:00:06. > :00:12.Hello from West Sussex and welcome to Inside Out. Plenty to tell you
:00:12. > :00:16.about tonight. Here is what is coming up. The dream is not such a
:00:16. > :00:19.dream any more, it is a nightmare. Oh, we do like to be beside the
:00:19. > :00:23.seaside. But for how much longer? People in West Sussex fight to save
:00:23. > :00:29.their homes. The environmentalists are having too much of a say in
:00:29. > :00:31.what happens. Is it fair to let nature take a house is a way?
:00:31. > :00:35.And living with butterfly disease, the misunderstood condition with a
:00:35. > :00:43.beautiful name. They say their skin is as delicate as a butterfly's
:00:43. > :00:53.wings. We just want them to be accepted. This is Inside Out for
:00:53. > :01:03.
:01:03. > :01:09.First tonight, a story you e-mailed us about, this is the problem, up
:01:09. > :01:12.coastal erosion here in West Sussex. Homeowners at Pagham are fighting
:01:12. > :01:15.to save their beachfront homes. This stretch of Sussex coast is
:01:15. > :01:24.described by experts as one of the most naturally dynamic in the
:01:24. > :01:28.country. Meaning it is changing, rapidly. This beach is at Chapel is
:01:28. > :01:32.one beach, it is full of interesting plants and animals. We
:01:32. > :01:36.are losing it at the rate of about six metres a year. The diggers are
:01:36. > :01:46.here to try and save it. More shingle is meant to hold the waves
:01:46. > :01:47.
:01:47. > :01:50.back. My house's name means view of the sea. Ten years ago, we left
:01:51. > :01:54.Croydon, we moved away from our family and friends to move the
:01:54. > :01:57.children down here and that the dream, now the dream is not such a
:01:57. > :02:06.dream, it is a nightmare. A beach can provide good protection from
:02:06. > :02:14.the sea, but not if it is wearing away. I am particularly beachfront
:02:14. > :02:17.property, it is getting washed away. -- potentially. I have lived here
:02:17. > :02:23.for 37 years. I might not be here for very much longer if this
:02:23. > :02:29.continues to be left like this. live on a knife edge here, each day,
:02:30. > :02:34.we get out on one of a high tides and go to see what exactly happened.
:02:34. > :02:38.We wake up in the night, having nightmares. Something has to be
:02:38. > :02:42.done, urgently. What is happening here at Pagham is not a landslide
:02:42. > :02:45.or crashing, falling cliffs, it is the gradual loss of pebbles from a
:02:45. > :02:53.beach. But the effect is just as dramatic. It threatens a community
:02:53. > :02:57.of seaside bungalows that has grown up here over 80 years. -- over 100
:02:57. > :03:00.years. When it comes to saving it, nothing here so far has provided a
:03:00. > :03:06.long-lasting solution. Brian is a seasoned surfer and stand-up paddle
:03:06. > :03:10.boarder. He knows the water here better than most. I have let down
:03:10. > :03:15.here for many years got up I have spent a lot of time in that water,
:03:16. > :03:19.on it or under it. I know how it works. At the moment, it is carving
:03:19. > :03:22.are beach away drastically. Locals say the harbour mouth has been
:03:22. > :03:26.silting up since 2004, and as a result, a 900 metre spit has grown,
:03:26. > :03:29.meaning the sea cannot flow in and out, and shingle which should be
:03:29. > :03:38.dumped on the beach ends up on the spit. The spit then redirects the
:03:38. > :03:42.sea's current along the beach, Today, Arun District Council is
:03:42. > :03:45.moving shingle from the far end of the beach to the most depleted part.
:03:45. > :03:51.Three years ago, an even bigger shingle moving project took place,
:03:51. > :03:55.costing �600,000. Locals say most of that shingle has washed away.
:03:55. > :04:05.This time, it is costing �10,000, but few hold out much hope that
:04:05. > :04:05.
