:00:23. > :00:28.The NHS say it is about improving care for children, but not everyone
:00:28. > :00:35.is happy. It is my own opinion, but I have a feeling that there has
:00:35. > :00:40.been agreed determination. -- 83 determination. We speak to the
:00:40. > :00:45.parents who fear the changes could call their families apart.
:00:45. > :00:52.think it is going to be a nightmare, and might therefore asked tracking
:00:52. > :00:58.backwards and forwards, spitting the family up. -- splitting the
:00:58. > :01:04.family up. And we hear from the government's former Hearts chief,
:01:04. > :01:14.for the reasons. People had been living on a hand-to-mouth basis in
:01:14. > :01:23.
:01:23. > :01:27.There is nothing more emotive than the health and welfare of children.
:01:27. > :01:32.Proposals to dramatically reduce the number of children centres
:01:32. > :01:38.offering heart surgery have sparked controversy. Some centres like the
:01:38. > :01:41.one here in Leeds could close. Tonight, we investigate the claims
:01:41. > :01:49.and counter claims being made in this increasingly bitter review.
:01:49. > :01:59.This film does include injury -- images of surgery.
:01:59. > :02:06.It has just been, just been dreadful. We have to try and cope,
:02:06. > :02:12.been Cope, -- be strong, but it is hard. She is a six year-old
:02:12. > :02:20.youngster with a hole in her heart. There is no doubt, that if she is
:02:20. > :02:26.left as she is, that her lifespan will be significantly reduced.
:02:26. > :02:31.here I am, I am here, I have not gone anywhere. OK, it's OK. Emily
:02:31. > :02:35.Taylor is one of around 3500 children who need heart surgery
:02:35. > :02:40.this year. It is a desperately worrying time for families, but for
:02:40. > :02:44.many, it could be the difference between a life and death. From the
:02:44. > :02:48.point of view of a surgeon, this operation is very satisfying,
:02:48. > :02:53.because there is a lot of surgery we do which is not curative. We
:02:53. > :02:59.cannot cure the children. Where as this is a corrective operation, and
:02:59. > :03:05.that is very satisfying. Because it is do the operation, job done,
:03:05. > :03:10.youngster is normal. But the way children's heart surgery in England
:03:10. > :03:14.is carried out is about to change. The NHS is proposing a boat -- a
:03:14. > :03:17.radical overhaul which could see some surgical centres close. The
:03:17. > :03:21.result of their review will be announced before the end of the
:03:21. > :03:29.year, but this centre in Leeds is one of those threatened. I am here,
:03:29. > :03:32.I have not got anywhere. You have got to take the positives, at the
:03:32. > :03:40.moment you are just concerned that your daughter is down there, and
:03:40. > :03:46.everything is out of your control. Well done, well done. A nice big
:03:46. > :03:50.sleep now. For Emily, her parents and thousands in their situation,
:03:50. > :03:58.the proposed changes could have an effect for years to come. Yet for
:03:58. > :04:05.now, their only focus is on the next few hours.
:04:05. > :04:10.We are gathered here today because we are victims of a gross injustice.
:04:10. > :04:14.The injustice that our children were told -- taken from us.
:04:14. > :04:17.review into children's heart services was set up in 2008, but it
:04:17. > :04:23.can trace its roots back to the scandal at Bristol Royal Infirmary
:04:23. > :04:28.in the 1990s, where but we've -- between 30 and 35 children died due
:04:28. > :04:32.to failings in care. The subsequent inquiry made 198 recommendations.
