16/01/2017 Victoria Derbyshire

Hello it's Monday, it's 9 o'clock, I'm Victoria Derbyshire,

This morning, women who've been refused a life extending breast

cancer drug called Kadcyla tell us what it means to them.

It's the fact you know the drug is there and is good. I think if you

knew it never existed, I wouldn't have the hope of being able to use

it. The only time I feel really upset is when I think about what I

won't see, the events in my daughter's lives that I won't be

around for and when they would have liked to have had me around. I've

seen my youngest start school, seen them go to brownies and seen them

achieve things that I didn't think I would be here to see. You can't put

a price on that. We'll hear from the people behind

that decision at 9.15. Really keen to hear

from you this morning. "It isn't the care

that people deserve". How two relatives have described

their experience of the NHS. Rose's son was treated

on this makeshift bed. And Graham's dad who has

Alzheimers was left for 36 The nurses were fantastic,

brilliant. But I would say the main adjective I would use is worrying.

You can't be treated with dignity and privacy in a corridor. That's

the absolute reality. To suggest this is temporary is not true.

We'll bring you their full story before 10.

And, when one of the chief architects of Brexit met

I thought the UK was so smart in getting out and you were there and

you guys wrote it on the front-page. Yes. Trump said that Brexit was

going to happen. Yes. Right. And it happened. Yes. That was when it was

going to lose easily, everybody thought I was crazy, Obama said we'd

go to the back of the line. The front of the queue? I think you are

doing great. Hello, welcome to the programme,

we're live until 11. Throughout the programme we'll bring

you the latest breaking news Football coach Barry Bennell who's

been charged with eight child sex offences appears in court

later this morning. And as always we're really

keen to hear from you. A little later we'll hear how half

of working fathers apparently say they'd like a less stressful job

so they can spend more time Get in touch, use the

hashtag Victoria Live. If you text, you will be charged

at the standard network rate. Donald Trump has promised a trade

deal between Britain and the United States will be

a priority when he takes He was speaking to the former

justice secretary and prominent Brexit campaigner Michael Gove

for The Times in his first British interview since becoming

US President-elect. Here's our political

correspondent, Vicky Young. Theresa May is about to tell us more

about how she thinks the UK can prosper outside

of the European Union. Her critics say the economy

will suffer if Britain leaves the single market and is no longer

able to trade freely with the EU. But the President-elect Donald Trump

says he will offer Britain a quick and fair trade deal with America

within weeks of taking office. And he contrasted his approach

to President Obama's. I thought the UK were so smart

in getting out and you were there and you guys wrote it and put it

in the front page, Trumps said that Brexit is going

to happen and it happened. That was when I was

going to lose easily. Obama said they are going

to the back of the line, meaning if it does happen

and he had to retract. In other words, we're

at the front of the queue? Mr Trump said his team will work

very hard to get a trade deal done quickly and done properly and it

will be good for both sides. He also predicted that other

countries would leave to the EU, claiming it had been deeply damaged

by the migration crisis. Countries want their own identity

and the UK wanted its own identity. But I do believe this,

if they had not been forced to take in all of the refugees,

so many with all the problems that entails I think

you would not have a Brexit. Mr Trumps' offer of a rapid

trade deal is a boost to the Prime Minister who insists

Britain remains open for business. The President-elect said the two

leaders will meet right Let's chat to our political

guru Norman Smith. This is great news for Theresa May

isn't it? Yes. If you are going into negotiations, then boy oh boy, you

want the most powerful man in the world on your side and that seems to

be where the Donald is. He's signalling he's pro-Brexit, Brough

Britain and progiving us a fast trade deal. He says he thinks it's

good for us, he thinks the economy will grow and he shares the

sentiments around Brexit. He is scathing about the EU and how

bureaucratic it is. He cites an example where he tried to build

property in Ireland but gave up because of EU regulations. He says

the refugee crisis and immigration has fuelled this desire for national

identity. By and large, this will be music to the ears of the Brexiteers,

certainly was to Boris Johnson when arriving in Brussels this morning.

Have a look. I think it's very good news that the United States of

America wants to do a good free trade deal with us and wants to do

it very fast and it's great to hear that from President Elect Donald

Trump. Clearly it will have to be a deal very much in the interests of

both sides but I've no doubt that it will be. Thank you. However a dose

of cold water is nevertheless required, because although Mr Trump

may promise a fast trade deal, we have to be honest, this is a new

President, he has lots of other things to deal with. Is he really

going to focus on a trade deal with little old Britain? It won't be top

of his list of priorities. Trade deals with ferociously complex,

added to which, we don't really have any trade negotiators, or not many,

because by and large, we have relied on the EU to do our negotiating. So

getting a good deal with America may be extraordinarily difficult and

yes, that may take time, even though the Donald says he wants to do it

quickly. Lastly, a bit of reality, if you look at the pound today,

still being hit hard, it hit a three-month low against the dollar

and a two-month low against the euro ahead of the crucial speech from

Theresa May tomorrow amid talk of how she's going to push for what

many categorise as a hard Brexit. Thank you.

Joanna is in the BBC Newsroom with a summary

The inquests into the deaths of 30 British holidaymakers killed

in a terror attack in Tunisia are due to get

38 people were killed by a gunman who targeted a beach near the town

Women with terminal cancer, who were expecting to be able

to take a life-extending drug to give them an extra 6 months life,

have been telling this programme how they'll no longer get it.

Kadcyla costs around 90 thousand pounds a year.

Other life extending life drugs are usually

NICE, the organisation which decides which drugs and treatments

are available on the NHS in England and Wales, has ruled it

should no longer be made available for routine use.

One woman, Bonnie Fox, has told us she is considering trying to raise

Taking Kadcyla away, there's nothing left for me. If I'm told the drugs

are not working, literally the next day I'm going to need the new drug.

If that's not there for me, what else do I do? I have to have a drug

to stay alive so I need to find a way claysically. -- basically.

The former Crewe Alexandra coach, Barry Bennell, is due to appear

in court this morning charged with eight child sex offences.

The former coach appeared via videolink at South Cheshire

Magistrates' Court last month and was remanded in custody.

All of the offences are alleged to have happened between 1981

and 1985 when the alleged victim was under the age of 15.

A Turkish cargo plane has crashed in Kyrgyzstan

The Boeing 747, which was en route from Hong Kong,

crashed into houses near Manas airport in the Kyrgyz

Rescue workers say the dead included all members of the crew,

Visibility was poor because of thick fog at the time, but the cause

of the crash has not yet been confirmed.

The funeral will be held today for two young cousins who died

after being hit by a car on New Year's Eve in Oldham.

12 Year old Helena Kot-larova and Zaneta Kro-kova who was 11,

were holding hands as they crossed the road, when they were

Four men have since been charged in relation to their deaths.

Streets will close later today, for the funeral cortege

Every picture they're on they're together. They used to go out

together, everything. They were like soul mates and they even passed away

together. The world's eight richest

individuals, all men, have as much wealth as the 3.6 billion people

who make up the poorest half The charity is calling for action

to address what it's called a "warped" global economy as it's

revealed that there is a much wider gap in the distribution of wealth

than previously acknowledged. Critics have called the claims

misleading, saying the welfare of the poor is improving every

year. That's a summary of the latest

BBC News, more at 9.30. Thanks for your messages on cancer

treatment. One viewer says I've had the drug and it's given me extra

time with my family definitely. Roy says it's about time the NHS used

its vast spending power to force drug companies to give it better

deals and Jerome says many treatments aren't available on the

NHS, picking one out of context is unhelpful. Our film on Kadcyla in

the next few minutes. Do get in touch with us

throughout the morning - use the hashtag Victoria Live

and If you text, you will be charged Andy Murray has been in action

at the Australian Open. Yes, he is through to the second

round. Had to battle though. It wasn't easy for him. He was playing

Ukraine's Marchenko. Murray's serve wasn't as strong as it could have

been and he struggled to find rhythm. Almost three hours on court

in the Melbourne sunshine may have used up perhaps a bit more energy

than he wanted. The world number one will now face Rublev of Russia.

