23/09/2013

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:00:04. > :00:17.Hello from the Memorial Ground in remarkable personal journey from

:00:18. > :00:27.football hooligan to Bristol Rover's team chaplain. What do you think

:00:28. > :00:33.Also on the programme, compensation at last, but only for some of those

:00:33. > :00:43.suffering the side—effects of the absolutely disgusting. This vaccine

:00:43. > :00:49.has irreversibly changed his life forever and there is nothing we

:00:49. > :00:53.has irreversibly changed his life do about this. He has to take a

:00:53. > :00:58.has irreversibly changed his life strong cocktail of drugs to just get

:00:58. > :01:02.And I'm discovering the real story behind Tolkien's Lord of the Rings.

:01:02. > :01:19.In our first film tonight, we have a fascinating development of a story

:01:19. > :01:25.first reported here on Inside Out West. In December 2011 we revealed

:01:26. > :01:28.millions of children, and the sleep disorder narcolepsy. On Friday the

:01:28. > :01:33.government admitted there was a disorder narcolepsy. On Friday the

:01:33. > :01:36.and announced a compensation scheme. But, as our health correspondent

:01:36. > :01:47.Matthew Hill reports, this will But, as our health correspondent

:01:47. > :02:00.for 8—year—old Josh, sleep dominates his life. Josh? You have got to

:02:00. > :02:05.for 8—year—old Josh, sleep dominates up. Josh has to take a powerful

:02:05. > :02:09.cocktail of medication every day. He has a very rare condition called

:02:09. > :02:11.narcolepsy that means he can't regulate his sleep patterns. He

:02:11. > :02:12.narcolepsy that means he can't collapses whenever he gets excited,

:02:12. > :02:16.a condition known as catoplexy. collapses whenever he gets excited,

:02:17. > :02:28.just after he was vaccinated against swine flu. Initially put it down to

:02:28. > :02:35.it being the end of term, coming up to half term, he was tired. Then he

:02:35. > :02:39.started losing muscle control. He could not hold things properly.

:02:39. > :02:42.started losing muscle control. He needed you to support his hand,

:02:42. > :02:52.started losing muscle control. He dropping forward. It was horrible. I

:02:52. > :02:52.happened. For the past three years Caroline has been campaigning to get

:02:52. > :03:01.condition was caused by the swine Caroline has been campaigning to get

:03:01. > :03:05.condition was caused by the swine the Government has agreed that the

:03:05. > :03:09.multinational GlaxosmithKline, is most likely to have contributed

:03:09. > :03:13.multinational GlaxosmithKline, is impressed and pleased with the fact

:03:13. > :03:17.that they have now admitted the links, they have it made a great

:03:17. > :03:22.step forward. At the end of the links, they have it made a great

:03:22. > :03:26.that is the main thing that we wanted from the government, to admit

:03:26. > :03:30.that the vaccine was a problem. wanted from the government, to admit

:03:30. > :03:36.am impressed with that. But it is the way we have been treated. It is

:03:36. > :03:41.absolutely horrendous. So why has it taken so long for the problems to

:03:41. > :03:47.come to light? How thoroughly had Pandemrix been tested in the first

:03:47. > :03:52.original trials on Pandemrix took place. Now it was because the global

:03:52. > :03:56.threat presented by a pandemic of swine flu that it was decided the

:03:56. > :04:00.trial should be fast—tracked so swine flu that it was decided the

:04:00. > :04:04.results would be available sooner. But GSK were only happy for the

:04:04. > :04:09.vaccine to be given if the British government gave them an indemnity.

