Browse content similar to 22/02/2016. Check below for episodes and series from the same categories and more!
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Hello and welcome to Inside Out South West - | 0:00:02 | 0:00:05 | |
stories and investigations from where you live. | 0:00:05 | 0:00:09 | |
Tonight - the drug giving hope to people with dementia | 0:00:09 | 0:00:13 | |
and the patients helping to put it to the test. | 0:00:13 | 0:00:17 | |
Sky-high hopes, which are probably not wise, but there you are. | 0:00:17 | 0:00:22 | |
I am really pleased we are part of it. | 0:00:22 | 0:00:25 | |
But I want it to make a difference. I want it to slow the disease down. | 0:00:25 | 0:00:28 | |
I want it to give us longer. | 0:00:29 | 0:00:31 | |
Watch your head. | 0:00:34 | 0:00:36 | |
Also tonight - we investigate the garden furniture companx | 0:00:36 | 0:00:39 | |
which seems to make a habit of taking its customers to court. | 0:00:39 | 0:00:43 | |
Definitely, definitely don't buy one. | 0:00:43 | 0:00:45 | |
Just keep walking. | 0:00:45 | 0:00:48 | |
Sausages. Sausages. | 0:00:49 | 0:00:52 | |
And celebrating Natty, one mum's emotional battle to change | 0:00:52 | 0:00:55 | |
ideas about Down's syndrome. | 0:00:55 | 0:00:59 | |
Natty, I'm so sorry I got it wrong, before I knew you. | 0:00:59 | 0:01:04 | |
Thank you. | 0:01:04 | 0:01:08 | |
APPLAUSE | 0:01:08 | 0:01:11 | |
I'm Jemma Woodman and this is Inside Out South West. | 0:01:12 | 0:01:17 | |
First tonight, - what's it like to be part of the fight | 0:01:27 | 0:01:30 | |
against one of life's cruellest diseases? | 0:01:30 | 0:01:34 | |
We have had exclusive access to patients in Plymouth tri`lling | 0:01:34 | 0:01:38 | |
a new drug aimed at slowing the progress of Alzheimer's. | 0:01:38 | 0:01:44 | |
She is such an intelligent woman and worked so hard to becomd | 0:01:45 | 0:01:49 | |
a lawyer, to really achieve something with her life. | 0:01:49 | 0:01:52 | |
And this is a nightmare for her | 0:01:52 | 0:01:57 | |
It was the worst thing for xou? | 0:02:00 | 0:02:03 | |
The worst thing for me to lose mental faculty, | 0:02:03 | 0:02:07 | |
if you like, to a degree. | 0:02:07 | 0:02:10 | |
It was just... Couldn't tell you. | 0:02:10 | 0:02:16 | |
Thanks to Carol... | 0:02:16 | 0:02:20 | |
You are making me cry now, get off! | 0:02:20 | 0:02:23 | |
Sorry! | 0:02:23 | 0:02:26 | |
It is, it is the worst thing... | 0:02:26 | 0:02:30 | |
The worst thing, my worst nhghtmare would be this disease. | 0:02:30 | 0:02:34 | |
Diane Grey developed Alzheimer's at the age of 54. | 0:02:34 | 0:02:39 | |
She and her partner Carol are heading to an appointment | 0:02:39 | 0:02:43 | |
at Derriford Hospital, an appointment which could give them | 0:02:43 | 0:02:46 | |
something that in the past five years has been in short | 0:02:46 | 0:02:48 | |
supply - hope. | 0:02:48 | 0:02:52 | |
Sky-high hopes, which are probably not wise but there we are. | 0:02:52 | 0:02:57 | |
I mean, it would just be fantastic. It would make a difference. | 0:02:58 | 0:03:01 | |
I mean, it would just be fantastic. It would make a difference. | 0:03:01 | 0:03:04 | |
The drug under scrutiny is called Solanezumab. | 0:03:04 | 0:03:08 | |
Studies have suggested it mhght slow progression in the early | 0:03:08 | 0:03:11 | |
stages of Alzheimer's. | 0:03:11 | 0:03:15 | |
If it is proved to work, it would be the first real | 0:03:15 | 0:03:18 | |
breakthrough in the fight against this devastating condition. | 0:03:18 | 0:03:22 | |
Dr Stephen Pearson is leading the work in Plymouth. | 0:03:22 | 0:03:28 | |
I find it exciting and the research is very meaningful to our p`tients | 0:03:28 | 0:03:31 | |
and it does give them hope. | 0:03:31 | 0:03:34 | |
It is like a voyage of discovery to try and understand and ddvelop | 0:03:34 | 0:03:37 | |
treatments and better treatlents. | 0:03:37 | 0:03:39 | |
So, what is the theory behind this drug? | 0:03:39 | 0:03:43 | |
The onset of Alzheimer's is partly triggered by the build-up of rogue | 0:03:43 | 0:03:46 | |
proteins called amyloids around neurons in the brain. | 0:03:46 | 0:03:49 | |
This can start a decade before symptoms of dementia show. | 0:03:49 | 0:03:55 | |
