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For any child with an illness, | 0:00:11 | 0:00:13 | |
staying in hospital can be a frightening experience. | 0:00:13 | 0:00:16 | |
It's a feeling I remember all too well. | 0:00:17 | 0:00:19 | |
When I was three years old I had an illness | 0:00:20 | 0:00:22 | |
which meant I had | 0:00:22 | 0:00:23 | |
to spend a lot of time at Sheffield Children's Hospital. | 0:00:23 | 0:00:27 | |
I was fortunate in that my family lived nearby | 0:00:27 | 0:00:29 | |
and were able to come in and look after me. | 0:00:29 | 0:00:31 | |
Unfortunately not all children are so lucky | 0:00:31 | 0:00:34 | |
to have their families nearby when they're seriously ill in hospital. | 0:00:34 | 0:00:38 | |
And as a parent I know how terrible it would be | 0:00:38 | 0:00:41 | |
to be unable to be in hospital with my child when they needed me most. | 0:00:41 | 0:00:45 | |
This is Elsie. | 0:00:46 | 0:00:48 | |
Just after her second birthday she was rushed into hospital | 0:00:48 | 0:00:51 | |
when her health suddenly deteriorated. | 0:00:51 | 0:00:53 | |
Doctors soon confirmed her family's worst fears. | 0:00:53 | 0:00:56 | |
She was diagnosed with a rare form of leukaemia. | 0:00:57 | 0:01:00 | |
My husband and I | 0:01:00 | 0:01:02 | |
just broke down into tears, | 0:01:02 | 0:01:04 | |
which was the beginning of a lot of tears. | 0:01:04 | 0:01:07 | |
I was completely terrified for my daughter. | 0:01:08 | 0:01:11 | |
We immediately said, "Is she going to die?" | 0:01:11 | 0:01:16 | |
And the doctors won't say no to that question, | 0:01:16 | 0:01:19 | |
but we had to try and be calm | 0:01:19 | 0:01:21 | |
because we had a very young child, and she was frightened. | 0:01:21 | 0:01:25 | |
Elsie's best chance of survival | 0:01:26 | 0:01:29 | |
meant she needed to be rushed to a specialist unit | 0:01:29 | 0:01:31 | |
70 miles away at Addenbrooke's Hospital in Cambridge. | 0:01:31 | 0:01:36 | |
The treatment would involve four or five rounds | 0:01:36 | 0:01:39 | |
of very hard-hitting chemotherapy. | 0:01:39 | 0:01:41 | |
Which would mean pretty much continuous hospitalisation | 0:01:41 | 0:01:46 | |
for a period of six months. | 0:01:46 | 0:01:49 | |
She was in an absolutely terrible state. | 0:01:49 | 0:01:52 | |
There was so many nights where I thought | 0:01:52 | 0:01:56 | |
she's not going to make it through tonight, she's too weak. | 0:01:56 | 0:01:59 | |
Not only did the family have to come to terms with Elsie's illness, | 0:02:00 | 0:02:04 | |
but how they would cope practically and financially | 0:02:04 | 0:02:07 | |
to be constantly by their daughter's side, | 0:02:07 | 0:02:09 | |
miles away from home. | 0:02:09 | 0:02:12 | |
We felt absolutely that as parents we had to be there, | 0:02:12 | 0:02:15 | |
by her bedside. | 0:02:15 | 0:02:17 | |
'Are you listening to Teddy's chest?' | 0:02:17 | 0:02:19 | |
And to complicate things | 0:02:19 | 0:02:21 | |
I was nearly eight months pregnant at the time, | 0:02:21 | 0:02:24 | |
and we had a business, | 0:02:24 | 0:02:26 | |
so we had to think about how we could pay our bills. | 0:02:26 | 0:02:29 | |
It just seemed totally insurmountable, | 0:02:30 | 0:02:33 | |
just didn't know what to do. | 0:02:33 | 0:02:35 | |
For many children with a serious illness, the best possible care | 0:02:36 | 0:02:39 | |
is in specialist centres around the country. | 0:02:39 | 0:02:42 | |
And this may involve travelling to hospitals | 0:02:42 | 0:02:44 | |
that are a long way from home | 0:02:44 | 0:02:45 | |
adding an extra burden | 0:02:45 | 0:02:47 | |
to what is already an extremely distressing time. | 0:02:47 | 0:02:50 | |
This is where The Sick Children's Trust helps. | 0:02:50 | 0:02:52 | |
They are a charity working to keep families together | 0:02:52 | 0:02:55 | |
by providing free home-from-home accommodation. | 0:02:55 | 0:02:59 | |
Last year eight-year-old Enna was diagnosed with a brain tumour. | 0:03:02 | 0:03:07 | |
