01/03/2018

0:00:01 > 0:00:04Hello.

0:00:04 > 0:00:05It's Thursday.

0:00:05 > 0:00:06It's 9 o'clock.

0:00:06 > 0:00:09I'm Victoria Derbyshire.

0:00:09 > 0:00:11Welcome to the programme.

0:00:11 > 0:00:15Our top story today: Hundreds of drivers have spent

0:00:15 > 0:00:17the night stranded in snow on the M80 in central Scotland

0:00:17 > 0:00:24with more snow expected right across the UK today.

0:00:24 > 0:00:31We are in the car and we are warm. There is nothing to look at. It is

0:00:31 > 0:00:36like a car park. Everybody is trying to sleep, I think. There aren't many

0:00:36 > 0:00:38lights on.

0:00:38 > 0:00:40We'll be looking at extra payments people living

0:00:40 > 0:00:42in fuel poverty can claim during the cold weather.

0:00:42 > 0:00:44Also this morning: It's one of the most pressing

0:00:44 > 0:00:45issues of our time.

0:00:45 > 0:00:46Dementia.

0:00:46 > 0:00:50This morning we reveal new figures showing

0:00:50 > 0:00:541.3 million people will be living with it in the UK by 2036.

0:00:54 > 0:01:03I now prefer to email or text. When I type it is as though dementia has

0:01:03 > 0:01:08never entered my life.This morning we will be joined by this group of

0:01:08 > 0:01:11people who all live with dementia or are professionals working in the

0:01:11 > 0:01:17field. If you have this condition, we definitely want to hear from you

0:01:17 > 0:01:22this morning. Please get in touch in the usual ways.

0:01:22 > 0:01:24And the Home Office says it is considering allowing a medical

0:01:24 > 0:01:26cannabis trial to treat a six-year-old boy with

0:01:26 > 0:01:28a rare form of epilepsy.

0:01:28 > 0:01:29We'll speak to Alfie Dingley's parents before

0:01:29 > 0:01:37the end of the programme.

0:01:40 > 0:01:43Hello and welcome to the programme.

0:01:43 > 0:01:50We're live until 11am.

0:01:50 > 0:01:53Really keen to hear from you about your experience

0:01:53 > 0:01:55of living with dementia this morning

0:01:55 > 0:01:57or if you care for someone who does.

0:01:57 > 0:01:59Please do get in touch

0:01:59 > 0:02:03and if you're happy to speak on air we'll try and get you on before

0:02:03 > 0:02:04the end of the programme.

0:02:04 > 0:02:07Use the hashtag VictoriaLIVE.

0:02:07 > 0:02:10You can message us on Facebook.

0:02:10 > 0:02:12Our top story today:

0:02:12 > 0:02:15The Met Office has issued a second red alert for snow,

0:02:15 > 0:02:17this time for South Wales and South West England.

0:02:17 > 0:02:20This red warning means the extreme weather poses a real risk to life.

0:02:20 > 0:02:22In Scotland, hundreds of drivers have spent the night stranded

0:02:22 > 0:02:24on snowbound motorways.

0:02:24 > 0:02:25Some were stuck for more than 15 hours.

0:02:25 > 0:02:31Others have been stranded overnight near Skegness in Lincolnshire

0:02:31 > 0:02:33where police say even snowploughs can't get through and military

0:02:33 > 0:02:40vehicles have been deployed.

0:02:40 > 0:02:42Let's get the latest from our correspondents.

0:02:42 > 0:02:47Catriona Renton is in Glasgow.

0:02:47 > 0:02:51Good morning. It is really cold here. You can probably see the

0:02:51 > 0:02:55powdery snow floating by behind us but it is really cold and it is very

0:02:55 > 0:03:01quiet. Because of the snow, of course. People have heeded the

0:03:01 > 0:03:05warning this morning and there is very little traffic on the roads.

0:03:05 > 0:03:08The people stranded overnight, people are doing their best to sort

0:03:08 > 0:03:12out that situation. People were stranded at Glasgow airport

0:03:12 > 0:03:16overnight and the airport is hoping to open at three o'clock this

0:03:16 > 0:03:20afternoon. Two thirds of schools in Scotland are closed today, I

0:03:20 > 0:03:23understand. Again that is tens of thousands of children that will have

0:03:23 > 0:03:29the day off school. More to tell you about the red warning that we are in

0:03:29 > 0:03:38the middle of hearing Glasgow. -- here in Glasgow. It is in central

0:03:38 > 0:03:41and southern Scotland at the moment and it is due to be called off at

0:03:41 > 0:03:44ten o'clock this morning but there is still an amber weather warning

0:03:44 > 0:03:48for much of the day until six o'clock tonight. We are told not to

0:03:48 > 0:03:55get too hopeful than either because the forecast until the weekend is

0:03:55 > 0:03:59for pretty bad weather, if not as bad as it is now. People are bracing

0:03:59 > 0:04:02themselves and hunkering down. Really it is a day to stay in the

0:04:02 > 0:04:09house and keep warm if you possibly can. My colleague John Kay is in

0:04:09 > 0:04:15Truro.I feel your pain. Good morning from Cornwall. A lot of

0:04:15 > 0:04:19people woke up in the south of England in Southland midway of this

0:04:19 > 0:04:22morning and looked out of the window and thought it wasn't too bad.

0:04:22 > 0:04:26Powdery snow falling but what is all the fuss about? Maybe we shouldn't

0:04:26 > 0:04:30have closed all the shops and businesses and schools and doctors

0:04:30 > 0:04:32surgeries. But in the last few minutes the latest warning has come

0:04:32 > 0:04:38from the Met Office to say that they still believe this will be a very

0:04:38 > 0:04:42bad storm in this part of the country. They have issued this red

0:04:42 > 0:04:47alert, the most severe warning, for a sliver that goes from South Wales

0:04:47 > 0:04:52through Cardiff across the Bristol channel and into northern Somerset,

0:04:52 > 0:04:57Weston-Super-Mare, into Somerset itself, across Exmoor and Dartmoor

0:04:57 > 0:05:01and into Devon. That bright red zone that you will see on the maps that

0:05:01 > 0:05:05we have already seen in Scotland. Not just heavy snowfall but also

0:05:05 > 0:05:11high winds. Emma Storm is coming from the Bay of this gate across the

0:05:11 > 0:05:21south. -- survey of Biscay. It means high winds and drifting conditions,

0:05:21 > 0:05:25blizzards. The question is working out where that will happen. In this

0:05:25 > 0:05:28part of the country there are remote rural communities and keeping roads

0:05:28 > 0:05:33open in those areas will basically be impossible. They are having to

0:05:33 > 0:05:37prioritise to work out which routes they can keep running. In most

0:05:37 > 0:05:40places it is a little bit of dusty snow right now but it will get much

0:05:40 > 0:05:44heavier as the day goes on and into the evening and then again tomorrow

0:05:44 > 0:05:48and potentially into tomorrow night as well. That is what they are

0:05:48 > 0:05:52worried about, not just the instant snowfall, but the accumulation over

0:05:52 > 0:05:56hours and hours. It is the first red warning for snow that I can remember

0:05:56 > 0:06:02in Devon and parts of Somerset over the last few years. We have had read

0:06:02 > 0:06:05warnings for flooding, notoriously four years ago, but it is the first

0:06:05 > 0:06:10one that level for snow, I think. That is the situation in the

0:06:10 > 0:06:16south-west of England. Let's go to Phil Bodmer in Yarm in north

0:06:16 > 0:06:20Yorkshire. Good morning. The snow in the North East is falling thick and

0:06:20 > 0:06:23fast. You can see just how much there is on this car. That shows you

0:06:23 > 0:06:28the level of snow that we have had. Police in north Yorkshire are

0:06:28 > 0:06:32warning drivers not to travel if at all possible. Driving conditions on

0:06:32 > 0:06:38many routes are abysmal. The A66 Scotch corner is closed currently.

0:06:38 > 0:06:42Lincolnshire Police say drivers are being warned not to travel if they

0:06:42 > 0:06:47don't have to. Pretty much every road throughout the county is

0:06:47 > 0:06:49impassable and gritters and snow ploughs have been out all morning.

0:06:49 > 0:06:54In Yarm itself the main centre is clear and perhaps you can see on

0:06:54 > 0:06:59that shot that the road is clear. Snow ploughs and gritters have been

0:06:59 > 0:07:02through all morning. Leeds Bradford Airport has cancellations this

0:07:02 > 0:07:05morning and there are problems on the railways as elsewhere in the

0:07:05 > 0:07:09country. If you are setting out today, the advice is to take time,

0:07:09 > 0:07:13make sure you are prepared, take extra clothing and a blanket if you

0:07:13 > 0:07:22can and be prepared for a longer journey than normal. Thank you. We

0:07:22 > 0:07:24will keep you updated with the latest situation throughout the

0:07:24 > 0:07:27morning and a full weather forecast for you just before ten o'clock. Now

0:07:27 > 0:07:40the rest of the news with Annita McVeigh. Good morning.

0:07:40 > 0:07:46Theresa May will meet Donald Tusk for a working lunch this morning.

0:07:46 > 0:07:50Tomorrow she is expected to release more detail of her vision for

0:07:50 > 0:07:54Britain's future relationship with the EU. Independent inquiry into

0:07:54 > 0:07:59child sexual abuse will publish its first completed report this morning.

0:07:59 > 0:08:02The findings will focus on the forced migration and abuse of

0:08:02 > 0:08:06thousands of children, many of whom were in care, who was sent to

0:08:06 > 0:08:09Australia, New Zealand, Canada and Africa following the Second World

0:08:09 > 0:08:13War. The British and Australian governments have apologised but

0:08:13 > 0:08:16today's report is likely to condemn the programme and highlights the

0:08:16 > 0:08:22failure to detect and prevent the abuse.

0:08:23 > 0:08:25The Home Office says it is considering allowing a medical

0:08:25 > 0:08:27cannabis trial to treat a six-year-old boy with

0:08:27 > 0:08:28a rare form of epilepsy.

0:08:28 > 0:08:29It previously turned down requests

0:08:29 > 0:08:31by the family of Alfie Dingley, from Warwickshire,

0:08:31 > 0:08:34to legally take the drug.

0:08:34 > 0:08:37But now ministers say they are exploring every option,

0:08:37 > 0:08:38following a meeting with the family.

0:08:38 > 0:08:43An option could be a three-month trial, led by Alfie's doctors

0:08:43 > 0:08:51and based on sufficient and rigorous evidence.

0:08:52 > 0:08:56For the first time acid is described as a highly

0:08:56 > 0:09:02dangerous weapon -- in new sentencing guidelines.

0:09:02 > 0:09:05The advice for judges and magistrates

0:09:05 > 0:09:08in England and Wales has been updated in the wake

0:09:08 > 0:09:10of a surge in attacks using corrosive substances.

0:09:10 > 0:09:12Offenders are now likely to face stiffer penalties.

0:09:12 > 0:09:15The American retail giant Walmart says it

0:09:15 > 0:09:18will tighten its policy on firearms sales as Donald Trump tells

0:09:18 > 0:09:20Congress it's time to act.

0:09:20 > 0:09:22The President stunned some politicians

0:09:22 > 0:09:26in his own Republican party by telling them on live TV not to be

0:09:26 > 0:09:28so afraid of the pro-gun lobby.

0:09:28 > 0:09:31He said he wanted what he called a strong reform bill

0:09:31 > 0:09:34but stuck by his suggestion of arming some teachers.

0:09:34 > 0:09:35Spotify, the world's largest music streaming

0:09:35 > 0:09:37service has filed paperwork to start trading its shares

0:09:37 > 0:09:39on the New York Stock Exchange.

0:09:39 > 0:09:44The Swedish company which has a database

0:09:44 > 0:09:46of 30 million songs will undertake what's known

0:09:46 > 0:09:49as a direct listing letting investors and employees sell

0:09:49 > 0:09:50shares without needing an intermediary.

0:09:50 > 0:09:52Spotify - which launched in 2008 - now has over seventy

0:09:52 > 0:09:55one million paying subscribers, with even more using their free

0:09:55 > 0:09:56advertisement supported service.

0:09:56 > 0:10:02Shoppers have until midnight tonight to spend

0:10:02 > 0:10:04paper ten-pound notes featuring Charles Dickens before

0:10:04 > 0:10:11they cease to be legal tender.

0:10:11 > 0:10:13The Bank of England says there are still 200 million

0:10:13 > 0:10:14of them in circulation.

0:10:14 > 0:10:16They have been phased out since last September

0:10:16 > 0:10:24and replaced by polymer notes depicting Jane Austen.

0:10:25 > 0:10:31And finally there were 11 wins for the BBC's journalism at

0:10:31 > 0:10:34the Royal Television Society Awards last night including not one

0:10:34 > 0:10:35but two awards for this programme.

0:10:35 > 0:10:38Victoria Derbyshire was named Network Presenter of the Year

0:10:38 > 0:10:40and she also picked up the gong for best interview of the year,

0:10:40 > 0:10:42for football abuse.

0:10:42 > 0:10:45Congratulations, Victoria. Thank you. I want to thank you for

0:10:45 > 0:10:50following coverage of our stories on Facebook and the BBC News website.

0:10:50 > 0:10:54We really appreciate your support. Thank you. We really want you to get

0:10:54 > 0:10:57in touch with us this morning if you have experience of living with

0:10:57 > 0:11:01dementia, whether it is yourself or you care for somebody in your family

0:11:01 > 0:11:06or placement with this condition. It is one of the most pressing issues

0:11:06 > 0:11:11of our time. We are talking about it a lot this morning and we would love

0:11:11 > 0:11:14to hear your experience. We want to talk to you if you are happy to come

0:11:14 > 0:11:19on air.

0:11:21 > 0:11:24Use the hashtag VictoriaLIVE

0:11:24 > 0:11:27and if you text, you will be charged at the standard network rate.

0:11:27 > 0:11:30(ANI OFF)

0:11:30 > 0:11:34Let's get the sport. Eddie Jones has been talking about the physical and

0:11:34 > 0:11:41verbal abuse he experienced. Yes, England lost to Murrayfield in the

0:11:41 > 0:11:45Six Nations championship on Saturday. He was returning south

0:11:45 > 0:11:49from Edinburgh, got an early train on Sunday morning. He was heading to

0:11:49 > 0:11:52Manchester because he was a guest of Sir Alex Ferguson at the Manchester

0:11:52 > 0:11:57United match when they beat Chelsea. It was on that train, travelling by

0:11:57 > 0:12:03himself in standard class, he got a bit of verbal abuse and he said it

0:12:03 > 0:12:08was physical as well. This footage is when he got off the train and

0:12:08 > 0:12:11Manchester Oxford Road, surrounded by Scotland fans, who harangued him

0:12:11 > 0:12:20on the way to the taxi. We have taken out some of the swearing.

