
Browse content similar to Before I Kick the Bucket: The Whole Story. Check below for episodes and series from the same categories and more!
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This film contains some scenes which some viewers may find upsetting | 0:00:02 | 0:00:04 | |
and strong language. | 0:00:04 | 0:00:06 | |
'I'm Rowena Kincaid, a fun-loving, hard-working 39-year-old from Cardiff | 0:00:06 | 0:00:09 | |
'with a lust for life and a laugh that'll make your ears bleed. | 0:00:09 | 0:00:12 | |
'I'm also terminally ill. I'm dying from cancer. | 0:00:12 | 0:00:14 | |
'I've been told that this year is likely to be my last | 0:00:14 | 0:00:17 | |
'and not to even think about making it to 40.' | 0:00:17 | 0:00:20 | |
When I was first diagnosed, | 0:00:20 | 0:00:21 | |
I was told I had three to six months to live. | 0:00:21 | 0:00:23 | |
'What would you do if you found out you only had months to live? | 0:00:23 | 0:00:26 | |
'Would you keep calm and carry on as normal? | 0:00:26 | 0:00:29 | |
'Set about achieving all of your hopes and dreams or say, | 0:00:29 | 0:00:32 | |
' "Sod this for a game of soldiers, I'm going streaking"?' | 0:00:32 | 0:00:35 | |
SHE SHRIEKS | 0:00:35 | 0:00:37 | |
'The first thing I did was to buy myself a car that I can't afford | 0:00:37 | 0:00:40 | |
'on three years' finance, jump on a plane to Cuba, | 0:00:40 | 0:00:43 | |
'get drunk and stage a sham wedding | 0:00:43 | 0:00:45 | |
'with a stranger I'll never see again. | 0:00:45 | 0:00:47 | |
'For the last 12 months, I've also been making this film | 0:00:47 | 0:00:50 | |
'for the BBC. You may have seen the first instalment last year, | 0:00:50 | 0:00:53 | |
'but this is the full story, | 0:00:53 | 0:00:55 | |
'including what's happened since the broadcast. | 0:00:55 | 0:00:58 | |
'It's a no-punches-pulled account of my life | 0:00:58 | 0:01:00 | |
'and my attempt to work out what the hell I'm going to do with it.' | 0:01:00 | 0:01:04 | |
This is the worst thing that can happen. | 0:01:04 | 0:01:06 | |
-There's nothing worse than this now. -Apart from dying. | 0:01:06 | 0:01:08 | |
SHE LAUGHS | 0:01:08 | 0:01:09 | |
It says here, to join the mile-high club. | 0:01:09 | 0:01:11 | |
I still haven't done that. | 0:01:11 | 0:01:13 | |
'Because if these are my final months, | 0:01:13 | 0:01:15 | |
'I don't want to tick off a list of wacky cliches. | 0:01:15 | 0:01:18 | |
'I want to live well and treasure every single second.' | 0:01:18 | 0:01:21 | |
I don't want to leave this planet. It's too beautiful. | 0:01:21 | 0:01:24 | |
There's too many nice things to do. | 0:01:24 | 0:01:26 | |
'So, I'm on a mission to meet others in the same boat as me | 0:01:26 | 0:01:29 | |
'and see what they're doing with their lives.' | 0:01:29 | 0:01:31 | |
I will live every single day like it's my last. | 0:01:31 | 0:01:33 | |
So it's called three girls, two legs, two tumours | 0:01:33 | 0:01:36 | |
and one enormous mountain. | 0:01:36 | 0:01:37 | |
I've got too many things to do. | 0:01:37 | 0:01:39 | |
I know. I know, I feel that, as well. | 0:01:39 | 0:01:41 | |
'But I'm also going to fight this wretched disease.' | 0:01:41 | 0:01:44 | |
I've been looking forward to meeting my tumour, | 0:01:44 | 0:01:46 | |
I've got some really big swear words for it. | 0:01:46 | 0:01:48 | |
I wish I could punch it, or something! | 0:01:48 | 0:01:50 | |
And goddamn you, cancer, I'm going to make it to my 40th! | 0:01:50 | 0:01:53 | |
'I want to live beyond my prognosis, make it to 40 | 0:01:53 | 0:01:57 | |
'and throw the biggest party for all my friends, | 0:01:57 | 0:01:59 | |
'but will that be enough?' | 0:01:59 | 0:02:01 | |
I don't want any more treatment. | 0:02:01 | 0:02:04 | |
I can't believe I'm doing this. | 0:02:04 | 0:02:06 | |
I'm going for a fake tan. I'm going to spray my bald head. | 0:02:06 | 0:02:09 | |
'Should I be doing more?' | 0:02:09 | 0:02:10 | |
I've been to plenty of funerals. I sit there and go, "Wow!" | 0:02:10 | 0:02:13 | |
If they were to write about me, there'd be nothing to say! | 0:02:13 | 0:02:16 | |
'What if I'm haunted on my deathbed by all the things I didn't do?' | 0:02:16 | 0:02:19 | |
I don't actually think it's that far off. | 0:02:19 | 0:02:21 | |
I am actually petrified of dying. | 0:02:21 | 0:02:23 | |
'I guess we're about to find out, so settle down and strap in, | 0:02:23 | 0:02:27 | |
'because this is my life, before I kick the bucket.' | 0:02:27 | 0:02:31 | |
I discovered my lump on a hangover. | 0:02:48 | 0:02:50 | |
For one moment, I still thought nothing was wrong. | 0:02:50 | 0:02:54 | |
They found a cyst or something similar, I thought, | 0:02:54 | 0:02:56 | |
and they're going to tell me to stop eating chips | 0:02:56 | 0:02:59 | |
or stop drinking alcohol, or something. | 0:02:59 | 0:03:01 | |
"Your results are back and I'll get straight to it. | 0:03:03 | 0:03:06 | |
"Your biopsy came back with cancer. | 0:03:07 | 0:03:09 | |
"I'm sorry to tell you you have breast cancer." | 0:03:09 | 0:03:12 | |
"You're having a fucking laugh." | 0:03:14 | 0:03:16 | |
'Last year, I was diagnosed with stage-four secondary breast cancer. | 0:03:16 | 0:03:20 | |
'There is no stage five. There is no cure.' | 0:03:20 | 0:03:23 | |
How could this be happening to me? | 0:03:23 | 0:03:25 | |
I'm too young. Really unfair, so unfair. | 0:03:25 | 0:03:28 | |
A girl in her prime, fit as a fiddle, and I've got cancer. | 0:03:28 | 0:03:33 | |
'This is likely to be my last year on this planet | 0:03:33 | 0:03:36 | |
'and I need to work out what the bloody hell I'm going to do.' | 0:03:36 | 0:03:39 | |
Make The Most Of Your Time On Earth. | 0:03:39 | 0:03:42 | |
'Everyone tells me I should write a bucket list. | 0:03:42 | 0:03:45 | |
'Apparently, that's what you're meant to do | 0:03:45 | 0:03:47 | |
'when you're terminally ill.' | 0:03:47 | 0:03:49 | |
They're all saying the same thing - get a tattoo, | 0:03:49 | 0:03:52 | |
visit every country, skydive... | 0:03:52 | 0:03:55 | |
It says here to join the mile-high club. | 0:03:55 | 0:03:58 | |
I still haven't done that! | 0:03:58 | 0:04:00 | |
But they're so cramped in those little toilets! | 0:04:00 | 0:04:03 | |
It's a little bit bollocks-y, really. | 0:04:03 | 0:04:05 | |
It is a little bit load of bollocks, isn't it? | 0:04:05 | 0:04:07 | |
I don't know. | 0:04:07 | 0:04:09 | |
I mean, it says here to be an extra in a film. | 0:04:09 | 0:04:11 | |
Well, I've always wanted to do that. | 0:04:11 | 0:04:13 | |
Imagine that, being a Stormtrooper! | 0:04:13 | 0:04:15 | |
'I've made and posted a video online | 0:04:15 | 0:04:16 | |
'in the hope of meeting other young people who are terminally ill | 0:04:16 | 0:04:19 | |
'and living on borrowed time.' | 0:04:19 | 0:04:21 | |
It might be that you have a bucket list | 0:04:21 | 0:04:23 | |
or you might think they're actually a waste of time and energy. | 0:04:23 | 0:04:27 | |
'I'll let you in to a secret. | 0:04:27 | 0:04:29 | |
'When you tell people on the internet that you're terminally ill, | 0:04:29 | 0:04:32 | |
'things tend to get a bit crazy.' | 0:04:32 | 0:04:34 | |
"What a lush girl!" | 0:04:34 | 0:04:36 | |
'Not only are hundreds of people now getting in touch, | 0:04:36 | 0:04:38 | |
'my story's been picked up by the media. | 0:04:38 | 0:04:41 | |
When I was first diagnosed, | 0:04:41 | 0:04:42 | |
I was told I had three to six months to live. | 0:04:42 | 0:04:44 | |
That's why I feel like I have to do stuff | 0:04:44 | 0:04:47 | |
to make the most of my life, while I feel OK to do it, at present, | 0:04:47 | 0:04:51 | |
before I'm on more treatment | 0:04:51 | 0:04:53 | |
and then it's treatment and treatment and treatment | 0:04:53 | 0:04:56 | |
and then it gets worse and there's nothing else I can do but give up, | 0:04:56 | 0:05:00 | |
I suppose. But I'm not going to give up, | 0:05:00 | 0:05:02 | |
because I've got this massive fire in my belly | 0:05:02 | 0:05:04 | |
and I just want to do stuff | 0:05:04 | 0:05:05 | |
but I'm not entirely sure what it is I'm going to do! | 0:05:05 | 0:05:08 | |
'Of course, there are thousands of things I could do, | 0:05:08 | 0:05:10 | |
'but when you've only got a few months, | 0:05:10 | 0:05:12 | |
'how do you know you're not wasting them? | 0:05:12 | 0:05:15 | |
'I've also got to be realistic. | 0:05:15 | 0:05:17 | |
'I'd love nothing more than to travel the world, | 0:05:17 | 0:05:20 | |
'but my trip to Cuba was probably my last. | 0:05:20 | 0:05:23 | |
'Physically, I'm in no fit state. | 0:05:23 | 0:05:25 | |
'And besides, have you ever tried getting travel insurance | 0:05:25 | 0:05:29 | |
'when you're terminally ill? | 0:05:29 | 0:05:30 | |
So, are you asking, if I'm doing to die? | 0:05:30 | 0:05:32 | |
'We would need to know how many months your doctor has given you.' | 0:05:32 | 0:05:36 | |
Yeah. No-one knows how long I've got. | 0:05:36 | 0:05:38 | |
'Right. Unfortunately, without the information, | 0:05:38 | 0:05:42 | |
'we wouldn't be able to proceed on the quotation, I'm afraid.' | 0:05:42 | 0:05:44 | |
'One of the reasons I haven't got a bucket list is because, | 0:05:44 | 0:05:47 | |
'whilst I've always made an effort in life to travel | 0:05:47 | 0:05:50 | |
'and have fun, for the last 15 years, my job was my life.' | 0:05:50 | 0:05:55 | |
Time for the weather now. With the details, here's Rowena Kincaid. | 0:05:55 | 0:05:58 | |
Hello, good morning. | 0:05:58 | 0:06:00 | |
Well, it's going to be a very cloudy Good Friday | 0:06:00 | 0:06:03 | |
and we do have some rain in the forecast, too... | 0:06:03 | 0:06:07 | |
'After 13 years working behind the scenes at BBC Wales, | 0:06:07 | 0:06:10 | |
'I finally got the chance to seize my dream job. | 0:06:10 | 0:06:13 | |
'Cruelly, soon after starting as a weather presenter, | 0:06:13 | 0:06:16 | |
'cancer pulled the rug out from under my feet.' | 0:06:16 | 0:06:18 | |
I've always been that person that believes you can do | 0:06:18 | 0:06:21 | |
anything in your life, if you set your mind to it, | 0:06:21 | 0:06:25 | |
and that was my goal, | 0:06:25 | 0:06:27 | |
and now I'm, kind of, like, "Oh, shit." | 0:06:27 | 0:06:31 | |
I don't have kids and I don't have a boyfriend | 0:06:31 | 0:06:34 | |
