03/10/1997 Panorama


03/10/1997

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Transcript


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I'm Nigel Owens. I am an international rugby referee. You may

:00:00.:00:18.

know me for my no-nonsense approach on the pitch. I don't know if we've

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met before, but I am the referee on this field, not you. But you might

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not know that I have had the eating disorder pulling you for more than

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20 years. To on Panorama, we reveal the growing number of men and boys

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battling eating disorders. Is skin goes over the top of my trousers,

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that's bad. I feel like that should not be there. It's not just girls

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who suffer from bad body image. In the media, that is what drove me to

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it. And it claims lives. This 20-year-old died after battling

:01:01.:01:03.

eating disorders for most of his teenage years.

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I think, with adequate care, Steven would be alive today,

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and I think he would have been living quite a healthy life.

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It is time to break the silence on a growing problem

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I struggled with an eating disorder for over half my life.

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Men, in particular, find it very difficult to talk about.

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But thankfully, more and more are coming forward.

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I have never really understood why this illness has blighted my life

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It can hit at any time, and it doesn't discriminate.

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He has anorexia nervosa, a serious mental illness

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where someone tries to keep their weight as low as possible

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by restricting the amount of food they eat.

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Tommy, what is your anorexia like now?

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Even my body is saying no, stop, my head is saying,

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A lot of people say that the voice is not real, but it is.

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You cannot have even ten minutes without it,

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because it is constant, and you are battling yourself

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all day, and it is very self-destructive as well.

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It wants to strip you of everything, and one of the main dark things I am

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going to say is the actual goal of it is to take everything

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If skin goes over the top of my trousers, I feel that is fat

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At home, he checks himself in the mirror constantly.

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If your face looks sunk in and bony, looking at mine at the moment,

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it doesn't look sunk in, bony, but if it is, that is the look that

:03:31.:03:34.

As a teenager, James Wade almost 19 stone.

:03:35.:03:58.

Student slimmer sheds seven stone in a year without any

:03:59.:04:13.

help from the diet industry.

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But his weight-loss got out of control, he had

:04:20.:04:21.

to suspend his studies and return home.

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It kind of makes me sick, because it makes me feel that

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what has happened is I have restricted my eating,

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but the restriction has become an obsession

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It can lead to depression, brittle bones, and even heart failure.

:04:32.:04:48.

I could not walk up the stairs, I felt weaker.

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I felt more frail, and I could feel some of my bones sticking out.

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At first, he got psychiatric treatment, but now he only

:04:56.:05:00.

He is struggling to manage the condition on his own.

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What is it like to try to deal with anorexia, with this voice

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James is going to keep a video diary to show us and the reality of life

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I think this morning I am in the mood for food restriction,

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my mind is telling me this, and I feel I have to cut back

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on my food, and probably that is what I will end up doing.

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It is estimated around 1.6 million people in the UK have under eating

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disorder, and 400,000 of those are thought to be men.

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What no-one knew at that time as I was struggling

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I was also struggling with depression.

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I started realising that the type of person that I was finding

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attractive was not finding me attractive, or would not find me

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attractive because I was fat, obese in my eyes.

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I started making myself ill, I wanted to lose weight,

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so I would go to the toilet and make myself sick -

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not far off every meal nearly, you know.

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I had bulimia, where someone tries to control the weight

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by purging after eating, usually by making themselves sick.

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For nearly 20 years, it became a way of life for me.

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My mum was diagnosed with terminal cancer.

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I cried all day thinking about things, and I went

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to the toilet to make myself sick, and I couldn't.

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You know, I stuck my fingers down my throat, and nothing

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I think seeing what my mother went through made me stop.

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After years of bulimia, it seems like I had finally got control.

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We do also have good information on the website...

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The UK's largest eating disorder charity is Beat.

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It's advice centre in Warrington receives 20,000 calls a year,

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I have never asked for help for my eating disorder,

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but more men and boys are now coming forward

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It is definitely the case that men and boys are not seeking help

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as readily, many of them don't want to be seen as suffering

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from what is perceived as a girl' problem.

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Their parents are not looking for a eating disorder,

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if they get to the GP, the GP may not be looking

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for an eating disorder, so it may be diagnosed

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That allows the eating disorder to get ever more in control,

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and that makes it much harder for the treatments to work

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when they finally get into treatment.

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I encourage you to try that different therapy and see how it

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goes and let us know if you need further support.

