03/10/1997

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:00:00. > :00:18.I'm Nigel Owens. I am an international rugby referee. You may

:00:19. > :00:25.know me for my no-nonsense approach on the pitch. I don't know if we've

:00:26. > :00:30.met before, but I am the referee on this field, not you. But you might

:00:31. > :00:35.not know that I have had the eating disorder pulling you for more than

:00:36. > :00:41.20 years. To on Panorama, we reveal the growing number of men and boys

:00:42. > :00:46.battling eating disorders. Is skin goes over the top of my trousers,

:00:47. > :00:52.that's bad. I feel like that should not be there. It's not just girls

:00:53. > :01:00.who suffer from bad body image. In the media, that is what drove me to

:01:01. > :01:03.it. And it claims lives. This 20-year-old died after battling

:01:04. > :01:09.eating disorders for most of his teenage years.

:01:10. > :01:12.I think, with adequate care, Steven would be alive today,

:01:13. > :01:15.and I think he would have been living quite a healthy life.

:01:16. > :01:18.It is time to break the silence on a growing problem

:01:19. > :01:32.I struggled with an eating disorder for over half my life.

:01:33. > :01:38.Men, in particular, find it very difficult to talk about.

:01:39. > :01:40.But thankfully, more and more are coming forward.

:01:41. > :01:44.I have never really understood why this illness has blighted my life

:01:45. > :01:56.It can hit at any time, and it doesn't discriminate.

:01:57. > :02:11.He has anorexia nervosa, a serious mental illness

:02:12. > :02:14.where someone tries to keep their weight as low as possible

:02:15. > :02:19.by restricting the amount of food they eat.

:02:20. > :02:24.Tommy, what is your anorexia like now?

:02:25. > :02:28.Even my body is saying no, stop, my head is saying,

:02:29. > :02:43.A lot of people say that the voice is not real, but it is.

:02:44. > :02:47.You cannot have even ten minutes without it,

:02:48. > :02:50.because it is constant, and you are battling yourself

:02:51. > :02:55.all day, and it is very self-destructive as well.

:02:56. > :03:04.It wants to strip you of everything, and one of the main dark things I am

:03:05. > :03:07.going to say is the actual goal of it is to take everything

:03:08. > :03:22.If skin goes over the top of my trousers, I feel that is fat

:03:23. > :03:26.At home, he checks himself in the mirror constantly.

:03:27. > :03:30.If your face looks sunk in and bony, looking at mine at the moment,

:03:31. > :03:34.it doesn't look sunk in, bony, but if it is, that is the look that

:03:35. > :03:58.As a teenager, James Wade almost 19 stone.

:03:59. > :04:13.Student slimmer sheds seven stone in a year without any

:04:14. > :04:19.help from the diet industry.

:04:20. > :04:21.But his weight-loss got out of control, he had

:04:22. > :04:23.to suspend his studies and return home.

:04:24. > :04:26.It kind of makes me sick, because it makes me feel that

:04:27. > :04:29.what has happened is I have restricted my eating,

:04:30. > :04:31.but the restriction has become an obsession

:04:32. > :04:48.It can lead to depression, brittle bones, and even heart failure.

:04:49. > :04:51.I could not walk up the stairs, I felt weaker.

:04:52. > :04:55.I felt more frail, and I could feel some of my bones sticking out.

:04:56. > :05:00.At first, he got psychiatric treatment, but now he only

:05:01. > :05:03.He is struggling to manage the condition on his own.

:05:04. > :05:07.What is it like to try to deal with anorexia, with this voice

:05:08. > :05:13.James is going to keep a video diary to show us and the reality of life

:05:14. > :05:24.I think this morning I am in the mood for food restriction,

:05:25. > :05:27.my mind is telling me this, and I feel I have to cut back

:05:28. > :05:31.on my food, and probably that is what I will end up doing.

:05:32. > :05:35.It is estimated around 1.6 million people in the UK have under eating

:05:36. > :05:41.disorder, and 400,000 of those are thought to be men.

