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Over the years, I've spent some quite a lot of time in hospices. | 0:00:08 | 0:00:11 | |
Recently, visiting a very close family friend. | 0:00:11 | 0:00:14 | |
Although they're home to such deep sadness, | 0:00:14 | 0:00:16 | |
they also manage to inspire hope and happy memories | 0:00:16 | 0:00:20 | |
and that's why I want to show you the special work that hospices do. | 0:00:20 | 0:00:24 | |
UK hospices support around 200,000 adults and children | 0:00:28 | 0:00:32 | |
with terminal and life-limiting conditions, every year. | 0:00:32 | 0:00:35 | |
Aidan Moir died in 2012 when he was just ten. | 0:00:38 | 0:00:42 | |
You shouldn't have to bury a child. | 0:00:44 | 0:00:46 | |
It's just not the way it should be. | 0:00:46 | 0:00:47 | |
They should be burying their parents. | 0:00:47 | 0:00:49 | |
Nothing could ever prepare you for it. | 0:00:50 | 0:00:52 | |
Aidan was born with a rare neurological condition. | 0:00:53 | 0:00:57 | |
When he was five, his senses started to deteriorate, | 0:00:57 | 0:01:00 | |
along with his ability to walk and talk. | 0:01:00 | 0:01:03 | |
It's hard to imagine how difficult it is for people to cope | 0:01:05 | 0:01:09 | |
when their child has such a devastating illness. | 0:01:09 | 0:01:12 | |
But for families like Aidan's, children's hospices all over the UK | 0:01:12 | 0:01:16 | |
offer support, comfort and valuable respite. | 0:01:16 | 0:01:20 | |
Robin House Hospice, north of Glasgow. | 0:01:26 | 0:01:29 | |
Aidan's mum and dad brought him here for visits | 0:01:29 | 0:01:32 | |
with his brother and sister as his condition got worse. | 0:01:32 | 0:01:35 | |
Although Robin House cares for children | 0:01:37 | 0:01:39 | |
with life-limiting conditions, | 0:01:39 | 0:01:41 | |
it also gives family, like the Moirs, | 0:01:41 | 0:01:43 | |
a break from the demands of such a severe illness. | 0:01:43 | 0:01:46 | |
Family life, it was all about clock watching. | 0:01:50 | 0:01:53 | |
"Is it medicine time? Is it feed time?" | 0:01:53 | 0:01:56 | |
Whereas when we come down here, he had his own member of staff | 0:01:56 | 0:01:59 | |
so it meant we could go in the pool with him, read him a story... | 0:01:59 | 0:02:04 | |
just lie, lie beside him in the bed and watch a DVD. | 0:02:04 | 0:02:07 | |
Just... | 0:02:07 | 0:02:08 | |
the everyday that people take for granted with their kids. | 0:02:08 | 0:02:10 | |
And it was here that Aidan spent his final days. | 0:02:12 | 0:02:15 | |
The doctor here looked him over and thought, | 0:02:15 | 0:02:17 | |
this could maybe be Aidan's last. | 0:02:17 | 0:02:20 | |
So, he was settled for the Thursday night. | 0:02:21 | 0:02:24 | |
During the day on the Friday, didn't really... | 0:02:25 | 0:02:28 | |
When the end came, he was surrounded by his whole family. | 0:02:33 | 0:02:37 | |
-He just went in his sleep. -He went so peacefully, so quietly... | 0:02:37 | 0:02:41 | |
with dignity. | 0:02:41 | 0:02:42 | |
I think Robin House, for me, will always be a happy place, | 0:02:44 | 0:02:48 | |
even though Aidan passed away here. | 0:02:48 | 0:02:50 | |
For me, it was all about the memories that we made as a family. | 0:02:50 | 0:02:53 | |
