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OK. | 0:00:08 | 0:00:09 | |
Right, where should we start? | 0:00:15 | 0:00:17 | |
I should tell you that I have | 0:00:17 | 0:00:18 | |
a problem just going off on one, sometimes. | 0:00:18 | 0:00:21 | |
So at the moment now, you see, I'm thinking about... | 0:00:21 | 0:00:24 | |
I'm talking to you, but I'm actually thinking about ME163s, | 0:00:24 | 0:00:27 | |
which were a type of aircraft, a rocket aircraft. | 0:00:27 | 0:00:30 | |
In fact, they were the only rocket aircraft. | 0:00:30 | 0:00:33 | |
So now I'm thinking about the ticker tape parade that the astronauts did | 0:00:33 | 0:00:37 | |
when they got back from the moon in 1969. | 0:00:37 | 0:00:40 | |
And they did that on the 13th of August. | 0:00:40 | 0:00:44 | |
My name is Chris Packham. | 0:00:44 | 0:00:46 | |
What you probably don't know, | 0:00:46 | 0:00:49 | |
because I've been hiding it most of my life, | 0:00:49 | 0:00:51 | |
is that my brain is different than yours. | 0:00:51 | 0:00:54 | |
Because I'm autistic. | 0:00:55 | 0:00:57 | |
Astronaut, Neil Armstrong. | 0:00:58 | 0:01:00 | |
Neil, he was sort of a troubled soul. | 0:01:00 | 0:01:02 | |
Died on the 25th of August, 2012. | 0:01:02 | 0:01:05 | |
August was a big time for him | 0:01:05 | 0:01:06 | |
because the ticker tape was on the 13th, like I said. | 0:01:06 | 0:01:09 | |
That's how my mind goes from one thing to another. | 0:01:09 | 0:01:12 | |
It becomes these sort of cascades. | 0:01:12 | 0:01:14 | |
It's memory. I just have a memory. | 0:01:14 | 0:01:16 | |
It's exhausting, it doesn't make any sense, | 0:01:16 | 0:01:18 | |
it's intensely irritating to people. | 0:01:18 | 0:01:20 | |
Cor, that was good! | 0:01:20 | 0:01:22 | |
This tale has got a sting in it. | 0:01:22 | 0:01:24 | |
My type of autism is called Asperger's. | 0:01:24 | 0:01:27 | |
I've experienced many things on Springwatch today. | 0:01:27 | 0:01:30 | |
I've spent 30 years on the telly, | 0:01:30 | 0:01:32 | |
trying my best to act normal, | 0:01:32 | 0:01:35 | |
when really, I'm anything but. | 0:01:35 | 0:01:38 | |
Bad times. It's been immensely difficult. | 0:01:38 | 0:01:42 | |
You know, there were times when I fought it, I really fought it. | 0:01:42 | 0:01:45 | |
I didn't want to be different. | 0:01:45 | 0:01:47 | |
Now, I've decided that I want to talk about my Asperger's. | 0:01:47 | 0:01:51 | |
I want people to try and understand what it's like to be me. | 0:01:51 | 0:01:55 | |
There's a lot about me which is pretty normal. | 0:01:55 | 0:01:58 | |
There's a lot of other things which are not quite so normal. | 0:01:58 | 0:02:02 | |
This is the story of my life. | 0:02:02 | 0:02:05 | |
The past... | 0:02:05 | 0:02:06 | |
..and the present. | 0:02:07 | 0:02:09 | |
How those who love me have learnt to live with me. | 0:02:10 | 0:02:13 | |
He is like an alien. It is like he's landed, basically. | 0:02:15 | 0:02:19 | |
As a young man, there was absolutely nothing available to help me. | 0:02:19 | 0:02:25 | |
But now, I'm going in search of radical new therapies | 0:02:25 | 0:02:28 | |
that might be able to improve my life | 0:02:28 | 0:02:31 | |
and the lives of millions of others. | 0:02:31 | 0:02:33 | |
Stay back! Stay back! | 0:02:33 | 0:02:36 | |
Treatments aimed at making us more normal, | 0:02:36 | 0:02:39 | |
stripping us of our autistic traits. | 0:02:39 | 0:02:41 | |
If a cure for autism ever became available, | 0:02:43 | 0:02:48 | |
would I choose to take it? | 0:02:48 | 0:02:49 | |
I live in this house in the New Forest. | 0:03:00 | 0:03:03 | |
And it's in the middle of a huge patch of woodland. | 0:03:04 | 0:03:07 | |
Come on, Scratch. Let's go. | 0:03:12 | 0:03:14 | |
You've got a filthy arse. | 0:03:17 | 0:03:19 | |
This is always my favourite part of the day, | 0:03:19 | 0:03:21 | |
getting up in the morning and going out into this place | 0:03:21 | 0:03:24 | |
with...with the Scratch. | 0:03:24 | 0:03:27 | |
Scratch is my best mate. | 0:03:29 | 0:03:30 | |
I love him more than anything on this planet | 0:03:32 | 0:03:35 | |
and all of my love is focused entirely upon him. | 0:03:35 | 0:03:38 | |
It's intense and it's real. | 0:03:38 | 0:03:40 | |
Just him being happy here makes me happy. | 0:03:42 | 0:03:45 | |
It's guaranteed. It's like the switch comes on. | 0:03:45 | 0:03:49 | |
And in human relationships, | 0:03:49 | 0:03:51 | |
because of the complexity of them, and the various problems with them, | 0:03:51 | 0:03:56 | |
they don't always make you happy, even when you want them to. | 0:03:56 | 0:03:59 | |
Come on, Scratch. | 0:03:59 | 0:04:01 | |
My Asperger's is one of many conditions | 0:04:01 | 0:04:03 | |
on the broad autistic spectrum. | 0:04:03 | 0:04:05 | |
I'm lucky to be high-functioning, | 0:04:06 | 0:04:09 | |
but there are still some areas where I really just don't have a clue. | 0:04:09 | 0:04:13 | |
People like myself are clumsy, socially. | 0:04:14 | 0:04:18 | |
So even now, as an adult, | 0:04:18 | 0:04:20 | |
having learned, you know, how to minimise that, | 0:04:20 | 0:04:25 | |
I still constantly make mistakes. | 0:04:25 | 0:04:30 | |
Let's be honest, I suspect that many people find me a little bit weird, | 0:04:30 | 0:04:34 | |
which is one of the reasons why I've chosen to live all on my own | 0:04:34 | 0:04:37 | |
in the middle of the woods. | 0:04:37 | 0:04:40 | |
I can't think when I last saw another human being here. | 0:04:40 | 0:04:44 | |
Scratcher. | 0:04:44 | 0:04:45 | |
Yeah, people invite me to parties and it's like, you know, | 0:04:45 | 0:04:48 | |
"I'm having my 50th party." "Where is it?" "It's in Wales." | 0:04:48 | 0:04:51 | |
"What? I'm going to go to Wales, | 0:04:51 | 0:04:53 | |
"to go to a party to stand in the corner | 0:04:53 | 0:04:55 | |
"and not talk very much to people?" | 0:04:55 | 0:04:57 | |
I haven't been to a party for ten years or something. | 0:04:58 | 0:05:03 | |
I don't have that need for that sort of social contact, at all. | 0:05:03 | 0:05:07 | |
If you have autism, | 0:05:09 | 0:05:11 | |
there's an enormous breadth of how that impacts upon your life, | 0:05:11 | 0:05:15 | |
and I think it varies from having a few traits, | 0:05:15 | 0:05:18 | |
which might be perceived as quirky or difficult socially, | 0:05:18 | 0:05:24 | |
and many, many people will have those, | 0:05:24 | 0:05:27 | |
and at the other end, I think that it is fair to call it a disability. | 0:05:27 | 0:05:33 | |
I'm not a typical autistic person, | 0:05:34 | 0:05:37 | |
because there is no typical autistic person. | 0:05:37 | 0:05:40 | |
Look at that. Look through there now. | 0:05:43 | 0:05:45 | |
That's really quite a nice sight. | 0:05:45 | 0:05:47 | |
This is an inordinately complex environment. | 0:05:47 | 0:05:50 | |
It's quite challenging to be here | 0:05:50 | 0:05:52 | |
because there's so much to see, and when | 0:05:52 | 0:05:54 | |
I'm looking at it, it's all coming in really, really quickly. | 0:05:54 | 0:05:57 | |
It's like swamping. | 0:05:57 | 0:05:58 | |
There's one aspect of my Asperger's that you may not expect. | 0:05:59 | 0:06:04 | |
You see, I experience the world in a very different way to pretty much | 0:06:04 | 0:06:09 | |
everyone else. There's like a... imagine like a hyper reality. | 0:06:09 | 0:06:13 | |
It's not just about seeing it, it's about hearing, | 0:06:16 | 0:06:19 | |
it's about smelling it, it's about tasting it, it's about everything. | 0:06:19 | 0:06:23 | |
I mean, there's a very distinct smell of this time of spring. | 0:06:23 | 0:06:26 | |
It's quite ripe, it's quite moist, | 0:06:26 | 0:06:28 | |
so if it rained now, this afternoon, | 0:06:28 | 0:06:30 | |
the smell would change quite radically | 0:06:30 | 0:06:33 | |
and it would be much more intense. | 0:06:33 | 0:06:35 | |
Sound-wise, obviously there's that jet that's going over. | 0:06:35 | 0:06:37 | |
I can hear the traffic in the distance | 0:06:37 | 0:06:39 | |
and then you've got the natural sounds that are here. | 0:06:39 | 0:06:42 | |
So that was a blackbird rattling over there, there's robins calling, | 0:06:42 | 0:06:45 | |
now there's a blackbird calling. | 0:06:45 | 0:06:47 | |
I can hear blue tits going. | 0:06:47 | 0:06:49 | |
Erm... | 0:06:49 | 0:06:51 | |
BIRDSONG | 0:06:51 | 0:06:54 | |
Oh, just heard a chaffinch singing. | 0:07:00 | 0:07:03 | |
There's layers of birdsong going on. | 0:07:03 | 0:07:05 | |
This sensory overload is a constant distraction and | 0:07:06 | 0:07:09 | |