Better news for Dan Evans, he beat his opponent of Argentina. That is

his first win in the Aussie Open. A good day on the whole. The women get

in action tomorrow. It was Merseyside v Manchester

in the title race yesterday, but surely Chelsea were

the real winners? Chelsea ten points ahead. They

haven't really blinked in this title race so far have they? Everton

thrashed Manchester City. That was 4-0. Liverpool and Manchester played

out a 1-1 draw. United boss Mourinho criticising Liverpool's defensive

style. I should tell you though, brilliant match for Everton, 4-0

winners they run out. Some great goals and what a moment for the

debutant Lookman over from Charlton and scored in injury time to make it

4-0. Brilliant win for them and Guardiola's said of that loss to

Everton that they are out of the Premier League title race. They are

ten points I should say behind and it's not looking good for them.

And Premier League clubs have come in for more criticism

Yes. They've been accused of prioritising the finances over

improving disabled access to their stadiums and that's according to a

result by the Culture, Media and Sport Committee. In 2015, the

Premier League promised to improve stadium facilities for the fans by

August of this year but several clubs, including Watford, Chelsea

and Liverpool, are expected to miss the deadline. A statement by the

Premier League says they are working hard to enhance disabled fan access

and will report on each club's progress at the end of the month.

More to come on that in the coming weeks. Thank you very much, Jess.

Without this drug I won't see my child go to school or get married -

the words of some women with terminal cancer, who have been

told they will no longer have access to a life-extending drug

Kadcyla is the most expensive cancer drug ever -

Because of that cost, Nice, the body in charge

of the NHS's purse strings, has decided that it should no

longer be made available for routine use on the NHS.

The maximum they usually spend on drugs which extend

life is normally between ?20-30,000 per year.

Women already on the drug will continue to receive it,

but those who were told by medical staff that they should

Our reporter John Owen has been to meet some of them.

It's so frustrating, it's so upsetting, it's just...

I think it's the fact that you know that drug is there,

I think if it had never existed then I wouldn't be,

I wouldn't have this hope of being able to use it.

The only time that I feel really upset is when I think

about what I won't see, the events in my daughters' lives

that I won't be around for, and when they would have liked

It's been called revolutionary and a wonder drug, but NHS patients

who are expecting to receive the breast cancer treatment Kadcyla

now face being told that it will be unavailable to them.

The amount of good quality time that I thought that I would have

and my family expected to have with me has effectively

Recently, NICE, the body in charge of the NHS' purse strings,

have decided that the treatment should not be made available

At an estimated ?90,000 a year, it was considered to be just too

expensive, far beyond NICE's usual maximum threshold of 20 to ?30,000

At some point, there comes a limit to what the NHS can pay.

The industry spends over $100 billion a year

And yet it's a drug that's been clinically proven to significantly

extend the lives of patients suffering from advanced breast

cancer by an average of six months, with fewer side effects

In advanced breast cancer, there are very few drugs that

If I hadn't had access to Kadcyla, I probably wouldn't be here.

But on the question of whether the NHS can afford it,

We can't simply say, we will pay whatever price

There are so many countries that are making this drug available,

we think that there must be a way to make sure that it is

It seems to be playing chicken, in some ways,

NICE say the decision isn't yet final.

It's hoping the drug company will bring down the price.

But if that doesn't happen, patients face not having access

In my head, I've thought about how long I can last on each drug,

I've got kind of a rough, I guess, timescale laid out.

"If I have this drug and then I can have this drug

for a couple of years, then maybe this drug..."

You bank on those years, they are so precious to you,

it's so important that you can squeeze as much time

as possible out of the drugs, and to have that suddenly taken

away, it just feels so cruel, really.

So it was explained to you presumably by your oncologist

that these drugs only work for a certain amount of time,

and then what did she say to you about what would happen

She said to me that I could expect about two years,

give or take, of life, basically, and that was factoring

in the drug that would work once the Herceptin and the pertuzumab

stopped working, which was going to be Kadcyla.

And at the time she said, "Well, if Kadcyla were ever

going to be withdrawn, people would be chaining

themselves to railings, it's such a wonder drug,

and it's so effective," and it was unthinkable that it

In 2010, the coalition Government announced the Cancer Drugs Fund

to give patients access to the most advanced cancer treatments,

Kadcyla was one of them, and since then it's become

indispensable for doctors in treating a particularly

aggressive form of breast cancer known as HER2 that affects up to 25%

Kadcyla is really a revolutionary drug, and it's like nothing

that we've had before in breast cancer treatment.

And it works a little bit like a heat-seeking missile

in the sense that the antibody focuses in on the HER2 cancer cells

and it takes the drug to them and releases

The Cancer Drugs Fund overspent, and now NICE is looking again

at all of the treatments it made available.

In the case of Kadcyla, NICE has made an initial decision

that the treatment should not be made available for routine use

by the NHS, ahead of a final decision to be taken in March.

Janine was one of the first women in the UK to use Kadcyla,

whilst the drug was still in its trial phase.

I was diagnosed in 2010 with primary breast cancer.

The following year, in 2011, I was told that my cancer had come

back and was spreading around my body, and I was

diagnosed with incurable secondary breast cancer.

I was just 32, I'd just had a baby, she was eight months old,

and I also had a three-year-old, so my family was just beginning,

I was fortunate that I had quite a few options back in 2011 and went

Tell me about what it meant for your treatment.

What it meant for me was quality of life,

and there's a lot of chemotherapies, a lot of drugs that don't give

you that quality of life, so your hair would fall out,

you would feel physically sick, you might have

diarrhoea or constipation, and all of the other

unpleasant side-effects that chemotherapy can bring.

How do you feel about other women who are in precisely that position

that you were in a few years ago who also have young

children and will not have access to Kadcyla,

It breaks my heart to know that, with this drug, it could mean

that they will see their children go to school, that they will make

I've seen my youngest start school whilst I was on Kadcyla.

I've seen them go to Brownies, I've seen them achieve things that

I really didn't think that I'd be here to see, and you can't

My name's Gill Smith and I have stage four breast cancer.

It had already metastasised at the time it was discovered

to my liver, my bones, my lungs and my lymph nodes,

which means that it's stage four and inoperable and incurable.

The two drugs that I'm on, still on, are Herceptin and pertuzumab.

And they are effective for about 18 months,

but they had to be kicked off with chemotherapy.

And what was that like, being on chemotherapy?

And losing my hair after two weeks was just the least part of it,

So you'd been advised that Kadcyla would be available

for you when you needed it, and it now looks as if

Absolutely right, so that's devastating because it means

that the amount of good quality time that I thought that I would have

and my family expected to have with me has effectively been cut

It's pretty grim being told that you only probably

have about two years, give or take, to live,

and then the first eight months of that have been severely

compromised by the chemotherapy, and now, if I don't have Kadcyla

and the Herceptin and pertuzumab stop working, chances are that means

that this was my last Christmas, and that's absolutely devastating.

My daughter keeps saying how unfair she thinks it is, and it does,

it does feel rather like that, because it was such

a fantastic drug, and having cancer is hard enough but the drugs that

are available have improved so hugely that it's quite possible

to live with cancer rather than feel that you are dying from cancer,

so you can have a very good quality of life for quite a long time.

And to have half of that taken away would be awful.

My oncologist now says that she is seeing about nine months

of effectiveness of Kadcyla, really good quality of life

without the side-effects, and although that might not sound

like very long, if you've only got two years, nine months

it's a significant part of that, and it's hugely important.

My older daughter, she's 25, and I probably won't

My younger daughter still lives at home with us, and she's just

beginning to get established in life, and that's what I worry

about most, really, how she'll manage without me.

Gill is not the only patient affected by Nice's decision.

My name's Bonnie Fox, I was diagnosed with both primary

and secondary breast cancer when I was 37, when my little boy

It makes me feel worried, it makes me feel angry and frustrated,

angry with the drugs company and with the NHS that they haven't

been able to find a way through to agree a way forward,

It's just adding a huge amount of stress.

My life is, it's already pretty stressful, I've got this

enormous black cloud, I think, hanging over me,

that I try to push away as best I can but it's always there,

and this is just additional worry, really, additional anxiety.

