Beti George: Colli David


Beti George: Colli David

Similar Content

Browse content similar to Beti George: Colli David. Check below for episodes and series from the same categories and more!

Transcript


LineFromTo

-*

0:00:000:00:00

-*

-

-*

0:00:000:00:00

-Beti George cared for her partner

-David Parry-Jones for eight years.

0:00:000:00:05

-David suffered

-from Alzheimer's disease.

0:00:050:00:08

-While caring for David...

0:00:180:00:20

-..Beti campaigned

-for a better status for carers.

0:00:200:00:25

-David died in April 2017.

0:00:350:00:38

-But Beti's campaign continues.

0:00:390:00:43

-I'm certain in my mind

-that I'm doing the right thing.

0:00:470:00:50

-I won't be telling people

-today what I'm going to do.

0:00:500:00:55

-Instead, I'll be asking them

-what needs doing.

0:00:550:00:59

-Right.

0:00:590:01:01

-If I'd tried to fight for provision

-for my mother in her own language...

0:01:010:01:05

-..it would have been the end of me.

0:01:050:01:08

-I know that.

0:01:080:01:10

-In terms of support services

-for you as a carer...

0:01:100:01:14

-..where are they?

0:01:140:01:16

-I could ask you that.

0:01:170:01:19

-I wonder what will happen

-if the same thing happens to me.

0:01:200:01:25

-Emrys has me to take care of him.

-I'm glad I can do that.

0:01:260:01:31

-Do you think about the future?

0:01:320:01:34

-Do you think about the future?

-

-Yes. I'm afraid of the future.

0:01:340:01:36

-I'm afraid.

0:01:400:01:42

-People have already asked me

-if I'll carry on campaigning.

0:01:430:01:47

-Some have asked whether I'll still

-have the drive to campaign...

0:01:480:01:52

-..after David's death.

0:01:530:01:54

-At the moment, I feel

-more determined than ever.

0:01:550:01:59

-Things really need to change.

0:01:590:02:03

-Subtitles

0:02:040:02:06

-The emptiness is terrible.

0:02:270:02:32

-That chair is empty.

0:02:330:02:35

-The house is empty.

-It's a big house.

0:02:350:02:39

-It's so quiet.

0:02:390:02:41

-He would sit there.

-He'd fall asleep and he'd snore!

0:02:440:02:47

-It was some sort of comfort

-at the time.

0:02:470:02:51

-Sometimes I would escape

-to the kitchen...

0:02:520:02:56

-..to have a cuppa on my own.

0:02:560:02:58

-I'd read the paper or something.

0:02:590:03:01

-Within about ten minutes,

-I'd hear "Bet! Bet!"

0:03:020:03:06

-I'd have to go back

-to keep him company.

0:03:060:03:11

-The place felt full.

0:03:120:03:16

-It's all gone. It's empty.

0:03:160:03:20

-My friends have been tremendous.

0:03:310:03:37

-I didn't realize

-I had so many friends.

0:03:390:03:41

-And of course, the family.

0:03:430:03:44

-Iestyn has, well...

0:03:450:03:47

-..he's grown up.

0:03:490:03:51

-My baby.

0:03:510:03:53

-He's been...

-I can't thank him enough.

0:03:530:03:59

-He was David until the very end.

0:04:240:04:26

-I felt so angry

-when one social worker said...

0:04:280:04:34

-.."But you lost him years ago."

0:04:340:04:37

-I hadn't lost him at all.

-He was still there to the very end.

0:04:370:04:41

-He went in to the hospice.

0:04:430:04:45

-The hospice was what everyone

-should have when they're ill.

0:04:480:04:53

-It was clean. It was so comfortable.

0:04:530:04:58

-It was such a warm place.

0:04:590:05:00

-The staff were fantastic.

0:05:000:05:03

-Hi!

0:05:040:05:05

-How are you?

0:05:060:05:07

-How are you?

-

-OK.

0:05:070:05:08

-Eurgh... yes.

0:05:090:05:11

-I've had a bad week actually.

0:05:110:05:13

-For some reason

-but that's what they tell me.

0:05:130:05:16

-It's up and down, up and down.

0:05:160:05:18

-You couldn't wish for better care.

0:05:320:05:35

-He would sit in his chair.

0:05:360:05:38

-They would get him up

-and he would look out.

0:05:380:05:41

-There were big windows

-with a view over to Somerset.

0:05:420:05:46

-He could see people walking below.

-He loved it.

0:05:460:05:50

-Because he loved seeing people

-walking with their dogs.

0:05:540:05:58

-He would get very excited

-if he saw a dog.

0:05:580:06:01

-Or kids, you know. Dogs and kids.

0:06:010:06:05

-He was getting so excited when he...

0:06:050:06:08

-He did smile at the odd rugby song.

0:06:080:06:10

-I tried my best!

0:06:110:06:12

-Just a few times. Singing.

0:06:130:06:15

-I'd prepared for so many things.

0:06:160:06:18

-We could have turned the lounge

-into a bedroom if we'd needed to.

0:06:180:06:23

-He could have looked out

-at the garden.

0:06:230:06:26

-But he went quickly in the end.

0:06:270:06:29

-His brothers had been to see him...

0:06:300:06:33

-..and he was quite well

-when they were there.

0:06:330:06:37

-By Saturday, I could see

-that he wasn't quite as well.

