Pennod 6 Ward Plant


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Pennod 6

Y tro hwn, mae hogyn bach yn ymladd am ei fywyd ar y Ward Plant. A little boy fights for his life on the children's ward at Ysbyty Gwynedd, Bangor.


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-Ysbyty Gwynedd is the first

-port of call in an emergency...

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-..for the people

-of North West Wales.

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-Hundreds of children come here first

-if they're having any problems.

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-Some come here so often,

-they become part of the family.

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-We know about the problems they

-have to deal with from day to day.

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-You can't help

-but put yourself in their shoes.

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-Tonight, we bring you the story

-of one little man.

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-He's been in and out of hospital

-since he was born.

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-The doctors tend to ask if we want

-to save Gwion or let him go.

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-Obviously we know the answer

-straight away. We want to save him.

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-Since the beginning of

-the first series four years ago...

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-..we've seen hundreds

-of little patients.

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-One of them has become

-very familiar.

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-Good boy.

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-I'm nearly finished.

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-They're inserting an NG tube to take

-food straight into his stomach.

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-He can't swallow very well.

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-We're here four or five times a year

-usually.

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-With his chest.

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-When Gwion was born, everything was

-fine until he was two weeks old...

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-..and then he had meningitis Strep B

-and was rushed to Alder Hey.

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-He was on a life-support machine

-for nine weeks.

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-As a result, he had brain damage.

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-He has blind, he has cerebral palsy

-and he has fits.

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-He'll be on medication

-for the rest of his life.

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-Have you been a naughty boy?

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-You take the oxygen

-out of your nose!

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-You're not supposed to!

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-He was in Alder Hey for a while

-and he now has a lot of problems.

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-He's now epileptic.

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-He has what's known

-as quadriplegic cerebral palsy.

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-He has diabetes insipidus.

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-He has feeding problems.

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-That's all happened as a result

-of the damage caused by meningitis.

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-His lungs are the biggest problem.

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-When Gwion has a cold, it can turn

-to pneumonia very quickly.

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-To stop food

-from going down his windpipe...

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-..doctors at Alder Hey Hospital

-have inserted a tube in his stomach.

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-That's how he gets his food.

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-But this doesn't protect him

-from winter viruses.

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-The weather makes a difference

-for Gwion.

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-If it's damp and raining and cold,

-he tends to come in more often.

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-Gwion can't walk or move around

-like we do...

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-..which means he can't do anything

-on his own.

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-Everything collects

-and sticks on his lungs...

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-..which makes it difficult

-for him to breathe.

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-He has to come in to have oxygen

-to help him breathe.

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-When Gwion comes to the children's

-ward after the summer holidays...

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-..everyone knows

-that winter's on the way.

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-Paediatrics is a seasonal business.

-We're much busier in winter.

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-In particular between October

-and the end of February...

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-..when the viruses are around.

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-Children with asthma

-come in regularly.

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-Babies come in with bronchiolitis...

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-..which is a specific virus

-that's around in winter.

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-We're always busier in winter.

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-But when Gwion has a cold...

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-..he doesn't just

-have to come in for a few days.

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-He's here for weeks.

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-I'm here until tonight...

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-..and my partner will be here

-tonight until tomorrow.

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-We have a three-year-old at home so

-one of us has to be home with her.

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-She also works in between.

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-They can be quite difficult nights.

-Gwion doesn't sleep well anyway.

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-We do it at home and in hospital.

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-One of us is up all night.

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-It can be quite difficult.

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-Between work and caring for Gwion,

-we all struggle.

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-After four years of coming here...

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-..Dewi Ward is like home from home

-for Gwion's parents.

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-The nurses are like a second family.

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-I've nursed Gwion

-since he was a baby.

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-I've really developed a relationship

-with Gwion...

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-..his parents and the whole family -

-I'm very fond of them.

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-You couldn't ask for a better family

-to look after their child.

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-Gwion means a lot

-to everyone on the ward.

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-We sometimes feel

-as though he's our child!

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-We all love Gwion.

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-It's so nice to see him go home

-with his parents when he's better.

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-It is difficult for us as a family.

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-We don't know what's going to happen

-from one day to the next.

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-We've been home for a week now...

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-..but maybe tomorrow

-things won't be so great.

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-For his mother,

-this morning is like so many others.

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-She wakes up to another day

-on Dewi Ward.

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-We like to do everything for Gwion

-in the hospital.

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-We do everything at home

-so we do it in the hospital as well.

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-They give him his medication

-but we tend to sort out his food...

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-..and anything else he needs.

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-Sometimes it's hard being

-in that room seeing him suffer.

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-That part is difficult

-from day to day.

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-I'll put these in the wash for you.

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-I can wash them.

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-Are you sure?

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-Are you sure?

-

-Yes.

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-Before things get busy, Sister Mel

-has some organizing to do.

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-Who's looking after who today?

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-I'm going to find out who was here

-yesterday and who knows who.

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-I try to allocate the same nurse

-to the same patient for continuity.

