Pennod 1 Ward Plant

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-Ysbyty Gwynedd

-serves the largest area in Wales.

-Patients come

-from Barmouth to Aberdaron...

-..and from Holyhead to Penmaenmawr.

-Some travel for two hours

-to reach the hospital.

-In the early hours of the morning,

-he had a temperature spike of 38.9.

-They want him taken to Liverpool

-this morning with blue lights.

-Over 3,000 children

-come to Ysbyty Gwynedd every year.

-Open your mouth wide. Say ah.

-Let's see, little one.

-Let's see, little one.

-

-She won't hurt you.

-Some come in and out

-on the same day.

-Others come in as an emergency.

-I made something that perfect!

-But each and every one

-receives the same care.

-I'm paid to make young children

-feel better.

-It's the best job in the world.

-They say that being

-a children's doctor...

-..is more of a calling

-than a career.

-Cube 1 is a bit of a challenge,

-just for you to know.

-She has sickle cell.

-They're Jehovah's.

-But that's not how Dr Mair Parry

-came to Ysbyty Gwynedd.

-I'd love to tell you that I decided

-at eight years old...

-..that this was what I wanted to do.

-But truthfully, until I was about 14

-I wanted to be a vet.

-I wanted to look after animals.

-I liked animals

-and I enjoyed science at school.

-That sounds a bit geeky

-but it's the truth!

-By the age of about 13 or 14,

-I had decided to study Medicine.

-That's what happened. I think

-the school played its part as well.

-Ysgol David Hughes

-was very good at breeding doctors.

-That's a good thing because

-on the children's ward...

-..Dr Mair is the only doctor

-at her level who speaks Welsh.

-Are you going to have a nap as well?

-You were up all night as well.

-You were up all night as well.

-

-I'll sleep tonight.

-That's assuming that you'll sleep

-tonight too, little one.

-I'm a better doctor here in Bangor

-than anywhere else in the world.

-Just because of the way I speak.

-It's more than just language.

-It's about emotions

-and the world around us.

-It's about

-this little part of the world.

-If they play for Bethel, I know that

-when they play against Llanrug...

-..it's a really important match!

-For the family of one child

-who has cancer...

-..receiving treatment through

-the medium of Welsh is invaluable.

-Hello, mischief.

-Who is it?

-This is Osian. He's 18 months.

-He'll be 19 months on the 13th.

-He was diagnosed with acute

-lymphoblastic leukaemia...

-..in April this year.

-We're still

-in the first stages of treatment.

-As you can see, he's come in.

-I remember the day

-as though it was yesterday.

-They said there was something wrong

-with his platelets...

-..and his white blood cells.

-That was how they diagnosed

-leukaemia.

-Osian was sent immediately...

-..to the specialist children's

-hospital in Liverpool.

-At Alder Hey, they diagnosed A L L.

-That is Acute Lymphoblastic

-Leukaemia.

-Why does such a young child have to

-have such a horrible disease?

-Osian came in a few months ago

-with a rash and bruises.

-Although most cases like that

-are not a problem...

-..in Osian it was a sign

-that he had leukaemia.

-He's just started receiving

-chemotherapy cycles.

-When you have chemotherapy...

-..the infection-fighting white blood

-cells become very low in number.

-Children receiving chemotherapy are

-more likely to pick up infections.

-When they get an infection,

-it tends to be worse...

-..because there are very few

-white blood cells to fight it.

-He's come in because of a high

-temperature - a sign of infection.

-He's been given antibiotics.

-We have quite a stringent process

-which is shared with Alder Hey.

-Anywhere in the country, if

-you have leukaemia, a temperature...

-..and a low white blood cell count,

-you receive the same treatment.

-We're keeping him in today...

-..because his blood has gone down

-since yesterday.

-Yesterday, his NEUT count was 1.

-Today, it's come down to 0.3.

-That makes him susceptible

-to any infections around.

-Which week are we?

-Which week are we?

-

-Six.

-It's a crucial time.

-So they may cancel chemo

-and stop the Septrin.

-Just to see if...

-Just to see if...

-

-He hasn't had chemo for two weeks.

-Only in his back on Thursday

-but no oral chemo.

-It's the back chemo

-that has caused this.

-We'll redo the bloods again tomorrow

-morning and we'll contact Alder Hey.

-We'll see about going home

-this afternoon.

-If he's a flattener,

-we won't disturb him.