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Some of the things coming in there, written down, I was thinking,

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that is exactly how I was, you know, that is what I needed 25 years ago,

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We wanted to find out the scale of the problem across the UK,

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so we asked every mental health trust and board how many men

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were referred to eating disorders services for a first assessment.

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From those that responded, we discovered that, in 2016,

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there were 871 referrals, an increase from 2014 of 43%.

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Our research also revealed that, from those that responded,

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more than 2500 youngsters, both boys and girls,

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received help - a rise of 42% over the last two years.

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This 14-year-old lives with his parents and younger sister

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He has just come out of hospital, where he was being treated

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Eating disorders can develop at any age.

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The risk is highest for young people between 13 and 17.

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I always had this idea of the body that I wanted,

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probably because of stuff I saw on social media.

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When you say the body you wanted, you were looking at sports people?

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I started exercising, even more than I previously had,

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so I was doing stuff in the house as well as...

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I noticed the back of the neck was getting very scrawny.

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I think he was, and then his behaviour just got more

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He started doing star jumps, he wouldn't sit down,

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I probably didn't realise he was just concentrating all day

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on food, that was all he was thinking about day and night,

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The night he went into hospital, I can remember a horrible,

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wet February night, and he was kick jumping into the hospital,

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he couldn't walk normally, he was kick jumping.

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As he was being monitored, his heart rate dropped so low

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He was discharged in February after nearly three weeks in hospital.

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You get the onions, I'll get the peppers out

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His family thought he was improving, but a few days later they found

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chocolate and yoghurt in the bathroom bin.

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What I was doing was hiding them, and then they found some of the food

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We thought we were keeping a close eye on him, watching him,

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after he had eaten his food, but obviously they get very

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deceptive, and he managed to hide some food.

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But I felt like people were intruding into my life,

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I didn't understand why they were sort of...

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He had to go back to hospital before being admitted to a children

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and young people's mental health ward, where he stayed

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He is now receiving weekly therapy through a support worker.

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But his family say he has yet to see a dietician.

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According to Nice guidelines, children with anorexia should be

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offered supplementary dietary advice.

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14 years of age, to be able to speak about what he has been through,

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I don't think I could have done that at 14 years of age.

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So how long do people have to wait for treatment?

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We asked every mental health trust and board in the UK.

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We discovered that average waits for treatment for both males

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and females vary from one week to 28 weeks, with some patients waiting

:12:37.:12:39.

All of that time, the clock is ticking, the illness

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is getting its claws into the sufferer.

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The treatments are mostly talking therapies, and in those early days,

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they are much more likely to work, to be successful,

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than they are if you leave it a very long time.

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Back in south Wales, James says he has been asking

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for talking therapy for more than two years.

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In the meantime, his anorexia has taken control again.

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I have just been on my run, I did a lot more than what I was supposed

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to do, I was thinking of my next meal, what I am planning,

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and my mind was telling me to restrict, to hold back.

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But I know what I should be having, a substantial meal.

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The health board in charge of both James's and the 14-year-old's pair,

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Cwm Taf, says that while it cannot comment on individuals,

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its priority is to provide the best possible care for children

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Many of the young lads I have spoken to with anorexia seem to have been

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obsessed with exercise, but for me it is my job.

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Being a rugby ref means I have to keep up on the pitch

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So I am under huge pressure to maintain my fitness.

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My eating disorder has been a big part of that.

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Today I am in Dublin to referee the Pro12 final.

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I've always spoken about bulimia like it is in my past.

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It returned as I approached the pinnacle of my career,

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It started sneaking back probably a little bit before the World Cup.

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I was under huge pressure to reach certain fitness levels,

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and the fitness levels are very high.

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So, I sort of made myself sick a couple of times as well,

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leading up to the fitness testing and stuff like that.

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After the World Cup final, the next year, you are just in cloud

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So I started seeing myself putting some weight on,

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I was looking in the mirror and I thought, you know,

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It would be twice a week one week, and then nothing

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I know it's not the right way to lose weight.

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I know it makes you more harm than good.

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But why I still do it from time to time?

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It's a question I've avoided for most of my life.

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But I know now I need to face up to it.

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Could it be the pressure of being a professional sportsman?

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Research shows that male elite athletes are 16 times more likely

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to develop an eating disorder in comparison to nonathletes.

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Boxer Bradley Pryce is a case in point.

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Like me, he has made himself sick to lose weight.

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You're hitting that hard, aren't you?

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Bradley, from Cwmcarn in south Wales, won the Commonwealth light

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A decade later, he can still pack quite a punch.

