14/01/2013 Inside Out South


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Hello from West Sussex and welcome to Inside Out. Plenty to tell you


about tonight. Here is what is coming up. The dream is not such a


dream any more, it is a nightmare. Oh, we do like to be beside the


seaside. But for how much longer? People in West Sussex fight to save


their homes. The environmentalists are having too much of a say in


what happens. Is it fair to let nature take a house is a way?


And living with butterfly disease, the misunderstood condition with a


beautiful name. They say their skin is as delicate as a butterfly's


wings. We just want them to be accepted. This is Inside Out for


First tonight, a story you e-mailed us about, this is the problem, up


coastal erosion here in West Sussex. Homeowners at Pagham are fighting


to save their beachfront homes. This stretch of Sussex coast is


described by experts as one of the most naturally dynamic in the


country. Meaning it is changing, rapidly. This beach is at Chapel is


one beach, it is full of interesting plants and animals. We


are losing it at the rate of about six metres a year. The diggers are


here to try and save it. More shingle is meant to hold the waves


back. My house's name means view of the sea. Ten years ago, we left


Croydon, we moved away from our family and friends to move the


children down here and that the dream, now the dream is not such a


dream, it is a nightmare. A beach can provide good protection from


the sea, but not if it is wearing away. I am particularly beachfront


property, it is getting washed away. -- potentially. I have lived here


for 37 years. I might not be here for very much longer if this


continues to be left like this. live on a knife edge here, each day,


we get out on one of a high tides and go to see what exactly happened.


We wake up in the night, having nightmares. Something has to be


done, urgently. What is happening here at Pagham is not a landslide


or crashing, falling cliffs, it is the gradual loss of pebbles from a


beach. But the effect is just as dramatic. It threatens a community


of seaside bungalows that has grown up here over 80 years. -- over 100


years. When it comes to saving it, nothing here so far has provided a


long-lasting solution. Brian is a seasoned surfer and stand-up paddle


boarder. He knows the water here better than most. I have let down


here for many years got up I have spent a lot of time in that water,


on it or under it. I know how it works. At the moment, it is carving


are beach away drastically. Locals say the harbour mouth has been


silting up since 2004, and as a result, a 900 metre spit has grown,


meaning the sea cannot flow in and out, and shingle which should be


dumped on the beach ends up on the spit. The spit then redirects the


sea's current along the beach, Today, Arun District Council is


moving shingle from the far end of the beach to the most depleted part.


Three years ago, an even bigger shingle moving project took place,


costing �600,000. Locals say most of that shingle has washed away.


This time, it is costing �10,000, but few hold out much hope that


this new batch will stay put either. I am not an engineer. I just know


my local water. I can see this getting worse. This being parked in


here, imagine where we are standing, it used to be a straight line down


towards Bognor. That is mainly over the last four or five years, it has


got worse. That is about six metres over a period. We have winter


storms coming up. Along this stretch of beach, where it hits the


rock, you get the swirling effects and it is eating away the beach.


This used to go at another 70 or 80 feet. That is how much we have lost.


Every time we lose more. Phil Isom has roughly 20 metres of beach


between him and the sea. Like the other property owners here, he says


he could lose everything. Seeing shingle being moved doesn't fill


him with confidence. This is a token effort, because until the


harbour mouth is reopened, as fast as they rebuild the beach, the tide


will sweep it away. So it is at about situation. We loved the sea,


but we do not want it in our property. Diana Willson wants to


sell up and move, and she has had no shortage of potential buyers.


But every time she gets an offer, a survey is done and the beach


erosion is revealed. I need to move, and 82. I should move on, to a


place where there is a bit more help, I think. They have taken my


house of the market now, because they say it is not saleable at the


moment. With the foreshore as it is. I have had quite a number or offers


at all of them have taken it off after finding out the details of


the beach. Diana thinks moving shingle around is a waste of time


and taxpayers' money. I do not think it will last long, because if


you get a storm, you will find it will go and you will find it


somewhere else. Everyone has got a theory as to how to stop the


erosion. Local parish councillor Ray Radmall has devoted much of his


life to solving the problem and thinks it is high time one of the


proposed solutions was actually carried out. The whole of the


frontage of Pagham is classified by the Environment -- the Environment


Agency as subject to erosion. If it took its natural course, you would


lose all the beach seafront and Idlib progress in land. It would be


a huge disaster. It makes common sense to try to hold the line as


best we can, but we do not have a hold the line policy for Pagham. We


have adapted management, work with nature rather than act against it.


