My Wig and Me True North


My Wig and Me

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90% of people would say their hair is everything to them,

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especially a woman.

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And if their hair's good, they'll look good and feel good,

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and that's their whole image.

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It's important. Very important.

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Most girls, when they're going to buy an outfit, they'll try it on

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in the store, but they'll look at themselves in the mirror and say,

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"Well, it'll look better when I have my hair and make-up on."

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My hair has always been part of who I am, part of your femininity,

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your image. If you're having a bad day,

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you just get up in the morning,

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you can do your hair, you feel better.

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Or if you want a change, what do you do?

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You go to the hairdressers and get a new cut

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or get a new colour and then change it up a bit.

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It just makes you feel better instantly.

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Hair is extremely important.

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It defines you as a person.

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That's until you lose it.

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For years and years, the word "wig"

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always had this, sort of, negative connotation towards it.

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You don't realise until it's actually gone.

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I've seen the look of shock on people's faces, you know,

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that are completely took back that I've no hair.

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It hit me - this is going to happen, whether I want it to or not.

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My hair is going and there's nothing I can do about it.

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I sell wigs.

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And the first thing they think of is, my goodness,

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it's going to be something that they had in the '70s or the '60s,

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this horrible, shiny-looking thing.

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But it's not like that now.

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When I put a wig on, I do feel normal,

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because it feels like I have hair again,

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and it just makes me feel normal.

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Emily was tired, she was up and down in her mood,

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she was like not eating her food, and then she developed a wee rash.

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Took her to the GP's, we had bloods drawn and...

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We came back with a diagnosis of leukaemia,

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and it was the last thing in the world

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that we ever were suspecting, or ever even thinking about, so...

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That was the world beginning to be blown apart.

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We're going up to my room, which is up here.

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It is my two favourite colours, pink and blue.

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On the wall is a picture of me, my friend and my sister,

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with Stephen Cluxton, the captain of the Dublin team.

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I have Stephen Cluxton's football gloves.

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These mean the world to me.

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SHE GIGGLES

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Being off school sounds like a lot of fun,

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but when you're off it for seven months,

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you actually can't wait to get back to school.

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I can't wait for Confirmation, to see all my friends, to see everyone.

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Because I haven't seen them in a really long time.

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And that's going to be really exciting.

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Every day, it's a worry in this house.

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So, the Confirmation is a massive issue,

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because it's going to be a chapel full of children

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and little children that are maybe sick,

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so we have to be very, very careful.

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Everything is... is a risk of infection.

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There was actually a month, while I was at home,

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my mum actually considered wrapping me up in bubble wrap.

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I told her to take a chill pill!

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SHE GIGGLES.

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Hello? Good morning. How are you? How are you doing? You look lovely.

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And the hair's all gone. Oh, goodness, you look lovely.

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-Are you all excited?

-Yeah.

-Looking forward to the big day?

-Yeah.

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'Well, Emily came into my life recently,

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'and I got a phone call from her mother.

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'Her mother said, "She's dreading losing her hair."

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'It's a big day coming up. She's making her Confirmation and, also,

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'she had a birthday on the same day, so all I said was,'

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"Leave it with me. And I will get together a few styles

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"that I know will be perfect and wait till SHE'S ready."

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Do you want to go long? Do you want to go short?

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-Do you want to go curly? Do you want to go blonde?

-No!

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This is your opportunity.

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'A couple of weeks before Confirmation,

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'we sort of thought about what Emily was going to wear

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'and the hair, and all the rest of it and Theres brought'

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a whole suitcase full of wigs.

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-That's quite nice.

-I really like that.

-So do I.

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-Now, would be a good one.

-Come on, we'll try a blonde.

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At least she can have a good laugh. What do you think of that?

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-No!

-See, I think blonde washes her out.

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'I was a mousy brown before'

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and the blonde was just... not for me.

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-Down.

-Down.

-Big down.

-Big down.

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I secretly knew what she would like, so I had my...

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The one, as we say, that was up the sleeve.

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Right, Emily.

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I reckon this could be the one for the big day.

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This is the Confirmation one, I think.

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We've got a wee bit of curl and a wee bit of sparkle going on.