it's had a hugely isolating affect on me, ever since I was a small boy. | 0:07:09 | 0:07:13 | |
I grew up in Southampton in the 1960s and back then, | 0:07:15 | 0:07:18 | |
Asperger's wasn't a properly recognised condition. | 0:07:18 | 0:07:21 | |
As a child, were you aware that you were different? | 0:07:23 | 0:07:27 | |
Not really. I think, when I look back on it, | 0:07:27 | 0:07:30 | |
what was clear was the depth of the obsessions | 0:07:30 | 0:07:34 | |
was so much greater than any of my peers. | 0:07:34 | 0:07:39 | |
When I got into things, I was really into them, | 0:07:39 | 0:07:42 | |
to the point that everything else was pretty much excluded. | 0:07:42 | 0:07:46 | |
This was my first fox skull I collected when I was a kid. | 0:07:46 | 0:07:51 | |
It's beautiful, isn't it? | 0:07:51 | 0:07:53 | |
Absolutely beautiful. | 0:07:53 | 0:07:55 | |
And it's still got... D'you know what? It's still got a slightly dry, | 0:07:55 | 0:07:59 | |
meaty smell, and that's a smell that's come from the late '60s. | 0:07:59 | 0:08:03 | |
Yeah. | 0:08:04 | 0:08:06 | |
At primary school, I didn't have a need for friends. | 0:08:10 | 0:08:14 | |
If I'm very honest with you, | 0:08:14 | 0:08:16 | |
there were far more interesting things | 0:08:16 | 0:08:18 | |
happening in a dirty old pond, just over the fence. | 0:08:18 | 0:08:20 | |
Every year, I would collect tadpoles. | 0:08:20 | 0:08:23 | |
It was one of the highlights of my year. | 0:08:23 | 0:08:25 | |
It was better than Christmas and my birthday. | 0:08:25 | 0:08:27 | |
Tadpole time was absolutely THE time of the year. | 0:08:27 | 0:08:30 | |
At that point in my life, | 0:08:35 | 0:08:37 | |
I had an enormous hunger and thirst for everything that lived, | 0:08:37 | 0:08:41 | |
that I could find. | 0:08:41 | 0:08:42 | |
It didn't matter what it was. | 0:08:42 | 0:08:44 | |
I wasn't repulsed by anything. | 0:08:44 | 0:08:45 | |
I was absolutely enchanted by every living thing. | 0:08:45 | 0:08:49 | |
I wanted to own every single sensory input I could get from it, | 0:08:51 | 0:08:56 | |
as intensely as possible. | 0:08:56 | 0:08:58 | |
It's obvious you're going to taste it, isn't it? | 0:09:05 | 0:09:08 | |
It is to me. | 0:09:08 | 0:09:09 | |
They were like little blobs of semolina, | 0:09:13 | 0:09:16 | |
and when I focused them back to | 0:09:16 | 0:09:18 | |
the tip of my tongue so that I could bite into them, they tasted earthy. | 0:09:18 | 0:09:22 | |
I mean, you know, it doesn't seem weird to me. | 0:09:25 | 0:09:29 | |
When you first lick the backside of a beetle | 0:09:31 | 0:09:34 | |
that's oozing a yellow fluid | 0:09:34 | 0:09:36 | |
and it's bitter on the taste of your tongue, | 0:09:36 | 0:09:38 | |
as if you've licked a dirty old sixpence, | 0:09:38 | 0:09:39 | |
and it doesn't go away for an hour, | 0:09:39 | 0:09:42 | |
that's a really quite, sort of, powerful thing. | 0:09:42 | 0:09:45 | |
I didn't know that my heightened sensory perception | 0:09:46 | 0:09:49 | |
was an autistic trait until much later. | 0:09:49 | 0:09:52 | |
And neither did my family. | 0:09:52 | 0:09:54 | |
OK, so I'll just show you what I've got. It's quite funny. | 0:09:57 | 0:10:00 | |
Jenny is my younger sister. | 0:10:00 | 0:10:02 | |
So these are the old bits. | 0:10:02 | 0:10:04 | |
Oh, my goodness! | 0:10:04 | 0:10:06 | |
Look at you looking at me in that one there. | 0:10:06 | 0:10:09 | |
Really protective. | 0:10:09 | 0:10:10 | |
In many respects, | 0:10:14 | 0:10:16 | |
Mum and Dad completely facilitated your enthusiasms. | 0:10:16 | 0:10:21 | |
-Obsessions? -Obsessions for things. | 0:10:21 | 0:10:23 | |
And that was all good. It's just that when things went bad, | 0:10:23 | 0:10:26 | |
they didn't know why, and that was when things weren't so good. | 0:10:26 | 0:10:30 | |
I think the impact upon my sister | 0:10:31 | 0:10:33 | |
was probably that I commanded way too much of the attention | 0:10:33 | 0:10:36 | |
in the house. | 0:10:36 | 0:10:38 | |
My interests were sort of overpowering, | 0:10:38 | 0:10:41 | |
and because I wouldn't stop going on about stuff. | 0:10:41 | 0:10:44 | |
I always sort of describe myself as Muttley, actually. | 0:10:44 | 0:10:47 | |
I think I was Muttley to Chris, really. | 0:10:47 | 0:10:49 | |
I was always the assistant. | 0:10:49 | 0:10:51 | |
It was me having to do something I was so uncomfortable with, actually. | 0:10:51 | 0:10:55 | |
You know, have sort of tadpoles on my ear, have snakes round my neck. | 0:10:55 | 0:11:00 | |
You know, I was forever standing at the bottom of trees | 0:11:00 | 0:11:03 | |
in nettles looking for birds' nests. | 0:11:03 | 0:11:06 | |
And doing things that were all about you. | 0:11:06 | 0:11:11 | |
You know, we had a conversation a | 0:11:11 | 0:11:12 | |
little while ago and I said, "Chris, with this Asperger's, | 0:11:12 | 0:11:15 | |
"you're not really understanding | 0:11:15 | 0:11:17 | |
"the subtleties of, you know, what people mean, etc, | 0:11:17 | 0:11:20 | |
"how come you're so good at manipulating people?" | 0:11:20 | 0:11:24 | |
And he said it's because he... | 0:11:24 | 0:11:26 | |
"I don't really care about them that much." | 0:11:26 | 0:11:29 | |
But you probably don't realise how sort of inspiring you were | 0:11:29 | 0:11:32 | |
to all of us, actually, | 0:11:32 | 0:11:34 | |
and how much you'd triggered in us all to be interested in things. | 0:11:34 | 0:11:37 | |
Yeah, that's good. | 0:11:37 | 0:11:40 | |
Come on, Scratcher. | 0:11:45 | 0:11:47 | |
I wasn't diagnosed with Asperger's until I was in my 40s. | 0:11:47 | 0:11:50 | |
I've had to spend my life coming up with ways of coping with this | 0:11:52 | 0:11:55 | |
condition by rigorously controlling my environment. | 0:11:55 | 0:11:59 | |
This is my space. | 0:11:59 | 0:12:01 | |
This is where I try to relax and try to be more me than anywhere else. | 0:12:01 | 0:12:06 | |
I mean, I have the blinds down | 0:12:06 | 0:12:08 | |
and that's about keeping the outside world outside, | 0:12:08 | 0:12:13 | |
and it's about keeping this environment controlled, | 0:12:13 | 0:12:15 | |
because if you have the windows open, you can see things changing, | 0:12:15 | 0:12:18 | |
and the sun goes in and out and the leaves come off the trees | 0:12:18 | 0:12:21 | |
and everything's sort of constantly, you know, a dynamic flux. | 0:12:21 | 0:12:24 | |
If I can control that, then I can feel comfortable. | 0:12:24 | 0:12:26 | |
You know? | 0:12:28 | 0:12:29 | |
Nowadays, there's a huge push towards finding effective treatments | 0:12:35 | 0:12:39 | |
for autism, so I'm packing to go in search of anything | 0:12:39 | 0:12:43 | |
that might make my life a little bit easier. | 0:12:43 | 0:12:47 | |
So these ones have never been worn. | 0:12:47 | 0:12:48 | |
These ones have never been worn. | 0:12:49 | 0:12:52 | |
I want them to be the same as the ones I've already got, | 0:12:52 | 0:12:55 | |
so I'll buy three in one go. | 0:12:55 | 0:12:58 | |
I really like this shirt. | 0:12:58 | 0:13:00 | |
Sort of quite retro. So I bought three of those. | 0:13:00 | 0:13:03 | |
One of the things that I like to do, | 0:13:03 | 0:13:05 | |
again it's a comfort thing, | 0:13:05 | 0:13:07 | |
is to wear the same clothes and eat the same food all the time. | 0:13:07 | 0:13:10 | |
So there's three of these. | 0:13:10 | 0:13:12 | |
The fleeces are all in order and they're in colour order, | 0:13:12 | 0:13:15 | |
or they're in manufacturer order, | 0:13:15 | 0:13:17 | |
and then you've got the same with the puffer jackets | 0:13:17 | 0:13:19 | |
and then the raincoats right at the end. | 0:13:19 | 0:13:21 | |
Um... So no... | 0:13:23 | 0:13:25 | |
It's... Um... | 0:13:25 | 0:13:28 | |
Sorry, I'm just straightening all these up, that's all, | 0:13:28 | 0:13:31 | |
cos it's neater if they're straight. | 0:13:31 | 0:13:33 | |
They've all got to face in the same direction. | 0:13:34 | 0:13:37 | |
And yeah... | 0:13:37 | 0:13:40 | |
I suppose that might strike people as odd. | 0:13:42 | 0:13:44 | |
I think that one of the reasons I like hiding in my own world, | 0:13:51 | 0:13:55 | |
living in the woods in the middle of nowhere with my dog | 0:13:55 | 0:13:59 | |
is because there, effectively, I'm normal. | 0:13:59 | 0:14:02 | |
I'm not autistic. | 0:14:02 | 0:14:04 | |
Of course, when I get in my car and drive out the gate | 0:14:05 | 0:14:09 | |
into the rest of the world, it's not quite so good. | 0:14:09 | 0:14:13 | |
I'm going to America, where controversial new therapies | 0:14:14 | 0:14:18 | |