After speaking with these patients, I ask Carole Longson from Nice how

After speaking with these patients, I ask Carole Longson from NICE how

they can justify their decision to deprive these women

Well, we know how important it is for people with breast cancer

that they have access to life-extending treatments,

but the reality is the cost of this drug, the price of this drug is too

high relative to those benefits for it to be

The drug company has offered a discount, but even with that

discount it's still far beyond the range that we would

This drug was available through a mechanism called

And it seems that a lot of patients thought that,

because it was available then, it would be available in the future

Doesn't it seem desperately unfair that it may not be

NICE needed to take another look at this drug.

It has been on the Cancer Drugs Fund, as you said,

for a number of years, but now we're talking

about routine use in the NHS, and for that to happen we need

to strike a balance between the use of money, the use of resources

for this particular drug, for these particular patients,

compared to what else you can do with that money.

We completely understand that that means that,

for those people that are already taking this drug and for those

patients who are in a position where they might wish to have this

drug, they might need that drug, that's a very, very

What do you say to those people who say this is so immensely

We live in a country with a National Health Service,

a way should be found to afford these drugs?

In order to extend the, "Well, let's make available everything

for anybody at any cost," that leaves the NHS in a very

difficult position, given that any system only has finite resources.

Roche, the pharmaceutical company that makes Kadcyla,

declined to be interviewed for this film, but Richard Torbett

speaks on behalf of the pharmaceutical industry.

What kind of responsibility do pharmaceutical companies have to

ensure that new cancer medicines are priced at an affordable level

so that they can be made available on the NHS?

I think it's absolutely clear that pharmaceutical companies

have a strong responsibility to price responsibly,

and to work with the NHS to make sure that the medicines represent

Because, ultimately, pharmaceutical companies are for

profit, they're interested in making profits, and I think

there's a suspicion that these drugs are being priced extravagantly

and that companies are putting profits before ensuring

that these drugs are available to the patients that need them.

Well, the worst possible outcome for a pharmaceutical company

is to have spent all this time and all this money producing

a medicine and for it not to reach a patient,

so it's absolutely clear that all pharmaceutical companies

are absolutely focused on making sure that the patients get medicines

The industry spends over $100 billion a year in research

and development, much of that is on medicines that

never reach the patient because they fail in the clinic,

so obviously there's a limited period of time where prices need

to be at a level to keep that research effort going.

Although nobody disputes that the NHS needs to

manage finite resources as fairly as possible,

for some it will nonetheless seem cruel that a drug with

the power to extend life will no longer be accessible to those

For those patients who will soon need access to Kadcyla,

Yeah, it just feels incredibly unfair when you're told that

you have cancer at such a young age, you just think, "Why me?

Why am I this one person that's, you know, somehow been singled out

And then, yeah, to be told that a drug is taken away from you that

could extend your life is just, yeah, it's unfairness on top

You know, I'd like to suggest that people might reflect on,

how would they feel if it was their wife, their mother,

What would it mean to them to have another nine months of good-quality

What would it mean, what could they do?

As John said, we asked Roche for an interview

They told us they have maintained an open dialogue

with Nice and NHS England, and gave offered improved schemes

and solutions to try to keep this medicine available to patients.

Really keen to hear from you this morning -

if you've been on Kadcyla or been promised it, and now won't get it,

An anonymous texter said, I had a lump Equitable mist done last week,

I had to wait two weeks to find out if it was cancer after the biopsy

and I have to wait two more weeks for the results to see if more

surgery is required. The stress of not knowing is unbelievable. Now,

I've just heard that a breast cancer drug is being taken off the NHS. Do

I need this extra stress at the moment? You wouldn't believe the

thoughts that are going through my mind. This tweet from Ian, this is a

disgrace, when are we going to help these women, rather than helping out

other countries. Another texter, I'm incensed that the life-extending

cancer drug is being withdrawn. Stop sending British taxpayers' billions

abroad and invest the money here in the nice and social care. Thank you,

keep those coming in. Later on in the programme, we'll

speak to some of those affected, and from a body which represents

the drugs industry. We'll hear from some of Donald

Trump's supporters in Texas. Nearly half of working dads would like a

less stressful job to spend more time with their kids. If you are a

working father, how do you juggle a job and your children? Let me know,

or have you given up work completely in order to achieve the right

balance? Joanna is in the BBC

Newsroom with a summary Donald Trump has promised a trade

deal between Britain and the United States will be

a priority when he takes He was speaking to the former

justice secretary and prominent Brexit campaigner Michael Gove

for The Times in his first British interview since becoming

US president-elect. Mr Trump said he would ask his

son-in-law Jared Kushner to negotiate a Middle East peace

agreement and would seek a deal with He said it's good news for Theresa

May. This is another card in the Prime Minister's hand, another arrow

in her quiver, because the European Union until now has been assumed to

have a better hand to play. But the Prime Minister, we now see, has

actually cards in her hand, including... How do you think

she's... I think she's getting a better deal. How do you think she's

played her hand so far? She's done an company Blair job. -- she's done

an exemplary job. The pound has fallen to a three

month low against the dollar in early trading in Asia,

because of speculation Some analysts predict Theresa May

will use a major speech tomorrow to say she's prepared to pull out

of the single market to have more Downing Street has described

the reports as "speculation". The inquests into the deaths of 30

British holidaymakers killed in a terror attack in Tunisia

are due to get 38 people were killed by a gunman

who targeted a beach near the town Organisations including

the Metropolitan Police, the Foreign and Commonwealth Office

and the owner of tour operator Women with terminal cancer,

who were expecting to be able to take a life-extending drug

to give them an extra 6 months life, have been telling this programme how

they'll no longer get it. NICE, the organisation which decides

which drugs and treatments are available on the NHS in England

and Wales, has ruled it should no longer be made

available for routine use. The maximum they usually spend

on drugs which extend life is normally between 20-30 thousand

pounds per year. Barry Bennell appeared via video

link at south Cheshire Magistrates Court last month and was remanded in

custody. All of his offences are alleged to have happened between

1981 and 1985 when the alleged victim was under the age of 15.

He'll appear in court today. The funeral will be held today

for two young cousins who died after being hit by a car

on New Year's Eve in Oldham. 12 Year old Helena Kot-larova

and Zaneta Kro-kova who was 11, were holding hands as they crossed

the road, when they were Four men have since been charged

in relation to their deaths. Streets will close later today,

for the funeral cortege Every picture they're

on they're together. They used to go out

together, everything. They were like soul mates

and they even passed away That's a summary of the latest

BBC News, more at 9.30. Andy Murray has been in action

at the Australian Open. Yes, he is through

to the second round. Murray's serve wasn't

as strong as it could have been and he struggled

to find rhythm. It was Merseyside v Manchester

in the title race yesterday, Premier League clubs are putting

finance over needs of disabled fans. The Premier League says it's working

hard on access. More on all of that just after 15. -- just A 10.

A general election could be announced in Northern

There was a big flaw. There was no limit to the rewards. The more heat

people created from these boilers, the more they got paid. So some

people started abusing the scheme, installing boilers if buildings that

didn't need heating to cash in. It's thought this could cost the taxpayer

nearly ?500 million. But why the crisis? The head of Northern

Ireland's Government, Arlene Foster, was involved in the setting up of

the heating scheme when she worked in the energy department. Will you

be accepting Sinn Fein's terms of reference for an inquiry? No. Since

the scandal broke, there have been calls for her to resign but she's

refused. For my part I'm determined to do all I can to put right what

went wrong, to find out through an investigation why things went wrong

and seek to restore the credibility of Stormont in the eyes of the

public. Northern Ireland is unusual -

it's governed by two political parties, the DUP and Sinn Fein,

and it has two leaders. They work together and share

the decision-making. Last week, the other leader,

Martin McGuinness from Sinn Fein, We in Sinn Fein will not

tolerate the arrogance Because the two parties share power,

if one leader goes, From this evening, it'll be down

to the Northern Ireland Secretary, James Brokenshire,

to call that election. He might try to hold off for a bit

so more negotiations can take place, It means voters in Northern

Ireland could be heading Now, while this was triggered

by the heating scandal, Sinn Fein say their rift

with the Democratic Unionist Party Has their attempted

power-sharing come to an end? In Belfast is Northern Ireland

historian Dr Margaret O'Callaghan, What do you think is going to happen

today? In all likelihood we are heading to an election but I suppose

we have until 5 o'clock, so in theory, there are a number of points

during the day at which something could happen whereby Sinn Fein and

the DUP put something together. At the moment, for example, the finance

spokesperson is trying to put a deal together that will at least

investigate this scandal. But there are a number of steps during the day

but the way it looks at the moment, we are probably going for an

election at 5 I think. There have been a fair few crises in

Northern Ireland politics, where does this rate? Oh, this is pretty

high, 9 out of 10. It's also very odd because it's come almost out of

nowhere. As you know, the system we have here in Northern Ireland was

set up under the Good Friday Agreement. It's mandatory coalition.

