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0:00:28 > 0:00:30- Every day is different on Dewi Ward.
0:00:30 > 0:00:32- Speaking for myself...
0:00:32 > 0:00:35- ..I arrived in this world - six weeks prematurely.
0:00:35 > 0:00:38- Arya was 12 weeks too early.
0:00:40 > 0:00:41- Hello, gorgeous.
0:00:43 > 0:00:46- She needs to be monitored carefully.
0:00:46 > 0:00:48- She took three years to arrive.
0:00:48 > 0:00:50- And, um...
0:00:50 > 0:00:54- ..I wasn't very well - during the pregnancy.
0:00:54 > 0:00:56- She'll be the only one.
0:00:57 > 0:01:01- Some small children have spent most - of their lives in hospital.
0:01:03 > 0:01:08- This is Harry John Kane Jones. - We're in since Saturday night.
0:01:08 > 0:01:11- Basically, - he stopped breathing twice.
0:01:14 > 0:01:17- Saline at three o'clock - or do you want one sooner?
0:01:17 > 0:01:19- We'll have a bit now, - if you don't mind.
0:01:20 > 0:01:20- Get it now?
0:01:20 > 0:01:21- Get it now?- - Yes, thank you.
0:01:23 > 0:01:25- He's got a prognosis - of myotubular myopathy.
0:01:27 > 0:01:29- It's a muscle problem. - It's very rare.
0:01:32 > 0:01:35- Harry can't get rid of the mucus - from his lungs.
0:01:35 > 0:01:39- It means that any sort of cold - puts him at risk.
0:01:40 > 0:01:45- On that night, the secretions - were just too much for him.
0:01:45 > 0:01:48- We couldn't stop it from coming out.
0:01:48 > 0:01:51- He's not supposed to throw up - because he's nil by mouth.
0:01:52 > 0:01:53- He threw up.
0:01:53 > 0:01:58- Then my seven-year-old daughter - tried to help.
0:01:58 > 0:02:01- We tried to give him oxygen - and tried to clear everything.
0:02:02 > 0:02:09- It got worse and the machine told me - that he basically stopped breathing.
0:02:12 > 0:02:14- I had to resuscitate him.
0:02:14 > 0:02:17- First, - I had to get all the saliva...
0:02:17 > 0:02:20- ..out of his nose and mouth - with my own mouth.
0:02:21 > 0:02:24- I had to do that - because the machine wasn't working.
0:02:24 > 0:02:27- I gave him mouth to mouth then.
0:02:27 > 0:02:29- He recovered quite quickly.
0:02:29 > 0:02:32- But it was scary.
0:02:32 > 0:02:35- It's not something - I want to do every time.
0:02:41 > 0:02:45- Elsi is another baby who's been - a cause for concern for her parents.
0:02:48 > 0:02:50- She has fits after having - immunization jabs.
0:02:52 > 0:02:56- After her recent one, - she had a fit for 50 minutes.
0:02:56 > 0:03:00- She came out of it and then she was - in another fit for two hours.
0:03:02 > 0:03:05- So, we're waiting for answers, - really.
0:03:06 > 0:03:08- We're waiting to hear why - from Alder Hey.
0:03:10 > 0:03:14- Gwennan is concerned that the fit - may have caused brain damage.
0:03:15 > 0:03:17- The doctor wants to reassure her.
0:03:18 > 0:03:21- She's fine at the moment, - bloods are fine, blood gas is OK.
0:03:21 > 0:03:22- We're happy with that.
0:03:23 > 0:03:25- But, exactly - what the reason happening...
0:03:25 > 0:03:27- ..we're not sure at the moment.
0:03:28 > 0:03:31- That's what you need - to discuss with them.
0:03:31 > 0:03:33- But keep in mind, - she's fine at the moment.
0:03:33 > 0:03:36- Blood pressure is fine, - heart rate is OK.
0:03:36 > 0:03:40- Her temperature is slightly up but - that could be due to immunization.
0:03:40 > 0:03:45- It happens with children, a slight - temperature. Nothing to worry about.
0:03:45 > 0:03:48- We assure you - brain is working very well.
