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0:00:20 > 0:00:25- Every morning on Dewi Ward, there - are jobs that have to be done.
0:00:25 > 0:00:27- Filling the white board...
0:00:29 > 0:00:31- ..making breakfast...
0:00:32 > 0:00:33- ..and cleaning.
0:00:33 > 0:00:35- Cleaning is essential.
0:00:36 > 0:00:38- Sally is an old hand.
0:00:39 > 0:00:43- Sally, for how long - have you cleaned this ward?
0:00:44 > 0:00:47- I've been here for about 32 years.
0:00:48 > 0:00:50- I've been everywhere...
0:00:50 > 0:00:52- ..in St David's and here.
0:00:53 > 0:00:57- I've been everywhere, - but I'm based here.
0:00:58 > 0:01:00- Do you like cleaning?
0:01:00 > 0:01:01- Yes.
0:01:01 > 0:01:03- Do you clean at home?
0:01:03 > 0:01:04- Yes.
0:01:04 > 0:01:08- We have a farm, - so there's work there.
0:01:08 > 0:01:13- I could do it all day! Someone comes - in with dirty feet all the time.
0:01:21 > 0:01:24- I have blue cloths for those rooms.
0:01:26 > 0:01:28- The ones for the toilets are red.
0:01:30 > 0:01:32- This is for the toilets.
0:01:32 > 0:01:36- So you don't mix - the red and blue ones.
0:01:36 > 0:01:37- No.
0:01:37 > 0:01:39- These are for the floors.
0:01:39 > 0:01:42- These are for the toilet floors.
0:01:47 > 0:01:51- They're ready - if they're needed there...
0:01:53 > 0:01:55- ..and in the toilets.
0:01:56 > 0:01:59- Eleri, - the children's cancer nurse...
0:01:59 > 0:02:03- ..is thinking about a girl - with a high temperature...
0:02:03 > 0:02:05- ..who arrived last night.
0:02:06 > 0:02:08- Right, what's the plan with Daisy?
0:02:09 > 0:02:13- I emailed Jo, her nurse - practitioner in Manchester.
0:02:14 > 0:02:16- She's supposed to be there today.
0:02:16 > 0:02:21- I wanted to check the Cyclosporine - dose, because she hasn't had it yet.
0:02:21 > 0:02:24- I checked her blood results - this morning.
0:02:25 > 0:02:28- The Hb has gone up - to 8 from 73, so it's 80.
0:02:28 > 0:02:31- The platelets have - gone down one or two.
0:02:31 > 0:02:34- Her Neuts have gone from 4.3 to 1.6.
0:02:34 > 0:02:36- Her CRP is 119.
0:02:36 > 0:02:37- It's high.
0:02:38 > 0:02:41- I'll just - do the Cyclosporine this morning.
0:02:41 > 0:02:45- Dr Kubwalo suggested - she should go to Manchester.
0:02:45 > 0:02:49- But how are we going to fit - the antibiotics round that?
0:02:49 > 0:02:50- I'll talk to Jo again.
0:02:50 > 0:02:51- I'll talk to Jo again.- - See what they want to do.
0:02:52 > 0:02:56- Ask if they want us to transfuse her - too. Maybe they won't want that.
0:02:57 > 0:03:00- I don't know how - long she's had a temperature.
0:03:00 > 0:03:01- Something is going on.
0:03:01 > 0:03:02- Something is going on.- - Yes.
0:03:02 > 0:03:07- Should I phone Manchester too, or - would that just complicate things?
0:03:07 > 0:03:10- I'll let Jo know - how things are going.
0:03:10 > 0:03:14- I emailed her at 7.00am. - She obviously wasn't in.
0:03:14 > 0:03:16- I'll check that and do her blood.
0:03:17 > 0:03:18- I'll talk to her.
0:03:18 > 0:03:20- Let me know if I should phone too.
0:03:21 > 0:03:24- I don't want both of us - to have the same conversation.
0:03:25 > 0:03:27- But we need to sort it out.
