13/02/2017

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:00:16. > :00:23.I don't understand how it is a people lost their lives aren't

:00:24. > :00:30.disabled. Town-mac we want to go to work, it's like getting that help in

:00:31. > :00:34.young women from Brighton who fought young women from Brighton who fought

:00:35. > :00:39.hard cancer on a YouTube. She has left her legacy and her videos, as

:00:40. > :00:43.yet let a resounding impact on me as well. And we turn back the clock as

:00:44. > :00:46.they take a tour of one of Dorset hidden villages. Welcome to Inside

:00:47. > :01:08.Out. If you visit the struggle to get

:01:09. > :01:13.around, your car to be a lifeline. Some people having their Motability

:01:14. > :01:15.the car is taken away after new assessments decide that they are not

:01:16. > :01:27.disabled enough to qualify. What's going on? Portsmouth, a popular spot

:01:28. > :01:35.for petrol heads. Especially if you've had a few modifications.

:01:36. > :01:41.Becky, Trevor and Adam are all amputees. All three have they cast

:01:42. > :01:47.thanks to the Government's notability scheme. It hits 40 this

:01:48. > :01:54.year. -- Motability scheme. They fear the brakes could be slammed on

:01:55. > :02:00.any moment. And their wheels will be taken away. How you go to carry your

:02:01. > :02:09.cityscape and yorker the? I have fallen over a few times. Thank you.

:02:10. > :02:15.GB forgiving father get our free amputees would count as disabled.

:02:16. > :02:19.Doing slopes and grass, it's a strange sensation. It is lethal. But

:02:20. > :02:25.it seems they might not be disabled enough for the new personal

:02:26. > :02:29.independence payment of PIP which has replaced the old disability

:02:30. > :02:35.benefit. The man who came out to assess said to me, if you had both

:02:36. > :02:39.legs amputated, you wouldn't have any problems getting PIP, you'd be

:02:40. > :02:47.classified as disabled. Side got to get both amputated. Before Becky

:02:48. > :02:51.lost her leg, she had several operations and had been on crutches

:02:52. > :02:57.for seven years. She qualified for a car to help live independently. But

:02:58. > :03:02.now, with a prosthetic leg, she could lose her car. If they can

:03:03. > :03:08.might not be disabled enough, they don't classify a pathetic leg as a

:03:09. > :03:13.walking aid. Wheelchairs, crutches, there was a classified as walking

:03:14. > :03:18.aids. Apparently legs aren't. That I've had this car, it has given me

:03:19. > :03:23.everything, I can get to hospital appointments, not relying on friends

:03:24. > :03:28.or family, or buses which when possible for me with my scooter. So

:03:29. > :03:35.this has given me my freedom back. I can get out and about. Becky had to

:03:36. > :03:41.pay the first ?1800, then the car is funded by a ?55 a week allowance.

:03:42. > :03:48.it is hand controls, so I have to it is hand controls, so I have to

:03:49. > :03:51.constantly pool this lever which does the acceleration. For me to

:03:52. > :03:55.break, I have to lever back. I also break, I have to lever back. I also

:03:56. > :03:59.have a knob up here because I can't physically tiring a sharp corner. At

:04:00. > :04:08.the same time as pulling the accelerator. I can't drive a normal

:04:09. > :04:21.car, so without PIP, I'm gay to be very stuck. -- getting to be. And it

:04:22. > :04:24.is it about 20 metres unaided highlight that qualify for

:04:25. > :04:25.Motability. Like Becky says, a prosthetic leg isn't classified as

:04:26. > :04:30.an eight. As what's more than 20 an eight. As what's more than 20

:04:31. > :04:40.metres, that means I have to hand the car back. It's terrible. What

:04:41. > :04:44.today is a good day, Becky says her today is a good day, Becky says her

:04:45. > :04:50.prosthesis is heavy. She gets in rashes and blisters from wearing it,

:04:51. > :04:54., so can't always use it. It doesn't matter that I might have my leg off

:04:55. > :04:58.tomorrow or Thursday. They are only concerned about the fact I can walk

:04:59. > :05:07.every so often. That would take my car away. The new PIP asset that is

:05:08. > :05:15.aimed at saving the public money, but Philip Connolly of Company Mac

:05:16. > :05:20.says removing peoples Motability is a false economy. Denying them the

:05:21. > :05:24.opportunity to use the car and that the vehicle has got to be

:05:25. > :05:28.counter-productive. These people will become more reliant on

:05:29. > :05:32.statutory services, which is more expensive. They also lose a lots of

:05:33. > :05:39.choices and control in a lives. Consequence is to put people, make

:05:40. > :05:43.them prisoners of their properties, putting them under house arrest.

