Tina Evans Taith Fawr y Dyn Bach
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Transcript
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-* | 0:00:00 | 0:00:00 | |
-I'm James Lusted. | 0:00:02 | 0:00:04 | |
-I'm 26 and I have Diastrophic -Dysplasia, a rare form of dwarfism. | 0:00:04 | 0:00:09 | |
-I live at home with my parents -and brother Phil. | 0:00:09 | 0:00:13 | |
-Phil has the same condition as me. | 0:00:13 | 0:00:15 | |
-I don't allow my disability -to hold me back. | 0:00:15 | 0:00:19 | |
-In fact, I hate the word disabled. | 0:00:19 | 0:00:21 | |
-In this series, I'll travel Wales -to meet other disabled people... | 0:00:21 | 0:00:26 | |
-..to experience life -through their eyes. | 0:00:27 | 0:00:30 | |
-I'm in Cardiff today. | 0:00:45 | 0:00:47 | |
-I travelled down from Colwyn Bay. | 0:00:47 | 0:00:49 | |
-It took about four hours. | 0:00:49 | 0:00:51 | |
-I don't mind. I like driving. | 0:00:52 | 0:00:54 | |
-We've come to meet Tina, -who has the condition Ataxia. | 0:00:55 | 0:00:59 | |
-It's a rare condition. | 0:01:00 | 0:01:02 | |
-Tina works for Disability Wales. | 0:01:02 | 0:01:04 | |
-We're visiting her today -at work in Caerphilly. | 0:01:05 | 0:01:09 | |
-We'll have a chat about her work, -her role with Disability Wales... | 0:01:11 | 0:01:16 | |
-..and about her life too. | 0:01:17 | 0:01:19 | |
-Disability Wales was established as -an independent organization in 1972. | 0:01:35 | 0:01:40 | |
-It has a unique role in Wales. | 0:01:40 | 0:01:42 | |
-It promotes rights, equality and -independence for disabled people. | 0:01:42 | 0:01:48 | |
-Tina enjoys working here. | 0:01:48 | 0:01:50 | |
-Coming to work -in an office is different. | 0:01:50 | 0:01:53 | |
-When you work at home... | 0:01:53 | 0:01:56 | |
-..you just do the work. | 0:01:56 | 0:01:58 | |
-There's no-one there -to have some banter and fun. | 0:01:59 | 0:02:03 | |
-Everyone works hard. | 0:02:03 | 0:02:06 | |
-But you get breaks for a cup -of tea, a chat and some fun. | 0:02:07 | 0:02:13 | |
-Hello, Tina. | 0:02:26 | 0:02:27 | |
-Hello, Tina. - -Hi! | 0:02:27 | 0:02:28 | |
-How are you? I'm James. | 0:02:28 | 0:02:28 | |
-How are you? I'm James. - -It's nice to meet you. | 0:02:28 | 0:02:30 | |
-And you. How are you? | 0:02:30 | 0:02:31 | |
-And you. How are you? - -Fine. | 0:02:31 | 0:02:32 | |
-Are you busy today? | 0:02:32 | 0:02:34 | |
-Yes, like every day. | 0:02:34 | 0:02:36 | |
-Good. | 0:02:36 | 0:02:37 | |
-So you work here every day. | 0:02:38 | 0:02:40 | |
-Yes. Would you like a look round? | 0:02:40 | 0:02:42 | |
-Yes, great. | 0:02:42 | 0:02:44 | |
-Tina works on a project... | 0:02:45 | 0:02:46 | |
-..to raise -Disability Wales's profile online... | 0:02:47 | 0:02:50 | |
-..and show disabled people -the advantages of the Internet. | 0:02:51 | 0:02:55 | |
-How long have you worked here? | 0:02:56 | 0:02:58 | |
-I've been here -about a year and a half. | 0:02:58 | 0:03:01 | |
-Do you enjoy it? | 0:03:02 | 0:03:03 | |
-I do. | 0:03:03 | 0:03:04 | |
-My role involves a lot of work. | 0:03:06 | 0:03:08 | |
-I do something different every day. | 0:03:08 | 0:03:12 | |
-It keeps me going. | 0:03:12 | 0:03:14 | |