:05:42. > :05:53.What no-one knew at that time as I was struggling

:05:54. > :05:56.I was also struggling with depression.

:05:57. > :06:02.I started realising that the type of person that I was finding

:06:03. > :06:05.attractive was not finding me attractive, or would not find me

:06:06. > :06:07.attractive because I was fat, obese in my eyes.

:06:08. > :06:10.I started making myself ill, I wanted to lose weight,

:06:11. > :06:13.so I would go to the toilet and make myself sick -

:06:14. > :06:26.not far off every meal nearly, you know.

:06:27. > :06:29.I had bulimia, where someone tries to control the weight

:06:30. > :06:32.by purging after eating, usually by making themselves sick.

:06:33. > :06:35.For nearly 20 years, it became a way of life for me.

:06:36. > :06:38.My mum was diagnosed with terminal cancer.

:06:39. > :06:41.I cried all day thinking about things, and I went

:06:42. > :06:44.to the toilet to make myself sick, and I couldn't.

:06:45. > :06:47.You know, I stuck my fingers down my throat, and nothing

:06:48. > :07:08.I think seeing what my mother went through made me stop.

:07:09. > :07:11.After years of bulimia, it seems like I had finally got control.

:07:12. > :07:14.We do also have good information on the website...

:07:15. > :07:16.The UK's largest eating disorder charity is Beat.

:07:17. > :07:19.It's advice centre in Warrington receives 20,000 calls a year,

:07:20. > :07:23.I have never asked for help for my eating disorder,

:07:24. > :07:26.but more men and boys are now coming forward

:07:27. > :07:45.It is definitely the case that men and boys are not seeking help

:07:46. > :07:48.as readily, many of them don't want to be seen as suffering

:07:49. > :07:50.from what is perceived as a girl' problem.

:07:51. > :07:53.Their parents are not looking for a eating disorder,

:07:54. > :07:56.if they get to the GP, the GP may not be looking

:07:57. > :07:58.for an eating disorder, so it may be diagnosed

:07:59. > :08:02.That allows the eating disorder to get ever more in control,

:08:03. > :08:05.and that makes it much harder for the treatments to work

:08:06. > :08:07.when they finally get into treatment.

:08:08. > :08:10.I encourage you to try that different therapy and see how it

:08:11. > :08:13.goes and let us know if you need further support.

:08:14. > :08:16.Some of the things coming in there, written down, I was thinking,

:08:17. > :08:20.that is exactly how I was, you know, that is what I needed 25 years ago,

:08:21. > :08:25.We wanted to find out the scale of the problem across the UK,

:08:26. > :08:28.so we asked every mental health trust and board how many men

:08:29. > :08:38.were referred to eating disorders services for a first assessment.

:08:39. > :08:40.From those that responded, we discovered that, in 2016,

:08:41. > :08:43.there were 871 referrals, an increase from 2014 of 43%.

:08:44. > :08:46.Our research also revealed that, from those that responded,

:08:47. > :08:48.more than 2500 youngsters, both boys and girls,

:08:49. > :08:55.received help - a rise of 42% over the last two years.

:08:56. > :08:58.This 14-year-old lives with his parents and younger sister

:08:59. > :09:19.He has just come out of hospital, where he was being treated

:09:20. > :09:24.Eating disorders can develop at any age.

:09:25. > :09:31.The risk is highest for young people between 13 and 17.

:09:32. > :09:33.I always had this idea of the body that I wanted,

:09:34. > :09:36.probably because of stuff I saw on social media.

:09:37. > :09:40.When you say the body you wanted, you were looking at sports people?

:09:41. > :09:49.I started exercising, even more than I previously had,

:09:50. > :09:52.so I was doing stuff in the house as well as...

:09:53. > :09:59.I noticed the back of the neck was getting very scrawny.

