14/01/2013 Inside Out South


14/01/2013

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Hello from West Sussex and welcome to Inside Out. Plenty to tell you

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about tonight. Here is what is coming up. The dream is not such a

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dream any more, it is a nightmare. Oh, we do like to be beside the

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seaside. But for how much longer? People in West Sussex fight to save

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their homes. The environmentalists are having too much of a say in

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what happens. Is it fair to let nature take a house is a way?

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And living with butterfly disease, the misunderstood condition with a

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beautiful name. They say their skin is as delicate as a butterfly's

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wings. We just want them to be accepted. This is Inside Out for

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:00:53.:01:03.

First tonight, a story you e-mailed us about, this is the problem, up

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coastal erosion here in West Sussex. Homeowners at Pagham are fighting

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to save their beachfront homes. This stretch of Sussex coast is

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described by experts as one of the most naturally dynamic in the

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country. Meaning it is changing, rapidly. This beach is at Chapel is

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one beach, it is full of interesting plants and animals. We

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are losing it at the rate of about six metres a year. The diggers are

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here to try and save it. More shingle is meant to hold the waves

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back. My house's name means view of the sea. Ten years ago, we left

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Croydon, we moved away from our family and friends to move the

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children down here and that the dream, now the dream is not such a

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dream, it is a nightmare. A beach can provide good protection from

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the sea, but not if it is wearing away. I am particularly beachfront

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property, it is getting washed away. -- potentially. I have lived here

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for 37 years. I might not be here for very much longer if this

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continues to be left like this. live on a knife edge here, each day,

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we get out on one of a high tides and go to see what exactly happened.

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We wake up in the night, having nightmares. Something has to be

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done, urgently. What is happening here at Pagham is not a landslide

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or crashing, falling cliffs, it is the gradual loss of pebbles from a

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beach. But the effect is just as dramatic. It threatens a community

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of seaside bungalows that has grown up here over 80 years. -- over 100

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years. When it comes to saving it, nothing here so far has provided a

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long-lasting solution. Brian is a seasoned surfer and stand-up paddle

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boarder. He knows the water here better than most. I have let down

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here for many years got up I have spent a lot of time in that water,

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on it or under it. I know how it works. At the moment, it is carving

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are beach away drastically. Locals say the harbour mouth has been

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silting up since 2004, and as a result, a 900 metre spit has grown,

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meaning the sea cannot flow in and out, and shingle which should be

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dumped on the beach ends up on the spit. The spit then redirects the

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sea's current along the beach, Today, Arun District Council is

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moving shingle from the far end of the beach to the most depleted part.

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Three years ago, an even bigger shingle moving project took place,

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costing �600,000. Locals say most of that shingle has washed away.

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This time, it is costing �10,000, but few hold out much hope that

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this new batch will stay put either. I am not an engineer. I just know

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my local water. I can see this getting worse. This being parked in

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here, imagine where we are standing, it used to be a straight line down

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towards Bognor. That is mainly over the last four or five years, it has

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got worse. That is about six metres over a period. We have winter

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storms coming up. Along this stretch of beach, where it hits the

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rock, you get the swirling effects and it is eating away the beach.

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This used to go at another 70 or 80 feet. That is how much we have lost.

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Every time we lose more. Phil Isom has roughly 20 metres of beach

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between him and the sea. Like the other property owners here, he says

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he could lose everything. Seeing shingle being moved doesn't fill

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him with confidence. This is a token effort, because until the

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harbour mouth is reopened, as fast as they rebuild the beach, the tide

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will sweep it away. So it is at about situation. We loved the sea,

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but we do not want it in our property. Diana Willson wants to

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sell up and move, and she has had no shortage of potential buyers.