0:03:27 > 0:03:28- OK. Thanks.
0:03:32 > 0:03:36- Cian is supposed to have - grommets in his ears today.
0:03:37 > 0:03:40- But I don't think - Cian is at all keen.
0:03:41 > 0:03:43- No, never, nothing doing.
0:03:47 > 0:03:48- No, thanks!
0:03:48 > 0:03:50- No, thanks! OK.
0:03:52 > 0:03:53- You go first.
0:03:53 > 0:03:55- Weigh together.
0:03:58 > 0:03:59- Sit there.
0:03:59 > 0:04:00- No!
0:04:06 > 0:04:07- CIAN PROTESTS
0:04:08 > 0:04:10- Mum needs to carry him.
0:04:11 > 0:04:14- If you have trouble weighing him...
0:04:14 > 0:04:16- I'm going to have trouble later.
0:04:16 > 0:04:18- He's had this before.
0:04:19 > 0:04:23- It'll take four men to hold him down - to have the anaesthetic!
0:04:24 > 0:04:25- Oh, dear.
0:04:25 > 0:04:27- It's going to be fun.
0:04:27 > 0:04:30- So you weren't looking forward.
0:04:30 > 0:04:31- So you weren't looking forward.- - No, not at all.
0:04:33 > 0:04:35- I know how he was last time.
0:04:37 > 0:04:39- He's strong for his age.
0:04:41 > 0:04:43- No way.
0:04:43 > 0:04:44- Yes way.
0:04:47 > 0:04:49- Have you tried preparing him?
0:04:49 > 0:04:53- Yes, I've put cream - on his hand every other day.
0:04:53 > 0:04:57- We didn't tell him why we were - coming here. He'd work himself up.
0:05:01 > 0:05:03- What does he think he's doing today?
0:05:03 > 0:05:05- He knows now.
0:05:05 > 0:05:08- It's brought everything - back from January.
0:05:12 > 0:05:14- He's calmer than last time.
0:05:16 > 0:05:17- Aren't you?
0:05:20 > 0:05:22- Unlike Cian, Daisy is an old hand.
0:05:23 > 0:05:28- Little Daisy had a bone marrow - transplant recently.
0:05:29 > 0:05:31- One of the drugs she's on...
0:05:31 > 0:05:35- ..to stop her rejecting - the bone marrow, is Cyclosporine.
0:05:36 > 0:05:40- We want to see what - the levels are this morning.
0:05:42 > 0:05:46- We'll see. She might - be able to go home soon.
0:05:47 > 0:05:49- Now, I'm going to...
0:05:50 > 0:05:52- ..prepare everything, to take blood.
0:05:54 > 0:05:58- I don't want to take too much, - or she'll need a transfusion.
0:05:59 > 0:06:03- It started in November, - when she became ill.
0:06:04 > 0:06:08- In February, - they found that she had HLH.
0:06:10 > 0:06:11- What is HLH?
0:06:11 > 0:06:13- I thought you'd ask!
0:06:14 > 0:06:18- HLH is Haemophagocytic - Lymphohistiocytosis.
0:06:20 > 0:06:21- Yes.
0:06:22 > 0:06:23- Whew! That's a mouthful.
0:06:24 > 0:06:27- We abbreviate it - for obvious reasons.
0:06:27 > 0:06:31- She had a bone marrow transplant. - When was it?
0:06:32 > 0:06:33- July the 19th.
0:06:33 > 0:06:35- Yes, July this year.
0:06:36 > 0:06:39- She had to have - the bone marrow transplant.
0:06:40 > 0:06:42- HLH affects the immune system.
0:06:44 > 0:06:47- Unfortunately, - it can go either way.
0:06:47 > 0:06:51- So she had the transplant - and look at her now!
0:06:51 > 0:06:53- She isn't the same girl.
0:06:54 > 0:06:56- And Cian won't be the same boy...
0:06:56 > 0:06:57- Fish.
0:06:57 > 0:06:58- Fish.- - Fish.
0:06:58 > 0:07:02- ..if he takes medication - to help him relax.