As the amyloids stick together, in clumps known as plaques, | 0:03:56 | 0:04:00 | |
they block the connections between neurons, causing | 0:04:00 | 0:04:03 | |
them to die. | 0:04:03 | 0:04:05 | |
Solanezumab appears to mop tp some of the proteins, | 0:04:05 | 0:04:09 | |
before they start to form plaques, so preserving brain function. | 0:04:09 | 0:04:13 | |
But the potential of Solanezumab is not clear-cut. | 0:04:13 | 0:04:17 | |
An 18-month trial ended in disappointment in 2012. | 0:04:17 | 0:04:22 | |
But when pharmaceutical company Eli Lilly looked closely at data | 0:04:22 | 0:04:25 | |
from that trial, they found indications that the drug | 0:04:25 | 0:04:29 | |
was helping some patients in the early stages of Alzhdimer's | 0:04:29 | 0:04:32 | |
and so created a trial focusing on those patients. | 0:04:32 | 0:04:35 | |
Patients like Dave Woods. | 0:04:35 | 0:04:40 | |
Anything to help others and help me of course, | 0:04:40 | 0:04:44 | |
it's got Sue worrying. | 0:04:44 | 0:04:46 | |
So it is good, you are doing something rather than just sitting | 0:04:46 | 0:04:50 | |
around, watching the birds in the garden. | 0:04:50 | 0:04:53 | |
And waiting for the next stdp, yes. | 0:04:53 | 0:04:56 | |
It is a way of being proactive, isn't it? | 0:04:56 | 0:05:00 | |
We feel as though it is not just for us... | 0:05:00 | 0:05:03 | |
Potentially, it would be for everybody. | 0:05:03 | 0:05:07 | |
I noticed other things... | 0:05:07 | 0:05:11 | |
Little things really, Dave was getting slightly | 0:05:11 | 0:05:14 | |
disoriented, not recognising places he had been to before and also | 0:05:14 | 0:05:19 | |
that his immediate memory was not that good. | 0:05:19 | 0:05:26 | |
There is no hiding from this. It is there. | 0:05:27 | 0:05:31 | |
It is a fact. It is scary. | 0:05:31 | 0:05:38 | |
Hopefully, we are doing the right thing and we can hold it at bay | 0:05:38 | 0:05:46 | |
There is a feature of this research, as in many drugs trials. | 0:05:48 | 0:05:52 | |
Only some patients get the drug | 0:05:52 | 0:05:55 | |
Others get what is called a placebo, an infusion with no drug in it. | 0:05:55 | 0:05:59 | |
This way, the result can be compared. | 0:05:59 | 0:06:02 | |
Because this is a clinical trial, we have a placebo control | 0:06:02 | 0:06:06 | |
for the drug, as part of the scientific validity so that | 0:06:06 | 0:06:09 | |
means in this trial, half the patients get a placebo | 0:06:09 | 0:06:11 | |
and half get the drug. | 0:06:11 | 0:06:14 | |
It is a blinded mechanism for scientific research. | 0:06:14 | 0:06:17 | |
Now I am blinded, the patients are blinded, so I cannot sw`y | 0:06:17 | 0:06:19 | |
results in any way, because we all want patients to improve. | 0:06:19 | 0:06:24 | |
So we are going to complete a number of tasks today. | 0:06:24 | 0:06:27 | |
I will explain each one as we go through. | 0:06:27 | 0:06:30 | |
Today, Dave's brain function is being tested. | 0:06:30 | 0:06:33 | |
He does not know whether or not he has been getting the drug. | 0:06:33 | 0:06:36 | |
He also doesn't know to what extent his brain has | 0:06:36 | 0:06:39 | |
deteriorated in that time. Today's tests may shed some light. | 0:06:39 | 0:06:43 | |
So, I am going to show you some words printed on these whitd cards. | 0:06:43 | 0:06:47 | |
Please read each word out loud and try to remember it. | 0:06:47 | 0:06:50 | |
This is the difficult bit. | 0:06:50 | 0:06:53 | |
Blood. | 0:06:53 | 0:06:56 | |
Club. | 0:06:56 | 0:06:58 | |
Cotton. | 0:06:58 | 0:07:01 | |
Theme. | 0:07:01 | 0:07:08 | |
Steam. | 0:07:08 | 0:07:10 | |
OK, tell me all the words you can remember from the list. | 0:07:10 | 0:07:12 | |
Plant. Toy. | 0:07:12 | 0:07:14 | |
It is a struggle. That's about it. | 0:07:14 | 0:07:16 | |
OK. | 0:07:16 | 0:07:18 | |
The results will be fed into the overall trial data. | 0:07:18 | 0:07:21 | |
There is another reason this is a big day for Dave. | 0:07:21 | 0:07:24 | |
He has reached the end of the trial and will be given the drug `s long | 0:07:24 | 0:07:28 | |
as it is in development, as a sort of thank you. | 0:07:28 | 0:07:30 | |
Today is the big day, isn't it? | 0:07:30 | 0:07:33 | |
It is what they call open label day and today, | 0:07:33 | 0:07:36 | |
Dave has the drug. | 0:07:36 | 0:07:39 | |
