30/01/2012

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0:00:00 > 0:00:06Hello and welcome to Inside Out South West. Stories from where you

0:00:06 > 0:00:15live. Tonight, the remarkable moment a kidney Patient meets the

0:00:15 > 0:00:23stranger who wants to save her life. One woman's campaign to stop

0:00:23 > 0:00:31patients needlessly dying. We are hoping to justify wanting us all to

0:00:31 > 0:00:41be donors. It is not good enough. And a retail guru are trying to

0:00:41 > 0:00:42

0:00:42 > 0:00:49convince East Devon traders to a love of their area. And this is a

0:00:49 > 0:00:53shop run by a very feisty Lady! controversy at Exeter Cathedral.

0:00:53 > 0:00:57do not have anything against the cathedral personally and I do not

0:00:57 > 0:01:03see why we cannot work together. have had incident that had been

0:01:03 > 0:01:13very difficult. I have had faeces but through my letterbox. I am Sam

0:01:13 > 0:01:23

0:01:23 > 0:01:29Smith and this is Inside Out South Every year in the UK, hundreds of

0:01:29 > 0:01:33people die waiting for an organ transplant. We have been following

0:01:33 > 0:01:37the remarkable story of one Devon woman who has been campaigning for

0:01:37 > 0:01:43more organs to be available after a simple mistake left her own life

0:01:43 > 0:01:48hanging in the balance. For 10 hours a week, Charlotte

0:01:48 > 0:01:55Gordon Cumming comes here for dialysis. She is waiting for a

0:01:55 > 0:02:01kidney transplant that would give her a new life. It is like you have

0:02:01 > 0:02:06your life back. This is not a system that will keep you alive

0:02:06 > 0:02:11forever. But with 8,000 others wanted a kidney, she may be waiting

0:02:11 > 0:02:18in vain. We can put your name on the transplant waiting list but we

0:02:18 > 0:02:23cannot guarantee that there is an organ for you in time. Three years

0:02:23 > 0:02:28ago, Charlotte's husband, Nicholas Evans, the writer of The Horse

0:02:28 > 0:02:33Whisperer, went out mushroom picking. It was a late summer day

0:02:34 > 0:02:38and we ate the mushrooms out on the grass and that evening we went for

0:02:38 > 0:02:42a lovely run for about an hour around this beautiful place,

0:02:42 > 0:02:52through the forest, and had a swim in the river, and felt that there

0:02:52 > 0:02:53

0:02:53 > 0:02:59was nothing wrong with the world at all. Then, overnight, people

0:02:59 > 0:03:05started getting sick. Boy, we were ill. I was hallucinating by the

0:03:05 > 0:03:11time I got to the hospital. I very nearly died. But it was a

0:03:11 > 0:03:16protracted nightmare. The first few days, the first week or two, they

0:03:16 > 0:03:20were really severe. It would have been very easy to give up the will

0:03:20 > 0:03:27to live. If I had not had my child I would not have lived for my

0:03:27 > 0:03:33family or my husband. It was not enough, the love, it was strong

0:03:33 > 0:03:41love but it was not enough. It is the bond that a parent has with a

0:03:41 > 0:03:45child, it is beyond, and I knew I had to fight for him. They were

0:03:45 > 0:03:50lucky to survive, but the poisonous mushrooms had destroyed their

0:03:50 > 0:03:56kidneys. Three years on, Charlotte is waiting for a kidney transplant.

0:03:56 > 0:04:02That is it. It is just one little kid me. I have just got to wait

0:04:02 > 0:04:07patiently and wait if one comes my way -- to see if one comes my way,

0:04:07 > 0:04:13and hopefully it will. Charlotte comes to Torbay Hospital to have

0:04:13 > 0:04:17her blood cleaned by a machine. you do not last forever on dialysis.

0:04:18 > 0:04:24There is a piece of information that says that roughly six years,

0:04:24 > 0:04:31after six years, your body really begins to fall apart. It keeps us

0:04:31 > 0:04:36alive. Everyone in the unit would prefer to have a transplant then to

0:04:36 > 0:04:42be sitting there week after week. 18 million people are registered to

0:04:42 > 0:04:47donate, but only a tiny number actually do. Charlotte is concerned

0:04:47 > 0:04:53that organs are being wasted. can they justify wanting us all to

0:04:53 > 0:05:00be donors and then do nothing with our organs? -- how can they justify.

