Pennod 11 Ward Plant

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-Every day is different on Dewi Ward.

-Speaking for myself...

-..I arrived in this world

-six weeks prematurely.

-Arya was 12 weeks too early.

-Hello, gorgeous.

-She needs to be monitored carefully.

-She took three years to arrive.

-And, um...

-..I wasn't very well

-during the pregnancy.

-She'll be the only one.

-Some small children have spent most

-of their lives in hospital.

-This is Harry John Kane Jones.

-We're in since Saturday night.

-Basically,

-he stopped breathing twice.

-Saline at three o'clock

-or do you want one sooner?

-We'll have a bit now,

-if you don't mind.

-Get it now?

-Get it now?

-

-Yes, thank you.

-He's got a prognosis

-of myotubular myopathy.

-It's a muscle problem.

-It's very rare.

-Harry can't get rid of the mucus

-from his lungs.

-It means that any sort of cold

-puts him at risk.

-On that night, the secretions

-were just too much for him.

-We couldn't stop it from coming out.

-He's not supposed to throw up

-because he's nil by mouth.

-He threw up.

-Then my seven-year-old daughter

-tried to help.

-We tried to give him oxygen

-and tried to clear everything.

-It got worse and the machine told me

-that he basically stopped breathing.

-I had to resuscitate him.

-First,

-I had to get all the saliva...

-..out of his nose and mouth

-with my own mouth.

-I had to do that

-because the machine wasn't working.

-I gave him mouth to mouth then.

-He recovered quite quickly.

-But it was scary.

-It's not something

-I want to do every time.

-Elsi is another baby who's been

-a cause for concern for her parents.

-She has fits after having

-immunization jabs.

-After her recent one,

-she had a fit for 50 minutes.

-She came out of it and then she was

-in another fit for two hours.

-So, we're waiting for answers,

-really.

-We're waiting to hear why

-from Alder Hey.

-Gwennan is concerned that the fit

-may have caused brain damage.

-The doctor wants to reassure her.

-She's fine at the moment,

-bloods are fine, blood gas is OK.

-We're happy with that.

-But, exactly

-what the reason happening...

-..we're not sure at the moment.

-That's what you need

-to discuss with them.

-But keep in mind,

-she's fine at the moment.

-Blood pressure is fine,

-heart rate is OK.

-Her temperature is slightly up but

-that could be due to immunization.

-It happens with children, a slight

-temperature. Nothing to worry about.

-We assure you

-brain is working very well.

-OK, little girl?

-OK, bye bye.

-Because Harry can't get rid

-of the mucus in his lungs...

-..Fiona, the physio,

-is coming to lend a hand.

-Did she use a mask like this?

-I've never seen anyone use a mask.

-It's a good idea.

-It just means that

-mum, dad, auntie, uncle can.

-You won't hurt them but you can get

-it in the right place.

-You've got quite big hands,

-they're quite the size of him.

-We've been in Liverpool

-for the last eight months.

-We haven't been home long,

-three weeks and this happens.

-We carry out his full-time care.

-We give him his feeds, medicine,

-and try to do the suction.

-We do the oxygen, we work on his

-chest to clear it out.

-We have to do a lot.

-It's a rare condition,

-not many children have it...

-..it's going to take time

-for the nurses to learn...

-..and get to know him.

-His illness isn't run-of-the-mill.

-With all of us working together,

-we'll get there eventually.

-It's going to take time.

-Sometimes, in order to save

-a life...

-..which can happen

-all of a sudden...

-..they have to focus

-on one child only.

-The baby came just now,

-thirty minutes ago.

-A six-month-old baby

-with severe respiratory distress...

-..with a complicated background...

-..known as a chronic patient

-to Alder Hey.

-I think it's due to some kind

-of viral infection.

-We're trying all things.

-By the time he arrived,

-he's struggling, seriously.

-The sats are very low.

-The heart rate is very high...

-..which is a sign of severe

-breathing problems or distress.

-Joshua is gravely ill.

-The crash team from the intensive

-care unit came down...

-..to Dewi Ward to stabilize him.

-As we assessed him,

-he was having trouble breathing.

-He obviously

-required intensive care.

-I did his observations...

-..just from looking at him, he was

-grunting, pale and had blue lips.

-He needed a high level of oxygen.

-The doctors and nurses keep coming.

-Each and every one is a specialist.

-This is an emergency case.

-We have to strive for accuracy.

-We all have to work as a team.

-The anaesthetist has arrived.

-As experts we need to work together.

-The anaesthetist is in place so they

-are doing the intubation process.

-Yes, we have to first

-of all resuscitate the baby...

-..if their condition

-is quite severe.

-Our training in resuscitation

-which kicks in.

-So, we have to make sure

-that the airway is clear...