and I'm never going to get married, | 0:06:34 | 0:06:37 | |
and I think all those nice, normal, pleasant, reasons-for-living things | 0:06:37 | 0:06:44 | |
are not mine. | 0:06:44 | 0:06:46 | |
I think I've got to the point now | 0:06:46 | 0:06:48 | |
where those things are not meant to be for me now, | 0:06:48 | 0:06:50 | |
because I was too busy doing that. | 0:06:50 | 0:06:52 | |
'So, when an e-mail popped up from a young doctor from Bristol | 0:06:52 | 0:06:55 | |
'saying he was in the same boat as me | 0:06:55 | 0:06:57 | |
'and completely got what I was saying, | 0:06:57 | 0:07:00 | |
'I wanted to meet him straight away.' | 0:07:00 | 0:07:02 | |
So, how long have you been a doctor for? | 0:07:02 | 0:07:04 | |
Only 18 months. I'm enjoying my job. It's good, actually. | 0:07:04 | 0:07:07 | |
-Yeah? -Yeah. | 0:07:07 | 0:07:08 | |
'Because Mark Sims was told only three weeks ago | 0:07:08 | 0:07:11 | |
'that the skin cancer that nearly killed him as a child was back | 0:07:11 | 0:07:14 | |
'and that, now, aged 27, he was, like me, terminally ill.' | 0:07:14 | 0:07:20 | |
Yeah, you know, my life before | 0:07:22 | 0:07:25 | |
was sat down watching Breaking Bad or something. | 0:07:25 | 0:07:27 | |
-I've been feeling like Breaking Bad, yeah. -Yeah. | 0:07:27 | 0:07:29 | |
I've wanted to do things. | 0:07:29 | 0:07:30 | |
Maybe we should start cooking crystal meth together... | 0:07:30 | 0:07:33 | |
-OK, then! -..on the back of this. | 0:07:33 | 0:07:35 | |
This is it, this is the kind of thing that, | 0:07:35 | 0:07:37 | |
when I first got diagnosed, like, I wanted to do crazy shit. | 0:07:37 | 0:07:41 | |
I did. I just wanted to get myself arrested. | 0:07:41 | 0:07:43 | |
Where do bucket lists come from? Is it from a film? | 0:07:43 | 0:07:46 | |
I don't know. I saw your video and it, kind of, resonated with me, | 0:07:46 | 0:07:49 | |
the fact that people are almost expected to have a bucket list. | 0:07:49 | 0:07:53 | |
Yeah. Do you feel like there's maybe a little bit of a pressure | 0:07:53 | 0:07:57 | |
to do more or be extravagant, because this is our time now? | 0:07:57 | 0:08:01 | |
This is it. This is, like, you've got to do something before you die. | 0:08:01 | 0:08:04 | |
I do. | 0:08:04 | 0:08:06 | |
I clearly don't have the stereotypical bucket list | 0:08:06 | 0:08:09 | |
of jump out of a plane or do a bungee jump, because... | 0:08:09 | 0:08:13 | |
Well, I've done a bungee jump, anyway. | 0:08:13 | 0:08:15 | |
'It's really interesting talking to Mark. | 0:08:15 | 0:08:17 | |
'It seems that, if you're young and terminally ill, | 0:08:17 | 0:08:20 | |
'there's a definite expectation to behave in a particular way. | 0:08:20 | 0:08:23 | |
'But reality is way more complicated. | 0:08:23 | 0:08:26 | |
'And it's this we're both really valuing sharing.' | 0:08:26 | 0:08:29 | |
It was only until I broke up... | 0:08:29 | 0:08:31 | |
Me and the guy I was seeing, | 0:08:31 | 0:08:33 | |
we broke up on Wednesday, | 0:08:33 | 0:08:35 | |
did I really realise how shit having cancer is, | 0:08:35 | 0:08:38 | |
because I can't have a future with him. | 0:08:38 | 0:08:41 | |
How do you go, "Actually, this can't be a long relationship"? | 0:08:41 | 0:08:46 | |
'Not only the difficulties of dating whilst dying, | 0:08:46 | 0:08:49 | |
'but about the lengths you'd go to for a cure.' | 0:08:49 | 0:08:52 | |
I'd pretty much fuck anything... | 0:08:52 | 0:08:54 | |
SHE LAUGHS | 0:08:54 | 0:08:56 | |
I'd fuck the Pope for a cure. | 0:08:56 | 0:08:58 | |
You've got to live for ever or die trying, in my book, so... | 0:08:58 | 0:09:02 | |
Oh, my God. Yeah. | 0:09:02 | 0:09:04 | |
'And the complicated emotions you feel.' | 0:09:04 | 0:09:06 | |
I'd never really come to terms with being cured from cancer, | 0:09:06 | 0:09:08 | |
let alone having it again. | 0:09:08 | 0:09:10 | |
Yeah, and then, when it came back... | 0:09:10 | 0:09:14 | |
It's always been... | 0:09:14 | 0:09:16 | |
It's always been my worst nightmare and... | 0:09:16 | 0:09:20 | |
..and there it is. | 0:09:21 | 0:09:24 | |
You're living through your worst nightmare. | 0:09:24 | 0:09:27 | |
(Oh, God.) | 0:09:29 | 0:09:30 | |
I've got too many things to do. | 0:09:33 | 0:09:35 | |
I know. | 0:09:35 | 0:09:37 | |
I know, I feel that, as well. | 0:09:37 | 0:09:40 | |
'I know exactly how Mark feels. | 0:09:40 | 0:09:43 | |
'That fear in his gut, I feel it myself every day.' | 0:09:43 | 0:09:47 | |
'Just over a year ago, | 0:10:01 | 0:10:02 | |
'a tumour the size of a baked potato began pushing out of my chest. | 0:10:02 | 0:10:06 | |
'Chemotherapy and radiotherapy shrank it down, | 0:10:06 | 0:10:09 | |
'but its cells had already spread to my chest cavity and nodes. | 0:10:09 | 0:10:13 | |
'Life is now a battle just to stay alive. | 0:10:13 | 0:10:16 | |
'Treatment is gruelling and never ending, | 0:10:16 | 0:10:19 | |
'not only for me, but for my sister Mel, | 0:10:19 | 0:10:21 | |
'who tirelessly brings me each time I need chemo. | 0:10:21 | 0:10:24 | |
'At some point, it will stop working, | 0:10:24 | 0:10:27 | |
'but for now, it keeps my cancer at bay | 0:10:27 | 0:10:29 | |
'and it buys me just a little bit more time.' | 0:10:29 | 0:10:32 | |
I just feel rotten. | 0:10:32 | 0:10:34 | |
Eating is impossible. | 0:10:34 | 0:10:36 | |
So rotten, I can't move. | 0:10:36 | 0:10:38 | |
My head is pounding. | 0:10:38 | 0:10:40 | |
I hate it. | 0:10:40 | 0:10:41 | |
Oh, my God, I just wish it would stop. | 0:10:41 | 0:10:44 | |
But it keeps me going. | 0:10:44 | 0:10:47 | |
'After a session of chemo, | 0:10:53 | 0:10:55 | |
'I'm generally in bed for well over a week. | 0:10:55 | 0:10:57 | |
'It's like the worst hangover you've ever had, | 0:10:57 | 0:11:00 | |
'combined with the worst flu. | 0:11:00 | 0:11:02 | |
'You wouldn't wish it on your worst enemy. | 0:11:02 | 0:11:04 | |
'And so, when I finally re-emerge into the land of the living, | 0:11:04 | 0:11:08 | |
'there's often a bit of cleaning up to do.' | 0:11:08 | 0:11:10 | |
Being on your own, | 0:11:12 | 0:11:14 | |
living on your own, going through chemo is really hard. | 0:11:14 | 0:11:16 | |
When you live on your own | 0:11:16 | 0:11:18 | |
and you're used to doing everything by yourself, | 0:11:18 | 0:11:20 | |
when you're so independent, | 0:11:20 | 0:11:22 | |
It's just really testing to get up for a glass of water | 0:11:22 | 0:11:25 | |
or going to the loo sometimes, even, has been a bit of an effort. | 0:11:25 | 0:11:30 | |
It's ridiculous. | 0:11:30 | 0:11:32 | |
It's so sad. | 0:11:32 | 0:11:34 | |
I've never asked anyone for anything and I think, | 0:11:34 | 0:11:37 | |
if I start asking for help, then that means I'm really ill. | 0:11:37 | 0:11:43 | |
So, I don't ask for it | 0:11:43 | 0:11:45 | |
and I don't like to. | 0:11:45 | 0:11:48 | |
I'm young. | 0:11:48 | 0:11:49 | |
Why should I be asking for help for cooking my dinner? | 0:11:49 | 0:11:52 | |
It's not right, is it? Really? | 0:11:52 | 0:11:55 | |
'I do know that I try to protect people from how I feel at home, | 0:11:57 | 0:12:00 | |
'because it's hard enough to control my own emotions, | 0:12:00 | 0:12:03 | |
'let alone those of my family and friends. | 0:12:03 | 0:12:06 | |
'In truth, I don't see my parents particularly often | 0:12:06 | 0:12:08 | |
'and whilst my brother and sister are my rock, | 0:12:08 | 0:12:10 | |
'I don't want them, or my mates, as shoulders to cry on. | 0:12:10 | 0:12:13 | |
'I need them as a refuge of normality | 0:12:13 | 0:12:16 | |
'and so, I try to keep them at arm's length from my cancer, | 0:12:16 | 0:12:19 | |
'for their sake and mine, | 0:12:19 | 0:12:20 | |
'but I've recently heard from a young woman | 0:12:20 | 0:12:23 | |
'with incurable brain tumours who's not only written a bucket list, | 0:12:23 | 0:12:26 | |
'but has written it with her friend, | 0:12:26 | 0:12:28 | |
'and so, I've come to meet her, to see if she can teach me anything | 0:12:28 | 0:12:31 | |
'about making the most of what time I've got left.' | 0:12:31 | 0:12:34 | |
-Hello! -Hey, Beth. | 0:12:34 | 0:12:35 | |
How are you? | 0:12:35 | 0:12:37 | |
'Beth's only 23 and had just qualified as a teacher | 0:12:37 | 0:12:41 | |
'when she was diagnosed. | 0:12:41 | 0:12:42 | |
'She's invited me to her parents' house to meet the whole gang | 0:12:42 | 0:12:45 | |
'and help them tick off one of their bucket list ambitions - | 0:12:45 | 0:12:48 | |
'a charity night in for Macmillan.' | 0:12:48 | 0:12:51 | |
So, it's not a bucket list, then? | 0:12:51 | 0:12:53 | |
It's not called a bucket list. A bucket list is morbid, | 0:12:53 | 0:12:55 | |
-so it's a "fuck it" list. -Fuck it? -Fuck it! We're doing it. | 0:12:55 | 0:12:58 | |
See, it's really interesting, | 0:12:58 | 0:13:00 | |
because it seems like everyone has to have a bucket list. | 0:13:00 | 0:13:02 | |
The stereotypical social bit was pushed into my mind, | 0:13:02 | 0:13:05 | |
because I thought, "I haven't done this! | 0:13:05 | 0:13:07 | |
"I haven't done it! What am I going to do? I haven't done it!" | 0:13:07 | 0:13:10 | |
And then, "So... I haven't done it anyway!" | 0:13:10 | 0:13:12 | |
So you just chilled out about it? | 0:13:12 | 0:13:13 | |
Yeah! We didn't make the list the week after I was diagnosed. | 0:13:13 | 0:13:17 | |
Ours was to make memories, from my point of view. | 0:13:17 | 0:13:20 | |
If I don't do them, I don't do them. | 0:13:20 | 0:13:23 | |
-And you're not going to sweat about it? -No. | 0:13:23 | 0:13:25 | |
-It's not going to make a change... -Definitely not. | 0:13:25 | 0:13:27 | |
'I can't believe how relaxed Beth is. | 0:13:27 | 0:13:29 | |
'Looking at her, laughing with friends | 0:13:29 | 0:13:32 | |
'and making jokes about her tumours, | 0:13:32 | 0:13:34 | |
'I had a bit of an out-of-body experience...' | 0:13:34 | 0:13:37 | |
What is the point in not laughing about it? | 0:13:37 | 0:13:39 | |
-I do that, as well. -It's not going to solve anything. -That is superb. | 0:13:39 | 0:13:42 | |
'..because I could, for the first time, | 0:13:42 | 0:13:43 | |
'see what my friends must see when they look at me - | 0:13:43 | 0:13:46 | |
'a fun-loving girl making light of a situation.' | 0:13:46 | 0:13:49 | |