All of the parties are in theory in Government but two of them have

already withdrawn to form an opposition. So it's really the two

hardline parties, Sinn Fein and the DUP, who've been in power. There's

little love lost between them. They're seen as kind of carving

things up between them, if you like. But they looked like they were doing

reasonably well. But suddenly, this one issue, perhaps Arlene Foster's

lack of experience, her unwillingness to stand aside for two

or three weeks, all of these things together seem to have contributed to

this crisis. It's also not helped by the fact

that Martin McGuinness, the leading Sinn Fein politician, who's been

Deputy First Minister with Paisley, with Peter Robinson and now with

Arlene Foster, is very seriously ill. How are voters viewing all of

this? Totally fed up. The only thing that might put pressure on Sinn Fein

in particular today to pull back from the brink is the fact that the

electorate really don't want an election. We've seen dropping voter

participation and even if there is an election, it's pretty likely that

we'll get the same result. So it's more public money, a huge kerfuffle,

everything being, you know, pushed to the extremities. Also, the

economy's bad here, the whole issue of Brexit affects this area given

the likelihood of a border between the EU and the UK being actually on

this island. So the voters do not want an election. No. From what you

have said, Margaret, this element of power-sharing is dead, but

power-sharing will continue when there is a new election? Well, one

hopes so, but the point is, elections, I mean it's the two

extreme parties on the unionist and nationalists side were primarily at

issue here. They play against other parties. But the other issues have

now come into play like dealing with the past, the status of the require

language, respect for nationalism and once these issues come up, they

polarise politics, they poison the well, they make it more and more

difficult to get power-sharing up and running again. So it's a

high-risk operation. It's dangerous. Has it been confirmed what Martin

McGuinness's illness is? There are all kinds of press speculations.

Some stories more reliable to others so I wouldn't really like to say

because I'm not 100% sure but I think it's a serious health

situation. Thank you very much for your time.

Thank you for your comments on Kadcyla, the life-extending drug,

given to women with incurable breast cancer. Claire says I've been on

Kadcyla for two years, it's an amazing drug, I had to take a break

from treatment to have surgery to my chest. My oncololgist and I are

having to fight NHS England to go back on the drug, it's shocking.

This tweet from Sue. It's difficult regarding the breast cancer drug, I

feel for patients who talk about what they'll miss during the next

six months, but where does the line get drawn? Roy says, I have terminal

cancer myself and can't begin to believe how women with children are

feeling when told they won't receive a drug because it's too expensive.

Fiona says, I'm on Kadcyla and have been for 20 months, it's had an

amazing impact, my lung tumours are stable and there is "no evidence of

active disease now". Please stop saying Kadcyla extends life by six

months, the average is months. It's six months extra when compared with

another treatment which is not available on the NHS, so a totally

spurious comparison. The quality of life is fantastic. I work and I'm a

wife, daughter, sister, aunt step-mum and a friend. Sam says the

NHS has effectively put a price on the women's heads and that is

shameful. Your experiences, particularly if

you have been on this drug, you have been promised this drug or you are a

taxpayer and would willingly continue to pay for this drug or

not. Do let me know. Get in touch in the usual ways. Later we'll hear

from a representative from the drugs company industry. Still to come:

