0:00:02 > 0:00:05You're so clever! Double high five?
0:00:05 > 0:00:11When I got pregnant I was 15, everything during my pregnancy was scary.
0:00:11 > 0:00:14They told me at my 20 week scan that
0:00:14 > 0:00:16it would be best to terminate him.
0:00:16 > 0:00:20I knew that I had to carry on, we were going to have a baby,
0:00:20 > 0:00:23it didn't matter at that time what was wrong with him.
0:00:23 > 0:00:27I'm tired of not knowing and I just want definite answers now.
0:00:46 > 0:00:50Oh, lovely! Love kissing my mum and squeezing her hair.
0:00:52 > 0:00:5616-year-old Abby lives in Farnborough with her mum Lara
0:00:56 > 0:00:58and nine-year-old sister Paige.
0:00:58 > 0:01:01Riley, clap hands!
0:01:01 > 0:01:04Abby's son Riley is seven-months-old.
0:01:04 > 0:01:08Hey, how clever are you, darling?
0:01:08 > 0:01:13When I got pregnant I was 15 and obviously I was shocked
0:01:13 > 0:01:15cos I didn't expect to be pregnant,
0:01:15 > 0:01:16it just happened.
0:01:16 > 0:01:23My mum reacted shocked cos I'm her baby and she didn't expect that.
0:01:23 > 0:01:25She was obviously 15,
0:01:25 > 0:01:29and so young and had GCSEs to do yet and I just thought
0:01:29 > 0:01:32how tough it was going to be really. It's tough having a baby at any age.
0:01:34 > 0:01:38Abby had been with her boyfriend Jake for five months when she fell pregnant.
0:01:38 > 0:01:41We've been together for a long time.
0:01:41 > 0:01:44He was shocked as well but he never told me what to do,
0:01:44 > 0:01:47he knew it was my decision so he just left me to it.
0:01:47 > 0:01:52He is a very good dad, very supportive as well, as a boyfriend.
0:01:52 > 0:01:55But Abby's pregnancy didn't go to plan.
0:01:55 > 0:02:00Everything during my pregnancy was scary and exciting.
0:02:00 > 0:02:06Up until 20 weeks I was just doing normal things but I didn't expect that would all change.
0:02:06 > 0:02:11Yeah, we went for the 20 week scan, they seemed to be taking
0:02:11 > 0:02:15a long time checking everything and I knew straightaway something was up.
0:02:15 > 0:02:19They told me there was an 80% chance he would be severely disabled.
0:02:19 > 0:02:24They told me there was a chance that he wouldn't breathe when he was born
0:02:24 > 0:02:26because his brain wouldn't let him.
0:02:26 > 0:02:31They told me he'd never walk, they told me he'd never talk.
0:02:33 > 0:02:37And I just didn't know what to expect.
0:02:40 > 0:02:41As doctors predicted,
0:02:41 > 0:02:45Riley wasn't breathing when he was born and was rushed to intensive care.
0:02:46 > 0:02:48I thought he was dead and it was awful,
0:02:48 > 0:02:52he fact that she couldn't even hold him after she's been through was tough.
0:02:52 > 0:02:55But he did really well actually. Almost straight away,
0:02:55 > 0:02:59he wanted to get off the ventilator and breathe for himself which was great.
0:02:59 > 0:03:02And it was really nice that Abby and Jake could have cuddles with him.
0:03:02 > 0:03:07obviously it was hard because he had so many tubes
0:03:07 > 0:03:09and he had splint on his arm, bless him.
0:03:09 > 0:03:12He looked really poorly actually. And so tiny.
0:03:14 > 0:03:17Tests found a cyst and enlarged cavities in his brain
0:03:17 > 0:03:19which could be life threatening.
0:03:20 > 0:03:22I just wanted him home.
0:03:22 > 0:03:27I knew that he was breathing, and obviously I worried in case he
0:03:27 > 0:03:33stopped breathing but I just had to be confident and fight like he was.
0:03:33 > 0:03:36They transferred him within a couple of days back to our local hospital
0:03:36 > 0:03:40and then he was home within a week, which was great really.
