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70 years ago plans for revolution took place, | 0:00:02 | 0:00:05 | |
that changed all of our lives in Britain. | 0:00:05 | 0:00:07 | |
We're out to improve the health of every family and the whole nation. | 0:00:08 | 0:00:13 | |
Its name? The National Health Service. | 0:00:13 | 0:00:16 | |
We're taking a look at the NHS, then and now... | 0:00:17 | 0:00:21 | |
-OK, adrenaline. -He's had 6 adrenaline. | 0:00:21 | 0:00:25 | |
..to see how much it's changed... | 0:00:25 | 0:00:26 | |
Is that real? | 0:00:27 | 0:00:29 | |
..to meet staff and patients... | 0:00:29 | 0:00:31 | |
Let me help you out. | 0:00:31 | 0:00:33 | |
Sorry, it's my first day here. | 0:00:33 | 0:00:35 | |
..with extraordinary medical stories. | 0:00:35 | 0:00:37 | |
You died, basically. | 0:00:38 | 0:00:40 | |
For three minutes, yes. | 0:00:40 | 0:00:41 | |
It's quite emotional seeing you. | 0:00:41 | 0:00:43 | |
Thank you. | 0:00:43 | 0:00:44 | |
Surprise! | 0:00:44 | 0:00:45 | |
-ALL: -Surprise! | 0:00:45 | 0:00:46 | |
I'm Lucy Alexander. | 0:00:48 | 0:00:49 | |
Without the NHS I don't think my daughter would be alive today. | 0:00:49 | 0:00:54 | |
Can you just spin? | 0:00:54 | 0:00:55 | |
LUCY LAUGHS | 0:00:55 | 0:00:57 | |
'I want to say thank you to the medical team that saved her life.' | 0:00:57 | 0:01:01 | |
-Being on a life-support machine... -You're going to make me cry. -I know, I know. | 0:01:01 | 0:01:04 | |
Mornings start like everyone else's in our house - | 0:01:20 | 0:01:22 | |
getting the family up, fed, and out to school. | 0:01:22 | 0:01:26 | |
This is my husband, former premiership footballer, Stewart... | 0:01:26 | 0:01:29 | |
Oh, looking good, mate. Breakfast is ready, though. Come on. | 0:01:29 | 0:01:31 | |
..our equally footie-mad son, Leo, | 0:01:31 | 0:01:34 | |
and the dog, Teddy. | 0:01:34 | 0:01:35 | |
-Kitty, have you got your blazer? -Yeah. | 0:01:35 | 0:01:37 | |
'Oh! And running late again is Kitty, our teenage daughter.' | 0:01:37 | 0:01:41 | |
I always have to take a cup of tea on the school run | 0:01:44 | 0:01:48 | |
because I get really thirsty. | 0:01:48 | 0:01:50 | |
He normally, like, runs around, | 0:01:52 | 0:01:54 | |
acting crazy, normally, when he first goes out. | 0:01:54 | 0:01:57 | |
He's usually doing laps and just barking his head off. | 0:01:57 | 0:02:01 | |
-Normally at the cats next door. -Yeah. | 0:02:01 | 0:02:04 | |
Quickly, quickly, quickly, quickly. | 0:02:04 | 0:02:06 | |
Quick, quick, quick, quick, quick! | 0:02:06 | 0:02:12 | |
All right, Kits? | 0:02:12 | 0:02:13 | |
-Good girl. All sorted? -Yeah. -Yeah? | 0:02:13 | 0:02:15 | |
See you later, guys. | 0:02:17 | 0:02:18 | |
Have a good one. See you. | 0:02:18 | 0:02:20 | |
Ooh, yeah - it's freezing this morning, isn't it? | 0:02:20 | 0:02:24 | |
'On the way to school, we talk about the normal stuff.' | 0:02:24 | 0:02:27 | |
Have you done all the homework you were supposed to have done? | 0:02:27 | 0:02:30 | |
-I think so. -Well, that's not good enough. | 0:02:30 | 0:02:32 | |
'But after I've dropped them off and I'm on my own...' | 0:02:34 | 0:02:37 | |
Love you. | 0:02:37 | 0:02:38 | |
'..the route home always reminds me of an event, seven years ago, | 0:02:40 | 0:02:44 | |
'that changed our lives.' | 0:02:44 | 0:02:46 | |
We're coming up, here, to Kitty's little primary school, | 0:02:48 | 0:02:51 | |
which is just up here. | 0:02:51 | 0:02:52 | |
And, erm, I'd sent her to school that morning, | 0:02:52 | 0:02:55 | |
but she was saying to me, "Mum, my legs ache. I feel funny." | 0:02:55 | 0:03:00 | |
Anyway, so I went off, and halfway through my spinning class, | 0:03:00 | 0:03:04 | |
a lady from the gym came in and said, | 0:03:04 | 0:03:07 | |
"Kitty's school is on the phone. | 0:03:07 | 0:03:09 | |
"You've got to get to school, now. | 0:03:09 | 0:03:11 | |
"She's screaming. She's really ill." | 0:03:11 | 0:03:13 | |
And I, I...thought, "What? My God!" | 0:03:14 | 0:03:17 | |
So I jumped off my bike... | 0:03:17 | 0:03:19 | |
and, erm...literally ran home, | 0:03:19 | 0:03:23 | |
grabbed the car, | 0:03:23 | 0:03:24 | |
got to school... | 0:03:24 | 0:03:26 | |
..and when I saw her she was laying out on this...sickbed, at school. | 0:03:26 | 0:03:30 | |
And she looked like something serious had happened. | 0:03:30 | 0:03:33 | |
You know, it just...it looked like she'd had a stroke. | 0:03:35 | 0:03:37 | |
She just looked...really not very good. | 0:03:37 | 0:03:40 | |
SHE SNIFFS | 0:03:42 | 0:03:43 | |
It's still really hard talking about it. | 0:03:43 | 0:03:47 | |
In a panic I phoned Stewart, and we brought Kitty to our local A&E | 0:03:47 | 0:03:51 | |
where she was seen immediately. | 0:03:51 | 0:03:53 | |
What happened next, I'll remember for the rest of my life. | 0:03:53 | 0:03:56 | |
It was then they discovered, when they were doing the test, | 0:03:56 | 0:03:59 | |
where they get the little thing and they bang your knee | 0:03:59 | 0:04:01 | |
to see what your reactions are, | 0:04:01 | 0:04:04 | |
and her leg wasn't moving. | 0:04:04 | 0:04:07 | |
Nothing was moving. | 0:04:07 | 0:04:08 | |
And I just, instantly, saw the looks on their faces of sheer panic. | 0:04:08 | 0:04:13 | |
And then we were just blue-lighted to a London hospital, immediately. | 0:04:14 | 0:04:18 | |
And that's when they said, "This is seriously wrong. | 0:04:18 | 0:04:20 | |
"We think she's paralysed." | 0:04:20 | 0:04:22 | |
With those words all our lives changed forever. | 0:04:22 | 0:04:25 | |
Kitty had transverse myelitis - | 0:04:25 | 0:04:27 | |
a rare neurological disorder where the body's immune system reacts to | 0:04:27 | 0:04:31 | |
an infection, causing inflammation and scarring in the spinal cord. | 0:04:31 | 0:04:35 | |
It's a disease that affects those who have it in different ways, | 0:04:35 | 0:04:38 | |
and for Kitty it took away her ability to walk. | 0:04:38 | 0:04:41 | |
But it could have been so much worse. | 0:04:41 | 0:04:44 | |
As the weeks and the months went by, she didn't make very much recovery. | 0:04:44 | 0:04:48 | |
And she ended up having to | 0:04:50 | 0:04:52 | |
go on a life-support machine because she caught pneumonia. | 0:04:52 | 0:04:55 | |
She had two pneumothoraces which needed to be operated on. | 0:04:55 | 0:04:59 | |
She had to have chest drains, and she was, you know, | 0:04:59 | 0:05:03 | |
in the PICU ward, at the Evelina, fighting for her life at one point. | 0:05:03 | 0:05:07 | |
And we, at that point, really honestly, | 0:05:07 | 0:05:09 | |
didn't know whether she was going to pull through. | 0:05:09 | 0:05:11 | |
She was so, so ill. | 0:05:11 | 0:05:13 | |
Luckily, I had Stewart to support me. | 0:05:16 | 0:05:18 | |
Back at the house, we're taking the chance to look through | 0:05:19 | 0:05:22 | |
some old photos of Kitty. | 0:05:22 | 0:05:24 | |
This first one's a killer. I mean look at her... | 0:05:24 | 0:05:26 | |
She's winning hands down - winning the sports day. | 0:05:26 | 0:05:30 | |
She came back with all first, first, first badges, all over her T-shirt. | 0:05:30 | 0:05:35 | |
See, when I look at that picture of Kitty running, | 0:05:35 | 0:05:38 | |
I see you and Leo...and the athlete that she was, wasn't she? | 0:05:38 | 0:05:43 | |
Yeah, she was unbelievable. | 0:05:43 | 0:05:44 | |
When you go from that, gleaming little seven-year-old...to that... | 0:05:44 | 0:05:48 | |
So that was the first day. That was, that was hours | 0:05:48 | 0:05:52 | |
after she was taken into hospital. | 0:05:52 | 0:05:53 | |
And we still didn't quite understand the enormity of what was happening. | 0:05:53 | 0:05:57 | |
