Nowhere to Go Protecting Our Parents


Nowhere to Go

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Evelyn has advanced dementia.

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What are you looking for, Evelyn?

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Money.

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No, because you've got it in your pocket.

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She's been in hospital for over two months

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waiting for a place in a care home.

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Evelyn, Evelyn?

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Until one is found, she has nowhere else to go.

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In the next 20 years,

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the number of pensioners in Britain will grow by half.

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I have to be honest with you. You can't go home.

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I have to be honest with you, as well, I'm not stopping here.

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For many, care at home won't be an option.

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The stress and the pressure on you, are you going to be able to cope,

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just you and John?

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With places in care homes already in short supply...

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You're not the only one who they're finding homes for.

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There's nothing else, nothing else we can do for ya, nothing.

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How will we continue to protect our parents?

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Heartlands Hospital in Birmingham admits 100,000 patients each year.

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Half are over 65.

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That's it, come and sit on the bed, come and talk me.

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78-year old John Pritchard came to Heartlands a week ago

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following a fall at home.

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Stop stressing now.

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John's got dementia, getting towards the late stages,

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and at this time, the wife is wondering

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whether she'll be able to cope with him back at home.

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Come on, what you getting all stressed about?

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Time for...

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I'll make sure you goes out searching and searching.

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-You'll never find me again.

-Hey, come on.

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Come on, Johnny. Come on.

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The problem is, at home, his wife is his main carer.

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She's got her own health issues and has been struggling to care for him.

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Come on. You'll be going home soon, stop stressing.

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-Where is everybody then?

-We're here.

-Where's the man?

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Where's all that?

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And they come down with a line. I want to go home.

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Course you do. Well, you're going home soon.

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Come on.

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But, somehow, they've been managing

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with only three calls a week from carers.

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Come and sit down and talk to me.

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And the daughter doesn't live anywhere near.

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I don't know really how they've been coping

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and I don't see how it's really safe for them both

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to be under that kind of stress and pressure.

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John's wife, Jean, and their daughter, Sue,

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are here to discuss the next steps in his care.

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I'm Kerry, social worker in the hospital.

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So my job role is to support yourselves and John

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through the discharge process and where he goes

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and to make sure everything's going OK before I transfer his file.

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Erm, I mean, I can go through the options, what there is, the options.

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I mean, they are limited.

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We've got the option, initially, of a care package at home.

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What we can do is put in up to four calls a day in.

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Watching somebody all day, 24 hours a day, whatever,

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is not that hard to do if you're in the same house.

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It's your husband so...

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But the hardest part for me is the incontinence bit.

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It's all right if you go for a wee because you can change

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your drawers, no problem.

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You do it out the other and the thing is you have to get 'em

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to stand still while you try and change them.

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And trying to keep him still, because I've had this experience,

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he wants to walk away as soon as you take them off and you can't

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wipe him properly because you're following him round the room

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and I don't think I can cope with that on a permanent basis.

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Then again when they come and change them,

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if he has done one, I presume they would shower him?

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Well, they don't tend to do showers on each...

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If they come and he's been incontinent.

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You know, for dignity, I can understand that you'd want him

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changed when he's been incontinent

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and not wait for maybe two hours for the carers to come to change him.

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Some people do have to wait, you know, don't get me wrong,

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people that haven't got family and that,

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if they're incontinent they might have to wait up to four

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hours for someone to change them. I know it's not very dignified.

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No.

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Erm, the only other options would be extra-care sheltered.

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That would be the same.

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We'd be looking at how many calls can be put in.

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There's night-sitting service.

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I appreciate you want to stay together

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and it's a difficult decision to make, you know, at this time.

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Erm, but the stress and the pressure on you in between the carers

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coming in, is going to remain the same.

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The only other options would be the longer-term care home.

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I mean, if you want to go away and think about it

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and make a decision as a family, that's fine,

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I'm not pressuring you to make a decision at this time.

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But I think, at the end of the day...

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..you feel guilty, obviously, and...

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..you don't know whether it's a good thing or a bad thing to hold on

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in the hopes that you'll be better at it than you were.

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At the end of the day, everyone's telling me, "Let go,"

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and whatever. "He'll be quite all right," and this and this and this.

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And he probably will be, you know?

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I don't know, I don't know where...

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So, do you want to go home, think about it

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and get in touch with her again?

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-Yeah.

-OK.

-Yeah.

-OK.

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-No, no, no, no, no.

-Yes, yes, yes, yes, yes, yes.

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Get off of me. Sit where you should be.

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That didn't hurt at all, did it?

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What will you do?

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I think the best situation is for Jean to move up to Northfield

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kind of way.

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The daughter lives there.

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For John to be placed up there so they'd all be close together.

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But in order to do that Jean would have to sell her house,

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John is unable to sign to say he agrees to sell it

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and therefore we have to go to solicitors and Court Of Protection.

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It does put people off. It's a lot easier just to say,

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"I'll just have him home, we haven't got to worry

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"about care contributions, the property wouldn't be took

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"into account, wouldn't have to move."

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Jean will probably say that she'll have him home because

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it's more complicated for her to move and him to go into a care home.

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John's advanced dementia means he no longer has the mental

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capacity to make decisions about his care.

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His family and professionals must agree what's best for him.

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But for older adults who fully understand their care needs,

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decisions are ultimately their own.

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Community social worker Zafir

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is on his way to see 85-year-old Gladys Lee.

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She was taken to Heartlands after a fall at home,

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before being moved to an emergency bed in a care home.

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Just over a week ago, Mrs Lee was at home, erm, you know,

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independent and all of a sudden being placed into, you know,

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a care home, sort of, environment,

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having an element of, you know, independency taken away.

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Since her husband died four years ago,

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Gladys' sister and brother-in-law have been her main carers,

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but they live over an hour away.

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I mean, first of all thank you for coming today.

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I know you've travelled quite far. Is it Staffordshire?

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They'd like Gladys to move closer to them,

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but there are no suitable places available.

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Now, first of all, erm, Mrs Lee,

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how are you finding it here at the moment?

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How am I finding it?

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Not very nice. I'm not happy, no, I can't settle down and that's it.

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Right, OK.