0:03:51 > 0:03:55Since Riley's been home, Abby has been juggling motherhood
0:03:55 > 0:03:58while studying for 13 GCSEs.
0:04:01 > 0:04:04Come on then! Come on out!
0:04:04 > 0:04:06Good boy.
0:04:06 > 0:04:09I just feel stressed out.
0:04:09 > 0:04:13Every mum wants their baby to have everything
0:04:13 > 0:04:16and I can't give Riley everything if I don't get GCSEs.
0:04:16 > 0:04:19It may be a lot of time without him
0:04:19 > 0:04:23but it will give me and him the best future so that's what I've got to do.
0:04:26 > 0:04:29Since having Riley, she hasn't missed one day of school.
0:04:29 > 0:04:32She wants to deal with it, she's really independent.
0:04:32 > 0:04:36I get emotional when I talk about how proud I am of her
0:04:36 > 0:04:41cos her day begins at 3.30pm when others ends,
0:04:41 > 0:04:44she gets in the door and has to start her day with Riley.
0:04:44 > 0:04:47There we go.
0:04:48 > 0:04:52Was you a good boy last night or a bad boy?
0:04:52 > 0:04:55He was a cheeky boy, wasn't you?
0:04:55 > 0:04:57Cheeky boy!
0:04:57 > 0:05:00It was one, and then half three,
0:05:00 > 0:05:02and then got up at five.
0:05:02 > 0:05:06'Abby hasn't had a good night's sleep in eight months.'
0:05:06 > 0:05:09There's times when she doesn't want to go to school in the morning,
0:05:09 > 0:05:13like anyone who doesn't want to get out of bed in the morning. I am pushy to her
0:05:13 > 0:05:18and I say, "I'm sorry, you have to go to school," and sometimes it's a bit of tough love from me,
0:05:18 > 0:05:22whereas maybe other parents may have said, "No, you stay in today,"
0:05:22 > 0:05:25because she's doing so well at school and she's got her GCSEs
0:05:25 > 0:05:28and she's predicted A-stars.
0:05:28 > 0:05:30Are you tired?
0:05:31 > 0:05:33OK, Mummy needs to get ready for school.
0:05:33 > 0:05:35Yeah, Mummy do her hair.
0:05:35 > 0:05:40I think sometimes is it a bit like two lives cos at school,
0:05:40 > 0:05:44you're not being a mum when you're at school,
0:05:44 > 0:05:48you're being any other 16-year-old doing their GCSEs.
0:05:57 > 0:05:59When Abby isn't at school,
0:05:59 > 0:06:04all her time is spent managing Riley's specific needs.
0:06:04 > 0:06:07He can't suck properly so you have to squeeze his cheeks
0:06:07 > 0:06:12when he's feeding his bottle, otherwise he won't be able to drink much.
0:06:12 > 0:06:17But he's got club feet and he's obviously got his webbed hands that they need to sort out.
0:06:19 > 0:06:23He can't smile because of his nerves in his cheeks
0:06:23 > 0:06:27so he won't ever be able to smile like us.
0:06:27 > 0:06:33Everyone wants to see their baby smile and when you don't see him smile it is upsetting.
0:06:35 > 0:06:37But we know he's smiling.
0:06:37 > 0:06:40We can tell in his eyes that he's smiling.
0:06:40 > 0:06:44He just puts a smile on my face.
0:06:44 > 0:06:49As for his disability, they still don't know what's wrong with him.
0:06:49 > 0:06:52I think i just expected for them to have all the answers
0:06:52 > 0:06:55and they didn't have all the answers
0:06:55 > 0:06:59and they still don't have any answers and I am tired now.
0:06:59 > 0:07:03I'm tired of not knowing and I do want to know what's wrong with him.
0:07:03 > 0:07:06I need to know emotionally because all I do is worry.
0:07:06 > 0:07:10What if his brain isn't working properly?
0:07:10 > 0:07:16What if he has a fit because they said he might be prone to fits more.
0:07:16 > 0:07:22What if something happens? I'm constantly worrying because they don't know what's wrong with him.
0:07:33 > 0:07:37Today Abby is leaving school early to see a geneticist,
0:07:37 > 0:07:40one of several specialists investigating what's wrong with Riley.