0:06:370:06:42

-On Sunday, he wasn't responding.

0:06:420:06:46

-He died on Monday morning.

0:06:460:06:48

-It was a shock.

0:06:500:06:52

-I've got a present for you.

0:06:530:06:56

-I've been collecting money

-from friends.

0:06:560:07:00

-You gave me a list

-of things that you need.

0:07:010:07:06

-So I don't know. What do you need?

-Because I have a cheque for 2,000.

0:07:080:07:14

-So, there you are.

0:07:140:07:17

-Thank you very much.

0:07:180:07:19

-That's very kind.

0:07:190:07:21

-That's very kind.

-

-Thank you.

0:07:210:07:22

-Baited breath.

0:07:260:07:27

-The crossbar!

0:07:310:07:32

-There's the try.

-Roy Bergiers is the happy man.

0:07:350:07:40

-Dear friends, if you can take

-your seats. We're about to start.

0:07:400:07:46

-Find out where you're sitting.

0:07:470:07:50

-I felt I needed to hold an evening

-to remember David.

0:07:510:07:56

-At this event at the club in Cardiff

-everyone will be remembering him.

0:07:570:08:03

-But also, the campaign continues.

0:08:030:08:06

-All the money raised on the night...

0:08:070:08:11

-..will go towards dementia research.

0:08:110:08:15

-Thank you so much to all of you

-for coming tonight.

0:08:160:08:20

-It's an evening to remember David.

0:08:200:08:23

-But it's also a chance

-to share memories.

0:08:230:08:26

-I think there'll be

-quite a bit of nostalgia...

0:08:260:08:29

-..going around tonight.

0:08:290:08:32

-It's bound to be a lively night.

0:08:330:08:36

-David wouldn't have wanted it

-any other way.

0:08:360:08:39

-His life was all about having fun.

0:08:390:08:41

-Selling then at 325 for the

-All Blacks World Cup winning ball.

0:08:460:08:50

-325.

0:08:510:08:53

-We have an auction

-of valuable objects.

0:08:530:08:56

-People have been so generous.

0:08:560:09:00

-Dinner, bed and breakfast at the

-Harbourmaster in Aberaeron. 125.

0:09:000:09:04

-125 in front here.

0:09:040:09:06

-150 from Jan.

0:09:060:09:07

-275 I'm bid. At 275. 300.

-Ruth's in again.

0:09:080:09:12

-300 I'm bid from Ruth Jones.

0:09:120:09:15

-325. He's in, sir.

0:09:150:09:18

-At 325, he's in.

0:09:180:09:19

-325 I'm bid. Closing at 325.

0:09:200:09:23

-Thank you, sir. It's yours.

0:09:230:09:25

-Wonderful.

0:09:260:09:27

-The Centre for Ageing and Dementia

-Research at Swansea University.

0:09:270:09:32

-What a wonderful cause that is.

0:09:320:09:34

-Players had respect for him

-and they trusted him.

0:09:370:09:41

-They didn't mind David

-interviewing them.

0:09:410:09:44

-They knew he was straight-talking.

0:09:440:09:46

-He was a rugby man

-through and through.

0:09:460:09:49

-Last Friday, I was in Blaenau

-rugby club. I get all the best gigs.

0:09:490:09:54

-We were reminiscing on a Q&A session

-and to a man, they all said...

0:09:550:10:00

-.."David Parry-Jones was the

-soundtrack to our lives in rugby."

0:10:010:10:07

-He was the man,

-he was the voice in 1972...

0:10:070:10:10

-..which was the launch

-of Max here's career.

0:10:100:10:15

-That was DPJ. Unmistakably DPJ.

0:10:150:10:19

-He was the one we all aspired to be.

0:10:190:10:22

-We were never going to sound

-like Bill McLaren, were we?

0:10:220:10:25

-It's clear from the buzz

-that people are enjoying themselves.

0:10:260:10:30

-I have to thank people

-like Phil Steele...

0:10:310:10:34

-..who's just been doing

-the auction - he was fantastic.

0:10:340:10:38

-Eddie Butler and Alan Wilkins too.

0:10:380:10:41

-I can relax somewhat now.

-But I'll feel better tomorrow.

0:10:420:10:46

-I think she's probably

-looking around her.

0:10:480:10:51

-Or at least I hope she is.

0:10:510:10:53

-There are about 150 people

-here tonight.

0:10:530:10:57

-They've come to support her...

0:10:570:10:59

-..to remember David

-and to support the cause.

0:10:590:11:03

-How many people from all over Wales

-couldn't be here tonight...

0:11:040:11:09

-..but feel the same

-for the cause that she supports?

0:11:090:11:12

-I don't think

-there's a solution really.

0:11:130:11:16

-It's about increasing awareness...

0:11:160:11:18

-..and raising money,

-like we're doing tonight.

0:11:180:11:21

-My David Parry-Jones coat.

-I still have it.

0:11:240:11:26

-I saw DPJ wearing the coat...

0:11:280:11:29

-..and I thought to myself

-I'd like to have one.

0:11:290:11:32

-Grandstand phoned me. Wales were

-playing England at the Arms' Park.

0:11:320:11:38

-I decided I had to buy a coat.

0:11:380:11:40

-Frank Bough

-was going to interview me.

0:11:410:11:43

-I had to buy a coat.