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I'd sooner sign and have... I'll stop at home

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and get myself somewhere because they can't put me nowhere else.

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But you must understand that whilst you're here, you're safe and secure.

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OK? I know you're not happy here, Mrs Lee.

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-I'm not happy.

-I know and I take your comments on board.

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I can't stand it much longer. I shall be in the mental home.

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Don't say that.

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If I can ask you directly, erm, are you happy to go home?

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Yes, if they can't get me in the place by them. I'd rather go home.

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-OK.

-I don't want her to go home.

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She can't be safe at home, she can't be safe.

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She's been saying, "I can't go on like this, I can't go on like this."

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She won't have carers in. I've been

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her carer for three years and Jim, my husband.

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-I've just asked Mrs Lee.

-I know, Pat.

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Do you remember my question before? Are you happy to go home?

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I've got the response that I need.

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-I mean, I don't want her in a home.

-I mean, I understand.

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That's the last thing. I'm feeling as bad as Gladys is.

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Mrs Stitch, we need to go through the policy and procedure.

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-I know that.

-But I'm more happy at home.

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-You aren't happy, Gladys.

-You kept on saying you was lonely.

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You kept saying you was unhappy. I can't cope, I can't cope.

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Well, I can't cope here when you're looking at people.

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Mrs Lee, I mean, we've tackled...

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Listen, Gladys, I don't want you in a home more than anybody else,

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but we know you need care because I can't cope when you're like this.

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I know you can't, Pat,

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but I don't want some of the care what some of the people want.

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They've not put you in here for definite,

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they're only going to assess you first and you can't expect

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to be assessed in one or two days because it takes time.

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Absolutely, absolutely, it can take days.

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There's other people as well. There isn't only you, there's thousands.

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But, rest assured, that I'll go back to the office,

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we'll have a meeting and we'll decide the best

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course of action. The important thing just to keep you informed.

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It's no good crying, Pat, don't upset yourself.

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Gladys, you don't know how I feel. I want you to be happy and you're not.

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I know you do, Pat. You're not a teenager.

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I know you're getting on, you're over 70.

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We're nearly 75 at the end of the year

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-and I've done all I can, Gladys.

-I know you have, Pat.

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I just want you to be happy and not be upset any more.

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-Don't get upsetting yourself.

-OK.

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-Don't make yourself bad.

-Mrs Stitch.

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Don't do that.

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-Pat.

-It must be upsetting for all parties, I understand.

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-Oh, Gladys, please be happy, please, wherever you go.

-I know.

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Well, I will, Pat, but don't upset yourself.

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I should be worse than you, the way I'm going.

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If you're going to upset yourself, I might as well go outside

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and take meself a walk.

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Since I've lost Georgie, they've been...

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You've been good to me both of you and I knows that.

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Please try and help us.

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I'll do my best for you, Mrs Lee and Mr and Mrs Stitch,

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but thank you for having me here.

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-Am I OK to give you a call tomorrow?

-Course you can.

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And you'll be available tomorrow morning at home?

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-Yeah. Nice to have met you anyway.

-Take care.

-OK, bye.

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Mrs Stitch, take care.

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I mean, you know, it does put you in a bit of an awkward position,

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you know, erm, Gladys said that she was quite happy to go home,

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but the sister said otherwise.

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But because Gladys has got capacity to make her decisions,

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you know, she's happy to go home then that will be the final stance.

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You can advise, you can recommend, you can suggest.

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If they've got capacity it's their decision.

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Hold on to the Zimmer frame.

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You've got a bit of a nasty cough, haven't you?

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Despite her sister's worries, Gladys has decided to go home.

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Mrs Lee, it's your decision, you weren't happy there and, erm...

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And she expected me to stay there, but I couldn't.

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-No, it's your decision.

-It's my decision.

-It's your decision.

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And I haven't seen her since.

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OK, I mean, they are aware, they are aware that you're coming home today.

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-OK, because I have... I've kept them informed.

-Have ya? Thank you.

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You're going to have four calls a day. Carers are going to come

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round just to make sure that you're OK.

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So we're just going to see how this, you know, how this goes.

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Hopefully, it'll work and if it's not, then, obviously, my colleagues

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will report back to me and then we'll look at other options.

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-OK.

-OK?

-I'm frightened of falling.

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I've already had three and that's when...

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How are you with the Zimmer frame?

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That Zimmer frame there because you didn't have that before.

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I've never had one, see, I've always had a stick.

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There's one for downstairs and one for upstairs.

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I brought two here. Did you see us bringing two?

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-OK.

-Yeah?

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-I've seen your bed, you've got a big king size bed, haven't you?

-Pardon?

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-I've seen you're bed, it's big, isn't it?

-A big bed?

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You've got a very big bed, haven't you?

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I always have a king-size. We always have, me and me husband.

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-OK.

-I like a big bed. You can roll over.

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Now, I'll leave you in the hands of our carers

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and any issues or concerns, you can raise it with the carers

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-and they can contact me, OK?

-OK.

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-All right? Gladys, I wish you all the best.

-Thank you very much.

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And I can see how happy you are being back home, all right?

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Take care, bye-bye now.

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I mean, my sister's been good but as they grow older,

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they get fed up on you, don't they?

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It ain't like your husband or anybody else, no.

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It's awful when you got to get old.

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I wish I could go back to when I was younger.

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We had some happy days.

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We was happy family, we'd all help one another.

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Our mum was marvellous, her was, honest, a golden mother

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who was bed-ridden for five years.

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I looked after her.

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That's why I've never had no family, looking after my mother.

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I don't regret looking after her, but I feel sad now.

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I wish I'd had a family, you know,

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I might have had somebody next to me quicker, you know, that's it.

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Can't do nothing about it now.

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HE SINGS

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John has been ready to leave Heartlands for over a week.

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His social worker, Kerry, has managed to find him a six-week

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temporary place in one of the few dementia care homes in Birmingham.

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A lot of patients on this ward that I work with

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that are diagnosed with dementia, they're all at different levels

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and the ones that are showing any kind of behavioural issues,

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they're the ones that we really struggle with.

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The staff need a break from your singing, anyway.

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Come on, Dad.

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She's by your bed.