What was it the other day? | 0:13:49 | 0:13:51 | |
I said, "I'll be the one with cancer, dribbling in the corner." | 0:13:51 | 0:13:54 | |
And they went, "You can't say that!" and I went, "Yeah, I can." | 0:13:54 | 0:13:57 | |
'But it must also make it so difficult for them | 0:13:57 | 0:13:59 | |
'to fully grasp the seriousness of my situation.' | 0:13:59 | 0:14:02 | |
Do you think they really understand what's going on? | 0:14:02 | 0:14:04 | |
I don't think they can. I don't think it's possible. | 0:14:04 | 0:14:07 | |
It's hard for anyone to understand, | 0:14:07 | 0:14:10 | |
unless they're in the position, with anything. | 0:14:10 | 0:14:12 | |
They ask the questions, which they want to understand, | 0:14:12 | 0:14:16 | |
which is brilliant, and I'd never say they're not supportive, | 0:14:16 | 0:14:19 | |
because they are. | 0:14:19 | 0:14:21 | |
If I rang them, they'd be there. | 0:14:21 | 0:14:23 | |
It's not about support, it's about understanding. | 0:14:23 | 0:14:26 | |
But I don't think you can understand. | 0:14:26 | 0:14:28 | |
-I didn't understand. -No. | 0:14:28 | 0:14:30 | |
I didn't understand. Like, I had family relations | 0:14:30 | 0:14:34 | |
that were really terminally ill | 0:14:34 | 0:14:37 | |
and I found myself saying those things - | 0:14:37 | 0:14:39 | |
"You're going to be fine. You're going to make it." | 0:14:39 | 0:14:42 | |
Do you know what? It's really weird, I know I'm in the same situation, | 0:14:42 | 0:14:45 | |
but it's really weird looking at you and chatting to you, | 0:14:45 | 0:14:48 | |
I feel like your friends probably do. | 0:14:48 | 0:14:51 | |
It's just surreal. | 0:14:51 | 0:14:52 | |
'I'm amazed by Beth's calm. | 0:14:54 | 0:14:56 | |
'I want whatever she's on. | 0:14:56 | 0:14:59 | |
'Because as someone who hides behind humour and make-up, | 0:14:59 | 0:15:02 | |
'I know just how exhausting it is to hold it together | 0:15:02 | 0:15:06 | |
'in front of friends and family, | 0:15:06 | 0:15:08 | |
'and just how hard it is to look so happy, healthy and brave | 0:15:08 | 0:15:12 | |
'all of the time.' | 0:15:12 | 0:15:13 | |
I don't pretend it's not happening, but I just like to look well. | 0:15:16 | 0:15:20 | |
I'm really scared that I won't start looking well | 0:15:21 | 0:15:24 | |
and I know my body's going to be a terrible state, at some point, | 0:15:24 | 0:15:27 | |
as it all starts getting really bad and... | 0:15:27 | 0:15:32 | |
Obviously, I won't give a shit about the make-up, by then | 0:15:32 | 0:15:35 | |
but while I can look good, I want to look good. | 0:15:35 | 0:15:40 | |
That's basically it. | 0:15:40 | 0:15:42 | |
Because I don't know how long I'm going to look like this for... | 0:15:42 | 0:15:46 | |
..really, and that does upset me. Sorry. | 0:15:47 | 0:15:51 | |
'The hardest thing about terminal illness | 0:15:53 | 0:15:55 | |
'is the total lack of control, | 0:15:55 | 0:15:57 | |
'but I've realised recently that there is one thing | 0:15:57 | 0:16:00 | |
'I can completely control, | 0:16:00 | 0:16:02 | |
'so I've decided to start planning my own funeral. | 0:16:02 | 0:16:05 | |
'And do you know what? | 0:16:05 | 0:16:07 | |
'I think I'm going to have a party.' | 0:16:07 | 0:16:09 | |
Have you given any thought to burial or cremation? | 0:16:09 | 0:16:14 | |
Oh, it's very difficult, because, with burial, | 0:16:14 | 0:16:16 | |
I don't really like the idea of worms eating me. | 0:16:16 | 0:16:19 | |
And then, there's the cremation... | 0:16:19 | 0:16:21 | |
I don't like the idea of being burnt to death, | 0:16:21 | 0:16:25 | |
-even though I'll be dead anyway. -Hmm. | 0:16:25 | 0:16:28 | |
But then, it's really hard to imagine yourself dead. | 0:16:28 | 0:16:30 | |
-Oh, gosh. It's quite hard to think about, isn't it? -It is. | 0:16:30 | 0:16:35 | |
'To try and help me make a decision, John, my funeral director, | 0:16:35 | 0:16:38 | |
'has agreed to talk me through some of the available options.' | 0:16:38 | 0:16:42 | |
I'm not a boring person, I'm not looking for a boring funeral. | 0:16:42 | 0:16:45 | |
I want people to go to my funeral | 0:16:45 | 0:16:47 | |
and go, "That was a good funeral, wow." | 0:16:47 | 0:16:50 | |
I want a funeral like that. | 0:16:50 | 0:16:52 | |
I know exactly what I'm wearing. | 0:16:52 | 0:16:54 | |
Most of the songs I know are all dance tunes | 0:16:54 | 0:16:56 | |
and they're all crazy and they're all like, | 0:16:56 | 0:16:58 | |
# Boop, boop, boop, p-pew! Boop, boop, boop, p-pew! # | 0:16:58 | 0:17:01 | |
Can you imagine a whole load of people singing that?! | 0:17:01 | 0:17:03 | |
'Planning your own funeral is a bit like internet shopping - | 0:17:03 | 0:17:06 | |
'you buy things you wouldn't usually buy.' | 0:17:06 | 0:17:08 | |
Like, embalming and stuff - what's that all about? | 0:17:08 | 0:17:12 | |
'And you tend to get carried away.' | 0:17:12 | 0:17:14 | |
-Flowers or donations? -Both? -OK. | 0:17:14 | 0:17:17 | |
'But my philosophy is that, with all of the big purchases in life, | 0:17:17 | 0:17:21 | |
'it's always best to try before you die.' | 0:17:21 | 0:17:25 | |
You always think about hearses stopping fast | 0:17:25 | 0:17:27 | |
and then coffins shooting out the back. | 0:17:27 | 0:17:30 | |
I think that comes from comedy programmes, doesn't it? | 0:17:30 | 0:17:34 | |
Not that it's very comical. | 0:17:34 | 0:17:35 | |
'John doesn't normally include a visit to the warehouse | 0:17:35 | 0:17:38 | |
'as part of the service, but he's kindly doing so for me. | 0:17:38 | 0:17:41 | |
'And whilst I don't know whether to be buried or cremated, | 0:17:41 | 0:17:44 | |
'I do know that I want to be comfortable in my coffin.' | 0:17:44 | 0:17:48 | |
What's that piece of wood there? | 0:17:48 | 0:17:49 | |
-That's a headrest. -Oh, is it? | 0:17:49 | 0:17:52 | |
I don't know how I feel about that. | 0:17:52 | 0:17:54 | |
So, can you make that more cosy? | 0:17:54 | 0:17:56 | |
-Yes. -Because that's really not cosy, at all. | 0:17:56 | 0:17:59 | |
In my head, I imagine having a coffin | 0:17:59 | 0:18:02 | |
that's really comfortable and cosy. | 0:18:02 | 0:18:04 | |
'I assume John's customers are usually a little less demanding, | 0:18:04 | 0:18:07 | |
'because this is the first time he's had to fit a coffin | 0:18:07 | 0:18:10 | |
'on someone still living.' | 0:18:10 | 0:18:12 | |
I can't believe I'm doing this! That's ridiculous. | 0:18:12 | 0:18:14 | |
-I'm fitting... Oh, no, I'm too tall. -A little bit tight. | 0:18:14 | 0:18:17 | |
I'm not comfortable in this one. No, I don't like this one. | 0:18:17 | 0:18:20 | |
I want a bigger one, please. | 0:18:20 | 0:18:22 | |
'But I know exactly what I want to wear, | 0:18:22 | 0:18:25 | |
'and it's very important that everything looks right.' | 0:18:25 | 0:18:28 | |
Ta-da! | 0:18:28 | 0:18:30 | |
So, thanks for letting me do this. | 0:18:30 | 0:18:32 | |
I wouldn't do it for everybody. | 0:18:32 | 0:18:34 | |
But then, not everyone's as crazy as I am. | 0:18:34 | 0:18:37 | |
No, you're absolutely right, Rowena! You're absolutely right! | 0:18:37 | 0:18:41 | |
'Life isn't a dress rehearsal. | 0:18:45 | 0:18:47 | |
'This is it. | 0:18:47 | 0:18:49 | |
'This is happening now. | 0:18:49 | 0:18:51 | |
'And it's funny. | 0:18:51 | 0:18:53 | |
'I used to put things off till tomorrow. | 0:18:53 | 0:18:55 | |
'I always told myself that, in the future, | 0:18:55 | 0:18:58 | |
'my real life, the one I secretly imagined, | 0:18:58 | 0:19:00 | |
'was finally going to start. | 0:19:00 | 0:19:02 | |
'I just always thought I had time, | 0:19:02 | 0:19:05 | |
'but knowing that my time is now limited, | 0:19:05 | 0:19:07 | |
'well, that's the scariest feeling in the world.' | 0:19:07 | 0:19:12 | |
I always think that I'm bigger than my cancer, | 0:19:12 | 0:19:15 | |
but I know it's bigger than me. | 0:19:15 | 0:19:18 | |
It really upsets me... | 0:19:20 | 0:19:22 | |
..because at any time, it can just do what it wants | 0:19:24 | 0:19:30 | |
and I hate it, | 0:19:30 | 0:19:32 | |
because this isn't me. | 0:19:32 | 0:19:34 | |
'I'd recently heard from a man who's lived for over 40 years | 0:19:34 | 0:19:38 | |
'fearing each day could be his last. | 0:19:38 | 0:19:40 | |
'How do you do that? How do you sleep at night? | 0:19:40 | 0:19:44 | |
'I'm hoping Tim Wotton can enlighten me | 0:19:44 | 0:19:47 | |
'because, born with cystic fibrosis, | 0:19:47 | 0:19:49 | |
'he was told he wouldn't even make it past 17. | 0:19:49 | 0:19:52 | |
'Yet, here he is, | 0:19:52 | 0:19:54 | |
'a husband and a father, with a busy City job, | 0:19:54 | 0:19:57 | |
'who lives every day as if it's his last.' | 0:19:57 | 0:20:00 | |
Do you always go for a walk on your lunch break? | 0:20:00 | 0:20:03 | |
And do you always get out and about and do stuff when you can? | 0:20:03 | 0:20:07 | |
Yeah, I try and carpe diem - seize every day. | 0:20:07 | 0:20:10 | |
When I was younger, | 0:20:10 | 0:20:12 | |
when I didn't really expect to get beyond 30, | 0:20:12 | 0:20:15 | |
because so many few people with my illness did, | 0:20:15 | 0:20:17 | |
I had this mantra around weekends, called "window seven". | 0:20:17 | 0:20:21 | |
You had a slot, Friday evening, Saturday morning, | 0:20:21 | 0:20:25 | |
afternoon and evening, and the same on Sunday. | 0:20:25 | 0:20:28 | |
-I had to fill every single window, hence my "window seven". -OK. | 0:20:28 | 0:20:34 | |
I still feel that way, actually, about life now, | 0:20:34 | 0:20:36 | |
I've had to slow down, but actually, I still like to feel, | 0:20:36 | 0:20:39 | |
-should tomorrow never happen... -Yeah. You've done something. | 0:20:39 | 0:20:43 | |
I feel delighted that I've seen something memorable, | 0:20:43 | 0:20:46 | |
felt something memorable, and that's important. | 0:20:46 | 0:20:50 | |
Is that a bucket list? | 0:20:50 | 0:20:51 | |
Do you actually have a list of things to do? | 0:20:51 | 0:20:53 | |
-It's never formally been written down. -Right. | 0:20:53 | 0:20:56 | |
What it is, it's a mantra and a mind-set every day that, | 0:20:56 | 0:21:00 | |
despite the two to three hours of treatment every day | 0:21:00 | 0:21:04 | |
and the constant reminders of my illness, | 0:21:04 | 0:21:07 | |