0:11:440:11:46

-So there I was on the halfway line

-talking to Frank Bough.

0:11:460:11:51

-The crowd starting singing Hymns

-and Arias for the first time ever.

0:11:510:11:56

-I phoned my mother and asked

-if she'd seen Grandstand.

0:11:560:11:59

-I asked what she thought and she

-said, "Your coat looked lovely."

0:11:590:12:03

-Before he died in April, in the

-Marie Curie Hospice in Penarth...

0:12:060:12:10

-..we'd show him Max at Treorchy

-on the iPad.

0:12:100:12:14

-He would still smile and appreciate.

0:12:140:12:17

-So, Max, thank you so much

-for being here tonight.

0:12:170:12:21

-And yes, David would have enjoyed

-being with us here. Thank you.

0:12:220:12:26

-.

0:12:320:12:32

-Subtitles

0:12:340:12:34

-Subtitles

-

-Subtitles

0:12:340:12:36

-I'm preparing for tonight,

-which is going to be a big night.

0:12:390:12:43

-There's a big conference in Swansea.

0:12:440:12:46

-It's the British Society

-of Gerontology conference.

0:12:460:12:50

-They study and work with

-the elderly.

0:12:500:12:54

-This is a UK-wide conference.

0:12:540:13:00

-What am I going to tell them?

0:13:000:13:02

-Good evening. It's a real honour

-to be here tonight.

0:13:050:13:09

-If someone had told me 10 years ago

-I'd be guest of honour here...

0:13:100:13:13

-..I'd have said "You're bonkers".

0:13:140:13:16

-It's an honour to be honest because

-it's obviously very important.

0:13:170:13:21

-We will have already eaten.

0:13:220:13:23

-I'm speaking

-between the dinner and the dessert.

0:13:240:13:28

-I'm only speaking

-for five to seven minutes.

0:13:280:13:33

-To be honest, that's more of

-a challenge. I have so much to say.

0:13:340:13:38

-Older people don't have rights.

0:13:380:13:41

-We need to campaign

-to give them rights.

0:13:410:13:45

-Yes, yes.

-People are more interested nowadays.

0:13:450:13:49

-People agree with me.

0:13:500:13:52

-I think what they appreciate is that

-you stand up and speak in public.

0:13:530:13:57

-Not everyone feels

-they are able to do that.

0:13:570:14:00

-That's why I consider myself

-to be the voice of people out there.

0:14:000:14:04

-There are thousands of people

-in Wales without a voice.

0:14:050:14:09

-If somebody had told me

-ten years ago...

0:14:130:14:16

-..that I'd be the guest of honour...

0:14:160:14:18

-..with the British Society

-of Gerontology...

0:14:190:14:21

-..I would have said,

-"You're bonkers".

0:14:220:14:24

-But then, a year later,

-dementia struck.

0:14:250:14:29

-And my life and world

-were turned upside down.

0:14:300:14:33

-And I started to rant.

0:14:350:14:36

-But then, it has been proven that

-ranting is better for the digestion.

0:14:360:14:41

-Every three seconds, someone

-in the world develops dementia.

0:14:440:14:48

-One in three people over 65

-will die with a form of dementia.

0:14:480:14:53

-In Wales, there are over 45,000

-currently living with dementia.

0:14:540:14:59

-55,000 by 2021.

0:15:000:15:02

-Statistics go on and on.

-What I want to see is action.

0:15:030:15:07

-Now - before the huge wave

-overtakes us.

0:15:070:15:11

-I feel that policy makers

-are like rabbits...

0:15:170:15:22

-..caught in the headlights

-of a car.

0:15:220:15:25

-They don't really know

-how to cope with this...

0:15:260:15:29

-..and it's been called the most

-discriminated against disease.

0:15:290:15:33

-Dismissed as social

-rather than medical.

0:15:340:15:37

-Social carers for people with

-dementia must be given respect...

0:15:380:15:42

-..and professional status...

0:15:430:15:45

-..and paid not 7.50 an hour

-but a decent living wage.

0:15:460:15:50

-It's one of

-the most difficult jobs going.

0:15:500:15:53

-The only people who get it are

-those who've been through it 24/7.

0:15:580:16:03

-Thank you for listening.

-And now you can enjoy your pudding.

0:16:040:16:08

-Thank you.

0:16:080:16:10

-It's an audience of 350

-academic gerontologists...

0:16:160:16:22

-..practitioners, policy makers.

0:16:220:16:24

-They're involved with these issues

-day in and day out.

0:16:240:16:27

-I've never seen a standing ovation

-at one of our dinners before.

0:16:270:16:32

-People realize that I'm campaigning

-for better dementia care.

0:16:370:16:43

-I receive many letters in the post.

0:16:440:16:50

-One of them came from John Phillips.

0:16:510:16:54

-He used to be Chief Executive

-of Dyfed County Council.

0:16:550:16:58

-Jenkins was a Unitarian...

0:17:010:17:03

-..but basically

-he was a very religious man.

0:17:030:17:06

-His wife, Bethan,

-is the author of many books...

0:17:070:17:10

-..but she now has Alzheimer's.

0:17:110:17:14

-She started showing symptoms...

0:17:150:17:19

-..of being a little scatty

-and forgetful.

0:17:190:17:23

-I've attended three church services

-today...

0:17:240:17:28

-..and listened to two sermons.

