Episode 9 Rip Off Britain


Episode 9

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Transcript


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We asked you to tell us what's left you feeling ripped off,

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and you've contacted us in your thousands.

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You've told us about the companies you think get it wrong

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and the customer service that simply isn't up to scratch.

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They just want to take money from people.

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That's what it's all about.

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You've asked us to track down the scammers who stole your money

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and investigate the extra charges you say are unfair.

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What kind of people could do this to an innocent human being?

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And when you've lost out but nobody else is to blame,

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you've come to us to stop others falling into the same trap.

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You have to go through various levels of authority

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and push your way through.

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So, whether it's a blatant rip-off or a genuine mistake,

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we're here to find out why you're out of pocket

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and what you can do about it.

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Your stories, your money, this is Rip-Off Britain.

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Hello, and thank you so much for joining us for another

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Rip-Off Britain, tackling more of the stories that you've asked us

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to investigate on your behalf. And today, we're going to be

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getting to grips with some really big questions around the subject

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of customer service, because while most of us know what we expect

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from the companies we do business with,

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I'm sorry to say we don't always get it.

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Now, when there's been a problem and you're battling to get a result,

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the way that you're dealt with really can make all the difference.

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In fact, it sometimes ends up being an even bigger issue than the one

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you were originally complaining about.

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So, why is it that some companies get the whole business of

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handling complaints so badly wrong?

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And why is it that we're always having to ask that question?

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So, to try and answer it, we're going to be bringing you not just

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a real mix of examples of customer service, but also plenty of advice

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to ensure that you really do know the best way to get

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your voice heard, because while it's true that big companies may not

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always want to listen, even on some pretty major topics, there are

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particularly effective ways that you can get your message across.

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So, get ready to find out exactly what they are.

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Coming up - are Britain's new homes not being built properly?

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This woman has still got serious fault with hers

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well over a year after she moved in.

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I can't see when this is going to end.

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I really can't. I cannot see any light at the end of the tunnel.

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And we meet the woman whose dodgy mobile phone signal drove her

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to taking drastic action.

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That was when I just saw red and just went to, said to my husband,

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"I'm going to chain myself to the store

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"until they do something about this."

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Now, one of the attractions of buying a brand-new home is that you

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don't have to worry about some of the risks associated with buying

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an older property, like damp, subsidence, problems with the roof,

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you know the kind of thing. But, as the people we're about to hear from

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found out after they'd signed the contracts and moved in,

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that's by no means always the case.

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So, as demand for new homes across the country increases,

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can developers really keep up with the pace,

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or are corners being cut to meet targets and schedules,

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leaving homeowners with costly and potentially even dangerous mistakes

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to fix?

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Wendy Howell from Reading moved into her four-bedroom dream home in

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December 2015, together with her partner and teenage daughter.

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I fell in love with the design of this house.

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It was beautiful. I spent days wandering around the show home,

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waiting for my house to be completed.

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But 15 months after getting the keys to her almost £600,000 property,

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the builders are still here, because ever since Wendy moved in,

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the property has been beset with problems,

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or snags, as they're called in the business.

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And not just one or two - there were dozens.

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We weren't complaining about minor little snags,

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these were things like the back garden's flooding,

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the air bricks are below the ground level and we've got water coming out

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of the air bricks.

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And that was just outside the house.

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There was also an unfortunate problem with the acoustics.

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If you're sat in the study, you can hear someone on the toilet

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next door, and that's because there was no sound proofing there.

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In fact, there was so much for the developer to put right

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that Wendy hired an independent surveyor

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to provide her with a report,

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including an investigation into why her daughter's bedroom

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was so chilly.

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We had the surveyor, and we'd lowered the camera down.

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Areas where there should have been insolation,

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what we actually had was empty carrier bags.

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The surveyor's report found 19 different problems with the house

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which Wendy took straight to the developer, Taylor Wimpey.

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It wasn't until we actually got the surveyor's report and bashed them

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over the head with it that they admitted that,

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"OK, we'll resolve this for you."

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So, work began to do just that, but now, five months later,

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the builders are still here.

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There wasn't a single room where there wasn't either a wall

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taken down or a floor lifted up,

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and we've still got the exterior of the property to get sorted out -

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the flooding, which has been my issue from day one.

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It's horrifying to open up your garage door and find

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there's a huge puddle of water there.

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In a desperate attempt to get the developers to complete the work

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on her home, Wendy attached a protest banner to her balcony,

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spelling out her feelings.

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I can't see when this is going to end, I really can't.

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I cannot see any light at the end of the tunnel. I really can't.

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When we contacted Taylor Wimpey,

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the company apologised for the problems and disruption that Wendy's

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experienced, adding that it's "working hard to put things right,

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"and to fix any outstanding issues."

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But, according to reports from housing charity Shelter,

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over half of the people who move into brand-new houses report finding

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major faults, a figure which doesn't surprise our legal expert,

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solicitor Gary Rycroft.

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There are no official rules about snagging,

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and there's no law relating to snagging as such.

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In many ways, as a consumer,

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you have more rights if you buy a tin of beans than you do if you buy

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a house, because with a tin of beans, you can take it back,

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whereas with a house, it's very difficult to reject the goods

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and take it back afterwards, so really, the practical advice is -

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get snagging dealt with whilst the builder still has something that

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he wants from you, which is, frankly, your money.

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I would recommend that you get an independent snagging company

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to do that for you.

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Who knew such businesses existed?

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But Tim Fee, a former quantity surveyor,

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now works as a professional snagger.

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He's called in by new-build buyers who'd like his help identifying

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the faults with their home.