Obviously, it is brilliant, so we will wait and see. | 0:07:39 | 0:07:44 | |
The result of the brain function tests are not shared | 0:07:44 | 0:07:47 | |
with the patients but brain scans are. | 0:07:47 | 0:07:50 | |
Good to see you again. | 0:07:50 | 0:07:53 | |
I have got your scan images up here, we can have a quick look at it. | 0:07:53 | 0:07:57 | |
The brightness of the scans show that the proteins in Dave's | 0:07:57 | 0:07:59 | |
brain have increased. | 0:07:59 | 0:08:02 | |
No one knows if Dave was receiving the drug or the placebo | 0:08:02 | 0:08:08 | |
but a disappointed Sue cannot help but draw her own conclusions. | 0:08:08 | 0:08:11 | |
It was a huge shock when I saw those scans the other day because for me, | 0:08:11 | 0:08:16 | |
it was almost the realisation that it seemed as though Dave had | 0:08:16 | 0:08:20 | |
been on the placebo for the last two years. | 0:08:20 | 0:08:25 | |
Sue is drawing comfort from Dave now being on the drug for sure. | 0:08:25 | 0:08:30 | |
It is not going to cure it. | 0:08:30 | 0:08:34 | |
There is possibly nothing ott there that will but if it c`n hold | 0:08:34 | 0:08:39 | |
it at this level where I can cope, Dave can cope, we are OK. | 0:08:39 | 0:08:45 | |
Diane's trial period has also ended so now, | 0:08:48 | 0:08:51 | |
she too is knowingly receiving the drug. | 0:08:51 | 0:08:54 | |
Today, she is getting her scan results and she feeling upbdat. | 0:08:54 | 0:08:59 | |
We are really looking forward to looking at the ones from a couple | 0:08:59 | 0:09:05 | |
We are really looking forward to looking at the ones from a couple | 0:09:05 | 0:09:08 | |
of years ago before we started all this, and the latest onds. | 0:09:08 | 0:09:11 | |
Diane, here is your MRI scan, this is the most recent one. | 0:09:11 | 0:09:14 | |
But it is fairly clear that is a bigger glow in thhs scan | 0:09:14 | 0:09:17 | |
than on the one a year ago. | 0:09:17 | 0:09:19 | |
This is not the news they had hoped for. | 0:09:19 | 0:09:21 | |
Diane's brain has deteriorated. | 0:09:22 | 0:09:24 | |
However, she knows she is now definitely on the drug and they can | 0:09:24 | 0:09:27 | |
see the positive side. | 0:09:27 | 0:09:30 | |
Now you are, hopefully it will get better. | 0:09:30 | 0:09:34 | |
It is a weird disease. It does horrible things to xou. | 0:09:34 | 0:09:41 | |
Oh, dear. Never mind, will be all right. | 0:09:41 | 0:09:48 | |
Yes, we are together, that is the thing. | 0:09:48 | 0:09:54 | |
I am really pleased we are part of it but I want it to make | 0:09:59 | 0:10:02 | |
a difference, to us, to Diane, I want it to slow the disease down. | 0:10:02 | 0:10:05 | |
I want it to give us longer. | 0:10:06 | 0:10:09 | |
Preliminary results from thd trial will be available in Decembdr | 0:10:09 | 0:10:13 | |
so it is a waiting game unthl then. | 0:10:13 | 0:10:17 | |
Next tonight - one woman from Cornwall and her very | 0:10:23 | 0:10:26 | |
mischievous daughter, in their battle to win hearts | 0:10:26 | 0:10:29 | |
and minds in the understandhng of Down's syndrome. | 0:10:29 | 0:10:32 | |
This time, we are going to say sausages. | 0:10:32 | 0:10:35 | |
Sausages. | 0:10:35 | 0:10:38 | |
The world of child modelling has a new star. | 0:10:38 | 0:10:41 | |
Natty Goleniowska from Cornwall is nine. | 0:10:41 | 0:10:44 | |
She has Down's syndrome, her starring role here an indication | 0:10:44 | 0:10:47 | |
that old attitudes and prejudices are changing. | 0:10:47 | 0:10:52 | |
And something else is changhng too - the ability of doctors to ddtect | 0:10:52 | 0:10:55 | |
Down's syndrome before birth. | 0:10:55 | 0:11:00 | |
A new test has been developdd, much more accurate than | 0:11:00 | 0:11:04 | |
what is available now, but for some, that is not good news, | 0:11:04 | 0:11:07 | |
it is potentially a step backwards. | 0:11:07 | 0:11:09 | |
Big smile. That's lovely. | 0:11:09 | 0:11:15 | |
Natty's mum Hayley writes an award-winning blog | 0:11:20 | 0:11:23 | |
about Down's syndrome. | 0:11:23 | 0:11:27 | |
She remembers how shocked she was when doctors told hdr Natty | 0:11:27 | 0:11:29 | |
had the condition. | 0:11:29 | 0:11:31 | |
I had absolutely no idea wh`t Down's syndrome really meant. | 0:11:31 | 0:11:36 | |