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-That's what you're after, isn't it?

-Yeah.

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'When I saw the curly wig with the diamonds,'

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I just thought it was amazing and was just the right one for me.

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'Once I put it on, her face lit up and she looked in the mirror.

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'Oh, my goodness. You could see this girl gaining ten inches in height.'

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She became the person she was supposed to be.

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I'm your hairy godmother!

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LAUGHTER

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I'm here to give you hair.

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'I think it was very similar to the hair that she would have had

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'previous to her illness and it probably just made her feel

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'so normal again and just...'

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Just made Emily feel...like Emily.

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The day you get your chemo, you count 19 days and it's roughly

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about that, 19 days. And on the 19th day, your hair starts falling out.

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But the smart people, I always say, is the ones that decide,

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"OK, I might not have had control over my chemo.

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"I have no control over that." No control over their illness.

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"But my goodness, I can take control over when my hair's

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"going to fall out."

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Had a shower. It was a Sunday.

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Came out, was putting cream on, and I found a lump.

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Thought nothing of it, because of my age. I'd just had a baby.

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I always thought, I know people with cancer and I've heard

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of people with cancer. Didn't think it would be me.

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-Once you start to see...

-Thursday night, I was just, tingling head.

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That's it. That's it. I can see it.

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I can see it, I can see it, I can see it.

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And, once you see it coming, like that, you know,

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that's the beginning. And there's no stopping it.

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I always said when I got cancer and I heard about chemo,

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I'd heard of all these people shaving their heads,

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I remember saying, "Oh, I will never be fit to shave my head.

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"I can't do that. I don't want to lose my hair.

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Why would I shave it off? I'd just these visions of me holding on

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to every last strand, as long as I could.

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Is your mummy turning into an alien?

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LAUGHTER

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-An alien. Oh, you're laughing at that!

-An alien mummy.

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'When I made the decision that I was going to donate my hair,

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I was like, right, OK. I am in control now.

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I'm going to lose my hair on Saturday at six o'clock. That's it.

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It's done.

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Are you waving bye-bye to my hair, Erin? Yeah? Is going, it's going.

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How did you know?

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-Yes, I wish I was as happy as you are.

-Here we go. Ready for it?

-No!

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Go for the first cut.

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That's nice and close. That's a nice length of hair.

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That's nice, healthy hair.

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'At least some wee girl can get a wig made out of my hair,

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'rather than just falling out in dribs and drabs'

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and it going in the bin. Maybe if I can see that something good

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is coming out of this, it'll help me deal with it a wee bit better.

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She was great up until the hair went. And then she broke. She cried.

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And it was from her heart and her soul. It's hard.

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It is only a small part of your life and, hopefully, it'll pass.

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A bit weird. I've just... I'm afraid of Erin being scared of me.

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-Yes, yes, yes, yes, I know.

-Because I've no hair.

-Give Mummy a kiss.

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We'll go upstairs and get ready.

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-Oh!

-Mwah.

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Ah, goodness.

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'That was the moment that I thought,'

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"Oh, God, what if I get up in the morning and...

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"she doesn't recognise me, or she just finds it really hard?"

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It was hard. And it isn't easy.

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My job is to make their hair look good.

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It's sad.

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I'll bring you over and we'll get rid of the last bit.

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And then she said, "Right, Orla, we're going to shave your head."

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And at that, I went...

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GASPING

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'It was easier for me to deal with getting my head shaved

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'than having to go through a week of torture, basically.

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So, I made the decision, so I had the control of when it was

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going to happen and why it was going to happen.

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We will get a phone call, "Oh, I'm suffering from a bit of hair loss,

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"and I'm a bit afraid to come in.

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"What way is it and is it confidential?"

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And I will say to them,

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"Listen. Come on. This is something to enjoy.

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"Look at it as a positive thing."

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We get all sorts. You do get your cancer patients. It's just natural.

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Then, we get hair loss, which is your alopecia people.

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People with just naturally bad, thin hair.

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And we do get a lot of fashion people, who are in

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the fashion industry, that are looking for a certain look.

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I'm getting these all lined up for Frankie, who is coming today.

