Episode 1 Peace of Mind


Episode 1

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One in four of us will face a mental health illness

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at some point in our lives.

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We may know the statistic, but what do we really know

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about those who live with challenging conditions

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and the working lives of those involved in their care?

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This series will bring them together - to tell their stories.

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Whitchurch Hospital in north Cardiff is facing its final days

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as an ageing institution, built at the start of the last century.

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Modern psychiatric services across Wales

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aim to treat people where possible in purpose-built units,

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or outside in the community.

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24-year-old Natalie McCulloch, from the Vale of Glamorgan,

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has been under the care of a specialist mental health team

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since being sectioned for a severe eating disorder 10 months ago.

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I've been diagnosed with anorexia nervosa,

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and basically it's an eating disorder, but it goes

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far further than food.

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It results in weight loss, food restriction,

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exercise compulsion, hospitalisation...

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I get very emotionally anxious

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and tearful - and socially,

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I've sort of disengaged with a lot of friends.

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I've dropped out of university, out of work,

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and I've let go of so many opportunities, just because

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so many of them involve food.

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So, I've... Probably about...

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11, 12, 13, that sort of age, and I guess that's when

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your puppy fat gets laid down, and things,

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and those changing shapes provoke the feelings of being

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overweight, even if they would have sort of slipped away.

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The worrying thing was that I'd lost

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six stone in six months, and I think it was just that severity...

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of how I'd been sort of quite a "bonny" little girl

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at the Christmas, and then by the June, I was, well...

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emaciated, I suppose. Erm,

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and I had to be sort of put into a wheelchair.

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People think, "Oh, you know, just eat, you know, just go home and

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"have a few good meals - that'll put the weight on and stuff."

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If only it was that easy.

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Natalie's care team is based at Whitchurch Hospital, although

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she isn't being treated here.

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The SHED team is a specialist high-risk eating disorder unit,

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treating around 40 patients each year.

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Well, the types of psychological issues that all eating disorders

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have in common is a very severe concern

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with either body shape or body weight,

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or food intake, or the pattern of eating.

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In some senses, the approach to food and eating can become quite rigid,

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and obsessional, and they experience

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quite high perfectionistic standards, in terms of

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achieving their goals with their eating.

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But treating Natalie has meant leaving Wales

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and a bed for her at a specialist clinic in Marlborough in Wiltshire,

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as there are no beds for severely anorexic patients in Wales.

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Her care is shared by the team in Whitchurch

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and by the unit in Marlborough where Natalie is being

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supported to shop and plan for meals,

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-then eat on her own - and in company.

-Thank you very much!

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Everyone understands that you're in there to go through

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some hellish times, and the empathy there is incredible.

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That's one thing that touches everyone when they go in,

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how understanding everyone is, and how willing people are

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to listen to and help other people even if they won't help themselves.

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Getting up, someone stands behind the bathroom door,

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while you go to the toilet, so you don't try and influence your weight.

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Then you go down to your underwear and step on the scales.

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I'm always really anxious as I see the numbers go up,

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because it's done in points, and you can see it go up and up and up,

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and part of you is thinking, "I want it to be higher,"

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but then part of me is, "OK, stop now, stop now!"

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as I'm seeing it go up. It's very difficult for me

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to be excited or elated by reaching my target -

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which I think a lot of people can't understand, because

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in an ideal world, that is what I'm working towards, thus,

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I've reached it, surely I should be happy.

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But I think it signals a new part of the journey, and that's really scary.

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42-year-old Maddy Read was born in Birmingham,

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but moved to Cardiff over 20 years ago. She has lived

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with debilitating mental illness all her life.

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I believe that I was depressed

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from my first memories.

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I think I suffered from anxiety, as well as depression,

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from early childhood.

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I think the two come hand-in-hand

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and I was scared of anything and everything.

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I was scared of bees, I was scared of wasps,

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I was scared of aeroplanes flying over.

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Volcanoes, earthquakes.

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Big-time - more than that was normal, really.

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Maddy made it through college and a music diploma,

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but became seriously ill in her early 20s.

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I've spent all day, every day,

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either just crying, shaking -

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physically, severely shaking...

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screaming...

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or actually paralysed.

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I was very suicidal. All the time.

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Became obsessed with killing myself.

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I wanted it to be right.

