16/01/2017

:00:00. > :00:08.Hello it's Monday, it's 9 o'clock, I'm Victoria Derbyshire,

:00:09. > :00:14.This morning, women who've been refused a life extending breast

:00:15. > :00:20.cancer drug called Kadcyla tell us what it means to them.

:00:21. > :00:26.It's the fact you know the drug is there and is good. I think if you

:00:27. > :00:31.knew it never existed, I wouldn't have the hope of being able to use

:00:32. > :00:38.it. The only time I feel really upset is when I think about what I

:00:39. > :00:43.won't see, the events in my daughter's lives that I won't be

:00:44. > :00:52.around for and when they would have liked to have had me around. I've

:00:53. > :00:56.seen my youngest start school, seen them go to brownies and seen them

:00:57. > :00:58.achieve things that I didn't think I would be here to see. You can't put

:00:59. > :01:00.a price on that. We'll hear from the people behind

:01:01. > :01:08.that decision at 9.15. Really keen to hear

:01:09. > :01:13.from you this morning. "It isn't the care

:01:14. > :01:17.that people deserve". How two relatives have described

:01:18. > :01:20.their experience of the NHS. Rose's son was treated

:01:21. > :01:22.on this makeshift bed. And Graham's dad who has

:01:23. > :01:39.Alzheimers was left for 36 The nurses were fantastic,

:01:40. > :01:44.brilliant. But I would say the main adjective I would use is worrying.

:01:45. > :01:47.You can't be treated with dignity and privacy in a corridor. That's

:01:48. > :01:49.the absolute reality. To suggest this is temporary is not true.

:01:50. > :01:51.We'll bring you their full story before 10.

:01:52. > :01:54.And, when one of the chief architects of Brexit met

:01:55. > :02:07.I thought the UK was so smart in getting out and you were there and

:02:08. > :02:12.you guys wrote it on the front-page. Yes. Trump said that Brexit was

:02:13. > :02:20.going to happen. Yes. Right. And it happened. Yes. That was when it was

:02:21. > :02:25.going to lose easily, everybody thought I was crazy, Obama said we'd

:02:26. > :02:27.go to the back of the line. The front of the queue? I think you are

:02:28. > :02:35.doing great. Hello, welcome to the programme,

:02:36. > :02:37.we're live until 11. Throughout the programme we'll bring

:02:38. > :02:40.you the latest breaking news Football coach Barry Bennell who's

:02:41. > :02:45.been charged with eight child sex offences appears in court

:02:46. > :02:47.later this morning. And as always we're really

:02:48. > :02:52.keen to hear from you. A little later we'll hear how half

:02:53. > :02:55.of working fathers apparently say they'd like a less stressful job

:02:56. > :02:58.so they can spend more time Get in touch, use the

:02:59. > :03:02.hashtag Victoria Live. If you text, you will be charged

:03:03. > :03:05.at the standard network rate. Donald Trump has promised a trade

:03:06. > :03:08.deal between Britain and the United States will be

:03:09. > :03:11.a priority when he takes He was speaking to the former

:03:12. > :03:16.justice secretary and prominent Brexit campaigner Michael Gove

:03:17. > :03:18.for The Times in his first British interview since becoming

:03:19. > :03:21.US President-elect. Here's our political

:03:22. > :03:25.correspondent, Vicky Young. Theresa May is about to tell us more

:03:26. > :03:28.about how she thinks the UK can prosper outside

:03:29. > :03:30.of the European Union. Her critics say the economy

:03:31. > :03:35.will suffer if Britain leaves the single market and is no longer

:03:36. > :03:38.able to trade freely with the EU. But the President-elect Donald Trump

:03:39. > :03:42.says he will offer Britain a quick and fair trade deal with America

:03:43. > :03:46.within weeks of taking office. And he contrasted his approach

:03:47. > :03:51.to President Obama's. I thought the UK were so smart

:03:52. > :03:55.in getting out and you were there and you guys wrote it and put it

:03:56. > :03:59.in the front page, Trumps said that Brexit is going

:04:00. > :04:05.to happen and it happened. That was when I was

:04:06. > :04:07.going to lose easily. Obama said they are going

:04:08. > :04:11.to the back of the line, meaning if it does happen

:04:12. > :04:14.and he had to retract. In other words, we're

:04:15. > :04:18.at the front of the queue? Mr Trump said his team will work

:04:19. > :04:24.very hard to get a trade deal done quickly and done properly and it

:04:25. > :04:27.will be good for both sides. He also predicted that other

:04:28. > :04:32.countries would leave to the EU, claiming it had been deeply damaged

:04:33. > :04:36.by the migration crisis. Countries want their own identity

:04:37. > :04:40.and the UK wanted its own identity. But I do believe this,

:04:41. > :04:46.if they had not been forced to take in all of the refugees,

:04:47. > :04:50.so many with all the problems that entails I think

:04:51. > :04:53.you would not have a Brexit. Mr Trumps' offer of a rapid

:04:54. > :04:56.trade deal is a boost to the Prime Minister who insists

:04:57. > :04:59.Britain remains open for business. The President-elect said the two

:05:00. > :05:03.leaders will meet right Let's chat to our political

:05:04. > :05:18.guru Norman Smith. This is great news for Theresa May

:05:19. > :05:22.isn't it? Yes. If you are going into negotiations, then boy oh boy, you

:05:23. > :05:29.want the most powerful man in the world on your side and that seems to

:05:30. > :05:34.be where the Donald is. He's signalling he's pro-Brexit, Brough

:05:35. > :05:39.Britain and progiving us a fast trade deal. He says he thinks it's

:05:40. > :05:49.good for us, he thinks the economy will grow and he shares the

:05:50. > :05:54.sentiments around Brexit. He is scathing about the EU and how

:05:55. > :05:57.bureaucratic it is. He cites an example where he tried to build

:05:58. > :06:01.property in Ireland but gave up because of EU regulations. He says

:06:02. > :06:07.the refugee crisis and immigration has fuelled this desire for national

:06:08. > :06:12.identity. By and large, this will be music to the ears of the Brexiteers,

:06:13. > :06:16.certainly was to Boris Johnson when arriving in Brussels this morning.

:06:17. > :06:19.Have a look. I think it's very good news that the United States of

:06:20. > :06:25.America wants to do a good free trade deal with us and wants to do

:06:26. > :06:28.it very fast and it's great to hear that from President Elect Donald

:06:29. > :06:31.Trump. Clearly it will have to be a deal very much in the interests of

:06:32. > :06:37.both sides but I've no doubt that it will be. Thank you. However a dose

:06:38. > :06:40.of cold water is nevertheless required, because although Mr Trump

:06:41. > :06:44.may promise a fast trade deal, we have to be honest, this is a new

:06:45. > :06:48.President, he has lots of other things to deal with. Is he really

:06:49. > :06:54.going to focus on a trade deal with little old Britain? It won't be top

:06:55. > :06:58.of his list of priorities. Trade deals with ferociously complex,

:06:59. > :07:02.added to which, we don't really have any trade negotiators, or not many,

:07:03. > :07:07.because by and large, we have relied on the EU to do our negotiating. So

:07:08. > :07:13.getting a good deal with America may be extraordinarily difficult and

:07:14. > :07:17.yes, that may take time, even though the Donald says he wants to do it

:07:18. > :07:23.quickly. Lastly, a bit of reality, if you look at the pound today,

:07:24. > :07:27.still being hit hard, it hit a three-month low against the dollar

:07:28. > :07:30.and a two-month low against the euro ahead of the crucial speech from

:07:31. > :07:34.Theresa May tomorrow amid talk of how she's going to push for what

:07:35. > :07:41.many categorise as a hard Brexit. Thank you.

:07:42. > :07:43.Joanna is in the BBC Newsroom with a summary

:07:44. > :07:47.The inquests into the deaths of 30 British holidaymakers killed

:07:48. > :07:52.in a terror attack in Tunisia are due to get

:07:53. > :07:57.38 people were killed by a gunman who targeted a beach near the town

:07:58. > :08:16.Women with terminal cancer, who were expecting to be able

:08:17. > :08:19.to take a life-extending drug to give them an extra 6 months life,

:08:20. > :08:22.have been telling this programme how they'll no longer get it.

:08:23. > :08:24.Kadcyla costs around 90 thousand pounds a year.

:08:25. > :08:25.Other life extending life drugs are usually

:08:26. > :08:29.NICE, the organisation which decides which drugs and treatments

:08:30. > :08:32.are available on the NHS in England and Wales, has ruled it

:08:33. > :08:34.should no longer be made available for routine use.

:08:35. > :08:37.One woman, Bonnie Fox, has told us she is considering trying to raise

:08:38. > :08:49.Taking Kadcyla away, there's nothing left for me. If I'm told the drugs

:08:50. > :08:53.are not working, literally the next day I'm going to need the new drug.

:08:54. > :08:58.If that's not there for me, what else do I do? I have to have a drug

:08:59. > :09:04.to stay alive so I need to find a way claysically. -- basically.

:09:05. > :09:06.The former Crewe Alexandra coach, Barry Bennell, is due to appear

:09:07. > :09:10.in court this morning charged with eight child sex offences.

:09:11. > :09:13.The former coach appeared via videolink at South Cheshire

:09:14. > :09:15.Magistrates' Court last month and was remanded in custody.

:09:16. > :09:17.All of the offences are alleged to have happened between 1981

:09:18. > :09:20.and 1985 when the alleged victim was under the age of 15.

:09:21. > :09:23.A Turkish cargo plane has crashed in Kyrgyzstan

:09:24. > :09:29.The Boeing 747, which was en route from Hong Kong,

:09:30. > :09:31.crashed into houses near Manas airport in the Kyrgyz

:09:32. > :09:35.Rescue workers say the dead included all members of the crew,

:09:36. > :09:40.Visibility was poor because of thick fog at the time, but the cause

:09:41. > :09:42.of the crash has not yet been confirmed.

:09:43. > :09:45.The funeral will be held today for two young cousins who died

:09:46. > :09:48.after being hit by a car on New Year's Eve in Oldham.

:09:49. > :09:53.12 Year old Helena Kot-larova and Zaneta Kro-kova who was 11,

:09:54. > :09:56.were holding hands as they crossed the road, when they were

:09:57. > :10:00.Four men have since been charged in relation to their deaths.

:10:01. > :10:03.Streets will close later today, for the funeral cortege

:10:04. > :10:15.Every picture they're on they're together. They used to go out

:10:16. > :10:17.together, everything. They were like soul mates and they even passed away

:10:18. > :10:24.together. The world's eight richest

:10:25. > :10:26.individuals, all men, have as much wealth as the 3.6 billion people

:10:27. > :10:30.who make up the poorest half The charity is calling for action

:10:31. > :10:34.to address what it's called a "warped" global economy as it's

:10:35. > :10:37.revealed that there is a much wider gap in the distribution of wealth

:10:38. > :10:39.than previously acknowledged. Critics have called the claims

:10:40. > :10:42.misleading, saying the welfare of the poor is improving every

:10:43. > :10:47.year. That's a summary of the latest

:10:48. > :10:59.BBC News, more at 9.30. Thanks for your messages on cancer

:11:00. > :11:04.treatment. One viewer says I've had the drug and it's given me extra

:11:05. > :11:08.time with my family definitely. Roy says it's about time the NHS used

:11:09. > :11:12.its vast spending power to force drug companies to give it better

:11:13. > :11:15.deals and Jerome says many treatments aren't available on the

:11:16. > :11:23.NHS, picking one out of context is unhelpful. Our film on Kadcyla in

:11:24. > :11:25.the next few minutes. Do get in touch with us

:11:26. > :11:27.throughout the morning - use the hashtag Victoria Live

:11:28. > :11:30.and If you text, you will be charged Andy Murray has been in action

:11:31. > :11:43.at the Australian Open. Yes, he is through to the second

:11:44. > :11:48.round. Had to battle though. It wasn't easy for him. He was playing

:11:49. > :11:53.Ukraine's Marchenko. Murray's serve wasn't as strong as it could have

:11:54. > :11:57.been and he struggled to find rhythm. Almost three hours on court

:11:58. > :12:06.in the Melbourne sunshine may have used up perhaps a bit more energy

:12:07. > :12:19.than he wanted. The world number one will now face Rublev of Russia.

:12:20. > :12:27.Better news for Dan Evans, he beat his opponent of Argentina. That is

:12:28. > :12:29.his first win in the Aussie Open. A good day on the whole. The women get

:12:30. > :12:30.in action tomorrow. It was Merseyside v Manchester

:12:31. > :12:33.in the title race yesterday, but surely Chelsea were

:12:34. > :12:43.the real winners? Chelsea ten points ahead. They

:12:44. > :12:48.haven't really blinked in this title race so far have they? Everton

:12:49. > :12:56.thrashed Manchester City. That was 4-0. Liverpool and Manchester played

:12:57. > :12:59.out a 1-1 draw. United boss Mourinho criticising Liverpool's defensive

:13:00. > :13:02.style. I should tell you though, brilliant match for Everton, 4-0

:13:03. > :13:11.winners they run out. Some great goals and what a moment for the

:13:12. > :13:17.debutant Lookman over from Charlton and scored in injury time to make it

:13:18. > :13:20.4-0. Brilliant win for them and Guardiola's said of that loss to

:13:21. > :13:25.Everton that they are out of the Premier League title race. They are

:13:26. > :13:27.ten points I should say behind and it's not looking good for them.

:13:28. > :13:30.And Premier League clubs have come in for more criticism

:13:31. > :13:40.Yes. They've been accused of prioritising the finances over

:13:41. > :13:45.improving disabled access to their stadiums and that's according to a

:13:46. > :13:49.result by the Culture, Media and Sport Committee. In 2015, the

:13:50. > :13:53.Premier League promised to improve stadium facilities for the fans by

:13:54. > :13:56.August of this year but several clubs, including Watford, Chelsea

:13:57. > :13:59.and Liverpool, are expected to miss the deadline. A statement by the

:14:00. > :14:03.Premier League says they are working hard to enhance disabled fan access

:14:04. > :14:07.and will report on each club's progress at the end of the month.

:14:08. > :14:14.More to come on that in the coming weeks. Thank you very much, Jess.

:14:15. > :14:18.Without this drug I won't see my child go to school or get married -

:14:19. > :14:22.the words of some women with terminal cancer, who have been

:14:23. > :14:25.told they will no longer have access to a life-extending drug

:14:26. > :14:31.Kadcyla is the most expensive cancer drug ever -

:14:32. > :14:37.Because of that cost, Nice, the body in charge

:14:38. > :14:40.of the NHS's purse strings, has decided that it should no

:14:41. > :14:44.longer be made available for routine use on the NHS.