are being developed that aim to change who we fundamentally are. | 0:14:18 | 0:14:21 | |
I'm not really sure how I feel about the idea of trying to cure autism. | 0:14:24 | 0:14:29 | |
I mean, in many ways, it's defined my life, from its highest highs, | 0:14:29 | 0:14:33 | |
to its most devastating lows. | 0:14:33 | 0:14:36 | |
I'm in Providence, Rhode Island, | 0:14:39 | 0:14:41 | |
to witness a trial of a radical new treatment. | 0:14:41 | 0:14:45 | |
TMS - transcranial magnetic stimulation, | 0:14:45 | 0:14:49 | |
which is being investigated in the treatment of autistic people | 0:14:49 | 0:14:53 | |
to see if it can modify their behaviour. | 0:14:53 | 0:14:56 | |
It's electrodes. | 0:14:56 | 0:14:59 | |
It's electromagnetic radiation in the brain. | 0:14:59 | 0:15:01 | |
Scientists still don't conclusively understand what causes autism. | 0:15:06 | 0:15:11 | |
One theory is that certain parts of the brain | 0:15:11 | 0:15:15 | |
may be over or underactive. | 0:15:15 | 0:15:18 | |
TMS uses an electrical pulse to try and stimulate these areas. | 0:15:18 | 0:15:24 | |
It's being trialled here at | 0:15:24 | 0:15:25 | |
Brown University by Dr Lindsay Oberman. | 0:15:25 | 0:15:28 | |
-How are you? -Lindsay Oberman, nice to meet you. | 0:15:28 | 0:15:30 | |
All right, good. | 0:15:30 | 0:15:31 | |
All right. | 0:15:31 | 0:15:32 | |
What's the matter with the weather, Lindsay? | 0:15:33 | 0:15:35 | |
It's terrible. I'm sorry about that! | 0:15:35 | 0:15:37 | |
I can't control that. | 0:15:37 | 0:15:39 | |
So this is a TMS machine. | 0:15:39 | 0:15:41 | |
So what we should have said is, of course, that you're applying | 0:15:41 | 0:15:44 | |
-electromagnetic force... -Yes. -..induction, | 0:15:44 | 0:15:46 | |
causing neurones to fire in the brain. | 0:15:46 | 0:15:49 | |
Yes, exactly. So it's going to | 0:15:49 | 0:15:51 | |
be focused down to about a centimetre acute. | 0:15:51 | 0:15:53 | |
-So it's accurate to within one centimetre? -Yes. | 0:15:53 | 0:15:56 | |
All right, Patrick, so we're ready for you. | 0:15:59 | 0:16:02 | |
21-year-old Patrick is halfway | 0:16:02 | 0:16:04 | |
through this six-week clinical trial of TMS. | 0:16:04 | 0:16:08 | |
-Morning, Patrick. -Hi. | 0:16:08 | 0:16:10 | |
-How are you? -Fine. | 0:16:10 | 0:16:11 | |
-Good. -Hi, I'm Joanne. | 0:16:11 | 0:16:13 | |
-Hello, Joanne. How are you? -David? | 0:16:13 | 0:16:15 | |
-Chris. Chris, sorry. -That's all right. One point! | 0:16:15 | 0:16:17 | |
All right. | 0:16:21 | 0:16:23 | |
So how are you doing today? | 0:16:23 | 0:16:25 | |
-Fine. -Patrick lives at home with his mum, | 0:16:25 | 0:16:28 | |
and, like me, he struggles with social interactions. | 0:16:28 | 0:16:31 | |
It's hoped that TMS might be able to help him. | 0:16:31 | 0:16:35 | |
You can help somebody who has that difficulty with, say, | 0:16:35 | 0:16:39 | |
understanding other people's facial expressions. | 0:16:39 | 0:16:41 | |
They say, "You know, I just can't read other people's emotions." | 0:16:41 | 0:16:45 | |
Well, we can stimulate a part of the brain that we think is related | 0:16:45 | 0:16:48 | |
to that ability, and that could have a really great change | 0:16:48 | 0:16:51 | |
on their quality of life. OK, lean back. | 0:16:51 | 0:16:55 | |
All right. How does that feel? | 0:16:55 | 0:16:57 | |
-Fine. -Is that OK? | 0:16:57 | 0:16:59 | |
-Hm-mm. -We'll put in a series of 600 pulses in 40 seconds. | 0:16:59 | 0:17:03 | |
And it's that 600 pulses | 0:17:03 | 0:17:05 | |
in 40 seconds that's the actual intervention. | 0:17:05 | 0:17:07 | |
You're doing fine. You're about halfway done. | 0:17:12 | 0:17:16 | |
You're doing fine. | 0:17:20 | 0:17:21 | |
There we go. | 0:17:23 | 0:17:24 | |
Just a few more pulses. | 0:17:27 | 0:17:29 | |
OK, and you're done. | 0:17:34 | 0:17:36 | |
What we're witnessing here is very much an exploratory trial, isn't it? | 0:17:36 | 0:17:40 | |
Yes, it is not yet established as a treatment. | 0:17:40 | 0:17:44 | |
-But what's your gut feeling? Do you think it'll work? -Absolutely. | 0:17:44 | 0:17:47 | |
I wouldn't be doing it if I didn't think so. | 0:17:47 | 0:17:50 | |
Patrick, do you like the idea | 0:17:50 | 0:17:52 | |
of this piece of machinery changing your brain? | 0:17:52 | 0:17:56 | |
I guess so. | 0:17:56 | 0:17:58 | |
Sometimes when I make mistakes around people and stuff, | 0:17:58 | 0:18:00 | |
I think of ways how I could change and stuff. | 0:18:00 | 0:18:04 | |
And if you can't do it yourself, because that's incredibly difficult, | 0:18:05 | 0:18:09 | |
-this machine might help. -Good. | 0:18:09 | 0:18:11 | |
And if the trials work out, | 0:18:11 | 0:18:13 | |
would you come back and have the treatment? | 0:18:13 | 0:18:16 | |
Yeah, next time maybe I'll bring a movie to watch, too! | 0:18:16 | 0:18:19 | |
Patrick hasn't reported | 0:18:19 | 0:18:21 | |
any noticeable effects whilst on the trial. | 0:18:21 | 0:18:24 | |
Would I have, you know, TMS? | 0:18:26 | 0:18:31 | |
Categorically not a chance | 0:18:31 | 0:18:34 | |
would I allow anyone to put electrodes anywhere near my brain. | 0:18:34 | 0:18:40 | |
One cubic centimetre. | 0:18:40 | 0:18:41 | |
That's going to stick with me in my mind. That's a big area. | 0:18:41 | 0:18:44 | |
There are millions of neurones in there. | 0:18:44 | 0:18:46 | |
But at the same time, you know, I've got to say, the other side of me, | 0:18:46 | 0:18:50 | |
there's a real dichotomy here, the other side of me is a scientist, | 0:18:50 | 0:18:53 | |
and I think you've got to pioneer. | 0:18:53 | 0:18:55 | |
Sometimes you've got to sail | 0:18:55 | 0:18:57 | |
to the edge of the world to see if you sail off or if it's round. | 0:18:57 | 0:19:00 | |
You've got to start at the bottom of the ladder. | 0:19:00 | 0:19:03 | |
Maybe that's what this is. | 0:19:03 | 0:19:04 | |
Maybe this is the bottom of the ladder. | 0:19:04 | 0:19:06 | |
You've brought up an autistic son. | 0:19:09 | 0:19:11 | |
I think a lot of people probably don't realise the enormous amount | 0:19:11 | 0:19:15 | |
of energy, and the difference that impacts on the family. | 0:19:15 | 0:19:18 | |
-That's hard. -It's very hard, | 0:19:18 | 0:19:20 | |
and that's why autism's very isolating for families. | 0:19:20 | 0:19:22 | |
It's exhausting to meet the needs, to meet the safety. | 0:19:22 | 0:19:25 | |
You know, there's divorce, there's bankruptcies, | 0:19:25 | 0:19:27 | |
because everything goes into the safety, | 0:19:27 | 0:19:29 | |
wellbeing and treatments for our kids. | 0:19:29 | 0:19:31 | |
It is, you know, painful to watch. | 0:19:31 | 0:19:33 | |
I've been there, I've struggled myself, | 0:19:33 | 0:19:35 | |
so, in that sense, you're looking for any form of cure at times. | 0:19:35 | 0:19:40 | |
You see him failing, and that's... | 0:19:40 | 0:19:42 | |
That's uncomfortable. | 0:19:42 | 0:19:45 | |
If another therapy arose whereby you could cure autism, | 0:19:48 | 0:19:53 | |
what would you think of that? | 0:19:53 | 0:19:55 | |
I think on a bad, frustrating day, I'd say yes. | 0:19:57 | 0:20:00 | |
I think on a day like today, where I've never been so proud of him, | 0:20:00 | 0:20:03 | |
I'd say no. | 0:20:03 | 0:20:04 | |
It's complicated, but on the bad days, absolutely. | 0:20:07 | 0:20:10 | |
-Yeah. -Yeah. -Yeah, I've had some bad days. | 0:20:10 | 0:20:13 | |
I might have taken a pill if it could make it all go away. | 0:20:13 | 0:20:15 | |
-Hm-mm. -But on good days, very definitely not. | 0:20:15 | 0:20:18 | |
-Thank you, Pat. -You're welcome. | 0:20:28 | 0:20:30 | |
-Thank you very much. -You're welcome. | 0:20:30 | 0:20:31 | |
You're most welcome. I hope it works out for you. | 0:20:31 | 0:20:34 | |
-Yeah. -Keep coming. | 0:20:34 | 0:20:35 | |
I will. | 0:20:35 | 0:20:37 | |
Help the doctor. | 0:20:37 | 0:20:38 | |
Yeah. | 0:20:38 | 0:20:40 | |
What's been the lowest point in your life? | 0:20:51 | 0:20:54 | |
Well, the lowest point... | 0:20:54 | 0:20:58 | |
Um, the kestrel dying was like | 0:21:02 | 0:21:07 | |
a very low point. | 0:21:07 | 0:21:10 | |
So, yeah, it was a catastrophic event. | 0:21:10 | 0:21:14 | |
This is where I grew up. And this is the house where I grew up, | 0:21:20 | 0:21:23 | |
number ten. | 0:21:23 | 0:21:25 | |
Look, there's a little bit of graffiti down here. | 0:21:25 | 0:21:28 | |
So I...for some reason, felt compelled to carve my name there. | 0:21:28 | 0:21:32 | |
But more importantly, I carved the word "kestrel" in here, look. | 0:21:32 | 0:21:37 | |