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Frankie's a model and she's looking forward to doing

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a big photo-shoot tomorrow.

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'I remember, I was sitting, I was just touching, like having

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'a wee scratch, and I felt the tiniest little spot and, literally,

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'within a couple of weeks,'

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it was just, if you imagine going like this with your hair,

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it was just coming out, like, as I was doing that.

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And four months later, I was completely bald.

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At the start, it was hard. I was so ashamed.

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It ruined my personality, you know, for a good couple of months.

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It killed me.

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I was 18, nearly, and losing my hair.

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Depression, anxiety - everything comes with it.

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I deemed myself some sort of freak.

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-Hello, how are you?

-Good, good, thank you.

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'Frankie's been coming quite a while.

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'Unfortunately, she's lost her hair, due to alopecia.'

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'Theresa has been my little fairy godmother.'

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From the moment I walked into her shop,

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she told me it was going to be all right.

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'When I got to know Frankie a bit better, I discovered that'

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Frankie had very bad burns. I think it's bad enough

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that you've lost your hair. Like, that's a big thing.

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But to be badly scarred... And she is.

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Christmas morning, at the age of two, I got, like,

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a little Cinderella pyjama set from Santa.

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And a spark came off the fire and it just completely caught.

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I suffered third-degree burns down the left-hand side of my body.

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From the age of two, I have had an operation every year of my life.

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Now, at the age of 23, I'm still going for surgeries.

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I'm pregnant with my first baby, and having to go to physio,

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because my skin's not stretching. So, growing up with burns,

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it did hold me back, in certain aspects,

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but a majority of it, it actually pushed me.

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It's grew back, but it's absolutely hideous.

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'It turns out now she's expecting a baby

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'and this is a girl who thought she couldn't have a baby.'

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This wasn't going to happen for her. Now this is happening.

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This is just incredible. But believe it or not,

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her hair's started to grow back. I never thought I'd be doing this!

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My first haircut in six years! It feels strange.

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'I have special sympathy for alopecia people,

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'because it is ongoing, and it's hard for them,

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'because they've worn it on a daily basis,

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'but everything that life has thrown at her,'

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she has turned it round and I just think she's an amazing person.

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Now, this is Emily's favourite part.

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Get you in there and get your messy fingers messy!

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LAUGHTER

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'Emily has been getting chemotherapy for nine months now.'

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She has come through a really, really big journey.

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Get away down!

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-That'll test your strength today, won't it?

-Mm-hm.

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'The doctors have to give you loads and loads of treatment.'

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Most of the treatment is disgusting. I hate the treatment.

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-You know you have to get it to make you better.

-Yeah.

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-But you really don't like taking any of it.

-If it just tastes nicer...

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It tastes like poo.

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Hair is a massive thing for a ten-year-old girl.

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Going out, flicking it about and dolling herself up.

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Then, having none, it was a massive shock for her.

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I was a real girlie girl, because I used to love playing with my hair,

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I used to love to plait it and to put it in loads of different styles.

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My hair has started to fall out again.

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I'm going to think positively,

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-because my hair grew back really fast the last time.

-Yeah.

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'My sister wants it to come back ginger and my mum'

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thinks it's coming back blonde, but if it does come back blonde,

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I'm going to the hairdressers and I'm getting it dyed back

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to my original colour.

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LAUGHTER

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The one positive that Emily has taken out of all this is that she

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-can get ready quick to go anywhere.

-Mm-hm.

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'Most of the time I don't want to go out when I'm taking treatment,

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'because I feel really sick. I just watch TV

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and sometimes I get really, really bored.

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Good girl. This is amazing!

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'Sometimes you have to weigh up a bit of risk and we sort of said,

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'right, we'll go with Confirmation and birthday

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'and we'll try and make a wee bit of a fuss,'

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to give her a wee bit of...

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..like, strength to keep on going.

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ALARM BEEPS

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If I stay above the shop on the days that I have to go to

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Altnagelvin it's easier. So, Altnagelvin today.

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We are all propped up in some way, shape or form.

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We all create an illusion. We all have our insecurities.

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I've always had fine hair. I'm always interested in,

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how do you make it look thicker. I've spent most of my life

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trying to get my hair... to look thicker.