0:17:280:17:30

-During the years that followed, I

-was more or less a full-time carer.

0:17:300:17:36

-DOORBELL

0:17:420:17:44

-Bethan now lives in a care home.

0:17:490:17:52

-The carers there are very good.

0:17:530:17:56

-Many of them are from Poland.

0:17:560:17:59

-They must be worried.

0:18:000:18:01

-They're worried about

-what will happen in future.

0:18:010:18:06

-I go to see Bethan twice a week.

0:18:060:18:08

-She can't talk and she can't walk.

0:18:080:18:12

-She can't eat solids.

0:18:120:18:16

-I sit with her. Sometimes

-there'll be a hint of a smile.

0:18:170:18:22

-But she won't say anything.

0:18:240:18:26

-With dementia, you're not sure

-what her brain is registering.

0:18:260:18:32

-It sounds as if Bethan

-needs intensive nursing care.

0:18:330:18:38

-Yes, in the opinion of anyone

-trying to interpret the term...

0:18:390:18:43

-..continuing healthcare.

0:18:430:18:45

-But it's not that simple.

0:18:450:18:47

-They've drawn up

-about twelve guidelines.

0:18:470:18:51

-When you're assessed,

-you go through each one.

0:18:530:18:57

-You have to achieve a high score

-in enough different elements.

0:18:570:19:03

-For example,

-she's unable to feed herself.

0:19:030:19:05

-Right, let me tell you about that.

0:19:060:19:08

-I thought that would mean she would

-get a high score for nutrition.

0:19:100:19:15

-But no, she hasn't lost

-enough weight yet.

0:19:150:19:18

-Right?

0:19:190:19:20

-I've been told that if Bethan

-was more aggressive...

0:19:210:19:27

-..that might benefit us.

0:19:280:19:31

-How can a person who is unable to

-express herself or do anything...

0:19:330:19:36

-..be aggressive?

0:19:370:19:38

-The other thing of concern...

0:19:380:19:42

-..in case people think

-that only wealthy people pay.

0:19:420:19:45

-People should understand that

-anyone with assets over 24,000...

0:19:460:19:52

-..including the value of your home,

-has to pay.

0:19:520:19:56

-That means most people.

0:19:580:20:00

-And you're not poor.

0:20:010:20:02

-I'm not poor.

0:20:030:20:04

-I have enough information

-to know about the system.

0:20:040:20:09

-But it's a matter of principle.

0:20:100:20:13

-Some people would be in danger

-of losing their home.

0:20:130:20:20

-Losing everything.

0:20:200:20:21

-For example,

-someone might want to decide...

0:20:220:20:26

-..to leave their home

-to their children.

0:20:270:20:30

-If the council can prove...

0:20:310:20:34

-..that they did that

-to avoid paying...

0:20:340:20:39

-..they are still able

-to go after it.

0:20:390:20:42

-Politicians have to start

-taking this issue seriously.

0:20:420:20:47

-This will be a big problem

-in the future.

0:20:480:20:50

-Where are the politicians

-who are willing to raise the issue?

0:20:510:20:55

-Jenkins was a deep thinker

-and a contemplative man.

0:20:550:21:00

-Having intelligence

-and creativity...

0:21:010:21:05

-..do not mean

-you'll avoid dementia.

0:21:050:21:09

-It can happen to anyone.

0:21:090:21:11

-Dementia.

0:21:130:21:15

-"Under the clouds, sunshine lingers

0:21:160:21:18

-"A smile is trapped in the tears

0:21:180:21:21

-"The passion of past summers

0:21:230:21:26

-"Comes to mind, then disappears"

0:21:260:21:30

-I have to sign in here.

0:21:350:21:38

-What's my name?

0:21:390:21:40

-A week. Which isn't much.

0:21:420:21:45

-A week. Which isn't much.

-

-No.

0:21:450:21:46

-This interview tonight

-is a sort of advert...

0:21:470:21:51

-..for the meetings

-taking place in the Eisteddfod.

0:21:510:21:55

-I know there are so many people out

-there in the same situation as me.

0:21:550:22:01

-I hope they come to speak to me.

0:22:020:22:04

-The world has changed for me.

0:22:080:22:10

-But it's there all the time.

0:22:110:22:14

-It's wonderful to welcome

-broadcaster Beti George...

0:22:190:22:24

-..and singer Casi Wyn to the studio.

0:22:240:22:27

-You're using the National Eisteddfod

-as a platform next week.

0:22:290:22:33

-What exactly is the appeal?

0:22:330:22:35

-Do you want people who are going

-through to come to see you?

0:22:350:22:39

-Yes, because I know that they are

-going through the same experience.

0:22:400:22:44

-I want them to come to speak to me.

0:22:440:22:46

-How do Welsh people respond

-generally?

0:22:460:22:50

-We're reluctant to talk, aren't we?

0:22:500:22:53

-We don't want cause a fuss.

-We don't want to complain.

0:22:530:22:56

-But if we don't complain...

0:22:560:22:58

-Well, it's not really complaining.

0:22:580:23:00

-We're just demonstrating

-that things need to change.

0:23:000:23:04

-Unless we discuss this matter...

0:23:040:23:06

-..and tell the authorities

-that they must do something...

0:23:060:23:10

-..nothing is going to change.

0:23:110:23:13

-I can't change things alone.