:04:32. > :04:36.One of them was to stipulate the minimum number of operations that
:04:36. > :04:42.hospitals should be carrying out to ensure that surgeon's skills are
:04:42. > :04:46.kept shop. The idea being, the more you do, the better you are. The NHS
:04:46. > :04:51.is looking to reorganise and improve children's hearts services
:04:51. > :04:56.across England. The NHS believes that to provide 24 hour care, 365
:04:56. > :05:00.days a year, each hospital needs for surgeons and each site should
:05:00. > :05:08.be performing a minimum of 400 operations per year with an optimum
:05:08. > :05:13.or 500 ft. The aim is also to provide better care closer to
:05:13. > :05:18.children's homes. To achieve this, the NHS needs to close some centres
:05:18. > :05:22.and consolidate into fewer, bigger units, supported by regional
:05:22. > :05:27.networks offering non-surgical care. There are 11 hospitals offering
:05:27. > :05:31.children's heart surgery in England, but the NHS once that cuts to six
:05:31. > :05:35.or seven. They have come up with four options for reconfiguration in
:05:35. > :05:38.which five centres remain in all scenarios, leading Newcastle, Leeds,
:05:38. > :05:42.Southampton and Leicester under threat. The Royal Brompton in
:05:42. > :05:47.London does not appear in any of the options and Oxford ceased
:05:47. > :05:52.operating earlier this year. It is how this option was reached and the
:05:52. > :05:59.press is behind it which had led to an increasingly bitter dispute. --
:05:59. > :06:04.for the process behind it. Behind me, you can see 70 parents to have
:06:04. > :06:08.packed this meeting room here at Elland room. -- Elland Road. It is
:06:08. > :06:13.right we have proper specialisms so we save more lives. For those
:06:13. > :06:15.surgical centres under threat, the last year has seen clinicians,
:06:15. > :06:19.campaigners and operate -- politicians embroiled in a battle
:06:19. > :06:23.to save their centre. If a centre have to close in the north, it
:06:23. > :06:26.should not be us, it needs to be Newcastle. There are serious
:06:26. > :06:32.concerns about the process that had been raised with me by clinicians
:06:32. > :06:36.and parents. Leeds campaigners handed in a 600,000 signature
:06:36. > :06:40.petition to Downing Street, and the Royal Brompton Hospital in London
:06:41. > :06:44.became the first NHS body ever to take the NHS to court. For many of
:06:45. > :06:50.those involved, there was growing concern about how the review was
:06:50. > :06:56.being carried out and some of the assumptions it was based on. Keep
:06:56. > :06:59.going, that's good. Very nice. Children's heart surgery is
:06:59. > :07:03.extremely complex and the surgeons who carried it out of among the
:07:03. > :07:08.most skilled in their profession. Emily's procedure to correct a hole
:07:08. > :07:13.in the hot will take four hours, but some procedures will last over
:07:14. > :07:19.15 hours. One of the key principles underpinning the review is the idea
:07:19. > :07:26.of four surgeons carried out a minimum of 400 paediatric heart
:07:26. > :07:30.surgery is % per year. There is concerns from some about where this
:07:30. > :07:38.figure has come from. There is no hard evidence that 400 cases
:07:38. > :07:45.produces better outcomes, no hard evidence. And therefore, you know,
:07:45. > :07:51.that is the fact. That is how it stands. The NHS review says that
:07:51. > :07:55.Leeds carried out 316 operations in 2010, so it short of the magic
:07:56. > :07:59.number of 400. This is the reports commissioned by the review team to
:07:59. > :08:04.look at all available it is sure to see if there is any evidence to
:08:04. > :08:07.support a minimum number of operations. It could not find one.