:10:00. > :10:04.I think he was, and then his behaviour just got more

:10:05. > :10:07.He started doing star jumps, he wouldn't sit down,

:10:08. > :10:12.I probably didn't realise he was just concentrating all day

:10:13. > :10:15.on food, that was all he was thinking about day and night,

:10:16. > :10:30.The night he went into hospital, I can remember a horrible,

:10:31. > :10:33.wet February night, and he was kick jumping into the hospital,

:10:34. > :10:36.he couldn't walk normally, he was kick jumping.

:10:37. > :10:40.As he was being monitored, his heart rate dropped so low

:10:41. > :11:02.He was discharged in February after nearly three weeks in hospital.

:11:03. > :11:04.You get the onions, I'll get the peppers out

:11:05. > :11:09.His family thought he was improving, but a few days later they found

:11:10. > :11:11.chocolate and yoghurt in the bathroom bin.

:11:12. > :11:15.What I was doing was hiding them, and then they found some of the food

:11:16. > :11:20.We thought we were keeping a close eye on him, watching him,

:11:21. > :11:23.after he had eaten his food, but obviously they get very

:11:24. > :11:25.deceptive, and he managed to hide some food.

:11:26. > :11:31.But I felt like people were intruding into my life,

:11:32. > :11:35.I didn't understand why they were sort of...

:11:36. > :11:57.He had to go back to hospital before being admitted to a children

:11:58. > :11:59.and young people's mental health ward, where he stayed

:12:00. > :12:05.He is now receiving weekly therapy through a support worker.

:12:06. > :12:08.But his family say he has yet to see a dietician.

:12:09. > :12:11.According to Nice guidelines, children with anorexia should be

:12:12. > :12:15.offered supplementary dietary advice.

:12:16. > :12:20.14 years of age, to be able to speak about what he has been through,

:12:21. > :12:25.I don't think I could have done that at 14 years of age.

:12:26. > :12:30.So how long do people have to wait for treatment?

:12:31. > :12:33.We asked every mental health trust and board in the UK.

:12:34. > :12:36.We discovered that average waits for treatment for both males

:12:37. > :12:39.and females vary from one week to 28 weeks, with some patients waiting

:12:40. > :12:47.All of that time, the clock is ticking, the illness

:12:48. > :12:50.is getting its claws into the sufferer.

:12:51. > :12:53.The treatments are mostly talking therapies, and in those early days,

:12:54. > :12:55.they are much more likely to work, to be successful,

:12:56. > :13:09.than they are if you leave it a very long time.

:13:10. > :13:12.Back in south Wales, James says he has been asking

:13:13. > :13:14.for talking therapy for more than two years.

:13:15. > :13:19.In the meantime, his anorexia has taken control again.

:13:20. > :13:26.I have just been on my run, I did a lot more than what I was supposed

:13:27. > :13:30.to do, I was thinking of my next meal, what I am planning,

:13:31. > :13:33.and my mind was telling me to restrict, to hold back.

:13:34. > :13:36.But I know what I should be having, a substantial meal.

:13:37. > :13:39.The health board in charge of both James's and the 14-year-old's pair,

:13:40. > :13:42.Cwm Taf, says that while it cannot comment on individuals,

:13:43. > :13:45.its priority is to provide the best possible care for children

:13:46. > :14:11.Many of the young lads I have spoken to with anorexia seem to have been

:14:12. > :14:15.obsessed with exercise, but for me it is my job.

:14:16. > :14:18.Being a rugby ref means I have to keep up on the pitch

:14:19. > :14:22.So I am under huge pressure to maintain my fitness.

:14:23. > :14:25.My eating disorder has been a big part of that.

:14:26. > :14:28.Today I am in Dublin to referee the Pro12 final.

:14:29. > :14:31.I've always spoken about bulimia like it is in my past.

:14:32. > :14:36.It returned as I approached the pinnacle of my career,

:14:37. > :14:44.It started sneaking back probably a little bit before the World Cup.

:14:45. > :14:46.I was under huge pressure to reach certain fitness levels,

:14:47. > :14:48.and the fitness levels are very high.

