17/02/2013

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:00:32. > :00:36.We look at plans to change the law Welcome to the The Wales Report.

:00:36. > :00:45.Good evening and welcome to the programme that looks at the issues

:00:45. > :00:55.that matter. There are currently more than 200 people waiting for an

:00:55. > :00:59.

:00:59. > :01:06.organ transplant. Only 30% of us are registered as organ donors. The

:01:06. > :01:13.Welsh Government says it has the answer by creating the first opt-

:01:13. > :01:17.out system in the UK. If it is approved it means everyone will be

:01:17. > :01:27.seen as a willing donor when they die unless they have stated

:01:27. > :01:43.

:01:43. > :01:48.Medicine has at man dramatically. Auden donations made headlines

:01:48. > :01:53.India's previous. Since those days, surgery has been increasingly

:01:53. > :01:58.sophisticated and successful, yet today in Wales patients are dying

:01:58. > :02:03.at the rate of one a week at because there are not enough organs

:02:03. > :02:09.for operations. It was six years before Melanie was able to have her

:02:09. > :02:12.kidney transplant. She considers herself lucky and is convinced

:02:12. > :02:22.changing the law will increase donor numbers and stop others

:02:22. > :02:25.

:02:25. > :02:32.having to go through the agony of The opt-out system will raise

:02:32. > :02:34.numbers on the organ Donor Register. The a at the moment, we have to opt

:02:34. > :02:38.into the system to become organ donors.

:02:38. > :02:41.We have to make our wishes clear by signing up to the organ Donor

:02:41. > :02:46.Register, carrying a card or telling family and friends about

:02:46. > :02:50.our wishes. Under the new law, they will be a presumption we all want

:02:50. > :02:55.to be organ donors unless we opt out of the system.

:02:55. > :03:00.The if the plans are approved this year, the law will come into effect

:03:00. > :03:04.in 2015. The moral debate is already under way, and aside from

:03:04. > :03:09.the ethical discussion, some in the medical profession have deep

:03:09. > :03:12.concerns about how it will work in practice. They say the plans have

:03:12. > :03:16.not been thought through and insufficient funding need lead to

:03:16. > :03:20.chaos. One academic says the whole policy is based on misleading

:03:20. > :03:25.information. In explaining the new plans, the

:03:25. > :03:29.Welsh Government has stated that Spain's use of the soft opt-out

:03:29. > :03:35.system has driven up organ donor levels, but some claim that

:03:35. > :03:40.presumed consent is not the reason for Spain's success.

:03:40. > :03:50.To pass a bill with such a misleading statement is an

:03:50. > :04:05.

:04:05. > :04:11.incredible thing to do. Do To do what the Spanish are doing

:04:11. > :04:18.with public relations and so on. There are extra organs available

:04:18. > :04:25.for transplant. But there will be more strain on facilities. Some are

:04:25. > :04:29.worried we will not have enough intensive care beds to cope. There

:04:29. > :04:36.has not been any increased capacity to take into account the

:04:36. > :04:46.legislation. We feel if we could increase capacity we could

:04:46. > :04:46.

:04:47. > :04:53.potentially increase the use of. would have profound implications

:04:53. > :05:01.for our nurses. At the moment there are only 15 specialist donor nurses

:05:01. > :05:06.in Wales. They are trained to have that delicate conversation.

:05:06. > :05:15.requires a specialist skill said. Of course we will meet nursing and

:05:15. > :05:20.medical staff. We do have bona specialists but only a small number.

:05:20. > :05:25.Implementing the changes will cause -- cost an estimated �5 million

:05:25. > :05:31.over the next five years. There will need to be extra intensive

:05:31. > :05:36.care facilities as well as extra training for staff and setting up a

:05:36. > :05:41.register. As well as that there will be a comprehensive public

:05:41. > :05:47.awareness campaign. The Welsh Government told us they are

:05:47. > :05:51.confident with the planned changes. They are already looking at

:05:51. > :06:01.training resources. They are not seeking to copy any particular

:06:01. > :06:06.

:06:06. > :06:11.country but will put in place a system that is right for Wales.