:14:45. > :14:47.The maximum they usually spend on drugs which extend

:14:48. > :14:51.life is normally between ?20-30,000 per year.

:14:52. > :14:54.Women already on the drug will continue to receive it,

:14:55. > :14:57.but those who were told by medical staff that they should

:14:58. > :15:12.Our reporter John Owen has been to meet some of them.

:15:13. > :15:16.It's so frustrating, it's so upsetting, it's just...

:15:17. > :15:19.I think it's the fact that you know that drug is there,

:15:20. > :15:23.I think if it had never existed then I wouldn't be,

:15:24. > :15:26.I wouldn't have this hope of being able to use it.

:15:27. > :15:33.The only time that I feel really upset is when I think

:15:34. > :15:39.about what I won't see, the events in my daughters' lives

:15:40. > :15:42.that I won't be around for, and when they would have liked

:15:43. > :15:52.It's been called revolutionary and a wonder drug, but NHS patients

:15:53. > :15:54.who are expecting to receive the breast cancer treatment Kadcyla

:15:55. > :15:59.now face being told that it will be unavailable to them.

:16:00. > :16:02.The amount of good quality time that I thought that I would have

:16:03. > :16:06.and my family expected to have with me has effectively

:16:07. > :16:16.Recently, NICE, the body in charge of the NHS' purse strings,

:16:17. > :16:18.have decided that the treatment should not be made available

:16:19. > :16:28.At an estimated ?90,000 a year, it was considered to be just too

:16:29. > :16:33.expensive, far beyond NICE's usual maximum threshold of 20 to ?30,000

:16:34. > :16:39.At some point, there comes a limit to what the NHS can pay.

:16:40. > :16:41.The industry spends over $100 billion a year

:16:42. > :16:47.And yet it's a drug that's been clinically proven to significantly

:16:48. > :16:51.extend the lives of patients suffering from advanced breast

:16:52. > :16:53.cancer by an average of six months, with fewer side effects

:16:54. > :16:59.In advanced breast cancer, there are very few drugs that

:17:00. > :17:05.If I hadn't had access to Kadcyla, I probably wouldn't be here.

:17:06. > :17:07.But on the question of whether the NHS can afford it,

:17:08. > :17:12.We can't simply say, we will pay whatever price

:17:13. > :17:18.There are so many countries that are making this drug available,

:17:19. > :17:22.we think that there must be a way to make sure that it is

:17:23. > :17:28.It seems to be playing chicken, in some ways,

:17:29. > :17:36.NICE say the decision isn't yet final.

:17:37. > :17:38.It's hoping the drug company will bring down the price.

:17:39. > :17:40.But if that doesn't happen, patients face not having access

:17:41. > :17:45.In my head, I've thought about how long I can last on each drug,

:17:46. > :17:48.I've got kind of a rough, I guess, timescale laid out.

:17:49. > :17:51."If I have this drug and then I can have this drug

:17:52. > :17:53.for a couple of years, then maybe this drug..."

:17:54. > :17:56.You bank on those years, they are so precious to you,

:17:57. > :17:58.it's so important that you can squeeze as much time

:17:59. > :18:01.as possible out of the drugs, and to have that suddenly taken

:18:02. > :18:03.away, it just feels so cruel, really.

:18:04. > :18:09.So it was explained to you presumably by your oncologist

:18:10. > :18:13.that these drugs only work for a certain amount of time,

:18:14. > :18:16.and then what did she say to you about what would happen

:18:17. > :18:22.She said to me that I could expect about two years,

:18:23. > :18:30.give or take, of life, basically, and that was factoring

:18:31. > :18:33.in the drug that would work once the Herceptin and the pertuzumab

:18:34. > :18:36.stopped working, which was going to be Kadcyla.

:18:37. > :18:39.And at the time she said, "Well, if Kadcyla were ever

:18:40. > :18:40.going to be withdrawn, people would be chaining

:18:41. > :18:43.themselves to railings, it's such a wonder drug,

:18:44. > :18:45.and it's so effective," and it was unthinkable that it

:18:46. > :18:52.In 2010, the coalition Government announced the Cancer Drugs Fund

:18:53. > :18:55.to give patients access to the most advanced cancer treatments,

:18:56. > :19:03.Kadcyla was one of them, and since then it's become

:19:04. > :19:08.indispensable for doctors in treating a particularly

:19:09. > :19:11.aggressive form of breast cancer known as HER2 that affects up to 25%

:19:12. > :19:17.Kadcyla is really a revolutionary drug, and it's like nothing

:19:18. > :19:20.that we've had before in breast cancer treatment.

:19:21. > :19:25.And it works a little bit like a heat-seeking missile

:19:26. > :19:29.in the sense that the antibody focuses in on the HER2 cancer cells

:19:30. > :19:31.and it takes the drug to them and releases

:19:32. > :19:40.The Cancer Drugs Fund overspent, and now NICE is looking again

:19:41. > :19:43.at all of the treatments it made available.

:19:44. > :19:45.In the case of Kadcyla, NICE has made an initial decision

:19:46. > :19:48.that the treatment should not be made available for routine use

:19:49. > :19:56.by the NHS, ahead of a final decision to be taken in March.

:19:57. > :19:59.Janine was one of the first women in the UK to use Kadcyla,

:20:00. > :20:01.whilst the drug was still in its trial phase.

:20:02. > :20:05.I was diagnosed in 2010 with primary breast cancer.

:20:06. > :20:08.The following year, in 2011, I was told that my cancer had come

:20:09. > :20:11.back and was spreading around my body, and I was

:20:12. > :20:14.diagnosed with incurable secondary breast cancer.

:20:15. > :20:18.I was just 32, I'd just had a baby, she was eight months old,

:20:19. > :20:21.and I also had a three-year-old, so my family was just beginning,

:20:22. > :20:26.I was fortunate that I had quite a few options back in 2011 and went

:20:27. > :20:37.Tell me about what it meant for your treatment.

:20:38. > :20:39.What it meant for me was quality of life,

:20:40. > :20:44.and there's a lot of chemotherapies, a lot of drugs that don't give

:20:45. > :20:46.you that quality of life, so your hair would fall out,

:20:47. > :20:48.you would feel physically sick, you might have

:20:49. > :20:50.diarrhoea or constipation, and all of the other

:20:51. > :20:55.unpleasant side-effects that chemotherapy can bring.

:20:56. > :21:00.How do you feel about other women who are in precisely that position

:21:01. > :21:03.that you were in a few years ago who also have young

:21:04. > :21:05.children and will not have access to Kadcyla,

:21:06. > :21:11.It breaks my heart to know that, with this drug, it could mean

:21:12. > :21:14.that they will see their children go to school, that they will make

:21:15. > :21:21.I've seen my youngest start school whilst I was on Kadcyla.

:21:22. > :21:24.I've seen them go to Brownies, I've seen them achieve things that

:21:25. > :21:27.I really didn't think that I'd be here to see, and you can't

:21:28. > :21:38.My name's Gill Smith and I have stage four breast cancer.

:21:39. > :21:43.It had already metastasised at the time it was discovered

:21:44. > :21:48.to my liver, my bones, my lungs and my lymph nodes,

:21:49. > :21:54.which means that it's stage four and inoperable and incurable.

:21:55. > :21:59.The two drugs that I'm on, still on, are Herceptin and pertuzumab.

:22:00. > :22:05.And they are effective for about 18 months,

:22:06. > :22:08.but they had to be kicked off with chemotherapy.

:22:09. > :22:10.And what was that like, being on chemotherapy?

:22:11. > :22:18.And losing my hair after two weeks was just the least part of it,

:22:19. > :22:25.So you'd been advised that Kadcyla would be available

:22:26. > :22:28.for you when you needed it, and it now looks as if

:22:29. > :22:34.Absolutely right, so that's devastating because it means

:22:35. > :22:37.that the amount of good quality time that I thought that I would have

:22:38. > :22:40.and my family expected to have with me has effectively been cut

:22:41. > :22:54.It's pretty grim being told that you only probably

:22:55. > :22:59.have about two years, give or take, to live,

:23:00. > :23:01.and then the first eight months of that have been severely

:23:02. > :23:05.compromised by the chemotherapy, and now, if I don't have Kadcyla

:23:06. > :23:11.and the Herceptin and pertuzumab stop working, chances are that means

:23:12. > :23:17.that this was my last Christmas, and that's absolutely devastating.

:23:18. > :23:26.My daughter keeps saying how unfair she thinks it is, and it does,

:23:27. > :23:31.it does feel rather like that, because it was such

:23:32. > :23:35.a fantastic drug, and having cancer is hard enough but the drugs that

:23:36. > :23:40.are available have improved so hugely that it's quite possible

:23:41. > :23:45.to live with cancer rather than feel that you are dying from cancer,

:23:46. > :23:50.so you can have a very good quality of life for quite a long time.

:23:51. > :23:56.And to have half of that taken away would be awful.

:23:57. > :23:59.My oncologist now says that she is seeing about nine months

:24:00. > :24:05.of effectiveness of Kadcyla, really good quality of life

:24:06. > :24:08.without the side-effects, and although that might not sound

:24:09. > :24:13.like very long, if you've only got two years, nine months

:24:14. > :24:17.it's a significant part of that, and it's hugely important.

:24:18. > :24:22.My older daughter, she's 25, and I probably won't

:24:23. > :24:32.My younger daughter still lives at home with us, and she's just

:24:33. > :24:35.beginning to get established in life, and that's what I worry

:24:36. > :24:47.about most, really, how she'll manage without me.

:24:48. > :24:55.Gill is not the only patient affected by Nice's decision.

:24:56. > :24:58.My name's Bonnie Fox, I was diagnosed with both primary

:24:59. > :25:01.and secondary breast cancer when I was 37, when my little boy

:25:02. > :25:10.It makes me feel worried, it makes me feel angry and frustrated,

:25:11. > :25:13.angry with the drugs company and with the NHS that they haven't

:25:14. > :25:16.been able to find a way through to agree a way forward,

:25:17. > :25:20.It's just adding a huge amount of stress.

:25:21. > :25:23.My life is, it's already pretty stressful, I've got this

:25:24. > :25:27.enormous black cloud, I think, hanging over me,

:25:28. > :25:31.that I try to push away as best I can but it's always there,

:25:32. > :25:33.and this is just additional worry, really, additional anxiety.

:25:34. > :25:53.After speaking with these patients, I ask Carole Longson from Nice how

:25:54. > :25:56.After speaking with these patients, I ask Carole Longson from NICE how

:25:57. > :25:58.they can justify their decision to deprive these women

:25:59. > :26:03.Well, we know how important it is for people with breast cancer

:26:04. > :26:05.that they have access to life-extending treatments,

:26:06. > :26:09.but the reality is the cost of this drug, the price of this drug is too

:26:10. > :26:11.high relative to those benefits for it to be

:26:12. > :26:16.The drug company has offered a discount, but even with that

:26:17. > :26:18.discount it's still far beyond the range that we would

:26:19. > :26:22.This drug was available through a mechanism called

:26:23. > :26:26.And it seems that a lot of patients thought that,

:26:27. > :26:29.because it was available then, it would be available in the future

:26:30. > :26:34.Doesn't it seem desperately unfair that it may not be

:26:35. > :26:42.NICE needed to take another look at this drug.

:26:43. > :26:45.It has been on the Cancer Drugs Fund, as you said,

:26:46. > :26:47.for a number of years, but now we're talking

:26:48. > :26:50.about routine use in the NHS, and for that to happen we need

:26:51. > :26:54.to strike a balance between the use of money, the use of resources

:26:55. > :26:57.for this particular drug, for these particular patients,

:26:58. > :27:00.compared to what else you can do with that money.

:27:01. > :27:02.We completely understand that that means that,

:27:03. > :27:05.for those people that are already taking this drug and for those

:27:06. > :27:08.patients who are in a position where they might wish to have this

:27:09. > :27:11.drug, they might need that drug, that's a very, very

:27:12. > :27:26.What do you say to those people who say this is so immensely

:27:27. > :27:31.We live in a country with a National Health Service,

:27:32. > :27:33.a way should be found to afford these drugs?

:27:34. > :27:36.In order to extend the, "Well, let's make available everything

:27:37. > :27:38.for anybody at any cost," that leaves the NHS in a very

:27:39. > :27:45.difficult position, given that any system only has finite resources.

:27:46. > :27:48.Roche, the pharmaceutical company that makes Kadcyla,

:27:49. > :27:51.declined to be interviewed for this film, but Richard Torbett

:27:52. > :27:53.speaks on behalf of the pharmaceutical industry.

:27:54. > :27:56.What kind of responsibility do pharmaceutical companies have to

:27:57. > :27:59.ensure that new cancer medicines are priced at an affordable level

:28:00. > :28:05.so that they can be made available on the NHS?

:28:06. > :28:09.I think it's absolutely clear that pharmaceutical companies

:28:10. > :28:12.have a strong responsibility to price responsibly,

:28:13. > :28:15.and to work with the NHS to make sure that the medicines represent

:28:16. > :28:23.Because, ultimately, pharmaceutical companies are for

:28:24. > :28:25.profit, they're interested in making profits, and I think

:28:26. > :28:30.there's a suspicion that these drugs are being priced extravagantly

:28:31. > :28:32.and that companies are putting profits before ensuring

:28:33. > :28:35.that these drugs are available to the patients that need them.

:28:36. > :28:37.Well, the worst possible outcome for a pharmaceutical company

:28:38. > :28:40.is to have spent all this time and all this money producing

:28:41. > :28:42.a medicine and for it not to reach a patient,

:28:43. > :28:47.so it's absolutely clear that all pharmaceutical companies

:28:48. > :28:50.are absolutely focused on making sure that the patients get medicines

:28:51. > :28:58.The industry spends over $100 billion a year in research

:28:59. > :29:01.and development, much of that is on medicines that

:29:02. > :29:05.never reach the patient because they fail in the clinic,

:29:06. > :29:08.so obviously there's a limited period of time where prices need

:29:09. > :29:17.to be at a level to keep that research effort going.

:29:18. > :29:19.Although nobody disputes that the NHS needs to

:29:20. > :29:20.manage finite resources as fairly as possible,

:29:21. > :29:23.for some it will nonetheless seem cruel that a drug with

:29:24. > :29:26.the power to extend life will no longer be accessible to those

:29:27. > :29:30.For those patients who will soon need access to Kadcyla,

:29:31. > :29:35.Yeah, it just feels incredibly unfair when you're told that

:29:36. > :29:39.you have cancer at such a young age, you just think, "Why me?

