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-Ysbyty Gwynedd is the first
-port of call in an emergency...
-..for the people
-of North West Wales.
-Hundreds of children come here first
-if they're having any problems.
-Some come here so often,
-they become part of the family.
-We know about the problems they
-have to deal with from day to day.
-You can't help
-but put yourself in their shoes.
-Tonight, we bring you the story
-of one little man.
-He's been in and out of hospital
-since he was born.
-The doctors tend to ask if we want
-to save Gwion or let him go.
-Obviously we know the answer
-straight away. We want to save him.
-Since the beginning of
-the first series four years ago...
-..we've seen hundreds
-of little patients.
-One of them has become
-I'm nearly finished.
-They're inserting an NG tube to take
-food straight into his stomach.
-He can't swallow very well.
-We're here four or five times a year
-With his chest.
-When Gwion was born, everything was
-fine until he was two weeks old...
-..and then he had meningitis Strep B
-and was rushed to Alder Hey.
-He was on a life-support machine
-for nine weeks.
-As a result, he had brain damage.
-He has blind, he has cerebral palsy
-and he has fits.
-He'll be on medication
-for the rest of his life.
-Have you been a naughty boy?
-You take the oxygen
-out of your nose!
-You're not supposed to!
-He was in Alder Hey for a while
-and he now has a lot of problems.
-He's now epileptic.
-He has what's known
-as quadriplegic cerebral palsy.
-He has diabetes insipidus.
-He has feeding problems.
-That's all happened as a result
-of the damage caused by meningitis.
-His lungs are the biggest problem.
-When Gwion has a cold, it can turn
-to pneumonia very quickly.
-To stop food
-from going down his windpipe...
-..doctors at Alder Hey Hospital
-have inserted a tube in his stomach.
-That's how he gets his food.
-But this doesn't protect him
-from winter viruses.
-The weather makes a difference
-If it's damp and raining and cold,
-he tends to come in more often.
-Gwion can't walk or move around
-like we do...
-..which means he can't do anything
-on his own.
-and sticks on his lungs...
-..which makes it difficult
-for him to breathe.
-He has to come in to have oxygen
-to help him breathe.
-When Gwion comes to the children's
-ward after the summer holidays...
-that winter's on the way.
-Paediatrics is a seasonal business.
-We're much busier in winter.
-In particular between October
-and the end of February...
-..when the viruses are around.
-Children with asthma
-come in regularly.
-Babies come in with bronchiolitis...
-..which is a specific virus
-that's around in winter.
-We're always busier in winter.
-But when Gwion has a cold...
-..he doesn't just
-have to come in for a few days.
-He's here for weeks.
-I'm here until tonight...
-..and my partner will be here
-tonight until tomorrow.
-We have a three-year-old at home so
-one of us has to be home with her.
-She also works in between.
-They can be quite difficult nights.
-Gwion doesn't sleep well anyway.
-We do it at home and in hospital.
-One of us is up all night.
-It can be quite difficult.
-Between work and caring for Gwion,
-we all struggle.
-After four years of coming here...
-..Dewi Ward is like home from home
-for Gwion's parents.
-The nurses are like a second family.
-I've nursed Gwion
-since he was a baby.
-I've really developed a relationship
-..his parents and the whole family -
-I'm very fond of them.
-You couldn't ask for a better family
-to look after their child.
-Gwion means a lot
-to everyone on the ward.
-We sometimes feel
-as though he's our child!
-We all love Gwion.
-It's so nice to see him go home
-with his parents when he's better.
-It is difficult for us as a family.
-We don't know what's going to happen
-from one day to the next.
-We've been home for a week now...
-..but maybe tomorrow
-things won't be so great.
-For his mother,
-this morning is like so many others.
-She wakes up to another day
-on Dewi Ward.
-We like to do everything for Gwion
-in the hospital.
-We do everything at home
-so we do it in the hospital as well.
-They give him his medication
-but we tend to sort out his food...
-..and anything else he needs.
-Sometimes it's hard being
-in that room seeing him suffer.
-That part is difficult
-from day to day.
-I'll put these in the wash for you.
-I can wash them.
-Are you sure?
-Are you sure?
-Before things get busy, Sister Mel
-has some organizing to do.
-Who's looking after who today?
-I'm going to find out who was here
-yesterday and who knows who.