-Look at her. She's so happy. I mean, you can see her face... -She looks... | 0:05:57 | 0:06:00 | |
She doesn't know what's about to happen to her. | 0:06:00 | 0:06:02 | |
We didn't, for a minute, think it was going to be something as... | 0:06:02 | 0:06:05 | |
as huge and as devastating as what happened. | 0:06:05 | 0:06:08 | |
God... | 0:06:08 | 0:06:09 | |
-It's quite... -And talking of devastation, I mean, that's it. | 0:06:10 | 0:06:13 | |
She went downhill pretty quick afterwards, didn't she? | 0:06:13 | 0:06:16 | |
She ended up in intensive care. | 0:06:16 | 0:06:18 | |
That picture is something that...I haven't looked at for... | 0:06:18 | 0:06:22 | |
-about seven years. -Mmm. | 0:06:22 | 0:06:23 | |
This is where the inflammation is shown on the spinal cord, | 0:06:25 | 0:06:29 | |
So, you can see the shaded area - | 0:06:29 | 0:06:31 | |
that's where the messages aren't getting through from the brain. | 0:06:31 | 0:06:35 | |
So this is transverse myelitis. | 0:06:35 | 0:06:37 | |
This is the effect of the attack that she had, yeah. | 0:06:37 | 0:06:40 | |
-That's an incredible picture. -I know. | 0:06:40 | 0:06:41 | |
You can see it, in black-and-white. | 0:06:41 | 0:06:43 | |
-Has Kitty ever seen that? -Yeah. | 0:06:43 | 0:06:45 | |
-Has she seen that? -Yeah, I've talked her through it. | 0:06:45 | 0:06:47 | |
That's the same as if she'd been in a car crash | 0:06:47 | 0:06:50 | |
or fallen off a horse. | 0:06:50 | 0:06:51 | |
Ultimately...it's a spinal cord injury. | 0:06:51 | 0:06:54 | |
For a while we just didn't know whether Kitty would survive, | 0:06:56 | 0:07:00 | |
let alone walk again. | 0:07:00 | 0:07:01 | |
Fortunately, she was in the right place, under the care of the NHS. | 0:07:03 | 0:07:06 | |
Coupled with her incredible fighting spirit, | 0:07:08 | 0:07:11 | |
she started to make a slow but steady recovery. | 0:07:11 | 0:07:15 | |
It's amazing looking at her doing all that rehab, | 0:07:24 | 0:07:26 | |
because look how far she came in six months. | 0:07:26 | 0:07:29 | |
And, look - her school journey she went on with her school. | 0:07:29 | 0:07:33 | |
This was still less than a year after... | 0:07:33 | 0:07:35 | |
-I know. -..her injury. And she's up there, she on a zip wire. | 0:07:35 | 0:07:38 | |
I mean, she's just such a great kid. | 0:07:38 | 0:07:41 | |
Of course, Kitty wouldn't have made it if it was not for | 0:07:41 | 0:07:44 | |
the National Health Service. | 0:07:44 | 0:07:45 | |
Over the next few days I want to find out how children's health care | 0:07:45 | 0:07:49 | |
has evolved through the years, from days when having a condition | 0:07:49 | 0:07:53 | |
like hers probably would have meant a painful death, | 0:07:53 | 0:07:56 | |
through the major developments made possible by the NHS. | 0:07:56 | 0:07:59 | |
And my journey begins in the children's hospital | 0:08:05 | 0:08:08 | |
where Kitty was treated. | 0:08:08 | 0:08:10 | |
Today, Stewart and I are going back to Evelina, London. | 0:08:10 | 0:08:13 | |
It shares a site and history with St Thomas' Hospital, next door, | 0:08:13 | 0:08:17 | |
which was built here way back in 1869. | 0:08:17 | 0:08:20 | |
And where Florence Nightingale herself was a member of staff. | 0:08:20 | 0:08:24 | |
She founded a school of nursing and midwifery here, | 0:08:24 | 0:08:26 | |
which became renowned all over the world. | 0:08:26 | 0:08:29 | |
In 1948, St Thomas' was one of over 2,000 hospitals | 0:08:29 | 0:08:34 | |
taken under full control of the brand-new NHS. | 0:08:34 | 0:08:37 | |
St Thomas' hospital has changed a lot over the last 70 years. | 0:08:42 | 0:08:45 | |
And, in 2005, Evelina London, | 0:08:45 | 0:08:48 | |
a dedicated children's hospital, was opened next door. | 0:08:48 | 0:08:52 | |
They look after 50,000 young patients a year, | 0:08:52 | 0:08:55 | |
all with families desperate for help and support. | 0:08:55 | 0:08:57 | |
It was here that Kitty was first treated, | 0:08:59 | 0:09:01 | |
and where we spent around three months. | 0:09:01 | 0:09:04 | |
It all started in the PICU Ward - paediatric intensive care. | 0:09:04 | 0:09:08 | |
Today we've been invited back, | 0:09:08 | 0:09:10 | |
and it's the first time we've been in the ward since Kitty was admitted | 0:09:10 | 0:09:13 | |
seven years ago. | 0:09:13 | 0:09:15 | |
Oh, God. | 0:09:17 | 0:09:19 | |
I don't actually like... | 0:09:19 | 0:09:20 | |
Don't actually like this. | 0:09:22 | 0:09:24 | |
-No. -It's quite emotional, actually. I feel...I do feel... | 0:09:24 | 0:09:27 | |
..funny. | 0:09:29 | 0:09:30 | |
I'm actually shaking. | 0:09:33 | 0:09:35 | |
Come on. | 0:09:36 | 0:09:37 | |
MACHINES BEEPING | 0:09:42 | 0:09:43 | |
You just hear the "beep, beep, beep." | 0:09:43 | 0:09:46 | |
It's just all the "beep, beep" - all the machines. You could... | 0:09:46 | 0:09:49 | |
-It's bringing it all back. -Yeah. | 0:09:49 | 0:09:50 | |
-It was always really quiet. -Mmm. | 0:09:51 | 0:09:54 | |
It was over there, wasn't it? In the far corner. | 0:09:54 | 0:09:59 | |
-God. -Are you OK? -Yeah, I'm all right. | 0:09:59 | 0:10:01 | |
And I remember I was all right, after we got over the initial shock. | 0:10:01 | 0:10:05 | |
-Yeah. -And we ended up...quite liking it here. -I was going to say, | 0:10:05 | 0:10:09 | |
I think, weirdly, it gave us comfort - | 0:10:09 | 0:10:12 | |
being surrounded by all of these people, | 0:10:12 | 0:10:14 | |
and everybody's in the same boat. | 0:10:14 | 0:10:16 | |
It's strange being back, but we're not here long before we have | 0:10:20 | 0:10:23 | |
the comfort of a familiar face - | 0:10:23 | 0:10:25 | |
Kitty's nurse, Suze Andrews. | 0:10:25 | 0:10:26 | |
-It's good to see you. -Nice to see you! | 0:10:26 | 0:10:29 | |
-Hello. -I can't believe it - | 0:10:29 | 0:10:30 | |
I didn't expect any of the same nurses to be here at all. | 0:10:30 | 0:10:33 | |
How are you? It's so nice to see you. | 0:10:33 | 0:10:35 | |
I know, it's good to see you. Is the rest of the gang here? | 0:10:35 | 0:10:37 | |
There's quite a few people here, yeah. There's a few of us around. | 0:10:37 | 0:10:40 | |
Seeing your face is just, like, | 0:10:40 | 0:10:42 | |
taking me back there a bit, in a lovely way, | 0:10:42 | 0:10:44 | |
because I know you had such a huge input into her recovery. | 0:10:44 | 0:10:48 | |
-How's Kitty doing? -She is doing really well. -She's doing amazing. | 0:10:48 | 0:10:51 | |
Shall I show you some pictures? | 0:10:51 | 0:10:52 | |
Some updated pictures? There you go. This was her... | 0:10:52 | 0:10:55 | |
-not long ago. -Oh, great! | 0:10:55 | 0:10:56 | |
-She's thriving. -I know. Can you believe she's just, like, | 0:10:56 | 0:10:59 | |
-a teenager? -Amazing. | 0:10:59 | 0:11:01 | |
It's moving, being back in the place where Kitty was at her most ill. | 0:11:05 | 0:11:08 | |
Here, in the intensive care unit, | 0:11:10 | 0:11:12 | |
we really didn't know if our little girl would live or die. | 0:11:12 | 0:11:15 | |
Ah, hello! How are you? | 0:11:15 | 0:11:18 | |
Lead consultant for all of Kitty's care at Evelina London | 0:11:18 | 0:11:21 | |
was Doctor Ming Lim. | 0:11:21 | 0:11:22 | |
He still keeps track of all her progress, | 0:11:22 | 0:11:25 | |
and it's great to bump into him again. | 0:11:25 | 0:11:27 | |
I can remember when Kitty was first diagnosed, | 0:11:27 | 0:11:29 | |
and getting the laptop out, and I was reading every... | 0:11:29 | 0:11:31 | |
every paper, all the documentation, and you were great... | 0:11:31 | 0:11:35 | |
You know, these conditions are very rare. In a year, | 0:11:35 | 0:11:38 | |
in the whole of the UK, we would probably see 20 or 30 patients | 0:11:38 | 0:11:42 | |