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I didn't want to mess it up, I didn't want to wake up

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with a broken neck and not be paralysed for the rest of my life,

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where I couldn't kill myself again.

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I didn't want to die in pain,

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so getting the right way was really important to me,

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so I kind of researched it a bit,

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and just became obsessed with doing it and how to do it.

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I kind of tempted fate by having this cord round my neck...

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hanging from the banister,

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and my tip-toes would just be on the step.

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I'd will myself to push, but...

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I never did.

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And then I met my husband, Mike.

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He was a great support,

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and I moved in with him pretty much within weeks.

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And he pushed the Community Team and said,

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"Look, she's not progressing, she's not doing anything.

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"What have you got in mind?"

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After four in-patient admissions at Whitchurch for her severe

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depression, Maddy was offered the chance to attend the day hospital here.

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That was really the most significant thing that helped my recovery.

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I had two or three days to go in each week.

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I met this lovely lady who took art groups...

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and it got me mixing with people, as well.

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I had a routine, for the first time.

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Get up, go in, see the nurse, do a group, maybe see the doctor.

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And come home.

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The work Maddy did at the day hospital,

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coupled with anti-depressant medication,

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meant that she could begin to recover - for the first time.

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Two, three, four years ago, I remember waking up and thinking,

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"Oh! I don't want to die today. I don't want to kill myself today."

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That was fantastic!

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Getting well was like being born for the first time.

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Dudley Moore! Good Lord, is he "jazz"?

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Gosh, it's so dated, it's beautiful!

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I could see things, I could communicate with people,

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I could... SHE SIGHS

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..enjoy, maybe? Nearly?

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Get pleasure out of things - that's a better way to say -

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get pleasure out of things I thought I'd never get pleasure out of.

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Even just observing scenery, or...

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you know, anything.

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In Flint, 21-year-old Kelly Boylin also knows the pain of mental

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health problems from an early age.

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I started self-harming when I was ten...

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but I didn't really understand at all what I was doing.

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I had no idea what self-harm was,

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or why people did it,

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or...what caused it, or anything like that.

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I just knew that I was in pain and wanted to get away from it.

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It's horrible. Everybody judges you - your friends, your family.

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You're now the person with a mental health problem.

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A diagnosis doesn't make me a monster - I'm not dangerous.

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I'm just like you, I'm just like everybody else -

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I'm a normal human being.

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I just find things a bit more difficult sometimes.

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A traumatic childhood, which she's still reluctant to talk about,

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made her mental health worse, and by the age of 15, she was

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placed in a specialist unit for teenagers in Colwyn Bay.

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I actually remember the day I got took in

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was the last day of my GCSE exams.

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I remember saying goodbye to my friends at 3.30 at the gates

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and saying, "I hope we all get the results we want."

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And then, literally, crossing the road and there being a taxi

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waiting for me to take me to this mental health unit

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that I knew nothing about,

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and didn't know what I would face when I got there.

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And I was so, so scared.

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It was horrible. I hated every single minute of it.

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I think I was just a very angry little girl at the time.

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I just fought against the system by carrying on, trying to take my life,

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and self-harming and... in a number of ways, really.

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Slamming doors, getting angry.

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Running away - I did that a number of times, as well.

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The opportunity to work with a trained

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psychologist at the unit was a turning point for Kelly.

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Bronwyn was my care co-ordinator.

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But she was also a child psychologist.

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She was lovely. She wasn't intimidating or anything like that.

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She was just really warm, and asked the questions quite subtly,

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so she wasn't in my face and didn't scare me.

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She really understood how hard it can be to be that age

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and be struggling with

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such harrowing things.

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She'd see me about once a week,

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and we'd talk about how things are getting on at the unit,

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what I was finding hard and what I was getting a bit better with.

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I finally realised it's kind of now or never.

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I had to do something with my life,

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and just make people proud of me.

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I think I was really fixated on making people proud of me.

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So it definitely spurred me on.

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We really had a really close connection.

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We got on really well and used to be able to have a laugh.

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We'd go out for coffee and for walks.

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We just got on really, really well.

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It felt like she was a massive support network in my life.

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Six years later, we're still doing that.

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I'd almost call myself her "transitional object".

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If you think about teddy bears and their significance for toddlers,

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as they move on into school,

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or sleeping in their own bed, or anything of that sort.

