O'r Galon: Mared

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-It's been a gradual deterioration.	0:00:28	0:00:32
-It's something the entire family -has had to come to terms with.	0:00:33	0:00:37
-The best way I can describe it...	0:00:42	0:00:44
-..is when you tune a television...	0:00:45	0:00:47
-..you can still see -the picture and the colour...	0:00:47	0:00:51
-..but there are black and white -pixels moving around...	0:00:51	0:00:55
-..on top of the picture...	0:00:56	0:00:57
-..with a black block -cut out of the middle...	0:01:01	0:01:05
-..and flashing lights.	0:01:06	0:01:09
-Banana.	0:01:19	0:01:21
-Banana, apple, vanilla, wheatgerm...	0:01:21	0:01:26
-I remember the doctor telling me -she had Stargardt disease.	0:01:26	0:01:31
-She was about nine years old.	0:01:31	0:01:34
-When I was around 11...	0:01:36	0:01:38
-..I had a growth spurt.	0:01:39	0:01:41
-It caused my right eye -to deteriorate so much...	0:01:41	0:01:45
-..I had the eyesight -of an 80-year-old.	0:01:45	0:01:48
-They put that in -to create a glass recording studio.	0:01:48	0:01:53
-Mared has always been -a very creative person.	0:01:53	0:01:59
-Because of her condition, -we were always keen for her...	0:01:59	0:02:03
-..to have experiences -like going to the theatre.	0:02:04	0:02:07
-We made sure -we had seats in the front row.	0:02:07	0:02:10
-I remember -sitting in your front room...	0:02:11	0:02:15
-..and you turned to me and said, -"I can't see you clearly, Nain."	0:02:16	0:02:20
-I was sitting this close to you.	0:02:21	0:02:23
-You said, "I can't see -the television clearly either."	0:02:23	0:02:27
-I said, "It's because -you sit so close to the screen.	0:02:27	0:02:31
-"I don't like you -sitting that close."	0:02:32	0:02:34
-I realized later on...	0:02:35	0:02:38
-..that you had to sit closer to it, -like I have to do now.	0:02:38	0:02:42
-I'm almost on top of it.	0:02:42	0:02:44
-She's so capable -and she's so clever.	0:02:44	0:02:47
-She's very switched on.	0:02:47	0:02:50
-She's far from being dumb.	0:02:50	0:02:53
-When it's one small thing of -not being able to see very well...	0:02:53	0:02:58
-..it's just such a pity.	0:03:01	0:03:03
-She's just Mared. I don't think -of her as someone who can't see.	0:03:14	0:03:18
-I just have to deal with it...	0:03:20	0:03:24
-..just as she has to deal with it.	0:03:25	0:03:28
-You're part of my life now. -We just get on with it.	0:03:28	0:03:32
-It's not something -we talk about, anyway, is it?	0:03:32	0:03:35
-It's not something I think about.	0:03:37	0:03:39
-If I don't think about it, -then neither do you.	0:03:39	0:03:42
-There's a part of my brain which -remembers seeing things clearly.	0:03:45	0:03:49
-I remember a picture...	0:03:50	0:03:52
-..and suddenly I can see it.	0:03:52	0:03:56
-It's odd walking into a room...	0:03:56	0:03:59
-..not knowing who's in there, -hearing them speak...	0:03:59	0:04:03
-..recognizing the voice...	0:04:03	0:04:05
-..and then being able to picture -the person in my mind...	0:04:05	0:04:09
-..and suddenly I'm almost able -to see the person...	0:04:09	0:04:13
-..because I remember the face.	0:04:13	0:04:16
-Six months earlier	0:04:16	0:04:19
-This is where I'll be going -in a week's time.	0:04:31	0:04:34
-I'm excited. I just want to -be there now. I'm fed up of waiting.	0:04:37	0:04:42
-I've been wanting to leave home -for such a long time...	0:04:42	0:04:46
-..but now I've left, I can't wait -to go home for Sunday lunch already!	0:04:47	0:04:53
-I try not to let it...	0:04:56	0:04:58