This is one of the things we think we need to address again,


particularly when it comes to correcting the growth of that


shingle back that is causing the problem. Pagham Harbour is a


crucial habitat for wildlife. It is thought to be home to the very rare


Delfolin's lagoon snail. It is a pit stop for overwintering birds


and in the spring, little terns nest on its mudflats and salt


marshes. The shingle bank itself is even considered a rare natural


feature. As a result, there is a proposal to make the area a marine


conservation zone. All of which means treading very carefully when


it comes to building coastal defences. At Pagham Harbour, we


have an amazing nature site. It is a special protection area.


Thousands of water birds visit here. In the whole of England, there are


only 85 of these areas. As a nation, we have committed to protect them.


These are teals coming in. Probably from Russia. These flocks of waders


coming in and flashing white across there, they may not have mixed in


with them. Some grey plovers have come in. They are quite difficult


to see once they are down on the ground. The RSPB as over 200 nature


reserves in the country, all of those are part of somebody's


community and the people here do so because they love places like this


will stop at the same time for all we have a local community who have


a very real and pressing a distressing issue right on the


doorstep. For us, the key thing is that we feel there are solutions


that can be found here to protect the birds and protect the people,


but that requires court -- collaboration. Close working. The


earliest community here were people on holiday in makeshift homes,


which were never meant to be permanent. The bungalows started


life in the 1930s as railway carriages, converted into holiday


homes. So, what better way to find out how things have changed than


meeting someone who first came here in 1932 for holidays with his


grandparents? The two railway carriages, one either side, like


that. They used to buy them for put pounds from Southern Railway. They


put them up with two courses. It built roof over the top. There you


are, that was a bungalow. Jacomelli is 85 and has come back


to look for his old house before it disappears. When I was young, my


father would take me on his shoulders across the harbour mouth,


where the water goes out. When the tide was low, he would put me on


his shoulder. We would build rafts to go on, we had boats to go one.


None of this was here before, it was all shingles. We arrive at his


old house unannounced. It says a lot about the community that we get


a warm welcome from current owner Tex, who has lived here since the


early 1980s. Bloody hell! When did you live here? During the war. They


used to be more beach down at the bottom. We used to play down there.


Come in, come in. Yes, this is as it used to be, the old Will we


carriage doors there. My grandmother used to sleep in that


bedroom. These are old railway carriage doors and my grandfather


put panels on. He panelled the strewn with oak panelling and he


took the carriage windows out of the outside. The kids used to sleep


in that room. The guests Slapton Barra. They still do. -- be guests


slept in that room. Bat carriage there is the Gaud's van. And the


bit that sticks out that side, and debate the other side. So the old


guard could look down the side of the train and make sure no one is


crawling along. Now we keep the guests there. But as my grandfather


and grandmother what the name of the house. That is the whole family


before the war, that is me. There is the railway carriage, the shape


It is of real outrage to let this place go. I can remember back to


the Thirties and there's people here since then, it has become more


of the settled community now. It used to be a holiday community. To


lose it all would be such a shame because it is a beautiful spot, no


doubt about it. Ray's fears are not shared by the Environment Agency,


which says other places are more at risk than Pagham. It's has paid


thousands of pounds for studies to come up with potential solutions.


A lot of committees along the coast Auret risk of coastal flooding,


which will risk -- vary depending on the location and the defences


there, but given locations near as, in Littlehampton or Bognor Regis


saw further along the coast, where we have built new defences, many


aren't up to the standard this beach currently provides, so it is


important to put that into context. Even after the recent erosion, we


still had a beach over 20 metres wide here. That provides a good


standard of protection, and that is not belittling the erosion. I


understand that is of concern to the local community, but we are


committed to working with Arun District Council and others to


ensure that would be committed we manage the risk as best we can.


that local community is frustrated watching shingle being moved well


their beach continues to shrink. Back at his past Council HQ, Ray's


says the answer is reopening the harbour to the seat by cutting


through the spit. He believes this will bring shingle back onto the


beach naturally. Ray's plan is backed up by surveys and even an


Environment Agency report where coastal engineer proposed just that.


