Episode 3

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0:00:04 > 0:00:06We're living in a new age of invention.

0:00:08 > 0:00:10Brilliant brains are no longer just holed up

0:00:10 > 0:00:14in leading university labs or research facilities.

0:00:16 > 0:00:18Today, inventors are coming together

0:00:18 > 0:00:21in technology hubs like this to design,

0:00:21 > 0:00:23to help improve people's lives.

0:00:23 > 0:00:25It's actually working. That's so cool!

0:00:25 > 0:00:27For this series, we've brought together

0:00:27 > 0:00:32seven of the UK's leading engineers, designers and computer programmers.

0:00:32 > 0:00:33Ta-dah!

0:00:33 > 0:00:35Going to make myself the guinea pig.

0:00:35 > 0:00:39They'll use cutting-edge science and technology to build

0:00:39 > 0:00:42life-changing solutions for people in desperate need.

0:00:42 > 0:00:44I don't know who to ask...

0:00:44 > 0:00:46Or where to go.

0:00:46 > 0:00:48"In pain", "uncomfortable"...

0:00:48 > 0:00:51From helping individuals who are seriously ill...

0:00:51 > 0:00:53- RASPING COUGH - Whoa!

0:00:53 > 0:00:57..to solving issues affecting entire communities.

0:00:58 > 0:01:00Someone's either going to get seriously injured and can't get aid,

0:01:00 > 0:01:02or someone's going to die.

0:01:02 > 0:01:04They'll attempt to tackle major problems that have

0:01:04 > 0:01:06so far gone unsolved.

0:01:06 > 0:01:09I think I've created something really new

0:01:09 > 0:01:11and possibly revolutionary.

0:01:11 > 0:01:13The potential of this is massive.

0:01:13 > 0:01:17Fingers crossed nothing cracks or explodes.

0:01:19 > 0:01:22This week, they will build life-saving equipment

0:01:22 > 0:01:24for two brothers with cystic fibrosis.

0:01:24 > 0:01:28Every time you blow, the red car accelerates.

0:01:28 > 0:01:31I have never ever seen this before.

0:01:31 > 0:01:33They'll help a young girl who has to wear

0:01:33 > 0:01:36a protective helmet live a normal life.

0:01:36 > 0:01:39I just trip over a lot and I can't stop.

0:01:40 > 0:01:43And build technology to give a partially sighted mum

0:01:43 > 0:01:46the freedom to enjoy the outdoors.

0:01:46 > 0:01:47We're here!

0:01:47 > 0:01:48'I'm Simon Reeve.

0:01:48 > 0:01:52'Over the next six months, I'll be working with the team.'

0:01:52 > 0:01:55If they succeed, they could change these people's lives

0:01:55 > 0:01:58and the lives of many more.

0:01:58 > 0:02:00SHE SHOUTS EXCITEDLY

0:02:00 > 0:02:02- Ah! - HE LAUGHS

0:02:02 > 0:02:04This is the best thing that could ever happen to us.

0:02:04 > 0:02:05Keep going, keep going.

0:02:05 > 0:02:06Keep going to the end.

0:02:16 > 0:02:18Our team's base is in east London.

0:02:18 > 0:02:20Known as a maker space,

0:02:20 > 0:02:24it's one of a national network of inventors' hubs,

0:02:24 > 0:02:26crammed full of the latest technology.

0:02:26 > 0:02:28It's from here that our seven leading inventors will

0:02:28 > 0:02:32attempt to create fixes for people with nowhere else to turn.

0:02:32 > 0:02:35I want to explore their lives. We want to discuss as a team

0:02:35 > 0:02:38and work with them to build the right solution.

0:02:38 > 0:02:40'Our experts are all leaders in their field.

0:02:40 > 0:02:44'Engineers who worked at Dyson, and award-winning designers who

0:02:44 > 0:02:48'have built everything from ambulances to earthquake sensors.'

0:02:48 > 0:02:52Is it fair to say there is a technological revolution

0:02:52 > 0:02:53underway at the moment?

0:02:53 > 0:02:56Yes. I think we call it the maker revolution.

0:02:56 > 0:03:01It's a great way to leverage, um, this energy that people have to

0:03:01 > 0:03:06contribute, to donate their time and their skills to help a great cause.

0:03:07 > 0:03:11Haiyan Zhang is a director of innovation at Microsoft Research.

0:03:11 > 0:03:15She'll lead the first case, to help two boys with cystic fibrosis -

0:03:15 > 0:03:19a debilitating disease that severely affects their breathing.

0:03:21 > 0:03:24Every morning, mum Vicky is up at the crack of dawn to prepare

0:03:24 > 0:03:26for their first treatment of the day.

0:03:26 > 0:03:29- Hello. Welcome. Come on through. - Thanks.

0:03:31 > 0:03:35- Everything has to be sterilised every time you use it.- Every time?

0:03:35 > 0:03:39- And how often is it used?- Well, they both have three nebulisers a day.

0:03:39 > 0:03:42So, six times of sterilising.

0:03:42 > 0:03:45- Do you spend your life cleaning and sterilising?- I do, yeah.

0:03:45 > 0:03:47Boiling pans of water.

0:03:47 > 0:03:49I hear some stirring.

0:03:50 > 0:03:54- Hi.- 'First to wake is her 13-year-old son, Morgan.'

0:03:54 > 0:03:56He's like a little dog, aren't you?

0:03:56 > 0:03:59Right, what happens now is Morgan starts his routine.

0:04:00 > 0:04:05Cystic fibrosis, or CF, is the result of a faulty gene that

0:04:05 > 0:04:09causes sticky mucus to gather in the lungs and digestive system.

0:04:09 > 0:04:11- How does that taste?- Disgusting.

0:04:11 > 0:04:14Ooh! They should make better flavours.

0:04:14 > 0:04:15Yeah.

0:04:15 > 0:04:19'It makes it hard to breathe and increases the risk of infection.

0:04:19 > 0:04:22'Morgan begins his day inhaling salt water vapour

0:04:22 > 0:04:24'that helps to loosen the mucus.'

0:04:24 > 0:04:26The salt flavour's not great, isn't it?

0:04:26 > 0:04:29- A chocolate-flavoured nebuliser. - Yes! I would do that.

0:04:29 > 0:04:32Oh, there we go. That's finished, great.

0:04:34 > 0:04:37Next, Vicky prepares 13 pills.

0:04:37 > 0:04:38The first of one...

0:04:38 > 0:04:40They're basically a pain because sometimes they

0:04:40 > 0:04:44get stuck in my throat and it hurts for the rest of the day.

0:04:44 > 0:04:46- So, literally a pain?- Yeah.

0:04:46 > 0:04:50So I do spend my life, it feels like, nagging.

0:04:50 > 0:04:52Like, "It's time to do your nebuliser,

0:04:52 > 0:04:55"it's time to do your tablets. Oh, it's time to do your physio."

0:04:55 > 0:04:58- But by far the biggest chore... - Come on, Morgan!

0:04:58 > 0:05:00..is physiotherapy for his lungs.

0:05:01 > 0:05:04It's a 30-minute exercise to loosen the mucus

0:05:04 > 0:05:06so it's then easier to cough it up.

0:05:06 > 0:05:08- RASPING COUGH - Whoa!

0:05:08 > 0:05:13Let's have that. You know, he's 12, he could do it by himself.

0:05:13 > 0:05:16But, as you can see, it's just tedious.

0:05:16 > 0:05:18He does everything he can to get out of it.

0:05:18 > 0:05:23To add to the difficulty, Morgan has a condition called ADHD,

0:05:23 > 0:05:27which means he has a short attention span and is quickly distracted.

0:05:27 > 0:05:29HE STARTS HUMMING

0:05:29 > 0:05:31We don't need noises. Keep going.

0:05:31 > 0:05:34What kind of things do you entertain Morgan with?

0:05:34 > 0:05:37We can't really have anything on cos he can't do two things at once.

0:05:37 > 0:05:42- So then they just stare at the TV and they forget to blow.- Oh, OK.

0:05:42 > 0:05:45They have to do this for 30 minutes, three times a day.

0:05:45 > 0:05:48- ..two, three...- Every day.

0:05:48 > 0:05:50And when Morgan's done...

0:05:50 > 0:05:52Wakey-wakey!

0:05:52 > 0:05:55..Vicky has to repeat the whole process...

0:05:56 > 0:05:58It's time for school.

0:05:58 > 0:06:00HE GROANS

0:06:00 > 0:06:02..with 16-year-old Aiden.

0:06:02 > 0:06:04She's desperate for help.

0:06:04 > 0:06:08- And how much do you like or dislike the physio?- Dislike.

0:06:08 > 0:06:13- Would you do it if Mum and Dad weren't hassling you into it?- No.

0:06:13 > 0:06:16- Even though you know it's really important?- Yeah.

0:06:16 > 0:06:18Aiden, are you going to come and sit over here?

0:06:18 > 0:06:20- Or you can sit... - HE GROANS

0:06:20 > 0:06:21Where can you sit?

0:06:23 > 0:06:26- Aiden, we're not using that, sweetie.- God's sake.

0:06:26 > 0:06:29Aiden has got autism, he doesn't understand the reason why

0:06:29 > 0:06:32he's got to do it, he doesn't understand what CF means.

0:06:32 > 0:06:36One, two, three, four, five...

0:06:36 > 0:06:39- Why do you hate it?- It's boring. Wastes time.

0:06:39 > 0:06:42- Oh.- Better stuff to do.

0:06:42 > 0:06:45- What kind of better stuff? - Play games.

0:06:45 > 0:06:48- What kind of games?- Fifa. - THEY LAUGH

0:06:50 > 0:06:53What's your role in the morning's proceedings, Simon?

0:06:53 > 0:06:57I sort of take a back step from all the medication and physio,

0:06:57 > 0:06:59just because Vicky's better with it.

0:06:59 > 0:07:02So I take the role of feeding them up.