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So, although it might sound a little bit trite,

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I've allowed Kelly to "hang on" in a way.

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She's in that very difficult 18-to-25-year-old group

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that finds the movement from, maybe,

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children's services into adults' services quite difficult.

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What if you suddenly find that,

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because it probably will happen - these things are always swings and roundabouts...

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the times when the bad days,

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for whatever reason, outweigh the good again.

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How will you cope with that?

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I really feel I'm here to make a difference, somehow,

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and I want to make that happen.

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I don't know exactly what that is.

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I find it really, really helpful,

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on the mental health side of things,

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to have somebody around me that's quite a lot older than me,

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that has a lot of experience.

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-I think it's really important.

-Luckily, somebody had spotted it.

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In Marlborough, Natalie is facing a difficult task.

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Her recovery means daily challenges, such as shopping for food

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with the help of a specialist nurse.

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Erm, I don't think I'll be able to do it, to be honest.

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Especially cos they've got the calories all over there... and I'm just thinking,

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I don't know what I can have without putting on too much weight.

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But then I know that I'm here to put on weight.

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I want to choose what I want, because, otherwise,

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it's giving in to the anorexia, and I've done that for so many years.

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But that is terrifying.

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I know they're having crisps,

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fruits and a sandwich on the ward,

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so I guess I could follow that...

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It does give you a guide, though.

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Can I just steal that around you, sorry? Thank you.

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OK, so what else do I get in this, then?

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-If I grab a bottle of water and a pack of crisps?

-Yeah.

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And then some fruits.

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I'm always really conscious about what people are thinking about what I've eaten,

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I love Worcester sauce.

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-Hands-down decision.

-And then fruits.

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They're onions - that's not good.

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And especially, like going out and choosing meals

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when you don't know what's in the food...

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how many calories are in so-and-so.

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This feels so weird.

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And a lot of places now put calories on the menu.

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Some supermarkets even have them

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in front of the cake when you're choosing them.

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For someone like me, that is horrific,

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as being able to choose something you actually want

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is really difficult.

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Natalie's team from the Whitchurch Hospital Eating Disorders Unit

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has come to Marlborough to discuss her future.

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Natalie remains sectioned under the Mental Health Act, but she has

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found a flat in Cardiff and wants to live there independently.

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Basically, Natalie's been progressing quite well

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with the treatment plan set for her.

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She's been completing meals...

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no problems with that.

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Natalie has progressed really significantly recently.

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Having a very focussed determination now to recover.

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Personally, I'm very optimistic

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about how she will be able to continue

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this hard work in order to achieve the goals she has in mind.

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Ending treatment abruptly at the hospital in Marlborough

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would not be good for Natalie.

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So the staff will discuss allowing her to share her time

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between her flat in Cardiff and the unit in Wiltshire.

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Some of the key points would be thinking about planning your meals

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at home, thinking about shopping and what the facilities are.

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Getting used to shopping in particular places,

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and what they have available.

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Then, preparing those meals and having some support around that.

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I thought that was really positive, actually.

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I'm always really anxious before I go in,

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just because it's sort of feeding back on your progress,

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and about planning for the next couple of months.

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I can override those anorexic thoughts

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and hopefully then they'll get quieter.

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It's like anything, I suppose.

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If you don't listen to it, it will eventually give up,

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and I hope that will be the same with the anorexia.

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Natalie still has much work to do, though.

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Preparing food and eating independently

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will be a key part of her recovery.

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How long does this take to cook, chicken?

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About 20 minutes?

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So that will have to go on first.

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I'd probably cook that one with onions.

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OK?

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One of the key issues that makes it difficult for people with anorexia

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to eat, generally,

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is a sense of guilt around eating.

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That's very difficult to manage

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when they're eating on their own,

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but is even more pronounced if they're eating in company,

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and therefore they feel other people are aware of what they're eating...

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and maybe having thoughts that are quite critical

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about them and how much they're eating.

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Do you think that looks even? What do you think?

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-I don't know.

-It looks a hell of a lot.

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Do you think there's more on that one?

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Maybe. Does it matter, though?

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Hmm, no. No.

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No, probably not.

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-OK.

-OK?

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Recovering from mental illness is a daily challenge,

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and maintaining wellbeing can often feel like hard work.