I had very outdated images that came to the fore in my mind, | 0:11:36 | 0:11:40 | |
people that were hidden awax, hidden away from view, institution`lised. | 0:11:40 | 0:11:44 | |
I couldn't have been more wrong | 0:11:44 | 0:11:47 | |
And you must have wanted to actively bust those myths. | 0:11:47 | 0:11:50 | |
How did you do that? | 0:11:50 | 0:11:53 | |
The modelling came about because I had found so very much | 0:11:53 | 0:11:57 | |
support in seeing other children doing ordinary, everyday thhngs | 0:11:57 | 0:12:01 | |
But many parents still fear Down's syndrome. | 0:12:01 | 0:12:05 | |
When it is detected before birth, nine out of ten | 0:12:05 | 0:12:09 | |
pregnancies are terminated. | 0:12:09 | 0:12:12 | |
Hayley believes that would change if parents were given a mord | 0:12:12 | 0:12:15 | |
balanced picture when they were told their baby has the condition. | 0:12:15 | 0:12:20 | |
No one can predict what an tnborn baby with Down's syndrome... | 0:12:20 | 0:12:25 | |
What their needs will be, intellectually or physicallx | 0:12:25 | 0:12:28 | |
or medically. | 0:12:28 | 0:12:31 | |
But the full set of information needs to be given to the parents | 0:12:31 | 0:12:36 | |
and that includes the possibilities for children these days with early | 0:12:36 | 0:12:41 | |
intervention and the absolute wonderment of individuals | 0:12:41 | 0:12:44 | |
with Down's syndrome. | 0:12:44 | 0:12:46 | |
Natty has changed our lives beyond measure. | 0:12:46 | 0:12:50 | |
In Cornwall, this support group prepares welcome packs and ` book | 0:12:55 | 0:12:59 | |
for parents of new babies with Down's syndrome. | 0:12:59 | 0:13:03 | |
It is one of the few places in the country where this h`ppens. | 0:13:03 | 0:13:06 | |
Here too, there is concern. | 0:13:06 | 0:13:09 | |
If the diagnosis was receivdd and parents are being made to feel | 0:13:09 | 0:13:14 | |
that the natural choice is to abort their child | 0:13:14 | 0:13:18 | |
because of the Down's syndrome diagnosis, then that is a rdal worry | 0:13:18 | 0:13:23 | |
because there is a whole section of society that will get | 0:13:23 | 0:13:26 | |
screened out of existence. | 0:13:26 | 0:13:29 | |
There is a whole, rich, diverse population of the world | 0:13:29 | 0:13:32 | |
that is not going to be herd anymore and that would be a shame. | 0:13:32 | 0:13:35 | |
When Bonnie Davies was pregnant with her daughter, test restlts | 0:13:35 | 0:13:38 | |
showed Down's syndrome. | 0:13:38 | 0:13:42 | |
She says she was repeatedly offered an abortion. | 0:13:42 | 0:13:46 | |
The immediate reaction was to book me in for a terlination, | 0:13:46 | 0:13:50 | |
and that was just over the phone and it was kind of just an `utomatic | 0:13:50 | 0:13:54 | |
response to what my result was. | 0:13:54 | 0:13:58 | |
And I said, it took me back a little bit and I said I don't | 0:13:58 | 0:14:02 | |
that is necessary. | 0:14:02 | 0:14:04 | |
Bonnie says the advice she was given about the condition | 0:14:04 | 0:14:07 | |
was simply too negative. | 0:14:07 | 0:14:09 | |
It is just not as bad as yot think. | 0:14:09 | 0:14:13 | |
Obviously, your life does change, it is obvious that happens, | 0:14:13 | 0:14:16 | |
but you get there. | 0:14:17 | 0:14:20 | |
These parents' concerns about screening are being ftelled | 0:14:20 | 0:14:23 | |
by the new test which is expected to be offered on the NHS soon. | 0:14:23 | 0:14:27 | |
It is more accurate than what is used now. | 0:14:27 | 0:14:31 | |
Hayley fears that without the right advice and support for parents, | 0:14:31 | 0:14:35 | |
it could all but eradicate children with Down's syndrome. | 0:14:35 | 0:14:38 | |
That has prompted her to step up her fight. | 0:14:38 | 0:14:43 | |
She and Natty are travelling to Edinburgh where she will talk | 0:14:45 | 0:14:48 | |
at an important conference of student nurses. | 0:14:48 | 0:14:51 | |
She wants to challenge the negative messages about Down's syndrome. | 0:14:51 | 0:14:55 | |
Shall we put it in the case, do you want to put it in for me | 0:14:55 | 0:14:58 | |
Pop it in there, good girl. | 0:14:58 | 0:15:00 | |
To be given the privilege of being able to speak at this | 0:15:00 | 0:15:03 | |