-..and that they're able to breathe.

-Joshua is now unconscious.

-He needs a machine

-to control his breathing.

-For the time being,

-the emergency is over...

-..even though Joshua

-is still seriously ill.

-He needs the expertise of one

-of the country's larger hospitals.

-We had a bit of bad news overnight.

-One of the little girls.

-We weren't expecting this at all.

-She'd been great. She'd been taking

-her treatment well.

-It looked favourable for her.

-She was responding well

-to the chemo.

-She had a scan. Oh, when was that?

-She had a scan some three weeks ago.

-That scan showed a slight response

-to the chemotherapy.

-Everyone was pleased with that.

-She chose to keep going

-with the chemotherapy.

-And then, everything was going fine.

-Sorry.

-I don't like this part of the job.

-Her mother phoned me

-later in the evening.

-She told me that they'd

-found a bleed on the brain.

-She was heading to the HDU

-to be intubated.

-I phoned at midnight

-before heading to bed.

-The girls told me

-she was up on the unit there...

-..and that she was critical.

-I phoned this morning before I went

-to work and spoke to her mother.

-She told me that they'd turned off

-the life support this morning.

-I'll visit tomorrow.

-I won't go today.

-She has plenty of people around

-today. I'll go see her tomorrow.

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-The ambulance taking Joshua

-to Manchester has arrived.

-In it there's a doctor,

-nurse and driver.

-Their experts at transferring

-critically ill patients...

-..between hospitals.

-Before they leave,

-a team from Ysbyty Gwynedd...

-..hand over Joshua's medical records

-about his condition and treatment.

-It's a two-hour journey.

-They have to be prepared

-in case his condition worsens.

-Harry may be facing

-a journey to Alder Hey...

-..if his condition doesn't improve

-in the next few days.

-What they've said is they want

-to keep him on the same antibiotics.

-They want to make sure

-he's comfortable which he is.

-We need to carry on doing what

-we're doing on a day-to-day basis.

-The next plan

-is that tomorrow morning...

-..he'll have more physio

-on his chest...

-..to clear more of the saliva

-that's built up at the top.

-And then, I'm hoping in the next

-couple of days...

-..he'll start being more himself.

-More than anything his temperature

-needs to come down.

-A high temperature makes his heart

-beat faster than it should.

-If that settles,

-everything else should follow.

-Hey, mate?

-Ooh.

-Alder Hey Hospital has also been

-in touch about Elsi's fits.

-Hello, how are you, Mum?

-I'm fine, thanks.

-I got an answer from Alder Hey.

-They don't think

-it's the immunization.

-They think the immunization

-caused the temperature.

-Indirectly, yes, immunization caused

-the temperature.

-Due to the temperature,

-the convulsion happened.

-So we have discussed in the morning

-it could be febrile convulsion...

-..the same thing they're thinking.

-The second thing...

-..is about the vaccination

-which happens at the age of one...

-..they think it's a better idea

-to give them in hospital.

-Before the vaccination

-give paracetamol...

-..and keep her in hospital.

-It's more responsible and more

-comfortable for you as well.

-Because at home, it's more anxiety.

-The next step with Elsi is a lumbar

-puncture to rule out meningitis.

-And then we'll have

-to see from there.

-If she's alright after that,

-she may get to go home tomorrow.

-So, it's still a bit

-of a concern for me.

-She's had these fits

-every time after a jab.

-They're saying the jabs aren't the

-problem and it's her temperature.

-It's going to be

-a bit stressful for a while.

-I think so, won't it, Els?

-While Elsi has a lumbar puncture...

-..Asha has arrived

-to perform more physio on Harry.

-They're hoping

-he won't have to go to Liverpool.

-Sorry.

-Don't make a noise again, OK?

-You've lost your dummy.

-On an adult, I'd use my hand,

-cup it and tap it like this.

-They're so small,

-these masks are quite handy.

-It's like an

-old-fashioned ketchup bottle.

-It loosens the snot.

-The lungs are lined with tiny hairs.

-They just scoop up

-all those secretions.

-They send them up to the

-back of the mouth and the nose.

-It's removed

-with suction from the mouth.

-Sometimes, I put a very small tube

-down through the nose.

-We do this to children

-here sometimes...

-..but usually they're in Alder Hey.

-We got taught by the team

-at Alder Hey.

-The first thing that happens

-at home is that things clog up.

-He'll get what's called a plug.

-It's just hardened snot.

-A normal child can cough or sneeze

-it up. Harry can't do that.

-We have to go in ourselves

-and clear it out.

-We do it every morning.

-This suction machine,

-we're up all night with it.

-We're constantly getting rid

-of whatever's in his mouth and nose.

-We do it to stop what happened today

-from happening.

-It's a lot of work.