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So, unless there's more places for them to go to, people are just

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going to end up being stuck in hospital for even longer and that's

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only going to presumably get worse over the next 10, 20 years.

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We just work the best we can at the moment, with the resources we've got

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and the homes that we've got

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and that's all we can do as social workers.

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Susan, she drove all the way back from Cornwall yesterday.

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-Remember the first time we went?

-Yes.

-You had that van?

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-That van? Oh, yes.

-Put more oil in it than petrol.

-Yeah.

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Dad, I just want to wheel Mum round towards Kerry

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so she can talk to Kerry for a sec.

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OK? You stay there just a second.

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-How are you doing?

-Hello, gal.

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Like we discussed earlier about the discharge tomorrow to The Ridings -

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you still OK with that?

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-Yes.

-And you understand about the interim period?

-Yeah.

-Yeah?

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Have you had any more thoughts about what you want to do long-term?

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Well, there didn't seem to be that many options, you know what I mean?

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You see, I want to be moved by my daughter,

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I'd like sheltered accommodation.

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Would you say the ideal situation

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is that you move over more towards your daughter's

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and John goes into a care home over there as well?

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That was the original idea,

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but the financing is something else.

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We'll do it in stages and see how things go, I think.

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I just hope he'll take to it straightaway.

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I know, I know.

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That's the discharge letter from us, from social services,

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and with the contact details for The Ridings and the telephone number

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and it just says his discharge is planned for tomorrow.

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-So if that's OK, if you can just sign that bottom one.

-Yeah.

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That one there.

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John's talking to you.

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You can't just sort of dump them some place, you know.

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I mean, let's put it this way -

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I wouldn't be devastated if he couldn't come home again, you know?

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Because it's common sense.

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And it's not anybody's fault.

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You all right there, Johnny?

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I don't want to go out again.

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You don't want to what?

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I think you just have to do what you can

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and you have to do what's right.

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At the moment, I don't know what's right for me and him.

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If I make the wrong decision

0:22:300:22:31

and I can't cope, the thing is you're back to square one again.

0:22:310:22:35

For people with advanced dementia,

0:22:420:22:44

any change in surroundings can be unsettling

0:22:440:22:47

and difficult to cope with.

0:22:470:22:48

Even the secure environment of a hospital

0:22:500:22:53

can lead to uncharacteristic changes in behaviour.

0:22:530:22:56

-Evelyn.

-Stop. Stop!

-Evelyn!

-Stop!

0:22:560:23:00

-Stop. Just a minute.

-Sorry, my darling, you can't do that.

0:23:010:23:05

-You can't do that. You're not allowed to do that.

-Shut up!

0:23:050:23:08

- You don't do that. - It's OK, you shouldn't do that.

0:23:080:23:10

Shut up.

0:23:100:23:12

Do you want a biscuit? You love biscuits, don't you?

0:23:120:23:14

Do you want us to take it later? Just relax.

0:23:170:23:19

-Take it out to her.

-OK, will do.

0:23:190:23:21

Evelyn was living at home

0:23:230:23:25

before a fall brought her into Heartlands over two months ago.

0:23:250:23:28

You're not supposed to go in that room, it's forbidden.

0:23:300:23:33

Go on, I'll do what I want.

0:23:330:23:34

I'm just ringing regarding one of our patients, Evelyn Bradley.

0:23:360:23:39

I'm sure she's known to you already.

0:23:390:23:41

Yes, at the moment, she's a bit, you know...

0:23:410:23:44

She's aggressive, hitting staff.

0:23:440:23:47

She's outside the treatment room.

0:23:470:23:49

Apparently, there is a nurse in the treatment room

0:23:490:23:51

who can't come out because she's standing in front of the door

0:23:510:23:54

and the nurse has got other patients to look after

0:23:540:23:57

and these patients need the nurse now, so, yes.

0:23:570:24:01

So I don't know if it's possible for somebody to come on the ward

0:24:010:24:04

and just calm her down a bit.

0:24:040:24:06

OK.

0:24:060:24:07

All right, thank you.

0:24:070:24:08

Security's coming.

0:24:100:24:11

-SECURITY:

-Evelyn, please stop.

0:24:160:24:17

She'll have moments when she'll behave the way she's behaving,

0:24:170:24:20

so we just have to leave her to calm down

0:24:200:24:22

and security who are the experts will know how to deal

0:24:220:24:24

with this kind of situation

0:24:240:24:26

so that's why I had to contact them.

0:24:260:24:27

Evelyn, can you stop doing that?

0:24:280:24:30

Shut up!

0:24:300:24:31

Security are called to deal with patients like Evelyn

0:24:310:24:34

as a last resort.

0:24:340:24:36

Evelyn, we've got two ways of doing this.

0:24:360:24:38

-Come on, Evelyn, let's have a talk.

-Get out!

0:24:380:24:41

Get out!

0:24:410:24:42

The high level of supervision she needs also means

0:24:420:24:45

there are few care homes able to accept her.

0:24:450:24:48

Evelyn, get back now.

0:24:480:24:50

Evelyn, you need to calm down or we'll have to restrain you

0:24:500:24:53

-and take you back...

-Oh, shut up.

0:24:530:24:55

Don't tell me you're going to...

0:24:550:24:58

-Stop doing that. You're going to hurt yourself.

-Get out.

0:24:580:25:01

Get out!

0:25:010:25:03

Evelyn, you need to stop.

0:25:030:25:04

-No, Evelyn.

-Evelyn, stop doing that.

0:25:060:25:07

It doesn't help like that, Evelyn.

0:25:070:25:09

-Evelyn, come on.

-Unfortunately, we have to come to this now, Evelyn.

0:25:090:25:12

She's medically fit, we look at it from that point.

0:25:170:25:20

The reason why she's here is social.

0:25:200:25:22

So you see at times patients can be in hospital for days, months,

0:25:220:25:28

just because they're looking for an appropriate place for them.

0:25:280:25:32

So medical-wise, she's all right,

0:25:320:25:33

but we're just looking for an appropriate place for her

0:25:330:25:36

and we have to make sure it's appropriate, it's safe,

0:25:360:25:38

for her to go there.

0:25:380:25:40

Do I get you a drink or anything?

0:25:400:25:42

Some water or something?