:04:05. > :04:12.this new batch will stay put either. I am not an engineer. I just know
:04:12. > :04:17.my local water. I can see this getting worse. This being parked in
:04:17. > :04:22.here, imagine where we are standing, it used to be a straight line down
:04:22. > :04:30.towards Bognor. That is mainly over the last four or five years, it has
:04:30. > :04:38.got worse. That is about six metres over a period. We have winter
:04:38. > :04:42.storms coming up. Along this stretch of beach, where it hits the
:04:42. > :04:48.rock, you get the swirling effects and it is eating away the beach.
:04:48. > :04:52.This used to go at another 70 or 80 feet. That is how much we have lost.
:04:52. > :04:57.Every time we lose more. Phil Isom has roughly 20 metres of beach
:04:57. > :04:59.between him and the sea. Like the other property owners here, he says
:05:00. > :05:06.he could lose everything. Seeing shingle being moved doesn't fill
:05:06. > :05:11.him with confidence. This is a token effort, because until the
:05:11. > :05:18.harbour mouth is reopened, as fast as they rebuild the beach, the tide
:05:18. > :05:22.will sweep it away. So it is at about situation. We loved the sea,
:05:22. > :05:25.but we do not want it in our property. Diana Willson wants to
:05:25. > :05:29.sell up and move, and she has had no shortage of potential buyers.
:05:29. > :05:37.But every time she gets an offer, a survey is done and the beach
:05:37. > :05:44.erosion is revealed. I need to move, and 82. I should move on, to a
:05:44. > :05:48.place where there is a bit more help, I think. They have taken my
:05:48. > :05:54.house of the market now, because they say it is not saleable at the
:05:54. > :06:00.moment. With the foreshore as it is. I have had quite a number or offers
:06:00. > :06:03.at all of them have taken it off after finding out the details of
:06:03. > :06:10.the beach. Diana thinks moving shingle around is a waste of time
:06:10. > :06:14.and taxpayers' money. I do not think it will last long, because if
:06:14. > :06:20.you get a storm, you will find it will go and you will find it
:06:20. > :06:23.somewhere else. Everyone has got a theory as to how to stop the
:06:23. > :06:26.erosion. Local parish councillor Ray Radmall has devoted much of his
:06:26. > :06:35.life to solving the problem and thinks it is high time one of the
:06:35. > :06:39.proposed solutions was actually carried out. The whole of the
:06:39. > :06:43.frontage of Pagham is classified by the Environment -- the Environment
:06:43. > :06:47.Agency as subject to erosion. If it took its natural course, you would
:06:47. > :06:51.lose all the beach seafront and Idlib progress in land. It would be
:06:51. > :06:55.a huge disaster. It makes common sense to try to hold the line as
:06:55. > :07:00.best we can, but we do not have a hold the line policy for Pagham. We
:07:00. > :07:04.have adapted management, work with nature rather than act against it.
:07:04. > :07:08.This is one of the things we think we need to address again,
:07:08. > :07:11.particularly when it comes to correcting the growth of that
:07:11. > :07:15.shingle back that is causing the problem. Pagham Harbour is a
:07:15. > :07:17.crucial habitat for wildlife. It is thought to be home to the very rare
:07:17. > :07:20.Delfolin's lagoon snail. It is a pit stop for overwintering birds
:07:20. > :07:24.and in the spring, little terns nest on its mudflats and salt
:07:24. > :07:30.marshes. The shingle bank itself is even considered a rare natural
:07:30. > :07:32.feature. As a result, there is a proposal to make the area a marine
:07:32. > :07:40.conservation zone. All of which means treading very carefully when
:07:40. > :07:45.it comes to building coastal defences. At Pagham Harbour, we
:07:45. > :07:50.have an amazing nature site. It is a special protection area.
:07:50. > :07:55.Thousands of water birds visit here. In the whole of England, there are
:07:55. > :08:00.only 85 of these areas. As a nation, we have committed to protect them.