:14:49. > :14:52.So, I sort of made myself sick a couple of times as well,

:14:53. > :14:54.leading up to the fitness testing and stuff like that.

:14:55. > :14:58.After the World Cup final, the next year, you are just in cloud

:14:59. > :15:03.So I started seeing myself putting some weight on,

:15:04. > :15:06.I was looking in the mirror and I thought, you know,

:15:07. > :15:24.It would be twice a week one week, and then nothing

:15:25. > :15:27.I know it's not the right way to lose weight.

:15:28. > :15:30.I know it makes you more harm than good.

:15:31. > :15:33.But why I still do it from time to time?

:15:34. > :15:38.It's a question I've avoided for most of my life.

:15:39. > :15:41.But I know now I need to face up to it.

:15:42. > :15:43.Could it be the pressure of being a professional sportsman?

:15:44. > :15:47.Research shows that male elite athletes are 16 times more likely

:15:48. > :15:50.to develop an eating disorder in comparison to nonathletes.

:15:51. > :15:52.Boxer Bradley Pryce is a case in point.

:15:53. > :15:57.Like me, he has made himself sick to lose weight.

:15:58. > :16:10.You're hitting that hard, aren't you?

:16:11. > :16:13.Bradley, from Cwmcarn in south Wales, won the Commonwealth light

:16:14. > :16:23.A decade later, he can still pack quite a punch.

:16:24. > :16:32.Eight years ago, he was training to defend his title.

:16:33. > :16:34.I had to get down to the 11 stone mark.

:16:35. > :16:38.I got lazy, I didn't train the way I was supposed to.

:16:39. > :16:40.My weight was kind of not coming down.

:16:41. > :16:45.So I decided to start making myself sick, just to make the weight.

:16:46. > :16:47.Everything I was eating, I was bringing it up.

:16:48. > :16:50.Everybody assumed I was training hard in the gym.

:16:51. > :16:57.When I made the weight, on the weigh-in, I got on the scales

:16:58. > :16:59.and my legs were buckling underneath me.

:17:00. > :17:04.I knew the fight was lost then, pretty much.

:17:05. > :17:10.Bradley was knocked out in round three and lost his

:17:11. > :17:17.Commonwealth title, which he blames on his eating disorder.

:17:18. > :17:19.It kind of ruined my career, losing a fight.

:17:20. > :17:25.If I had won, I would have kept doing it.

:17:26. > :17:29.Bradley is still competing and has to lose three pounds before a fight

:17:30. > :17:43.Not as extreme as I had done it for that fight.

:17:44. > :17:47.But leading up to a fight, when you can't have any fluid

:17:48. > :17:50.or anything, I have had a bottle of pop and drank it,

:17:51. > :18:12.People now still find it hard to believe that I had

:18:13. > :18:15.to put my finger in my throat and make myself sick.

:18:16. > :18:21.That temptation is always there for me, as well.

:18:22. > :18:25.I have had a bulimia for most of my adult life,

:18:26. > :18:28.and in the back of my mind, I am constantly aware

:18:29. > :18:34.But I never thought about the damage it might be doing to my body.

:18:35. > :18:35.Cambridge University student James Downs survived anorexia

:18:36. > :18:37.as a teenager, but then developed severe bulimia,

:18:38. > :18:48.I caught up with 27-year-old James at his parents' home in Cardiff.

:18:49. > :18:52.I would bring all the food up here in the night.

:18:53. > :18:55.I would feel very stressed a lot of the time.

:18:56. > :18:58.It was only when I was eating that I didn't feel that.

:18:59. > :19:04.So I used to eat all of the food, and be sick here, in large buckets,

:19:05. > :19:11.Yes, and then the next day, when somebody was out,

:19:12. > :19:18.James looks healthy to me, and that is the problem

:19:19. > :19:24.Like, I have to take medication for my stomach,

:19:25. > :19:26.because I still get a lot of acid.

:19:27. > :19:37.My front teeth aren't my own, they have to be replaced.

