:00:12. > :00:17.Welcome to Inside Out from Leeds. This week, as many businesses
:00:17. > :00:22.struggle to pay their bills, we find out the length so a royal
:00:22. > :00:26.landlord was prepared to go to avoid paying -- paying tax. And
:00:26. > :00:31.what do these strange art works have to do with saving a mint for
:00:31. > :00:36.the Duchy of Lancaster? Also tonight, the forgotten heart
:00:36. > :00:41.patients. Why some say the controversial review of children's
:00:41. > :00:45.heart services has ignored one group of patients. We have the same
:00:45. > :00:53.surgeons, the same team, we should have the same review with the
:00:53. > :01:03.children. And defying the odds. The younger boy who has amazed doctors
:01:03. > :01:17.
:01:17. > :01:20.For many businesses, times are tough and they are looking at ways
:01:20. > :01:22.to reduce their tax bill. But we discovered that the Duchy of
:01:22. > :01:25.Lancaster, which holds the Queen's property portfolio, has been going
:01:26. > :01:33.to unusual lengths to avoid paying tax on one of its properties in
:01:33. > :01:36.Harrogate. This is 11 Ripon Road, near the centre of Harrogate. It's
:01:36. > :01:39.an office building that is on the market for around �1 million. But
:01:39. > :01:48.it's been empty for nearly three years and that could be costing the
:01:48. > :01:55.owner around �16,000 a year in business rates. He owns the
:01:55. > :02:00.property? This is a clue. -- who owns it? His it is owned by the
:02:00. > :02:06.Duchy of Lancaster. The Duchy of -- the Duke of Lancaster is of course
:02:06. > :02:12.the Queen. The Duchy dates back to the 13th century and holds land and
:02:12. > :02:18.property on behalf of the sovereign. Last year, it made a surplus of �13
:02:18. > :02:23.million. Since 2008, landlords have to pay business rates on properties
:02:23. > :02:28.after they had been empty for three months. It seems the Duchy of
:02:28. > :02:34.Lancaster has tried to find ways around pain. What is this?
:02:34. > :02:39.Apparently, if you have a charity in, you get three months rate free.
:02:39. > :02:46.We have been told in order to avoid business rates, 11 Ripon Road has
:02:46. > :02:53.been filled with art. Could the Duchy be trying to avoid tax by
:02:53. > :02:57.placing art in its property? We decided to find out. Posing as a
:02:57. > :03:02.business man, Inside Out journalist Richard made an appointment to view
:03:02. > :03:07.the property. It was arranged for 9am.
:03:07. > :03:11.It is a few minutes to 9am and the property is just up the road. We
:03:11. > :03:18.have a Jaguar, so we look businesslike. We will see how we
:03:18. > :03:25.get on. Richard is met by an estate agent he selling the property on
:03:25. > :03:31.behalf of the Duchy. He walked into the first room and is struck by
:03:31. > :03:41.what is in there. What is this? Apparently, if you have a charity
:03:41. > :03:46.in, you get three months rate free. Is there a sort of art group in as
:03:46. > :03:56.tenants? A victory do their Artin here. In is it OK to take two or
:03:56. > :03:56.
:03:56. > :04:04.three pictures -- they do their art in here. He has finished the
:04:04. > :04:10.meeting and we will see what has happened.
:04:10. > :04:16.Hello, Richard. How did that day? The what you have in there is a
:04:16. > :04:21.deserted office block. The only thing in there is a rather bizarre
:04:22. > :04:28.modern art work. One did it look like? If you look at the camera,
:04:28. > :04:34.that almost looks like draped toilet rolls. Actually, it is
:04:34. > :04:40.dustbin liners. They have been festooned across a room. A are they
:04:40. > :04:50.all like this? The have different types of art work. There are
:04:50. > :04:51.