-..make me too emotional...	0:04:58	0:05:01
-..and I have to think to myself...	0:05:01	0:05:04
-..'Hold on a minute now. -She's not that bad.'	0:05:04	0:05:07
-But deep down in my heart -it does worry me.	0:05:10	0:05:13
-She knows to ask someone if she's -unsure if she's on the right bus.	0:05:16	0:05:21
-Once she said to a bus driver...	0:05:21	0:05:24
-.."Excuse me, -does this go into town?"	0:05:24	0:05:28
-And he looked at her and he said...	0:05:28	0:05:30
-"What does it say -on the front of the bus, love?	0:05:31	0:05:34
-"Go out, have a little look -and you'll know."	0:05:35	0:05:38
-I don't want to appear disabled.	0:05:45	0:05:47
-I don't want to be judged -because of it.	0:05:47	0:05:51
-I don't carry a stick, I don't have -glasses, I don't have a guide dog.	0:05:51	0:05:56
-I couldn't deal with that.	0:05:56	0:05:58
-I think it's important -that people judge me for me...	0:05:59	0:06:03
-..before finding out that I can't -see instead of the other way around.	0:06:04	0:06:08
-She got off the bus...	0:06:09	0:06:12
-..and caught the next one -but it was the wrong one.	0:06:12	0:06:15
-This happened -when she was about 14 or 15.	0:06:16	0:06:18
-I hope she won't encounter problems -like that again. It worries me.	0:06:19	0:06:24
-I love Cardiff as a city.	0:06:31	0:06:33
-Everything I need is here.	0:06:34	0:06:36
-If I live alone...	0:06:37	0:06:39
-..I'll see areas of Cardiff and -a side to it I've never seen before.	0:06:40	0:06:45
-It'll become a new city to me -because I have to be independent...	0:06:46	0:06:50
-..and live here instead of -just being brought up here.	0:06:50	0:06:54
-I'm on my way to the School -of Optometry, which is nearby.	0:07:30	0:07:34
-I hope when I arrive that -Megan and Angharad will be there.	0:07:43	0:07:48
-I went to school with them both.	0:07:48	0:07:50
-They're also doing -the same course as me.	0:07:51	0:07:53
-Basically, we're learning -to be coaches ourselves.	0:07:57	0:08:01
-We'll be the first group...	0:08:01	0:08:03
-..where children -with visual impairment...	0:08:04	0:08:07
-..or young people with visual -impairment are concerned...	0:08:07	0:08:11
-..will be taught how to coach -children with visual impairment.	0:08:12	0:08:16
-You don't know how that feels -because you're still there.	0:08:16	0:08:20
-I think it's nice -that there are quite a lot of us...	0:08:21	0:08:25
-..with visual impairment -in close contact.	0:08:26	0:08:29
-Let's be a robot.	0:08:30	0:08:33
-Yes, let's.	0:08:34	0:08:35
-You're a good robot. That's good.	0:08:37	0:08:41
-OK, let's be ballerinas.	0:08:43	0:08:46
-Yes, let's!	0:08:46	0:08:48
-UCan is a theatre company -for children and young people...	0:08:53	0:08:57
-..with visual impairment.	0:08:57	0:09:00
-It started around seven years ago.	0:09:00	0:09:06
-Bernie had been working as an actor -on Hollyoaks for many years.	0:09:06	0:09:10
-Today, we're -kind of concentrating on faces.	0:09:11	0:09:15
-I want you to think about that.	0:09:15	0:09:17
-I want you to think about that. - -Jane Latham is his wife.	0:09:17	0:09:19
-This time, you're going to -completely get into the paint pot.	0:09:19	0:09:23
-It's wonderful working with Mared -and to have known her for so long.	0:09:24	0:09:28
-We've seen her grow up. -She's a talented young lady.	0:09:28	0:09:32
-Splat it all on Bernie.	0:09:32	0:09:35
-The first day we worked with her, -we knew she had it.	0:09:35	0:09:38
-She's got this really good gift.	0:09:39	0:09:41
-This talent of listening...	0:09:41	0:09:43
-..and being able -to portray different characters.	0:09:44	0:09:47