0:07:02 > 0:07:07People with cystic fibrosis require up to 50% more calories a day

0:07:07 > 0:07:11because mucus stops nutrients being absorbed into their gut.

0:07:11 > 0:07:14- Am I your server? - Yeah, thank you very much.

0:07:14 > 0:07:17Currently, the average life expectancy of someone with

0:07:17 > 0:07:19cystic fibrosis is around 40 years.

0:07:19 > 0:07:21And without daily physio,

0:07:21 > 0:07:24their quality of life is significantly worse.

0:07:24 > 0:07:27Everything you do day-to-day, we try to make it a treasured memory,

0:07:27 > 0:07:30because you just don't know what might happen in the future.

0:07:32 > 0:07:36- Mum's morning is taken up cajoling Aidan and Morgan...- Hello.

0:07:37 > 0:07:40..whilst dad, Simon, sorts the other two kids.

0:07:40 > 0:07:42Right, OK we're off.

0:07:43 > 0:07:46You all right? And then it's off to school.

0:07:47 > 0:07:51Vicky, I don't know how you do it with...

0:07:51 > 0:07:53you know, you've four kids and...

0:07:53 > 0:07:56Yeah, I think everybody says that, but I think you just do.

0:07:56 > 0:07:59You kind of get what you're given and you deal with it.

0:07:59 > 0:08:02It's not ideal. I wouldn't choose it.

0:08:02 > 0:08:05But I wouldn't change the boys for the world.

0:08:09 > 0:08:11At Aiden's school, he must exercise every day

0:08:11 > 0:08:13to help improve his lung function.

0:08:13 > 0:08:16Normal running, well done. That's good.

0:08:18 > 0:08:21Wearing an altitude mask restricts my own oxygen intake

0:08:21 > 0:08:25and simulates how Aiden feels when his lungs are infected.

0:08:25 > 0:08:27Good, well done.

0:08:27 > 0:08:30Off you go for 20 seconds now, keep working it, that's good. OK.

0:08:30 > 0:08:34Well done, keep going. Try and keep your hands on your chest, Aiden.

0:08:34 > 0:08:38Three, two, one, and rest up, gentlemen.

0:08:38 > 0:08:40That's good, well done.

0:08:40 > 0:08:41Oh, Jesus!

0:08:41 > 0:08:42Three, two, one.

0:08:42 > 0:08:46Three, two, one. And rest up, gentlemen.

0:08:46 > 0:08:48Well done.

0:08:48 > 0:08:51AIDEN LAUGHS

0:08:53 > 0:08:54It's...

0:08:54 > 0:08:57it's a window into a completely different world, actually.

0:08:57 > 0:09:00It's way beyond unpleasant. It's frightening.

0:09:00 > 0:09:04Is there anything more we take for granted in our bodies?

0:09:04 > 0:09:08- So this gives me a sense of what it must be like.- Yeah.

0:09:10 > 0:09:12HE COUGHS Oh, Aidan, mate.

0:09:16 > 0:09:19After a humbling day with the Coxhead family,

0:09:19 > 0:09:23we leave them to begin yet another round of physio sessions.

0:09:23 > 0:09:25What a life they live, my goodness!

0:09:25 > 0:09:26I mean they're so loving,

0:09:26 > 0:09:28so caring, so sharing.

0:09:28 > 0:09:30- They're so, lovely, yeah. - So open to us as well.

0:09:30 > 0:09:33But facing really tricky challenges.

0:09:33 > 0:09:34It's so complicated.

0:09:34 > 0:09:36What's your thinking?

0:09:36 > 0:09:42There are definitely ways we can make Vicky's life easier,

0:09:42 > 0:09:46through just simple things like, how can we help her keep count?

0:09:46 > 0:09:50And she needs to constantly remind them or nag them.

0:09:50 > 0:09:55And then thinking about how can we motivate the boys to do that

0:09:55 > 0:09:58programme, so how can we just improve those things,

0:09:58 > 0:10:01those little things for her, maybe through digital technology?

0:10:05 > 0:10:07The next case is seven-year-old Rosie.

0:10:09 > 0:10:11She had brain surgery as a baby and now wears

0:10:11 > 0:10:15a cumbersome medical helmet whenever she's awake.

0:10:15 > 0:10:17She wants the team to invent something that will be less

0:10:17 > 0:10:19visible and help her fit in with her friends.

0:10:21 > 0:10:24The case will be led by Dr Zoe Laughlin.

0:10:25 > 0:10:28I always wanted to make things,

0:10:28 > 0:10:31I wanted to engage physically in the world and invent stuff.

0:10:31 > 0:10:34Cos it's fundamentally all about interrogating the world

0:10:34 > 0:10:35and going, "Why is that like that?

0:10:35 > 0:10:38"And could it be done better and differently

0:10:38 > 0:10:41"and with a bit more ingenuity?"

0:10:41 > 0:10:44'She's a materials engineer and an artist who works with

0:10:44 > 0:10:48'everything from precious metals, to porcelain and even space dust.'

0:10:50 > 0:10:53- Hello!- Hiya.- Hi, Rosie. - Are you Rosie?

0:10:53 > 0:10:57'Today we've come to Stockton on Tees to meet Rosie and her mum Nat.'

0:10:57 > 0:11:00Can we talk about what you've got on your head?

0:11:01 > 0:11:04I just trip over a lot and I can't stop.

0:11:04 > 0:11:07Do you trip or your legs give way underneath you?

0:11:07 > 0:11:09They get a bit wobbly?

0:11:09 > 0:11:11I just trip sometimes.

0:11:11 > 0:11:16She was born at 26 weeks, so she was born pretty early.

0:11:16 > 0:11:18And she had a bleed on her brain.

0:11:18 > 0:11:22Because of that, she's now blind in the right eye.

0:11:22 > 0:11:24She's got under-toned muscles as well and she just falls quite

0:11:24 > 0:11:27- a lot, don't you? - Will you show me your helmet?

0:11:27 > 0:11:30Can you take it off for me so we can have a closer look?

0:11:31 > 0:11:33- Can you manage?- Let's have a look.

0:11:35 > 0:11:37Does it get hot?

0:11:37 > 0:11:40Sometimes when it's really sunny, it rubs on my head and...

0:11:40 > 0:11:42it makes my head go all sore.

0:11:42 > 0:11:45Look here, you can really see those two marks there,

0:11:45 > 0:11:47where it rubs against the front of your head.

0:11:47 > 0:11:50So have you been wearing a helmet ever since you could walk,

0:11:50 > 0:11:52since you were a toddler?

0:11:52 > 0:11:53Yeah. Always.

0:11:54 > 0:11:58To learn more about what Rosie wants from her protective helmet,

0:11:58 > 0:12:01Zoe asks her and her sisters to draw some designs.

0:12:01 > 0:12:05We've all got to think about the most amazing helmet,

0:12:05 > 0:12:07what would it have on it, what would it be like, OK?

0:12:09 > 0:12:13- So can we put on whatever we want? - Yeah, whatever you want.

0:12:13 > 0:12:17As with any child, Rosie just wants to fit in with her friends.

0:12:17 > 0:12:19I'm doing it in orange.

0:12:19 > 0:12:22Permanent safety helmets are widely used by people with epilepsy

0:12:22 > 0:12:26and brain injuries, but Rosie is very keen that hers is different.

0:12:26 > 0:12:28Whoa, that's cool.

0:12:29 > 0:12:32She's never been able to wear her hair on

0:12:32 > 0:12:36a daily basis how she likes, in any kind of style she wants.

0:12:36 > 0:12:39She'll ask me for a bun in her hair and I can't put a bun in her hair.

0:12:39 > 0:12:43So you'd like something then that means that she can do her hair or

0:12:43 > 0:12:45express herself through her hair?

0:12:45 > 0:12:48I think she's probably outgrowing it now as well,

0:12:48 > 0:12:50I think she needs something a bit... the next step up.

0:12:50 > 0:12:53And have you got any thoughts about what that should be?

0:12:53 > 0:12:56The only thing I can really say that she loves is music.

0:12:56 > 0:12:59David Bowie and she's absolutely fanatical about him, like

0:12:59 > 0:13:02really badly. Like just absolutely loves everything about him.

0:13:03 > 0:13:05'Like most seven-year-olds,

0:13:05 > 0:13:08'Rosie already has ideas on what her new helmet will be like.'

0:13:10 > 0:13:13This is the helmet and it's got what?

0:13:13 > 0:13:15What is special about that helmet?

0:13:15 > 0:13:19It's got a microphone and it's got wings and cakes on it.

0:13:20 > 0:13:24It's got a microphone and wings and cakes on it.

0:13:24 > 0:13:26That is a pretty special helmet.

0:13:26 > 0:13:28And it's got two light bulbs.

0:13:28 > 0:13:34They were the four key things - lights, wings, music and cake.

0:13:34 > 0:13:38Before we leave, Rosie is desperate to show us something.

0:13:38 > 0:13:40Whoa!

0:13:40 > 0:13:43Wow! You do love him, don't you?

0:13:43 > 0:13:45What are your favourite pictures of him, then?

0:13:45 > 0:13:50- I've got that in one of my magazines.- Have you?

0:13:50 > 0:13:53MUSIC: Modern Love by David Bowie

0:13:53 > 0:13:54Yeah.

0:13:55 > 0:13:57That is on full volume.

0:13:58 > 0:14:00I have not had it this loud.

0:14:00 > 0:14:03# And I never wave bye-bye

0:14:03 > 0:14:08# But I try, I try... #

0:14:08 > 0:14:10I've got some actions.

0:14:10 > 0:14:12Go on, let's see them. Are you going to teach me?

0:14:12 > 0:14:14- # Never going to fall for... - Modern love

0:14:14 > 0:14:16- # Walks beside me - Modern love... #

0:14:16 > 0:14:18I can't quite hear Rosie.

0:14:18 > 0:14:20# Church on time. #

0:14:23 > 0:14:27Back in London, Zoe and I feedback to the rest of the team.