I was so obsessed with kestrels. | 0:21:37 | 0:21:39 | |
All I would think about all the time was kestrels, kestrels, kestrels. | 0:21:39 | 0:21:43 | |
When I was in my early teens, | 0:21:46 | 0:21:48 | |
I decided that I wanted to keep a kestrel, | 0:21:48 | 0:21:51 | |
so I applied for a licence. | 0:21:51 | 0:21:53 | |
At that time, you needed to apply for a Home Office licence | 0:21:53 | 0:21:57 | |
to remove a bird like a kestrel from its nest from the wild. | 0:21:57 | 0:22:01 | |
But it wasn't granted, | 0:22:03 | 0:22:05 | |
and this all came when conflict with the outside world | 0:22:05 | 0:22:09 | |
was just about to explode. | 0:22:09 | 0:22:12 | |
Looking back on it, I was beginning to recognise the fact that, | 0:22:12 | 0:22:15 | |
you know, I was a little bit different | 0:22:15 | 0:22:19 | |
than the other kids in the class. | 0:22:19 | 0:22:21 | |
They didn't want to listen to a 15-minute monologue about, you know, | 0:22:23 | 0:22:27 | |
the breeding behaviour of the kestrel. | 0:22:27 | 0:22:30 | |
And they liked girls, you know. | 0:22:30 | 0:22:33 | |
Thinking back, I was already just ferociously determined. | 0:22:35 | 0:22:38 | |
I wasn't really going to let anyone I didn't know, | 0:22:38 | 0:22:41 | |
didn't have any respect for, tell me what to do. | 0:22:41 | 0:22:44 | |
So I found a nest. | 0:22:44 | 0:22:47 | |
I climbed up, and there were young kestrels in it, | 0:22:47 | 0:22:51 | |
and I took one of them out. | 0:22:51 | 0:22:53 | |
This is the tree. | 0:22:53 | 0:22:54 | |
And at that point - oh, God - I was very, very excited. | 0:22:56 | 0:23:00 | |
I was absolutely exalted. | 0:23:00 | 0:23:03 | |
It was extremely beautiful, | 0:23:17 | 0:23:20 | |
and I loved it with an enormous, you know, passionate amount of energy. | 0:23:20 | 0:23:25 | |
So the obsessive interest and the, you know, | 0:23:28 | 0:23:32 | |
intense focus on that one organism | 0:23:32 | 0:23:34 | |
meant that I could just exclude everything else. | 0:23:34 | 0:23:37 | |
And that's what happened. | 0:23:37 | 0:23:39 | |
All that existed was just us two. | 0:23:39 | 0:23:41 | |
This is the field, obviously, where I flew the kestrel. | 0:23:44 | 0:23:47 | |
I mowed a strip... | 0:23:50 | 0:23:52 | |
A strip of grass. | 0:23:52 | 0:23:54 | |
I made a hole in the ground where I could put the bird's block, | 0:23:54 | 0:23:57 | |
and the bird would sit on the block | 0:23:57 | 0:23:58 | |
and I would fly it in that direction. | 0:23:58 | 0:24:00 | |
Never going to beat that. | 0:24:07 | 0:24:09 | |
It was just perfect. | 0:24:10 | 0:24:12 | |
It's a strange arena, isn't it, | 0:24:15 | 0:24:17 | |
this little patch of grass between all of these houses? | 0:24:17 | 0:24:21 | |
To, you know, actually be the place where... | 0:24:24 | 0:24:26 | |
..I was at the happiest I've ever been in my entire life. | 0:24:28 | 0:24:31 | |
It was the first thing that I formed a really powerful bond with. | 0:24:33 | 0:24:40 | |
It was some sort of mental love missile, | 0:24:40 | 0:24:44 | |
and I just lit the touch paper and fired myself into it | 0:24:44 | 0:24:48 | |
at oblivious speed, and it exploded and sparkled | 0:24:48 | 0:24:51 | |
and it was totally beautiful. | 0:24:51 | 0:24:53 | |
I don't think that I've ever loved anything as intensely. | 0:24:57 | 0:25:01 | |
It was perfect, only it was perfect every day for six months. | 0:25:03 | 0:25:07 | |
Until the end. | 0:25:07 | 0:25:08 | |
The kestrel... Um... Er... | 0:25:16 | 0:25:19 | |
It did die. | 0:25:19 | 0:25:21 | |
I buried it right underneath the nest. | 0:25:26 | 0:25:28 | |
So I came every year from '75... | 0:25:28 | 0:25:32 | |
HE SIGHS | 0:25:32 | 0:25:34 | |
..on the day. | 0:25:34 | 0:25:36 | |
Because I still feel that that was... | 0:25:39 | 0:25:42 | |
..an enormous sort of turning point, really. | 0:25:44 | 0:25:46 | |
And the impact that it had... | 0:25:49 | 0:25:52 | |
just goes on. | 0:25:52 | 0:25:54 | |
And I know that's crazy. | 0:25:54 | 0:25:56 | |
A lot of people are just going to think, "That's mad, | 0:25:56 | 0:25:58 | |
"you're just standing in a patch of nettles underneath an oak tree. | 0:25:58 | 0:26:02 | |
"Where a bird died, a long, long time ago." | 0:26:02 | 0:26:05 | |
Too big for a small boy? | 0:26:07 | 0:26:10 | |
Way too big for a small boy. | 0:26:10 | 0:26:13 | |
A small boy that didn't really connect with other small boys, | 0:26:13 | 0:26:17 | |
or most adults, either, | 0:26:17 | 0:26:19 | |
but that only connected with what's buried in the ground down here. | 0:26:19 | 0:26:22 | |
So when that suddenly didn't exist... | 0:26:24 | 0:26:27 | |
..um, there was nothing left, | 0:26:28 | 0:26:31 | |
so it was catastrophic. | 0:26:31 | 0:26:33 | |
You know. | 0:26:37 | 0:26:38 | |
What it did | 0:26:45 | 0:26:47 | |
was highlight my vulnerability. | 0:26:47 | 0:26:50 | |
So after that, I was always scared, | 0:26:52 | 0:26:56 | |
frightened - terrified, actually - | 0:26:56 | 0:26:58 | |
of losing the things that I loved. | 0:26:58 | 0:27:01 | |
And that's, you know, | 0:27:01 | 0:27:05 | |
quite a burden. | 0:27:05 | 0:27:06 | |
Had you asked me whether I wanted curing in my teens, | 0:27:11 | 0:27:14 | |
I might have been interested, on occasion. | 0:27:14 | 0:27:17 | |
You know, I would sit there and I'd think, "Oh, goodness me, | 0:27:17 | 0:27:21 | |
"wouldn't my life be easier if I could just do this?" | 0:27:21 | 0:27:24 | |
You know, just... | 0:27:24 | 0:27:25 | |
..get on with people without it being such a struggle. | 0:27:27 | 0:27:30 | |
There are an estimated 25 million autistic people in the world. | 0:27:35 | 0:27:40 | |
When I was growing up, | 0:27:40 | 0:27:41 | |
the only option for me was mainstream education, | 0:27:41 | 0:27:44 | |
but now, here in America, | 0:27:44 | 0:27:46 | |
a systematic approach to eradicating autistic traits is being rolled out | 0:27:46 | 0:27:50 | |
in specialist schools across the country. | 0:27:50 | 0:27:54 | |
Lisa, three years old, has been autistic from birth. | 0:27:54 | 0:27:57 | |
It's based on a technique first developed in the 1960s. | 0:27:59 | 0:28:04 | |
She doesn't speak. | 0:28:04 | 0:28:06 | |
She doesn't play with toys. | 0:28:06 | 0:28:07 | |
This is applied behavioural analysis | 0:28:11 | 0:28:16 | |
to retrain autistic children. | 0:28:16 | 0:28:22 | |
Lisa tantrums when anyone attempts to teach her. | 0:28:22 | 0:28:26 | |
Sit. | 0:28:26 | 0:28:28 | |
Good girl! | 0:28:28 | 0:28:31 | |
Trying to replace the tantrum with her sitting down. | 0:28:31 | 0:28:34 | |
But he's all over her. He's touching her. | 0:28:34 | 0:28:37 | |
She's in a really complex environment. | 0:28:37 | 0:28:40 | |
Lisa's tantrums are ignored or not reinforced, | 0:28:40 | 0:28:43 | |
so they should decrease or extinguish. | 0:28:43 | 0:28:46 | |
Sit down. | 0:28:46 | 0:28:48 | |
Sit. | 0:28:48 | 0:28:49 | |
-Good girl! -That's it! | 0:28:49 | 0:28:51 | |
Here in the United States, | 0:28:51 | 0:28:54 | |
applied behavioural analysis is the perceived panacea when it comes to | 0:28:54 | 0:28:59 | |
treating autistic children. | 0:28:59 | 0:29:01 | |
It's widely practised. | 0:29:01 | 0:29:03 | |
People take children from very young ages and they put them through this | 0:29:03 | 0:29:07 | |
rigorous, repeated behavioural modification. | 0:29:07 | 0:29:13 | |
The teacher discovers that kissing is a reinforcer for Lisa. | 0:29:15 | 0:29:20 | |
It's not a very comfortable watch, though, to be honest with you. | 0:29:21 | 0:29:25 | |
Applied behavioural analysis, ABA, | 0:29:25 | 0:29:28 | |
is now taught in hundreds of specialist schools | 0:29:28 | 0:29:30 | |
all over the United States, and I've come to one of the biggest ones. | 0:29:30 | 0:29:34 | |
It's an hour outside of Boston. | 0:29:34 | 0:29:36 | |
Me, moo... | 0:29:42 | 0:29:44 | |
Try and start... | 0:29:44 | 0:29:46 | |
Right, say it one more time. | 0:29:48 | 0:29:50 | |
Many of the children here have | 0:29:50 | 0:29:52 | |
a far more severe form of autism than I have. | 0:29:52 | 0:29:55 | |
Not only do they struggle with social interactions, | 0:29:55 | 0:29:58 | |
but many of them are nonverbal. | 0:29:58 | 0:30:01 | |
Me, moo, me. | 0:30:01 | 0:30:03 | |
-Ryan's turn. -Me, moo, me. | 0:30:03 | 0:30:06 | |
Nice job! Do you want another bubble? | 0:30:06 | 0:30:09 | |
Although this technique has obviously moved on | 0:30:09 | 0:30:12 | |
from its early days in the 1960s, | 0:30:12 | 0:30:14 | |
