:00:00. > :00:00.Good evening and welcome to BBC Look North.
:00:07. > :00:08.The headlines from us this Wednesday night.
:00:09. > :00:10.The family battling the rare brain disease that
:00:11. > :00:12.killed their mother - four out of seven of her
:00:13. > :00:25.When you tell them about Huntington's they don't know what it
:00:26. > :00:28.is. It is not very nice to have to describe to people.
:00:29. > :00:30.After hospitals lose more than 100 patient referrals,
:00:31. > :00:35.there are claims health bosses tried to keep their mistake quiet.
:00:36. > :00:44.They had been aware of some of these problems since May and June of 2016
:00:45. > :00:46.and clearly that is too long a period of time for patients to be
:00:47. > :00:48.unaware of this issue. The East Yorkshire tennis player
:00:49. > :00:51.Kyle Edmund is threatened with rape and murder on Facebook,
:00:52. > :01:01.after losing to Novac Djokovic. The threats were utterly vile but
:01:02. > :01:06.sadly all too common in this day and age. They are often made by gamblers
:01:07. > :01:08.who have lost money on the outcome of the match.
:01:09. > :01:11.And the actor Colin McFarlane takes on Lincolnshire County Council over
:01:12. > :01:31.Josh Beasley from Bridlington was ten when his mum died
:01:32. > :01:34.Anne Beasley had Huntington's Disease and it destroyed her brain.
:01:35. > :01:37.Her death brought with it a devastating realisation
:01:38. > :01:40.for the family that all of her seven children had a 50-50
:01:41. > :01:49.Last year Josh - who is now 19 - tested positive for Huntington's -
:01:50. > :01:53.as have three of his brothers and sisters.
:01:54. > :01:56.He's now trying to raise money for research into the disease.
:01:57. > :02:02.This is me who has been tested positive, Matthew has
:02:03. > :02:09.When Josh's mum had her seven children she didn't know she had
:02:10. > :02:19.She died aged just 48 and had genetically passed the disease on.
:02:20. > :02:23.Two children are clear, one is still to be tested and four,
:02:24. > :02:31.What I remember, it was when her movement was shaking.
:02:32. > :02:39.It is awful, there's not enough awareness for it, there is no cure.
:02:40. > :02:43.When you tell people, they do not know what it is.
:02:44. > :02:46.It is not nice to have to describe to people that it takes
:02:47. > :02:52.Huntington's disease is an inherited disorder that causes the death
:02:53. > :02:56.The damage to the brain leads to a gradual physical
:02:57. > :03:02.Each person whose parent has Huntington's disease
:03:03. > :03:06.has a 50-50 chance of inheriting the faulty gene responsible.
:03:07. > :03:08.Everyone who inherits the faulty gene will, at some stage,
:03:09. > :03:12.develop the disease - usually between the
:03:13. > :03:28.A lot of these young people are growing up in a family
:03:29. > :03:30.where they have a parent parent with the illness so
:03:31. > :03:33.they're watching something that may happen to them the feature, which is
:03:34. > :03:34.obviously quite a frightening prospect.
:03:35. > :03:37.You can either curl up into a ball or you can just
:03:38. > :03:41.That's what I'm trying to do and raise awareness for the disease.
:03:42. > :03:45.She says the family try to support each other.
:03:46. > :03:47.When I got my results it was such a relief,
:03:48. > :03:49.the straightaway after that
:03:50. > :03:55.That's the only thing you can do but it's always
:03:56. > :04:04.Somebody is always having a difficult time and have all got to
:04:05. > :04:05.try and pull through from each other.
:04:06. > :04:08.But it is really difficult because there's so many with it.
:04:09. > :04:11.And Josh is trying to get on with his life.
:04:12. > :04:12.He starts university next year and is fundraising
:04:13. > :04:18.Earlier I spoke to Josh, and I started by asking
:04:19. > :04:20.when he found out his mother had the disease.
:04:21. > :04:22.All my life she's had the symptoms of Huntingdon's.
:04:23. > :04:25.So I've only really known her since she had the symptoms.