:08:07. > :08:13.It could find some correlation between volume and outcome, but it
:08:13. > :08:19.could not provide a cut-off point. We decided to speak to the US based
:08:19. > :08:24.author of three of the seven report considered by the review. Dr Wilkie
:08:24. > :08:28.is a paediatric surgeon based in Seattle. From your research, where
:08:28. > :08:35.can you draw the line and say, this is the minimum number of cases that
:08:35. > :08:40.a surgical centre should be dealing with? It is more complex than a cut
:08:40. > :08:45.and dried line. In the United States, we know there are centres
:08:45. > :08:49.that are relatively low behind who are -- lower than the line that a
:08:49. > :08:55.performing well and vice versa. If one has to make a decision, and one
:08:55. > :09:01.wants to base it on the data which is in existence, the number of 350
:09:01. > :09:05.cases per year for a centre which wants to be adept in all areas of
:09:05. > :09:09.congenital heart surgery is reasonable. I cannot say that a
:09:09. > :09:12.number slightly above or below that is also reasonable. But based on
:09:12. > :09:18.what we have found, that is a reasonable under. -- reasonable
:09:18. > :09:23.number. Why is this figure important? If it was lower,
:09:23. > :09:27.arguably more Donitz might remain viable under the proposals. -- more
:09:27. > :09:35.units might remain viable. This is not the first time the NHS has look
:09:35. > :09:38.at setting a minimum figure. Back in 2003, the NHS proposed three
:09:38. > :09:42.surgeons and 300 procedures per centre, but that was rejected by
:09:42. > :09:47.the then Health Minister. figure that was put to me of 300
:09:48. > :09:50.cases and three surgeons in each centre had no evidence behind it.
:09:50. > :09:56.There was no body of data that could show me that that was
:09:56. > :10:00.actually going to be more safe than the arrangements we already had in
:10:00. > :10:06.place. Without hard evidence, was there any way that you as a
:10:06. > :10:10.minister could have gone ahead with those proposals? Absolutely not. If
:10:10. > :10:17.one had gone ahead with these recommendations, and there would
:10:17. > :10:20.have been no question, an awful lot of hostility to them with local --
:10:20. > :10:25.there was an awful lot of hostility to them in the local area and you
:10:25. > :10:28.can only stand up to hostility with evidence, it you can look people in
:10:29. > :10:32.the eye and say, I am doing this because it will be better for you
:10:32. > :10:36.and your children in the long term. Professor Sir Roger Boyle
:10:36. > :10:40.represents the team carrying out the review into children's hot
:10:40. > :10:47.services. He says the figure of 400 is based on expert aperient --
:10:47. > :10:51.opinion. The basis is having enough work to keep the surgeon's skill
:10:51. > :10:54.and have enough surgeons working together to have a proper training
:10:54. > :10:58.environment, and the ability for surgeons to do the difficult cases
:10:58. > :11:03.together. The problem is, it you are asking people to make big
:11:03. > :11:07.changes, you would like it to be based on some kind of body of
:11:07. > :11:11.evidence. We will never get the evidence, because of the small
:11:11. > :11:18.number of procedures and that comes down to simple mathematics and
:11:18. > :11:22.statistics. Slightly further down. Just have a look. The first stage
:11:22. > :11:26.of the review into children's heart surgery was to assess each of the
:11:26. > :11:30.11 centres against a set of newly developed clinical standards. A
:11:30. > :11:35.hospitals were visited by a panel of experts which scored them
:11:35. > :11:40.against such things as quality of care and leadership. There was a
:11:40. > :11:44.group of people from various aspect of the health care, who came around
:11:44. > :11:49.and presentations were given and questions asked, and they went away
:11:49. > :11:54.and came up with a score. hospitals were scored and then a
:11:54. > :11:58.rank into a league table. But there has been concerns about how these
:11:58. > :12:02.schools were worked out. The NHS review team has release the details
:12:02. > :12:07.of where the centres met on the standards, but they have not
:12:07. > :12:13.released the breakdown of the schools. We cannot analyse the
:12:13. > :12:23.score, on the basis, that is all we know, and number. We cannot really
:12:23. > :12:25.
