:00:00. > :00:08.This programme contains pictures some viewers may find disturbing.
:00:09. > :00:16.Hello, I'm Marie Ashby. Tonight, are patients with anorexia being let
:00:17. > :00:23.down? We have tried, we have looked everywhere, but we cannot find
:00:24. > :00:26.anywhere to support her. To others, the National Health Service has
:00:27. > :00:32.failed. One father believes, with the right treatment, his daughter
:00:33. > :00:36.would still be alive. We investigate whether the NHS is
:00:37. > :00:38.failing the families who ask for help.
:00:39. > :00:41.Also tonight, how DNA from the Elephant Man's bones may offer new
:00:42. > :00:46.hope to scientists researching cancer.
:00:47. > :00:48.And remembering Ray Gosling... I think at this juncture we should
:00:49. > :01:03.pause for a moment. It is sometimes called the slimmer's
:01:04. > :01:07.disease, but for the 160,000 people in the UK who have severe anorexia,
:01:08. > :01:16.this sort of weight loss is not about losing a few pounds ` it can
:01:17. > :01:19.be life threatening. Sufferers see themselves as overweight even when,
:01:20. > :01:22.to everyone else, it is clear they are severely malnourished. Imagine
:01:23. > :01:32.being a parent watching your daughter starve herself. Her health
:01:33. > :01:35.declined rapidly. It really did spiral out of control. She would
:01:36. > :01:49.lose for ?5 in a week. It has torn her as a part. To look
:01:50. > :01:52.at her, you would not think there was anything wrong but living
:01:53. > :01:54.day`to`day with it was absolutely horrendous.
:01:55. > :01:57.I am beginning my investigation by hearing the story of one teenager
:01:58. > :02:01.who lost her life to a mental illness that is often misunderstood,
:02:02. > :02:03.even by health professionals. Emma Carpenter was 17 and weighed
:02:04. > :02:28.only four stone. What kind of girl was she? A
:02:29. > :02:35.fantastic pool. Very outgoing, she had a lot of friends. She was very
:02:36. > :02:45.intelligent. What do you think triggered the anorexia? I am not
:02:46. > :02:50.100% sure. It is believed maybe someone made a comment to her at
:02:51. > :02:53.school when she was about 13. Other family members claim Emma's
:02:54. > :02:56.mental health problems were the result of her mother's problems with
:02:57. > :03:02.alcohol. She died six years after her daughter.
:03:03. > :03:06.For seven years, Noel Hand has been fighting a battle with the NHS in
:03:07. > :03:09.Nottinghamshire. He is convinced Emma's death was preventable and the
:03:10. > :03:24.NHS treatment she received was inadequate. Here you are, look at
:03:25. > :03:33.your mum. You feel Emma 's treatment was flawed. Why? It was flawed
:03:34. > :03:39.because I do not think the people caring for her had the experience to
:03:40. > :03:49.deal with the type of mental illness she had. She had what it what of
:03:50. > :03:57.young girls have today, they need to be dealt with quickly. There is the
:03:58. > :04:03.need for specialist help. I think if she had had that one year earlier
:04:04. > :04:08.even, I firmly believe she would be alive today.
:04:09. > :04:22.Emma was one of five people who died while being treated for anorexia in
:04:23. > :04:25.Nottinghamshire in 2006. In the UK, anorexia is responsible
:04:26. > :04:29.for more deaths than any other psychiatric illness in the UK, but
:04:30. > :04:31.for so many young women to die in one seven`month period raised
:04:32. > :04:34.serious questions about anorexia treatment in the county.
:04:35. > :04:37.As her weight continued to drop, Emma was admitted as an in`patient
:04:38. > :04:42.to an adolescent unit in Nottingham called Thorneywood. It treats
:04:43. > :04:46.teenagers with a variety of mental health problems.