-Let's be a lion.	0:09:47	0:09:49
-Yes, let's!	0:09:50	0:09:52
-I was thrown into this world -full of positive people...	0:10:00	0:10:03
-..who just wanted me -to push myself and have self-belief.	0:10:07	0:10:11
-I don't think -I'd be the person I am today...	0:10:12	0:10:15
-..if I hadn't had -that encouragement from the start.	0:10:15	0:10:19
-I do believe they've helped -shaped me as a person...	0:10:25	0:10:30
-..and the way -I deal with my condition.	0:10:30	0:10:34
-Take your time.	0:10:34	0:10:36
-.	0:10:43	0:10:43
-Subtitles	0:10:45	0:10:45
-Subtitles - -Subtitles	0:10:45	0:10:47
-Strange things have been happening.	0:10:56	0:10:59
-Lights are flashing all the time, -even when I close my eyes.	0:10:59	0:11:05
-I see strips of light -going around and around...	0:11:07	0:11:12
-..for a minute or so -and all I can do is stare.	0:11:12	0:11:16
-It happens when there's -a change in light conditions.	0:11:20	0:11:24
-I'm in the dark -and someone switches on a light.	0:11:24	0:11:27
-From what I understand...	0:11:31	0:11:34
-..some kind of fluid -leaks from the blood vessels...	0:11:34	0:11:37
-..and burns away the retina.	0:11:38	0:11:41
-When Mared was about 10 years old...	0:11:48	0:11:51
-..when the condition -started to manifest...	0:11:51	0:11:55
-..I felt frustrated.	0:11:55	0:11:57
-I was filled with so many emotions.	0:11:57	0:12:00
-I felt angry at the world...	0:12:00	0:12:04
-..and an element of guilt...	0:12:04	0:12:08
-..because of -the illness's genetic factor.	0:12:08	0:12:11
-All these feelings prompted me -to write a poem for Mared.	0:12:11	0:12:16
-How great her vision -and sweet her harmony	0:12:16	0:12:21
-The humour of her jokes -and her outlook on the world	0:12:21	0:12:26
-Happy of spirit and full of life	0:12:26	0:12:29
-And the mischief that follows -when blowing the saxophone	0:12:29	0:12:33
-Or playing the piano tenderly	0:12:33	0:12:35
-Every melody is full of feeling	0:12:36	0:12:38
-Her loss is our responsibility	0:12:39	0:12:42
-Summer won't come to her again	0:12:43	0:12:45
-Only a perpetual autumn	0:12:46	0:12:48
-A low-lying sun and a grey moon	0:12:48	0:12:50
-I'll be with her until the end	0:12:51	0:12:55
-As a kind of antipasto misto -or offerings on a plate	0:12:55	0:12:59
-If food is the essence of life	0:12:59	0:13:03
-Remembering her as a child, -her fingers twisting my hair	0:13:03	0:13:07
-Our world turns into a dream -for the final time	0:13:07	0:13:11
-Mared is a being of maturity	0:13:12	0:13:16
-All that's important	0:13:17	0:13:18
-Is that we can see her.	0:13:19	0:13:21
-This plaque is made of clay.	0:13:28	0:13:32
-Very cheap clay.	0:13:32	0:13:34
-But there are holes...	0:13:34	0:13:38
-..that have been cut out.	0:13:38	0:13:40
-These holes -spell out a sentence in Braille.	0:13:41	0:13:46
-The words say, hold your ground.	0:13:46	0:13:49
-The idea -is to look through the holes...	0:13:50	0:13:54
-..to see the picture behind...	0:13:54	0:13:56
-..and there's a special way of -using your eyes to see the picture.	0:13:56	0:14:02
-I wanted to try and portray...	0:14:02	0:14:06
-..what a partially-sighted person -has to deal with...	0:14:06	0:14:11
-..in a creative way...	0:14:11	0:14:13
-..and a less obvious way.	0:14:15	0:14:17
-Although this clay plaque...	0:14:18	0:14:23
-..obscures the picture behind it...	0:14:24	0:14:27
-..the piece itself is pretty too.	0:14:27	0:14:30
-It's like my eyesight.	0:14:30	0:14:33
-Although I can't see -the picture clearly...	0:14:33	0:14:36
-..the layer on top of that...	0:14:37	0:14:41