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You can see the gap,

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how out of level it is between the bottom and top.

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You never know what you're going to find, so in some,

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it may be the standard of decoration is abysmal.

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Others, it can be quality of workmanship on joinery,

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so doors that don't fit properly.

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Today, Tim is in the Yorkshire village of Eggborough,

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taking a look around the home of Andy Greenwood and his wife.

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They paid a quarter of a million pounds for this brand-new house

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in 2016, but now rather wish they hadn't.

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When you spend £200,000-plus on a house, even if it was

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a £100,000 house, you shouldn't have to fix a new house.

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On the long list of problems is their sloping floors.

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I'm just looking at the flooring here, and at the moment,

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it's clear that the floor is falling away, so if I put the level here,

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if I put it between, there's obviously a gap underneath.

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As I bring the level round this way, here, you can probably see,

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there's a substantial gap appearing where the floor is

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falling quite substantially towards the patio door.

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The property was built by Harron Homes,

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who Tim has had dealings with in the past,

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when his own daughter was left disappointed with a property

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the company had built. And though the company's website said Andy's

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development showcases the very best that new homes have to offer,

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in fact, independent snagging specialists have identified

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234 separate faults with his new-build home,

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from guttering to paintwork. And Andy is not impressed.

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We were drawn in by the adverts promising us the best of the best,

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and we looked at the show homes, which were the best of the best,

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so we assumed that we would be getting the standard

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that we were being offered.

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Well, Harron Homes told us it's evident that this house didn't

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meet the high standards that customers expect,

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and it apologises unreservedly for any inconvenience caused.

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It goes on to say that after being initially told about three snagging

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issues when Andy and his family first moved in,

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it has since seen a copy of the independent report and says 40%

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of the points identified are covered by the homeowner's warranty,

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and it immediately put plans in place to address them.

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It tells us the ongoing remedial work will be dealt with

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"appropriately and in a timely manner,"

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and it appreciates Andy's family's patience in this matter.

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Meanwhile, in Pontefract,

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there's another family living in a new house they're now having

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second thoughts about. Ann is a midwife and works shifts,

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and her husband Barry also works unsociable hours.

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But Ann says getting any shut-eye is made impossible by the property's

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noisy floorboards keeping them awake.

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You walk on the floor, and there's a horrific click.

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It echoes down into the kitchen, it transmits throughout the house,

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to the point that if somebody's in bed,

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nobody dare walk around the house because it wakes people up.

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Ann says they've had ongoing building work to sort out the issue

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ever since they moved in two years ago.

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So, this is the kitchen where the main of the clicking

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were first identified.

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In the ceiling, we've had two lots of screws put into the ceiling,

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so they've re-plastered the ceiling twice following that.

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They've taken the ceiling down last August.

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That were down for six weeks.

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And because of all the work, they've still not properly unpacked.

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There's no flooring in here because we're waiting for the rest of the

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works to be done for us to move back in here.

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This is the first floor that they've replaced.

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So, we are waiting at the minute for them to come and refit

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our wardrobes, re-carpet it, so we can move our bed back in here, and

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move out of the big bedroom so they can start working on the upstairs.

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The developer of Ann's house, Strata, told us it

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acknowledges that there have been some ongoing issues with repairs

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which could have been handled more swiftly.

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It's apologised unreservedly for that, and has now agreed

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and begun a programme of work.

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But I'm afraid here at Rip-Off Britain, we keep hearing of

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situations where snagging has taken months, if not years, to resolve.

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So, solicitor Gary Rycroft says the best way to minimise the chances of

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that happening is to do your research

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when choosing your new home.

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Go and look at some of the building sites.

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If they are tidy and organised, then it's more likely that your

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house will be built properly than if it's chaotic.

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If you're buying the second or third phase of a development, go and

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talk to the people who've already moved in and bought phase one.

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Go and knock on their doors and ask them,

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"What was their experience of the building?"

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Meanwhile, in Reading, Wendy hopes her banner might

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bring forward the day when she can finally consider her home snag-free.

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My dreams have been shattered.

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This was going to be my forever home.

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It's just been a nightmare.

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There are very few things in life that we genuinely

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cannot live without, and while our survival could hardly be said

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to depend on it, one item most of us would probably include on the list

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would be our mobile phone. And I bet, even as you're watching this,

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yours won't be very far away.

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But the fact that so many people own a mobile phone doesn't mean that

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we're always able to use them quite as effectively as we'd like.

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Patchy signals can leave the best of us utterly exasperated,

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so we've been finding out exactly why that is, and more importantly,

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what is being done about it.

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Now, there are many things we can be very proud of in the UK,

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but one thing we certainly don't seem to have got sorted out

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is our mobile phone signals,

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as many of you are all too aware.

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Do you think that the mobile phone companies are doing enough

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-to improve...?

-No. They're definitely not.

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Do you ever get into a situation where you've got no reception at all

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-on your mobile phone?

-Yes, I do, yes.

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-How frustrating is that?

-It's very frustrating.

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I could throttle them when they tell me that we can get a signal.

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We can't, we can't!

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You've just got to warm the bath up, Edmund.

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Diane Cartwright runs a dog grooming parlour in the coastal town

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of Porthmadog in North Wales,

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and as Diane is often out and about with her job,

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a fixed landline isn't an option for her,

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so she really relies on her mobile phone to keep her business going.

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I groom dogs. They get bathed and clipped and styled,

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and people come in and have their nails, their dog's nails, done,

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and they'll phone for advice, and I'm really quite a busy little shop.

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All done here. You're going to have a bath now, aren't you?