:04:47. > :04:50.I wanted to hear first`hand the type of treatment on offer there for
:04:51. > :05:00.anorexia, so I tracked down Emma's roommate Katie McKenzie. She has
:05:01. > :05:03.since given up on the NHS and, seven years on, is still battling her own
:05:04. > :05:14.eating disorder, with only her family for support. What was it like
:05:15. > :05:22.going through the doors for the first time? It was just horrendous.
:05:23. > :05:28.All the key workers there, a lot of them were not trained regarding
:05:29. > :05:34.eating disorders. But the treated me as if I was a two`year`old child,
:05:35. > :05:38.like a piece of duct on the floor. My dad tried to get information
:05:39. > :05:43.about my care plan and made progress, because at the time I was
:05:44. > :05:48.an adolescent, so he had every right, but they would not give any
:05:49. > :05:54.information across at all. He felt as if he was on the B`side, this was
:05:55. > :06:02.his 15`year`old daughter dying. To me, there, every time the name is
:06:03. > :06:04.mentioned, it just feels like a nightmare.
:06:05. > :06:11.Katie's father says the NHS has failed them. There is no discipline,
:06:12. > :06:17.there is no structure, there is no forward path. There is nothing. We
:06:18. > :06:26.have looked everywhere, we cannot find anything. To others, the
:06:27. > :06:31.National Health Service has failed. That was only to Brighton. I
:06:32. > :06:34.remember that. What I was hearing from both
:06:35. > :06:37.families were similar criticisms. They claimed there was an absence of
:06:38. > :06:49.specialist support for anorexia and that care plans lacked a clear
:06:50. > :07:03.structure. Is this a bigger issue across the National Health Service.
:07:04. > :07:08.I arranged to meet consultant Doctor Dee Dawson, one of the country's
:07:09. > :07:16.leading experts on anorexia. Dee opened the country's first dedicated
:07:17. > :07:19.eating disorder clinic in 1991. There is nothing out there for them
:07:20. > :07:25.and they are less troubling and alone. What is the answer? The
:07:26. > :07:31.answer is that the National Health Service needs to treat an exec
:07:32. > :07:37.anorexia a lot more seriously. They also need to set up units for people
:07:38. > :07:40.solely for the treatment of anorexia and not on paediatric wards or
:07:41. > :07:48.general wards. After the five deaths,
:07:49. > :07:50.Nottinghamshire Health Care Trust launched an urgent review of
:07:51. > :07:55.anorexia treatment. So have things improved for anorexia
:07:56. > :08:03.suffers in the county? Emma Carpenter and four other sufferers
:08:04. > :08:12.died in 2006. I want to talk to a family who have received care in the
:08:13. > :08:20.county much more recently. There is support and help out there, but it
:08:21. > :08:21.is so drastically lacking. There are not the facilities or resources out
:08:22. > :08:24.there. I am meeting Scott and Sarah
:08:25. > :08:26.Robinson from Edwinstowe. Their daughter Amelia received out`patient
:08:27. > :08:32.care in Nottinghamshire, but her condition got worse and she needed
:08:33. > :08:35.to be admitted. They looked at Thorneywood, but after a day visit
:08:36. > :08:39.there they refused to let her go there.
:08:40. > :08:50.Instead, they opted for private treatment in Sheffield. Having been
:08:51. > :08:57.thrown in as we wear, I was quite shocked. I was not happy with the
:08:58. > :09:01.facilities for my daughter. It is a crying shame that we have two travel
:09:02. > :09:08.to another county to get the help that is needed for Amelia. The unit
:09:09. > :09:11.she is known as a specialist unit which is just for eating disorders
:09:12. > :09:17.and there is no place like that in Nottinghamshire at all. Other
:09:18. > :09:24.facilities to treat people with anorexia in Nottinghamshire
:09:25. > :09:27.inadequate? Absolutely. We filmed Amelia soon after she was
:09:28. > :09:30.discharged from the private eating disorder hospital in Yorkshire.
:09:31. > :09:35.Scott and Sarah say they battled the NHS to fund her treatment there.