-..still makes -the picture I see pretty.	0:14:41	0:14:45
-Hello. How are you?	0:15:01	0:15:04
-Fine.	0:15:04	0:15:06
-These are for you. Enjoy them.	0:15:07	0:15:10
-Look who's here.	0:15:10	0:15:12
-Are you alright? Long time no see.	0:15:12	0:15:15
-Are you keeping busy?	0:15:16	0:15:17
-Are you keeping busy? - -Yes, ish.	0:15:17	0:15:20
-Busy enough.	0:15:20	0:15:22
-Is it odd being back?	0:15:22	0:15:24
-Is it odd being back? - -Yes, it is.	0:15:24	0:15:26
-Pupils spend a lot of time here...	0:15:27	0:15:30
-..and when they go, -it's strange without them.	0:15:30	0:15:34
-I've decided to leave college.	0:15:34	0:15:37
-You've made your decision?	0:15:38	0:15:39
-You've made your decision? - -Yes.	0:15:39	0:15:40
-It wasn't the right time for you.	0:15:41	0:15:43
-No.	0:15:43	0:15:45
-It was just really difficult -being in that kind of environment.	0:15:45	0:15:50
-It's a big change and now's -not the right time. Maybe later.	0:15:51	0:15:56
-Because of your impairment, -you haven't had the freedom.	0:15:56	0:16:00
-You had freedom from Mam and Dad...	0:16:00	0:16:03
-..but you couldn't do -a lot of things...	0:16:03	0:16:06
-..that you have -the confidence to do now.	0:16:06	0:16:09
-You should enjoy -doing things you didn't do before.	0:16:09	0:16:12
-Since growing up -in this situation...	0:16:13	0:16:18
-..and being surrounded by people...	0:16:18	0:16:22
-..I realize I'm in the best possible -situation that I could be in.	0:16:22	0:16:27
-You mean family?	0:16:27	0:16:28
-You mean family? - -Family, UCan, friends...	0:16:28	0:16:30
-..school.	0:16:31	0:16:33
-I've been very lucky in -the decisions that have been made.	0:16:33	0:16:38
-The fact that Mam and Dad haven't -changed our home life at all.	0:16:38	0:16:43
-Mam still works -and Dad still works...	0:16:43	0:16:46
-..but they're home often enough.	0:16:46	0:16:49
-I've stayed in mainstream school, -a Welsh-medium school.	0:16:50	0:16:54
-Ysgol Plasmawr is wonderful.	0:16:54	0:16:57
-Yes, exactly.	0:16:58	0:16:59
-I took these photographs...	0:17:03	0:17:06
-..at a farmhouse in Strata Florida.	0:17:06	0:17:10
-I've never seen such -a beautiful house in all my life...	0:17:10	0:17:16
-..although it's dilapidated.	0:17:17	0:17:19
-Really weird little things...	0:17:21	0:17:25
-..like horse paraphernalia.	0:17:25	0:17:27
-I'm no farm girl, -so I'm not sure what they are.	0:17:27	0:17:30
-Put the whole thing together...	0:17:31	0:17:33
-..and it's as if -it's been staged for a photograph.	0:17:33	0:17:38
-I find it difficult to explain...	0:17:41	0:17:45
-..how I do the work...	0:17:45	0:17:49
-..because it sounds odd, -but I just do it.	0:17:49	0:17:54
-It just happens.	0:17:54	0:17:56
-I think my mind -remembers when I had full vision.	0:18:01	0:18:08
-I've collected the pieces -I've made over the years...	0:18:12	0:18:16
-..because I've become -very attached to them.	0:18:17	0:18:21
-I didn't want to leave them -in school.	0:18:21	0:18:25
-This is my favourite piece of all.	0:18:26	0:18:28
-This is when my obsession -with clay began.	0:18:30	0:18:33
-My grandfather told me -just to have a go with clay.	0:18:33	0:18:39
-The first thing you create -is a thumb pot.	0:18:39	0:18:44
-All it is is a lump of clay -in the shape of a ball.	0:18:44	0:18:50
-You use your thumb...	0:18:50	0:18:52
-..and your fingers...	0:18:52	0:18:54
-..to create the cup shape.	0:18:54	0:18:58
-The trick -is to mould it in one piece.	0:18:58	0:19:03
-I had a picture in my mind -that they were going to hang...	0:19:03	0:19:07
