09/09/2014 Look East - East

Thank you very much indeed. That is it from Edinburgh we

Hello and welcome to Tuesday's Look East.

In the programme tonight, the drug for MS most people can t

One man in Essex is now spending ?100 every week to get Sativex.

and in magazines. It costs `n year. `` it cost me ?5,000 a year.

Fishermen's anger, three weeks into a fishing ban

The motorcycle drag racer who survived a crash at nearly 200mph.

And they are trying to assess the impact of the storm surge whth some

high`tech kit. First tonight, the man with Multiple

Sclerosis who is spending ?000 of He says he can't get

them through the NHS. Phil Grace from Great Tey in Essex

relies on the drug Sativex to 100,000 people in the UK have MS but

only around 2000 use Sativex because NICE,

the health watchdog which ddcides which drugs the NHS will fund, says

it doesn't offer value for loney. Phil Grace was diagnosed with MS 13

years ago. Twice a week comds to this centre in Colchester rtn by the

charity MS UK. Here, exercise helps to blacks as muscles. Unabld to find

a drug which works, one year ago he started using Sativex, a cannabis

`based drug. Within a few wdeks he says his life was transformdd. My

limbs are more flexible. I tsed to be lying in bed at night,

effectively riding a bike. Ly legs would be twitching. This has stopped

it. I'm getting unbroken sldep, climbing in and out of the shower

and more safely. If it did not work, and would not spend money on it And

it tastes revolting, so you would not do it for fun. You have to

really need it. None of the six NHS commissioning groups in S6 funds

Sativex except in exception`l circumstances. Phil Grace is footing

the bill himself, nearly ?5,000 a year. What angers him is th`t he

believes the should be one rule for all and no exceptions. In contrast,

Wales has just voted to makd Sativex available on prescription. Wales

took into account the wider cost benefit of the medicine, thhngs like

sexual care costs. If NICE were to do that, which it has not, we would

hope for a positive responsd. NICE says that it has concluded that

Sativex is not cost`effective for the NHS. It is still consulting

interested groups and is dud to publish its final position next

month. Phil Grace says his GP wrote to the mid`S6 clinical commhssioning

group nearly two months ago ask for Sativex to be made availabld on

prescription. Tonight, the group told Luke East:

CCG is in this country have mishandled MS, particularly Sativex.

`` CCGs. I could moved to W`les and get it for free. It is crazx.

Dr William Notcutt is a consultant at the James Paget Hospital

in Gorleston and a specialist in the use of drugs based on c`nnabis.

He was involved in the development of Sativex. After all the ydars of

research that you have done, how do you feel when you hear storhes like

this? On the one hand, it m`kes me feel very sad that he is having to

do this and not able to get it on the NHS like most of our other

medicines. Also, at the samd time, intensely frustrated that wd have

been going on working with this drug for so long and yet still there is

another mountain to climb. Did you foresee this problem with NHCE? It

is not just about how much ht costs with them, it is a formula `bout the

quality of life. That is thd big problem with evaluating quality of

life, in terms of clinical trials. But when you sit in a clinic with a

patient who is ability to bty pain and spasms that debilitated by pain

and spasms, and you know th`t there is a drug out there that yot can try

that might benefit them, th`t is hugely frustrating. We have heard

that a lot of people turn to this drug when other drugs have not

worked for them. Do you think that it could actually be a drug of

choice earlier on in the process if it was actually available on the

NHS? Yes. At the moment, we have done all the studies on pathents who

have been through the stand`rd regimes. For one reason or `nother,

they have not been able to get any benefit. But I think that in time we

will see that patients can benefit from this drug because if you

control pain early on, perh`ps a lot of patients will not develop the

severe pain problems later down the line. When you are researchhng

cannabis `based drugs, are xou saying that this drug could be used

for other things? range of conditions that ard being

looked at the moment. There is a study of colitis going on, `nd some

work going on into the treatment of a certain type of brain sug`r. Was

great excitement over the use of an extract from cannabis to trdat

childhood epilepsy. Briefly, are you optimistic that in

the future NICE might make ht available? I am always optilistic

and I hope that they do. I hope that they see the benefits that patients

can get and that those benefits are worthwhile for funding the drug

Fishermen who have been stopped from fishing on the site of a pl`nned

windfarm off the coast of Norfolk say their catches are down `nd they

Last month the Danish company DONG Energy took out a High Court

injunction to stop them fishing on the Race Bank

Fishermen on Welles key this morning show me where the wind farm will go.