Claims from Oxfam that the world's eight richest people collectively

have as much wealth as the 3.6 billion people who make up the

poorest half of the world. We'll examine the claims and see how true

they are. Doctors are warning that some

patients face "dangerous" delays in getting specialist treatment

through their GP. Some UK hospitals are cancelling

cancer operations due to a rise in pressure on the NHS

and a shortage of beds. We know that nearly half

of hospitals in England declared a major alert in the first week

of January as they encountered A quarter of patients had to wait

over four hours at A This follows on from claims

earlier in the month from the British Red Cross

that the NHS in England was facing We've been speaking to two people

who've experienced shocking Rose Newman from Eastbourne,

who says her one-year-old son had to wait on a make-shift bed of two

chairs, almost four hours in A, after he was taken there

with suspected meningitis. And in Birmingham Graeme Anderson

said his dad who has Parkinson's and dementia had to wait around 36

hours for a bed in a ward He was really, really hot, like,

with a massive temperature, which is what we were

worried about initially. And that's when the doctor

noticed spots around his ankles which weren't

going when you press to them. So he wasn't well at all but we were

on the verge of thinking, is this something really,

really serious or is this just a continuation

of the tonsillitis that he had? But he had gone massively downhill,

he was not in a good way at all. So you took into hospital,

what was your experience? We got there just before eight

o'clock and I think it was about 45 minutes for us to see

the assessment nurse. And he did a really good

job in trying to get us on to the children's ward,

but because he was not under one, they would not take

him because obviously And then later on we got

put into like a side room and a nurse came

in to try to get his temperature down, which was still really high

and she said that a doctor would be along in a minute,

she was going shift. And then we waited hours,

I think we waited a total of four And obviously, there

was no bed to put him in. Which is when you improvised

and brought two chairs together so that Jack could lie

across both of them? Initially he was sitting on our laps

but we were told, we were trying to bring his temperature down

and if he was sitting This was 11.30 at night

and we wanted to sleep so we did not Luckily I had brought his duvet

with me because we thought he would be staying overnight,

that's what the doctor So we put the chairs together

so that he could lie down. What did you think of the fact

that there were no beds for him? Well, initially I did not think too

much of it because I did not realise But a couple of nurses said to ask

sorry you're having to wait a bed. And as it got on and he really

needed to lie down and sleep, that's when I was really distressed

because if we had not brought that duvet with us,

I'm not sure what we would have done We were having to prop

him up on our knee. But him not touching us so as not

to take on our body heat. It was uncomfortable for him

and distressing for us. Tell us what happened to your dad

in the dad needed to going for a CT scan, so we went in on

Monday afternoon and unfortunately they could not do the CT

scan until Tuesday. But one of the complications

with dad when he is like this, he has got Parkinson's

and other complications, and is very So actually staying in A overnight

was about the worst place that he could have been in terms of him

being calm and settled. Because it's busy and people

are in and out the whole time and in a different

states of distress? And when we walked in,

there were 15 people at least on They were the people who had been

brought in from ambulances, All the way through the staff have

been fantastic with my dad. But clearly they were running over

capacity, and again, the problem, like your other guest said,

was that they were just waiting for beds, the system was blocked up

because they were waiting for beds In the end it was 36 hours

before your dad got a bed and what state

was he and by then? To be fair, they treated him

medically and he got better in terms of the immediate

problems that he had. The distressing thing for him

was just that he was really confused and didn't know what was going on,

and as his family, we were unsure about what the next steps

would be, to be honest. Worcester Acute Hospitals told

us, we can't comment They say, "We do accept

that some patients spending longer than we would

like in our A department. We apologise for this,

we are experiencing pressures in all parts of the system

and are working with partners to make sure that waits

are kept to a minimum". And they are doing

their best, I'm sure. However, the system

is running overcapacity. They have got buzzers for patients

lined up on the walls So it's clear that they

are getting used to the fact that people will

be seen in corridors. And again, the staff have been

fantastic with my dad. But clearly, there

isn't the capacity at the moment in Worcester

to give equal the treatment that they deserve and

that the staff would like to give Rose, in your case, the hospital

in Hastings told us, Jack was assessed

for his temperature, Due to the volume of other

patients being seen - I mean, do you accept

that it was just mad This was a Wednesday,

it was not even a weekend. So it was way busier than

what I thought it was going to be. What words would you use

to describe your experience The nurses were fantastic,

they were brilliant. But the main adjective I would use

is worrying because it was a worry to find out from a doctor

whether Jack's condition And if it had been serious

and you had waited four Graeme, what words would you use

to describe your dad's experience I think that the staff

are doing their very best. It isn't the care

that people deserve. You can't be treated with dignity

and privacy if you're And to suggest this

is temporary is not true. We went through A with dad

in October and he waited overnight on a trolley in October,

waiting for a bed. Undoubtedly we will probably

end up in A again. Anyone can come and see what's going

on if they want to come with me, but that's the reality of what's

going on at the moment. Rose, your little boy's case

was raised by Labour leader Jeremy Corbyn

in Prime Minister's Questions last week - I want to ask you,

which party do you trust most Well, I mean, based on my personal

experience, like Jeremy Corbyn thinking it's important enough

to raise in Prime Minister's Questions, my sister,

who works for the NHS, And then he followed up with a phone

call to me to see how Jack was, and to thank me

for raising my story. And in contrast, Theresa May trying

to say this is just a small number of incidences,

which is not true at all, I'd say, you know, I trust

Jeremy Corbyn in this situation. And obviously, for our audience,

I need to ask you, are you a Labour I mean, as of this, yes, I will be

a Labour supporter, I would say! What did Jeremy Corbyn say

to you on the phone? When I picked it up,

I thought it was the journalist from The Mirror, and he said,

"Hello, it's Jeremy Corbyn". He just said thank you for raising

awareness through my sister. And he said that he really

appreciated us sharing the story and then he was asking about Jack

and whether he had been back to nursery yet,

whether he was well enough to do all the normal things

he normally does. Over the weekend we were able

to take him to his swimming lesson and things he has not been able

to do for a couple of weeks. So he's definitely back

to normal which is great. Thank you both very much,

I really appreciate your time. An e-mail from Rob. He says he had

to rush his two-year-old daughter to a French hospital by ambulance

because she had a high fever. Rob said before I was allowed into the

hospital, I paid the 440 euro ambulance bill. On departure I paid

the 90 euro consultation charge. Because neither me or my extended

family had not paid tax in France, I had to issue. I would be keen to now

how many EU and non-EU members had treatment at the NHS this year? This

was addressed maybe the poor women could be offered the cancer drug and

a toddler wouldn't have to sleep on plastic chairs.

Stewart says, "Whilst I know the NHS is under pressure, please remember

it saves lives every day and it is important not to just report

negative stories." Clare says, "Norfolk Hospital was brilliant when

I needed a bed." Another viewer says, "The system is clogged up with

nonemergency or alcohol and drug related problems." Keep those

experiences coming. We will feed them into our conversation

throughout the morning. Coming up to 10am, we will bring you

latest news and sport. Now the weather. Is it milder or is it my

imagination? Well, it is becoming milder. It is already milder. We

have got a lot of cloud around today. I have got a treat for you. I

have got a couple of Weather Watcher photos which I know you like. In

north-west Wales, there is a lot of cloud around. Under the cloud, the

temperatures are higher. Look at this... It's gorgeous. A Weather

Watcher sent this in. There is cloud and breaks and that's reflected in

the temperatures. So another treat for you. I'm pulling all the stops

out today. These are the current temperatures in Dover.

The same with Hull and London where we have got drizzle, but push

further north and west, where we've got more cloud around, the

temperature is that bit higher. So it is quite a cloudy start to the

day rather like this more many of us. No snow, it is too mild and in

fact, today, by day and by night too, the temperatures won't vary too

much and that's quite nice actually. Turn the heating down a bit. Yeah,

exactly. So what we're looking at today is a weather front that's

draped across the central swathe of England. It moved further east

taking rain with it. Most of the rain is light, but we are looking at

the odd moderate burst. Later on, another weather front will come in

across north-west Scotland slow deucing more rain. There is a the lo

of cloud around. Here is what we've had this morning. So it is more

nuisance rain. It is constant, persistent light and drizzly and it

will in this way as we go through the morning, but there will be some

sunshine. Somewhere in East Anglia, perhaps west Sussex towards Kent

could see sunshine, but a lot of cloud out towards the west. Some

breaks across Angus and Fife, but through the afternoon, we will see

the next weather front coming our way. So it is quite a cloudy, but as

Victoria said, mild picture that we're looking at today. There is

hill fog around and where we have got the weather front we continue

with the light and at times, patchy rain and drizzle. Further east, some

breaks in the cloud. A little bit of sunshine. In the South East, it is

only six Celsius. In the south-west, on the other side of the weather

front which is a warm front, we are looking at highs of ten Celsius.

Again, quite a bit of cloud around with one or two breaks as we have

across Wales, but the emphasis really is on cloud. For Northern

Ireland, you too have got a fairly cloudy day ahead and by the

afternoon we will see the edge of the rain affecting Scotland and

clipping north western parts of Northern Ireland. Now, through the

evening and overnight, the rain will push south across Northern Ireland

and parts of Scotland and into Northern England and North Wales.

Elsewhere, the rain that we have will tend to fizzle and in the South

East and East Anglia under clearer skies we are looking at a touch of

frost and also patchy fog, but there shouldn't be problems with frost

elsewhere, but we will have some hill fog around. Tomorrow, here is

our weather front continuing its decent, weakening all the time

across Northern England and into North Wales, you can see across the

Midlands, we will see drizzly bits and pieces. The South East seeing

the sunshine, but only four to six Celsius and parts of Eastern

Scotland favoured for sunshine. It won't feel too bad. Aberdeen getting

up to ten Celsius. As we move from Tuesday and into Wednesday, high

pressure dominates itself across the UK. We've got a squeeze on the

isobars in the north. We've got a weather front flirting with the far

north of Scotland and at times it will introduce spots of rain.

Another cloudy day, the best chance of seeing sunshine across Southern

England and into the south-west, parts of the Midlands, but

temperatures no great shakes. If you finally take a look at what's

happening on Thursday, again there will be brighter skies, but there

will be a fair bit of cloud around and that could produce just the odd

shower, weather front not too far from the north and temperatures

between seven and eight Celsius. Hello it's Monday 16th

January, it's 10 o'clock, This morning, women who've been

refused a life extending breast cancer drug called Kadcyla tell us

what it means to them. It's the fact you know the drug is

there and you know it's good. If it never existed, I wouldn't have this

hope of being able to use it. The only time I feel really upset is

when I think about what I won't see; the events in my daughters' lives

that I won't be around for and when they would have liked to have had me

around. I've seen my youngest start school while on Kadcyla, I've seen

them go to brownies, achieve things that I really didn't think I would

be here to see. You can't put a price on that.

Thank you to those who've got in touch about this this morning. Keep

sharing your experiences. And, when one of the chief

architects of Brexit met President I thought the UK was so smart. You

guys were there and put it in the front-page, Trump said Brexit was

going to happen, right and it happened. That is when I was going

to lose easily. Everyone thought I was crazy. Obama said they'll go to

the back of the line, meaning if it does happen. He had to retract that.

That was a bad statement. Now it's the front of the queue? You are

doing great. all men, have as much wealth

as the 3.6 billion people who make up the poorest half

of the world's population. Good Morning, here's

Joanna in the BBC Newsroom Donald Trump has promised a trade

deal between Britain and the United States will be

a priority when he takes He was speaking to the former

justice secretary and prominent Brexit campaigner Michael Gove

for The Times - in his first British interview since becoming

US president-elect. Mr Gove says the president-elect's

comments are good news This is another card in the Prime

Minister's hand, another arrow in her quiver, because the European

Union until now has been assumed to have a better hand to play. But the

Prime Minister, we now see, has actually cards in her hand,

including candidate Trump which will enable her I think to be able to

secure a better deal. How do you think she's played her hand so far?