0:23:130:23:15

-Beti, thank you very much for coming

-and good luck next week.

0:23:160:23:19

-It's good to have the opportunity

-to tell people about next week.

0:23:200:23:25

-Heno has

-quite a good viewing audience.

0:23:250:23:30

-I hope people will have seen it.

0:23:300:23:33

-I hope people will come.

0:23:330:23:37

-.

0:23:370:23:37

-Subtitles

0:23:410:23:41

-Subtitles

-

-Subtitles

0:23:410:23:43

-Carers for people with dementia

-often feel they are alone.

0:23:460:23:51

-I felt like that sometimes.

0:23:530:23:57

-I could spend hours...

0:23:570:24:00

-..trying to persuade him

-to go to bed.

0:24:000:24:04

-It wasn't easy, it wasn't easy to...

0:24:050:24:10

-He wanted to keep his dignity.

0:24:110:24:13

-It wasn't easy for me to take off

-his trousers and so on.

0:24:130:24:17

-I've been reading quite a bit

-about what's happening in Scotland.

0:24:350:24:39

-The impression I get

-- I don't know if this is right...

0:24:390:24:44

-..is that they're way ahead

-of the situation in Wales.

0:24:440:24:48

-I went to Scotland last year.

0:24:480:24:51

-I managed to get some idea...

0:24:520:24:54

-..of what people with dementia

-have to deal with.

0:24:550:24:58

-It's the sensory deprivation

-we hear about.

0:24:580:25:02

-They lose every ability

-to understand things.

0:25:020:25:06

-In Scotland,

-they're addressing these issues.

0:25:060:25:11

-During the exercise,

-you'll be in that room...

0:25:110:25:14

-..and you'll have been asked

-to complete a range of tasks.

0:25:140:25:18

-What's important for us...

0:25:180:25:20

-..is that any time you feel that

-you've had enough that you say stop.

0:25:200:25:25

-Everything will stop.

0:25:250:25:26

-OK.

0:25:260:25:27

-If you could put these in your shoes

-please.

0:25:280:25:31

-I'm just wondering how they know...

0:25:350:25:37

-..that this is what happens

-to people with dementia.

0:25:380:25:42

-I can't see anything now.

-What am I supposed to do?

0:25:420:25:45

-Ooh. As if there's water bubbling

-somewhere or other.

0:25:460:25:49

-Well, I don't understand.

-I don't remember what she told me.

0:25:500:25:54

-There was so much noise in my ears.

0:25:550:25:58

-More noise in my ears.

0:25:580:26:01

-I heard something fall.

0:26:020:26:04

-There are people talking

-in the background.

0:26:060:26:08

-Well, that's not. I can't.

-What about the scarf?

0:26:090:26:12

-Now I understand. I'm like Cyclops.

-I can only see through one eye.

0:26:170:26:22

-OK. Stop.

0:26:230:26:24

-OK. Stop.

-

-What was that like for you?

0:26:240:26:26

-Exhausting actually.

0:26:270:26:29

-I feel so tired.

0:26:290:26:31

-Things didn't happen

-in the right sequence.

0:26:310:26:34

-The last thing

-you were asked to do...

0:26:340:26:36

-..was put on your coat and gloves

-and leave the room.

0:26:370:26:40

-You actually put these on

-quite early...

0:26:400:26:42

-..which then made all the other

-tasks really difficult to do.

0:26:430:26:46

-You were trying to do them

-with a pair of mitts on.

0:26:460:26:49

-That's a very common experience

-for people to lose the thread...

0:26:490:26:53

-..in terms of the sequence

-of doing something.

0:26:530:26:56

-Whether that's getting dressed,

-getting ready to go out...

0:26:560:27:00

-..making a cup of tea.

0:27:000:27:02

-If you break it down, there's quite

-a lot to the everyday things we do.

0:27:020:27:06

-In 2007, the government here...

0:27:080:27:13

-..made dementia a priority.

0:27:130:27:15

-One thing that's interesting...

0:27:160:27:19

-..is that they appoint

-what they call a link worker.

0:27:190:27:22

-You're the link worker.

0:27:270:27:29

-Linked to Helen.

0:27:290:27:31

-When Helen's husband

-went along to the memory clinic...

0:27:310:27:34

-..to get his diagnosis.

0:27:340:27:36

-Post-diagnostic support

-would have been discussed...

0:27:360:27:39

-..with Helen and her husband.

0:27:390:27:41

-I almost guide them through the year

-following the diagnosis.

0:27:420:27:46

-They just take quality time

-to listen to how I'm doing.

0:27:460:27:50

-How are you today?

0:27:500:27:52

-It's Tuesday at the Eisteddfod.

0:28:060:28:08

-Every day I've been here...

0:28:090:28:11

-..so many people have stopped me

-to say thank you.

0:28:110:28:15

-They tell me they appreciate

-what I'm trying to do so much.

0:28:170:28:23

-Obviously there are people out there

-who are suffering.

0:28:230:28:29

-They just say the services

-are not what they should be.

0:28:290:28:34

-Talking to people.

0:28:360:28:36

-Talking to people.

-

-People come to me. I hope.

0:28:360:28:38

-Carers. Most of them are women.

0:28:390:28:43

-Come to talk to me.

0:28:440:28:46

-Many people who are carers

-have told me...

0:28:480:28:52

-..they would like

-one place to phone.