it still follows a system of rigorous repetition. | 0:30:14 | 0:30:18 | |
The idea is that by doing the same tasks over and over again, | 0:30:18 | 0:30:23 | |
autistic behaviour can be stamped out, | 0:30:23 | 0:30:26 | |
making the child more socially normal. | 0:30:26 | 0:30:29 | |
You're not doing it! | 0:30:29 | 0:30:31 | |
Never, never! | 0:30:33 | 0:30:35 | |
I feel really uncomfortable. It's just a mass of noise and colour. | 0:30:51 | 0:30:54 | |
It's not symmetrical. There's stripes all round the walls. | 0:30:54 | 0:30:57 | |
The windows aren't in line. | 0:30:57 | 0:30:59 | |
You know, everything else is chaos. | 0:30:59 | 0:31:02 | |
But, yeah, I think it's a pretty intense day. | 0:31:03 | 0:31:07 | |
For me, there's some sort of fundamental questions to be asked | 0:31:09 | 0:31:11 | |
about the purpose of this sort of education. | 0:31:11 | 0:31:15 | |
ABA has been largely rejected in the UK | 0:31:15 | 0:31:18 | |
on the grounds that it's trying to force autistic children | 0:31:18 | 0:31:21 | |
to be something they're not. | 0:31:21 | 0:31:24 | |
Vinny, can I start? | 0:31:24 | 0:31:25 | |
-Yeah, please. -Vincent Strully is the school's founder. | 0:31:25 | 0:31:29 | |
Autism is such a broad thing. We're all different. | 0:31:31 | 0:31:34 | |
You're absolutely convinced that at the moment | 0:31:34 | 0:31:37 | |
that ABA is the best one to treat autistic kids? | 0:31:37 | 0:31:40 | |
My position, hand over heart is, people said, | 0:31:40 | 0:31:43 | |
"Well, this is behaviour modification. | 0:31:43 | 0:31:45 | |
"It's artificial, robotic, manipulative." | 0:31:45 | 0:31:47 | |
But so was chemotherapy in the early days of cancer treatment. | 0:31:47 | 0:31:50 | |
People said it was poisonous, | 0:31:50 | 0:31:52 | |
it would kill the patient rather than help them. | 0:31:52 | 0:31:54 | |
ABA is the way forward, | 0:31:54 | 0:31:56 | |
and 30-50% of them will lose their diagnosis after one to two years | 0:31:56 | 0:32:01 | |
-of early intensive... -Hold on, when you say lose their diagnosis, | 0:32:01 | 0:32:04 | |
that would mean if they were re-diagnosed for autism, | 0:32:04 | 0:32:06 | |
they wouldn't fall within the set that currently qualifies? | 0:32:06 | 0:32:09 | |
Correct. | 0:32:09 | 0:32:11 | |
Professional observers would not be able to tell the autistic child. | 0:32:11 | 0:32:14 | |
This is educational chemotherapy for these kids. | 0:32:14 | 0:32:16 | |
We wouldn't deny them the chemical and medical chemotherapy | 0:32:16 | 0:32:19 | |
they need for their cancer, | 0:32:19 | 0:32:21 | |
but to deny them the work that we and our colleagues | 0:32:21 | 0:32:24 | |
around the country are doing successfully | 0:32:24 | 0:32:27 | |
is, you know, it's just wrong. | 0:32:27 | 0:32:29 | |
If you could, would you cure autism? | 0:32:29 | 0:32:32 | |
If I could, of course. | 0:32:34 | 0:32:36 | |
That would be a prayer come true. | 0:32:36 | 0:32:38 | |
Let's be really clear about this. | 0:32:41 | 0:32:43 | |
I don't like the idea of comparing autism to a cancer | 0:32:43 | 0:32:46 | |
that requires a sort of educational chemotherapy. | 0:32:46 | 0:32:49 | |
For me as a child with Asperger's, | 0:32:51 | 0:32:53 | |
I just don't think this rigid system would have worked. | 0:32:53 | 0:32:56 | |
But for many parents, schools like this must seem like the only option. | 0:32:56 | 0:33:02 | |
If you are faced with a form of autism | 0:33:04 | 0:33:06 | |
which is seriously debilitating, | 0:33:06 | 0:33:09 | |
then obviously you are going to crave a solution for that. | 0:33:09 | 0:33:15 | |
I fully understand why | 0:33:15 | 0:33:18 | |
parents in particular would want to explore any of those avenues, | 0:33:18 | 0:33:24 | |
to try and normalise, to some extent, | 0:33:24 | 0:33:28 | |
their child. | 0:33:28 | 0:33:31 | |
But for people like myself with Asperger's, | 0:33:31 | 0:33:36 | |
you know, there's a simple therapy, | 0:33:36 | 0:33:38 | |
and that is, | 0:33:38 | 0:33:40 | |
just be on your own. | 0:33:40 | 0:33:43 | |
I have chosen to live in the woods on my own, | 0:33:45 | 0:33:48 | |
but this doesn't mean, of course, | 0:33:48 | 0:33:49 | |
that I don't need to have relationships, | 0:33:49 | 0:33:51 | |
just like everyone else. | 0:33:51 | 0:33:53 | |
There are a handful of people in my life that I'm close to. | 0:33:53 | 0:33:57 | |
We're on the Red Funnel ferry to the Isle of Wight... | 0:33:57 | 0:34:00 | |
..to see Charlotte, my partner, and she owns the Isle of Wight Zoo. | 0:34:02 | 0:34:08 | |
Charlotte and I don't live together. | 0:34:10 | 0:34:12 | |
-We never have. -Does that distance suit you? | 0:34:12 | 0:34:14 | |
I wish you hadn't asked that question! | 0:34:17 | 0:34:19 | |
Because... | 0:34:19 | 0:34:21 | |
..I mean, I like my own space a lot, you know. | 0:34:22 | 0:34:26 | |
We've been together for ten years, she told me, this year, | 0:34:26 | 0:34:31 | |
and, um, so that's pretty good. | 0:34:31 | 0:34:33 | |
I get bored with things really, really quickly, you know, | 0:34:33 | 0:34:36 | |
so the fact that I'm very definitely not bored with Charlotte | 0:34:36 | 0:34:41 | |
after ten years, if living apart is part of that, | 0:34:41 | 0:34:43 | |
then maybe there's a good side to it. | 0:34:43 | 0:34:46 | |
Hello. | 0:34:52 | 0:34:53 | |
Greet him, greet him. | 0:34:53 | 0:34:55 | |
Greet him. | 0:34:57 | 0:34:58 | |
Greet him. | 0:35:01 | 0:35:02 | |
Hey. | 0:35:06 | 0:35:08 | |
Hey. | 0:35:09 | 0:35:11 | |
-Charlotte? -Hm? | 0:35:11 | 0:35:13 | |
How did you meet Chris? | 0:35:13 | 0:35:15 | |
I'll deal with the lemurs. | 0:35:15 | 0:35:18 | |
Um... | 0:35:18 | 0:35:19 | |
It's so long ago, I can hardly remember. | 0:35:19 | 0:35:22 | |
I fancied Charlotte straightaway, | 0:35:22 | 0:35:24 | |
but she didn't fancy me. That's the truth of it. | 0:35:24 | 0:35:26 | |
-Is that right? -That's what I say, and she never disagrees with it. | 0:35:26 | 0:35:30 | |
I just didn't know when you invited me out what you wanted. | 0:35:30 | 0:35:35 | |
I was just perplexed as to what you wanted. | 0:35:35 | 0:35:38 | |
You hadn't given me any clues. | 0:35:38 | 0:35:40 | |
Yeah, I'm not very good at those sort of signals, am I? | 0:35:40 | 0:35:44 | |
-Clearly not. -But I'm still not very good at those signals, am I? | 0:35:44 | 0:35:48 | |
Come on, porks. | 0:35:52 | 0:35:53 | |
No, I won't. | 0:35:53 | 0:35:55 | |
Come on. I know it's really bright and sunny out here, | 0:35:55 | 0:35:58 | |
and you're a nocturnal animal. | 0:35:58 | 0:35:59 | |
Don't be nasty! | 0:35:59 | 0:36:01 | |
Look at those teeth! Look at those teeth. | 0:36:01 | 0:36:04 | |
He is like the porcupine whisperer, look! | 0:36:04 | 0:36:07 | |
He's like the porcupine whisperer! | 0:36:07 | 0:36:09 | |
When it comes to communicating about how he feels emotionally, | 0:36:10 | 0:36:14 | |
then he finds that hard. | 0:36:14 | 0:36:16 | |
He's unable to empathise. | 0:36:16 | 0:36:19 | |
But I think that is, for me, has probably been the biggest challenge. | 0:36:19 | 0:36:24 | |
It's just really confusing because it's such an innate thing. | 0:36:24 | 0:36:27 | |
Normally, it's such an instinctive thing to have compassion, | 0:36:27 | 0:36:30 | |
even for people that you don't know, you know, | 0:36:30 | 0:36:33 | |
but for Chris, it's not on his radar, at all. | 0:36:33 | 0:36:39 | |
Can I have some of your worms? | 0:36:40 | 0:36:42 | |
Thank you. | 0:36:42 | 0:36:43 | |
No, no, we've had this argument already! | 0:36:45 | 0:36:47 | |
You're not having that. | 0:36:47 | 0:36:49 | |
Is this a sort of typical romantic day out for you two? | 0:36:49 | 0:36:52 | |
We did go for a picnic, didn't we? | 0:36:52 | 0:36:54 | |
We've been for a picnic. | 0:36:54 | 0:36:56 | |
We went for a picnic. Occasionally, | 0:36:56 | 0:36:58 | |
I drag you out to like a tea gardens or something. | 0:36:58 | 0:37:00 | |
With other humans there. | 0:37:01 | 0:37:03 | |
Yeah. Generally I wish that I hadn't. | 0:37:03 | 0:37:06 | |
I would like to do more different things. | 0:37:06 | 0:37:08 | |
So what about that time when I booked to take you to Cornwall | 0:37:11 | 0:37:14 | |
for your birthday. There was a horrible silence, | 0:37:14 | 0:37:17 | |
which was a bit upsetting. | 0:37:17 | 0:37:18 | |
I'm not very good at socialising. | 0:37:21 | 0:37:23 | |
I now just know that there's just no point. | 0:37:23 | 0:37:26 | |
Like, I've got a friend's wedding coming up soon. | 0:37:26 | 0:37:28 | |