Me and my husband | 0:03:07 | 0:03:09 | |
were just crying and cuddling her, | 0:03:09 | 0:03:13 | |
and you are scared, you're numb, and you can't stop crying | 0:03:13 | 0:03:16 | |
because you think, "How long have I got left with her?" | 0:03:16 | 0:03:18 | |
We thought she was going to die. | 0:03:18 | 0:03:22 | |
I'm sorry. | 0:03:22 | 0:03:23 | |
Just two days later Enna underwent surgery to remove the tumour. | 0:03:24 | 0:03:29 | |
But this was just the start of the family's ordeal. | 0:03:29 | 0:03:32 | |
It would be a 16-month process, | 0:03:32 | 0:03:35 | |
and Enna would have to have radiotherapy and chemotherapy. | 0:03:35 | 0:03:39 | |
It's horrendous to see your child be strapped into | 0:03:39 | 0:03:43 | |
a plastic mask that is completely immovable. | 0:03:43 | 0:03:46 | |
It is not nice. | 0:03:46 | 0:03:48 | |
And Enna wanted Mum and Dad there with her, | 0:03:48 | 0:03:50 | |
she wanted us both to be very close. | 0:03:50 | 0:03:53 | |
As an out-patient Enna would initially have to travel | 0:03:54 | 0:03:56 | |
for miles every day from home to undergo treatment. | 0:03:56 | 0:04:00 | |
In between her being sick and throwing up, | 0:04:02 | 0:04:04 | |
travelling up and down in a car | 0:04:04 | 0:04:06 | |
would not have made her feel any better at all. | 0:04:06 | 0:04:09 | |
So of course practicalities start jumping in and you are thinking, | 0:04:09 | 0:04:13 | |
"Where are we going to stay? What are we going to do? | 0:04:13 | 0:04:16 | |
"How much would it cost us as a family?" | 0:04:16 | 0:04:17 | |
They faced the prospect of not being able | 0:04:19 | 0:04:21 | |
to stay together as a family to support their daughter | 0:04:21 | 0:04:24 | |
when she needed them. | 0:04:24 | 0:04:26 | |
But fortunately there was a charity close at hand to help. | 0:04:26 | 0:04:30 | |
The Sick Children's Trust | 0:04:32 | 0:04:33 | |
have eight houses like this one across the UK | 0:04:33 | 0:04:37 | |
that can accommodate up to 116 families a night, | 0:04:37 | 0:04:40 | |
every day of the year. | 0:04:40 | 0:04:41 | |
They provide a warm, comfortable and relaxing environment | 0:04:41 | 0:04:44 | |
for families who need to be near their child every step of the way. | 0:04:44 | 0:04:48 | |
Joy is the house manager at Acorn House, | 0:04:50 | 0:04:53 | |
just one of The Sick Children's Trust's | 0:04:53 | 0:04:55 | |
homes from home at Addenbrooke's Hospital. | 0:04:55 | 0:04:58 | |
Acorn House is a sanctuary for families, | 0:04:58 | 0:05:00 | |
because it gives them their private room | 0:05:00 | 0:05:02 | |
where they can gather their thoughts, | 0:05:02 | 0:05:04 | |
there is a lovely lounge, | 0:05:04 | 0:05:06 | |
playroom, | 0:05:06 | 0:05:08 | |
huge big kitchen-cum-dining room. | 0:05:08 | 0:05:10 | |
It gives them | 0:05:11 | 0:05:12 | |
reassurance they are minutes away from their sick child | 0:05:12 | 0:05:15 | |
when they're going through such a traumatic time. | 0:05:15 | 0:05:18 | |
As well as providing practical assistance | 0:05:19 | 0:05:21 | |
Jo and her team are on hand to provide emotional support. | 0:05:21 | 0:05:25 | |
Whether they want to cry, share their experience with us, | 0:05:25 | 0:05:28 | |
or just sit and relax and have a cup of coffee, | 0:05:28 | 0:05:30 | |
we are here whatever they need. | 0:05:30 | 0:05:33 | |
They can talk to other families that are in the same situation, | 0:05:33 | 0:05:35 | |
and that is reassuring for them, because they realise | 0:05:35 | 0:05:39 | |
they are not the only ones going through this. | 0:05:39 | 0:05:42 | |
Over the last 30 years | 0:05:42 | 0:05:44 | |
The Sick Children's Trust has helped over 40,000 families | 0:05:44 | 0:05:47 | |
offering support and stability | 0:05:47 | 0:05:49 | |
and enabling them to stay together | 0:05:49 | 0:05:51 | |
at exactly the time they need each other the most. | 0:05:51 | 0:05:55 | |
The Sick Children's Trust enabled Charlotte and her family | 0:05:55 | 0:05:59 | |