:04:09. > :04:11.That means that if things went wrong it would be the British government

:04:11. > :04:16.that would have to pay compensation rather than the drug company. But

:04:16. > :04:22.for Caroline's son, something did go wrong and she's angry that the

:04:22. > :04:26.government has been dragging its feet over the issue, failing to

:04:26. > :04:28.government has been dragging its seriously mounting evidence from its

:04:28. > :04:33.dangers of Pandemrix. In the middle of 2010 Finland withdrew the vaccine

:04:34. > :04:40.for young people under 20. The decision followed a study by this

:04:40. > :04:48.sleep expert who I met at the start of my investigation more than two

:04:48. > :04:57.narcolepsy was 12 times higher, compared to not having it. We had

:04:57. > :05:04.beginning of August, about the number of narcoleptic of children of

:05:04. > :05:12.Pandemrix. No way I would have given it to any of my own children or

:05:12. > :05:18.friends, I said, I have it because there is no risk but do not give it

:05:19. > :05:24.to your children. Back in the UK though, nothing changed. In fact,

:05:24. > :05:31.investigated Pandemrix, it was being seasonal flu vaccine. Through her

:05:31. > :05:38.campaigning Caroline met up with Pauline Carlton from Liverpool.

:05:38. > :05:43.Hello! You're right? She had her whole family vaccinated against

:05:43. > :05:48.swine flu in January 2011, long after the vaccine had been withdrawn

:05:48. > :05:56.in Finland. Nice to meet you. Soon after the vaccination, her youngest

:05:56. > :06:04.symptoms as Josh. He was a humorous little boy, he used to make me laugh

:06:04. > :06:08.so much, he had a wicked sense of humour, he had the silliest thing to

:06:08. > :06:14.make me laugh. All that has gone. What is left is this little angry,

:06:14. > :06:17.frustrated the full boy, it is heartbreaking. When I visited the

:06:17. > :06:24.vaccine manufacturer GlaxoSmithKline two years ago, I wanted to know

:06:24. > :06:27.vaccine manufacturer GlaxoSmithKline they would acknowledge the apparent

:06:27. > :06:32.narcolepsy in Josh, Lucas and other children. There is currently no

:06:32. > :06:35.evidence at all to indicate there is a causal link between Pandemrix

:06:35. > :06:39.evidence at all to indicate there is narcolepsy. We are working hard

:06:39. > :06:42.evidence at all to indicate there is the regulatory authorities to try

:06:42. > :06:47.and understand what is happening. Are you saying you disagree with the

:06:47. > :06:52.Finnish Institute when they say there is a link with Pandemrix? At

:06:52. > :07:00.authorities believe there is not a Pandemrix but we are working with

:07:00. > :07:07.it. At the end of the day, patient safety is of utmost importance to us

:07:07. > :07:14.and we would never put out a drug or leave it out there if we believed it

:07:14. > :07:21.was a true issue. Then a year ago a study in Ireland found a 13 fold

:07:21. > :07:25.Pandemrix. It took Caroline to meet another campaigner in Dublin to

:07:25. > :07:28.Pandemrix. It took Caroline to meet out how they were fighting for

:07:28. > :07:31.compensation. We got a promise from the Minister from health here, that

:07:31. > :07:36.support package proposal would be put to government in the summer

:07:36. > :07:41.support package proposal would be that has not happened. We are now

:07:41. > :07:47.putting pressure on them to do that. And finally Inside Out revealed

:07:47. > :07:48.which showed English children have study by the health authorities

:07:48. > :07:52.which showed English children have also been affected. Yet GSK were

:07:52. > :07:57.still saying there was no data increase of narcolepsy among those

:07:57. > :07:59.vaccinated. But one of the academics involved in the original trials

:07:59. > :08:02.vaccinated. But one of the academics the vaccine disagreed. The bottom

:08:02. > :08:06.line is that they have found that there was somewhere between ten

:08:06. > :08:09.line is that they have found that 16 times more likely to have had

:08:09. > :08:14.Pandemrix than other children. That confirms these other studies done in

:08:14. > :08:22.Finland, Sweden and Ireland. These researchers have put a number on it

:08:22. > :08:29.risk was something like one in 52,000. Glaxo Smith Kline say they

:08:29. > :08:33.now want to carry out more research into the claim to seek what is