with this condition. | 0:11:42 | 0:11:43 | |
So, Ming - come on, be honest, in all honesty, | 0:11:43 | 0:11:45 | |
have you ever met another dad like Stu, because we can tell him now, | 0:11:45 | 0:11:48 | |
he was actually doorstepping you, at one point. | 0:11:48 | 0:11:50 | |
I have to admit I actually thought it was by chance rather than him | 0:11:50 | 0:11:54 | |
stalking me! | 0:11:54 | 0:11:55 | |
Oh, no - sorry about that. | 0:11:55 | 0:11:57 | |
-But it was all for the greater good, you know that. -Yes. | 0:11:57 | 0:11:59 | |
No, that was well appreciated. | 0:11:59 | 0:12:01 | |
Only because, as you said, it's a rare condition | 0:12:01 | 0:12:04 | |
and he's actually doing all the hard work for me. | 0:12:04 | 0:12:06 | |
It's like having a research assistant, so it's very... | 0:12:06 | 0:12:09 | |
-Professional. -Yeah. | 0:12:09 | 0:12:10 | |
It was another paediatrician, | 0:12:14 | 0:12:15 | |
the quietly spoken Doctor Andrew Durward, who was with us | 0:12:15 | 0:12:18 | |
when we faced the ultimate decision about Kitty's health. | 0:12:18 | 0:12:22 | |
I think the moment that I really remember the most, | 0:12:22 | 0:12:26 | |
out of the whole of this journey, was you coming up to Stewart and I | 0:12:26 | 0:12:30 | |
and saying, "Listen, guys, this is really important, | 0:12:30 | 0:12:34 | |
"the day we take her off the ventilator - | 0:12:34 | 0:12:37 | |
"and today is that day." | 0:12:37 | 0:12:39 | |
Kitty's life was in your hands. | 0:12:39 | 0:12:41 | |
I mean, she was artificially breathing from a machine, here. | 0:12:41 | 0:12:44 | |
-She was on a ventilator, wasn't she? -And, you know, at any point, I mean, | 0:12:44 | 0:12:48 | |
it's the last place you are before you end your life. | 0:12:48 | 0:12:51 | |
And...God, we were scared. | 0:12:51 | 0:12:54 | |
Did you ever have a flicker of worry that this wasn't going to work out? | 0:12:56 | 0:12:59 | |
Always. | 0:12:59 | 0:13:01 | |
We don't have the tools in medicine to predict 100% whether you | 0:13:01 | 0:13:05 | |
succeed or fail on a ventilator. | 0:13:05 | 0:13:07 | |
The difference is being prepared for all the different options, | 0:13:07 | 0:13:11 | |
and to pick the best moment so that we're maximising the chance. | 0:13:11 | 0:13:15 | |
Andrew, I need to know - what was it about the actual day, the time? | 0:13:15 | 0:13:19 | |
Why did you say, on that day, at that time, | 0:13:19 | 0:13:22 | |
"this is what we're going to do - Kitty is coming off that today"? | 0:13:22 | 0:13:26 | |
I think everything here is teamwork. | 0:13:26 | 0:13:29 | |
And we all, as a team, sat there and said, | 0:13:29 | 0:13:31 | |
"Right, she's showing enough strength to try and get her off." | 0:13:31 | 0:13:35 | |
Her life was in the balance, | 0:13:35 | 0:13:36 | |
and I think it's moments like that that makes us appreciate that, | 0:13:36 | 0:13:40 | |
even though she's in a wheelchair now, | 0:13:40 | 0:13:42 | |
we could have lost her. | 0:13:42 | 0:13:43 | |
She could have gone, and we've still got her. | 0:13:43 | 0:13:45 | |
And that helps us get through day-to-day life as it is now, | 0:13:45 | 0:13:48 | |
that she's leading a happy, healthy life. | 0:13:48 | 0:13:51 | |
I think a lot comes down to character. | 0:13:51 | 0:13:54 | |
Going through the hurdles, the physiotherapy, | 0:13:54 | 0:13:56 | |
all the hard work to rehabilitate, to actually get out of here, | 0:13:56 | 0:14:00 | |
and we've seen that in patients who end up, like her, doing so well, | 0:14:00 | 0:14:04 | |
even knowing what they've been through. | 0:14:04 | 0:14:06 | |
They have that resolve, from the word go. | 0:14:06 | 0:14:08 | |
You did an outstanding job. | 0:14:08 | 0:14:10 | |
Honestly, it's quite emotional seeing you. | 0:14:10 | 0:14:12 | |
-Thank you. -Thank you so much. -You are a man we talk about often, | 0:14:12 | 0:14:16 | |
at the breakfast table, when we're all talking about it. | 0:14:16 | 0:14:19 | |
You do such good work here. | 0:14:19 | 0:14:21 | |
-Thank you. -And if I could jump over and hug you now, I would. | 0:14:21 | 0:14:23 | |
Come on - do it anyway. He's a top man. | 0:14:23 | 0:14:25 | |
-Thank you so much. -Thank you, Andrew. | 0:14:25 | 0:14:29 | |
-Thank you. -Seriously, from the bottom of our hearts, honestly, | 0:14:29 | 0:14:32 | |
you are very special to us. | 0:14:32 | 0:14:34 | |
-It's a pleasure. -I'm glad we've had this chance to see you again. | 0:14:34 | 0:14:37 | |
Thank you. | 0:14:37 | 0:14:39 | |
It would be impossible to say thank you to all the people who helped us | 0:14:39 | 0:14:42 | |
at Evelina London, but this morning has given us some sense of closure. | 0:14:42 | 0:14:47 | |
While Stewart heads off to pick up the kids from school, | 0:14:47 | 0:14:49 | |
I've headed across to Evelina's next-door neighbour, Saint Thomas'. | 0:14:49 | 0:14:53 | |
The Royal Dalton tiles that lined the original children's wards | 0:14:53 | 0:14:56 | |
are still displayed proudly on the walls, | 0:14:56 | 0:14:58 | |
and it makes me wonder what Kitty's experience might have been like | 0:14:58 | 0:15:02 | |
before the NHS. | 0:15:02 | 0:15:04 | |
Children's health care back then was a bit of a lottery. | 0:15:04 | 0:15:07 | |
No-one would deny that bad housing, poverty and overcrowding | 0:15:07 | 0:15:11 | |
are evils that contribute to ill health. | 0:15:11 | 0:15:14 | |
Before the Second World War, poor living conditions and nutrition | 0:15:14 | 0:15:17 | |
meant childhood epidemics like polio and diphtheria thrived. | 0:15:17 | 0:15:20 | |
This boy is not expected to live. | 0:15:20 | 0:15:24 | |
He was not immunised. | 0:15:24 | 0:15:26 | |
And while there were famous hospitals like Great Ormond Street and Evelina, | 0:15:30 | 0:15:34 | |
these were for the lucky few. | 0:15:34 | 0:15:35 | |
I'm meeting up with historian Dr Tanya McIntosh to find out | 0:15:36 | 0:15:40 | |
how things would have been for children and parents back then, | 0:15:40 | 0:15:43 | |
before the NHS ever existed. | 0:15:43 | 0:15:45 | |
There wasn't this idea that if you were sick you went into hospital. | 0:15:45 | 0:15:49 | |
The hospitals that there were for children tended to deal with | 0:15:49 | 0:15:53 | |
slightly older children, so if you were, sort of, under five, | 0:15:53 | 0:15:56 | |
they wouldn't have wanted to know about you. They thought they were | 0:15:56 | 0:15:59 | |
babies and they were better off at home with their mothers. | 0:15:59 | 0:16:02 | |
They also only really looked after children with short-term conditions, | 0:16:02 | 0:16:06 | |
so, perhaps, if you broke your leg | 0:16:06 | 0:16:08 | |
you might be taken into a children's hospital, | 0:16:08 | 0:16:10 | |
but if you had a chronic condition or a long-term condition, | 0:16:10 | 0:16:15 | |
you would be looked after very much at home. | 0:16:15 | 0:16:18 | |
This is a world away from what happens at the likes of | 0:16:18 | 0:16:20 | |
Evelina London, where children of all ages, | 0:16:20 | 0:16:23 | |
including babies and infants, are treated. | 0:16:23 | 0:16:25 | |
But it's not just the little ones | 0:16:25 | 0:16:27 | |
for whom the hospital experience has been revolutionised. | 0:16:27 | 0:16:31 | |
Before the NHS, if a child was in hospital, | 0:16:31 | 0:16:34 | |
they might be visited once a week by their parents, | 0:16:34 | 0:16:37 | |
if the hospital was really, really generous. | 0:16:37 | 0:16:39 | |
It could be once a month if they were in for a long time, | 0:16:39 | 0:16:42 | |
or quite a few hospitals had a policy of | 0:16:42 | 0:16:45 | |
absolutely no visiting at all by anybody to the children who were in. | 0:16:45 | 0:16:50 | |