-I try to allocate the same nurse
-to the same patient for continuity.
-I haven't been here for over a week
-so I don't really know anyone.
-So I'll find out who the girls know
-and then I'll allocate.
-But the doctors are here already.
-Gwion's condition has deteriorated
-so he's their first patient today.
-Hello. He's awake!
-Shall we have a listen
-to your chest then, please.
-Will he be better a bit upright
-with his oxygen levels?
-He's very hard to position.
-I think this is the best position
-So he's got a bit more work
-breathing compared to yesterday.
-Can you see it recessing?
-Let's have a listen.
-Two minutes. Two minutes.
-Two minutes, Gwion.
-I know. Sorry.
-OK. All done. Good boy.
-Just keep up the levels.
-The chest infection
-is getting worse.
-I think we will still
-withhold the x-ray.
-We should do repeat bloods, put him
-on clarithromycin, more physio...
-..and see where we go from here.
-They've been to see him.
-He's completed a seven-day course
-..but because of how
-he's been overnight...
-..they don't think
-the infection has cleared.
-So we're going to try
-..that works in a different way,
-starting from today.
-He doesn't have to be here
-for the seven days.
-What keeps him here
-is the oxygen requirement.
-His parents can do everything else
-They can do the physio
-and give him his medication.
-The oxygen requirement
-is what's keeping him here.
-They don't have home oxygen.
-But they can do the physio, the
-nebulisers and everything like that.
-Gwion always gets over
-Recently, he had a sleep study
-at Alder Hey.
-It showed that when he's healthy and
-doesn't have a chest infection...
-..the level of oxygen in his blood
-overnight is fine.
-It's a good thing that he doesn't
-need oxygen all the time...
-..only when he's not well.
-I sometimes think, "Why us?"
-We just want him to come home.
-We don't want money or a big house.
-We just want the four of us
-to be at home as a family.
-We want to be like normal people
-and have some time at home.
-You want to hope for the best
-for the future.
-But you're also scared
-to think about it too much.
-We don't know how long we have
-We don't know
-what will happen tomorrow.
-You don't want to be too confident.
-Late afternoon and Gwion's condition
-is still causing concern.
-Gwion isn't quite as well
-His condition has deteriorated.
-He needs a lot more oxygen
-The chest physio has come to see him
-and he's had an x-ray.
-On the x-ray,
-the doctor showed me...
-..that the bottom of the lungs
-That could be fluid collecting
-at the bottom of the lungs.
-It could be mucus or other fluid.
-In order to see that,
-he'd need a scan on his lungs.
-Gwion has pneumonia.
-With his life in danger,
-there's no time to waste.
-In order to have
-the best possible care...
-to the intensive care room.
-Mind your backs!
-We tried a lot of things -
-..more pressure in the oxygen,
-physio and different medication.
-Despite everything we tried,
-he didn't get better.
-In fact, he's worsened.
-And again. More?
-Oh, good boy.
-So we made the decision
-to move Gwion to the resus room.
-Now the consultant is here.
-The physio is still here.
-the anaesthetics team...
-..to take a look at Gwion.
-It's important that they assess him
-at the beginning...
-..because if he still doesn't
-improve or gets any worse...
-..we'll be looking at
-giving him general anaesthetic...
-..in order to insert a tube
-to help with his breathing.
-The intensive care team
-is on its way...
-..to put Gwion
-on a life-support machine.
-Sister Mel has to phone
-Darrel and Sara.
-There is a decision to be made
-about Gwion's future.
-They're phoning the anaesthetics
-team to have a look at him.
-Will you phone Sara?
-OK, mate. Bye.
-We've had this two or three times
-Every time, the doctors have
-to ask us as part of their job...
-..if we want to save Gwion
-or let him go.
-Obviously, we know straight away
-that we want to save him every time.
-They have to ask us
-as part of their job.
-It was hard.
-Like every other time, the chance
-of losing Gwion becomes closer.
-That's what we find difficult.
-We now know that there isn't a bed
-in the PICU at Alder Hey for Gwion.
-The North West transfer service
-..is trying to find a bed elsewhere.
-They are also out on another job
-at the moment.
-So we're waiting to hear
-what's going to happen...
-..and where we'll get a bed
-The team has been working
-..caring for him
-and keeping him alive.