I will live every single day like it's my last. | 0:21:07 | 0:21:10 | |
So, it's seeing the unseen opportunities to make a difference. | 0:21:10 | 0:21:15 | |
It's going to appreciate a sight, like today, in London. | 0:21:15 | 0:21:19 | |
It's going to see some landscape, it's going to get a sea view. | 0:21:19 | 0:21:23 | |
Even stopping still and being in awe of the world around you, | 0:21:23 | 0:21:27 | |
that people just fly by and miss. | 0:21:27 | 0:21:29 | |
A bird, an animal, I pick a worm up from the path. | 0:21:29 | 0:21:33 | |
Anything that actually feels like you're in touch | 0:21:33 | 0:21:36 | |
with your surroundings. | 0:21:36 | 0:21:38 | |
A lot of people go their whole life and not open their eyes | 0:21:38 | 0:21:41 | |
and see what's around them, and appreciate being in the moment. | 0:21:41 | 0:21:45 | |
-Mm-hm. -But actually, every day, that is what I live for. | 0:21:45 | 0:21:49 | |
'I wonder how many people see the world like Tim. | 0:21:49 | 0:21:52 | |
'How many people stop and appreciate the beauty of life flying by, | 0:21:52 | 0:21:56 | |
'and all the everyday opportunities to feel alive? | 0:21:56 | 0:22:00 | |
'I know I don't. | 0:22:00 | 0:22:02 | |
'And so, I had decided that, after my next round of chemotherapy, | 0:22:02 | 0:22:05 | |
'to try living by Tim's mantra. | 0:22:05 | 0:22:07 | |
'However, before I had the opportunity, | 0:22:07 | 0:22:10 | |
'I was hit with the devastating news that one of my closest friends - | 0:22:10 | 0:22:14 | |
'a young and perfectly healthy girl - | 0:22:14 | 0:22:17 | |
'had been killed in a freak accident, | 0:22:17 | 0:22:19 | |
'and I'm finding it very hard to take.' | 0:22:19 | 0:22:22 | |
She's gone. | 0:22:22 | 0:22:23 | |
SHE SNIFFS | 0:22:25 | 0:22:27 | |
My friend has died and... | 0:22:27 | 0:22:30 | |
..this is horrific, really. | 0:22:32 | 0:22:34 | |
But it's made me think a lot about everything, really, and... | 0:22:41 | 0:22:49 | |
..I know, like, I'm still lucky... | 0:22:54 | 0:23:00 | |
..because I'm still here... | 0:23:03 | 0:23:05 | |
..and I've decided that I'm going to fight on harder, | 0:23:08 | 0:23:13 | |
because I've got that opportunity, | 0:23:13 | 0:23:16 | |
whereas she didn't. | 0:23:16 | 0:23:19 | |
She didn't have that time. | 0:23:19 | 0:23:21 | |
'In homage to my friend and in the spirit of embracing life, | 0:23:23 | 0:23:27 | |
'I decided to haul myself out of bed to see an event | 0:23:27 | 0:23:29 | |
'I know will never happen again in my lifetime.' | 0:23:29 | 0:23:33 | |
Oh, my God! It's early. | 0:23:33 | 0:23:36 | |
'Now, there hasn't been a solar eclipse since 1999. | 0:23:36 | 0:23:40 | |
'I'm pretty sure I was there, | 0:23:40 | 0:23:41 | |
'but, to be honest, I can't recall anything. | 0:23:41 | 0:23:44 | |
'At the time, I was in my twenties and partying pretty hard. | 0:23:44 | 0:23:48 | |
'If it was as early as this one, | 0:23:48 | 0:23:50 | |
'there's a good chance I was still in bed, hungover.' | 0:23:50 | 0:23:52 | |
I've brought myself a hat. I've got my gloves, my scarf, | 0:23:52 | 0:23:55 | |
I've got a blanket, and I've also got | 0:23:55 | 0:23:58 | |
something quite important in my pocket. | 0:23:58 | 0:24:02 | |
I believe this is welding glass | 0:24:02 | 0:24:05 | |
and with that, I should be able to see what's going on. | 0:24:05 | 0:24:08 | |
I'm going to give it a go now. | 0:24:08 | 0:24:10 | |
I haven't actually looked at the sun yet. | 0:24:10 | 0:24:12 | |
Oh, wow. Oh, my God, you've got to see this! Can we do that? | 0:24:12 | 0:24:15 | |
Can I just put that right to your lens? That's incredible! | 0:24:15 | 0:24:18 | |
Oh, I'm so glad I've done this. | 0:24:18 | 0:24:21 | |
I'm so glad I've done this. | 0:24:21 | 0:24:23 | |
Amazing. | 0:24:24 | 0:24:26 | |
'Now, I don't want to sound like a hippy, | 0:24:26 | 0:24:29 | |
'but as I walked the beach, | 0:24:29 | 0:24:31 | |
'I was overwhelmed by a feeling of awesome happiness. | 0:24:31 | 0:24:34 | |
'And, yes, it had something to do with | 0:24:34 | 0:24:36 | |
'the mind-boggling magnificence of the eclipse, | 0:24:36 | 0:24:39 | |
'but it was mostly a consciousness of the simple things - | 0:24:39 | 0:24:42 | |
'the sun on my face, the sand beneath my feet, | 0:24:42 | 0:24:47 | |
'the salt air in my lungs | 0:24:47 | 0:24:49 | |
'and a day of relative health, | 0:24:49 | 0:24:53 | |
'but, ironically, I'm only enjoying this moment today | 0:24:53 | 0:24:55 | |
'because my chemotherapy was cancelled. | 0:24:55 | 0:24:58 | |
'And it only ever gets cancelled when it starts to fail.' | 0:24:58 | 0:25:02 | |
I had some scan results and it turns out | 0:25:02 | 0:25:04 | |
that I've got a tumour that's growing and the chemo that I'm on | 0:25:04 | 0:25:07 | |
is now not really effective. It's not doing its job well enough, | 0:25:07 | 0:25:11 | |
so now they're going to try a new drug and see if that works instead. | 0:25:11 | 0:25:15 | |
It's oral, so I have to take it as a pill | 0:25:15 | 0:25:18 | |
and I'll be taking it every day, day and night, | 0:25:18 | 0:25:21 | |
and if it works, there's a chance I'll be on this drug permanently, | 0:25:21 | 0:25:26 | |
and I have been told that people can live more, like, years, | 0:25:26 | 0:25:31 | |
rather than living by months. | 0:25:31 | 0:25:33 | |
So, if that's the case, | 0:25:33 | 0:25:35 | |
then I'll do it, obviously, | 0:25:35 | 0:25:37 | |
because sitting on a beach, like today, | 0:25:37 | 0:25:40 | |
to see stuff like what I've seen today, | 0:25:40 | 0:25:42 | |
I don't want to leave. I don't want to leave this planet. | 0:25:42 | 0:25:46 | |
It's too beautiful. | 0:25:46 | 0:25:48 | |
There's too many nice things to do and I'm not done yet. | 0:25:48 | 0:25:51 | |
I refuse to be taken, because I'm a fighter and I keep on going | 0:25:51 | 0:25:55 | |
and I... and I... | 0:25:55 | 0:25:57 | |
and I never give up. | 0:25:57 | 0:26:00 | |
So, there. | 0:26:00 | 0:26:02 | |
'The reality of yet another tumour growing inside me | 0:26:02 | 0:26:05 | |
'is taking time to sink in. | 0:26:05 | 0:26:07 | |
'In eight months, it's my 40th birthday - | 0:26:07 | 0:26:09 | |
'the age I was told I would never reach. | 0:26:09 | 0:26:12 | |
'I've got it into my head as a goal I desperately want to achieve, | 0:26:12 | 0:26:15 | |
'but until I know that this new drug is working, | 0:26:15 | 0:26:18 | |
'it just seems like a terrifyingly long way off. | 0:26:18 | 0:26:21 | |
'The stakes are high - | 0:26:21 | 0:26:23 | |
'if this particular type of chemotherapy works, | 0:26:23 | 0:26:26 | |
'I could live on it for a few more years. | 0:26:26 | 0:26:28 | |
'But every chemo is different. | 0:26:28 | 0:26:30 | |
'You'll never know how you'll react. | 0:26:30 | 0:26:32 | |
'And, worryingly for me, after only a few weeks, | 0:26:32 | 0:26:35 | |
'this one's really messing with my mind.' | 0:26:35 | 0:26:38 | |
I have this overwhelming feeling of dread | 0:26:38 | 0:26:42 | |
that, tonight, if I close my eyes, I wouldn't wake up in the morning. | 0:26:42 | 0:26:47 | |
It was really real. | 0:26:49 | 0:26:51 | |
I could feel my body sinking into the mattress | 0:26:51 | 0:26:53 | |
and I just felt scared that that was going to be the end. | 0:26:53 | 0:26:59 | |
I don't actually think it's that far off, | 0:26:59 | 0:27:02 | |
and that's what scares me a lot. | 0:27:02 | 0:27:04 | |
I am actually petrified of dying. | 0:27:04 | 0:27:08 | |
So I've had a few bad days recently. | 0:27:08 | 0:27:11 | |
I've been having a bit of insomnia. | 0:27:11 | 0:27:14 | |
I'm having a really hard time of it...again. | 0:27:14 | 0:27:19 | |
I've kind of really freaked out. | 0:27:19 | 0:27:22 | |
I'm trying to go to sleep but I can't. | 0:27:22 | 0:27:25 | |
I have this really overwhelming feeling... My tits hurt. | 0:27:25 | 0:27:28 | |
..that I'm going to die soon. | 0:27:28 | 0:27:30 | |
They're great to look at, still. | 0:27:30 | 0:27:33 | |
This whole fear of just not waking up tomorrow morning. | 0:27:33 | 0:27:36 | |
I just wish they'd behave themselves. | 0:27:36 | 0:27:38 | |
The chemo tablets I've been on have made me want to go to sleep. | 0:27:38 | 0:27:43 | |
My cancer is starting to win. | 0:27:43 | 0:27:45 | |
Have I done everything that I need to do? | 0:27:45 | 0:27:48 | |
Should just put me down, like an animal. | 0:27:48 | 0:27:50 | |
I had such an awful nightmare. | 0:27:50 | 0:27:52 | |
Oh, my God. | 0:27:52 | 0:27:53 | |
I just hope that I go in my sleep. | 0:27:53 | 0:27:56 | |
I dreamt that I was in the last stages and I was lying in bed | 0:27:56 | 0:28:00 | |
and I was next to my sister, the phone just kept ringing and ringing. | 0:28:00 | 0:28:04 | |
It's never going to stop. | 0:28:04 | 0:28:05 | |
She was saying, "You can't pick up the phone! | 0:28:05 | 0:28:08 | |
"You're going to die as soon as you answer." | 0:28:08 | 0:28:10 | |
It's never going to stop. | 0:28:10 | 0:28:12 | |
And I was like, "I'm going soon." | 0:28:12 | 0:28:14 | |
And I had to wake up, because I was like, "Oh, my God. | 0:28:14 | 0:28:18 | |
"Oh, my God." | 0:28:18 | 0:28:20 | |
'Chemotherapy is a deal with the Devil. | 0:28:20 | 0:28:22 | |
'You poison your body in the hope of prolonging your life. | 0:28:22 | 0:28:25 | |
'But the collateral damage is immense. | 0:28:25 | 0:28:28 | |
'Because it doesn't just target cancer, | 0:28:28 | 0:28:30 | |
'it poisons every bit of your body. | 0:28:30 | 0:28:32 | |
'I had to stop for a couple of weeks, because I was exhausted, | 0:28:32 | 0:28:35 | |
'but taking a break is itself a risk, because, without chemo, | 0:28:35 | 0:28:39 | |
'my tumours continue to grow. | 0:28:39 | 0:28:42 | |
'I'm starting it again with a clear head | 0:28:42 | 0:28:44 | |
'and I seem to be coping better. | 0:28:44 | 0:28:46 | |
'In fact, on the days I'm feeling up to it, | 0:28:46 | 0:28:48 | |
'I've decided to get out there | 0:28:48 | 0:28:50 | |
'and embrace life with family and friends | 0:28:50 | 0:28:52 | |
'in the hope of rekindling that fire I felt on the beach.' | 0:28:52 | 0:28:56 | |
Yes, I've got the yellow Lamborghini! | 0:28:56 | 0:28:58 | |
'Generally speaking, | 0:28:58 | 0:28:59 | |