0:05:00 > 0:05:04People are making huge decisions and it is not good enough.

0:05:04 > 0:05:09government experts say that there are good reasons why people who

0:05:09 > 0:05:15want to donate cannot. You have to die in a very specific circumstance

0:05:15 > 0:05:20or from a very specific disease to be suitable to be a -- an organ

0:05:20 > 0:05:27donor. People who died in hospice or at home or work in a roadside

0:05:27 > 0:05:31accident, almost certainly, it will not be possible. People who died in

0:05:31 > 0:05:36intensive care unit at a hospital and people who die in an emergency

0:05:36 > 0:05:45room, they could be considered suitable donors. That is why there

0:05:45 > 0:05:49are still 8,000 people on dialysis, waiting for a kidney transplant.

0:05:49 > 0:05:55With too few organ donors available, many people are helped out by

0:05:55 > 0:06:01living donors. Nicholas has been one of the lucky ones. My daughter,

0:06:01 > 0:06:07at that stage, it was earlier this year, she said it was time to get

0:06:07 > 0:06:12real. She got quite cross with me and said, you think I am being

0:06:12 > 0:06:21unselfish but I am being selfish. I want you to be around to see my

0:06:21 > 0:06:27children. Then I saw a consultant who took me and my wife through the

0:06:27 > 0:06:32statistics and showed that there was not a risk for Laurenne and

0:06:32 > 0:06:37that you could live with one kidney quite happily. Nicholas and

0:06:37 > 0:06:41Charlotte started campaigning to encourage living donors, and now a

0:06:41 > 0:06:49complete stranger has come forward for Charlotte. A out of the blue

0:06:49 > 0:06:53and email came and she just sounds wonderful, absolutely wonderful,

0:06:53 > 0:06:59and completely wanted to just get on with it and go to London and

0:06:59 > 0:07:08have the tests to see if she could do it. She is the right blood group

0:07:08 > 0:07:14but there are still a few tests to do. Even if Allie is not the right

0:07:14 > 0:07:19one, there will be someone there for me. I just know there is. If

0:07:19 > 0:07:29Allie is it, then fantastic, I will be thrilled. They are meeting for

0:07:29 > 0:07:33

0:07:33 > 0:07:39the first time. Hello! You all right? Well done! My phone broke

0:07:39 > 0:07:47down. Allie is a friend of a friend who heard about Charlotte's plight

0:07:47 > 0:07:52and offered to help. When someone asked me why we were born with two

0:07:52 > 0:07:57kidneys, I said the reason was to give one away. I thought it was

0:07:57 > 0:08:04quite nice. There is something about humanity that is generally

0:08:04 > 0:08:11important and wonderful. You are wonderful! You really are. Last

0:08:11 > 0:08:16year. Harley Street in London. Charlotte needs to get the go-ahead

0:08:16 > 0:08:23from a specialist. It is unusual to be given a to B by a stranger and

0:08:23 > 0:08:28to meet them first. -- a kidney by a stranger. The doctors need to

0:08:28 > 0:08:32make sure that Allie is donating for the right reasons. He is just

0:08:32 > 0:08:38going to get things moving as fast as possible and do our tissue

0:08:38 > 0:08:42testing and see if it works. If it works we will just go on.

0:08:42 > 0:08:50Charlotte's future is looking brighter, but she wants to see

0:08:50 > 0:08:55changes to make sure that last organs are being wasted. I think it

0:08:55 > 0:08:59is a disaster. We have never much would unit in the South West. If

0:08:59 > 0:09:04someone was to die here, the probabilities are that perhaps

0:09:04 > 0:09:14their organs would not be used. There are retrieval teams that we

0:09:14 > 0:09:16

0:09:16 > 0:09:22can use at Birmingham and Oxford. That is ours away. The Government

0:09:22 > 0:09:27organ Zahra says that removals are best taken out by teams that are on

0:09:27 > 0:09:32call. I am proud of what we have achieved. I am desperately unhappy

0:09:32 > 0:09:39that there are still 1,000 people waiting for a transplant because

0:09:39 > 0:09:41there are not enough organs. -- there are still thousands.