0:28:530:28:57

-You could tell them what you want

-to know and they would find out...

0:28:570:29:01

-..and phone you back later that day

-to give you the information.

0:29:010:29:05

-That's not how it works.

0:29:050:29:06

-In Scotland, they have

-what they call link workers.

0:29:070:29:11

-Yes. In Scotland they're spoilt.

0:29:110:29:14

-Well, not spoilt because everyone

-should receive that kind of service.

0:29:140:29:19

-In Wales, we're so far behind that.

0:29:190:29:22

-I don't think the government

-really understands this illness.

0:29:220:29:27

-Lynwen and Nain.

-Nain lost her husband recently.

0:29:270:29:33

-How difficult was it?

0:29:350:29:38

-In my mind, no-one could take

-my place and do what I was doing.

0:29:380:29:42

-Or not as well as me maybe.

0:29:420:29:44

-I was tired but we managed...

0:29:450:29:49

-..in our life within the house.

0:29:490:29:55

-What we found useful...

0:29:560:29:57

-..was the Alzheimer's Society

-dementia helpline.

0:29:580:30:01

-If there was anything not quite

-right, we'd send a little email.

0:30:010:30:06

-But what would be more helpful...

0:30:070:30:09

-..rather than having someone

-on the other end of a screen...

0:30:100:30:14

-..would be to have someone

-like a one-to-one support worker...

0:30:140:30:18

-..like they have in Scotland.

0:30:190:30:21

-It's a 24-hour job.

0:30:210:30:24

-He might get up at night and he

-won't remember where the toilet is.

0:30:240:30:30

-He doesn't answer the phone.

0:30:300:30:33

-If someone calls round, he prefers

-not to answer the door...

0:30:330:30:37

-..in case he doesn't know them.

0:30:370:30:39

-Our friends

-understand the situation.

0:30:400:30:43

-My friends and family

-are very supportive.

0:30:430:30:46

-Aren't you lucky?

0:30:470:30:49

-I'm very lucky of that.

-Otherwise I wouldn't be here today.

0:30:490:30:55

-This is my holiday. The same thing

-happened in Abergavenny last year.

0:30:550:30:59

-That's what happens

-more often than not.

0:31:000:31:03

-They feel they are alone

-and don't know where to turn.

0:31:040:31:07

-I'd like someone to come in

-and tell me what they can offer.

0:31:090:31:14

-They could start tomorrow!

0:31:140:31:16

-But there was nothing.

0:31:160:31:19

-This is us on our wedding day.

0:31:190:31:20

-Wow.

0:31:210:31:22

-In Alltwen chapel.

0:31:220:31:24

-He hasn't changed much.

-I've changed completely.

0:31:260:31:30

-This is him with our grandson.

0:31:300:31:33

-He loves Joshua. He's changed now.

0:31:330:31:35

-He hasn't got much patience

-with children now.

0:31:350:31:38

-He hasn't got much patience

-with anyone.

0:31:380:31:41

-He's 81 this month.

0:31:420:31:44

-Some days, he thinks he's 40.

0:31:440:31:47

-Another day he thinks he's 90.

-It's funny.

0:31:480:31:51

-It's hard, I have to say.

0:31:520:31:54

-The old Rhodri has been replaced

-by someone else...

0:31:540:31:58

-..and it's like having a child.

0:31:580:32:00

-You have to remind yourself

-that he's your husband.

0:32:000:32:03

-Some people, because they see

-a smile on my face...

0:32:030:32:06

-..they think there's nothing wrong.

0:32:070:32:09

-But I could cry some days.

0:32:090:32:11

-Sometimes I think I could put him

-in a room and lock him in.

0:32:130:32:17

-But I wouldn't do it. I try my best

-to take him wherever I go.

0:32:170:32:21

-I'm his kingpin.

0:32:220:32:26

-He looks for me.

0:32:260:32:29

-I get up from the chair

-and he asks where I'm going.

0:32:290:32:32

-I say I'm going to the toilet.

-He asks why!

0:32:320:32:35

-And you just think

-what's wrong with him!

0:32:350:32:38

-But it's so difficult to believe

-that he's the same man.

0:32:390:32:43

-Mam was the heart and soul

-of the family.

0:32:480:32:52

-She asked me how the boys were.

0:32:520:32:55

-I don't have children.

0:32:550:32:58

-That's the day I realized.

0:32:590:33:00

-I kept talking to her but burst into

-tears when I put the phone down.

0:33:010:33:05

-I realized my life had changed.

0:33:050:33:07

-From that second on.

-I had to start looking after her.

0:33:070:33:11

-The most difficult thing for us...

0:33:110:33:15

-..was when Mam realized

-she was forgetting things.

0:33:150:33:20

-That was awful.

0:33:210:33:23

-If I had tried to fight

-for provision for Mam in Welsh...

0:33:230:33:27

-..it would have been the end of me.

0:33:270:33:30

-I know that.

0:33:300:33:32

-There was no understanding

-of her human rights per se...

0:33:320:33:38

-..let alone linguistic rights.

0:33:380:33:40

-When he was in hospital,

-he had wonderful care.

0:33:410:33:45

-The nurses did fantastic work.

0:33:450:33:50

-But it was as if they didn't

-quite understand the condition.

0:33:510:33:55

-It was little things.