60 miles off the Norfolk cotrsed, the wind farm is owned by Dong

Energy. The Danish company hs surveying the area and wantdd the

fishermen to move their lobster pots, offering ?220 per boat per day

in compensation. The fisherlen said no, so Dong Energy won a High Court

injunction to make their move. I'm not paying them money. It is about

being treated with respect. All we're doing with Dong Energx, the

minute they did not get what they want, they ran off to court. We do

not have a chance against pdople like that. They say they only want a

little piece but they had up to big pieces. There will be no will for us

to go. `` nowhere. Dong Energy plans to build 90 wind farm `` turbines.

Andy has had to move his pots from the area. If you move from one area,

the next area is fished out in a month. Then, when you go? At the

moment, the pots are spread around. The Welsh businessmen say that their

fishing business has been hht hard. They are waiting for a meethng with

the government, brokered by Norman Lamb. I thought my role was to bring

the two sides together. To try to get a deal done to protect the

fishermen's interests. In a statement, Dong Energy told us:

Do you have high hopes for this No really. Not unless they send someone

with authority. I think thex have been dealing under the tabld so far.

That probably shows you a lhttle bit about the contempt that thex hold us

in. The meeting between the fishermen and Dong Energy t`kes

place in Welles in ten days time. At the moment, the two sides appear to

be some way apart. Fly`tippers who've been prosecuted

for dumping rubbish around Great Yarmouth have been naled

by the council to try to stop more In the past year they've

prosecuted nine people with But the maximum penalty is ` fine

of ?50,000 or 5 years in prhson These photos are typical of

fly`tipping. Photos of the faces of the four convicted fly`tippdrs have

not been released but they had been named and shamed. I hope th`t other

people will think twice before they do it. We will carry on doing it

until people get the messagd that this is it and we are not standing

for any more mess. For leadhng this fridge and other items, this man had

to pay ?370 in fines. After leaving his bags, Tanya Bond from great

Yarmouth was given a six`month conditional discharge and told to

pay ?150 in costs. Michael Latchford has also been named and shaled. We

are looking for anything th`t will identify the offender. The Borough

Council goes to great lengths to identify fly`tippers. Espechally

when the signs are ignored. This is evidence of an address in the area.

So we can follow that up. I would like to appeal for witnesses if they

see a vehicle dumping rubbish, for any registration or description of

the offenders. But this est`te has 5500 acres. 35 miles of public

roads, so plenty of opportunity for fly`tippers. Builders waste,

household waste, plastic, glass We have a spare staff is. This happens

four times a month. It is apparently becoming worse since the local

recycling centre was closed down. The financial cost, we are seen an

increase in the hiring of skips for our own waste, which probably runs

to several hundred pounds a month. If we try to collate what wd find

and put it in one place, thdn we are the criminals. As photographic

evidence is taken of the next fly`tippers to be named and shamed,

the four names today have not been contactable.

The RSPB is offering a reward of ?1,000 for information

about the shooting of a Peregrine Falcon in Suffolk.

The bird was found last month near Long Melford.

Falcons are protected under the Wildlife and Countrysidd Act.

Two councillors in Clacton have resigned

from the Conservative Party and joined the UK Independence Party.

Just under two weeks ago the sitting MP for Clacton, Douglas

Carswell, resigned his seat and switched from the Tories to UKIP.

Now Councillors Dawn and Michael Skeels are making the changd.

New safety barriers have bedn installed on our busiest ro`d, the

A14, to protect workers frol oncoming traffic.

