Lucy Alexander Matron, Medicine and Me: 70 Years of the NHS


Lucy Alexander

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70 years ago plans for revolution took place,

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that changed all of our lives in Britain.

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We're out to improve the health of every family and the whole nation.

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Its name? The National Health Service.

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We're taking a look at the NHS, then and now...

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-OK, adrenaline.

-He's had 6 adrenaline.

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..to see how much it's changed...

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Is that real?

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..to meet staff and patients...

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Let me help you out.

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Sorry, it's my first day here.

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..with extraordinary medical stories.

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You died, basically.

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For three minutes, yes.

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It's quite emotional seeing you.

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Thank you.

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Surprise!

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-ALL:

-Surprise!

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I'm Lucy Alexander.

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Without the NHS I don't think my daughter would be alive today.

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Can you just spin?

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LUCY LAUGHS

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'I want to say thank you to the medical team that saved her life.'

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-Being on a life-support machine...

-You're going to make me cry.

-I know, I know.

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Mornings start like everyone else's in our house -

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getting the family up, fed, and out to school.

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This is my husband, former premiership footballer, Stewart...

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Oh, looking good, mate. Breakfast is ready, though. Come on.

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..our equally footie-mad son, Leo,

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and the dog, Teddy.

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-Kitty, have you got your blazer?

-Yeah.

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'Oh! And running late again is Kitty, our teenage daughter.'

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I always have to take a cup of tea on the school run

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because I get really thirsty.

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He normally, like, runs around,

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acting crazy, normally, when he first goes out.

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He's usually doing laps and just barking his head off.

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-Normally at the cats next door.

-Yeah.

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Quickly, quickly, quickly, quickly.

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Quick, quick, quick, quick, quick!

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All right, Kits?

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-Good girl. All sorted?

-Yeah.

-Yeah?

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See you later, guys.

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Have a good one. See you.

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Ooh, yeah - it's freezing this morning, isn't it?

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'On the way to school, we talk about the normal stuff.'

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Have you done all the homework you were supposed to have done?

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-I think so.

-Well, that's not good enough.

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'But after I've dropped them off and I'm on my own...'

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Love you.

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'..the route home always reminds me of an event, seven years ago,

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'that changed our lives.'

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We're coming up, here, to Kitty's little primary school,

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which is just up here.

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And, erm, I'd sent her to school that morning,

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but she was saying to me, "Mum, my legs ache. I feel funny."

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Anyway, so I went off, and halfway through my spinning class,

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a lady from the gym came in and said,

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"Kitty's school is on the phone.

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"You've got to get to school, now.

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"She's screaming. She's really ill."

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And I, I...thought, "What? My God!"

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So I jumped off my bike...

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and, erm...literally ran home,

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grabbed the car,

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got to school...

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..and when I saw her she was laying out on this...sickbed, at school.

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And she looked like something serious had happened.

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You know, it just...it looked like she'd had a stroke.

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She just looked...really not very good.

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SHE SNIFFS

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It's still really hard talking about it.

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In a panic I phoned Stewart, and we brought Kitty to our local A&E

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where she was seen immediately.

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What happened next, I'll remember for the rest of my life.

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It was then they discovered, when they were doing the test,

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where they get the little thing and they bang your knee

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to see what your reactions are,

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and her leg wasn't moving.

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Nothing was moving.

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And I just, instantly, saw the looks on their faces of sheer panic.

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And then we were just blue-lighted to a London hospital, immediately.

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And that's when they said, "This is seriously wrong.

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"We think she's paralysed."

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With those words all our lives changed forever.

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Kitty had transverse myelitis -

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a rare neurological disorder where the body's immune system reacts to

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an infection, causing inflammation and scarring in the spinal cord.

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It's a disease that affects those who have it in different ways,

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and for Kitty it took away her ability to walk.

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But it could have been so much worse.

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As the weeks and the months went by, she didn't make very much recovery.

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And she ended up having to

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go on a life-support machine because she caught pneumonia.

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She had two pneumothoraces which needed to be operated on.

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She had to have chest drains, and she was, you know,

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in the PICU ward, at the Evelina, fighting for her life at one point.

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And we, at that point, really honestly,

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didn't know whether she was going to pull through.

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She was so, so ill.

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Luckily, I had Stewart to support me.

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Back at the house, we're taking the chance to look through

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some old photos of Kitty.

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This first one's a killer. I mean look at her...

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She's winning hands down - winning the sports day.

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She came back with all first, first, first badges, all over her T-shirt.

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See, when I look at that picture of Kitty running,

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I see you and Leo...and the athlete that she was, wasn't she?

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Yeah, she was unbelievable.

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When you go from that, gleaming little seven-year-old...to that...

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So that was the first day. That was, that was hours

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after she was taken into hospital.

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And we still didn't quite understand the enormity of what was happening.

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-Look at her. She's so happy. I mean, you can see her face...

-She looks...

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She doesn't know what's about to happen to her.

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We didn't, for a minute, think it was going to be something as...

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as huge and as devastating as what happened.

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God...

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-It's quite...

-And talking of devastation, I mean, that's it.

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She went downhill pretty quick afterwards, didn't she?

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She ended up in intensive care.

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That picture is something that...I haven't looked at for...

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-about seven years.

-Mmm.

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This is where the inflammation is shown on the spinal cord,

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So, you can see the shaded area -

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that's where the messages aren't getting through from the brain.

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So this is transverse myelitis.

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This is the effect of the attack that she had, yeah.

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-That's an incredible picture.

-I know.

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You can see it, in black-and-white.

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-Has Kitty ever seen that?

-Yeah.

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-Has she seen that?

-Yeah, I've talked her through it.

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That's the same as if she'd been in a car crash

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or fallen off a horse.

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Ultimately...it's a spinal cord injury.

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For a while we just didn't know whether Kitty would survive,

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let alone walk again.

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Fortunately, she was in the right place, under the care of the NHS.

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Coupled with her incredible fighting spirit,

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she started to make a slow but steady recovery.

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It's amazing looking at her doing all that rehab,

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because look how far she came in six months.

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And, look - her school journey she went on with her school.

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This was still less than a year after...

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-I know.

-..her injury. And she's up there, she on a zip wire.