0:03:50 > 0:03:51- OK, little girl?
0:03:52 > 0:03:54- OK, bye bye.
0:04:00 > 0:04:04- Because Harry can't get rid - of the mucus in his lungs...
0:04:04 > 0:04:07- ..Fiona, the physio, - is coming to lend a hand.
0:04:16 > 0:04:18- Did she use a mask like this?
0:04:18 > 0:04:21- I've never seen anyone use a mask. - It's a good idea.
0:04:21 > 0:04:24- It just means that - mum, dad, auntie, uncle can.
0:04:24 > 0:04:28- You won't hurt them but you can get - it in the right place.
0:04:29 > 0:04:32- You've got quite big hands, - they're quite the size of him.
0:04:35 > 0:04:38- We've been in Liverpool - for the last eight months.
0:04:38 > 0:04:42- We haven't been home long, - three weeks and this happens.
0:04:42 > 0:04:44- We carry out his full-time care.
0:04:45 > 0:04:48- We give him his feeds, medicine, - and try to do the suction.
0:04:48 > 0:04:54- We do the oxygen, we work on his - chest to clear it out.
0:04:54 > 0:04:56- We have to do a lot.
0:04:57 > 0:05:00- It's a rare condition, - not many children have it...
0:05:00 > 0:05:03- ..it's going to take time - for the nurses to learn...
0:05:03 > 0:05:05- ..and get to know him.
0:05:05 > 0:05:08- His illness isn't run-of-the-mill.
0:05:08 > 0:05:12- With all of us working together, - we'll get there eventually.
0:05:13 > 0:05:14- It's going to take time.
0:05:22 > 0:05:25- Sometimes, in order to save - a life...
0:05:25 > 0:05:27- ..which can happen - all of a sudden...
0:05:27 > 0:05:30- ..they have to focus - on one child only.
0:05:34 > 0:05:38- The baby came just now, - thirty minutes ago.
0:05:38 > 0:05:42- A six-month-old baby - with severe respiratory distress...
0:05:42 > 0:05:45- ..with a complicated background...
0:05:48 > 0:05:51- ..known as a chronic patient - to Alder Hey.
0:05:51 > 0:05:55- I think it's due to some kind - of viral infection.
0:05:55 > 0:05:57- We're trying all things.
0:05:57 > 0:06:00- By the time he arrived, - he's struggling, seriously.
0:06:00 > 0:06:01- The sats are very low.
0:06:02 > 0:06:03- The heart rate is very high...
0:06:04 > 0:06:07- ..which is a sign of severe - breathing problems or distress.
0:06:09 > 0:06:11- Joshua is gravely ill.
0:06:11 > 0:06:15- The crash team from the intensive - care unit came down...
0:06:15 > 0:06:17- ..to Dewi Ward to stabilize him.
0:06:21 > 0:06:24- As we assessed him, - he was having trouble breathing.
0:06:25 > 0:06:29- He obviously - required intensive care.
0:06:29 > 0:06:31- I did his observations...
0:06:31 > 0:06:37- ..just from looking at him, he was - grunting, pale and had blue lips.
0:06:38 > 0:06:41- He needed a high level of oxygen.
0:06:45 > 0:06:47- The doctors and nurses keep coming.
0:06:48 > 0:06:50- Each and every one is a specialist.
0:06:54 > 0:07:00- This is an emergency case. - We have to strive for accuracy.
0:07:00 > 0:07:02- We all have to work as a team.
0:07:04 > 0:07:08- The anaesthetist has arrived. - As experts we need to work together.
0:07:08 > 0:07:12- The anaesthetist is in place so they - are doing the intubation process.
0:07:23 > 0:07:28- Yes, we have to first - of all resuscitate the baby...
0:07:28 > 0:07:32- ..if their condition - is quite severe.
0:07:32 > 0:07:38- Our training in resuscitation - which kicks in.
0:07:38 > 0:07:41- So, we have to make sure - that the airway is clear...
0:07:41 > 0:07:44- ..and that they're able to breathe.
0:07:44 > 0:07:46- Joshua is now unconscious.