She's done an exemplary job. Meanwhile, the pound has fallen

to a three month low against the dollar in early trading

in Asia, because of speculation Some analysts predict Theresa May

will use a major speech tomorrow to say she's prepared to pull out

of the single market to have more Downing Street has described

the reports as "speculation" The inquests into the deaths of 30

British tourists killed in Tunisia in June 2015 will open

in the next hour. They were killed by a lone

gunman at a 5 star beach It remains the deadliest

terror attack on Britons The victims, who were aged

between 19 and 80, included three Women with terminal cancer,

who were expecting to be able to take a life-extending drug

to give them an extra 6 months life, have been telling this programme how

they'll no longer get it. Kadcyla costs around 90

thousand pounds a year. NICE, the organisation which decides

which drugs and treatments are available on the NHS in England

and Wales, has ruled it should no longer be made

available for routine use. One woman, Bonnie Fox, has told us

she is considering trying to raise Taking Kadcyla away, there isn't a

next step for me in place. So if I'm told my drugs aren't working, the

next day I'm going to need that new drug. If that's not there, what else

do I do? I have to have a drug to stay alive, so I need to find a way

basically. And Victoria will have

much more on this story Unconfirmed reports are saying five

people have been killed after a gunman fired through an open window

at the Blue Parrot Club in Playa Dell Carmen.

The former Crewe Alexandra coach, Barry Bennell, is due to appear

in court this morning charged with eight child sex offences.

The former coach appeared via videolink at South Cheshire

Magistrates' Court last month and was remanded in custody.

All of the offences are alleged to have happened between 1981

and 1985 when the alleged victim was under the age of 15.

That's a summary of the latest BBC News, more at 10.30.

An e-mail from Esther. Anyone diagnosed with cancer will know that

the news currenth turns your world upside down. Drugs may cost a lot

but you simply cannot put a price on life. I was diagnosed in 2013 and

like one of your viewers waiting for the biopsy results was agonising.

Anything that can help to extend life a little will give a tiny bit

of hope to those on that journey. Do get in touch with us

throughout the morning - use the hashtag Victoria Live

and If you text, you will be charged Andy Murray has got his

Australian Open campaign He beat Ukraine's Illya Marchenko

in straight sets, although the world number one was made to battle

by the world number 95. The match took two hours and 48

minutes in the Melbourne heat. Murray faces Russia's Andrey

Rublev in round two. Dan Evans is also through

to the second round. Marchenko played well. He was

playing very fast out there. I found it hard, but managed to get through.

Dan Evans is also through to the second round.

He beat Argentina's Facundo Bagnis in straight sets and is up

against seventh seed Marin Cilic next.

But British number four Aljaz Bedene is out.

Pep Guardiola says Manchester City are out

City lost 4-0 to Everton yesterday and are now three points behind

second place Tottenham and 10 points behind league leaders Chelsea.

Liverpool missed the chance to go second after a late equaliser

The second one is three points. We have to see. I spoke to my players

the last three weeks, forget about it, forget about the table, focus

and try to do our best, try to make what you want to do to win the games

and after that, we are going to weigh up how was our level of

performance and then we'll have to decide.

Liverpool missed the chance to go second after a late equaliser

from Zlatan Ibrahimovic held them to a 1-1 draw against

Jurgen Klopp's side are level on points with Tottenham.

80 minutes, high intense football, it's really hard. When I saw the

boys, I hope we had a little bit of luck. Unfortunately we had maybe one

situation, then the next situation we did not.

Premier League clubs have been accused of

prioritising their finances, over improving disabled

access in their stadiums, according to a report

by the Culture Media Sport Committee.

In 2015 the Premier League promised to improve stadium facilities

for disabled fans by August of this year.

But several clubs including the likes of Watford,

Chelsea Liverpool are expected to miss that deadline.

A statement by the Premier League says they are working hard

to enhance disabled fan access will report on each club's progress

This morning we've heard how some women with terminal cancer

who were expecting to be able to take a life-extending drug to

give them an extra 6 months life - have now been told they'll no

The drug is called Kadcyla - it costs ?90,000 a year,

far more than the ?20-?30,000 normally spent on

NICE, the body in charge of the NHS's purse strings,

has decided it can no longer fund the drug.

Bonnie Fox says she was "completely devastated" on finding Kadcyla

was no longer available on the NHS, she's considering trying to raise

It's so frustrating, it's so upsetting, it's just...

I think it's the fact that you know that drug is there,

I think if it had never existed then I wouldn't be,

I wouldn't have this hope of being able to use it.

My name's Bonnie Fox, I was diagnosed with both primary

and secondary breast cancer when I was 37, when my little boy

We'd tried for quite a while to have him, as well,

so it was quite a long road to have him.

So, yeah, we finally thought, we'd moved house,

finally got pregnant, I spent my pregnancy quite

anxious thinking something was going to go wrong,

and then he was finally delivered safely.

And you think, "Finally, everything's going in our favour,"

and then, yeah, a few months down the line you get told

so you just kind of think, "Seriously, what else?!

What have I done to deserve all this rubbish," basically.

I'm hoping I get to see him go to school, but I don't really even

let my mind kind of wander even further, exams, university,

I've just assumed that I'm not going to be here for things

like that so I try not to think about them, I guess,

There's no way to describe it, really, it's just feeling

heartbroken, I think, that's the only way to describe it.

And you're at a point now where the drugs you're currently taking,

you know at some point they're going to become ineffective,

and that's when the next course of treatment would be Kadcyla?

We found out recently that this is probably no longer going to be

How did you feel when you first heard that news?

It makes me feel worried, it makes me feel angry and frustrated,

angry with the drugs company and with the NHS that they haven't

been able to find a way through to agree a way forward,

In my head, I've thought about how long I can last on each drug,

I've got kind of a rough, I guess, timescale laid out.

"If I have this drug and then I can have this drug

for a couple of years, then maybe this drug..."

And you kind of bank on those years, they're so precious to you,

it's so important that you can squeeze as much time as possible out

of the drugs, and to have that suddenly taken away...

I mean, everything feels really cruel as it is,

but to have that taken away from me when I'm really depending

on those extra years, it's just adding a huge amount

of anxiety onto already an incredibly anxious situation.

And I think that's the hardest thing, I can't begain to explain how

it feels when you go for scan results, it's the worst kind

of anxiety, and my life is, it's already pretty stressful,

I've got this enormous black cloud, I think, hanging over me,

that I try to push away as best I can but it's always there,

and this is just additional worry, really, additional anxiety.

Taking Kadcyla away, there isn't a next step for me in place,

so if I'm told that my drugs aren't working, then literally the next day

I'm going to need that new drug, and if that's not there for me,

I have to have a drug to stay alive, so I need to find

Do you think about having to raise the money yourself

Yeah, that's always in the back of my mind,

When you're told that you have cancer at such a young age,

Why am I this one person that's, you know, somehow been singled out

And then, yeah, to be told that a drug is taken away from you that

could extend your life is just, yeah, it's unfairness on top

It's just making you feel even more cheated then you already do, really.

Breaking news. Former football coach Barry Bennell has pleaded not guilty

in the last few minutes to eight child sex offences, appearing at

Chester Crown Court. He's 63. He's a former football coach and he's

pleaded not guilty to eight child sex offences at Chester Crown Court.