:09:36. > :09:41.Amelia did not feel well enough to speak on camera, but wanted to
:09:42. > :09:44.highlight her family's struggle. I want to put all three families'
:09:45. > :09:51.concerns to the head of Nottinghamshire health care Trust.
:09:52. > :10:01.He told me lessons had been learned from what happened in 2006. He also
:10:02. > :10:03.said they 0 from what happened in 2006. He also
:10:04. > :10:09.said they regretted the death of Emma. The loss of a young person
:10:10. > :10:14.like this is the most tragic of events. My deepest sympathies really
:10:15. > :10:20.do go to the family. We are the trust has any mistakes or
:10:21. > :10:29.shortcomings in the care system that may have contributed, we are truly
:10:30. > :10:34.sorry. In 2006, there were a cluster of deaths from anorexia. Hope can we
:10:35. > :10:38.be sure that under your care this will not happen again? What I will
:10:39. > :10:45.say is that anorexia is one condition that carries a high level
:10:46. > :10:55.of mortality. What I can say is we have put into place specialist
:10:56. > :10:57.staff, with a considerable amount of training and the provision of
:10:58. > :11:03.sufficient supervision, so that we can provide the best care. That is
:11:04. > :11:06.what we are doing. In December, Thorneywood passed an
:11:07. > :11:09.inspection by the Care Quality Commission. Nottinghamshire Police
:11:10. > :11:11.completed a four`year investigation into Emma Carpenter's death and it
:11:12. > :11:11.concluded no criminal proceedings could 0
:11:12. > :11:25.concluded no criminal proceedings could take place. The police thought
:11:26. > :11:33.is serious enough to count it an investigation. We will continue
:11:34. > :11:45.until certain individuals come under scrutiny. Joseph Carey Merrick,
:11:46. > :11:50.better known as the elephant man, was born in Leicester a century and
:11:51. > :11:55.a half ago. A film made him famous but we still know so little about
:11:56. > :11:59.the terrible condition that caused his deformities. But now,
:12:00. > :12:01.cutting`edge research could shed new light not just on his disease but on
:12:02. > :12:22.the causes of cancer. Joseph Carey Merrick was
:12:23. > :12:26.intelligent, articulate and likeable but because of his appearance, he
:12:27. > :12:28.has gone down in history as the elephant man, Shand and avoided,
:12:29. > :12:46.attacked and abused. These are his bones. Stored at Queen
:12:47. > :12:50.Mary University of London. Inside out has been granted rare access to
:12:51. > :13:02.film them and the casts taken from his body. Merrick left his remains
:13:03. > :13:05.to science but previous attempts to extract DNA failed because the
:13:06. > :13:12.skeleton was bleached to clean it. Now, 125 years after his death, new
:13:13. > :13:19.techniques mean these bones may finally yield their secrets. He
:13:20. > :13:24.suffered from a very severe form of overgrowth. The tissues in certain
:13:25. > :13:28.portions and parts of his body were massively overgrown, hence the
:13:29. > :13:34.reference to an elephant. Other parts of his body actually had quite
:13:35. > :13:38.a normal appearance. This tells us that whatever the underlying genetic
:13:39. > :13:42.problem was, it is one that is relevant to the fundamentals of the
:13:43. > :13:50.way in which a cell grows and knows when to stop growing. The research
:13:51. > :13:56.has barely begun but already, there is huge excitement about what may be
:13:57. > :14:00.uncovered. Whilst I wouldn't predict that Merrick is sitting on the cure
:14:01. > :14:04.for cancer, it is through studies of this nature we will have a better
:14:05. > :14:08.understanding of what it is that determines how a sale moves from a
:14:09. > :14:16.normal state into this abnormal process of discredited cell growth.
