The Boy with No Hands


The Boy with No Hands

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Meet Alan, a happy young boy from an ordinary family

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who likes nothing more than playing video games,

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wrestling with his stepdad

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and sometimes even doing his homework.

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Just an ordinary boy.

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Alan was born with hands, but after a serious illness,

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the decision had to be made

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to have them amputated to save his life.

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The last time I held Alan's hand was the night before his operation

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for him to have his hands removed.

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Now, at the age of ten, he has learned to cope,

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but still struggles with some things we take for granted.

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He held his hand out with a tiny little bit of food on

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and it was slipping off his hand.

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Oh, I can't do it!

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Even with his closest friends,

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he refuses to talk about his disability.

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How does it feel not to have fingers, Al?

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Uh-uh.

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But this young boy is about to embark on an extraordinary journey.

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Alan is about to be given the chance of being the first child in Wales

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and the second youngest in the world

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to receive a state of the art £30,000 bionic hand.

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We follow Alan on his ground-breaking journey.

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This is Alan's story.

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'I'm Alan, I'm ten years old

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'and I live in Loughor, near Swansea.

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'I can unzip my coat

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'and I can climb

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'and swing on a swing.

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'My dream is to ride a bike like a big boy.'

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Alan has had many challenges in his short life,

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but he has faced all of them with amazing determination

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and that hasn't gone unrecognised,

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as he recently won a Child of Courage Award.

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Now, his mum told us in her nomination,

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"All my brave little boy wants

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"is to be like all the other kids his age -

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"independent, being able to ride a bike,

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"eat with a knife and fork and dress himself."

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His mum also added,

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"So I'm doing everything in my power to make his dreams come true."

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Ladies and gentlemen, Alan Gifford!

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Alan's mum Hannah has worked tirelessly for the past year,

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raising the £30,000 needed for Alan

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to receive a state of the art bionic hand,

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which isn't available on the NHS.

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It hasn't been an easy task with hours and hours of research

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and countless charity events, coffee mornings, auctions

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and motorcycle rideouts to raise funds

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for the Hands For Alan charity.

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When I found out I was pregnant, I couldn't have been happier.

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He was born normal. He was born on time.

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They scanned Alan after he was born and found out

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blood flow wasn't getting round his body as well as it should have been.

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I was devastated to find out that, at nine days old,

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he had to have his first operation to keep him alive.

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Between then and three,

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I'd say he's had easily at least 40 operations

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just to sort out his hands.

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That one there...

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Hannah's eldest two boys live with their father Nicholas,

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who was there by Hannah's side

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through Alan's very difficult early years.

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Yeah, that's what we call it.

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'I met Alan when he was a matter of months old.'

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I was there all the way

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through his time in hospital from beginning to end.

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He was in and out of hospital quite a lot for various reasons.

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Not long before his third birthday, he had his major heart surgery.

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He went in for the operation in July.

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We were told by the doctors three times that he could lose his life

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and we had to be prepared for that, to get everybody in.

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It is one of the most heartbreaking things you could do...

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..to know that could be the last time you see him.

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It shows what a little fighter he is because he beat it three times.

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Alan pulled through, but that wasn't the end of the agony for them.

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He was in intensive care then for the first week.

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I noticed that Alan's fingertips were starting to turn black.

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And later in the week, both hands,

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right down to the wrists,

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were completely black.

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Although Alan's hands were dying, doctors had to wait

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until he was strong enough to undergo more surgery.

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Just after his third birthday, they said he was well enough

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to go for the operation to have his hands removed.

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After the operation, he came through it OK and he was back, he was alive.

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That's all that mattered.

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I didn't care that he had no hands because he was alive.

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That's all I kept thinking, "He's alive, he's here with me.

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"I haven't lost my son."

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When Alan came out of hospital after having his fingers removed,

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I was seven and I knew that he was different

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because he didn't have his fingers,

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but I didn't treat him any differently.

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He was still my little brother.

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All I knew was that he was alive, he was here and now I'm 15

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and I know everything that was going on, I understand it now.

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His family have been a great support throughout,

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but Alan had to face the challenge

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of going to school just like any child.