:12:25. > :12:28.do anything with that. And we are We requested a breakdown of the
:12:28. > :12:31.scores using the freedom of information that, but were rejected
:12:31. > :12:37.on the basis that using what they call provisional scores in the
:12:37. > :12:42.public domain could prejudice the review. We are saying that a
:12:42. > :12:48.further option should be included, which does include Leeds but also
:12:48. > :12:50.actually includes eight centres. This counsellor is the chair of the
:12:50. > :12:53.Health Review and scrutiny committee. -- the Overview and
:12:53. > :13:00.Scrutiny Committee. She believes that transparency has been a major
:13:00. > :13:05.issue. For the fact that neither the hospitals nor the statutory
:13:05. > :13:11.bodies to scrutinise this process, in theory, get to see the breakdown
:13:11. > :13:16.of scores, it is unacceptable. Complete the unacceptable, because
:13:16. > :13:22.there cannot be any real confidence in the scoring without public
:13:22. > :13:27.scrutiny. The scoring has had an effect. And the scoring has been
:13:27. > :13:32.brought into play, into the recommendations. There is no doubt
:13:32. > :13:38.that, from the point of view of this review, and people's
:13:38. > :13:42.perceptions, the scoring has been important and this centre has been
:13:42. > :13:47.disadvantaged. There has also been concern over the accuracy of the
:13:47. > :13:51.scoring. In Leeds, one example is where it says that there is not a
:13:51. > :13:57.dedicated transition nurse to help children to adult services. But the
:13:57. > :14:01.true say that is not correct and that one does exist. We are very
:14:01. > :14:06.keenly aware of the factual accuracy is about the hospital have
:14:06. > :14:10.told us exist. -- factual inaccuracies. We have not been able
:14:10. > :14:14.to corroborate that those factual inequities have been corroborated
:14:14. > :14:19.anywhere. -- have been addressed. There is so much emphasis placed on
:14:19. > :14:23.one set of data, and we could not get access to it. Why has the
:14:23. > :14:27.breakdown of those scores not been released? I do not know. They will
:14:27. > :14:33.be released, but the joint committee primary care trusts have
:14:33. > :14:37.not seen that breakdown. The review team also say suggestions of
:14:37. > :14:42.factual inaccuracies are without merit, and there is no need to
:14:42. > :14:46.readers of the score for Leeds. This created a league table that
:14:46. > :14:51.was put in the consultation document - a very influential for
:14:51. > :14:55.the members of public who see it. Surely that should be open to some
:14:55. > :15:00.scrutiny of how those scores were given. It will be put into the
:15:00. > :15:05.public domain once the committee have considered that level of
:15:05. > :15:10.detail. Will that not be too late? I think it is only one factor that
:15:10. > :15:16.is being considered here, but it is an important one because it is a
:15:16. > :15:19.measure of quality that goes beyond just looking at survival rates.
:15:19. > :15:22.When children have a congenital heart disorder, it is likely they
:15:22. > :15:26.may have more than one thing wrong with them. In these circumstances,
:15:26. > :15:35.it is important that they have ready access to other medical care.
:15:35. > :15:41.This is called Coke location. Children with heart problems have
:15:41. > :15:44.complicated problems, so it is rare they have a hard problem that is
:15:44. > :15:48.isolated. If the additional problems become an issue, it is
:15:48. > :15:52.very, very important they have access to experts in that area to
:15:52. > :15:58.advise you and help get the best outcome for the patient. But there
:15:58. > :16:03.has been disagreement over how double location has been defined
:16:03. > :16:08.for this review. We have been told that 10 years ago, they did not
:16:08. > :16:13.even treat children like Lyle. Cookward is two years old and was
:16:13. > :16:16.born with multiple complications to his heart and lungs. He has had 11
:16:16. > :16:21.operations to date and while he is much stronger now, in the early
:16:21. > :16:24.days things were critical. He was so, so poorly about. That had he
:16:24. > :16:29.been in a hospital but did not have those facilities on site, he would
:16:29. > :16:32.not have been well enough to move to have those procedures done. The
:16:32. > :16:37.fact that he was going down a corridor to theatre, not being
:16:37. > :16:40.transferred across the city, meant those procedures could happen. They
:16:40. > :16:44.were having surgical meetings where they could bring in teams of
:16:44. > :16:50.surgical professionals - not just cardiac experts, and they could all
:16:50. > :16:56.have a discussion about what was going on. Lyle is a perfect example
:16:56. > :17:00.of that stubble location. All services under one roof. -- double
:17:00. > :17:04.location. The problems that were not related to his heart that he
:17:04. > :17:09.had, we could get the doctors at short notice around the clock, and
:17:09. > :17:12.that is a model for the future. public consultation document
:17:12. > :17:16.identifies 26 services which require mandatory double location.