-Yeah, good memories. -Yeah. | 0:02:53 | 0:02:55 | |
The good times, mm-hmm. | 0:02:55 | 0:02:56 | |
Robin House is one of a network of over 200 UK hospices | 0:03:02 | 0:03:06 | |
supported by a charity called Hospice UK. | 0:03:06 | 0:03:10 | |
Hospice UK works very hard to make sure they offer the best care. | 0:03:10 | 0:03:15 | |
Now that could mean pain relief or counselling. | 0:03:15 | 0:03:18 | |
But it's also so much more. | 0:03:18 | 0:03:20 | |
Hospice UK depends on all of us to make it happen. | 0:03:20 | 0:03:24 | |
Like many hospices, Robin House relies on the help of volunteers. | 0:03:27 | 0:03:31 | |
Whether they're in the garden, the kitchen, | 0:03:31 | 0:03:35 | |
or working directly with the children. | 0:03:35 | 0:03:36 | |
-Oh! -He liked that. -Is that one good? | 0:03:38 | 0:03:40 | |
-Feargus is nearly two and loves drumming. -Hi. | 0:03:43 | 0:03:47 | |
-Today, he's with Phil... -Here you go, Feargus. -You do it. | 0:03:47 | 0:03:49 | |
..who's been volunteering at Robin House for three years. | 0:03:49 | 0:03:53 | |
Feargus spent his first 14 months and hospital | 0:03:54 | 0:03:58 | |
for a complex life-limiting condition. | 0:03:58 | 0:04:01 | |
Big...bang! | 0:04:01 | 0:04:02 | |
-FEARGUS CHUCKLES -Again! | 0:04:02 | 0:04:04 | |
He was then referred to Robin House. | 0:04:04 | 0:04:06 | |
But it was a hard step for the family to take. | 0:04:06 | 0:04:09 | |
You never want to go to a children's hospice. | 0:04:11 | 0:04:15 | |
It's not something you want to do. | 0:04:20 | 0:04:22 | |
FEARGUS BABBLES IN BACKGROUND | 0:04:27 | 0:04:29 | |
It took us a while to get our head round everything. | 0:04:29 | 0:04:33 | |
Now it's a place to enjoy precious moments together. | 0:04:40 | 0:04:44 | |
Yay! | 0:04:44 | 0:04:46 | |
'And it's about living. It's not...' | 0:04:46 | 0:04:49 | |
It's not about end of life all the time. | 0:04:49 | 0:04:52 | |
It's about making the best of what you have and making memories, | 0:04:52 | 0:04:57 | |
because that's really all we are doing, is making memories. | 0:04:57 | 0:05:01 | |
That's... | 0:05:01 | 0:05:02 | |
Hospices across the UK are giving | 0:05:05 | 0:05:07 | |
support to people of all ages. | 0:05:07 | 0:05:10 | |
Here at London's Royal Trinity Hospice, | 0:05:10 | 0:05:13 | |
terminally ill adults can also choose from | 0:05:13 | 0:05:15 | |
a wide range of activities, thanks to volunteers giving up their time. | 0:05:15 | 0:05:19 | |
This is Monday club. It's for people with dementia. | 0:05:19 | 0:05:23 | |
They live at home but they use their local hospice for classes | 0:05:23 | 0:05:26 | |
which volunteers help to run. | 0:05:26 | 0:05:28 | |
THEY SING | 0:05:30 | 0:05:31 | |
Well, they needed a pianist. | 0:05:31 | 0:05:33 | |
Trinity has 450 volunteers who are given training to work | 0:05:36 | 0:05:40 | |
sensitively with people who are terminally ill. | 0:05:40 | 0:05:43 | |
They help the specialist staff make the patients' lives more enjoyable. | 0:05:43 | 0:05:47 | |
Now, this may surprise you, but much of the care they give | 0:05:50 | 0:05:53 | |
actually happens outside of the hospice building. | 0:05:53 | 0:05:57 | |