:04:26. > :04:27.I've not known her before she before she
:04:28. > :04:32.How did you cope with losing your mum at the age of
:04:33. > :04:36.Obviously it's an awful thing to have to go through for anyone but
:04:37. > :04:40.I've got a big family and we're close and good friends.
:04:41. > :04:58.You have to be 18 to get your genetic test.
:04:59. > :05:01.I was the mindset of getting tested straightaway just for peace of mind.
:05:02. > :05:03.Did you think that you would end up being positive?
:05:04. > :05:21.It's 50-50, so it could go either way but it just
:05:22. > :05:24.thought I would like the peace of mind to know
:05:25. > :05:27.How have you dealt with knowing that you have
:05:28. > :05:31.Obviously it's an awful thing to have to be told that one
:05:32. > :05:33.day you will suffer something like that
:05:34. > :05:35.but I have a close family and
:05:36. > :05:38.It has made it easier with the fundraising
:05:39. > :05:49.But nobody gives you any sort of time frame?
:05:50. > :05:54.It could be a couple of years down the line at 20 or 40
:05:55. > :06:00.There's no saying when it will be, just one day
:06:01. > :06:04.So you need to live your life to the full?
:06:05. > :06:06.Does it affect you on a daily basis?
:06:07. > :06:08.Obviously everyone has their bad days and it's
:06:09. > :06:12.the same with this, you have days when you think about it more than
:06:13. > :06:16.Some days you just put it to the back of your mind.
:06:17. > :06:17.I know you're doing some fantastic fundraising.
:06:18. > :06:20.You have a big event coming up on the 3rd of June.
:06:21. > :06:24.I'm organising a charity event in Bridlington
:06:25. > :06:29.Will hopefully get the music down there and just raise some money for
:06:30. > :06:36.I wish you well for the third as well.
:06:37. > :06:41.The Crown Prosecution Service has confirmed that it has received files
:06:42. > :06:45.from eleven police forces, including Lincolnshire,
:06:46. > :06:49.in relation to 2015 General Election campaign expenses.
:06:50. > :06:54.Last year the Lincoln MP Karl McCartney said he had handed
:06:55. > :06:56.over the details of his expenses to the force.
:06:57. > :06:59.The inquiries centre on the Conservative Party's national
:07:00. > :07:04.The CPS will now decide if any charges should be brought.
:07:05. > :07:12.Mr McCartney says he's done nothing wrong.
:07:13. > :07:15.Network Rail says cancellations and delays to Hull services this
:07:16. > :07:17.morning were because of deliberate damage to cables.
:07:18. > :07:20.The company say track-side cable was placed across the tracks
:07:21. > :07:22.at Hessle East Junction and then a train ran it.
:07:23. > :07:28.Hull has been given ?5 million of extra money to help more
:07:29. > :07:32.Yorkshire Cancer Research says the city has a higher than average
:07:33. > :07:39.The funding will help diagnose cancer earlier.
:07:40. > :07:41.Hospital bosses in North Lincolnshire have been accused
:07:42. > :07:43.of hiding the fact they'd lost around one hundred
:07:44. > :07:51.The delay has meant some people may have had to wait months
:07:52. > :07:53.for urgent medical treatment because they were never put
:07:54. > :08:05.Our health correspondent Vicky Johnson reports.
:08:06. > :08:11.When Alison 's dad David had problems with his eye he was
:08:12. > :08:16.referred by his optician is an urgent case to Scunthorpe hospital.
:08:17. > :08:19.That was last April and he has still heard nothing. Yesterday the pain
:08:20. > :08:24.was so bad that Allison taken straight to hospital. They said
:08:25. > :08:28.yesterday was an ulcer behind his eye that could affect his brain. I'm
:08:29. > :08:34.not happy. I am upset to my dad is upset. He is a portly man and he has
:08:35. > :08:44.had to go into hospital which has devastated him today. -- poorly man.