0:14:27 > 0:14:30Rosie really touched me. What a character!

0:14:30 > 0:14:33Yeah, I really felt for her and I really wanted to think of

0:14:33 > 0:14:35do the absolute best for her.

0:14:35 > 0:14:38I mean, grown adults don't even like wearing bike helmets

0:14:38 > 0:14:39cos they mess up their hair.

0:14:39 > 0:14:41Imagine if you had to wear that all the time,

0:14:41 > 0:14:45how it impacts on both your identity, but also just the comfort.

0:14:45 > 0:14:47And as she said, it's itchy and it's hot and you can't run

0:14:47 > 0:14:51around and I think we can really do something to help her.

0:14:51 > 0:14:53The idea that it's not one helmet, it's potentially,

0:14:53 > 0:14:58we're potentially designing a system for her to look nice.

0:14:58 > 0:15:00You probably don't look like David Bowie everyday,

0:15:00 > 0:15:02but you want to be able to look like David Bowie sometimes.

0:15:02 > 0:15:04I'm really conscious with this that, you know,

0:15:04 > 0:15:07this is obviously a medical device that's been designed as

0:15:07 > 0:15:10a medical device and tested as one, and anything that we produce here

0:15:10 > 0:15:12would need to be subjected to that same testing regime.

0:15:12 > 0:15:16The same team have hit on a serious problem.

0:15:16 > 0:15:19Testing any medical device can take years

0:15:19 > 0:15:21to get the right certification.

0:15:22 > 0:15:25Zoe and the team must find a quicker way to create the potentially

0:15:25 > 0:15:27life-changing helmet for Rosie.

0:15:32 > 0:15:36Haiyan has spent three months researching cystic fibrosis.

0:15:38 > 0:15:41Talking to medical experts, chatting to mum Vicky...

0:15:41 > 0:15:44I think the fix should really help you as well.

0:15:45 > 0:15:47..and analysing every part of the boys' treatment.

0:15:50 > 0:15:53She must juggle the Coxheads' case with her own newborn baby...

0:15:53 > 0:15:55Someone's fallen asleep.

0:15:55 > 0:15:58..and international travel for her work.

0:15:58 > 0:16:01It's 6am in Seattle.

0:16:01 > 0:16:04I was just thinking about the Coxheads.

0:16:05 > 0:16:09But back in her lap in Cambridge, she hits on an idea.

0:16:09 > 0:16:13How do we make CF physio more exciting for the boys?

0:16:13 > 0:16:18And my solution is to turn physio into a video game.

0:16:18 > 0:16:22And actually the controller for that video game is right here.

0:16:22 > 0:16:24This is an Acappella.

0:16:24 > 0:16:28It's an airway clearance device for cystic fibrosis.

0:16:28 > 0:16:30The better quality of the breaths that the boys are breathing,

0:16:30 > 0:16:33the higher the score that they might score in a video game.

0:16:36 > 0:16:38She takes the idea to the inventors' hub.

0:16:38 > 0:16:41That sounds like a very difficult thing,

0:16:41 > 0:16:43a very expensive thing to create.

0:16:43 > 0:16:47Cos these boys, surely they're going to be used to...

0:16:47 > 0:16:50One of the big selling games,

0:16:50 > 0:16:53they cost as much as a Hollywood movie to make, don't they?

0:16:53 > 0:16:55You might have hit the nail on the head.

0:16:55 > 0:16:59A game is a big, big deal these days, making a modern game.

0:16:59 > 0:17:01Huge budgets, huge timescales.

0:17:01 > 0:17:04What we're seeing with tablet games, with mobile games,

0:17:04 > 0:17:08that you can create really compelling play experiences

0:17:08 > 0:17:10- with very simple graphics. - That's true, yeah.

0:17:10 > 0:17:12Very simple game mechanics as well.

0:17:12 > 0:17:17Could it be rich enough in content and activity to make it

0:17:17 > 0:17:19have some sort of legacy for them?

0:17:19 > 0:17:21Will it last, will they get bored with it within a week?

0:17:21 > 0:17:24It just has to be better than lying on your side on your own

0:17:24 > 0:17:27doing the physio, right? It doesn't have to be better than Call Of Duty.

0:17:27 > 0:17:29We don't have to make the game.

0:17:29 > 0:17:33I think we can engage a wider community and run a hackathon

0:17:33 > 0:17:37where we bring together designers, programmers,

0:17:37 > 0:17:40hardware, electrical engineers, they'll hack together a project.

0:17:40 > 0:17:43And at the end of it, they actually have working prototypes.

0:17:47 > 0:17:51Haiyan posts messages on social media and a few weeks later,

0:17:51 > 0:17:54a 48-hour hackathon is underway.

0:17:54 > 0:17:58Day one gets off to a good start with volunteers fuelled by pizza

0:17:58 > 0:18:00and work goes on late into the night.

0:18:00 > 0:18:02The next morning I come to see the progress.

0:18:05 > 0:18:06Oh, wow.

0:18:07 > 0:18:09Hey, Haiyan.

0:18:09 > 0:18:12- Hello! - Hello. Look at this.

0:18:12 > 0:18:15- Welcome to our hackathon. - This is very impressive.- Yeah.

0:18:15 > 0:18:17Where has this idea come from?

0:18:17 > 0:18:21So, the hackathon's a kind of a recent invention and it's the

0:18:21 > 0:18:25idea that people volunteer their time and their skills in

0:18:25 > 0:18:27a very compressed timeframe.

0:18:27 > 0:18:31And when you've got that 48 hours, that 24 hours compressed timeframe

0:18:31 > 0:18:34- to get together and make something, you can really achieve a lot.- Right.

0:18:37 > 0:18:41They're volunteering their time to create video games,

0:18:41 > 0:18:46using CF airway clearance devices that I've created.

0:18:46 > 0:18:50- I haven't seen this. What have you come up with?- Let me show you.

0:18:50 > 0:18:53I really want to see. So this is something that you've developed?

0:18:53 > 0:18:55Yes, exactly.

0:18:55 > 0:18:59So this chip has a sensor on it, it's a pressure sensor.

0:18:59 > 0:19:00And when I blow into it...

0:19:01 > 0:19:03WHIRRING

0:19:05 > 0:19:08..the air pressure that I'm producing

0:19:08 > 0:19:11is being turned into digital signals

0:19:11 > 0:19:16and those digital signals are triggering the lights on the board.

0:19:16 > 0:19:19But it's also being transmitted onto my laptop,

0:19:19 > 0:19:22so that I can use it as an input into an app or a video game.

0:19:22 > 0:19:26But how would you use this then to control a game?

0:19:26 > 0:19:30The breath propels them forward, make them run.

0:19:30 > 0:19:32And the button allows them to jump,

0:19:32 > 0:19:34kind of like if you've ever played Mario.

0:19:34 > 0:19:37Is this is actually doable in the time you've got?

0:19:37 > 0:19:39Um... Yes.

0:19:39 > 0:19:41LAUGHTER

0:19:41 > 0:19:45These guys are actually hacking a physical car racing set,

0:19:45 > 0:19:51so that the airway clearance device is going to be helping the boys

0:19:51 > 0:19:55- race cars in their living room or even outdoors.- Wow!

0:19:55 > 0:19:57The Coxhead boys would love this.

0:19:59 > 0:20:02Working with the team are two of the UK's leading cystic fibrosis

0:20:02 > 0:20:07physiotherapy experts - Professor Eleanor Main and Ammani Prasad.

0:20:07 > 0:20:10I think it's the most interesting thing that's happened in airway

0:20:10 > 0:20:12- clearance for a long time.- Wow.

0:20:12 > 0:20:15Actually airway clearance has always been the bugbear and to

0:20:15 > 0:20:21see in 48 hours people suddenly making it possibly fun is just,

0:20:21 > 0:20:22is just amazing.

0:20:22 > 0:20:26And behind that then is just a whole other thing about what data

0:20:26 > 0:20:27- we can collect.- Exactly!

0:20:27 > 0:20:31And as clinicians and researchers, what can we do with that data?

0:20:32 > 0:20:34But this game isn't just a toy.

0:20:34 > 0:20:37Hidden within it is technology that can store clinical research

0:20:37 > 0:20:39on patient breathing.

0:20:39 > 0:20:42If lots of CF sufferers play the games, they could create

0:20:42 > 0:20:46a treasure trove of data about physio for cystic fibrosis -

0:20:46 > 0:20:48the biggest, in fact, ever.

0:20:50 > 0:20:54You can look at hundreds of people simultaneously over

0:20:54 > 0:20:57a long-term, and that hasn't been possible.

0:20:57 > 0:20:59I'm so glad that this could potentially

0:20:59 > 0:21:02change physio research for you guys.

0:21:02 > 0:21:04The fact that, you know, I can create something that might

0:21:04 > 0:21:10improve the lives of a lot of CF sufferers, is just incredible to me.

0:21:11 > 0:21:15After 48 hours of hard work, the hackathon draws to a close.

0:21:15 > 0:21:17CHEERING

0:21:17 > 0:21:19Haiyan has prototypes of games,

0:21:19 > 0:21:21but there's still a lot of work to do.

0:21:26 > 0:21:31Zoe is redesigning seven-year-old Rosie's bulky medical helmet.

0:21:31 > 0:21:35- Today we've come to Rosie's school. - Here she comes.

0:21:39 > 0:21:43We want to know how her teacher feels about her helmet.

0:21:45 > 0:21:50Do you feel more comfortable as her teacher knowing that she's got,

0:21:50 > 0:21:53you know, quite a large bulky helmet on her head?

0:21:54 > 0:21:58For definitely when she's walking around the classroom and

0:21:58 > 0:22:03walking through school, she needs to have something to protect her.

0:22:03 > 0:22:06The thing that concerns me a little bit is sometimes I look at her

0:22:06 > 0:22:09and she just looks uncomfortable, like you can see that she's hot

0:22:09 > 0:22:13and you think she's wearing that all of the time, all day long.