-Oh, I mean, that's just heartbreaking to think. -Yeah. | 0:16:50 | 0:16:53 | |
I spent so much time here with my daughter, | 0:16:53 | 0:16:56 | |
laying next to her on a pull-out bed, I can't bear to think that, | 0:16:56 | 0:16:59 | |
you know, Mummy wouldn't have been around. | 0:16:59 | 0:17:01 | |
So how did it affect those poor kids? I mean, how did they cope? | 0:17:01 | 0:17:04 | |
Well, really interestingly, | 0:17:04 | 0:17:06 | |
the hospitals thought they coped really well, | 0:17:06 | 0:17:08 | |
cos what they saw was young children coming into hospital, | 0:17:08 | 0:17:12 | |
being really upset, crying, being sad, looking for their parents. | 0:17:12 | 0:17:17 | |
And then after a while, when the parents didn't turn up, | 0:17:17 | 0:17:21 | |
they'd go quiet. | 0:17:21 | 0:17:22 | |
And the hospitals would think, "OK, they're all right now. | 0:17:22 | 0:17:26 | |
"They're quiet. They're settled. They're fine. It'll be OK." | 0:17:26 | 0:17:29 | |
What they didn't really seem to see was that, actually, | 0:17:29 | 0:17:32 | |
what you had was children feeling despair. | 0:17:32 | 0:17:35 | |
They, kind of, put all of those feelings in themselves, | 0:17:35 | 0:17:38 | |
and lost hope that somebody would come back for them. | 0:17:38 | 0:17:41 | |
So there was no sense that they were doing something that was wrong. | 0:17:41 | 0:17:45 | |
I can remember Kitty being on a life-support machine, | 0:17:45 | 0:17:48 | |
at the Evelina hospital, | 0:17:48 | 0:17:49 | |
and they told me to get in bed with her, lay next to her, cuddle her. | 0:17:49 | 0:17:53 | |
She can still hear you, even though she looked out of it. | 0:17:53 | 0:17:56 | |
And it did. Her sats went up, | 0:17:56 | 0:17:58 | |
and we were all so surprised and I kept cuddling her. | 0:17:58 | 0:18:01 | |
And she could hear me. | 0:18:01 | 0:18:02 | |
She needed the Mummy touch, and she needed to hear my voice. | 0:18:02 | 0:18:04 | |
They were always very worried about infection so they thought | 0:18:04 | 0:18:08 | |
if we keep people away we'll have less infection. | 0:18:08 | 0:18:11 | |
But one of the other things that they were concerned about | 0:18:11 | 0:18:13 | |
was anxious mothers disrupting the routine, making nursing difficult, | 0:18:13 | 0:18:19 | |
making children sad and emotional. | 0:18:19 | 0:18:21 | |
So they decided, actually, the easiest way to deal with it | 0:18:21 | 0:18:23 | |
was to just keep parents well away. | 0:18:23 | 0:18:26 | |
And it took a long, long time to change that. | 0:18:26 | 0:18:30 | |
It took some real campaigning, by women's groups as well as | 0:18:30 | 0:18:34 | |
psychologists, to say that, | 0:18:34 | 0:18:36 | |
actually, we're causing children some real harm, here, | 0:18:36 | 0:18:40 | |
by not letting their parents be with them | 0:18:40 | 0:18:42 | |
when they're at their most vulnerable and really need somebody. | 0:18:42 | 0:18:46 | |
And it was the NHS that started the revolution. | 0:18:46 | 0:18:50 | |
-ANNOUNCER: -On July fifth, the new National Health Service starts. | 0:18:50 | 0:18:54 | |
The new service promised a fresh start for children's health | 0:18:54 | 0:18:57 | |
in the UK. | 0:18:57 | 0:18:58 | |
'Have you chosen your family doctor? | 0:18:58 | 0:19:00 | |
'If not, ask your doctor now | 0:19:00 | 0:19:02 | |
'if he'll you look after you under the new scheme.' | 0:19:02 | 0:19:05 | |
In the wake of World War II, Britain desperately needed to rebuild. | 0:19:05 | 0:19:08 | |
Over 450,000 people had been killed in the war, | 0:19:08 | 0:19:12 | |
and hundreds of thousands more were injured. | 0:19:12 | 0:19:14 | |
The country needed healthy boys and girls | 0:19:14 | 0:19:17 | |
who could go up to become productive adults. | 0:19:17 | 0:19:19 | |
Our plan is a service which will provide the best medical advice and | 0:19:19 | 0:19:24 | |
treatment for everyone - every man, woman and child in this country. | 0:19:24 | 0:19:28 | |
And it worked. Over the last 70 years, | 0:19:28 | 0:19:31 | |
thanks to advances in maternity and antenatal care, | 0:19:31 | 0:19:34 | |
infant mortality rates have been slashed by over 90%. | 0:19:34 | 0:19:37 | |
And many childhood diseases, once so prevalent in the UK, | 0:19:37 | 0:19:41 | |
have been eradicated. | 0:19:41 | 0:19:42 | |
Back in the present, it's like the bad old days never existed at all. | 0:19:45 | 0:19:49 | |
Four-and-a-half-month-old Ruby is recovering from life-saving surgery. | 0:19:54 | 0:19:58 | |
She's been intubated for six days, and her mum, Amelia, | 0:19:58 | 0:20:01 | |
hasn't left her side. | 0:20:01 | 0:20:03 | |
Amelia, it's so lovely to meet Ruby. | 0:20:03 | 0:20:06 | |
She's absolutely gorgeous. | 0:20:06 | 0:20:08 | |
-So, she's intubated. -Yeah. | 0:20:08 | 0:20:11 | |
What happened? What's the story? | 0:20:11 | 0:20:13 | |
At my 20-week scan they found out that she had a hole in her heart. | 0:20:13 | 0:20:16 | |
They've managed to close the hole, | 0:20:16 | 0:20:18 | |
but there is just a tiny bit of it still. | 0:20:18 | 0:20:21 | |
So before she was even born, you knew this was going to happen? | 0:20:21 | 0:20:25 | |
Yeah. We've known for a very long while. | 0:20:25 | 0:20:27 | |
I know you've got a book down there, | 0:20:27 | 0:20:29 | |
and I have got one almost identical for my daughter, Kitty. | 0:20:29 | 0:20:33 | |
Show me what you've done so far. | 0:20:33 | 0:20:35 | |
So I put some little bits on the front to make it pretty, | 0:20:35 | 0:20:37 | |
and some animals. | 0:20:37 | 0:20:39 | |
And then I've left spaces in here for photos, | 0:20:39 | 0:20:41 | |
but I've just been writing each day what's gone on, from start to end. | 0:20:41 | 0:20:46 | |
And I've had some of the nurses write in. | 0:20:46 | 0:20:48 | |
I know from experience that keeping a patient diary | 0:20:48 | 0:20:51 | |
provides a lot of comfort. | 0:20:51 | 0:20:53 | |
It's an idea that was originated here, | 0:20:53 | 0:20:55 | |
and has now been adopted nationally. | 0:20:55 | 0:20:57 | |
Hopefully today will provide lots of material, | 0:20:57 | 0:20:59 | |
because in a few hours Ruby may be breathing for herself. | 0:20:59 | 0:21:03 | |
Are you nervous? Are you excited? | 0:21:03 | 0:21:05 | |
It's quite a big day, isn't it, when they take the tube out? | 0:21:05 | 0:21:08 | |
I've been through the same thing with my daughter. | 0:21:08 | 0:21:10 | |
I don't know, they've kept me so calm and... | 0:21:10 | 0:21:12 | |
-It's just lovely. -You seem really calm. | 0:21:12 | 0:21:15 | |
I think you have to be. | 0:21:15 | 0:21:17 | |
I think if I keep calm...it just makes things seem like they're getting better. | 0:21:17 | 0:21:21 | |
And what's the one thing you're most looking forward to? | 0:21:21 | 0:21:24 | |
Having a cuddle! | 0:21:24 | 0:21:25 | |
Aw... She's so lovely. | 0:21:25 | 0:21:28 | |
I might have to have a cuddle before I go - I'm sorry. | 0:21:28 | 0:21:31 | |
If she's off, I'd be more than happy. | 0:21:31 | 0:21:34 | |
-Good luck. Good luck. -Thank you. | 0:21:34 | 0:21:37 | |
It wasn't just newborns the NHS was committed to taking care of, | 0:21:37 | 0:21:41 | |
from the off, and through its long history, | 0:21:41 | 0:21:43 | |
the relatively recent medical field of paediatrics have been | 0:21:43 | 0:21:46 | |
at the heart of the service - | 0:21:46 | 0:21:48 | |
everything from research into childhood illnesses | 0:21:48 | 0:21:51 | |
to mass inoculation programmes and free fillings. | 0:21:51 | 0:21:55 | |
The health of the next generation, under the NHS, | 0:21:55 | 0:21:57 | |
has improved dramatically. | 0:21:57 | 0:21:59 | |