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-I haven't been here for over a week

-so I don't really know anyone.

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-So I'll find out who the girls know

-and then I'll allocate.

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-But the doctors are here already.

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-Gwion's condition has deteriorated

-so he's their first patient today.

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-Hello. He's awake!

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-Shall we have a listen

-to your chest then, please.

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-Will he be better a bit upright

-with his oxygen levels?

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-He's very hard to position.

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-I think this is the best position

-Mum's...

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-So he's got a bit more work

-breathing compared to yesterday.

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-Can you see it recessing?

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-Recession bilateral.

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-Let's have a listen.

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-Two minutes. Two minutes.

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-Two minutes, Gwion.

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-OK.

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-I know. Sorry.

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-OK. All done. Good boy.

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-Just keep up the levels.

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-The chest infection

-is getting worse.

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-I think we will still

-withhold the x-ray.

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-We should do repeat bloods, put him

-on clarithromycin, more physio...

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-..and see where we go from here.

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-They've been to see him.

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-He's completed a seven-day course

-of antibiotics...

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-..but because of how

-he's been overnight...

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-..they don't think

-the infection has cleared.

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-So we're going to try

-another antibiotics...

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-..that works in a different way,

-starting from today.

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-He doesn't have to be here

-for the seven days.

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-What keeps him here

-is the oxygen requirement.

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-His parents can do everything else

-at home.

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-They can do the physio

-and give him his medication.

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-The oxygen requirement

-is what's keeping him here.

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-They don't have home oxygen.

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-But they can do the physio, the

-nebulisers and everything like that.

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-Gwion always gets over

-these episodes.

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-Recently, he had a sleep study

-at Alder Hey.

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-It showed that when he's healthy and

-doesn't have a chest infection...

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-..the level of oxygen in his blood

-overnight is fine.

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-It's a good thing that he doesn't

-need oxygen all the time...

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-..only when he's not well.

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-I sometimes think, "Why us?"

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-We just want him to come home.

-We don't want money or a big house.

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-We just want the four of us

-to be at home as a family.

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-We want to be like normal people

-and have some time at home.

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-You want to hope for the best

-for the future.

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-But you're also scared

-to think about it too much.

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-We don't know how long we have

-with Gwion.

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-We don't know

-what will happen tomorrow.

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-You don't want to be too confident.

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-Late afternoon and Gwion's condition

-is still causing concern.

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-Gwion isn't quite as well

-this afternoon.

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-His condition has deteriorated.

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-He needs a lot more oxygen

-this afternoon.

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-The chest physio has come to see him

-and he's had an x-ray.

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-On the x-ray,

-the doctor showed me...

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-..that the bottom of the lungs

-look white.

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-That could be fluid collecting

-at the bottom of the lungs.

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-It could be mucus or other fluid.

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-In order to see that,

-he'd need a scan on his lungs.

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-Gwion has pneumonia.

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-With his life in danger,

-there's no time to waste.

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-In order to have

-the best possible care...

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-..he's moved

-to the intensive care room.

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-Mind your backs!

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-We tried a lot of things -

-more oxygen...

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-..more pressure in the oxygen,

-physio and different medication.

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-Despite everything we tried,

-he didn't get better.

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-In fact, he's worsened.

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-And again. More?

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-Oh, good boy.

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-So we made the decision

-to move Gwion to the resus room.

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-Now the consultant is here.

-The physio is still here.

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-They've called

-the anaesthetics team...

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-..to take a look at Gwion.

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-It's important that they assess him

-at the beginning...

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-..because if he still doesn't

-improve or gets any worse...

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-..we'll be looking at

-giving him general anaesthetic...

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-..in order to insert a tube

-to help with his breathing.

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-The intensive care team

-is on its way...

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-..to put Gwion

-on a life-support machine.

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-Sister Mel has to phone

-Darrel and Sara.

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-There is a decision to be made

-about Gwion's future.

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-They're phoning the anaesthetics

-team to have a look at him.

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-OK, Darrel?

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-Will you phone Sara?

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-OK, mate. Bye.

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-We've had this two or three times

-before.

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-Every time, the doctors have

-to ask us as part of their job...

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-..if we want to save Gwion

-or let him go.

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-Obviously, we know straight away

-that we want to save him every time.

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-They have to ask us

-as part of their job.

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-It was hard.

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-Like every other time, the chance

-of losing Gwion becomes closer.

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-That's what we find difficult.

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-We now know that there isn't a bed

-in the PICU at Alder Hey for Gwion.

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-The North West transfer service

-we use...

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-..is trying to find a bed elsewhere.

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-They are also out on another job

-at the moment.

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-So we're waiting to hear

-what's going to happen...

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-..and where we'll get a bed

-for Gwion.

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-The team has been working

-all night...

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-..caring for him

-and keeping him alive.

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-You look tired.

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-No, I'm OK.

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-How long have you been up?

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-I went

-and had a little bit of sleep.

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-I'm not as tired as I look!

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-The doctors were concerned

-because they were at 100%.

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-They couldn't do anything else

-for him.