:05:44. > :05:54.That is a description Leah Debus recognises all too well. Leah lost

:05:55. > :05:59.her leg any motorbike accident five years ago. She got a pathetic and a

:06:00. > :06:06.Motability car which allowed her to work full-time. Just feel the weight

:06:07. > :06:11.of it. Tumours ago, she had her PIP assessment. Their decision is that I

:06:12. > :06:19.am not entitled to any mobility at all. Her car was taken away so she

:06:20. > :06:23.can now log work and is now totally relied on benefits. I had to turn

:06:24. > :06:28.down a new job that I've managed to get, I been for an interview, was

:06:29. > :06:31.offered the job, was excited to start it, but due to relocation I

:06:32. > :06:39.couldn't get there without my vehicle. I think the most striking

:06:40. > :06:44.thing... Sorry, the must be shaking thing is actually how hard I pushed

:06:45. > :06:50.myself these last five years, how hard I have worked to walk, go back

:06:51. > :06:54.to work, live my life, and I feel like I've been penalised for that.

:06:55. > :07:05.They've taken it away from me. They've made it impossible nearly to

:07:06. > :07:12.live that life. I just don't understand how they can say that I

:07:13. > :07:24.don't have enough of a disability to warrant Motability. I don't

:07:25. > :07:29.understand how they can say people who have lost their limbs aren't

:07:30. > :07:33.disabled. And lost his leg a year ago after an illness he had since

:07:34. > :07:37.childhood. It's hard to get your head around this sort of thing when

:07:38. > :07:43.it happens. You don't think it will happen to you. Until a member of

:07:44. > :07:54.Parliament is in this situation, nothing will get done. My name is

:07:55. > :07:57.Trevor Jones, used to drive trucks. It got worse and worse, I had to be

:07:58. > :08:03.taken off in February last year. We taken off in February last year. We

:08:04. > :08:10.have paid our taxes and paid it, we need help. Go to is in the gutter.

:08:11. > :08:14.-- don't throw us in the gutter. Travellers entitlement to PIP is

:08:15. > :08:19.worked out after a medical assessment with a task, the company

:08:20. > :08:24.and Pensions. This is the D-Day, and Pensions. This is the D-Day,

:08:25. > :08:32.this is where I'm going into the effort I'll be assessed. Whether I

:08:33. > :08:37.can cope, and that. I'm a bit nervous. Every time I been in there,

:08:38. > :08:43.this is the fourth time, every time it is not the right answer. You've

:08:44. > :08:46.got to fight. He will find out in the next few weeks if he believes

:08:47. > :08:51.his car. In the meantime, he is keen to show just how tough it will be to

:08:52. > :08:57.get around if it has to go. It is even worse getting out, because your

:08:58. > :09:06.leg will twist. You can get caught under the pedal. I have done. It's

:09:07. > :09:12.not nice when you follow via. -- fall over. People think you're

:09:13. > :09:17.cars are currently being handed back cars are currently being handed back

:09:18. > :09:22.at an unprecedented rate of roughly 800 a week. Here's the... This is

:09:23. > :09:26.the early when around the area, otherwise I got to go all the way

:09:27. > :09:32.around, which has two time and effort. I got a go slow because if

:09:33. > :09:37.my front wheel 's catch, as you go. And I've done that twice. Trevor

:09:38. > :09:41.wanted to find out from the Government why so many people are

:09:42. > :09:44.losing their cars after a PIP assessment. The Department for Work

:09:45. > :09:50.and Pensions pensions with only give a statement. Having lost her car,

:09:51. > :09:59.Leah was keen to see it. This is what they say. Decisions are made

:10:00. > :10:02.after considering evidence from the claimant and GP, anyone who

:10:03. > :10:07.disagrees can appeal, and in most cases any mind leaving a Motability

:10:08. > :10:11.scheme is eligible for a one off payment of up to ?2000 to help meet

:10:12. > :10:20.their needs. Green but you make of that? As I was like, have some

:10:21. > :10:27.money, pat you on the back. It's ridiculous. Leah plans to appeal the

:10:28. > :10:32.decision. Motability says more than half of those who do I get any cars

:10:33. > :10:39.back. Just one more battle thousands of disabled people could do without.