-Tina's project hopes to ensure... | 0:03:15 | 0:03:17 | |
-..that disabled people are included -in digital developments. | 0:03:17 | 0:03:22 | |
-This will be vital -when the benefits system changes. | 0:03:23 | 0:03:26 | |
-When Universal Credit begins, -everyone will have to claim online. | 0:03:27 | 0:03:32 | |
-With Universal Credit coming -over the next few years... | 0:03:32 | 0:03:36 | |
-..disabled people -will need to be digital. | 0:03:36 | 0:03:39 | |
-It's frightening for people. A lot -of disabled people can't afford it. | 0:03:39 | 0:03:44 | |
-We run the project with the Welsh -Government and Communities 2.0. | 0:03:45 | 0:03:50 | |
-We're able to talk to disabled -people and to their groups... | 0:03:50 | 0:03:54 | |
-..and get them online -and using the Internet. | 0:03:55 | 0:03:58 | |
-According to a survey, 40% -of disabled people aren't online. | 0:03:58 | 0:04:03 | |
-That's why it's important -for this project to happen. | 0:04:04 | 0:04:09 | |
-As a disabled person myself... | 0:04:09 | 0:04:12 | |
-..I know the obstacles -that people have to face. | 0:04:13 | 0:04:18 | |
-I'm glad to work here -as part of the organization... | 0:04:20 | 0:04:25 | |
-..and fight to try -to break the barriers. | 0:04:25 | 0:04:30 | |
-After finishing work... | 0:04:31 | 0:04:33 | |
-..Tina has invited me -to her flat in the Bay for a chat. | 0:04:33 | 0:04:37 | |
-It's a lovely flat. -How long have you lived here? | 0:04:39 | 0:04:43 | |
-I moved here -about three and half years ago. | 0:04:43 | 0:04:47 | |
-Does someone come in -to help you occasionally? | 0:04:47 | 0:04:51 | |
-A carer comes on Tuesday -and Wednesday evenings... | 0:04:51 | 0:04:56 | |
-..to help me go to the gym. | 0:04:56 | 0:04:58 | |
-When I'm in the gym, -she can help the trainer... | 0:04:59 | 0:05:03 | |
-..with things like -getting me on the equipment. | 0:05:03 | 0:05:07 | |
-I also have someone who helps -a few mornings and nights. | 0:05:08 | 0:05:13 | |
-For example, if it rains... | 0:05:14 | 0:05:16 | |
-..they help me -get in the car faster. | 0:05:16 | 0:05:19 | |
-As well as the gym, -Tina is very fond of music. | 0:05:20 | 0:05:24 | |
-She often goes to concerts. | 0:05:25 | 0:05:28 | |
-Tell me about going to gigs -and festivals with the chair. | 0:05:28 | 0:05:32 | |
-Have you had good experiences -or difficulties sometimes? | 0:05:33 | 0:05:37 | |
-Not so far. | 0:05:37 | 0:05:38 | |
-I think because I'm so laid-back... | 0:05:38 | 0:05:41 | |
-..my experiences have been alright. | 0:05:42 | 0:05:45 | |
-If there are steps somewhere... | 0:05:47 | 0:05:50 | |
-..people will often -just carry me in. | 0:05:50 | 0:05:53 | |
-It's probably -not the right thing to do. | 0:05:54 | 0:05:58 | |
-There should be access... | 0:05:58 | 0:06:01 | |
-..for able-bodied -and disabled people to go anywhere. | 0:06:01 | 0:06:06 | |
-But if I want to get into a gig... | 0:06:07 | 0:06:09 | |
-..if I really want -to see someone singing live... | 0:06:10 | 0:06:15 | |
-..if someone even throws me in, -I'm happy. | 0:06:15 | 0:06:19 | |
-I'll go in to see them -any way I can. | 0:06:19 | 0:06:23 | |
-Tina hasn't always -had to use a wheelchair. | 0:06:24 | 0:06:27 | |