conference, to hundreds of these students and to make a diffdrence | 0:15:03 | 0:15:06 | |
right now at the beginning of their medical careers, hopefully, | 0:15:06 | 0:15:11 | |
will help other families that they encounter along the way. | 0:15:11 | 0:15:17 | |
We will catch up with Haylex and Natty later. | 0:15:17 | 0:15:20 | |
Thanks, girls. | 0:15:20 | 0:15:22 | |
But first, I'm going to Great Ormond Street Hosphtal | 0:15:22 | 0:15:26 | |
in London to find out more about the new test. | 0:15:26 | 0:15:30 | |
It is called noninvasive pre-natal testing or NIPT. | 0:15:30 | 0:15:34 | |
If you are expecting, you can already have an ultrasound | 0:15:34 | 0:15:38 | |
scan and a blood test to sed if there is a likelihood of Down's | 0:15:38 | 0:15:42 | |
syndrome but it is not very accurate. | 0:15:42 | 0:15:44 | |
If signs of the condition are spotted, you will be offered | 0:15:44 | 0:15:48 | |
another test to be sure. It is called amniocentesis. | 0:15:48 | 0:15:51 | |
Doctors use a needle to takd some fluid from around the foetus. | 0:15:51 | 0:15:54 | |
It is accurate but there is a small risk of losing the baby. | 0:15:54 | 0:15:59 | |
NIPT involves testing the mother's blood for traces of the babx's DNA | 0:15:59 | 0:16:04 | |
so the extra genetic materi`l which children with Down's syndrome | 0:16:04 | 0:16:06 | |
have can be spotted. | 0:16:07 | 0:16:08 | |
How is it going, OK? | 0:16:08 | 0:16:11 | |
Professor Lyn Chitty led a lajor study looking at whether NIPT should | 0:16:11 | 0:16:15 | |
be offered on the NHS. | 0:16:15 | 0:16:17 | |
The current test will identhfy about 85% of the babies with Down's | 0:16:17 | 0:16:21 | |
syndrome whereas this test identifies over 99%, | 0:16:21 | 0:16:25 | |
so it is more sensitive. | 0:16:25 | 0:16:29 | |
And that means that fewer women will end up being offered | 0:16:29 | 0:16:32 | |
an invasive test to see whether or not the baby does indeed | 0:16:32 | 0:16:34 | |
have Down's syndrome. | 0:16:34 | 0:16:37 | |
Could this test wipe out people with Down's syndrome | 0:16:37 | 0:16:40 | |
from our society altogether? | 0:16:40 | 0:16:42 | |
This isn't going to happen, there will still be people | 0:16:42 | 0:16:45 | |
who do not want to have any Down's syndrome screening and even those | 0:16:45 | 0:16:48 | |
that are identified by being at an increased chance of h`ving | 0:16:48 | 0:16:51 | |
Down's syndrome, some still declined because they wouldn't do anxthing. | 0:16:51 | 0:16:54 | |
And we have shown that women with the diagnosis made safdly | 0:16:54 | 0:16:58 | |
still feel that is what thex want, they want the information | 0:16:58 | 0:17:01 | |
and they do not want to terminate the pregnancy. | 0:17:01 | 0:17:03 | |
So I think these fears are ungrounded. | 0:17:03 | 0:17:07 | |
But for Hayley, those fears are real. | 0:17:08 | 0:17:12 | |
She and Natty have arrived at the student nurses conference, | 0:17:12 | 0:17:15 | |
more determined than ever to press home their message. | 0:17:15 | 0:17:17 | |
Hayley, how are you feeling, are you all prepped? | 0:17:17 | 0:17:21 | |
I am prepped, I am ready to go, I think. | 0:17:21 | 0:17:25 | |
Just a few last-minute nervds and wiping doughnut off | 0:17:25 | 0:17:27 | |
Natty's face. | 0:17:27 | 0:17:30 | |
LAUGHTER | 0:17:30 | 0:17:34 | |
APPLAUSE | 0:17:35 | 0:17:38 | |
Just that you are all here, | 0:17:40 | 0:17:43 | |
and some of you have travelled so far to come to such an event | 0:17:43 | 0:17:46 | |
fills me with hope and thank you all. | 0:17:46 | 0:17:50 | |
Parents must be given time to process and think. | 0:17:50 | 0:17:54 | |
All too often, the only opthon given to families is an appointment to end | 0:17:54 | 0:17:57 | |
this perceived suffering before it begins. | 0:17:57 | 0:18:01 | |
A kind of early euthanasia, if you like. | 0:18:01 | 0:18:05 | |
Even if you students think that you are not making a differdnce | 0:18:05 | 0:18:08 | |
please know that you are. | 0:18:08 | 0:18:11 | |
You are showing by shining dxample that all lives are precious | 0:18:11 | 0:18:15 | |
and worthy of respect and your words count. | 0:18:15 | 0:18:19 | |
The speech is going well but then Hayley is overcome by emotion | 0:18:19 | 0:18:23 | |
as she accepts that some of her own preconceptions | 0:18:23 | 0:18:25 | |