-That's fine.

-It's raining and wet

-and the weather's horrible.

-OK. That's fine.

-OK. That's fine.

-

-You sure?

-Maybe he can go home tomorrow,

-with the antibiotics and everything.

-Another child

-who may have to stay in is Tulla.

-Was she herself

-or was she quite sleepy?

-She wasn't herself.

-So she wasn't awake?

-And then did it start again?

-It stopped for about 20 seconds

-and then it started again.

-When it restarted,

-was her whole body jerking?

-Yes.

-Tulla, who's nine months old,

-had a fit in the early hours.

-When the ambulance came...

-..I understand they took

-her temperature and it was 37.7.

-But she'd stopped fitting by then.

-Yes. You've got a lot to say!

-Right, can you put her on your knee

-so that I have a look at her?

-It's hard to believe now that she

-had a fit lasting over a minute.

-Every second was like an age

-for her mother.

-If she screams,

-it often makes it easier.

-Can you put your hand

-over her hands?

-Is that what you think?

-You're not impressed, are you?

-We think that she's had

-what we call a febrile fit.

-It's a fit that comes with

-a high temperature.

-A child's temperature going up

-quickly can cause a fit.

-It's not how high the temperature is

-but more to do with the speed.

-It's quite common.

-Between 3% and 5%

-of babies will have them...

-..between the ages

-of 6 months to 6 years.

-OK.

-Most children who have them

-will only have one.

-So we hope she's had that one.

-But if they have another one...

-..they're quite likely to have it

-soon after the first.

-We'll keep an eye on her

-until tonight.

-We'll see how she is during the day.

-I want to see if there's a pattern

-with the temperature.

-It's gone up again now

-but she seems OK.

-We'll just keep an eye on her

-because she's so little.

-A few hours

-and we'll see how she is.

-Great, thanks.

-Daniel Cranston from Anglesey

-is the next one through the door.

-Three months ago, Alder Hey Hospital

-found cancer in his breast...

-..and started chemotherapy

-straight away.

-Because of the treatment,

-Daniel has lost use of his legs...

-..so he has to use a wheelchair

-at the moment.

-Right, who's going to do this? I'll

-do the blood. Can you do the flush?

-Or do you want me to do it?

-You need the flush

-because they're taking blood.

-Before every session,

-Eleri makes sure...

-..that the pipes used

-to give the chemo are clear.

-Does it hurt when I lift it?

-Not that time.

-It does usually.

-It does usually.

-

-There's a nice little scab there.

-She also takes a little blood.

-We look at Daniel's haemoglobin,

-his platelet count...

-..and his white cell

-and neutrophil count.

-The results will show me

-whether Daniel is fit enough...

-..to go to Liverpool on Monday

-to carry on with the treatment.

-Unfortunately, if the neutrophil

-count is lower than 1...

-..they'll postpone the chemotherapy

-for a week.

-So it drags everything out.

-He's doing well this week.

-He's doing well this week.

-

-Have you been to school?

-I went to school all day on Tuesday.

-All day? Was that too much?

-I was OK.

-I've done all my BAC work.

-You've done it? You're keen!

-He didn't want to redo it

-in September.

-Can you manage that?

-One, two, three, clamp.

-Well done. Better today.

-Opening it is the problem.

-We start on the fourth cycle

-of chemotherapy next Monday.

-It depends on today's blood results

-and if he's strong enough.

-They're doing another assessment

-in August.

-They'll do an MRI scan in Liverpool

-and a PET scan in Preston.

-So we'll see how they go.

-But he'll also have radiotherapy

-at Clatterbridge...

-..at the end of August.

-That's the plan so far.

-But before that, there is

-a big decision to be made.

-Daniel wants to colour

-his remaining hair.

-He wants it to be blue.

-What about red?

-What about red?

-

-Red?

-Red would be better. Red for Wales.

-He has months of treatment ahead.

-And a good few journeys

-from Amlwch to Liverpool.

-I'd like to go up there

-first thing on Monday.

-Should I phone them

-to ask if that's OK?

-I'll write it on the results. I'll

-tell them you'll be there at 8.30am.

-8.30am?!

-8.30am?!

-

-OK. Maybe not. What time then?

-I'd say... seven, eight, nine.

-Half past nine.

-Half past nine.

-

-Half past nine.

-By the time he gets on the machine,

-it'll be ten. Another six hours.