0:07:03 > 0:07:07- Good luck, Nurse Perlita. - You'll need it.
0:07:07 > 0:07:09- Okey-dokey. Tell me his name.
0:07:10 > 0:07:11- Cian Rhys Roberts.
0:07:11 > 0:07:13- Say Ah!
0:07:14 > 0:07:15- Ah!
0:07:16 > 0:07:18- Do you want dad to do it?
0:07:19 > 0:07:20- Come here!
0:07:21 > 0:07:23- CIAN GIGGLES- - You're playing the fool!
0:07:23 > 0:07:27- Do you want a sticker? - Put the medicine in your mouth.
0:07:27 > 0:07:28- Open your mouth.
0:07:29 > 0:07:30- Ppphh!
0:07:31 > 0:07:32- Ugh!
0:07:33 > 0:07:34- Lowri, help!
0:07:35 > 0:07:38- When Dad fails, - Mam has to be brought in.
0:07:38 > 0:07:40- Aah!
0:07:46 > 0:07:47- Come on.
0:07:47 > 0:07:49- Open your mouth.
0:07:49 > 0:07:50- It's gone.
0:07:51 > 0:07:52- It's gone.
0:07:52 > 0:07:53- There you go.
0:07:53 > 0:07:55- There you go.- - Sorry.
0:07:55 > 0:07:56- OK.
0:07:59 > 0:08:03- He will be a bit drowsy. - He needs to stay on the bed.
0:08:03 > 0:08:05- Do you want to wash your hands?
0:08:07 > 0:08:09- Thank you.
0:08:10 > 0:08:11- Slowly!
0:08:13 > 0:08:15- Come on.
0:08:16 > 0:08:18- Stop.
0:08:18 > 0:08:19- That one.
0:08:19 > 0:08:21- No!
0:08:21 > 0:08:25- Daisy's surgeon - in the Manchester hospital...
0:08:25 > 0:08:28- ..has asked for a repeat blood test.
0:08:29 > 0:08:33- Daisy has just had - a bone marrow transplant.
0:08:33 > 0:08:35- Any infection would be dangerous.
0:08:35 > 0:08:38- Who was the bone marrow donor?
0:08:38 > 0:08:39- Herself.
0:08:40 > 0:08:46- They took a sample of Daisy's - bone marrow and cleaned it.
0:08:48 > 0:08:50- Then she had it back.
0:08:51 > 0:08:55- But of course, she had to have - pre-chemo conditioning first.
0:08:55 > 0:08:57- That made her a bit ill.
0:08:58 > 0:09:01- But everything went well after that.
0:09:02 > 0:09:05- These will take - about half an hour to process.
0:09:06 > 0:09:09- Then we'll know - if the dose is right.
0:09:10 > 0:09:13- Cyclosporine - is an anti-rejection drug.
0:09:13 > 0:09:16- It's important - to get the dosages right...
0:09:16 > 0:09:20- ..and that the levels - are right for Daisy.
0:09:20 > 0:09:24- Daisy has been on so many drugs - and had so many blood tests...
0:09:24 > 0:09:29- ..she has a port, a small device - that goes straight to the vein.
0:09:32 > 0:09:35- Do you think this - is going to work now, Dais?
0:09:35 > 0:09:37- Yes!
0:09:37 > 0:09:39- Take a good bit here.
0:09:41 > 0:09:42- OK.
0:09:44 > 0:09:46- It's dilute, isn't it?
0:09:47 > 0:09:48- Not the usual.
0:09:48 > 0:09:51- You haven't been - on the Guinness, have you?
0:09:52 > 0:09:53- No.
0:09:53 > 0:09:55- Ready to clamp it for Eleri?
0:09:59 > 0:10:00- Just a minute.
0:10:01 > 0:10:03- Why is it not going up, Dais?
0:10:06 > 0:10:08- Do you want to clamp it?
0:10:08 > 0:10:10- Do you want me to do it?
0:10:10 > 0:10:14- Eleri will do it, with you. - Do you want to do it with me?