0:25:420:25:44

If I was in that situation, say if I have to empathise with her,

0:25:450:25:48

put myself in that situation, I think I would feel the same,

0:25:480:25:52

you understand what I mean?

0:25:520:25:54

I think I would feel like that. I'd just want to go.

0:25:540:25:57

-Get off!

-Calm down, Evelyn.

0:25:570:25:59

-And you! Get your...

-Stop doing that.

0:25:590:26:02

Stop doing that.

0:26:020:26:04

Where are you going?

0:26:040:26:05

Where I want to go.

0:26:050:26:07

You need to stop that, Evelyn.

0:26:070:26:10

Calm down, Evelyn. Calm down, Evelyn.

0:26:100:26:13

Alison manages a specialist dementia care home

0:26:210:26:24

close to where Evelyn's family live.

0:26:240:26:26

And she might have a long-term bed available.

0:26:260:26:30

Just need to come in.

0:26:300:26:31

-I've come to assess somebody, that's what I've come for.

-Who?

0:26:310:26:35

Evelyn.

0:26:350:26:37

This is Evelyn. OK.

0:26:370:26:38

With assets of over £23,250,

0:26:380:26:42

Evelyn doesn't qualify for council funding.

0:26:420:26:45

If the home accepts her, she'll have to sell her house to fund her care.

0:26:450:26:48

-So she's been in with you for quite a while.

-Yeah, she has been.

0:26:480:26:52

I've spoken to the social worker

0:26:520:26:54

and got a little bit of history on Evelyn.

0:26:540:26:56

-Now I know she's got Alzheimer's, dementia, yeah?

-Yes, she has.

0:26:560:27:00

Before she can take Evelyn, Alison has to make sure

0:27:000:27:02

they can provide the right level of care for her.

0:27:020:27:05

When I spoke to the social worker,

0:27:050:27:08

she said there's some physical and verbal...

0:27:080:27:12

She can be a little bit aggressive.

0:27:120:27:15

Yes, she is. She's calm for a few hours until visiting hours.

0:27:150:27:21

Whenever visiting hours and she notices people coming in and out,

0:27:210:27:24

that's when she started kicking off and getting upset.

0:27:240:27:28

-So her son has visited?

-Oh, yes, Anthony has visited.

0:27:280:27:33

-Is that the only son or daughter she's got?

-Yes.

0:27:330:27:36

Is there anything she particularly likes to do?

0:27:360:27:39

Last week, we had the musician come in to play the piano

0:27:390:27:43

and they were singing all the old-time music and stuff like songs

0:27:430:27:48

and she actually stood in J-bay and she was there until the finish

0:27:480:27:54

and she loved it and she actually said to us, "Wasn't that beautiful?"

0:27:540:27:59

-PHONE RINGS Let me answer it.

-Hello?

0:27:590:28:02

Just a moment.

0:28:040:28:05

Hello, ward 30, can I help?

0:28:050:28:07

Cos I asked her a few questions about her job, what she used to do.

0:28:090:28:13

She said, "I used to work for Rover."

0:28:130:28:16

-Oh, the car.

-Yes, and she had her own office

0:28:160:28:19

and she employed her own people

0:28:190:28:22

and she had only girls with her, working in her office.

0:28:220:28:25

She's not on a one-to-one in here, is she?

0:28:300:28:32

-Yes, we have specials for her.

-Oh, do you?

-Yeah.

0:28:320:28:36

It makes a slight difference that she is on a one-to-one

0:28:380:28:43

because I wasn't given that information prior to coming here.

0:28:430:28:47

It's 24 hours a day, seven days a week.

0:28:470:28:49

It's a big input that social services are going to have to look at

0:28:490:28:52

-because it'll come out of their funding.

-Yeah.

0:28:520:28:55

It can't come out of ours.

0:28:550:28:57

-It'll have to come out of social services' funding.

-OK.

0:28:570:29:00

Because she has one-to-one,

0:29:020:29:04

which means she has a carer with her 24 hours a day,

0:29:040:29:07

I need to speak to the social worker as to when she leaves the hospital,

0:29:070:29:11

does that still stand with her?

0:29:110:29:14

Because that can make the difference in whether she comes to us

0:29:140:29:17

or whether she doesn't come to us.

0:29:170:29:19

Have you forgotten where you're going?

0:29:210:29:23

SHE MOUTHS REQUEST

0:29:360:29:39

After two days at home,

0:29:390:29:41

Gladys has returned to Heartlands with a chest infection.

0:29:410:29:44

I like me own house, but I couldn't stand the loneliness.

0:29:470:29:51

I mean, you'd sit all day with nobody,

0:29:520:29:56

only just looking at your telly,

0:29:560:29:59

but that weren't too bad,

0:29:590:30:01

but night-time, when you're just locked in,

0:30:010:30:04

oh, it ain't right.

0:30:040:30:05

I couldn't breathe, I couldn't move,

0:30:050:30:09

every time you wanted to go to the toilet,

0:30:090:30:13

you've got to see whether you're going to fall or not

0:30:130:30:16

to get up there.

0:30:160:30:18

Oh, no, I'm definitely not going back.

0:30:180:30:23

I don't care what they say.

0:30:230:30:24

Did she mobilise?

0:30:280:30:29

She's mobilised, she's very panicky,

0:30:290:30:31

saying, "I don't want to go home now, I don't want to go home at all."

0:30:310:30:35

She said, "You mustn't send me home."

0:30:350:30:37

And that's the problem.

0:30:370:30:38

She came out of the residential care, to home,

0:30:380:30:42

became acutely unwell and that's dented everything,

0:30:420:30:45

so even with carers now, she'll say that's not an option that'll work.

0:30:450:30:49

She's adamant at this moment - no, not for home.

0:30:490:30:53

I think if you ask Gladys to be honest,

0:30:560:30:58

she would like to live with her sister.

0:30:580:31:01

She would like to be in that sister's home,

0:31:010:31:03

but I don't think that's an option for her.

0:31:030:31:05

So social workers are actively seeking

0:31:070:31:10

extra sheltered accommodation near to her sister.

0:31:100:31:14

She could be lucky - it could take three months,

0:31:150:31:18

or it could take six months.

0:31:180:31:20

I'll send you to ward 2, OK?