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For me, when I was unwell,

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then I wouldn't dream of putting any kind of make up on.

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I would always be clean and tidy, but there was no motivation,

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and what's the point anyway?

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Everything was pointless.

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It's only when you're well, for me,

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that you think of making it even better.

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I suppose that's a way of putting it, by doing your hair nice

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or having a haircut or putting some make-up on.

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It aids what you've already got.

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But you have to be well enough to want to do it.

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Somebody noticed that if I'm feeling not so good,

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I would tend to wear darker, plain clothes.

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It's not something I'm aware of or do consciously,

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but I guess it probably does reflect on how I'm feeling that day.

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Cos, I mean, for me, there's quite a lot of actual motivation

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and thought planning in what I wear.

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So, if I can't function very well,

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if my thought processes aren't very good

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and my concentration isn't good,

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then it probably reflects on what I'm wearing.

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I am a person who likes to be a bit individual,

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likes to make, certainly, the best of what I have.

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It's just something I enjoy doing, really, make the best of myself.

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I love the compliments, if I get any,

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and I love to give compliments too.

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But it would be the ultimate compliment to me

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for people to like me for who I was, rather than,

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"Oh, I like that jacket."

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Cos, at the moment, I think,

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"Well, nobody would like me for who I am...

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"because I've got nothing to offer."

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Kelly made a good recovery

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from mental health problems during adolescence,

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until she received shattering news three years ago.

0:18:050:18:09

I remember being out shopping with my friend.

0:18:090:18:11

I got a phone call from my mum telling me that I had to go home

0:18:110:18:15

because something had happened to one of the family members.

0:18:150:18:19

She sat us both down...

0:18:190:18:22

and I remember her bursting into tears and...

0:18:220:18:25

..just saying that this wasn't a joke

0:18:270:18:30

and that I had to take this seriously

0:18:300:18:33

and that she never wanted to have to tell me this,

0:18:330:18:35

but that my middle sister, Kimberly,

0:18:350:18:38

had committed suicide during the night.

0:18:380:18:40

It just felt like something out of a film, just not real.

0:18:480:18:53

I couldn't believe it, because Kim was such a strong-willed person

0:18:530:18:57

and so dedicated to what she was doing and...

0:18:570:19:01

She wanted to open up her own law firm

0:19:010:19:03

and she had so much going for her, that I literally couldn't believe it,

0:19:030:19:07

and I actually didn't believe it for about two years after her death.

0:19:070:19:11

I come here about once a week

0:19:220:19:23

and I think it's still important for me to come here,

0:19:230:19:26

so I feel that Kim knows that I still care about her, you know,

0:19:260:19:29

I still want to come and commemorate her memory and remember her.

0:19:290:19:34

But I don't always bring flowers. I tend to bring little fairies

0:19:340:19:37

because she used to have a collection of fairies on her bedside table

0:19:370:19:40

and different things like that.

0:19:400:19:42

And sister plaques and little poems and things.

0:19:420:19:45

I just bring something different.

0:19:450:19:46

It's...

0:19:480:19:50

These last three years has to be the worst three years of my life,

0:19:500:19:55

because...

0:19:550:19:57

my sister's not here and I still can't accept that sometimes

0:19:570:20:01

and, for the first two years of when she was gone,

0:20:010:20:04

I continuously tried to join her.

0:20:040:20:06

I felt that she deserved to be here more than me

0:20:060:20:09

and, somehow, magically, if I ended it all,

0:20:090:20:11

then someone would bring her back

0:20:110:20:13

and she'd be able to live the life that she deserved to live.

0:20:130:20:17

Well, I set up a campaign in Kim's memory

0:20:300:20:33

because, before Kim took her life,

0:20:330:20:34

she'd been on a waiting list for mental health services for two years

0:20:340:20:38

and she still hadn't been seen by anybody

0:20:380:20:41

by the time she had committed suicide.

0:20:410:20:43

So, in her memory, I set up a campaign called Kim's Voice

0:20:430:20:46

which is fighting for better mental health services in the UK

0:20:460:20:49

and I think it's a really good outlet for my grief,

0:20:490:20:51

it's a really good way for me to reach out and let other people know

0:20:510:20:55

not just how I'm feeling, but actually how a lot of people,

0:20:550:20:58

when they lose people to suicide, feel.