about Down's syndrome were wrong. | 0:18:25 | 0:18:28 | |
Bless you, Natty. | 0:18:28 | 0:18:34 | |
It is quite hard when she is in the room. | 0:18:34 | 0:18:44 | |
Natty, I'm so sorry I got it wrong, before I knew you. | 0:18:48 | 0:18:51 | |
Thank you. | 0:18:51 | 0:18:57 | |
APPLAUSE | 0:18:57 | 0:19:03 | |
I love you, I love my family. | 0:19:16 | 0:19:23 | |
APPLAUSE | 0:19:23 | 0:19:30 | |
It looked as if Hayley is winning some powerful allies | 0:19:32 | 0:19:36 | |
She is talking to some of the most senior people hdre. | 0:19:36 | 0:19:39 | |
The health professional rulds about helping the family | 0:19:39 | 0:19:42 | |
and individual have objective information and make | 0:19:42 | 0:19:45 | |
their own mind up. | 0:19:45 | 0:19:47 | |
It is really positive, practical advice that I will take | 0:19:47 | 0:19:51 | |
into my practice and share with my fellow student midwhves | 0:19:51 | 0:19:56 | |
Hayley and other parents say their fight to have thehr voices | 0:19:56 | 0:20:00 | |
heard, whatever the future over the testing of Down's syndrome | 0:20:00 | 0:20:03 | |
and as medical advances makd it easier to detect the condithon | 0:20:03 | 0:20:07 | |
before birth, they will makd sure the lives of people living | 0:20:07 | 0:20:10 | |
with Down's syndrome are accepted and respected. | 0:20:10 | 0:20:15 | |
A decision on whether to offer the new test on the NHS | 0:20:15 | 0:20:19 | |
is expected shortly. | 0:20:19 | 0:20:22 | |
Next tonight, John Cuthill has the story of how one takes people | 0:20:22 | 0:20:26 | |
to court despite loads of complaints of incomplete deliveries and faulty | 0:20:26 | 0:20:30 | |
products costing thousands of pounds. | 0:20:30 | 0:20:35 | |
Mind your head. | 0:20:35 | 0:20:38 | |
I am on the trail of a man who makes a habit of taking his | 0:20:39 | 0:20:43 | |
customers to court. | 0:20:43 | 0:20:45 | |
That is Richard Wood and his business partner | 0:20:45 | 0:20:47 | |
Valerie Bailey from Basingstoke | 0:20:47 | 0:20:51 | |
Never oiled it, never greasdd it, never done anything to it. | 0:20:51 | 0:20:54 | |
They have been making thous`nds of pounds from families | 0:20:54 | 0:20:58 | |
and businesses across the country and it is all down | 0:20:58 | 0:21:00 | |
to garden furniture. | 0:21:00 | 0:21:03 | |
You can spend ?1 million and you will never get another one | 0:21:03 | 0:21:05 | |
you can barbecue on. | 0:21:05 | 0:21:07 | |
Richard and Valerie's company, Hampshire Garden Furniture, | 0:21:07 | 0:21:09 | |
sells high-end summerhouses and giant parasols. | 0:21:09 | 0:21:13 | |
With one hand, not two hands, with one. | 0:21:13 | 0:21:16 | |
Scores of customers have bedn summoned to court by Mr Wood. | 0:21:16 | 0:21:20 | |
And some say that is for orders they never even made. | 0:21:20 | 0:21:23 | |
It starts at around ?2,000. | 0:21:24 | 0:21:27 | |
We bought the cafe in December 009 and we opened in the spring of 010. | 0:21:30 | 0:21:35 | |
Jayne Gray runs a beach cafe in Falmouth. | 0:21:36 | 0:21:40 | |
She went to a trade show and ordered two large | 0:21:40 | 0:21:42 | |
parasols, or jumbrollies. | 0:21:42 | 0:21:45 | |
A signature item from Hampshire Garden Furniture's collection. | 0:21:45 | 0:21:49 | |
She paid a ?600 deposit and ordered her cafe logos to be | 0:21:49 | 0:21:51 | |
printed on the fabric. | 0:21:51 | 0:21:55 | |
The first arrived damaged and was taken away. | 0:21:55 | 0:21:58 | |
The second was not much better. | 0:21:58 | 0:22:01 | |
So this is it, this is the jumbrolly. | 0:22:01 | 0:22:03 | |
So, this is it. | 0:22:03 | 0:22:06 | |
Has this ever been used in `nger? | 0:22:06 | 0:22:10 | |
No, we can't use it because there is a square top missing at the top | 0:22:10 | 0:22:13 | |
so the rain would just come through the middle. | 0:22:13 | 0:22:15 | |
Right. | 0:22:15 | 0:22:17 | |
Can we try and see if we can get it up? | 0:22:17 | 0:22:21 | |
The other thing is, this was meant to be white. | 0:22:21 | 0:22:27 | |
If you notice, that has gone through the canvas. | 0:22:27 | 0:22:31 | |
That has gone right through. Right through, yes. | 0:22:31 | 0:22:33 | |
Meanwhile, the people who are sitting here | 0:22:33 | 0:22:36 | |