Millions of you have got the spectacles you needed. | 0:21:59 | 0:22:02 | |
And tens of millions of you have visited the doctor under the scheme, | 0:22:02 | 0:22:05 | |
and got your medicine. | 0:22:05 | 0:22:08 | |
Wahey! | 0:22:08 | 0:22:10 | |
Today, paediatrics has grown to be one of the NHS's biggest and | 0:22:10 | 0:22:14 | |
progressive departments, | 0:22:14 | 0:22:15 | |
with children at the centre of everything. | 0:22:15 | 0:22:18 | |
The wards at Evelina London | 0:22:18 | 0:22:19 | |
were even designed with the help of children, | 0:22:19 | 0:22:22 | |
who advised against long straight corridors which were seen as scary. | 0:22:22 | 0:22:26 | |
There's a cinema, a school and, in wards like Savannah, | 0:22:26 | 0:22:30 | |
where Kitty spent three months recovering, | 0:22:30 | 0:22:32 | |
plenty of toys and games. | 0:22:32 | 0:22:34 | |
Underneath the fun, though, is serious health care, | 0:22:34 | 0:22:37 | |
as play specialist Julie Ainsworth explains, | 0:22:37 | 0:22:40 | |
while Cameron thrashes me at Connect Four. | 0:22:40 | 0:22:42 | |
What do you think the importance of play therapy is? | 0:22:42 | 0:22:45 | |
I know you've been doing it for many years. How many years? | 0:22:45 | 0:22:47 | |
-34. -Oh! 34 years. | 0:22:47 | 0:22:49 | |
I've stopped you from making a line. | 0:22:49 | 0:22:50 | |
Oh! You're concentrating. | 0:22:50 | 0:22:53 | |
Obviously, this is an alien environment, | 0:22:53 | 0:22:56 | |
so the things that actually are very normal are | 0:22:56 | 0:23:00 | |
games and television and DVDs. | 0:23:00 | 0:23:03 | |
It actually gives the children security to know that, actually, | 0:23:03 | 0:23:06 | |
they're getting better. | 0:23:06 | 0:23:07 | |
Certainly, in some children's cases, | 0:23:07 | 0:23:09 | |
where they're not being able to speak to us, or let us know, | 0:23:09 | 0:23:12 | |
if they're doing something that makes them smile, | 0:23:12 | 0:23:15 | |
or brings some kind of joy into their life, it's obviously all worthwhile. | 0:23:15 | 0:23:19 | |
And have you had a good time playing lots of games | 0:23:19 | 0:23:21 | |
-since you've been in here? -I've won. -What? | 0:23:21 | 0:23:23 | |
You're too good at this! I'm not concentrating. | 0:23:23 | 0:23:26 | |
Up until yesterday you were in PICU, weren't you? | 0:23:26 | 0:23:28 | |
-Yeah. -Yeah. -Were you in PICU? -Yeah, he was in PICU. | 0:23:28 | 0:23:31 | |
Is it good being back up here, now, though? | 0:23:31 | 0:23:33 | |
-Are you having a nicer time, playing with all the games? -Yeah. | 0:23:33 | 0:23:36 | |
As well as advances in paediatric care, | 0:23:36 | 0:23:38 | |
by the '60s, the NHS had developed a new attitude | 0:23:38 | 0:23:41 | |
towards parents visiting their children while in hospital. | 0:23:41 | 0:23:44 | |
-ANNOUNCER: -If you've ever been in hospital you'll | 0:23:44 | 0:23:47 | |
recognise the symptoms - yes, | 0:23:47 | 0:23:48 | |
Jane's been got ready for visitors. | 0:23:48 | 0:23:49 | |
Even Sister's helping with seven-year-old Marlin's pretty hair. | 0:23:49 | 0:23:52 | |
Suzanne's a lucky one, and so is ten-year-old Graham - | 0:23:52 | 0:23:55 | |
he's glad he made such a thorough job of cleaning his teeth. | 0:23:55 | 0:23:57 | |
Marlin's not forgotten - though Mummy and Daddy are too far away | 0:23:57 | 0:24:00 | |
to see her, she's not allowed to feel neglected. | 0:24:00 | 0:24:02 | |
That's where the art of nursing comes in. | 0:24:02 | 0:24:05 | |
Today, recovery rates for kids like Lauren are helped by having | 0:24:05 | 0:24:08 | |
Mum constantly around, although I know only too well | 0:24:08 | 0:24:12 | |
it's a tiring business. | 0:24:12 | 0:24:13 | |
She's starting to enjoy herself because she's on her feet now. | 0:24:13 | 0:24:16 | |
She's giggling. Look at you laughing! | 0:24:16 | 0:24:18 | |
It's quite funny, cos I did pass Lauren in the corridor earlier - | 0:24:19 | 0:24:22 | |
you could not have crammed any more pens into her arms! | 0:24:22 | 0:24:25 | |
MUM LAUGHS She was literally running up the corridor. | 0:24:25 | 0:24:28 | |
So how are you feeling? | 0:24:28 | 0:24:30 | |
I'm really tired. | 0:24:30 | 0:24:31 | |
Tell me, are you sleeping on that bed that's in the cupboard? | 0:24:31 | 0:24:34 | |
-It's not bad. -What?! | 0:24:34 | 0:24:36 | |
-It does the job. -I slept in that and it killed my back! | 0:24:36 | 0:24:39 | |
But it does the job, | 0:24:39 | 0:24:41 | |
and it's something that a lot of hospitals don't have. | 0:24:41 | 0:24:44 | |
There's not much you can do about sleep when your child is ill. | 0:24:44 | 0:24:47 | |
It does take its toll on you. | 0:24:47 | 0:24:49 | |
And you are feeling supported? | 0:24:49 | 0:24:51 | |
Yes, I am. 100%. | 0:24:51 | 0:24:52 | |
Because I want to go home today, and they said no. They're not finished. | 0:24:52 | 0:24:56 | |
You're so tired, you want to go home to have a sleep! | 0:24:56 | 0:24:58 | |
I want to go to bed! My own bed! | 0:24:58 | 0:25:01 | |
I get that. I can remember. | 0:25:01 | 0:25:03 | |
-Oh, dear... -I understand. | 0:25:03 | 0:25:04 | |
I remember so well that feeling of stress and exhaustion, | 0:25:10 | 0:25:14 | |
and the parents' kitchen was a place I would often come and escape. | 0:25:14 | 0:25:17 | |
But watching the rest of London get on with their lives | 0:25:17 | 0:25:20 | |
made me long for normality. | 0:25:20 | 0:25:23 | |
I also contemplated the consequences of what happened to Kitty, | 0:25:23 | 0:25:26 | |
and how we would cope, as a family, with her new disability. | 0:25:26 | 0:25:30 | |
Our experiences with the NHS have been overwhelmingly positive, | 0:25:30 | 0:25:34 | |
but I want to know if that's always been the case. | 0:25:34 | 0:25:37 | |
Over the years, how disabled adults and children have been treated has, | 0:25:40 | 0:25:45 | |
like other areas of health care, changed and developed. | 0:25:45 | 0:25:48 | |
This is Noel swimming, there - he's paralysed from the waist down. | 0:25:48 | 0:25:52 | |
It's pretty difficult to think of any greater disaster than this, | 0:25:52 | 0:25:55 | |
which we call paraplegia. | 0:25:55 | 0:25:56 | |
But to know the real story, | 0:25:57 | 0:25:59 | |
you have to hear from those who have lived through it. | 0:25:59 | 0:26:02 | |
I've arranged to meet some people who have grown up throughout | 0:26:02 | 0:26:05 | |
the NHS's history, | 0:26:05 | 0:26:07 | |
and whose conditions have given them a lot of experience of its care. | 0:26:07 | 0:26:11 | |
Hugh and Margie were diagnosed with cerebral palsy during the '50s. | 0:26:11 | 0:26:16 | |
Mansur was diagnosed with muscular dystrophy in the late '80s. | 0:26:16 | 0:26:20 | |
They weren't treated here, | 0:26:20 | 0:26:21 | |
but they've kindly agreed to meet me in a cafe at St Thomas'. | 0:26:21 | 0:26:25 | |
While Molly, Margie's canine partner, settles down for a lazy | 0:26:25 | 0:26:28 | |
afternoon, I'm interested to find out their experiences. | 0:26:28 | 0:26:32 | |
I was at the beginning of the NHS, so it was all new ground. | 0:26:32 | 0:26:37 | |
There was only one unit in the whole of the country that specialised in | 0:26:40 | 0:26:46 | |
cerebral palsy. I'll tell you something - | 0:26:46 | 0:26:48 | |
when I was diagnosed with cerebral palsy, around two and a half, | 0:26:48 | 0:26:54 | |
I was told that I would never be able to hold a conversation, | 0:26:54 | 0:26:59 | |
never be able to read, write or anything. | 0:26:59 | 0:27:02 | |
They told my parents to go away, leave me there | 0:27:02 | 0:27:06 | |
and go and have another child. | 0:27:06 | 0:27:08 | |
That's what they were told. | 0:27:08 | 0:27:10 | |