:06:11. > :06:21.changes your life completely. It has given my husband back his wife,

:06:21. > :06:31.my parents back their daughter. I am now a wife, sister, and tea,

:06:31. > :06:32.

:06:32. > :06:36.daughter, not a patient. -- and. Joining me now is the cheer of the

:06:36. > :06:46.assembly's health committee. He is this really going to make a

:06:46. > :06:51.difference? Every single witness who comes in front of us says we

:06:51. > :06:57.want to make sure the system increases the number of donors, the

:06:57. > :07:04.number of organs available for donation. What you will also here

:07:04. > :07:10.is a lot of concern from clinicians at the sharp end who say we do not

:07:10. > :07:17.have the capacity for this. That would be true whatever course you

:07:17. > :07:25.took to increased ownership. It is equally possible to argue that the

:07:25. > :07:30.issue is not intrinsic to the bill. If you raised the number of donors

:07:31. > :07:36.in any other way you would still have the same issue. You cannot do

:07:36. > :07:43.this unless you increase resources. Everybody knows that up and down

:07:43. > :07:52.the land it is difficult to find a bed under the existing system.

:07:52. > :08:01.ambition for the Bill is that it would lead to 15 new donors have

:08:01. > :08:09.been Wales in every calendar year. That has won every six months. Is

:08:09. > :08:14.it likely to tip the system into a manageability? We are very generous

:08:14. > :08:20.people on the hall. Voluntary donations and Wales at the second

:08:20. > :08:26.highest in Europe, that begs the question why do we need to do this?

:08:26. > :08:36.That is a debate that has been raised with us, would there be an

:08:36. > :08:38.

:08:38. > :08:44.easier way to lead to more organ donors? You will also know that

:08:44. > :08:49.because of a lot of these specialist procedures they will

:08:50. > :08:54.have to happen over the border. Heart transplants take place in

:08:54. > :09:00.Birmingham and so on. The whole thing needs to be joined up. There

:09:00. > :09:05.is not a simple geographic border with something as specialist as

:09:05. > :09:11.organ donation. Some of the practical issues about when they

:09:11. > :09:20.are debated and Wendy are used are important. There are financial

:09:20. > :09:25.implications in that. -- when they are used. The questions that are

:09:25. > :09:30.being booked and challenged in that report, insufficient funding, has

:09:30. > :09:36.not been clearly thought through, we are ploughing our own furrow

:09:36. > :09:42.when we should not be, we have to be joined up. We do have to be

:09:42. > :09:48.joined up. I do not think we have heard evidence that suggests the

:09:48. > :09:53.financial implications have not been thought through. It has been

:09:53. > :09:59.confirmed what the Government said to us that if we invest more in

:09:59. > :10:06.organ donation we will save money we are currently spending on a very

:10:06. > :10:11.unsatisfactory quality of life for people, kidney dialysis for example.

:10:11. > :10:14.That money will be released back into the donor service. There are

:10:15. > :10:19.people out with placards campaigning every week to keep

:10:19. > :10:25.their health services opened yet you want to introduce a whole new

:10:25. > :10:30.service on top of that. The flaw in the question is that it assumes the

:10:30. > :10:35.money that is being spent on donation is not being spent already.

:10:35. > :10:43.People who will be fitter from the extra donations are people who are

:10:43. > :10:47.being treated now in the NHS. you very much indeed. Most of us at

:10:47. > :10:55.the moment are looking very suspiciously at what is on our

:10:55. > :11:01.plate. The horsemeat scandal has been dogging us for weeks and there

:11:01. > :11:05.are still products disappearing from our shelves over this weekend.

:11:05. > :11:10.Now worries about the meat that is supplied to schools across the

:11:10. > :11:15.country. What can be done to restore faith in the food we eat

:11:15. > :11:25.and what can be done with one of her most important industries,

:11:25. > :11:29.

:11:29. > :11:33.farming. I am joined by an The AM who is also a farmer. It was

:11:33. > :11:40.suggested that ministers were warned about this scandal with

:11:40. > :11:46.course make being in the food chain 18 months ago. Consumer confidence

:11:46. > :11:52.is so important. There are stories coming out from all sorts of angles.