0:33:550:33:57

-At home,

-if he didn't want to eat lunch...

0:33:570:34:00

-..at the same time as everyone else,

-the food was left on the table.

0:34:000:34:04

-It would just be a sandwich

-or something.

0:34:040:34:07

-You'd hear his little feet shuffling

-towards the kitchen later to eat it.

0:34:070:34:12

-In hospital, if you don't eat

-between 12 and 1, the food is gone.

0:34:120:34:16

-So he didn't eat

-when he was in hospital.

0:34:160:34:20

-Little things like that.

0:34:200:34:22

-You can't deny that doctors

-and nurses do their best...

0:34:220:34:26

-..for the patients.

0:34:260:34:27

-But personally, I think they need

-to be much more flexible.

0:34:280:34:32

-What is needed to support carers?

0:34:370:34:39

-They need to stop paying

-for Trident.

0:34:400:34:43

-They need to stop paying for wars.

0:34:430:34:46

-They need to open out the cake

-properly.

0:34:460:34:49

-They then need to distribute

-the cake more sensibly to Wales.

0:34:490:34:53

-They need to stop the ridiculous

-bureaucratic walls...

0:34:540:35:00

-..between health and education.

0:35:000:35:03

-They need to invest

-in proper resources.

0:35:030:35:06

-That has to change.

0:35:070:35:09

-It's just crumbs left

-and the crumbs are diminishing.

0:35:100:35:14

-Do you think about the future?

0:35:190:35:21

-Do you think about the future?

-

-Yes. I'm afraid of the future.

0:35:210:35:23

-I'm afraid.

0:35:270:35:29

-I don't want to think

-about the future.

0:35:320:35:35

-The future.

0:35:350:35:37

-The future scares me.

0:35:500:35:52

-I'd prefer if he had a heart attack

-and went in his sleep...

0:35:550:35:59

-..than continue on this journey.

0:36:000:36:02

-.

0:36:100:36:10

-Subtitles

0:36:110:36:11

-Subtitles

-

-Subtitles

0:36:110:36:13

-I'm glad I came to Samos.

-I wasn't sure.

0:36:210:36:24

-I've arrived today.

-It's the day after his birthday.

0:36:250:36:29

-I decided to travel on his birthday.

0:36:290:36:33

-The idea was I would be

-concentrating on something else...

0:36:340:36:37

-..rather than him and his birthday.

0:36:380:36:40

-It's a second home to me.

0:36:440:36:46

-It was a second home to us.

0:36:470:36:50

-It's odd to come here without him.

0:36:510:36:54

-I have very mixed feelings.

0:37:030:37:07

-I see David in everything I see.

0:37:070:37:12

-David would want me to come anyway.

0:37:150:37:19

-Beti! Beti!

0:37:300:37:32

-Vaso has lost Prepos, her husband.

0:37:350:37:38

-That was some years ago.

0:37:390:37:41

-As Vaso said, Prepos and David will

-be having fun somewhere together!

0:37:410:37:46

-They are so warm. I'm one of them.

0:38:040:38:08

-I'm family, as they say!

0:38:080:38:11

-Meeting Vaso again after all these

-years was a fabulous experience.

0:38:120:38:18

-There's such a warm welcome.

0:38:190:38:22

-Nafsika is Vaso's sister.

-She's also a very good friend.

0:38:230:38:27

-She says I'm a member of the family.

0:38:270:38:30

-I'm their sister.

-They loved David as well.

0:38:300:38:33

-I'll see at the end of my stay

-whether I feel it was worth coming.

0:38:400:38:46

-I wasn't sure

-if it was a sensible thing to do.

0:38:470:38:50

-So soon after losing David.

0:38:500:38:55

-I find comfort in the fact

-that I managed to look after him...

0:38:580:39:03

-..and that he did appreciate

-what I was trying to do.

0:39:030:39:07

-Also that he was able

-to stay at home...

0:39:080:39:11

-..until the end.

0:39:110:39:13

-There you are. Good.

0:39:140:39:16

-Will I continue to campaign

-after David dies?

0:39:170:39:21

-At the moment, I feel

-more determined than ever.

0:39:230:39:26

-Come on then.

0:39:300:39:33

-When David was diagnosed...

0:39:430:39:45

-..no-one really knew

-much about dementia.

0:39:460:39:49

-People hadn't really heard much

-about dementia and Alzheimer's.

0:39:500:39:54

-Now, I can't think of anyone

-who hasn't heard of this disease.

0:39:550:40:01

-The people I spoke to

-at the Eisteddfod.

0:40:020:40:06

-People like Eirlys,

-Gaynor and Megan.

0:40:060:40:10

-Their experiences

-were heartbreaking.

0:40:100:40:14

-It's very common. Those are

-the experiences people have.

0:40:160:40:21

-There are people

-who get in touch regularly.

0:40:210:40:25

-I have very strong views.

-Our politicians must listen.

0:40:260:40:30

-You hear them saying there have been

-developments in cancer care.

0:40:310:40:36

-And I think that's great. But!

0:40:370:40:40

-They must also now turn

-their attention to dementia.

0:40:400:40:44

-They must find the sort of care

-provided to people with cancer.

0:40:440:40:51

-I've come to the Senedd

-this evening.

0:41:020:41:06

-I'm here to meet the Members.

0:41:060:41:09

-I hope they turn up.