So, Hugh, were your parents away from you? | 0:27:10 | 0:27:13 | |
Could your parents come and visit you? Did you see much of them? | 0:27:13 | 0:27:17 | |
You're talking mid-'50s and transportation was very limited. | 0:27:17 | 0:27:22 | |
So, I got to see my parents about once every 6 to 12 weeks. | 0:27:22 | 0:27:29 | |
And can you remember being removed from your mum and dad | 0:27:29 | 0:27:32 | |
and, all of the sudden, not seeing them so much? | 0:27:32 | 0:27:35 | |
It broke my heart, basically. | 0:27:35 | 0:27:36 | |
We weren't even allowed to talk to our parents. | 0:27:38 | 0:27:41 | |
They said it was bad for us. | 0:27:41 | 0:27:42 | |
The plus side is it made us very strong. | 0:27:44 | 0:27:48 | |
It made us... But it pulled us away from our families. | 0:27:48 | 0:27:52 | |
I lost nearly 90% of my family life, | 0:27:52 | 0:27:55 | |
because of my education, basically. | 0:27:55 | 0:28:00 | |
But it made me a very strong person. | 0:28:00 | 0:28:03 | |
That makes me feel so sad, to hear that from you. | 0:28:03 | 0:28:08 | |
And, you know, I've been through a terrible trauma with my own child | 0:28:08 | 0:28:13 | |
and I cannot imagine... | 0:28:13 | 0:28:15 | |
..leaving her and going away somewhere. | 0:28:16 | 0:28:18 | |
And I'm so sorry that you had that experience. | 0:28:18 | 0:28:22 | |
Well, I grew up with it, | 0:28:22 | 0:28:25 | |
so I learned to adapt. | 0:28:25 | 0:28:27 | |
I learned to become independent, | 0:28:27 | 0:28:29 | |
and I learned to live on my own | 0:28:29 | 0:28:31 | |
and...get on with life. | 0:28:31 | 0:28:33 | |
You know, I've... | 0:28:33 | 0:28:35 | |
I've got two degrees, | 0:28:35 | 0:28:37 | |
I did it off my own back. | 0:28:37 | 0:28:39 | |
I've flown around the world on my own. | 0:28:39 | 0:28:42 | |
I've done far more than my brother and sister have ever done | 0:28:42 | 0:28:45 | |
in their lifetime. | 0:28:45 | 0:28:46 | |
I've been married for 23 years. | 0:28:46 | 0:28:49 | |
So...no, I don't regret it. | 0:28:49 | 0:28:52 | |
So, it's hard to think way back, | 0:28:52 | 0:28:55 | |
but do you think the attitudes have changed today, you know, | 0:28:55 | 0:28:58 | |
the NHS and how people now think or deal with disability? | 0:28:58 | 0:29:03 | |
I mean...how do you feel, Margie? | 0:29:03 | 0:29:05 | |
Well, part of me, I mean, when I first, kind of... | 0:29:05 | 0:29:09 | |
..looked into the NHS was when I was about 16. | 0:29:10 | 0:29:15 | |
My mother had conned me into going to see this consultant. | 0:29:15 | 0:29:22 | |
She said, "Now, Margie, don't be difficult. | 0:29:22 | 0:29:24 | |
"I want you to come and see this doctor. | 0:29:24 | 0:29:26 | |
"There's a new treatment for cerebral palsy". | 0:29:26 | 0:29:30 | |
By which time, I was quite happy being me with CP. | 0:29:30 | 0:29:33 | |
I was getting on. I was OK. | 0:29:33 | 0:29:36 | |
So I thought, "Oh, all right." | 0:29:36 | 0:29:37 | |
And, basically, he was going to take the top of my head off, | 0:29:37 | 0:29:41 | |
shove a few electrodes in, | 0:29:41 | 0:29:44 | |
give it 240 volts, | 0:29:44 | 0:29:46 | |
put it all back together and say, "Right, there you are". | 0:29:46 | 0:29:51 | |
So I said, "Hang on a minute. Hang on. | 0:29:51 | 0:29:54 | |
"This is MY head - can I ask a few questions?" | 0:29:54 | 0:29:58 | |
I said, "What are the odds?" | 0:29:58 | 0:30:00 | |
-And, eventually, he said, "50/50". -LUCY GASPS | 0:30:00 | 0:30:03 | |
So I said, "Right. Come on, Mum - let's go. I'm off". | 0:30:03 | 0:30:08 | |
You were out that door. | 0:30:09 | 0:30:11 | |
But, yes, things have improved. | 0:30:12 | 0:30:15 | |
They have, to a certain extent. | 0:30:15 | 0:30:17 | |
There's always room for improvement, Margie, | 0:30:18 | 0:30:20 | |
but you've always got Molly to come home to - | 0:30:20 | 0:30:23 | |
your beautiful little dog that's so good, that's down there. | 0:30:23 | 0:30:26 | |
She comes with me. | 0:30:26 | 0:30:27 | |
She comes with me into the hospitals, | 0:30:27 | 0:30:30 | |
so I get preferential treatment | 0:30:30 | 0:30:32 | |
cos all the nurses like to say hello to Molly. | 0:30:32 | 0:30:35 | |
Without Molly, I'd have to have a human being round all the time, | 0:30:35 | 0:30:39 | |
-which would be awfully boring. -SHE LAUGHS | 0:30:39 | 0:30:42 | |
Unfortunately, the rights for | 0:30:42 | 0:30:44 | |
people with disability have often had to be fought for. | 0:30:44 | 0:30:47 | |
-What do we want? -We want our rights! -When do we want them? -Now! | 0:30:47 | 0:30:51 | |
In the 1960s and '70s, | 0:30:51 | 0:30:53 | |
the civil rights movement in America inspired disabled groups to take | 0:30:53 | 0:30:57 | |
direct action against discrimination. | 0:30:57 | 0:31:00 | |
This encouraged a change of attitude to disability here, | 0:31:00 | 0:31:03 | |
and, eventually, a new Disability Discrimination Act | 0:31:03 | 0:31:06 | |
was passed in 1995, when Mansur was ten. | 0:31:06 | 0:31:10 | |
So, what about your experiences, Mansur? | 0:31:10 | 0:31:13 | |
I've had a, kind of, a long journey with the NHS | 0:31:13 | 0:31:16 | |
and had some positive experiences as well. | 0:31:16 | 0:31:19 | |
I used to get chest infections quite often, | 0:31:19 | 0:31:22 | |
so, you know, you'd have to go to your GP or the A&E | 0:31:22 | 0:31:25 | |
and so it, kind of, used to be quite late into the onset | 0:31:25 | 0:31:29 | |
of my chest infection to actually get into hospital. | 0:31:29 | 0:31:33 | |
And then one year they recommended this red card system, | 0:31:33 | 0:31:38 | |
where the GP would be allowed to issue, kind of, an emergency card | 0:31:38 | 0:31:42 | |
that would fast-track me into the relevant ward. | 0:31:42 | 0:31:46 | |
So that red card definitely helped to bridge that gap. | 0:31:46 | 0:31:50 | |
It literally depends on | 0:31:50 | 0:31:53 | |
which hospital you go to...how you get treated, basically. | 0:31:53 | 0:31:58 | |
And I went to one hospital and they... | 0:31:58 | 0:32:02 | |
they were scared of me. | 0:32:02 | 0:32:04 | |
Really? | 0:32:04 | 0:32:05 | |
Absolutely petrified of me. | 0:32:05 | 0:32:08 | |
I was in a lot of pain and they didn't know what to do. | 0:32:08 | 0:32:12 | |
And yet, I went to another hospital | 0:32:13 | 0:32:15 | |
and it was the completely opposite effect. | 0:32:15 | 0:32:17 | |
They were asking me what I wanted, | 0:32:17 | 0:32:21 | |
how I needed it and what I wanted to do about it. | 0:32:21 | 0:32:25 | |
So that's the difference between two hospitals in the same area. | 0:32:25 | 0:32:30 | |
Just two different hospitals. | 0:32:31 | 0:32:34 | |
The medical profession is trying to improve its image. | 0:32:34 | 0:32:38 | |
It's always been difficult for them. | 0:32:39 | 0:32:41 | |
If they can't cure you, which, in our cases, you can't... | 0:32:41 | 0:32:46 | |
..then you have to work WITH us. | 0:32:47 | 0:32:50 | |
And that, surely, is their ethos. | 0:32:51 | 0:32:54 | |
They can't cure you, but they can support you through life's changes. | 0:32:54 | 0:33:00 | |
And, if anything comes of learning through history, | 0:33:00 | 0:33:06 | |
I'm sure that's the lesson that they ought to come home with. | 0:33:06 | 0:33:10 | |
I don't think I've ever met three more interesting people, characters. | 0:33:10 | 0:33:15 | |
They've all got their own individual character. | 0:33:15 | 0:33:17 | |
It was heartbreaking talking to Hugh, though. | 0:33:18 | 0:33:21 | |
That really, actually, did make me want to cry | 0:33:21 | 0:33:24 | |
and just...leap out my seat and hug him. | 0:33:24 | 0:33:26 | |
To think of what he went through. | 0:33:26 | 0:33:29 | |