0:12:25 > 0:12:30SHOUTING AND CHEERING. He says that is it. He said he always liked

0:12:30 > 0:12:33taking selfies and engaging with fans but he will never take public

0:12:33 > 0:12:38transport again after that incident. He also pointed to the comments

0:12:38 > 0:12:42before the match from former international Gavin Hastings, one of

0:12:42 > 0:12:49the Scotland prop is, talking about hating the English. He says that

0:12:49 > 0:12:55incites certain behaviour and that ties in. The Scottish rugby union I

0:12:55 > 0:12:59appalled by the verbal abuse suffered by Eddie Jones and the

0:12:59 > 0:13:02disgusting behaviour of those involved. They say it does not

0:13:02 > 0:13:06represent the values of the sport and the fans. The dignity Eddie and

0:13:06 > 0:13:10the team showed on Saturday is in stark contrast to this ugly

0:13:10 > 0:13:13incident. We hope not to see that again. Of course Eddie Jones

0:13:13 > 0:13:19deciding he can't be seen like that in public again. There were lots of

0:13:19 > 0:13:23goals at Wembley in the FA Cup last night and people talking about the

0:13:23 > 0:13:29video assistant referee again. Yes, Spurs manager Mauricio Pochettino

0:13:29 > 0:13:32called it embarrassing. This was the fifth round replay against League

0:13:32 > 0:13:36One Rochdale. Spurs comfortable winners in the end but the first

0:13:36 > 0:13:40half was one VAR decision after another. The referee, Paul Tierney,

0:13:40 > 0:13:48the boys in his head Graham stopped, the VAR for the night. The match was

0:13:48 > 0:13:52so stop and start. There was a penalty awarded with VAR and then

0:13:52 > 0:13:56ruled out and VAR used again for that. Five minutes added on at the

0:13:56 > 0:14:01end of the first half for all those delays. Is that really good for the

0:14:01 > 0:14:08game? Here is the Spurs manager.I think we have the best referees in

0:14:08 > 0:14:12Europe or in the world and the referees are so good. But I don't

0:14:12 > 0:14:21know if this system will help them or create more confusion.

0:14:21 > 0:14:22or create more confusion. If you watched this half, more confusion

0:14:22 > 0:14:29than help. Football is the context of emotion and if we are going to

0:14:29 > 0:14:34kill this emotion I think we are going to change the game.Mauricio

0:14:34 > 0:14:37Pochettino was quite measured there. He would have been angrier if they

0:14:37 > 0:14:41had lost because it was 1-1 at half-time. Then the snow fell and

0:14:41 > 0:14:46Spurs raced away with it. Fernando Llorente scored a hat-trick in 12

0:14:46 > 0:14:51minutes. The perfect hat-trick, right foot, left foot, head. Spurs

0:14:51 > 0:14:56won 6-1 and they are into the quarterfinals and they will play

0:14:56 > 0:15:05Swansea. And at the world cycling, we have another medal from the

0:15:05 > 0:15:09Kennys. We were looking forward to seeing them in action in the

0:15:09 > 0:15:14Netherlands. Six months after having a baby, Laura Kenny helped the women

0:15:14 > 0:15:18qualify second greatest for the team pursuit. There could be a medal

0:15:18 > 0:15:25later. Jason Kenny got the silver in the team spirit. He had an 18 month

0:15:25 > 0:15:28lay-off after the Olympics and he thought about retiring. That was

0:15:28 > 0:15:35back in 2016. But they came second to the Netherlands. Another medal

0:15:35 > 0:15:38round his neck. I will be back with the headlines in the next half an

0:15:38 > 0:15:44hour.

0:15:44 > 0:15:48hour. We are talking about one of the most pressing issues of our

0:15:48 > 0:15:52time, dementia. Dementia is caused when the brain is

0:15:52 > 0:15:57affected by diseases and can include symptoms like memory loss,

0:15:57 > 0:16:01difficulty speaking of thinking. By the middle of this century, 1.3

0:16:01 > 0:16:06million people will be living at home with dementia in this country.

0:16:06 > 0:16:12According to new figures seen by this programme. Alzheimer's is a

0:16:12 > 0:16:16form of dementia and the Alzheimer's Society expects the number to double

0:16:16 > 0:16:22by 2036 and to keep on rising as the population gets older and treatments

0:16:22 > 0:16:26improve. Later this year, the Government will

0:16:26 > 0:16:33set out how to pay for social care in our old age.

0:16:33 > 0:16:35Three years ago, we gave video cameras to three people with

0:16:35 > 0:16:42dementia. We have gone back to them and asked them to do the same again.

0:16:42 > 0:16:46They are here with us this morning along with others living with

0:16:46 > 0:16:50dementia, some of their relatives and those who care for people with

0:16:50 > 0:16:54the disease. We will talk about what it is like to live with dementia and

0:16:54 > 0:17:00how we as a country can best pay the care and those living with this

0:17:00 > 0:17:03challenging disease. First, here is a film they have made

0:17:03 > 0:17:12for you.

0:17:12 > 0:17:22To my mind, my way of thinking... You happen to take any positive you

0:17:22 > 0:17:30can to having such a cruel disease. In 2040 quack -- In 2014, we gave

0:17:30 > 0:17:33video cameras to three people recently diagnosed with dementia.

0:17:33 > 0:17:42What are we looking at? It is the moon, isn't it?

0:17:42 > 0:17:46Three years later, we asked them to look back at what has changed in

0:17:46 > 0:17:53that time. That is you talking. Yes.

0:17:53 > 0:18:00This is the story of what it is like to live with Alzheimer's disease,

0:18:00 > 0:18:06from the minds of the people most affected.

0:18:12 > 0:18:19Wendy Mitchell was diagnosed with Alzheimer's at just 57, in 2013.

0:18:19 > 0:18:25In her first set of video diaries three years ago, she was still

0:18:25 > 0:18:28working as an NHS administrator. This is where I had my first

0:18:28 > 0:18:34experience of what dementia can do to your brain. I came out of my

0:18:34 > 0:18:39office and I didn't have a clue where I was. I decided to walk away

0:18:39 > 0:18:46and down the corridor, hoping that no one would come out and notice

0:18:46 > 0:18:52there was something wrong. And so I went through the end door and into

0:18:52 > 0:19:03the wash room. Because that was the only door that was a locked door.

0:19:03 > 0:19:12It showed someone at an earlier stage, someone left -- less hesitant

0:19:12 > 0:19:19than I am now, and simply talking normally.

0:19:20 > 0:19:23normally. Whereas now I have to think more about the words that are

0:19:23 > 0:19:35coming out of my mouth. Wendy had to give up work earlier

0:19:35 > 0:19:39than she really wanted, she moved from a town house in York to a small

0:19:39 > 0:19:44village near one of her daughters. When I moved, all the houses looked

0:19:44 > 0:19:52the same, and I would get confused as to which one I lived at. I would

0:19:52 > 0:19:56constantly walk up my neighbour's path.

0:19:56 > 0:20:05So, to make it clear which house was my house, I simply put the -- Put

0:20:05 > 0:20:11forget-me-not tiles each side of my door, to show me which one was mine.

0:20:11 > 0:20:21I always like it to untangling a fine necklace. If you are having a

0:20:21 > 0:20:27good day, you can sit and untangle the Notts won by one. If you are

0:20:27 > 0:20:34having a bad day, it is like when you are feeling impatient, and you

0:20:34 > 0:20:39simply cannot untangle it and the more you try, the worse it becomes.

0:20:39 > 0:20:48I always tell myself it is not me, it is the disease. And I simply sit

0:20:48 > 0:20:54quietly and wait for the fog to left.

0:20:54 > 0:20:59-- lift. Yes, I stopped answering the phone,

0:20:59 > 0:21:03I don't know, properly a year or more.

0:21:03 > 0:21:13When I answered it, people can't see me, so they can't see me thinking. I

0:21:13 > 0:21:23now prefer to e-mail or text. When I type, it is as though dementia has

0:21:23 > 0:21:29never entered my life because that part of me isn't broken yet.

0:21:29 > 0:21:32If you are going to give one piece of advice to someone who has just

0:21:32 > 0:21:37been diagnosed with dementia, what would it be?

0:21:37 > 0:21:47I always think of it as, yes, it is definitely a bad diagnosis to get

0:21:47 > 0:21:53but if you can think of it as a different life, a life of adapting

0:21:53 > 0:22:00to the challenges that dementia throws at you, then it can still be

0:22:00 > 0:22:10filled with laughter and adventures and almost a new way of living.

0:22:13 > 0:22:17It was the most amazing experience because I have no fear anymore. I

0:22:17 > 0:22:26always think I face my biggest fear by facing dementia.

0:22:32 > 0:22:38Keith Oliver was diagnosed with Alzheimer's in 2010. In the first

0:22:38 > 0:22:42set of video diaries he filmed for us he had just retired as a head

0:22:42 > 0:22:45teacher in Canterbury. For some time I have struggled to a

0:22:45 > 0:22:49member by that I have cleaned my teeth, shade, combed my head in the

0:22:49 > 0:22:54morning when I get up. So what I now do is I put everything out of the

0:22:54 > 0:23:00box, use it and as I have used it plays it back in the box again.

0:23:00 > 0:23:03I have changed in some ways and some of those changes have been brought

0:23:03 > 0:23:11on by dementia. I see the same person who physically looks like me,

0:23:11 > 0:23:15who is saying the things I was saying at the time, and I still

0:23:15 > 0:23:22believe in. But now I feel less able to express myself as well as I did

0:23:22 > 0:23:32then. It is a lovely walk, this, along the

0:23:32 > 0:23:38beach, and then around the harbour. I get such a lot from it. It gives

0:23:38 > 0:23:44me time to think, to contemplate, to try to sort something out in my mind

0:23:44 > 0:23:50that are bothering me. Watching these boats rocking in the water

0:23:50 > 0:23:56reminds me of how some days it is for me walking and standing and

0:23:56 > 0:24:03trying to keep my balance. Any experience of dementia I have

0:24:03 > 0:24:09sometimes brought on by being depressed, by being isolated, being

0:24:09 > 0:24:14lonely, frustrated. They are the best friends of each other. Dementia

0:24:14 > 0:24:19and depression are big allies and the only way dealing with that is

0:24:19 > 0:24:31through support, people coming into my world to help me.

0:24:31 > 0:24:37Books have always been important in my life, for relaxation, learning. I

0:24:37 > 0:24:44am a hoarder of books.

0:24:44 > 0:24:48am a hoarder of books. Here is one that I read a couple of years ago

0:24:48 > 0:24:52about something very close to my heart which is Nottingham Forest.

0:24:52 > 0:24:59Reading the books 30 years later brings back those memories that I

0:24:59 > 0:25:12have of those happy days. It is getting harder. I read a lot

0:25:12 > 0:25:17but remember very little. I even don't remember what books I bought,

0:25:17 > 0:25:22there are occasions I go into a book shop and I have bought the book home

0:25:22 > 0:25:31and realised at home I have read it before.

0:25:31 > 0:25:35Some days I will use the metaphor of the weather, some days are faulty

0:25:35 > 0:25:40and even within those foggy days it is like driving in fog, the fog

0:25:40 > 0:25:45comes down and it lifts, it is patchy. That is what dementia is

0:25:45 > 0:25:50often like. Even today, I am experiencing that talking to you.

0:25:50 > 0:25:55Some of my charity of thinking is coming and going as I am sitting

0:25:55 > 0:26:02here now, talking and thinking about today.

0:26:04 > 0:26:07today. I have lost my train of thought, you will have to ask me

0:26:07 > 0:26:12that again. Last time around I finished the

0:26:12 > 0:26:17interview asking if you would remember our conversation, will you

0:26:17 > 0:26:21remember this conversation? Again, the same answer, I will

0:26:21 > 0:26:26remember how this conversation made me feel. The actual subject matter,

0:26:26 > 0:26:34no, I won't. Christopher has been living with

0:26:34 > 0:26:41Alzheimer's for more than a decade now.

0:26:41 > 0:26:45now. His wife Veronica filmed this first set of video diaries outside

0:26:45 > 0:26:52their home in Dorset three years ago.At some point, it hit you over

0:26:52 > 0:26:56there, that is when you have to decide what to do.Yes, you had to

0:26:56 > 0:27:01cope. There is ask, do you recognise us?

0:27:01 > 0:27:13You are looking rather severe, like a magistrate! That is you talking.

0:27:18 > 0:27:28Yes, I mean, everything has changed. It is so sad. But you mustn't dwell

0:27:28 > 0:27:32on that because otherwise you would be sad all the time and I mustn't be

0:27:32 > 0:27:37sad to you because you are positive. What has changed, do you feel

0:27:37 > 0:27:46different? Yes.And you know you still have

0:27:46 > 0:27:50lots of feelings although you may not be able to put it into words

0:27:50 > 0:27:57like you used to.

0:27:57 > 0:28:06We are on the quay Paul harbour, sitting in the sunshine -- Poole.

0:28:06 > 0:28:10And Christopher is having fish and chips.

0:28:10 > 0:28:17It is not the easiest thing to eat. We are now in the car. The seat belt

0:28:17 > 0:28:23is always a bit of a mystery, put your belt on, darling. Can you put

0:28:23 > 0:28:34your belt on? Put your belt on. Your belt.

0:28:34 > 0:28:40Your belt. Here, that is right. That is right. Like everything, this gets

0:28:40 > 0:28:47forgotten every single time. Well done, you have done it.

0:28:47 > 0:28:50Without that disabled badge? Life would be a lot more stressful,

0:28:50 > 0:28:57yes. When we first got the blue badge, I was a little bit feeling,

0:28:57 > 0:29:02it says disabled on it, and Christopher doesn't look disabled,

0:29:02 > 0:29:08so I was sort of half thinking somebody might one day a cost us,

0:29:08 > 0:29:13which happened. You are not disabled, this man said, as we were

0:29:13 > 0:29:16parking. So I left Christopher on the pavement and I trotted down the

0:29:16 > 0:29:22pavement and I said to that, repeat that. And I said it louder, very

0:29:22 > 0:29:28slowly he mumbled, you are not disabled. You change places with me

0:29:28 > 0:29:3624 hours Hutcheon for 24 hours -- you change places with me for 24

0:29:36 > 0:29:46hours. Don't take it, darling, drink it,

0:29:46 > 0:29:55careful. It is hot.That is your tea.