0:10:14 > 0:10:16- One, two, three.
0:10:17 > 0:10:19- Whee! There we go.
0:10:21 > 0:10:25- Cian had his medication - half an hour ago.
0:10:25 > 0:10:29- Is the idea of surgery - more acceptable now?
0:10:30 > 0:10:33- Do you want to go to see the fishes?
0:10:37 > 0:10:38- No!
0:10:41 > 0:10:42- CIAN CRIES
0:10:46 > 0:10:47- Want to stay.
0:10:48 > 0:10:50- No, I don't think so.
0:10:55 > 0:10:56- There you are.
0:10:57 > 0:10:59- You can play with the iPad.
0:11:01 > 0:11:02- OK?
0:11:09 > 0:11:11- We'll see the fish now.
0:11:29 > 0:11:30- .
0:11:34 > 0:11:34- Subtitles
0:11:34 > 0:11:36- Subtitles- - Subtitles
0:11:41 > 0:11:45- In Room Five, Cian is about - to have a pair of grommets...
0:11:45 > 0:11:48- ..if, and it's quite a big if...
0:11:49 > 0:11:51- ..if they can get him to sleep.
0:12:00 > 0:12:02- Tickle your feet!
0:12:03 > 0:12:04- Are you ticklish?
0:12:05 > 0:12:06- Aah!
0:12:07 > 0:12:08- Aah! Biting me!
0:12:09 > 0:12:13- Have you seen our mask? - This is what fighter pilots have.
0:12:17 > 0:12:18- No!
0:12:22 > 0:12:23- Good boy.
0:12:26 > 0:12:28- Hush.
0:12:29 > 0:12:30- WAILS
0:12:36 > 0:12:38- At last, Cian is asleep.
0:12:39 > 0:12:41- But his father is wide awake.
0:12:47 > 0:12:48- SNIFFS
0:12:57 > 0:12:59- He won't remember any of that.
0:12:59 > 0:13:00- He's sound asleep.
0:13:27 > 0:13:29- You feel for him.
0:13:29 > 0:13:30- Yes.
0:13:30 > 0:13:31- Was that hard?
0:13:31 > 0:13:33- Was that hard?- - Hellish.
0:13:42 > 0:13:45- In Theatre 5, - they start work without delay.
0:13:45 > 0:13:49- Placing two small pieces - of plastic is easy...
0:13:50 > 0:13:52- ..compared to preparing Cian.
0:14:00 > 0:14:04- You'll hear yourself - making a racket, Cian.
0:14:13 > 0:14:17- This boy isn't having - something put in his ear...
0:14:17 > 0:14:20- ..but having something removed.
0:14:28 > 0:14:28- What is your name?
0:14:28 > 0:14:30- What is your name?- - Mackenzie.
0:14:30 > 0:14:32- You don't look very ill!
0:14:32 > 0:14:33- No!
0:14:34 > 0:14:36- What's the matter?
0:14:36 > 0:14:38- There's something in my ear.
0:14:38 > 0:14:40- Tell me the story.
0:14:40 > 0:14:42- I don't know, really.
0:14:43 > 0:14:48- About a month ago, I told Mam, - "I can't hear with this ear."
0:14:50 > 0:14:52- We went to the doctor's yesterday.
0:14:53 > 0:14:56- There's something plastic in my ear.
0:14:56 > 0:15:00- When you told Mam - you couldn't hear, what did Mam say?
0:15:00 > 0:15:03- Did Mam think - you were making a fuss?
0:15:03 > 0:15:07- Mam thought you just wanted - to listen to loud music.
0:15:08 > 0:15:11- When the doctor said - he could see something...
0:15:11 > 0:15:14- ..Mam felt very guilty.
0:15:16 > 0:15:18- What do they think it is?
0:15:18 > 0:15:19- They're not sure.
0:15:19 > 0:15:24- They couldn't see properly, but - it might be a small plastic tube.
0:15:24 > 0:15:26- So what's happening today?