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So, I wear this wee thing here. This and the make-up.

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Love it all. This is my armour. This is all armour.

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Putting on your shield. Then, brush it up.

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You just brush it all in with what you have. Two minutes puts it on.

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On in two wee clips. Just nice. Snaps it down to what I have.

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And there you go. Ready to go.

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And then, you wouldn't believe how many times during the day

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I take that off, to let other people see that I'm dealing with...

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Listen, there's nothing to fear. I wear a piece.

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I wear something. And they go, oh!

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So they know if they see me and if I look good,

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that'll give them hope that they can look good, too.

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Molly, we're going to work! Come on!

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Chemo's been really hard and I have been very sick after each one,

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actually, getting worse.

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Because fitness and exercise has always been part of my life,

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I always wanted it to be, so if I couldn't be doing anything, it

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would have been just another thing that cancer would have took from me.

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So, I wanted to continue life with some sense of normality, I suppose.

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I had... I can't keep working, so my goal is to run a 10k

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at the end of May, for Cancer Research.

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It just made me feel normal and that, OK, I have cancer,

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but I can still do this.

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It's not going to control my life or control who I am.

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I think it's very important that they keep their sport going,

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because it's great for them, it's a social thing,

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they enjoy it and it's important that they don't let any part

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of their life slip.

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We're now open for business. OK.

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Still a hospital, but we've taken the edge off it.

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We've taken the hard edges off it.

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'Obviously, when I met Theres and she gave me my wig,

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'I was like, OK, this is great, this is grand,'

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'but the wig, kind of, came with some restrictions.'

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If I'm going for a run, I'm like, I can't wear this wig,

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it's going to be ridiculous looking. And I wouldn't want to,

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I wouldn't feel comfortable, but lo and behold,

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Theres had some very ingenious ways to deal with that.

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Here we go, Sinead. Anything, we don't like, you're getting it!

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Anything we like, we'll hold on to, yeah?

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Pass marks? It's exposing your head. OK, OK, it's exposing your head.

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When Theres put it on, we were like, where, in the name of God,

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is she going with this?! It's like... It's...

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All I could do is laugh. Oh, my God. Me and Sinead just nearly

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died laughing. I was like... Oh, my God, what is this?

0:19:030:19:06

I am not wearing this out of the house. Are you joking me?

0:19:060:19:08

And she was like, Oh, you'll be like Daddy!

0:19:080:19:10

-Daddy's hair. What?

-Daddy's got a nice style.

0:19:100:19:14

-This is what's known as the...

-A monk's head?

-..the wee monk.

0:19:140:19:19

We nicknamed that week The Monk Den, after that!

0:19:190:19:22

'I was like, "Theres, I'm not putting this on," and she's like,'

0:19:250:19:28

"It's going to be lovely, and we can get a hat on and...'

0:19:280:19:31

She was giving it everything - "It's going to be amazing."

0:19:310:19:33

-I was like, "It's really not."

-You'll either shoot it down...

0:19:330:19:37

-I'm shooting it down!

-But the pig's nice.

0:19:370:19:39

Yes, the idea of, yes, a little pig hat.

0:19:390:19:41

No, like I get what you're saying. A nice plain hat.

0:19:410:19:44

But once you have a hat on, it completely transforms itself

0:19:440:19:48

into something that is very wearable and very comfortable,

0:19:480:19:52

actually, which is good.

0:19:520:19:53

I grew up as a confident young girl, with burns. It didn't faze me.

0:20:010:20:05

I lost my hair and it was a fight for my life, to be truthful.

0:20:050:20:09

I know people and girls have said it to me that, if they lost their hair,

0:20:090:20:13

they wouldn't have got up in the morning,

0:20:130:20:15

they wouldn't have went out of the house.

0:20:150:20:17

-It's so nice.

-It's gorgeous, isn't it?

-Amazing.

0:20:170:20:20

-It looks so natural, as well.

-I love it.

0:20:200:20:21

'There is so many girls that want to do modelling

0:20:210:20:24

'and I just, sort of, gave up.

0:20:240:20:25

'I thought, you know, why would they pick me?'