0:29:55 > 0:29:59That is right. Are you a caper that? Are you happy,

0:29:59 > 0:30:07darling, I am asking if you are happy? I don't think you frustrated.

0:30:07 > 0:30:13Sometimes I think he is frustrated, yes. Sometimes you get cross. Not

0:30:13 > 0:30:20often.All you basically happy? Yes. Yes, I think you are.

0:30:20 > 0:30:27This is one of the things I am deeply sad because I don't have a

0:30:27 > 0:30:38name. What I called? And he laughs, and he says, what did you say? What

0:30:38 > 0:30:48am I called? Are you going to have another go? What am I called?I

0:30:48 > 0:30:49can't remember.

0:30:57 > 0:31:02The fact that Christopher's speech is clearly not what it was, I mean,

0:31:02 > 0:31:09speech and communication...It is lonely, yes. It is quite lonely. But

0:31:09 > 0:31:16then he doesn't realise that. So it's not as though you are living

0:31:16 > 0:31:20with somebody who is doing something to make you feel like that. It's not

0:31:20 > 0:31:26like that at all. You see, there is definitely interaction and feeling.

0:31:26 > 0:31:36That hasn't gone. If I say I love you. Do you love me? Do you love me?

0:31:36 > 0:31:45Am I getting too close? Go on, kiss me. Yes.

0:31:46 > 0:31:51me. Yes.Wow. Gosh. With us now is an audience including some of the

0:31:51 > 0:31:54people that you saw in that film and there is a mixture of emotion in

0:31:54 > 0:31:57this room, I think. There are some people wiping their eyes because

0:31:57 > 0:32:01they had tears in their eyes. Veronica, you have tears in your

0:32:01 > 0:32:06eyes but you also smiling, as is Christopher. Hello, Christopher.

0:32:06 > 0:32:11Thank you so much for coming on the programme again. How do you react to

0:32:11 > 0:32:18what you have seen? I don't mind who speaks first.I rally watch myself

0:32:18 > 0:32:30on the television now. -- I've rarely watched myself recently. It

0:32:30 > 0:32:33is always a shock what I see. We don't have this image of ourselves

0:32:33 > 0:32:42in our head which is what I see on the television.Were you shocked?

0:32:42 > 0:32:53Yes. I never watch myself normally. And you always tend to think back to

0:32:53 > 0:32:56how you were, especially when there was the comparison with the earlier

0:32:56 > 0:33:04film and now. It just brings it home a little bit more, the changes.What

0:33:04 > 0:33:08is it like for you and Christopher to watch yourselves then and now?I

0:33:08 > 0:33:13think

0:33:14 > 0:33:17think we've filmed some jollier bits. Those bits are rather

0:33:17 > 0:33:23tear-jerking. It isn't as bad as that, is it question that -- it

0:33:23 > 0:33:29isn't as bad as that, is it? We have a lot of fun. That is where we used

0:33:29 > 0:33:35to sail. We get about. We went to Mexico this summer. Why not?The

0:33:35 > 0:33:42other thing to say as well is that the film illustrates how different

0:33:42 > 0:33:46we all are but how similar we all are as well. There are certain

0:33:46 > 0:33:49things that we said and we have experienced that are common to all

0:33:49 > 0:33:53of us in that film but also the way we deal with it is an element of

0:33:53 > 0:33:58similarity but also different as well.Over the course of the

0:33:58 > 0:34:02programme we are going to talk about living with dementia. How we pay for

0:34:02 > 0:34:05such care and its impact on the health service and society in

0:34:05 > 0:34:09general. You get in touch through the programme if you or a family

0:34:09 > 0:34:13member has dementia.

0:34:13 > 0:34:15Still to come:

0:34:15 > 0:34:17How is the cold snap affecting people that

0:34:17 > 0:34:19struggle with their bills?

0:34:19 > 0:34:24We'll hear from people affected by fuel poverty and discuss

0:34:24 > 0:34:29what help is on offer.

0:34:29 > 0:34:31Our final visit to Hawkswood Primary

0:34:31 > 0:34:33Pupil Referral Unit, as I talk to some of the children

0:34:33 > 0:34:37about life at the school and their hopes for the future.

0:34:37 > 0:34:40Time for the latest news.

0:34:40 > 0:34:42The BBC News headlines this morning:

0:34:42 > 0:34:47The Met Office has issued a red weather warning

0:34:47 > 0:34:50for Devon, Somerset and the southern half of Wales, meaning imminent

0:34:50 > 0:34:51loss of life is possible.

0:34:51 > 0:34:53A separate red weather warning is in place

0:34:53 > 0:34:54for Scotland's central belt.

0:34:54 > 0:34:56The snow continues to cause problems across the UK.

0:34:56 > 0:34:58Hundreds of schools are closed in south Wales, southern

0:34:58 > 0:34:59England and Scotland.

0:34:59 > 0:35:05Our reporter John Kay sent us this from Truro.

0:35:05 > 0:35:09The latest warning has come from the Met Office saying that they still

0:35:09 > 0:35:12believe this is going to be a very bad storm in this part of the

0:35:12 > 0:35:16country. They have issued this red alert, severe, the most severe

0:35:16 > 0:35:22warning, a red warning for a sliver that goes from south Wales to

0:35:22 > 0:35:25Cardiff, across the Bristol channel, through North Somerset,

0:35:25 > 0:35:29Weston-Super-Mare, down through some assert itself, across Exmoor and

0:35:29 > 0:35:32Dartmoor and into Devon. That bright red zone that you will see on the

0:35:32 > 0:35:37maps all day.

0:35:38 > 0:35:40maps all day.In Scotland hundreds of people have been trapped in their

0:35:40 > 0:35:47cars on the M18 a Glasgow. Some attract for 15 hours. Others have

0:35:47 > 0:35:51been stranded in Lincolnshire and forecasters are warning of snow to

0:35:51 > 0:35:55come across the UK. Where the red alerts remain in force, people are

0:35:55 > 0:36:01advised not to venture out. In other news: The President of the EU

0:36:01 > 0:36:07Council Donald Tusk has warned UK can't have trade with the EU if it

0:36:07 > 0:36:11is outside the single market and customs union. The warning comes

0:36:11 > 0:36:16following the publication of the EU's draft withdrawal treaty. The

0:36:16 > 0:36:21independent inquiry into child sexual abuse will publish its first

0:36:21 > 0:36:24completed report this morning. The findings will focus on the forced

0:36:24 > 0:36:29migration and abuse of thousands of children, many of whom were in care,

0:36:29 > 0:36:33who were sent to Australia, New Zealand, Canada and Africa following

0:36:33 > 0:36:36the Second World War. The British and Australian governments have

0:36:36 > 0:36:39apologised but today's report is likely to condemn the programme and

0:36:39 > 0:36:47highlights the failure to protect and prevent the abuse.

0:36:47 > 0:36:51and prevent the abuse. This programme has discovered new figures

0:36:51 > 0:37:00which underscores the scale of suffering of those living with

0:37:00 > 0:37:06dementia.

0:37:06 > 0:37:09The Home Office says it is considering allowing a medical

0:37:09 > 0:37:11cannabis trial to treat a six-year-old boy with

0:37:11 > 0:37:12a rare form of epilepsy.

0:37:12 > 0:37:13It previously turned down requests

0:37:13 > 0:37:15by the family of Alfie Dingley, from Warwickshire,

0:37:15 > 0:37:16to legally take the drug.

0:37:16 > 0:37:19But now ministers say they are exploring every option,

0:37:19 > 0:37:20following a meeting with the family.

0:37:20 > 0:37:23An option could be a three-month trial, led by Alfie's doctors

0:37:23 > 0:37:26and based on sufficient and rigorous evidence.

0:37:26 > 0:37:29The American retail giant Walmart says it

0:37:29 > 0:37:31will tighten its policy on firearms sales as Donald Trump tells

0:37:31 > 0:37:32Congress it's time to act.

0:37:32 > 0:37:37The President stunned some politicians

0:37:37 > 0:37:41in his own Republican Party by telling them on live TV not to be

0:37:41 > 0:37:43so afraid of the pro-gun lobby.

0:37:43 > 0:37:46He said he wanted what he called a strong reform bill

0:37:46 > 0:37:49but stuck by his suggestion of arming some teachers.

0:37:49 > 0:37:54There were 11 wins for the BBC's journalism at

0:37:54 > 0:37:56the Royal Television Society Awards last night including two

0:37:56 > 0:37:58awards for this programme.

0:37:58 > 0:38:00Victoria Derbyshire was named Network Presenter

0:38:00 > 0:38:03of the Year and she also picked up the gong for best interview

0:38:03 > 0:38:05of the year for football abuse.

0:38:05 > 0:38:12That's a summary of the latest BBC News.

0:38:12 > 0:38:16Thank you for your messages about dementia. This email from Mark: I

0:38:16 > 0:38:20look after my mum who was diagnosed with outsiders several years ago.

0:38:20 > 0:38:23The council have been a huge help but I have experienced the whole

0:38:23 > 0:38:28calyx of life in the modern world in the UK which breaks down when it

0:38:28 > 0:38:32comes to dementia. I have difficulty proving my mother's identity,

0:38:32 > 0:38:35visiting her, connecting different care services together. I keep

0:38:35 > 0:38:40getting referred to online help and even after expelling to people that

0:38:40 > 0:38:43my mother has Alzheimer's, they still try and ask her memory

0:38:43 > 0:38:47questions. I care for my mum because it is a pleasure but it hurts that

0:38:47 > 0:38:51there is little recognition in even things like tax codes that

0:38:51 > 0:38:54recognises that in fact looking after a person with advanced

0:38:54 > 0:38:57dementia is a far more stressful and training thing than looking after

0:38:57 > 0:39:04children. Catherine says: I am one of the lucky ones. As I am

0:39:04 > 0:39:08self-employed and my dad has a reasonable pension, while we

0:39:08 > 0:39:12struggle financially, I am able to care for my dad myself. Both my

0:39:12 > 0:39:16parents had dementia and I care for them both, starting in 2012, until

0:39:16 > 0:39:22my darling man passed away in 2015. I am 54 and single. -- my darling

0:39:22 > 0:39:27mother passed away in 2015. I love them more than I can say. We now

0:39:27 > 0:39:31live with my dad. The problem is unless you have the money, it is a

0:39:31 > 0:39:34lottery and the social care system is broken. My heart breaks for those

0:39:34 > 0:39:39without family for whom life with dementia must be unbearable. We are

0:39:39 > 0:39:42going to talk about some of those specific issues, the fractured

0:39:42 > 0:39:46health and social care system, and the difficulty in getting outside

0:39:46 > 0:39:51help after ten o'clock this morning. Please continue to send your own

0:39:51 > 0:39:55experiences. Sent us an email. You can message us on Facebook and

0:39:55 > 0:40:02Whatsapp as well. Now we have more sport. Hello. The headlines: The

0:40:02 > 0:40:04England rugby union head coach Eddie Jones said he was physically and

0:40:04 > 0:40:11verbally abused returning by train from the Kolkata defeat to Scotland

0:40:11 > 0:40:16at the weekend. This is footage of him being harangued at Manchester

0:40:16 > 0:40:23Oxford road train station. -- Calcutta Cup defeat. The Scottish

0:40:23 > 0:40:29union said it is disgusted and appalled. Eddie Jones said he will

0:40:29 > 0:40:36not take public transport again. Manchester United beat Rochdale 6-1

0:40:36 > 0:40:41-- Tottenham Hotspur beat Rochdale 6-1 and will now play Swansea in the

0:40:41 > 0:40:47quarterfinals. Andy Murray could be back in the practice court that the

0:40:47 > 0:40:51end of this month. As since is time Olympic champion Jason Kenny won

0:40:51 > 0:40:55silver in the team sprint at the track cycling World Championships in

0:40:55 > 0:40:59the Netherlands. His wife Laura will be bidding for a medal in the team

0:40:59 > 0:41:07pursuit later today. I will be back after ten o'clock. Thank you.

0:41:07 > 0:41:10Hundreds of drivers have spent the night stranded in snow

0:41:10 > 0:41:12on the M80 and adjoining motorways in central Scotland.

0:41:12 > 0:41:14Some have been stuck for more than 15 hours.

0:41:14 > 0:41:15Others have been stranded overnight

0:41:15 > 0:41:18near Skegness in Lincolnshire and forecasters are warning of more

0:41:18 > 0:41:19snow to come across many parts

0:41:19 > 0:41:23of the UK.

0:41:23 > 0:41:31Yesterday, we invited Bryan, a homeless man living

0:41:32 > 0:41:35on the streets of central London for 18 years, into our studio.

0:41:35 > 0:41:37This was him yesterday afternoon as snow continued

0:41:37 > 0:41:38to fall in the capital.

0:41:38 > 0:41:41He told us he'd worken up yesterday morning with one inch

0:41:41 > 0:41:42of snow all over him.

0:41:42 > 0:41:44He was also incredibly grateful for all your messages

0:41:44 > 0:41:47of support you sent him.

0:41:47 > 0:41:49We will keep in touch with him.

0:41:49 > 0:41:50Many people living at home struggle too.

0:41:50 > 0:41:55One in ten people in England live in fuel poverty.

0:41:55 > 0:41:57That's where the amount a household pays for fuel leaves them

0:41:57 > 0:42:00below the poverty line.

0:42:00 > 0:42:02When weather drops below a certain level it triggers extra payments

0:42:02 > 0:42:04for people claiming some benefits.

0:42:04 > 0:42:10But many don't know about it and therefore don't claim.

0:42:21 > 0:42:24Who is entitled?

0:42:24 > 0:42:27You have to be over 65 and also qualify for pension

0:42:27 > 0:42:29credit.

0:42:29 > 0:42:32How much?

0:42:32 > 0:42:37You get up to £300, depending on age.

0:42:37 > 0:42:39How to claim.

0:42:39 > 0:42:40Most get it automatically.

0:42:40 > 0:42:45Some have to claim.

0:42:45 > 0:42:51For details, see gov.uk/ WinterFuelPayment.

0:42:51 > 0:42:59Cold weather payments.

0:44:03 > 0:44:05Let's talk to Jodie Hullah, a mum of a 19-month-old,

0:44:05 > 0:44:09who sometimes can't afford to heat her home.