:29:40. > :29:42.Why am I this one person that's, you know, somehow been singled out

:29:43. > :29:48.And then, yeah, to be told that a drug is taken away from you that

:29:49. > :29:51.could extend your life is just, yeah, it's unfairness on top

:29:52. > :29:58.You know, I'd like to suggest that people might reflect on,

:29:59. > :30:00.how would they feel if it was their wife, their mother,

:30:01. > :30:06.What would it mean to them to have another nine months of good-quality

:30:07. > :30:31.What would it mean, what could they do?

:30:32. > :30:37.As John said, we asked Roche for an interview

:30:38. > :30:42.They told us they have maintained an open dialogue

:30:43. > :30:44.with Nice and NHS England, and gave offered improved schemes

:30:45. > :30:47.and solutions to try to keep this medicine available to patients.

:30:48. > :30:49.Really keen to hear from you this morning -

:30:50. > :30:52.if you've been on Kadcyla or been promised it, and now won't get it,

:30:53. > :31:05.An anonymous texter said, I had a lump Equitable mist done last week,

:31:06. > :31:09.I had to wait two weeks to find out if it was cancer after the biopsy

:31:10. > :31:12.and I have to wait two more weeks for the results to see if more

:31:13. > :31:16.surgery is required. The stress of not knowing is unbelievable. Now,

:31:17. > :31:20.I've just heard that a breast cancer drug is being taken off the NHS. Do

:31:21. > :31:23.I need this extra stress at the moment? You wouldn't believe the

:31:24. > :31:32.thoughts that are going through my mind. This tweet from Ian, this is a

:31:33. > :31:37.disgrace, when are we going to help these women, rather than helping out

:31:38. > :31:43.other countries. Another texter, I'm incensed that the life-extending

:31:44. > :31:46.cancer drug is being withdrawn. Stop sending British taxpayers' billions

:31:47. > :31:48.abroad and invest the money here in the nice and social care. Thank you,

:31:49. > :31:50.keep those coming in. Later on in the programme, we'll

:31:51. > :31:53.speak to some of those affected, and from a body which represents

:31:54. > :32:14.the drugs industry. We'll hear from some of Donald

:32:15. > :32:17.Trump's supporters in Texas. Nearly half of working dads would like a

:32:18. > :32:21.less stressful job to spend more time with their kids. If you are a

:32:22. > :32:25.working father, how do you juggle a job and your children? Let me know,

:32:26. > :32:27.or have you given up work completely in order to achieve the right

:32:28. > :32:31.balance? Joanna is in the BBC

:32:32. > :32:34.Newsroom with a summary Donald Trump has promised a trade

:32:35. > :32:38.deal between Britain and the United States will be

:32:39. > :32:40.a priority when he takes He was speaking to the former

:32:41. > :32:44.justice secretary and prominent Brexit campaigner Michael Gove

:32:45. > :32:47.for The Times in his first British interview since becoming

:32:48. > :32:48.US president-elect. Mr Trump said he would ask his

:32:49. > :32:52.son-in-law Jared Kushner to negotiate a Middle East peace

:32:53. > :33:01.agreement and would seek a deal with He said it's good news for Theresa

:33:02. > :33:06.May. This is another card in the Prime Minister's hand, another arrow

:33:07. > :33:10.in her quiver, because the European Union until now has been assumed to

:33:11. > :33:15.have a better hand to play. But the Prime Minister, we now see, has

:33:16. > :33:21.actually cards in her hand, including... How do you think

:33:22. > :33:25.she's... I think she's getting a better deal. How do you think she's

:33:26. > :33:30.played her hand so far? She's done an company Blair job. -- she's done

:33:31. > :33:32.an exemplary job. The pound has fallen to a three

:33:33. > :33:35.month low against the dollar in early trading in Asia,

:33:36. > :33:37.because of speculation Some analysts predict Theresa May

:33:38. > :33:41.will use a major speech tomorrow to say she's prepared to pull out

:33:42. > :33:45.of the single market to have more Downing Street has described

:33:46. > :33:48.the reports as "speculation". The inquests into the deaths of 30

:33:49. > :33:50.British holidaymakers killed in a terror attack in Tunisia

:33:51. > :33:53.are due to get 38 people were killed by a gunman

:33:54. > :33:58.who targeted a beach near the town Organisations including

:33:59. > :34:00.the Metropolitan Police, the Foreign and Commonwealth Office

:34:01. > :34:05.and the owner of tour operator Women with terminal cancer,

:34:06. > :34:10.who were expecting to be able to take a life-extending drug

:34:11. > :34:15.to give them an extra 6 months life, have been telling this programme how

:34:16. > :34:18.they'll no longer get it. NICE, the organisation which decides

:34:19. > :34:24.which drugs and treatments are available on the NHS in England

:34:25. > :34:28.and Wales, has ruled it should no longer be made

:34:29. > :34:31.available for routine use. The maximum they usually spend

:34:32. > :34:33.on drugs which extend life is normally between 20-30 thousand

:34:34. > :34:50.pounds per year. Barry Bennell appeared via video

:34:51. > :34:55.link at south Cheshire Magistrates Court last month and was remanded in

:34:56. > :34:59.custody. All of his offences are alleged to have happened between

:35:00. > :35:02.1981 and 1985 when the alleged victim was under the age of 15.

:35:03. > :35:13.He'll appear in court today. The funeral will be held today

:35:14. > :35:16.for two young cousins who died after being hit by a car

:35:17. > :35:19.on New Year's Eve in Oldham. 12 Year old Helena Kot-larova

:35:20. > :35:22.and Zaneta Kro-kova who was 11, were holding hands as they crossed

:35:23. > :35:24.the road, when they were Four men have since been charged

:35:25. > :35:28.in relation to their deaths. Streets will close later today,

:35:29. > :35:30.for the funeral cortege Every picture they're

:35:31. > :35:33.on they're together. They used to go out

:35:34. > :35:35.together, everything. They were like soul mates

:35:36. > :35:37.and they even passed away That's a summary of the latest

:35:38. > :35:45.BBC News, more at 9.30. Andy Murray has been in action

:35:46. > :35:53.at the Australian Open. Yes, he is through

:35:54. > :35:55.to the second round. Murray's serve wasn't

:35:56. > :36:03.as strong as it could have been and he struggled

:36:04. > :36:08.to find rhythm. It was Merseyside v Manchester

:36:09. > :36:31.in the title race yesterday, Premier League clubs are putting

:36:32. > :36:35.finance over needs of disabled fans. The Premier League says it's working

:36:36. > :36:47.hard on access. More on all of that just after 15. -- just A 10.

:36:48. > :36:49.A general election could be announced in Northern

:36:50. > :37:05.There was a big flaw. There was no limit to the rewards. The more heat

:37:06. > :37:12.people created from these boilers, the more they got paid. So some

:37:13. > :37:15.people started abusing the scheme, installing boilers if buildings that

:37:16. > :37:20.didn't need heating to cash in. It's thought this could cost the taxpayer

:37:21. > :37:24.nearly ?500 million. But why the crisis? The head of Northern

:37:25. > :37:28.Ireland's Government, Arlene Foster, was involved in the setting up of

:37:29. > :37:32.the heating scheme when she worked in the energy department. Will you

:37:33. > :37:37.be accepting Sinn Fein's terms of reference for an inquiry? No. Since

:37:38. > :37:41.the scandal broke, there have been calls for her to resign but she's

:37:42. > :37:46.refused. For my part I'm determined to do all I can to put right what

:37:47. > :37:49.went wrong, to find out through an investigation why things went wrong

:37:50. > :37:51.and seek to restore the credibility of Stormont in the eyes of the

:37:52. > :38:03.public. Northern Ireland is unusual -

:38:04. > :38:05.it's governed by two political parties, the DUP and Sinn Fein,

:38:06. > :38:08.and it has two leaders. They work together and share

:38:09. > :38:11.the decision-making. Last week, the other leader,

:38:12. > :38:13.Martin McGuinness from Sinn Fein, We in Sinn Fein will not

:38:14. > :38:17.tolerate the arrogance Because the two parties share power,

:38:18. > :38:21.if one leader goes, From this evening, it'll be down

:38:22. > :38:27.to the Northern Ireland Secretary, James Brokenshire,

:38:28. > :38:29.to call that election. He might try to hold off for a bit

:38:30. > :38:33.so more negotiations can take place, It means voters in Northern

:38:34. > :38:36.Ireland could be heading Now, while this was triggered

:38:37. > :38:40.by the heating scandal, Sinn Fein say their rift

:38:41. > :38:42.with the Democratic Unionist Party Has their attempted

:38:43. > :38:54.power-sharing come to an end? In Belfast is Northern Ireland

:38:55. > :39:04.historian Dr Margaret O'Callaghan, What do you think is going to happen

:39:05. > :39:07.today? In all likelihood we are heading to an election but I suppose

:39:08. > :39:14.we have until 5 o'clock, so in theory, there are a number of points

:39:15. > :39:20.during the day at which something could happen whereby Sinn Fein and

:39:21. > :39:27.the DUP put something together. At the moment, for example, the finance

:39:28. > :39:30.spokesperson is trying to put a deal together that will at least

:39:31. > :39:36.investigate this scandal. But there are a number of steps during the day

:39:37. > :39:39.but the way it looks at the moment, we are probably going for an

:39:40. > :39:43.election at 5 I think. There have been a fair few crises in

:39:44. > :39:51.Northern Ireland politics, where does this rate? Oh, this is pretty

:39:52. > :39:55.high, 9 out of 10. It's also very odd because it's come almost out of

:39:56. > :39:58.nowhere. As you know, the system we have here in Northern Ireland was

:39:59. > :40:06.set up under the Good Friday Agreement. It's mandatory coalition.

:40:07. > :40:09.All of the parties are in theory in Government but two of them have

:40:10. > :40:15.already withdrawn to form an opposition. So it's really the two

:40:16. > :40:20.hardline parties, Sinn Fein and the DUP, who've been in power. There's

:40:21. > :40:24.little love lost between them. They're seen as kind of carving

:40:25. > :40:31.things up between them, if you like. But they looked like they were doing

:40:32. > :40:35.reasonably well. But suddenly, this one issue, perhaps Arlene Foster's

:40:36. > :40:40.lack of experience, her unwillingness to stand aside for two

:40:41. > :40:44.or three weeks, all of these things together seem to have contributed to

:40:45. > :40:50.this crisis. It's also not helped by the fact

:40:51. > :40:55.that Martin McGuinness, the leading Sinn Fein politician, who's been

:40:56. > :41:00.Deputy First Minister with Paisley, with Peter Robinson and now with

:41:01. > :41:13.Arlene Foster, is very seriously ill. How are voters viewing all of

:41:14. > :41:16.this? Totally fed up. The only thing that might put pressure on Sinn Fein

:41:17. > :41:22.in particular today to pull back from the brink is the fact that the

:41:23. > :41:28.electorate really don't want an election. We've seen dropping voter

:41:29. > :41:33.participation and even if there is an election, it's pretty likely that

:41:34. > :41:39.we'll get the same result. So it's more public money, a huge kerfuffle,

:41:40. > :41:45.everything being, you know, pushed to the extremities. Also, the

:41:46. > :41:52.economy's bad here, the whole issue of Brexit affects this area given

:41:53. > :41:58.the likelihood of a border between the EU and the UK being actually on

:41:59. > :42:04.this island. So the voters do not want an election. No. From what you

:42:05. > :42:06.have said, Margaret, this element of power-sharing is dead, but

:42:07. > :42:12.power-sharing will continue when there is a new election? Well, one

:42:13. > :42:20.hopes so, but the point is, elections, I mean it's the two

:42:21. > :42:23.extreme parties on the unionist and nationalists side were primarily at

:42:24. > :42:30.issue here. They play against other parties. But the other issues have

:42:31. > :42:35.now come into play like dealing with the past, the status of the require

:42:36. > :42:40.language, respect for nationalism and once these issues come up, they

:42:41. > :42:44.polarise politics, they poison the well, they make it more and more

:42:45. > :42:50.difficult to get power-sharing up and running again. So it's a

:42:51. > :42:55.high-risk operation. It's dangerous. Has it been confirmed what Martin

:42:56. > :42:59.McGuinness's illness is? There are all kinds of press speculations.

:43:00. > :43:04.Some stories more reliable to others so I wouldn't really like to say

:43:05. > :43:06.because I'm not 100% sure but I think it's a serious health

:43:07. > :43:20.situation. Thank you very much for your time.

:43:21. > :43:30.Thank you for your comments on Kadcyla, the life-extending drug,

:43:31. > :43:34.given to women with incurable breast cancer. Claire says I've been on

:43:35. > :43:38.Kadcyla for two years, it's an amazing drug, I had to take a break

:43:39. > :43:42.from treatment to have surgery to my chest. My oncololgist and I are

:43:43. > :43:46.having to fight NHS England to go back on the drug, it's shocking.

:43:47. > :43:49.This tweet from Sue. It's difficult regarding the breast cancer drug, I

:43:50. > :43:54.feel for patients who talk about what they'll miss during the next

:43:55. > :43:58.six months, but where does the line get drawn? Roy says, I have terminal

:43:59. > :44:01.cancer myself and can't begin to believe how women with children are

:44:02. > :44:07.feeling when told they won't receive a drug because it's too expensive.