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I mean, she's just such a great kid.

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Of course, Kitty wouldn't have made it if it was not for

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the National Health Service.

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Over the next few days I want to find out how children's health care

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has evolved through the years, from days when having a condition

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like hers probably would have meant a painful death,

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through the major developments made possible by the NHS.

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And my journey begins in the children's hospital

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where Kitty was treated.

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Today, Stewart and I are going back to Evelina, London.

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It shares a site and history with St Thomas' Hospital, next door,

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which was built here way back in 1869.

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And where Florence Nightingale herself was a member of staff.

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She founded a school of nursing and midwifery here,

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which became renowned all over the world.

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In 1948, St Thomas' was one of over 2,000 hospitals

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taken under full control of the brand-new NHS.

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St Thomas' hospital has changed a lot over the last 70 years.

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And, in 2005, Evelina London,

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a dedicated children's hospital, was opened next door.

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They look after 50,000 young patients a year,

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all with families desperate for help and support.

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It was here that Kitty was first treated,

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and where we spent around three months.

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It all started in the PICU Ward - paediatric intensive care.

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Today we've been invited back,

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and it's the first time we've been in the ward since Kitty was admitted

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seven years ago.

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Oh, God.

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I don't actually like...

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Don't actually like this.

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-No.

-It's quite emotional, actually. I feel...I do feel...

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..funny.

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I'm actually shaking.

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Come on.

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MACHINES BEEPING

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You just hear the "beep, beep, beep."

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It's just all the "beep, beep" - all the machines. You could...

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-It's bringing it all back.

-Yeah.

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-It was always really quiet.

-Mmm.

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It was over there, wasn't it? In the far corner.

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-God.

-Are you OK?

-Yeah, I'm all right.

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And I remember I was all right, after we got over the initial shock.

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-Yeah.

-And we ended up...quite liking it here.

-I was going to say,

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I think, weirdly, it gave us comfort -

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being surrounded by all of these people,

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and everybody's in the same boat.

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It's strange being back, but we're not here long before we have

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the comfort of a familiar face -

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Kitty's nurse, Suze Andrews.

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-It's good to see you.

-Nice to see you!

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-Hello.

-I can't believe it -

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I didn't expect any of the same nurses to be here at all.

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How are you? It's so nice to see you.

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I know, it's good to see you. Is the rest of the gang here?

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There's quite a few people here, yeah. There's a few of us around.

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Seeing your face is just, like,

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taking me back there a bit, in a lovely way,

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because I know you had such a huge input into her recovery.

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-How's Kitty doing?

-She is doing really well.

-She's doing amazing.

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Shall I show you some pictures?

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Some updated pictures? There you go. This was her...

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-not long ago.

-Oh, great!

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-She's thriving.

-I know. Can you believe she's just, like,

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-a teenager?

-Amazing.

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It's moving, being back in the place where Kitty was at her most ill.

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Here, in the intensive care unit,

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we really didn't know if our little girl would live or die.

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Ah, hello! How are you?

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Lead consultant for all of Kitty's care at Evelina London

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was Doctor Ming Lim.

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He still keeps track of all her progress,

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and it's great to bump into him again.

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I can remember when Kitty was first diagnosed,

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and getting the laptop out, and I was reading every...

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every paper, all the documentation, and you were great...

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You know, these conditions are very rare. In a year,

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in the whole of the UK, we would probably see 20 or 30 patients

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with this condition.

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So, Ming - come on, be honest, in all honesty,

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have you ever met another dad like Stu, because we can tell him now,

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he was actually doorstepping you, at one point.

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I have to admit I actually thought it was by chance rather than him

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stalking me!

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Oh, no - sorry about that.

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-But it was all for the greater good, you know that.

-Yes.

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No, that was well appreciated.

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Only because, as you said, it's a rare condition

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and he's actually doing all the hard work for me.

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It's like having a research assistant, so it's very...

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-Professional.

-Yeah.

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It was another paediatrician,

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the quietly spoken Doctor Andrew Durward, who was with us

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when we faced the ultimate decision about Kitty's health.

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I think the moment that I really remember the most,

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out of the whole of this journey, was you coming up to Stewart and I

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and saying, "Listen, guys, this is really important,

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"the day we take her off the ventilator -

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"and today is that day."

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Kitty's life was in your hands.

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I mean, she was artificially breathing from a machine, here.

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-She was on a ventilator, wasn't she?

-And, you know, at any point, I mean,

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it's the last place you are before you end your life.

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And...God, we were scared.

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Did you ever have a flicker of worry that this wasn't going to work out?

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Always.

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We don't have the tools in medicine to predict 100% whether you

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succeed or fail on a ventilator.

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The difference is being prepared for all the different options,

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and to pick the best moment so that we're maximising the chance.

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Andrew, I need to know - what was it about the actual day, the time?

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Why did you say, on that day, at that time,

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"this is what we're going to do - Kitty is coming off that today"?

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I think everything here is teamwork.

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And we all, as a team, sat there and said,

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"Right, she's showing enough strength to try and get her off."

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Her life was in the balance,

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and I think it's moments like that that makes us appreciate that,

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even though she's in a wheelchair now,

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we could have lost her.

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She could have gone, and we've still got her.

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And that helps us get through day-to-day life as it is now,

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that she's leading a happy, healthy life.

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I think a lot comes down to character.

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Going through the hurdles, the physiotherapy,

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all the hard work to rehabilitate, to actually get out of here,

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and we've seen that in patients who end up, like her, doing so well,

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even knowing what they've been through.

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They have that resolve, from the word go.

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You did an outstanding job.

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Honestly, it's quite emotional seeing you.

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-Thank you.

-Thank you so much.

-You are a man we talk about often,

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at the breakfast table, when we're all talking about it.

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You do such good work here.

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-Thank you.

-And if I could jump over and hug you now, I would.

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Come on - do it anyway. He's a top man.

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-Thank you so much.

-Thank you, Andrew.

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-Thank you.

-Seriously, from the bottom of our hearts, honestly,

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you are very special to us.

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-It's a pleasure.

-I'm glad we've had this chance to see you again.

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Thank you.

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It would be impossible to say thank you to all the people who helped us

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at Evelina London, but this morning has given us some sense of closure.