I haven't even mentioned it to you. | 0:37:28 | 0:37:31 | |
But there's no point forcing you | 0:37:31 | 0:37:32 | |
to be there if you don't want to be there, is there? | 0:37:32 | 0:37:35 | |
That's what I would say. | 0:37:36 | 0:37:38 | |
Sometimes I might still try. | 0:37:38 | 0:37:40 | |
So basically, I've got a wedding coming up, | 0:37:40 | 0:37:42 | |
do you want to come with me? | 0:37:42 | 0:37:44 | |
No, thanks. | 0:37:44 | 0:37:45 | |
For all the extra hard work, and sometimes it is, and, you know, | 0:37:52 | 0:37:56 | |
the times when you just think, "Oh, geez," you know, | 0:37:56 | 0:37:59 | |
it seems, like, impossible sometimes to make progress. | 0:37:59 | 0:38:04 | |
Um... But, yeah, I think the return is really definitely worth it. | 0:38:05 | 0:38:11 | |
He's fascinating. | 0:38:13 | 0:38:15 | |
He's a fascinating character. | 0:38:15 | 0:38:17 | |
And there's a lifetime guarantee with Chris. | 0:38:17 | 0:38:20 | |
Never would I be bored! | 0:38:20 | 0:38:22 | |
We've been together for ten years, | 0:38:22 | 0:38:24 | |
and I'm still fascinated by his mind. | 0:38:24 | 0:38:26 | |
Isn't that nice? | 0:38:26 | 0:38:28 | |
Hey? | 0:38:28 | 0:38:29 | |
Oh, yes. | 0:38:29 | 0:38:31 | |
I'm very lucky to have found someone who will put up with the constant | 0:38:31 | 0:38:34 | |
social failings that come with my Asperger's. | 0:38:34 | 0:38:38 | |
But 30 years ago, | 0:38:41 | 0:38:42 | |
any interaction with anyone my own age was catastrophic. | 0:38:42 | 0:38:48 | |
So this is the school that I went to. | 0:38:49 | 0:38:52 | |
This large comprehensive. | 0:38:52 | 0:38:55 | |
The trouble with going back to places like this, | 0:38:55 | 0:38:58 | |
it's a catalyst to expose things | 0:38:58 | 0:39:00 | |
that otherwise you wouldn't normally think about. | 0:39:00 | 0:39:03 | |
I was a spazza and a spacka and a cretin and a moron. | 0:39:03 | 0:39:08 | |
Kids beat other kids up. | 0:39:08 | 0:39:11 | |
But that wasn't as bad as where they would be coming down here, | 0:39:11 | 0:39:15 | |
yabbering on about all of their parties and all that sort of stuff, | 0:39:15 | 0:39:20 | |
and I'd feel completely alienated. | 0:39:20 | 0:39:23 | |
It was the exclusions that were particularly cruel. | 0:39:24 | 0:39:29 | |
I was at the most vulnerable point in my life. | 0:39:29 | 0:39:32 | |
I'd been rejected by my peers. I didn't know who I was. | 0:39:32 | 0:39:36 | |
What made me upset was I didn't understand it. | 0:39:36 | 0:39:39 | |
I didn't understand why, you know, | 0:39:39 | 0:39:41 | |
that I was getting picked on and excluded. | 0:39:41 | 0:39:44 | |
It was the confusion that was the agony. | 0:39:44 | 0:39:47 | |
You know, that was the problem. | 0:39:47 | 0:39:50 | |
I took a whole series of photographs in my late teens, | 0:39:51 | 0:39:55 | |
and they were all sort of suicidal pictures | 0:39:55 | 0:39:58 | |
so they were either pictures of me dead or about to die. | 0:39:58 | 0:40:02 | |
It's just pretentious twaddle. | 0:40:05 | 0:40:07 | |
But underlying all of that, | 0:40:09 | 0:40:10 | |
and particularly when I got to this stage, | 0:40:10 | 0:40:13 | |
I was very, very unhappy. | 0:40:13 | 0:40:14 | |
If you're isolated, | 0:40:18 | 0:40:20 | |
then it's harder for you to find help when you need it. | 0:40:20 | 0:40:23 | |
Did you try to kill yourself? | 0:40:26 | 0:40:28 | |
Yeah. | 0:40:28 | 0:40:29 | |
I thought about it really seriously. | 0:40:29 | 0:40:32 | |
Three times. Once in 1984, | 0:40:32 | 0:40:35 | |
and then twice in the early 2000s, | 0:40:35 | 0:40:38 | |
when on both occasions, I was, you know, yeah, very serious about it. | 0:40:38 | 0:40:44 | |
But I was with the...the dogs. | 0:40:44 | 0:40:49 | |
And they loved me, and I couldn't let them down. | 0:40:50 | 0:40:54 | |
After I left school, I went on to university to study zoology. | 0:40:59 | 0:41:03 | |
And although I was years off being diagnosed, | 0:41:04 | 0:41:07 | |
it was already clear to me by this point | 0:41:07 | 0:41:10 | |
that I had to develop my own ways of dealing with being different. | 0:41:10 | 0:41:14 | |
By the time I got to university, I'd come up with a strategy, | 0:41:14 | 0:41:17 | |
and the strategy was really simple - | 0:41:17 | 0:41:18 | |
don't interact with people of your own age, | 0:41:18 | 0:41:20 | |
just turn up, get straight As. | 0:41:20 | 0:41:23 | |
And I wouldn't speak to anyone. | 0:41:23 | 0:41:25 | |
I had no idea why, you know, I was different, | 0:41:25 | 0:41:30 | |
you know. So I was confused, inordinately angry. I was raging, | 0:41:30 | 0:41:36 | |
absolutely raging. | 0:41:36 | 0:41:38 | |
That was when the punk rock thing started, | 0:41:38 | 0:41:40 | |
so that was quite advantageous for me. | 0:41:40 | 0:41:44 | |
The punk rock thing was a means of me physically identifying | 0:41:44 | 0:41:47 | |
to everyone else that I was different. | 0:41:47 | 0:41:51 | |
And I felt empowered by that. | 0:41:51 | 0:41:54 | |
This is called Shout Above The Noise, | 0:41:54 | 0:41:57 | |
and of all the punk records, this is the most important for me. | 0:41:57 | 0:42:00 | |
I think punk, you know, did save me. | 0:42:02 | 0:42:05 | |
That music sounded like I felt. | 0:42:05 | 0:42:08 | |
Confused and angry. | 0:42:08 | 0:42:10 | |
Don't let them win, don't let them drag you down, | 0:42:24 | 0:42:27 | |
shout above the noise. | 0:42:27 | 0:42:29 | |
So, yeah, that's my life anthem. | 0:42:29 | 0:42:32 | |
Shout Above The Noise by Penetration. | 0:42:32 | 0:42:35 | |
When I left university, I was obviously virtually unemployable. | 0:42:42 | 0:42:47 | |
I was obsessed with natural history, and I didn't know what to do. | 0:42:47 | 0:42:52 | |
But my sister said to me, | 0:42:53 | 0:42:55 | |
"Why don't you go on TV and talk about animals? | 0:42:55 | 0:42:58 | |
"Because that's all you ever do, talk on and on and on about animals. | 0:42:58 | 0:43:02 | |
"If you went on TV, you could bore | 0:43:02 | 0:43:04 | |
"the rest of the world and not just our family about it!" | 0:43:04 | 0:43:07 | |
I didn't know it at the time, | 0:43:07 | 0:43:09 | |
but my Asperger's got me an early break on a kids' wildlife show. | 0:43:09 | 0:43:13 | |
You see, I had something that my peers didn't, | 0:43:13 | 0:43:16 | |
and it was a vast encyclopaedic knowledge of the natural world. | 0:43:16 | 0:43:20 | |
But the night before the first recording, | 0:43:22 | 0:43:24 | |
I was racked with anxiety. | 0:43:24 | 0:43:26 | |
I was thinking to myself, | 0:43:27 | 0:43:28 | |
"Right, I've got no problem with the animals," | 0:43:28 | 0:43:31 | |
but I'd have to be in a room with a whole load of people | 0:43:31 | 0:43:35 | |
that I didn't know, and I'd have to be able to behave myself. | 0:43:35 | 0:43:39 | |
And I've got a photograph of me, a self-portrait, | 0:43:39 | 0:43:44 | |
having just made a list of the things that I would need to do | 0:43:44 | 0:43:47 | |
to be able to work in that environment, | 0:43:47 | 0:43:50 | |
and the things that I had to stop myself from doing. | 0:43:50 | 0:43:52 | |
Top of the list was to look at them, make eye contact. | 0:43:54 | 0:43:57 | |
Don't interrupt people. Don't say what you think. | 0:43:57 | 0:44:00 | |
Because most of the things I thought | 0:44:00 | 0:44:02 | |
were incompatible with the things that they would think. | 0:44:02 | 0:44:06 | |
And then I'd sort of try and engage with people. | 0:44:06 | 0:44:08 | |
Hey, hey, look at this. This is what I did in my summer... | 0:44:08 | 0:44:11 | |
So that they would understand I was genuinely listening to them. | 0:44:11 | 0:44:14 | |
When, in fact, probably, I wasn't. I was thinking about something else! | 0:44:14 | 0:44:17 | |
How long are a tiger's claws? | 0:44:17 | 0:44:19 | |
Well, I think that'd be a good one for you, Chris. | 0:44:19 | 0:44:22 | |
Well, thanks, Terry, that's very, very kind of you! | 0:44:22 | 0:44:24 | |
It's also going off on one about something | 0:44:24 | 0:44:26 | |
which is not connected to the topic of any relevance at the time. | 0:44:26 | 0:44:29 | |
So what with their razor sharp talons, | 0:44:29 | 0:44:31 | |
their beautiful stripes and asymmetrical stripy... | 0:44:31 | 0:44:34 | |
And I was thinking to myself, "Calm down, just get back into the zone, | 0:44:34 | 0:44:38 | |
"get back into the zone where you don't constantly do that," you know. | 0:44:38 | 0:44:43 | |
I mean, what might we see today, you know? | 0:44:43 | 0:44:44 | |