:44:08. > :44:16.Fiona says, I'm on Kadcyla and have been for 20 months, it's had an

:44:17. > :44:22.amazing impact, my lung tumours are stable and there is "no evidence of

:44:23. > :44:28.active disease now". Please stop saying Kadcyla extends life by six

:44:29. > :44:31.months, the average is months. It's six months extra when compared with

:44:32. > :44:36.another treatment which is not available on the NHS, so a totally

:44:37. > :44:41.spurious comparison. The quality of life is fantastic. I work and I'm a

:44:42. > :44:46.wife, daughter, sister, aunt step-mum and a friend. Sam says the

:44:47. > :44:51.NHS has effectively put a price on the women's heads and that is

:44:52. > :44:54.shameful. Your experiences, particularly if

:44:55. > :44:58.you have been on this drug, you have been promised this drug or you are a

:44:59. > :45:02.taxpayer and would willingly continue to pay for this drug or

:45:03. > :45:06.not. Do let me know. Get in touch in the usual ways. Later we'll hear

:45:07. > :45:12.from a representative from the drugs company industry. Still to come:

:45:13. > :45:16.Claims from Oxfam that the world's eight richest people collectively

:45:17. > :45:20.have as much wealth as the 3.6 billion people who make up the

:45:21. > :45:22.poorest half of the world. We'll examine the claims and see how true

:45:23. > :45:27.they are. Doctors are warning that some

:45:28. > :45:31.patients face "dangerous" delays in getting specialist treatment

:45:32. > :45:35.through their GP. Some UK hospitals are cancelling

:45:36. > :45:37.cancer operations due to a rise in pressure on the NHS

:45:38. > :45:41.and a shortage of beds. We know that nearly half

:45:42. > :45:44.of hospitals in England declared a major alert in the first week

:45:45. > :45:46.of January as they encountered A quarter of patients had to wait

:45:47. > :45:54.over four hours at A This follows on from claims

:45:55. > :45:57.earlier in the month from the British Red Cross

:45:58. > :46:00.that the NHS in England was facing We've been speaking to two people

:46:01. > :46:03.who've experienced shocking Rose Newman from Eastbourne,

:46:04. > :46:15.who says her one-year-old son had to wait on a make-shift bed of two

:46:16. > :46:18.chairs, almost four hours in A, after he was taken there

:46:19. > :46:21.with suspected meningitis. And in Birmingham Graeme Anderson

:46:22. > :46:23.said his dad who has Parkinson's and dementia had to wait around 36

:46:24. > :46:27.hours for a bed in a ward He was really, really hot, like,

:46:28. > :46:37.with a massive temperature, which is what we were

:46:38. > :46:40.worried about initially. And that's when the doctor

:46:41. > :46:43.noticed spots around his ankles which weren't

:46:44. > :46:47.going when you press to them. So he wasn't well at all but we were

:46:48. > :46:50.on the verge of thinking, is this something really,

:46:51. > :46:58.really serious or is this just a continuation

:46:59. > :47:00.of the tonsillitis that he had? But he had gone massively downhill,

:47:01. > :47:04.he was not in a good way at all. So you took into hospital,

:47:05. > :47:06.what was your experience? We got there just before eight

:47:07. > :47:09.o'clock and I think it was about 45 minutes for us to see

:47:10. > :47:11.the assessment nurse. And he did a really good

:47:12. > :47:14.job in trying to get us on to the children's ward,

:47:15. > :47:18.but because he was not under one, they would not take

:47:19. > :47:20.him because obviously And then later on we got

:47:21. > :47:25.put into like a side room and a nurse came

:47:26. > :47:32.in to try to get his temperature down, which was still really high

:47:33. > :47:35.and she said that a doctor would be along in a minute,

:47:36. > :47:37.she was going shift. And then we waited hours,

:47:38. > :47:40.I think we waited a total of four And obviously, there

:47:41. > :47:44.was no bed to put him in. Which is when you improvised

:47:45. > :47:54.and brought two chairs together so that Jack could lie

:47:55. > :47:56.across both of them? Initially he was sitting on our laps

:47:57. > :48:07.but we were told, we were trying to bring his temperature down

:48:08. > :48:09.and if he was sitting This was 11.30 at night

:48:10. > :48:25.and we wanted to sleep so we did not Luckily I had brought his duvet

:48:26. > :48:28.with me because we thought he would be staying overnight,

:48:29. > :48:31.that's what the doctor So we put the chairs together

:48:32. > :48:34.so that he could lie down. What did you think of the fact

:48:35. > :48:38.that there were no beds for him? Well, initially I did not think too

:48:39. > :48:42.much of it because I did not realise But a couple of nurses said to ask

:48:43. > :48:46.sorry you're having to wait a bed. And as it got on and he really

:48:47. > :48:50.needed to lie down and sleep, that's when I was really distressed

:48:51. > :48:53.because if we had not brought that duvet with us,

:48:54. > :48:56.I'm not sure what we would have done We were having to prop

:48:57. > :48:58.him up on our knee. But him not touching us so as not

:48:59. > :49:01.to take on our body heat. It was uncomfortable for him

:49:02. > :49:03.and distressing for us. Tell us what happened to your dad

:49:04. > :49:08.in the dad needed to going for a CT scan, so we went in on

:49:09. > :49:11.Monday afternoon and unfortunately they could not do the CT

:49:12. > :49:14.scan until Tuesday. But one of the complications

:49:15. > :49:18.with dad when he is like this, he has got Parkinson's

:49:19. > :49:21.and other complications, and is very So actually staying in A overnight

:49:22. > :49:25.was about the worst place that he could have been in terms of him

:49:26. > :49:28.being calm and settled. Because it's busy and people

:49:29. > :49:30.are in and out the whole time and in a different

:49:31. > :49:32.states of distress? And when we walked in,

:49:33. > :49:36.there were 15 people at least on They were the people who had been

:49:37. > :49:45.brought in from ambulances, All the way through the staff have

:49:46. > :49:51.been fantastic with my dad. But clearly they were running over

:49:52. > :49:54.capacity, and again, the problem, like your other guest said,

:49:55. > :49:57.was that they were just waiting for beds, the system was blocked up

:49:58. > :49:59.because they were waiting for beds In the end it was 36 hours

:50:00. > :50:03.before your dad got a bed and what state

:50:04. > :50:06.was he and by then? To be fair, they treated him

:50:07. > :50:09.medically and he got better in terms of the immediate

:50:10. > :50:10.problems that he had. The distressing thing for him

:50:11. > :50:13.was just that he was really confused and didn't know what was going on,

:50:14. > :50:17.and as his family, we were unsure about what the next steps

:50:18. > :50:21.would be, to be honest. Worcester Acute Hospitals told

:50:22. > :50:26.us, we can't comment They say, "We do accept

:50:27. > :50:32.that some patients spending longer than we would

:50:33. > :50:34.like in our A department. We apologise for this,

:50:35. > :50:36.we are experiencing pressures in all parts of the system

:50:37. > :50:39.and are working with partners to make sure that waits

:50:40. > :50:41.are kept to a minimum". And they are doing

:50:42. > :50:43.their best, I'm sure. However, the system

:50:44. > :50:52.is running overcapacity. They have got buzzers for patients

:50:53. > :50:54.lined up on the walls So it's clear that they

:50:55. > :50:58.are getting used to the fact that people will

:50:59. > :51:00.be seen in corridors. And again, the staff have been

:51:01. > :51:06.fantastic with my dad. But clearly, there

:51:07. > :51:09.isn't the capacity at the moment in Worcester

:51:10. > :51:11.to give equal the treatment that they deserve and

:51:12. > :51:15.that the staff would like to give Rose, in your case, the hospital

:51:16. > :51:41.in Hastings told us, Jack was assessed

:51:42. > :51:50.for his temperature, Due to the volume of other

:51:51. > :51:55.patients being seen - I mean, do you accept

:51:56. > :51:59.that it was just mad This was a Wednesday,

:52:00. > :52:02.it was not even a weekend. So it was way busier than

:52:03. > :52:14.what I thought it was going to be. What words would you use

:52:15. > :52:16.to describe your experience The nurses were fantastic,

:52:17. > :52:19.they were brilliant. But the main adjective I would use

:52:20. > :52:22.is worrying because it was a worry to find out from a doctor

:52:23. > :52:25.whether Jack's condition And if it had been serious

:52:26. > :52:28.and you had waited four Graeme, what words would you use

:52:29. > :52:32.to describe your dad's experience I think that the staff

:52:33. > :52:35.are doing their very best. It isn't the care

:52:36. > :52:37.that people deserve. You can't be treated with dignity

:52:38. > :52:42.and privacy if you're And to suggest this

:52:43. > :52:50.is temporary is not true. We went through A with dad

:52:51. > :52:53.in October and he waited overnight on a trolley in October,

:52:54. > :52:55.waiting for a bed. Undoubtedly we will probably

:52:56. > :52:59.end up in A again. Anyone can come and see what's going

:53:00. > :53:03.on if they want to come with me, but that's the reality of what's

:53:04. > :53:05.going on at the moment. Rose, your little boy's case

:53:06. > :53:07.was raised by Labour leader Jeremy Corbyn

:53:08. > :53:09.in Prime Minister's Questions last week - I want to ask you,

:53:10. > :53:12.which party do you trust most Well, I mean, based on my personal

:53:13. > :53:20.experience, like Jeremy Corbyn thinking it's important enough

:53:21. > :53:23.to raise in Prime Minister's Questions, my sister,

:53:24. > :53:25.who works for the NHS, And then he followed up with a phone

:53:26. > :53:33.call to me to see how Jack was, and to thank me

:53:34. > :53:36.for raising my story. And in contrast, Theresa May trying

:53:37. > :53:39.to say this is just a small number of incidences,

:53:40. > :53:42.which is not true at all, I'd say, you know, I trust

:53:43. > :53:47.Jeremy Corbyn in this situation. And obviously, for our audience,

:53:48. > :53:53.I need to ask you, are you a Labour I mean, as of this, yes, I will be

:53:54. > :53:58.a Labour supporter, I would say! What did Jeremy Corbyn say

:53:59. > :54:00.to you on the phone? When I picked it up,

:54:01. > :54:07.I thought it was the journalist from The Mirror, and he said,

:54:08. > :54:10."Hello, it's Jeremy Corbyn". He just said thank you for raising

:54:11. > :54:13.awareness through my sister. And he said that he really

:54:14. > :54:16.appreciated us sharing the story and then he was asking about Jack

:54:17. > :54:19.and whether he had been back to nursery yet,

:54:20. > :54:22.whether he was well enough to do all the normal things

:54:23. > :54:23.he normally does. Over the weekend we were able

:54:24. > :54:30.to take him to his swimming lesson and things he has not been able

:54:31. > :54:34.to do for a couple of weeks. So he's definitely back

:54:35. > :54:36.to normal which is great. Thank you both very much,

:54:37. > :54:55.I really appreciate your time. An e-mail from Rob. He says he had

:54:56. > :54:59.to rush his two-year-old daughter to a French hospital by ambulance

:55:00. > :55:05.because she had a high fever. Rob said before I was allowed into the

:55:06. > :55:11.hospital, I paid the 440 euro ambulance bill. On departure I paid

:55:12. > :55:16.the 90 euro consultation charge. Because neither me or my extended

:55:17. > :55:24.family had not paid tax in France, I had to issue. I would be keen to now

:55:25. > :55:29.how many EU and non-EU members had treatment at the NHS this year? This

:55:30. > :55:32.was addressed maybe the poor women could be offered the cancer drug and

:55:33. > :55:37.a toddler wouldn't have to sleep on plastic chairs.

:55:38. > :55:41.Stewart says, "Whilst I know the NHS is under pressure, please remember

:55:42. > :55:47.it saves lives every day and it is important not to just report

:55:48. > :55:52.negative stories." Clare says, "Norfolk Hospital was brilliant when

:55:53. > :55:56.I needed a bed." Another viewer says, "The system is clogged up with

:55:57. > :56:00.nonemergency or alcohol and drug related problems." Keep those

:56:01. > :56:04.experiences coming. We will feed them into our conversation

:56:05. > :56:07.throughout the morning. Coming up to 10am, we will bring you

:56:08. > :56:13.latest news and sport. Now the weather. Is it milder or is it my

:56:14. > :56:16.imagination? Well, it is becoming milder. It is already milder. We

:56:17. > :56:21.have got a lot of cloud around today. I have got a treat for you. I

:56:22. > :56:27.have got a couple of Weather Watcher photos which I know you like. In

:56:28. > :56:30.north-west Wales, there is a lot of cloud around. Under the cloud, the

:56:31. > :56:38.temperatures are higher. Look at this... It's gorgeous. A Weather

:56:39. > :56:41.Watcher sent this in. There is cloud and breaks and that's reflected in

:56:42. > :56:47.the temperatures. So another treat for you. I'm pulling all the stops

:56:48. > :56:51.out today. These are the current temperatures in Dover.

:56:52. > :56:54.The same with Hull and London where we have got drizzle, but push

:56:55. > :56:57.further north and west, where we've got more cloud around, the

:56:58. > :57:04.temperature is that bit higher. So it is quite a cloudy start to the

:57:05. > :57:11.day rather like this more many of us. No snow, it is too mild and in

:57:12. > :57:16.fact, today, by day and by night too, the temperatures won't vary too

:57:17. > :57:21.much and that's quite nice actually. Turn the heating down a bit. Yeah,

:57:22. > :57:24.exactly. So what we're looking at today is a weather front that's

:57:25. > :57:27.draped across the central swathe of England. It moved further east

:57:28. > :57:32.taking rain with it. Most of the rain is light, but we are looking at

:57:33. > :57:36.the odd moderate burst. Later on, another weather front will come in

:57:37. > :57:39.across north-west Scotland slow deucing more rain. There is a the lo

:57:40. > :57:44.of cloud around. Here is what we've had this morning. So it is more

:57:45. > :57:47.nuisance rain. It is constant, persistent light and drizzly and it

:57:48. > :57:53.will in this way as we go through the morning, but there will be some

:57:54. > :57:56.sunshine. Somewhere in East Anglia, perhaps west Sussex towards Kent

:57:57. > :58:01.could see sunshine, but a lot of cloud out towards the west. Some

:58:02. > :58:04.breaks across Angus and Fife, but through the afternoon, we will see

:58:05. > :58:09.the next weather front coming our way. So it is quite a cloudy, but as

:58:10. > :58:12.Victoria said, mild picture that we're looking at today. There is

:58:13. > :58:15.hill fog around and where we have got the weather front we continue

:58:16. > :58:21.with the light and at times, patchy rain and drizzle. Further east, some

:58:22. > :58:26.breaks in the cloud. A little bit of sunshine. In the South East, it is

:58:27. > :58:29.only six Celsius. In the south-west, on the other side of the weather

:58:30. > :58:32.front which is a warm front, we are looking at highs of ten Celsius.

:58:33. > :58:36.Again, quite a bit of cloud around with one or two breaks as we have

:58:37. > :58:41.across Wales, but the emphasis really is on cloud. For Northern

:58:42. > :58:44.Ireland, you too have got a fairly cloudy day ahead and by the

:58:45. > :58:47.afternoon we will see the edge of the rain affecting Scotland and

:58:48. > :58:50.clipping north western parts of Northern Ireland. Now, through the

:58:51. > :58:53.evening and overnight, the rain will push south across Northern Ireland

:58:54. > :58:56.and parts of Scotland and into Northern England and North Wales.