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While Stewart heads off to pick up the kids from school,

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I've headed across to Evelina's next-door neighbour, Saint Thomas'.

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The Royal Dalton tiles that lined the original children's wards

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are still displayed proudly on the walls,

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and it makes me wonder what Kitty's experience might have been like

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before the NHS.

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Children's health care back then was a bit of a lottery.

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No-one would deny that bad housing, poverty and overcrowding

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are evils that contribute to ill health.

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Before the Second World War, poor living conditions and nutrition

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meant childhood epidemics like polio and diphtheria thrived.

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This boy is not expected to live.

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He was not immunised.

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And while there were famous hospitals like Great Ormond Street and Evelina,

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these were for the lucky few.

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I'm meeting up with historian Dr Tanya McIntosh to find out

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how things would have been for children and parents back then,

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before the NHS ever existed.

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There wasn't this idea that if you were sick you went into hospital.

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The hospitals that there were for children tended to deal with

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slightly older children, so if you were, sort of, under five,

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they wouldn't have wanted to know about you. They thought they were

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babies and they were better off at home with their mothers.

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They also only really looked after children with short-term conditions,

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so, perhaps, if you broke your leg

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you might be taken into a children's hospital,

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but if you had a chronic condition or a long-term condition,

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you would be looked after very much at home.

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This is a world away from what happens at the likes of

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Evelina London, where children of all ages,

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including babies and infants, are treated.

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But it's not just the little ones

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for whom the hospital experience has been revolutionised.

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Before the NHS, if a child was in hospital,

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they might be visited once a week by their parents,

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if the hospital was really, really generous.

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It could be once a month if they were in for a long time,

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or quite a few hospitals had a policy of

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absolutely no visiting at all by anybody to the children who were in.

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-Oh, I mean, that's just heartbreaking to think.

-Yeah.

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I spent so much time here with my daughter,

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laying next to her on a pull-out bed, I can't bear to think that,

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you know, Mummy wouldn't have been around.

0:16:590:17:01

So how did it affect those poor kids? I mean, how did they cope?

0:17:010:17:04

Well, really interestingly,

0:17:040:17:06

the hospitals thought they coped really well,

0:17:060:17:08

cos what they saw was young children coming into hospital,

0:17:080:17:12

being really upset, crying, being sad, looking for their parents.

0:17:120:17:17

And then after a while, when the parents didn't turn up,

0:17:170:17:21

they'd go quiet.

0:17:210:17:22

And the hospitals would think, "OK, they're all right now.

0:17:220:17:26

"They're quiet. They're settled. They're fine. It'll be OK."

0:17:260:17:29

What they didn't really seem to see was that, actually,

0:17:290:17:32

what you had was children feeling despair.

0:17:320:17:35

They, kind of, put all of those feelings in themselves,

0:17:350:17:38

and lost hope that somebody would come back for them.

0:17:380:17:41

So there was no sense that they were doing something that was wrong.

0:17:410:17:45

I can remember Kitty being on a life-support machine,

0:17:450:17:48

at the Evelina hospital,

0:17:480:17:49

and they told me to get in bed with her, lay next to her, cuddle her.

0:17:490:17:53

She can still hear you, even though she looked out of it.

0:17:530:17:56

And it did. Her sats went up,

0:17:560:17:58

and we were all so surprised and I kept cuddling her.

0:17:580:18:01

And she could hear me.

0:18:010:18:02

She needed the Mummy touch, and she needed to hear my voice.

0:18:020:18:04

They were always very worried about infection so they thought

0:18:040:18:08

if we keep people away we'll have less infection.

0:18:080:18:11

But one of the other things that they were concerned about

0:18:110:18:13

was anxious mothers disrupting the routine, making nursing difficult,

0:18:130:18:19

making children sad and emotional.

0:18:190:18:21

So they decided, actually, the easiest way to deal with it

0:18:210:18:23

was to just keep parents well away.

0:18:230:18:26

And it took a long, long time to change that.

0:18:260:18:30

It took some real campaigning, by women's groups as well as

0:18:300:18:34

psychologists, to say that,

0:18:340:18:36

actually, we're causing children some real harm, here,

0:18:360:18:40

by not letting their parents be with them

0:18:400:18:42

when they're at their most vulnerable and really need somebody.

0:18:420:18:46

And it was the NHS that started the revolution.

0:18:460:18:50

-ANNOUNCER:

-On July fifth, the new National Health Service starts.

0:18:500:18:54

The new service promised a fresh start for children's health

0:18:540:18:57

in the UK.

0:18:570:18:58

'Have you chosen your family doctor?

0:18:580:19:00

'If not, ask your doctor now

0:19:000:19:02

'if he'll you look after you under the new scheme.'

0:19:020:19:05

In the wake of World War II, Britain desperately needed to rebuild.

0:19:050:19:08

Over 450,000 people had been killed in the war,

0:19:080:19:12

and hundreds of thousands more were injured.

0:19:120:19:14

The country needed healthy boys and girls

0:19:140:19:17

who could go up to become productive adults.

0:19:170:19:19

Our plan is a service which will provide the best medical advice and

0:19:190:19:24

treatment for everyone - every man, woman and child in this country.

0:19:240:19:28

And it worked. Over the last 70 years,

0:19:280:19:31

thanks to advances in maternity and antenatal care,

0:19:310:19:34

infant mortality rates have been slashed by over 90%.

0:19:340:19:37

And many childhood diseases, once so prevalent in the UK,

0:19:370:19:41

have been eradicated.

0:19:410:19:42

Back in the present, it's like the bad old days never existed at all.

0:19:450:19:49

Four-and-a-half-month-old Ruby is recovering from life-saving surgery.

0:19:540:19:58

She's been intubated for six days, and her mum, Amelia,

0:19:580:20:01

hasn't left her side.

0:20:010:20:03

Amelia, it's so lovely to meet Ruby.

0:20:030:20:06

She's absolutely gorgeous.

0:20:060:20:08

-So, she's intubated.

-Yeah.

0:20:080:20:11

What happened? What's the story?

0:20:110:20:13

At my 20-week scan they found out that she had a hole in her heart.

0:20:130:20:16

They've managed to close the hole,

0:20:160:20:18

but there is just a tiny bit of it still.