0:07:43 > 0:07:48I just... I think you're expecting to have answers today, yeah,
0:07:48 > 0:07:51but we might not have answers today.
0:07:53 > 0:07:57I am really nervous, scared.
0:08:00 > 0:08:03But hopefully they can tell me what's wrong.
0:08:07 > 0:08:1017-year-old boyfriend Jake still lives at home.
0:08:10 > 0:08:14He tries to go to all of Riley's appointments.
0:08:17 > 0:08:22Doctors still don't know if Riley's condition is life threatening,
0:08:22 > 0:08:25and like any mum, Abby wants to know he's safe.
0:08:34 > 0:08:37They said he's doing really well.
0:08:37 > 0:08:39Yeah, they're pleased with his progress.
0:08:39 > 0:08:42They want to do another MRI scan.
0:08:42 > 0:08:46A bit disappointed that they can't tell us for definite
0:08:46 > 0:08:48cos that's what I wanted.
0:08:48 > 0:08:50More tests, yeah.
0:09:01 > 0:09:04Desperate to know more, Abby has decided to do her own research.
0:09:04 > 0:09:10She has entered Riley's symptoms on the internet and found a match, with a rare disorder called Moebius.
0:09:10 > 0:09:16She's posted a message on a Moebius website asking for help.
0:09:16 > 0:09:20I put, "Hi my name is Abby and I'm 16.
0:09:20 > 0:09:23"I have a seven-month-old son with suspected Moebius Syndrome.
0:09:23 > 0:09:27"Only when I saw the symptoms of Moebius Syndrome
0:09:27 > 0:09:30"did I realise that it is everything that Riley had and was shocked
0:09:30 > 0:09:32"that this had not been picked up.
0:09:32 > 0:09:35"When they said my son was going to severely disabled
0:09:35 > 0:09:38"and not be able to breathe, they were wrong
0:09:38 > 0:09:40"and they put me through six months of misery and worry
0:09:40 > 0:09:43"about whether I would bring my baby home.
0:09:43 > 0:09:45"I may be young but I am strong,
0:09:45 > 0:09:48"I've been through a lot over the past year.
0:09:48 > 0:09:52"I really want someone to talk to about this. Abby."
0:09:56 > 0:10:00Moebius Syndrome is categorised by facial paralysis,
0:10:00 > 0:10:04limb abnormalities, difficulty breathing and cross eyes.
0:10:04 > 0:10:08Significantly, although there is no cure, it's not life threatening.
0:10:10 > 0:10:13I've had a few replies already.
0:10:13 > 0:10:15Someone is 30 and has Moebius Syndrome.
0:10:15 > 0:10:18Just talking to people that have got it
0:10:18 > 0:10:24or parents that children have got it, to see that it's not just me that's going through it
0:10:24 > 0:10:29and there are so many people that are doing exactly the same thing.
0:10:29 > 0:10:35Abby will have to wait and see what the doctors say before she knows for sure if Riley had Moebius.
0:10:44 > 0:10:46In the meantime life goes on.
0:10:46 > 0:10:49Abby is nearing the end of her final year at school
0:10:49 > 0:10:51and has her prom to prepare for.
0:10:51 > 0:10:55Right, let's get you into the cubicle and get you into it.
0:10:55 > 0:11:00It's important for Abby to just carry on and do everything she did before she had Riley.
0:11:00 > 0:11:03Being at school and GCSEs, there's not much time to go out at all,
0:11:03 > 0:11:07so everything is kind of hyped up for the prom really
0:11:07 > 0:11:11and looking forward to it, almost as big as your wedding day I think for her!
0:11:11 > 0:11:14So she's very excited.
0:11:14 > 0:11:18Lara has been saving for a year to pay off the £365 dress.
0:11:18 > 0:11:22Beautiful! How does it feel?
0:11:28 > 0:11:31- Oh! Do you want me to take some more photos?- Yeah.
0:11:31 > 0:11:34She looks like a princess.
0:11:34 > 0:11:37It's different obviously cos I am a mum
0:11:37 > 0:11:40and going to prom, but I think it makes it more special for me.