:10:40. > :10:44.Ever since I've become disabled, I've had to fight, and now it's

:10:45. > :10:49.getting to the stage where they are just taking cars from people,

:10:50. > :10:54.because you can walk. Yeah, I can walk, but I give everything to have

:10:55. > :10:58.my leg and back, to have a normal life. We want to go to work and get

:10:59. > :11:02.back, we don't want to feel sorry for ourselves, that's not what this

:11:03. > :11:07.is about. It's about getting that help to get on with life. And be

:11:08. > :11:17.part of society, not feel like an outcast or, you know,... I think of

:11:18. > :11:27.a high chance of losing my car. They have early initiative in saving

:11:28. > :11:28.money. -- they are only interested. Still to come, it is man versus van

:11:29. > :11:46.in one of Dorset 's hidden villages. A teenager with cancer tried to help

:11:47. > :11:50.others in a situation. Charlotte died last year but 11 inspirational

:11:51. > :11:57.legacy, some of which has only just been discovered by her family.

:11:58. > :12:02.I'm just like any other typical teenage girl but I have a twist.

:12:03. > :12:06.16-year-old Charlotte had been diagnosed with

:12:07. > :12:12.But rather than hide away, she decided she was going to use

:12:13. > :12:15.the power of social media to tell the world what was

:12:16. > :12:20.But I found when I had cancer and wanted some advice videos,

:12:21. > :12:26.In June she said, "I think I'm going to start a YouTube

:12:27. > :12:28.channel," and I said "What are you going to talk about?"

:12:29. > :12:30.and she said "My journey, my cancer," and it

:12:31. > :12:36.I've had purple hair, no hair, long dark and shiny hair.

:12:37. > :12:40.Black lips, red lips, dry cracked from chemo lips.

:12:41. > :12:44.So I had finished my exams and then I was planning to go on to college.

:12:45. > :12:54.It was actually on the day of prom that I was diagnosed,

:12:55. > :12:58.Charlotte posted more than 100 videos in the two

:12:59. > :13:02.The early ones were watched a few hundred times.

:13:03. > :13:06.By the time Charlotte lost her battle with cancer,

:13:07. > :13:09.people all over the country ? indeed from around the world ?

:13:10. > :13:14.So yeah, sorry for these random snippets.

:13:15. > :13:20.I don't know, maybe this is the way I vlog, literally

:13:21. > :13:24.picking up the camera, up and down, up and down.

:13:25. > :13:27.Her videos were nominated for a prestigious online

:13:28. > :13:30.video award, and then, remarkably, Charlotte's family

:13:31. > :13:35.found dozens of unedited, unseen video files on her camera.

:13:36. > :13:40.I inherited her DSLR camera which was very special to her,

:13:41. > :13:46.it was her window onto the world, and I went through her stuff

:13:47. > :13:50.and I've had this memory card for months, and I found a new folder

:13:51. > :13:56.I think most poignant for me is how frank they are, how honest.

:13:57. > :13:59.When it came to wearing them, this one was definitely more comfortable.

:14:00. > :14:06.This is the way that I am, this is how I look and there

:14:07. > :14:14.Hi guys, I wanted to make a video today...

:14:15. > :14:17.But with the type of tumour Charlotte had, her condition

:14:18. > :14:26.Nothing is really working or happening.

:14:27. > :14:33.Today I got some very bad news - it has grown from three or four

:14:34. > :14:38.millimetres to three centimetres, which is obviously,

:14:39. > :14:45.Her right hand side went paralysed, she couldn't move her leg,

:14:46. > :14:50.she couldn't move her hand, her arm, and then slowly by slowly it

:14:51. > :14:57.Unfortunatel,y things have taken a turn for the worse,

:14:58. > :15:03.as in the medication I was on isn't working very well, so yeah, I'm

:15:04. > :15:13.We went to see our consultant afterwards and he more or less

:15:14. > :15:17.had his head in his hands, and he said it's very, very, very bad

:15:18. > :15:27.The tumour is virtually all over the place now.