We can do a lot better than that. | 0:44:44 | 0:44:46 | |
I'm sure we'll find some interesting plants for a start. | 0:44:46 | 0:44:48 | |
People always overlook plants. | 0:44:48 | 0:44:49 | |
'But I have to say, it was exhausting,' | 0:44:49 | 0:44:52 | |
and I would get very upset with myself when I was failing, | 0:44:52 | 0:44:58 | |
and it continues to this day. | 0:44:58 | 0:45:00 | |
Now, I'm tempted to sort of jog into the tepee, like | 0:45:00 | 0:45:04 | |
Bruce Forsyth! | 0:45:04 | 0:45:06 | |
'30 years on, | 0:45:06 | 0:45:07 | |
'managing my Asperger's on telly | 0:45:07 | 0:45:09 | |
'so I seem relatively normal still requires an enormous effort. | 0:45:09 | 0:45:14 | |
'I've taught myself to manage some of my personal traits. | 0:45:14 | 0:45:18 | |
'Sometimes I fail.' | 0:45:18 | 0:45:19 | |
I do just go off on one. | 0:45:19 | 0:45:21 | |
You know when we were kids and we | 0:45:21 | 0:45:22 | |
used to get those plastic toys in cereal packets? | 0:45:22 | 0:45:24 | |
You know, build a Spitfire or a tyrannosaurus or something? | 0:45:24 | 0:45:27 | |
An owl pellet, sealed in a little piece of plastic! | 0:45:27 | 0:45:30 | |
I might speak to Deborah about this later! | 0:45:30 | 0:45:31 | |
I'll take this to the Den. | 0:45:31 | 0:45:33 | |
I'm thinking, owl pellets in cornflakes! | 0:45:33 | 0:45:35 | |
Let's move on! Let's move on very quickly... | 0:45:35 | 0:45:37 | |
But then the people I'm working with laugh at it more than anything now. | 0:45:37 | 0:45:41 | |
They think it's funny. | 0:45:41 | 0:45:43 | |
Thankfully! | 0:45:43 | 0:45:45 | |
This is a budgie we've got on here. | 0:45:45 | 0:45:47 | |
I think I must speak to the artist later. | 0:45:47 | 0:45:49 | |
That's all we've got time for today. | 0:45:49 | 0:45:50 | |
Please thank my guests. We'll see | 0:45:50 | 0:45:52 | |
you again at 6.30pm tomorrow night. Goodbye! | 0:45:52 | 0:45:54 | |
I realise now that there's no way I could do my job without Asperger's. | 0:45:56 | 0:46:01 | |
What I do in terms of just making | 0:46:02 | 0:46:05 | |
this programme is afforded to me because of my Asperger's, | 0:46:05 | 0:46:09 | |
because of my neurological differences here, | 0:46:09 | 0:46:12 | |
so that's being able to see things with perhaps a greater clarity, | 0:46:12 | 0:46:17 | |
to see the world in a different way, | 0:46:17 | 0:46:19 | |
in my case, in a very visual way. | 0:46:19 | 0:46:21 | |
But, you know, I've been able to understand that, | 0:46:23 | 0:46:26 | |
and that's something which was a painful process to go through, | 0:46:26 | 0:46:29 | |
but I did it and now | 0:46:29 | 0:46:30 | |
I'm very fortunate to be able to reap the benefits of that, | 0:46:30 | 0:46:33 | |
and not all autistic people are in that position. | 0:46:33 | 0:46:36 | |
There are many aspects of Asperger's which are enormously positive, | 0:46:36 | 0:46:42 | |
and there must be many other people out there who could contribute | 0:46:42 | 0:46:47 | |
in an immensely productive way | 0:46:47 | 0:46:52 | |
who aren't able to do so | 0:46:52 | 0:46:54 | |
because they can't quite manage some aspects of their life | 0:46:54 | 0:46:59 | |
in the way that I do in order to make it productive. | 0:46:59 | 0:47:03 | |
In the UK, only 14% of autistic adults are in full-time employment. | 0:47:03 | 0:47:09 | |
And that's the lowest amount for any notifiable disability. | 0:47:09 | 0:47:14 | |
And that is a tragic loss. | 0:47:15 | 0:47:18 | |
Up until now, everything I've seen in America has been designed | 0:47:20 | 0:47:24 | |
to fundamentally change who we are. | 0:47:24 | 0:47:27 | |
But there is one place that's been | 0:47:27 | 0:47:29 | |
harnessing some of the special gifts that autistic people have - | 0:47:29 | 0:47:33 | |
our obsessive focus, | 0:47:33 | 0:47:36 | |
our ability to see the world from different perspectives. | 0:47:36 | 0:47:41 | |
Here we are in Silicon Valley, | 0:47:41 | 0:47:43 | |
and the thing to remember is that | 0:47:43 | 0:47:45 | |
people with autistic traits made this place happen, | 0:47:45 | 0:47:48 | |
and people with autistic traits made NASA happen. | 0:47:48 | 0:47:52 | |
We got to the moon, we networked the world, | 0:47:52 | 0:47:55 | |
and we wouldn't have been able | 0:47:55 | 0:47:56 | |
to do it without people with autistic traits. | 0:47:56 | 0:47:59 | |
Author Steve Silberman has written extensively | 0:47:59 | 0:48:01 | |
about the contribution that | 0:48:01 | 0:48:03 | |
autistic people have made to the explosion of the tech industry. | 0:48:03 | 0:48:07 | |
It's NASA and Samsung tech. | 0:48:07 | 0:48:11 | |
I mean, you know, these places are | 0:48:11 | 0:48:13 | |
full of particular minds which are doing extraordinary things. | 0:48:13 | 0:48:18 | |
Before the advent of the tech industry, | 0:48:18 | 0:48:21 | |
these kids would have been considered weirdos. | 0:48:21 | 0:48:24 | |
Now they're running the world! | 0:48:24 | 0:48:27 | |
And, you know, one of the people that we spoke to who's involved with | 0:48:27 | 0:48:30 | |
therapies for autistic people came pretty close to saying, | 0:48:30 | 0:48:35 | |
when I asked them, if you could cure autism, rid the world of it, | 0:48:35 | 0:48:40 | |
they said yes. | 0:48:40 | 0:48:42 | |
Wow, that's horrifying. | 0:48:42 | 0:48:44 | |
You know, I mean the word cure, | 0:48:44 | 0:48:46 | |
I think, is absolutely toxic in the autism community, | 0:48:46 | 0:48:50 | |
and the excuse in a sense - | 0:48:50 | 0:48:53 | |
well, it's easier to change the | 0:48:53 | 0:48:54 | |
individual than it is to change society. | 0:48:54 | 0:48:57 | |
That's it. That's at the core of all of this, though, isn't it? | 0:48:57 | 0:49:00 | |
-Yeah, it is. -All of these therapies, all of these things | 0:49:00 | 0:49:03 | |
are basically just saying, "Let's force these people, | 0:49:03 | 0:49:07 | |
"rather than adapt to accommodate them." | 0:49:07 | 0:49:10 | |
Absolutely. So we have to start | 0:49:10 | 0:49:12 | |
redesigning society instead of redesigning the individual. | 0:49:12 | 0:49:17 | |
A change is happening in some of the largest companies in the world. | 0:49:19 | 0:49:23 | |
Neil Barnett is pioneering | 0:49:26 | 0:49:27 | |
a new recruitment process here at Microsoft. | 0:49:27 | 0:49:31 | |
Typically and notoriously, | 0:49:31 | 0:49:33 | |
autistic people struggle to get jobs in the first place. | 0:49:33 | 0:49:36 | |
A lot of them basically just struggle with the interview process. | 0:49:36 | 0:49:38 | |
Right, right. So we've created this programme where folks come in and we | 0:49:38 | 0:49:43 | |
actually bring them in for a week to do an interview, versus one day, | 0:49:43 | 0:49:46 | |
which is the typical interview. | 0:49:46 | 0:49:48 | |
What we change with focusing on candidates that are on the autism | 0:49:48 | 0:49:51 | |
spectrum is bringing them in, letting them have a more... | 0:49:51 | 0:49:55 | |
Reducing the stress, hopefully. | 0:49:55 | 0:49:57 | |
And then letting them showcase their skills. | 0:49:57 | 0:49:59 | |
So we do this over a five-day period. | 0:49:59 | 0:50:01 | |
I've got to be honest with you, Neil, | 0:50:01 | 0:50:03 | |
I couldn't work in this office, personally. | 0:50:03 | 0:50:05 | |
It's still Christmas! | 0:50:05 | 0:50:06 | |
There's all sorts of snowflakes hanging from the ceiling. | 0:50:06 | 0:50:09 | |
We have individuals that ask for a closed office with a door. | 0:50:09 | 0:50:13 | |
-And you're able to provide that? -And we're able to provide that. | 0:50:13 | 0:50:16 | |
We're finding great untapped talent that normally we would not see, | 0:50:16 | 0:50:21 | |
and these individuals are creating | 0:50:21 | 0:50:23 | |
software being used by millions of people. | 0:50:23 | 0:50:26 | |
Jacob, tell me your story? | 0:50:27 | 0:50:30 | |
Like me, Jacob, a lead software architect, | 0:50:30 | 0:50:34 | |
had a difficult time growing up. | 0:50:34 | 0:50:36 | |
I was perfectly intelligent. | 0:50:36 | 0:50:37 | |
I was actually considered genius-level intelligence, | 0:50:37 | 0:50:41 | |
but they said I wasn't socially developed enough | 0:50:41 | 0:50:44 | |
to move onto the next grade in school. | 0:50:44 | 0:50:47 | |
It was very hurtful. | 0:50:47 | 0:50:49 | |
To be perfectly frank, I felt like a black sheep most of the time. | 0:50:49 | 0:50:53 | |
I got a job at Microsoft, | 0:50:53 | 0:50:56 | |
and that eventually led to a number of positions, | 0:50:56 | 0:50:59 | |