:08:33. > :08:36.causing the narcolepsy. This could include other factors such as the

:08:36. > :08:44.environment or genetics, they say. The company say the vaccine went to

:08:44. > :08:49.a vigorous approval process and throughout development there was no

:08:49. > :08:54.data to diet —— suggesting a link. But Josh is left battling daily

:08:54. > :08:59.life. He needs powerful drugs to keep him awake, which may shorten

:08:59. > :09:02.his life. The families have applied Caroline has just received a letter

:09:02. > :09:06.that on balance of probability, Caroline has just received a letter

:09:06. > :09:10.jab contributed to Josh's condition but he will not be eligible for

:09:10. > :09:17.compensation because he is not disabled enough. Looking at their

:09:17. > :09:21.something like, loss of eyesight or hearing, loss of limbs or not being

:09:21. > :09:29.it to do anything. What do you think disgusting. I want them to take

:09:29. > :09:32.it to do anything. What do you think burden of our soldiers, the guilt

:09:32. > :09:43.that I feel everyday when I look at parents, to see him suffer on a

:09:43. > :09:49.daily basis. He has to take a very strong cocktail of drugs each day to

:09:49. > :09:54.get through a day. At the end of the day, this vaccine has irreversibly

:09:54. > :10:01.changed his life for ever, there is nothing we can do about this. To

:10:01. > :10:04.turn round to me and say that the result of the vaccination means

:10:04. > :10:05.turn round to me and say that the his illness is not severe enough,

:10:05. > :10:13.Coming up, Mark is in search of his illness is not severe enough,

:10:13. > :10:19.hidden story bit —— behind the Lord of the rings. To think that this is

:10:19. > :10:22.the ring that he became the model for the ring in the Hobbit! Anyone

:10:22. > :10:30.in football will tell you there for the ring in the Hobbit! Anyone

:10:30. > :10:34.times when players and fans turn to the power of prayer to get the right

:10:34. > :10:38.It is no surprise that Bristol Rovers, who play their football

:10:38. > :10:41.It is no surprise that Bristol at the Memorial Stadium, have their

:10:41. > :10:51.own chaplain. Here is his remarkable Bristol's newest at 14 is enjoying

:10:51. > :11:00.early success. In the couple —— newest football team, in their first

:11:00. > :11:04.ever match. It is a proud moment for the chairman, Dave Jeal. Football is

:11:04. > :11:09.his passion. He is a fixture on the chairman, Dave Jeal. Football is

:11:09. > :11:13.terraces, supporting his beloved restored Rovers. But he has also

:11:13. > :11:25.been involved in summer football's violent moments. What do you think

:11:25. > :11:33.everything changed. What we want is a revolution. That is what we are

:11:33. > :11:40.about, really, a revolution of love, not to hurt and destroyed. So can

:11:40. > :11:54.born—again Christian convert his passion for the beautiful game into

:11:54. > :12:02.Dave lives in North Bristol. The first match I went to, 1972. It

:12:02. > :12:03.Dave lives in North Bristol. The passion, devotion? Yes, I love it.

:12:03. > :12:12.But there was a time it to keep passion, devotion? Yes, I love it.

:12:12. > :12:14.a dark path? The first time I saw football match violence was in the

:12:14. > :12:20.70s, it was a pitch invasion, I football match violence was in the

:12:20. > :12:29.fascinated by it. I was eight, I start off as a little dapper, going

:12:29. > :12:36.to watch, and you can get a little bit more involved as you get older.