:15:28. > :15:30.And we cried, and I think it was disbelief.

:15:31. > :15:34.And she just looked at me and said, "Does that mean I'll never get

:15:35. > :15:42.And I said I think it does, and she went back

:15:43. > :15:46.to see her consultant, and I read on the notes, she said,

:15:47. > :15:54.He said it seems the most likely outcome.

:15:55. > :16:00.Charlotte was a phenomenal individual who, despite being faced

:16:01. > :16:06.with certain death from her tumour, did not say "Oh well,"

:16:07. > :16:11.She raised funds, she raised awareness, she pushed and pushed

:16:12. > :16:16.and pushed right to the end, and what an amazing and humbling

:16:17. > :16:20.experience it is for me, an adult and a neurosurgeon,

:16:21. > :16:32.to see someone so young grasp the enormity of their diagnosis.

:16:33. > :16:37.A celebration of beauty, life, positivity, bravery, generosity.

:16:38. > :16:43.She was blogging, making videos on YouTube,

:16:44. > :16:46.while she was describing her experience in an attempt to help

:16:47. > :16:49.others who were going through the same thing.

:16:50. > :16:52.And she was doing it in a very stylish way,

:16:53. > :16:59.in a way I am certain has been very helpful for many, many, many

:17:00. > :17:05.Many of Charlotte's friends before her diagnosis couldn't

:17:06. > :17:09.cope with her illness, something she reflected on in her videos.

:17:10. > :17:12.I've had 60's eyes, red eyes, dancing until dawn eyes.

:17:13. > :17:17.Boy friends, me friends, never seen again friends.

:17:18. > :17:20.But Charlotte made new friends online ? friends like Emily.

:17:21. > :17:24.I met Charlotte through YouTube - I myself am a YouTuber,

:17:25. > :17:28.and I went over to her channel and I looked at some of her videos,

:17:29. > :17:31.and I loved what she created and I loved her personality,

:17:32. > :17:40.I will probably get back to you guys when I see Emily.

:17:41. > :17:43.I'm meeting her at Brighton station and she should be

:17:44. > :17:49.I've still got all her texts, I've not deleted one single one.

:17:50. > :17:52.I never will and she just said thank you so much,

:17:53. > :17:57.I really value our friendship and I'm so grateful that

:17:58. > :17:59.you are here for me, and that was the last text

:18:00. > :18:04.She is still here in a way, she has left her legacy,

:18:05. > :18:06.she's left her channel, her videos and she has left

:18:07. > :18:10.a resounding impact on me as well that I am going to carry

:18:11. > :18:15.That legacy and that impact now extend to the charity Charlotte's

:18:16. > :18:19.They are raising money to raise awareness and fund research

:18:20. > :18:24.into glioplastomas ? the type of brain tumour that Charlotte had.

:18:25. > :18:29.My family have been there with me 110% and I just love

:18:30. > :18:36.We're always going to come together as a sort of team

:18:37. > :18:40.if you like, and I have just been incredibly blessed to

:18:41. > :18:47.So I don't really know what else to say.

:18:48. > :18:49.Anything else exciting happens, I will grab the camera again.

:18:50. > :19:10.What a truly remarkable young women Charlotte was. Don't forget, if you

:19:11. > :19:19.want to get in touch with the show, you can drop me an e-mail.

:19:20. > :19:22.TRANSLATION: You'd be forgiven if you'd never heard of east Charlton.

:19:23. > :19:24.You've probably never heard of East Chaldon,

:19:25. > :19:26.Chaldon, but every year people travel thousands of miles

:19:27. > :19:28.to visit one of Dorset's most hidden villages.

:19:29. > :19:39.God once drove to East Chaldon in a delivery van like this one.

:19:40. > :19:45.Although his was a Ford, and possibly more comfortable.