:08:00. > :08:07.These are teals coming in. Probably from Russia. These flocks of waders
:08:07. > :08:12.coming in and flashing white across there, they may not have mixed in
:08:12. > :08:18.with them. Some grey plovers have come in. They are quite difficult
:08:18. > :08:22.to see once they are down on the ground. The RSPB as over 200 nature
:08:22. > :08:26.reserves in the country, all of those are part of somebody's
:08:26. > :08:29.community and the people here do so because they love places like this
:08:29. > :08:33.will stop at the same time for all we have a local community who have
:08:33. > :08:38.a very real and pressing a distressing issue right on the
:08:38. > :08:42.doorstep. For us, the key thing is that we feel there are solutions
:08:42. > :08:47.that can be found here to protect the birds and protect the people,
:08:47. > :08:50.but that requires court -- collaboration. Close working. The
:08:50. > :08:53.earliest community here were people on holiday in makeshift homes,
:08:53. > :08:56.which were never meant to be permanent. The bungalows started
:08:56. > :09:01.life in the 1930s as railway carriages, converted into holiday
:09:01. > :09:04.homes. So, what better way to find out how things have changed than
:09:04. > :09:14.meeting someone who first came here in 1932 for holidays with his
:09:14. > :09:21.grandparents? The two railway carriages, one either side, like
:09:22. > :09:28.that. They used to buy them for put pounds from Southern Railway. They
:09:28. > :09:31.put them up with two courses. It built roof over the top. There you
:09:31. > :09:38.are, that was a bungalow. Jacomelli is 85 and has come back
:09:38. > :09:41.to look for his old house before it disappears. When I was young, my
:09:41. > :09:46.father would take me on his shoulders across the harbour mouth,
:09:46. > :09:52.where the water goes out. When the tide was low, he would put me on
:09:52. > :10:02.his shoulder. We would build rafts to go on, we had boats to go one.
:10:02. > :10:09.
:10:09. > :10:12.None of this was here before, it was all shingles. We arrive at his
:10:12. > :10:16.old house unannounced. It says a lot about the community that we get
:10:16. > :10:24.a warm welcome from current owner Tex, who has lived here since the
:10:24. > :10:29.early 1980s. Bloody hell! When did you live here? During the war. They
:10:29. > :10:38.used to be more beach down at the bottom. We used to play down there.
:10:38. > :10:41.Come in, come in. Yes, this is as it used to be, the old Will we
:10:41. > :10:46.carriage doors there. My grandmother used to sleep in that
:10:46. > :10:50.bedroom. These are old railway carriage doors and my grandfather
:10:50. > :10:56.put panels on. He panelled the strewn with oak panelling and he
:10:56. > :11:03.took the carriage windows out of the outside. The kids used to sleep
:11:03. > :11:09.in that room. The guests Slapton Barra. They still do. -- be guests
:11:09. > :11:14.slept in that room. Bat carriage there is the Gaud's van. And the
:11:14. > :11:17.bit that sticks out that side, and debate the other side. So the old
:11:17. > :11:25.guard could look down the side of the train and make sure no one is
:11:25. > :11:29.crawling along. Now we keep the guests there. But as my grandfather
:11:29. > :11:33.and grandmother what the name of the house. That is the whole family
:11:33. > :11:43.before the war, that is me. There is the railway carriage, the shape
:11:43. > :11:51.
:11:51. > :11:55.It is of real outrage to let this place go. I can remember back to
:11:55. > :12:00.the Thirties and there's people here since then, it has become more
:12:01. > :12:05.of the settled community now. It used to be a holiday community. To
:12:05. > :12:14.lose it all would be such a shame because it is a beautiful spot, no
:12:14. > :12:20.doubt about it. Ray's fears are not shared by the Environment Agency,
:12:20. > :12:24.which says other places are more at risk than Pagham. It's has paid
:12:24. > :12:27.thousands of pounds for studies to come up with potential solutions.