0:20:580:21:00

If I could help one person through this campaign,

0:21:010:21:03

then something good would have come out of Kim's death

0:21:030:21:06

and the rest is just a bonus.

0:21:060:21:08

I hope she'd be proud of me.

0:21:090:21:12

But I guess...

0:21:120:21:13

That's one of the hardest things to accept, that you'll never know.

0:21:130:21:17

But I hope she'd be proud of me. People tell me that she is.

0:21:170:21:20

So, I hope she is.

0:21:200:21:21

Natalie's move back to Cardiff

0:21:260:21:28

is a chance for her to live independently for the first time.

0:21:280:21:32

It used to be a constant thing on my mind, you know,

0:21:320:21:35

"Where would I find to live, I need somewhere to live..."

0:21:350:21:39

But I was anxious about whether I'd be able to cope,

0:21:390:21:42

whether I'd like it, whether the area was going to be good,

0:21:420:21:46

whether I was going to feel safe there, that's a big thing for me.

0:21:460:21:49

This is my apron, which is very honest.

0:21:490:21:51

The idea that I only have a kitchen because it came with the house.

0:21:510:21:55

Cooking the easy way, ping!

0:21:550:21:57

That's pretty much my level of cooking skill at the moment.

0:21:570:22:00

I didn't want to be placed just anywhere,

0:22:000:22:02

I wanted somewhere that was actually going to be good for me

0:22:020:22:05

and good for my recovery, allow me to practise all the skills

0:22:050:22:08

and not put me back into an awkward position, I guess.

0:22:080:22:13

You know, they mentioned hostels and that wasn't for me,

0:22:130:22:15

I didn't want to go into a hostel.

0:22:150:22:17

I needed somewhere with my own kitchen,

0:22:170:22:19

because I wanted to be able to cook.

0:22:190:22:21

One of the biggest parts of my journey is to get that independence.

0:22:210:22:25

So, yeah, I placed a lot of hope on this place.

0:22:250:22:28

The period of transition from the inpatient unit

0:22:280:22:31

to living in the community is a very difficult time,

0:22:310:22:35

and that's why we aim to focus a lot of intensive support

0:22:350:22:39

around that period.

0:22:390:22:41

With time, that will be tapered away

0:22:440:22:47

and she will be offered a range of psychological therapies

0:22:470:22:51

and dietician advice in order to maintain her weight.

0:22:510:22:56

It's like the golden carrot,

0:22:560:22:58

the final discharge is the end of the road, a long road.

0:22:580:23:01

It's not the end of the recovery, I don't believe that for one second.

0:23:020:23:06

I think I'd be naive if I thought it was.

0:23:060:23:08

The hard work is yet to come.

0:23:080:23:10

For me, this time, it feels really good

0:23:130:23:15

to have gone through the procedure properly, to not have bolted.

0:23:150:23:19

My GP saved my life when he sectioned me,

0:23:190:23:21

and I never thought I'd say that.

0:23:210:23:23

I've really enjoyed going out for meals now.

0:23:250:23:28

And really quite empowering just to be able to look at a menu

0:23:280:23:31

and choose what I wanted,

0:23:310:23:32

as opposed to choose what I think I ought to have.

0:23:320:23:35

And last weekend, I went out with friends for a meal,

0:23:350:23:37

but I actually really like looking...

0:23:370:23:39

I look forward to going out for meals,

0:23:390:23:41

mostly if someone else is paying.

0:23:410:23:43

So, please...

0:23:510:23:54

1998, take one.

0:23:540:23:56

Action!

0:23:560:23:58

Maddy considers paid work to be a crucial part of her recovery,

0:23:580:24:02

offering some financial independence and a structure to her day.

0:24:020:24:06

From the early age of school,

0:24:060:24:08

I never believed I could do a job, ever. Any job.

0:24:080:24:11

Any job posed a problem and that's with me throughout my life, really.

0:24:110:24:15

I fell into TV extra work.

0:24:150:24:18

I'm a supporting artist, known as SAs.

0:24:180:24:21

Because my husband knew an agent, and I phoned,

0:24:210:24:23

and there's no audition, there's no interview,

0:24:230:24:26

and that's kind of suited me.

0:24:260:24:28

I love going out, new places, new people,

0:24:290:24:32

so it's almost like a social thing.