:14:17. > :14:22.His story fascinates people across the world. Jeannette and may have
:14:23. > :14:30.been researching why he continues to intrigue us. He was such a brave
:14:31. > :14:35.individual and it makes us feel, well, if joseph could be brave like
:14:36. > :14:40.that and in the face of everything that is going wrong, perhaps that
:14:41. > :14:47.will give inspiration for me to cope with my own lot in life. There have
:14:48. > :14:52.been many theories about his condition. We still cannot be sure
:14:53. > :14:57.what it was that it may have been Proteus syndrome, an overgrowth of
:14:58. > :15:03.skin and bones, named after a Greek sea god who changed shape. There are
:15:04. > :15:11.several related illnesses and despite changes in our attitudes,
:15:12. > :15:18.they are hard to endure. We have unfortunately hard one suicide of a
:15:19. > :15:19.young man in his 20s because of the difficulties he had living with this
:15:20. > :15:25.condition. We have 0 difficulties he had living with this
:15:26. > :15:31.condition. We have dealt also with a couple of teenagers who were finding
:15:32. > :15:35.it difficult and had suicidal thoughts. It is not something that
:15:36. > :15:37.goes away. It can get more difficult as the years go on and 0
:15:38. > :15:45.goes away. It can get more difficult as the years go on and equally into
:15:46. > :15:48.middle life. This is where joseph Merrick was born but thousands walk
:15:49. > :16:02.through without knowing it and its history. `` Joseph. We've asked to
:16:03. > :16:07.historians to devise a tour. And the first person to experience it is
:16:08. > :16:15.John Merrick, a descendant of joseph. People come from all over
:16:16. > :16:20.the world to see the birthplace of Joseph Merrick. It was here, outside
:16:21. > :16:26.what would have been the last house on the street. He was born in the
:16:27. > :16:32.last but one. No street, no plaque, Bauhaus. How would he have been
:16:33. > :16:44.treated in those early days? He was treated very badly. His stepmother
:16:45. > :16:48.threw him out of the house. What with doors slammed in his face,
:16:49. > :16:53.being jeered at in the street, stones thrown at him, he made no
:16:54. > :16:58.money. One day, he came home having made nothing. His father beaten
:16:59. > :17:01.savagely. And that decided it. He left home and voluntarily went to
:17:02. > :17:11.the workhouse. This is the entrance to the
:17:12. > :17:18.workhouse. Imagine a building up there behind. One of these small
:17:19. > :17:24.gates is where he would have walked into the workhouse, when he gave
:17:25. > :17:28.himself up to the workhouse. You can imagine 900 other people inside
:17:29. > :17:33.there, orphans, the disabled, the infirm. That is what he went into.
:17:34. > :17:38.Would there have been much sympathy for him in the workhouse? Yes, there
:17:39. > :17:40.was. We know the authorities organised for him to have an
:17:41. > :17:44.operation at the Leicester Royal Infirmary, to remove the trunk that
:17:45. > :17:58.was growing from his lip. It appears to have been successful but then it
:17:59. > :18:00.grew again. In 1884, he left the workhouse and this is where he came.
:18:01. > :18:04.This is 0 0 0 workhouse and this is where he came.
:18:05. > :18:09.This is the famous theatre of variety, the gaiety Theatre, the
:18:10. > :18:16.Gladstone vaults. There is not a lot left here now. It must have been a
:18:17. > :18:25.bit like King Kong, only instead of a gorilla, it was Joseph Merrick.
:18:26. > :18:30.The audience would be warned that behind the curtain, there was a
:18:31. > :18:33.terrible creature and he couldn't currently the safety of the
:18:34. > :18:46.audience. Then the drums would roll. For poor Joseph on it was a living.
:18:47. > :18:55.Joseph has left us to legacies. One is his remains, which hopefully will
:18:56. > :18:56.lead to people being chewable relieved of various 0
:18:57. > :19:05.lead to people being chewable relieved of various conditions. ``
:19:06. > :19:10.being keyboard or relieved. He also leaves us a story which helps us
:19:11. > :19:10.break down prejudice, break down the fear 0 0
:19:11. > :19:16.break down prejudice, break down the fear of people that are different or
:19:17. > :19:22.not normal. Because of disfigurement, because of race or
:19:23. > :19:26.creed or whatever the reason is. Where there is bigotry and
:19:27. > :19:37.prejudice, he helps break that down because he is a common denominator.