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But every time she gets an offer, a survey is done and the beach

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erosion is revealed. I need to move, and 82. I should move on, to a

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place where there is a bit more help, I think. They have taken my

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house of the market now, because they say it is not saleable at the

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moment. With the foreshore as it is. I have had quite a number or offers

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at all of them have taken it off after finding out the details of

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the beach. Diana thinks moving shingle around is a waste of time

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and taxpayers' money. I do not think it will last long, because if

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you get a storm, you will find it will go and you will find it

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somewhere else. Everyone has got a theory as to how to stop the

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erosion. Local parish councillor Ray Radmall has devoted much of his

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life to solving the problem and thinks it is high time one of the

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proposed solutions was actually carried out. The whole of the

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frontage of Pagham is classified by the Environment -- the Environment

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Agency as subject to erosion. If it took its natural course, you would

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lose all the beach seafront and Idlib progress in land. It would be

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a huge disaster. It makes common sense to try to hold the line as

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best we can, but we do not have a hold the line policy for Pagham. We

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have adapted management, work with nature rather than act against it.

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This is one of the things we think we need to address again,

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particularly when it comes to correcting the growth of that

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shingle back that is causing the problem. Pagham Harbour is a

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crucial habitat for wildlife. It is thought to be home to the very rare

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Delfolin's lagoon snail. It is a pit stop for overwintering birds

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and in the spring, little terns nest on its mudflats and salt

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marshes. The shingle bank itself is even considered a rare natural

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feature. As a result, there is a proposal to make the area a marine

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conservation zone. All of which means treading very carefully when

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it comes to building coastal defences. At Pagham Harbour, we

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have an amazing nature site. It is a special protection area.

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Thousands of water birds visit here. In the whole of England, there are

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only 85 of these areas. As a nation, we have committed to protect them.

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These are teals coming in. Probably from Russia. These flocks of waders

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coming in and flashing white across there, they may not have mixed in

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with them. Some grey plovers have come in. They are quite difficult

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to see once they are down on the ground. The RSPB as over 200 nature

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reserves in the country, all of those are part of somebody's

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community and the people here do so because they love places like this

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will stop at the same time for all we have a local community who have

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a very real and pressing a distressing issue right on the

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doorstep. For us, the key thing is that we feel there are solutions

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that can be found here to protect the birds and protect the people,

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but that requires court -- collaboration. Close working. The

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earliest community here were people on holiday in makeshift homes,

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which were never meant to be permanent. The bungalows started

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life in the 1930s as railway carriages, converted into holiday

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homes. So, what better way to find out how things have changed than

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meeting someone who first came here in 1932 for holidays with his

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grandparents? The two railway carriages, one either side, like

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that. They used to buy them for put pounds from Southern Railway. They

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put them up with two courses. It built roof over the top. There you

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are, that was a bungalow. Jacomelli is 85 and has come back

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to look for his old house before it disappears. When I was young, my

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father would take me on his shoulders across the harbour mouth,

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where the water goes out. When the tide was low, he would put me on

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his shoulder. We would build rafts to go on, we had boats to go one.

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None of this was here before, it was all shingles. We arrive at his

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old house unannounced. It says a lot about the community that we get

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a warm welcome from current owner Tex, who has lived here since the

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early 1980s. Bloody hell! When did you live here? During the war. They

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used to be more beach down at the bottom. We used to play down there.

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Come in, come in. Yes, this is as it used to be, the old Will we

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carriage doors there. My grandmother used to sleep in that

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bedroom. These are old railway carriage doors and my grandfather

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put panels on. He panelled the strewn with oak panelling and he

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took the carriage windows out of the outside. The kids used to sleep

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in that room. The guests Slapton Barra. They still do. -- be guests

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slept in that room. Bat carriage there is the Gaud's van. And the

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bit that sticks out that side, and debate the other side. So the old

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guard could look down the side of the train and make sure no one is

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crawling along. Now we keep the guests there. But as my grandfather

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and grandmother what the name of the house. That is the whole family

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before the war, that is me. There is the railway carriage, the shape

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It is of real outrage to let this place go. I can remember back to

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the Thirties and there's people here since then, it has become more

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of the settled community now. It used to be a holiday community. To

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lose it all would be such a shame because it is a beautiful spot, no

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doubt about it. Ray's fears are not shared by the Environment Agency,

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which says other places are more at risk than Pagham. It's has paid

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thousands of pounds for studies to come up with potential solutions.