0:15:26 > 0:15:29- They'll look - and take it out, hopefully.
0:15:29 > 0:15:30- How?
0:15:31 > 0:15:33- They haven't told us. I don't know.
0:15:34 > 0:15:36- Mackenzie, I hear...
0:15:37 > 0:15:39- ..you're quite well-known.
0:15:39 > 0:15:40- Yes.
0:15:49 > 0:15:52- "If this is your first video, - please subscribe.
0:15:54 > 0:15:57- "If you like the video, - please, thumbs up.
0:15:57 > 0:15:59- "The link is down below.
0:16:01 > 0:16:02- "Ta-ta!
0:16:04 > 0:16:07- How many subscribers do you have?
0:16:07 > 0:16:08- I don't know, really.
0:16:09 > 0:16:10- How many did you have last time?
0:16:10 > 0:16:12- How many did you have last time?- - Eighteen.
0:16:15 > 0:16:16- Nineteen.
0:16:21 > 0:16:24- Cian is back, calm and quiet...
0:16:24 > 0:16:26- ..for a while, at least.
0:16:28 > 0:16:29- Now they tell us!
0:16:32 > 0:16:33- Don't want that!
0:16:34 > 0:16:36- The doctor's coming to pull it.
0:16:42 > 0:16:44- The doctor's coming to pull it.
0:16:46 > 0:16:48- That!
0:16:50 > 0:16:55- The doctor has arrived to remove - whatever is in Mackenzie's ear.
0:16:56 > 0:16:59- What is it?
0:17:02 > 0:17:03- A train?
0:17:04 > 0:17:05- A piece of pizza?
0:17:06 > 0:17:08- What about filming it, Mam?
0:17:11 > 0:17:13- OK, there we are.
0:17:13 > 0:17:14- It's out now.
0:17:20 > 0:17:22- The doctor has no idea what it is.
0:17:23 > 0:17:26- Since he put it in, - does Mackenzie know?
0:17:27 > 0:17:29- I think it's from a hoodie.
0:17:30 > 0:17:33- You know the part - you pull on a hoodie?
0:17:34 > 0:17:36- There's a bit you can pull.
0:17:36 > 0:17:38- I think it's that bit.
0:17:40 > 0:17:41- What was in your ear?
0:17:41 > 0:17:42- What was in your ear?- - I don't know.
0:17:43 > 0:17:44- Did you use it to scratch your ear?
0:17:44 > 0:17:46- Did you use it to scratch your ear?- - No.
0:17:46 > 0:17:47- Can I take the plastic thing home?
0:17:47 > 0:17:48- Can I take the plastic thing home?- - Yes, of course you can.
0:17:49 > 0:17:51- We'll put it in a pot for you.
0:17:51 > 0:17:54- You can take it home - and show it to your friends. OK?
0:17:56 > 0:17:59- Can I have a last look in your ear?
0:18:02 > 0:18:05- Daisy's blood test results are back.
0:18:07 > 0:18:09- She's got to go to Manchester now.
0:18:09 > 0:18:13- Her consultant said - he wants her to be in that hospital.
0:18:13 > 0:18:15- He can monitor her a lot better.
0:18:15 > 0:18:18- A few of her blood results - are quite low.
0:18:18 > 0:18:22- It's a big sign that - she's got an infection somewhere.
0:18:22 > 0:18:24- But they're not too sure where.
0:18:25 > 0:18:28- So she's got to be on constant - antibiotics at the moment.
0:18:29 > 0:18:30- Are you all packed?
0:18:30 > 0:18:31- Are you all packed?- - Yes, well, not really.
0:18:31 > 0:18:35- I'll have to get my mum - to meet me at the hospital...
0:18:35 > 0:18:38- ..because I've not - been able to go home.
0:18:40 > 0:18:43- When they said - you had to go to Manchester...
0:18:43 > 0:18:45- ..what did you think?
0:18:45 > 0:18:46- I don't want to go.
0:18:47 > 0:18:49- I don't really have a choice.