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But problems with her mobile phone reception means that Diane can have

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real difficulties keeping in touch with customers.

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When I'm, like, phoning them to say, "Can you come and collect your dog?"

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I can't get in touch with them, so it might be hours later,

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and I've got this dog waiting to go home and I can't get in touch

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with anybody. And if people can't get through,

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are they going to come into my shop to book again?

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And in 2016, things really reached a head.

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It got to a point where I couldn't receive any calls,

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couldn't make any calls, nothing at all.

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So, determined to get something done, Diane, an Orange customer

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at the time, went to her local branch to get some advice.

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The staff told her that if she moved over to the EE network,

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she would be more likely to get a better signal, as EE was rapidly

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improving its coverage in Wales.

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Hoping this would solve her telephone problems,

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Diane signed a new 24-month contract with EE.

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It did work for about two hours, and then after that when I got home,

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it was exactly the same. I wasn't getting incoming calls,

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couldn't make any calls going out.

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No texts, no messages, nothing at all.

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As Diane was still within the cooling off period for her

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new contract, she took herself back to the mobile phone shop

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with the intention of moving to a different company altogether.

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But she also wanted to keep her mobile phone number because it was

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the one she used for her business,

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and to do that she needed a special nine-digit code called a PAC code.

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However, there was a misunderstanding

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over how quickly she'd get it.

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That was when I just saw red.

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I said to my husband,

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"I'm going to EE and I'm going to chain myself to the store until they

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"do something about this."

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And it was the only thing I could think of to do to get noticed,

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to get them to stand up and listen to me, really.

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And I needed it sorted today.

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I couldn't let it go on for any longer.

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And the whole incident was caught on film.

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And it was after a minute or two it registered what I had done with one

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of the staff. And he came over to me and asked if he could help me.

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The police came.

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They couldn't do anything at the time because I was just sitting

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peacefully. It would have been worthwhile getting arrested for.

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Well, when we spoke to EE,

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they disagreed with various elements of Diane's story,

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making it clear that its staff had tried to help and stressing that she

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would have received the PAC code quicker than she realised.

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Even so, the company added it understands how frustrating it is

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when people can't get a signal in the places they need it,

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but pointed out that in Diane's postcode,

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EE provides some of the best coverage in the area.

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And while most people who can't get a good signal wouldn't go quite

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as far as Diane, plenty of her fellow Porthmadog residents find

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the situation equally maddening, learning through bitter experiences

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the places where they can make a call.

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I can only use it out the front or in my front room.

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I used to be able to get a signal in the house, not much,

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just one or two bars in the house.

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"Oh, we've increased the coverage nationwide."

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-I can't get a darn thing!

-Right.

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I can get a signal, but it's upstairs in the bathroom.

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-In the toilet?

-Yeah.

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It's ludicrous! And we're in an area of the country that neither

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the government nor the companies feel is economic for them to give us

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-a better service.

-You know what you all have to do?

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You all have to go down to your phone shops and chain yourself up

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and make a stand.

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Not so sure about that one.

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But anyway, a recent government report concluded that here

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in the UK, when we get a new mobile phone contract,

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we're all very focused on getting the right price,

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the right tariff or handset, but may not even think to check whether

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the coverage we're likely to get is going to be good enough.

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So perhaps it's no surprise that more than six out of ten people

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report a patchy signal indoors and experts estimate that 10% of the UK

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still doesn't have any voice coverage at all.

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To overcome patchy signals in much of the rest of Europe,

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mobile phone companies let you roam between or share networks,

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so that if you lose a signal in one town, another network will kick in,

0:18:410:18:45

so that you can still make and receive calls.

0:18:450:18:48

However, the UK phone providers don't currently do this.

0:18:480:18:51

In fact, the main companies in the UK have openly opposed

0:18:540:18:57

working together to allow network sharing,

0:18:570:19:00

putting the cost of doing so at anything from £64-£128 million.

0:19:000:19:05

Now, our technology expert, David McLellan, says all of this,

0:19:070:19:10

coupled with the fact that the masts that we rely on to send and receive

0:19:100:19:13

mobile phone signals, are in short supply and expensive to install,

0:19:130:19:18

means that UK customers are left with very hit and miss coverage.

0:19:180:19:22

Cell towers are one of the keys to getting better mobile coverage

0:19:230:19:27

all around, but there are obstacles between your phone and the

0:19:270:19:31

cell tower that provides the mobile coverage that can make it

0:19:310:19:36

more difficult for you to get a good service on your phone.

0:19:360:19:39

But not everyone wants a cell tower in their back garden and there are

0:19:390:19:44

a number of cases where mobile phone providers have tried to erect

0:19:440:19:48

a cell tower and local groups have said, "We don't want that here".

0:19:480:19:52

But there are things you can do to boost your chances of getting

0:19:530:19:56

the best coverage on your phone.

0:19:560:19:57

The communications regulator, Ofcom, released an app.

0:19:580:20:01

It gives you a map and you can check for a particular postcode.

0:20:010:20:06

It can even work out where you are.

0:20:060:20:08

And it will tell you for every major mobile phone provider,

0:20:080:20:11

whether you get good coverage in that location.

0:20:110:20:14

But some of the people we've spoken to, including Diane,

0:20:160:20:19

say that this map doesn't always reflect the true signal, and that

0:20:190:20:23

when the app is showing good coverage in their area,

0:20:230:20:25

the reality may be very different.