-I got the diagnosis when I was 16. | 0:06:28 | 0:06:30 | |
-Before that, -I was able to walk and run. | 0:06:31 | 0:06:34 | |
-When I walked round school -during break with my friends... | 0:06:37 | 0:06:43 | |
-..I noticed -that I was bumping into them. | 0:06:44 | 0:06:49 | |
-When I was 16, I laughed about it. | 0:06:51 | 0:06:54 | |
-My friends said, "Walk straight!" | 0:06:55 | 0:06:57 | |
-I'd laugh, not really -understanding what was wrong. | 0:06:57 | 0:07:01 | |
-When I closed my eyes -for prayers in assembly... | 0:07:02 | 0:07:07 | |
-..I lost my balance. | 0:07:08 | 0:07:10 | |
-I went to the doctor's for tests. | 0:07:11 | 0:07:14 | |
-Six months later, I found out -that I had Friedreich's Ataxia. | 0:07:16 | 0:07:22 | |
-After university... | 0:07:24 | 0:07:26 | |
-..I decided it would be better -to give in and use the chair. | 0:07:26 | 0:07:31 | |
-I realized it hadn't actually -made me a disabled person. | 0:07:32 | 0:07:38 | |
-It gave me more freedom. | 0:07:40 | 0:07:42 | |
-I'd reached the point... | 0:07:43 | 0:07:45 | |
-..that I didn't enjoy shopping -or going out for a drink... | 0:07:45 | 0:07:50 | |
-..because I lost my balance so much. | 0:07:52 | 0:07:54 | |
-I had pains in my knee. | 0:07:54 | 0:07:57 | |
-Once I gave in to the wheelchair... | 0:07:58 | 0:08:00 | |
-..I was free to do anything. | 0:08:00 | 0:08:03 | |
-What exactly is Friedreich's Ataxia? | 0:08:04 | 0:08:06 | |
-It's a neurological condition. | 0:08:07 | 0:08:09 | |
-It affects the nervous system. | 0:08:09 | 0:08:12 | |
-If you think about it, the nervous -system goes throughout the body. | 0:08:12 | 0:08:17 | |
-So it affects the legs, balance... | 0:08:17 | 0:08:19 | |
-..co-ordination. | 0:08:19 | 0:08:21 | |
-If you offered me a Polo now... | 0:08:22 | 0:08:25 | |
-..it would take me some time -to pick it up... | 0:08:26 | 0:08:29 | |
-..because my co-ordination -is affected. | 0:08:29 | 0:08:32 | |
-It can affect hearing, -sight and speech. | 0:08:34 | 0:08:39 | |
-I'm conscious of my speech. | 0:08:40 | 0:08:42 | |
-But I've been -to several conferences... | 0:08:42 | 0:08:46 | |
-..and met many people -with the same condition. | 0:08:46 | 0:08:49 | |
-I know my speech -is much better than many others. | 0:08:49 | 0:08:54 | |
-That keeps me positive. | 0:08:55 | 0:08:57 | |
-Since working for Disability Wales, -Tina has adopted their thinking. | 0:08:58 | 0:09:03 | |
-She feels that her surroundings, -not condition, make her disabled. | 0:09:03 | 0:09:08 | |
-A person is disabled -because of society and attitudes... | 0:09:09 | 0:09:14 | |
-..and difficulties such as access. | 0:09:14 | 0:09:18 | |
-That makes me think... | 0:09:19 | 0:09:22 | |
-..yes, keep on living. | 0:09:22 | 0:09:25 | |
-The problem isn't the fact -that I have Ataxia. | 0:09:26 | 0:09:30 | |
-The problem -is that society is as it is. | 0:09:31 | 0:09:34 | |
-If I had access to every shop, -pub or whatever... | 0:09:35 | 0:09:40 | |
-..being in a wheelchair -wouldn't be a problem. | 0:09:44 | 0:09:49 | |
-Tina and her friends are going -to a rowing centre in Llandysul... | 0:09:53 | 0:09:58 | |
-..to practise their kayaking skills. | 0:09:58 | 0:10:01 | |