0:24:320:24:34

I like the fact of being part of a team,

0:24:350:24:39

I do like the fact of, you know,

0:24:390:24:41

I've been on Casualty or Doctor Who or, you know, the big shows,

0:24:410:24:45

so that's all great.

0:24:450:24:46

It stops me being at home, moping, thinking I'm useless.

0:24:470:24:50

And action!

0:24:500:24:52

I love my TV work, but it's not nine to five.

0:24:540:24:57

You know, I can go for months where I don't get anything

0:24:570:25:00

and then a block of crazy weeks where there's loads, but...

0:25:000:25:04

So, I suppose I'd feel normal and recovered

0:25:040:25:08

if I had a proper job, but...

0:25:080:25:10

That's a challenge in itself.

0:25:120:25:14

I can't see a normal, proper job that wouldn't scare me to death.

0:25:140:25:20

So, I'm kind of...

0:25:210:25:23

Knowing what I want, and knowing what I should be doing,

0:25:230:25:26

but too scared to do it.

0:25:260:25:27

For me, now... Yes, I'm the best I've ever been.

0:25:320:25:36

Yes, I still get bad days.

0:25:360:25:37

Yes, I still have issues

0:25:370:25:40

with concentration and motivation, particularly, sometimes focus.

0:25:400:25:44

And I accept that's always going to be a bit harder for me

0:25:440:25:48

than maybe other people.

0:25:480:25:51

But recovery, for me, I suppose,

0:25:510:25:54

is being able to get where you want to be and not have...

0:25:540:25:58

..mental health issues that will hinder that.

0:25:590:26:02

Kelly is working hard to maintain her mental wellbeing,

0:26:080:26:11

but knows that she needs time to think and grieve for her sister.

0:26:110:26:14

Me and Kim had a massive, massive love for horses.

0:26:160:26:20

My parents had a few horses and we used to go riding regularly.

0:26:210:26:25

So, I guess when I'm riding,

0:26:250:26:27

it's really the one place that I feel Kim around still

0:26:270:26:30

and I feel like I kind of connect with her.

0:26:300:26:33

So, that's really important to me.

0:26:330:26:35

I think having a sense of freedom is really, really important,

0:26:390:26:41

and this, horse riding, is definitely my sense of freedom.

0:26:410:26:45

And, I guess, it's an escapism for me,

0:26:450:26:48

via my post-traumatic stress disorder,

0:26:480:26:51

the memories, the flashbacks...

0:26:510:26:53

It's the one place where I...

0:26:530:26:55

where I feel safe and at home.

0:26:550:26:57

I feel I'm kind of half way recovered, really.

0:27:090:27:12

I still think I've got a lot of work to do,

0:27:120:27:14

and that's mostly around the post-traumatic stress disorder,

0:27:140:27:17

but I've really done well, self-harm-wise,

0:27:170:27:19

and especially with my eating and things like that,

0:27:190:27:24

I've come a long way...

0:27:240:27:26

And, as well, I've not overdosed in a very, very long time.

0:27:260:27:29

I've not tried to take my life in quite a while,

0:27:290:27:31

so, I think that's really important for me to recognise as well,

0:27:310:27:34

for my recovery,

0:27:340:27:35

is how long I've gone without doing these damaging things.

0:27:350:27:39

Those who have been brave enough

0:27:400:27:41

to share their stories during this series

0:27:410:27:44

face the prejudice and fear many of us feel about the mentally ill

0:27:440:27:47

every day.

0:27:470:27:48

The aim for psychiatric services in today's Wales

0:27:480:27:51

is to place those with challenging mental conditions

0:27:510:27:54

at the heart of any decisions about treatment in the right environment.

0:27:540:27:58

Changing attitudes will take time,

0:27:580:28:00

but the era of treating people in asylums is over

0:28:000:28:04

as professionals and patients now look for a more modern approach.

0:28:040:28:08

Many of the mentally ill

0:28:080:28:10

are now being treated alongside the physically ill,

0:28:100:28:13

in purpose-built units,

0:28:130:28:14

helping break down barriers and reduce stigma

0:28:140:28:17

against some of the most marginalised people in our society.

0:28:170:28:21

Subtitles by Red Bee Media Ltd

0:28:340:28:37

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