0:07:47 > 0:07:50- He needs a machine - to control his breathing.
0:07:52 > 0:07:55- For the time being, - the emergency is over...
0:07:55 > 0:07:58- ..even though Joshua - is still seriously ill.
0:07:59 > 0:08:02- He needs the expertise of one - of the country's larger hospitals.
0:08:22 > 0:08:24- We had a bit of bad news overnight.
0:08:25 > 0:08:27- One of the little girls.
0:08:28 > 0:08:31- We weren't expecting this at all.
0:08:31 > 0:08:41- She'd been great. She'd been taking - her treatment well.
0:08:41 > 0:08:45- It looked favourable for her.
0:08:45 > 0:08:48- She was responding well - to the chemo.
0:08:48 > 0:08:52- She had a scan. Oh, when was that?
0:08:52 > 0:08:56- She had a scan some three weeks ago.
0:08:57 > 0:09:02- That scan showed a slight response - to the chemotherapy.
0:09:03 > 0:09:06- Everyone was pleased with that.
0:09:06 > 0:09:09- She chose to keep going - with the chemotherapy.
0:09:12 > 0:09:15- And then, everything was going fine.
0:09:17 > 0:09:18- Sorry.
0:09:19 > 0:09:21- I don't like this part of the job.
0:09:27 > 0:09:30- Her mother phoned me - later in the evening.
0:09:31 > 0:09:36- She told me that they'd - found a bleed on the brain.
0:09:36 > 0:09:41- She was heading to the HDU - to be intubated.
0:09:43 > 0:09:45- I phoned at midnight - before heading to bed.
0:09:46 > 0:09:49- The girls told me - she was up on the unit there...
0:09:49 > 0:09:51- ..and that she was critical.
0:09:52 > 0:09:59- I phoned this morning before I went - to work and spoke to her mother.
0:10:00 > 0:10:06- She told me that they'd turned off - the life support this morning.
0:10:18 > 0:10:22- I'll visit tomorrow. - I won't go today.
0:10:22 > 0:10:25- She has plenty of people around - today. I'll go see her tomorrow.
0:10:31 > 0:10:31- .
0:10:32 > 0:10:32- Subtitles
0:10:32 > 0:10:34- Subtitles- - Subtitles
0:10:35 > 0:10:39- The ambulance taking Joshua - to Manchester has arrived.
0:10:41 > 0:10:44- In it there's a doctor, - nurse and driver.
0:10:44 > 0:10:49- Their experts at transferring - critically ill patients...
0:10:49 > 0:10:50- ..between hospitals.
0:10:55 > 0:10:58- Before they leave, - a team from Ysbyty Gwynedd...
0:10:58 > 0:11:03- ..hand over Joshua's medical records - about his condition and treatment.
0:11:05 > 0:11:07- It's a two-hour journey.
0:11:08 > 0:11:11- They have to be prepared - in case his condition worsens.
0:11:20 > 0:11:23- Harry may be facing - a journey to Alder Hey...
0:11:24 > 0:11:27- ..if his condition doesn't improve - in the next few days.
0:11:30 > 0:11:35- What they've said is they want - to keep him on the same antibiotics.
0:11:35 > 0:11:39- They want to make sure - he's comfortable which he is.
0:11:40 > 0:11:44- We need to carry on doing what - we're doing on a day-to-day basis.
0:11:45 > 0:11:48- The next plan - is that tomorrow morning...
0:11:48 > 0:11:50- ..he'll have more physio - on his chest...
0:11:50 > 0:11:54- ..to clear more of the saliva - that's built up at the top.
0:11:54 > 0:11:58- And then, I'm hoping in the next - couple of days...
0:11:58 > 0:12:01- ..he'll start being more himself.
0:12:01 > 0:12:04- More than anything his temperature - needs to come down.
0:12:04 > 0:12:08- A high temperature makes his heart - beat faster than it should.
0:12:08 > 0:12:12- If that settles, - everything else should follow.
0:12:14 > 0:12:15- Hey, mate?
0:12:17 > 0:12:18- Ooh.
0:12:26 > 0:12:31- Alder Hey Hospital has also been - in touch about Elsi's fits.