:58:57. > :59:00.Elsewhere, the rain that we have will tend to fizzle and in the South

:59:01. > :59:05.East and East Anglia under clearer skies we are looking at a touch of

:59:06. > :59:08.frost and also patchy fog, but there shouldn't be problems with frost

:59:09. > :59:13.elsewhere, but we will have some hill fog around. Tomorrow, here is

:59:14. > :59:15.our weather front continuing its decent, weakening all the time

:59:16. > :59:19.across Northern England and into North Wales, you can see across the

:59:20. > :59:22.Midlands, we will see drizzly bits and pieces. The South East seeing

:59:23. > :59:25.the sunshine, but only four to six Celsius and parts of Eastern

:59:26. > :59:31.Scotland favoured for sunshine. It won't feel too bad. Aberdeen getting

:59:32. > :59:34.up to ten Celsius. As we move from Tuesday and into Wednesday, high

:59:35. > :59:40.pressure dominates itself across the UK. We've got a squeeze on the

:59:41. > :59:44.isobars in the north. We've got a weather front flirting with the far

:59:45. > :59:48.north of Scotland and at times it will introduce spots of rain.

:59:49. > :59:51.Another cloudy day, the best chance of seeing sunshine across Southern

:59:52. > :59:55.England and into the south-west, parts of the Midlands, but

:59:56. > :59:58.temperatures no great shakes. If you finally take a look at what's

:59:59. > :00:01.happening on Thursday, again there will be brighter skies, but there

:00:02. > :00:08.will be a fair bit of cloud around and that could produce just the odd

:00:09. > :00:10.shower, weather front not too far from the north and temperatures

:00:11. > :00:14.between seven and eight Celsius. Hello it's Monday 16th

:00:15. > :00:17.January, it's 10 o'clock, This morning, women who've been

:00:18. > :00:21.refused a life extending breast cancer drug called Kadcyla tell us

:00:22. > :00:29.what it means to them. It's the fact you know the drug is

:00:30. > :00:32.there and you know it's good. If it never existed, I wouldn't have this

:00:33. > :00:40.hope of being able to use it. The only time I feel really upset is

:00:41. > :00:45.when I think about what I won't see; the events in my daughters' lives

:00:46. > :00:51.that I won't be around for and when they would have liked to have had me

:00:52. > :00:56.around. I've seen my youngest start school while on Kadcyla, I've seen

:00:57. > :01:00.them go to brownies, achieve things that I really didn't think I would

:01:01. > :01:11.be here to see. You can't put a price on that.

:01:12. > :01:16.Thank you to those who've got in touch about this this morning. Keep

:01:17. > :01:18.sharing your experiences. And, when one of the chief

:01:19. > :01:33.architects of Brexit met President I thought the UK was so smart. You

:01:34. > :01:36.guys were there and put it in the front-page, Trump said Brexit was

:01:37. > :01:41.going to happen, right and it happened. That is when I was going

:01:42. > :01:45.to lose easily. Everyone thought I was crazy. Obama said they'll go to

:01:46. > :01:48.the back of the line, meaning if it does happen. He had to retract that.

:01:49. > :01:50.That was a bad statement. Now it's the front of the queue? You are

:01:51. > :01:52.doing great. all men, have as much wealth

:01:53. > :01:59.as the 3.6 billion people who make up the poorest half

:02:00. > :02:10.of the world's population. Good Morning, here's

:02:11. > :02:12.Joanna in the BBC Newsroom Donald Trump has promised a trade

:02:13. > :02:16.deal between Britain and the United States will be

:02:17. > :02:19.a priority when he takes He was speaking to the former

:02:20. > :02:22.justice secretary and prominent Brexit campaigner Michael Gove

:02:23. > :02:29.for The Times - in his first British interview since becoming

:02:30. > :02:31.US president-elect. Mr Gove says the president-elect's

:02:32. > :02:42.comments are good news This is another card in the Prime

:02:43. > :02:46.Minister's hand, another arrow in her quiver, because the European

:02:47. > :02:51.Union until now has been assumed to have a better hand to play. But the

:02:52. > :02:56.Prime Minister, we now see, has actually cards in her hand,

:02:57. > :02:59.including candidate Trump which will enable her I think to be able to

:03:00. > :03:03.secure a better deal. How do you think she's played her hand so far?

:03:04. > :03:06.She's done an exemplary job. Meanwhile, the pound has fallen

:03:07. > :03:08.to a three month low against the dollar in early trading

:03:09. > :03:11.in Asia, because of speculation Some analysts predict Theresa May

:03:12. > :03:16.will use a major speech tomorrow to say she's prepared to pull out

:03:17. > :03:20.of the single market to have more Downing Street has described

:03:21. > :03:23.the reports as "speculation" The inquests into the deaths of 30

:03:24. > :03:26.British tourists killed in Tunisia in June 2015 will open

:03:27. > :03:28.in the next hour. They were killed by a lone

:03:29. > :03:31.gunman at a 5 star beach It remains the deadliest

:03:32. > :03:35.terror attack on Britons The victims, who were aged

:03:36. > :03:42.between 19 and 80, included three Women with terminal cancer,

:03:43. > :03:48.who were expecting to be able to take a life-extending drug

:03:49. > :03:52.to give them an extra 6 months life, have been telling this programme how

:03:53. > :03:55.they'll no longer get it. Kadcyla costs around 90

:03:56. > :03:58.thousand pounds a year. NICE, the organisation which decides

:03:59. > :04:01.which drugs and treatments are available on the NHS in England

:04:02. > :04:04.and Wales, has ruled it should no longer be made

:04:05. > :04:07.available for routine use. One woman, Bonnie Fox, has told us

:04:08. > :04:23.she is considering trying to raise Taking Kadcyla away, there isn't a

:04:24. > :04:27.next step for me in place. So if I'm told my drugs aren't working, the

:04:28. > :04:32.next day I'm going to need that new drug. If that's not there, what else

:04:33. > :04:34.do I do? I have to have a drug to stay alive, so I need to find a way

:04:35. > :04:36.basically. And Victoria will have

:04:37. > :04:48.much more on this story Unconfirmed reports are saying five

:04:49. > :04:56.people have been killed after a gunman fired through an open window

:04:57. > :05:00.at the Blue Parrot Club in Playa Dell Carmen.

:05:01. > :05:03.The former Crewe Alexandra coach, Barry Bennell, is due to appear

:05:04. > :05:06.in court this morning charged with eight child sex offences.

:05:07. > :05:08.The former coach appeared via videolink at South Cheshire

:05:09. > :05:12.Magistrates' Court last month and was remanded in custody.

:05:13. > :05:15.All of the offences are alleged to have happened between 1981

:05:16. > :05:26.and 1985 when the alleged victim was under the age of 15.

:05:27. > :05:30.That's a summary of the latest BBC News, more at 10.30.

:05:31. > :05:35.An e-mail from Esther. Anyone diagnosed with cancer will know that

:05:36. > :05:38.the news currenth turns your world upside down. Drugs may cost a lot

:05:39. > :05:44.but you simply cannot put a price on life. I was diagnosed in 2013 and

:05:45. > :05:47.like one of your viewers waiting for the biopsy results was agonising.

:05:48. > :05:49.Anything that can help to extend life a little will give a tiny bit

:05:50. > :05:52.of hope to those on that journey. Do get in touch with us

:05:53. > :05:55.throughout the morning - use the hashtag Victoria Live

:05:56. > :05:58.and If you text, you will be charged Andy Murray has got his

:05:59. > :06:05.Australian Open campaign He beat Ukraine's Illya Marchenko

:06:06. > :06:10.in straight sets, although the world number one was made to battle

:06:11. > :06:13.by the world number 95. The match took two hours and 48

:06:14. > :06:16.minutes in the Melbourne heat. Murray faces Russia's Andrey

:06:17. > :06:18.Rublev in round two. Dan Evans is also through

:06:19. > :06:37.to the second round. Marchenko played well. He was

:06:38. > :06:44.playing very fast out there. I found it hard, but managed to get through.

:06:45. > :06:46.Dan Evans is also through to the second round.

:06:47. > :06:49.He beat Argentina's Facundo Bagnis in straight sets and is up

:06:50. > :06:52.against seventh seed Marin Cilic next.

:06:53. > :06:54.But British number four Aljaz Bedene is out.

:06:55. > :06:59.Pep Guardiola says Manchester City are out

:07:00. > :07:04.City lost 4-0 to Everton yesterday and are now three points behind

:07:05. > :07:07.second place Tottenham and 10 points behind league leaders Chelsea.

:07:08. > :07:16.Liverpool missed the chance to go second after a late equaliser

:07:17. > :07:31.The second one is three points. We have to see. I spoke to my players

:07:32. > :07:35.the last three weeks, forget about it, forget about the table, focus

:07:36. > :07:43.and try to do our best, try to make what you want to do to win the games

:07:44. > :07:48.and after that, we are going to weigh up how was our level of

:07:49. > :07:49.performance and then we'll have to decide.

:07:50. > :07:52.Liverpool missed the chance to go second after a late equaliser

:07:53. > :07:54.from Zlatan Ibrahimovic held them to a 1-1 draw against

:07:55. > :08:02.Jurgen Klopp's side are level on points with Tottenham.

:08:03. > :08:07.80 minutes, high intense football, it's really hard. When I saw the

:08:08. > :08:13.boys, I hope we had a little bit of luck. Unfortunately we had maybe one

:08:14. > :08:15.situation, then the next situation we did not.

:08:16. > :08:17.Premier League clubs have been accused of

:08:18. > :08:20.prioritising their finances, over improving disabled

:08:21. > :08:22.access in their stadiums, according to a report

:08:23. > :08:24.by the Culture Media Sport Committee.

:08:25. > :08:26.In 2015 the Premier League promised to improve stadium facilities

:08:27. > :08:28.for disabled fans by August of this year.

:08:29. > :08:31.But several clubs including the likes of Watford,

:08:32. > :08:33.Chelsea Liverpool are expected to miss that deadline.

:08:34. > :08:37.A statement by the Premier League says they are working hard

:08:38. > :08:40.to enhance disabled fan access will report on each club's progress

:08:41. > :08:55.This morning we've heard how some women with terminal cancer

:08:56. > :08:59.who were expecting to be able to take a life-extending drug to

:09:00. > :09:02.give them an extra 6 months life - have now been told they'll no

:09:03. > :09:07.The drug is called Kadcyla - it costs ?90,000 a year,

:09:08. > :09:10.far more than the ?20-?30,000 normally spent on

:09:11. > :09:15.NICE, the body in charge of the NHS's purse strings,

:09:16. > :09:20.has decided it can no longer fund the drug.

:09:21. > :09:24.Bonnie Fox says she was "completely devastated" on finding Kadcyla

:09:25. > :09:28.was no longer available on the NHS, she's considering trying to raise

:09:29. > :09:38.It's so frustrating, it's so upsetting, it's just...

:09:39. > :09:41.I think it's the fact that you know that drug is there,

:09:42. > :09:47.I think if it had never existed then I wouldn't be,

:09:48. > :09:56.I wouldn't have this hope of being able to use it.

:09:57. > :10:02.My name's Bonnie Fox, I was diagnosed with both primary

:10:03. > :10:07.and secondary breast cancer when I was 37, when my little boy

:10:08. > :10:12.We'd tried for quite a while to have him, as well,

:10:13. > :10:15.so it was quite a long road to have him.

:10:16. > :10:19.So, yeah, we finally thought, we'd moved house,

:10:20. > :10:23.finally got pregnant, I spent my pregnancy quite

:10:24. > :10:26.anxious thinking something was going to go wrong,

:10:27. > :10:28.and then he was finally delivered safely.

:10:29. > :10:31.And you think, "Finally, everything's going in our favour,"

:10:32. > :10:34.and then, yeah, a few months down the line you get told

:10:35. > :10:40.so you just kind of think, "Seriously, what else?!

:10:41. > :10:50.What have I done to deserve all this rubbish," basically.

:10:51. > :10:54.I'm hoping I get to see him go to school, but I don't really even

:10:55. > :11:00.let my mind kind of wander even further, exams, university,

:11:01. > :11:07.I've just assumed that I'm not going to be here for things

:11:08. > :11:10.like that so I try not to think about them, I guess,

:11:11. > :11:19.There's no way to describe it, really, it's just feeling

:11:20. > :11:27.heartbroken, I think, that's the only way to describe it.

:11:28. > :11:31.And you're at a point now where the drugs you're currently taking,

:11:32. > :11:36.you know at some point they're going to become ineffective,

:11:37. > :11:39.and that's when the next course of treatment would be Kadcyla?

:11:40. > :11:44.We found out recently that this is probably no longer going to be

:11:45. > :11:49.How did you feel when you first heard that news?

:11:50. > :11:52.It makes me feel worried, it makes me feel angry and frustrated,

:11:53. > :11:55.angry with the drugs company and with the NHS that they haven't

:11:56. > :11:59.been able to find a way through to agree a way forward,

:12:00. > :12:07.In my head, I've thought about how long I can last on each drug,

:12:08. > :12:09.I've got kind of a rough, I guess, timescale laid out.

:12:10. > :12:12."If I have this drug and then I can have this drug

:12:13. > :12:14.for a couple of years, then maybe this drug..."

:12:15. > :12:18.And you kind of bank on those years, they're so precious to you,

:12:19. > :12:21.it's so important that you can squeeze as much time as possible out

:12:22. > :12:26.of the drugs, and to have that suddenly taken away...

:12:27. > :12:31.I mean, everything feels really cruel as it is,

:12:32. > :12:35.but to have that taken away from me when I'm really depending

:12:36. > :12:39.on those extra years, it's just adding a huge amount

:12:40. > :12:43.of anxiety onto already an incredibly anxious situation.

:12:44. > :12:47.And I think that's the hardest thing, I can't begain to explain how

:12:48. > :12:51.it feels when you go for scan results, it's the worst kind

:12:52. > :12:55.of anxiety, and my life is, it's already pretty stressful,

:12:56. > :12:58.I've got this enormous black cloud, I think, hanging over me,

:12:59. > :13:02.that I try to push away as best I can but it's always there,

:13:03. > :13:05.and this is just additional worry, really, additional anxiety.

