervous and sick,'
0:25:20 > 0:25:22but when I was in there I just took a deep breath
0:25:22 > 0:25:24and let the nerves in and then it seemed to work.
0:25:24 > 0:25:26All right, let's have your trombone.
0:25:26 > 0:25:28This is the girls' under-13 in the...
0:25:28 > 0:25:30'I'm insanely nervous -'
0:25:30 > 0:25:34like, the most nervous I've ever been before a race, like, ever,
0:25:34 > 0:25:35but, in a way, that's a good thing -
0:25:35 > 0:25:38there's lots of adrenaline and things.
0:25:38 > 0:25:42'And, as an added surprise, Dr Chin has come to cheer me on!'
0:25:42 > 0:25:44Good luck, Grace. Believe!
0:25:44 > 0:25:46'It's now or never.'
0:25:46 > 0:25:49GUNSHOT AND CHEERING
0:25:49 > 0:25:52MUSIC: The Nights (My Father Told Me) by Avicii
0:25:52 > 0:25:53Go on, Grace!
0:25:53 > 0:25:56Come on, Grace, really give it everything!
0:25:59 > 0:26:01Come on, keep working! Keep working.
0:26:01 > 0:26:03- Come on, Grace!- Don't look back.
0:26:03 > 0:26:06- Keep going. Look ahead, Grace. - Keep going!- Look ahead!
0:26:12 > 0:26:15Don't look back! Push, push, push, push!
0:26:17 > 0:26:19Come on, Grace!
0:26:19 > 0:26:22- Go on, Grace! - HORN HONKS
0:26:22 > 0:26:24'Third place - I've got a medal!
0:26:24 > 0:26:26'I finished in six minutes and 14 seconds -
0:26:26 > 0:26:28'a new personal best.'
0:26:28 > 0:26:30She's on the podium.
0:26:30 > 0:26:32And here are the medallists - Grace Miller!
0:26:32 > 0:26:36CHEERING
0:26:36 > 0:26:38'Grace has done brilliantly.
0:26:38 > 0:26:40'It's stressful waiting for my results.'
0:26:40 > 0:26:43MUSIC: Lose Yourself by Eminem
0:26:43 > 0:26:46OK, I have the results upon my person.
0:26:50 > 0:26:55- You don't have to look. - Not until Mrs Bennett pulls a face,
0:26:55 > 0:26:59- then I shall know.- Ha-ha-ha!
0:27:01 > 0:27:03Oh, no.
0:27:03 > 0:27:04You got...
0:27:04 > 0:27:0692%.
0:27:06 > 0:27:08MUSIC: Firework by Katy Perry
0:27:08 > 0:27:12You need 87 to get a distinction.
0:27:12 > 0:27:16Wow!
0:27:16 > 0:27:19Well done! Well done.
0:27:19 > 0:27:21- Ha-ha-ha! - And that is your highest ever mark.
0:27:21 > 0:27:23No way.
0:27:23 > 0:27:27'My hard work has paid off, and CF didn't hold me back.'
0:27:27 > 0:27:29Well done. You've done very well...
0:27:29 > 0:27:33'I got the best mark I've ever got in any of my exams.'
0:27:33 > 0:27:36I am, like, over the moon with my results.
0:27:36 > 0:27:38CHEERING I ran my fastest time ever -
0:27:38 > 0:27:40my personal best!
0:27:40 > 0:27:42I feel amazing and it's such a relief that
0:27:42 > 0:27:44it's, just, like, paid off.
0:27:44 > 0:27:47- Well done.- 6.14. - A personal best, well done.- Yeah.
0:27:47 > 0:27:49- GRACE AND CERYS: - Take that, cystic fibrosis!
0:27:49 > 0:27:53# Cos baby, you're a firework
0:27:53 > 0:27:57# Come on Show 'em what you're worth
0:27:57 > 0:28:01# Make 'em go Ah, ah, ah
0:28:01 > 0:28:05# As you shoot across the sky-y-y. #
0:28:08 > 0:28:10HORN HONKS