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Hello and welcome to a health-themed Lifeline here at Titanic Belfast, | 0:00:15 | 0:00:21 | |
where I'll be visiting a major conference for people affected by multiple sclerosis. | 0:00:21 | 0:00:27 | |
And we'll be getting a musical accompaniment from a choir | 0:00:27 | 0:00:30 | |
whose singers have all been touched by cancer. | 0:00:30 | 0:00:34 | |
# Sun and moon and stars of light | 0:00:34 | 0:00:38 | |
# Sun and moon and stars of light. # | 0:00:38 | 0:00:41 | |
But first, to the Premature Baby Unit at the Royal for our charity appeal from TinyLife. | 0:00:41 | 0:00:48 | |
Every year more than 2,000 babies are born prematurely in Northern Ireland. | 0:00:56 | 0:01:02 | |
These tiny babies may be small, but they've a huge fight on their hands. | 0:01:02 | 0:01:06 | |
We look after babies right down to 23-24 weeks gestation. | 0:01:08 | 0:01:11 | |
Those babies when they're born, they weigh about 500g. | 0:01:11 | 0:01:15 | |
That's basically half a bag of sugar. | 0:01:15 | 0:01:18 | |
Some of them during the course of their journey | 0:01:18 | 0:01:20 | |
can develop problems which will affect them in the longer term. | 0:01:20 | 0:01:24 | |
And, obviously, we try as much as possible to avoid that, | 0:01:24 | 0:01:27 | |
but clearly in some cases that's not possible. | 0:01:27 | 0:01:30 | |
The reasons for premature birth are sometimes unexplained, | 0:01:30 | 0:01:34 | |
but they're often due to medical conditions affecting the mother. | 0:01:34 | 0:01:39 | |
But the help and support doesn't stop when these infants are allowed to go home. | 0:01:39 | 0:01:43 | |
25 years on from its early origins, | 0:01:43 | 0:01:47 | |
TinyLife has developed a range of family services to meet the baby and parents' needs. | 0:01:47 | 0:01:53 | |
Apart from funding pioneering medical research, | 0:01:53 | 0:01:56 | |
TinyLife offers a hospital-to-home volunteer support programme. | 0:01:56 | 0:02:02 | |
The girls were born at 32 weeks. | 0:02:02 | 0:02:04 | |
And Poppy she weighed 3lb 12oz and Tilly weighed 4lb 3oz. | 0:02:04 | 0:02:10 | |
And for the first three weeks of their life | 0:02:10 | 0:02:13 | |
they were in the neo-natal unit in Craigavon Hospital. | 0:02:13 | 0:02:15 | |
TinyLife, they were fantastic, they were able to supply me with a breast pump. | 0:02:15 | 0:02:19 | |
The hospital was doing all the care for the babies | 0:02:19 | 0:02:23 | |
and I felt I couldn't do anything, but with the help of TinyLife and the breast pump | 0:02:23 | 0:02:27 | |
I could express milk and give them the milk that they needed. | 0:02:27 | 0:02:31 | |
The services are first class. They're there when you need them. | 0:02:31 | 0:02:34 | |
There's help which Kate has now | 0:02:34 | 0:02:37 | |
where she can get her wee bits and pieces done through the day. | 0:02:37 | 0:02:39 | |
I can't always be there, so they're there for you. | 0:02:39 | 0:02:43 | |
TinyLife were able to match the family with a TinyLife volunteer | 0:02:43 | 0:02:47 | |
who visits Catherine and William on a weekly basis, | 0:02:47 | 0:02:51 | |
offering practical and emotional support. | 0:02:51 | 0:02:54 | |
And there's help with therapeutic massage to allow the babies to relax and bond with Mum. | 0:02:54 | 0:03:00 | |
But there's a constant need for volunteers to help with TinyLife's work. | 0:03:02 | 0:03:06 | |
I would definitely recommend it 100%. | 0:03:06 | 0:03:08 | |
It's very, very rewarding. | 0:03:08 | 0:03:12 | |
You get a lot more out of it than what you give. | 0:03:12 | 0:03:14 | |
'To me it's just a few hours of my time every week | 0:03:14 | 0:03:18 | |