That's in the last few minutes. Barry Bennell, former football coach

pleading not it will be to eight child sex offences, appearing at

Chester Crown Court. -- pleading not guilty. Let's return to the cancer

stories. Here to talk about this this

morning is Mani Coulter - she was diagnosed with breast cancer

in 2002 and didn't expect to live to see her daughter

go to primary school - her daughter is currently

taking her GCSE. Gill Smith is in Belfast,

she was recommended the drug when she was first diagnosed

with breast cancer. She has now been told

she won't recieve it. Dr Anna Rigg is an oncologist

specialising in breast And we can get some

insight into this decision from Richard Torbett

from the Association of the British Pharmaceutical Industry

and Richard Sullivan Rirp ard has NICE made the right

decision? Unfortunately, they have. I feel sorry for patients who are

stuck in the middle of this. NICE was created to make sure we have

fair and proportional prices for our cancer drugs and for all medicines

across the NHS and many, many companies price their cancer drugs

in a way that ensures they get NICE approval. So, in a sense, it is not

rocket science if you price your drug accordingly for the impact it

is going to make on the outcomes and quality of life for patients, you

get authorisation from NICE and patients have been stuck in the

middle. The really is the price has been set is too high for ofs NHS, it

is not a fair price. Richard, why is this drug so expensive? Well, I

think the first thing to clarify is I don't think this is a final

decision yet by NICE on Kadcyla. I have got a couple of statements from

NICE and from Roche which makes it sounds there is potential for some

kind of solution, but why is it so expensive? That's true. Medicines

are often expensive for a limited period of time whilst the medicine

is protected by patents after which they become very cheap, indeed. So

it could go from ?90,000 to what? It could be substantially lower. If we

had been having this conversation in the 1990s, we were worried that

statins were going to bankrupt the NHS. Now a month's supply of a

statin costs less than a cup of coffee. What's the patent time frame

then? When does that run out? Often medicines are protected by this

period for in practise between eight and ten years on the market. That's

a long time when you have got terminal breast cancer. It is a long

time, companies put in, companies spend over $100 billion every year

researching new medicines and the, there is a need to have a certain

higher price for a limited period of time in order to make sure that that

research effort to make progress can continue. Now, that doesn't mean

that the price should be limitless and in practise there needs to be

and indeed is a very tough negotiation between pharmaceutical

companies and the NHS through NICE. The ?90,000 that we hear in this

case and in fact, many of the prices, most of the prices, that are

discussed publicly are the starting point of the negotiation. These are

list prices, not the real prices. Is it true that roach gave a discount

to NICE. What was the discount? What did it bring down to? I don't work

for Roche. It won't be shared. It is a substantial discount. We are

asking NICE and Roche to take action. We believe there are

decisions that NICE made when appraising the treatment which made

it hard tore get through that might otherwise have been. Mani, professor

of cancer Richard Sullivan said that NICE made the right des, what do you

say? I definitely don't agree with that. I was on Kadcyla five years

ago. So when they banned six month increase survival rate, I'm five

years progression free since being on that drug. I was on it for three

years. The point, when I started Kadcyla, I was desperate. There were

no options for me at all. The cancer was on my skin. It was travelling

rapidly and there was nothing else and I was lucky I enrolled on to a

clinical trial for Kadcyla, so I as on it for nearly three years, but it

didn't just buy me three years, it gave me opportunity to go on to

another drug that wasn't available when I applied for the Kadcyla.

So... Do you accept that it can extend women's life for longer than

the six months and the communications I have had today are

from women who are still here... This is an important drug. We need

new drugs in the treatment of cancer. The issue and you've run the

story today, the information is under phenomenal budgetary patients.

We have patients in our waiting rooms and on trolleys, the reality

is we need to get fair prices for the medicines, whether they are

cancer drugs or drugs for dementia into the NHS and at the moment the

price which has been put forward even with the discount was clearly

not a fair price. Ann Rigg, you work in the NHS, is Richard right? No, I

disagree with him. I think encology is a speciality which is driven by

evidence. I think there is very good evidence from the original clinical

trials that were done with this drug and in fact, it was so good that it

was approved in many countries including Britain and was funded by

the Cancer Drugs Fund. So in fact, myself and my counterparts around

the country have been using this drug since 2014. So as well as the

original trial evidence we now have at least two years of experience of

treating women with this medicine. How does it work? Why is it so good?

It is a very unusual drug. It is a combination of two drugs which have

been chemically linked together. One is a molecule which when you inject

it into the body, travels round and will try and find cells which have

got this HER2 protein and it seeks them out and most of your normal

cells don't have the protein. The manufacturers have linked a

chemotherapy drug on to the molecule so that it takes the chemotherapy to

where it is needed. It does have some side-effects, but my experience

and the experience of my counterparts is that it is very well

tolerated and perhaps you can talk about that. Let me ask Gill about

that. You were told, Gill you would be able to get Kadcyla. As it stands

at the moment, that is not going to be the case, is it? Well, let's hope

that it will be the case because let's hope that some kind of

agreement can be reached between Roche and NICE. The point that I'd

like to make is that, it is a crazy system when the drugs companies

invest a vast amount of money into developing a revolutionary new drug

which everybody agrees is phenomenally successful and gives

great quality of life for a substantial period of time and then

it is not available in this country to the people who need it. It is

available in other countries, it is not funded here. So, there is a real

failure of imagination, I think, on behalf of the policy makers to fail

to find some sort of way of funding these new drugs on which other drugs

will be developed in the future. We need people like me to be on the

drugs so that lessons can be learnt and more people in future will be

able to get even better drugs. Do you want to respond? I couldn't

agree more. All needs need to work together and indeed, we are working

together to try and make sure that there is a better and better, faster

and faster way of making good deses for the NHS. -- decisions for the

NHS. The NHS budget is tight. We have to, NICE's role is important in

holding us to account as an industry to make sure that the medicines we

bring to market are value for money. We need to make that conversation

happen as quickly as possible for Kadcyla so that patients can get

access as quickly as possible. You are an advocate, your charity is an

advocate for women with breast cancer, but you must accept, don't

you, that clearly, you know, finances, that there is not a

bottomless pit of money when it comes it the NHS? We do accept that.

We feel in this instance there are things that could have been done in

the process that would make the drug available and what's distressing for

women in this situation, the drug has been available on the NHS. Women

who thought they were going to get this treatment, they thought they

would have extra time with their families and good quality of life,

are seeing this cruelly being withdrawn from them and that's

heartbreaking for them. Let me read the statements from NICE and Roche.

We asked both for an interview and Roche said, "They're maintaining an

open dialogue with NICE and NHS England have offered improved

schemes and solutions to try to keep this medicine available to patients.

This is not the end of the line for patients. We want to get back around

the table with NICE to turn this preliminary decision around and

ensure we all do the right thing for patients and their families.

Families." Does that suggest there will be a major discount? Well, I

would hope there will be a proper conversation between Roche and

NICE... Is that what that statement sounds like. If we have to read

between the lines. There is no other way of reading that. I know you're

not speaking on behalf of a Roche. You as a man with a brain? There is

a real question about how NICE has examined the medicine. Their

analysis is based on a comparison with a medicine that is not the

standard treatment of breast cancer patients in the UK. Not available in

the NHS. So I think there is a question. There is some questions

for NICE to answer here. And questions probably for the company

as well and that discussion needs to happen in private. A brief final

word, go on. Yes, I mean, I represent a group called the UK

Breast Cancer Group and we are intending to lobby NICE and 200 of

us treat breast cancer patients. Can I just say? When you've got

incurable cancer, things happen fast. So we can't, you know, we need

decisions made very quickly. Otherwise people will die. A final

point from Gill in Belfast. What sort of system allows it to be

available funded previously by the breast cancer fund, and maybe when

the patent comes out, but for those of us caught in the middle, we don't

get it. What a ridiculous system. Thank you very much. We will see

what happens. Thank you. Barry Bennell pleaded not guilty to

eight sexual offence charges dating back to between 19.81 and 1985. Our

correspondent Andy Swiss is at Chester Crown Court where the

hearing has taken place. Andy, tell our audience the details.

Well, Barry Bennell pleaded not guilty to eight charges of sexual

assault against a boy aged under 15 years of age. These offences are

alleged to have taken place between 19.81 and 1985 at three separate

locations in Derbyshire, at Nantwich in Cheshire and also at a but lin's

holiday camp. He was charged following an investigation by

Cheshire Police which was completed in September last year. Now, Barry

Bennell didn't appear in court in person as at his previous hearing in

Crewe last month, he appeared viedia a video Lunning. He was wearing a

blue jumper and spoke only to confirm his name and not guilty

pleas. He is a youth coach. Perhaps best known for his work with Crewe

Alexander. He worked for Manchester City and Stoke City. He has been

remanded in custody until his next hearing which will take place on at

Chester Crown Court on 20th March. Thank you very much, Andy Swiss

reporting. Next - claims from Oxfam

that the world's eight richest people have as much wealth

as the 3.6 billion people who make Next - claims from Oxfam

that the world's eight richest Those richest eight billionaires

are Bill Gates, the co-founder of Microsoft who is worth $75

billion, Amancio Ortega, the founder of Inditex, which owns clothes store

Zara amongst others - Warren Buffett,

the largest shareholder in conglomerate Berkshire Hathaway,

who's worth $60.8 billion. Carlos Slim Helu, the owner

of another conglomerate called Grupo Carso, who's

worth $50 billion. A conglomerate by the way

is a number of corporations The fifth richest billionaire

is Jeff Bezos, the founder and chief executive of Amazon,

who's worth $45.2 billion. the boss of Facebook

who is worth $44.6 billion. Then Larry Ellison, the co-founder

and chief executive of Oracle, a computer technology corporation,

who is worth $43.6 billion. And finally,

the eighth-richest billionaire is Michael Bloomberg, who owns

Bloomberg LP and is Bloomberg is a financial software,

data, and media company. So, eight billionaires, all men,

six of them American, whose combined wealth is estimated

at over $427 billion. But are they really worth more

than half of the world? Anthony Reuben has been checking

this out. Dot figures add up? It is hard to measure the wealth of very,

very rich people and very poor people. Oxfam haven't done it

themselves. They have got figures from Credit Suisse and Forbes and

what they concluded this figure of eight having the same wealth as the

poorest half, is it exactly eight? We're not sure. They have had to

make assumptions along the way about whether being in debt makes you

poorer than somebody who has nothing because clearly there are some

people who are in debt and who have decent lifestyles, but it is fair to

say that there are a lot of very, very poor people and there are a

small number of people with extremely large amounts of wealth.