0:20:250:20:27

When we put that to Ofcom,

0:20:290:20:30

they told us that its maps are based on coverage predictions

0:20:300:20:34

from the mobile operators,

0:20:340:20:36

and made with computer programmes that simulate the way signals travel

0:20:360:20:40

from mobile masts and are blocked by obstructions such as

0:20:400:20:43

hills, trees and buildings.

0:20:430:20:46

The regulator added that its own measurements have shown this

0:20:460:20:49

methodology is usually accurate, but can sometimes be wrong,

0:20:490:20:53

which is because signal loss can vary significantly,

0:20:530:20:57

depending on factors such as the device you're using,

0:20:570:21:00

the materials used to construct whatever building you're in,

0:21:000:21:03

or congestion on the network.

0:21:030:21:04

It went on to say that it's continuing to conduct extensive

0:21:050:21:09

field testing, to confirm its maps accurately reflect the usage of

0:21:090:21:13

mobile devices in different locations and is collecting

0:21:130:21:16

crowdsourced data, using a mobile research app,

0:21:160:21:20

to help improve the accuracy of the information it provides.

0:21:200:21:23

But it may also be worth checking out some of the other apps

0:21:240:21:27

out there, designed to do the same thing, like this one by OpenSignal.

0:21:270:21:32

It's a company that maps phone and data signals using the experiences

0:21:320:21:36

and data provided by users.

0:21:360:21:38

Indeed, when we checked out Diane's postcode on THIS map,

0:21:380:21:42

it paints a very different picture of what mobile phone signal

0:21:420:21:45

she can expect, suggesting only limited coverage is available.

0:21:450:21:49

And if you're already tied into a phone network that just doesn't have

0:21:510:21:54

a good signal where you live, David says you should usually be able to

0:21:540:21:58

try one of the apps that lets you make calls through Wi-Fi instead.

0:21:580:22:02

So let's see you are living in a home where you don't get

0:22:020:22:05

great coverage from your service providers.

0:22:050:22:07

Many of them will let you download an app onto your phone and enable

0:22:070:22:11

Wi-Fi calling. That essentially uses your broadband connection to help

0:22:110:22:15

you receive phone calls, make phone calls and text messages,

0:22:150:22:18

as if you had really good coverage in your home.

0:22:180:22:21

Well, if all else fails and you remain unhappy with the coverage

0:22:230:22:26

provided by your mobile phone company but don't fancy going as far

0:22:260:22:30

as chaining yourself to the shop, you can make a complaint

0:22:300:22:34

under the Consumer Rights Act of 2015,

0:22:340:22:36

suggesting that as they haven't been able to provide the service you paid

0:22:360:22:40

for, you would like to terminate your contract without being liable

0:22:400:22:44

for any cancellation fee.

0:22:440:22:46

But David says in the first instance, you should always clarify

0:22:470:22:50

your provider's policy before you sign the contract.

0:22:500:22:54

At the point of purchase, be very, very clear with the shop,

0:22:540:22:58

if you're buying it in store, about what happens if when you

0:22:580:23:01

get your phone home you find you don't have any service.

0:23:010:23:04

Do you have the right to go back into the shop and cancel the

0:23:040:23:07

contract there and then saying,

0:23:070:23:09

"I've had the phone for two or three days," or a week, or however long,

0:23:090:23:12

"It's not working. I don't get coverage.

0:23:120:23:14

"I'm not going to continue with this contract." Be very clear

0:23:140:23:17

what the returns policy is in the case of poor coverage.

0:23:170:23:21

Meanwhile, back in Porthmadog,

0:23:210:23:23

Diane is now with a different phone network, and at long last,

0:23:230:23:27

she can get a reliable signal.

0:23:270:23:29

That's quite a good network for me now.

0:23:290:23:31

It's all right for what I need now at home and at work.

0:23:310:23:34

Scout, give me five!

0:23:350:23:37

Good boy!

0:23:370:23:39

Still to come on Rip-Off Britain -

0:23:450:23:46

how a simple trip to the shops can prove deeply traumatic for

0:23:460:23:50

anyone living with dementia.

0:23:500:23:52

There are so many places that people have been unkind,

0:23:520:23:56

and that's very difficult to come to terms with.

0:23:560:23:59

We're in Manchester at one of the biggest shopping centres in the UK

0:24:060:24:10

for our annual Rip-Off Britain pop-up shop.

0:24:100:24:13

It's our opportunity to meet you face-to-face and for our lovely team

0:24:130:24:17

of experts to help sort out all the consumer problems that have left you

0:24:170:24:21

feeling completely ripped off.

0:24:210:24:23

Well, I think we're all raring to go, aren't we, girls?

0:24:230:24:25

So, let's declare this pop-up shop open!

0:24:250:24:28

We've already heard on today's programme how stressful buying

0:24:380:24:41

a home can be, but for Russ George, who's come to see Gary Rycroft,

0:24:410:24:45

his Manchester apartment has become a living nightmare.

0:24:450:24:48

Russ, you have a catalogue of woes with your apartment.

0:24:480:24:52

Briefly, tell me what the problem is.

0:24:520:24:54

Briefly, I bought a penthouse apartment in 2012.

0:24:540:24:58

In 2013, having had leaks for 18 months, I found water has poured

0:24:580:25:03

into my apartment whilst I was away on holiday.

0:25:030:25:06

When we look at the root cause,

0:25:060:25:07

it comes from the original construction of the building.

0:25:070:25:10

So, the windows had an inch to a half a foot gap around them.

0:25:100:25:15

There are bits of the floor where construction workers have cut

0:25:150:25:19

through to take pipes up and then realised they don't need to.

0:25:190:25:22

We've got air gaps between the interior and exterior.