'and you get to meet new people. You definitely make a friend.' | 0:03:18 | 0:03:22 | |
He's having a great wee sleep there. | 0:03:22 | 0:03:24 | |
'Each year it costs a half a million pounds to deliver our services to families across Northern Ireland. | 0:03:24 | 0:03:30 | |
'We receive a little bit of money from Government sources, | 0:03:30 | 0:03:32 | |
'but primarily it's through the generosity of the public | 0:03:32 | 0:03:36 | |
'who get involved in many of our fundraising events.' | 0:03:36 | 0:03:39 | |
?10 could buy | 0:03:39 | 0:03:40 | |
a much needed breast pump kit. | 0:03:40 | 0:03:42 | |
?50 could support a volunteer to be | 0:03:42 | 0:03:45 | |
in a home for two hours each week. | 0:03:45 | 0:03:47 | |
And ?100 can deliver a parent-support group in a local community. | 0:03:47 | 0:03:52 | |
More fish! | 0:03:52 | 0:03:54 | |
This is TinyLife's new sensory room | 0:03:54 | 0:03:57 | |
where babies are introduced to therapies to help their development, | 0:03:57 | 0:04:01 | |
muscle tone, coordination, digestion and sleeping. | 0:04:01 | 0:04:05 | |
Nature's wonderful, she really does get it right most of the time. | 0:04:12 | 0:04:16 | |
Being born too early though is | 0:04:16 | 0:04:16 | |
Being born too early though is tragic, | 0:04:16 | 0:04:20 | |
because there are no other problems, | 0:04:20 | 0:04:21 | |
it's just the baby is born and yet it isn't equipped for survival outside the mother's womb. | 0:04:21 | 0:04:27 | |
But I'm glad to say with the help of the research of many people, | 0:04:27 | 0:04:30 | |
including those associated with Tiny Life over the last 25 years, | 0:04:30 | 0:04:34 | |
this isn't quite the problem that it was those decades ago. | 0:04:34 | 0:04:38 | |
TinyLife's services are offered free of charge to families | 0:04:40 | 0:04:43 | |
who've spent time in neo-natal care, | 0:04:43 | 0:04:46 | |
so the charity relies heavily on the public's support. | 0:04:46 | 0:04:50 | |
If you'd like to donate to TinyLife or volunteer for them, | 0:04:50 | 0:04:53 | |
you'd be making a huge contribution to a baby's future. | 0:04:53 | 0:04:57 | |
Thank you. | 0:04:57 | 0:04:59 | |
And if you'd like to make a donation to TinyLife | 0:04:59 | 0:05:02 | |
you can visit our website and click on the "Donate" button. | 0:05:02 | 0:05:05 | |
Or send a cheque or postal order | 0:05:05 | 0:05:08 | |
made out to TinyLife to: | 0:05:08 | 0:05:10 | |
And if you'd like to find out more information about volunteering for TinyLife, | 0:05:17 | 0:05:22 | |
you can e-mail them at: | 0:05:22 | 0:05:24 | |
Or call the family support team on: | 0:05:27 | 0:05:30 | |
Now here at Titanic Belfast, | 0:05:36 | 0:05:37 | |
I'm at one of the biggest lifestyle conferences for people living with MS. | 0:05:37 | 0:05:42 | |
And I'm joined now by the Chief Executive of the MS Society, Patricia Gordon. | 0:05:42 | 0:05:47 | |
Patricia, tell us a little bit about the disease. | 0:05:47 | 0:05:49 | |
Why is there a greater incidence of it here in Northern Ireland? | 0:05:49 | 0:05:52 | |
We don't really know the exact cause, | 0:05:52 | 0:05:55 | |
but we think it might be down to genetic and environmental factors. | 0:05:55 | 0:05:58 | |
We do know that the further you live away from the equator | 0:05:58 | 0:06:01 | |
the more likely you are to have MS. | 0:06:01 | 0:06:03 | |
And you're spending some ?20 million on research at the moment. | 0:06:03 | 0:06:08 | |
Are we any closer to a cure, do you think? | 0:06:08 | 0:06:11 | |
I think it's some time off before a cure will be available, | 0:06:11 | 0:06:14 | |
but what we're focusing on is increasing the range of treatments that are available for people. | 0:06:14 | 0:06:18 | |