:04:51. > :04:56.balloons, often for oil. There is very as types of plastic bags. The
:04:56. > :05:00.estate agent was open. This is a tax dodge. She said the art work is
:05:00. > :05:07.there to reduce the outgoings of the people who own the building,
:05:08. > :05:12.the Duchy of Lancaster. There are little cards. I picked up the one
:05:12. > :05:18.of the person who has done the art work, he is called Josh Artus. Is
:05:18. > :05:26.that Josh Artus? Josh explains the service he offers. In case you are
:05:26. > :05:32.wondering, it is not a charity. have my own art company. It is
:05:32. > :05:37.based on helping clients manage their empty rates. He says he knows
:05:37. > :05:43.what he's doing. The air are cases being fought against companies,
:05:43. > :05:49.illegally doing it -- and there are. We do occupy the property. We do
:05:50. > :05:53.not make up a fake company. We have artists working in the building.
:05:53. > :05:58.They claim people can make an appointment by e-mail to view the
:05:58. > :06:05.art works. We tried to make an appointment, but after two weeks,
:06:05. > :06:08.we still had no response. We have tried sending e-mails and
:06:08. > :06:15.telephoning Josh Artus and his colleagues. But they did not return
:06:15. > :06:20.our telephone calls. The duchy said that ACTE Arts apologised for not
:06:20. > :06:23.responding to the viewing request and will ensure it is not repeated.
:06:23. > :06:28.The organisation said it had several exhibitions which have been
:06:28. > :06:32.viewed favourably on the site. It plans many more for the remainder
:06:32. > :06:36.of its tenancy. It says the building supports artists and is
:06:36. > :06:46.for the benefit of the community. The question is, are they doing
:06:46. > :06:46.
:06:46. > :06:50.anything wrong? It is not my taste in art! I am no expert,. Stuart
:06:50. > :06:55.Hicks is an expert on business rates and advises landlords on how
:06:55. > :07:00.to reduce their tax liability within the law. Whether it is to
:07:00. > :07:05.your taste, would you advise people to do this to reduce rates? It is
:07:05. > :07:10.not something I would advise to proceed with. Stewart has sympathy
:07:10. > :07:17.with landlords facing bills on properties that are lying empty.
:07:17. > :07:22.economy is difficult. -- the economy is difficult. Landlords
:07:22. > :07:25.with empty property are suffering. How can they reduce their
:07:25. > :07:32.liability? The law is black and white in terms of what people can
:07:32. > :07:38.do, such as occupation for 43 days, after that, there is a period of
:07:38. > :07:43.relief. The problems that can arise is if the property is not occupied
:07:44. > :07:48.genuinely, alternatively, occupied for the purpose for which the
:07:48. > :07:54.property is there. What do you think of the use of this property
:07:54. > :07:58.in Harrogate? I would be concerned it was not a genuine occupation, in
:07:58. > :08:05.which case the billing authority could seek to take action to
:08:05. > :08:08.recover the money claimed. Duchy told us that ACTE Arts
:08:09. > :08:15.occupied the building twice last year and in accordance with rating
:08:15. > :08:20.law, the Duchy have claimed a total of six months business rate relief.
:08:20. > :08:24.The Arts Company occupied the building for 45 days in March and
:08:24. > :08:29.April and 50 days from July to September, in other words, just
:08:29. > :08:35.over the 43 day limit. There were precisely three months between the
:08:35. > :08:39.two occupations. The duchy said they reimbursed ACTE Arts for their
:08:39. > :08:43.business rates during short periods of occupation and that the company
:08:43. > :08:48.has signed a six-month lease, during which time the business
:08:48. > :08:57.rates will be paid. There are many charities genuinely occupying empty
:08:57. > :09:01.buildings and I have come to visit one of them. East Street Arts is a
:09:01. > :09:05.registered charity that has been around for 20 years and they have
:09:05. > :09:12.occupied this empty building in Leeds since October. What have you
:09:12. > :09:17.got going on? A range of things from young people producing art, to
:09:17. > :09:22.painters, to people working on experimental animation and we have
:09:22. > :09:28.actors rehearsing. What do you do you have with the landlord?