:12:27. > :12:32.A lot of committees along the coast Auret risk of coastal flooding,
:12:33. > :12:37.which will risk -- vary depending on the location and the defences
:12:37. > :12:41.there, but given locations near as, in Littlehampton or Bognor Regis
:12:41. > :12:46.saw further along the coast, where we have built new defences, many
:12:46. > :12:50.aren't up to the standard this beach currently provides, so it is
:12:50. > :12:54.important to put that into context. Even after the recent erosion, we
:12:54. > :12:59.still had a beach over 20 metres wide here. That provides a good
:12:59. > :13:04.standard of protection, and that is not belittling the erosion. I
:13:04. > :13:07.understand that is of concern to the local community, but we are
:13:07. > :13:12.committed to working with Arun District Council and others to
:13:12. > :13:15.ensure that would be committed we manage the risk as best we can.
:13:15. > :13:20.that local community is frustrated watching shingle being moved well
:13:20. > :13:25.their beach continues to shrink. Back at his past Council HQ, Ray's
:13:25. > :13:28.says the answer is reopening the harbour to the seat by cutting
:13:28. > :13:34.through the spit. He believes this will bring shingle back onto the
:13:35. > :13:40.beach naturally. Ray's plan is backed up by surveys and even an
:13:40. > :13:44.Environment Agency report where coastal engineer proposed just that.
:13:44. > :13:51.It is a solution which will probably get this 15-20 years of
:13:51. > :13:53.free shingle coming back naturally onto the beach. We have the
:13:53. > :13:58.�160,000 study commissioned by the Environment Agency a couple of
:13:58. > :14:03.years ago, and here we have a conceptual model for digging the
:14:03. > :14:07.Channel, so it is not a pipe dream but something that has come through
:14:07. > :14:11.the various authorities plans anyway. So if cutting through they
:14:12. > :14:15.spit was suggested two years ago, why hasn't it been done? Cutting a
:14:15. > :14:19.channel through the spit or undertaking other modifications was
:14:19. > :14:23.one of them up -- a number of options. The report concluded that
:14:23. > :14:27.we couldn't say with certainty which was the right one to take at
:14:27. > :14:31.the moment, and it recommended closely monitoring the situation
:14:31. > :14:36.and being ready to respond with the work as and when needed. Is it a
:14:36. > :14:40.waste of money, in conclusion? It has given us the confidence to
:14:41. > :14:45.know what to do when the time is right. As of today, I can't say
:14:45. > :14:50.which has the right bits of work to undertake. Moving forward, we need
:14:50. > :14:55.to work closely with the committee, monitor what is going on, and is
:14:55. > :14:56.important that we do that and use public money wisely.
:14:56. > :15:01.Environment Agency and Arun District Council are working
:15:01. > :15:11.together. With their resident gadget man constantly monitoring
:15:11. > :15:13.
:15:13. > :15:18.Be its Derek -- very blustery out there today so difficult to control.
:15:18. > :15:23.10 metres above the beach. That extra height will give us a lot
:15:23. > :15:27.more information. Today, coastal engineer Roger Spence there is
:15:27. > :15:32.surveying the project, and it doesn't take long for residents to
:15:32. > :15:37.spot them. You've got a nice start a beach in front of the now, maybe
:15:37. > :15:41.not as much as you would like. We have done what we set out to do.
:15:41. > :15:44.can't understand why we can't chop the spit down there outside the
:15:44. > :15:49.nature reserve. It is a natural process and we need to work with
:15:49. > :15:52.nature rather own against it. At the moment we believe we can manage
:15:52. > :15:56.your beach with nature rather than fighting against it too much. If we
:15:56. > :16:00.spent money the wrong way we would be criticised as much as not
:16:00. > :16:04.spending money. It will cost a lot of money whatever we do, so we have
:16:04. > :16:09.to be absolutely sure we have the right answer. Residents can only
:16:09. > :16:12.wait and see if the boosted beach will stay put. Work started when
:16:13. > :16:18.there was 20 metres of beach between houses and the sea.