:11:52. > :11:58.It is important that ministers focus on the job in hand, making

:11:58. > :12:02.sure confidence is restored in the processing sector. What is

:12:02. > :12:07.important is that ministers do the job properly. If it is true they

:12:07. > :12:12.were warned 18 months ago that there was horsemeat in the food

:12:12. > :12:18.chain why on Earth did they not take action then? The key point is,

:12:18. > :12:23.if it were true. What I am interested in and concerned about

:12:23. > :12:27.is that we focus all our energies on cleaning up the act of the

:12:27. > :12:33.processors. This is not about journalism or the media but about

:12:33. > :12:39.public confidence in the food chain. That has been very badly shaken.

:12:39. > :12:46.The Government has a role to play, has it not? We need to restore

:12:46. > :12:51.confidence. From the primary sector of the farming side, we are

:12:51. > :12:56.regulated, we have the checks in place. People can have complete

:12:56. > :13:01.confidence. What we have found is because of the difference in the

:13:01. > :13:06.price of meat and horsemeat people have been fraudulently adding

:13:06. > :13:16.horsemeat to beef. People have to be brought to book on this and I

:13:16. > :13:26.

:13:26. > :13:31.hope they are charged with the full Fraudulent activity has happened,

:13:31. > :13:35.we have to make sure that is pushed out of the sector. We have good

:13:35. > :13:40.bring back the confidence the consumer has in the food industry.

:13:40. > :13:43.What is the Welsh Government doing? The Welsh Government needs to work

:13:43. > :13:46.collaboratively with Whitehall, because there are two spheres of

:13:46. > :13:50.influence, animal welfare legislation and consumer of

:13:50. > :13:55.legislation. But the consumer does not want to hear bickering, they

:13:55. > :14:00.want to hear it has been cleaned up and they can produce a product with

:14:00. > :14:05.complete confidence. Can you honestly say at the moment that

:14:05. > :14:10.they can do that? Yes, if they are just a product that has been

:14:10. > :14:17.produced at home, has the former steward label on it, they can put

:14:17. > :14:21.us that with confidence. -- has the a steward label on it.

:14:21. > :14:25.Thank you very much indeed. G and on next week's programme, we

:14:25. > :14:32.will have a special investigation into our food, tracking it from the

:14:32. > :14:38.farm to your plate. Poverty in Wales and the gap

:14:38. > :14:42.between the haves and there have nots in society is widening. Is it

:14:42. > :14:49.really a fact of life that can never be changed gimlet after

:14:49. > :14:55.benefiting from countless European and Government schemes, some parts

:14:55. > :14:59.of Wales still seemed to be pop -- stat in a poverty trap. Our

:14:59. > :15:03.correspondent is investigating the many local schemes to combat

:15:03. > :15:08.deprivation. Several years since his last visit and millions of

:15:08. > :15:11.pounds of investment later, David has returned to one area to find

:15:11. > :15:21.that while initiatives have changed the level of poverty seemingly has

:15:21. > :15:23.

:15:23. > :15:29.An invisible pall of poverty hangs over places like this estate. Set

:15:29. > :15:33.in beautiful countryside just outside Merthyr Tydfil, it remains

:15:33. > :15:37.socially isolated and invariably singled out as the epicentre of

:15:37. > :15:42.multiple deprivation in Wales and all that goes with it.

:15:42. > :15:47.Statistically, this is a pretty ugly place, relegated to the wrong

:15:47. > :15:57.end of every table used to measure everything from unemployment to

:15:57. > :15:57.

:15:57. > :16:01.education, to health, to crime, and It fills me with sadness to have

:16:01. > :16:09.become back to this place and say the same things over, and over

:16:09. > :16:12.again. But, despite the efforts of remarkable individuals, despite the

:16:12. > :16:20.investment of millions of Pounds in worthwhile projects, and despite

:16:20. > :16:26.the promise of politicians of all colours, the same stench of poverty

:16:26. > :16:29.purveyed this place. -- pervades this place.

:16:29. > :16:39.It is a malignancy that threatens to side and we consume its host.

:16:39. > :16:43.Some have even suggested we should give up on this estate.

:16:43. > :16:47.-- threatened to silently consumed. More Martin O'Neill, who was

:16:47. > :16:51.brought up you, does not think so. He is the chair of a community

:16:51. > :16:55.project, a beacon of hope in an island of despair.