-..because -there were holes in them...	0:19:07	0:19:11
-..as if they were decaying or as if -something had been pecking at them.	0:19:11	0:19:16
-I liked the idea -they were hanging...	0:19:17	0:19:19
-..and had been left for many years.	0:19:20	0:19:24
-# A dormant love was awakened	0:19:27	0:19:31
-# We got married though we were poor	0:19:32	0:19:35
-# In delicate shawls	0:19:37	0:19:39
-# Children were nursed	0:19:39	0:19:43
-# A belated Hallelujah	0:19:46	0:19:51
-# The world beyond is responding now	0:19:51	0:19:56
-# Hallelujah day and night	0:19:56	0:20:00
-# The delicate cloth -is the colour of the soil #	0:20:01	0:20:06
-I recorded an album two years ago.	0:20:06	0:20:09
-It was the first album -I'd released in a long while.	0:20:09	0:20:13
-My daughter Lisa -has sung with me over the years.	0:20:15	0:20:20
-After hearing -Mared and Hanna's voices...	0:20:21	0:20:26
-..I decided it'd be great to have -the three of them singing harmonies.	0:20:27	0:20:32
-It was a wonderful experience.	0:20:33	0:20:35
-The three of them sing on the album.	0:20:35	0:20:38
-# Something in the beady eyes	0:20:38	0:20:40
-# That see everything -like a reflection	0:20:40	0:20:44
-# Solzhenitsyn, stop	0:20:44	0:20:50
-I'm still not sure of the rhythm.	0:20:50	0:20:52
-I'm still not sure of the rhythm. - -# Solzhenitsyn, stop	0:20:52	0:20:56
-# Something in the beady eyes	0:20:56	0:20:58
-# That sees everything -like a reflection	0:20:58	0:21:03
-# Solzhenitsyn, stop #	0:21:03	0:21:04
-It's more of a saying than a song.	0:21:04	0:21:07
-It's spoken more than sung.	0:21:08	0:21:10
-It's been -an incredible experience...	0:21:12	0:21:15
-..having them there in support -and sharing the experience.	0:21:16	0:21:21
-# In delicate shawls -children were nursed #	0:21:21	0:21:24
-It made a huge difference because -it changed the quality of my work.	0:21:25	0:21:30
-# A belated Hallelujah	0:21:30	0:21:35
-# The world beyond -is responding now	0:21:35	0:21:40
-# Hallelujah day and night	0:21:40	0:21:44
-# The delicate cloth -is the colour of the soil #	0:21:44	0:21:49
-Singing is my passion.	0:21:50	0:21:54
-That's what -I'd eventually like to do.	0:21:55	0:21:59
-But I also enjoy writing...	0:22:00	0:22:04
-..and I'm drawn -to literature and drama.	0:22:04	0:22:08
-But I'm not sure.	0:22:08	0:22:11
-These things are all connected.	0:22:11	0:22:14
-There might be a way -of combining all those things.	0:22:14	0:22:18
-I've never met anyone like Mared.	0:22:30	0:22:32
-We work with a lot -of partially-sighted children.	0:22:33	0:22:36
-She's extraordinary.	0:22:36	0:22:39
-You work with lots of people -in this line of work...	0:22:42	0:22:45
-..and then you meet someone -at a relatively young age...	0:22:45	0:22:49
-..who's got it all.	0:22:50	0:22:52
-The musical talent, the voice...	0:22:52	0:22:54
-..and she has the ability to be -good every time she does something.	0:22:54	0:22:59
-It's quite natural -and it's also rare.	0:22:59	0:23:02
-Whatever she decides to do, -she'll be good at it.	0:23:02	0:23:05
-There's no doubt about that.	0:23:05	0:23:09
-I've come to the point where I think -that's what everyone else sees too.	0:23:11	0:23:17
-I can't really understand -what everybody else sees.	0:23:17	0:23:21
-That's my way of dealing with it.	0:23:22	0:23:26
-I kid myself -that I'm the normal one...	0:23:27	0:23:32
-..not everyone else!	0:23:32	0:23:34
-S4C Subtitles by Adnod Cyf.	0:23:50	0:23:52
-.	0:23:52	0:23:52

O'r Galon: Mared

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