:09:28. > :09:35.landlord gives us a tenancy, in this case for one year, and for low
:09:35. > :09:42.rental. We get a building cheaply and then landlord finds a tenant,
:09:42. > :09:46.even though they are not getting a big rental. Stuart Hicks believes
:09:46. > :09:54.that putting these so-called art works into 11 Ripon Road was a
:09:54. > :10:00.mistake. Have -- I have been approached in the past by companies
:10:00. > :10:06.offering a similar sort of service, but my advice to landlords I
:10:07. > :10:11.represent has been not to go ahead. How serious could this be? If the
:10:11. > :10:16.occupation is a sham, there are problems potentially with her
:10:16. > :10:22.Majesty's Revenue and Customs, who could see the claiming of rate
:10:22. > :10:32.relief as a serious issue. Could the Queen's private land portfolio
:10:32. > :10:34.
:10:34. > :10:37.find itself in trouble with Her Majesty's Revenue and Customs?
:10:37. > :10:42.The controversial review of children's heart surgery that could
:10:42. > :10:47.see the unit in Leeds closed is still being fought in the courts.
:10:47. > :10:50.Away from that, there is a group of patients who believe they will be
:10:50. > :10:56.affected by future changes, who say they have not really been
:10:56. > :11:04.considered. My heart has a leaking a foul for.
:11:04. > :11:13.It causes one side to work harder than the other -- valve. It's will
:11:13. > :11:16.make a difference. He will be limited in his activities. Phil
:11:16. > :11:22.Varley is about to undergo an operation to fix a problem with his
:11:22. > :11:27.heart he was born with. I asked the doctor the bottom line and he said
:11:27. > :11:30.if I did not get it done, I would not see 60. He is one of a growing
:11:30. > :11:35.number seen as a modern medical miracle, children born with
:11:35. > :11:39.congenital heart disease who are surviving two adults. There are
:11:39. > :11:44.concerns that a review of children's heart services in
:11:44. > :11:49.England that could see operations stop in Leeds, could lead the loss
:11:49. > :11:55.of adult congenital surgery, too. We have the same surgeons and team,
:11:55. > :12:00.we should have the same review with the children. It is bizarre not to
:12:00. > :12:10.consider the two services together. After all, what is important is the
:12:10. > :12:14.patient. With the two together, it could not have been managed in
:12:14. > :12:17.practical terms. Phil Varley faces a difficult operation but the
:12:17. > :12:21.outcome could make all the difference to his life. We get
:12:21. > :12:28.married next year and have our lives to look forward to. That will
:12:28. > :12:33.get me through it. The media spotlight has so far been fixed on
:12:33. > :12:37.controversial plans to reorganise children's heart surgery, which
:12:37. > :12:41.could see centres like Leeds stop operating, and it follows the
:12:41. > :12:46.scandal at the Bristol Royal Infirmary in the 1990s, when
:12:46. > :12:54.children died due to poor care. The NHS once bigger specialist centres
:12:54. > :13:01.to ensure surgeons have enough patients to keep their skills honed.
:13:01. > :13:05.But are they the same surgeons operating on children as adults? It
:13:05. > :13:09.has left some questioning why adults were not included in the
:13:09. > :13:14.review. Kimberley Botham was born with serious problems to her heart.
:13:14. > :13:18.She relied on the expertise in Leeds her whole life. If I have
:13:18. > :13:27.surgery, I have to have it done with a congenital heart surgeon,
:13:27. > :13:32.and most of the MoD children's surgeons. I cannot go to my local
:13:32. > :13:36.hospital for an anaesthetic. I broke my arm and had to go to Leeds
:13:36. > :13:41.to have pins fitted. If I have children, I have to have a surgeon
:13:41. > :13:49.ready in case anything goes wrong. We have to be at these centres. Yet,
:13:49. > :13:52.they have ignored the adults who need that service. Dr John Gibbs is
:13:52. > :13:58.a former president of the Congenital Heart Patients
:13:58. > :14:04.Association. He is a consultant in Leeds. It is incomprehensible. The
:14:04. > :14:08.patients need an ongoing service through their lives. The specialist
:14:08. > :14:13.expertise required to look after them is common among children and
:14:13. > :14:23.adults and all centres work closely between children and adult services
:14:23. > :14:25.