0:20:180:20:21

So before she was even born, you knew this was going to happen?

0:20:210:20:25

Yeah. We've known for a very long while.

0:20:250:20:27

I know you've got a book down there,

0:20:270:20:29

and I have got one almost identical for my daughter, Kitty.

0:20:290:20:33

Show me what you've done so far.

0:20:330:20:35

So I put some little bits on the front to make it pretty,

0:20:350:20:37

and some animals.

0:20:370:20:39

And then I've left spaces in here for photos,

0:20:390:20:41

but I've just been writing each day what's gone on, from start to end.

0:20:410:20:46

And I've had some of the nurses write in.

0:20:460:20:48

I know from experience that keeping a patient diary

0:20:480:20:51

provides a lot of comfort.

0:20:510:20:53

It's an idea that was originated here,

0:20:530:20:55

and has now been adopted nationally.

0:20:550:20:57

Hopefully today will provide lots of material,

0:20:570:20:59

because in a few hours Ruby may be breathing for herself.

0:20:590:21:03

Are you nervous? Are you excited?

0:21:030:21:05

It's quite a big day, isn't it, when they take the tube out?

0:21:050:21:08

I've been through the same thing with my daughter.

0:21:080:21:10

I don't know, they've kept me so calm and...

0:21:100:21:12

-It's just lovely.

-You seem really calm.

0:21:120:21:15

I think you have to be.

0:21:150:21:17

I think if I keep calm...it just makes things seem like they're getting better.

0:21:170:21:21

And what's the one thing you're most looking forward to?

0:21:210:21:24

Having a cuddle!

0:21:240:21:25

Aw... She's so lovely.

0:21:250:21:28

I might have to have a cuddle before I go - I'm sorry.

0:21:280:21:31

If she's off, I'd be more than happy.

0:21:310:21:34

-Good luck. Good luck.

-Thank you.

0:21:340:21:37

It wasn't just newborns the NHS was committed to taking care of,

0:21:370:21:41

from the off, and through its long history,

0:21:410:21:43

the relatively recent medical field of paediatrics have been

0:21:430:21:46

at the heart of the service -

0:21:460:21:48

everything from research into childhood illnesses

0:21:480:21:51

to mass inoculation programmes and free fillings.

0:21:510:21:55

The health of the next generation, under the NHS,

0:21:550:21:57

has improved dramatically.

0:21:570:21:59

Millions of you have got the spectacles you needed.

0:21:590:22:02

And tens of millions of you have visited the doctor under the scheme,

0:22:020:22:05

and got your medicine.

0:22:050:22:08

Wahey!

0:22:080:22:10

Today, paediatrics has grown to be one of the NHS's biggest and

0:22:100:22:14

progressive departments,

0:22:140:22:15

with children at the centre of everything.

0:22:150:22:18

The wards at Evelina London

0:22:180:22:19

were even designed with the help of children,

0:22:190:22:22

who advised against long straight corridors which were seen as scary.

0:22:220:22:26

There's a cinema, a school and, in wards like Savannah,

0:22:260:22:30

where Kitty spent three months recovering,

0:22:300:22:32

plenty of toys and games.

0:22:320:22:34

Underneath the fun, though, is serious health care,

0:22:340:22:37

as play specialist Julie Ainsworth explains,

0:22:370:22:40

while Cameron thrashes me at Connect Four.

0:22:400:22:42

What do you think the importance of play therapy is?

0:22:420:22:45

I know you've been doing it for many years. How many years?

0:22:450:22:47

-34.

-Oh! 34 years.

0:22:470:22:49

I've stopped you from making a line.

0:22:490:22:50

Oh! You're concentrating.

0:22:500:22:53

Obviously, this is an alien environment,

0:22:530:22:56

so the things that actually are very normal are

0:22:560:23:00

games and television and DVDs.

0:23:000:23:03

It actually gives the children security to know that, actually,

0:23:030:23:06

they're getting better.

0:23:060:23:07

Certainly, in some children's cases,

0:23:070:23:09

where they're not being able to speak to us, or let us know,

0:23:090:23:12

if they're doing something that makes them smile,

0:23:120:23:15

or brings some kind of joy into their life, it's obviously all worthwhile.

0:23:150:23:19

And have you had a good time playing lots of games

0:23:190:23:21

-since you've been in here?

-I've won.

-What?

0:23:210:23:23

You're too good at this! I'm not concentrating.

0:23:230:23:26

Up until yesterday you were in PICU, weren't you?

0:23:260:23:28

-Yeah.

-Yeah.

-Were you in PICU?

-Yeah, he was in PICU.

0:23:280:23:31

Is it good being back up here, now, though?

0:23:310:23:33

-Are you having a nicer time, playing with all the games?

-Yeah.

0:23:330:23:36

As well as advances in paediatric care,

0:23:360:23:38

by the '60s, the NHS had developed a new attitude

0:23:380:23:41

towards parents visiting their children while in hospital.

0:23:410:23:44

-ANNOUNCER:

-If you've ever been in hospital you'll

0:23:440:23:47

recognise the symptoms - yes,

0:23:470:23:48

Jane's been got ready for visitors.

0:23:480:23:49

Even Sister's helping with seven-year-old Marlin's pretty hair.

0:23:490:23:52

Suzanne's a lucky one, and so is ten-year-old Graham -

0:23:520:23:55

he's glad he made such a thorough job of cleaning his teeth.

0:23:550:23:57

Marlin's not forgotten - though Mummy and Daddy are too far away

0:23:570:24:00

to see her, she's not allowed to feel neglected.

0:24:000:24:02

That's where the art of nursing comes in.

0:24:020:24:05

Today, recovery rates for kids like Lauren are helped by having

0:24:050:24:08

Mum constantly around, although I know only too well

0:24:080:24:12

it's a tiring business.

0:24:120:24:13

She's starting to enjoy herself because she's on her feet now.

0:24:130:24:16

She's giggling. Look at you laughing!

0:24:160:24:18

It's quite funny, cos I did pass Lauren in the corridor earlier -

0:24:190:24:22

you could not have crammed any more pens into her arms!

0:24:220:24:25

MUM LAUGHS She was literally running up the corridor.

0:24:250:24:28

So how are you feeling?