0:09:41 > 0:09:47Charlotte has been thrown a lifeline but others will have to

0:09:47 > 0:09:52wait. The strangest thing is that you are cold a lot of the time. Now

0:09:52 > 0:09:57that the winter is coming in, the idea of going through another

0:09:57 > 0:10:05winter on dialysis and trying to keep myself warm and positive and

0:10:05 > 0:10:10pain-free is a challenge. It is a real, real challenge.

0:10:10 > 0:10:18An amazing story, and all being well, Charlotte's transplant should

0:10:18 > 0:10:22go ahead next month. Exeter Cathedral prides itself on

0:10:22 > 0:10:27being a place where everyone is welcome. But the cathedral

0:10:27 > 0:10:32authorities have run out of patience with these visitors, a

0:10:32 > 0:10:42protest -- protest camp against corporate greed. Now the stage is

0:10:42 > 0:10:57

0:10:57 > 0:11:05They have been here 11 a long weeks, practising their own form of

0:11:05 > 0:11:08consensus democracy. We leave it -- used a number of hand gestures. We

0:11:08 > 0:11:13make proposals with a sign like this and we take a temperature

0:11:13 > 0:11:18check to see how people feel about things. If we feel positive we

0:11:18 > 0:11:28twinkle our hands up words and if we do not feel positive we shake

0:11:28 > 0:11:38them down. Not all of the protesters live on camp. Lee is one

0:11:38 > 0:11:39

0:11:39 > 0:11:44up Occupy Exeter's key members, but We don't have leaders. I'm a member

0:11:44 > 0:11:51of the Occupy movement. We have people to facilitate meetings and

0:11:51 > 0:11:56have specific roles. I'm part of the media team. The relationship

0:11:56 > 0:12:03with the cathedral has been on and off. They have refused to engage

0:12:03 > 0:12:07with us on the real issues. So I don't though why that is. It seems

0:12:07 > 0:12:13as if their interest is in land. Their interest is, this is our land,

0:12:13 > 0:12:16you need to get off our land. Rather than you know, we're both of

0:12:16 > 0:12:22us interested in economic and social injustice and making the

0:12:22 > 0:12:31world a better place. The Occupy movement started in September in

0:12:31 > 0:12:37New York. Anger at bank bailouts spilled into direct action, which

0:12:37 > 0:12:44spread to London and St Paul's Cathedral. It was not long before

0:12:44 > 0:12:50other camps popped up. Taking their message to the streets of Exeter....

0:12:50 > 0:12:56In November protesters in Exeter marched to the cathedral green and

0:12:56 > 0:13:00were met with a warm welcome. People are choosing cathedrals as

0:13:00 > 0:13:05gathering places. The church believes that it is a human right

0:13:05 > 0:13:14that people should be able to peacefully protest. Nearly three

0:13:14 > 0:13:19months on and it's all less harmonious. The cathedral has told

0:13:19 > 0:13:25the protesters to leave now. It is disappointed some protesters, who

0:13:25 > 0:13:30say they and the church have similar aims. We have said we have

0:13:30 > 0:13:37nothing against the cathedral. I can't see why we can't work

0:13:37 > 0:13:41together. I would say that Occupy is a moral movement about feeding

0:13:41 > 0:13:45hungry people, clothing homeless people and making sure everyone has

0:13:45 > 0:13:49dignity and respect and a voice in society. That is crucial to not

0:13:49 > 0:13:54only the Occupy movement, but what I understand of religion. I'm not

0:13:54 > 0:14:01religious, but what I understand of the goes peteds that is what Jesus

0:14:01 > 0:14:08was saying. -- gospels. No one from the cathedral wanted to take part

0:14:08 > 0:14:14in our film. But they have spoken. We have had lts of incidents that

0:14:14 > 0:14:21have been difficult, fight ing, call the police, I have had human

0:14:21 > 0:14:27faeces put through my letterbox, I have had colleagues daughters

0:14:27 > 0:14:32targeted. It is not a nice place. Especially at night-time. The pr