:16:55. > :16:59.The problems people face here are sometimes too subtle to quantify,

:16:59. > :17:05.but those who live here at know what is missing, including

:17:05. > :17:11.essentials like a health centre. They had won, but then they took it

:17:11. > :17:14.away. -- they had a health centre. He the building was quite old and

:17:14. > :17:19.money needed to be spent on upgrading the infrastructure to

:17:19. > :17:23.make it fit for purpose. There is no health centre now?

:17:23. > :17:29.Not on the estate, no. In one of the sickest communities

:17:29. > :17:36.in the UK? Are on top of that there has been a

:17:36. > :17:43.planned new health centre of built in the centre of Merthyr Tydfil,

:17:43. > :17:48.but the problem is getting there. The Community Group has helped to

:17:48. > :17:53.transform this place and transformed the heart of the

:17:53. > :17:58.community. It was once known as a route. Now the graffiti spells out

:17:58. > :18:02.something different, a belief in some kind of future. For many, it

:18:02. > :18:08.is a future dependent on benefits. If you have to move into employment,

:18:08. > :18:16.if you have to move to to education, sometimes you need some support. If

:18:16. > :18:20.you were sick, you need support. Benefits have been a way of life

:18:20. > :18:26.here for as long as I can remember. Benefits - what does that would

:18:26. > :18:30.mean? Who has benefited from living in a place like this? -- what does

:18:30. > :18:35.that would mean. Every time I have come here over the last 30 years,

:18:35. > :18:38.it is to report people suffering, people struggling and people trying

:18:38. > :18:45.definitely -- desperately to overcome problems that threaten to

:18:45. > :18:49.overwhelm them. The lucky ones escape, most don't. Instead they

:18:49. > :18:56.struggle with the consequences. Statistics are an impersonal

:18:56. > :18:59.measure of what is happening here, that they are stuck. One in

:18:59. > :19:03.particular hit me forcibly - in the last ten years, the number of

:19:03. > :19:09.people who have never worked on this estate has almost doubled to

:19:09. > :19:15.over 500 people. The you are familiar with these,

:19:15. > :19:19.employment rates in Merthyr Tydfil below 60%. This is the second

:19:19. > :19:23.lowest are amongst 12 -- 22 Welsh local authorities. Then on it goes

:19:23. > :19:29.- health, crime, the same old stories. Nothing much has moved,

:19:29. > :19:33.has it? No, it is not moving, but those numbers have to be

:19:33. > :19:38.appreciated in the face of a global economic recession. Without that

:19:38. > :19:42.investment, where would the fakers be? Back in the 1920s, they talked

:19:42. > :19:45.about abandoning the police. Is that really an option, or should we

:19:45. > :19:49.think about how to address the issues we are facing and not

:19:49. > :19:54.abandoned the community? There have been schemes which have tried to

:19:54. > :19:59.introduce some practical solutions come and give some hope to this

:19:59. > :20:09.place. Schemes like a cooking project,

:20:09. > :20:14.

:20:14. > :20:18.I remember this. This was a busy place.

:20:18. > :20:23.Diane succeeded in injecting more than just cooking skills into this

:20:23. > :20:29.project. The ones we had done a week or two

:20:29. > :20:33.of Coke -- of cooking, we thought, why don't we do IT next? Why don't

:20:33. > :20:37.we do English? Somebody wants to do child development. The cooking

:20:37. > :20:43.classes opened up a new way of life for many single young mothers, who

:20:43. > :20:49.freely admitted that they had never learned to cook and usually fed

:20:49. > :20:56.their children with takeaways and chips. Lots of chips.

:20:56. > :21:02.Chips, chips, chips. It is much easier doing a healthy salad than

:21:02. > :21:07.ordering out takeaways continuously. The cooking project, which I filmed

:21:07. > :21:13.six years ago, has long gone. Its effectiveness in transforming the

:21:13. > :21:17.lives of a handful of individuals, however, has not been forgotten.

:21:17. > :21:21.But the transient nature of such schemes, vital in areas of

:21:21. > :21:25.deprivation, is both regrettable and hurtful.