0:12:36 > 0:12:39- Hello, how are you, Mum?
0:12:39 > 0:12:40- I'm fine, thanks.
0:12:41 > 0:12:43- I got an answer from Alder Hey.
0:12:43 > 0:12:46- They don't think - it's the immunization.
0:12:47 > 0:12:50- They think the immunization - caused the temperature.
0:12:50 > 0:12:53- Indirectly, yes, immunization caused - the temperature.
0:12:54 > 0:12:57- Due to the temperature, - the convulsion happened.
0:12:57 > 0:13:01- So we have discussed in the morning - it could be febrile convulsion...
0:13:01 > 0:13:04- ..the same thing they're thinking.
0:13:04 > 0:13:05- The second thing...
0:13:05 > 0:13:09- ..is about the vaccination - which happens at the age of one...
0:13:09 > 0:13:13- ..they think it's a better idea - to give them in hospital.
0:13:13 > 0:13:17- Before the vaccination - give paracetamol...
0:13:17 > 0:13:19- ..and keep her in hospital.
0:13:19 > 0:13:24- It's more responsible and more - comfortable for you as well.
0:13:24 > 0:13:27- Because at home, it's more anxiety.
0:13:29 > 0:13:34- The next step with Elsi is a lumbar - puncture to rule out meningitis.
0:13:34 > 0:13:37- And then we'll have - to see from there.
0:13:38 > 0:13:41- If she's alright after that, - she may get to go home tomorrow.
0:13:44 > 0:13:47- So, it's still a bit - of a concern for me.
0:13:48 > 0:13:54- She's had these fits - every time after a jab.
0:13:54 > 0:13:59- They're saying the jabs aren't the - problem and it's her temperature.
0:14:00 > 0:14:03- It's going to be - a bit stressful for a while.
0:14:04 > 0:14:06- I think so, won't it, Els?
0:14:18 > 0:14:20- While Elsi has a lumbar puncture...
0:14:21 > 0:14:24- ..Asha has arrived - to perform more physio on Harry.
0:14:24 > 0:14:28- They're hoping - he won't have to go to Liverpool.
0:14:30 > 0:14:33- Sorry.
0:14:33 > 0:14:37- Don't make a noise again, OK? - You've lost your dummy.
0:14:37 > 0:14:41- On an adult, I'd use my hand, - cup it and tap it like this.
0:14:42 > 0:14:45- They're so small, - these masks are quite handy.
0:14:47 > 0:14:50- It's like an - old-fashioned ketchup bottle.
0:14:50 > 0:14:53- It loosens the snot.
0:14:55 > 0:14:58- The lungs are lined with tiny hairs.
0:14:58 > 0:15:00- They just scoop up - all those secretions.
0:15:01 > 0:15:04- They send them up to the - back of the mouth and the nose.
0:15:04 > 0:15:09- It's removed - with suction from the mouth.
0:15:09 > 0:15:13- Sometimes, I put a very small tube - down through the nose.
0:15:13 > 0:15:15- We do this to children - here sometimes...
0:15:15 > 0:15:17- ..but usually they're in Alder Hey.
0:15:18 > 0:15:21- We got taught by the team - at Alder Hey.
0:15:21 > 0:15:28- The first thing that happens - at home is that things clog up.
0:15:28 > 0:15:31- He'll get what's called a plug. - It's just hardened snot.
0:15:32 > 0:15:36- A normal child can cough or sneeze - it up. Harry can't do that.
0:15:37 > 0:15:41- We have to go in ourselves - and clear it out.
0:15:42 > 0:15:44- We do it every morning.
0:15:44 > 0:15:48- This suction machine, - we're up all night with it.
0:15:48 > 0:15:52- We're constantly getting rid - of whatever's in his mouth and nose.
0:15:52 > 0:15:56- We do it to stop what happened today - from happening.
0:15:56 > 0:15:57- It's a lot of work.
0:15:58 > 0:16:01- I don't think, actually, - I'll give him another suction.
0:16:02 > 0:16:03- He doesn't sound too bad.
0:16:06 > 0:16:07- What do you think?