:08:45. > :08:47.His Chevelle is one of several that have gone missing since North
:08:48. > :08:53.Lincolnshire adopted a new system last year. The chairman was invited
:08:54. > :09:02.to the scrutiny committee this morning. Two of those cases were
:09:03. > :09:09.cancer queries and they are in ongoing treatment. Patients are
:09:10. > :09:14.overseen by the GP or dentist and optician. If more specialist care is
:09:15. > :09:17.needed they are referred to a consultant at the hospital. The
:09:18. > :09:21.hospital is then supposed to get in touch with the patient and give them
:09:22. > :09:26.an appointment and take over the care. That is where the problem has
:09:27. > :09:31.happened. The details of at least 100 patients have been lost and
:09:32. > :09:36.never referred. Health bosses were first alerted to the problem last
:09:37. > :09:41.May when this surgery realised more than 50 of the patients had not been
:09:42. > :09:49.referred on. Is there no way a flagging this up? It has also been a
:09:50. > :09:54.puzzle how you can track your parcel to Amazon but you cannot track your
:09:55. > :09:59.patient through the MHS. Managers have chosen not to let other
:10:00. > :10:02.potential patients until now. It sounds like a Disney more about
:10:03. > :10:08.saving face than protecting patients. I am sorry and we have
:10:09. > :10:12.apologised to the public that this has raised its head is a problem. It
:10:13. > :10:19.generally hasn't been about saving face and it has been about being
:10:20. > :10:24.trying to get a definitive answer to a problem with patients who were not
:10:25. > :10:29.registered and have got the patient they deserve. The trust deals with
:10:30. > :10:35.around 90,000 patient referrals per year and most go without a hitch. As
:10:36. > :10:41.Allison Parks had dads hospital bag it has emerged that at least another
:10:42. > :10:47.50 patients have today contacted the hospital 's helpline about their Mr
:10:48. > :10:52.referrals. -- they're missed referrals.
:10:53. > :10:54.The woman who helped make this information public
:10:55. > :10:57.is Councillor Holly Mumby-Croft, who leads the North Linolnshire
:10:58. > :11:05.We saw her briefly in Vicky's report.
:11:06. > :11:08.I asked her why we were only finding out about these
:11:09. > :11:12.Clearly the trust made mention today in the health scrutiny meeting
:11:13. > :11:16.that they had been aware some of these
:11:17. > :11:22.problems since May/June 2016 and clearly that is too long
:11:23. > :11:26.a period of time for patients to be unaware of this issue.
:11:27. > :11:28.When did you know and would you consider yourself the
:11:29. > :11:33.I was made aware several days before the 6th of
:11:34. > :11:43.I was fully briefed at that point and my
:11:44. > :11:46.media release would happen on the 6th of March.
:11:47. > :11:48.When that didn't happen I began immediately to ask
:11:49. > :11:51.I then took the decision on the Wednesday, that
:11:52. > :11:53.would be two days after that, to invoke
:11:54. > :11:54.legislation to require the
:11:55. > :11:58.chief executive of the Northern Lincs and Goole Hospital
:11:59. > :12:05.Trust and chief officer of the commissioning group
:12:06. > :12:08.-- clinical commissioning group to attend scrutiny because I was
:12:09. > :12:10.sufficiently concerned that this needs to be discussed and patience
:12:11. > :12:13.needed to be represented and that will important questions need to be
:12:14. > :12:16.asked of these people and that that needed to be in a public
:12:17. > :12:21.Were it not for you forcing that I am then maybe they wouldn't have
:12:22. > :12:36.It is very serious. I am not in a position to comment on when or if
:12:37. > :12:41.the trust would have made this public. That clearly we as a health
:12:42. > :12:45.scrutiny panel took this very seriously, we took it seriously
:12:46. > :12:50.enough that for the first time we invoked the legislation and required
:12:51. > :12:53.their attendance. If the trust knows about something like this so serious
:12:54. > :12:59.possibly going back a year and they don't do anything about it until you
:13:00. > :13:04.as a whistle-blower forced their hand, what trust can people have in
:13:05. > :13:12.the trust? Clearly people's trust and concern will be damaged at this
:13:13. > :13:17.point. I think that it's logical assumption. It is our job as a
:13:18. > :13:20.health scrutiny panel to really strengthen the voice of our
:13:21. > :13:25.residents and our patients and to do everything we can to work with the
:13:26. > :13:29.trust and understand what has happened and get those reassurances
:13:30. > :13:33.that it can never, ever happen to patients again and to continue to be
:13:34. > :13:38.the voice of patients and hold the trust to account.