-You're strangling me! | 0:10:02 | 0:10:03 | |
-You're strangling me! - -Sorry! | 0:10:03 | 0:10:04 | |
-A year ago, Sarah and I -decided to buy a kayak. | 0:10:06 | 0:10:11 | |
-We've got a double seat on it. | 0:10:12 | 0:10:14 | |
-In three months, we're doing -a challenge to raise money. | 0:10:16 | 0:10:21 | |
-We have to paddle for 30 miles. | 0:10:23 | 0:10:25 | |
-I can't get her feet in! | 0:10:26 | 0:10:28 | |
-We're in! | 0:10:31 | 0:10:32 | |
-We're raising money for Ataxia. | 0:10:32 | 0:10:35 | |
-OK? | 0:10:42 | 0:10:43 | |
-Since I've had the condition... | 0:10:45 | 0:10:48 | |
-..I think I'm more sporty... | 0:10:48 | 0:10:50 | |
-..probably to fight it. | 0:10:51 | 0:10:53 | |
-Ooh! | 0:10:54 | 0:10:55 | |
-Whoa! | 0:10:55 | 0:10:56 | |
-I've always liked -doing outdoorsy things. | 0:10:57 | 0:11:01 | |
-My friends enjoy it too. | 0:11:01 | 0:11:04 | |
-When I see them doing that kind -of thing, I want to join in too. | 0:11:04 | 0:11:09 | |
-I think that's why -we decided on the kayak. | 0:11:12 | 0:11:15 | |
-It's something I can do. | 0:11:15 | 0:11:18 | |
-I don't have to use my legs. | 0:11:18 | 0:11:21 | |
-. | 0:11:27 | 0:11:27 | |
-Subtitles | 0:11:31 | 0:11:31 | |
-Subtitles - -Subtitles | 0:11:31 | 0:11:33 | |
-At Crundale Hall, Pembrokeshire... | 0:11:33 | 0:11:35 | |
-..Tina is going to speak -at a conference for disabled people. | 0:11:36 | 0:11:40 | |
-I've come to support her. | 0:11:40 | 0:11:42 | |
-I've come to talk about the project -I'm running with Disability Wales. | 0:11:43 | 0:11:49 | |
-I'm trying to get -more disabled people... | 0:11:51 | 0:11:54 | |
-..to want to go online -and use a computer. | 0:11:54 | 0:11:58 | |
-We have this event today. | 0:12:01 | 0:12:03 | |
-I thought it was -a perfect opportunity... | 0:12:03 | 0:12:07 | |
-..for me to talk to everyone... | 0:12:08 | 0:12:10 | |
-..and try to get them all on board. | 0:12:10 | 0:12:13 | |
-Sometimes, I get -a little nervous beforehand. | 0:12:13 | 0:12:17 | |
-But once I'm in front of everyone, -I just open my mouth... | 0:12:17 | 0:12:21 | |
-..and it all comes out. | 0:12:21 | 0:12:23 | |
-I like to go out -and meet different people. | 0:12:23 | 0:12:28 | |
-It makes the work more interesting. | 0:12:28 | 0:12:31 | |
-Technology is changing -and evolving so quickly. | 0:12:31 | 0:12:36 | |
-We're all forced -to keep up with it... | 0:12:36 | 0:12:39 | |
-..especially now with Universal -Credit they're rolling out soon. | 0:12:39 | 0:12:44 | |
-We're all going -to be phased to claim online. | 0:12:45 | 0:12:48 | |
-So it's important -that we all work together... | 0:12:49 | 0:12:53 | |
-..and try to get online -before this is rolled out. | 0:12:53 | 0:12:57 | |
-After working hard all week... | 0:13:02 | 0:13:04 | |
-..a favourite weekend activity -for Tina... | 0:13:05 | 0:13:08 | |
-..is watching the rugby -at Parc Y Scarlets with her father. | 0:13:09 | 0:13:13 | |
-Dad and I have season tickets. | 0:13:17 | 0:13:19 | |
-We've had them for about ten years. | 0:13:20 | 0:13:23 | |
-After I finished college, -Dad asked... | 0:13:24 | 0:13:27 | |
-.."Do you want to go -to a match this weekend?" | 0:13:27 | 0:13:30 | |