:21:25. > :21:29.It is no good stopping projects and letting people down, because we are

:21:29. > :21:34.probably doing more damage than good. If somebody is engaging with

:21:34. > :21:44.you and trusting in you, to then send them away and saying we cannot

:21:44. > :21:44.

:21:44. > :21:49.do anything more with you, I think There is still investment going on

:21:49. > :21:54.in this place, including extensive refurbishment work on the

:21:54. > :21:58.infrastructure of the social housing. Long overdue. There is the

:21:58. > :22:02.prospect of another �1.5 million worth of investment in community

:22:02. > :22:07.schemes over the next two years. But it was hoped there would be

:22:07. > :22:13.more than double that amount available. And, to compound the

:22:13. > :22:15.financial problems, many areas here have found they no longer Pok --

:22:15. > :22:19.qualified for communities first funding, provided by the Welsh

:22:19. > :22:22.Government. Just when there appeared to be a

:22:22. > :22:28.glimmer of hope and the estate was looking a lot better, at least

:22:28. > :22:33.cosmetically, it was dealt another blow. Well, in fact, a double

:22:33. > :22:37.whammy in the shape of the global financial crisis and the

:22:37. > :22:41.Westminster Government's welfare reforms. A combination which

:22:41. > :22:45.threatens to combine, to destabilise the social structure of

:22:45. > :22:50.this place and undo so much of the good that has been done to try and

:22:50. > :22:54.improve the lives of the people here.

:22:54. > :22:58.David Williams there. Training now is the Children's Commissioner for

:22:58. > :23:02.Wales, who is particularly concerned about how we are tackling

:23:02. > :23:08.child poverty. It is a depressing story that,

:23:08. > :23:12.isn't it? Do we just have to accept that children born into that kind

:23:12. > :23:18.of poverty are going to have to look forward to a life of poverty

:23:18. > :23:22.GMac I do not think we should accept it at all, some of the

:23:22. > :23:26.things that came through it in the film is that people are working

:23:26. > :23:29.really hard to mitigate the effects of poverty on children living in

:23:29. > :23:33.disadvantaged families. The Welsh Government has signed up

:23:33. > :23:37.to the UN Convention on the rights of the child. The only Government

:23:37. > :23:43.across the UK, or the world, do have legislated in favour of the

:23:43. > :23:47.Convention. That places a responsibility on Welsh Government

:23:47. > :23:51.to think about the ways we can ensure all young people, regardless

:23:51. > :23:55.of their circumstances, can get access to education and decent food.

:23:55. > :24:00.A but we keep setting targets. The Welsh Government has set the target

:24:00. > :24:06.of eradicating child poverty by 2020, is and that on realistic?

:24:06. > :24:11.It is completely unrealistic now to think we will never hold on to the

:24:11. > :24:15.target for 2020. Children's lives are at risk because of this, I

:24:15. > :24:20.spend a lot of time talking to children talking to them about what

:24:20. > :24:25.is important to them, and things like a decent education and good

:24:25. > :24:30.food to eat or important to them. Are we also guilty of giving people

:24:30. > :24:38.hope, an idea, an ambition? Absolutely, I think education is

:24:38. > :24:43.all about making sure every child can fulfil their individual

:24:43. > :24:46.potential. One of the most depressing lines about that film

:24:46. > :24:50.was that back in the 1920s people were talking about giving up on

:24:50. > :24:56.Merthyr Tydfil, and some people are talking about that today.

:24:56. > :25:01.Some people are, but I would say, come with me there, some of the

:25:01. > :25:06.best time of my life has been on the estate.

:25:06. > :25:10.Of course, the effects of poverty are not only measured by levels of

:25:10. > :25:14.employment and the food we feed our children. Hard times call for belt-

:25:15. > :25:18.tightening across all aspects of life, including leisure time. With

:25:18. > :25:24.less money available for cinema trips and local libraries are under

:25:24. > :25:28.threat, Welsh Opera John Gower has been on a trip to the riverfront

:25:28. > :25:35.theatre of and arts centre in Newport to voice his concerns that

:25:35. > :25:45.will children are falling into cultural poverty. -- Welsh author

:25:45. > :25:48.