:13:06. > :13:19.Taking Kadcyla away, there isn't a next step for me in place,

:13:20. > :13:23.so if I'm told that my drugs aren't working, then literally the next day

:13:24. > :13:27.I'm going to need that new drug, and if that's not there for me,

:13:28. > :13:39.I have to have a drug to stay alive, so I need to find

:13:40. > :13:44.Do you think about having to raise the money yourself

:13:45. > :13:49.Yeah, that's always in the back of my mind,

:13:50. > :13:54.When you're told that you have cancer at such a young age,

:13:55. > :13:59.Why am I this one person that's, you know, somehow been singled out

:14:00. > :14:05.And then, yeah, to be told that a drug is taken away from you that

:14:06. > :14:07.could extend your life is just, yeah, it's unfairness on top

:14:08. > :14:20.It's just making you feel even more cheated then you already do, really.

:14:21. > :14:28.Breaking news. Former football coach Barry Bennell has pleaded not guilty

:14:29. > :14:33.in the last few minutes to eight child sex offences, appearing at

:14:34. > :14:38.Chester Crown Court. He's 63. He's a former football coach and he's

:14:39. > :14:42.pleaded not guilty to eight child sex offences at Chester Crown Court.

:14:43. > :14:46.That's in the last few minutes. Barry Bennell, former football coach

:14:47. > :14:53.pleading not it will be to eight child sex offences, appearing at

:14:54. > :15:00.Chester Crown Court. -- pleading not guilty. Let's return to the cancer

:15:01. > :15:01.stories. Here to talk about this this

:15:02. > :15:04.morning is Mani Coulter - she was diagnosed with breast cancer

:15:05. > :15:07.in 2002 and didn't expect to live to see her daughter

:15:08. > :15:10.go to primary school - her daughter is currently

:15:11. > :15:13.taking her GCSE. Gill Smith is in Belfast,

:15:14. > :15:16.she was recommended the drug when she was first diagnosed

:15:17. > :15:18.with breast cancer. She has now been told

:15:19. > :15:20.she won't recieve it. Dr Anna Rigg is an oncologist

:15:21. > :15:22.specialising in breast And we can get some

:15:23. > :15:31.insight into this decision from Richard Torbett

:15:32. > :15:33.from the Association of the British Pharmaceutical Industry

:15:34. > :15:50.and Richard Sullivan Rirp ard has NICE made the right

:15:51. > :15:54.decision? Unfortunately, they have. I feel sorry for patients who are

:15:55. > :15:58.stuck in the middle of this. NICE was created to make sure we have

:15:59. > :16:03.fair and proportional prices for our cancer drugs and for all medicines

:16:04. > :16:06.across the NHS and many, many companies price their cancer drugs

:16:07. > :16:11.in a way that ensures they get NICE approval. So, in a sense, it is not

:16:12. > :16:14.rocket science if you price your drug accordingly for the impact it

:16:15. > :16:19.is going to make on the outcomes and quality of life for patients, you

:16:20. > :16:22.get authorisation from NICE and patients have been stuck in the

:16:23. > :16:30.middle. The really is the price has been set is too high for ofs NHS, it

:16:31. > :16:35.is not a fair price. Richard, why is this drug so expensive? Well, I

:16:36. > :16:40.think the first thing to clarify is I don't think this is a final

:16:41. > :16:45.decision yet by NICE on Kadcyla. I have got a couple of statements from

:16:46. > :16:49.NICE and from Roche which makes it sounds there is potential for some

:16:50. > :16:56.kind of solution, but why is it so expensive? That's true. Medicines

:16:57. > :17:02.are often expensive for a limited period of time whilst the medicine

:17:03. > :17:07.is protected by patents after which they become very cheap, indeed. So

:17:08. > :17:14.it could go from ?90,000 to what? It could be substantially lower. If we

:17:15. > :17:18.had been having this conversation in the 1990s, we were worried that

:17:19. > :17:23.statins were going to bankrupt the NHS. Now a month's supply of a

:17:24. > :17:30.statin costs less than a cup of coffee. What's the patent time frame

:17:31. > :17:34.then? When does that run out? Often medicines are protected by this

:17:35. > :17:38.period for in practise between eight and ten years on the market. That's

:17:39. > :17:44.a long time when you have got terminal breast cancer. It is a long

:17:45. > :17:52.time, companies put in, companies spend over $100 billion every year

:17:53. > :17:56.researching new medicines and the, there is a need to have a certain

:17:57. > :18:01.higher price for a limited period of time in order to make sure that that

:18:02. > :18:06.research effort to make progress can continue. Now, that doesn't mean

:18:07. > :18:11.that the price should be limitless and in practise there needs to be

:18:12. > :18:14.and indeed is a very tough negotiation between pharmaceutical

:18:15. > :18:18.companies and the NHS through NICE. The ?90,000 that we hear in this

:18:19. > :18:23.case and in fact, many of the prices, most of the prices, that are

:18:24. > :18:28.discussed publicly are the starting point of the negotiation. These are

:18:29. > :18:32.list prices, not the real prices. Is it true that roach gave a discount

:18:33. > :18:46.to NICE. What was the discount? What did it bring down to? I don't work

:18:47. > :18:51.for Roche. It won't be shared. It is a substantial discount. We are

:18:52. > :18:55.asking NICE and Roche to take action. We believe there are

:18:56. > :18:59.decisions that NICE made when appraising the treatment which made

:19:00. > :19:06.it hard tore get through that might otherwise have been. Mani, professor

:19:07. > :19:11.of cancer Richard Sullivan said that NICE made the right des, what do you

:19:12. > :19:19.say? I definitely don't agree with that. I was on Kadcyla five years

:19:20. > :19:22.ago. So when they banned six month increase survival rate, I'm five

:19:23. > :19:27.years progression free since being on that drug. I was on it for three

:19:28. > :19:31.years. The point, when I started Kadcyla, I was desperate. There were

:19:32. > :19:37.no options for me at all. The cancer was on my skin. It was travelling

:19:38. > :19:43.rapidly and there was nothing else and I was lucky I enrolled on to a

:19:44. > :19:48.clinical trial for Kadcyla, so I as on it for nearly three years, but it

:19:49. > :19:53.didn't just buy me three years, it gave me opportunity to go on to

:19:54. > :19:58.another drug that wasn't available when I applied for the Kadcyla.

:19:59. > :20:01.So... Do you accept that it can extend women's life for longer than

:20:02. > :20:07.the six months and the communications I have had today are

:20:08. > :20:11.from women who are still here... This is an important drug. We need

:20:12. > :20:18.new drugs in the treatment of cancer. The issue and you've run the

:20:19. > :20:21.story today, the information is under phenomenal budgetary patients.

:20:22. > :20:25.We have patients in our waiting rooms and on trolleys, the reality

:20:26. > :20:28.is we need to get fair prices for the medicines, whether they are

:20:29. > :20:32.cancer drugs or drugs for dementia into the NHS and at the moment the

:20:33. > :20:40.price which has been put forward even with the discount was clearly

:20:41. > :20:45.not a fair price. Ann Rigg, you work in the NHS, is Richard right? No, I

:20:46. > :20:50.disagree with him. I think encology is a speciality which is driven by

:20:51. > :20:54.evidence. I think there is very good evidence from the original clinical

:20:55. > :20:58.trials that were done with this drug and in fact, it was so good that it

:20:59. > :21:03.was approved in many countries including Britain and was funded by

:21:04. > :21:06.the Cancer Drugs Fund. So in fact, myself and my counterparts around

:21:07. > :21:10.the country have been using this drug since 2014. So as well as the

:21:11. > :21:14.original trial evidence we now have at least two years of experience of

:21:15. > :21:20.treating women with this medicine. How does it work? Why is it so good?

:21:21. > :21:25.It is a very unusual drug. It is a combination of two drugs which have

:21:26. > :21:29.been chemically linked together. One is a molecule which when you inject

:21:30. > :21:37.it into the body, travels round and will try and find cells which have

:21:38. > :21:42.got this HER2 protein and it seeks them out and most of your normal

:21:43. > :21:47.cells don't have the protein. The manufacturers have linked a

:21:48. > :21:54.chemotherapy drug on to the molecule so that it takes the chemotherapy to

:21:55. > :21:57.where it is needed. It does have some side-effects, but my experience

:21:58. > :22:01.and the experience of my counterparts is that it is very well

:22:02. > :22:07.tolerated and perhaps you can talk about that. Let me ask Gill about

:22:08. > :22:11.that. You were told, Gill you would be able to get Kadcyla. As it stands

:22:12. > :22:17.at the moment, that is not going to be the case, is it? Well, let's hope

:22:18. > :22:20.that it will be the case because let's hope that some kind of

:22:21. > :22:27.agreement can be reached between Roche and NICE. The point that I'd

:22:28. > :22:32.like to make is that, it is a crazy system when the drugs companies

:22:33. > :22:36.invest a vast amount of money into developing a revolutionary new drug

:22:37. > :22:39.which everybody agrees is phenomenally successful and gives

:22:40. > :22:41.great quality of life for a substantial period of time and then

:22:42. > :22:45.it is not available in this country to the people who need it. It is

:22:46. > :22:51.available in other countries, it is not funded here. So, there is a real

:22:52. > :22:58.failure of imagination, I think, on behalf of the policy makers to fail

:22:59. > :23:02.to find some sort of way of funding these new drugs on which other drugs

:23:03. > :23:09.will be developed in the future. We need people like me to be on the

:23:10. > :23:14.drugs so that lessons can be learnt and more people in future will be

:23:15. > :23:19.able to get even better drugs. Do you want to respond? I couldn't

:23:20. > :23:22.agree more. All needs need to work together and indeed, we are working

:23:23. > :23:27.together to try and make sure that there is a better and better, faster

:23:28. > :23:36.and faster way of making good deses for the NHS. -- decisions for the

:23:37. > :23:41.NHS. The NHS budget is tight. We have to, NICE's role is important in

:23:42. > :23:46.holding us to account as an industry to make sure that the medicines we

:23:47. > :23:49.bring to market are value for money. We need to make that conversation

:23:50. > :23:53.happen as quickly as possible for Kadcyla so that patients can get

:23:54. > :23:56.access as quickly as possible. You are an advocate, your charity is an

:23:57. > :24:01.advocate for women with breast cancer, but you must accept, don't

:24:02. > :24:04.you, that clearly, you know, finances, that there is not a

:24:05. > :24:09.bottomless pit of money when it comes it the NHS? We do accept that.

:24:10. > :24:13.We feel in this instance there are things that could have been done in

:24:14. > :24:17.the process that would make the drug available and what's distressing for

:24:18. > :24:22.women in this situation, the drug has been available on the NHS. Women

:24:23. > :24:26.who thought they were going to get this treatment, they thought they

:24:27. > :24:30.would have extra time with their families and good quality of life,

:24:31. > :24:35.are seeing this cruelly being withdrawn from them and that's

:24:36. > :24:40.heartbreaking for them. Let me read the statements from NICE and Roche.

:24:41. > :24:43.We asked both for an interview and Roche said, "They're maintaining an

:24:44. > :24:47.open dialogue with NICE and NHS England have offered improved

:24:48. > :24:50.schemes and solutions to try to keep this medicine available to patients.

:24:51. > :24:54.This is not the end of the line for patients. We want to get back around

:24:55. > :24:58.the table with NICE to turn this preliminary decision around and

:24:59. > :25:02.ensure we all do the right thing for patients and their families.

:25:03. > :25:05.Families." Does that suggest there will be a major discount? Well, I

:25:06. > :25:09.would hope there will be a proper conversation between Roche and

:25:10. > :25:13.NICE... Is that what that statement sounds like. If we have to read

:25:14. > :25:19.between the lines. There is no other way of reading that. I know you're

:25:20. > :25:25.not speaking on behalf of a Roche. You as a man with a brain? There is

:25:26. > :25:30.a real question about how NICE has examined the medicine. Their

:25:31. > :25:35.analysis is based on a comparison with a medicine that is not the

:25:36. > :25:39.standard treatment of breast cancer patients in the UK. Not available in

:25:40. > :25:42.the NHS. So I think there is a question. There is some questions

:25:43. > :25:45.for NICE to answer here. And questions probably for the company

:25:46. > :25:50.as well and that discussion needs to happen in private. A brief final

:25:51. > :25:57.word, go on. Yes, I mean, I represent a group called the UK

:25:58. > :26:06.Breast Cancer Group and we are intending to lobby NICE and 200 of

:26:07. > :26:12.us treat breast cancer patients. Can I just say? When you've got

:26:13. > :26:16.incurable cancer, things happen fast. So we can't, you know, we need

:26:17. > :26:21.decisions made very quickly. Otherwise people will die. A final

:26:22. > :26:28.point from Gill in Belfast. What sort of system allows it to be

:26:29. > :26:32.available funded previously by the breast cancer fund, and maybe when

:26:33. > :26:36.the patent comes out, but for those of us caught in the middle, we don't

:26:37. > :26:37.get it. What a ridiculous system. Thank you very much. We will see

:26:38. > :26:49.what happens. Thank you. Barry Bennell pleaded not guilty to

:26:50. > :26:54.eight sexual offence charges dating back to between 19.81 and 1985. Our

:26:55. > :26:58.correspondent Andy Swiss is at Chester Crown Court where the

:26:59. > :27:04.hearing has taken place. Andy, tell our audience the details.