-So we bought them. | 0:13:31 | 0:13:33 | |
-There's a match -almost every fortnight. | 0:13:33 | 0:13:37 | |
-It's something to do -on weekends with Dad. | 0:13:38 | 0:13:41 | |
-Mam sometimes comes too. | 0:13:43 | 0:13:45 | |
-I went to my first match -when I was 13. | 0:13:46 | 0:13:49 | |
-I've been hooked ever since. | 0:13:50 | 0:13:52 | |
-Hello! Are you alright? | 0:13:53 | 0:13:55 | |
-Hello. | 0:13:55 | 0:13:56 | |
-You haven't been for a while. | 0:13:56 | 0:13:59 | |
-We usually turn up -when they kick off. | 0:13:59 | 0:14:02 | |
-But as you see... | 0:14:04 | 0:14:05 | |
-..we're actually on time today. | 0:14:06 | 0:14:08 | |
-It's a change for us. | 0:14:08 | 0:14:10 | |
-It's great here, with room -for disabled people to sit. | 0:14:12 | 0:14:16 | |
-The view is better -than anywhere in the stadium. | 0:14:17 | 0:14:21 | |
-So I'm happy. | 0:14:21 | 0:14:22 | |
-While they enjoy the game, -I meet Tina's mother... | 0:14:23 | 0:14:27 | |
-..to find out how the family -dealt with the news... | 0:14:27 | 0:14:30 | |
-..that Tina has a condition -that will shorten her life. | 0:14:31 | 0:14:34 | |
-Hello. How are you? | 0:14:35 | 0:14:36 | |
-Hello. How are you? - -Come in. | 0:14:36 | 0:14:37 | |
-Thanks. Nice to meet you. | 0:14:37 | 0:14:38 | |
-Thanks. Nice to meet you. - -And you too. | 0:14:38 | 0:14:39 | |
-She started to get rather shaky -and clumsy when she walked. | 0:14:41 | 0:14:47 | |
-She was sent for a CT brain scan. | 0:14:48 | 0:14:50 | |
-That came back fine. | 0:14:52 | 0:14:54 | |
-There was nothing wrong there. | 0:14:54 | 0:14:56 | |
-Then she was sent to a specialist. | 0:14:57 | 0:15:00 | |
-He told her to walk in front of him. | 0:15:03 | 0:15:05 | |
-He said that he thought -he knew what was wrong. | 0:15:05 | 0:15:09 | |
-"I can tell you what I think it is -and there's no cure." | 0:15:09 | 0:15:13 | |
-I didn't know what to say. | 0:15:14 | 0:15:16 | |
-It was a shock to hear that, -with Tina looking at me. | 0:15:17 | 0:15:21 | |
-I couldn't ask him anything. | 0:15:22 | 0:15:25 | |
-He said Friedreich's Ataxia. | 0:15:27 | 0:15:30 | |
-I'd never heard of it. | 0:15:30 | 0:15:32 | |
-We read about it. | 0:15:33 | 0:15:36 | |
-Things didn't look good. | 0:15:37 | 0:15:39 | |
-We just hoped it wasn't that. | 0:15:41 | 0:15:43 | |
-How did Tina cope -with the diagnosis? | 0:15:44 | 0:15:47 | |
-I remember telling her. | 0:15:49 | 0:15:51 | |
-She broke down and cried. | 0:15:51 | 0:15:53 | |
-We were all very upset. | 0:15:55 | 0:15:57 | |
-But she has coped very well. | 0:15:59 | 0:16:01 | |
-She carried on. | 0:16:02 | 0:16:05 | |
-I don't think she looked it up. | 0:16:05 | 0:16:07 | |
-She didn't want -to talk about it much. | 0:16:07 | 0:16:11 | |
-She just wanted to keep going. | 0:16:11 | 0:16:14 | |
-We said, "Carry on with your life." | 0:16:15 | 0:16:17 | |
-We couldn't say that everything -would be fine... | 0:16:17 | 0:16:20 | |
-..because we weren't sure. | 0:16:21 | 0:16:22 | |
-But she has coped very well. | 0:16:23 | 0:16:24 | |
-She has difficult days, -as we all do. | 0:16:26 | 0:16:29 | |
-But she has every right -to feel low at times, as we all do. | 0:16:29 | 0:16:34 | |