0:22:13 > 0:22:16I can't imagine personally having a helmet on,

0:22:16 > 0:22:20literally from the moment I wake up, until I go home at night.

0:22:20 > 0:22:24Zoe goes to meet Dr Ting, Rosie's consultant.

0:22:24 > 0:22:25He's looked after Rosie since birth

0:22:25 > 0:22:28and through two major brain operations.

0:22:28 > 0:22:31But now thinks she could reduce down how much she wears the helmet.

0:22:31 > 0:22:33During the school time, during the bedtime,

0:22:33 > 0:22:35of course I don't think she really needs it.

0:22:35 > 0:22:40But, again, it's a comfort zone and the confidence factor,

0:22:40 > 0:22:42which I think is important for Rosie.

0:22:42 > 0:22:46So, do you envisage a time when she wouldn't need a helmet?

0:22:46 > 0:22:51I do. The difficulty is nobody can tell when, I think,

0:22:51 > 0:22:55she will be in a position to come off and when everybody is

0:22:55 > 0:22:58surrounding her, will be also comfortable.

0:22:58 > 0:23:02So, a less protective helmet that enabled her to transition

0:23:02 > 0:23:06between helmet and no helmet, psychologically might be helpful?

0:23:06 > 0:23:09That would be very useful for her, actually, yeah.

0:23:10 > 0:23:13So it's clear, Rosie won't always needs a helmet.

0:23:14 > 0:23:19Zoe knows she needs to create head protection that provides safety,

0:23:19 > 0:23:23but crucially starts to wean Rosie off wearing a helmet altogether.

0:23:24 > 0:23:26We've got some helmets,

0:23:26 > 0:23:28and we've got one here that's actually pretty close

0:23:28 > 0:23:30to the type that Rosie has.

0:23:32 > 0:23:33A blue foam...

0:23:35 > 0:23:38Really nothing very sophisticated.

0:23:38 > 0:23:42It's almost like something, like wet suit material.

0:23:42 > 0:23:45In the case of this, nothing more than a web, you know,

0:23:45 > 0:23:47that attaches to the head.

0:23:47 > 0:23:51But you know, there's a gap which provides some form of protection.

0:23:51 > 0:23:53When you, you know, get a knock, it's going to make

0:23:53 > 0:23:54your head shake around.

0:23:54 > 0:23:57Whereas this will just absorb and be much softer and just provide

0:23:57 > 0:23:59better cushioning, really.

0:23:59 > 0:24:00We see these everywhere now.

0:24:00 > 0:24:03We think a lot of people associate them with, I suppose,

0:24:03 > 0:24:05with ludicrous health and safety.

0:24:05 > 0:24:06What force can this withstand?

0:24:09 > 0:24:12It's not a bowling ball!

0:24:12 > 0:24:14Goodness. OK, this is a challenge now.

0:24:16 > 0:24:17A bit harder.

0:24:19 > 0:24:21I don't think I'm going to get much purchase on it.

0:24:23 > 0:24:24Oh, look! There's a dent now.

0:24:27 > 0:24:29- Bit of a dent.- And a crack.

0:24:29 > 0:24:31But, look, the head inside would be nice and safe.

0:24:33 > 0:24:35A bit more purchase.

0:24:36 > 0:24:39It's the foam which is doing all the protecting there.

0:24:39 > 0:24:43We start to investigate protective headwear to examine the

0:24:43 > 0:24:45different materials that are used.

0:24:46 > 0:24:50Let's take that out there.

0:24:50 > 0:24:52So there's our hard shell, like the crash helmet,

0:24:52 > 0:24:54the builder's helmet has.

0:24:54 > 0:24:56Now, look here's the polystyrene.

0:24:58 > 0:24:59Similar to the bike helmet.

0:24:59 > 0:25:00Look, standard polystyrene,

0:25:00 > 0:25:03like packaging you'd get for a TV something.

0:25:03 > 0:25:06'Then Zoe mixes up a non-Newtonian fluid,

0:25:06 > 0:25:09'something you find in your kitchen cupboard.'

0:25:09 > 0:25:11- A big bag of cornflour.- Yep.

0:25:12 > 0:25:16Want to get it to the sort of consistency of double cream.

0:25:16 > 0:25:18Get your hands stuck in there.

0:25:18 > 0:25:21Right, so actually this is pretty perfect consistency wise.

0:25:21 > 0:25:25If you just put your hand in, it's soft and runny.

0:25:25 > 0:25:27But if you punch it...

0:25:27 > 0:25:28HARD THUD

0:25:31 > 0:25:33That is astonishing!

0:25:33 > 0:25:34Go on, pop your hand in.

0:25:34 > 0:25:35No! What do you mean, pop my hand in?!

0:25:35 > 0:25:37Just keep the hammer away.

0:25:37 > 0:25:38I want to do the punching more.

0:25:38 > 0:25:41Go on, you do a punch, just so you get your confidence up.

0:25:43 > 0:25:45Fast release and you'll come away clean.

0:25:47 > 0:25:48That's astonishing!

0:25:48 > 0:25:50How is that possible, look!

0:25:54 > 0:25:55SIMON LAUGHS

0:25:55 > 0:25:56Yeah, that's good.

0:25:58 > 0:26:00That's it.

0:26:00 > 0:26:02That's... That's incredible!

0:26:02 > 0:26:06So that is a liquid that will absorb energy and provide protection.

0:26:06 > 0:26:10What's happening is it's those particles, the little tiny grains of

0:26:10 > 0:26:14the flour, they're not dissolved, they're just suspended in the water.

0:26:14 > 0:26:17And they normally just move over each other, nicely.

0:26:17 > 0:26:19But if you give them energy, they can't get out of the way

0:26:19 > 0:26:23quick enough, so actually are in effect locked together

0:26:23 > 0:26:25and provide that protection.

0:26:25 > 0:26:28It's this principle that Zoe now needs to turn into practical

0:26:28 > 0:26:29head protection for Rosie.

0:26:35 > 0:26:36Two cases are now underway.

0:26:36 > 0:26:39And the team are about to begin their third.

0:26:40 > 0:26:43They must find a solution for a partially sighted mum

0:26:43 > 0:26:45who is scared to leave home with her children.

0:26:47 > 0:26:50Ruby Steel will lead the case.

0:26:50 > 0:26:53She's a top design strategist

0:26:53 > 0:26:55and often the first port of call to decide

0:26:55 > 0:26:57the direction the team will take.

0:26:57 > 0:26:59Ruby, tell me a bit about your background.

0:27:00 > 0:27:04I've done a lot of work with older people,

0:27:04 > 0:27:07in particular my grandmother.

0:27:07 > 0:27:11I think you are always inspired by things that you know.

0:27:11 > 0:27:13One of the real handicaps for her was losing her sight.

0:27:15 > 0:27:17She's now been classified as blind.

0:27:18 > 0:27:22We've come to Woking to meet partially sighted mother of two,

0:27:22 > 0:27:23Shamreen Hussain.

0:27:25 > 0:27:28- Hello.- Hello.- Shamreen, hello.

0:27:28 > 0:27:30CHILDREN SHOUT EXCITEDLY

0:27:30 > 0:27:33- Oh, my goodness, such excitement. - LAUGHTER

0:27:33 > 0:27:35Hello, gentlemen.

0:27:35 > 0:27:37Hello.

0:27:37 > 0:27:39That is very exciting.

0:27:39 > 0:27:42In terms of what makes things particularly hard,

0:27:42 > 0:27:46- are you able to tell us a little bit about that?- Yeah.

0:27:46 > 0:27:51I've got something which is called cone dystrophy, so it's...

0:27:51 > 0:27:55it's the cone cells in the retina which is at the back of the eye,

0:27:55 > 0:27:57which are damaged and I'm totally colour-blind.

0:27:57 > 0:28:00- Can you see us now?- Yeah.

0:28:00 > 0:28:04And do you only see us or are we out of focus, am I in focus?

0:28:04 > 0:28:09- I can't see fine details, and my fine vision is very weak.- Right.

0:28:09 > 0:28:14But inside, when a room is really bright, I struggle,

0:28:14 > 0:28:18because I get a glare, so everything just becomes a blur.

0:28:18 > 0:28:21'Her visual impairment makes everyday tasks

0:28:21 > 0:28:23'like cooking a nightmare.'

0:28:23 > 0:28:26What I'll do is I will use my hands to,

0:28:26 > 0:28:29to know how far in I should be cutting.

0:28:31 > 0:28:33Mind your thumb!

0:28:33 > 0:28:35That was a nervous moment for me. I could see that thumb,

0:28:35 > 0:28:37I kept wanting to pull it out of the way of the knife.

0:28:41 > 0:28:43I've got a slight chill going through me

0:28:43 > 0:28:45when I see you doing that.

0:28:45 > 0:28:47That's why I tend to avoid cooking.

0:28:47 > 0:28:49You try and stay out of the kitchen, you don't cook?

0:28:49 > 0:28:51No, I don't cook. My husband does it all.

0:28:51 > 0:28:56I've been in situations when guests have come, my brother-in-law

0:28:56 > 0:29:00and my husband would do the joint cooking, and when they've come,

0:29:00 > 0:29:03I do the serving so it looks like I've cooked.

0:29:03 > 0:29:07- That's because of the pressure of... - It's too much, explaining that I...

0:29:07 > 0:29:10It's not accepted for me not to be able to cook

0:29:10 > 0:29:12and not to be able to serve.

0:29:12 > 0:29:15- So people genuinely don't know that you have a sight problem?- No.

0:29:15 > 0:29:19They know I have a sight problem. They don't understand what it means.

0:29:19 > 0:29:23'Shamreen can overcome most things in the home, but outdoors,

0:29:23 > 0:29:25'she struggles to cope.'

0:29:25 > 0:29:27Hang on, hang on. Don't run out.