to stay by Elsie's side for the entire time | 0:05:59 | 0:06:01 | |
she was being treated at Addenbrooke's Hospital. | 0:06:01 | 0:06:03 | |
I can see you. | 0:06:03 | 0:06:06 | |
Without the Sick Children's Trust | 0:06:06 | 0:06:08 | |
I just don't know how we could have survived that period. | 0:06:08 | 0:06:12 | |
Emotionally, financially, practically. | 0:06:12 | 0:06:15 | |
Let me see some pictures. | 0:06:15 | 0:06:17 | |
And during their stay | 0:06:19 | 0:06:21 | |
Acorn House became the first home for their new baby. | 0:06:21 | 0:06:23 | |
They call it a home from home, and it really is. | 0:06:25 | 0:06:29 | |
It was about being right there, all together, as a family. | 0:06:29 | 0:06:34 | |
And that's what The Sick Children's Trust enabled us to do. | 0:06:34 | 0:06:37 | |
And that's how we got through. | 0:06:37 | 0:06:39 | |
After nine months of treatment | 0:06:41 | 0:06:42 | |
Elsie has now made a remarkable recovery. | 0:06:42 | 0:06:45 | |
She's just learnt to swim. | 0:06:47 | 0:06:49 | |
She just did all the races at sports day. | 0:06:51 | 0:06:55 | |
She's a really amazing little girl. | 0:06:55 | 0:06:58 | |
For 16 months every time Enna needed treatment | 0:07:02 | 0:07:04 | |
The Sick Children's Trust was there for her and her family. | 0:07:04 | 0:07:09 | |
They just said, "There's a room, it's fine, come and stay with us," | 0:07:09 | 0:07:16 | |
and it makes the whole thing a little bit more bearable. | 0:07:16 | 0:07:18 | |
And they sort of go through the journey with you. | 0:07:18 | 0:07:21 | |
They're just amazing people. | 0:07:21 | 0:07:22 | |
Just last month Enna finished her final treatment of chemotherapy, | 0:07:25 | 0:07:29 | |
and is now well on the way to recovery. | 0:07:29 | 0:07:31 | |
We're just looking forward to getting on with our lives, | 0:07:31 | 0:07:34 | |
and we just so grateful that she's going to be OK, | 0:07:34 | 0:07:37 | |
we can't explain really how grateful we are | 0:07:37 | 0:07:39 | |
to everybody who has helped us along the way. | 0:07:39 | 0:07:41 | |
The Sick Children's Trust helps over 3,000 families a year, | 0:07:44 | 0:07:47 | |
but with their waiting list growing every day | 0:07:47 | 0:07:49 | |
the charity desperately needs to open more houses | 0:07:49 | 0:07:52 | |
to help families stay together, | 0:07:52 | 0:07:54 | |
and this is where you can make a real difference. | 0:07:54 | 0:07:57 | |
Please go to the website bbc.co.uk/lifeline | 0:07:57 | 0:08:02 | |
where you can make a donation. | 0:08:02 | 0:08:04 | |
If you don't have access to the internet than call 0800 011 011. | 0:08:04 | 0:08:09 | |
And if you can't get through, please keep trying. | 0:08:09 | 0:08:12 | |
You can also donate £10 by texting GIVE to 70121. | 0:08:12 | 0:08:19 | |
Texts costs £10 plus your standard network message charge | 0:08:19 | 0:08:23 | |
and the whole £10 goes to The Sick Children's Trust. | 0:08:23 | 0:08:27 | |
Full terms and conditions can be found at bbc.co.uk/lifeline. | 0:08:27 | 0:08:32 | |
Telephone calls are free from most land lines, | 0:08:32 | 0:08:35 | |
some networks and mobile operators will charge for these calls. | 0:08:35 | 0:08:39 | |
Or if you'd like to post a donation | 0:08:39 | 0:08:41 | |
please make your cheque payable to The Sick Children's Trust | 0:08:41 | 0:08:43 | |
and send it to Freepost, BBC Lifeline Appeal, | 0:08:43 | 0:08:48 | |
writing The Sick Children's Trust on the back of the envelope. | 0:08:48 | 0:08:50 | |
Remember, if you are a UK taxpayer | 0:08:50 | 0:08:52 | |
the charity can collect Gift Aid on your donation worth another 25%. | 0:08:52 | 0:08:57 | |
Just send in a note | 0:08:57 | 0:08:58 | |
to say you want your donation to be subject Gift Aid | 0:08:58 | 0:09:01 | |
and include the date, your full name and address. | 0:09:01 | 0:09:04 | |
Thank you very much. | 0:09:04 | 0:09:06 | |
Subtitles by Red Bee Media Ltd | 0:09:09 | 0:09:11 |