0:44:09 > 0:44:11Andria Efthimiou has asthma and ended up being hospitalised

0:44:11 > 0:44:13when her home got too cold.

0:44:13 > 0:44:16And Ruth London from the charity Fuel Poverty Action.

0:44:16 > 0:44:22Thank you for coming on the programme. How often do you go

0:44:22 > 0:44:29without hot water and heating? Sometimes it can be two or three

0:44:29 > 0:44:33days. Other times it can be longer and other times shorter. It all

0:44:33 > 0:44:39depends what the weather is like and when I get paid.Explain why you

0:44:39 > 0:44:43have to make the decision to keep heating and hot water off in certain

0:44:43 > 0:44:47periods.Just because we can't afford it. I put as much money as I

0:44:47 > 0:44:54can onto my meter and sometimes it is not enough. We ran out of gas and

0:44:54 > 0:44:57then we have no hot water is heating or I have to make the decision

0:44:57 > 0:45:08whether Will we be cold during the day or in the evening.How does that

0:45:08 > 0:45:15affect your 19-month-old?She gets body quite a bit. At the moment he

0:45:15 > 0:45:18has a cough and cold and it is hard but there is nothing you can do

0:45:18 > 0:45:22about it.You had to give up work when you are pregnant because of

0:45:22 > 0:45:26various pregnancy issues. You are in a privately rented flat and

0:45:26 > 0:45:30Universal Credit is paid to you and after rent you are left with £100 a

0:45:30 > 0:45:37week for food, gas, electricity, clothes, anything else your child

0:45:37 > 0:45:43needs.Yes, probably less than that.

0:45:43 > 0:45:49The cold weather payment means an extra £25 for you, what difference

0:45:49 > 0:45:57will that make? I think it means we will get an

0:45:57 > 0:46:00extra two days of heating and hot water.

0:46:00 > 0:46:08How do you feel about that?I don't know. The situation is there isn't

0:46:08 > 0:46:14much do -- much I can do to change it. It is one of those things you

0:46:14 > 0:46:22get on with. You don't have a choice.

0:46:22 > 0:46:28Jodi, I am going to bring in Andria in the studio. Is your attitude the

0:46:28 > 0:46:34same, it is what it is? Absolutely. You don't even notice

0:46:34 > 0:46:39what is happening. For example, my daughter started coming home from

0:46:39 > 0:46:44school and going straight to bed. I thought she was hiding from me. She

0:46:44 > 0:46:50said she was cold. I was really shocked. Because the me it is called

0:46:50 > 0:47:00but you get into a trooper load. I have had asthma the over 50 years.

0:47:00 > 0:47:06-- trooper mode. Even though I have had to go to casualties because of

0:47:06 > 0:47:14my respiratory system, it becomes a way of life. But this is dangerous.

0:47:14 > 0:47:22They wanted to take me in, I was worried about my daughter.

0:47:22 > 0:47:25worried about my daughter. If you're respiratory rate is at 48, people

0:47:25 > 0:47:30have heart attacks. They gave me some diazepam.Is that directly

0:47:30 > 0:47:33linked to you not putting the heating on?

0:47:33 > 0:47:37Absolutely.

0:47:38 > 0:47:44Absolutely. It is tough. But it is difficult to notice. And knowing

0:47:44 > 0:47:50other people are in a more difficult situation because of money. It is

0:47:50 > 0:47:54tragic. Thousands of people are dying from fuel poverty every year.

0:47:54 > 0:48:02Then something is really wrong. In terms of deaths from cold

0:48:02 > 0:48:11weather, we have the latest figures from 2017, sorry, 2016, over that

0:48:11 > 0:48:16winter period. It was 11,000 last winter. It is

0:48:16 > 0:48:21outrageous, it should not be our way of life that people are dying

0:48:21 > 0:48:27because they cannot afford to keep their homes warm. Some of the Chief

0:48:27 > 0:48:32Executive is earn more in their bonus and most people spend all year

0:48:32 > 0:48:39on their energy. It is not sustainable. There are natural

0:48:39 > 0:48:44disasters and unnatural disasters. Fuel poverty is an unnatural

0:48:44 > 0:48:49disaster. People having the cladding removed, put on their buildings,

0:48:49 > 0:48:55because it was not safe, like Grenfell Tower. Now they are

0:48:55 > 0:49:00freezing because they are in tower blocks with no protection from the

0:49:00 > 0:49:07elements. That was installation.Cladding and

0:49:07 > 0:49:15installation are vital to keeping homes warm -- insulation. If you

0:49:15 > 0:49:20look at the weather now, climate change is also an unnatural

0:49:20 > 0:49:27disaster. If we are going to keep warm, the other extreme is heat

0:49:27 > 0:49:31waves, if we are to survive we need to address that and the prices

0:49:31 > 0:49:37people are paying and the terribly low levels of income, the fact

0:49:37 > 0:49:44people cannot afford to keep their home one, people on benefits, then

0:49:44 > 0:49:53they get sanctioned and had nothing at all to put in the meter. And you

0:49:53 > 0:49:57lose your heat, the food in your fridge and freezer, your ability to

0:49:57 > 0:50:04charge your phone, the things our daily lives depend on, these are not

0:50:04 > 0:50:09things we should say, that is life, I have to get on with it.

0:50:09 > 0:50:14We have to change that.The Government would say they are

0:50:14 > 0:50:21bringing in environmental measures. And they would say they will cap

0:50:21 > 0:50:25fuel bills which will help. It has taken a couple of years since

0:50:25 > 0:50:32they started talking about it. It depends how much the cap on energy

0:50:32 > 0:50:37bills is. They say energy prices are about to go up again which could

0:50:37 > 0:50:45wipe out the difference. We do want a cap but it is not a solution.

0:50:45 > 0:50:49Energy is much too important to be left to the fans ripping us off as

0:50:49 > 0:50:57the Government has said. One comment, the Winter Fuel Payment

0:50:57 > 0:51:02is positive but not enough, those of us who are low paid and in work

0:51:02 > 0:51:07simply take the hit driving us further into poverty. It is heat or

0:51:07 > 0:51:13eat. For anyone watching now struggling to keep warm, what is

0:51:13 > 0:51:22your advice? It is hard to give personal advice.

0:51:22 > 0:51:28Everyone has thought of the immediate solution, hot water

0:51:28 > 0:51:34bottles, insulating foil behind the radiators, draught proofing is

0:51:34 > 0:51:39important. Make sure you are on the best tariff you can find. If you are

0:51:39 > 0:51:45in debt and struggling to repay, sometimes you can adjust the rate of

0:51:45 > 0:51:49repayment so you are paying a bit more in summer but less now. There

0:51:49 > 0:51:56are little things. But the bigger things that the individual can't do,

0:51:56 > 0:52:02is to deal with the energy crisis, the benefits sanctions, the low

0:52:02 > 0:52:11income, the fundamental cause, lack of insulation in our homes, bad

0:52:11 > 0:52:14boilers, and ultimately climate change.

0:52:14 > 0:52:23Thank you.

0:52:23 > 0:52:28Coming up.

0:52:28 > 0:52:32How to deal with an ageing population many of whom have

0:52:32 > 0:52:36dementia, a huge rise in people expected to be living with dementia

0:52:36 > 0:52:43in the next years, we will hear from people living with it.

0:52:43 > 0:52:45All this week, we've brought you an insight

0:52:45 > 0:52:47into the work of Hawkswood Primary pupil referral unit

0:52:47 > 0:52:49in north-east London.

0:52:49 > 0:52:51It's a place where children as young as four are taught

0:52:51 > 0:52:54when they are in danger of being permanently excluded

0:52:54 > 0:52:57from their mainstream schools.

0:52:57 > 0:53:00For our last film this week, I caught up with some

0:53:00 > 0:53:03of the children at lunchtime to talk about life at the school

0:53:03 > 0:53:07and their hopes for the future.

0:53:07 > 0:53:09I met seven-year-olds Logan and Kyan, along

0:53:09 > 0:53:12with Andrew who's nine.

0:53:15 > 0:53:16So where do we go first?

0:53:16 > 0:53:17So we go here.

0:53:17 > 0:53:20Come on.

0:53:22 > 0:53:24Do you know my favourite fish?

0:53:24 > 0:53:25What's your favourite fish.

0:53:25 > 0:53:27Tuna, definitely.

0:53:27 > 0:53:29Oh!

0:53:29 > 0:53:32Hi, guys.

0:53:37 > 0:53:39How's it going?

0:53:39 > 0:53:42How do you find it here at the school?

0:53:42 > 0:53:44It's a good place.

0:53:44 > 0:53:48It helps you to behave.

0:53:48 > 0:53:51You get guidance, and Miss Mannakee is a very good teacher.

0:53:51 > 0:53:52Is she?

0:53:52 > 0:53:53Yeah.

0:53:53 > 0:53:54And she shows tough love.

0:53:54 > 0:53:56Tough love.

0:53:56 > 0:54:00What does that mean for you, what does that mean?

0:54:00 > 0:54:02Well, tough love means, um, it's pretty tough,

0:54:02 > 0:54:03it's discipline.

0:54:03 > 0:54:05If you're being unsafe, they restrain you.

0:54:05 > 0:54:06They restrain you.

0:54:06 > 0:54:08Has that ever happened to you?

0:54:08 > 0:54:10It has happened a lot of times.

0:54:10 > 0:54:12It isn't very nice.

0:54:12 > 0:54:15It's not comfortable.

0:54:15 > 0:54:17Andrew, are you going back to mainstream school soon, is

0:54:17 > 0:54:18that right?

0:54:18 > 0:54:23How do you feel about that.

0:54:23 > 0:54:28Well, I feel good, happy that I've come a long way, and now I'm

0:54:28 > 0:54:31going back to mainstream, because Miss Mannakee has helped me

0:54:31 > 0:54:33since I was in year three.

0:54:33 > 0:54:35Ah.

0:54:35 > 0:54:43Can you remember what you used to be like?

0:54:43 > 0:54:46I used to think I was just bad, if anyone does a little thing,

0:54:46 > 0:54:48sticks their tongue out of me, I used to flip.

0:54:48 > 0:54:49But now I just ignore.

0:54:49 > 0:54:51Now I just ignore and tell the teacher.

0:54:51 > 0:54:53I don't fight any more.

0:54:53 > 0:54:56And what about you?

0:54:56 > 0:54:59Why do you think you used to get cross or angry, or

0:54:59 > 0:55:03anxious?

0:55:03 > 0:55:06Every time it was a different reason, but now I just

0:55:06 > 0:55:08feel I made the choice to do it now.

0:55:08 > 0:55:09So you make good choices now.

0:55:09 > 0:55:13Yeah.

0:55:13 > 0:55:15But sometimes I do it a little bit.

0:55:15 > 0:55:17Only like a tiny bit.

0:55:17 > 0:55:18I don't do a big big reaction.

0:55:18 > 0:55:23Logan, what about you?

0:55:23 > 0:55:29I used to get restrained so much.

0:55:29 > 0:55:32And Andrew, can you remember why you used to get cross and angry

0:55:32 > 0:55:37when you were in your old school?

0:55:37 > 0:55:38What do you think was going on?

0:55:38 > 0:55:41Um I wanted my own way.

0:55:41 > 0:55:45I knew I had anger issues but any little thing I used to get angry

0:55:45 > 0:55:46at.

0:55:46 > 0:55:47I didn't know why.

0:55:47 > 0:55:49But since I've come here my behaviour has

0:55:49 > 0:55:50improved a lot.

0:55:50 > 0:55:52When I mean a lot, I mean a lot.

0:55:52 > 0:55:53Yeah?

0:55:53 > 0:55:54Brilliant.

0:55:54 > 0:55:56If it wasn't for Miss Mannakee I'd probably

0:55:56 > 0:55:57be the same...

0:55:57 > 0:56:00Do you feel proud of yourself?

0:56:00 > 0:56:03Yeah, but I mostly feel proud of Miss Mannakee for helping

0:56:03 > 0:56:04me.

0:56:04 > 0:56:05Ah.

0:56:05 > 0:56:07That's a very, very lovely thing to say.

0:56:07 > 0:56:08Very lovely.

0:56:08 > 0:56:13How does your mum think you've got on here?

0:56:13 > 0:56:14She's very proud of me, I've improved.

0:56:14 > 0:56:19Wow.

0:56:19 > 0:56:22Do you feel calmer as well now, would you say?

0:56:22 > 0:56:23Not with...

0:56:23 > 0:56:26You still don't like that...

0:56:26 > 0:56:32Do you?

0:56:32 > 0:56:35When Miss Mannakee told me to actually try dinner I actually

0:56:35 > 0:56:36liked it.

0:56:36 > 0:56:38So that's another thing that Miss Mannakee helped me with.

0:56:38 > 0:56:39Is that Miss Mannakee?

0:56:39 > 0:56:40That's Miss Mannakee there.

0:56:40 > 0:56:42OK.

0:56:42 > 0:56:43Miss Mannakee.

0:56:43 > 0:56:44I'm hearing a lot about you.

0:56:44 > 0:56:45Yeah.

0:56:45 > 0:56:51They are, they are loving you, I have to say.

0:56:51 > 0:56:56Yesterday when I went home, I heard Mum say, I don't know

0:56:56 > 0:56:58how you've dealt with me, like she doesn't know how

0:56:58 > 0:57:02I learned this quick.

0:57:02 > 0:57:04Did you explain to Mum how you managed to learn quickly?

0:57:04 > 0:57:06You need to tell me why you learned quickly.

0:57:06 > 0:57:09Because of your tough love.

0:57:09 > 0:57:12Because I gave tough love, and what else?

0:57:12 > 0:57:15What did you need to do?

0:57:15 > 0:57:18Give up and start crying?

0:57:18 > 0:57:19What did you do.

0:57:19 > 0:57:20Never give up.

0:57:20 > 0:57:22Oh, I love that.

0:57:22 > 0:57:25I say that to my kids, never give up.

0:57:25 > 0:57:26So listen.

0:57:26 > 0:57:28I'm done.

0:57:28 > 0:57:31Look at you eating your apple, good boy.

0:57:31 > 0:57:33Thank you so much for inviting me for lunch.

0:57:33 > 0:57:34It's OK.

0:57:34 > 0:57:35Thank you.

0:57:35 > 0:57:38It's been really, really lovely to meet you.

0:57:38 > 0:57:40I'm just going to get some pudding now, would

0:57:40 > 0:57:41that be all right?

0:57:41 > 0:57:43Miss, please may I go up?