:17:16. > :17:20.Five of them are absolutely critical for children's heart
:17:20. > :17:25.surgery. When they say double location, what exactly do they
:17:25. > :17:29.mean? For the purposes of this review, they are using a definition
:17:30. > :17:34.from 2008. It says that services should be housed on the same
:17:34. > :17:38.hospital site, or in a neighbouring hospital as a on the same site. So,
:17:38. > :17:43.a hospital such as Leeds General Infirmary, which has all the
:17:43. > :17:47.services under one roof comes under this category. But in Newcastle,
:17:47. > :17:50.where they are spread across several hospital sites, it also
:17:50. > :17:54.meets the criteria. The problem with this interpretation is that
:17:54. > :17:58.the man who wrote the definition has raised questions about how it
:17:59. > :18:03.has been applied. In a letter to the paediatric intensive care
:18:03. > :18:08.Society, published on the safe and sustainable website, he said it
:18:08. > :18:12.would not apply to services being available in the same city. It does
:18:12. > :18:16.not equate to a visiting surgical team being a nominal 50 minutes
:18:16. > :18:19.across town. John Thomson represents the British Congenital
:18:19. > :18:27.Cardiac Association, the largest professional group for patients
:18:27. > :18:31.with the devil heart disease. -- congenital heart disease.
:18:31. > :18:37.believe that it means having their services available under one roof,
:18:37. > :18:44.ideally, to provide input to those patients when they are needed. The
:18:44. > :18:47.S&S definition has been a little bit more loose and defines it as
:18:47. > :18:52.being not necessarily on one side, so potentially in a different
:18:52. > :18:53.hospital. Potentially on the other side of a large city. That concerns
:18:54. > :19:00.British Congenital Cardiac Association because we believe that
:19:00. > :19:02.it is so important for the outcomes of these patients do. The NHS
:19:03. > :19:09.review teams mean the definition they have applied does meet the
:19:09. > :19:15.criteria. Buildings never saved anyone's life. It is the conditions
:19:15. > :19:20.that are important and the bash at the conditions that are important
:19:20. > :19:25.and the relationships between the clinicians. Knowing who is
:19:25. > :19:28.responsible for what, so that they can get into complex situations.
:19:28. > :19:32.you are happy that if the services in the future are said across
:19:32. > :19:36.different sides in the City, that is OK? As long as they are
:19:36. > :19:40.relatively adjacent and you don't have to queue in traffic for half
:19:40. > :19:43.an hour to get across. The plans to reconfigure children's heart
:19:43. > :19:46.services will almost certainly affect some people more than others.
:19:46. > :19:53.The majority of patients will only ever need surgery once but for
:19:53. > :19:57.others, it can be a lifelong relationship.