are getting wet. | 0:22:36 | 0:22:38 | |
Marie Burgess from Hatton in Cambridge found Mr Wood | 0:22:38 | 0:22:41 | |
at the Norwich Garden Show. | 0:22:41 | 0:22:44 | |
She ordered a brand-new oct`gonal summerhouse for her wedding day | 0:22:44 | 0:22:47 | |
and paid a ?2,000 deposit. | 0:22:47 | 0:22:51 | |
It was made, the weather was nice, we were looking forward | 0:22:51 | 0:22:54 | |
to on the Saturday afternoon, friends, family were going to be out | 0:22:54 | 0:22:57 | |
on the lawn in the gazebo. | 0:22:57 | 0:23:00 | |
That was going to be part of the celebrations. | 0:23:00 | 0:23:03 | |
Mr Wood took another ?6,000 from Marie's account and a week | 0:23:03 | 0:23:07 | |
before the big day, a gazebo arrived. | 0:23:07 | 0:23:11 | |
It was really substandard. | 0:23:11 | 0:23:13 | |
It was supposed to be hardwood and my son picked one | 0:23:13 | 0:23:17 | |
of the legs up with one hand. | 0:23:17 | 0:23:21 | |
It was all scratched and dented and I think it probably had | 0:23:21 | 0:23:25 | |
been used before. | 0:23:25 | 0:23:28 | |
Mr Wood agreed to replace the damaged gazebo and 24 hours | 0:23:28 | 0:23:31 | |
before the wedding, some workmen arrived with a different model. | 0:23:31 | 0:23:35 | |
Then, his excuse was, he hadn't got any octagonal shaped | 0:23:35 | 0:23:38 | |
ones, so would we have this round one? | 0:23:38 | 0:23:42 | |
They worked most of Thursdax and then realised they had only got | 0:23:42 | 0:23:46 | |
half of the roof here. | 0:23:46 | 0:23:49 | |
They had got a bit of the roof missing and some other | 0:23:49 | 0:23:51 | |
bits and pieces. | 0:23:52 | 0:23:54 | |
The heater, the fridge, bits and pieces were missing. | 0:23:54 | 0:23:57 | |
So they went away, left all the tools, things scattdred | 0:23:57 | 0:24:00 | |
all over the lawn, and said they would be back first thhng | 0:24:00 | 0:24:03 | |
Friday morning. | 0:24:03 | 0:24:04 | |
Bear in mind, we were getting married Friday afternoon. | 0:24:04 | 0:24:08 | |
No one did ever turn up. We went off and got married. | 0:24:08 | 0:24:12 | |
We didn't have a gazebo for the wedding and at that point, | 0:24:12 | 0:24:15 | |
we were thinking, we are ?8,500 out of pocket. | 0:24:15 | 0:24:20 | |
Many months later, they eventually did get their money back - | 0:24:20 | 0:24:23 | |
from the credit card companx. | 0:24:23 | 0:24:27 | |
Mr Wood said to us that Marhe was clearly unhappy and he offered | 0:24:27 | 0:24:30 | |
to replace the original delhvery and that he had found | 0:24:30 | 0:24:34 | |
her a replacement. | 0:24:34 | 0:24:38 | |
He said she then wanted to cancel the whole order and that he has | 0:24:38 | 0:24:41 | |
heard nothing since. | 0:24:41 | 0:24:44 | |
So, plenty of allegations of poor quality goods for loads of loney. | 0:24:44 | 0:24:47 | |
Some people don't get any ftrniture and they still end up in cotrt. | 0:24:47 | 0:24:53 | |
Mrs Lewis is having this carpet | 0:24:54 | 0:24:58 | |
Cheryl Squibb runs a home ftrnishing and carpet business. | 0:24:59 | 0:25:05 | |
She wanted to spend her hard earned cash on a nice summerhouse | 0:25:08 | 0:25:11 | |
for the whole family to rel`x in. | 0:25:11 | 0:25:16 | |
She was looking for something like this but the ones being offered | 0:25:17 | 0:25:20 | |
by Hampshire Garden Furniture came with a big discount. | 0:25:20 | 0:25:24 | |
I just wanted to know a little bit more about them, I was advised | 0:25:24 | 0:25:28 | |
a site survey would be done to confirm that I could havd one. | 0:25:28 | 0:25:32 | |
I was asked to sign the doctment to have the survey and to sdcure | 0:25:32 | 0:25:35 | |
the ?4,000 discount. | 0:25:35 | 0:25:39 | |
After the show, there was b`d news. | 0:25:39 | 0:25:42 | |
Cheryl's grandson was taken seriously ill with meningiths. | 0:25:42 | 0:25:45 | |
Understandably, her priorithes changed. | 0:25:45 | 0:25:49 | |
I cancelled the appointment on the proviso that I would re-book. | 0:25:49 | 0:25:52 | |
But in all honesty, my brain was all over the place, | 0:25:52 | 0:25:56 | |
we were in turmoil with the news we had been given. | 0:25:56 | 0:25:59 | |
I didn't think any more of ht. | 0:25:59 | 0:26:01 | |
What happened next? | 0:26:01 | 0:26:04 | |
