10/01/2017

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:00:00. > :00:00.Welcome to Wales Today. Our top stories:

:00:00. > :00:09.A new treatment fund to get new drugs to patients more quickly.

:00:10. > :00:10.Welcome news for people who've suffered delays

:00:11. > :00:12.in getting the medication they need.

:00:13. > :00:14.And the sailor from Bangor in contention to win

:00:15. > :00:17.one of the toughest sporting event in the world -

:00:18. > :00:36.sailing single-handed around the globe.

:00:37. > :00:41."than any other part of the UK" to new medicines more quickly

:00:42. > :00:43.following the launch of a new treatment fund.

:00:44. > :00:46.That's according to the Health Secretary,

:00:47. > :00:49.who's announced an extra ?16 million a year to help patients in Wales

:00:50. > :00:51.access new medicines within two months

:00:52. > :00:54.of them being approved as cost-effective.

:00:55. > :00:56.It follows concerns that health boards have been too slow

:00:57. > :01:05.Even though he was diagnosed with multiple sclerosis

:01:06. > :01:07.20 years ago, Simon from Llantrisant

:01:08. > :01:09.has always tried to live life to the full.

:01:10. > :01:13.But those experiences are now just memories.

:01:14. > :01:15.It is a struggle to get showered, to get washed

:01:16. > :01:28.But he thinks a drug called Sativex, completely wipes you out.

:01:29. > :01:31.which helps ease muscle spasms, could help him.

:01:32. > :01:34.It was recommended for use in the Welsh NHS

:01:35. > :01:36.two and a half years ago, but Simon blames a row

:01:37. > :01:38.about who pays for it means

:01:39. > :01:41.his doctor has not been able to prescribe it.

:01:42. > :01:44.I've actually been off work for the last six weeks

:01:45. > :01:51.and the thought that this drug could possibly help me

:01:52. > :01:55.with the spasms to the point where it would enable me to get

:01:56. > :02:02.Hundreds of new drugs and treatments are developed every year but the NHS

:02:03. > :02:05.can't afford to pay for them all, so it's the responsibility

:02:06. > :02:10.of two expert organisations to assess the benefits and the cost.

:02:11. > :02:13.They are called the National Institute for Health and Care

:02:14. > :02:17.Excellence, NICE, and the All Wales Medicines Strategy group.

:02:18. > :02:20.If they say no, you either have to be a special case for treatment

:02:21. > :02:23.But if they decide treatment is cost-effective,

:02:24. > :02:28.it should be on the NHS as a matter of course.

:02:29. > :02:31.But that doesn't always happen straightaway.

:02:32. > :02:38.The Welsh government will give the NHS an extra ?60 million a year

:02:39. > :02:40.to start delivering new medicines within two months while health

:02:41. > :02:47.boards plan how to pay for them over the longer term.

:02:48. > :02:49.If you have a really high cost new medicine

:02:50. > :02:52.which is effective and approved, you can then have a timeline

:02:53. > :02:54.with different health boards being able to deliver that medicine

:02:55. > :02:58.This will mean that there will be a consistent

:02:59. > :03:04.He also says the system here can be used to treat all conditions

:03:05. > :03:07.and will be fairer than in England and Scotland, where drugs funds

:03:08. > :03:10.are in place but for specific conditions like cancer

:03:11. > :03:14.But patients hoping this fund will play for unapproved drugs

:03:15. > :03:16.that could help them will be disappointed.

:03:17. > :03:18.The pace at which new medicines are developed is phenomenal.

:03:19. > :03:21.The problem is that the NHS at times has struggled to keep up.

:03:22. > :03:24.The UK Government narrowly avoided defeat tonight in the House of Lords

:03:25. > :03:27.over its plans to re-write the devolution settlement

:03:28. > :03:31.after a vote was tied on a Labour amendment to the Wales Bill.

:03:32. > :03:34.The amendment would have allowed the Welsh Government

:03:35. > :03:38.to scrap parts of the controversial Trade Union Act in Wales.

:03:39. > :03:44.The Wales Bill is due to be approved by Assembly Members next Tuesday.

:03:45. > :03:46.More than 20 industrial companies have urged the UK Government to go

:03:47. > :03:52.ahead with the planned ?1.3 billion Swansea Bay Tidal Lagoon.

:03:53. > :03:55.In a letter to the Financial Times, they say it could start

:03:56. > :03:56.a "new era" in British manufacturing.

:03:57. > :03:59.The lagoon has been given planning consent

:04:00. > :04:07.but has been delayed until the publication

:04:08. > :04:09.of the independent Hendry Review into the viability

:04:10. > :04:11.of tidal lagoon power, due on Thursday.

:04:12. > :04:13.Cardiff Airport could have a new replacement terminal

:04:14. > :04:18.The plan was announced after a 16% rise in passenger numbers

:04:19. > :04:23.bringing the total to over 1.3 million travellers.

:04:24. > :04:26.The Welsh Government bought the airport four years ago

:04:27. > :04:35.We have invested heavily, we have significantly improved

:04:36. > :04:42.the experience and the facilities here, but there is a limit

:04:43. > :04:47.to what we can do so we have got long-term, ambitious plans

:04:48. > :04:49.for the business, and really to enable us to get

:04:50. > :04:52.to where we want to be, a new replacement terminal will be

:04:53. > :04:56.The woman who spearheaded a campaign plan as we go forward.