0:57:43 > 0:57:51Thank you.

0:57:51 > 0:57:55And thank you so much to the staff and pupils

0:57:55 > 0:58:01at Hawkswood Primary School who opened up their doors to us.

0:58:01 > 0:58:07Let's get the latest weather update with Carole.

0:58:08 > 0:58:14It has the potential to be the coldest day in March in the UK ever?

0:58:14 > 0:58:19That is right. As well as that, we have also got a few weather

0:58:19 > 0:58:25warnings. One which is about to expire across

0:58:25 > 0:58:31central Scotland, Tayside and Fife, but anyone for heavy snow and

0:58:31 > 0:58:36blizzards across Devon, Somerset and South Wales.

0:58:36 > 0:58:41We are about to lose the one across Central Scotland but we still have

0:58:41 > 0:58:47amber be prepared in all these areas including Northern Ireland, for snow

0:58:47 > 0:58:50which will be blowing and feeling bitterly cold.

0:58:50 > 0:58:55An amber warning across the south-west, Hampshire and the south

0:58:55 > 0:59:02Coast, for snow and wind but this is the red one, the top level of

0:59:02 > 0:59:06warning the Met Office ever issues. If you are out, bear that in mind,

0:59:06 > 0:59:10there will be some atrocious conditions with blizzards, blowing

0:59:10 > 0:59:15snow, because the wind is gale-force winds.

0:59:15 > 0:59:20Through the morning, we will continue with the snow, across

0:59:20 > 0:59:24southern England, through Wales and the potential for significant

0:59:24 > 0:59:31snowfall across areas in that red morning, up to 20 centimetres, about

0:59:31 > 0:59:38eight inches, plus more than double that in some areas. Moving

0:59:38 > 0:59:43northwards, the risk of another dangerous element, freezing rain.

0:59:43 > 0:59:50We have strong winds, these temperatures may be what you see on

0:59:50 > 0:59:59your thermometer but wait for the wind chill, it will feel more like

0:59:59 > 1:00:05-13 in Birmingham. Wrap up warmly is the message if you are stepping out

1:00:05 > 1:00:09today. Heading into the evening, we still

1:00:09 > 1:00:15have snow across the south-west, Wales, snow showers across the North

1:00:15 > 1:00:21and east, a keen wind, some drier conditions, the risk of freezing

1:00:21 > 1:00:26rain, and a cold night, temperatures well below freezing.

1:00:26 > 1:00:31Tomorrow, a little bit of let up in amounts of snow but it will still be

1:00:31 > 1:00:37snowing, with showers across the north and east. Through the day,

1:00:37 > 1:00:44this snow will drift slowly north eastwards. Later in the afternoon,

1:00:44 > 1:00:50we think the snow will be in a line from London up to Liverpool Bay and

1:00:50 > 1:00:55all points south, with a lot of snow across central areas. If you are

1:00:55 > 1:01:02out, bear that in mind. It will feel better. For the weekend, it will

1:01:02 > 1:01:09still be cold but less in the south. Nonetheless we are still looking at

1:01:09 > 1:01:16the risk of snow, perhaps not as heavy.

1:01:18 > 1:01:19Hello.

1:01:19 > 1:01:20It's Thursday.

1:01:20 > 1:01:21It's 10 o'clock.

1:01:21 > 1:01:23I'm Victoria Derbyshire.

1:01:23 > 1:01:25Our top story today - a second red weather warning has

1:01:25 > 1:01:28been issued for heavy snow, this time for South Wales

1:01:28 > 1:01:29and South West England with more snow expected

1:01:29 > 1:01:31across the UK.

1:01:31 > 1:01:34It is a little bit of dusty snow right now that it will get much

1:01:34 > 1:01:37heavier as the day goes on and into the evening and again tomorrow and

1:01:37 > 1:01:40potentially into tomorrow night as well. That is what they are worried

1:01:40 > 1:01:45about. Not just the instant snowfall but the accumulation of hours and

1:01:45 > 1:01:50hours.We will speak to some of you affected by the weather. And also an

1:01:50 > 1:01:53employment lawyer who will tell you your rights if you can't get to work

1:01:53 > 1:01:57because of bad weather. It is a condition that will affect 1 million

1:01:57 > 1:02:02people in the UK by 2036. We look at the pressures of living at home with

1:02:02 > 1:02:09dementia for the individuals and their loved ones.What am I called?

1:02:09 > 1:02:14Oh. Are you going to have another go? Tell me what I am called.I

1:02:14 > 1:02:20can't...You can't remember. You can't remember what I'm called,

1:02:20 > 1:02:25darling.We will be joined by this group of people who all live with

1:02:25 > 1:02:28dementia or are professionals working in the field. If you care

1:02:28 > 1:02:31for a relative with this condition we definitely want to hear from you

1:02:31 > 1:02:36this morning. Please get in touch in the usual ways. The Home Office

1:02:36 > 1:02:39considering allowing a medical cannabis trial to treat a

1:02:39 > 1:02:46six-year-old boy with a rare form of epilepsy.

1:02:50 > 1:02:54We'll speak to Alfie Dingley's parents before the end of the show.

1:02:54 > 1:03:00Here is the latest BBC News with Annita McVeigh. Good morning.

1:03:00 > 1:03:02The Met Office has issued a red weather warning

1:03:02 > 1:03:05for Devon, Somerset and the southern half of Wales meaning imminent

1:03:05 > 1:03:06loss of life is possible.

1:03:06 > 1:03:08A separate red weather warning is in place

1:03:08 > 1:03:09for Scotland's central belt.

1:03:09 > 1:03:11The snow continues to cause problems across the UK.

1:03:11 > 1:03:13Hundreds of schools are closed in south Wales, southern

1:03:13 > 1:03:14England and Scotland.

1:03:14 > 1:03:20Phil Bodmer is in Yarm in North Yorkshire.

1:03:20 > 1:03:25The snow here in the North East is falling thick and fast. You can see

1:03:25 > 1:03:29how much there is on this car, and that just shows you the level of

1:03:29 > 1:03:33snow we have had. Police in north Yorkshire are warning drivers not to

1:03:33 > 1:03:37travel if at all possible. They say driving conditions on many routes

1:03:37 > 1:03:42are abysmal and the A66 that Scotch Corner is closed currently.

1:03:42 > 1:03:45Lincolnshire Police say once again drivers are being warned not to

1:03:45 > 1:03:50travel if they don't have to because pretty much every road throughout

1:03:50 > 1:04:01the county is impassable.

1:04:01 > 1:04:04Gritters and snow ploughs have been out all morning. In Yarm itself, the

1:04:04 > 1:04:07main centre is clear. You can see on the top shot now that the road is

1:04:07 > 1:04:10clear. Snow ploughs and gritters have been through all morning. Leeds

1:04:10 > 1:04:12Bradford Airport has some cancellations this morning and there

1:04:12 > 1:04:14are problems on the railways as elsewhere in the country. If you are

1:04:14 > 1:04:16setting out today, the advisers to take time. Make sure you are

1:04:16 > 1:04:23prepared and take extra clothing a blanket if you can and be prepared

1:04:23 > 1:04:26for a longer journey than usual. Thousands of people in Scotland have

1:04:26 > 1:04:31been trapped in cars in Scotland overnight on the M80 in Glasgow.

1:04:31 > 1:04:36Some were trapped for 15 hours. Others have been stranded near

1:04:36 > 1:04:38Skegness in Lincolnshire and forecasters are warning of more snow

1:04:38 > 1:04:43to come across many parts of the UK. Where the red alerts remain in

1:04:43 > 1:04:47place, people are advised not to venture out. In other news: The

1:04:47 > 1:04:52President of the EU Council, Donald Tusk, has warned UK can't have

1:04:52 > 1:04:55frictionless trade with EU European Union if it is outside the market

1:04:55 > 1:05:06and single -- customs union and single market. This programme has

1:05:06 > 1:05:09uncovered exclusive new figures that underscore the scale of the

1:05:09 > 1:05:12challenge of people suffering from dementia and their carers. By the

1:05:12 > 1:05:16middle of the century, 1.3 million people will be living at home with

1:05:16 > 1:05:21dementia in the UK, a sharp rise from the 540,000 currently living

1:05:21 > 1:05:26with dementia at home.

1:05:26 > 1:05:29For the first time acid is described as a highly

1:05:29 > 1:05:32dangerous weapon in new sentencing guidelines.

1:05:32 > 1:05:33The advice for judges and magistrates

1:05:33 > 1:05:35in England and Wales has been updated in the wake

1:05:35 > 1:05:37of a surge in attacks using corrosive substances.

1:05:37 > 1:05:39Offenders are now likely to face stiffer penalties.

1:05:39 > 1:05:41The American retail giant Walmart says it

1:05:41 > 1:05:44will tighten its policy on firearms sales as Donald Trump tells

1:05:44 > 1:05:47Congress it's time to act.

1:05:47 > 1:05:49The President stunned some politicians

1:05:49 > 1:05:52in his own Republican Party by telling them on live TV not to be

1:05:52 > 1:05:54so afraid of the pro-gun lobby.

1:05:54 > 1:05:57He said he wanted what he called a strong reform bill

1:05:57 > 1:06:03but stuck by his suggestion of arming some teachers.

1:06:03 > 1:06:07There were 11 wins for the BBC's journalism at the royal television

1:06:07 > 1:06:12society awards last night including two for this programme. Victoria

1:06:12 > 1:06:14Derbyshire was named network presenter of the year and she also

1:06:14 > 1:06:17picked up the gong for best interview of the year for the

1:06:17 > 1:06:23football abuse story. That is a summary of the latest BBC News. More

1:06:23 > 1:06:27at 10:30am. Thank you. It must have been a good night last night because

1:06:27 > 1:06:32I have no idea where my glasses are. I have left them somewhere in the

1:06:32 > 1:06:35capital city of this country. We have so many messages from you about

1:06:35 > 1:06:40dementia. Thank you very much. We will talk more about it in the next

1:06:40 > 1:06:44half an hour. This tweet says your report on life with dementia is a

1:06:44 > 1:06:52difficult but worthwhile watch. A lot of people with experiences of

1:06:52 > 1:06:54neurological conditions will recognise aspects of how it affects

1:06:54 > 1:06:58them. Gary says moving stories from families in this living with

1:06:58 > 1:07:03dementia special. Emotional in so many ways. Rebecca had: So painful

1:07:03 > 1:07:06watching the dementia diaries on Victoria Derbyshire. I can't imagine

1:07:06 > 1:07:10how it feels for the person and their partner. Joe has emailed to

1:07:10 > 1:07:13say I am watching your programme and finding the focus on dementia very

1:07:13 > 1:07:17informative. It is brilliant, informative and also emotional. Both

1:07:17 > 1:07:21my grandmother and mother-in-law had the condition. I saw them slowly

1:07:21 > 1:07:29lose their identity. It was soaked that. Adam says: My mum had dementia

1:07:29 > 1:07:34from 2009 at 2014. What a destructive type of disease. It was

1:07:34 > 1:07:39so sad to have the shell of a loved one left over from a very loving

1:07:39 > 1:07:43mother. We coped as well as we could and so many restrictions. Sadly her

1:07:43 > 1:07:47final week was made worse by appalling end of life care. The

1:07:47 > 1:07:51programme can only go to raise awareness of such a debilitating

1:07:51 > 1:07:54disease that affects more than just the sufferer. Please tell as many

1:07:54 > 1:08:00people as possible. That is what we plan to do today. Your experience is

1:08:00 > 1:08:09so valuable. We are going to hear from experts of people caring for

1:08:09 > 1:08:11dementia sufferers and we will talk to experts who are looking at curing

1:08:11 > 1:08:15the disease, which is the aim one day but we are long way from that.

1:08:15 > 1:08:20If you want to get in touch, you are very welcome. Use the hashtag. If

1:08:20 > 1:08:25you are texting, you will be charged at the standard rate. Now the sport.

1:08:25 > 1:08:28The England rugby union head coach Eddie Jones said he was physically

1:08:28 > 1:08:32and verbally abused by returning by train from Scotland on Sunday.

1:08:32 > 1:08:37England lost their Six Nations match at Murrayfield the day before. He

1:08:37 > 1:08:41suffered abuse on the train from Edinburgh. This is footage of him at

1:08:41 > 1:08:47Manchester Oxford Road Haitian being harangued and sworn at by a group of

1:08:47 > 1:08:55men. -- train station. He then attended the Manchester United match

1:08:55 > 1:08:57as a guest of Sir Alex Ferguson before continuing his journey to

1:08:57 > 1:09:02London by train when he was abused again. Our rugby union reporter

1:09:02 > 1:09:07Chris Jones is here. This is quite shocking. Part of Eddie Jones's

1:09:07 > 1:09:10modus operandi, he likes to engage with the fans and he likes having

1:09:10 > 1:09:16selfies. Clearly this happened on a couple of legs of his journey south.

1:09:16 > 1:09:24He also pointed out some pre-match comments, from former players, a

1:09:24 > 1:09:27Scottish prop, saying the England hating message, he says that

1:09:27 > 1:09:33insights certain behaviours.Yes, and he also spoke about an interview

1:09:33 > 1:09:40that the great Gavin Hastings gave. He said Scotland would love to win

1:09:40 > 1:09:45to rob Eddie Jones's nose in the dirt. Some would say that is pretty

1:09:45 > 1:09:47freaked Calcutta Cup sparring but Jones feels it created an atmosphere

1:09:47 > 1:09:56of animosity. Jones was travelling south from Edinburgh, away to the

1:09:56 > 1:10:00game at Old Trafford between Manchester United and Chelsea. We

1:10:00 > 1:10:05had BBC footage about him being accosted at Manchester Oxford Road,

1:10:05 > 1:10:07and British Transport Police have confirmed there was an incident

1:10:07 > 1:10:12reported on the train down from Manchester to London. Scottish rugby

1:10:12 > 1:10:15union have sent out a very strong statement saying they are appalled

1:10:15 > 1:10:21and disgusted by the reactions in the video. And the RFU, while

1:10:21 > 1:10:25welcoming the Scottish statement, and appreciating their support, they

1:10:25 > 1:10:29will not make any further comment. They said that Eddie Jones said all

1:10:29 > 1:10:33he had to say yesterday when he spoke to the British newspapers. But

1:10:33 > 1:10:37they say he may not take public transport in this way again and they

1:10:37 > 1:10:42are going to make sure they can do whatever they can to ensure his

1:10:42 > 1:10:46security. They also point out that Jones is keen to draw a line and the

1:10:46 > 1:10:53absurd and move on.Thank you. -- draw a line under the episode and

1:10:53 > 1:10:57move on. Mauricio Pochettino says the use of VAR in their FA Cup win

1:10:57 > 1:11:01at Wembley against Rochdale was embarrassing. Referee Paul Tierney

1:11:01 > 1:11:04used the system which has been trialled in the cup competitions

1:11:04 > 1:11:11this season to allow a goal, disallow a penalty and allow a

1:11:11 > 1:11:14penalty. Five minutes of time added on at the end of the first half to

1:11:14 > 1:11:18allow for all the stoppages. The Spurs boss feels the technology on

1:11:18 > 1:11:24this occasion has been having a negative affect on the game. It was

1:11:24 > 1:11:291-1 at half-time. A second-half hat-trick in the space of 12 minutes

1:11:29 > 1:11:33from Fernando Llorente so Spurs go through 6-1 in the end. They will

1:11:33 > 1:11:38now face Swansea in the quarterfinals. I will be back with

1:11:38 > 1:11:44the sport headlines a bit later.