I received a letter from Mr Wood saying that I had signed a contract, | 0:26:04 | 0:26:07 | |
I was liable for the summerhouse, it was on its way and he | 0:26:07 | 0:26:10 | |
wanted his payment. | 0:26:10 | 0:26:15 | |
But despite her protests, Cheryl ended up in court, | 0:26:15 | 0:26:19 | |
where Mr Wood produced a full ordered document apparently | 0:26:19 | 0:26:22 | |
signed by Cheryl. | 0:26:22 | 0:26:26 | |
How do you think your signature is on an order and invoice document? | 0:26:26 | 0:26:29 | |
I don't know how it has been done but it was done without | 0:26:29 | 0:26:32 | |
my knowledge at all. | 0:26:32 | 0:26:34 | |
I have done nothing wrong, I work for every penny I have got. | 0:26:34 | 0:26:37 | |
I built my own business over ten years and have | 0:26:37 | 0:26:40 | |
gone without everything. Now I am having to pay this man | 0:26:40 | 0:26:45 | |
We have spoken to a number of people who told us the same story, | 0:26:46 | 0:26:50 | |
that they thought they were signing up to guarantee a trade show | 0:26:50 | 0:26:53 | |
discount, only to discover it was a contract they | 0:26:53 | 0:26:56 | |
couldn't get out of. | 0:26:56 | 0:26:59 | |
Mr Wood told us he didn't bdlieve anyone would sign an order | 0:26:59 | 0:27:02 | |
by mistake and said he was obliged to take people to court | 0:27:02 | 0:27:05 | |
because these were bespoke htems, difficult to resell. | 0:27:05 | 0:27:09 | |
This is our first day and this is the only one for 4,000 anywhere. | 0:27:09 | 0:27:14 | |
Actually, he offers this discount at every show. | 0:27:15 | 0:27:20 | |
Mr Wood didn't want to be interviewed for the programle | 0:27:20 | 0:27:24 | |
about the unhappy customers left in his wake who claimed | 0:27:24 | 0:27:27 | |
they were either misled about what they were signing up for, | 0:27:27 | 0:27:31 | |
or who had received the wrong items, damaged goods or nothing at all | 0:27:31 | 0:27:35 | |
Mr Wood claims he has only taken 90 people to court over the last ten | 0:27:35 | 0:27:39 | |
years and had good reason to do so. | 0:27:39 | 0:27:43 | |
We have talked to similar businesses, the same size | 0:27:43 | 0:27:47 | |
as Mr Wood's who say they h`ve never taken legal action against `nyone. | 0:27:47 | 0:27:51 | |
As for Mr Wood's customers, they say they have lost thotsands | 0:27:51 | 0:27:56 | |
of pounds and regret ever doing business with Hampshire | 0:27:56 | 0:27:58 | |
Garden Furniture. | 0:27:58 | 0:28:01 | |
This worked out lovely, chedrs! | 0:28:01 | 0:28:06 | |
It is the injustice of it all, he's still going to these trade | 0:28:07 | 0:28:10 | |
shows and that is where he meets people. | 0:28:10 | 0:28:13 | |
Definitely, definitely don't buy one, keep walking. | 0:28:13 | 0:28:15 | |
Just really keep walking. | 0:28:15 | 0:28:18 | |
And yes, I would probably floor him if I saw him now. | 0:28:18 | 0:28:22 | |
And that is it from all of ts on Inside Out. | 0:28:25 | 0:28:28 | |
We will be back next Monday at 7.30pm. | 0:28:28 | 0:28:30 | |
I will see you then. Goodbye. | 0:28:30 | 0:28:35 | |
Hello, I'm Riz Lateef with your 90 second update. | 0:29:04 | 0:29:06 | |
A leap in the dark. | 0:29:06 | 0:29:07 | |
That's what David Cameron says leaving the European Union would be. | 0:29:07 | 0:29:11 | |
He made his case to stay to MPs today. | 0:29:11 | 0:29:13 | |
But the pound suffered its biggest drop against the dollar | 0:29:13 | 0:29:16 | |
since he became Prime Minister. | 0:29:16 | 0:29:18 | |
Details at Ten. | 0:29:18 | 0:29:19 | |
Adam Johnson began giving evidence at his trial today. | 0:29:19 | 0:29:22 | |
The footballer denied doing anything more than kissing | 0:29:22 | 0:29:24 | |
a 15-year-old girl. | 0:29:24 | 0:29:26 | |
But he admitted exchanging hundreds of texts with her | 0:29:26 | 0:29:28 | |
was flirty and inappropiate. | 0:29:28 | 0:29:30 | |
He denies sexual activity with a child. | 0:29:30 | 0:29:33 | |
200 mile an hour winds. | 0:29:33 | 0:29:35 | |
At least 20 people killed. | 0:29:35 | 0:29:37 | |
Fiji is struggling to get back on its feet after being flattened | 0:29:37 | 0:29:40 | |
by Cyclone Winston. | 0:29:40 | 0:29:41 | |
Changed energy supplier in the last year? | 0:29:41 | 0:29:44 | |
Well, you're not alone. | 0:29:44 | 0:29:45 |