To be that institutionalised. | 0:33:31 | 0:33:32 | |
But how they're all living such full lives, now, is amazing. | 0:33:34 | 0:33:38 | |
And I just loved having that chat. | 0:33:39 | 0:33:41 | |
It's been an emotional and fascinating look back | 0:33:43 | 0:33:45 | |
on the NHS's past, | 0:33:45 | 0:33:47 | |
but before I leave St Thomas' and Evelina London, | 0:33:47 | 0:33:50 | |
there's someone I must check up on - | 0:33:50 | 0:33:53 | |
brave little Ruby. | 0:33:53 | 0:33:54 | |
She's just come off the ventilator. | 0:33:59 | 0:34:01 | |
Mum's about to get her first cuddle in a long time. | 0:34:01 | 0:34:05 | |
RUBY COUGHING | 0:34:05 | 0:34:07 | |
Oh, good coughing. Good girl. | 0:34:07 | 0:34:10 | |
-Hey... -Good coughing. | 0:34:12 | 0:34:14 | |
Good girl. | 0:34:14 | 0:34:16 | |
Hello. | 0:34:20 | 0:34:22 | |
Say hello. | 0:34:25 | 0:34:27 | |
Yeah. | 0:34:27 | 0:34:29 | |
You got my finger? | 0:34:29 | 0:34:30 | |
Can I just have a little hello? | 0:34:32 | 0:34:34 | |
And...congratulations. | 0:34:34 | 0:34:36 | |
Hello, beautiful girl. | 0:34:36 | 0:34:38 | |
How does it feel? | 0:34:38 | 0:34:40 | |
-Great. -To hug her. How long's it been? | 0:34:40 | 0:34:42 | |
-Erm, nearly a week. -Oh... | 0:34:42 | 0:34:45 | |
Hello. | 0:34:45 | 0:34:46 | |
-Well done. -Good girl. | 0:34:47 | 0:34:49 | |
Yeah... | 0:34:49 | 0:34:51 | |
-Look at all these people. -I'm really glad I've been around to see that, | 0:34:51 | 0:34:54 | |
-because it's been quite special. -Yeah. | 0:34:54 | 0:34:56 | |
To think, six days ago she was having heart surgery, | 0:34:57 | 0:35:01 | |
then she was on a ventilator. | 0:35:01 | 0:35:03 | |
I feel so honoured to have been here whilst having the tube taken out | 0:35:03 | 0:35:07 | |
and see Mum kiss her for the first time in ages. | 0:35:07 | 0:35:10 | |
Oh...happy person. | 0:35:11 | 0:35:13 | |
Well, it's time to get back to my own little girl. | 0:35:18 | 0:35:20 | |
Not that Kitty's little any more. | 0:35:20 | 0:35:22 | |
Since leaving hospital seven years ago, | 0:35:22 | 0:35:25 | |
she's grown up to be a little lady, | 0:35:25 | 0:35:27 | |
played sports and become a teenager. | 0:35:27 | 0:35:29 | |
She leads as active life as anyone her age. | 0:35:29 | 0:35:33 | |
And a lot of that is thanks to one other part of the NHS, | 0:35:33 | 0:35:37 | |
the National Spinal Injury Centre at Stoke Mandeville. | 0:35:37 | 0:35:40 | |
It's been a while, but I'm on my way back and this time I'm taking Kitty. | 0:35:40 | 0:35:44 | |
-Do you always get the same feeling in your tummy when you're about to arrive? -Yeah, I'm quite nervous. | 0:35:44 | 0:35:48 | |
-Are you? -Yeah. | 0:35:48 | 0:35:50 | |
You see, I get that lovely, warm feeling that... | 0:35:50 | 0:35:53 | |
-I don't know, it's home from home, isn't it? -Yeah, it is home, | 0:35:53 | 0:35:56 | |
but it's still hospital and they're still going to ask you questions. | 0:35:56 | 0:35:59 | |
"Have you stood? Have you stretched?" | 0:35:59 | 0:36:01 | |
It kind of feels like going back to school. | 0:36:02 | 0:36:05 | |
After Kitty's health stabilised, | 0:36:05 | 0:36:06 | |
she spent three months here, at St Francis, | 0:36:06 | 0:36:09 | |
the ward for children and young people with spinal cord injuries, | 0:36:09 | 0:36:12 | |
recovering and learning the skills | 0:36:12 | 0:36:14 | |
she would need to live with her disability. | 0:36:14 | 0:36:17 | |
Every time we come back here, it's like visiting family. | 0:36:17 | 0:36:19 | |
-How are you? -Long time, no see. | 0:36:19 | 0:36:21 | |
-Hi. -Hi. | 0:36:21 | 0:36:23 | |
It's great to have you back. It's been too long. | 0:36:23 | 0:36:25 | |
Stoke Mandeville National Spinal Injury Centre is one of the largest | 0:36:25 | 0:36:29 | |
specialised spinal injury units in the world. | 0:36:29 | 0:36:32 | |
During World War II, | 0:36:32 | 0:36:33 | |
the hospital was used to treat military casualties, | 0:36:33 | 0:36:36 | |
and in 1943 the government asked German expatriate, | 0:36:36 | 0:36:40 | |
Dr Ludwig Guttmann, to establish the National Spinal Injury Centre. | 0:36:40 | 0:36:44 | |
There comes a moment the patient is admitted to the Centre. | 0:36:44 | 0:36:48 | |
He will find an atmosphere of hope. | 0:36:48 | 0:36:53 | |
And this was quite a new conception in 1944, | 0:36:53 | 0:36:57 | |
when this centre was started. | 0:36:57 | 0:37:00 | |
He believed sport was an important therapeutic tool, | 0:37:00 | 0:37:04 | |
and his Stoke Mandeville Games became the inspiration for | 0:37:04 | 0:37:07 | |
the establishment of the Paralympic Games, in 1960. | 0:37:07 | 0:37:10 | |
Kitty actually had the honour of taking part in the | 0:37:10 | 0:37:13 | |
2012 Paralympic closing ceremony. | 0:37:13 | 0:37:16 | |
I will never forget it. | 0:37:16 | 0:37:18 | |
Watched by millions, it was one of the proudest days of my life. | 0:37:18 | 0:37:22 | |
And it couldn't have happened without the help of this hospital. | 0:37:22 | 0:37:26 | |
It's great coming back into this room. This is where we always | 0:37:26 | 0:37:29 | |
-would stay...if you were here just for a day. -I remember. | 0:37:29 | 0:37:33 | |
-You used to get on that bed and play with the little... Look - this, didn't you? -Yeah, yeah. | 0:37:33 | 0:37:37 | |
Up and down, didn't you? All the time. Ooh, there we go, look. | 0:37:37 | 0:37:40 | |
Do you remember how you felt the first time you came here? | 0:37:40 | 0:37:43 | |
Yeah, I remember feeling quite scared, and... | 0:37:43 | 0:37:46 | |
But, as I came in, everyone was just big smiles on their faces. | 0:37:46 | 0:37:49 | |
I made friends, like, super quickly. | 0:37:49 | 0:37:51 | |
I remember coming here not knowing anything, | 0:37:51 | 0:37:53 | |
not even knowing how to push and...I can do wheelies, | 0:37:53 | 0:37:56 | |
I can get from kerbs, I can get onto the bed. | 0:37:56 | 0:37:58 | |
Show me your wheelie now. | 0:37:58 | 0:38:00 | |
Show me your wheelie now. | 0:38:00 | 0:38:02 | |
Spin. | 0:38:02 | 0:38:03 | |
LUCY LAUGHS | 0:38:03 | 0:38:05 | |
-And you couldn't do that seven years ago! -No. | 0:38:05 | 0:38:08 | |
I'm convinced that the social interaction Kitty had here | 0:38:08 | 0:38:10 | |
was just as important as her medical care. | 0:38:10 | 0:38:13 | |
And also visiting today is someone we've got to know really well. | 0:38:13 | 0:38:17 | |
Ethan Adams. | 0:38:17 | 0:38:18 | |
Is he in here? | 0:38:18 | 0:38:20 | |
-Hello. -Hello. -Hello! How are you? I haven't seen you! | 0:38:20 | 0:38:23 | |
-Yeah, fine. You? -So lovely to see you. | 0:38:23 | 0:38:25 | |
When I first came here, | 0:38:25 | 0:38:27 | |
I met you guys as a family and I was telling your dad, | 0:38:27 | 0:38:31 | |
"Oh, nobody knows, you know? | 0:38:31 | 0:38:33 | |
"There's this thing that's happened to Kitty and it's called | 0:38:33 | 0:38:35 | |
"transverse myelitis." | 0:38:35 | 0:38:37 | |
-And you said... -Guess what? | 0:38:37 | 0:38:38 | |
That's what Ethan had as well. Yes, it is still rare, it's just | 0:38:38 | 0:38:41 | |
concentrated, here, isn't it? | 0:38:41 | 0:38:43 | |
-So, have you finished school yet? -Yeah. -Have you? -Yeah. | 0:38:43 | 0:38:46 | |
-And what are you doing? -An apprenticeship at the family business. | 0:38:46 | 0:38:48 | |
-So you're working? And how is he? -He's doing well, yes. | 0:38:48 | 0:38:51 | |
-Coming up to scratch? -Yeah, he's quite independent, actually. | 0:38:51 | 0:38:53 | |
He's got his own assistant, | 0:38:53 | 0:38:55 | |
and we work mostly in different buildings, actually. | 0:38:55 | 0:38:57 | |
A big part of our journey is Kitty's physiotherapist, Kirsten Hart. | 0:38:57 | 0:39:02 | |