:16:18. > :16:24.Officially, at the level is now 15 metres. The estimated cost of
:16:24. > :16:29.cutting a channel through the spit is half a million pounds. There is
:16:29. > :16:35.another very cheap final option. If an engineering scheme is deemed too
:16:35. > :16:41.expensive, the powers that be can simply do nothing. That means that
:16:41. > :16:46.if it becomes no longer viable cost wise to actually keeper place
:16:46. > :16:56.secure, the authorities reserved the right to walk away. They let
:16:56. > :16:56.
:16:56. > :17:02.Two weeks after the shingle was moved to shore up the beach at
:17:02. > :17:06.Pagham, the local community is out in force. Not after a storm or
:17:06. > :17:14.particularly bad weather, just the morning after the first spring tide,
:17:14. > :17:20.and they have come prepared. metres. If you are generous you
:17:20. > :17:25.might go to 18.1, but fundamentally, 18 metres, so that is not only the
:17:25. > :17:29.shingle that was put here, a 1000 cubic metres have gone, but another
:17:29. > :17:33.two metres loss on before they did the work. You can see the way
:17:33. > :17:36.vegetation is falling over the edge and the fact that it is going
:17:36. > :17:41.behind that groyne, which has safe guarding the rest of the beach in
:17:41. > :17:44.that direction, it is undermining it. If that groyne would go it
:17:44. > :17:47.would be bypassed by the current going round the back and that
:17:47. > :17:51.threatens a bigger area of the beach. Erosion has been a caring
:17:51. > :17:56.here for many years and will continue to in the future. We can't
:17:56. > :18:01.stop it. But by its undertaking maintenance work we can lessen the
:18:01. > :18:05.impact. We will have to keep undertaking maintenance work here.
:18:05. > :18:08.What it will be is something we need to work out, and we will start
:18:08. > :18:12.but short-lived. Everybody here knows that putting shingle on this
:18:12. > :18:17.beach is no solution. The only way is to deal with the problem at
:18:17. > :18:21.source, intervene and do something with this bit. I don't want to see
:18:21. > :18:24.people here fretting and losing their homes. I believe it is now
:18:24. > :18:29.becoming urgent that something is done and there is a government
:18:29. > :18:34.intervention to ensure it happens. A as the sea edges closer to
:18:34. > :18:37.people's homes, few would deny a long-term solution is needed to
:18:37. > :18:42.protect residents and the seascape which brought them here in the
:18:42. > :18:46.first place. Go is it fair to let nature take a houses away when it
:18:46. > :18:50.can be stopped? I think there are people here within 30 metres of
:18:50. > :18:54.losing their property who have a good argument to say that they can
:18:54. > :18:59.do something about it and they should be -- within 13 metres.
:18:59. > :19:03.came to pack can because I was here as a child on the old bucket-and-
:19:03. > :19:07.spade holidays. Many people come back down the here because they
:19:08. > :19:12.have that experience and want to retire. Not wealthy people by a
:19:12. > :19:22.long chalk. Nice, good, open- hearted people. It is only right
:19:22. > :19:23.
:19:23. > :19:27.and proper we should look after We will be keeping an eye on what
:19:27. > :19:33.happens here at Pagham throughout the year. Things are changing all
:19:33. > :19:38.the time and at the moment we have a distance from the houses to the
:19:38. > :19:43.sea off roundabout, what, 17 metres, just two metres away from the
:19:43. > :19:50.critical 15 metre mark where action will be taken. Don't forget, if you
:19:50. > :19:53.have a story up -- a story for us, drop as an e-mail. Next, at the
:19:53. > :19:57.young daughter -- Dorset family living with a rare genetic
:19:57. > :20:07.condition that has turned their lives upside down and led to some
:20:07. > :20:12.
