23/09/2013 Inside Out West


23/09/2013

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Hello from the Memorial Ground in remarkable personal journey from

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football hooligan to Bristol Rover's team chaplain. What do you think

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Also on the programme, compensation at last, but only for some of those

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suffering the side—effects of the absolutely disgusting. This vaccine

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has irreversibly changed his life forever and there is nothing we

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has irreversibly changed his life do about this. He has to take a

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has irreversibly changed his life strong cocktail of drugs to just get

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And I'm discovering the real story behind Tolkien's Lord of the Rings.

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In our first film tonight, we have a fascinating development of a story

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first reported here on Inside Out West. In December 2011 we revealed

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millions of children, and the sleep disorder narcolepsy. On Friday the

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government admitted there was a disorder narcolepsy. On Friday the

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and announced a compensation scheme. But, as our health correspondent

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Matthew Hill reports, this will But, as our health correspondent

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for 8—year—old Josh, sleep dominates his life. Josh? You have got to

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for 8—year—old Josh, sleep dominates up. Josh has to take a powerful

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cocktail of medication every day. He has a very rare condition called

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narcolepsy that means he can't regulate his sleep patterns. He

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narcolepsy that means he can't collapses whenever he gets excited,

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a condition known as catoplexy. collapses whenever he gets excited,

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just after he was vaccinated against swine flu. Initially put it down to

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it being the end of term, coming up to half term, he was tired. Then he

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started losing muscle control. He could not hold things properly.

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started losing muscle control. He needed you to support his hand,

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started losing muscle control. He dropping forward. It was horrible. I

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happened. For the past three years Caroline has been campaigning to get

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condition was caused by the swine Caroline has been campaigning to get

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condition was caused by the swine the Government has agreed that the

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multinational GlaxosmithKline, is most likely to have contributed

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multinational GlaxosmithKline, is impressed and pleased with the fact

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that they have now admitted the links, they have it made a great

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step forward. At the end of the links, they have it made a great

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that is the main thing that we wanted from the government, to admit

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that the vaccine was a problem. wanted from the government, to admit

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am impressed with that. But it is the way we have been treated. It is

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absolutely horrendous. So why has it taken so long for the problems to

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come to light? How thoroughly had Pandemrix been tested in the first

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original trials on Pandemrix took place. Now it was because the global

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threat presented by a pandemic of swine flu that it was decided the

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trial should be fast—tracked so swine flu that it was decided the

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results would be available sooner. But GSK were only happy for the

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vaccine to be given if the British government gave them an indemnity.

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That means that if things went wrong it would be the British government

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that would have to pay compensation rather than the drug company. But

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for Caroline's son, something did go wrong and she's angry that the

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government has been dragging its feet over the issue, failing to

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government has been dragging its seriously mounting evidence from its

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dangers of Pandemrix. In the middle of 2010 Finland withdrew the vaccine

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for young people under 20. The decision followed a study by this

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sleep expert who I met at the start of my investigation more than two

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narcolepsy was 12 times higher, compared to not having it. We had

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beginning of August, about the number of narcoleptic of children of

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Pandemrix. No way I would have given it to any of my own children or

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friends, I said, I have it because there is no risk but do not give it

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to your children. Back in the UK though, nothing changed. In fact,

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investigated Pandemrix, it was being seasonal flu vaccine. Through her

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campaigning Caroline met up with Pauline Carlton from Liverpool.

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Hello! You're right? She had her whole family vaccinated against

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swine flu in January 2011, long after the vaccine had been withdrawn

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in Finland. Nice to meet you. Soon after the vaccination, her youngest

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symptoms as Josh. He was a humorous little boy, he used to make me laugh

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so much, he had a wicked sense of humour, he had the silliest thing to

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make me laugh. All that has gone. What is left is this little angry,

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frustrated the full boy, it is heartbreaking. When I visited the

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vaccine manufacturer GlaxoSmithKline two years ago, I wanted to know

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vaccine manufacturer GlaxoSmithKline they would acknowledge the apparent

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narcolepsy in Josh, Lucas and other children. There is currently no

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evidence at all to indicate there is a causal link between Pandemrix

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evidence at all to indicate there is narcolepsy. We are working hard

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evidence at all to indicate there is the regulatory authorities to try

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and understand what is happening. Are you saying you disagree with the

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Finnish Institute when they say there is a link with Pandemrix? At

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authorities believe there is not a Pandemrix but we are working with

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it. At the end of the day, patient safety is of utmost importance to us

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and we would never put out a drug or leave it out there if we believed it

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was a true issue. Then a year ago a study in Ireland found a 13 fold

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Pandemrix. It took Caroline to meet another campaigner in Dublin to

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Pandemrix. It took Caroline to meet out how they were fighting for

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compensation. We got a promise from the Minister from health here, that

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support package proposal would be put to government in the summer

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support package proposal would be that has not happened. We are now

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putting pressure on them to do that. And finally Inside Out revealed

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which showed English children have study by the health authorities

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which showed English children have also been affected. Yet GSK were

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still saying there was no data increase of narcolepsy among those