each one building up my skill set and my resume. | 0:50:59 | 0:51:03 | |
So your perseverance was worthwhile in the end. | 0:51:03 | 0:51:06 | |
I mean, you've managed to get yourself to somewhere | 0:51:06 | 0:51:08 | |
where your particular and peculiar skills are valued. | 0:51:08 | 0:51:12 | |
That's true. And it's also led me | 0:51:12 | 0:51:14 | |
to more independent economic freedom as well. | 0:51:14 | 0:51:17 | |
Here's a truth for you - there are so many parallels between us, | 0:51:17 | 0:51:21 | |
the way that we've both had to sculpt a means of adapting socially | 0:51:21 | 0:51:27 | |
to further our progress in life, | 0:51:27 | 0:51:31 | |
and also, some of the pains that we've obviously shared as a result. | 0:51:31 | 0:51:35 | |
Imagine all those people trapped in their room because | 0:51:42 | 0:51:45 | |
they're isolated by this condition. | 0:51:45 | 0:51:47 | |
They haven't been able to sculpt opportunities, | 0:51:47 | 0:51:50 | |
manage themselves in a way that allows them to fulfil their lives. | 0:51:50 | 0:51:55 | |
That's like a ghastly sentence set in a vile fairy tale. | 0:51:55 | 0:51:59 | |
No-one should be imprisoned by this condition. | 0:51:59 | 0:52:03 | |
They should be allowed to exalt in those aspects of the condition | 0:52:03 | 0:52:09 | |
which empower them. | 0:52:09 | 0:52:11 | |
You know, that difference is such a, you know, valuable tool, | 0:52:11 | 0:52:16 | |
an enormous asset, | 0:52:16 | 0:52:18 | |
you know, to be able to see things, understand things, | 0:52:18 | 0:52:22 | |
process things and remember things in a way that most people can't do | 0:52:22 | 0:52:26 | |
has to be seen as a gift, | 0:52:26 | 0:52:29 | |
not something that you're badged with, | 0:52:29 | 0:52:32 | |
and it's about what you can't do. | 0:52:32 | 0:52:34 | |
It's got to be about what you can do. | 0:52:34 | 0:52:37 | |
Come on, Scratcher. | 0:52:40 | 0:52:42 | |
I do feel... I have this horror hanging over me | 0:52:46 | 0:52:49 | |
that we're making this programme and I'm saying these things | 0:52:49 | 0:52:52 | |
in an interval | 0:52:52 | 0:52:57 | |
between disasters. | 0:52:57 | 0:52:59 | |
I'm happy with my ability to manage my Asperger's, | 0:53:00 | 0:53:04 | |
and it allows me to do my job, and I've found someone who loves me, | 0:53:04 | 0:53:08 | |
but there's still one thing that I haven't learned to deal with, | 0:53:08 | 0:53:14 | |
and that is losing the things that I love. | 0:53:14 | 0:53:18 | |
He's got shaved sides because he had a scan last week. | 0:53:18 | 0:53:21 | |
He's got liver disease. | 0:53:21 | 0:53:23 | |
So at the moment I'm trying to spend as much time with him as possible, | 0:53:25 | 0:53:29 | |
you know. | 0:53:29 | 0:53:30 | |
I would like to be able to think | 0:53:33 | 0:53:35 | |
that I might get through Scratchy dying, | 0:53:35 | 0:53:37 | |
you know, and me being, you know, | 0:53:37 | 0:53:40 | |
hopelessly alone with a greater degree of success | 0:53:40 | 0:53:43 | |
than I have ever before | 0:53:43 | 0:53:45 | |
when I've lost the things that I love most. | 0:53:45 | 0:53:47 | |
But I'm not... | 0:53:49 | 0:53:51 | |
I'm not brimming with confidence. | 0:53:51 | 0:53:54 | |
I don't know, I just don't want to be a charlatan. | 0:53:54 | 0:53:57 | |
And to say that, you know, things are actually OK. | 0:53:58 | 0:54:03 | |
In fact, some things are better than OK. | 0:54:03 | 0:54:06 | |
When, you know... | 0:54:06 | 0:54:07 | |
..you know, it's all built on sand. | 0:54:09 | 0:54:12 | |
For all the contradictions, all the heartache of this condition, | 0:54:16 | 0:54:20 | |
what I've seen in America has made | 0:54:20 | 0:54:22 | |
it very clear to me that we need to understand autistic people better, | 0:54:22 | 0:54:27 | |
not try to change who they are. | 0:54:27 | 0:54:30 | |
If you offered me a cure, from my particular perspective, | 0:54:34 | 0:54:39 | |
from where I stand, then, no, thank you. | 0:54:39 | 0:54:43 | |
Every relationship I've had | 0:54:50 | 0:54:52 | |
in my life has been defined and made difficult by my Asperger's. | 0:54:52 | 0:54:57 | |
But there is one that's come surprisingly easy, | 0:54:59 | 0:55:03 | |
and it's the thing that I'm probably most proud of. | 0:55:03 | 0:55:07 | |
Remember, don't spook, because if you do, you'll spook them. | 0:55:09 | 0:55:12 | |
OK? So if they nibble at your fins, just let them nibble at your fins. | 0:55:12 | 0:55:16 | |
Because if you sort of job and turn around, they'll be gone. | 0:55:16 | 0:55:18 | |
-OK? -I'm excited! | 0:55:18 | 0:55:21 | |
It's always good to be getting | 0:55:21 | 0:55:22 | |
in the water with a very large predatory animal. | 0:55:22 | 0:55:25 | |
Megan is my stepdaughter from a previous relationship. | 0:55:28 | 0:55:32 | |
Obviously I have played a role in raising Megan, | 0:55:34 | 0:55:39 | |
and I've found it enormously rewarding, | 0:55:39 | 0:55:43 | |
something that I was very surprised by. | 0:55:43 | 0:55:47 | |
Megs I met when she was 18 months old. | 0:55:49 | 0:55:54 | |
We seemed to get on sort of straightaway, | 0:55:54 | 0:55:57 | |
and we travelled a lot together, | 0:55:57 | 0:55:59 | |
been all around the world. | 0:55:59 | 0:56:02 | |
I was working overseas a lot at that time, so I would take Megan with me. | 0:56:02 | 0:56:06 | |
So I enjoyed putting an enormous amount of energy into her education. | 0:56:06 | 0:56:12 | |
It was, you know, and is, | 0:56:12 | 0:56:16 | |
one of the most important parts of my existence. | 0:56:16 | 0:56:20 | |
Megs is at university studying zoology, | 0:56:23 | 0:56:26 | |
which is a great surprise to me, really. So I'm very pleased, yeah. | 0:56:26 | 0:56:32 | |
What's so satisfying at the moment is that when I ring her up, | 0:56:32 | 0:56:35 | |
she answers the phone like this, "OK, just give me a minute." | 0:56:35 | 0:56:38 | |
And it's because she's in the library. | 0:56:38 | 0:56:40 | |
Fantastic! | 0:56:40 | 0:56:42 | |
Working. Christ! | 0:56:42 | 0:56:43 | |
About time! | 0:56:43 | 0:56:45 | |
Kind of every day up until this point, ever since I can remember, | 0:56:48 | 0:56:52 | |
you've always been someone that has been there. | 0:56:52 | 0:56:56 | |
You're always there to support me, no matter kind of what, | 0:56:56 | 0:56:59 | |
and you're reliable in that sense, which, | 0:56:59 | 0:57:02 | |
for me, has been really, really lovely. | 0:57:02 | 0:57:05 | |
Reliable. It's like a TripAdvisor report, isn't it?! | 0:57:05 | 0:57:09 | |
I'm getting, like, a 5-star TripAdvisor report here. | 0:57:09 | 0:57:12 | |
That's what it is! | 0:57:12 | 0:57:13 | |
It's hard... | 0:57:13 | 0:57:15 | |
No, but you've taught me so much in terms of not just, like, | 0:57:15 | 0:57:19 | |
the natural world and everything | 0:57:19 | 0:57:21 | |
that I've become so passionate about as well. | 0:57:21 | 0:57:25 | |
You've taught me everything, just life lessons. | 0:57:25 | 0:57:27 | |
You've given me experiences that, if I hadn't have met you, | 0:57:27 | 0:57:30 | |
I wouldn't have had, | 0:57:30 | 0:57:32 | |
so if you hadn't come into my life 20 years ago, | 0:57:32 | 0:57:35 | |
I would probably be in a completely different place than I am now. | 0:57:35 | 0:57:38 | |
Yeah. | 0:57:38 | 0:57:40 | |
-So... -How many stars in this sort of Guardian TripAdvisor... | 0:57:40 | 0:57:43 | |
Are we doing this out of ten? | 0:57:43 | 0:57:45 | |
-Out of ten? -Five. -Oh, five. | 0:57:45 | 0:57:49 | |
I'll give you 4.9. | 0:57:49 | 0:57:51 | |
-4.8. -4.8! | 0:57:51 | 0:57:52 | |
4.8. | 0:57:52 | 0:57:54 | |
-God, that's good! -You can get it up to 4.9 if you come to my graduation. | 0:57:54 | 0:57:57 | |
No way. I swear, I'll settle for 4.8. | 0:57:57 | 0:57:59 | |
I'm really happy with that. | 0:57:59 | 0:58:01 | |
-You won't be coming to my graduation? -No, of course not! | 0:58:01 | 0:58:03 | |
-Are you serious?! -Yeah, I am, what do you think I'm going to do, | 0:58:03 | 0:58:06 | |
drive all the way to Liverpool to see you getting a bit of paper?! | 0:58:06 | 0:58:08 | |
-Yes! Yes! -Megs! | 0:58:08 | 0:58:11 | |
-Chris! -What? | 0:58:11 | 0:58:13 | |
I hope you have a good day. | 0:58:13 | 0:58:16 | |
-You are coming. We'll discuss this later. -No, I'm not going to do that! | 0:58:16 | 0:58:20 | |
It's ridiculous! | 0:58:20 | 0:58:21 | |
-No, it's not! -Yes! | 0:58:21 | 0:58:23 | |
-Don't make such a big deal out of it anyway! -It is a big deal! -It isn't. | 0:58:23 | 0:58:26 | |
Yes, it is! | 0:58:26 | 0:58:28 |