:20:12. > :20:21.unwanted attention. He is their The they say their skin is as
:20:21. > :20:27.delicate as a butterfly's wins. wings. It is so lovely, it makes
:20:27. > :20:32.something so horrible so beautiful. I am Steph and this is Chris, my
:20:32. > :20:37.fiancee and a two special children, Harry who is three and a half and
:20:37. > :20:42.Cody who is one and a half. As people often stop and ask, no, our
:20:42. > :20:47.kids haven't been burnt, scolded or beaten. They have a rare skin
:20:47. > :20:53.disorder called EB. We wanted to make this film to make life easier
:20:53. > :20:58.for us and other families with kids with EB. We see ourselves as normal
:20:58. > :21:08.people living in extraordinary circumstances. Cody is 18 months,
:21:08. > :21:10.
:21:10. > :21:13.and he has his mum's attitudes, and Hello! Did you have a nice day at
:21:13. > :21:22.school? Harry is quite chilled. Does as he
:21:22. > :21:29.is told, gets on with things. a very strong-willed son, quite
:21:29. > :21:33.demanding, when he wants something, he wants it. But because of the way
:21:33. > :21:37.we are with him, he is quite small and he gets what we -- what he
:21:37. > :21:43.wants, but we don't know how long we have him for so that's why we do
:21:43. > :21:48.it. In 2009 I gave birth to Harry. I had lost baby twins in my first
:21:48. > :21:52.pregnancy so it was a relief to see my healthy son. It was amazing, the
:21:53. > :21:58.best feeling in the world. I can't really describe it, to be honest,
:21:58. > :22:04.it was like a fairy tale, to be honest, it was, but the first few
:22:04. > :22:09.weeks were really good. You are, really happy. He was born and
:22:09. > :22:15.everything was fine. Took him home, everything was fine, just got on
:22:15. > :22:20.like a normal family, then a round three-four weeks old, or we so he
:22:20. > :22:24.had blisters coming up on his fingernails. Might mum said, what's
:22:24. > :22:30.wrong with his hands? She said, look, so I came home, took him to a
:22:30. > :22:35.hospital, they just got it was a normal infection under the nails.
:22:35. > :22:40.The soars started to spread on to his feet, up to his face and on to
:22:40. > :22:44.his body. Lifting him was hard, if you lifted under the arms you could
:22:44. > :22:49.rip the skin, so it was all scooping him with blankets and
:22:49. > :22:57.cushions. It wasn't normal for a baby all for us. You couldn't
:22:57. > :23:02.cuddle your child. They clinically diagnosed him with EB, which is a
:23:02. > :23:07.really bad, severe version of the disease, and the life expectancy,
:23:07. > :23:12.they said six months to year, so it really hit home. Scary, really
:23:13. > :23:15.scary. But despite the odds, Harry is still with us and enjoying life.
:23:15. > :23:19.He even goes to school and bakes cakes.
:23:19. > :23:24.Is it for money, just money, not for Daddy?
:23:24. > :23:28.There are only 5000 people with EB in the UK, and the odds of us
:23:28. > :23:31.having another child with it was unlikely, so we took the small risk
:23:31. > :23:36.and had Cody. I can't describe what it was like.
:23:36. > :23:40.I was so happy when he was born and he was alive, then looked at him
:23:40. > :23:45.and saw his hands and I was like, oh my God, he has got it. Caring
:23:45. > :23:50.for two children with EB requires a spare bedroom full of medication.