-You look tired.
-No, I'm OK.
-How long have you been up?
-and had a little bit of sleep.
-I'm not as tired as I look!
-The doctors were concerned
-because they were at 100%.
-They couldn't do anything else
-His oxygen levels kept coming down.
-They were very concerned
-we were going to lose him.
-He's much more stable.
-He still needs to go to
-an intensive care unit.
-But he's ventilating much better
-than when we started.
-Ysbyty Gwynedd staff
-have done everything they can...
-..but Gwion now needs intensive care
-in a specialist hospital.
-there were no beds anywhere.
-They didn't know if we'd
-have to go to Cardiff, London...
-..Sheffield, Birmingham or Stoke.
-But at the moment
-they're sorting it out.
-They think they might get us a bed
-in Alder Hey.
-That's what we hope. We've been
-there a few times so we know it.
-Hopefully that's where we'll go.
-They have to prepare everything
-and make sure he's stable.
-At the moment, I have to make sure
-his medication is ready to go.
-We can't forget anything
-because it's all so important.
-I went home this morning
-to pack his stuff.
-I saw his little pants
-and it was too much.
-We've done up his bedroom
-with his little bed.
-The thought of going home
-I can't even think about it.
-He's only four years old. We know
-he's not going to live like us.
-But we hope to have
-as much time as possible with him.
-We hope to have much more time
-We just have to keep
-NWTS, the specialist paediatric
-transport team in North Wales...
-..will be responsible
-for taking Gwion to Liverpool.
-Kate, our colleague,
-has done most of the work.
-We've just come along
-and we're just finishing off really.
-We'll just sort out here and then
-we'll move him on to our trolley...
-..so that we can get him
-on to the ambulance.
-Hopefully it won't be too long
-Just making sure
-the parameters are normal.
-Can I give him a kiss
-before he goes?
-Are you heading off?
-Are you heading off?
-No, we're following after.
-We're not moving quite yet.
-You've still got
-a little bit of time.
-We'll get him on the trolley first.
-Don't worry, we're not going to let
-you go without saying goodbye.
-I have a real bond with Gwion.
-I can't imagine life without him.
-It's difficult not to
-because we know how ill he is.
-Every second with Gwion
-is worth so much.
-Shall we move him down slightly?
-Yes, shall we move him down
-a little bit?
-Tell me when.
-Do you know if it comes off?
-I don't think so.
-That's alright, then.
-This part is difficult.
-Seeing him go and not being allowed
-to go with him.
-We just want to make sure
-he arrives in Liverpool safely.
-It's a very long hour.
-Who's driving who?
-Sara is going to drive.
-We're going after him.
-When they get to Liverpool, it takes
-two or three hours to set things up.
-There's no point in rushing. We have
-to go home to sort out our clothes.
-Then we'll follow.
-Even when we get there, he probably
-won't have been set up properly.
-There's no point rushing
-..in case we have an accident.
-He's like a member of the family.
-He's part of the family.
-He likes to be naughty
-when I'm here.
-He loves it.
-People are so quick
-to criticize this place.
-But unless they know the nurses and
-the people here, they have no right.
-They don't know them.
-We expect a lot of children
-with chest infections...
-..at this time of year.
-Obviously, Gwion is in and out
-with his chest.
-We're in for a bad winter, I'd say.
-We're here to help
-as much as we can.
-Gwion always has to be
-Have you seen him this bad before?
-When he was in as a baby,
-he was really poorly.
-Three years running,
-we've been in this situation.
-We don't like seeing him like this.
-Normally, the Optiflow works.
-But not this time.
-It'll be good for him to have a rest
-Let the machines do the work.
-See you in Liverpool, OK?
-It's only an hour. Make sure
-you behave! No funny business.
-Dad and Mam love you.
-Gwion is such a happy child.
-I wouldn't change him for the world.
-He's been through so much.
-It's a pleasure to be with Gwion.
-He's such a happy boy.
-He has his own little personality.
-That's what makes Gwion so special
-You're not going to leave us,
-You're not going to leave Dad,
-Gwion was fighting for his life for
-four weeks at Alder Hey Hospital.
-He was on a life-support machine
-during that time.
-After two months in Liverpool...
-..he was allowed to come home
-to his sister.
-S4C Subtitles by Testun Cyf.