-They did offer us a place

-to stay on the ward overnight.

-It's easier to go and come back.

-I know it's very hard for them...

-..especially as they live

-the other side of Anglesey.

-They have to travel to Liverpool.

-On a day like this,

-when there's a lot of traffic...

-..it's going to be

-a very long day for him.

-We know what time

-we've put down for them.

-But by the time they get

-to Liverpool...

-..something may have happened

-that end.

-That can mean they're a bit late

-getting on the machine.

-The day becomes even longer.

-Sometimes on the way home

-they feel ill.

-When you feel like that,

-you just want to get home...

-..and to your own bed.

-You know you've got at least an hour

-and a half before you get there.

-It's very hard.

-It's going to be a long morning.

-It's going to be a long morning.

-

-I'm going to fetch some breakfast.

-Hospital toast. Nice.

-Hospital toast. Nice.

-

-Nothing better. Or a nice teacake.

-Will you have anything?

-He's had two eggs

-and two slices of toast and a cuppa.

-There's nothing stopping you

-having more!

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-A day after coming to Ward Dewi,

-Osian, who has leukaemia...

-..is leaving to go to Alder Hey

-Children's Hospital in Liverpool.

-He had a temperature spike of 38.9

-at around 2.30am.

-He was supposed to go to theatre

-at Alder Hey on Thursday...

-..so I just let them know.

-They want him taken over there

-this morning with blue lights.

-My partner is coming now.

-He'll follow us over there.

-I'll go in the ambulance with him.

-You can have that in a minute

-when we go.

-And Mum helps out?

-I try.

-I don't understand a lot of it.

-I keep asking Eleri

-but it won't go in...

-..because I don't understand

-a lot of it anyway.

-Mandy's starting to understand it

-but I still don't understand it.

-I'll just go in.

-Hello, hello.

-Right, good morning. How are you?

-Right, so we're heading for

-Alder Hey. Are you OK with that?

-Has Chris arrived?

-Has Chris arrived?

-

-Not yet.

-When you get to Liverpool,

-they'll do the bloods again.

-The blood we've taken

-won't count in Liverpool.

-So they'll do it again.

-They'll do the cross match

-and the full blood count.

-Then they'll give him a transfusion

-based on the results.

-Looking at him, he needs something.

-He needs a little pick-me-up.

-So...

-His legs seem a bit mottled again.

-Yes. He's still doing this

-with his legs on the bed.

-He complains when he does that.

-His blood pressure was a bit high

-this morning - 138 over 85.

-We'll do it again just before

-he leaves for Liverpool...

-..to make sure that everything's OK.

-We'll do saturations and all that.

-My mum was asking me about his blood

-and I couldn't remember.

-White cells come down to 3.6

-instead of 6 point something.

-Haemoglobin is 72 instead of 79.

-So we are actually heading down

-instead of coming up.

-His platelets were 89 yesterday.

-This morning, they're 80.

-And his NEUTs have stayed at 0.3.

-We also did a marker for infection,

-CRP, which was less than 5.

-This morning, it's 8. So clearly

-there's something going on.

-When they give you two hours

-to get ready to go to Alder Hey...

-..how do you get your head around...

-..gathering everything

-you need to go?

-You need clothes. You have no idea

-how long you'll be there.

-You have to be prepared.

-You have to make sure that

-everyone knows what's happening.

-It just isn't enough time

-to tell everyone...

-..and get everything ready

-to go to Alder Hey.

-It's just stressful.

-It's very hard.

-I'll see you later.

-I'll see you later.

-

-Thanks, Eleri.

-Dr Mair is in the special baby unit

-this morning.

-She's come to see two babies

-born six weeks early.

-Llyr and Begw arrived last night.

-They were born about 6.30pm

-last night.

-Premature twins.

-The mother had to have a caesarean.

-Llyr came out first.

-His sister followed.

-Premature babies can lose heat

-very quickly.

-That's why they're in incubators

-and that's why it's so warm here.

-When they're first born,

-we make sure they're warm...

-..and that they're breathing.

-We decide if they need oxygen.

-We check their sugar levels.

-We have a checklist of things.

-We start with ABC - Airway,

-Breathing, Circulation.

-Then we think about

-warmth and sugar.

-We also have to decide whether

-they can suck to get milk...

-..or if they need a drip.