If you have relapsing or remitting MS there are a number of treatments | 0:06:18 | 0:06:21 | |
and at the moment we're hopeful that there will be an additional four drugs available to people. | 0:06:21 | 0:06:26 | |
Thanks, Patricia, for your time today. | 0:06:26 | 0:06:29 | |
Now, I'm also joined by Catherine Doran, | 0:06:29 | 0:06:30 | |
a wonderful example of someone living with MS. | 0:06:30 | 0:06:34 | |
How does it impact on your life, Catherine, and the wider family? | 0:06:34 | 0:06:37 | |
We didn't let it stop us having a family for a start. | 0:06:37 | 0:06:39 | |
We've got two gorgeous daughters and I'm so glad I've done that. | 0:06:39 | 0:06:42 | |
But my family definitely do help out more than perhaps they would for someone of my age group. | 0:06:42 | 0:06:46 | |
My aunt and my mum both help out, | 0:06:46 | 0:06:48 | |
my husband does his fair share around the house, but that's no bad thing either. | 0:06:48 | 0:06:52 | |
And research is moving on at a pace. | 0:06:52 | 0:06:54 | |
Do you feel it's moving quickly enough? | 0:06:54 | 0:06:56 | |
Are you hopeful for new treatments or even a cure? | 0:06:56 | 0:06:59 | |
The research is fantastic. | 0:06:59 | 0:07:00 | |
In the four years I've been diagnosed it's moved so quickly. | 0:07:00 | 0:07:03 | |
I would like to think that in my lifetime there'll be a cure. | 0:07:03 | 0:07:06 | |
And I will always hope that's the case with research money there. | 0:07:06 | 0:07:09 | |
There's fantastic work being done. I do believe that will happen. | 0:07:09 | 0:07:13 | |
Thanks so much, Catherine, for joining us. | 0:07:13 | 0:07:15 | |
Now, from a very busy Titanic Quarter | 0:07:15 | 0:07:18 | |
let's take a look at our Community Noticeboard. | 0:07:18 | 0:07:21 | |
And it's devoted today to the Sing for Life Choir, | 0:07:21 | 0:07:24 | |
which is celebrating its first birthday. | 0:07:24 | 0:07:27 | |
Made up of people affected by cancer | 0:07:27 | 0:07:29 | |
the search is on for anyone who might like to join them. | 0:07:29 | 0:07:33 | |
# For the beauty of each hour | 0:07:39 | 0:07:46 | |
# Of the day and of the night | 0:07:46 | 0:07:52 | |
# Hill and vale and tree and flower Hill and vale and tree and flower | 0:07:52 | 0:07:59 | |
# Sun and moon and stars of light | 0:07:59 | 0:08:02 | |
# Sun and moon and stars of light | 0:08:02 | 0:08:05 | |
# Lord of all... # | 0:08:05 | 0:08:08 | |
Some of the people in the choir | 0:08:08 | 0:08:09 | |
are telling me it's improved their quality of life. | 0:08:09 | 0:08:12 | |
One gentleman said he was a recluse | 0:08:12 | 0:08:14 | |
and this has given him a whole new sense of living again. | 0:08:14 | 0:08:19 | |
It's very friendly and you don't have to talk about yourself | 0:08:19 | 0:08:22 | |
in detail if you don't want to, | 0:08:22 | 0:08:24 | |
but people are free to talk about themselves. | 0:08:24 | 0:08:27 | |
And it's just nice to be able to share if you want | 0:08:27 | 0:08:30 | |
or just be around people. | 0:08:30 | 0:08:31 | |
I have six-monthly scans | 0:08:31 | 0:08:33 | |
and when I get my six-monthly scan and find that it's all clear, | 0:08:33 | 0:08:36 | |
I tell people and everybody's really pleased for you. | 0:08:36 | 0:08:39 | |
It's a great sort of experience. It really is good. | 0:08:39 | 0:08:43 | |
To find out more about joining the choir contact: | 0:08:43 | 0:08:46 | |
Or e-mail: | 0:08:51 | 0:08:53 | |
# This our joyful hymn of praise. # | 0:08:57 | 0:09:04 | |
Wow! Inspirational stuff. | 0:09:04 | 0:09:06 | |
And you can, of course, hear more from the choir on our website. | 0:09:06 | 0:09:10 | |
But for now that's it. Thanks for watching. Take care. Bye-bye. | 0:09:10 | 0:09:13 |