:27:05. > :27:09.Well, Barry Bennell pleaded not guilty to eight charges of sexual

:27:10. > :27:15.assault against a boy aged under 15 years of age. These offences are

:27:16. > :27:20.alleged to have taken place between 19.81 and 1985 at three separate

:27:21. > :27:26.locations in Derbyshire, at Nantwich in Cheshire and also at a but lin's

:27:27. > :27:29.holiday camp. He was charged following an investigation by

:27:30. > :27:34.Cheshire Police which was completed in September last year. Now, Barry

:27:35. > :27:42.Bennell didn't appear in court in person as at his previous hearing in

:27:43. > :27:49.Crewe last month, he appeared viedia a video Lunning. He was wearing a

:27:50. > :27:53.blue jumper and spoke only to confirm his name and not guilty

:27:54. > :28:00.pleas. He is a youth coach. Perhaps best known for his work with Crewe

:28:01. > :28:05.Alexander. He worked for Manchester City and Stoke City. He has been

:28:06. > :28:10.remanded in custody until his next hearing which will take place on at

:28:11. > :28:12.Chester Crown Court on 20th March. Thank you very much, Andy Swiss

:28:13. > :28:18.reporting. Next - claims from Oxfam

:28:19. > :28:20.that the world's eight richest people have as much wealth

:28:21. > :28:23.as the 3.6 billion people who make Next - claims from Oxfam

:28:24. > :28:28.that the world's eight richest Those richest eight billionaires

:28:29. > :28:30.are Bill Gates, the co-founder of Microsoft who is worth $75

:28:31. > :28:33.billion, Amancio Ortega, the founder of Inditex, which owns clothes store

:28:34. > :28:35.Zara amongst others - Warren Buffett,

:28:36. > :28:42.the largest shareholder in conglomerate Berkshire Hathaway,

:28:43. > :28:47.who's worth $60.8 billion. Carlos Slim Helu, the owner

:28:48. > :28:49.of another conglomerate called Grupo Carso, who's

:28:50. > :28:52.worth $50 billion. A conglomerate by the way

:28:53. > :28:55.is a number of corporations The fifth richest billionaire

:28:56. > :28:58.is Jeff Bezos, the founder and chief executive of Amazon,

:28:59. > :29:00.who's worth $45.2 billion. the boss of Facebook

:29:01. > :29:07.who is worth $44.6 billion. Then Larry Ellison, the co-founder

:29:08. > :29:09.and chief executive of Oracle, a computer technology corporation,

:29:10. > :29:13.who is worth $43.6 billion. And finally,

:29:14. > :29:16.the eighth-richest billionaire is Michael Bloomberg, who owns

:29:17. > :29:18.Bloomberg LP and is Bloomberg is a financial software,

:29:19. > :29:24.data, and media company. So, eight billionaires, all men,

:29:25. > :29:27.six of them American, whose combined wealth is estimated

:29:28. > :29:32.at over $427 billion. But are they really worth more

:29:33. > :29:51.than half of the world? Anthony Reuben has been checking

:29:52. > :29:55.this out. Dot figures add up? It is hard to measure the wealth of very,

:29:56. > :30:00.very rich people and very poor people. Oxfam haven't done it

:30:01. > :30:04.themselves. They have got figures from Credit Suisse and Forbes and

:30:05. > :30:10.what they concluded this figure of eight having the same wealth as the

:30:11. > :30:14.poorest half, is it exactly eight? We're not sure. They have had to

:30:15. > :30:18.make assumptions along the way about whether being in debt makes you

:30:19. > :30:22.poorer than somebody who has nothing because clearly there are some

:30:23. > :30:27.people who are in debt and who have decent lifestyles, but it is fair to

:30:28. > :30:30.say that there are a lot of very, very poor people and there are a

:30:31. > :30:33.small number of people with extremely large amounts of wealth.

:30:34. > :30:38.What's difficult to say, is whether this is getting better or worse

:30:39. > :30:42.because the data sources that Credit Suisse use change each year and they

:30:43. > :30:46.have more information particularly about the poorest people. There is

:30:47. > :30:50.also an argument about whether wealth is what matters? We do have a

:30:51. > :30:54.fairly good idea that the income of the poorest people has been getting

:30:55. > :30:55.better, but I'm sure Oxfam will be keen to explain why wealth is

:30:56. > :31:00.important as well. Cheers, Anthony. With us in the studio

:31:01. > :31:02.is Katy Wright from Oxfam, and Kate Andrews from the free

:31:03. > :31:14.market think-tank the Institute Katy Wright, what is the point then

:31:15. > :31:19.of this? The point of this is really to show you and me how we are living

:31:20. > :31:22.in a world of vast economic inequality, an inequality crisis

:31:23. > :31:27.where you have got, as has been said, eight people who have the same

:31:28. > :31:31.wealth as 3.6 billion others. The point for Oxfam actually is to say

:31:32. > :31:34.that it's not just that there's this gross disparity of wealth but it's

:31:35. > :31:39.the same economic system and policies that are causing this

:31:40. > :31:43.extreme wealth that are also perpetuating poverty and we won't

:31:44. > :31:48.overcome poverty unless we tackle inequality. So the system has to

:31:49. > :31:52.change? Exactly. There seems to be little

:31:53. > :31:57.referencethe fact that in 2016 alone, over 100 million people were

:31:58. > :32:01.brought out of absolute poverty, specifically in China and India.

:32:02. > :32:05.Those are systems that have embraced the free market and capitalism

:32:06. > :32:08.because it's the best provider of wealth and income for everyone

:32:09. > :32:11.across-the-board. I'm not so bothered about the ratio between the

:32:12. > :32:16.rich and poor, I care most about the poor and how well they are faring.

:32:17. > :32:21.Why do you laugh when she says that? Well, because I mean it's just the

:32:22. > :32:26.classic bunk that we hear to justify this. Let's talk about how the

:32:27. > :32:33.poorest have fared right. Since 1988, the poorest 10% of the plan

:32:34. > :32:37.vet got richer by about $3 a year so for all the great economic stories

:32:38. > :32:43.of growth, getting what you and I might spend on a coffee every day a

:32:44. > :32:46.year, you know, 700 million more people could have been brought out

:32:47. > :32:52.of poverty had we had more equal growth. To celebrate some people

:32:53. > :32:57.having crumbs when everyone else is enjoying the whole cake... Is that a

:32:58. > :33:01.fair point? It's the case where some people haven't seen as much growth

:33:02. > :33:05.in wealth as they could have, usually because the Governments

:33:06. > :33:09.prevent it. The issue of croneyism is problematic. Where we do see

:33:10. > :33:15.people coming out of poverty, this is where they are embracing

:33:16. > :33:22.capitalism, in China and India. We need to tackle the dictatorships,

:33:23. > :33:27.that are keeping people living on less than $3. Oxfam's report, they

:33:28. > :33:34.are trying to suggest that the aggregated net wealth of a person is

:33:35. > :33:48.what is going to determine their wealth. So you are saying that a

:33:49. > :33:55.Harvard graduated student is graduating with $100,000 a year so

:33:56. > :33:59.he looks poorer than an Indian farmer. People show up poor even

:34:00. > :34:04.though they may be potentially going to have quite high earnings, the

:34:05. > :34:10.classic one is the Harvard graduate. Let's be clear, this is a tiny

:34:11. > :34:15.number of people. The average of the 3.6 billion people live in really

:34:16. > :34:19.poor places. But the... One second. The debt is showing up in poor

:34:20. > :34:22.countries as well. That is not people with student loans, that is

:34:23. > :34:25.people borrowing because the harvests are failed, going from

:34:26. > :34:30.money lender to money lender to money lender, people selling what

:34:31. > :34:34.they have to pay for medical costs, as we were speaking to people in

:34:35. > :34:35.Vietnam the other way. We've got to leave it there, but thank you very

:34:36. > :34:37.much. Donald Trump will be sworn

:34:38. > :34:41.in as the 45th president This morning he's been setting

:34:42. > :34:45.out some of his views. We'll hear from him and some

:34:46. > :34:47.of his supporters in Texas. And nearly half of working fathers

:34:48. > :34:50.would like a less stressful job so they can spend more time caring

:34:51. > :34:53.for their children. We speak to working dads,

:34:54. > :34:56.who have given up or are thinking about quitting high powered jobs

:34:57. > :35:20.to achieve a better Donald Trump has promised that a

:35:21. > :35:25.trade deal will be his priority when he takes off on Friday. He spoke to

:35:26. > :35:28.Michael Gove for the Times in his first British interview since

:35:29. > :35:31.becoming US President Elect. He also said he'd ask his son-in-law to

:35:32. > :35:38.negotiate a Middle East peace agreement and would seek a deal with

:35:39. > :35:42.Russia to reduce nuclear weapons. The former craics coach Barry

:35:43. > :35:45.Bennell has pleaded not guilty to eight child sex offences during a

:35:46. > :35:50.plea hearing at Chester Crown Court this morning -- Crewe Alexandra. All

:35:51. > :35:55.the offences are alleged to have happened between 1981 and 1985 when

:35:56. > :35:58.the alleged victim was under 15. Unconfirmed reports say five people

:35:59. > :36:04.have been killed after a gunman opened fire at a music event in

:36:05. > :36:13.Mexico. Eyewitnesses say the gunman fired through an open window at a

:36:14. > :36:16.Club. It was opening a party for a festival. Join me nor BBC newsroom

:36:17. > :36:23.live at 11, see you then. Andy Murray has got his

:36:24. > :36:26.Australian Open campaign The world number one beat

:36:27. > :36:31.Illya Marchenko in straight sets. He's attempting to win his first

:36:32. > :36:33.Australian Open title Dan Evans is also through

:36:34. > :36:37.to the second round. He beat Facundo Bagnis in straight

:36:38. > :36:40.sets and will play Marin Cilic next. Pep Guardiola says Manchester City

:36:41. > :36:44.are out of the title race. They lost 4-0 to Everton yesterday

:36:45. > :36:47.to leave them ten points Liverpool go third after a 1-all

:36:48. > :37:00.draw at Manchester United. This picture shows Michael Gove,

:37:01. > :37:02.former Justice Secretary and Brexit campaigner,

:37:03. > :37:05.with the next US Just behind Michael Gove,

:37:06. > :37:13.you might be able to see a picture of a Playboy magazine cover

:37:14. > :37:20.featuring Donald Trump on the cover. I thought the UK was so smart

:37:21. > :37:23.in getting out and you were there and you guys wrote it and put it

:37:24. > :37:26.on the front page. Trump said that Brexit

:37:27. > :37:28.was going to happen. That is when it was

:37:29. > :37:33.going to lose easily. Obama said they'd go go

:37:34. > :37:37.to the back of the line. And the UK wanted its own identity,

:37:38. > :37:52.but I do believe this - if they hadn't been forced to take

:37:53. > :37:56.in all of the refugees, so many, with all the problems that it

:37:57. > :38:00.entails I think you wouldn't Donald Trump also revealed

:38:01. > :38:25.his and his mother's The UK, my mother was very

:38:26. > :38:30.ceremonial. I think that's why I got this aspect because my father was

:38:31. > :38:34.bricks and mortar and my mother sort of had a flair. She loved the Queen,

:38:35. > :38:40.she loved anything, she was so proud of the Queen. She loved the

:38:41. > :38:44.ceremonial and beauty, because nobody does that like the English

:38:45. > :38:48.and she had great respect for the Queen and liked her. Any time the

:38:49. > :38:57.Queen was on television, an event, my mother would be watching.

:38:58. > :39:02.Trump supporters see this as a triumph for those who're

:39:03. > :39:07.antiestablishment. Critics worry about democracy. Newsbeat's

:39:08. > :39:11.political team Jonathan Blake and Declan Harvey travelled 2,000 miles

:39:12. > :39:18.around Texas to speak to voters putting their trust in Donald Trump.

:39:19. > :39:20.# I was born to lead # The land of the free...

:39:21. > :39:25.The Americans who voted for Donald Trump

:39:26. > :39:27.weren't just the people you saw on the news.

:39:28. > :39:37.Supporters believed only the Donald could make America

:39:38. > :39:42.I needed and wanted to see jobs coming back to America.

:39:43. > :39:45.God has a big thing to do with it in my

:39:46. > :39:51.That war will go up so fast, your head will

:39:52. > :39:56.We are on a 2,500 mile road trip round the great state of Texas

:39:57. > :40:21.to hear why so many have put their trust in Donald Trump.

:40:22. > :40:25.We are in Austin this morning, and off to meet

:40:26. > :40:29.a young lady called Hannah, who voted for Donald Trump.

:40:30. > :40:32.It will be really interesting to hear her

:40:33. > :40:36.reasons for voting for him, and particularly as a woman, I guess,

:40:37. > :40:39.because we know the things he's said, his attitudes to women have

:40:40. > :40:45.But it with just be interesting to see whether that

:40:46. > :40:50.swayed her at all, and the reasons she gives for still supporting him.

:40:51. > :40:56.# If Donald Trump had said all the things he said he said...

:40:57. > :41:00.Small minority in Austin because he is a

:41:01. > :41:03.trump voter and he does not have a lot of support here,

:41:04. > :41:19.I was kind of laughing and crying at the same

:41:20. > :41:23.I was like, I don't know what's happening any more because I

:41:24. > :41:26.obviously did not expect him to win the code you were surprised?

:41:27. > :41:31.I want to see jobs coming back to America.

:41:32. > :41:34.It is an important issue for me, which true me to him.

:41:35. > :41:47.Our jobs are being stolen like own from a baby.

:41:48. > :41:49.Our jobs are being stolen like candy from a baby.

:41:50. > :41:51.It's not going to happen any more, folks.

:41:52. > :41:53.That is an issue, looking for more full-time

:41:54. > :41:56.And I keep getting told after the fourth

:41:57. > :41:59.interview, we liked you, we loved your interview, but we went with

:42:00. > :42:02.somebody who was willing to take a $10,000 pay cut and who has been

:42:03. > :42:06.He's been criticised for the comments he has

:42:07. > :42:08.made about women, being able to grab a woman

:42:09. > :42:10.and do what you want and

:42:11. > :42:13.other things - were you worried at all about what that said about him

:42:14. > :42:21.I listened listen to rap music, I listen to Wu-Tang Clan!

:42:22. > :42:25.You walk by smelling like water melon...

:42:26. > :42:29.I can't be ideological consistent and say that that bothers

:42:30. > :42:33.So what three things are you trusting Donald Trump to do in order

:42:34. > :42:36.to make sure that you don't regret voting for him?

:42:37. > :42:38.Right, do three things that I am trusting Donald

:42:39. > :42:42.Trump to do are to build the wall, as he said he would, to bring jobs

:42:43. > :42:44.back to the US, and to increase the growth of the economy.

:42:45. > :42:46.And then to appoint Supreme Court justices who

:42:47. > :42:49.are going to uphold the constitution in a strict way.

:42:50. > :42:51.Which particular bits of the constitution are you

:42:52. > :42:54.concerned about and you would like to see upheld?

:42:55. > :42:56.So, the laws regarding free speech are important

:42:57. > :43:00.to me, and the laws that protect that free speech, our right to

:43:01. > :43:07.If you're worried about paying your bills at the end of the month, then

:43:08. > :43:14.She's struggled to find a job since college, and when it comes

:43:15. > :43:17.down to it, she's voted for the guy who he says can improve her

:43:18. > :43:21.And I think if you combine that with the social issues

:43:22. > :43:23.that are in court to people, things like abortion and immigration,

:43:24. > :43:27.managed to achieve the level of support he did.

:43:28. > :43:37.# Don't sit around and cry # Just roll me up and

:43:38. > :43:51.So, we headed more into the centre of Texas.

:43:52. > :43:55.And we're going to meet a 26-year-old who's never been

:43:56. > :43:58.involved in politics before, but he said Donald Trump made him

:43:59. > :44:19.# Just roll me up and smoke me when I die.