0:29:27 > 0:29:30Now, what about obstacles on the road? Do you feel OK with...?

0:29:30 > 0:29:34No, like manholes and stuff, we just trip over them.

0:29:34 > 0:29:39- Have you fallen over in the street? - Oh, yes.- Have you?- Yes.

0:29:39 > 0:29:43- Have you hurt yourself?- Many times.

0:29:43 > 0:29:46- Many times? Really?- Yeah.

0:29:46 > 0:29:49'She doesn't want to use obvious visual aids like white sticks,

0:29:49 > 0:29:51'guide dogs or support workers.

0:29:51 > 0:29:56'She'd prefer something that keeps her impairment discreet.'

0:29:56 > 0:29:59I feel quite vulnerable and very stressed.

0:29:59 > 0:30:01My stress levels are quite high.

0:30:01 > 0:30:05This feels like a much more difficult environment for you

0:30:05 > 0:30:06to be in, isn't it?

0:30:06 > 0:30:09Yup!

0:30:09 > 0:30:13- I can feel you're getting stressed. - Yeah.- Are you all right?- Yeah.

0:30:13 > 0:30:18- Can you hold my hand? We're going to cross the road now.- Take your time.

0:30:18 > 0:30:21- There's no rush.- Good boy. Good boy.

0:30:21 > 0:30:23'Cone dystrophy is a hereditary disease

0:30:23 > 0:30:27'and Shamreen's son Muham has the same condition.'

0:30:27 > 0:30:29- Right, let's cross the road.- OK.

0:30:29 > 0:30:32- You're closing your eyes a lot more, aren't you?- Yeah.

0:30:32 > 0:30:36- Am I right in thinking you can see less now than...?- Than before.

0:30:36 > 0:30:39- Than before, than in the house?- The road ahead is quite busy.- All right.

0:30:39 > 0:30:42That's one of the main roads and it's going to be very

0:30:42 > 0:30:43difficult to cross.

0:30:43 > 0:30:46So there's a car... A van coming from the right.

0:30:46 > 0:30:48Can you see the van there? Do you want us to cross?

0:30:48 > 0:30:53Yeah, so he's stopped. He must have like given you indication to go.

0:30:53 > 0:30:57- So he probably waved his hand. - He did, yeah.- I don't see that.

0:30:57 > 0:30:59- All I see is a stopped vehicle. - Yeah.

0:30:59 > 0:31:02Do you do things like go to the park with them?

0:31:02 > 0:31:04It's not like an everyday thing.

0:31:04 > 0:31:06It's not an every weekend thing.

0:31:06 > 0:31:10It has to be pre-planned and I need to ask someone to drop me off

0:31:10 > 0:31:11or come with me.

0:31:11 > 0:31:13'On the way home,

0:31:13 > 0:31:16'the dangers for Shamreen and her boys are all too apparent.'

0:31:16 > 0:31:19- There's not a lot of room here, is there?- No.

0:31:19 > 0:31:22I wouldn't want to be dragging two boys along here.

0:31:22 > 0:31:25'With Shamreen and the kids safely back home,

0:31:25 > 0:31:27'we bring an end to a stressful afternoon.'

0:31:27 > 0:31:30- It was quite distressing to see her like that.- It was, I agree.

0:31:30 > 0:31:33I really didn't want... I want to take her out of it straightaway.

0:31:33 > 0:31:35Take her back into the house.

0:31:35 > 0:31:39Take her back into the house, but then that in itself is very

0:31:39 > 0:31:42telling because it just shows how trapped she is.

0:31:42 > 0:31:44What will you do from here?

0:31:45 > 0:31:48So, I need to go away

0:31:48 > 0:31:50and digest all the information that we've got today.

0:31:50 > 0:31:53I want to share everything with the rest of the team and get some

0:31:53 > 0:31:57more input from the rest of their expertise.

0:31:57 > 0:32:00I do think it would be really useful to do an audit of existing

0:32:00 > 0:32:04products and technology, just to see how she reacts to them because...

0:32:04 > 0:32:08- Products for visually impaired people and blind people?- Exactly.

0:32:08 > 0:32:11Just because it's a kind of fast track way to find out what works

0:32:11 > 0:32:13and doesn't work for her.

0:32:13 > 0:32:16Is the fix what you imagined, or is it more complicated?

0:32:16 > 0:32:17It's a lot more complicated.

0:32:17 > 0:32:20It affects every aspect of her life,

0:32:20 > 0:32:24so how do you decide which one of those you want to make better?

0:32:24 > 0:32:25Yeah.

0:32:30 > 0:32:34250 miles away in Stockton-on-Tees, Zoe's been teaching Rosie

0:32:34 > 0:32:36how to customise her helmets.

0:32:38 > 0:32:41But Zoe never stops searching for a way to make the helmets as

0:32:41 > 0:32:44lightweight and inconspicuous as possible.

0:32:44 > 0:32:49- Inspiration comes from the most surprising places.- Hiya!

0:32:49 > 0:32:53So, I've just had a bath and I was in the bath and I had

0:32:53 > 0:32:57a thought about Rosie and the crash helmets and the problem of foams,

0:32:57 > 0:33:01like what it is you actually want from a foam.

0:33:01 > 0:33:04You want it to be able to kind of collapse and absorb the energy,

0:33:04 > 0:33:09but actually you want it to be able to spring back and recover,

0:33:09 > 0:33:14so it's ready to, you know, receive another impact.

0:33:14 > 0:33:17She begins investigating every foam in existence.

0:33:17 > 0:33:20You wouldn't want that as a crash helmet.

0:33:20 > 0:33:23She settles on a revolutionary new foam,

0:33:23 > 0:33:26which has similar properties to cornflour.

0:33:26 > 0:33:29Got this special type of material

0:33:29 > 0:33:30that's really hi-tech,

0:33:30 > 0:33:34used in top-end protective clothing,

0:33:34 > 0:33:37so it's a kind of foam and

0:33:37 > 0:33:42a liquid at the same time, it's soft and malleable, but... Aw!

0:33:42 > 0:33:45If you bash it, it becomes more solid.

0:33:45 > 0:33:49Then, on a night out, she has a moment of inventor's inspiration.

0:33:49 > 0:33:53I was walking down the street and I've seen a man wearing a headband

0:33:53 > 0:33:59and it made me think of Rosie's helmet being just a headband.

0:33:59 > 0:34:02Look, can you see him over my shoulder?

0:34:03 > 0:34:05He's got...

0:34:05 > 0:34:08It's quite wide at the front and it goes down to

0:34:08 > 0:34:11a narrow thing at the back.

0:34:11 > 0:34:14Back at her workshop, Zoe begins working on hi-tech headbands

0:34:14 > 0:34:18that will protect the weakest parts of the skull, around the temple.

0:34:18 > 0:34:21It takes two months of prototype testing,

0:34:21 > 0:34:25then she's ready to see what Rosie and her parents think.

0:34:25 > 0:34:29What I've been looking at making here is actually looking at

0:34:29 > 0:34:34making a range of headbands that use absolutely hi-tech internal

0:34:34 > 0:34:37- materials, so they're soft, but actually... - KNOCKS

0:34:37 > 0:34:40- Yeah.- Really robust and really absorb loads of energy.

0:34:40 > 0:34:43I thought it would be interesting if we can try and essentially

0:34:43 > 0:34:46make for Rosie objects that she can wear in the classroom,

0:34:46 > 0:34:48or when you go for dinner.

0:34:48 > 0:34:51Something that's not a helmet at all and then enables her to have

0:34:51 > 0:34:56her own hair and give her that confidence to take the helmet off.

0:34:56 > 0:34:59So, straight over your head, all the way down.

0:34:59 > 0:35:02Or like that.

0:35:02 > 0:35:05- So, then, that's much cooler. - It is a lot cooler, isn't it?

0:35:05 > 0:35:09It looks like a sports thing that goes on your forehead.

0:35:09 > 0:35:10It is like a sports thing.

0:35:10 > 0:35:14This is used in like Olympic ski suits

0:35:14 > 0:35:17and the top-end motorcyclists' clothing.

0:35:17 > 0:35:20People who ride horses use it in breast plates.

0:35:20 > 0:35:22This is a part of a breastplate for a horse rider.

0:35:22 > 0:35:25Things where you need flexibility, you need movement,

0:35:25 > 0:35:27but you need protection as well.

0:35:27 > 0:35:30So it's kind of come from the elite athletes.

0:35:30 > 0:35:36As parents, how comfortable do you feel about this idea at all?

0:35:36 > 0:35:38Perfectly comfortable cos it obviously

0:35:38 > 0:35:41has got the protection on it as well.

0:35:41 > 0:35:43It's about finding the appropriate object

0:35:43 > 0:35:45- for the appropriate moment.- Yeah.

0:35:45 > 0:35:48When she's outside and running around, the helmet is appropriate,

0:35:48 > 0:35:51but when she's sat at the desk at school, it's just too much.

0:35:51 > 0:35:53- It really does get a look. - Yeah, I think it's lovely.

0:35:53 > 0:35:55I think it's a great idea cos, like you said,

0:35:55 > 0:35:58it's just like what other people would wear, but it's got the

0:35:58 > 0:36:02protection in it, which you can't really tell by looking at them.

0:36:02 > 0:36:06Is it feeling comfortable now? Does it feel hot?

0:36:06 > 0:36:09- Can I wear this one for school? - You can take it to school, yeah.

0:36:09 > 0:36:10You can wear it for school.

0:36:10 > 0:36:12One's for inside and we want a different one for outside.

0:36:12 > 0:36:16This has all been a revelation to us. We can't thank you enough.

0:36:16 > 0:36:18And I think it will transform her life.

0:36:18 > 0:36:21You think it will transform her life? It's as significant as that?

0:36:21 > 0:36:23I really do.

0:36:23 > 0:36:26To give her that confidence to learn to do her own hair and just

0:36:26 > 0:36:28little things like that.