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Eight years ago, he was training to defend his title.

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I had to get down to the 11 stone mark.

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I got lazy, I didn't train the way I was supposed to.

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My weight was kind of not coming down.

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So I decided to start making myself sick, just to make the weight.

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Everything I was eating, I was bringing it up.

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Everybody assumed I was training hard in the gym.

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When I made the weight, on the weigh-in, I got on the scales

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and my legs were buckling underneath me.

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I knew the fight was lost then, pretty much.

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Bradley was knocked out in round three and lost his

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Commonwealth title, which he blames on his eating disorder.

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It kind of ruined my career, losing a fight.

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If I had won, I would have kept doing it.

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Bradley is still competing and has to lose three pounds before a fight

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Not as extreme as I had done it for that fight.

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But leading up to a fight, when you can't have any fluid

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or anything, I have had a bottle of pop and drank it,

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People now still find it hard to believe that I had

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to put my finger in my throat and make myself sick.

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That temptation is always there for me, as well.

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I have had a bulimia for most of my adult life,

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and in the back of my mind, I am constantly aware

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But I never thought about the damage it might be doing to my body.

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Cambridge University student James Downs survived anorexia

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as a teenager, but then developed severe bulimia,

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I caught up with 27-year-old James at his parents' home in Cardiff.

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I would bring all the food up here in the night.

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I would feel very stressed a lot of the time.

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It was only when I was eating that I didn't feel that.

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So I used to eat all of the food, and be sick here, in large buckets,

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Yes, and then the next day, when somebody was out,

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James looks healthy to me, and that is the problem

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Like, I have to take medication for my stomach,

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because I still get a lot of acid.

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My front teeth aren't my own, they have to be replaced.

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I was sick so much that the nerves were hanging out of my teeth.

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That is because of the acid in your stomach, it eats away

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James is back at university, and is focusing on his recovery.

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He has had help in the past, but despite the severe physical

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symptoms, he is struggling to get more treatment

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I went to the GP and asked if there was any support available.

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And they referred me to the Adult Eating Disorder

:20:08.:20:10.

Unfortunately, they didn't even offer me an assessment.

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The referral was not accepted because James

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Because, as well as the bulimia, I find it hard to manage how much

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And those kind of anxieties play a big role in my life.

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You know, I thought I'd had it pretty bad with bulimia,

:20:33.:20:42.

but nothing compared to what he's been through.

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I didn't realise people could have it that bad, you know?

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Cambridgeshire and Peterborough NHS Foundation Trust Eating Disorder

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Service told us that they cannot comment on individuals,

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but they are experiencing severe staff shortages,

:20:57.:20:58.

and are only able to accept those with

:20:59.:21:01.

Time and again, when meeting these young men who have battled

:21:02.:21:07.

with eating disorders, I have heard stories

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Our research has revealed that health trusts and boards

:21:10.:21:18.

across the UK have turned down more than 470 referrals for eating

:21:19.:21:21.

disorders for men and women, for a variety of reasons.

:21:22.:21:37.

Steven Brazier, from Minster, in Kent, was a funloving teenager

:21:38.:21:40.

before his eating disorder took hold.

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I started to sort of notice that he wasn't eating.

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And then, when he did eat with us, afterwards, he would disappear

:21:45.:21:51.

into the bathroom for ages afterwards.

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He just wouldn't eat for days, and then he would binge,

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where he'd eat all the deserts, or he'd eat a whole

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Saying, I've got to be sick, I've got to be sick.

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In the end, he would be pleading with you to let him go and be sick.

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It was upsetting, because he vanished in front

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And he just got thinner and thinner, and the spark just went out of him.

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His GP referred him to the local eating disorders team,

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His potassium levels became very low, which meant repeated

:22:32.:22:34.

When he was discharged, they said the referral would be

:22:35.:22:44.

and it was just constantly a battle all the time.

:22:45.:22:59.

Steven died ied at home shortly afterwards, in February

:23:00.:23:03.

A postmortem recorded his cause of death as anorexia with bulimia.

:23:04.:23:13.

I think so many opportunities were missed.

:23:14.:23:18.

With adequate care, Steven would be alive today,

:23:19.:23:20.

and I think he would be living quite a healthy life.

:23:21.:23:26.

Melanie took legal action against Kent and Medway NHS

:23:27.:23:29.

and Social Care Partnership and settled out of court

:23:30.:23:32.

They admit that their care was not adequate, and say they have improved

:23:33.:23:44.

it as a result of learning from the failings in Steven's case.