:19:38. > :19:43.I was sick so much that the nerves were hanging out of my teeth.

:19:44. > :19:46.That is because of the acid in your stomach, it eats away

:19:47. > :19:53.James is back at university, and is focusing on his recovery.

:19:54. > :19:56.He has had help in the past, but despite the severe physical

:19:57. > :19:58.symptoms, he is struggling to get more treatment

:19:59. > :20:07.I went to the GP and asked if there was any support available.

:20:08. > :20:10.And they referred me to the Adult Eating Disorder

:20:11. > :20:15.Unfortunately, they didn't even offer me an assessment.

:20:16. > :20:16.The referral was not accepted because James

:20:17. > :20:27.Because, as well as the bulimia, I find it hard to manage how much

:20:28. > :20:32.And those kind of anxieties play a big role in my life.

:20:33. > :20:42.You know, I thought I'd had it pretty bad with bulimia,

:20:43. > :20:44.but nothing compared to what he's been through.

:20:45. > :20:50.I didn't realise people could have it that bad, you know?

:20:51. > :20:52.Cambridgeshire and Peterborough NHS Foundation Trust Eating Disorder

:20:53. > :20:56.Service told us that they cannot comment on individuals,

:20:57. > :20:58.but they are experiencing severe staff shortages,

:20:59. > :21:01.and are only able to accept those with

:21:02. > :21:07.Time and again, when meeting these young men who have battled

:21:08. > :21:09.with eating disorders, I have heard stories

:21:10. > :21:18.Our research has revealed that health trusts and boards

:21:19. > :21:21.across the UK have turned down more than 470 referrals for eating

:21:22. > :21:37.disorders for men and women, for a variety of reasons.

:21:38. > :21:40.Steven Brazier, from Minster, in Kent, was a funloving teenager

:21:41. > :21:42.before his eating disorder took hold.

:21:43. > :21:44.I started to sort of notice that he wasn't eating.

:21:45. > :21:51.And then, when he did eat with us, afterwards, he would disappear

:21:52. > :21:55.into the bathroom for ages afterwards.

:21:56. > :22:03.He just wouldn't eat for days, and then he would binge,

:22:04. > :22:06.where he'd eat all the deserts, or he'd eat a whole

:22:07. > :22:13.Saying, I've got to be sick, I've got to be sick.

:22:14. > :22:17.In the end, he would be pleading with you to let him go and be sick.

:22:18. > :22:21.It was upsetting, because he vanished in front

:22:22. > :22:28.And he just got thinner and thinner, and the spark just went out of him.

:22:29. > :22:31.His GP referred him to the local eating disorders team,

:22:32. > :22:34.His potassium levels became very low, which meant repeated

:22:35. > :22:44.When he was discharged, they said the referral would be

:22:45. > :22:59.and it was just constantly a battle all the time.

:23:00. > :23:03.Steven died ied at home shortly afterwards, in February

:23:04. > :23:13.A postmortem recorded his cause of death as anorexia with bulimia.

:23:14. > :23:18.I think so many opportunities were missed.

:23:19. > :23:20.With adequate care, Steven would be alive today,

:23:21. > :23:26.and I think he would be living quite a healthy life.

:23:27. > :23:29.Melanie took legal action against Kent and Medway NHS

:23:30. > :23:32.and Social Care Partnership and settled out of court

:23:33. > :23:44.They admit that their care was not adequate, and say they have improved

:23:45. > :23:50.it as a result of learning from the failings in Steven's case.

:23:51. > :23:53.We wanted to talk to Secretary of State for Health

:23:54. > :23:55.Jeremy Hunt about waiting times for eating disorder treatments.

:23:56. > :24:02.The Department of Health told us a pathway for adults

:24:03. > :24:05.is being developed, and it is investing ?150 million

:24:06. > :24:06.in children and young people's services,

:24:07. > :24:10.and will expect them to be seen within four weeks, or one

:24:11. > :24:21.For adults and children in Wales, that waiting time standard is four

:24:22. > :24:24.weeks, in Northern Ireland nine weeks, and in Scotland 18 weeks.