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A lot of committees along the coast Auret risk of coastal flooding,

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which will risk -- vary depending on the location and the defences

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there, but given locations near as, in Littlehampton or Bognor Regis

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saw further along the coast, where we have built new defences, many

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aren't up to the standard this beach currently provides, so it is

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important to put that into context. Even after the recent erosion, we

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still had a beach over 20 metres wide here. That provides a good

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standard of protection, and that is not belittling the erosion. I

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understand that is of concern to the local community, but we are

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committed to working with Arun District Council and others to

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ensure that would be committed we manage the risk as best we can.

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that local community is frustrated watching shingle being moved well

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their beach continues to shrink. Back at his past Council HQ, Ray's

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says the answer is reopening the harbour to the seat by cutting

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through the spit. He believes this will bring shingle back onto the

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beach naturally. Ray's plan is backed up by surveys and even an

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Environment Agency report where coastal engineer proposed just that.

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It is a solution which will probably get this 15-20 years of

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free shingle coming back naturally onto the beach. We have the

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�160,000 study commissioned by the Environment Agency a couple of

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years ago, and here we have a conceptual model for digging the

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Channel, so it is not a pipe dream but something that has come through

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the various authorities plans anyway. So if cutting through they

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spit was suggested two years ago, why hasn't it been done? Cutting a

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channel through the spit or undertaking other modifications was

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one of them up -- a number of options. The report concluded that

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we couldn't say with certainty which was the right one to take at

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the moment, and it recommended closely monitoring the situation

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and being ready to respond with the work as and when needed. Is it a

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waste of money, in conclusion? It has given us the confidence to

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know what to do when the time is right. As of today, I can't say

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which has the right bits of work to undertake. Moving forward, we need

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to work closely with the committee, monitor what is going on, and is

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important that we do that and use public money wisely.

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Environment Agency and Arun District Council are working

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together. With their resident gadget man constantly monitoring

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Be its Derek -- very blustery out there today so difficult to control.

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10 metres above the beach. That extra height will give us a lot

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more information. Today, coastal engineer Roger Spence there is

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surveying the project, and it doesn't take long for residents to

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spot them. You've got a nice start a beach in front of the now, maybe

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not as much as you would like. We have done what we set out to do.

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can't understand why we can't chop the spit down there outside the

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nature reserve. It is a natural process and we need to work with

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nature rather own against it. At the moment we believe we can manage

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your beach with nature rather than fighting against it too much. If we

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spent money the wrong way we would be criticised as much as not

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spending money. It will cost a lot of money whatever we do, so we have

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to be absolutely sure we have the right answer. Residents can only

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wait and see if the boosted beach will stay put. Work started when

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there was 20 metres of beach between houses and the sea.

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Officially, at the level is now 15 metres. The estimated cost of

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cutting a channel through the spit is half a million pounds. There is

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another very cheap final option. If an engineering scheme is deemed too

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expensive, the powers that be can simply do nothing. That means that

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if it becomes no longer viable cost wise to actually keeper place

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secure, the authorities reserved the right to walk away. They let

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Two weeks after the shingle was moved to shore up the beach at

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Pagham, the local community is out in force. Not after a storm or

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particularly bad weather, just the morning after the first spring tide,

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and they have come prepared. metres. If you are generous you

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might go to 18.1, but fundamentally, 18 metres, so that is not only the

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shingle that was put here, a 1000 cubic metres have gone, but another

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two metres loss on before they did the work. You can see the way

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vegetation is falling over the edge and the fact that it is going

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behind that groyne, which has safe guarding the rest of the beach in

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that direction, it is undermining it. If that groyne would go it

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would be bypassed by the current going round the back and that

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threatens a bigger area of the beach. Erosion has been a caring

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here for many years and will continue to in the future. We can't

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stop it. But by its undertaking maintenance work we can lessen the

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impact. We will have to keep undertaking maintenance work here.

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What it will be is something we need to work out, and we will start

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but short-lived. Everybody here knows that putting shingle on this

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beach is no solution. The only way is to deal with the problem at

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source, intervene and do something with this bit. I don't want to see

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people here fretting and losing their homes. I believe it is now

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becoming urgent that something is done and there is a government

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intervention to ensure it happens. A as the sea edges closer to

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people's homes, few would deny a long-term solution is needed to

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protect residents and the seascape which brought them here in the

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first place. Go is it fair to let nature take a houses away when it

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can be stopped? I think there are people here within 30 metres of

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losing their property who have a good argument to say that they can

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do something about it and they should be -- within 13 metres.