0:16:07 > 0:16:09- He sounds much better than he was.
0:16:10 > 0:16:11- Much better. Thanks.
0:16:11 > 0:16:13- You can have some peace now.
0:16:14 > 0:16:15- You can have some peace.
0:16:15 > 0:16:18- The next in is Elis Jones.
0:16:19 > 0:16:21- He's more than used to the hospital.
0:16:21 > 0:16:24- He's been ill - for a couple of weeks.
0:16:25 > 0:16:29- We brought him here in the early - hours of Monday morning, at 1.00am.
0:16:29 > 0:16:30- He just cried and cried.
0:16:32 > 0:16:35- He was struggling to breathe - so we called an ambulance.
0:16:35 > 0:16:37- They told us to come straight here.
0:16:38 > 0:16:39- He's been up all night.
0:16:39 > 0:16:42- He's been crying - and rubbing his ears.
0:16:42 > 0:16:46- I thought he might have - an ear infection or something.
0:16:46 > 0:16:48- He had constipation too.
0:16:48 > 0:16:51- We don't know anything, - they haven't told us anything yet.
0:16:51 > 0:16:53- He's given a urine sample...
0:16:53 > 0:16:57- ..and we're waiting - for the results to come back.
0:16:58 > 0:17:01- When he was born, - he wasn't breathing.
0:17:01 > 0:17:04- He was in a box and we weren't - allowed to touch him.
0:17:05 > 0:17:06- We weren't allowed to see him.
0:17:07 > 0:17:09- He had tubes in his nose.
0:17:10 > 0:17:15- The next day, they shifted him - to Liverpool in a box.
0:17:15 > 0:17:19- He was covered in tubes - when he arrived at Alder Hey.
0:17:19 > 0:17:22- He had a lump at the top - of his nasal palate.
0:17:22 > 0:17:27- It was 3cm x 2cm wide.
0:17:27 > 0:17:35- He had to have an immediate - operation. He had two, three fits.
0:17:35 > 0:17:38- He had one in Bangor - and two in Alder Hey.
0:17:38 > 0:17:42- We didn't know what was going on.
0:17:44 > 0:17:47- We got there on Sunday, he had - the operation on the Thursday.
0:17:47 > 0:17:49- It was a four-hour operation.
0:17:51 > 0:17:53- It basically just killed - my partner and me.
0:17:53 > 0:17:57- Watching him not moving. - Loads of tubes.
0:17:57 > 0:17:58- He wasn't the same.
0:17:59 > 0:18:00- We'd never seen him before.
0:18:00 > 0:18:04- After that Thursday, - he got to come home on Monday.
0:18:04 > 0:18:07- He's been having regular check-ups - in Alder Hey.
0:18:09 > 0:18:12- They wanted to see if the lump grew. - So far, so good.
0:18:14 > 0:18:19- It's almost time to transfer Joshua - to Manchester Children's Hospital.
0:18:19 > 0:18:22- Alder Hey have just phoned.
0:18:22 > 0:18:26- Harry's consultant doctor in - Liverpool wants to assess him.
0:18:26 > 0:18:30- This is one of the biggest blips - he's had since he came home.
0:18:30 > 0:18:33- They want to make sure - that everything we do...
0:18:33 > 0:18:35- ..is the right thing for him.
0:18:35 > 0:18:38- The machine he has isn't adjustable.
0:18:39 > 0:18:41- It's especially made for Harry.
0:18:41 > 0:18:43- They need to review it...
0:18:43 > 0:18:46- ..to make sure that - it's on the correct pressure.
0:18:46 > 0:18:49- It's what helps him - through the day...
0:18:49 > 0:18:52- ..to get the energy - to do what he wants to do.
0:18:52 > 0:18:55- If that isn't right, - it's going to show in the day.
0:18:56 > 0:18:58- I think that will be a full review.
0:18:58 > 0:19:01- I don't know if we'll be there - for a day or two.
0:19:01 > 0:19:04- Hopefully, - it will be there and back.
0:19:04 > 0:19:06- We won't know until we get there.
0:19:06 > 0:19:09- Your wife has just left, - quite upset...