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All right, Alan? Make sure you stay in the lines.

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'He's a joy to teach.

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'He's happy, he's determined,'

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he puts 100% effort into everything he does.

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'I was apprehensive because I'd never taught anyone without hands.

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'You don't know what to expect, do you, but sometimes you forget that

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'he's got no hands cos he's just as able as other children in the class.

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'Yeah, his handwriting is really good.

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'You wouldn't even think he has a disability

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'and he absolutely loves handwriting.

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'It's one of his favourite subjects.'

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Even though Alan has mastered a host of practical tasks,

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he still struggles to talk about his disability.

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How does it feel not to have fingers, Al?

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Uh-uh.

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What?

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-I'll not tell you that, like.

-OK.

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Does it feel normal?

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-I don't want to talk about it.

-No.

-When...

-I don't like it.

-Huh?

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I don't like talking about it.

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-He doesn't like talking about it.

-OK, sorry.

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'We're working on strategies on how to get him

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'to be confident rather than being afraid and self-conscious.'

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'I like basketball because it helps you get fit

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'and it's a fun game to play.

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'With basketball, usually we use our fingertips

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'to control the basketball, so when I found out

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'there was a boy with no fingers,

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'I thought that would be very difficult and very challenging.'

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A little bit tricky to begin with, but he gets the hang of it

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and he just jumps in and carries on.

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'He is just a normal boy that happens to have a disability.'

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He's had people make fun of the fact that he's ten years old

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and he should be able to do it, but obviously he can't do it.

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People don't like differences, I find, so that's when we tend

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to get people saying stuff or bullying and things like that.

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Ben, Alan's stepdad, is all too aware that people's first reactions

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to Alan aren't always helpful.

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The first thoughts when I met Alan, I'm not going to lie,

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I was a bit taken aback.

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I'd never seen a child before with no hands

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and I didn't know how to react.

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'As I get to know Alan more and more,

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'I see the person that he is, the loving child that he is,

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'the caring son that he is for his mother.

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'Best way to describe Alan is a lovable boy

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'who will do anything for anyone, no matter what.

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'He'll help anybody out any time,

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'especially his brothers and sisters.'

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I'm going to go on the zipwire and go high, go high at the end.

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'He surprises me and makes me proud every day with what he can do

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'and what he achieves and just being him.

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'He's so loving.'

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Get your shoes on!

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'Alan, at his age with his disability, has managed

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'to master as much as I think we're going to be able to with him...'

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One...two...three!

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'..which is why we decided that, OK, he needs something to help him

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'and after a lot of research, and a lot of looking into it,

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'we decided, right, the bionic hand was the best way for us

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'to progress with everything that he will need to do.'

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Wheeeee! Whoa!

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'Today, we are having a day out at the duck place near my house.

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'We are all going together -

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'me, Mum, Dad and my brother and sisters.

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'I'm so excited that I might get to feed a real duck.

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'It's a little family treat because, tomorrow,

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'I go to Scotland for my new hand.'

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'To feed the ducks is easier for the little ones, whereas, for Alan,

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'he finds it hard to get his hand into the bucket to be able

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'to get as many seeds for the ducks as the others,

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'and he's throwing them, he's dropping them.

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'It's a lot harder for him.

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'He held his hand out with a tiny little bit of food on

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'and it was slipping off his hand.'

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-Oh, I can't do it!

-It's all right. Hey, give me your other hand.

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'Alan's feelings about the hand since day one has been excitement.

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'He wants to be able to do new things

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'as well as do better at things he can already do.'

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With this hand, he's going to be able to do so much.

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It's going to change his life for the better.

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'I would like to come back with my new hand and feed the ducks

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'and maybe they can try and take it out of my new hand.'

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You want some more?

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First thing I'm going to do when I get my new hand

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is to go trick or treating

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and hold my bag with this hand,

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and get the treats with my new hand.

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Alan is helping his mum pack the case for their journey to Scotland.

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I'm going to wake up and everyone's going to get dressed,

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and then, we take the plane to Scotland, to get my hand.

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This is a very emotional time for Hannah,

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as the wait is almost over and it brings back some powerful memories.