:25:48. > :25:54.You can get a pretty good sense of how old a person is by asking them

:25:54. > :25:58.which was the first James Bond movie they ever saw. In my case, it

:25:58. > :26:02.was Dr no, which I saw in the classic fleapit cinema of the

:26:02. > :26:07.Palace Theatre in Llanelli. Since then, there have been periods in my

:26:07. > :26:15.life when you could describe be as a semi-professional movie Gore,

:26:15. > :26:20.racking up to four or five films a day. Some children in Wales have

:26:20. > :26:24.never been to the cinema because of poverty. No blockbusters, no All

:26:24. > :26:30.Disney, no popcorn, sometimes because there is no cinema nearby,

:26:30. > :26:35.or simply because ticket prices are prohibitive. Because in Wales up to

:26:35. > :26:39.a quarter of children live within child poverty.

:26:39. > :26:42.When we are talking about child poverty, we're not just talking

:26:42. > :26:47.about education and nutrition, although cultural experience can be

:26:47. > :26:57.a sort of nutrition. I would go as far as to see it is food for the

:26:57. > :27:02.soul, but it is also educational, Imagination and creativity have

:27:02. > :27:09.enormous value in the real world. The Confederation of British

:27:09. > :27:12.Industry reckons that in 2013 there will be no fewer than 1.3 million

:27:12. > :27:16.jobs in the creative industries. But you are not going to get on in

:27:16. > :27:22.pretty much any industry if you cannot read and write, and

:27:22. > :27:27.illiteracy, which shut people out of learning, is a new plate on our

:27:27. > :27:33.communities. It is like locking the door on the world of books and

:27:33. > :27:37.throwing away the key. -- is a new light. I am not sure where things

:27:37. > :27:42.started to go wrong. When I grew up, learning was held

:27:42. > :27:49.in very high regard in Wales and we were exporting teachers as much as

:27:49. > :27:52.coal and steel. Now, Ilott to wreak -- illiteracy is a new scourge, and

:27:52. > :27:57.stories from Hans Christian Andersen to Charles Dickens are

:27:57. > :28:04.being locked away from our children. Horizon's contract and there as a

:28:04. > :28:08.poverty of ambition, too. -- horizons contract.

:28:08. > :28:11.It could not be impossible to show some of the world's great films or

:28:11. > :28:15.include some of the finest stories between the covers of a book in the

:28:15. > :28:22.classroom, should it? I try and imagine my own life without such

:28:22. > :28:25.things, and it is a poverty beyond imagining.

:28:25. > :28:30.Well, the Children's Commissioner for Wales is still with me. Is he

:28:30. > :28:33.right? For I think he is absolutely right about cultural poverty, and

:28:33. > :28:36.he is absolutely right about children and young people not

:28:37. > :28:40.getting access to those things. I did a fantastic piece of work

:28:40. > :28:45.this year with kids in museums, where museums were looking at

:28:45. > :28:49.developing a new relationship between themselves and children.

:28:49. > :28:52.What we saw from that was the rich breadth of experience that children

:28:52. > :28:59.and families got from it, and understanding of their cultural

:28:59. > :29:02.history and their contribution as artists, creators and writers.

:29:02. > :29:08.But we have to get them literate, first of all, and there are

:29:08. > :29:12.worrying reports. In Merthyr Tydfil, they are expecting a report to, it

:29:12. > :29:18.with 40% illiteracy by the age of 11. That is not good, is it?

:29:18. > :29:22.Yes, and there was an interested -- interesting piece of work in 2011

:29:22. > :29:26.looking at a disadvantage areas, and they welcomed those schools

:29:26. > :29:34.making that extra mile making sure children were exposed to trips to

:29:34. > :29:38.art galleries, theatres, cinemas, making sure children are exposed to

:29:38. > :29:44.the arts. Because if we can inspire young minds it gives us hope for

:29:44. > :29:48.the future? Absolutely. If the arts is the thing that locks the key --

:29:48. > :29:51.unlocked sticky, fantastic. That is it for this programme, I

:29:51. > :29:56.will be back on Wednesday night investigating how a con man

:29:56. > :29:59.claiming to help war veterans was able to get his hands on a large