And, while we're here, they're fitting in an extra session. | 0:39:02 | 0:39:05 | |
Let's stick these electrodes on, first of all. | 0:39:05 | 0:39:09 | |
Kitty still needs to do regular exercise to move her joints | 0:39:09 | 0:39:12 | |
and maintain her muscle strength. | 0:39:12 | 0:39:15 | |
The FES bike - functional electrical stimulation - | 0:39:15 | 0:39:18 | |
is part of her daily routine. | 0:39:18 | 0:39:20 | |
We have a simple model at home, and when we're here | 0:39:20 | 0:39:22 | |
Kirsten uses it to measure how Kitty's getting on. | 0:39:22 | 0:39:25 | |
The pads send an electrical impulse which make my muscles spasm, | 0:39:25 | 0:39:33 | |
but not in a hurty way. | 0:39:33 | 0:39:34 | |
And...it moves the... | 0:39:34 | 0:39:38 | |
pedals around and I have all feeling in my legs, | 0:39:38 | 0:39:42 | |
but it's just I have occasional patchy areas, | 0:39:42 | 0:39:45 | |
so it doesn't feel the same as it would on my arm. | 0:39:45 | 0:39:49 | |
I wouldn't say I love doing the exercises but, I mean, | 0:39:49 | 0:39:52 | |
I know that they're good for me. | 0:39:52 | 0:39:54 | |
While Kitty does the hard work, | 0:39:54 | 0:39:56 | |
I'm using the opportunity to catch up with Sister Sara O'Shea. | 0:39:56 | 0:40:00 | |
Although we've been here a lot, | 0:40:00 | 0:40:01 | |
I don't think there's ever been the right time to say a | 0:40:01 | 0:40:04 | |
proper thank you. | 0:40:04 | 0:40:05 | |
What's it like for you, seeing Kitty now? | 0:40:05 | 0:40:07 | |
Because I know you can remember | 0:40:07 | 0:40:08 | |
what she was like when she first came here? | 0:40:08 | 0:40:10 | |
Yeah, I think I always knew Kitty had that potential | 0:40:10 | 0:40:14 | |
to be just a really independent young woman. | 0:40:14 | 0:40:17 | |
I look at her today and she's just stunning. | 0:40:17 | 0:40:19 | |
And to see her independence and her thriving is... | 0:40:19 | 0:40:25 | |
I've got to...I've got to thank you, | 0:40:25 | 0:40:28 | |
and I want to thank you because I can remember coming here | 0:40:28 | 0:40:32 | |
and we'd just come off the back of being on a life-support machine... | 0:40:32 | 0:40:37 | |
-You're going to make me cry. -I know, I know. | 0:40:37 | 0:40:39 | |
But we'd come here and it was really sad and we thought it was | 0:40:39 | 0:40:42 | |
the end of the world. | 0:40:42 | 0:40:43 | |
I'm not joking - well, you can remember how Stewart and I were. | 0:40:43 | 0:40:46 | |
Stewart practically carried her in here. | 0:40:46 | 0:40:49 | |
-And you. -And me - I mean, I was in a bad place. | 0:40:49 | 0:40:53 | |
You gave her the best grounding. | 0:40:53 | 0:40:55 | |
You, 100%... In fact, I'm going to be honest now Sara, | 0:40:55 | 0:40:58 | |
you were a little bit scary. | 0:40:58 | 0:41:00 | |
You did used to frighten me. | 0:41:00 | 0:41:01 | |
Because I would be doing things for her like dressing her, | 0:41:01 | 0:41:05 | |
and putting on her socks and you would come in and say, | 0:41:05 | 0:41:08 | |
"Well, she should be doing that herself. Why are you doing that? Kitty!" | 0:41:08 | 0:41:12 | |
And you'd tell us off. | 0:41:12 | 0:41:13 | |
You've got lots other people around you that are... | 0:41:13 | 0:41:17 | |
being sympathetic and you don't need any more of that. | 0:41:17 | 0:41:21 | |
What you need is direction. | 0:41:21 | 0:41:24 | |
It's true. You are so right. | 0:41:24 | 0:41:26 | |
You 100% gave us direction. | 0:41:26 | 0:41:29 | |
Because I knew Kitty could do that. | 0:41:29 | 0:41:31 | |
And I knew if you... | 0:41:31 | 0:41:32 | |
do those things for her, she becomes so reliant, | 0:41:32 | 0:41:37 | |
and then can't cope with other things in life. | 0:41:37 | 0:41:40 | |
And dressing is just, like, a small part. | 0:41:40 | 0:41:42 | |
But if you start off with that and the belief that you can do that, | 0:41:42 | 0:41:46 | |
then that arms Kitty with the belief that she can do other things. | 0:41:46 | 0:41:50 | |
Because I was seven when this happened, so I'd already... | 0:41:50 | 0:41:54 | |
I feel like I'm quite lucky because I've already had that feeling of | 0:41:55 | 0:42:00 | |
running around. But, I mean, all my friends are really supportive. | 0:42:00 | 0:42:03 | |
Now we're teenagers, anyway, we're all quite lazy, | 0:42:05 | 0:42:07 | |
so we just sit on the sofa, anyway, to be honest. | 0:42:07 | 0:42:10 | |
This is the best part of my job, is seeing people when they come back. | 0:42:11 | 0:42:15 | |
Kitty coming in, looking stunning, and feisty as ever and determined. | 0:42:17 | 0:42:23 | |
And seeing you as a family... | 0:42:23 | 0:42:25 | |
..that's what makes my job. | 0:42:26 | 0:42:28 | |
-You do love it, don't you? -I love it. I wouldn't do anything else. | 0:42:28 | 0:42:31 | |
You've got to stop crying. | 0:42:38 | 0:42:39 | |
SARA LAUGHS | 0:42:39 | 0:42:41 | |
No, cos that's when I stop caring. I mean, if I stop caring... | 0:42:41 | 0:42:44 | |
Let's drink to Kitty, come on. | 0:42:44 | 0:42:45 | |
..that's time to give up. | 0:42:45 | 0:42:47 | |
-Shame it's only coffee. -Yeah, quite. | 0:42:47 | 0:42:51 | |
I think for me, | 0:42:51 | 0:42:53 | |
if I do allow myself to go back | 0:42:53 | 0:42:55 | |
to what I felt when I first came here... | 0:42:55 | 0:42:58 | |
..makes me, immediately, feel emotional because it was... | 0:42:59 | 0:43:03 | |
I'm in a very different place now, very different place. | 0:43:03 | 0:43:06 | |
And so is Kitty, to where we are now. | 0:43:06 | 0:43:09 | |
I didn't know what was ahead, years ago, | 0:43:11 | 0:43:14 | |
and now I just know whatever she does, | 0:43:14 | 0:43:16 | |
she's going to do so well. | 0:43:16 | 0:43:18 | |
And it's been emotional seeing other people I know be emotional, | 0:43:18 | 0:43:22 | |
and we've all had a bit of a cry. | 0:43:22 | 0:43:24 | |
But it's been... | 0:43:24 | 0:43:26 | |
It's made me feel I'm a lucky person to have a hospital like this | 0:43:26 | 0:43:29 | |
to support us and our family. | 0:43:29 | 0:43:30 | |
It's been brilliant. | 0:43:31 | 0:43:32 | |
It's been another emotional visit, but it's not over just yet. | 0:43:35 | 0:43:39 | |
Completely unknown to me, | 0:43:39 | 0:43:40 | |
Kitty has a final surprise that she's cooked up with her dad. | 0:43:40 | 0:43:44 | |
I've also got a little thank you note that I wrote. | 0:43:44 | 0:43:48 | |
Ah...! | 0:43:48 | 0:43:49 | |
Erm... | 0:43:49 | 0:43:50 | |
Aw, Kits! | 0:43:52 | 0:43:53 | |
"Dear everyone at Stoke Mandeville. | 0:43:53 | 0:43:55 | |
"I just wanted to thank you all from the bottom of my heart | 0:43:55 | 0:43:57 | |
"for everything that you've done for me. | 0:43:57 | 0:44:00 | |
"You have all been so caring and helpful | 0:44:00 | 0:44:02 | |
"and I really appreciate all of your efforts. | 0:44:02 | 0:44:04 | |
"You have helped me to learn to adjust to being in a wheelchair | 0:44:04 | 0:44:07 | |
"and taught me so many useful things that have enabled me to carry on | 0:44:07 | 0:44:11 | |
"having a normal life as I possibly can. | 0:44:11 | 0:44:13 | |
"I think that all of you are amazing | 0:44:15 | 0:44:16 | |
"and I'm grateful for all of your support. Love, Kitty." | 0:44:16 | 0:44:19 | |
-That's so lovely! -Thank you! | 0:44:19 | 0:44:22 | |
When did you do that? | 0:44:22 | 0:44:24 | |
-I wrote it with Dad, yeah. -Aw... | 0:44:24 | 0:44:26 | |
-See you soon. -Bye. | 0:44:27 | 0:44:29 | |
The NHS might not be perfect, | 0:44:29 | 0:44:31 | |
but this journey has showed me how far it's come, | 0:44:31 | 0:44:34 | |
and the fact Kitty will grow up to be a happy, | 0:44:34 | 0:44:37 | |
productive adult is the greatest gift the NHS could have given us. | 0:44:37 | 0:44:41 |