:14:25. > :14:30.and it is bizarre not to consider The NHS says the decision was taken
:14:30. > :14:34.because adults have difficulty -- different needs. But this is an
:14:35. > :14:40.issue that has divided opinion will stop this is a letter sent to the
:14:40. > :14:44.NHS body running the children's review back in 2010. It is on
:14:44. > :14:46.behalf of 34 doctors and nurses and calls for the to refuse to be an
:14:46. > :14:52.integrated process rather than seen as two issues with a separate
:14:52. > :14:56.solutions. But the BBC has also seen a damning e-mail sent just a
:14:57. > :15:01.few months ago by a senior doctor called Graham Stuart who sits on a
:15:01. > :15:06.influential panel that advises the children's review. This is a copy
:15:06. > :15:11.of the e-mail which was sent to me enormously in the post. Bennett, it
:15:11. > :15:15.says clearly, it was ludicrous to only consider paediatric services
:15:15. > :15:18.when at a critical level, we're all running services for both are adult
:15:18. > :15:24.and paediatric patients. In retrospect, I should have jumped up
:15:24. > :15:28.and down and screeched like a banshee and will sense prevailed
:15:28. > :15:31.and adults was included or I collapsed foaming at the mouth. The
:15:31. > :15:37.image says says this is not the general view of professional bodies
:15:37. > :15:42.involved in the process. I don't agree but the fundamental points
:15:42. > :15:47.made in that e-mail and those are not points in the wide process that
:15:47. > :15:52.has gone on throughout all the professional groups. A there was a
:15:52. > :15:55.pressing need because children were dying and it was thought they were
:15:55. > :15:59.dying unnecessarily so the view was taken to get on with the review of
:15:59. > :16:02.children. That is four years downstream, the adult review only
:16:02. > :16:07.started last year and paediatricians don't want for the
:16:07. > :16:10.delay on this. So why does it matter whether adults were included
:16:10. > :16:13.in the children's review? A separate review into adult surgery
:16:14. > :16:18.is now under way and should overhaul a service that is
:16:18. > :16:21.desperately in need of change. But some people fear the children as if
:16:21. > :16:27.you will have already decided where many of the surgeons they need will
:16:27. > :16:30.be based. Michael Cumper is from the grown-up congenital heart
:16:30. > :16:37.patients' Association and also sits on the advisory board for the adult
:16:37. > :16:42.review. The result of safe and sustainable will determine where
:16:42. > :16:48.the children's surgical units are and as the surgeons are the same
:16:48. > :16:52.teams as operate on the adults, then it will obviously determine
:16:52. > :16:55.where the adult centres will be as well. The idea that the original
:16:55. > :16:59.plan was for adult surgery to follow children's can also be found
:16:59. > :17:04.in discussions between members of an expert panel set up to advise
:17:04. > :17:07.the children's review. In a limited conversation, one senior doctor
:17:08. > :17:12.reminded colleagues that there had been an expectation that adult
:17:12. > :17:17.services would eventually be Co located with children's. In essence,
:17:17. > :17:22.some believe this also means that if the centre like Leeds lost its
:17:22. > :17:26.children's heart surgery, then adult operations would be lost, too.