Last year ten workers were seriously injured across the country `nd in

the last five months there have been four "near misses" in this region

This is as close as it gets. A lorry on the M6 swerves into a close Lane

to protect roadside workers. Narrowly missing a police p`trol

car. And it is not unusual. In this region alone, vehicles have ploughed

into roadwork sites for timds since April. The latest incident just last

week. `` four times. The highways agency says that it was purd luck

that no one was killed. On the A14 outside Cambridge, new technology is

being used on the region's robes for the first time. These crash cushions

have been construct it at the entrance to workforce areas. This is

what can happen if a vehicld strikes a barrier. It can flip over. But

these cushions work very differently. If a vehicle vders off

and hits the terminal, it t`kes the energy out of the impact. It will

concert scene and deceleratd. `` concertina. The highways agdncy says

that safety is a priority and we all have a part to play. The guxs

working on the road have to concentrate on what you're doing but

at the same time, there traffic going by at greatest need. Dven 50

mph feels very fast. `` gre`t speed. The public need to be aware of that

and take extra care. The cr`sh cushions cost the same as the old

barriers. With much more work anticipated on the 14, it is likely

that they will become a famhliar sight. `` the A14.

Still to come, and high on the sky over the marshes affected bx the

storm surge. And sporting challenge for our ex`servicemen. The games

open tomorrow. `` the Invictus games.

It's only a few weeks since the end of the Commonwealth Games.

Tomorrow a brand new games gets underway and Prince Harry

400 competitors from 13 nathons will compete in the Invictus Gamds.

It's based around the Olymphc Park and it's only for ex`servicdmen

and women who've been wounddd or injured.

Two cyclists from this region are competing and James Burridge

My life was pretty much strhpped from me. It was a life changing

accident. The ordeal went on for a couple of years. With the extent of

the injuries and the magnittde of the burdens, I was not able to

continue military judges, bx still yearned for action. I still yearn

for adventure. Anna Sloan the adventure of the open road. For

Jamie, that open road as a destination. The Invictus G`mes The

brainchild of Prince Harry `nd the biggest military sports competition

ever assembled for wounded, injured or sick service men and womdn. These

men and women have achieved so much already. But being selected for this

team is another significant milestone. Seven years ago, Jamie

was flying a plane in Florida when it caught fire. He suffered horrific

internal injuries and 60% btrns during a recovery that is still

ongoing. I was laid up for two years. Since the accident, H have

had a total of 58 operations and a general athletic. `` under general

anaesthetic. It has given md great freedom. It has given me fantastic

freedom on the roads. The ability to travel significant distances at

speed. Lining up alongside him is Terry from Colchester. He lost his

right land onto in Afghanistan in 2008. It is our time to shine. When

you leave the Army, you missed the team environment. When you `re

working together in places like Afghanistan and Iraq, your friends

are so close. And that is what the Invictus Games will bring b`ck.

Everyone is getting behind him and the excitement is building tp. He is

up at 5am every morning trahning. He has got to win. What is lifd like at

the moment is knowing that he has this big competition in front of

him? It takes over everything you do. If we want to go out, hd is

constantly worrying about hhtting targets. And not drinking, things

like that. The pressure is `lways there. Having spent the last three

months battling for selection, Jamie and Terry I know two of 400

competitors from 13 nations ready for action. They have served their

country with distinction once. It is time to do so again.

You can see the opening cerdmony on the One Show tomorrow night

And there will be more coverage on BBC1 on the Red Button and

12 months ago, Hazelwood Marshes near Aldeburgh was

a piece of land the experts were desperate to protect.

A slice of Suffolk, rich in wildlife.

However, Mother Nature had other ide`s.

And in last year's storm surge the marshes were flooded with sda water.

But now the team there is looking to the future with the help

Walking out to the nature rdserve at Hazelwood marshes used to bd simple.

Now, it involves a trek through slippery, sulphur rich sludge. Quite

a lot of sanction. `` suction. The surge has left this site permanently

under saltwater. And with every tide, virtually everything hs

covered. Nature is the boss. We do not want to fight to maintahn

something that is unsustain`ble The cost of maintaining a wall hs

astronomical. And that is where we are going to go. The consensus is

that there is no point trying to restore it. The only option is to

read the as a salt marsh. `` leave it be as a salt marsh. This birds

eye view is being funded by lottery money. To come back in 20 ydars it

will be interesting. They are doing a really detailed level scan,

accurate to 20 centimetres. And it is massively cost`effective. The

surge caused multiple breaches of the River waltz. `` river w`lls We

filled here `` filmed here `lmost a year ago. During an archaeological

site Digg. Today, that spot is vastly different. We got up about

reclaim planned but it is claimed land. The sea used to Hornet, and

now it has gone back to it. The two`day thing is to watch it. One of

the targets that we considered was a salt marsh habitat. It also becomes

a bit of a flood storage arda for extreme tides. And combined with the

various other sites on the dstuary that has flooded, there is no doubt

that it has saved villagers from further flooding. The impact of the

saltwater is clear. Some trdes and bushes are already dying. 14

breeding pairs of avocet along gone. But the team remains philosophical.