'one day out requires three days in bed recovering. | 0:28:59 | 0:29:02 | |
'But when your friends surprise you | 0:29:02 | 0:29:04 | |
'with a snog for the Welsh rugby captain, | 0:29:04 | 0:29:06 | |
'it's a welcome reminder that life is worth fighting for, | 0:29:06 | 0:29:09 | |
'even if all the fit ones are already taken. | 0:29:09 | 0:29:11 | |
'But something else is happening now my cancer's spreading. | 0:29:11 | 0:29:14 | |
'I'm finding myself being incredibly spontaneous | 0:29:14 | 0:29:17 | |
'and embracing the moment. | 0:29:17 | 0:29:19 | |
'I'm not even planning anything, | 0:29:19 | 0:29:21 | |
'I'm just saying yes to every opportunity. | 0:29:21 | 0:29:23 | |
'And so, when my hospital asked | 0:29:23 | 0:29:25 | |
'whether I was interested in meeting my original tumour, | 0:29:25 | 0:29:27 | |
'the one that got me into this blooming mess, I said yes.' | 0:29:27 | 0:29:31 | |
In a weird, strange way, | 0:29:31 | 0:29:33 | |
I've been looking forward to meeting my tumour | 0:29:33 | 0:29:35 | |
and I've got some really big swear words for it, | 0:29:35 | 0:29:37 | |
to be honest, but I'm a lady in front of you, so I won't swear. | 0:29:37 | 0:29:40 | |
Feel free to say whatever you want. | 0:29:40 | 0:29:43 | |
Oh, I've just got lots of words to say to it, I really have. | 0:29:43 | 0:29:45 | |
You fucking bastard. | 0:29:45 | 0:29:47 | |
I wish I could punch it or something, but I can't, | 0:29:47 | 0:29:50 | |
it's your slide here. | 0:29:50 | 0:29:52 | |
'I can see that saying yes to everything might get me | 0:29:52 | 0:29:55 | |
'in a spot of bother, | 0:29:55 | 0:29:56 | |
'but when my friend Sarah said she wanted to take | 0:29:56 | 0:29:59 | |
'some saucy photos of me in fancy dress for a glamour calendar, | 0:29:59 | 0:30:03 | |
'how could I refuse? | 0:30:03 | 0:30:04 | |
'She's actually been asking me for three years, | 0:30:04 | 0:30:07 | |
'and it's only now that I've got the confidence.' | 0:30:07 | 0:30:09 | |
So what is the calendar for? | 0:30:09 | 0:30:11 | |
-A bit of fun... -OK. -..because... -Was it on your bucket list? | 0:30:11 | 0:30:15 | |
No, it wasn't on my bucket list, | 0:30:15 | 0:30:17 | |
but do you remember when you were saying, "I'd love to shoot you"? | 0:30:17 | 0:30:20 | |
Yeah, I've wanted to for ages. Years, three years ago! | 0:30:20 | 0:30:23 | |
Three years ago, yeah, | 0:30:23 | 0:30:24 | |
and I was like, "No, no, no, you can't take a photograph of me," | 0:30:24 | 0:30:27 | |
because I would never get undressed or do anything like that. | 0:30:27 | 0:30:31 | |
So why have you got the courage? | 0:30:31 | 0:30:33 | |
I've only just discovered that I wanted to do stuff. | 0:30:33 | 0:30:35 | |
People are offering me things to do and I would never necessarily | 0:30:35 | 0:30:38 | |
take them up on their offers, but now I'm like, "Why not?" | 0:30:38 | 0:30:41 | |
'It's funny - you spend so much of your life saying no | 0:30:41 | 0:30:44 | |
'and living in fear, but precisely when I should be most afraid, | 0:30:44 | 0:30:48 | |
'I've found myself saying, "Yeah, all right." ' | 0:30:48 | 0:30:50 | |
I look like something out of Amsterdam! | 0:30:50 | 0:30:53 | |
'Perhaps life's this process in which we slowly relax | 0:30:53 | 0:30:55 | |
'and accept living in the moment? | 0:30:55 | 0:30:58 | |
'In truth, I fear something else is happening. | 0:30:58 | 0:31:00 | |
'I think this is frantic rush is my subconscious speaking, | 0:31:00 | 0:31:03 | |
'terrified time's running out. | 0:31:03 | 0:31:05 | |
'So I've decided to visit Dr Linda Blair, | 0:31:05 | 0:31:08 | |
'a clinical psychologist who I hope might help.' | 0:31:08 | 0:31:11 | |
I feel like my life is in fast-forward, | 0:31:11 | 0:31:13 | |
so now it's like, "Get on with it." | 0:31:13 | 0:31:15 | |
It's like some people do, when they want children and get married, | 0:31:15 | 0:31:18 | |
it's like, "Right, got to that age, I've got to buy a house, | 0:31:18 | 0:31:21 | |
"have kids and get married," but it's different. | 0:31:21 | 0:31:24 | |
Well, it's the same, actually, only I have a death and it's looming. | 0:31:24 | 0:31:28 | |
Will I actually die going, | 0:31:28 | 0:31:30 | |
"Oh, I should have gone to the Taj Mahal"? | 0:31:30 | 0:31:33 | |
-Nobody is ever going to do everything, are they? -No, you can't. | 0:31:33 | 0:31:36 | |
And so, if it's all these things that you haven't done, | 0:31:36 | 0:31:40 | |
think how sad you'd feel. | 0:31:40 | 0:31:42 | |
We've grown up in a society now, | 0:31:42 | 0:31:44 | |
we're driven really by commercialism | 0:31:44 | 0:31:46 | |
more than anything, we are so goal orientated. | 0:31:46 | 0:31:49 | |
We have to have something or do something. What about being? | 0:31:49 | 0:31:54 | |
I mean, you're a miracle as it is. | 0:31:54 | 0:31:56 | |
You're an inspiration as it is. That's already enough. | 0:31:56 | 0:31:59 | |
Does it not energise you? | 0:31:59 | 0:32:01 | |
It energises those around you. | 0:32:01 | 0:32:03 | |
I've been to plenty of funerals and I've sat at some and gone, | 0:32:03 | 0:32:06 | |
"Wow, this person has had such a fruitful life | 0:32:06 | 0:32:09 | |
"in such a short space of time," | 0:32:09 | 0:32:11 | |
but if they were to write about me, there'd be nothing to say. | 0:32:11 | 0:32:13 | |
If you talk to people on their deathbeds, | 0:32:13 | 0:32:16 | |
it isn't what they haven't done they regret, | 0:32:16 | 0:32:20 | |
it's the people they haven't spent time with. | 0:32:20 | 0:32:23 | |
When humans really talk about what counts, | 0:32:23 | 0:32:25 | |
it's about feelings and relationships. | 0:32:25 | 0:32:30 | |
-It stems really from the fear of missing out... -It does. | 0:32:30 | 0:32:33 | |
..which is rife at this moment in time, | 0:32:33 | 0:32:36 | |
with the technology we've got. | 0:32:36 | 0:32:38 | |
People aren't really looking around themselves enjoying their day, | 0:32:38 | 0:32:41 | |
they're too busy looking at what they're missing out on | 0:32:41 | 0:32:43 | |
on Twitter and on Facebook and whatever else. | 0:32:43 | 0:32:46 | |
Meanwhile, they're missing out on life. | 0:32:46 | 0:32:49 | |
Meanwhile, they're walking past the man of their dreams, | 0:32:49 | 0:32:51 | |
because their head's down in their phone. | 0:32:51 | 0:32:53 | |
-See, you've got it! -I'm getting it. | 0:32:53 | 0:32:56 | |
'Maybe that's what happened that day on the beach. | 0:32:56 | 0:32:59 | |
'Maybe I wasn't trying too hard. Maybe I was just being? | 0:32:59 | 0:33:03 | |
'But living with terminal cancer, it's hard to just be. | 0:33:03 | 0:33:07 | |
'You're always looking over your shoulder, | 0:33:07 | 0:33:09 | |
'because treating it is like a real-life game of whack-a-mole - | 0:33:09 | 0:33:13 | |
'a tumour pops up, you whack it with chemo | 0:33:13 | 0:33:15 | |
'and wait until it inevitably pops up elsewhere.' | 0:33:15 | 0:33:20 | |
I had some results after a scan. | 0:33:20 | 0:33:24 | |
It was quite a mixed result. | 0:33:24 | 0:33:27 | |
Basically, it's controlling the tumours that are in my chest cavity, | 0:33:31 | 0:33:38 | |
in my breasts, in the skin, | 0:33:38 | 0:33:40 | |
and also, the tumour that had grown under my armpit had actually shrunk, | 0:33:40 | 0:33:46 | |
however, the really bad news is that it's in both of my lungs. | 0:33:46 | 0:33:54 | |
'Cancer in the vital organs. | 0:33:58 | 0:33:59 | |
'It's not really what you want to hear, is it?' | 0:33:59 | 0:34:02 | |
I'm just really scared my quality of life | 0:34:02 | 0:34:05 | |
is going to go down the shitter. | 0:34:05 | 0:34:07 | |
I'm really dreading that day, and I know it's coming. | 0:34:07 | 0:34:10 | |
I don't want any more treatment. | 0:34:12 | 0:34:15 | |
I don't. | 0:34:16 | 0:34:18 | |
I'm fed up with it. | 0:34:18 | 0:34:21 | |
I've been on it almost a year... | 0:34:21 | 0:34:23 | |
..non stop. | 0:34:24 | 0:34:26 | |
Non stop. | 0:34:26 | 0:34:28 | |
But I can't stop... | 0:34:30 | 0:34:32 | |
..because it is keeping me here, | 0:34:34 | 0:34:36 | |
and that's when you know that you've got something good... | 0:34:36 | 0:34:40 | |
..is when it all goes wrong. | 0:34:42 | 0:34:45 | |
Fuck you, cancer! | 0:34:47 | 0:34:49 | |
Right now, I'm not entirely sure if I'm going to make my birthday. | 0:34:49 | 0:34:53 | |
I'm not a pessimist at all, I'm very much a realist, | 0:34:53 | 0:34:57 | |
and although I can see me being alive for my 40th, | 0:34:57 | 0:35:01 | |
I don't think I will. | 0:35:01 | 0:35:03 | |
That's the honest truth, I don't think I will. | 0:35:03 | 0:35:06 | |
'It's now September. | 0:35:11 | 0:35:13 | |
'And I've been doing some thinking. | 0:35:13 | 0:35:15 | |
'I've realised up until this point, | 0:35:15 | 0:35:17 | |
'I didn't really believe I was dying. | 0:35:17 | 0:35:20 | |
'For some reason, I always thought there'd be a miracle cure. | 0:35:20 | 0:35:23 | |
'The question of what I do with the rest of my life is now irrelevant. | 0:35:23 | 0:35:27 | |
'What I want to do, and what I need to do, is to survive. | 0:35:27 | 0:35:31 | |
'My birthday is still three months away. | 0:35:31 | 0:35:34 | |
'I'm going to have to begin weekly intravenous chemotherapy. | 0:35:34 | 0:35:37 | |
'But first, I need to make some preparations | 0:35:37 | 0:35:40 | |
'that I've been avoiding for a very long time.' | 0:35:40 | 0:35:44 | |
I've got a Blue Badge! I AM ill! | 0:35:44 | 0:35:46 | |
SHE LAUGHS | 0:35:46 | 0:35:48 | |
"This badge should be displayed at the front of the vehicle. | 0:35:48 | 0:35:51 | |
"It needs to be clearly visible so it can be checked." | 0:35:51 | 0:35:54 | |
The Blue Badge is not a licence to park anywhere. | 0:35:54 | 0:35:56 | |
I can park here now, | 0:35:56 | 0:35:58 | |
because this is all double-yellow lines, isn't it? | 0:35:58 | 0:36:00 | |
'They say there are five stages you go through | 0:36:00 | 0:36:02 | |
'when diagnosed with terminal illness - | 0:36:02 | 0:36:04 | |
'denial, anger, bargaining, depression and, finally, | 0:36:04 | 0:36:08 | |
'accepting that parking right in front of the supermarket | 0:36:08 | 0:36:10 | |
'is actually quite helpful.' | 0:36:10 | 0:36:12 | |
It feels really weird, just parked in disabled. | 0:36:12 | 0:36:15 | |