0:11:40 > 0:11:43It's just a day like where I'm going to be a teenager.
0:11:43 > 0:11:49I just think it symbolises the beginning of the rest of my life,
0:11:49 > 0:11:55and going to college and getting a job and doing what I want to do.
0:12:08 > 0:12:12While Abby is at school Lara helps babysit.
0:12:12 > 0:12:16Today she is meeting best friend Michelle for lunch.
0:12:22 > 0:12:24Did Abby have a bad night with him last night?
0:12:24 > 0:12:27Yeah, he was a tinker again. You got Mummy up a couple of times.
0:12:27 > 0:12:30Do you think she panics at night a bit with him?
0:12:30 > 0:12:36She does worry and every little sound he makes, she gets up and checks that he's OK.
0:12:37 > 0:12:40Do you want to lay like that cos it doesn't look very comfy?
0:12:42 > 0:12:43Don't do that.
0:12:47 > 0:12:49I don't like you doing that.
0:12:49 > 0:12:51No I don't like you doing that.
0:12:52 > 0:12:53Riley!
0:12:58 > 0:13:01I don't like what he's doing Michelle, it's almost like a fit.
0:13:01 > 0:13:05Riley! No, what's he doing Michelle?
0:13:07 > 0:13:09Because Riley was born with a cyst on his brain,
0:13:09 > 0:13:13the family were told he could suffer from seizures.
0:13:14 > 0:13:16He keeps trying to roll his head back.
0:13:16 > 0:13:18Do you think we should go to the doctors?
0:13:18 > 0:13:21His pupils are really tiny.
0:13:21 > 0:13:23He keeps rolling them into the back of his head
0:13:23 > 0:13:27and doesn't normally do that. I don't know why he's doing that.
0:13:27 > 0:13:29I think we should go and get him seen by somebody.
0:13:32 > 0:13:35Lara decides to pick up Abby on the way to the doctors.
0:13:35 > 0:13:39If this had happened to a child that doesn't have any condition,
0:13:39 > 0:13:42or any problems or anything going on in their brain
0:13:42 > 0:13:45then we would just think, "Oh," and not worry about it.
0:13:45 > 0:13:48But because Riley has got everything else going on,
0:13:48 > 0:13:50everything is highlighted.
0:13:50 > 0:13:52RILEY COUGHS OK?
0:13:54 > 0:13:56- You all right?- Yup.
0:14:00 > 0:14:05Yeah, we've had a bit of a scare today, it looked like he was maybe having a fit.
0:14:05 > 0:14:07You don't have to... It's all right!
0:14:07 > 0:14:10Look, look, look, look. Abs, Abs.
0:14:13 > 0:14:18It's really hard for me to explain it, because I don't want it to sound a million times worse.
0:14:18 > 0:14:20Babe.
0:14:27 > 0:14:31The doctor couldn't find anything wrong with Riley and he's been sent home.
0:14:31 > 0:14:34You've been worrying everybody.
0:14:39 > 0:14:42At first I worried, about him having fits,
0:14:42 > 0:14:46but eight months on I'm thinking it's OK, he's not going to do that.
0:14:48 > 0:14:53But now he might have had one, it's so frustrating.
0:14:53 > 0:14:59I just feel like I'm going to be worrying now forever
0:14:59 > 0:15:05because I don't know, whether he's going to have fits, and that's the one thing I didn't want him to do.
0:15:05 > 0:15:09Later that night, Abby is still worried Riley's not his usual self
0:15:09 > 0:15:12and she decides to take him to the hospital.
0:15:35 > 0:15:40Abby has spent a sleepless night in hospital whilst Riley undergoes tests.
0:15:48 > 0:15:52His eyes are rolling back. His eyes are going back. Riley.
0:15:53 > 0:15:55He's doing it, look.
0:15:55 > 0:15:58What the matter, baby?
0:15:58 > 0:16:04Riley needs to stay in hospital but Abby has the first of many GCSEs exams.
0:16:04 > 0:16:07- I need to go.- OK.
0:16:07 > 0:16:11Family friend Michelle has arrived to take Abby to school.
0:16:11 > 0:16:15- Love you.- Say goodbye to Mummy. - See you in a bit, OK?