:19:57. > :20:01.She was discharged from hospital when she was born as normal, but
:20:01. > :20:05.three weeks later she started having some seizures. When we took
:20:05. > :20:08.her into hospital, that is when they did the analysis and we went
:20:08. > :20:14.to the Leeds General Infirmary and found out she had a hard concision
:20:14. > :20:23.-- condition. So our Hussain is six years old and has problems with a
:20:23. > :20:27.heart from birth. -- Sara. He it news to Newcastle, that is two
:20:27. > :20:31.hours away for us and it would pretty much mean that one parent
:20:31. > :20:34.would be with Sara and the other would be with the other children. I
:20:34. > :20:38.think it will be a nightmare. It will be a nightmare for us,
:20:38. > :20:43.tracking backwards and forwards, splitting the family up. I don't
:20:43. > :20:49.want to think about it, to be honest. It is already a stressful
:20:49. > :20:54.time anyway and this just adds to the stress. The Hussains' fears are
:20:54. > :20:58.well-founded. A health impact assessment has clearly identified
:20:58. > :21:03.that if the surgical centre in Leeds closes, the highest number of
:21:03. > :21:06.people will suffer increased travel times. But here is the problem -
:21:06. > :21:11.some people claim the health impact assessment has been carried out too
:21:11. > :21:14.late. The precise details of how troubled times might increase for
:21:15. > :21:19.people from Yorkshire and the Humber was not available before the
:21:19. > :21:26.public consultation came to an end. You would expect a HIA to be
:21:26. > :21:30.carried out properly before the consultation begins, not to be
:21:30. > :21:33.completed after everybody - including the Overview and Scrutiny
:21:33. > :21:36.Committee - have had a chance to have a say in the process. There is
:21:36. > :21:42.no statutory obligation for a health impact assessment, but if
:21:42. > :21:45.one is carried out the NHS guidelines only required to be
:21:45. > :21:49.carried out in sufficient time for the findings to be factored in. If
:21:49. > :21:58.you are going to carry out a health impact assessment, wouldn't it be
:21:58. > :22:02.better to have it at a more advanced age -- advanced stage.
:22:02. > :22:06.we need to make sure it is part of the process but not one that
:22:06. > :22:11.preamps what you finally decide. So that when you actually come to the
:22:11. > :22:17.point of implementation, you have got the issues that have arisen
:22:17. > :22:22.clearly in mind to make sure plans address those issues. But you are
:22:22. > :22:26.happy it should not have been earlier? I am happy, yes. Define a
:22:27. > :22:30.health impact assessment has yet to be published -- the final.
:22:30. > :22:34.Additional work is being carried out on travel patterns. There is
:22:34. > :22:43.concern about how well the health impact assessment has taken account
:22:43. > :22:50.of ethnic minority families, who are twice as likely to have
:22:50. > :22:54.children with congenital heart defects. Muhammad Raja's daughter
:22:54. > :22:59.Palak has a heart condition and he feels the service has not been good
:22:59. > :23:05.enough. Communities have not been taken into any consideration or
:23:05. > :23:09.into any confidence. The S&S review team say they contacted nearly 2000
:23:09. > :23:13.organisations and a range 20 focus groups across England and Wales, to
:23:13. > :23:17.here specifically from black and minority ethnic groups. But we have
:23:17. > :23:22.spoken to the man who organised three of the five focus groups held
:23:22. > :23:26.in Yorkshire. David Odunukwe from the Leeds BME Network stepped in to
:23:26. > :23:30.help the NHS over fears the sessions they had organised were
:23:30. > :23:33.not accessible for these communities. He feels the NHS
:23:33. > :23:37.should have done more, at an earlier stage.
:23:37. > :23:44.Overall, how well would you say minority groups have been consulted,
:23:44. > :23:49.even including the work by you have carried out? Not very well. We have
:23:49. > :23:52.managed to tick the boxes, so that it is noted in London at the NHS
:23:52. > :23:58.offices, and in Parliament, that consultation has been done with
:23:58. > :24:05.more than two or three groups. When we are able to contact people at a
:24:05. > :24:13.moderate level, at a late stage, we would have been able to transform
:24:13. > :24:18.that site of the relationship. We would have been able to look at he
:24:18. > :24:26.was dealt with and who had a say. In any consultation, you would want
:24:26. > :24:31.everybody to have the opportunity to work in a democratic fashion. So
:24:31. > :24:37.I don't think it was box-ticking - I think it was an issue raised and
:24:37. > :24:45.we responded to it. The review team also point out that nearly 20% of
:24:45. > :24:48.the 75,000 responses to the public consultation came from BME groups.