0:36:28 > 0:36:31To see the benefit of the headbands,

0:36:31 > 0:36:34Zoe's organised for Rosie to meet a top hairdresser.

0:36:35 > 0:36:39Free from her helmet, Rosie can now have almost any hairstyle she wants.

0:36:41 > 0:36:45- How would you describe today? - I'm thinking.- You're thinking. Good.

0:36:47 > 0:36:48Serious question.

0:36:51 > 0:36:54- The best day of my life, ever. - Pardon?

0:36:54 > 0:36:55The best day of my life, ever.

0:36:55 > 0:36:58The best day of your life, ever?

0:36:58 > 0:37:01So far! You never know what's to come. That's great.

0:37:01 > 0:37:03- Pop it up. That's it.- That's good.

0:37:03 > 0:37:06- And we can even put the clip back in there.- I want to look in the mirror.

0:37:06 > 0:37:09- Hold on.- I know.- It looks good!

0:37:09 > 0:37:12- Let's have a look. - Shall we have a look in this mirror?

0:37:12 > 0:37:14What do you think?

0:37:14 > 0:37:15That's brilliant.

0:37:15 > 0:37:17Give us a twirl.

0:37:17 > 0:37:19Woohoo!

0:37:19 > 0:37:21- Is that a happy face?- Mm-hm.

0:37:21 > 0:37:25Are you looking forward to showing friends at school?

0:37:25 > 0:37:28It looks great and there's still protection there in that

0:37:28 > 0:37:30delicate bit at the front.

0:37:30 > 0:37:33- Yeah.- You look fantastic. - I want to show my mum and dad.

0:37:33 > 0:37:34OK, you can show mum and dad.

0:37:34 > 0:37:38'For six months, Zoe has researched and tested nearly every type

0:37:38 > 0:37:42'of helmet and material that could protect Rosie.

0:37:42 > 0:37:45'The hi-tech headband she's invented is a world first.

0:37:47 > 0:37:51- 'Back in Cornwall...'- Aiden?- Yeah? - I need you to do this physio.- Nah.

0:37:51 > 0:37:55'..Vicky faces a constant battle to get her two sons to do daily

0:37:55 > 0:37:57'physio for cystic fibrosis.'

0:37:57 > 0:38:00- There's no point. There's no point. - No point then! Fine!

0:38:00 > 0:38:02- If that's the way you want to be. - Aiden...

0:38:02 > 0:38:05Fight number 325 about to commence.

0:38:07 > 0:38:10- Come on. Listen...- I'm not doing it!

0:38:12 > 0:38:16- No!- It needs to be done.- I'm not!

0:38:16 > 0:38:18I'll do it now!

0:38:19 > 0:38:23Somehow, she manages six half-hour treatments every single day.

0:38:23 > 0:38:26And then you can go back and play. All right?

0:38:28 > 0:38:31Haiyan has been working round the clock on the video games

0:38:31 > 0:38:37controller she hopes will transform the boys' monotonous treatment.

0:38:37 > 0:38:40She's desperate to reduce the strain on Vicky.

0:38:40 > 0:38:44Do you ever have moments where you're just like not...

0:38:44 > 0:38:47- Just sort of exhausted? - Always. Yeah.

0:38:47 > 0:38:52I mean, I kind of obviously put on a brave face, but there are

0:38:52 > 0:38:55loads of times I just don't want to have that fight with them again.

0:38:55 > 0:38:59And I work myself up to it. OK, we're going to do physio now,

0:38:59 > 0:39:02and that takes a lot of mental emotion to actually know that

0:39:02 > 0:39:05I'm going to have a fight on my hands

0:39:05 > 0:39:08and at what point do I want to pick that fight?

0:39:08 > 0:39:11Seeing the amount of effort and the amount of emotional

0:39:11 > 0:39:15investment you put in to the boys' exercises every day,

0:39:15 > 0:39:20I think what we really need is something like a digital Vicky.

0:39:20 > 0:39:24- Fantastic! Yeah, that's exactly what we need! I would love it.- Yeah.

0:39:24 > 0:39:26So that you don't nag the boys.

0:39:26 > 0:39:30We can get digital Vicky to nag the boys and you can just sit

0:39:30 > 0:39:33- back and relax and be their mum. - Perfect. Yeah.

0:39:33 > 0:39:34- That would just be amazing.- Aw!

0:39:34 > 0:39:37Obviously, making the boys happy and making it more engaging is great.

0:39:37 > 0:39:40- Yeah.- But actually yeah, if you can take some of that strain and time

0:39:40 > 0:39:44and hours away from my day, then that would be a miracle.

0:39:49 > 0:39:53The idea behind digital Vicky is to monitor the boys' daily physio,

0:39:53 > 0:39:56but also track their fitness routine - a vital part of cystic

0:39:56 > 0:39:58fibrosis therapy.

0:39:58 > 0:40:01Digital Vicky should replace much of the monitoring that takes up

0:40:01 > 0:40:04so much time in real life Vicky's day.

0:40:05 > 0:40:08I brought along this for you.

0:40:08 > 0:40:12Haiyan has fitness tracking devices she hopes will integrate with

0:40:12 > 0:40:13the digital Vicky app.

0:40:15 > 0:40:17They're taking a walk on the beach

0:40:17 > 0:40:21to see what information the fitness trackers collect.

0:40:21 > 0:40:25So, I've just uploaded the data from my fitness tracker and you

0:40:25 > 0:40:27can see my heart rate's been up.

0:40:27 > 0:40:32There's some information around heartbeat that might be important.

0:40:32 > 0:40:33Useful. Yeah.

0:40:33 > 0:40:37Because I think that differentiates between just regular walking

0:40:37 > 0:40:40around and actually high impact.

0:40:40 > 0:40:43If you're classing any exercise as physio then actually the

0:40:43 > 0:40:48intensity needs to be really quite high and they need to make their

0:40:48 > 0:40:52lungs work by huffing and puffing and you'd be able to see that.

0:40:52 > 0:40:55I mean, is this something that when you take the boys to the

0:40:55 > 0:41:00- hospital, to the physio, is that something...?- They would love it.

0:41:00 > 0:41:02- Really?- They really would love it.

0:41:02 > 0:41:06- Do you think the boys will feel like they're being surveilled?- Watched.

0:41:06 > 0:41:09Yeah. A little bit Big Brother?

0:41:09 > 0:41:14Maybe, but I hope that they can see that it will make them more

0:41:14 > 0:41:17- responsible and more independent. I think it's great.- Great.

0:41:17 > 0:41:20- It's very exciting.- Oh, cool!

0:41:21 > 0:41:25Haiyan goes away to build digital Vicky and finish the games

0:41:25 > 0:41:26for the boys.

0:41:29 > 0:41:33It's been three months since Ruby began researching Shamreen's case.

0:41:33 > 0:41:36Today, they've got together to look at existing kitchen technology

0:41:36 > 0:41:38for partially sighted people.

0:41:38 > 0:41:42Right, we have got a selection of products for you

0:41:42 > 0:41:46that we thought you might find useful when cooking.

0:41:46 > 0:41:50These have all been designed for people with visual impairments,

0:41:50 > 0:41:54so they've all got a kind of little trick or feature.

0:41:54 > 0:41:59This is a talking labelling device, so it's supposed to be to help

0:41:59 > 0:42:04you know what's in different packets that you bring home from the shops.

0:42:04 > 0:42:07- You press record... - BEEPS

0:42:09 > 0:42:10Test.

0:42:10 > 0:42:13And then, the idea is that when you touch it...

0:42:13 > 0:42:14"Test."

0:42:14 > 0:42:16OK, so we'll put one of the...

0:42:18 > 0:42:21- BEEPS - Chickpeas in water.

0:42:21 > 0:42:24OK, now, if you touch that, it should work.

0:42:24 > 0:42:26"Chickpeas in water."

0:42:26 > 0:42:29That's quite neat, actually.

0:42:29 > 0:42:33The pen labelling system could help Shamreen easily identify the

0:42:33 > 0:42:36- ingredients in her cupboard. - "Chopped tomatoes".

0:42:36 > 0:42:39That's brilliant. I like that.

0:42:39 > 0:42:40Rice.

0:42:40 > 0:42:42"Rice".

0:42:42 > 0:42:43Brilliant.

0:42:43 > 0:42:49From talking scales to ID pens, Shamreen tries a range of kit.

0:42:49 > 0:42:52It's all available to her through charities or the NHS,

0:42:52 > 0:42:55but until now, Shamreen has always said she wants to cope on her own.

0:42:55 > 0:42:57Oh, it vibrates as well.

0:42:57 > 0:43:01I think it gives me that guarantee that I know I'm not going to

0:43:01 > 0:43:04food poison my family. I can really depend on these products.

0:43:04 > 0:43:07I really am quite surprised.

0:43:07 > 0:43:11Right, I guess we want to go and taste the creation now.

0:43:11 > 0:43:14You've got your confidence in the kitchen now.

0:43:14 > 0:43:19Do you think that we can maybe push forward even further and find

0:43:19 > 0:43:22more ways to give you what you really...

0:43:22 > 0:43:27The real crux of the matter, which is quality time with your kids,

0:43:27 > 0:43:30doing things that a mum would do. Do you feel...?

0:43:30 > 0:43:33Do you feel happy with that, as a kind of...moving forward?

0:43:33 > 0:43:34Definitely.

0:43:34 > 0:43:41It's being a mum for my kids and not using my disability as an obstacle.

0:43:41 > 0:43:43The simplest things, taking them to a park,

0:43:43 > 0:43:49it should be something that I do with my eyes closed, let alone me

0:43:49 > 0:43:52trying to keep them safe and cooped up inside and sometimes

0:43:52 > 0:43:55they're just bouncing off walls because they just need that

0:43:55 > 0:43:58fresh air and to be able to go out.

0:43:58 > 0:44:01I do really want to be close to my children.