0:16:15 > 0:16:17Love you. Good luck.
0:16:19 > 0:16:24I know he's fine, but it's still leaving him in hospital, isn't it?
0:16:24 > 0:16:28She knows that he's in the best place and at the moment
0:16:28 > 0:16:32there's nothing she can do to help, she still needs to carry on with her school work,
0:16:32 > 0:16:35because it's her GCSEs and this is really important to her,
0:16:35 > 0:16:38which you have to commend her for doing.
0:16:38 > 0:16:41It's a bit annoying I got to go to school
0:16:41 > 0:16:44but if I miss this it's just going to ruin everything so...
0:16:44 > 0:16:47- Got all your school stuff?- Yep.
0:16:57 > 0:17:03Riley spent another 24 hours in hospital before being discharged with no conclusive results.
0:17:03 > 0:17:09A week later he is back for a detailed scan called an MRI.
0:17:09 > 0:17:13Abby's taken the afternoon off school to be there.
0:17:15 > 0:17:21So they were pretty certain that it was a fit cos you don't necessarily have to shake,
0:17:21 > 0:17:24so that's what the MRI is going to tell us,
0:17:24 > 0:17:29if there's any abnormalities cos they think that's what's caused the fits.
0:17:29 > 0:17:35And also fingers crossed we will be able to get a diagnosis for the Moebius Syndrome.
0:17:36 > 0:17:38Riley will have to be put to sleep,
0:17:38 > 0:17:41a procedure that carries its own risks.
0:17:47 > 0:17:49I'm a bit nervous now.
0:17:49 > 0:17:52Hopefully he won't wake up and he'll just go to sleep. OK?
0:17:52 > 0:17:56All right, we'll just bring this close to his face.
0:18:03 > 0:18:07We'll just take him from you.
0:18:07 > 0:18:11OK? You just stay sitting just as you are. He's fast asleep now.
0:18:26 > 0:18:30- They just took him. - Did you not sit with him?
0:18:30 > 0:18:33- Yeah, but then they just took him away.- OK, baby.
0:18:36 > 0:18:41It's 45 minutes before Riley wakes up from the anaesthetic.
0:18:41 > 0:18:43RILEY CRIES
0:18:49 > 0:18:52We're going to get you some milk, sweetheart.
0:18:52 > 0:18:54He'll be back to his normal self in a minute.
0:18:56 > 0:18:59We should be allowed home soon.
0:19:01 > 0:19:05It will take a few weeks for the scan results to come through.
0:19:13 > 0:19:15While Abby waits for the results,
0:19:15 > 0:19:20she has arranged to meet someone from the Moebius support group.
0:19:21 > 0:19:25I'm just excited really and nervous.
0:19:25 > 0:19:29I just hope that he says that,
0:19:29 > 0:19:33like, it doesn't affect him too much.
0:19:33 > 0:19:36Although Riley hasn't had an official diagnosis,
0:19:36 > 0:19:38Abby wants to learn more about Moebius.
0:19:40 > 0:19:4525-year-old Martin is one of the only 209 sufferers in the UK,
0:19:45 > 0:19:49and his mum Pauline had to face the challenges of bringing him up.
0:19:49 > 0:19:51But nobody knew a lot about it.
0:19:51 > 0:19:55In them days we were told he would never walk, talk and he might not survive very long.
0:19:55 > 0:19:57I didn't like it when I was in school,
0:19:57 > 0:20:01I tried to explain to teachers about it and they were like, "No, it doesn't exist."
0:20:01 > 0:20:04Cos, Riley, you never see like, a smile.
0:20:04 > 0:20:07I think that's going to come in time,
0:20:07 > 0:20:10because it's only when I look back and see the milestones he's made
0:20:10 > 0:20:13cos I didn't feel they were milestones at the beginning
0:20:13 > 0:20:15cos you're just going from one thing to another.
0:20:15 > 0:20:18When you're around it all the time you don't see the difference.
0:20:18 > 0:20:23Then when you look back at photographs and stuff, you think he does look different.
0:20:23 > 0:20:26- And do you live at home still? - No I've got my own place, I've got two kids.