-Do you worry about her? | 0:16:35 | 0:16:38 | |
-Yes, we worry about her -all the time. | 0:16:38 | 0:16:41 | |
-Everyone worries -about their children. | 0:16:41 | 0:16:44 | |
-We do worry. | 0:16:45 | 0:16:46 | |
-She's on my mind first thing in -the morning and last thing at night. | 0:16:46 | 0:16:51 | |
-But we're there to support her, -whatever she wants to do. | 0:16:52 | 0:16:57 | |
-It's Tina's birthday soon. | 0:16:58 | 0:17:00 | |
-Is it a special milestone for you? | 0:17:00 | 0:17:03 | |
-Yes, it is important... | 0:17:03 | 0:17:05 | |
-..because of her illness. | 0:17:07 | 0:17:09 | |
-We don't know -what's round the corner. | 0:17:09 | 0:17:12 | |
-None of us know -what's round the corner. | 0:17:12 | 0:17:15 | |
-We try to celebrate. | 0:17:15 | 0:17:17 | |
-Tina enjoys herself anyway. | 0:17:17 | 0:17:19 | |
-It's any excuse -to celebrate for Tina! | 0:17:20 | 0:17:23 | |
-The big day is here. | 0:17:27 | 0:17:28 | |
-Tina has been busy -preparing various activities... | 0:17:29 | 0:17:33 | |
-..to celebrate this important day. | 0:17:33 | 0:17:35 | |
-We're going out in Cardiff... | 0:17:37 | 0:17:40 | |
-..on a mother and daughter day. | 0:17:41 | 0:17:43 | |
-We're celebrating my birthday too. | 0:17:44 | 0:17:46 | |
-We have a treasure hunt later. | 0:17:47 | 0:17:49 | |
-We'll have a few drinks -throughout the day. | 0:17:51 | 0:17:55 | |
-I don't think anyone -will be sober by the end. | 0:17:56 | 0:18:01 | |
-A lot of my friends -see it as just another year. | 0:18:02 | 0:18:07 | |
-But I see a birthday -as something to celebrate. | 0:18:09 | 0:18:13 | |
-It's important to me. | 0:18:14 | 0:18:16 | |
-Next year, I'll be 30. | 0:18:17 | 0:18:19 | |
-It'll be a milestone for me. | 0:18:19 | 0:18:21 | |
-With Ataxia... | 0:18:25 | 0:18:26 | |
-..a lot of people don't see 30. | 0:18:28 | 0:18:30 | |
-So it's a big thing. | 0:18:30 | 0:18:32 | |
-I think it's a big deal -for my mother. | 0:18:33 | 0:18:36 | |
-I've spoken to her about it. | 0:18:38 | 0:18:40 | |
-Maybe she sees it as another day. | 0:18:41 | 0:18:43 | |
-But maybe she wouldn't tell me -if she saw it as something bigger. | 0:18:44 | 0:18:49 | |
-It's not something -one really wants to talks about. | 0:18:49 | 0:18:53 | |
-Well done, you made it to 30. -You haven't died yet! | 0:18:54 | 0:18:59 | |
-Here we go! | 0:19:05 | 0:19:06 | |
-We'll enjoy ourselves! | 0:19:07 | 0:19:09 | |
-The girls have reached Cardiff -and head for the first pub. | 0:19:10 | 0:19:15 | |
-We've known Tina -since we were small. | 0:19:20 | 0:19:23 | |
-We went to school in Pontyberem. -Our garden was next to theirs. | 0:19:23 | 0:19:27 | |
-They lived behind us. | 0:19:28 | 0:19:29 | |
-They lived behind us. - -We jumped over the fence to play. | 0:19:29 | 0:19:31 | |
-My sister's a physiotherapist -and I do sports massage. | 0:19:32 | 0:19:36 | |
-We try to get Tina to strengthen -her muscles, to help her movement. | 0:19:36 | 0:19:41 | |
-We've done that over the years. | 0:19:41 | 0:19:43 | |
-Now we just help, say if she wants -to get out of the chair. | 0:19:44 | 0:19:48 | |
-We're quite safe, so she trusts us. | 0:19:49 | 0:19:51 | |