0:25:220:25:27

-You've got cracks?

-We've got cracks.

0:25:270:25:29

We've got a concrete top roof with concealed drains,

0:25:290:25:34

with no drain maintenance plan with the management company.

0:25:340:25:37

What sort of damage has this done?

0:25:370:25:39

Massive floods. It's totally destroyed the apartment.

0:25:390:25:41

It's left me effectively homeless.

0:25:410:25:43

You're not living in it?

0:25:430:25:45

I'm camping in it at the minute, because I have nowhere else to live.

0:25:450:25:49

With his insurers and the freeholder arguing about who was liable to

0:25:500:25:53

repair the damage, Russ just didn't know where to turn to next.

0:25:530:25:57

It's a very complicated legal situation, isn't it, Russ?

0:25:580:26:01

Because there's lots of different things going on here.

0:26:010:26:05

There's the initial purchase transaction.

0:26:050:26:08

-Yeah.

-And there are at least two issues there.

0:26:080:26:11

-One is your survey.

-Yeah.

0:26:110:26:14

And did that reveal anything, do you have a claim against your surveyor?

0:26:140:26:18

And in terms of the vendor, Russ,

0:26:180:26:21

when you sell any kind of property, you have to provide information

0:26:210:26:25

to the buyer and you have to make honest disclosure.

0:26:250:26:28

So if there had been floods in the past,

0:26:280:26:31

and if that wasn't disclosed to you,

0:26:310:26:33

then you could argue that was a misrepresentation.

0:26:330:26:36

Now that's three possible paths for Russ to explore,

0:26:360:26:39

but there may yet be another.

0:26:390:26:41

Presumably, there are other people in the building.

0:26:410:26:43

Are they having the same problems?

0:26:430:26:44

I know there are other neighbours who have been flooded.

0:26:440:26:47

Angela is going down the right route here.

0:26:470:26:49

So, if you had some kind of class action, if you all got together,

0:26:490:26:53

it will spread the risk of the litigation

0:26:530:26:55

in terms of strength in numbers.

0:26:550:26:58

You need to say to all the owners, "Unless we get this sorted,

0:26:580:27:02

"we're going to have flats here that we can't sell,

0:27:020:27:05

"that are going down in value, so come and join me and my crusade."

0:27:050:27:08

Well, it's already got to a point of no return.

0:27:080:27:12

I've got to get resolution.

0:27:120:27:15

Well, since coming to our pop-up shop, Russ has taken Gary's advice,

0:27:150:27:19

and along with fellow residents, they're looking into starting

0:27:190:27:22

a class action against the property developers.

0:27:220:27:25

Meanwhile, plenty of shoppers joined the queue for our Gripe Corner,

0:27:270:27:30

where you told us in no uncertain terms what really gets your goat.

0:27:300:27:34

We're the same age, we've got the exact same car, we're with the same

0:27:340:27:37

insurance company, and I pay twice as much as she does.

0:27:370:27:40

What really gets on my nerves is when you get the leaflets through

0:27:400:27:44

the door, half-price special offers, etc, etc, for new customers only.

0:27:440:27:49

And they don't give it to me when I've been with them 20 years.

0:27:490:27:52

I think we all know what a difference good customer service

0:27:560:27:59

makes, and by "good," I mean staff that are prepared to go

0:27:590:28:02

that extra mile to make things just a little bit easier for you,

0:28:020:28:05

and, of course, those who don't just see you as another sale.

0:28:050:28:09

Well, I'm sure I'm not the only one who would say that when you do get

0:28:090:28:11

that kind of treatment in a shop, it makes you want to go back

0:28:110:28:15

again and again. And that level of care and attention becomes

0:28:150:28:19

even more important when you're dealing with someone

0:28:190:28:22

who has dementia.

0:28:220:28:23

Over 800,000 people in the UK live with some form of the disease.

0:28:230:28:27

Now, that's an awful lot of customers who may need just that

0:28:270:28:30

little extra bit of help, but how likely are they to get it?

0:28:300:28:33

Well, I accompanied one woman who has been diagnosed with the disease

0:28:330:28:37

to find out and to ask whether customer service really is as good

0:28:370:28:41

as it could be for those who have the same condition.

0:28:410:28:44

Come. Come, come.

0:28:450:28:47

Joy and Tony Watson from Eccles in Salford have been married for

0:28:470:28:51

41 years, but it's during the last six years that their marriage vow

0:28:510:28:55

of "in sickness and in health" has really been put to the test.

0:28:550:28:59

I was diagnosed with early onset dementia when I was about 55,

0:28:590:29:04

but I did have symptoms way before then, when I was about 49.

0:29:040:29:09

It's a disease that hasn't left Joy housebound or confined to a chair,

0:29:110:29:16

but it does mean that she suffers from confusion,

0:29:160:29:19

anxiety, and panic in new or unfamiliar situations.

0:29:190:29:23

So simply going to the shops can be very challenging.

0:29:230:29:27

Stay.

0:29:270:29:29

'I have had some really horrible experiences.'

0:29:290:29:32

Some that I just haven't known how to cope with.

0:29:320:29:37

They've got me to the point of

0:29:390:29:42

just falling apart and being in tears.

0:29:420:29:45

Sometimes at the bank if I can't remember my PIN number

0:29:450:29:50

or at that supermarket, or at the petrol station, railway stations,

0:29:500:29:55

there's so many places that people have been unkind.

0:29:550:29:58

And that's very difficult to come to terms with.