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The last time I held Alan's hand was basically

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the night before his operation,

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and taking him down to the theatre for him to have his hands removed.

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'Even though I know he couldn't feel me touching his hands...'

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I love you.

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'..I still held on to him,

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'knowing that was the last time that we would see him with his hands.'

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Can I have a kiss?

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'Very emotional time, back then.

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'And to be able to feel that again is going to be amazing.'

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OK. All done!

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Can't quite believe this day has actually arrived,

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but it's here and we are set to go.

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First time flying for both me and Alan.

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To know that we've achieved the first part

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of our goal for Alan is just the best feeling in the world.

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The final step in Alan's long journey

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to a new hand will be Scotland.

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He's embarking on an intensive, week-long process of having

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his £30,000 bionic hand fitted and learning how to use it.

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This will not involve any surgery - the highly sophisticated

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electronic hand fits onto Alan's arm like a glove.

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But there is one major challenge - mastering the new technology.

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Touch Bionics is a manufacturer of a multi-articulating prosthetic hand.

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All of the fingers have a motor on each finger, which really lets it

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shape round objects much more like your human hand would.

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-Oh, wow, look at that!

-Yeah!

-That is an Iron Man hand, isn't it?

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-How are you, Alan?

-Good.

-Good! Are you excited?

-Mm-hm.

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-Excellent, great.

-Ready to do some work with the hands?

-Yeah.

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The human hand is a major feat of engineering

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and extraordinarily difficult to replicate with man-made mechanics.

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And although this bionic hand is at the forefront of prosthesis

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technology, Alan has a long way to go to reach his own expectations.

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This will be a huge learning curve for him.

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The first thing we would do when somebody learns to use

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a prosthesis is we identify the optimum muscle

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sites for controlling it.

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So, these are within the residual arm and we can position

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little electrode sensors on, just sit on the surface of the skin,

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and that will pick up the best part of the muscle activity,

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which we then train to get clear and independent signals,

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one for opening and one for closing of the hand.

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What we've got here is a silicone socket.

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The silicone is a nice, soft and forgiving material,

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nice and comfortable next to the skin.

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We've got a zip in it, which is allowing it to just open up,

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so that Alan can push into it and position, then fasten it

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so it is securely holding on his arm,

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with the electrodes nicely in position on his skin.

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We'll now do the same thing again with your socket on.

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But now we've got the hand in position, OK?

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So, then you're controlling the hand,

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rather than just looking at lines on the screen.

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You can actually see the movements of the hand as well, OK?

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For the first time in years, Alan is able to move his fingers.

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But keeping a grip on any object takes huge concentration.

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Now, what I'd like you to do,

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if you could give it a little gentle squeeze and then just relax.

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And I want you to move your arm about with no signals.

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Oh, OK.

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So, we've got the hand in position now.

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The socket is the same as it was, the electrodes in position

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exactly as they were, but, obviously, we've got the hand attached. So...

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That's good stuff.

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The tasks Alan could do easily before now become a difficult

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challenge with his bionic hand.

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It is back to basics for Alan, but if he can't get on top of it,

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his dream could end here.

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It's early days, but so far, so good.

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Phew! Heart-wrenching for me, really, to see him doing that,

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because I've never seen him using a hand before, it's...

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-HE SNIFFS

-..absolutely awesome.

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He's a superstar.

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The first time today picking up any object with the prosthesis,

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with the hand attached, so all the good work

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he was doing earlier with controlling his signals,

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he has now put into practice by actually engaging with objects.

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'He can then extend that, as their learning grows, to become

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'more adept in their day-to-day-type activities.

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'So, things that are more complex than just picking up and

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'putting down, so making a sandwich or opening packets,

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'preparing meals, or something that is important to Alan is

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'riding his bike, so we can look at those practical-type activities.'

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Are you going to tell us all what it says?

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-Because I can read it over here...

-I love Mum and Dad.

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It's been a hard week for Alan, getting used to his new hand.

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It's the last day at Touch Bionics

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and everyone thinks he's ready to see and use his personalised

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and completed bionic hand for the first time.

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-Are you excited about seeing your new arm?

-Yeah.