-I don't think, actually,

-I'll give him another suction.

-He doesn't sound too bad.

-What do you think?

-He sounds much better than he was.

-Much better. Thanks.

-You can have some peace now.

-You can have some peace.

-The next in is Elis Jones.

-He's more than used to the hospital.

-He's been ill

-for a couple of weeks.

-We brought him here in the early

-hours of Monday morning, at 1.00am.

-He just cried and cried.

-He was struggling to breathe

-so we called an ambulance.

-They told us to come straight here.

-He's been up all night.

-He's been crying

-and rubbing his ears.

-I thought he might have

-an ear infection or something.

-He had constipation too.

-We don't know anything,

-they haven't told us anything yet.

-He's given a urine sample...

-..and we're waiting

-for the results to come back.

-When he was born,

-he wasn't breathing.

-He was in a box and we weren't

-allowed to touch him.

-We weren't allowed to see him.

-He had tubes in his nose.

-The next day, they shifted him

-to Liverpool in a box.

-He was covered in tubes

-when he arrived at Alder Hey.

-He had a lump at the top

-of his nasal palate.

-It was 3cm x 2cm wide.

-He had to have an immediate

-operation. He had two, three fits.

-He had one in Bangor

-and two in Alder Hey.

-We didn't know what was going on.

-We got there on Sunday, he had

-the operation on the Thursday.

-It was a four-hour operation.

-It basically just killed

-my partner and me.

-Watching him not moving.

-Loads of tubes.

-He wasn't the same.

-We'd never seen him before.

-After that Thursday,

-he got to come home on Monday.

-He's been having regular check-ups

-in Alder Hey.

-They wanted to see if the lump grew.

-So far, so good.

-It's almost time to transfer Joshua

-to Manchester Children's Hospital.

-Alder Hey have just phoned.

-Harry's consultant doctor in

-Liverpool wants to assess him.

-This is one of the biggest blips

-he's had since he came home.

-They want to make sure

-that everything we do...

-..is the right thing for him.

-The machine he has isn't adjustable.

-It's especially made for Harry.

-They need to review it...

-..to make sure that

-it's on the correct pressure.

-It's what helps him

-through the day...

-..to get the energy

-to do what he wants to do.

-If that isn't right,

-it's going to show in the day.

-I think that will be a full review.

-I don't know if we'll be there

-for a day or two.

-Hopefully,

-it will be there and back.

-We won't know until we get there.

-Your wife has just left,

-quite upset...

-..thinking it'll be months again.

-We were there a long time last time.

-We were there a long time last time.

-

-How long?

-Over eight months all together.

-He's due a change on this peg too.

-This is due,

-so they may change that.

-What they try to do

-when we do go to Liverpool...

-..as Harry can't travel

-far in the car.

-Travelling to Liverpool takes

-two hours and a lot out of Harry.

-To come back in the same day is

-difficult. Oh, yes.

-He says no, he doesn't want to!

-We'll have to see.

-The babies are still coming

-to Dewi Ward.

-This is Kaya.

-She's been rushed here

-in an ambulance.

-She's got a high temperature

-at present.

-She's got dizzy spells.

-Vomiting, diarrhoea.

-The usual sort of things

-at the moment, really.

-Not herself, yeah.

-Took her to the surgery, the doctor

-wasn't happy with her heart rate.

-It was too fast.

-Her breathing was really fast.

-She phoned for the ambulance.

-We came in by ambulance.

-By the time they turned up,

-she started looking a lot better.

-As they do.

-While one is waiting for a doctor,

-another is seeing a doctor.

-They've said he can go home now,

-everything's OK.

-Hopefully, everything's OK and we

-won't have to come back here.

-He's got a minor ear infection.

-It's nothing.

-We'll just go home now.

-Harry, after less than two months

-at home...

-..is on his way back to Liverpool.

-Hi, how are you?

-I'm fine, and you?

-I'm fine, and you?

-

-Thank you. See you soon.

-Tomorrow!

-I hope he'll be OK on the way

-because it's a long journey.

-His mother is with him so he's safe.

-We know him better than anyone.

-I hope he won't get worse

-on the way.

-I don't want that to happen.

-At least we're going there now

-and we can sort this out.

-I'm driving up because I've got to

-come home and see to our daughter.

-It's hard, being in two places

-at the same time.

-Nain and Taid are looking after her.

-She's safe.

-It's been a long eight/nine months.

-It feels like you're going three

-steps forward, ten steps back.

-It is hard.

-He's all that matters.

-So long as he's safe, I'm happy.

-I'd be happier if he was at home.

-After eight hours on Dewi Ward...

-..Joshua is ready to go

-to Manchester Children's Hospital.

-There's a bed waiting for him

-at the intensive care unit.

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