:13:39. > :13:45.You have heard the story. If you have been affected by this and maybe
:13:46. > :13:48.have been waiting for an appointment, what do you think of
:13:49. > :13:54.how this is being handled by their health bosses and the trust? What
:13:55. > :13:58.experience have you had? Have they already been in touch? Have you had
:13:59. > :14:00.any indication that you're one of the people who has not had a
:14:01. > :14:18.referral? Still ahead tonight:
:14:19. > :14:20.The East Yorkshire tennis player Kyle Edmund is threatened with rape
:14:21. > :14:22.and murder on Facebook, And the actor Colin McFarlane takes
:14:23. > :14:31.on Lincolnshire County Council over Phil Elridge took this photo
:14:32. > :14:53.of Woodhall Spa at Pet Wood Hotel. He really is off all this week and I
:14:54. > :14:58.gather you are doing his radio show this week. He is a skiver. I think
:14:59. > :15:08.maybe the award has gone to his head. Nobody is complaining. Nice to
:15:09. > :15:11.have you here. We got up to 16 degrees and quite a few spots in
:15:12. > :15:16.East Yorkshire and Lincolnshire. At the changes for tomorrow. It will
:15:17. > :15:21.not be as warm as the. More applied around. Not a bad day. Things will
:15:22. > :15:26.turn unsettled for Friday and the weekend. High has dominated our
:15:27. > :15:31.weather but lots of these areas of low pressure. Lots of France heading
:15:32. > :15:35.our way for Friday. Isa buyers tightly packed so some blustery
:15:36. > :15:40.conditions as well. It has been lovely out there, barely a cloud in
:15:41. > :15:45.the sky which helped attempt just get up to the mid teens. It will be
:15:46. > :15:49.a fine evening with long clear spells and remaining dry and fine
:15:50. > :15:54.overnight. We might see a little more cloud creep towards the end of
:15:55. > :16:01.the night. Temperatures falling back to around 7 degrees are a degrees. A
:16:02. > :16:03.light breeze. The sun will rise at around quarter past six in the
:16:04. > :16:10.morning and set at seven minutes past six in the evening. We will
:16:11. > :16:13.start the day was spells of sunshine and through the morning we will have
:16:14. > :16:17.the best of the sunny spells. Gradually throughout the day we will
:16:18. > :16:22.see a bit more cloud. Tomorrow will be a little more cloudy and breezy
:16:23. > :16:25.and more cool as well. The rain from the North will stay to the north of
:16:26. > :16:32.us until tomorrow evening and then will be very light and patchy when
:16:33. > :16:37.it arrives. 16 degrees today. It will be cooler tomorrow at around 11
:16:38. > :16:41.degrees 12 degrees. A cool start of the day with the touch of frost and
:16:42. > :16:45.places on Friday. A windy day developing with Wayne for the
:16:46. > :16:49.afternoon. Not a complete wash-out for the weekend. There will be some
:16:50. > :17:02.spells of wet and windy weather and really quite blustery throughout.
:17:03. > :17:04.The tennis player Kyle Edmund has revealed he's been threatened
:17:05. > :17:06.with murder and rape in messages on social media.
:17:07. > :17:10.The 46th ranked player in the world - who is from East Yorkshire -
:17:11. > :17:12.highlighted the posts on his Facebook page
:17:13. > :17:14.after being knocked out of a tournament in California.
:17:15. > :17:16.Commentators says it has become common for sport stars
:17:17. > :17:20.Sarah Walton has more on this, and just a warning there is some
:17:21. > :17:27.Kyle Edmund is seen as one of tennis's up and coming stars.
:17:28. > :17:29.But world number two Novak Djokovic proved to be too much
:17:30. > :17:32.for him at the weekend, and he was knocked out
:17:33. > :17:35.But in the hours that followed his defeat,
:17:36. > :17:37.Kyle says he received abusive messages on Facebook.
:17:38. > :17:39.The posts include threats of violent murder and rape
:17:40. > :17:46.as well as derogatory remarks about his appearance.