0:24:280:24:30

I'm really tired.

0:24:300:24:31

Tell me, are you sleeping on that bed that's in the cupboard?

0:24:310:24:34

-It's not bad.

-What?!

0:24:340:24:36

-It does the job.

-I slept in that and it killed my back!

0:24:360:24:39

But it does the job,

0:24:390:24:41

and it's something that a lot of hospitals don't have.

0:24:410:24:44

There's not much you can do about sleep when your child is ill.

0:24:440:24:47

It does take its toll on you.

0:24:470:24:49

And you are feeling supported?

0:24:490:24:51

Yes, I am. 100%.

0:24:510:24:52

Because I want to go home today, and they said no. They're not finished.

0:24:520:24:56

You're so tired, you want to go home to have a sleep!

0:24:560:24:58

I want to go to bed! My own bed!

0:24:580:25:01

I get that. I can remember.

0:25:010:25:03

-Oh, dear...

-I understand.

0:25:030:25:04

I remember so well that feeling of stress and exhaustion,

0:25:100:25:14

and the parents' kitchen was a place I would often come and escape.

0:25:140:25:17

But watching the rest of London get on with their lives

0:25:170:25:20

made me long for normality.

0:25:200:25:23

I also contemplated the consequences of what happened to Kitty,

0:25:230:25:26

and how we would cope, as a family, with her new disability.

0:25:260:25:30

Our experiences with the NHS have been overwhelmingly positive,

0:25:300:25:34

but I want to know if that's always been the case.

0:25:340:25:37

Over the years, how disabled adults and children have been treated has,

0:25:400:25:45

like other areas of health care, changed and developed.

0:25:450:25:48

This is Noel swimming, there - he's paralysed from the waist down.

0:25:480:25:52

It's pretty difficult to think of any greater disaster than this,

0:25:520:25:55

which we call paraplegia.

0:25:550:25:56

But to know the real story,

0:25:570:25:59

you have to hear from those who have lived through it.

0:25:590:26:02

I've arranged to meet some people who have grown up throughout

0:26:020:26:05

the NHS's history,

0:26:050:26:07

and whose conditions have given them a lot of experience of its care.

0:26:070:26:11

Hugh and Margie were diagnosed with cerebral palsy during the '50s.

0:26:110:26:16

Mansur was diagnosed with muscular dystrophy in the late '80s.

0:26:160:26:20

They weren't treated here,

0:26:200:26:21

but they've kindly agreed to meet me in a cafe at St Thomas'.

0:26:210:26:25

While Molly, Margie's canine partner, settles down for a lazy

0:26:250:26:28

afternoon, I'm interested to find out their experiences.

0:26:280:26:32

I was at the beginning of the NHS, so it was all new ground.

0:26:320:26:37

There was only one unit in the whole of the country that specialised in

0:26:400:26:46

cerebral palsy. I'll tell you something -

0:26:460:26:48

when I was diagnosed with cerebral palsy, around two and a half,

0:26:480:26:54

I was told that I would never be able to hold a conversation,

0:26:540:26:59

never be able to read, write or anything.

0:26:590:27:02

They told my parents to go away, leave me there

0:27:020:27:06

and go and have another child.

0:27:060:27:08

That's what they were told.

0:27:080:27:10

So, Hugh, were your parents away from you?

0:27:100:27:13

Could your parents come and visit you? Did you see much of them?

0:27:130:27:17

You're talking mid-'50s and transportation was very limited.

0:27:170:27:22

So, I got to see my parents about once every 6 to 12 weeks.

0:27:220:27:29

And can you remember being removed from your mum and dad

0:27:290:27:32

and, all of the sudden, not seeing them so much?

0:27:320:27:35

It broke my heart, basically.

0:27:350:27:36

We weren't even allowed to talk to our parents.

0:27:380:27:41

They said it was bad for us.

0:27:410:27:42

The plus side is it made us very strong.

0:27:440:27:48

It made us... But it pulled us away from our families.

0:27:480:27:52

I lost nearly 90% of my family life,

0:27:520:27:55

because of my education, basically.

0:27:550:28:00

But it made me a very strong person.

0:28:000:28:03

That makes me feel so sad, to hear that from you.

0:28:030:28:08

And, you know, I've been through a terrible trauma with my own child

0:28:080:28:13

and I cannot imagine...

0:28:130:28:15

..leaving her and going away somewhere.

0:28:160:28:18

And I'm so sorry that you had that experience.

0:28:180:28:22

Well, I grew up with it,

0:28:220:28:25

so I learned to adapt.

0:28:250:28:27

I learned to become independent,

0:28:270:28:29

and I learned to live on my own

0:28:290:28:31

and...get on with life.

0:28:310:28:33

You know, I've...

0:28:330:28:35

I've got two degrees,

0:28:350:28:37

I did it off my own back.

0:28:370:28:39

I've flown around the world on my own.

0:28:390:28:42

I've done far more than my brother and sister have ever done

0:28:420:28:45

in their lifetime.

0:28:450:28:46

I've been married for 23 years.

0:28:460:28:49

So...no, I don't regret it.

0:28:490:28:52

So, it's hard to think way back,

0:28:520:28:55

but do you think the attitudes have changed today, you know,

0:28:550:28:58

the NHS and how people now think or deal with disability?

0:28:580:29:03

I mean...how do you feel, Margie?

0:29:030:29:05

Well, part of me, I mean, when I first, kind of...

0:29:050:29:09

..looked into the NHS was when I was about 16.

0:29:100:29:15

My mother had conned me into going to see this consultant.

0:29:150:29:22

She said, "Now, Margie, don't be difficult.

0:29:220:29:24

"I want you to come and see this doctor.

0:29:240:29:26

"There's a new treatment for cerebral palsy".

0:29:260:29:30

By which time, I was quite happy being me with CP.

0:29:300:29:33

I was getting on. I was OK.

0:29:330:29:36

So I thought, "Oh, all right."

0:29:360:29:37

And, basically, he was going to take the top of my head off,

0:29:370:29:41

shove a few electrodes in,

0:29:410:29:44

give it 240 volts,

0:29:440:29:46

put it all back together and say, "Right, there you are".

0:29:460:29:51

So I said, "Hang on a minute. Hang on.