:12:36. > :12:44.You come up through the ranks, it is aggression and anger and hatred

:12:44. > :12:46.You come up through the ranks, it is particularly proud of it, although,

:12:46. > :12:55.it has taught me a lot about life and people. And involvement in

:12:55. > :13:03.football violence reached a high point at the European Championships

:13:03. > :13:12.What are your memories of that? It was just a dark evening in my

:13:12. > :13:16.He was arrested for punching a rival fan, leaving him unconscious on

:13:16. > :13:26.He was arrested for punching a rival ground to be repeatedly kicked on

:13:26. > :13:31.That looks really nasty. You can see me walking away. What do you think

:13:31. > :13:38.when you see pictures like that me walking away. What do you think

:13:38. > :13:53.Then there was an unexpected twist of fate. We ask God to kill us ——

:13:53. > :14:07.He was persuaded, reluctantly, to go I didn't want people to see me

:14:07. > :14:13.pretended I was praying. These two blokes came up and said I want to

:14:13. > :14:21.pray for you. I said, do whatever you want, mate. They asked me what I

:14:21. > :14:31.wanted and I said I want all the hits to go. They asked me to pray

:14:31. > :14:35.and from that second I knew there was a god. The only good thing about

:14:35. > :14:40.me as God. Left to my own devices, I am a pretty unpleasant person. When

:14:40. > :14:45.I first became Christian I wanted to tell everybody. I just couldn't

:14:45. > :14:54.believe it. I had never had a buzz like it. Legally. I thought I'd

:14:54. > :15:00.believe it. I had never had a buzz had to tell people what it was like.

:15:00. > :15:06.compelled them to spread the word. He is now a minister in his North

:15:06. > :15:22.West. . You have also become the He joins the players once a week at

:15:22. > :15:32.The players come to you? Sometimes. If they want to talk about faith, I

:15:32. > :15:39.combination of Bristol Rovers and God is just the best job ever. I

:15:39. > :15:52.love it. Even though I am just the ball boy. Do you pray every week for

:15:52. > :16:09.a when? No, why would God be a Surely Friday he has a Bristol

:16:09. > :16:15.No, no. I'd like him to the butt no. Are the those among your friends who

:16:15. > :18:47.I am happy with that, we can go and on. The can't get much worse!

:18:47. > :18:53.God, thank you for this game, Lord. Thank you that you love us no matter

:18:53. > :19:00.what happens. Whatever Howarth —— whatever, however you feel, you

:19:00. > :19:04.what happens. Whatever Howarth —— you ever caught in this choice

:19:04. > :19:12.between the two, between God and football? No. No. It is different.

:19:12. > :19:17.It is kind of like God is my family. And Rovers are like my friends.

:19:17. > :19:25.Family will always come first. In our final film tonight, we are

:19:25. > :19:32.heavily off to Middle Earth to hear the secret story of a precious gold

:19:32. > :19:37.ring hoped to —— thought to have inspired Lord of the Rings. Ours is

:19:37. > :19:42.a tale of curses by cruel gods, dwarves and subterranean caves.

:19:42. > :19:52.a tale of curses by cruel gods, history man has been to the Forest

:19:52. > :19:57.archaeologist excavating a Roman Gloucestershire was told of an

:19:57. > :20:06.extraordinary discovery. Buried inside the temple, a small rolled up

:20:06. > :20:12.demanding accursed be placed upon the wearer of a precious ring. The

:20:12. > :20:18.find caught the attention of eminent academic called Professor J R R

:20:18. > :20:24.Tolkien, a few years later, he published and now world famous book,

:20:24. > :20:48.The story starts atop steep hill on Severn. Sometime in the fourth

:20:48. > :20:57.century, a British women called Sylvie Alness made a pilgrimage

:20:57. > :21:01.century, a British women called to this temple. Weary from his

:21:01. > :21:09.travels, he used the thermal baths attached to the temple. Here in

:21:09. > :21:17.travels, he used the thermal baths disrobed, and carefully removed

:21:17. > :21:20.travels, he used the thermal baths that he left with his clothes. As he

:21:20. > :21:28.went into the baths. Whilst the Roman was enjoying a luxury bath

:21:28. > :21:35.here, back in the changing rooms, a thief stole his gold ring. To find

:21:35. > :21:40.out what happened next, I am being joined an archaeologist with a