:19:38. > :19:44.I am not an animal! I am a human being!
:19:45. > :19:49.When broadcaster Ray Gosling died last November, there was a big
:19:50. > :19:54.reaction, and not just in Nottingham where he lives, but across the
:19:55. > :19:57.country. He has left behind a huge archive which is being curated by
:19:58. > :20:04.Nottingham Trent University. He will be remembered for the controversial
:20:05. > :20:11.last film he made, a film which ended a long and. As he edited this,
:20:12. > :20:25.it felt right that raise should tell his own story in his... `` Ray.
:20:26. > :20:31.Hello, can I have some money please? No?
:20:32. > :20:33.I think at this juncture, we should pause for 0
:20:34. > :20:41.I think at this juncture, we should pause for a moment.
:20:42. > :20:46.These private sculptures are there to make us smile and that is fine by
:20:47. > :20:57.me. Ray was a hoarder who kept
:20:58. > :21:03.everything but it is good that he did. We see Ray also as a writer.
:21:04. > :21:07.People know him as a broadcaster, a talking head, but we know him as a
:21:08. > :21:16.writer, someone who wrote a huge amount.
:21:17. > :21:30.I had 40 years of work, made 100 documentary films for television.
:21:31. > :21:34.And I 0 documentary films for television.
:21:35. > :21:43.And I championed stuff. I made 1000 radio programmes, of length and
:21:44. > :21:54.substance and quality. Radio 4, and had it dumbed down. Then I wrote
:21:55. > :22:01.when I was want to. We had one here from Gosling's travels, 1975. This
:22:02. > :22:05.is a cancelled draft which shows he was a perfectionist. They are
:22:06. > :22:08.portraits of places. I've not ticked over the big issues but I've not
:22:09. > :22:14.dwelt on them. I've gone for the Smalltalk, the detail of day`to`day
:22:15. > :22:15.lives. You know, as literary types would 0 0
:22:16. > :22:18.lives. You know, as literary types would call that alliteration. It is
:22:19. > :22:24.almost poetical the way he compiled those little pieces to talk to
:22:25. > :22:28.Camara. What happened was instead of books, I went into verse more
:22:29. > :22:29.collaborative form of writing for radio 0
:22:30. > :22:31.collaborative form of writing for radio and the telly. To begin with,
:22:32. > :22:45.about myself. I was born in 1939 and I spent all
:22:46. > :22:51.of my childhood in Northampton. The East Midlands is my country.
:22:52. > :22:57.Leicester and Nottingham, the two times I've grown around. But I've
:22:58. > :23:02.got mad about, that I go home to. Leicester still is the best city.