0:29:510:29:54

"This is MY head - can I ask a few questions?"

0:29:540:29:58

I said, "What are the odds?"

0:29:580:30:00

-And, eventually, he said, "50/50".

-LUCY GASPS

0:30:000:30:03

So I said, "Right. Come on, Mum - let's go. I'm off".

0:30:030:30:08

You were out that door.

0:30:090:30:11

But, yes, things have improved.

0:30:120:30:15

They have, to a certain extent.

0:30:150:30:17

There's always room for improvement, Margie,

0:30:180:30:20

but you've always got Molly to come home to -

0:30:200:30:23

your beautiful little dog that's so good, that's down there.

0:30:230:30:26

She comes with me.

0:30:260:30:27

She comes with me into the hospitals,

0:30:270:30:30

so I get preferential treatment

0:30:300:30:32

cos all the nurses like to say hello to Molly.

0:30:320:30:35

Without Molly, I'd have to have a human being round all the time,

0:30:350:30:39

-which would be awfully boring.

-SHE LAUGHS

0:30:390:30:42

Unfortunately, the rights for

0:30:420:30:44

people with disability have often had to be fought for.

0:30:440:30:47

-What do we want?

-We want our rights!

-When do we want them?

-Now!

0:30:470:30:51

In the 1960s and '70s,

0:30:510:30:53

the civil rights movement in America inspired disabled groups to take

0:30:530:30:57

direct action against discrimination.

0:30:570:31:00

This encouraged a change of attitude to disability here,

0:31:000:31:03

and, eventually, a new Disability Discrimination Act

0:31:030:31:06

was passed in 1995, when Mansur was ten.

0:31:060:31:10

So, what about your experiences, Mansur?

0:31:100:31:13

I've had a, kind of, a long journey with the NHS

0:31:130:31:16

and had some positive experiences as well.

0:31:160:31:19

I used to get chest infections quite often,

0:31:190:31:22

so, you know, you'd have to go to your GP or the A&E

0:31:220:31:25

and so it, kind of, used to be quite late into the onset

0:31:250:31:29

of my chest infection to actually get into hospital.

0:31:290:31:33

And then one year they recommended this red card system,

0:31:330:31:38

where the GP would be allowed to issue, kind of, an emergency card

0:31:380:31:42

that would fast-track me into the relevant ward.

0:31:420:31:46

So that red card definitely helped to bridge that gap.

0:31:460:31:50

It literally depends on

0:31:500:31:53

which hospital you go to...how you get treated, basically.

0:31:530:31:58

And I went to one hospital and they...

0:31:580:32:02

they were scared of me.

0:32:020:32:04

Really?

0:32:040:32:05

Absolutely petrified of me.

0:32:050:32:08

I was in a lot of pain and they didn't know what to do.

0:32:080:32:12

And yet, I went to another hospital

0:32:130:32:15

and it was the completely opposite effect.

0:32:150:32:17

They were asking me what I wanted,

0:32:170:32:21

how I needed it and what I wanted to do about it.

0:32:210:32:25

So that's the difference between two hospitals in the same area.

0:32:250:32:30

Just two different hospitals.

0:32:310:32:34

The medical profession is trying to improve its image.

0:32:340:32:38

It's always been difficult for them.

0:32:390:32:41

If they can't cure you, which, in our cases, you can't...

0:32:410:32:46

..then you have to work WITH us.

0:32:470:32:50

And that, surely, is their ethos.

0:32:510:32:54

They can't cure you, but they can support you through life's changes.

0:32:540:33:00

And, if anything comes of learning through history,

0:33:000:33:06

I'm sure that's the lesson that they ought to come home with.

0:33:060:33:10

I don't think I've ever met three more interesting people, characters.

0:33:100:33:15

They've all got their own individual character.

0:33:150:33:17

It was heartbreaking talking to Hugh, though.

0:33:180:33:21

That really, actually, did make me want to cry

0:33:210:33:24

and just...leap out my seat and hug him.

0:33:240:33:26

To think of what he went through.

0:33:260:33:29

To be that institutionalised.

0:33:310:33:32

But how they're all living such full lives, now, is amazing.

0:33:340:33:38

And I just loved having that chat.

0:33:390:33:41

It's been an emotional and fascinating look back

0:33:430:33:45

on the NHS's past,

0:33:450:33:47

but before I leave St Thomas' and Evelina London,

0:33:470:33:50

there's someone I must check up on -

0:33:500:33:53

brave little Ruby.

0:33:530:33:54

She's just come off the ventilator.

0:33:590:34:01

Mum's about to get her first cuddle in a long time.

0:34:010:34:05

RUBY COUGHING

0:34:050:34:07

Oh, good coughing. Good girl.

0:34:070:34:10

-Hey...

-Good coughing.

0:34:120:34:14

Good girl.

0:34:140:34:16

Hello.

0:34:200:34:22

Say hello.

0:34:250:34:27

Yeah.

0:34:270:34:29

You got my finger?

0:34:290:34:30

Can I just have a little hello?

0:34:320:34:34

And...congratulations.

0:34:340:34:36

Hello, beautiful girl.

0:34:360:34:38

How does it feel?

0:34:380:34:40

-Great.

-To hug her. How long's it been?

0:34:400:34:42

-Erm, nearly a week.

-Oh...

0:34:420:34:45

Hello.

0:34:450:34:46

-Well done.

-Good girl.

0:34:470:34:49

Yeah...

0:34:490:34:51

-Look at all these people.

-I'm really glad I've been around to see that,

0:34:510:34:54

-because it's been quite special.

-Yeah.

0:34:540:34:56

To think, six days ago she was having heart surgery,

0:34:570:35:01

then she was on a ventilator.

0:35:010:35:03

I feel so honoured to have been here whilst having the tube taken out

0:35:030:35:07

and see Mum kiss her for the first time in ages.

0:35:070:35:10

Oh...happy person.

0:35:110:35:13

Well, it's time to get back to my own little girl.

0:35:180:35:20

Not that Kitty's little any more.

0:35:200:35:22

Since leaving hospital seven years ago,

0:35:220:35:25

she's grown up to be a little lady,

0:35:250:35:27

played sports and become a teenager.

0:35:270:35:29

She leads as active life as anyone her age.