:21:40. > :21:44.particular interest in Roman and iron age religion. So, the Roman has

:21:44. > :21:57.lost his ring in the temple. If iron age religion. So, the Roman has

:21:57. > :22:00.possesses. It has gone. It has been storing in a sacred place. It is

:22:00. > :22:08.assessed and it is also sacrilege. What did he do next? He probably

:22:08. > :22:19.engages ascribed to write on a piece of lead, this piece of lead, a

:22:19. > :22:26.asking him to lay at curse on the thief. It said, to the God, and

:22:26. > :22:30.asking him to lay at curse on the mentions the person who has been

:22:30. > :22:35.robbed. He has lost his right —— his ring and he would give half of it,

:22:36. > :22:48.the value, to the God on its return. Here's saying that anybody by this

:22:48. > :22:53.name should receive the curse. He may have been a pilgrim. He is

:22:53. > :23:04.definitely being fingered. What may have been a pilgrim. He is

:23:04. > :23:10.he mean by getting damaged? Anything to do with bodily fluids, going

:23:10. > :23:20.he mean by getting damaged? Anything the toilet, having sex, all gone.

:23:20. > :23:27.Silvianus buried his curse deep within the temple and set off home,

:23:27. > :23:34.waiting for his ring to be returned. But it never was. Before long, Roman

:23:34. > :23:41.rule in Britain had come to an end abandoned. In the centuries that

:23:41. > :23:50.followed, superstitious locals thought that the ruins and tunnels

:23:50. > :23:59.were home to goblins and it works. untouched for a thousand years.

:23:59. > :24:10.were home to goblins and it works. the site was excavated, in the late

:24:10. > :24:14.1920s, the curse and the stories of the works and goblins attracted

:24:14. > :24:26.experts. Including one Professor Tolkien. I think he was fascinated

:24:26. > :24:40.because we don't often have names —— names for gods. The fact that he

:24:40. > :24:56.lived here in this enchanted forest set Tolkien's mind away. This is

:24:56. > :25:01.He came here, visited this magical place and was inspired. Absolutely

:25:01. > :25:19.and the story started to become So what effect did all this have on

:25:19. > :25:25.Tolkien? At the same time that he was contributing to an academic

:25:25. > :25:39.report, he was writing another work about the nasty gods, cursed rings,

:25:39. > :25:54.He was writing in 1926 or developing started work on that famous first

:25:54. > :26:07.sentence, on a whole in the ground Tolkien was desperate to create

:26:07. > :26:07.sentence, on a whole in the ground already explored the possibility of

:26:07. > :26:17.melding earlier British history already explored the possibility of

:26:17. > :26:20.the invasion of the Romans into already explored the possibility of

:26:20. > :26:23.kind of prototype story that he already explored the possibility of

:26:23. > :26:29.writing and saw all those things were feeding into his imagination at

:26:29. > :26:37.the time and the creative process he This would eventually emerge into

:26:37. > :27:04.Tolkien's first novel is famously known, especially in this film.

:27:04. > :27:11.So what about Silvianus' stolen ring? Incredibly, it was found in

:27:12. > :27:20.1785 in a field in Hampshire. It went on display in this National

:27:20. > :27:32.Trust house and I am having a closer look. To think that this is the

:27:32. > :27:46.actual ring that Silvianus stall —— It is not hard to be transported to

:27:46. > :27:50.Middle—earth. It is just the sort of thing that might have inspired

:27:50. > :27:58.Tolkien. Before I got the ring back there is just one or thing I want to

:27:58. > :28:15.know. In The Hobbit, the bring his That is just about it for this week.

:28:15. > :28:18.Before we go, there is just about time to tell you about a special

:28:18. > :28:29.documentary about a school for on BBC One. You can keep in touch

:28:29. > :28:45.with us at the address is on screen. From all of us, thanks for watching

:28:45. > :28:48.temperature cull shows no sign in beating we look at the police trying