-We don't drink a lot when we go out. | 0:19:51 | 0:19:54 | |
-We're the designated pushers! | 0:19:54 | 0:19:56 | |
-Everyone splits up into teams, -mothers against daughters... | 0:19:57 | 0:20:02 | |
-..and start the treasure hunt -organized by Tina. | 0:20:02 | 0:20:05 | |
-So, game on! | 0:20:06 | 0:20:07 | |
-Game on! | 0:20:08 | 0:20:09 | |
-But this isn't -an ordinary treasure hunt. | 0:20:10 | 0:20:14 | |
-Smile! | 0:20:15 | 0:20:17 | |
-Hang on, how do you do it -in one throw? | 0:20:19 | 0:20:22 | |
-After three! | 0:20:24 | 0:20:25 | |
-I've come to Cardiff -to join in the celebrations. | 0:20:28 | 0:20:31 | |
-But as the only man -with 16 women... | 0:20:31 | 0:20:34 | |
-..I've brought my girlfriend Chloe -along to look after me. | 0:20:35 | 0:20:39 | |
-Happy birthday! | 0:20:41 | 0:20:42 | |
-Hello! | 0:20:42 | 0:20:43 | |
-Thank you! | 0:20:45 | 0:20:46 | |
-This is Chloe. | 0:20:46 | 0:20:48 | |
-Hi! | 0:20:48 | 0:20:49 | |
-Are you having a good day? | 0:20:49 | 0:20:51 | |
-Are you having a good day? - -It's a great day. | 0:20:51 | 0:20:52 | |
-We're halfway through -the treasure hunt. | 0:20:52 | 0:20:56 | |
-We're having a break. | 0:20:57 | 0:21:00 | |
-Is the competition going well? | 0:21:00 | 0:21:02 | |
-Yes, it's game on. | 0:21:03 | 0:21:04 | |
-We have to beat the mothers. | 0:21:05 | 0:21:07 | |
-This is my best friend. | 0:21:11 | 0:21:12 | |
-This is my best friend. - -Hello, how are you? | 0:21:12 | 0:21:13 | |
-Nice to meet you. | 0:21:13 | 0:21:15 | |
-Sarah and I have been friends -since we were four. | 0:21:15 | 0:21:19 | |
-Basically, she can't get rid of me! | 0:21:20 | 0:21:23 | |
-I think I've celebrated -every birthday with Tina... | 0:21:24 | 0:21:28 | |
-..since we were three years old. | 0:21:29 | 0:21:31 | |
-Since we were three. | 0:21:31 | 0:21:33 | |
-Tina enjoys celebrating anything. | 0:21:33 | 0:21:36 | |
-Tina would celebrate opening -a bottle of pop if she could. | 0:21:36 | 0:21:41 | |
-Because we're not sure... | 0:21:42 | 0:21:44 | |
-..how many birthdays -any of us have ahead of us... | 0:21:44 | 0:21:48 | |
-..birthdays are important. | 0:21:49 | 0:21:51 | |
-She feels that every birthday -is an achievement. | 0:21:51 | 0:21:55 | |
-That she's reached a goal. | 0:21:55 | 0:21:57 | |
-Every birthday is priceless. | 0:21:58 | 0:22:00 | |
-We have one more challenge -in the treasure hunt... | 0:22:02 | 0:22:06 | |
-..before relaxing. | 0:22:07 | 0:22:09 | |
-The cancan -and a picture as a memento. | 0:22:10 | 0:22:12 | |
-It's a bit of fun! | 0:22:20 | 0:22:21 | |
-Tina and her family's positive -attitude have changed my outlook. | 0:22:23 | 0:22:28 | |
-Over time, the health of people with -Friedreich's Ataxia deteriorates. | 0:22:28 | 0:22:33 | |
-Tina appreciates and enjoys -every second of her life. | 0:22:33 | 0:22:37 | |
-We should all enjoy life -and appreciate what we have. | 0:22:37 | 0:22:41 | |
-The way she copes with her condition -shows her strong character... | 0:22:41 | 0:22:46 | |
-..her love for life and appreciation -of what is important. | 0:22:46 | 0:22:51 | |
-S4C Subtitles by Gwead | 0:23:06 | 0:23:08 | |
-. | 0:23:08 | 0:23:08 |