:23:03. > :23:08.It's more friendly than any other city in England. We knew what we
:23:09. > :23:16.were doing. We knew we were the first ones breaking the whole thing
:23:17. > :23:20.about telling `` being told what to do, what the boss tells you to do,
:23:21. > :23:25.what the Church tells you to do. We were the first to do what we want to
:23:26. > :23:25.do. I had to leave Leicester in the end 0
:23:26. > :23:28.do. I had to leave Leicester in the end and I suppose I could have moved
:23:29. > :23:33.anywhere but there still was the first time I really fell for. I got
:23:34. > :23:37.mad about it. I got so attached to that time, I didn't want to be too
:23:38. > :23:39.far away. Nottingham seemed to suit. 26 miles away, nor. That is where I
:23:40. > :23:42.went. 0 26 miles away, nor. That is where I
:23:43. > :23:52.went. It is such a different city. It's a metropolitan time. Greater
:23:53. > :23:57.Nottingham sprawls towards I fought to keep loads of Saint Anne's. This
:23:58. > :24:06.cabinet has got all the kind of community materials that Ray was
:24:07. > :24:11.involved in so heavily in the 60s and 70s. There is the community
:24:12. > :24:25.newspaper. There were some little bits we saved. There were some small
:24:26. > :24:27.victories. This is one of them. I have come back now, after all those
:24:28. > :25:38.years and I am really proud. A person who talked to everybody and
:25:39. > :25:45.took an interest in people around him. Nobody was an important. You
:25:46. > :25:47.get these people talking very softly. He has got to be a
:25:48. > :25:47.professor, 0 softly. He has got to be a
:25:48. > :25:49.professor, hasn't 0 softly. He has got to be a
:25:50. > :26:01.professor, hasn't it? He looks like a professor. This is a livid cafe,
:26:02. > :26:08.this. You look up. Look at the heavens. Full of daft ideas. Look
:26:09. > :26:15.halfway up on public buildings. You will see there, two griffins. Full
:26:16. > :26:24.statues. Dear diary... The BBC have definitely now said they want to
:26:25. > :26:32.make a documentary about my fall. It is the first work I have had. It's
:26:33. > :26:40.the best fig `` big scale work for two, three, four years. I want to
:26:41. > :26:44.keep working, till my toes turn up and hopefully not paying too much in
:26:45. > :26:44.taxes. Still, this one is quite a good 0
:26:45. > :26:54.taxes. Still, this one is quite a good fit for me, you know. It is
:26:55. > :26:58.ready. It's rather good. Not yet excavation mark I've got a lot more
:26:59. > :27:08.work I want to try and do. Oh, right. Doctor came back! I said, he
:27:09. > :27:16.has gone. Nothing more was ever said.
:27:17. > :27:22.Tonight, the mercy killing which was all made up.
:27:23. > :27:29.Ray Gosling admits he wasted police time but claims it was
:27:30. > :27:33.well`intentioned. I did it because... I spoke to Ray before he
:27:34. > :27:37.died and people thought he would not be bothered about that. We've got to
:27:38. > :27:41.forget about that. We've got to remember his talent. Two decades, he
:27:42. > :27:45.came out with stunning interviews of a level which most of us were not
:27:46. > :27:50.capable of. Seeing them move and reach out and touch. It feels good.
:27:51. > :27:59.Yes. It's what it's about. It's life, its spirit. It is a daunting
:28:00. > :28:02.prospect because there is a lot of material but what we would like to
:28:03. > :28:07.do is make what I am calling trails, really, that represent each
:28:08. > :28:13.of his projects. We would like it very much to be made available for
:28:14. > :28:17.people to see and to look at. It is very nice when you have been in one
:28:18. > :28:22.place for so long. I'm glad I never went to London. I've done so much in
:28:23. > :28:35.Nottingham. Ray Gosling's words on his own life
:28:36. > :28:45.story. He will be missed. That is where we leave it this week.
:28:46. > :28:50.Next time, rogue dealers and second`hand cars. We speak to a
:28:51. > :29:07.driver who feels lucky to be alive. Hello, I'm Ellie Crisell with your
:29:08. > :29:11.90 second update. There are more spending cuts on the
:29:12. > :29:14.way. The Chancellor says ?25 billion worth of savings need to be made
:29:15. > :29:18.after the next election. At least half of it is likely to come from
:29:19. > :29:20.the welfare budget. Full details at ten.
:29:21. > :29:23.Parts of the UK have been hit by more storms. The Welsh coast was
:29:24. > :29:27.among the areas hardest hit, with more bad weather to come. Your local
:29:28. > :29:32.forecast in a moment. How did Jimmy Savile evade justice
:29:33. > :29:35.for decades? That's what dozens of his victims are demanding to know.
:29:36. > :29:37.They are calling for a single enquiry rather than multiple
:29:38. > :29:39.investigations. Doing 60 mph with his hands behind
:29:40. > :29:42.his head. That's what this driver his head. That's what this driver
:29:43. > :29:44.was caught doing near Whitby. He was banned from driving for a year and
:29:45. > :29:46.ordered to do community