0:35:290:35:33

And a lot of that is thanks to one other part of the NHS,

0:35:330:35:37

the National Spinal Injury Centre at Stoke Mandeville.

0:35:370:35:40

It's been a while, but I'm on my way back and this time I'm taking Kitty.

0:35:400:35:44

-Do you always get the same feeling in your tummy when you're about to arrive?

-Yeah, I'm quite nervous.

0:35:440:35:48

-Are you?

-Yeah.

0:35:480:35:50

You see, I get that lovely, warm feeling that...

0:35:500:35:53

-I don't know, it's home from home, isn't it?

-Yeah, it is home,

0:35:530:35:56

but it's still hospital and they're still going to ask you questions.

0:35:560:35:59

"Have you stood? Have you stretched?"

0:35:590:36:01

It kind of feels like going back to school.

0:36:020:36:05

After Kitty's health stabilised,

0:36:050:36:06

she spent three months here, at St Francis,

0:36:060:36:09

the ward for children and young people with spinal cord injuries,

0:36:090:36:12

recovering and learning the skills

0:36:120:36:14

she would need to live with her disability.

0:36:140:36:17

Every time we come back here, it's like visiting family.

0:36:170:36:19

-How are you?

-Long time, no see.

0:36:190:36:21

-Hi.

-Hi.

0:36:210:36:23

It's great to have you back. It's been too long.

0:36:230:36:25

Stoke Mandeville National Spinal Injury Centre is one of the largest

0:36:250:36:29

specialised spinal injury units in the world.

0:36:290:36:32

During World War II,

0:36:320:36:33

the hospital was used to treat military casualties,

0:36:330:36:36

and in 1943 the government asked German expatriate,

0:36:360:36:40

Dr Ludwig Guttmann, to establish the National Spinal Injury Centre.

0:36:400:36:44

There comes a moment the patient is admitted to the Centre.

0:36:440:36:48

He will find an atmosphere of hope.

0:36:480:36:53

And this was quite a new conception in 1944,

0:36:530:36:57

when this centre was started.

0:36:570:37:00

He believed sport was an important therapeutic tool,

0:37:000:37:04

and his Stoke Mandeville Games became the inspiration for

0:37:040:37:07

the establishment of the Paralympic Games, in 1960.

0:37:070:37:10

Kitty actually had the honour of taking part in the

0:37:100:37:13

2012 Paralympic closing ceremony.

0:37:130:37:16

I will never forget it.

0:37:160:37:18

Watched by millions, it was one of the proudest days of my life.

0:37:180:37:22

And it couldn't have happened without the help of this hospital.

0:37:220:37:26

It's great coming back into this room. This is where we always

0:37:260:37:29

-would stay...if you were here just for a day.

-I remember.

0:37:290:37:33

-You used to get on that bed and play with the little... Look - this, didn't you?

-Yeah, yeah.

0:37:330:37:37

Up and down, didn't you? All the time. Ooh, there we go, look.

0:37:370:37:40

Do you remember how you felt the first time you came here?

0:37:400:37:43

Yeah, I remember feeling quite scared, and...

0:37:430:37:46

But, as I came in, everyone was just big smiles on their faces.

0:37:460:37:49

I made friends, like, super quickly.

0:37:490:37:51

I remember coming here not knowing anything,

0:37:510:37:53

not even knowing how to push and...I can do wheelies,

0:37:530:37:56

I can get from kerbs, I can get onto the bed.

0:37:560:37:58

Show me your wheelie now.

0:37:580:38:00

Show me your wheelie now.

0:38:000:38:02

Spin.

0:38:020:38:03

LUCY LAUGHS

0:38:030:38:05

-And you couldn't do that seven years ago!

-No.

0:38:050:38:08

I'm convinced that the social interaction Kitty had here

0:38:080:38:10

was just as important as her medical care.

0:38:100:38:13

And also visiting today is someone we've got to know really well.

0:38:130:38:17

Ethan Adams.

0:38:170:38:18

Is he in here?

0:38:180:38:20

-Hello.

-Hello.

-Hello! How are you? I haven't seen you!

0:38:200:38:23

-Yeah, fine. You?

-So lovely to see you.

0:38:230:38:25

When I first came here,

0:38:250:38:27

I met you guys as a family and I was telling your dad,

0:38:270:38:31

"Oh, nobody knows, you know?

0:38:310:38:33

"There's this thing that's happened to Kitty and it's called

0:38:330:38:35

"transverse myelitis."

0:38:350:38:37

-And you said...

-Guess what?

0:38:370:38:38

That's what Ethan had as well. Yes, it is still rare, it's just

0:38:380:38:41

concentrated, here, isn't it?

0:38:410:38:43

-So, have you finished school yet?

-Yeah.

-Have you?

-Yeah.

0:38:430:38:46

-And what are you doing?

-An apprenticeship at the family business.

0:38:460:38:48

-So you're working? And how is he?

-He's doing well, yes.

0:38:480:38:51

-Coming up to scratch?

-Yeah, he's quite independent, actually.

0:38:510:38:53

He's got his own assistant,

0:38:530:38:55

and we work mostly in different buildings, actually.

0:38:550:38:57

A big part of our journey is Kitty's physiotherapist, Kirsten Hart.

0:38:570:39:02

And, while we're here, they're fitting in an extra session.

0:39:020:39:05

Let's stick these electrodes on, first of all.

0:39:050:39:09

Kitty still needs to do regular exercise to move her joints

0:39:090:39:12

and maintain her muscle strength.

0:39:120:39:15

The FES bike - functional electrical stimulation -

0:39:150:39:18

is part of her daily routine.

0:39:180:39:20

We have a simple model at home, and when we're here

0:39:200:39:22

Kirsten uses it to measure how Kitty's getting on.

0:39:220:39:25

The pads send an electrical impulse which make my muscles spasm,

0:39:250:39:33

but not in a hurty way.

0:39:330:39:34

And...it moves the...

0:39:340:39:38

pedals around and I have all feeling in my legs,

0:39:380:39:42

but it's just I have occasional patchy areas,

0:39:420:39:45

so it doesn't feel the same as it would on my arm.

0:39:450:39:49

I wouldn't say I love doing the exercises but, I mean,

0:39:490:39:52

I know that they're good for me.