0:14:32 > 0:14:38testers say problem have been caused in part by homeless people,

0:14:38 > 0:14:43who they don't want to turn away. There is a policy of no drugs no,

0:14:43 > 0:14:49alcohol and no noise. But some people have complicated lives and

0:14:49 > 0:14:55it is difficult to bear that in mind. But on the whole people,

0:14:55 > 0:14:59everyone on the camp is... Doing their best, is doing their best to

0:14:59 > 0:15:06live by the policy. I think that is something that maybe the cathedral

0:15:06 > 0:15:11don't realise that people are trying their best. It is 8pm and

0:15:11 > 0:15:17police arrest a man for breaching his bail conditions. Put your hands

0:15:17 > 0:15:23behinds your back. It is the kind of rumpus the cathedral does not

0:15:23 > 0:15:27want on its green. I have been in there, I have been asleep all

0:15:27 > 0:15:33BLEEPing day. I don't give a BLEEP what you say. It is difficult when

0:15:33 > 0:15:39they have denied us the ability to have access to water, denied us a

0:15:39 > 0:15:43toilet and access to a toilet. They have switched off the lights on the

0:15:43 > 0:15:47north side. They haven't really done what they can to support us.

0:15:47 > 0:15:55They have made it our problem, rather than helping in any way. I

0:15:55 > 0:16:00think that is tough. The cathedral has defended its actions, citing

0:16:00 > 0:16:04public safety. It did suffer a stall on the green if they

0:16:04 > 0:16:13disbanded the camp, but that was turned down. Now a donation is

0:16:13 > 0:16:17being brought back to the site. This is going on the roof. Monster,

0:16:17 > 0:16:24as he calls himself, lived in care for a young age and now he is

0:16:24 > 0:16:31living on the green. The last 12 years have been an interesting few

0:16:31 > 0:16:37years, to be honest. Six out of those I have spent on the street. I

0:16:37 > 0:16:42see the Occupy movement as... I suppose a leg for this country to

0:16:42 > 0:16:47stands on to get it back, try and get the country back to it name,

0:16:47 > 0:16:51which was once Great Britain. It is not very great at the moment.

0:16:51 > 0:16:57Because we're run by a country that all the politicians want money.

0:16:57 > 0:17:06When was the last time you worked? 2001. So I haven't worked in ten

0:17:06 > 0:17:13years. How do you live? Doing what I do best, taking money out of the

0:17:13 > 0:17:17Government. I have spent the last ten years on benefits. I have lost

0:17:17 > 0:17:22count how many claims I have had. Are you happy with that situation?

0:17:22 > 0:17:26To be honest yes, the Government seem the think they can take money

0:17:26 > 0:17:31off us, so why can't I take money off them? But he has been inspired

0:17:31 > 0:17:34by the others. I haven't worked in so long, its doesn't help the

0:17:35 > 0:17:39motivation. But being around people that are being part of the movement,

0:17:40 > 0:17:43but are work at the same time, and still putting their spare time into

0:17:43 > 0:17:52the Occupy movement, I think that is what has given me the motivation

0:17:52 > 0:18:02to go, is I can get a job and accomodation. The last few weeks

0:18:02 > 0:18:02

0:18:02 > 0:18:06have seen some campers leave. earth was made of common treasury

0:18:06 > 0:18:16for everyone... Although the threat of legal action seems to be

0:18:16 > 0:18:20

0:18:20 > 0:18:28strengthening the remaining protesters' resolve. A meeting is

0:18:28 > 0:18:34called to decide the next move. Cool. What next? Stay until the

0:18:34 > 0:18:40court hearing and defend it. We have got three or four people who

0:18:40 > 0:18:48have done research. If a possession order is made we could possibly

0:18:48 > 0:18:52decide then to withdraw from the site. Option No 2. Quit before the

0:18:52 > 0:19:00court hearing and go elsewhere. Pros, it is a fresh start. There

0:19:00 > 0:19:05may be other sites. We could focus on outreach. Option No 3! Keep us

0:19:05 > 0:19:12in the public eye. It went all right. A good long discussion,

0:19:12 > 0:19:15looking at pros and condition -- cons, listening to peep's heads and

0:19:15 > 0:19:20hearts. We haven't reached a decision, but we have heard a lot

0:19:20 > 0:19:28of thing and said a lot of thing and we're keeping our spirits up.