0:44:01 > 0:44:07I think she's spent her whole life hiding her disability because

0:44:07 > 0:44:10of the kind of social stigma around it.

0:44:10 > 0:44:16We need to get her more confident and more independent when it

0:44:16 > 0:44:22comes to spending time with her kids and taking them out.

0:44:22 > 0:44:25Armed with a better insight into Shamreen's situation,

0:44:25 > 0:44:28Ruby begins to plan how the team might help her.

0:44:28 > 0:44:32How might we give her freedom to go out,

0:44:32 > 0:44:37how might we better educate people in her network?

0:44:37 > 0:44:39How might we make her take care of her children,

0:44:39 > 0:44:42make her feel secure and safe walking down the road?

0:44:42 > 0:44:46After discussions with the team, they come up with a solution.

0:44:46 > 0:44:52Basically, the idea is an app that will...

0:44:52 > 0:44:56It's effectively like the pen friend that we tried,

0:44:56 > 0:45:00but it's like a kind of giant world version of that.

0:45:00 > 0:45:04So, instead of labelling jars of food and all that kind of stuff,

0:45:04 > 0:45:07it's like labelling things that she might trip over,

0:45:07 > 0:45:10crossing roads, all that kind of stuff.

0:45:10 > 0:45:13Over the next few weeks, the team help to develop an app,

0:45:13 > 0:45:15using the existing global positioning system,

0:45:15 > 0:45:19or GPS technology, that's built in to most smartphones.

0:45:19 > 0:45:22This is basically like an app version of the pen for real life.

0:45:22 > 0:45:25And instead of the little stickers, it's...

0:45:25 > 0:45:29- It's using GPS.- GPS.- Exactly.- Yeah.

0:45:29 > 0:45:32- Ooh!- There you go. - I have a notification.

0:45:32 > 0:45:34They build a rough prototype.

0:45:34 > 0:45:38Ruby enlists the help of Lawrence, a visually impaired mobility expert,

0:45:38 > 0:45:42who will test the GPS app for Shamreen.

0:45:42 > 0:45:45I think maybe we should go out and give it a go.

0:45:45 > 0:45:47Over the next few hours, Ruby, Lawrence,

0:45:47 > 0:45:52and his support worker Naral, walk different routes around London.

0:45:52 > 0:45:54OK, and speak it.

0:45:54 > 0:45:55Point one.

0:45:55 > 0:45:59- They lay down markers. - Yeah, I guess here.- Here?

0:46:01 > 0:46:02Point two.

0:46:03 > 0:46:06- If we go all the way up to the door, maybe?- OK.

0:46:06 > 0:46:08Point three.

0:46:08 > 0:46:10OK.

0:46:10 > 0:46:13And then retrace their steps, hoping the app will trigger an alert.

0:46:15 > 0:46:18- Yep, should have been one around here.- There it is.- Oh, it has.

0:46:18 > 0:46:22- Yep.- Excellent.- "Point three."

0:46:22 > 0:46:25Oh, it think it's point three, but it... OK, OK.

0:46:26 > 0:46:28- At least it's picking them up.- Yeah.

0:46:28 > 0:46:30OK, so I think we need to stop there.

0:46:30 > 0:46:34I think there's quite a bit more work to do, debugging this,

0:46:34 > 0:46:35and get it work accurately.

0:46:35 > 0:46:37I think it's got a lot of potential, definitely.

0:46:37 > 0:46:40I think it's going to have to be part of

0:46:40 > 0:46:42someone's mobility experience really.

0:46:42 > 0:46:46We need to assess what's causing the delay.

0:46:46 > 0:46:48Is it the speed at which we're walking?

0:46:48 > 0:46:51Is it the radius around the pin?

0:46:51 > 0:46:53I'm beginning to realise why this hasn't been done before.

0:46:53 > 0:46:55But if you can do it, if you can crack it,

0:46:55 > 0:46:58it'll be really exciting. Really, really useful.

0:46:58 > 0:47:01Lawrence has really helped work out what the ideal is,

0:47:01 > 0:47:04in quite a lot of detail. So we know what we're shooting for.

0:47:04 > 0:47:08It's just about whether we can actually do it or not because at the

0:47:08 > 0:47:12end of the day, we are relying on satellites in outer space to

0:47:12 > 0:47:16tell us whether there is something that's three metres in front of us.

0:47:16 > 0:47:18I mean, it's really quite extraordinary

0:47:18 > 0:47:20it's got this far really.

0:47:20 > 0:47:24GPS doesn't work quite as well as Ruby had hoped, so the team

0:47:24 > 0:47:28turn to mathematician and physicist Dr Sam Parkinson for help.

0:47:28 > 0:47:30GPS isn't totally accurate.

0:47:30 > 0:47:32The phone is going to know you're in an area,

0:47:32 > 0:47:34it won't know exactly where you are.

0:47:34 > 0:47:37It'll have a pretty good idea where you are, but it'll kind of say that

0:47:37 > 0:47:40you're anywhere within a circle, within five metres of where you are.

0:47:40 > 0:47:43And that's like on Google Maps or something like that. That's when...

0:47:43 > 0:47:47- The circle grows.- The big blue circle versus like the little pin.

0:47:47 > 0:47:48And it tends to get better with time,

0:47:48 > 0:47:51so like as GPS gets a fix, that gets smaller.

0:47:51 > 0:47:54The app needs to trigger an alert when it's closer to a marker,

0:47:54 > 0:47:57just three to five metres from an object,

0:47:57 > 0:47:59rather than ten to 20 metres. Sounds simple,

0:47:59 > 0:48:02but it requires complex computer code and algorithms.

0:48:02 > 0:48:06We kind of recognised that a really important thing for Shamreen

0:48:06 > 0:48:12was the ability to independently go out and do the things that

0:48:12 > 0:48:16any mother would want to do, like take her kids park.

0:48:16 > 0:48:21It won't totally replace something like a cane or a guide dog,

0:48:21 > 0:48:22or something like that.

0:48:22 > 0:48:26It's more a kind of aid memoire to help you use those kind of

0:48:26 > 0:48:29- tools as well.- Mm. Exciting.

0:48:29 > 0:48:31- Hello.- Hello.- Shamreen!

0:48:31 > 0:48:34- Hi!- How are you?

0:48:34 > 0:48:38- So, Ruby has done a lot of work on your behalf.- Can't wait.

0:48:38 > 0:48:42I'm really sort of excited to try and give you something that

0:48:42 > 0:48:45might enable you to do even more because I feel like you've

0:48:45 > 0:48:47got that spirit already and it's just about giving you

0:48:47 > 0:48:51something else to just kind of take it on and run with it, you know?

0:48:51 > 0:48:53Anything's a bonus. Any little thing.

0:48:53 > 0:48:59Even if it's one aspect of my needs that you've got, is a bonus to me.

0:49:02 > 0:49:08What the app allows you to do is enable you to identify things along

0:49:08 > 0:49:13the route that are going to cause a problem, low walls,

0:49:13 > 0:49:15uneven pavement, lampposts...

0:49:15 > 0:49:17- Trip hazards.- Trip hazards.

0:49:17 > 0:49:22And you have a little super small and discreet wireless

0:49:22 > 0:49:26headphone that you put in your ear.

0:49:26 > 0:49:27- Really small.- That's tiny!

0:49:27 > 0:49:31Yeah, so you put that in your ear, so it's really discreet.

0:49:31 > 0:49:34- No-one else knows that it's there. - It's pretty hi-tech.

0:49:34 > 0:49:36It is very hi-tech.

0:49:36 > 0:49:38Does that appeal to you?

0:49:38 > 0:49:42Definitely. And the fact that it's small. It's quite discreet.

0:49:42 > 0:49:45So this could be something magnificent...

0:49:45 > 0:49:49- It gives me that independence. - ..that Ruby has created, eh?

0:49:49 > 0:49:53- It sounds like you're going to invest...- I am. I'm already like...

0:49:53 > 0:49:55Oh, I can do this now! I just need the one go...

0:49:55 > 0:49:58I love the fact you're coming up with lots of like ways that

0:49:58 > 0:49:59you want to be able to test it.

0:49:59 > 0:50:02I'm really excited to see how you kind of get on with it, really.

0:50:02 > 0:50:05Thank you, Ruby, for giving this to me and I can't believe that

0:50:05 > 0:50:09you've spent so much time and I really do appreciate this.

0:50:09 > 0:50:12- It means a lot to me. - You're getting me going now.

0:50:12 > 0:50:14THEY LAUGH

0:50:14 > 0:50:19We head out, so Shamreen can test her new app for the very first time.

0:50:19 > 0:50:21- Where are we going?- To the park!

0:50:21 > 0:50:23That's right. We're going to the park.

0:50:23 > 0:50:27The icon for recording a tag is in the bottom right hand corner there.

0:50:27 > 0:50:32- Oh, OK.- So, what you do is you hold this down. OK, go.

0:50:32 > 0:50:34Top of White Rose Lane.

0:50:34 > 0:50:36"Top of White Rose Lane."

0:50:36 > 0:50:38There you go. Success.

0:50:38 > 0:50:41- Yeah, so we can label the lamppost as one of the tags.- OK.

0:50:41 > 0:50:45- Let me have a look. - Lamppost to the right-hand side.

0:50:45 > 0:50:49- I know I need to stop and look for cars.- Exactly. Go.

0:50:49 > 0:50:51Drop kerb to Wildbank Court.

0:50:51 > 0:50:53OK, and go.

0:50:53 > 0:50:55Road island. Entrance to the park.

0:50:55 > 0:50:57Having laid down all the markers,

0:50:57 > 0:51:01it's time to see if Shamreen's new app actually works.

0:51:01 > 0:51:03- Lamppost.- There we go!

0:51:03 > 0:51:05Oh, it's buzzing. "Manhole cover."

0:51:05 > 0:51:10- Oh, manhole cover.- It's the one up here.- It's coming up. Yeah.