-Usually, we start them on a drip

-so that they get some sugar.

-Then we introduce milk

-and cut down on the drip.

-That's where we are with him.

-He's on 2.5ml an hour on the drip.

-It sounds like nothing.

-But if we stopped it

-and didn't replace it with milk...

-..his sugar levels would drop.

-On the maternity ward,

-the twins' mother Cadi...

-..only has photos of her babies

-for now.

-This is Llyr.

-And this is Begw.

-I didn't see the little girl last

-night when I had the caesarean.

-She couldn't catch her breath

-on her own.

-She was rushed away.

-But I saw Llyr.

-This morning, I went there at

-five o'clock. I didn't sleep at all.

-I had an hour's sleep.

-I'm so excited to see them.

-The second twin

-is often not as well as the first.

-It takes longer for them to be born.

-Every long birth causes

-more problems for the babies.

-It's not unexpected for her to be

-not quite as well as her brother.

-But she's also started on the milk.

-She vomited during the night.

-We thought that was because

-she'd swallowed a lot of mucus...

-..during the birth.

-She's back on the milk. She's on

-antibiotics like her brother.

-They've obviously been together

-for not far off nine months.

-So she's also on antibiotics.

-We can control everything

-in the incubator...

-..the temperature,

-the humidity in the air.

-It all makes a lot of difference.

-They lose a lot of water

-because they breathe so fast.

-So we can control the humidity

-in these as well.

-Once her temperature has settled,

-we'll take her out of this.

-She can then join her brother.

-I can't believe what's happened.

-I can't believe we've managed to

-create something so perfect.

-They're just perfect.

-The ambulance has arrived

-to take little Osian to Liverpool.

-But it's hard to leave

-without knowing when you'll be back.

-Debs, I'm going now.

-Have a safe journey.

-It's not just Osian

-we have to worry about.

-We have the house, the animals,

-my partner's job.

-We have to let everyone know

-what's going on.

-Chris had to let them know

-he wouldn't be in work.

-We have no idea how long

-we'll be in Alder Hey.

-It could be a day,

-it could be a week.

-He was quite stable when he left...

-..but I didn't like

-the mottled look of his legs.

-Even though his body was warm.

-We'll see how things go. I'll give

-them a ring later. What time is it?

-They've probably arrived.

-Last week, when I did

-a blue light transfer...

-..we were in Liverpool

-in 65 minutes!

-I've never felt so sick.

-But I was so glad to see Alder Hey.

-It took about 3.5 hours to get home!

-Doesn't matter. It's all worth it.

-But for 18-year-old Cadi

-from Pwllheli...

-..the child-raising journey

-is just starting.

-After a night without

-her little babies...

-..she's come with her father

-to see them.

-Don't disturb him.

-He'll open his eyes now.

-Oh. I can't find the words

-to tell you how it feels.

-It's unbelievable.

-It's amazing. And one of each

-is something else!

-No more, that's what I hope.

-I'm overjoyed.

-I'm the happiest person around

-if I'm honest.

-It's warm here.

-It's hard to believe

-how life is created like this.

-To think that they're six...

-was it six weeks early?

-Six weeks early.

-Six weeks premature.

-What they can do in these places

-these days is unbelievable.

-Fair play to them.

-They take care of everything.

-Is it a little bit sore?

-I think it's just the dressing.

-OK. It's nice and dry

-so we'll leave it as it is.

-Osian has come home...

-..after receiving treatment

-for leukaemia at Alder Hey.

-At the moment, the little boy

-from Caernarfon...

-..seems to be winning the battle.

-I'm looking forward to the future

-when these next two years are over.

-At the moment, he's on maintenance

-because he's in remission.

-I'm looking forward

-for that to end...

-..so that he can do

-what children are supposed to do.

-Play around, go out and not have to

-worry about getting ill...

-..and spending days in hospital.

-Osian is now in remission.

-He's a typical boy

-who's nearly two years old!

-Terrible twos

-on top of everything else.

-But it feels as though

-we've had our little boy back.

-It's a godsend really.

-High five.

-Yay!

-Daniel has had a stem cell

-transplant at Alder Hey Hospital.

-He's about to start radiotherapy

-treatment at Clatterbridge.

-Tulla hasn't had another fit

-since leaving hospital.

-Osian is still in remission.

-The twins are getting on well

-in Pwllheli.

-S4C Subtitles by Testun Cyf.

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