It is a solution which will probably get this 15-20 years of


free shingle coming back naturally onto the beach. We have the


�160,000 study commissioned by the Environment Agency a couple of


years ago, and here we have a conceptual model for digging the


Channel, so it is not a pipe dream but something that has come through


the various authorities plans anyway. So if cutting through they


spit was suggested two years ago, why hasn't it been done? Cutting a


channel through the spit or undertaking other modifications was


one of them up -- a number of options. The report concluded that


we couldn't say with certainty which was the right one to take at


the moment, and it recommended closely monitoring the situation


and being ready to respond with the work as and when needed. Is it a


waste of money, in conclusion? It has given us the confidence to


know what to do when the time is right. As of today, I can't say


which has the right bits of work to undertake. Moving forward, we need


to work closely with the committee, monitor what is going on, and is


important that we do that and use public money wisely.


Environment Agency and Arun District Council are working


together. With their resident gadget man constantly monitoring


Be its Derek -- very blustery out there today so difficult to control.


10 metres above the beach. That extra height will give us a lot


more information. Today, coastal engineer Roger Spence there is


surveying the project, and it doesn't take long for residents to


spot them. You've got a nice start a beach in front of the now, maybe


not as much as you would like. We have done what we set out to do.


can't understand why we can't chop the spit down there outside the


nature reserve. It is a natural process and we need to work with


nature rather own against it. At the moment we believe we can manage


your beach with nature rather than fighting against it too much. If we


spent money the wrong way we would be criticised as much as not


spending money. It will cost a lot of money whatever we do, so we have


to be absolutely sure we have the right answer. Residents can only


wait and see if the boosted beach will stay put. Work started when


there was 20 metres of beach between houses and the sea.


Officially, at the level is now 15 metres. The estimated cost of


cutting a channel through the spit is half a million pounds. There is


another very cheap final option. If an engineering scheme is deemed too


expensive, the powers that be can simply do nothing. That means that


if it becomes no longer viable cost wise to actually keeper place


secure, the authorities reserved the right to walk away. They let


Two weeks after the shingle was moved to shore up the beach at


Pagham, the local community is out in force. Not after a storm or


particularly bad weather, just the morning after the first spring tide,


and they have come prepared. metres. If you are generous you


might go to 18.1, but fundamentally, 18 metres, so that is not only the


shingle that was put here, a 1000 cubic metres have gone, but another


two metres loss on before they did the work. You can see the way


vegetation is falling over the edge and the fact that it is going


behind that groyne, which has safe guarding the rest of the beach in


that direction, it is undermining it. If that groyne would go it


would be bypassed by the current going round the back and that


threatens a bigger area of the beach. Erosion has been a caring


here for many years and will continue to in the future. We can't


stop it. But by its undertaking maintenance work we can lessen the


impact. We will have to keep undertaking maintenance work here.


What it will be is something we need to work out, and we will start


but short-lived. Everybody here knows that putting shingle on this


beach is no solution. The only way is to deal with the problem at


source, intervene and do something with this bit. I don't want to see


people here fretting and losing their homes. I believe it is now


becoming urgent that something is done and there is a government


intervention to ensure it happens. A as the sea edges closer to


people's homes, few would deny a long-term solution is needed to


protect residents and the seascape which brought them here in the


first place. Go is it fair to let nature take a houses away when it


can be stopped? I think there are people here within 30 metres of


losing their property who have a good argument to say that they can


do something about it and they should be -- within 13 metres.