`` are long gone. In this b`ttle, there is no definitive line, only a

point of time. Which leads us nicely into the

weather. If you were up this morning early,

you might have seen a scene like this. This was sent in by M`ry

Morris, showing a beautiful view of mist across the fields. And we may

start to see more mornings like this over the next week or so. A settled

forecast, so expect a week where it remains mainly dry. You will be

sunny spells around at times but also quite a bit of cloud. Through

the rest of the week, expect things to be largely settled. This is all

down to an area of high pressure keeping things fine across the

British Isles. That area of high pressure is staying well

established. Really for the rest of the week. So tonight, we have had

some areas of cloud around `nd the satellite image shows the extent of

the cloud across the eastern half. Elsewhere, some sunshine and

overnight, it is looking drx with long, clear spells developing. It

could be quite chilly. Tempdratures in the countryside could get down to

six or 7 degrees, but in thd towns and cities, these are the v`lues we

can expect. Later tonight, shallow mist and fog patches developing so

it could be a misty start. But any mist and fog should clear away. And

then we will be into sunshine through the morning but the trend

will be form Oort Cloud to develop. And that could hold the temperatures

back a little bit. In the stnshine, it will feel pleasantly warl. Under

cloud, it could be cooler. Certainly cooler on the coast with a light, to

moderate north`easterly wind. Expect more cloud for the afternoon but not

a bad forecast. And that is how it is going to stay because for the

rest of the week, this is otr area of high pressure hanging on. An area

of low pressure to the south`west should not trouble us. A bit of a

blip in the week will be Thtrsday. Overnight on Wednesday, a lot of low

cloud is moving in from the North Sea, meaning that we could wake up

to cloudy conditions. The possibility of mist around. As we

progress, it should start to brighten up. Things will recover for

Friday, so mist and fog patches first thing but it is looking sunny

and feeling warm in the sunshine. At the moment, as we start the weekend,

it looks like it might turn increasingly cloudy.

Thank you very much indeed. Look back at the past few winters and it

seems to have been veering between one extreme and the other. Freezing

cold, and so much brain that there have been floods. Climate experts

have just finished our major project confirming that our winters have

become more turbulent in recent years. What can we expect in years

to come? Earlier, I spoke to one of the offers, Professor Phil Jones. We

have been looking at these long records that go back to abott 1 00.

In some periods, there are very little difference is between winter

and winter but over the last few winters, since 2000, we havd had a

greater variety of winters, from one extreme to the other. We have had a

run of three very positive winters, and two very negative winters. This

is very unusual in the stathstical sense given the long records. One

thing I've found interesting was that you say it is specific`lly

December that is the worst `ffected month. Yes. We had been looking at

the three winter months, December, January, federally, and although you

see some things in January `nd feathery as well, they are lore

pronounced in December. `` January and February. We have a poshtive

values, strong westerlies in some Decembers, and then some negative

ones. You will have noticed that in the weather in previous winters We

have had some cold winters `nd relatively dry winters. And then we

have had ones like last winter which is relatively wet, and relatively

one. `` relatively warm. Wh`t does this mean for future winters? Has

been this change, where we `re seeing more bad winters. Is that

mean we will statistically see more bad winters in the future? Ht is

impossible to say, really. But based on the trends, particularly for

December, we would expect them to be as variable, based on recent trends

over that period. We need to do more research to find out why thhs ``

these winters have become so variable, so we're looking `t

relationships with features in the Arctic, particularly relating to

Greenlands, and seeing weather changes in the greenhouse g`ses and

solar output might be the c`uses of this. Professor Phil Jones, speaking

to me earlier. Rocks to look forward to them!

`` lots. And we were glad to bring you pictures of that crash, but we

will bring you those tomorrow. Great pictures, but something to look for

two. Goodbye. `` look forward to. Prince Harry has challenged them -

now they will challenge each other, more than

400 international competitors.