0:31:200:31:23

-Send you to what?

-Ward 2.

0:31:230:31:25

-What for?

-You're moving wards now.

0:31:250:31:28

This is the assessment unit.

0:31:280:31:30

They're moving what for?

0:31:300:31:32

This is the assessment unit, so once we get you better,

0:31:320:31:35

we send you somewhere else to continue on your stay.

0:31:350:31:38

-When?

-Now.

0:31:380:31:39

-Now?

-Yes, darling.

0:31:390:31:41

And they'll tell me where they're sending me?

0:31:420:31:45

Yes, they will, ward 2, you're going to ward 2.

0:31:450:31:48

-Ward 2.

-Yes.

0:31:480:31:50

-Oh, in a ward?

-Yes.

0:31:500:31:53

Bloody hell, I thought they were taking me to my sister's.

0:31:530:31:57

That'll probably happen from ward 2.

0:31:570:32:01

From ward 2?

0:32:010:32:03

-Yep.

-Well, I'll have to go there then, won't I, love?

0:32:030:32:05

This is the assessment unit.

0:32:050:32:07

-Yeah.

-We only get you better.

0:32:070:32:09

Fair enough, as long as I... I'm feeling a bit better.

0:32:090:32:13

Yeah, you're looking a lot better from this morning.

0:32:130:32:17

-OK, love.

-All right?

-I'll put me hearing aid in.

0:32:170:32:20

Go on, then - put your hearing aid in.

0:32:200:32:21

Gladys has got a complex social situation, as you know,

0:32:310:32:34

but we really need to know where the discharge setting is.

0:32:340:32:39

Dr Peter Wallis is the lead elderly care consultant at Heartlands

0:32:390:32:43

and is looking after Gladys's case.

0:32:430:32:46

A week after her admission,

0:32:460:32:48

he's meeting with her social workers and family

0:32:480:32:50

to make a plan for her leaving hospital.

0:32:500:32:53

From the medical point of view, she's pretty steady now.

0:32:530:32:56

Is she medically fit for discharge, then?

0:32:560:32:58

Yeah, her medical condition is now stable enough

0:32:580:33:00

to allow her to leave hospital.

0:33:000:33:02

Gladys, would you consider going home if we put a package of care in?

0:33:030:33:09

-If carers came in...

-No, I don't want to go back to my own home.

0:33:090:33:12

One of the things we talked about was moving closer to your sister

0:33:130:33:19

-in your own flat, if we can get something for you.

-Yes.

0:33:190:33:23

Now this is not going to happen overnight,

0:33:230:33:26

but you can't stay here, it's a hospital. That's Dr Wallis's...

0:33:260:33:30

Gladys, whilst it's a pleasure to look after you,

0:33:310:33:34

for your health, it would be better if you could move to somewhere

0:33:340:33:38

that's a little safer for you

0:33:380:33:41

until such time as the sheltered accommodation is available

0:33:410:33:46

close to where your sister lives, do you understand?

0:33:460:33:49

Yes, as long as I've not got to wait too long.

0:33:490:33:51

I think that's what the team are going to explain to you now.

0:33:510:33:54

Just to explain, Gladys,

0:33:540:33:55

-you're refusing to go back to your own home.

-No.

0:33:550:33:58

You're saying no, as in you don't want to go home.

0:33:580:34:01

At the moment, just to be clear with everyone,

0:34:010:34:04

there's nothing available, Gladys, where your sister lives.

0:34:040:34:08

However, the kind of accommodation you're looking for in your locality

0:34:080:34:12

is available where Gladys lives at the moment

0:34:120:34:15

so couldn't we consider that as a temporary measure

0:34:150:34:17

until anything comes up where you are?

0:34:170:34:20

I want to know how long I'm going to be kicked out of here.

0:34:210:34:26

Be kicked out?

0:34:260:34:28

We don't kick anybody out of here.

0:34:290:34:31

No, seriously, nobody's going to force you to go somewhere

0:34:310:34:35

where you don't want to go,

0:34:350:34:37

but you might need to meet the social work team halfway,

0:34:370:34:43

if you know what I mean.

0:34:430:34:44

There'll have to be a bit of give and take, I think.

0:34:440:34:47

-All right?

-Yes.

-OK?

-OK, then.

0:34:470:34:50

You all right there?

0:34:540:34:56

You all right there?

0:34:580:34:59

On the one hand, we have to respond to illnesses

0:35:010:35:05

in patients like Gladys when they first present.

0:35:050:35:07

They're ill, they have to be found a bed, they have to be looked after

0:35:070:35:10

and so, by the same token, we have to keep moving people through the system

0:35:100:35:14

to allow the service to respond.

0:35:140:35:17

-Hello.

-So there is pressure and you can see the dilemma

0:35:170:35:19

that the health service is under and we're under on the ward.

0:35:190:35:22

You came into hospital because your doctor at home

0:35:230:35:27

was worried about you because you'd fallen over.

0:35:270:35:30

'So we've got to try to get the care system right'

0:35:300:35:32

so that when the light goes green

0:35:320:35:35

to give someone that window of opportunity to get out,

0:35:350:35:38

we need to grab that moment and try to make it happen.

0:35:380:35:42

You said something about I was in hospital. I'm not, am I?

0:35:420:35:46

Yes, you are, you're in hospital.

0:35:460:35:48

It's Heartlands or East Birmingham Hospital.

0:35:480:35:50

Oh.

0:35:500:35:52

Hiya, can I speak to Alison, please? It's Lorraine.

0:35:530:35:56

It's Lorraine. I'm senior sister from ward 30, Heartlands Hospital,

0:35:580:36:02

regarding one of the patients that she assessed on Wednesday,

0:36:020:36:07

Evelyn Bradley.

0:36:070:36:08

Evelyn Bradley.

0:36:110:36:12

It's two days since Evelyn was assessed

0:36:140:36:16

for a place at the care home.

0:36:160:36:18

Please, thank you, bye.

0:36:180:36:20

There is still no decision on whether social services

0:36:220:36:25

or the NHS will pay for her one-to-one care.

0:36:250:36:29

I just want her to be placed in the right place.