1:11:55 > 1:12:00Three years ago we gave video cameras to three people living with

1:12:00 > 1:12:03dementia to film their lives. They did so and they are back with us

1:12:03 > 1:12:06this morning along with others living with dementia, some of their

1:12:06 > 1:12:10relatives, those who care for people with the disease as well. We will

1:12:10 > 1:12:13talk about what it is like to live with dementia and how we as a

1:12:13 > 1:12:18country can best pay for that care for this challenging disease. First,

1:12:18 > 1:12:25this is Jim with some facts and figures.

1:12:44 > 1:12:47The number of people being cared for with dementia in their own homes is

1:12:47 > 1:12:53expected to rise by 1.3 million by 2051 according to new projections

1:12:53 > 1:12:57showing by this programme. What impact will that have on health

1:12:57 > 1:13:01services and society in general? Well, it is now thought one in every

1:13:01 > 1:13:08three people born today in 2018 will develop dementia in their lifetime.

1:13:08 > 1:13:12It is already the leading cause of death for women in the UK and the

1:13:12 > 1:13:17second leading cause of death for men after heart disease. By 2040, it

1:13:17 > 1:13:20is predicted more people will die of dementia in this country than all

1:13:20 > 1:13:27cancers combined. Then there is the cost to society, currently put at

1:13:27 > 1:13:31£26 billion a year in care and treatment, which again is expected

1:13:31 > 1:13:36to double by 2040. At the moment, most of that cost is paid for by the

1:13:36 > 1:13:42people with the disease. If you live in England or Northern Ireland and

1:13:42 > 1:13:48you have assets over £23,250, you are currently expected to pay the

1:13:48 > 1:13:53social care bill yourself. The rules are slightly different in Wales and

1:13:53 > 1:13:56Scotland, where the amount is Zeb Taia. This summer the government

1:13:56 > 1:14:03should start the process of reforming the entire system in

1:14:03 > 1:14:07England. As for the cost to the health service, one in four hospital

1:14:07 > 1:14:12beds is now used by someone with dementia. 69% of people living in a

1:14:12 > 1:14:16private care home have the condition. It is not just about

1:14:16 > 1:14:20those living with the disease. 25 million people in this country now

1:14:20 > 1:14:25have a family member or close friend with dementia. 700,000 directly care

1:14:25 > 1:14:32for somebody affected. Both members that are set to increase rising over

1:14:32 > 1:14:37the next 50 years. Can I introduce you again to Wendy Mitchell, Keith

1:14:37 > 1:14:41Oliver and Christopher, who are all living with dementia and have been

1:14:41 > 1:14:46filming their lives for you? Veronica is Christopher's wife.

1:14:46 > 1:14:49Jennifer is also here. She is a GP who has been diagnosed with

1:14:49 > 1:14:54dementia. And we have got Brenda over here. She was diagnosed three

1:14:54 > 1:15:00years ago. She is with her husband Stephen. We will introduce you to

1:15:00 > 1:15:07some of our other guests in the course of the next half an hour. I

1:15:07 > 1:15:12want to talk to you about the challenges of living with dementia.

1:15:12 > 1:15:18One example is when you were accosted after parking in a disabled

1:15:18 > 1:15:21space? It was rather embarrassing. Maybe

1:15:21 > 1:15:27the gentleman who accused us, with dementia, you don't look disabled,

1:15:27 > 1:15:32you don't look ill. Christopher can walk which used to be a criteria for

1:15:32 > 1:15:41the blue badge. The stress of going places, big car parks is taken away

1:15:41 > 1:15:46by the blue badge, it is essential. The Government is running something,

1:15:46 > 1:15:50looking at it again. Is there a stigma surrounding

1:15:50 > 1:15:56dementia? You are nodding?I think there is a

1:15:56 > 1:16:01great stigma, I am afraid. People do not talk about dementia a lot of the

1:16:01 > 1:16:07time. Why is that? A lot of people are

1:16:07 > 1:16:11very frightened of dementia. What you have shown in these films is it

1:16:11 > 1:16:17is not frightening, it is part of life, and a lot of people are going

1:16:17 > 1:16:22to have some form of dementia. We must get used to it and accept it

1:16:22 > 1:16:28and talk about it. If you avoid talking about it, you avoid the

1:16:28 > 1:16:33understanding of all the people around you. We want everybody to

1:16:33 > 1:16:40make this country dementia friendly so we welcome people with dementia,

1:16:40 > 1:16:45we talk about it, we change policies to make sure people with dementia

1:16:45 > 1:16:51and those who care for them, people like Veronica, have an understanding

1:16:51 > 1:16:57relationship with neighbours, with police, with shop assistants, with

1:16:57 > 1:17:05people we come across every day. Wendy, you are an incredible

1:17:05 > 1:17:09illustration of living with dementia, and the adjustments you

1:17:09 > 1:17:15have made, including moving house. Did you want to move house?

1:17:15 > 1:17:20Did you feel forced? No, I was definitely forced. Dementia forced

1:17:20 > 1:17:28me in one way because I used to live in a busy centre of York. And I hope

1:17:28 > 1:17:33everyone realises dementia isn't just about memory, but lots of other

1:17:33 > 1:17:39senses are affected as well. And hearing was one of my first. It just

1:17:39 > 1:17:46became too chaotic, it made me anxious to be in that busy situation

1:17:46 > 1:17:50which I used to love. So, I had to move somewhere quiet.

1:17:50 > 1:17:57But also financially, I still had a mortgage when I was diagnosed.

1:17:57 > 1:18:07People often forget, when you are diagnosed, you still have a

1:18:07 > 1:18:12mortgage, young children, I was working. So no one would have given

1:18:12 > 1:18:18me a mortgage under those circumstances, with living alone. So

1:18:18 > 1:18:22I had to move to a cheaper part of the country to be able to still have

1:18:22 > 1:18:27a house. What about other experiences?

1:18:27 > 1:18:33In a long-distance sense, you look after your mum who has dementia, who

1:18:33 > 1:18:36is 91. She has been in care for over six

1:18:36 > 1:18:42years. Before that she was living alone at home. I would say with

1:18:42 > 1:18:49symptoms of dementia for up to 20 years. People assume that dementia

1:18:49 > 1:18:54is all about memory loss, getting confused about names, dates, money.

1:18:54 > 1:19:00That is part of it. In her case, she has mixed Alzheimer's and vascular

1:19:00 > 1:19:09dementia. Troubling symptoms were along the paranoid spectrum, having

1:19:09 > 1:19:13fears and delusions, irrational emotional responses, the kind of

1:19:13 > 1:19:18things that come and go. You can't obviously point to them as a

1:19:18 > 1:19:23disease. Sometimes it seems like an irrational flare-up in your

1:19:23 > 1:19:28relationship and then you move on. Can I ask how you managed to get

1:19:28 > 1:19:33your mother into a care home? It was immensely difficult, too hard

1:19:33 > 1:19:39to explain in a sound bite. It was a long process and I wouldn't have

1:19:39 > 1:19:44been able to do it if she had still been able to be independent. It was

1:19:44 > 1:19:53only when she got into crisis. She wasn't safe to be left on her own.

1:19:53 > 1:19:58And going out, driving, not being visibly disabled, our life had

1:19:58 > 1:20:03shrunk down. By that time, the only places we could go well where I

1:20:03 > 1:20:07could park right outside and go straight in because I couldn't leave

1:20:07 > 1:20:12her to park the car somewhere else. Effectively you had to use

1:20:12 > 1:20:15subterfuge to get your mum into care?

1:20:15 > 1:20:21Part of her symptoms are she hasn't been able to recognise the symptoms

1:20:21 > 1:20:26herself. She would be antagonistic to anyone raising it. Understandably

1:20:26 > 1:20:30because if you think someone is raising an issue you are afraid of

1:20:30 > 1:20:35but you don't think it is an issue at all, of course you would be

1:20:35 > 1:20:40angry. I could never plan things with her. Everything I organised for

1:20:40 > 1:20:46her, in the end I did behind her back with social workers, clinical

1:20:46 > 1:20:51psychiatrists, occupational therapists, ultimately with the care

1:20:51 > 1:20:55home. All of us employing a degree of subterfuge to get her to accept

1:20:55 > 1:21:05the things by that stage she needed. Jennifer, was it you who found

1:21:05 > 1:21:10yourself wandering along a bridge? You are going to a tube station and

1:21:10 > 1:21:13you found you weren't in the right place and didn't know where you

1:21:13 > 1:21:21work? -- know where you work? I didn't know where the exit was on

1:21:21 > 1:21:25the platform. I kept going up and down the bridge because I didn't

1:21:25 > 1:21:32know. So many people say we look all right and don't understand how

1:21:32 > 1:21:37difficult life can be. And who helped you? Nobody, until

1:21:37 > 1:21:41the person waiting to meet eventually came to find me. By which

1:21:41 > 1:21:44time the station was deserted and I were still wandering up and down

1:21:44 > 1:21:52over the bridge because I did not know how get out.Can I add, there

1:21:52 > 1:21:58was an important word, rationality. That is one of the things you

1:21:58 > 1:22:05mention robs me of Sundays. I find it very alien from what I used to be

1:22:05 > 1:22:12like. An example is, the other day, I felt nobody cared. It was a really

1:22:12 > 1:22:17foggy day and I sensed nobody cared. My consultant came to visit me at

1:22:17 > 1:22:25home because I wasn't well. This is my psychiatrist. And I gave him all

1:22:25 > 1:22:30guns blazing about how I felt nobody cared. I felt horrible because this

1:22:30 > 1:22:36poor chap has come to see me at home and he truly does care, and I spoke

1:22:36 > 1:22:42about not caring. I did clarify, it is the system that appears not to

1:22:42 > 1:22:46care. The individuals within the system are giving an enormous amount

1:22:46 > 1:22:54of care.We will talk about the system in a moment. You talk

1:22:54 > 1:22:58powerfully in the film about depression and dementia being best

1:22:58 > 1:23:04friends, give us an insight?I have never had depression in my life and

1:23:04 > 1:23:08when I was first diagnosed, the consultant, he didn't give me any

1:23:08 > 1:23:15prescription for the uptime is but an antidepressant.

1:23:16 > 1:23:19an antidepressant. I took the description but I never cashed it. I

1:23:19 > 1:23:25have never taken an antidepressant. When I did become depressed because

1:23:25 > 1:23:29of the dementia I remember saying, if I am going down I want my eyes

1:23:29 > 1:23:40open. Because I don't want the cloud to be made even more so by the

1:23:40 > 1:23:47medication. I did come out of that. Because of the people that surround

1:23:47 > 1:23:54me, my wife, my family, and those professionals who are doing their

1:23:54 > 1:24:00best to help me. I want to show you a little clip of

1:24:00 > 1:24:04Wendy in a glider.When was this, last year?

1:24:04 > 1:24:10Probably, yes. Stupid question on my part!

1:24:10 > 1:24:13Let us play you this.

1:24:17 > 1:24:22How good was that? That was amazing. Did you have some

1:24:22 > 1:24:24of the people saying to your daughter, are you sure she will be

1:24:24 > 1:24:31all right?I remember distinctly because of the powerful emotion it

1:24:31 > 1:24:41makes you feel. I was stood next to them, and the pilot and technicians

1:24:41 > 1:24:48spoke to my daughter and said, is your mum really capable? Will she

1:24:48 > 1:24:54take all the controls?

1:24:54 > 1:24:56take all the controls?Is that because people sometimes think

1:24:56 > 1:25:03dementia equals madness?When people think of dementia they often think

1:25:03 > 1:25:07of the end stages and they forget there is a beginning and a middle

1:25:07 > 1:25:14and so much living to be done. All the time. So they were just assuming

1:25:14 > 1:25:21I had no control over myself. Luckily, my daughter said, why don't

1:25:21 > 1:25:30you ask her, she is stood here! Once we had got over that initial

1:25:30 > 1:25:33barrier, they started to relax a little but it wasn't until we were

1:25:33 > 1:25:41up in the sky and I was taking photos and talking that I could see

1:25:41 > 1:25:47the pilot behind me visibly relax and start talking to me, instead of

1:25:47 > 1:25:52wondering how on earth much longer it was before we got down again.

1:25:52 > 1:25:58Fantastic. I want to ask Carol if you could introduce your

1:25:58 > 1:26:03organisation, about the current state of research into dementia,

1:26:03 > 1:26:07treatments and cures, before we talk about care for people with dementia

1:26:07 > 1:26:17in this country.I am the Director of Alzheimer's research UK, funding

1:26:17 > 1:26:19research from really early scientific research all the way to

1:26:19 > 1:26:25the clinic. We are making significant progress. We don't have

1:26:25 > 1:26:30a cure but we are making progress. We understand a lot more about the

1:26:30 > 1:26:35pathology behind these diseases, about the genetics, we understand a

1:26:35 > 1:26:41lot more about the processes which provides targets to develop drugs.

1:26:41 > 1:26:47There are many drugs in development. We all hope they will show

1:26:47 > 1:26:50effectiveness and benefit in patients.Is there anything on the

1:26:50 > 1:26:55market now to help people manage their dementia?There are

1:26:55 > 1:27:01symptomatic treatments on the market now. These treatments are effective

1:27:01 > 1:27:06in a proportion of people but not everybody.