:17:47. > :17:48.And commentators say other British players have been
:17:49. > :17:52.The threats made against Kyle Edmund were utterly vile but sadly all too
:17:53. > :17:56.They are often made by gamblers who have lost money
:17:57. > :18:00.Johanna Konta has spoken about it in the past,
:18:01. > :18:03.She has talked about the death threats, she has received
:18:04. > :18:05.and the threats made against her own family.
:18:06. > :18:12.Sadly, for women, it's often far worse than it is for men,
:18:13. > :18:13.as was the case here with Kyle Edmund.
:18:14. > :18:15.Many threats contain a hint of sexual violence.
:18:16. > :18:18.Even Wimbledon winner Andy Murray has described abuse he received
:18:19. > :18:22.online as vile and no longer uses Twitter on a regular basis.
:18:23. > :18:25.The Lawn Tennis Association, the sport's governing body
:18:26. > :18:28."Professional players are responsible for reporting acts
:18:29. > :18:32.of online bullying to the respective social media outlets.
:18:33. > :18:35.But online threats are illegal and those targeted can
:18:36. > :18:51.The Crown Prosecution Service recognises is a very serious
:18:52. > :18:55.criminal offence. Last year severe penalties were increased. The
:18:56. > :19:01.maximum sentence has gone up and is now in excess of two years. The last
:19:02. > :19:02.year so there has been a tenfold increase of police prosecuting
:19:03. > :19:06.exactly the of abuse. Kyle told Look North this morning
:19:07. > :19:10.that he won't comment any further as he has no time to spend
:19:11. > :19:12.on negative issues. He's now focusing on his next
:19:13. > :19:14.tournament in Miami People living at the Humberston
:19:15. > :19:22.Fitties chalet park near Cleethorpes say they're being kept in the dark
:19:23. > :19:25.over council plans This afternoon North East
:19:26. > :19:28.Lincolnshire Council agreed to start negotiations
:19:29. > :19:29.with an unnamed bidder. But chalet owners, who put
:19:30. > :19:50.forward their own community bid, Lincolnshire County Council has been
:19:51. > :19:57.told it must reconsider its decision to switch off streetlights overnight
:19:58. > :20:05.to save money. I have been speaking to the Hollywood actor Colin
:20:06. > :20:08.McFarlane and the crystal responsible to -- councillor
:20:09. > :20:11.responsible for the switch. Last year - people in Lincoln
:20:12. > :20:14.started to see their streetlights being switched off -
:20:15. > :20:17.at night... Then after a campaign
:20:18. > :20:20.by local residents - the lights were kept
:20:21. > :20:22.on until midnight. Across Lincolnshire -
:20:23. > :20:32.42,000 street lights are now switched off at night -
:20:33. > :20:42.with 1,000 permanently switched off...It's designed
:20:43. > :20:45.to save the County Council But it's not switched-off
:20:46. > :20:47.the criticism...Right across the county -
:20:48. > :20:58.where the lights have been adjusted People have been saying they are
:20:59. > :21:04.concerned about safety, particularly people walking alone during those
:21:05. > :21:08.times. Possibly about increased crime. Some have cited Windows in
:21:09. > :21:11.vehicles being smashed. Not everyone is
:21:12. > :21:13.against the changes - but campaigners hope
:21:14. > :21:26.the County Council The actor Colin McFarlane what a
:21:27. > :21:29.rethink on this from lecture County Council. Richard Davies is the
:21:30. > :21:36.councillor responsible for the switch. -- Lincolnshire. I asked the
:21:37. > :21:41.councillor if they put the lights back on what else would have to go.