:19:46. > :19:49.It took place in a novel called Mr Weston's Good Wine'

:19:50. > :19:52.which was one of 70 books written in the village by nine

:19:53. > :19:57.Throughout the 1920s and 30s Chaldon became

:19:58. > :20:02.a magnet for famous authors, poets, sculptors and artists.

:20:03. > :20:06.It began with the arrival of an impoverished hermit.

:20:07. > :20:10.Theodore Francis Powys moved here for a quieter life.

:20:11. > :20:13.At least that's what his brother Llewelyn tells us.

:20:14. > :20:16.He took his stick from his chimney-corner and set out to find

:20:17. > :20:20.some unpretentious village, where he would be altogether

:20:21. > :20:27.Eventually he arrived at East Chaldon, which very possibly

:20:28. > :20:31.is the most hidden village in Dorset.

:20:32. > :20:35.Theodore lived here and used to hide behind bushes

:20:36. > :20:39.when he was out walking, hoping not to bump into the locals.

:20:40. > :20:43.He also planted onions in his garden to give the weeping ash

:20:44. > :20:51.Despite his odd manner, he still proved quite popular.

:20:52. > :20:54.I managed to meet some people who actually remembered

:20:55. > :20:58.what it was like in the 1920s and 30s and they remembered Theodore

:20:59. > :21:06.very fondly being rather hermit like he was more or less fully

:21:07. > :21:09.accepted, although I think they thought he was probably

:21:10. > :21:12.a little odd as he was so withdrawn and given to solitary walks.

:21:13. > :21:16.He did observe the villagers and he did use them in his writing

:21:17. > :21:20.but fortunately since most of them didn't read his books he got

:21:21. > :21:25.away with it because not all the descriptions were very kind.

:21:26. > :21:28.Although Theodore was a private man, celebrities from New York,

:21:29. > :21:33.London and the South Coast wanted to meet him, some enjoying Chaldon

:21:34. > :21:39.It was a hive of creative activity, which also attracted visits

:21:40. > :21:50.from the famous adventurer and author Lawrence of Arabia.

:21:51. > :21:52.It was surprising how well they took it and really.

:21:53. > :21:55.T E Lawrence when he visited, he visited on his motorbike

:21:56. > :21:57.which was called boanerges and it made a terrific racket

:21:58. > :22:00.and they didn't like the racket it made through the lanes,

:22:01. > :22:07.They pretty well accepted it but they didn't know it was a little

:22:08. > :22:09.strange I think that it wasn't happening elsewhere,

:22:10. > :22:20.It wasn't long before Theodore's younger brother Llewelyn

:22:21. > :22:25.followed to East Chaldon, dragging his wife Alyse Gregory

:22:26. > :22:32.He'd been diagnosed with TB and spent much of his time writing

:22:33. > :22:36.essays about Dorset, outdoors in shelters like this one.

:22:37. > :22:41.Well I think he slept in here although...

:22:42. > :22:46.It's not exactly hotel standards, is it?

:22:47. > :22:50.He did sleep outdoors a lot and when he was up at the White Nose

:22:51. > :22:53.he used to sleep in what would have been an upturned boat.

:22:54. > :22:57.What's it like living in a place with such a strong link to the past

:22:58. > :23:01.in as much as you must get people coming up and having

:23:02. > :23:06.Yes I have people knocking on the door and asking you know

:23:07. > :23:11.Do you sit here and admire the view or you're probably working too hard.

:23:12. > :23:16.I sit here occasionally but my cat sits in it more than anything.

:23:17. > :23:19.Now he's remembered in the village not just for his writing

:23:20. > :23:22.or odd sleeping habits, but also for a rather generous

:23:23. > :23:31.Upon my death, ?100 shall be used to establish a trust

:23:32. > :23:36.and the interest paid to the nearest public house for free drinks after

:23:37. > :23:45.That actually could have produced 50 or 60 pints of beer which in a small

:23:46. > :23:53.place like Chaldon would actually have been a very good night out.