:23:45.:23:50.

We wanted to talk to Secretary of State for Health

:23:51.:23:53.

Jeremy Hunt about waiting times for eating disorder treatments.

:23:54.:23:55.

The Department of Health told us a pathway for adults

:23:56.:24:02.

is being developed, and it is investing ?150 million

:24:03.:24:05.

in children and young people's services,

:24:06.:24:06.

and will expect them to be seen within four weeks, or one

:24:07.:24:10.

For adults and children in Wales, that waiting time standard is four

:24:11.:24:21.

weeks, in Northern Ireland nine weeks, and in Scotland 18 weeks.

:24:22.:24:24.

This is the Maudsley Hospital in London.

:24:25.:24:27.

Its eating disorders unit for children and young people

:24:28.:24:30.

is renowned for its research and treatment.

:24:31.:24:33.

Eating disorders are probably the only condition in mental health

:24:34.:24:47.

where, actually, if you get a diagnosis early, it can lead

:24:48.:24:50.

to a better prognosis, provided you get

:24:51.:24:51.

Delaying treatment can make treatment more difficult.

:24:52.:24:54.

There is also good evidence to show that, the longer an eating disorder

:24:55.:24:58.

goes on, the harder it can be to treat.

:24:59.:25:00.

Eating disorders are renowned for actually having the highest

:25:01.:25:03.

mortality out of any psychiatric condition.

:25:04.:25:04.

So more people will die of eating disorders than any other

:25:05.:25:08.

Over the years, I have spoken openly about my sexuality and depression.

:25:09.:25:12.

But this is the first time I have ever confronted my eating disorder.

:25:13.:25:15.

I've just come back from Argentina two weeks ago, where I was making

:25:16.:25:19.

myself sick three or four times in Argentina, because I was eating

:25:20.:25:22.

And I knew, if I eat all of this food, I will make

:25:23.:25:27.

So I have never sought help about it, because,

:25:28.:25:35.

until speaking to you now, I guess that I have always felt

:25:36.:25:38.

I would say that it is clear that you still have some symptoms,

:25:39.:25:46.

If you haven't really received treatment for an eating disorder,

:25:47.:25:52.

it is that much more likely to re-emerge.

:25:53.:25:54.

So I think it would be really good if, at some point,

:25:55.:25:58.

you could think about maybe getting some help.

:25:59.:26:03.

That was a bit of a reality check, really.

:26:04.:26:11.

You know, speaking to Dr Darren there today,

:26:12.:26:16.

it was sort of an acknowledgement that

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I need to do something about it, really.

:26:19.:26:21.

I need to sit down and speak to somebody to try and get it out

:26:22.:26:25.

From what I've heard from the people I've met,

:26:26.:26:29.

it's hard to say you've ever fully beaten an eating disorder.

:26:30.:26:32.

But, if you are given the tools to stay one step ahead,

:26:33.:26:35.

This young man is certainly not out of the woods yet,

:26:36.:26:42.

but he is making a phased return to school, where his friends will be

:26:43.:26:46.

Maybe be slightly intrusive, sort of just check that at lunch

:26:47.:27:06.

I'm eating a bit.

:27:07.:27:07.

I guess that is what you guys can do for me.

:27:08.:27:13.

Yes, if we see you getting skinny again in your face.

:27:14.:27:16.

Let you know before it gets to that stage.

:27:17.:27:18.

James also hopes that, with the help of the people

:27:19.:27:24.

around him, he can get back on track with his recovery.

:27:25.:27:27.

But he knows it's not going to be easy.

:27:28.:27:34.

Yeah, it's going to take time, and some battling

:27:35.:27:36.

But then the anorexia is not going to be there forever.

:27:37.:27:41.

There is light at the end of the tunnel, I suppose.

:27:42.:27:44.

I know I can get somewhere where I know I can be happy.

:27:45.:27:49.

Well, it has been an incredible journey.

:27:50.:27:58.

A strange, but an incredible experience, as well.

:27:59.:28:01.

And realising how many different types of people,

:28:02.:28:04.

from all walks of life, men and boys, that an eating

:28:05.:28:08.

To actually accept that you have an eating disorder,

:28:09.:28:14.

or a mental health issue, is actually a sign of

:28:15.:28:17.

But, as I've discovered, is not always easy to get the help

:28:18.:28:25.

So, the sooner you start talking to people, the better.

:28:26.:28:30.

Don't be in my situation, 27 years on, still suffering from it.

:28:31.:28:40.

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