I'm worried people will just think I'm a fraud or something, | 0:36:15 | 0:36:18 | |
and I'm not. | 0:36:18 | 0:36:19 | |
'But whilst I can reluctantly accept that getting a Blue Badge | 0:36:19 | 0:36:22 | |
'is helpful, losing my hair is unquestionably traumatic. | 0:36:22 | 0:36:26 | |
'I guess I've been lucky that, for the last year, | 0:36:26 | 0:36:28 | |
'my chemotherapies haven't made my hair fall out.' | 0:36:28 | 0:36:31 | |
Right, what can we do for you today? | 0:36:31 | 0:36:33 | |
Well, basically, I'm having chemo | 0:36:33 | 0:36:37 | |
and my hair is likely to fall out. | 0:36:37 | 0:36:39 | |
It'll go thin or it could all fall out. | 0:36:39 | 0:36:42 | |
-It depends on how it goes. -So something similar? | 0:36:42 | 0:36:44 | |
Something similar would be nice. | 0:36:44 | 0:36:46 | |
-Yeah. -I think we can sort you out. | 0:36:46 | 0:36:48 | |
Bear with me a sec while I grab some. | 0:36:48 | 0:36:51 | |
I need to put this on you - it's hygiene as well as comedy. | 0:36:51 | 0:36:55 | |
Ooh! I look like an elf! | 0:36:55 | 0:36:58 | |
'I actually lost my hair when first battling cancer six years ago. | 0:36:58 | 0:37:02 | |
'However, then my future was brighter - | 0:37:02 | 0:37:04 | |
'my cancer was primary and beatable | 0:37:04 | 0:37:06 | |
'and I knew my hair would eventually grow back. | 0:37:06 | 0:37:09 | |
'Now I'm in the market for a wig | 0:37:09 | 0:37:11 | |
'that I'll likely wear until the end.' | 0:37:11 | 0:37:13 | |
I think I need help with this one! I look like Cousin Itt! | 0:37:13 | 0:37:18 | |
'And whilst I'm curious about what I'd look like | 0:37:18 | 0:37:20 | |
'with a maverick new barnet, it's probably not the best time | 0:37:20 | 0:37:23 | |
'to stray too far off piste.' | 0:37:23 | 0:37:25 | |
But it's constant up-keep. I couldn't do that. | 0:37:25 | 0:37:29 | |
And that's the wig I got! She looks better than me, though. | 0:37:29 | 0:37:32 | |
I don't think so! | 0:37:32 | 0:37:34 | |
She looks prettier than me. She's got more make-up on. | 0:37:35 | 0:37:39 | |
'Whilst I've got my 40th birthday as a goal I am determined to make, | 0:37:40 | 0:37:44 | |
'I need to be realistic and make some preparations in case I don't. | 0:37:44 | 0:37:48 | |
'Writing letters to family and friends...' | 0:37:48 | 0:37:51 | |
Nothing to make them too sad or upset, | 0:37:51 | 0:37:53 | |
but it would be really nice to have a little note to them | 0:37:53 | 0:37:56 | |
to say goodbye and how much I loved them. | 0:37:56 | 0:38:01 | |
'..clearing my flat out of junk...' | 0:38:01 | 0:38:03 | |
I decided that today was going to be the day | 0:38:03 | 0:38:06 | |
that I was going to sort out all the bank statements, | 0:38:06 | 0:38:09 | |
all the utility bills, | 0:38:09 | 0:38:10 | |
that my family can just close down accounts. | 0:38:10 | 0:38:13 | |
So hopefully I can leave that in the house and they'll find it. | 0:38:13 | 0:38:18 | |
'..and trying to pick what music I want played at my funeral.' | 0:38:18 | 0:38:22 | |
God Is A DJ by Faithless. | 0:38:22 | 0:38:25 | |
TRACK PLAYS | 0:38:25 | 0:38:28 | |
I like that one | 0:38:30 | 0:38:32 | |
but it seems quite... | 0:38:32 | 0:38:35 | |
MUSIC: Happy by Leona Lewis | 0:38:35 | 0:38:38 | |
See, this makes me cry, | 0:38:38 | 0:38:40 | |
cos it's like, if you win or lose, | 0:38:40 | 0:38:43 | |
and you can't have it all, can you? | 0:38:43 | 0:38:46 | |
Now, all my mates, and you'll get this, | 0:38:47 | 0:38:50 | |
all my mates would just laugh their tits off. | 0:38:50 | 0:38:53 | |
They'd just laugh... | 0:38:53 | 0:38:55 | |
MUSIC: Out Of Space by The Prodigy | 0:38:55 | 0:38:58 | |
..because I used to love the Prodigy and I still do. | 0:38:58 | 0:39:01 | |
Well, I'll be having a party, you see, I'll be up there. | 0:39:01 | 0:39:05 | |
Big box, little box. | 0:39:09 | 0:39:11 | |
'Planning my death isn't so much difficult as surreal, | 0:39:11 | 0:39:14 | |
'because, whilst I know that everyone eventually dies, | 0:39:14 | 0:39:17 | |
'it's just so hard to imagine the party continuing without me. | 0:39:17 | 0:39:20 | |
'My final preparation is one I've been struggling with for months. | 0:39:20 | 0:39:25 | |
'Cremation or burial? | 0:39:25 | 0:39:26 | |
'Do I become an urn on someone's windowsill | 0:39:26 | 0:39:29 | |
'or get myself boxed up and buried for the worms? | 0:39:29 | 0:39:32 | |
'I'm out today for a behind-the-scenes tour | 0:39:32 | 0:39:34 | |
'of the crematorium where my body would be processed, | 0:39:34 | 0:39:37 | |
'to see if that helps me make a decision.' | 0:39:37 | 0:39:39 | |
I've got to get my head around how it feels for other people, | 0:39:39 | 0:39:42 | |
for them to say goodbye. | 0:39:42 | 0:39:43 | |
That's the part I think of more than anyone else. | 0:39:43 | 0:39:47 | |
How do your family feel about you pre-planning like this? | 0:39:47 | 0:39:51 | |
They don't say anything. | 0:39:51 | 0:39:52 | |
They don't really say anything. They just say, "Oh, OK, then." | 0:39:52 | 0:39:55 | |
I think they're coming to terms with the fact that it's not good | 0:39:55 | 0:39:59 | |
and they worry a lot, and I try and not take on their emotions | 0:39:59 | 0:40:04 | |
any more, because it's too hard, because I have to cope with my own. | 0:40:04 | 0:40:09 | |
Let's have a look, then. | 0:40:09 | 0:40:11 | |
This is a bit weird, isn't it? | 0:40:11 | 0:40:13 | |
Oh, it's a door, it's a door! I imagined something else. | 0:40:13 | 0:40:17 | |
I don't know. | 0:40:17 | 0:40:19 | |
Oh, goodness. Is that a person? That's a proper person in there. | 0:40:19 | 0:40:22 | |
Um...I've forgotten what I was going to say now, | 0:40:26 | 0:40:29 | |
-seeing that person in the coffin. -You weren't expecting it. | 0:40:29 | 0:40:32 | |
No. It's fine. I'm quite hardened, but... | 0:40:32 | 0:40:35 | |
So this is where... Wow. This is where it all goes on, then. | 0:40:35 | 0:40:40 | |
-Is that a fridge in there? -That's a refrigerator, yeah. | 0:40:40 | 0:40:43 | |
You know what? It's very weird being in here, | 0:40:43 | 0:40:46 | |
because now it's become very clinical and very matter of fact. | 0:40:46 | 0:40:49 | |
I was expecting fire and everything, | 0:40:49 | 0:40:52 | |
but there's nothing going on here, it's like a lab. | 0:40:52 | 0:40:56 | |
-Oh, I can see a bone. -Yeah. | 0:40:56 | 0:40:58 | |
It's not that bad, you know? | 0:40:58 | 0:41:00 | |
It's more fascinating than anything else. | 0:41:00 | 0:41:04 | |
-So are these dusty bits dead people? -They are dusty bits. | 0:41:04 | 0:41:07 | |
Are they dead people? What's all that? | 0:41:07 | 0:41:09 | |
-That's somebody's hip! -That's hip joints, yeah? | 0:41:09 | 0:41:12 | |
Would you allow my cat in my coffin to be burnt and cremated with me? | 0:41:12 | 0:41:16 | |
Officially no, we cremate human beings. | 0:41:16 | 0:41:19 | |
-Oh. Don't want to mix up the humans with the cats? -No. | 0:41:19 | 0:41:23 | |
Genetically, we're not the same. | 0:41:23 | 0:41:25 | |
Ultimately, though, I feel kind of like, I am just flesh and bone. | 0:41:25 | 0:41:30 | |
-Hmm. -It actually homes in that I am just something | 0:41:30 | 0:41:34 | |
that can be burnt and just put into a box. | 0:41:34 | 0:41:37 | |
Even though it's a bit hard, | 0:41:37 | 0:41:40 | |
it's not bad. It's like, you've got to put your body somewhere. | 0:41:40 | 0:41:46 | |
It's really depressing. | 0:41:49 | 0:41:51 | |
I don't like being in a graveyard. | 0:41:51 | 0:41:53 | |
It's horrible. | 0:41:55 | 0:41:57 | |
It's nice, it's peaceful but all these people? | 0:41:57 | 0:42:02 | |
It's the people that are left behind, innit? | 0:42:02 | 0:42:05 | |
It's all right for me, I can bugger off and die, | 0:42:05 | 0:42:08 | |
but then you've got all the people afterwards. | 0:42:08 | 0:42:12 | |
There's so much love in this place. | 0:42:14 | 0:42:16 | |
'I do think I'm now in a position to say, yes, I want to be cremated | 0:42:16 | 0:42:21 | |
'and, yes, I'm ready to write my last will and testament | 0:42:21 | 0:42:24 | |
'and, yes, I now desperately want chemotherapy, | 0:42:24 | 0:42:27 | |
'because, since the last one failed, | 0:42:27 | 0:42:30 | |
'I can feel that my tumours have grown. | 0:42:30 | 0:42:32 | |
'And with three long months to go before my birthday, | 0:42:32 | 0:42:35 | |
'I need to get something toxic into my body soon | 0:42:35 | 0:42:38 | |
'if I have any chance of making it. | 0:42:38 | 0:42:41 | |
'Today, as usual, my sister Mel is with me | 0:42:41 | 0:42:43 | |
'for what is to be my 16th course of intravenous chemo, | 0:42:43 | 0:42:46 | |
'including tablets, that's my 200th chemotherapy treatment. | 0:42:46 | 0:42:50 | |
'Before we can start, they've got to make sure I can tolerate it. | 0:42:50 | 0:42:54 | |
'If I can't, I may have run out of options.' | 0:42:54 | 0:42:57 | |
Have you got any allergies? | 0:42:57 | 0:42:59 | |
Penicillin. What else am I allergic to, Mel? | 0:42:59 | 0:43:01 | |
I'm allergic to the dishes. | 0:43:01 | 0:43:02 | |
-Just general dusting and cleanliness, I think, yeah. -Shut up! | 0:43:02 | 0:43:05 | |
I clean! You try doing bloody housework when you're bloody ill, | 0:43:05 | 0:43:08 | |
-I tell you, it's not funny. -Like I don't offer! | 0:43:08 | 0:43:10 | |
You say, "No, no, no, I like to save it for when I'm feeling better! | 0:43:10 | 0:43:14 | |
"It gives me something to do!" | 0:43:14 | 0:43:15 | |
I love bringing my sister to my chemo sessions. | 0:43:15 | 0:43:17 | |
-Oh, my God, she does my head in! -You do my head in. | 0:43:17 | 0:43:20 | |
-I'm going home. -Shut up. -You're going to have to walk back. | 0:43:20 | 0:43:23 | |
You cow bag. | 0:43:23 | 0:43:25 | |
Oh, shit. | 0:43:28 | 0:43:30 | |
Sorry, I don't know why I'm crying. | 0:43:30 | 0:43:32 | |
Do you want a tissue? | 0:43:32 | 0:43:33 | |
No, I'm fine. | 0:43:33 | 0:43:35 | |
Sorry... | 0:43:35 | 0:43:37 | |
-I didn't know I was going to cry. -It's OK. | 0:43:37 | 0:43:39 | |
I feel silly now. | 0:43:41 | 0:43:43 | |
Right, even strong people have to cry, right? | 0:43:44 | 0:43:47 | |
I'm going to kick its fucking ass again. | 0:43:47 | 0:43:50 | |
Ooh! | 0:43:50 | 0:43:51 | |