0:41:090:41:12

-I want them to hear

-people's experiences.

0:41:120:41:17

-There is always talk.

-It's never-ending.

0:41:180:41:20

-But nothing seems to be done

-about it.

0:41:210:41:25

-I don't feel nervous at all.

0:41:260:41:29

-I'm very glad that one member

-in particular, Eluned Morgan...

0:41:290:41:34

-..is very supportive

-of what I'm trying to do.

0:41:340:41:38

-..for a long time.

0:41:380:41:40

-I'm particularly glad

-to see the Minister...

0:41:400:41:44

-..responsible for ensuring

-that we do more for carers.

0:41:450:41:49

-Welcome, Huw.

0:41:490:41:51

-First of all, I'd like to welcome

-Beti George to the stage.

0:41:510:41:55

-Thank you very much for all the work

-you've done over the years.

0:41:550:41:59

-Thank you, Eluned.

0:42:000:42:01

-Why am I here?

0:42:040:42:05

-Why am I still preaching about

-the need for better dementia care...

0:42:060:42:12

-..and more support for carers?

0:42:120:42:15

-I often ask myself

-the same question.

0:42:160:42:20

-To be honest,

-it's too late for David and me.

0:42:210:42:25

-But speaking to people

-at the Eisteddfod...

0:42:260:42:28

-..who are going through the same

-experience made me want to carry on.

0:42:290:42:33

-The truth is that many

-of today's Assembly Members...

0:42:330:42:37

-..will suffer from dementia one day.

0:42:370:42:40

-I don't think they'd be happy

-with the current care services.

0:42:400:42:45

-It is a national disgrace that

-sufferers are so badly treated...

0:42:460:42:50

-..in the lack of support given to

-those who love and care for them.

0:42:510:42:55

-One consistent theme that came out

-of my chats at the Eisteddfod...

0:42:550:42:59

-..was "once the diagnosis was given,

-we were sent home to get on with it.

0:42:590:43:04

-"We had no idea who to turn to."

0:43:050:43:08

-What they all want is a key worker

-to be linked with them...

0:43:090:43:13

-..right from the beginning.

0:43:130:43:15

-And stay with them right to the end.

0:43:150:43:18

-With a little bit of reorganization

-and goodwill...

0:43:180:43:22

-..this could get off the ground

-right now.

0:43:220:43:25

-Let's do something.

-Let's get cracking.

0:43:250:43:29

-And now, I'd like you to watch

-a very short film...

0:43:290:43:32

-..that includes clips of people

-I spoke to at the Eisteddfod.

0:43:330:43:37

-You rightly remind us, Beti.

-We must talk about dementia more.

0:44:140:44:20

-We must also do more.

0:44:200:44:24

-We need to act more

-as well as talking about it.

0:44:250:44:27

-It's interesting that the government

-is doing something now.

0:44:270:44:32

-There are several things

-we're doing now.

0:44:320:44:34

-For example, imminently we are

-launching a Carers' Strategy.

0:44:350:44:39

-Carers are not just valued

-but are invaluable.

0:44:400:44:45

-If they were replaced with

-front line professional workers...

0:44:450:44:49

-..I think it would break the bank.

0:44:490:44:51

-I noticed in the video it mentioned

-the aspect of the fear...

0:44:510:44:55

-..of certain people over the impact

-on them of what will be...

0:44:560:44:59

-..their only asset going forward,

-which is normally their home.

0:44:590:45:03

-Of course, only this week we signed

-off the commitment in April...

0:45:030:45:08

-..to lift that limit to 40,000

-not 24,000.

0:45:080:45:11

-Thank you, Beti, for raising

-the prominence of this issue...

0:45:130:45:17

-..and reminding us of some

-of the practical impacts...

0:45:170:45:20

-..on people's lives

-that this brings.

0:45:200:45:22

-And of the urgency of dealing

-with this within government.

0:45:230:45:26

-Keep on making it uncomfortable

-for us.

0:45:260:45:28

-That's what will drive change.

0:45:290:45:30

-It's 100,000 in two years.

0:45:310:45:33

-He can afford it, as he says,

-but it's the principle.

0:45:330:45:36

-The Minister, Huw Irranca-Davies,

-was there. He was keen to listen.

0:45:370:45:44

-I think I got the message through.

0:45:470:45:50

-He told me to carry on battling.

0:45:510:45:56

-But there's so much work

-still to be done.

0:45:560:46:00

-Now, what I remember is him,

-the pleasure of caring for him...

0:46:050:46:11

-..and the smile.

0:46:120:46:14

-They say that the grief never goes.

0:46:140:46:18

-It never disappears.

0:46:190:46:21

-I think we spent some of our

-happiest moments together...

0:46:270:46:32

-..on this island.

0:46:330:46:35

-We were both under pressure

-in our chosen careers.

0:46:380:46:44

-I'd come home really tired.

0:46:480:46:53

-David as well, of course.

0:46:530:46:56

-But here, we were very close.

0:46:580:47:04

-Very often,

-we'd ask, "Do we have to go back?"

0:47:060:47:08

-Of course, we had to.

0:47:090:47:12

-The sunset here

-is the best you could see...

0:47:120:47:17

-..anywhere in the world.

0:47:170:47:19

-S4C Subtitles by Testun Cyf.

0:47:520:47:54

Download Subtitles

SRT

ASS