0:19:28 > 0:19:36It was good. We're Occupy. We are the 99%. Saturday and a week after

0:19:36 > 0:19:41getting its know e note is to leave, Occupy Exeter hits the high street.

0:19:41 > 0:19:47They're protesting against lawful tax avoidance by big business.

0:19:47 > 0:19:54shop, pay your tax! It I an attempt to get back to their core message

0:19:54 > 0:19:58as the row with the cathedral intensifies. We may move off the

0:19:58 > 0:20:02cathedral green, but we're not going to go away. We realise that

0:20:02 > 0:20:08this is an important movement, that what we're saying is important and

0:20:08 > 0:20:14people are with us and people value what we're doing. The legal process

0:20:14 > 0:20:20of eviction could take many weeks. So even if they lose, the

0:20:20 > 0:20:29protesters seem set for a long battle with a cathedral that won't

0:20:29 > 0:20:34forgive them their trespasses. These are tough times for our high

0:20:34 > 0:20:37streets with a report suggesting that a third of them are in a down

0:20:38 > 0:20:41wards spiral of decline. Supermarkets are often blamed for

0:20:42 > 0:20:51adding to woes of independent traders. But this a really the

0:20:52 > 0:20:52

0:20:52 > 0:20:57case? We have been to one town to investigate. Ottery St Mary's, its

0:20:57 > 0:21:03traditional high street has a mix of stores. But now there is a new

0:21:03 > 0:21:13kid in town. The supermarket, especial lay high level one, sets

0:21:13 > 0:21:17the bar. It is a sad day for Ottery. Because the supermarket is too huge.

0:21:17 > 0:21:24It will bring a lot of traffic to town and they will go into

0:21:24 > 0:21:30Sainsbury's, get their shopping and just drive home. The shop has have

0:21:30 > 0:21:37the stars with felt tip and half price for OAPs Tuesday, they can be

0:21:37 > 0:21:42threatened by a quality retailer. Ottery is bracing itself for change.

0:21:42 > 0:21:48Sainsbury's is opening a new store and the council hopes it will bring

0:21:48 > 0:21:54new business into the town centre. But there are fears it could take

0:21:54 > 0:22:00trade from independent shops. The arrival of Sainsbury's has caused

0:22:00 > 0:22:07sleepless nightss for some traders whose shops have been here for a

0:22:08 > 0:22:12hundred years. I'm worried. I woke up at 4am, trying to get it out of

0:22:12 > 0:22:18my head. But I am nervous of the future. I don't know where we are

0:22:19 > 0:22:23going to be in so many months time. The butcher is also worried his

0:22:23 > 0:22:28takings could be cut. Some may well benefit. But I think there is a lot

0:22:28 > 0:22:35will lose out. What will it do to your trade? I don't think it will

0:22:35 > 0:22:41increase it. Has this divided Ottery? Not everyone thinks it is a

0:22:41 > 0:22:47bad thing. Yes, there will be some casualties, I feel sure of that. It

0:22:47 > 0:22:51is a shame. I'm an Ottery man and I don't want to see it happen. But

0:22:51 > 0:22:55there has been a mood swing and new businesses have opened up. Others

0:22:55 > 0:22:59have changed what they're selling. I hope and expect a lot of

0:22:59 > 0:23:04businesses will change their hours, maybe go six or seven days of week,

0:23:04 > 0:23:13not shutting o' on a half day on Wednesday like some do. Not

0:23:13 > 0:23:16shutting to lunch. People have to change with the times. The farmers

0:23:16 > 0:23:24market has been forced to move, because Sainsbury's has taken over

0:23:24 > 0:23:31its usual car park. Today, things are looking quiet. We could do with

0:23:31 > 0:23:36some customers! What do you thil the aefbgt e effect will be? I feel

0:23:36 > 0:23:44it will go one way or the other, finish us or be good. At this point

0:23:44 > 0:23:52oom not sure. But I will hang on and see. Simple as that. Step

0:23:52 > 0:23:55forward retail guru, Jeff Burch. He preaches survival of the fittest.