:04:57. > :04:59.to open the first children's hospice in Wales has died at the age of 95.

:05:00. > :05:02.Suzanne Goodall founded Ty Hafan in the Vale of Glamorgan

:05:03. > :05:05.18 years ago - since when the centre has supported

:05:06. > :05:12.hundreds of families with life-limited children.

:05:13. > :05:14.She's in the fabric of the building, in everything we do.

:05:15. > :05:17.This really will be her legacy, that she has supported paediatric

:05:18. > :05:20.palliative care and brought it forward so much in Wales.

:05:21. > :05:25.Suzanne Goodall, who's died at the age of 95.

:05:26. > :05:27.It's one of the toughest sporting events in the world -

:05:28. > :05:32.sailing around the globe, non-stop, single handed.

:05:33. > :05:34.Alex Thomson from Bangor is doing just that

:05:35. > :05:37.and is in contention to win the prestigious Vendee Globe.

:05:38. > :05:38.Tonight, after 65 days alone on the ocean,

:05:39. > :05:45.he's in second place, chasing down the leader.

:05:46. > :05:48.More people have been in outer space and up Mount Everest

:05:49. > :05:55.And in the vast oceans, a Welshman is hoping to make history -

:05:56. > :05:57.to become the first outside France to win the Vendee Globe.

:05:58. > :05:59.You certainly feel isolated when you're down here.

:06:00. > :06:01.There's nobody to rescue you, nobody to help you,

:06:02. > :06:07.The only things around you are birds and albatrosses.

:06:08. > :06:10.29 boats set off from the north-west of France on November 6th.

:06:11. > :06:19.Indian and Pacific oceans, 28,000 miles across the Atlantic,

:06:20. > :06:23.before getting back to the Atlantic and returning to France.

:06:24. > :06:34.Whilst in the lead, he hit something and the boat was badly damaged.

:06:35. > :06:37.Alex thought he would limp home in tenth

:06:38. > :06:41.but he has clawed his way back, 100 miles behind the race leader

:06:42. > :06:44.with less than 3,000 miles to the finish line.

:06:45. > :06:47.Alex Thomson's boat is built for speed, not for comfort.

:06:48. > :06:49.He doesn't have a toilet, no kitchen either,

:06:50. > :06:57.It looks like something you might give your baby.

:06:58. > :07:01.Alex needs to eat up to 7,000 calories a day.

:07:02. > :07:04.He sleeps no more than 20 minutes at a time.

:07:05. > :07:07.The reason, when he's sleeping, the boat goes more slowly.

:07:08. > :07:14.It's nine weeks since Alex last saw his wife and two young children

:07:15. > :07:20.# Crashing through the waves, in a 16 mono hull.

:07:21. > :07:25.There have been other high points too.

:07:26. > :07:28.This was captured by one of Alex's rivals off Cape Town.

:07:29. > :07:36.Alex Thomson says it has been like a war on the waters at times,

:07:37. > :07:42.He's completed 90% of the race and this week we'll see

:07:43. > :07:44.whether a sailor from Bangor can overcome the odds

:07:45. > :07:53.and win the hardest sailing race of them all.

:07:54. > :07:56.Closer to home, there's talk of snow on the way.

:07:57. > :08:16.It is a wintry entered a week. They will turn colder and very windy with

:08:17. > :08:21.a measure of rain, sleet and snow at times. Overnight, some dry spells

:08:22. > :08:25.with the odd spot of patchy rain. Not too cold at between 6-8 C.

:08:26. > :08:27.Pressure starts to rise tomorrow but the wind becomes more

:08:28. > :08:32.north-westerly. These isobars moved close together, signalling stronger,

:08:33. > :08:40.cold winds. Tomorrow, early shower should clear. Becoming dry, bright

:08:41. > :08:45.and blustery foremost. Across the UK, dry with bright spells for and

:08:46. > :08:49.rails and England but brisk north-westerly winds bringing wintry

:08:50. > :08:54.showers across high ground in Scotland and Northern Ireland.

:08:55. > :08:59.Already in the cold air, five Celsius in Scotland, milder in the

:09:00. > :09:04.south of England at 11 Celsius. A drier into the day across Wales.

:09:05. > :09:07.Burning the winds could reach gale force when the coast. -- a warning

:09:08. > :09:15.that. The pressure chart shows

:09:16. > :09:17.this frontal wave coming in from the south-west on Thursday,

:09:18. > :09:19.falling mainly as rain, but where it meets the cold air,

:09:20. > :09:22.snow is possible although there's huge uncertainty about

:09:23. > :09:24.the position of this system. Don't take the graphics literally -

:09:25. > :09:29.some brighter spells, but the likelihood of showers

:09:30. > :09:34.for some, where that front a Met Office warning that any

:09:35. > :09:39.showers could bring a wintry mix It could be further north or south -

:09:40. > :09:44.it's very hard to pinpoint - And it will stay that way into the

:09:45. > :09:52.weekend. That's Wales Today.

:09:53. > :09:54.Thank you for watching. From all of us on the

:09:55. > :10:01.programme, goodnight.