'Intravenous chemotherapy is like psychological torture. | 0:43:51 | 0:43:55 | |
'Four tedious hours of toxic dripping into your arm. | 0:43:55 | 0:43:59 | |
'And you can't leave, you can't fight. | 0:43:59 | 0:44:02 | |
'You've just got lie back and take it and hope, | 0:44:02 | 0:44:05 | |
'but one thing I've learnt is that these wards are not to be feared. | 0:44:05 | 0:44:09 | |
'No matter how brutal the treatment, life doesn't end here. | 0:44:09 | 0:44:13 | |
'These corridors are trenches of unimaginable kindness...' | 0:44:13 | 0:44:16 | |
-Look after yourself. You as well. -I'm going to be fine. | 0:44:16 | 0:44:20 | |
-Take care, darling. -Ta-ra. | 0:44:20 | 0:44:22 | |
'..of unflinching bravery...' | 0:44:22 | 0:44:24 | |
Oh, love her. | 0:44:24 | 0:44:26 | |
'..and of unconditional love.' | 0:44:26 | 0:44:29 | |
'Good news and bad news. | 0:44:37 | 0:44:39 | |
'My body seems to be tolerating the new chemotherapy. | 0:44:39 | 0:44:42 | |
'I've got the usual hangover-like symptoms, but I'm not being sick. | 0:44:42 | 0:44:45 | |
'I am, however, moulting like a dog.' | 0:44:45 | 0:44:49 | |
It's going really bald already today. | 0:44:49 | 0:44:52 | |
I don't think it's going to last another couple of days. | 0:44:52 | 0:44:55 | |
I'm just touching it and that's how much hair just comes out. | 0:44:55 | 0:44:59 | |
'I've asked my friend Natalie to cut my hair | 0:45:00 | 0:45:03 | |
'and see if we can salvage something | 0:45:03 | 0:45:05 | |
'because I'm not quite ready to shave it all off.' | 0:45:05 | 0:45:08 | |
This is it now. Now I'm, like, on my way to being bald | 0:45:08 | 0:45:11 | |
and obviously a cancer patient, | 0:45:11 | 0:45:13 | |
which is what I've tired not to look like for two years. | 0:45:13 | 0:45:16 | |
I don't know if it's myself I'm trying to convince | 0:45:17 | 0:45:20 | |
or everyone else around me, that I'm fine, but obviously I'm not. | 0:45:20 | 0:45:24 | |
It's really highlighting the fact I'm not well. | 0:45:24 | 0:45:27 | |
I fucking hate it. | 0:45:27 | 0:45:29 | |
Ohh! | 0:45:30 | 0:45:32 | |
Always. | 0:45:32 | 0:45:34 | |
Thank you. | 0:45:35 | 0:45:36 | |
'Predictably, over the last few days, | 0:45:40 | 0:45:43 | |
'my hair continued to fall out.' | 0:45:43 | 0:45:45 | |
I look like something out of a horror movie. | 0:45:45 | 0:45:48 | |
'So I've called Natalie back and roped in my friend Benny | 0:45:48 | 0:45:51 | |
'for moral support, and told them bring the wretched clippers.' | 0:45:51 | 0:45:55 | |
-I think my hair was actually upset it was falling out. -I'd be fuming. | 0:45:55 | 0:45:58 | |
Yeah, it's really not happy. | 0:45:58 | 0:46:00 | |
-I've just had my colour done. -Did you just have your colour done? | 0:46:00 | 0:46:03 | |
Yeah, 80 quid. I'm going to go for a fake tan this afternoon. | 0:46:03 | 0:46:06 | |
-Are you? -Going to spray my bald head. It's got to match, innit? | 0:46:06 | 0:46:09 | |
Imagine that, a brown face and a white head. | 0:46:09 | 0:46:11 | |
You're making this very pain free. | 0:46:11 | 0:46:13 | |
I can guarantee my friend would make me laugh | 0:46:13 | 0:46:16 | |
in such a horrible situation. | 0:46:16 | 0:46:17 | |
Thing is, if you did speak to me five days ago, | 0:46:17 | 0:46:19 | |
I was really upset, I was crying every five minutes. | 0:46:19 | 0:46:22 | |
I think you just need time to re-adjust and know what's going on. | 0:46:22 | 0:46:25 | |
-Were you on your own, though? -Yeah. | 0:46:25 | 0:46:28 | |
I think being on your own is not good. | 0:46:28 | 0:46:30 | |
You need to be with people. | 0:46:30 | 0:46:31 | |
You need to be with company, even if you go on Skype or something. | 0:46:31 | 0:46:34 | |
I don't want to upset people. | 0:46:34 | 0:46:35 | |
"Hi, I'm crying today, can you come and give me a cuddle?" | 0:46:35 | 0:46:39 | |
This is a disease that will wipe you out in a week if it chooses to. | 0:46:39 | 0:46:42 | |
-Of course. -You're going, "I'll just deal with these days on my own. | 0:46:42 | 0:46:45 | |
"When I feel a bit better, I'll see people." | 0:46:45 | 0:46:47 | |
But you need to see people on the days you don't feel so good. | 0:46:47 | 0:46:49 | |
It's a personal identity thing, I was having an identity crisis. | 0:46:49 | 0:46:52 | |
My blueprint of myself had gone. | 0:46:52 | 0:46:54 | |
-Do you want a mirror? -Yeah, let's have a look at this face, then. | 0:46:54 | 0:46:57 | |
Oh, it's horrible, isn't it? It's horrible. | 0:46:57 | 0:47:00 | |
Don't you think it looks better than this morning? | 0:47:00 | 0:47:02 | |
Yeah, it's miles better, but it's still horrible to see. | 0:47:02 | 0:47:05 | |
You look better in yourself today than you did on Friday. | 0:47:05 | 0:47:07 | |
I'm happier, because now I know where I am. | 0:47:07 | 0:47:10 | |
It's done now and I've just got to move on and just get on with it. | 0:47:10 | 0:47:13 | |
I got most of my strength from having my hair, | 0:47:13 | 0:47:15 | |
because I didn't look ill. | 0:47:15 | 0:47:17 | |
This is the worst thing that can happen. | 0:47:17 | 0:47:19 | |
-There's nothing worse than this now. -Apart from dying. | 0:47:19 | 0:47:22 | |
SHE LAUGHS | 0:47:22 | 0:47:24 | |
'You've got to have a sense of humour | 0:47:24 | 0:47:25 | |
'when you've got terminal cancer. | 0:47:25 | 0:47:27 | |
'There's no other way of dealing with its relentless cruelty. | 0:47:27 | 0:47:31 | |
'For the foreseeable future, I'm confined to weekly chemo. | 0:47:31 | 0:47:34 | |
'If I'm not lying on a bed in hospital, | 0:47:34 | 0:47:37 | |
'I'm lying in a bed at my flat, | 0:47:37 | 0:47:39 | |
'frustrated, knowing that life in all its glory | 0:47:39 | 0:47:43 | |
'continues to unfold outside these four walls...without me.' | 0:47:43 | 0:47:48 | |
It's mental torture and I'm just in this permanent state of exhaustion. | 0:47:48 | 0:47:53 | |
And I hate the way I look now, there's nothing I can do about it. | 0:47:53 | 0:47:58 | |
I don't particular feel very attractive any more. | 0:47:58 | 0:48:01 | |
'For the last two years, I've been saving money for two things - | 0:48:01 | 0:48:05 | |
'my funeral and my 40th birthday. | 0:48:05 | 0:48:08 | |
'On the days I'm feeling up to it, 'I'm planning the latter with Greig, | 0:48:08 | 0:48:11 | |
'a new friend who got in touch after watching my video. | 0:48:11 | 0:48:14 | |
'Greig is a cancer survivor himself | 0:48:14 | 0:48:16 | |
'and knows just what I'm going through.' | 0:48:16 | 0:48:19 | |
I have felt at times that I just want to stop. | 0:48:19 | 0:48:22 | |
I know it's crap. | 0:48:22 | 0:48:23 | |
As long as I've got something positive at the end of it, | 0:48:23 | 0:48:27 | |
it's worth it. | 0:48:27 | 0:48:29 | |
Most of the time I'm at home by myself, | 0:48:29 | 0:48:31 | |
like, recovering from chemo at the moment, | 0:48:31 | 0:48:34 | |
but I'm a party girl and I love going out partying. | 0:48:34 | 0:48:37 | |
I think it's really important, | 0:48:37 | 0:48:39 | |
when you're in this situation, to have things to plan for. | 0:48:39 | 0:48:42 | |
You want to be there, so you kind of mentally think, | 0:48:42 | 0:48:46 | |
"I have to be there," so it keeps you going. | 0:48:46 | 0:48:49 | |
-Yeah. -Does that make sense? -No, it does, definitely. | 0:48:49 | 0:48:52 | |
'This could be my last birthday, I don't know. | 0:48:52 | 0:48:55 | |
'So I am making the most of it and I am making it big and out there.' | 0:48:55 | 0:49:01 | |
Why not? There's no rules! | 0:49:01 | 0:49:04 | |
'I've decided to empty the bank account and book Cardiff Castle | 0:49:04 | 0:49:08 | |
'for a fancy-dress, medieval-themed extravaganza. | 0:49:08 | 0:49:10 | |
'You know, I love the Tudors and I love castles.' | 0:49:10 | 0:49:13 | |
I just think it will be an awesome venue to have a party, | 0:49:13 | 0:49:18 | |
instead of a nightclub, and going out just drinking in pubs. | 0:49:18 | 0:49:21 | |
And why fancy dress? | 0:49:21 | 0:49:22 | |
Everything has to be fancy dress. | 0:49:22 | 0:49:24 | |
-Every party? -Every party. | 0:49:24 | 0:49:26 | |
If I could be in fancy dress every day, I would. | 0:49:26 | 0:49:28 | |
If I could go to the supermarket in fancy dress, I probably would. | 0:49:28 | 0:49:32 | |
Obviously, this is way for me to have my friends around | 0:49:32 | 0:49:36 | |
and celebrate with them. | 0:49:36 | 0:49:38 | |
I never get to go out and party very much any more. | 0:49:38 | 0:49:40 | |
In fact, I don't think I can remember the last time I went out | 0:49:40 | 0:49:44 | |
and partied, so it's about time I had a party. | 0:49:44 | 0:49:46 | |
I deserve it. | 0:49:46 | 0:49:48 | |
I've been on chemo for a whole year, I'm knackered but I'm ready | 0:49:48 | 0:49:51 | |
and I want to have fun so, you know, | 0:49:51 | 0:49:54 | |
while I still have breath in my lungs and I'm still standing, | 0:49:54 | 0:49:59 | |
I'm going to enjoy myself, | 0:49:59 | 0:50:01 | |
even if it's just for that one night, you know? | 0:50:01 | 0:50:04 | |
'I've been thinking a lot about what Dr Blair said, | 0:50:04 | 0:50:07 | |
'that people on their deathbeds don't regret what they didn't do, | 0:50:07 | 0:50:10 | |
'they regret the people they didn't spend time with. | 0:50:10 | 0:50:13 | |
'I think my biggest regret is never allowing myself to fall in love, | 0:50:13 | 0:50:17 | |
'because relationships and love and the warmth of human touch, | 0:50:17 | 0:50:23 | |
'that's what it's all about. | 0:50:23 | 0:50:25 | |
'With my birthday still a few weeks away, | 0:50:29 | 0:50:31 | |
'I want to catch up with Mark, the young doctor I'd met with melanoma. | 0:50:31 | 0:50:35 | |
'Cancer has now spread to his liver, spleen and brain, | 0:50:35 | 0:50:38 | |
'but is currently being kept stable | 0:50:38 | 0:50:40 | |
'by a remarkable drug called Debrafanib.' | 0:50:40 | 0:50:42 | |
My bucket list was simple, so simple I've completed it, | 0:50:42 | 0:50:45 | |
the last item being the best man for my twin brother Dave, | 0:50:45 | 0:50:49 | |
all thanks to Debrafenib. | 0:50:49 | 0:50:51 | |
I was reminded recently that a day can change everything. | 0:50:51 | 0:50:54 | |
I was asked to talk at my medical school. | 0:50:54 | 0:50:57 | |
In the bar, a lovely young lady came up to me, | 0:50:57 | 0:50:59 | |