0:36:300:36:33

I just want her to go to whichever home will accept her,

0:36:330:36:38

but, by the sounds of it...

0:36:380:36:40

..for now, she's going to spend another week on the ward.

0:36:420:36:47

INTERVIEWER: Should she?

0:36:470:36:48

Well...

0:36:480:36:50

..I can't say yes and I cannot say no

0:36:520:36:55

because, at this point in time,

0:36:550:36:56

she doesn't have anywhere else to go so, yes, she should, at the moment.

0:36:560:37:00

-Is a hospital...?

-I know, it's a hospital,

0:37:000:37:04

but until we get a home that's willing to take her,

0:37:040:37:08

we cannot just send her out.

0:37:080:37:09

MUSIC: "I'm Making Believe" by Ella Fitzgerald

0:37:230:37:26

# I'm making believe

0:37:290:37:33

# That you're in my arms

0:37:330:37:36

# Though I know you're so far away

0:37:360:37:40

# I whisper good night

0:37:400:37:44

# Turn out the light and kiss my pillow

0:37:440:37:48

# Making believe it's you... #

0:37:480:37:52

-Here you are, read this.

-I can't read that, love.

0:37:530:37:57

-Shall we just have a look at some pictures, then?

-No eyes.

0:37:570:38:00

-You got no eyes?!

-No.

-Oh, dear.

0:38:000:38:03

Found the Bull Ring.

0:38:030:38:05

Look at these.

0:38:080:38:09

-Look at these slopes.

-They're nice, they are, aren't they?

-Inside, yeah.

0:38:100:38:15

John has been at The Ridings care home for two weeks.

0:38:150:38:18

He has a temporary bed for another month,

0:38:290:38:32

while his wife, Jean, decides if she can take him home.

0:38:320:38:35

A mixture of emotions, really.

0:38:370:38:39

I'm glad that he's seemingly content.

0:38:400:38:44

He's accepted things like the way he is. He's accepted everything.

0:38:450:38:50

Where am I?

0:38:500:38:52

Don't leave me.

0:38:530:38:55

I don't know where I am.

0:38:560:38:58

I know what I've got to do,

0:39:000:39:03

and yet it's one side of my head and the other side the other as well.

0:39:030:39:09

-Please help me.

-Yes.

0:39:090:39:11

I need it.

0:39:110:39:13

Don't go away and leave me like that.

0:39:150:39:18

I didn't think you'd be that sort.

0:39:180:39:21

Can you open that and you'll have some?

0:39:340:39:37

Help me.

0:39:410:39:44

Please help me.

0:39:440:39:45

-All right.

-I won't cry, you needn't worry.

0:39:460:39:49

Oh, all right, OK.

0:39:490:39:51

The other night he said, "Are you my wife?"

0:39:560:40:00

That was...

0:40:000:40:01

..sort of sad in a way.

0:40:020:40:05

Then he said, "I'm sorry,"

0:40:050:40:08

and I don't know whether he was saying sorry

0:40:080:40:11

cos I was his wife or what, you know what I mean?

0:40:110:40:14

But, er...

0:40:140:40:15

..it's...

0:40:190:40:21

It's just sad because...

0:40:220:40:24

..he's lost, I suppose.

0:40:260:40:28

That's the saddest part.

0:40:300:40:32

HE MUTTERS TO HIMSELF

0:40:380:40:42

Why don't I know who I am or where I come from?

0:40:420:40:45

Because you haven't been well.

0:40:460:40:48

Will you be a friend?

0:40:480:40:50

Yes, I'll be your friend, Sal.

0:40:500:40:54

-Thank you.

-I'll be your friend, pet.

0:40:540:40:56

You've got a good friend there, haven't you?

0:40:560:40:59

Yes, he's not a bad friend.

0:40:590:41:01

-He'll be a good friend to you as well.

-He is, a good one.

0:41:010:41:04

He'll always be by your side, he will.

0:41:040:41:07

Remember that.

0:41:110:41:13

There's a saying...

0:41:210:41:22

..live each day...

0:41:230:41:24

..as though it's your last.

0:41:260:41:27

I think we should...

0:41:360:41:37

..cos you never know.

0:41:410:41:43

You've got no guarantees.

0:41:450:41:47

Hi, is that Jean?

0:41:550:41:57

It's Kerry here, social worker at Heartlands.

0:41:570:42:00

I'm just phoning to see how things are going with John.

0:42:000:42:04

Has he?

0:42:080:42:09

Are you happy with The Ridings?

0:42:100:42:12

Yeah.

0:42:120:42:13

Have you managed to have a discussion with your daughter

0:42:130:42:16

about the long-term plan?

0:42:160:42:18

What's been said?

0:42:190:42:20

OK, for long-term?

0:42:280:42:30

All right, then. And Sue feels the same as well, does she?

0:42:310:42:36

Yeah.

0:42:360:42:37

OK.

0:42:370:42:38

All right, I'll speak to you soon.

0:42:390:42:42

OK, bye.

0:42:420:42:44

She said she's had a chat with her daughter

0:42:470:42:49

and she's decided that she's not going to have him back home.

0:42:490:42:53

She can't cope with him back home.

0:42:530:42:55

She's happy with how he's been at The Ridings

0:42:550:42:57

and how he's settled and she wants him to stay there.

0:42:570:43:00

You tired?

0:43:020:43:04

You going to have a sleep?

0:43:040:43:06

'So I've got to speak to the interim manager

0:43:080:43:11

'to see whether he can stay there.'

0:43:110:43:13

John qualifies for full council funding,

0:43:150:43:18

but his choice of care home is limited as many cost more

0:43:180:43:22

than the local authority will pay.

0:43:220:43:24

The Ridings is affordable, but all their permanent beds are full.

0:43:260:43:30

With two people ahead of John on the waiting list,

0:43:300:43:33

he may not be able to stay.

0:43:330:43:35

What I find hard is when families come

0:43:370:43:39

and they have an expectation that there's a lot

0:43:390:43:42

that the council can offer.

0:43:420:43:44

I find it hard to sort of tactfully bring them back to,

0:43:440:43:48

"Actually, this is what is available."

0:43:480:43:50

And it's been the same for years, really,

0:43:500:43:54

so in years to come when there's more people,

0:43:540:43:57

more older people, more people with dementia...