What's difficult to say, is whether this is getting better or worse

because the data sources that Credit Suisse use change each year and they

have more information particularly about the poorest people. There is

also an argument about whether wealth is what matters? We do have a

fairly good idea that the income of the poorest people has been getting

better, but I'm sure Oxfam will be keen to explain why wealth is

important as well. Cheers, Anthony. With us in the studio

is Katy Wright from Oxfam, and Kate Andrews from the free

market think-tank the Institute Katy Wright, what is the point then

of this? The point of this is really to show you and me how we are living

in a world of vast economic inequality, an inequality crisis

where you have got, as has been said, eight people who have the same

wealth as 3.6 billion others. The point for Oxfam actually is to say

that it's not just that there's this gross disparity of wealth but it's

the same economic system and policies that are causing this

extreme wealth that are also perpetuating poverty and we won't

overcome poverty unless we tackle inequality. So the system has to

change? Exactly. There seems to be little

referencethe fact that in 2016 alone, over 100 million people were

brought out of absolute poverty, specifically in China and India.

Those are systems that have embraced the free market and capitalism

because it's the best provider of wealth and income for everyone

across-the-board. I'm not so bothered about the ratio between the

rich and poor, I care most about the poor and how well they are faring.

Why do you laugh when she says that? Well, because I mean it's just the

classic bunk that we hear to justify this. Let's talk about how the

poorest have fared right. Since 1988, the poorest 10% of the plan

vet got richer by about $3 a year so for all the great economic stories

of growth, getting what you and I might spend on a coffee every day a

year, you know, 700 million more people could have been brought out

of poverty had we had more equal growth. To celebrate some people

having crumbs when everyone else is enjoying the whole cake... Is that a

fair point? It's the case where some people haven't seen as much growth

in wealth as they could have, usually because the Governments

prevent it. The issue of croneyism is problematic. Where we do see

people coming out of poverty, this is where they are embracing

capitalism, in China and India. We need to tackle the dictatorships,

that are keeping people living on less than $3. Oxfam's report, they

are trying to suggest that the aggregated net wealth of a person is

what is going to determine their wealth. So you are saying that a

Harvard graduated student is graduating with $100,000 a year so

he looks poorer than an Indian farmer. People show up poor even

though they may be potentially going to have quite high earnings, the

classic one is the Harvard graduate. Let's be clear, this is a tiny

number of people. The average of the 3.6 billion people live in really

poor places. But the... One second. The debt is showing up in poor

countries as well. That is not people with student loans, that is

people borrowing because the harvests are failed, going from

money lender to money lender to money lender, people selling what

they have to pay for medical costs, as we were speaking to people in

Vietnam the other way. We've got to leave it there, but thank you very

much. Donald Trump will be sworn

in as the 45th president This morning he's been setting

out some of his views. We'll hear from him and some

of his supporters in Texas. And nearly half of working fathers

would like a less stressful job so they can spend more time caring

for their children. We speak to working dads,

who have given up or are thinking about quitting high powered jobs

to achieve a better Donald Trump has promised that a

trade deal will be his priority when he takes off on Friday. He spoke to

Michael Gove for the Times in his first British interview since

becoming US President Elect. He also said he'd ask his son-in-law to

negotiate a Middle East peace agreement and would seek a deal with

Russia to reduce nuclear weapons. The former craics coach Barry

Bennell has pleaded not guilty to eight child sex offences during a

plea hearing at Chester Crown Court this morning -- Crewe Alexandra. All

the offences are alleged to have happened between 1981 and 1985 when

the alleged victim was under 15. Unconfirmed reports say five people

have been killed after a gunman opened fire at a music event in

Mexico. Eyewitnesses say the gunman fired through an open window at a

Club. It was opening a party for a festival. Join me nor BBC newsroom

live at 11, see you then. Andy Murray has got his

Australian Open campaign The world number one beat

Illya Marchenko in straight sets. He's attempting to win his first

Australian Open title Dan Evans is also through

to the second round. He beat Facundo Bagnis in straight

sets and will play Marin Cilic next. Pep Guardiola says Manchester City

are out of the title race. They lost 4-0 to Everton yesterday

to leave them ten points Liverpool go third after a 1-all

draw at Manchester United. This picture shows Michael Gove,

former Justice Secretary and Brexit campaigner,

with the next US Just behind Michael Gove,

you might be able to see a picture of a Playboy magazine cover

featuring Donald Trump on the cover. I thought the UK was so smart

in getting out and you were there and you guys wrote it and put it

on the front page. Trump said that Brexit

was going to happen. That is when it was

going to lose easily. Obama said they'd go go

to the back of the line. And the UK wanted its own identity,

but I do believe this - if they hadn't been forced to take

in all of the refugees, so many, with all the problems that it

entails I think you wouldn't Donald Trump also revealed

his and his mother's The UK, my mother was very

ceremonial. I think that's why I got this aspect because my father was

bricks and mortar and my mother sort of had a flair. She loved the Queen,

she loved anything, she was so proud of the Queen. She loved the

ceremonial and beauty, because nobody does that like the English

and she had great respect for the Queen and liked her. Any time the

Queen was on television, an event, my mother would be watching.

Trump supporters see this as a triumph for those who're

antiestablishment. Critics worry about democracy. Newsbeat's

political team Jonathan Blake and Declan Harvey travelled 2,000 miles

around Texas to speak to voters putting their trust in Donald Trump.

# I was born to lead # The land of the free...

The Americans who voted for Donald Trump

weren't just the people you saw on the news.

Supporters believed only the Donald could make America

I needed and wanted to see jobs coming back to America.

God has a big thing to do with it in my

That war will go up so fast, your head will

We are on a 2,500 mile road trip round the great state of Texas

to hear why so many have put their trust in Donald Trump.

We are in Austin this morning, and off to meet

a young lady called Hannah, who voted for Donald Trump.

It will be really interesting to hear her

reasons for voting for him, and particularly as a woman, I guess,

because we know the things he's said, his attitudes to women have

But it with just be interesting to see whether that

swayed her at all, and the reasons she gives for still supporting him.

# If Donald Trump had said all the things he said he said...

Small minority in Austin because he is a

trump voter and he does not have a lot of support here,

I was kind of laughing and crying at the same

I was like, I don't know what's happening any more because I

obviously did not expect him to win the code you were surprised?

I want to see jobs coming back to America.

It is an important issue for me, which true me to him.

Our jobs are being stolen like own from a baby.

Our jobs are being stolen like candy from a baby.

It's not going to happen any more, folks.

That is an issue, looking for more full-time

And I keep getting told after the fourth

interview, we liked you, we loved your interview, but we went with

somebody who was willing to take a $10,000 pay cut and who has been

He's been criticised for the comments he has

made about women, being able to grab a woman

and do what you want and

other things - were you worried at all about what that said about him

I listened listen to rap music, I listen to Wu-Tang Clan!

You walk by smelling like water melon...

I can't be ideological consistent and say that that bothers

So what three things are you trusting Donald Trump to do in order

to make sure that you don't regret voting for him?

Right, do three things that I am trusting Donald

Trump to do are to build the wall, as he said he would, to bring jobs

back to the US, and to increase the growth of the economy.

And then to appoint Supreme Court justices who

are going to uphold the constitution in a strict way.

Which particular bits of the constitution are you

concerned about and you would like to see upheld?