she told me how much she liked the talk. | 0:50:59 | 0:51:01 | |
We've been dating for seven months and she's the love of my life. | 0:51:01 | 0:51:04 | |
It's a mixture of building ourselves up to fail, | 0:51:04 | 0:51:06 | |
but then there's a desperate desire | 0:51:06 | 0:51:08 | |
to have what other young couples have, | 0:51:08 | 0:51:10 | |
and that's each other, for eternity. | 0:51:10 | 0:51:12 | |
HE GASPS SOFTLY | 0:51:13 | 0:51:15 | |
I'm going a bit off script here, | 0:51:17 | 0:51:19 | |
because I found out today that Debrafenib has stopped working, | 0:51:19 | 0:51:23 | |
so the next line doesn't fit, which is a horrible thing to think. | 0:51:23 | 0:51:28 | |
You can't work as a doctor with unstable brain cancer, | 0:51:28 | 0:51:33 | |
-so I might be forced to give up. -Oh. -So... | 0:51:33 | 0:51:36 | |
I like my job, but it's not where I get my happiness from, | 0:51:36 | 0:51:40 | |
I get my happiness from spending time with my family | 0:51:40 | 0:51:44 | |
and my girlfriend, | 0:51:44 | 0:51:45 | |
and loads of people in life | 0:51:45 | 0:51:48 | |
throw themselves too far into their jobs | 0:51:48 | 0:51:50 | |
and people need a reality check and think, | 0:51:50 | 0:51:53 | |
"Actually, there's only really one thing you need in life | 0:51:53 | 0:51:57 | |
"and that's good health." I'm sure it's the same for you. | 0:51:57 | 0:51:59 | |
Yeah, yeah. I've been a little bit down, | 0:51:59 | 0:52:01 | |
because, obviously, it was in my lungs | 0:52:01 | 0:52:03 | |
and I wasn't able to breathe properly. | 0:52:03 | 0:52:05 | |
I had a few breakdowns, as well. | 0:52:05 | 0:52:07 | |
I lost all my hair and I always promised myself | 0:52:07 | 0:52:11 | |
that I would never die one of those | 0:52:11 | 0:52:13 | |
bald, ill-looking, chemo-ridden patients, | 0:52:13 | 0:52:16 | |
but take away all of this and I'm one of those. | 0:52:16 | 0:52:19 | |
But on a day like today, where I'm able to come and meet you | 0:52:19 | 0:52:23 | |
and do stuff, it kind of reminds me that it's necessary, | 0:52:23 | 0:52:26 | |
-because, if I stop my chemo, I'm gone. -Yeah. | 0:52:26 | 0:52:30 | |
So I know I have to keep going, because I enjoy days like this. | 0:52:30 | 0:52:36 | |
I've met other cancer patients and there's this idea | 0:52:36 | 0:52:38 | |
that a lot of people are dying with cancer. | 0:52:38 | 0:52:41 | |
-Me and you, we're... -Living. -..living with cancer. | 0:52:41 | 0:52:44 | |
Both of us have got too much to live for. | 0:52:44 | 0:52:47 | |
'December 3rd, 2015. | 0:52:47 | 0:52:51 | |
'It's grey, overcast and the weather forecast is awful. | 0:52:51 | 0:52:55 | |
'But Cardiff this morning looks beautiful to me. | 0:52:55 | 0:52:58 | |
'I'm now grateful for every single day I get on this planet. | 0:52:58 | 0:53:01 | |
'But this one is special. | 0:53:01 | 0:53:03 | |
'This is one I thought I'd never see.' | 0:53:03 | 0:53:06 | |
So today is my birthday | 0:53:07 | 0:53:11 | |
and I've made it to 40, | 0:53:11 | 0:53:13 | |
which is brilliant. | 0:53:13 | 0:53:15 | |
I didn't sleep all last night, | 0:53:15 | 0:53:17 | |
because I've just been too excited. | 0:53:17 | 0:53:20 | |
I just can't wait to go and get drunk, really. | 0:53:20 | 0:53:22 | |
Get me a rum and lemonade as soon as possible, to celebrate. | 0:53:22 | 0:53:26 | |
'I'm going to be up against it today | 0:53:26 | 0:53:28 | |
'getting everything set up for the party. | 0:53:28 | 0:53:30 | |
'I've asked Greig to give me a hand, | 0:53:30 | 0:53:32 | |
'but let's get our priorities straight. | 0:53:32 | 0:53:34 | |
'The postman's been with some presents!' | 0:53:34 | 0:53:36 | |
Let's see what this is, from hospital, first. | 0:53:36 | 0:53:38 | |
There's always something from the hospital every day, | 0:53:38 | 0:53:41 | |
even on my birthday. | 0:53:41 | 0:53:43 | |
Right, what's this? | 0:53:43 | 0:53:44 | |
Anyway, next card. | 0:53:46 | 0:53:48 | |
-Oh... Look! -40 and fabulous, baby. | 0:53:48 | 0:53:51 | |
Aw... Do you know what? I like that. Always looking for a mirror | 0:53:51 | 0:53:54 | |
to make sure my eyelashes haven't fallen off and my wig hasn't moved. | 0:53:54 | 0:53:58 | |
'I'm really pleased about being 40. | 0:53:58 | 0:54:00 | |
'Most people are really miserable when they hit 40. | 0:54:00 | 0:54:03 | |
'They're like, "Oh, my God, I'm over the hill," or whatever. | 0:54:03 | 0:54:05 | |
'It hasn't been without hard work and determination | 0:54:05 | 0:54:09 | |
'and mental strength, but I'm still here. | 0:54:09 | 0:54:11 | |
'It is a massive milestone for anyone, | 0:54:11 | 0:54:14 | |
'but it is an incredible milestone for me.' | 0:54:14 | 0:54:17 | |
I do love this outfit, though. Do you know what? | 0:54:17 | 0:54:20 | |
I feel like I should just go down Tesco's like this. | 0:54:20 | 0:54:23 | |
So I've got wallet, keys, money, lipstick. | 0:54:23 | 0:54:27 | |
Do I need anything else? | 0:54:29 | 0:54:31 | |
Oh, yeah, eyeliner glue. | 0:54:31 | 0:54:33 | |
I bet they never had this trouble back in bloody medieval times. | 0:54:33 | 0:54:36 | |
COUGHING | 0:54:36 | 0:54:38 | |
You all right, Greig? Don't die on me now. | 0:54:38 | 0:54:41 | |
I think I'm allergic to this outfit. | 0:54:41 | 0:54:44 | |
Oh, no! Don't say that. | 0:54:44 | 0:54:46 | |
You'll say anything to get out of that outfit! | 0:54:46 | 0:54:48 | |
'Sorry, Greig, but considering what I've been through to get here, | 0:54:48 | 0:54:52 | |
'nothing except for actual death is going to stop me making this party. | 0:54:52 | 0:54:55 | |
'Not allergies...' What a nightmare! | 0:54:55 | 0:54:58 | |
'..not exhaustion...' | 0:54:58 | 0:54:59 | |
I've worn myself out so much and I'm just knackered now. | 0:54:59 | 0:55:04 | |
I can't hear you! | 0:55:04 | 0:55:07 | |
'..not even foul weather...' | 0:55:07 | 0:55:08 | |
It's rubbish. See, the rain is ruining my plans! | 0:55:08 | 0:55:12 | |
'..because tonight I don't just want a night to remember. | 0:55:12 | 0:55:15 | |
'I want to remember how it feels to be me again.' | 0:55:15 | 0:55:19 | |
I never did think I was ever going to make it to 40, | 0:55:19 | 0:55:22 | |
and here I am, in my outfit. | 0:55:22 | 0:55:24 | |
Yeah. | 0:55:24 | 0:55:26 | |
I am excited, I'm also a little bit nervous, actually, | 0:55:27 | 0:55:30 | |
because, you know, it is a big deal | 0:55:30 | 0:55:34 | |
and it is my big party, | 0:55:34 | 0:55:37 | |
but I also feel a little bit shy all of a sudden. | 0:55:37 | 0:55:40 | |
OK. Queen? | 0:55:41 | 0:55:42 | |
I'm going to pin a bin-liner on my head again. Thanks, Drive! | 0:55:42 | 0:55:46 | |
-Where... -Oh! | 0:55:46 | 0:55:48 | |
Oh, my God, why am I born in frickin' December? | 0:55:49 | 0:55:53 | |
Ladies and gentlemen, | 0:55:53 | 0:55:55 | |
please be upstanding for our queen of hearts, Miss Rowena Kincaid! | 0:55:55 | 0:56:01 | |
CHEERING AND APPLAUSE | 0:56:01 | 0:56:05 | |
SHE LAUGHS | 0:56:07 | 0:56:09 | |
This is amazing! | 0:56:11 | 0:56:13 | |
You all look bloody brilliant! | 0:56:13 | 0:56:16 | |
Wow. Basically wow. Look at you all. | 0:56:25 | 0:56:27 | |
You look absolutely amazing, every single one of you! | 0:56:27 | 0:56:31 | |
Better than me, some of you, so off with your heads! | 0:56:31 | 0:56:35 | |
Thank you for coming and making such an effort, | 0:56:35 | 0:56:38 | |
and what an effort you've made! | 0:56:38 | 0:56:40 | |
-Oh, my God... -Because we love you. | 0:56:40 | 0:56:42 | |
Oh, my God. This is an extra-special milestone for me, | 0:56:42 | 0:56:45 | |
because, obviously, it's always a milestone when you're 40, | 0:56:45 | 0:56:48 | |
but, to be honest, I didn't even know I was going to make it, | 0:56:48 | 0:56:51 | |
so thank you for sharing your time with me. | 0:56:51 | 0:56:53 | |
I have to say, it has been touch and go, | 0:56:53 | 0:56:56 | |
and my health has been deteriorating. | 0:56:56 | 0:56:59 | |
It has been really hard and I have been on chemo | 0:56:59 | 0:57:01 | |
for a whole year without a break, | 0:57:01 | 0:57:03 | |
so you can thank chemo for me being here. | 0:57:03 | 0:57:06 | |
-Whoo! -Yay, chemo. | 0:57:06 | 0:57:09 | |
-GUESTS: -Yay, chemo! | 0:57:09 | 0:57:10 | |
I did have some scary news, actually. | 0:57:10 | 0:57:13 | |
Basically, my baked potato is back, it's growing again, | 0:57:13 | 0:57:17 | |
so I hope I do have another birthday next year, | 0:57:17 | 0:57:20 | |
but if I don't, let's make this one count. | 0:57:20 | 0:57:23 | |
Make it a big one, get absolutely arse-holed | 0:57:23 | 0:57:25 | |
and if you don't mind, I want you all to dance for me. | 0:57:25 | 0:57:29 | |
Long live the queen! | 0:57:29 | 0:57:31 | |
CHEERING AND APPLAUSE | 0:57:31 | 0:57:33 | |
# You don't own me | 0:57:36 | 0:57:39 | |
# Don't try to change me in any way... # | 0:57:39 | 0:57:44 | |
'Over the last 12 months, there have been times | 0:57:44 | 0:57:46 | |
'when I thought I'd never finish this film. | 0:57:46 | 0:57:48 | |
'But making it has been an absolute dream come true. | 0:57:48 | 0:57:52 | |
'It's helped me, it's kept me going, | 0:57:52 | 0:57:55 | |
'and I hope, in some small way, it helps you too. | 0:57:55 | 0:57:58 | |
'Because tonight, surrounded by those I love, | 0:57:58 | 0:58:01 | |
'I've found the answer to my question | 0:58:01 | 0:58:04 | |
'has been within me all along. | 0:58:04 | 0:58:06 | |
'Life - it's fragile and it's precious - | 0:58:06 | 0:58:09 | |
'but it's everywhere and it's now. | 0:58:09 | 0:58:12 | |
'So don't wait till it's too late or leave it all to chance. | 0:58:12 | 0:58:15 | |
'Just grab it by the balls | 0:58:15 | 0:58:17 | |
'and remember, life IS a party, so get out there and dance.' | 0:58:17 | 0:58:24 | |
# ..Whatever I please | 0:58:24 | 0:58:26 | |
# Don't tell me what to do | 0:58:26 | 0:58:29 | |
# Don't tell me what to say | 0:58:29 | 0:58:32 | |
# And please, when I go out with you | 0:58:32 | 0:58:36 | |
# Don't put me on display | 0:58:36 | 0:58:40 | |
# I don't tell you what to say | 0:58:40 | 0:58:43 | |
# I don't tell you what to do | 0:58:43 | 0:58:47 | |
# So just let me be myself | 0:58:47 | 0:58:51 | |
# That's all I ask of you... # | 0:58:51 | 0:58:55 |