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-His oxygen levels kept coming down.

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-They were very concerned

-we were going to lose him.

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-He's much more stable.

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-He still needs to go to

-an intensive care unit.

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-But he's ventilating much better

-than when we started.

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-Ysbyty Gwynedd staff

-have done everything they can...

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-..but Gwion now needs intensive care

-in a specialist hospital.

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-Last night,

-there were no beds anywhere.

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-They didn't know if we'd

-have to go to Cardiff, London...

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-..Sheffield, Birmingham or Stoke.

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-But at the moment

-they're sorting it out.

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-They think they might get us a bed

-in Alder Hey.

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-That's what we hope. We've been

-there a few times so we know it.

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-Hopefully that's where we'll go.

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-They have to prepare everything

-and make sure he's stable.

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-At the moment, I have to make sure

-his medication is ready to go.

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-We can't forget anything

-because it's all so important.

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-I went home this morning

-to pack his stuff.

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-I saw his little pants

-and it was too much.

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-We've done up his bedroom

-with his little bed.

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-The thought of going home

-without him...

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-I can't even think about it.

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-He's only four years old. We know

-he's not going to live like us.

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-But we hope to have

-as much time as possible with him.

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-We hope to have much more time

-with him.

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-We just have to keep

-everything crossed.

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-NWTS, the specialist paediatric

-transport team in North Wales...

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-..will be responsible

-for taking Gwion to Liverpool.

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-Kate, our colleague,

-has done most of the work.

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-We've just come along

-and we're just finishing off really.

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-We'll just sort out here and then

-we'll move him on to our trolley...

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-..so that we can get him

-on to the ambulance.

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-Hopefully it won't be too long

-then.

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-Just making sure

-the parameters are normal.

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-Can I give him a kiss

-before he goes?

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-Are you heading off?

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-Are you heading off?

-

-No, we're following after.

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-We're not moving quite yet.

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-You've still got

-a little bit of time.

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-We'll get him on the trolley first.

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-Don't worry, we're not going to let

-you go without saying goodbye.

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-I have a real bond with Gwion.

-I can't imagine life without him.

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-It's difficult not to

-because we know how ill he is.

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-Every second with Gwion

-is worth so much.

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-Shall we move him down slightly?

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-Yes, shall we move him down

-a little bit?

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-Tell me when.

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-Stop.

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-Do you know if it comes off?

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-I don't think so.

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-That's alright, then.

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-This part is difficult.

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-Seeing him go and not being allowed

-to go with him.

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-We just want to make sure

-he arrives in Liverpool safely.

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-It's a very long hour.

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-Who's driving who?

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-Sara is going to drive.

-We're going after him.

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-When they get to Liverpool, it takes

-two or three hours to set things up.

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-There's no point in rushing. We have

-to go home to sort out our clothes.

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-Then we'll follow.

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-Even when we get there, he probably

-won't have been set up properly.

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-There's no point rushing

-or panicking...

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-..in case we have an accident.

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-He's like a member of the family.

-He's part of the family.

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-He likes to be naughty

-when I'm here.

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-He loves it.

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-Yes.

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-People are so quick

-to criticize this place.

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-But unless they know the nurses and

-the people here, they have no right.

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-They don't know them.

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-It's wrong.

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-We expect a lot of children

-with chest infections...

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-..at this time of year.

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-Obviously, Gwion is in and out

-with his chest.

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-We're in for a bad winter, I'd say.

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-We're here to help

-as much as we can.

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-Gwion always has to be

-the exception.

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-Have you seen him this bad before?

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-When he was in as a baby,

-he was really poorly.

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-Three years running,

-we've been in this situation.

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-We don't like seeing him like this.

-Normally, the Optiflow works.

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-But not this time.

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-It'll be good for him to have a rest

-as well.

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-Let the machines do the work.

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-See you in Liverpool, OK?

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-It's only an hour. Make sure

-you behave! No funny business.

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-Dad and Mam love you.

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-Love you.

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-Gwion is such a happy child.

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-I wouldn't change him for the world.

-He's been through so much.

0:21:530:21:57

-It's a pleasure to be with Gwion.

0:21:580:22:01

-Despite everything.

-He's such a happy boy.

0:22:020:22:05

-He has his own little personality.

0:22:050:22:07

-That's what makes Gwion so special

-for us.

0:22:070:22:10

-You're not going to leave us,

-are you?

0:22:120:22:14

-You're not going to leave Dad,

-are you?

0:22:160:22:18

-Gwion was fighting for his life for

-four weeks at Alder Hey Hospital.

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-He was on a life-support machine

-during that time.

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-After two months in Liverpool...

0:23:230:23:27

-..he was allowed to come home

-to his sister.

0:23:270:23:31

-S4C Subtitles by Testun Cyf.

0:23:570:23:59

-.

0:23:590:23:59

Y tro hwn, mae hogyn bach yn ymladd am ei fywyd ar y Ward Plant. A little boy fights for his life on the children's ward at Ysbyty Gwynedd, Bangor.