0:43:570:43:59

..I think it's already an issue,

0:44:000:44:02

so I don't know what we're going to do as social workers.

0:44:020:44:06

That's something for the government, really -

0:44:060:44:08

to try and put more provisions in place, more funding in place

0:44:080:44:13

and more resources because it's hard enough as it is now.

0:44:130:44:18

-OK, Gladys.

-What shoes am I going to put on?

0:44:190:44:22

You'll go all right in them. There's no other shoes, Gladys.

0:44:220:44:26

Gladys doesn't have savings, or own her house,

0:44:260:44:30

so social services will pay for the full cost of her care.

0:44:300:44:34

There are still no places near her sister,

0:44:400:44:43

but one is available close to Gladys's own home.

0:44:430:44:46

What we're going to do is we're going to show Gladys the flat

0:44:480:44:51

because she's agreed to look at it.

0:44:510:44:53

I'm not sure if she's keen...

0:44:530:44:55

..but we'll show her and it's her choice.

0:44:560:44:59

Pat, I should never see nobody in a place like this.

0:44:590:45:03

Don't you think so?

0:45:030:45:05

Do you think we're going to leave you just like that, Gladys?

0:45:050:45:08

Do you think we're going to leave you after all this time?

0:45:080:45:10

You are my sister.

0:45:100:45:12

Oh, I wish I weren't here.

0:45:120:45:13

Now, I'm just shut out from everywhere.

0:45:130:45:17

Gladys, you were never happy.

0:45:170:45:19

It's all right for you to talk, Pat.

0:45:190:45:22

You ain't pushed away like I've been pushed.

0:45:220:45:25

You wouldn't like your Ellie to be pushed like I've been pushed.

0:45:250:45:28

Gladys, when I'm your age I don't expect my kids,

0:45:280:45:31

my family, to look after me because they've got their own lives.

0:45:310:45:34

I mean, I'm the only sister you've got.

0:45:340:45:36

I never slept last night, Gladys,

0:45:360:45:38

because I knew what was going to happen.

0:45:380:45:41

MAN: Shall we go and have a look at the flat?

0:45:440:45:47

WOMAN: Gladys, shall we go and look at the flat?

0:45:470:45:49

I just can't put up with this any more, I really can't.

0:45:490:45:51

MAN: Gladys, are you ready?

0:45:520:45:54

WOMAN: Is Gladys able to walk with the Zimmer frame?

0:45:550:45:58

Just go in and have a look.

0:46:060:46:08

It's miles from anywhere.

0:46:080:46:10

This is lovely. Come into the kitchen.

0:46:120:46:15

I didn't want a place like this.

0:46:150:46:18

You can have your own fridge there.

0:46:180:46:21

-Come on, Gladys.

-I can't look after myself as it is.

0:46:210:46:25

Do you remember a few weeks ago you asked for a place in the community

0:46:250:46:29

with some company and a ground floor flat?

0:46:290:46:32

This is it.

0:46:330:46:35

Now the rest is up to you.

0:46:350:46:36

I'm not going to leave you here and not come and see you.

0:46:380:46:41

They're going to give you social people, carer, to come in

0:46:410:46:45

and do things that you can't do.

0:46:450:46:47

They'll give you a shower, which you can't do, we know that.

0:46:470:46:50

I know, Pat, but I'm never going to see you nor Andrew.

0:46:500:46:55

No, you are going to see us

0:46:550:46:57

and I'm going to take you home for Christmas Day

0:46:570:47:00

to spend Christmas Day with us,

0:47:000:47:02

so don't get upset, Glad, because I feel just like you feel,

0:47:020:47:06

but there's nothing else, nothing else we can do for you, nothing!

0:47:060:47:11

I'm sorry, Gladys, I'm sorry.

0:47:130:47:15

This is what you asked for and it's beautiful,

0:47:170:47:20

it's beautiful - it's all clean.

0:47:200:47:22

You keep saying I can come by you.

0:47:220:47:25

Look, Gladys, you're not the only one who they're finding homes for.

0:47:250:47:29

It's being selfish to say that, isn't it, really?

0:47:290:47:31

And I'm not going to just leave you there.

0:47:310:47:34

We're still going to come and see you

0:47:340:47:35

and all the family will come and see you.

0:47:350:47:37

I think it's lovely here.

0:47:430:47:44

Our options are very limited.

0:47:460:47:47

-What do you mean?

-Well, apart from this, we haven't got any other option

0:47:490:47:53

but for you to either go home or stay here.

0:47:530:47:56

Oh, I can't stay here and I don't want to go home, so what can I do?

0:47:570:48:02

I think you'll need to think about it and make a decision.

0:48:040:48:07

It's pretty much generic across the whole of the country,

0:48:080:48:11

-you've got, you know...

-I can understand it.

0:48:110:48:13

..longer waiting lists, the actual stock for housing,

0:48:130:48:15

it's so less compared to the people waiting.

0:48:150:48:18

We've got that sort of dilemma at the moment,

0:48:180:48:23

- so I'll continue... - We'll keep looking.

0:48:230:48:26

We'll keep looking.

0:48:260:48:27

What they're going to do, they're going to still look and they'll try

0:48:280:48:31

-and find somewhere by us, so please have patience.

-Oh, I hope they do.

0:48:310:48:38

Yeah, and I do, Gladys, but you must have patience, right?

0:48:380:48:42

OK? Now don't get upset now - it's all being sorted, OK?

0:48:420:48:46

Everyone cares about you, right?

0:48:460:48:48

Come on, that's it. We all love you, Gladys.

0:48:500:48:52

Gladys, all the best and I'll be in contact.

0:48:540:48:58

-I'm going to speak to the ward tomorrow, OK?

-OK, thank you.

0:48:580:49:03

I mean, it's hard for all parties. It's hard being a carer.

0:49:030:49:06

I've been a carer and it's not easy. It has an impact on everyone's life.

0:49:080:49:13

I've got a feeling when I speak to the ward, they want her out.

0:49:150:49:19

There's no nicer way of saying that -

0:49:190:49:21

"She's ready for discharge, off you go,"

0:49:210:49:23

but she doesn't want to go anywhere, so she can't stay there, you know.