0:51:10 > 0:51:13So, the idea is that it's a warning for all of these things,

0:51:13 > 0:51:16so you've got a chance to kind of prepare.

0:51:16 > 0:51:19It's telling me about the grass kerb coming up.

0:51:19 > 0:51:21- Yay!- To the left.- Just ahead.- Yeah.

0:51:21 > 0:51:24- Brilliant.- Does this feel like this could work?

0:51:24 > 0:51:27I like the fact that it gives me a couple of minutes' warning

0:51:27 > 0:51:31- before I hit the obstacle. - It's a moment, isn't it?- Yeah.

0:51:31 > 0:51:33And it just feels like just the right amount of time.

0:51:33 > 0:51:34I can focus on that area.

0:51:34 > 0:51:38- Shamreen, how...? - "Dropped kerb to Wildbank Court."

0:51:38 > 0:51:40It's telling me it's the drop kerb coming up.

0:51:40 > 0:51:42Brilliant!

0:51:42 > 0:51:44It even looks as though you're approaching it

0:51:44 > 0:51:45more confidently, Shamreen.

0:51:45 > 0:51:47Yes, I know it's coming up.

0:51:47 > 0:51:49So you've already heard that.

0:51:49 > 0:51:51It's such a relief, saying,

0:51:51 > 0:51:53"entrance to the park," you know it's coming.

0:51:53 > 0:51:56- It's given me a guide. Brilliant.- We're here!

0:51:56 > 0:52:00- We have made it to the park! - Yay!- Yay!- Yay!

0:52:00 > 0:52:01- Yes!- Yay!

0:52:01 > 0:52:06- The park! No dogs allowed! - Wow! That looks fun!

0:52:06 > 0:52:08- Yeah.- It worked!- It did. It did work.

0:52:08 > 0:52:11So, you've done a good job there.

0:52:11 > 0:52:14- Done a really good job there. - Oh, I'm really pleased.

0:52:14 > 0:52:19It's a big potential for this, for me and I think other people,

0:52:19 > 0:52:23even like sighted people can take advantage of this as well.

0:52:23 > 0:52:27It's given me the independence that I wanted and not only just

0:52:27 > 0:52:29the independence, the confidence.

0:52:29 > 0:52:33The confidence I will be able to take my kids and enjoy going out

0:52:33 > 0:52:38with my children and enjoy discovering new routes now.

0:52:38 > 0:52:40I mean, it does feel a little bit like you're going to be able

0:52:40 > 0:52:43to do things as a mum now that you haven't been able to do before.

0:52:43 > 0:52:46Shamreen!

0:52:46 > 0:52:48Thank you.

0:52:51 > 0:52:54Haiyan's been working for six months to help two brothers

0:52:54 > 0:52:56with cystic fibrosis...

0:52:56 > 0:53:00- Aiden?- Yeah. - You need to do your physio.- Nah.

0:53:00 > 0:53:03..complete vital daily treatment...

0:53:03 > 0:53:05It's impossible!

0:53:05 > 0:53:08..and reduce the strain on their mum, Vicky.

0:53:09 > 0:53:14But just as she finishes, one of the boys becomes seriously ill.

0:53:14 > 0:53:17So, Morgan, he's been admitted to hospital today.

0:53:17 > 0:53:21- He's got a lung infection that's settled in.- Yeah.

0:53:21 > 0:53:25I mean, it does really bring it home how serious the condition is,

0:53:25 > 0:53:30doesn't it? He's got 50% of his lung capacity at the moment.

0:53:30 > 0:53:34I'm a little bit worried about if he's up for trying out some

0:53:34 > 0:53:37of the games that have been created.

0:53:37 > 0:53:39- Fingers crossed.- Yes.

0:53:39 > 0:53:42It's time for them to see what you've done.

0:53:45 > 0:53:48- Very good to see you. - Hello, good to see you.

0:53:48 > 0:53:50Ooh, look at that! OK.

0:53:50 > 0:53:53So, what do we have? What do we have? What do we have?

0:53:53 > 0:53:57We built a custom electronic piece and now,

0:53:57 > 0:54:03when you blow into it, it will transmit the amount of

0:54:03 > 0:54:07blowing into joystick movements that feed into a video game.

0:54:07 > 0:54:10Sounds pretty impressive.

0:54:10 > 0:54:11Yeah. Give it a hard blow.

0:54:15 > 0:54:16Aiden gets a blue bear.

0:54:18 > 0:54:21Good boy.

0:54:21 > 0:54:26So, do we notice anything about our game characters?

0:54:26 > 0:54:28You've tried to get them just like us.

0:54:28 > 0:54:32One seems to have similar glasses to Morgan and one seems to have

0:54:32 > 0:54:33similar glasses to Aiden.

0:54:34 > 0:54:36Oh!

0:54:36 > 0:54:39- He really does go!- Don't forget to press the button to jump.

0:54:39 > 0:54:41He does go quite far.

0:54:41 > 0:54:43How do you know what to do already?

0:54:45 > 0:54:48- So, Morgan's already done over ten breaths.- Oh, OK.- Blimey.

0:54:48 > 0:54:50Just in these few minutes, without us really...

0:54:50 > 0:54:52- You're surprised, Aiden?- Yeah.

0:54:52 > 0:54:53Without noticing.

0:54:53 > 0:54:57- He's just done it without really realising and...- Yeah.

0:54:57 > 0:55:00- He's cracking on with them as well. - And he's carrying on!

0:55:00 > 0:55:03- So, how do we like the game? - Good.- I like it a lot.

0:55:03 > 0:55:05- Out of ten, Morgan?- Ten.

0:55:05 > 0:55:07Wow!

0:55:07 > 0:55:09Yay! Amazing!

0:55:09 > 0:55:12- Aiden, how's it looking to you?- At the minute, ten.- Yes. Pretty good.

0:55:12 > 0:55:15- I'm so happy.- Thank you so, so much. - I'm happy you like it, Morgan.

0:55:15 > 0:55:18- Do you really like it, Morgan?- Yeah, I do.

0:55:18 > 0:55:21And this isn't all Haiyan has created.

0:55:24 > 0:55:28Right, so has everybody got their devices? Give it a good breath.

0:55:28 > 0:55:30So, you can see... Wow!

0:55:30 > 0:55:34- So, there's Aiden's... - Oh, my goodness! He's steaming on!

0:55:34 > 0:55:35Every time...

0:55:35 > 0:55:38So, you're the red car, and every time you do a good blow,

0:55:38 > 0:55:40the red car accelerates.

0:55:40 > 0:55:44It's not about the strength, it's about the length of the blow,

0:55:44 > 0:55:49- so you've got to be able to blow for...- Here he goes!

0:55:49 > 0:55:51Come on, red!

0:55:51 > 0:55:55Look at the concentration on his face. We don't ever get that.

0:55:55 > 0:55:57- And it's working. - COUGHING

0:55:57 > 0:56:00And that coughing's what's needed for cystic fibrosis, isn't it?

0:56:00 > 0:56:02That's loosening mucus.

0:56:02 > 0:56:07- Come on, red!- Come on, blue! Come on, Morgan! Come on!

0:56:07 > 0:56:10This is the best thing that could ever happen for us because I just

0:56:10 > 0:56:14know that the hardest thing for him to do is physio

0:56:14 > 0:56:17and that is the only thing he needs to do to get better.

0:56:17 > 0:56:20I'm going to be doing it probably every day now,

0:56:20 > 0:56:23without Mum asking me to.

0:56:23 > 0:56:26I'm so happy to see these boys so happy. It's phenomenal,

0:56:26 > 0:56:30and they're really, really into it.

0:56:30 > 0:56:35Normally, I say, get off your iPad and do your physio.

0:56:35 > 0:56:38- Now I'll be saying get on it and do your physio.- Success.

0:56:41 > 0:56:43I don't know what to say.

0:56:45 > 0:56:48'Morgan is back home within a few days.

0:56:48 > 0:56:51'We meet up with the family at the local football club,

0:56:51 > 0:56:54'where dad Simon is a coach.

0:56:54 > 0:56:57'He's putting the kids through their paces to help demonstrate

0:56:57 > 0:56:59'Haiyan's final gift to Vicky.'

0:57:01 > 0:57:04I think meeting you and meeting your family,

0:57:04 > 0:57:11what struck me the most was how much time and effort you put in to

0:57:11 > 0:57:15holding this family together, so I wanted to create really

0:57:15 > 0:57:18two fixes - one for the boys and one for you.

0:57:18 > 0:57:22- It's a dashboard that's really about bringing your family together.- Cool.

0:57:22 > 0:57:26And it's the idea that as the boys are doing their exercises,

0:57:26 > 0:57:30- you can actually log in and see their progress over time.- OK.

0:57:30 > 0:57:32Like a running live diary.

0:57:32 > 0:57:34- Yeah, exactly.- That's brilliant.

0:57:34 > 0:57:38Flippin 'eck, Haiyan! That's very, very clever, isn't it?

0:57:38 > 0:57:42For all those who will be diagnosed in the future, hopefully,

0:57:42 > 0:57:45there are applications here that could really, really help them.

0:57:45 > 0:57:47Yeah. I just wanted to say one thing,

0:57:47 > 0:57:50which was what Morgan said to me when you guys left.

0:57:50 > 0:57:52He didn't really know how to say it, but he said,

0:57:52 > 0:57:54"This is actually a good part for cystic fibrosis, isn't it, Mum?

0:57:54 > 0:57:57"Because normally, it's all really bad."

0:57:57 > 0:58:00And for me, that was just the best thing he could ever, ever say.

0:58:03 > 0:58:06Thanks, Vicky. Aw! That's amazing!

0:58:13 > 0:58:17And our other inventions are also changing lives.

0:58:17 > 0:58:20Shamreen is using her app every day to live life,

0:58:20 > 0:58:23taking her kids to the park.

0:58:23 > 0:58:26And Rosie's enjoying the freedom her hi-tech headband is now giving her.

0:58:26 > 0:58:28Yay!