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What do you think it's going to look like? Iron Man.

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-Iron Man, you think so? Do you want to see it?

-Yeah!

-There we go.

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Oh, wow, look at that!

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-What do you think?

-Good!

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BIONIC HAND WHIRS

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THEY CHUCKLE

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Remember, we can use a different type of grip

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that might make it easier. So, which one are you going for?

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Alan has made great progress.

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He is now able to use the hand to perform more complex tasks,

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opening and closing the hand with muscle movement inside the socket

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and utilising the four set grips saved into its memory.

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To change any of these, he simply

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moves the arm forward, back, left or right.

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36 different grips can be programmed to the hand

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through a mobile app - a lot for a boy of ten.

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But Alan has never let anything stop him.

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Children like Alan get a lot of benefit from the prosthesis,

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particularly as they want to become more independent from their parents,

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to be like their friends. You know,

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they don't want to be left behind at school, or left out socially,

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so it's important to be able to use a prosthesis which will allow

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them to be much more functional in their day-to-day activities.

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It's amazing to watch, because he's never been able to do

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anything like that without assistance.

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Just to be able to see him doing it himself and actually buttering...

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Good! All right.

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With bionic hand successfully fitted and operational,

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a whole new world starts to open up for Alan.

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Each task, a brand-new challenge.

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With pen in hand, he now redraws a picture

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he made earlier in the week, with one significant difference.

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This time, the drawing has fingers on one hand.

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Wow, look at that!

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Look, you've got fingers!

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Dad!

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You're a little superstar.

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Come here, boy.

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Come here.

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Ohh!

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Dad, Dad, Dad...

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All right, boy.

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'Oh, happy, we're very happy to be where we are now.'

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A new life ahead of you, isn't it? Eh?

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Yeah.

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And before he leaves, Alan has a special visitor -

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Josh Cathcart, the youngest child in the world

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to receive this kind of bionic hand.

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We knew Alan was getting his hand today,

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so we thought we'd come across and see how, um,

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they felt about each other when they've both got their hands,

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so, it's sort of a good moment for them. They're both the youngest in

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the world to have it, so, it's good that they're quite close together.

0:21:590:22:02

And to help build their bond, he has a special gift for Alan.

0:22:020:22:07

Oh, wow, look at that!

0:22:070:22:09

Wow, that's brilliant, thank you.

0:22:110:22:13

A world first - the youngest bionic handshake.

0:22:150:22:20

I'm really looking forward to being able to walk out of here...

0:22:210:22:26

Can't believe what I'm saying!

0:22:270:22:29

..Um, just to be able to walk out of here and hold his hand.

0:22:300:22:33

Sorry!

0:22:360:22:37

-Thank you.

-Thanks very much for coming here.

0:22:370:22:41

Back home in Loughor, it's Halloween.

0:22:580:23:02

Alan said the first thing he wanted to do with his hand was

0:23:020:23:05

to go trick or treating.

0:23:050:23:06

And tonight is Halloween.

0:23:060:23:08

I'm going to go to lots of houses and scare them!

0:23:080:23:12

Raah!

0:23:120:23:14

One of his dreams is about to come true.

0:23:160:23:19

If he can get some treats, of course.

0:23:190:23:22

-ALL:

-Trick or treat!

0:23:220:23:24

Another milestone for Alan.

0:23:310:23:34

Today, we are at Alan's school, and it is the first time since we've

0:23:440:23:48

been back from Scotland and got his hand that he's come to school.

0:23:480:23:52

He's really excited to be able to show all of his friends.

0:23:520:23:56

The first visit is to Mrs Sanderson, the headteacher.

0:23:560:24:00

Let's have a look!

0:24:000:24:02

You look a happy boy this morning.

0:24:020:24:04

Wow! Goodness! What does it feel like, Alan?

0:24:040:24:07

-Um, it feels heavy.

-It feels heavy, does it? It does look quite heavy.

0:24:070:24:12

What does it do? Can you move it for me? Oh, wow!

0:24:120:24:16

-Wow, that really is bionic, isn't it, Mum?

-Yeah, definitely!

0:24:160:24:20

Amazing, wow. How are you making that happen?