0:20:250:20:29

And that was my mind-set for the first year of my alopecia.

0:20:290:20:32

'But I just had to get over it and just get on with it.

0:20:320:20:34

'I had to kick some ass.'

0:20:340:20:36

I needed to get out there. It was going to kill the person I am.

0:20:360:20:39

That is me. That was the way my hair was before, like, it all fell out.

0:20:390:20:44

'That injury must have been horrendous at the time,

0:20:440:20:47

'when it had just happened, and it was a shock'

0:20:470:20:49

to see that she must have suffered a lot as a child.

0:20:490:20:51

-That makes me sad.

-Oh...

-It does! Because you know why? I know that...

0:20:510:20:57

You can imagine, that I've said already, I know, cos...

0:20:570:21:01

That burn must have been some burn.

0:21:010:21:02

-It was bad.

-It just wasn't a wee burn. That was a very bad burn.

0:21:020:21:07

When you the scars that she has lived with,

0:21:070:21:09

you think, my goodness, this is a very special person here.

0:21:090:21:12

Not only did she turn around, but, boy, did she turn it around?

0:21:120:21:16

I kept it secret because people are mean.

0:21:210:21:23

That's why I pushed myself into modelling, as well.

0:21:230:21:26

I want to show everybody that every person's different

0:21:260:21:29

and beauty isn't what's on your body, it's what's inside.

0:21:290:21:33

It's a very strange paradox.

0:21:370:21:40

Most people would say this debilitating hair loss

0:21:400:21:43

is a negative. Instead of that, she actually takes it and says,

0:21:430:21:47

"OK, I'm going to be a beauty queen from this." You know, hello?!

0:21:470:21:50

She wears it with such style and she has such a positive outlook

0:21:510:21:59

on life, and she's now, I think, she's a poster child for alopecia.

0:21:590:22:02

You are who you are.

0:22:050:22:07

Your personality carries you off, your smile, your laugh.

0:22:070:22:10

Yes, hair does define you, until you lose it and, then, you realise,

0:22:100:22:14

you know, it's not even that important.

0:22:140:22:15

Race For Life is a sponsored run for Cancer Research UK.

0:22:220:22:27

We just said we'd go for it and we'd give it a go, and it was like,

0:22:270:22:30

yes, look, I want to run it, but if I have to walk it, I'll walk it.

0:22:300:22:34

But I am going to do it.

0:22:340:22:36

-Scare some wee child if they see me doing this!

-No, you'll not.

-I would.

0:22:380:22:42

Get me hat on now. Hide it.

0:22:420:22:45

Nobody in one million years would think she's going through chemo.

0:22:450:22:47

They'll just think she's here running for somebody else.

0:22:470:22:50

Unless my hat flies off! They'll be like, surprise!

0:22:500:22:53

LAUGHTER

0:22:530:22:55

It was just a beautiful day. It was absolutely gorgeous, like.

0:22:560:23:01

People were gathering and the atmosphere was building up

0:23:010:23:03

and there was like a board with all these tributes, I suppose,

0:23:030:23:07

to why people were running.

0:23:070:23:09

Cancer just affects everybody. There is no age.

0:23:120:23:16

You hear this thing, you're too young to have it. You're not.

0:23:160:23:19

It just really hit home that there's very few people out there now

0:23:190:23:23

that aren't affected by it.

0:23:230:23:24

-COMPERE:

-Three, two, one, Mexican wave, make some noise! Hooray!

0:23:240:23:28

Five, four, three, two, one...

0:23:280:23:33

KLAXON BLARES

0:23:330:23:35

The monk hair, on the whole, it was quite cool to wear

0:23:450:23:49

and it just felt like my own hair in a hat, which was good,

0:23:490:23:53

so I never was really worrying about what my hair looked like

0:23:530:23:56

and I could just focus on trying to breathe!

0:23:560:23:58

The heat was unbearable. My head was sweating, my hat was...

0:24:010:24:05

It was just so hot.

0:24:050:24:07

Because I knew how bad she had been feeling this time

0:24:080:24:11

and for her to get up and actually still want to do it,

0:24:110:24:15

never mind do it, it was amazing. I'm proud of her.