0:49:230:49:28

The other option is respite, but she hated respite back at the beginning

0:49:280:49:32

so it's just very awkward and tricky.

0:49:320:49:36

I didn't like the place at all. I mean, it was brand-new

0:49:440:49:48

and they were very nice, but I refused it anyway...

0:49:480:49:52

..so I don't care now.

0:49:530:49:55

I'm just waiting to see if they can find me one by Patty's.

0:49:550:49:59

I don't know why it's so hard.

0:49:590:50:02

I'm sure.

0:50:020:50:03

Anyway, you know, I'm tired and it's horrible in here.

0:50:050:50:13

It is, honestly.

0:50:130:50:15

I should be glad to get out.

0:50:150:50:17

I mean, I'm just looking at people what are not well and that.

0:50:170:50:23

I'm waiting to go by Patty's and that's it.

0:50:230:50:26

I shan't rest till I go by Patty's.

0:50:270:50:29

Evelyn, you know and I know that you can't stop here, yeah?

0:50:400:50:44

Because this is a hospital, you know that.

0:50:440:50:47

The place you're going to is a lovely place,

0:50:470:50:49

it's got better rooms than this.

0:50:490:50:51

Evelyn, would I lie to you?

0:50:510:50:54

Are you going to let me get you dressed?

0:50:540:50:55

I'm definitely not going.

0:50:550:50:57

I can't, you don't know what I've gone through.

0:50:570:50:59

-I can't do it and it's going to be worse and worse.

-OK.

0:51:000:51:03

Let's leave it at that for now.

0:51:030:51:05

Shall I get you a nice cup of tea and some biscuits?

0:51:050:51:07

Yeah? OK.

0:51:070:51:08

The NHS has agreed to cover the cost of Evelyn's one-to-one care

0:51:100:51:14

in a nursing home for an initial three months.

0:51:140:51:17

She can finally leave hospital.

0:51:170:51:20

I'm just happy that we got her a home,

0:51:200:51:22

because she's been here for such a long time.

0:51:220:51:26

And we had to make sure this time that we send her to the right home

0:51:260:51:31

and that she's not moved several times as well, because for her,

0:51:310:51:36

I think it must be unsettling as well,

0:51:360:51:39

so for that I'm happy that she's going.

0:51:390:51:41

I'll be back in a little while. I'm going to have a cup of tea.

0:51:430:51:46

-A cup of tea?

-Yes.

0:51:460:51:48

That's a real friend.

0:51:530:51:55

She's lovely, isn't she?

0:51:560:51:57

It's ten days since Gladys turned down a place in sheltered housing,

0:52:140:52:19

but one has finally become available near her sister

0:52:190:52:22

and Gladys is leaving hospital for good.

0:52:220:52:24

Before she moves to her new home,

0:52:300:52:32

she is saying goodbye to the house she has lived in for over 50 years.

0:52:320:52:36

All right?

0:52:440:52:46

You don't want to come back now, do you, Glad? Look.

0:52:460:52:48

What do you reckon now, Glad?

0:52:590:53:01

It's no good coming here, is it? You've got a much better place.

0:53:010:53:05

I wish I had come back now, Pat.

0:53:050:53:08

-I do.

-No, you couldn't do it, Glad.

0:53:080:53:10

They wouldn't let you come back no more.

0:53:100:53:12

It's strange when you've got to go.

0:53:170:53:19

I mean, I loved this little house.

0:53:190:53:21

We made it just how we wanted it.

0:53:230:53:25

I don't know whether I'm going to be very happy where I'm going.

0:53:290:53:32

I'll have to make the best of it.

0:53:350:53:36

Still, never mind.

0:53:400:53:43

God's good.

0:53:430:53:44

Something will happen.

0:53:440:53:46

-Hello, matey!

-Hello.

-Where you been?!

0:53:480:53:51

Oh, nice to see you.

0:53:510:53:53

Where've you been hiding?

0:53:540:53:56

-I wish I hadn't have gone anywhere.

-Hello, Glad.

0:53:560:53:59

You got a nice place now, Patty said.

0:54:000:54:02

It's a brand-new place.

0:54:020:54:04

You want to be bloody lucky you've got a brand-new place!

0:54:040:54:08

Oh, no, I'd rather have been back here.

0:54:080:54:11

Once you get settled in, you'll be OK, eh?

0:54:110:54:14

I don't know.

0:54:150:54:16

You've got to be settled, cos you can't manage on your own.

0:54:160:54:20

If you were to put her in Buckingham Palace, she'd still bloody moan.

0:54:230:54:27

Wouldn't you? Eh?

0:54:270:54:28

-If they put you in Buckingham Palace, you'd still moan.

-I would, yeah.

0:54:280:54:32

THEY EXCHANGE GOODBYES

0:54:350:54:37

That's George, look. He's come with his fish, and that's your mum.

0:55:080:55:12

That's our mum.

0:55:140:55:15

GLADYS CRIES

0:55:190:55:21

I wish I'd been in a better state of health so I could've...

0:55:430:55:47

..looked after him properly, you know,

0:55:480:55:51

but it's just the way it is.

0:55:510:55:53

You have to do things sometimes,

0:55:540:55:57

even though you don't want to.

0:55:570:55:58

Sometimes, when you're watching telly or something,

0:56:100:56:13

you think to yourself...

0:56:130:56:14

You go to talk to him and he ain't there.

0:56:160:56:20

Silly.

0:56:200:56:22

But that's habit at the moment, you know.

0:56:240:56:27

You just think about

0:56:330:56:36

if the position was reversed...

0:56:360:56:38

..and it was me that had dementia.

0:56:390:56:41

I think John would have fought harder.

0:56:560:56:58

I don't know.

0:57:080:57:10

BINGO ANNOUNCER: Eyes down then for a full house.

0:57:440:57:46

They ain't yours.

0:57:490:57:50

Shut up, Pat.

0:57:520:57:54

We're hopeless, ain't we?

0:58:090:58:11

What judgments do we make about people older than us?

0:58:140:58:18

Should we be challenging ageism?

0:58:180:58:20

Join the Open University debate around ageing by going to...

0:58:200:58:23

..and follow the links to the Open University.

0:58:270:58:30

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