1:27:06 > 1:27:13What do they do? They slowed down the decline in memory loss and the

1:27:13 > 1:27:16appearance of behaviours. They don't have any effect on disease

1:27:16 > 1:27:22modification. They don't slow the disease process or stop it. But they

1:27:22 > 1:27:27really help with the symptoms. They don't work in everybody but in some

1:27:27 > 1:27:36they work for a significant period. Brenda hello. Thank you for being so

1:27:36 > 1:27:43patient. Diagnosed three years ago and involved in medical trials. If

1:27:43 > 1:27:48you say so, yes. Can you tell us a little bit?

1:27:48 > 1:27:55It gets me out of the house and I go to various places, with Stephen, of

1:27:55 > 1:28:00course. And sometimes I am looked from head to toe, other times they

1:28:00 > 1:28:08ask me questions, but I don't really remember what has happened will stop

1:28:08 > 1:28:14I just go with the flow.Can you tell us a little bit? To go back,

1:28:14 > 1:28:19Brenda says she goes with the flow. When she was first diagnosed, she

1:28:19 > 1:28:24was very angry. After a few months she had an epiphany where she said

1:28:24 > 1:28:32to me one day, I am coming out, literally. And when she came out,

1:28:32 > 1:28:35she was completely different, all of the anger had gone, she didn't mind

1:28:35 > 1:28:41talking about it to people. Yesterday we have to fill in lots of

1:28:41 > 1:28:47questionnaires for the research, we did one yesterday, asked on a scale

1:28:47 > 1:28:50of one to ten where do you consider yourself in happiness, where did you

1:28:50 > 1:28:57put yourself, do you remember? Nearly ten. She decided on eight

1:28:57 > 1:29:01because she said there is room for improvement. But she always feels

1:29:01 > 1:29:14very happy. When she was first diagnosed, it seemed to be automatic

1:29:14 > 1:29:21the patient is put on an antidepressant. Brenda was angry,

1:29:21 > 1:29:26she wasn't depressed. It took a few months. We persuaded the memory

1:29:26 > 1:29:30clinic and doctor to take her off the antidepressants, there was no

1:29:30 > 1:29:37need for it. And she doesn't need it now. As far as the tiles are

1:29:37 > 1:29:41concerned, Brenda does willingly volunteer for quite a few trials,

1:29:41 > 1:29:47some of which are sponsored by Alzheimer's research UK. She is

1:29:47 > 1:29:52subjected to all sorts of indignities she is happy with, being

1:29:52 > 1:29:56hung up in answers, involved in balance studies, constant brain

1:29:56 > 1:30:01scans. It gets me out of the house.Thank

1:30:01 > 1:30:09you so much.

1:30:09 > 1:30:12you so much. I want to talk about the current state of care for people

1:30:12 > 1:30:18with dementia in the UK. One in four people in a hospital bed is someone

1:30:18 > 1:30:24with dementia. Is that the right place for them?My

1:30:24 > 1:30:30dad died last year, in hospital for the last six months of his life. He

1:30:30 > 1:30:38was in a care home prior to that. The experience chimes with the

1:30:38 > 1:30:43subterfuge and going against his will, he would have rather stay at

1:30:43 > 1:30:47home, but my mum had cancer and could not care for him. Once he went

1:30:47 > 1:30:53into hospital, the care home said they would not have him back because

1:30:53 > 1:30:57his level of need had increased to the point where they could not

1:30:57 > 1:30:57manage, which

1:31:09 > 1:31:12My mother died last February, so it was down to me to look at care homes

1:31:12 > 1:31:17and pick one. I was quite surprised to find that wasn't the case.

1:31:17 > 1:31:21Actually the care homes would come and assess him.So they pick you or

1:31:21 > 1:31:28not as the case may be?Exactly. Each time it was the same thing.

1:31:28 > 1:31:32They couldn't manage his night-time wondering. He was in a hospital

1:31:32 > 1:31:36environment which was not necessarily... It was an alien

1:31:36 > 1:31:41environment. It probably wasn't showing him how he would have been

1:31:41 > 1:31:46if he had been settled and familiar. He would be awake a lot of the night

1:31:46 > 1:31:49and sleeping during the day and he would get very agitated and he would

1:31:49 > 1:31:53want to walk up and down the corridor but because he was so

1:31:53 > 1:31:56confused and disorientated, somebody had to be with him all the time. The

1:31:56 > 1:32:03ward he was on was appropriate for people with dementia but in a risk

1:32:03 > 1:32:08averse way.But in an ideal world, are you saying as experts, because

1:32:08 > 1:32:11of your personal experiences and because you are caring for someone

1:32:11 > 1:32:16or the organisation you work for, that being a hospital just because

1:32:16 > 1:32:22you have dementia is not the right place?Absolutely. I work for the

1:32:22 > 1:32:26Alzheimer's Society and we know who people who stay in hospital with

1:32:26 > 1:32:29dementia can stay there from twice to seven times as long because the

1:32:29 > 1:32:34community support is not there. Some of the numbers we have talked about,

1:32:34 > 1:32:38there are 500,000 people living in their own homes with dementia, and

1:32:38 > 1:32:41they have told the Alzheimer's Society that 85% would like to stay

1:32:41 > 1:32:46in their own homes for as long as possible. By 2050 we will have 1.3

1:32:46 > 1:32:50million people living with dementia in their homes. Their individual

1:32:50 > 1:32:55support needs need to be there. Either we address them sensibly,

1:32:55 > 1:32:59more affordably in the community or we are going to have the greater

1:32:59 > 1:33:05crisis on the NHS which is avoidable.Ago. People with dementia

1:33:05 > 1:33:09can live in their own homes independently, individually, as you

1:33:09 > 1:33:13have illustrated and you are illustrating, but we have got to pay

1:33:13 > 1:33:19for professionals to go in and help them do what, for example?It can be

1:33:19 > 1:33:23a whole range of support. As Keith said, there is support for living

1:33:23 > 1:33:26with dementia and reducing isolation. You can have group

1:33:26 > 1:33:30activities and one-to-one support and as dementia progresses, it can

1:33:30 > 1:33:34move into the health needs, the health support. What we can but hope

1:33:34 > 1:33:41is now we have, with Jeremy Hunt, the Health Secretary, and he is

1:33:41 > 1:33:43responsible for health care and social care, and this is the first

1:33:43 > 1:33:47time the two have been put together and we need the resources properly

1:33:47 > 1:33:50but this is not just this government but successive governments for 20

1:33:50 > 1:33:55years.That is the challenge. Mike, you run a care home. What is your

1:33:55 > 1:34:00view?I had something about care in the community? It is a challenge as

1:34:00 > 1:34:04well because it is about having enough staff to look after people in

1:34:04 > 1:34:09their own home. There was a report last week which showed we cannot

1:34:09 > 1:34:13recruit enough people. It is not just care homes which has its own

1:34:13 > 1:34:17challenges but it is the community as well, making sure people have

1:34:17 > 1:34:24better care. You are a politician, crossbench peer, former director of

1:34:24 > 1:34:30Age Concern. How should we pay for this in the future?I think Jeremy

1:34:30 > 1:34:34Hunt has got to bring together health and social care funding. I

1:34:34 > 1:34:38think we have got to start using the taxation system to help us with

1:34:38 > 1:34:47that. Very importantly.Income tax? Yes.National Insurance? Everybody?

1:34:47 > 1:34:52Everybody who can. And we have got to encourage people to stay at home

1:34:52 > 1:34:54but that doesn't mean you're care workforce, those people, have got to

1:34:54 > 1:35:00be properly paid, recognised as being indispensable in this sort of

1:35:00 > 1:35:07case.Dave?It is not just about staff and professional carers. A lot

1:35:07 > 1:35:11of people living with dementia are supported by family members.

1:35:11 > 1:35:15Particularly for people in black and ethnic minorities, they are being

1:35:15 > 1:35:20supported on a voluntary basis, either by family members or by

1:35:20 > 1:35:25neighbours or members of the community. The challenges they face,

1:35:25 > 1:35:29they don't really understand how dementia works. They are very

1:35:29 > 1:35:36worried about it. They often feel it is not something that they can talk

1:35:36 > 1:35:41about in their communities at all. I think that is an area that is really

1:35:41 > 1:35:45left out of a lot of the conversation when people talk about

1:35:45 > 1:35:48the cost of dementia, because they are bearing the cost of dementia out

1:35:48 > 1:35:55of their pockets every day.I want to bring in Doctor Eileen Burns, a

1:35:55 > 1:36:00hospital doctor

1:36:01 > 1:36:04hospital doctor and President of The Geriatrics Society. Where is the

1:36:04 > 1:36:09best place for people to be treated, helped and supported, and how do we

1:36:09 > 1:36:14pay for it?We really need to start planning in a much more sensible and

1:36:14 > 1:36:18structured way than we have done today for the future population. We

1:36:18 > 1:36:22know that the population is ageing and we know in particular the very

1:36:22 > 1:36:26elderly group, the group in whom dementia is most prevalent, are

1:36:26 > 1:36:30increasing the fastest, and if we don't start planning now, we really

1:36:30 > 1:36:34are going to be in the soup, as my colleague said. We need to think

1:36:34 > 1:36:37about different models of care. Currently many people with dementia

1:36:37 > 1:36:41end up in a hospital setting because something happens. Perhaps they have

1:36:41 > 1:36:46a fall, they develop an infection, it may or may not be the best place

1:36:46 > 1:36:51for them at that time. Sometimes people with dementia will need acute

1:36:51 > 1:36:54hospital care, just like any of us might do. If they don't need

1:36:54 > 1:36:59hospital care but there is a crisis, we need more alternatives rather

1:36:59 > 1:37:07than just 909, ambulance, A&E, hospital

1:37:19 > 1:37:22ward. In many parts of the country that is the only pathway we have. We

1:37:22 > 1:37:24need alternatives to help people not going to hospital if that is

1:37:24 > 1:37:27appropriate and alternatives to help people get back out of hospital in a

1:37:27 > 1:37:29timely way. As has been mentioned, when people get stuck in hospital,

1:37:29 > 1:37:32they become less well, despite everything we try and do an hospital

1:37:32 > 1:37:34to avoid unwanted effects.We know this, politicians know this, the

1:37:34 > 1:37:38population knows this. It is grabbing at by the scruff of the

1:37:38 > 1:37:43neck and sorting it. Those things you pointed out, we know, don't we?

1:37:43 > 1:37:47I am frustrated in a way because I have been involved for 30 years and

1:37:47 > 1:37:52we have done a lot of talking. My fear is that there will be another

1:37:52 > 1:37:56delay when the green paper comes up. We have got to get on with it

1:37:56 > 1:38:01quickly.We are very good at talking in this country and not very good at

1:38:01 > 1:38:08action quick enough. The talking takes up far too much time.The

1:38:08 > 1:38:12public is saying enough is enough. We are expecting a green paper,

1:38:12 > 1:38:19government paper on social care in the not too distant future. Ron

1:38:19 > 1:38:29occur?It is a long journey for a lot of people. -- Veronica? The

1:38:29 > 1:38:32train, as people call it. At first the diagnosis is brilliant and there

1:38:32 > 1:38:38is a lot of post diagnosis care, but as you travel on the train, I mean,

1:38:38 > 1:38:40Christopher was diagnosed ten years ago and he had it two years before

1:38:40 > 1:38:47that while we try to find out what it was. We are getting to a stage

1:38:47 > 1:38:49where we want specialist clinical help. That is totally different from

1:38:49 > 1:38:56anything we have met so far. That is what we really need to stay at home.

1:38:56 > 1:39:00As you say, we can go into hospital for a short time but it is to be

1:39:00 > 1:39:06avoided as possible. Everybody has that experience. There are very few

1:39:06 > 1:39:14Admiral nurses. The cinema, that is what we need. The funding of that

1:39:14 > 1:39:18end of it. There has been a lot of stuff about the beginning, you must

1:39:18 > 1:39:22get diagnosed and talk about it, it has become a thing, and we now need

1:39:22 > 1:39:30to grab the thing and sort it. For our children and grandchildren.

1:39:30 > 1:39:37Sorry, Keith. Very briefly?It is appalling that such a significant

1:39:37 > 1:39:41disease as Alzheimer's, at point of diagnosis you are then discharged!

1:39:41 > 1:39:46That is criminal and crazy. There is no care plan.I don't think most

1:39:46 > 1:39:51people know that.It is true. There is no care plan given for most

1:39:51 > 1:39:56people until they hit a crisis and then a care plan is developed. That

1:39:56 > 1:40:01care plan, I know from my experience of 35 years in education, if I had

1:40:01 > 1:40:05children in my care, in my school, who required additional support and

1:40:05 > 1:40:09help, we would have a plan to give them that. We would give them that

1:40:09 > 1:40:16where it would make a difference. One final thought. I am so sorry. I

1:40:16 > 1:40:20will bring it back to the personal, if I may? Jennifer, go ahead.You

1:40:20 > 1:40:25are so right. We have got to get in at the beginning. Doctors, with

1:40:25 > 1:40:28stroke, we didn't used to do very much but nowadays we do and we put a

1:40:28 > 1:40:31lot of effort into it and there is a window of opportunity at the

1:40:31 > 1:40:37beginning. It goes down as time goes on and it is the same with dementia.

1:40:37 > 1:40:40If we can get it right at the beginning and do something rather

1:40:40 > 1:40:44than just having a diagnosis, we can make a tremendous difference. There

1:40:44 > 1:40:53is so much that can still be done.I want to thank you all, very much.

1:40:54 > 1:40:59Dave, Sally, Tim, Keith, Wendy, Christopher, Veronica, Carol,

1:40:59 > 1:41:02Stephen, Eileen, thank you for coming on the programme. We could

1:41:02 > 1:41:06have talked for longer, I know. I am so grateful for your time and

1:41:06 > 1:41:10patience this morning. Thank you very much. And thank you for your

1:41:10 > 1:41:14comments. This email from Jenny: I have never got in touch with you

1:41:14 > 1:41:18before but I wanted you to know about my mother who was diagnosed

1:41:18 > 1:41:21with dementia in 2010. It is a long story but I had to sell her home and

1:41:21 > 1:41:26she has been in a residential home for two years and now a nursing home

1:41:26 > 1:41:33for two more. The only thing she has left is an ability to swallow baby

1:41:33 > 1:41:37food and breathe. She does not know me or anyone else. It has been a

1:41:37 > 1:41:41battle all the way through. I really worry for people who have no one to

1:41:41 > 1:41:45fight their corner. When you contact social services, they just tell you

1:41:45 > 1:41:49there is no money at the end of the conversation and you are left to

1:41:49 > 1:41:53sort things out. Very scary for our futures. Heartbreaking issue and so

1:41:53 > 1:41:58well covered by you this morning. Thank you. This email from Glenys.