:23:50. > :23:55.Both boys had to have tracheotomy is, meaning they can't speak and
:23:55. > :23:59.need constant monitoring. We also need to change their bandages twice
:23:59. > :24:03.a day, something none of our family looks forward to. I don't like
:24:03. > :24:09.doing it. It is not really fair run him but it has to be done for him,
:24:09. > :24:14.really. He is quite good, once he gets past the anxiety of having
:24:14. > :24:19.them done, he is quite good, as you can see. He is that they're quite
:24:19. > :24:24.happy, just lets me get on with it. Sundays are better than others and
:24:24. > :24:30.luckily today he is co-operating -- some days. He is unpredictable
:24:30. > :24:34.depending on how he is feeling, really. Yes, he's a good boy. He's
:24:34. > :24:44.quite funny. He knows whether dressing goes so if I did something
:24:44. > :24:46.
:24:46. > :24:56.Good! We have the bandages changed, sometimes we are able to venture
:24:56. > :24:58.
:24:58. > :25:02.A You Like It? Big, isn't it? You have to put in a letter to Santa in
:25:02. > :25:06.they're telling him what you want for Christmas. By it as much as we
:25:06. > :25:10.try to get on with shopping, we can't help noticing the amount of
:25:10. > :25:20.people that stop and say things about our kids. That lady with the
:25:20. > :25:24.blue top on. She looked at them and shook their heads. It was like, no
:25:24. > :25:28.need for it, really. I don't know what goes through their heads. But
:25:28. > :25:32.I don't understand how people can be so cruel to children.
:25:32. > :25:36.The they just stopped, turned round, started talking to each other,
:25:36. > :25:44.pointed, then just stared, sci-fi like waving at them but I thought
:25:44. > :25:47.I'd better not. People dread their children away from mine, and people
:25:48. > :25:51.have -- laugh but the boys and I have never be used in the streets.
:25:51. > :25:55.I can understand that to see a child like that you would be
:25:55. > :26:01.shocked, but all we ask is that you are scarce. We are happy to talk to
:26:01. > :26:11.for 20 minutes about it. -- that you ask us. The man is doing your
:26:11. > :26:12.
:26:12. > :26:22.picture, Harry. Looked! Who is that? A is that you? Happy New Year.
:26:22. > :26:32.Your a monkey! -- you are. That is the frock. He wants the Frog now as
:26:32. > :26:33.
:26:33. > :26:39.well. He has got the monkey. It's By a get home, it is business as
:26:39. > :26:47.usual as we get the kids ready for bed. I fixed in a while Harry has
:26:47. > :26:54.some dance time. -- fix dinner. Just giving him a nebuliser, just
:26:54. > :26:58.to get all the secretions out, really. The boys need looking after
:26:58. > :27:04.24 hours a day, so each evening, two carers arrive so we can get
:27:04. > :27:14.some rest for the night. He's seems quite itchy round his
:27:14. > :27:15.
:27:15. > :27:18.neck. A OK. But it's usually me he The responsibility is massive,
:27:18. > :27:25.especially when they are really unwell and they have a chest
:27:25. > :27:31.infection, because you are the one responsible for keeping that airway
:27:31. > :27:37.open. And sometimes it's not always possible. They start blocking off,
:27:37. > :27:45.and stuff, so it is a massive responsibility. We have only had to
:27:45. > :27:51.resuscitate its Coady once. So far. The future is uncertain for Harry
:27:51. > :27:56.and Cody, so we try to make every day and night special. I try to
:27:56. > :28:00.take every day as it comes. I don't like trying to look ahead, because
:28:00. > :28:04.they don't know what the future holds for us, so we just take each
:28:04. > :28:08.day as it comes, and whatever the day will throw at us, we have to
:28:08. > :28:13.deal with it when it comes. No point in trying to plan anything,
:28:13. > :28:18.and it is a way of life for us now, and we just wants to be accepted,
:28:18. > :28:23.that is all, really. Two very brave young boys there.
:28:23. > :28:30.Don't forget, jaws stories really can make a difference, so why don't
:28:30. > :28:34.you tell me about them? On Twitter. I will be back next week. Until
:28:34. > :28:39.then, goodbye. And next time, we give Portsmouth
:28:39. > :28:44.full health check-up, and comedian and GP Dr Phil Hammond takes the