0:24:150:24:19

Like, she has been amazing through this whole thing. Absolutely.

0:24:190:24:22

And I couldn't be more proud of her.

0:24:220:24:25

Sinead's just a breath of fresh air. She just makes me laugh

0:24:270:24:31

all the time. And... Oh, God.

0:24:310:24:34

(Don't get emotional.)

0:24:370:24:39

I'll be going, "Oh, Sinead, I'm really tired,

0:24:400:24:42

"I can't go any further," and she'll be like, "Of course you can,

0:24:420:24:45

"what are you talking about? Don't be ridiculous!"

0:24:450:24:47

You know, she'd make a joke out of it, you know,

0:24:470:24:49

"Are you sick or something?" It was supporting each other

0:24:490:24:52

all the way round.

0:24:520:24:53

-COMPERE:

-Congratulations to everybody. Well done!

0:24:530:24:56

I got over the finish line and it was just like, I'm done,

0:24:560:24:58

I'm finished. I didn't care who seen that it all came off.

0:24:580:25:02

I just needed a minute to recuperate and just feel happy

0:25:020:25:05

that we'd done it and relax.

0:25:050:25:07

CHEERING

0:25:070:25:10

I didn't actually think I would make it here.

0:25:100:25:12

It's just a really big sense of accomplishment that I didn't

0:25:120:25:17

let cancer hold me back from doing it.

0:25:170:25:20

In many ways, it could, if you let it, but I wasn't going to.

0:25:200:25:23

I just was going to do what I wanted to do, and do it my way.

0:25:230:25:26

The morning of Confirmation, we had mostly everything organised.

0:25:320:25:37

We have the dress, we had the hair,

0:25:370:25:39

we had the invitations sent out and Emily woke up very early

0:25:390:25:44

that morning, about five o'clock, feeling very sick,

0:25:440:25:47

and it just put... It just brought reality into the house, that we were

0:25:470:25:54

not a normal family that could organise things

0:25:540:25:56

and just get on with things. We had a very sick little girl.

0:25:560:25:59

This time, she's just completely wiped, so it's so rubbish for her.

0:26:020:26:06

She has spent most of today in bad.

0:26:060:26:08

We're just going to play it as it goes.

0:26:100:26:14

So, we started making plans to unplan the plan.

0:26:170:26:22

And... That was... That was it.

0:26:220:26:26

About four o'clock, she just got out of bed and she came into

0:26:310:26:34

me and says," Mummy, you know what? I think I will go.

0:26:340:26:36

"I think I'm going to be all right."

0:26:360:26:38

I'm getting my nails painted, to look pretty for my Confirmation.

0:26:410:26:45

I'm very excited.

0:26:470:26:48

'Once she got that on, she just felt normal,

0:26:510:26:54

'and the sickness disappeared and she felt happy.'

0:26:540:26:56

'We got Emily all dressed up and her hair was absolutely beautiful.'

0:26:580:27:03

-Oh, you are gorgeous!

-Oh, Emily, that is gorgeous. I love it.

0:27:030:27:07

How do you feel?

0:27:070:27:08

-Like a princess.

-Like a princess!

0:27:080:27:11

And it was just so emotional watching her,

0:27:230:27:26

doing the things that any ten-year-old little girl

0:27:260:27:30

should be doing.

0:27:300:27:32

Nobody took notice that I was wearing a wig

0:27:380:27:41

and that was really nice for me.

0:27:410:27:44

She just was back in the limelight, being... Doing what Emily does best,

0:27:460:27:50

just shining and sparkling.

0:27:500:27:53

It's all about creating memories and life is about creating memories.

0:27:560:28:00

For us to get Emily looking good that day and that she could go along

0:28:000:28:03

with all her friends and just blend with the crowd

0:28:030:28:05

and be one of the girls... Wow.

0:28:050:28:08

ALL: # Happy birthday to you. #

0:28:080:28:12

CHEERING

0:28:120:28:15

We knew that confirmation was a risk and...nothing happened!

0:28:150:28:19

Thankfully.

0:28:210:28:22

My goal is to get all my hair back and to get back to normal life.

0:28:310:28:36

CHEERING

0:28:370:28:39

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