0:29:580:30:02

Joy has Alzheimer's, a form of dementia which means that she

0:30:040:30:08

can get very confused and stressed

0:30:080:30:10

because her brain simply cannot process what is going on around her.

0:30:100:30:14

And though she does where a badge to make it clear that she is living

0:30:140:30:17

with Alzheimer's, she's found that unfortunately the staff in shops,

0:30:170:30:21

cafes, and other places that she visits may not spot it or even

0:30:210:30:25

realise that it means that she might sometimes need

0:30:250:30:28

a bit of extra assistance. And, of course,

0:30:280:30:30

it may be that there aren't any staff immediately on hand to help,

0:30:300:30:34

as was the case on a recent journey with one of the UK's biggest

0:30:340:30:38

rail companies, Virgin.

0:30:380:30:40

Having settled down into the journey, I was dozing a bit.

0:30:400:30:48

And to my surprise,

0:30:480:30:50

four gentlemen got on and they were very rowdy and very loud.

0:30:500:30:56

They were swearing and being very vulgar, so I felt very intimidated.

0:30:560:31:03

Now, whilst many of us may have just moved to another carriage,

0:31:030:31:07

Joy's illness meant that she became rooted with fear to her spot,

0:31:070:31:11

unable to attract the attention of train staff.

0:31:110:31:13

So, instead, she texted her husband, Tony.

0:31:130:31:16

When I initially got the text, the very first text,

0:31:180:31:21

to say that Joy was in trouble and she was frightened,

0:31:210:31:24

I felt really worried for her.

0:31:240:31:27

Tony then spent two hours trying to get through to someone who might be

0:31:270:31:31

able to assist Joy but was eventually told that there was

0:31:310:31:33

no way of speaking to someone on board the train,

0:31:330:31:36

due to the poor phone signal.

0:31:360:31:38

I find it difficult to explain how I felt when they said they couldn't

0:31:380:31:43

contact the train manager because of a poor signal.

0:31:430:31:46

I know that I could text Joy.

0:31:460:31:48

We were texting several times during that journey,

0:31:490:31:51

so I know that the phone signal was working.

0:31:510:31:55

So, why couldn't someone just pick up a phone and say to the manager,

0:31:550:31:58

"There is a problem in Coach A, the quiet coach.

0:31:580:32:00

"Can you please go down and help?"

0:32:000:32:03

By the time Joy arrived in Manchester,

0:32:030:32:05

she was deeply distressed.

0:32:050:32:07

When I got off of the train,

0:32:070:32:09

I was still in a state of panic and I just fell into Tony's arms and

0:32:090:32:14

just burst into tears.

0:32:140:32:17

I was just so relieved to be off that train.

0:32:170:32:19

But sadly for Joy, such difficulties are not uncommon.

0:32:210:32:24

She's determined to keep her independence,

0:32:240:32:27

but in order to do that,

0:32:270:32:28

passionately believes that companies such as Virgin should be doing more

0:32:280:32:32

to look out for customers with dementia.

0:32:320:32:35

When we put that to Virgin Trains,

0:32:350:32:37

it said it was sorry to hear of Joy's experience and while stressing

0:32:370:32:40

instances of anti-social behaviour are rare, it outlined a variety

0:32:400:32:44

of ways of dealing with such situations if the train manager

0:32:440:32:47

isn't immediately on hand,

0:32:470:32:49

including getting in touch with the company through social media,

0:32:490:32:52

or contacting the British Transport Police,

0:32:520:32:55

which you can do by texting 61016.

0:32:550:32:59

Virgin also told us that customers with dementia can use its

0:33:000:33:03

JourneyCare service to request any additional assistance,

0:33:030:33:07

whether that be help collecting tickets, boarding and disembarking,

0:33:070:33:11

or someone to speak to on board.

0:33:110:33:14

But though Joy welcomes initiatives like this,

0:33:140:33:16

she feels that in general, the help that she and others

0:33:160:33:19

with dementia may need, is still too often hard to find.

0:33:190:33:23

And that is something that I find especially disturbing,

0:33:230:33:26

because not only have I had personal experience of coping with dementia

0:33:260:33:30

with my late mother when she was diagnosed with it,

0:33:300:33:33

but I'm also the co-chair of a Prime Ministerial Committee that was

0:33:330:33:37

specifically set up to make communities up and down the country

0:33:370:33:41

more dementia friendly. And it's through that role that Joy and I

0:33:410:33:45

have met before when she won an award for the work that she's done

0:33:450:33:48

improving dementia awareness in her home town of Eccles.

0:33:480:33:52

As part of that, she keeps a close check on the sort of services she

0:33:520:33:55

gets while shopping or out and about and she's keen to give me a sense

0:33:550:33:59

of the difficulties that even now she can regularly come across.

0:33:590:34:04

So what sort of problems have you had,

0:34:040:34:06

particularly when you're shopping?

0:34:060:34:08

I get very frustrated if I can't pack my bags or if the person

0:34:080:34:14

doesn't offer to help me pack my bags, and then it just escalates.

0:34:140:34:19

I get uptight and then I drop my money.

0:34:190:34:23

And it just goes a slippery slope from there on in.

0:34:230:34:27

To demonstrate exactly what she means,

0:34:280:34:31

Joy wants to show me what can happen when she tries to do things that,

0:34:310:34:34

in the past, would not have caused her any problems.

0:34:340:34:37

First, she's going shopping in a neighbouring town, where things

0:34:370:34:40

aren't so familiar, and I'm giving her a list of what to get.

0:34:400:34:43

I want you to buy a loaf of bread.

0:34:440:34:46

-OK.

-Some milk.

0:34:460:34:49

-OK.