0:20:26 > 0:20:30I think every mother wants their child to have a life the same as everyone else.
0:20:30 > 0:20:33Did you go to, like, a normal primary and secondary school.
0:20:33 > 0:20:37The only thing I done differently was the speech therapist and stuff like that.
0:20:37 > 0:20:39Other than that I stayed in the normal school.
0:20:39 > 0:20:42Take every day as it comes and not worry about things.
0:20:42 > 0:20:45The more I think about it, the more you get down about it
0:20:45 > 0:20:48and I've fond if I try and live a normal life, have normal friends
0:20:48 > 0:20:50and everything like that, I'm fine.
0:20:50 > 0:20:55Meeting Martin has given Abby hope for the future.
0:20:55 > 0:20:57I just feel better in myself,
0:20:57 > 0:21:02knowing that he's going to lead a normal life, hopefully.
0:21:04 > 0:21:06Just like Martin has done.
0:21:21 > 0:21:23Abby is in the middle of her GCSE exams
0:21:23 > 0:21:26and with all the hospital visits, she's behind on revision.
0:21:29 > 0:21:34Mummy doing her maths homework is she? Yeah!
0:21:34 > 0:21:38I'm just panicking about my GCSEs now.
0:21:38 > 0:21:41And about getting the grades that I need
0:21:41 > 0:21:44revising, fitting it all in really.
0:21:44 > 0:21:47Whoosh!
0:21:47 > 0:21:52No, we can't have the pot, I've got to feed you it with the spoon.
0:21:52 > 0:21:57I feel sort of bad as well, like leaving him, like with Paige and mum
0:21:57 > 0:22:00when I'm revising because it's not fair on them, but they understand.
0:22:00 > 0:22:03But Abby's studies are cut short.
0:22:03 > 0:22:05He don't want his pudding?
0:22:05 > 0:22:08No he just wants cuddles, he's a tired boy.
0:22:08 > 0:22:10It's OK.
0:22:10 > 0:22:13What about doing it when he's gone to bed?
0:22:13 > 0:22:16Shall I do my homework later?
0:22:24 > 0:22:26It's good that he's gone to sleep straight away,
0:22:26 > 0:22:29cos normally he can be up for up to an hour, up and down.
0:22:29 > 0:22:36It just means I can just get on with the bottles now...
0:22:36 > 0:22:38and my GCSEs!
0:22:56 > 0:22:59Today is a crucial day for the family,
0:22:59 > 0:23:02they are getting the results of the MRI scan
0:23:02 > 0:23:05and hopefully a diagnosis for Riley.
0:23:07 > 0:23:14I just want Dr Malik to like, tell us the results and see whether
0:23:14 > 0:23:20he thinks he's got Moebius Syndrome and to discuss what's next.
0:23:20 > 0:23:24But obviously if he says he thinks he has got it will be good because
0:23:24 > 0:23:26we'll know what to do next.
0:23:28 > 0:23:30How are things?
0:23:30 > 0:23:33Well, we haven't been back in hospital.
0:23:33 > 0:23:35No more seizures or scares.
0:23:35 > 0:23:40- Well done, Riley. - So, obviously that's good.
0:23:40 > 0:23:44After months of tests and referrals to numerous specialists,
0:23:44 > 0:23:47Dr Malik finally has an answer.
0:23:47 > 0:23:50I think the scan, the report is that things are very good.
0:23:50 > 0:23:54There is evidence within the scan to suggest he has Moebius Syndrome.
0:23:54 > 0:23:57I think I'm right that I think he has got Moebius Syndrome.
0:23:57 > 0:24:01Based on that the nucleus, the seventh nerve nucleus.
0:24:01 > 0:24:04- Right, so it is...- So it is, yes.
0:24:04 > 0:24:05There's no more cyst.
0:24:05 > 0:24:08In other words there is nothing... There's no surgery involved,
0:24:08 > 0:24:10There's nothing to do with his brain.
0:24:10 > 0:24:14It's a question of providing you with support with that syndrome in mind.
0:24:14 > 0:24:18And that means looking at his speech and language,
0:24:18 > 0:24:22and keeping an eye on him to see what is he doing.
0:24:22 > 0:24:24Thank you.