0:23:55 > 0:24:00What does history teach us about what happens when a supermarket

0:24:00 > 0:24:04moves into a town? It is usually good news. Because what it starts

0:24:04 > 0:24:09to do is holds the shoppers that were drifting off to other bigger

0:24:09 > 0:24:14centres, the cities and so on, that are in driving distance. It ups the

0:24:14 > 0:24:21game of the town. They could survive? They certainly, they're

0:24:21 > 0:24:27not only could survive, they could thrive. But they have got to stop

0:24:27 > 0:24:31being whingey and get the sort of the stock rotating and much more

0:24:31 > 0:24:35important, they have got to get their own team of people to be

0:24:35 > 0:24:43professional, friendly and outgoing, the welcome the customers in. And

0:24:43 > 0:24:49suggest to them and to sell to them and to make it happen. It is

0:24:49 > 0:24:58opening day at Sainsbury's. The store says it doesn't want to drive

0:24:58 > 0:25:02local shops out. A lot of meat, but no butcher? No we don't have a

0:25:02 > 0:25:08butcher in this store. All the meat is pre-packed. But that means we

0:25:08 > 0:25:13can sit happily side by side with the butchers on the high street.

0:25:13 > 0:25:18Was that condition that you impose on yourselves or was it required?

0:25:18 > 0:25:22It was naefr condition of the planning permission. It wasing in

0:25:22 > 0:25:28we -- it was never a condition of the planning permission. It was

0:25:28 > 0:25:32something we disided to do. shop is in competition with the

0:25:32 > 0:25:38local fishmonger. I see no reason why the two aren't supportive. You

0:25:38 > 0:25:44come here to go to Sainsbury's and may go to the local shops. Most

0:25:44 > 0:25:51shops I think will be safe. I think definitely. We have still got the

0:25:51 > 0:25:55cafe. Sally's cafe. We're going there after for breakfast.

0:25:55 > 0:26:03store has been open a couple of hours and it is busy and it looks

0:26:03 > 0:26:09like business is booming. But will it be good for Ottery St Mary's? A

0:26:09 > 0:26:13month later and traders at the farmers market say takings are down.

0:26:13 > 0:26:19Trade I would say was half the trade. So just hope it does return

0:26:19 > 0:26:24to what it was. Wl you keep going? I will. As long as the market's

0:26:24 > 0:26:29here will keep going. I will be the last to go. I don't want to let my

0:26:29 > 0:26:37customers down. Simple as that. Retail expert Jeff Burch has come

0:26:37 > 0:26:45to the hard ware shop. Hello, I'm Jeff. Can he convince Ross that

0:26:45 > 0:26:51Ottery can thrive? How does the future look? Challenging. We have

0:26:51 > 0:26:57got Sainsbury's on our doorstep. Good news? No. Why? Because it is

0:26:57 > 0:27:03too big. And it is, I have seen it destroy towns, large supermarket

0:27:03 > 0:27:07come and it finish all the independent shops. I look at nit a

0:27:07 > 0:27:10different way. The -- it in a different way. I would say it is

0:27:10 > 0:27:14too big for this town, because they know what they're doing and they

0:27:14 > 0:27:19will attracts new people. I predicts that if you can keep on

0:27:19 > 0:27:24top of its and keep on the ball, your business will grow, not fail.

0:27:24 > 0:27:32I really believe you have an opportunities. I am growing its,

0:27:32 > 0:27:39because I have to fight. So yes I'm doing that. You have given the

0:27:39 > 0:27:46classic massagey shop, that is change or die. -- messagey shop.

0:27:46 > 0:27:52What are your impression. Traditional shop run by a feisty

0:27:52 > 0:27:57lady. It noise good saying, they need to do or die, but some people

0:27:57 > 0:28:01have been in the, it is their lives and it is my whole life. Jeff's

0:28:01 > 0:28:06convinced that this town is big enough for the both of them. And

0:28:06 > 0:28:13some traders are not going down without a fight. It will be hard

0:28:13 > 0:28:20work. We will have to continues to adapt. But I hopefully, I'm