:17:26. > :17:35.If you took away paediatric cardiac surgery, they would not be enough
:17:35. > :17:40.work to sustain its expertise for adults here in Leeds. If it went
:17:40. > :17:43.from here, I believe adults would as well. The NHS refutes any
:17:43. > :17:46.suggestion that adults will have to follow children's and say there is
:17:46. > :17:52.no requirement for adult and children's services to be located
:17:52. > :17:58.together. Absolutely no decision has been made in that regard, and
:17:58. > :18:04.nor is any decision inevitable. Isn't it commonsense that if you
:18:04. > :18:08.move it from one city, it. From where it has gone? We say first of
:18:08. > :18:14.all what the most desirable service is and there is no reason
:18:14. > :18:17.whatsoever that this stage there are stand alone adult congenital
:18:18. > :18:23.services cannot exist provided there are an adequate number of
:18:23. > :18:25.cases and volume for the surgeons have to do. The children's review
:18:26. > :18:29.is currently being challenged in the courts but could make a
:18:29. > :18:33.decision as soon as the spring as the adult review could stretch well
:18:33. > :18:40.into 20 that team needing some people are uncomfortable about what
:18:40. > :18:46.the future holds. I don't know what surgery centre I will end up at
:18:46. > :18:49.come I don't know if Leeds will close. If it closes, I will go to
:18:49. > :18:57.Birmingham and that terrifies me because I think it will be overrun
:18:57. > :19:00.but patience. The operation on Phil's hard to clearly 10 hours to
:19:00. > :19:06.complete and was a success. Eight weeks on and he is feeling much
:19:06. > :19:10.better. It has already made a difference. I feel better in myself
:19:10. > :19:15.and if it wasn't for the surgery, maybe my life would have stopped
:19:15. > :19:18.sooner than what it will. For Phil and thousands like him who were
:19:18. > :19:23.born with congenital heart disease, the reorganisation of their
:19:23. > :19:28.surgical care is seen by experts as a rare opportunity. The question
:19:28. > :19:34.now is, where do they go from here? Do they backtrack and start again
:19:34. > :19:37.from scratch or do they carry on and see what the outcome is? I
:19:37. > :19:43.would prefer they carried on because the worst thing is delay
:19:43. > :19:47.and mortar late. I think that having been to refuse separately is
:19:47. > :19:50.something that will work very effectively. It has made me feel
:19:50. > :19:54.like we don't matter and we are just aside think that they will
:19:54. > :20:04.think about later. The NHS says no decisions have been made in terms
:20:04. > :20:05.
:20:05. > :20:08.of either review and there are no plans to bring the two together.
:20:09. > :20:14.Imagine being told your baby has an incurable disease and could die
:20:14. > :20:17.before reaching his first birthday. That was the stark reality effaced
:20:17. > :20:22.by Steve and Diane Waller more than a decade ago but their son Jack
:20:22. > :20:32.defied medical opinion and we have been to meet this remarkable young
:20:32. > :20:36.
:20:36. > :20:42.boy. And 12 candles on the cake but few
:20:42. > :20:46.believed he would live long enough to delight. All children spread
:20:46. > :20:51.these are special but as a parent, imagine how pressures they would
:20:51. > :20:57.seem if you feared each of them might be their last. We were told
:20:57. > :21:03.that Jack would die suddenly at any minute out of nowhere. Jack had
:21:03. > :21:06.this very rare lung condition and there was nothing they could do but
:21:06. > :21:12.to take him home and enjoy the time with him because he would probably
:21:12. > :21:16.not see his first but it. A Jack suffered from a rare and fatal lung
:21:16. > :21:20.condition called primary pulmonary hypertension. For four years, he
:21:20. > :21:27.had to wear a back pack which injected life-saving drugs into his
:21:27. > :21:35.heart. There were times when I thought, I will never make it and
:21:35. > :21:42.this will be the end. I am a natural born fighter, whatever life
:21:42. > :21:47.throws at me, through letters of the way. I like that song, just
:21:47. > :21:51.look on the bright side of life. Jack is in London with his dad for
:21:51. > :22:01.one of his regular trips to Great Ormond Street. In total, he has
:22:01. > :22:03.
:22:03. > :22:07.probably spent a year of his life so far in hospital. This is a
:22:07. > :22:10.familiar routine for Jack and the staff here. They will know that
:22:10. > :22:14.without the constant medical intervention, he wouldn't have
:22:14. > :22:18.survived this long. Blood test Tarin but it is Jack who is giving
:22:18. > :22:28.the middle. The nurse is an Arsenal fan and tonight the London team is
:22:28. > :22:31.
:22:31. > :22:39.playing Jack's beloved Liverpool. You should see me on the train, who.
:22:39. > :22:44.Whatever happens on the pitch, a jack winds the pre-match banter.
:22:45. > :22:53.Kaka is literally thousands of blood tests and it would upset and
:22:53. > :23:01.adults. Gay I don't mind having blood tests. In fact now I laugh at
:23:01. > :23:05.the needles. Jack's spleen is severely is one of through medical
:23:05. > :23:15.complications and and knock could burst at with fatal consequences.
:23:15. > :23:17.