:24:48. > :24:52.The I want to highlight why and what my concerns are. It is about
:24:52. > :24:56.the review and not just about one sentence. One of those who has been
:24:56. > :24:59.most vocal about the proposed changes to children's heart surgery
:24:59. > :25:03.is Stuart Andrew, the MP for Pudsey, who instigated a backbench debate
:25:03. > :25:08.on the issue. What concerns do you have about the
:25:08. > :25:13.way this review has been carried out? I think that it has not been
:25:13. > :25:17.transparent enough. I think we want a level playing field that
:25:18. > :25:21.recognises that geography is also incredibly important, but that we
:25:21. > :25:25.do have a process that brings about the best children's heart surgery
:25:25. > :25:30.that we can have in this country. Do you accept that there does need
:25:30. > :25:36.to be a changed? Absolutely. I think we'd have to be sure that we
:25:36. > :25:42.have really safe units, but let's not make a mistake in the process.
:25:42. > :25:47.A we are able to close this directly. Just a couple of minutes,
:25:47. > :25:51.probably. For Emily Taylor, the operation to fix the hole in her
:25:51. > :25:55.heart is over. It brings to an end what has been the most testing time
:25:55. > :25:59.of her life so far. Hers is just one story among thousands of
:25:59. > :26:05.children whose lives are changed each year. They are the reason that
:26:05. > :26:09.this review is being so keenly watched. I want to see real
:26:09. > :26:15.evidence that they have really considered another option, that can
:26:15. > :26:18.potentially help us keep it in Leeds. If we lose it, I think it
:26:18. > :26:23.will be a serious blow for many patients that are going to needed.
:26:23. > :26:26.I have had people banging on my door every month, asking why we
:26:26. > :26:30.haven't sorted out children's heart surgery. They say it is ridiculous
:26:30. > :26:35.to have this large number of centres to bring such a small
:26:35. > :26:39.number of procedures. Shame on you for not doing something about it
:26:39. > :26:44.before now, they say. They best outcome is that this centre stays
:26:44. > :26:49.open. I am absolutely clear about that. It not for me personally,
:26:49. > :26:53.because in the future, I won't be here. But for the community of
:26:54. > :26:59.Yorkshire and Humber, I think it is absolutely important that this unit
:26:59. > :27:04.stays open. It has been three weeks since Emily came out of hospital,
:27:04. > :27:13.and she is feeling much better. was really very happy when Maya
:27:13. > :27:16.operation was done. -- my operation. I could go home and have more fun.
:27:16. > :27:21.She went from intensive care to a high dependency unit. She was there
:27:21. > :27:26.for one night and after that she went into the ward, and she was in
:27:26. > :27:32.the ward for a couple of days. Because she did so well and
:27:32. > :27:35.recovered so quickly, they sent us home. You feel fantastic. From the
:27:35. > :27:39.emotions you have gone through before, it is just wonderful to
:27:39. > :27:44.think that it was found and that she has been treated. Now we can
:27:44. > :27:48.just get on with everything and not worry about it anymore. And get on
:27:48. > :27:52.with our lives will stop the review into children's heart services has
:27:52. > :27:56.been one of the biggest ever carried out by the NHS. The review
:27:56. > :28:01.team say no decisions have yet been made, and the results should be
:28:01. > :28:08.announced before the end of the year. I will be a bit more stronger
:28:08. > :28:12.when I get older and don't be poorly. And then I will get a
:28:12. > :28:22.really, really happy when I am older because it is all over and
:28:22. > :28:24.
:28:24. > :28:31.done with. I can do anything now. I If you want to contact us about
:28:31. > :28:36.tonight's story, you can do so on Facebook or Twitter. That's it from
:28:36. > :28:42.us in Leeds. Make sure you joined us for next week's programme.