:44:20. > :44:21.So, the night of the election, were you watching

:44:22. > :44:23.the results come in, and what was your reaction?

:44:24. > :44:28.God has a big thing to do with it in my life,

:44:29. > :44:31.but I think he took care of it, in my opinion.

:44:32. > :44:32.Were there things that Donald Trump specifically

:44:33. > :44:35.said that you thought, yes, that's why he'll get my vote?

:44:36. > :44:38.They're bringing crime, they're rapists, and some

:44:39. > :44:43.There are so many people in this country living for free,

:44:44. > :44:48.and I'm paying for them, and that's very aggravating for me.

:44:49. > :44:51.Because taxes, I'm feeding people's families that aren't even

:44:52. > :44:58.Prisons, they're full of illegal immigrants as well.

:44:59. > :45:04.And that's more money going down the drain from me

:45:05. > :45:06.and from our country, because we're putting it in, too.

:45:07. > :45:09.Your father came to this country illegally from Central America -

:45:10. > :45:12.did that have any impact on how you voted for what you feel

:45:13. > :45:23.My dad, in the '80s, he immigrated to this country illegally.

:45:24. > :45:25.But the thing that differentiates him from the average

:45:26. > :45:29.fella on the street is, he actually did it the right way.

:45:30. > :45:35.He started working, worked hard, and he came up from nothing.

:45:36. > :45:38.He became legal as soon as he could, once he got everything established.

:45:39. > :45:44.He took the steps and he did it the right way.

:45:45. > :45:47.When there's so many people that are just living in the shadows

:45:48. > :45:49.and doing everything sketchy, in my opinion -

:45:50. > :45:51.that's a weird word, but it's just not right.

:45:52. > :45:54.Are you expecting Donald Trump to literally build a wall now,

:45:55. > :45:57.or did you see it as more a metaphor, to say, we're

:45:58. > :46:02.Are you expecting him to put bricks down?

:46:03. > :46:09.Barack Obama said he was going to step up border enforcement,

:46:10. > :46:15.And personally I've been down to the border on hunting trips.

:46:16. > :46:17.And it's just crazy, the amount of tax dodgers you see

:46:18. > :46:19.running around that part of the country, down

:46:20. > :46:24.I mean, every two miles you drive, you see a US border patrol truck,

:46:25. > :46:29.If that money was filtered into a physical wall,

:46:30. > :46:31.like you're saying, laying bricks down, that could make

:46:32. > :46:35.a definite impact on the situation in some areas.

:46:36. > :46:38.But some areas are so impassible, that a wall, it's not feasible

:46:39. > :46:47.What are you then trusting Donald Trump to deliver on, now that

:46:48. > :46:51.We're going to get rid of the criminals and stuff like that.

:46:52. > :46:55.And hopefully, just bring the country together,

:46:56. > :46:58.and that's going to make America great, or...

:46:59. > :47:02.When was the last time America was great?

:47:03. > :47:17.That was around the time your dad came, yes.

:47:18. > :47:20.There's no getting away from the fact that his dad walked

:47:21. > :47:23.for three days across the desert to illegally come to

:47:24. > :47:27.the US during the 1980s, and one generation on,

:47:28. > :47:29.he's voting primarily to stop that immigration and others

:47:30. > :47:33.But you know, he didn't vote for Donald Trump

:47:34. > :47:38.because he literally expected a wall.

:47:39. > :47:40.I think we're so used to, in politics, people

:47:41. > :47:45.But this is different, they don't expect Donald Trump

:47:46. > :47:49.to deliver word for word, they just generally like

:47:50. > :47:51.what he's saying and if he comes kind of close to that,

:47:52. > :47:57.then that might be good enough for them.

:47:58. > :47:59.We've come south to San Antonio to meet a more reluctant Trump voter.

:48:00. > :48:03.So, Donald Trump won, how did you feel when you saw the result?

:48:04. > :48:06.I'm not jumping up and down elated that he's the president.

:48:07. > :48:10.But I am jumping up and down elated that Hillary Clinton isn't, I guess!

:48:11. > :48:12.Religious freedom is very important to me.

:48:13. > :48:13.And Hillary Clinton has already pretty much declared

:48:14. > :48:20.Cultural codes, religious beliefs, have to be changed.

:48:21. > :48:23.So that's just one thing, just the fact that if you feel

:48:24. > :48:26.like you can take away one of our rights, you feel

:48:27. > :48:31.The things he said about women, the things he said

:48:32. > :48:33.about black people, does any of that worry you and did

:48:34. > :48:47.Trump has definitely said some negative things about black people,

:48:48. > :48:52.But personally, my identity comes from so much more than being black.

:48:53. > :48:55.I have a military background, my dad was in the Air Force for 20

:48:56. > :48:57.years, I'm a Christian, I was home-schooled.

:48:58. > :48:59.And these are all values that are very, very important to me.

:49:00. > :49:02.What three things are you now trusting Donald Trump to do,

:49:03. > :49:05.now that you voted for him and he's been elected president?

:49:06. > :49:08.I'm trusting Donald Trump first off to take our national security

:49:09. > :49:12.I'm trusting him to protect all of our rights in the Bill of Rights,

:49:13. > :49:14.the right to bear arms, the rights to freedom

:49:15. > :49:18.And I'm trusting him to protect parents' rights to make decisions

:49:19. > :49:20.regarding their children's health and education and

:49:21. > :49:27.Everyone I think without fail who we've met that voted for Trump

:49:28. > :49:30.spoke really strongly about how much they don't like Hillary Clinton.

:49:31. > :49:33.There is no middle ground, you either love her or you hate her.

:49:34. > :49:36.They don't like her more than they DO like HIM,

:49:37. > :49:40.One more stop, and that's to meet a member of Donald

:49:41. > :49:51.Were you always a supporter of him, did you always have a good feeling

:49:52. > :49:57.Donald Trump was probably the bottom of my list.

:49:58. > :50:03.I've seen a genius in him that must also reflect well

:50:04. > :50:09.Many people will feel like they haven't seen any signs

:50:10. > :50:21.of genius - can you explain to them what genius you're seeing?

:50:22. > :50:24.The only true genius I think is not how much talent you have,

:50:25. > :50:26.but using what's around you, using your personal resources,

:50:27. > :50:29.going through and figuring out who can do the jobs that you can't.

:50:30. > :50:32.Was there anything that he did during the campaign that made

:50:33. > :50:35.Well, it's hard to say, because there were certain things

:50:36. > :50:41.He didn't go into abortion, we hardly heard a word about it.

:50:42. > :50:42.He didn't say anything about homosexuality, hardly,

:50:43. > :50:44.and those issues are pretty important to the social

:50:45. > :50:48.If you're a social conservative, a Bible-believing Christian,

:50:49. > :50:50.you believe that God is on the throne, not man.

:50:51. > :50:52.Why does God keep coming up in politics here?

:50:53. > :51:00.I'm sure he's not evangelical or a Bible student, but I think

:51:01. > :51:02.lately, he's starting to wake up a little bit.

:51:03. > :51:04.You've seen his language change somewhat.

:51:05. > :51:07.Do you think he's in the process of finding God as he becomes

:51:08. > :51:14.I don't know if in his position he would be able to pursue Christ

:51:15. > :51:17.as a humble person - it would be very difficult as president.

:51:18. > :51:19.Also with his track record, he hasn't demonstrated much poverty

:51:20. > :51:25.I think that is an issue with many conservatives,

:51:26. > :51:28.that's why he didn't do so well in Texas the first time.

:51:29. > :51:30.So, what are you trusting Donald Trump to do, then?

:51:31. > :51:32.I'm trusting him to build a coalition.

:51:33. > :51:40.He's not going to be able to lead if he doesn't have the right people,

:51:41. > :51:41.because he's brand-new to the process.

:51:42. > :51:49.With the benefit of hindsight, which is a wonderful thing, not

:51:50. > :52:02.surprising that Donald Trump won this election, and won convincingly.

:52:03. > :52:05.Not only has Donald Trump become president - there were other

:52:06. > :52:08.elections going on at the same time for the Senate and the House

:52:09. > :52:12.of Representatives, America's parliament.

:52:13. > :52:14.And the Republican Party now has complete control,

:52:15. > :52:17.which will make Donald Trump's life a lot easier in terms of passing

:52:18. > :52:35.If you want to watch that film again, you can find

:52:36. > :52:40.Nearly half of working fathers would like a less stressful job

:52:41. > :52:44.so they can spend more time caring for their children.

:52:45. > :52:48.A study for the charity working families says about a third of dads

:52:49. > :52:50.would take a pay cut to achieve a better work-life balance.

:52:51. > :52:54.Martin Daubney is a dad of two and former editor

:52:55. > :52:57.He resigned from his job after the birth of his

:52:58. > :53:00.Mohsin Jameel, a dad of three who run his own company

:53:01. > :53:03.but wants to spend more time to with his children.

:53:04. > :53:08.He quit his job two years ago to work from home so he could look

:53:09. > :53:19.Right, just briefly describe the kind of work you're in and why you

:53:20. > :53:24.need to be there 24/7? I'm running a financial services firm which is

:53:25. > :53:28.boutique. We are dealing in the foreign exchange market and we allow

:53:29. > :53:32.the trade tors deal on different stocks and shares. This is my

:53:33. > :53:37.business to be honest. I'm heading the business for the last six years.

:53:38. > :53:41.It is my own business. I feel that I have been occupied with my business

:53:42. > :53:44.inside out for the last six years and I have given too much time. Of

:53:45. > :53:50.course, when you start a business, there is a lot of input which comes

:53:51. > :53:54.from the owner's side. So travelling, putting my head down

:53:55. > :53:59.with the business, since it is a 24 hour market I have to be vigilant on

:54:00. > :54:03.that side. It is in a fraction of a second you are on the other side of

:54:04. > :54:07.the game and you lose the business completely. How old are your

:54:08. > :54:10.children? I've got three. The older one is nearly 13 now and I have

:54:11. > :54:14.another son who is ten and a daughter who is eight. We are just

:54:15. > :54:17.seeing a picture of them now, you would like to spend more time with

:54:18. > :54:23.them? I would like to spend more time with them. You can see how he

:54:24. > :54:29.needs to be there and vigilant with his business. What advice would you

:54:30. > :54:36.give to him? You're realising the richness of spending time with your

:54:37. > :54:40.children which is a richness beyond salary or remuneration, when I

:54:41. > :54:45.jacked my job in, when I was working 70 hours a week and not only seeing

:54:46. > :54:51.my child at bath time and story time, but not seeing my wife, it was

:54:52. > :54:55.making me miserable. I thought what's my life about? Is it about

:54:56. > :55:00.success as a business person or success as a human? And I just... I

:55:01. > :55:03.mean, again, this is the kind of thing we used to say to women, can

:55:04. > :55:08.men have it all? Are you saying you can't now? Today's report pointed

:55:09. > :55:12.out something really interesting and that's while more men are prepared

:55:13. > :55:19.to admit they want to spend more time which by is a beautiful thing,

:55:20. > :55:23.we aren't supported through shared parental leave. We get two weeks

:55:24. > :55:28.statutory minimum pay and that's it, so we have to go back to work when

:55:29. > :55:32.we don't want to. So we are seeing men down skilling because they want

:55:33. > :55:38.that balance. So we are seeing this fatherhood gap emerging. Tom, do you

:55:39. > :55:44.agree there is a fatherhood gap? I would agree with that view, yeah.

:55:45. > :55:47.It's very difficult. Workplaces don't, they still don't understand

:55:48. > :55:52.what it can be like for working parents who also happen to be male,

:55:53. > :55:57.yes. So, do you think men can have it all? A fulfilling successful job

:55:58. > :56:03.and all that time with the kids that they want? I don't know about having

:56:04. > :56:07.it all! I do often say thave' got the best of both worlds though so

:56:08. > :56:11.maybe I'm contradicting myself. Because you work from home? It is

:56:12. > :56:16.not perfect, but yeah, so I work from home so I get more time with

:56:17. > :56:21.the kids and my wife and I get to do my work as well. It's stressful like

:56:22. > :56:24.any other existence, but it is certainly better than my previous

:56:25. > :56:28.existence for sure. What are you going to do then? What changes are

:56:29. > :56:32.you going to make or are you considering making? As my son is

:56:33. > :56:36.growing, he has gone it a secondary school. There he looks at me as a

:56:37. > :56:39.mentor, as someone who can come forward and spend time with him, you

:56:40. > :56:43.know. I realised it quite late. There is two things to it, one,

:56:44. > :56:47.being a father and wanting to give the best of the best to my kids. You

:56:48. > :56:50.work hard and you start earning money, but then the other, the dark

:56:51. > :56:56.side sud can't give time to your kids. So what are you going to

:56:57. > :57:00.change, if anything? I'm going to take a break off my work and slow

:57:01. > :57:05.down on my job side and take it easy and probably employ someone else to

:57:06. > :57:09.perform the role and give me time to my kids. Because my kid is going to

:57:10. > :57:13.a secondary school, he needs me. Since I have taken a break, I have

:57:14. > :57:17.realised spending time with my kids, they need me right now. They need

:57:18. > :57:23.someone to guide them, you know. This is the time. If I don't give

:57:24. > :57:29.time then you know... You'll never get it back again. Is he doing the

:57:30. > :57:33.right thing? You can see the genuine happiness that this brings him when

:57:34. > :57:37.he mentions it. It is progressive that men are admitting this. We

:57:38. > :57:41.don't have to be like our fathers and work nonstop. My dad was a coal

:57:42. > :57:47.miner and I never saw him apart from the weekends. He was a working dad

:57:48. > :57:51.and I became that dad. We're unlearning to become more like our

:57:52. > :57:55.mums and more like our partners want to be. Rather than being yesterday's

:57:56. > :57:59.men where you never see your kids and you just never get that time

:58:00. > :58:06.back. Last Saturday, I spent time with my son. I went out to watch a

:58:07. > :58:11.movie alone and to have dinner. Just him and you? Just me and my son. I

:58:12. > :58:16.realised that, you know, he wanted to say a lot of things to me and we

:58:17. > :58:22.shared a lot of stuff about school, about our daily stuff. I want to

:58:23. > :58:28.play football, papa. I want to go here and I want to go there. Thank

:58:29. > :58:29.you, gentlemen. Have a good day. We're back tomorrow at 9am. Have a

:58:30. > :58:34.good day. 20th of January, the day of

:58:35. > :58:39.the inauguration of Donald Trump