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came to pack can because I was here as a child on the old bucket-and-

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spade holidays. Many people come back down the here because they

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have that experience and want to retire. Not wealthy people by a

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long chalk. Nice, good, open- hearted people. It is only right

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:19:22.:19:23.

and proper we should look after We will be keeping an eye on what

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happens here at Pagham throughout the year. Things are changing all

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the time and at the moment we have a distance from the houses to the

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sea off roundabout, what, 17 metres, just two metres away from the

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critical 15 metre mark where action will be taken. Don't forget, if you

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have a story up -- a story for us, drop as an e-mail. Next, at the

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young daughter -- Dorset family living with a rare genetic

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condition that has turned their lives upside down and led to some

:19:57.:20:07.
:20:07.:20:12.

unwanted attention. He is their The they say their skin is as

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delicate as a butterfly's wins. wings. It is so lovely, it makes

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something so horrible so beautiful. I am Steph and this is Chris, my

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fiancee and a two special children, Harry who is three and a half and

:20:32.:20:37.

Cody who is one and a half. As people often stop and ask, no, our

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kids haven't been burnt, scolded or beaten. They have a rare skin

:20:42.:20:47.

disorder called EB. We wanted to make this film to make life easier

:20:47.:20:53.

for us and other families with kids with EB. We see ourselves as normal

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people living in extraordinary circumstances. Cody is 18 months,

:20:58.:21:08.
:21:08.:21:10.

and he has his mum's attitudes, and Hello! Did you have a nice day at

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school? Harry is quite chilled. Does as he

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is told, gets on with things. a very strong-willed son, quite

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demanding, when he wants something, he wants it. But because of the way

:21:29.:21:33.

we are with him, he is quite small and he gets what we -- what he

:21:33.:21:37.

wants, but we don't know how long we have him for so that's why we do

:21:37.:21:43.

it. In 2009 I gave birth to Harry. I had lost baby twins in my first

:21:43.:21:48.

pregnancy so it was a relief to see my healthy son. It was amazing, the

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best feeling in the world. I can't really describe it, to be honest,

:21:53.:21:58.

it was like a fairy tale, to be honest, it was, but the first few

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weeks were really good. You are, really happy. He was born and

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everything was fine. Took him home, everything was fine, just got on

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like a normal family, then a round three-four weeks old, or we so he

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had blisters coming up on his fingernails. Might mum said, what's

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wrong with his hands? She said, look, so I came home, took him to a

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hospital, they just got it was a normal infection under the nails.

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The soars started to spread on to his feet, up to his face and on to

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his body. Lifting him was hard, if you lifted under the arms you could

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rip the skin, so it was all scooping him with blankets and

:22:44.:22:49.

cushions. It wasn't normal for a baby all for us. You couldn't

:22:49.:22:57.

cuddle your child. They clinically diagnosed him with EB, which is a

:22:57.:23:02.

really bad, severe version of the disease, and the life expectancy,

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they said six months to year, so it really hit home. Scary, really

:23:07.:23:12.

scary. But despite the odds, Harry is still with us and enjoying life.

:23:13.:23:15.

He even goes to school and bakes cakes.

:23:15.:23:19.

Is it for money, just money, not for Daddy?

:23:19.:23:24.

There are only 5000 people with EB in the UK, and the odds of us

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having another child with it was unlikely, so we took the small risk

:23:28.:23:31.

and had Cody. I can't describe what it was like.

:23:31.:23:36.

I was so happy when he was born and he was alive, then looked at him

:23:36.:23:40.

and saw his hands and I was like, oh my God, he has got it. Caring

:23:40.:23:45.

for two children with EB requires a spare bedroom full of medication.

:23:45.:23:50.