came to pack can because I was here as a child on the old bucket-and-


spade holidays. Many people come back down the here because they


have that experience and want to retire. Not wealthy people by a


long chalk. Nice, good, open- hearted people. It is only right


and proper we should look after We will be keeping an eye on what


happens here at Pagham throughout the year. Things are changing all


the time and at the moment we have a distance from the houses to the


sea off roundabout, what, 17 metres, just two metres away from the


critical 15 metre mark where action will be taken. Don't forget, if you


have a story up -- a story for us, drop as an e-mail. Next, at the


young daughter -- Dorset family living with a rare genetic


condition that has turned their lives upside down and led to some


unwanted attention. He is their The they say their skin is as


delicate as a butterfly's wins. wings. It is so lovely, it makes


something so horrible so beautiful. I am Steph and this is Chris, my


fiancee and a two special children, Harry who is three and a half and


Cody who is one and a half. As people often stop and ask, no, our


kids haven't been burnt, scolded or beaten. They have a rare skin


disorder called EB. We wanted to make this film to make life easier


for us and other families with kids with EB. We see ourselves as normal


people living in extraordinary circumstances. Cody is 18 months,


and he has his mum's attitudes, and Hello! Did you have a nice day at


school? Harry is quite chilled. Does as he


is told, gets on with things. a very strong-willed son, quite


demanding, when he wants something, he wants it. But because of the way


we are with him, he is quite small and he gets what we -- what he


wants, but we don't know how long we have him for so that's why we do


it. In 2009 I gave birth to Harry. I had lost baby twins in my first


pregnancy so it was a relief to see my healthy son. It was amazing, the


best feeling in the world. I can't really describe it, to be honest,


it was like a fairy tale, to be honest, it was, but the first few


weeks were really good. You are, really happy. He was born and


everything was fine. Took him home, everything was fine, just got on


like a normal family, then a round three-four weeks old, or we so he


had blisters coming up on his fingernails. Might mum said, what's


wrong with his hands? She said, look, so I came home, took him to a


hospital, they just got it was a normal infection under the nails.


The soars started to spread on to his feet, up to his face and on to


his body. Lifting him was hard, if you lifted under the arms you could


rip the skin, so it was all scooping him with blankets and


cushions. It wasn't normal for a baby all for us. You couldn't


cuddle your child. They clinically diagnosed him with EB, which is a


really bad, severe version of the disease, and the life expectancy,


they said six months to year, so it really hit home. Scary, really


scary. But despite the odds, Harry is still with us and enjoying life.


He even goes to school and bakes cakes.


Is it for money, just money, not for Daddy?


There are only 5000 people with EB in the UK, and the odds of us


having another child with it was unlikely, so we took the small risk


and had Cody. I can't describe what it was like.


I was so happy when he was born and he was alive, then looked at him


and saw his hands and I was like, oh my God, he has got it. Caring


for two children with EB requires a spare bedroom full of medication.


Both boys had to have tracheotomy is, meaning they can't speak and


need constant monitoring. We also need to change their bandages twice


a day, something none of our family looks forward to. I don't like


doing it. It is not really fair run him but it has to be done for him,


really. He is quite good, once he gets past the anxiety of having


them done, he is quite good, as you can see. He is that they're quite


happy, just lets me get on with it. Sundays are better than others and


luckily today he is co-operating -- some days. He is unpredictable


depending on how he is feeling, really. Yes, he's a good boy. He's


quite funny. He knows whether dressing goes so if I did something


Good! We have the bandages changed, sometimes we are able to venture


A You Like It? Big, isn't it? You have to put in a letter to Santa in


they're telling him what you want for Christmas. By it as much as we


try to get on with shopping, we can't help noticing the amount of


people that stop and say things about our kids. That lady with the


blue top on. She looked at them and shook their heads. It was like, no


need for it, really. I don't know what goes through their heads. But


I don't understand how people can be so cruel to children.


The they just stopped, turned round, started talking to each other,


pointed, then just stared, sci-fi like waving at them but I thought


I'd better not. People dread their children away from mine, and people


have -- laugh but the boys and I have never be used in the streets.


I can understand that to see a child like that you would be


shocked, but all we ask is that you are scarce. We are happy to talk to


for 20 minutes about it. -- that you ask us. The man is doing your


picture, Harry. Looked! Who is that? A is that you? Happy New Year.


Your a monkey! -- you are. That is the frock. He wants the Frog now as


well. He has got the monkey. It's By a get home, it is business as


usual as we get the kids ready for bed. I fixed in a while Harry has


some dance time. -- fix dinner. Just giving him a nebuliser, just


to get all the secretions out, really. The boys need looking after


24 hours a day, so each evening, two carers arrive so we can get


some rest for the night. He's seems quite itchy round his


neck. A OK. But it's usually me he The responsibility is massive,


especially when they are really unwell and they have a chest


infection, because you are the one responsible for keeping that airway


open. And sometimes it's not always possible. They start blocking off,


and stuff, so it is a massive responsibility. We have only had to


resuscitate its Coady once. So far. The future is uncertain for Harry


and Cody, so we try to make every day and night special. I try to


take every day as it comes. I don't like trying to look ahead, because


they don't know what the future holds for us, so we just take each


day as it comes, and whatever the day will throw at us, we have to


deal with it when it comes. No point in trying to plan anything,


and it is a way of life for us now, and we just wants to be accepted,


that is all, really. Two very brave young boys there.


Don't forget, jaws stories really can make a difference, so why don't


you tell me about them? On Twitter. I will be back next week. Until


then, goodbye. And next time, we give Portsmouth


full health check-up, and comedian and GP Dr Phil Hammond takes the


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