-Some eggs.

0:34:490:34:51

And some butter. So bread and butter, egg and milk.

0:34:510:34:55

-OK.

-Yeah? You're shaking a bit now.

0:34:550:34:57

-A bit nervous?

-A bit, yeah.

0:34:570:34:58

-Yeah, it's a new place.

-All right.

-Go for it.

-OK, off you go.

0:34:580:35:02

-OK.

-We'll see you when you come out. All right?

0:35:020:35:05

'As Joy heads off to the supermarket,

0:35:050:35:07

'it's the start of an anxious wait for husband Tony,

0:35:070:35:10

'who's also his wife's carer.

0:35:100:35:12

'He knows how quickly she can become distressed.'

0:35:120:35:15

I think she'll be OK.

0:35:150:35:17

It very much depends on the staff at the checkout.

0:35:170:35:20

Some supermarkets, they work on speed and they just chuck the stuff

0:35:200:35:24

down faster than Joy can cope with.

0:35:240:35:26

Here she comes. '15 minutes later, and Joy is back.'

0:35:270:35:31

Well, you've got a smile on your face, anyway!

0:35:310:35:34

If I am completely honest, it was a bit of a nightmare.

0:35:350:35:38

-Was it? Why?

-Well, there were lots of things...

0:35:380:35:42

I think the biggest thing was obstacles.

0:35:420:35:45

What's one of them things with...?

0:35:450:35:47

Forklift. That it was poking out.

0:35:470:35:49

-Yeah.

-And then there was a jolly...

0:35:490:35:53

cage blocking most of one of the aisles.

0:35:530:35:55

-So I just sort of didn't know quite how to negotiate that.

-Yeah.

0:35:550:35:59

'The obstacles that Joy had to navigate clearly unsettled her

0:36:000:36:04

'and that made concentrating on her shopping list even trickier.

0:36:040:36:07

'She only managed to buy two of the four items on her list.'

0:36:070:36:11

And how did you get on at the checkout?

0:36:120:36:14

Did they notice your badge?

0:36:140:36:15

Yes. And she took a lot longer.

0:36:150:36:18

She did put the receipt, which really confuses me.

0:36:200:36:23

She put the receipt and then the money on top of the receipt.

0:36:230:36:26

And then I sort of think, "Ah, I don't know how to..."

0:36:260:36:28

-But...

-You're all right?

-Yeah. I managed.

0:36:300:36:32

And the good thing, the positive thing,

0:36:320:36:35

the mat going into the store isn't black.

0:36:350:36:39

How good is that?

0:36:390:36:40

What difference does that make, then?

0:36:400:36:42

If I negotiate a store with a black mat, to me,

0:36:420:36:46

it looks like a black hole.

0:36:460:36:48

Now, who would have imagined that the mat by a shop's front door

0:36:490:36:53

could cause someone with dementia of this kind of problem?

0:36:530:36:56

Which, of course, is exactly why Joy is so keen for others to understand

0:36:560:37:00

the kinds of issues that can arise.

0:37:000:37:03

And she's not finished yet.

0:37:030:37:05

Next, she wants to try something a little more complicated,

0:37:050:37:08

so I'm sending her to a different shop

0:37:080:37:10

to exchange an item of clothing.

0:37:100:37:12

How do you feel? Are you comfortable to take it back and ask them

0:37:120:37:15

-to change it?

-Yeah, I think I will.

0:37:150:37:16

All right. Have you got the receipt, Tony?

0:37:160:37:18

-I have the receipt.

-Right. 'Joy's symptoms are so subtle,

0:37:180:37:22

'they can go unnoticed or be misunderstood and are often

0:37:220:37:25

'a question of confidence and fear of the unknown,

0:37:250:37:28

'rather than a complete loss of memory.'

0:37:280:37:30

She seems quite nervous about asking people for help and directions,

0:37:300:37:34

-doesn't she?

-She's always afraid of rejection.

0:37:340:37:36

Always afraid that someone is going to say, "No,"

0:37:360:37:39

or give her strange looks.

0:37:390:37:40

Because you look at Joy and you can't see that she has Alzheimer's.

0:37:400:37:45

No, it's one of those invisible...

0:37:450:37:47

That's it, yeah.

0:37:470:37:49

So people will often say to her, "You're OK. You're healthy.

0:37:490:37:54

"Why do you need my help?"

0:37:540:37:56

And that does make her nervous.

0:37:560:37:57

'But it's not long before a very relieved Joy emerges

0:37:570:38:00

'from the clothes shop.'

0:38:000:38:02

I managed to change it, yeah.

0:38:020:38:05

I felt a bit rushed.

0:38:050:38:06

Really? But were they helpful and understanding?

0:38:060:38:09

Yeah, they were helpful. They just rushed me a bit.

0:38:090:38:11

Sort of, "Oh, well, go and find another one."

0:38:110:38:15

And I said, "Well, I don't know where to find another one."

0:38:150:38:18

But I think that was up until the point she'd read my badge.

0:38:180:38:23

And then when she read my badge, the whole demeanour changed.

0:38:230:38:27

She said, "Would you like me to come and find it with you?"

0:38:270:38:32

But it proves what a difference it makes when people understand,

0:38:320:38:35

-doesn't it?

-It certainly does, yeah.

0:38:350:38:37

And that is a message that this cafe in Eccles has definitely taken

0:38:390:38:43

on board. After Joy passed on her concerns, it made some changes,

0:38:430:38:47

and now proudly displays a sign saying it's dementia friendly.

0:38:470:38:51

So, I asked the owner what that actually means.