:23:17. > :23:22.It is one of a long list of challenges he faces. Jack became
:23:22. > :23:28.the face of the Bluebell Wood Children's Hospice Appeal and he
:23:28. > :23:34.raised �500,000 towards its building costs. A double lung
:23:35. > :23:43.transplant at the age of 5.5 saved his life. Unfortunately it is not a
:23:43. > :23:49.cure and so, Jack is doing very well and we hope he will have many
:23:49. > :23:54.more years of great quality of life. We are extremely proud of him. The
:23:54. > :24:00.way he has progressed is definitely down to his character. He is a
:24:00. > :24:03.stubborn the devil and he has always asked questions. The doctors
:24:03. > :24:13.and nurses will speak to him in a manner that he can understand but
:24:13. > :24:19.
:24:19. > :24:29.they don't treat him like a little kid. He still needs a daily
:24:29. > :24:32.cocktail of drugs to keep him alive. Since my transplant, I have had so
:24:32. > :24:42.many people looking after me and I am grateful to all of them because
:24:42. > :24:44.
:24:44. > :24:48.without any of this, I would never have made it to the stage. It is
:24:48. > :24:53.Jack's 12 but the today and he is opening his cards and presents with
:24:53. > :25:01.his and her brothers, Adam and Joe. Despite the celebrations, there's a
:25:01. > :25:05.school day to prepare for and Jack is not skipping lessons today.
:25:05. > :25:09.Every parent is proud of their child's milestones but Jack's
:25:09. > :25:14.didn't think he would survive long enough to a temporary school. He is
:25:14. > :25:18.now in his first year at Muff comprehensive. We used it
:25:18. > :25:27.laparoscope, he was wearing a backpack that kept him alive. Seven
:25:27. > :25:31.years on, he spread the is a cause for celebration. There are over
:25:31. > :25:36.1800 pupils in the school and many of them tower over Jack. Things
:25:36. > :25:40.they take for granted like walking to and from lessons, for Jack, can
:25:40. > :25:43.be potentially life threatening. The school is all too aware of the
:25:43. > :25:49.need to keep Jack away from any chance of being knocked by other
:25:49. > :25:55.pupils. He avoids the rash and only leaves when it is safe to do so. He
:25:55. > :26:05.has his own support worker to escort him to and from lessons.
:26:05. > :26:05.
:26:06. > :26:11.don't want to get caught up in the rush. Often is there anything going
:26:11. > :26:16.around school, for example chicken pox, he cannot come into school. He
:26:16. > :26:22.would pick things up a lot more quickly than other children so that
:26:22. > :26:27.would affect his tiredness and things like that. He is definitely
:26:27. > :26:30.an inspiration to a lot of the children in their in the amount he
:26:30. > :26:36.copes with and he is still doing everything they do. His friends
:26:36. > :26:45.agree. What you think about the fact that he is still coming to
:26:45. > :26:50.school and doing his lessons? just America that he is still here.
:26:50. > :26:56.It is amazing that somebody with so many problems and so many things
:26:56. > :27:00.going on in his life and he is still positive about it. He make me
:27:00. > :27:04.think that we're all lucky. would you think about the fact that
:27:04. > :27:10.you can't quite do everything everybody else does? I find it a
:27:10. > :27:17.bit depressing but I may not be able to do it but I am still lucky
:27:17. > :27:21.because I was told I wouldn't see my first British. I have come to
:27:21. > :27:31.the Yorkshire why live tower and today there is a new junior ranger
:27:31. > :27:34.
:27:34. > :27:36.on patrol. This is quite disgusting fact, they eat their own Pep!
:27:36. > :27:42.has notched up another birthday they thought he would never see.
:27:42. > :27:51.Next year he will be a teenager and he has hopes and ambitions for the
:27:51. > :27:55.future. If I do we get to being an adult, I want to become the world's
:27:55. > :28:01.youngest opera which is 15 or 16 years old. Hopefully I can live
:28:01. > :28:06.long enough to do that. He has just been through so much pain and
:28:06. > :28:10.frustration that he manages to keep smiling and he is an amazing little
:28:10. > :28:16.boy and he fights everything and he has the will to live and he is
:28:16. > :28:26.determined he is going to enjoy it. I want him to have the best, he
:28:26. > :28:26.