0:24:200:24:23

Um, I've got a sensor there and a sensor there.

0:24:230:24:28

And that one is for closing, that one is for opening.

0:24:280:24:32

Look at this!

0:24:350:24:36

-ALL:

-Oooh!

0:24:360:24:38

That looks cool.

0:24:390:24:41

A proud moment for Alan.

0:24:410:24:44

Wow, silence!

0:24:440:24:46

The room is captivated.

0:24:460:24:48

And the once shy and reserved Alan is coming out of his shell.

0:24:480:24:52

The first time he's been able to show off his hand in front

0:24:520:24:55

of his class, and his wicked sense of humour is given a helping hand.

0:24:550:25:01

LAUGHTER

0:25:010:25:05

The confidence is such a change, in just a week,

0:25:050:25:09

just his face is like, totally lit up, isn't it?

0:25:090:25:12

-Yeah.

-So, that's good, that's what we wanted.

0:25:120:25:15

It made me feel very emotional, but also very proud of him,

0:25:150:25:21

to see that his confidence is building, he is...

0:25:210:25:24

"Yeah, I can do this."

0:25:240:25:27

Alan!

0:25:270:25:28

HE LAUGHS

0:25:300:25:33

It's nice to meet you!

0:25:330:25:35

Nice to meet you!

0:25:350:25:37

Two months on and Alan is getting used to his bionic hand.

0:25:410:25:46

He's learning to use it,

0:25:460:25:49

he's adjusting things to how he needs things, he's finding new

0:25:490:25:53

things he wants to do with it every day and it has changed his life.

0:25:530:25:59

Toast tastes better when you do it on your own.

0:25:590:26:02

I am going back to the duck place today.

0:26:070:26:11

I was upset last time, because I couldn't feed them properly.

0:26:110:26:15

If you just put your hand down, they'll come to you, Alan, OK?

0:26:150:26:19

There we go.

0:26:190:26:20

Compared to what we were like last time,

0:26:200:26:24

when he was struggling to get the food to stay on his hand,

0:26:240:26:29

and now to see them actually feeding out of his hand is amazing.

0:26:290:26:34

Alan has found it a big challenge to learn to write again

0:26:350:26:39

with his new hand.

0:26:390:26:41

But now his teacher has started to see a marked improvement.

0:26:410:26:45

The Thursday after he came back from having his hand - very big,

0:26:450:26:50

very messy, lots of it.

0:26:500:26:53

However, he did complete the work, but it's really hard to read.

0:26:530:26:57

The following week, it got slightly smaller, we'd worked really hard

0:26:570:27:02

with him getting it a bit smaller, reminding him to take his time.

0:27:020:27:07

And then, this is the work that I think Alan would be probably

0:27:070:27:10

the most proud of.

0:27:100:27:12

The hand is great, with the technology and everything,

0:27:120:27:15

he can move it and do things like he could do with a real hand,

0:27:150:27:18

but at the end of the day, it's not a real hand, it still has its

0:27:180:27:22

limitations, there's still stuff he's not going to be able to do.

0:27:220:27:25

But at the end of the day, it doesn't stop him,

0:27:250:27:28

and since he's had it, his confidence has soared so much.

0:27:280:27:32

He is like a different child.

0:27:320:27:34

All his life, Alan has wanted to ride a bike.

0:27:360:27:40

Now he has his first bike and he's ready to have a go.

0:27:400:27:45

It is another big day for Alan.

0:27:450:27:48

Everything that we've done, all the hard work, has paid off.

0:27:530:27:56

It's been a hard few years.

0:27:560:27:58

Since the day we decided to start all the fundraising,

0:27:580:28:01

I never thought this day would be possible.

0:28:010:28:03

To see him now riding his bike has made everything worthwhile.

0:28:030:28:08

And, hopefully, now in a couple of years' time, he will have

0:28:080:28:13

a second hand and there will be nothing to hold him back.

0:28:130:28:17

The future is looking bright.

0:28:170:28:19

I've wanted to ride a bike my entire life.

0:28:210:28:24

And now, because I'm riding one, I feel really, really happy.

0:28:240:28:28

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