0:39:520:39:54

While Kitty does the hard work,

0:39:540:39:56

I'm using the opportunity to catch up with Sister Sara O'Shea.

0:39:560:40:00

Although we've been here a lot,

0:40:000:40:01

I don't think there's ever been the right time to say a

0:40:010:40:04

proper thank you.

0:40:040:40:05

What's it like for you, seeing Kitty now?

0:40:050:40:07

Because I know you can remember

0:40:070:40:08

what she was like when she first came here?

0:40:080:40:10

Yeah, I think I always knew Kitty had that potential

0:40:100:40:14

to be just a really independent young woman.

0:40:140:40:17

I look at her today and she's just stunning.

0:40:170:40:19

And to see her independence and her thriving is...

0:40:190:40:25

I've got to...I've got to thank you,

0:40:250:40:28

and I want to thank you because I can remember coming here

0:40:280:40:32

and we'd just come off the back of being on a life-support machine...

0:40:320:40:37

-You're going to make me cry.

-I know, I know.

0:40:370:40:39

But we'd come here and it was really sad and we thought it was

0:40:390:40:42

the end of the world.

0:40:420:40:43

I'm not joking - well, you can remember how Stewart and I were.

0:40:430:40:46

Stewart practically carried her in here.

0:40:460:40:49

-And you.

-And me - I mean, I was in a bad place.

0:40:490:40:53

You gave her the best grounding.

0:40:530:40:55

You, 100%... In fact, I'm going to be honest now Sara,

0:40:550:40:58

you were a little bit scary.

0:40:580:41:00

You did used to frighten me.

0:41:000:41:01

Because I would be doing things for her like dressing her,

0:41:010:41:05

and putting on her socks and you would come in and say,

0:41:050:41:08

"Well, she should be doing that herself. Why are you doing that? Kitty!"

0:41:080:41:12

And you'd tell us off.

0:41:120:41:13

You've got lots other people around you that are...

0:41:130:41:17

being sympathetic and you don't need any more of that.

0:41:170:41:21

What you need is direction.

0:41:210:41:24

It's true. You are so right.

0:41:240:41:26

You 100% gave us direction.

0:41:260:41:29

Because I knew Kitty could do that.

0:41:290:41:31

And I knew if you...

0:41:310:41:32

do those things for her, she becomes so reliant,

0:41:320:41:37

and then can't cope with other things in life.

0:41:370:41:40

And dressing is just, like, a small part.

0:41:400:41:42

But if you start off with that and the belief that you can do that,

0:41:420:41:46

then that arms Kitty with the belief that she can do other things.

0:41:460:41:50

Because I was seven when this happened, so I'd already...

0:41:500:41:54

I feel like I'm quite lucky because I've already had that feeling of

0:41:550:42:00

running around. But, I mean, all my friends are really supportive.

0:42:000:42:03

Now we're teenagers, anyway, we're all quite lazy,

0:42:050:42:07

so we just sit on the sofa, anyway, to be honest.

0:42:070:42:10

This is the best part of my job, is seeing people when they come back.

0:42:110:42:15

Kitty coming in, looking stunning, and feisty as ever and determined.

0:42:170:42:23

And seeing you as a family...

0:42:230:42:25

..that's what makes my job.

0:42:260:42:28

-You do love it, don't you?

-I love it. I wouldn't do anything else.

0:42:280:42:31

You've got to stop crying.

0:42:380:42:39

SARA LAUGHS

0:42:390:42:41

No, cos that's when I stop caring. I mean, if I stop caring...

0:42:410:42:44

Let's drink to Kitty, come on.

0:42:440:42:45

..that's time to give up.

0:42:450:42:47

-Shame it's only coffee.

-Yeah, quite.

0:42:470:42:51

I think for me,

0:42:510:42:53

if I do allow myself to go back

0:42:530:42:55

to what I felt when I first came here...

0:42:550:42:58

..makes me, immediately, feel emotional because it was...

0:42:590:43:03

I'm in a very different place now, very different place.

0:43:030:43:06

And so is Kitty, to where we are now.

0:43:060:43:09

I didn't know what was ahead, years ago,

0:43:110:43:14

and now I just know whatever she does,

0:43:140:43:16

she's going to do so well.

0:43:160:43:18

And it's been emotional seeing other people I know be emotional,

0:43:180:43:22

and we've all had a bit of a cry.

0:43:220:43:24

But it's been...

0:43:240:43:26

It's made me feel I'm a lucky person to have a hospital like this

0:43:260:43:29

to support us and our family.

0:43:290:43:30

It's been brilliant.

0:43:310:43:32

It's been another emotional visit, but it's not over just yet.

0:43:350:43:39

Completely unknown to me,

0:43:390:43:40

Kitty has a final surprise that she's cooked up with her dad.

0:43:400:43:44

I've also got a little thank you note that I wrote.

0:43:440:43:48

Ah...!

0:43:480:43:49

Erm...

0:43:490:43:50

Aw, Kits!

0:43:520:43:53

"Dear everyone at Stoke Mandeville.

0:43:530:43:55

"I just wanted to thank you all from the bottom of my heart

0:43:550:43:57

"for everything that you've done for me.

0:43:570:44:00

"You have all been so caring and helpful

0:44:000:44:02

"and I really appreciate all of your efforts.

0:44:020:44:04

"You have helped me to learn to adjust to being in a wheelchair

0:44:040:44:07

"and taught me so many useful things that have enabled me to carry on

0:44:070:44:11

"having a normal life as I possibly can.

0:44:110:44:13

"I think that all of you are amazing

0:44:150:44:16

"and I'm grateful for all of your support. Love, Kitty."

0:44:160:44:19

-That's so lovely!

-Thank you!

0:44:190:44:22

When did you do that?

0:44:220:44:24

-I wrote it with Dad, yeah.

-Aw...

0:44:240:44:26

-See you soon.

-Bye.

0:44:270:44:29

The NHS might not be perfect,

0:44:290:44:31

but this journey has showed me how far it's come,

0:44:310:44:34

and the fact Kitty will grow up to be a happy,

0:44:340:44:37

productive adult is the greatest gift the NHS could have given us.

0:44:370:44:41

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