Both boys had to have tracheotomy is, meaning they can't speak and

:23:50.:23:55.

need constant monitoring. We also need to change their bandages twice

:23:55.:23:59.

a day, something none of our family looks forward to. I don't like

:23:59.:24:03.

doing it. It is not really fair run him but it has to be done for him,

:24:03.:24:09.

really. He is quite good, once he gets past the anxiety of having

:24:09.:24:14.

them done, he is quite good, as you can see. He is that they're quite

:24:14.:24:19.

happy, just lets me get on with it. Sundays are better than others and

:24:19.:24:24.

luckily today he is co-operating -- some days. He is unpredictable

:24:24.:24:30.

depending on how he is feeling, really. Yes, he's a good boy. He's

:24:30.:24:34.

quite funny. He knows whether dressing goes so if I did something

:24:34.:24:44.
:24:44.:24:46.

Good! We have the bandages changed, sometimes we are able to venture

:24:46.:24:56.
:24:56.:24:58.

A You Like It? Big, isn't it? You have to put in a letter to Santa in

:24:58.:25:02.

they're telling him what you want for Christmas. By it as much as we

:25:02.:25:06.

try to get on with shopping, we can't help noticing the amount of

:25:06.:25:10.

people that stop and say things about our kids. That lady with the

:25:10.:25:20.

blue top on. She looked at them and shook their heads. It was like, no

:25:20.:25:24.

need for it, really. I don't know what goes through their heads. But

:25:24.:25:28.

I don't understand how people can be so cruel to children.

:25:28.:25:32.

The they just stopped, turned round, started talking to each other,

:25:32.:25:36.

pointed, then just stared, sci-fi like waving at them but I thought

:25:36.:25:44.

I'd better not. People dread their children away from mine, and people

:25:44.:25:47.

have -- laugh but the boys and I have never be used in the streets.

:25:48.:25:51.

I can understand that to see a child like that you would be

:25:51.:25:55.

shocked, but all we ask is that you are scarce. We are happy to talk to

:25:55.:26:01.

for 20 minutes about it. -- that you ask us. The man is doing your

:26:01.:26:11.
:26:11.:26:12.

picture, Harry. Looked! Who is that? A is that you? Happy New Year.

:26:12.:26:22.

Your a monkey! -- you are. That is the frock. He wants the Frog now as

:26:22.:26:32.
:26:32.:26:33.

well. He has got the monkey. It's By a get home, it is business as

:26:33.:26:39.

usual as we get the kids ready for bed. I fixed in a while Harry has

:26:39.:26:47.

some dance time. -- fix dinner. Just giving him a nebuliser, just

:26:47.:26:54.

to get all the secretions out, really. The boys need looking after

:26:54.:26:58.

24 hours a day, so each evening, two carers arrive so we can get

:26:58.:27:04.

some rest for the night. He's seems quite itchy round his

:27:04.:27:14.
:27:14.:27:15.

neck. A OK. But it's usually me he The responsibility is massive,

:27:15.:27:18.

especially when they are really unwell and they have a chest

:27:18.:27:25.

infection, because you are the one responsible for keeping that airway

:27:25.:27:31.

open. And sometimes it's not always possible. They start blocking off,

:27:31.:27:37.

and stuff, so it is a massive responsibility. We have only had to

:27:37.:27:45.

resuscitate its Coady once. So far. The future is uncertain for Harry

:27:45.:27:51.

and Cody, so we try to make every day and night special. I try to

:27:51.:27:56.

take every day as it comes. I don't like trying to look ahead, because

:27:56.:28:00.

they don't know what the future holds for us, so we just take each

:28:00.:28:04.

day as it comes, and whatever the day will throw at us, we have to

:28:04.:28:08.

deal with it when it comes. No point in trying to plan anything,

:28:08.:28:13.

and it is a way of life for us now, and we just wants to be accepted,

:28:13.:28:18.

that is all, really. Two very brave young boys there.

:28:18.:28:23.

Don't forget, jaws stories really can make a difference, so why don't

:28:23.:28:30.

you tell me about them? On Twitter. I will be back next week. Until

:28:30.:28:34.

then, goodbye. And next time, we give Portsmouth

:28:34.:28:39.

full health check-up, and comedian and GP Dr Phil Hammond takes the

:28:39.:28:44.

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