0:19:09 > 0:19:11- ..thinking it'll be months again.
0:19:11 > 0:19:12- We were there a long time last time.
0:19:12 > 0:19:14- We were there a long time last time.- - How long?
0:19:14 > 0:19:16- Over eight months all together.
0:19:16 > 0:19:19- He's due a change on this peg too.
0:19:19 > 0:19:21- This is due, - so they may change that.
0:19:24 > 0:19:26- What they try to do - when we do go to Liverpool...
0:19:26 > 0:19:29- ..as Harry can't travel - far in the car.
0:19:29 > 0:19:33- Travelling to Liverpool takes - two hours and a lot out of Harry.
0:19:33 > 0:19:37- To come back in the same day is - difficult. Oh, yes.
0:19:38 > 0:19:40- He says no, he doesn't want to!
0:19:40 > 0:19:41- We'll have to see.
0:19:43 > 0:19:46- The babies are still coming - to Dewi Ward.
0:19:46 > 0:19:48- This is Kaya.
0:19:48 > 0:19:52- She's been rushed here - in an ambulance.
0:19:52 > 0:19:56- She's got a high temperature - at present.
0:19:56 > 0:19:59- She's got dizzy spells.
0:20:00 > 0:20:01- Vomiting, diarrhoea.
0:20:02 > 0:20:04- The usual sort of things - at the moment, really.
0:20:05 > 0:20:06- Not herself, yeah.
0:20:06 > 0:20:10- Took her to the surgery, the doctor - wasn't happy with her heart rate.
0:20:10 > 0:20:13- It was too fast. - Her breathing was really fast.
0:20:13 > 0:20:17- She phoned for the ambulance. - We came in by ambulance.
0:20:17 > 0:20:21- By the time they turned up, - she started looking a lot better.
0:20:22 > 0:20:23- As they do.
0:20:23 > 0:20:27- While one is waiting for a doctor, - another is seeing a doctor.
0:20:29 > 0:20:32- They've said he can go home now, - everything's OK.
0:20:32 > 0:20:37- Hopefully, everything's OK and we - won't have to come back here.
0:20:37 > 0:20:40- He's got a minor ear infection. - It's nothing.
0:20:40 > 0:20:41- We'll just go home now.
0:20:58 > 0:21:00- Harry, after less than two months - at home...
0:21:01 > 0:21:03- ..is on his way back to Liverpool.
0:21:06 > 0:21:08- Hi, how are you?
0:21:08 > 0:21:08- I'm fine, and you?
0:21:08 > 0:21:10- I'm fine, and you?- - Thank you. See you soon.
0:21:10 > 0:21:12- Tomorrow!
0:21:15 > 0:21:19- I hope he'll be OK on the way - because it's a long journey.
0:21:19 > 0:21:21- His mother is with him so he's safe.
0:21:21 > 0:21:23- We know him better than anyone.
0:21:23 > 0:21:25- I hope he won't get worse - on the way.
0:21:25 > 0:21:27- I don't want that to happen.
0:21:27 > 0:21:31- At least we're going there now - and we can sort this out.
0:21:34 > 0:21:38- I'm driving up because I've got to - come home and see to our daughter.
0:21:38 > 0:21:41- It's hard, being in two places - at the same time.
0:21:41 > 0:21:44- Nain and Taid are looking after her.
0:21:44 > 0:21:45- She's safe.
0:21:46 > 0:21:48- It's been a long eight/nine months.
0:21:49 > 0:21:54- It feels like you're going three - steps forward, ten steps back.
0:21:54 > 0:21:55- It is hard.
0:21:56 > 0:21:59- He's all that matters. - So long as he's safe, I'm happy.
0:21:59 > 0:22:01- I'd be happier if he was at home.
0:22:16 > 0:22:18- After eight hours on Dewi Ward...
0:22:18 > 0:22:21- ..Joshua is ready to go - to Manchester Children's Hospital.
0:22:30 > 0:22:34- There's a bed waiting for him - at the intensive care unit.
0:23:37 > 0:23:40- S4C Subtitles by Testun Cyf.
0:23:41 > 0:23:41- .