0:24:24 > 0:24:26This is the news they've been waiting for.
0:24:26 > 0:24:28Moebius is not a terminal condition
0:24:28 > 0:24:32and Riley should be able to lead a relatively normal life.
0:24:32 > 0:24:36Happy tears. Happy for Abs, you know.
0:24:36 > 0:24:40I deal with things in my stride but for Abby this is really important for her.
0:24:40 > 0:24:43You know, I know she goes to bed every night worrying about
0:24:43 > 0:24:46whether Riley is going to wake up and stuff like that,
0:24:46 > 0:24:51which, you know, is heart-breaking when you can't actually do anything about it for your child.
0:24:51 > 0:24:54So today, to be told that is great.
0:24:54 > 0:24:58It means a lot to...
0:24:58 > 0:25:02Like, for him to tell us that he's got Moebius Syndrome
0:25:02 > 0:25:04cos it feels like the end.
0:25:08 > 0:25:14Of what I've been hoping for God know how many months.
0:25:14 > 0:25:17You know, it feels like everything is kind of going right for us for once, really.
0:25:17 > 0:25:20It took a while.
0:25:36 > 0:25:43Back at home and Abby's friends have come round to celebrate the long awaited diagnosis.
0:25:46 > 0:25:50No matter what's wrong with him, he's still Riley.
0:25:50 > 0:25:52We all knew he was going to have something wrong with him,
0:25:52 > 0:25:56we didn't know what the definition of it would be but...
0:25:56 > 0:26:01We'll always be there for ya... Don't...
0:26:01 > 0:26:03Don't cry cos you'll make me start!
0:26:03 > 0:26:08- You've got through the worst of it now.- Yeah, you're prepared for everything that's going to happen.
0:26:12 > 0:26:17It's like you have all gone through it as well as me.
0:26:17 > 0:26:20- I told you he'd be all right. - No, you always said it!
0:26:22 > 0:26:26I'm well proud of Abby. To be a teenage mum anyway
0:26:26 > 0:26:28is obviously like the hardest thing ever.
0:26:28 > 0:26:34Abby stayed at school, she's had to deal with Moebius Syndrome as it is, and I think that's amazing.
0:26:34 > 0:26:37- Right hand green.- Yeah, yeah.
0:26:39 > 0:26:41THEY SHRIEK
0:26:41 > 0:26:43- Hayley pushed me!- I win!
0:26:45 > 0:26:48I've learned just to not worry so much
0:26:48 > 0:26:52and actually not to look too far into the future,
0:26:52 > 0:26:54and to take it as it comes along.
0:26:54 > 0:26:58I think I've found out that I'm a stronger person than what I thought.
0:26:58 > 0:27:01Riley's definitely changed Abby's life for the better,
0:27:01 > 0:27:05and most kids probably could have used it as an excuse not to go to school,
0:27:05 > 0:27:07and to give up but Abby's actually turned it around
0:27:07 > 0:27:10and made it a positive thing,
0:27:10 > 0:27:15and almost like she wants to show people that you can do all of this
0:27:15 > 0:27:20and be a mum, and be mum with a child with disabilities as well.
0:27:20 > 0:27:24In the future I see me and Jake together still, and Riley.
0:27:24 > 0:27:28And I hope that we can have more babies one day
0:27:28 > 0:27:32and get married and just be normal,
0:27:32 > 0:27:35because I want everything around Riley to be normal,
0:27:35 > 0:27:38because if he's going to be a bit different
0:27:38 > 0:27:41I don't want everything else to be different for him.
0:27:41 > 0:27:44I want him to have the life that any other baby would have.
0:27:44 > 0:27:47Next time we meet 16-year-old Danielle...
0:27:47 > 0:27:51I was really shocked. I was focussing on my wrestling.
0:27:51 > 0:27:55Wrestling is most definitely what I want to do but I'm that addicted to it.
0:27:58 > 0:27:59..and Molly and Ross.
0:27:59 > 0:28:04- Feeling like a dad?- Not really!
0:28:19 > 0:28:22Subtitles by Red Bee Media Ltd
0:28:22 > 0:28:25E-mail subtitling@bbc.co.uk