:23:54. > :23:55.Every year a society named the Friends of Llewelyn Powys meet

:23:56. > :24:07.It's just so much fun to meet all the people and learn the history

:24:08. > :24:10.and you really feel like you're back in time to a certain extent and it's

:24:11. > :24:17.You only see these people once a year so the relationship

:24:18. > :24:21.the association becomes something very special, they're

:24:22. > :24:27.I always say at this point that we're here to remember

:24:28. > :24:32.Llewelyn Powys and toast his health, but his health is rather

:24:33. > :24:35.beside the point these days and that it's his memory

:24:36. > :24:41.So if everybody could raise their glasses and remember

:24:42. > :24:47.Llewelyn Powys and thank him for all the many years of pleasure

:24:48. > :24:56.he's given us here in the Sailor's Return.

:24:57. > :25:01.Llewelyn loved the Dorset landscape, which heavily influenced his essays

:25:02. > :25:07.This is what it's all about really isn't it?

:25:08. > :25:10.It makes you feel alive up here It's gorgeous yeah just

:25:11. > :25:19.You feel so special to actually be able to live and work

:25:20. > :25:21.in this landscape and yeah, just feel very lucky really.

:25:22. > :25:23.Do you enjoy it more because it's part of literature,

:25:24. > :25:27.Yes I do, because it's like two layers you're seeing.

:25:28. > :25:30.You're seeing the layer that's there which in itself is very

:25:31. > :25:33.beautiful and then you've got a layer of how people have observed

:25:34. > :25:37.Just looking at the landscape you can't, you can completely

:25:38. > :25:44.understand why it inspired them and I think that literature written

:25:45. > :25:46.about this area it, I think it adds a depth

:25:47. > :25:51.appreciated this landscape as much as you or I have here at the moment

:25:52. > :25:56.and it's just an absolute pleasure to be able to do that really.

:25:57. > :25:58.Back in the 20s the landscape was not just beautiful,

:25:59. > :26:06.Llewelyn wrote about his friend Walter Franzen, who whilst visiting

:26:07. > :26:11.from New York fell to his death near the cliffs.

:26:12. > :26:28.of desperate consciousness, where the herring gulls

:26:29. > :26:30.never cease from crying, better in such a place than in

:26:31. > :26:34.Nowadays the walk across the cliffs is a little less perilous,

:26:35. > :26:37.and after a few swift pints at the pub, the friends

:26:38. > :26:40.of Llewelyn Powys make their way to his grave on the coast

:26:41. > :26:48.It's set completely in the landscape from which he himself is derived,

:26:49. > :26:53.and you can't be in this area without hearing the echo

:26:54. > :27:00.The most famous Powys brother was John Cowper,

:27:01. > :27:04.nominated three times for a Nobel prize.

:27:05. > :27:06.He spent much of his life in the states, where some

:27:07. > :27:11.But it's Dorset where the Powys legacy lives on,

:27:12. > :27:16.and where Llewellyn's wife Alyse buried him on the cliffs.

:27:17. > :27:23.I feel I'm walking in the footsteps of my great aunt, she just did

:27:24. > :27:24.things that other people didn't do.

:27:25. > :27:33.you know she was an inspiration to me because well I'm a feminist

:27:34. > :27:50.too, and maybe behind every great woman is a great man.

:27:51. > :27:57.Llewelyn's grave sits on his beloved Dorset coastline,

:27:58. > :28:02.Llewelyn himself, now a permanent part of the landscape.

:28:03. > :28:04.It's very humbling, really and it's always,

:28:05. > :28:12.and yet any great artist really just enriches the world and to know that

:28:13. > :28:29.I'm part of that tradition is a very humbling thing.

:28:30. > :28:39.that is all for now, we're back in two weeks' time because of the

:28:40. > :28:44.football. Until then, goodbye. So, FA Cup next Monday, but we're back

:28:45. > :28:48.on the 27th, when historian Greg Henderson will be exploring some in

:28:49. > :28:52.the south 's lesser-known castles. Number you can't get inside the

:28:53. > :28:54.castle, but this is about to change hands again so we've been granted

:28:55. > :29:06.special access. Hello, I'm Alex Bushill

:29:07. > :29:09.with your 90 second update. Drug abuse, violence

:29:10. > :29:10.and faulty alarms. Just some of the major

:29:11. > :29:12.security failings a BBC investigation has uncovered

:29:13. > :29:15.at a Northumberland prison. Stay tuned for Panorama

:29:16. > :29:19.after Eastenders.