1:41:58 > 1:42:02My husband was diagnosed without same as five years ago. It is so

1:42:02 > 1:42:10true that every sufferer experiences the disease in different ways. Some

1:42:10 > 1:42:15people are very chatty when we go to Alzheimer's Society events, but some

1:42:15 > 1:42:20are very silent. I thought my husband would watch with me and we

1:42:20 > 1:42:24could discuss it but he says what he always says when I suggest watching

1:42:24 > 1:42:28TV, I have seen this programme before and he is genuinely convinced

1:42:28 > 1:42:34that he has. Unfortunately for me he has returned to his jigsaw puzzle.

1:42:34 > 1:42:39And from Sally: My dad was diagnosed without thymus in 2013. I liken it

1:42:39 > 1:42:43to having a child. As time moves on you move into a different phase and

1:42:43 > 1:42:47you can hardly remember the days before and it becomes normal. It is

1:42:47 > 1:42:50heartbreaking. What I find most hardest try to keep my mother in

1:42:50 > 1:42:55good spirits because she is his main carer. My dad is living in his own

1:42:55 > 1:42:59world really and seems fairly content. My mother is so upset all

1:42:59 > 1:43:10the time and depressed. My siblings and I find that difficult. We just

1:43:10 > 1:43:13feel helpless as there is only so much we can do with young children

1:43:13 > 1:43:16of our own. There has also been a real reluctance from her to seek

1:43:16 > 1:43:18help which we find so frustrating. It has really changed my perspective

1:43:18 > 1:43:22on life and to live each day with positivity. Take that trip, spend

1:43:22 > 1:43:25that money, have those experiences, as you never know what life will

1:43:25 > 1:43:32bring. Absolutely. It is not a dress rehearsal. I have some breaking news

1:43:32 > 1:43:37to bring you. The first is to do with Prince William, the Duke of

1:43:37 > 1:43:41Cambridge. Kensington Palace has announced that he will visit Israel,

1:43:41 > 1:43:45Jordan and the occupied Palestinian territories this summer. The visit

1:43:45 > 1:43:50is at the request of Her Majesty's government and has been welcomed by

1:43:50 > 1:43:52the Israeli, Jordanian and Palestinian authorities. Further

1:43:52 > 1:43:58details will be announced in due course. And MI5 has reduced the

1:43:58 > 1:44:01threat level to Great Britain from Northern Ireland related terrorism

1:44:01 > 1:44:08from substantial to moderate, which means that a terrorist attack is

1:44:08 > 1:44:12possible but not likely. MI5 has reduced the threat level to the UK

1:44:12 > 1:44:14from Northern Ireland related terrorism from substantial to

1:44:14 > 1:44:20moderate, which means an attack is possible but not likely.

1:44:20 > 1:44:23The Home Office says it's considering allowing a medical

1:44:23 > 1:44:25cannabis trial to treat a six-year-old boy with

1:44:25 > 1:44:26a rare form of epilepsy.

1:44:26 > 1:44:27Alfie Dingley, from Kenilworth in Warwickshire

1:44:27 > 1:44:33suffers up to 30 violent seizures a day.

1:44:33 > 1:44:37His mother took him to the Netherlands to take

1:44:37 > 1:44:39a cannabis-based medication in September and says while there

1:44:39 > 1:44:44his seizures reduced in number, duration and severity.

1:44:44 > 1:44:47The Home Office had so far denied six-year-old Alfie Dingley

1:44:47 > 1:44:50access to the drug due to it being a banned substance.

1:44:50 > 1:44:58Alfie's mum Hannah Deacon joins me on the programme.

1:45:01 > 1:45:10thank you for talking to us. Why have they changed their mind?

1:45:11 > 1:45:19Well, we had a very good meeting on Monday with the Home Office Minister

1:45:19 > 1:45:23and his advisers, and also our MP who has been extremely helpful with

1:45:23 > 1:45:28organising everything for us. We were presented with this option

1:45:28 > 1:45:32about the fact we could use the medication that three months under

1:45:32 > 1:45:40the clinician in the UK, to show its effectiveness, and after that point,

1:45:40 > 1:45:45apply for a Home Office license so Alfie could use it in the country.

1:45:45 > 1:45:49We have done five months of the trial in Holland where we had a

1:45:49 > 1:45:54report done by our paediatric urologist, but they feel they want a

1:45:54 > 1:46:00UK clinician to do a trial as well. We are very positive they have given

1:46:00 > 1:46:07us this lifeline. I think they see what a serious issue we have here.

1:46:07 > 1:46:11How important it is Alfie does not go back into being severely ill as

1:46:11 > 1:46:17he was before we went to Holland. I hope we get this action plan into

1:46:17 > 1:46:21place quickly. We have been told it will be within a month so we hope

1:46:21 > 1:46:26that will happen. Could you describe for our audience

1:46:26 > 1:46:35what it is like you as Alfie's mum when he has a seizure?

1:46:35 > 1:46:39Well, just to clarify, Alfie has a condition which is genetic which

1:46:39 > 1:46:46causes cluster seizures, he was having a cluster of severe seizures

1:46:46 > 1:46:52every four to ten days. Not every day but when he does they are very

1:46:52 > 1:46:57aggressive, he doesn't breed and they don't stop without intravenous

1:46:57 > 1:47:09steroids. -- breathe. We can't manage it at home, we go to A&E. By

1:47:09 > 1:47:13the time we get to our local hospital 15 minutes away he could

1:47:13 > 1:47:18have had five seizures. It is a very aggressive presentation and be

1:47:18 > 1:47:22anything that stops it is intravenous steroids. The worst

1:47:22 > 1:47:28thing I have experienced. I did it for two years come every week,

1:47:28 > 1:47:33watching my child suffer. It is not something any parent should have to

1:47:33 > 1:47:41go through, or child. He is a very brave, strong little boy. But his

1:47:41 > 1:47:46body won't last forever if UK -- if he is injected with steroids every

1:47:46 > 1:47:51week. The Home Office says the Government

1:47:51 > 1:47:57has huge sympathy, the policing minister wants to explore every

1:47:57 > 1:48:01option and has met with you to discuss treatments but no decisions

1:48:01 > 1:48:06have been made and any proposal would need to be led by senior

1:48:06 > 1:48:11clinicians using sufficient and rigorous evidence. No decisions have

1:48:11 > 1:48:18been made after the child is what that means, isn't it?

1:48:18 > 1:48:23Yes, they are still on the fence a little bit, which is upsetting. We

1:48:23 > 1:48:28have been given this option. I want a commitment from them they are

1:48:28 > 1:48:35going to help Alfie. As a mother, that is all I am, his mum, I am not

1:48:35 > 1:48:42a politician, I am not an activist, I am just a mother who is tired of

1:48:42 > 1:48:46seeing my son suffer, and I have found something that helps him. And

1:48:46 > 1:48:50I want everyone to get together and make this happen to him. It is his

1:48:50 > 1:48:59human right to be well. This makes him while. And I understand there

1:48:59 > 1:49:03are legal sites, legislation, red tape. But we need to act quickly and

1:49:03 > 1:49:09I want some

1:49:10 > 1:49:15I want some sincere help from the Home Office, some commitment, sorry,

1:49:15 > 1:49:20that they will make this happen. And this is what they have offered us

1:49:20 > 1:49:26and I want it to happen, quickly. Thank you very much the talking to

1:49:26 > 1:49:31us this morning. Can I say one thing. Everyone

1:49:31 > 1:49:35watching, please, if you support what we are trying to do, please

1:49:35 > 1:49:42follow us on Facebook, we have a link where you can lobby your MP,

1:49:42 > 1:49:48just fill your details in. We need people power on this, we need our

1:49:48 > 1:49:53MPs, and this will happen for him if we come together and support him and

1:49:53 > 1:49:55make it happen. Thank you.

1:49:55 > 1:50:00Thank you.

1:50:00 > 1:50:03Thank you. The Government has announced it will not press ahead

1:50:03 > 1:50:08with the second part of the lettuce and enquire into press standards and

1:50:08 > 1:50:11regulations, the culture secretary has told the House Of Commons there

1:50:11 > 1:50:19will be no part two of the inquiry, the inquiry set up into press

1:50:19 > 1:50:23standards and regulations after phone tapping claims around the News

1:50:23 > 1:50:31Of The World which lets -- which led to it closing.

1:50:31 > 1:50:40So many of you have got in contact with us about dementia.

1:50:43 > 1:50:51Lewis is in Edinburgh.

1:50:55 > 1:51:00Hilary is in Northern Ireland.

1:51:00 > 1:51:08My sister, she would be six years older than me but she helped me

1:51:08 > 1:51:13whenever my care -- whenever my kids were young and it is something for

1:51:13 > 1:51:20me to help her back. Caring for her is difficult, whenever I see my

1:51:20 > 1:51:26nephew straggling. The bureaucracy of social services, the office of

1:51:26 > 1:51:28care and protection for the management of her finances, the

1:51:28 > 1:51:33Housing Executive in relation to having her home adapted to meet her

1:51:33 > 1:51:41needs. I was a care manager in dementia care, and I currently work

1:51:41 > 1:51:48in mental health. The difficulty I understand is that when somebody's

1:51:48 > 1:51:54environment isn't working for them, then the care becomes more difficult

1:51:54 > 1:52:01and that is when they are drawn to nursing care.

1:52:01 > 1:52:05She is a health professional says she knows about these areas and she

1:52:05 > 1:52:11finds it hard to bring the different parts of the service together to

1:52:11 > 1:52:16help her sister with dementia. How will it be for the rest of us?

1:52:16 > 1:52:21That was my experience, a total minefield. Before my dad was

1:52:21 > 1:52:28diagnosed, we didn't want to believe this could be the case. We were told

1:52:28 > 1:52:34to get on with it, so to speak. We had a lot of help when I got in

1:52:34 > 1:52:41touch with Alzheimer's Scotland. They gave us the next steps to do.

1:52:41 > 1:52:49In terms of banks, financial institutions, they... Changing power

1:52:49 > 1:52:54of attorney was good for us but it was slow.

1:52:54 > 1:53:01Thank you, both.

1:53:01 > 1:53:03The Met Office has upgraded its weather warning

1:53:03 > 1:53:06for south Wales and south-west England to red, as freezing

1:53:06 > 1:53:08temperatures and snow affect much of the UK.

1:53:08 > 1:53:11It means lives are at risk.

1:53:11 > 1:53:16Another red warning is already in place in central

1:53:16 > 1:53:19Scotland where hundreds of people have been spending the night trapped

1:53:19 > 1:53:21on the M80 in central Scotland because of the snow.

1:53:21 > 1:53:24Police are appealing to people to stay put until help arrives.

1:53:24 > 1:53:27Hundreds of schools are expected to be closed for a second day,

1:53:27 > 1:53:29across many parts of the UK.

1:53:29 > 1:53:31Local authorities have been struggling to keep roads clear

1:53:31 > 1:53:34and many rail services have been disrupted.

1:53:34 > 1:53:36But the snow is, of course, providing some beautiful images.

1:53:36 > 1:53:44Have a look here at how the London skyline was transformed by snow.

1:54:15 > 1:54:21Leslie in Glasgow said she feared she would die in chaos on the M80.

1:54:21 > 1:54:27And Brian in North Lanarkshire said he ignored red warning because he

1:54:27 > 1:54:33couldn't not attend to his patients. And Polly is an employment lawyer

1:54:33 > 1:54:36who can tell you what rights you have if you cannot make it into

1:54:36 > 1:54:41work. The weather was horrendous, it got

1:54:41 > 1:54:51worse and worse. 18 hours. Who helped you in the end?The

1:54:51 > 1:54:57emergency services arrived at 5am this morning with a cereal bar and

1:54:57 > 1:55:08some water. After that, I followed the trucks so we could get through.

1:55:08 > 1:55:15There were no snowploughs, nothing. We are showing your video which you

1:55:15 > 1:55:21took from your phone just outside your car.That was at 5am this

1:55:21 > 1:55:27morning. You are all right now? I am fine, a

1:55:27 > 1:55:35bit tied. -- tired. Why did you think you are

1:55:35 > 1:55:40going to die? The first few hours it was fine.

1:55:40 > 1:55:43There was an amber warning, we are used to this type of weather. Then

1:55:43 > 1:55:54all of a sudden, the roads were jammed. When I got past the

1:55:54 > 1:56:01junction, there were two police people, lorries had jackknifed, a

1:56:01 > 1:56:04policewoman said, you need to pass this card, if you can manage, you

1:56:04 > 1:56:15need to go. The K, so I was turning. Stupidly, I went. There were no road

1:56:15 > 1:56:25markings. I was the only person I could see for two hours. On the

1:56:25 > 1:56:28other side, northbound, there were people that, I was screaming for

1:56:28 > 1:56:36someone to help. Nobody could stop. Then the northbound traffic

1:56:36 > 1:56:43disappeared, that was closed. It took maybe three hours. Then the

1:56:43 > 1:56:49trucks arrived, they overtook me and I was able to go behind. Then we

1:56:49 > 1:56:56were parked there for the night.You had to attend to your patients, tell

1:56:56 > 1:57:04us why? At the time I was leaving

1:57:05 > 1:57:08At the time I was leaving for work, but getting back was a nightmare. I

1:57:08 > 1:57:15ended up getting trapped on the motorway the eight or nine hours but

1:57:15 > 1:57:22hats off to the people who came out of their houses to help us. Making

1:57:22 > 1:57:26sure people were OK. The van driver behind me was asking if children

1:57:26 > 1:57:38wanted to make use of his fan to sleep.Polly, please can you answer

1:57:38 > 1:57:43this, can employers, can employees legally refuse to come to work in

1:57:43 > 1:57:49weather like this? Technically, employees have a duty

1:57:49 > 1:57:55to try to get to work and if they don't attend, technically that is an

1:57:55 > 1:58:03unauthorised absence. However, common sense often prevails in this

1:58:03 > 1:58:06situation, we are dealing with serious circumstances. Employers

1:58:06 > 1:58:12ultimately have a duty of care to their employees's health and safety.

1:58:12 > 1:58:17If you don't go, will you be played -- will you be paid?

1:58:17 > 1:58:21No. Thank you or your company today.

1:58:21 > 1:58:22On the programme tomorrow.

1:58:22 > 1:58:30We'll look ahead to Theresa May's big speech on Brexit.