Hospice UK have championed the idea of training up volunteers | 0:05:57 | 0:06:00 | |
to support people with a terminal illness living at home. | 0:06:00 | 0:06:04 | |
It's a great idea and importantly, it frees up hospice nurses | 0:06:04 | 0:06:08 | |
so they can concentrate on clinical work. | 0:06:08 | 0:06:10 | |
28-year-old marketing consultant Eddie gives up several hours | 0:06:14 | 0:06:18 | |
a week to volunteer. | 0:06:18 | 0:06:19 | |
Trinity matched with Ken, who's 84 and has Parkinson's. | 0:06:21 | 0:06:26 | |
Ken lives with his wife, Kirstin, in south London. | 0:06:26 | 0:06:29 | |
Let me serve some cake. | 0:06:29 | 0:06:31 | |
Eddie's visits give Ken the confidence to get some exercise. | 0:06:31 | 0:06:36 | |
Mind if I use some fingers? | 0:06:36 | 0:06:38 | |
Eddie comes along once a week and we go out for a walk. | 0:06:38 | 0:06:42 | |
Here we go. I've got you. | 0:06:47 | 0:06:51 | |
And by the time we get back, I must say, I'm shattered. | 0:06:51 | 0:06:55 | |
You're doing great. | 0:06:56 | 0:06:58 | |
And it's getting more difficult. | 0:06:59 | 0:07:02 | |
But I'm determined to keep it going. | 0:07:02 | 0:07:04 | |
Because otherwise, I would be completely immobile. | 0:07:04 | 0:07:08 | |
You're doing great. | 0:07:09 | 0:07:11 | |
Trinity train volunteers like Eddie to keep an eye on patients' welfare. | 0:07:11 | 0:07:15 | |
After every visit, I report back. | 0:07:16 | 0:07:19 | |
Fortunately, I haven't had to say that there's anything | 0:07:19 | 0:07:21 | |
that I'm concerned about with Ken, because he's in pretty good shape, | 0:07:21 | 0:07:24 | |
pretty good nick. | 0:07:24 | 0:07:26 | |
I'm very lucky. And we hope it'll last for a long time. | 0:07:26 | 0:07:30 | |
Hospices rely on these volunteers and depend on the generosity | 0:07:36 | 0:07:40 | |
of people like you to fund much of the wonderful work they do. | 0:07:40 | 0:07:45 | |
But the truth is, Hospice UK would like to do a lot, lot more. | 0:07:45 | 0:07:49 | |
More specially trained volunteers in hospices and doing home visits | 0:07:49 | 0:07:53 | |
would make a big difference. | 0:07:53 | 0:07:55 | |
Together with the nurses, they can ensure that people don't face dying | 0:07:55 | 0:07:58 | |
without the support they really need. | 0:07:58 | 0:08:01 | |
So please donate and help Hospice UK give more adults and children | 0:08:01 | 0:08:05 | |
the chance to live their lives to the full. | 0:08:05 | 0:08:08 | |
To give by phone, call... | 0:08:10 | 0:08:11 | |
Calls are free from mobiles and landlines. | 0:08:14 | 0:08:18 | |
You can also donate £10 by texting... | 0:08:18 | 0:08:20 | |
Texts cost £10, plus your standard network message charge | 0:08:22 | 0:08:26 | |
and the whole £10 goes to Hospice UK. | 0:08:26 | 0:08:29 | |
For full terms and conditions, or to make a donation online, | 0:08:30 | 0:08:33 | |
visit the Lifeline website at... | 0:08:33 | 0:08:35 | |
Or if you would like to post a donation, | 0:08:39 | 0:08:41 | |
please make your cheque payable to "Hospice UK" | 0:08:41 | 0:08:44 | |
and send it to... | 0:08:44 | 0:08:45 | |
..writing "Hospice UK" | 0:08:47 | 0:08:49 | |
on the back of the envelope. | 0:08:49 | 0:08:51 | |
Thank you! | 0:08:52 | 0:08:53 |