:24:25. > :24:27.This is the Maudsley Hospital in London.

:24:28. > :24:30.Its eating disorders unit for children and young people

:24:31. > :24:33.is renowned for its research and treatment.

:24:34. > :24:47.Eating disorders are probably the only condition in mental health

:24:48. > :24:50.where, actually, if you get a diagnosis early, it can lead

:24:51. > :24:51.to a better prognosis, provided you get

:24:52. > :24:54.Delaying treatment can make treatment more difficult.

:24:55. > :24:58.There is also good evidence to show that, the longer an eating disorder

:24:59. > :25:00.goes on, the harder it can be to treat.

:25:01. > :25:03.Eating disorders are renowned for actually having the highest

:25:04. > :25:04.mortality out of any psychiatric condition.

:25:05. > :25:08.So more people will die of eating disorders than any other

:25:09. > :25:12.Over the years, I have spoken openly about my sexuality and depression.

:25:13. > :25:15.But this is the first time I have ever confronted my eating disorder.

:25:16. > :25:19.I've just come back from Argentina two weeks ago, where I was making

:25:20. > :25:22.myself sick three or four times in Argentina, because I was eating

:25:23. > :25:27.And I knew, if I eat all of this food, I will make

:25:28. > :25:35.So I have never sought help about it, because,

:25:36. > :25:38.until speaking to you now, I guess that I have always felt

:25:39. > :25:46.I would say that it is clear that you still have some symptoms,

:25:47. > :25:52.If you haven't really received treatment for an eating disorder,

:25:53. > :25:54.it is that much more likely to re-emerge.

:25:55. > :25:58.So I think it would be really good if, at some point,

:25:59. > :26:03.you could think about maybe getting some help.

:26:04. > :26:11.That was a bit of a reality check, really.

:26:12. > :26:16.You know, speaking to Dr Darren there today,

:26:17. > :26:18.it was sort of an acknowledgement that

:26:19. > :26:21.I need to do something about it, really.

:26:22. > :26:25.I need to sit down and speak to somebody to try and get it out

:26:26. > :26:29.From what I've heard from the people I've met,

:26:30. > :26:32.it's hard to say you've ever fully beaten an eating disorder.

:26:33. > :26:35.But, if you are given the tools to stay one step ahead,

:26:36. > :26:42.This young man is certainly not out of the woods yet,

:26:43. > :26:46.but he is making a phased return to school, where his friends will be

:26:47. > :27:06.Maybe be slightly intrusive, sort of just check that at lunch

:27:07. > :27:07.I'm eating a bit.

:27:08. > :27:13.I guess that is what you guys can do for me.

:27:14. > :27:16.Yes, if we see you getting skinny again in your face.

:27:17. > :27:18.Let you know before it gets to that stage.

:27:19. > :27:24.James also hopes that, with the help of the people

:27:25. > :27:27.around him, he can get back on track with his recovery.

:27:28. > :27:34.But he knows it's not going to be easy.

:27:35. > :27:36.Yeah, it's going to take time, and some battling

:27:37. > :27:41.But then the anorexia is not going to be there forever.

:27:42. > :27:44.There is light at the end of the tunnel, I suppose.

:27:45. > :27:49.I know I can get somewhere where I know I can be happy.

:27:50. > :27:58.Well, it has been an incredible journey.

:27:59. > :28:01.A strange, but an incredible experience, as well.

:28:02. > :28:04.And realising how many different types of people,

:28:05. > :28:08.from all walks of life, men and boys, that an eating

:28:09. > :28:14.To actually accept that you have an eating disorder,

:28:15. > :28:17.or a mental health issue, is actually a sign of

:28:18. > :28:25.But, as I've discovered, is not always easy to get the help

:28:26. > :28:30.So, the sooner you start talking to people, the better.

:28:31. > :28:40.Don't be in my situation, 27 years on, still suffering from it.