0:38:510:38:53

What have you done particularly to make your cafe dementia friendly,

0:38:540:38:58

-Gordon?

-We've tried to make the signs easy to read.

0:38:580:39:00

We've got a menu on each table now, and just trying to make it so it's

0:39:000:39:04

really simple for people to see what we do sell.

0:39:040:39:08

Clearer signs,

0:39:080:39:09

easy to read menus, and wide spaces have all helped create a feeling

0:39:090:39:13

of calm. Too much noise or din can lead to anxiety and confusion.

0:39:130:39:19

Well, Gordon's clearly made an effort to make this place

0:39:190:39:23

dementia friendly. Do you find that it is?

0:39:230:39:26

Yes. Yeah.

0:39:260:39:28

And I bring a lot of my friends here,

0:39:280:39:31

who are living with dementia, and they just love it.

0:39:310:39:34

Joy has campaigned tirelessly for many of her local businesses to

0:39:360:39:40

-become dementia friendly...

-Just going to bring this across, Joy.

0:39:400:39:44

..and a mobile phone app has been developed for the wider area

0:39:440:39:47

of Salford to take that further.

0:39:470:39:48

Tony, what's that app you've got there?

0:39:490:39:51

It's called the Salford Way.

0:39:510:39:53

If someone, say someone living with dementia or their carers or family

0:39:530:39:56

members wants to find somewhere that is dementia friendly,

0:39:560:39:59

this app can show them, whether it's a restaurant, a supermarket,

0:39:590:40:04

a garage business or anything of that nature.

0:40:040:40:06

So you can be guaranteed of getting decent service as someone with

0:40:060:40:09

-dementia and a carer once you get there?

-That's right, yes.

0:40:090:40:12

What's more, if someone living with dementia is out and about and simply

0:40:140:40:17

forgets which cafe or shop they want to go to, the app can help

0:40:170:40:21

remind them, as well as point them in the direction of new places where

0:40:210:40:24

they can be sure they'll get the sort of service

0:40:240:40:27

that will make them feel welcome.

0:40:270:40:28

And not only that, the more dementia friendly a bank, a hairdresser's,

0:40:300:40:35

a cafe, a theatre, a shop, whatever is,

0:40:350:40:38

the more likely it is that those customers, be they someone

0:40:380:40:41

with dementia and their carers, are likely to come back.

0:40:410:40:45

Think about it - that means you're talking potentially about, what,

0:40:450:40:48

million and a half customers?

0:40:480:40:50

So it has to be good business sense to adjust your customer

0:40:500:40:54

relations and support so that you are there

0:40:540:40:57

for people who have dementia.

0:40:570:40:58

Some very big names are making an effort in this area.

0:41:010:41:04

For example, a Sainsbury's store in Gosforth in the north-east has

0:41:040:41:08

introduced slow shopping hours every Tuesday afternoon,

0:41:080:41:12

and the East of England Co-op has embarked on a training programme

0:41:120:41:15

so that all of its staff are dementia friends.

0:41:150:41:18

But Joy thinks there is much more to be done to help people living with

0:41:180:41:21

the condition, not just through simple changes like these,

0:41:210:41:25

but also to protect and avoid them being ripped off in other ways.

0:41:250:41:29

I want to continue to be able to visit my bank, visit the hair salon,

0:41:290:41:36

just do the things that I've always enjoyed doing,

0:41:360:41:39

I want to continue to do that.

0:41:390:41:41

That helps me to stay as independent as I can, for as long as I can.

0:41:410:41:46

If you've got a story that you'd like us to investigate,

0:41:560:41:58

then do get in touch with us via our Facebook page,

0:41:580:42:01

BBC Rip Off Britain, or our website, bbc.co.uk/ripoffbritain,

0:42:010:42:08

or you can always e-mail us...

0:42:080:42:09

But you'd prefer to send us a letter, then our address is...

0:42:120:42:17

Well, I don't know about you, but I was fascinated to hear why it is

0:42:280:42:31

that so often I simply can't get a phone signal.

0:42:310:42:35

I have to say, it is so frustrating, and I really do think that

0:42:350:42:38

mobile companies could do a lot, lot better. But then, I suppose,

0:42:380:42:42

the same could be said for customer service in general.

0:42:420:42:45

Yes. I personally love that recorded voice that tells me my call is

0:42:450:42:49

so important to them(!) I find it really reassures me, don't you(?)

0:42:490:42:53

But wasn't it inspiring to see the way Joy, despite her Alzheimer's,

0:42:530:42:57

is doing more than her bit to improve things?

0:42:570:43:00

Clearly she was finding some of the situations she went into

0:43:000:43:03

incredibly difficult, but she was determined to prove the point

0:43:030:43:06

-in order to help other people.

-Yes, she really is a remarkable woman.

0:43:060:43:10

And I think we should never forget that what's good customer service

0:43:100:43:13

for people with Alzheimer's and dementia is pretty good for the

0:43:130:43:16

rest of us, too. So if you know of someone who, for whatever reason,

0:43:160:43:20

is something of a consumer champion,

0:43:200:43:22

then please do let us know who they are.

0:43:220:43:24

We have got plenty more programmes coming up over the next few months,

0:43:240:43:28

so we'd love to see if we can include them in those programmes.

0:43:280:43:32

But in the meantime, thanks for all the stories and suggestions you've

0:43:320:43:35

already sent us, and we will be back to follow up even more of them

0:43:350:43:38

very soon. But until then, from all of us, bye-bye.

0:43:380:43:41

-Bye-bye.

-Goodbye.

0:43:410:43:43

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