0:18:49 > 0:18:51- It's the best place for her anyway.
0:18:54 > 0:18:56- But it is a bit of a nightmare.
0:19:09 > 0:19:11- Mackenzie, - what will you do with that?
0:19:11 > 0:19:13- Show it in school.
0:19:13 > 0:19:15- Will you put it on YouTube?
0:19:15 > 0:19:16- Yes.
0:19:17 > 0:19:18- What will you say?
0:19:19 > 0:19:23- What message will you put - on your YouTube channel?
0:19:24 > 0:19:27- Don't worry if you have - something in your ear.
0:19:27 > 0:19:30- Just go to hospital to take it out.
0:19:31 > 0:19:33- You don't have to worry.
0:19:34 > 0:19:39- What if mothers say, "There's - nothing wrong with your ear."
0:19:41 > 0:19:42- Don't listen...
0:19:42 > 0:19:44- ..she'll still like you.
0:19:45 > 0:19:47- BACKGROUND GIGGLES
0:19:49 > 0:19:51- What will Mam say on YouTube?
0:19:51 > 0:19:53- Can Mam be on YouTube?
0:19:55 > 0:19:57- Listen to your child next time.
0:19:57 > 0:20:00- Yes. Listen to your children.
0:20:02 > 0:20:05- It's time for Mackenzie - to go home...
0:20:08 > 0:20:09- ..and Cian too.
0:20:10 > 0:20:14- He's much happier now - than when he arrived.
0:20:19 > 0:20:23- But little Daisy - is going back to Manchester.
0:20:26 > 0:20:28- It's a type of blood cancer.
0:20:29 > 0:20:33- She had a bone marrow - transplant under Manchester's care.
0:20:33 > 0:20:36- That's why you're going there - and not to Alder Hey.
0:20:37 > 0:20:39- All her care is under Manchester.
0:20:39 > 0:20:42- She came here last night - with a temperature.
0:20:42 > 0:20:45- Her blood results aren't right.
0:20:45 > 0:20:50- We phoned for advice this morning - to see if we could manage her here.
0:20:50 > 0:20:55- But the professor in Manchester - wants to give her a check over.
0:20:56 > 0:20:58- Maybe her mother could carry her.
0:20:58 > 0:21:00- You needn't bring the stretcher in.
0:21:00 > 0:21:01- You needn't bring the stretcher in.- - No problem.
0:21:01 > 0:21:03- Hello. Hiya, Daisy.
0:21:03 > 0:21:05- I'm going now.
0:21:05 > 0:21:06- You're going now!
0:21:06 > 0:21:10- These nice people are going - to take you to Manchester. OK?
0:21:11 > 0:21:11- Are you coming with us?
0:21:11 > 0:21:12- Are you coming with us?- - Yes.
0:21:12 > 0:21:14- Are you going to go for a drive?
0:21:14 > 0:21:15- Are you going to go for a drive?- - Yes.
0:21:16 > 0:21:19- She has a central line, - but she's had her antibiotics.
0:21:20 > 0:21:22- She shouldn't need - anything on the way.
0:21:23 > 0:21:27- The NG tube is for medication. - She won't take it orally.
0:21:27 > 0:21:31- Mam will do it if needed. - I don't think it will be. OK?
0:21:33 > 0:21:35- Alright?
0:21:35 > 0:21:37- Do you want me to carry it for you?
0:21:39 > 0:21:40- Thanks.
0:21:41 > 0:21:42- Hello!
0:21:43 > 0:21:44- Hiya.
0:21:59 > 0:22:03- Just for a minute. - Then we'll get you in the seat.
0:22:24 > 0:22:28- Since having grommets, - Cian can hear much better.
0:22:29 > 0:22:34- Daisy still goes to Manchester - for treatment every fortnight...
0:22:34 > 0:22:37- ..but her hair has - started to grow back.
0:22:39 > 0:22:42- Mackenzie's page - has 153 followers now.
0:22:58 > 0:23:00- S4C Subtitles by Gwead
0:23:00 > 0:23:01- .