:21:42. > :21:44.We would have less money to spend on filling potholes and taking care of
:21:45. > :21:49.the elderly and issues around schools and education would go. The
:21:50. > :21:53.fact is we talk to the public of Lincolnshire on a regular basis and
:21:54. > :21:55.we have 77 councillors covering the whole county and this is not the top
:21:56. > :22:01.priority for the people of Lincolnshire. Colin, you would
:22:02. > :22:05.rather see these other things cut? You don't need to cut other things,
:22:06. > :22:09.you just need to have a conversation with the public and that is not
:22:10. > :22:14.happening. That is what I would like to see happening and a lot of other
:22:15. > :22:18.bodies would like to see happening. We need to sit around a table and
:22:19. > :22:25.work this out. Have you had a conversation? We have been having
:22:26. > :22:29.this conversation for many years. We started this project over two years
:22:30. > :22:32.ago and has units rolled out to the vast majority of the county and by
:22:33. > :22:38.the end of the month the project will be completed. I don't think the
:22:39. > :22:42.council will actually top. Cardiff County Council had a 18 month pilot
:22:43. > :22:47.and then made a decision. There has been nothing like that and
:22:48. > :22:51.Lincolnshire. We have been piloting this Lincolnshire for nearly 20
:22:52. > :22:58.years. One of the reasons we can't convert light is a lot of them are
:22:59. > :23:07.very high efficiency. The harsh reality is I am not sure we need to
:23:08. > :23:11.start discussing temperature. I think I can make all the points I
:23:12. > :23:14.want to make so I am writing an article about this. I would love to
:23:15. > :23:19.come back and have a proper conversation. I think you're making
:23:20. > :23:26.a lot of mistakes Lincolnshire and I will come back another chat with
:23:27. > :23:28.you. The police have not seen an increase in crime in some areas it
:23:29. > :23:37.is in original action in burglary crime. -- has seen a reduction.
:23:38. > :23:42.There's not been a drop in crime and less people are going out. There is
:23:43. > :23:47.actually an increase in burglaries. It is the fear of crime and the
:23:48. > :23:51.Chief Constable has just been appointed came out and said I
:23:52. > :23:56.understand that this at the of crime in Lincoln and you need to lobby the
:23:57. > :24:00.council. I'm here to lobby the council and be the voice for those
:24:01. > :24:03.people who are unafraid to go out. It is disingenuous to say there has
:24:04. > :24:11.been an increase in crime and that is not of their reflection
:24:12. > :24:13.nationally. For you to come onto mainstream national media for you to
:24:14. > :24:17.say there is increasing crime because of this is not fair and is
:24:18. > :24:21.the kind of scaremongering we do not need healing Lincolnshire. There has
:24:22. > :24:26.not been an increase in crime. It is not fair. There is a fear of crime
:24:27. > :24:31.and that is just as valid as crime itself. But you have just said there
:24:32. > :24:37.is an increasing crime and that is not true, Colin. However you want to
:24:38. > :24:42.look at the statistics. You're scaring people and the people of
:24:43. > :24:55.Lincolnshire are a better than sound bite politics and skiers. -- and
:24:56. > :24:58.scaring them. Technology is developing and there is no national
:24:59. > :25:00.policy so councils up and down the country are all doing different
:25:01. > :25:13.things and frankly wasting a lot of money. Thank you, gentlemen. A
:25:14. > :25:16.lively debate. We are very keen for you views on this about having
:25:17. > :25:19.streetlights of light and having them done and are turned off
:25:20. > :25:21.altogether. If you want to comment we will have some comments tomorrow
:25:22. > :25:24.night. Let's get a recap of the national
:25:25. > :25:26.and regional headlines. Chancellor Phillip Hammond makes
:25:27. > :25:29.a U-turn on his budget plan to raise After Goole, Scunthorpe
:25:30. > :25:32.and Grimsby hospitals lose more than 100 patient referrals,
:25:33. > :25:35.there are claims health bosses tried Tomorrow's weather: Bright
:25:36. > :25:40.and sunny spells at first. But the cloud will come
:25:41. > :25:42.in from the northwest throughout the day -
:25:43. > :25:47.still mainly dry for most of it. Top temperatures in the afternoon
:25:48. > :26:01.will get up to around 12 Celsius. On this once to patient referrals
:26:02. > :26:06.being lost. Paul says he was told his referral in neurology and had
:26:07. > :26:12.been lost and it was only when he rang up his GP that I find out.
:26:13. > :26:16.Diane says surely patient's relatives should chase up
:26:17. > :26:22.appointments as the NHS is very busy. Pam says there is no trust and
:26:23. > :26:28.I I think they believe people will die and therefore bring down the
:26:29. > :26:32.list. Another correspondent says I'm sure many people waiting must have
:26:33. > :26:38.tried to chase what was going on a fobbed off with excuses or even told
:26:39. > :26:40.not to try as there is no time? Thank you very much for watching.
:26:41. > :26:45.See you later on.