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vaccinated. But one of the academics involved in the original trials

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vaccinated. But one of the academics the vaccine disagreed. The bottom

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line is that they have found that there was somewhere between ten

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line is that they have found that 16 times more likely to have had

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Pandemrix than other children. That confirms these other studies done in

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Finland, Sweden and Ireland. These researchers have put a number on it

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risk was something like one in 52,000. Glaxo Smith Kline say they

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now want to carry out more research into the claim to seek what is

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causing the narcolepsy. This could include other factors such as the

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environment or genetics, they say. The company say the vaccine went to

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a vigorous approval process and throughout development there was no

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data to diet —— suggesting a link. But Josh is left battling daily

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life. He needs powerful drugs to keep him awake, which may shorten

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his life. The families have applied Caroline has just received a letter

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that on balance of probability, Caroline has just received a letter

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jab contributed to Josh's condition but he will not be eligible for

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compensation because he is not disabled enough. Looking at their

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something like, loss of eyesight or hearing, loss of limbs or not being

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it to do anything. What do you think disgusting. I want them to take

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it to do anything. What do you think burden of our soldiers, the guilt

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that I feel everyday when I look at parents, to see him suffer on a

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daily basis. He has to take a very strong cocktail of drugs each day to

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get through a day. At the end of the day, this vaccine has irreversibly

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changed his life for ever, there is nothing we can do about this. To

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turn round to me and say that the result of the vaccination means

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turn round to me and say that the his illness is not severe enough,

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Coming up, Mark is in search of his illness is not severe enough,

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hidden story bit —— behind the Lord of the rings. To think that this is

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the ring that he became the model for the ring in the Hobbit! Anyone

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in football will tell you there for the ring in the Hobbit! Anyone

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times when players and fans turn to the power of prayer to get the right

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It is no surprise that Bristol Rovers, who play their football

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It is no surprise that Bristol at the Memorial Stadium, have their

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own chaplain. Here is his remarkable Bristol's newest at 14 is enjoying

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early success. In the couple —— newest football team, in their first

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ever match. It is a proud moment for the chairman, Dave Jeal. Football is

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his passion. He is a fixture on the chairman, Dave Jeal. Football is

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terraces, supporting his beloved restored Rovers. But he has also

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been involved in summer football's violent moments. What do you think

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everything changed. What we want is a revolution. That is what we are

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about, really, a revolution of love, not to hurt and destroyed. So can

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born—again Christian convert his passion for the beautiful game into

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Dave lives in North Bristol. The first match I went to, 1972. It

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Dave lives in North Bristol. The passion, devotion? Yes, I love it.

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But there was a time it to keep passion, devotion? Yes, I love it.

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a dark path? The first time I saw football match violence was in the

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70s, it was a pitch invasion, I football match violence was in the

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fascinated by it. I was eight, I start off as a little dapper, going

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to watch, and you can get a little bit more involved as you get older.

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You come up through the ranks, it is aggression and anger and hatred

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You come up through the ranks, it is particularly proud of it, although,

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it has taught me a lot about life and people. And involvement in

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football violence reached a high point at the European Championships

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What are your memories of that? It was just a dark evening in my

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He was arrested for punching a rival fan, leaving him unconscious on

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He was arrested for punching a rival ground to be repeatedly kicked on

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That looks really nasty. You can see me walking away. What do you think

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when you see pictures like that me walking away. What do you think

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Then there was an unexpected twist of fate. We ask God to kill us ——

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He was persuaded, reluctantly, to go I didn't want people to see me

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pretended I was praying. These two blokes came up and said I want to

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pray for you. I said, do whatever you want, mate. They asked me what I

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wanted and I said I want all the hits to go. They asked me to pray

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and from that second I knew there was a god. The only good thing about

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me as God. Left to my own devices, I am a pretty unpleasant person. When

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I first became Christian I wanted to tell everybody. I just couldn't

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believe it. I had never had a buzz like it. Legally. I thought I'd

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believe it. I had never had a buzz had to tell people what it was like.

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compelled them to spread the word. He is now a minister in his North

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West. . You have also become the He joins the players once a week at

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The players come to you? Sometimes. If they want to talk about faith, I

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combination of Bristol Rovers and God is just the best job ever. I

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love it. Even though I am just the ball boy. Do you pray every week for

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a when? No, why would God be a Surely Friday he has a Bristol

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No, no. I'd like him to the butt no. Are the those among your friends who

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I am happy with that, we can go and on. The can't get much worse!

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God, thank you for this game, Lord. Thank you that you love us no matter

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what happens. Whatever Howarth —— whatever, however you feel, you

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what happens. Whatever Howarth —— you ever caught in this choice

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between the two, between God and football? No. No. It is different.

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It is kind of like God is my family. And Rovers are like my friends.

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Family will always come first. In our final film tonight, we are

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heavily off to Middle Earth to hear the secret story of a precious gold

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ring hoped to —— thought to have inspired Lord of the Rings. Ours is

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a tale of curses by cruel gods, dwarves and subterranean caves.

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a tale of curses by cruel gods, history man has been to the Forest

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archaeologist excavating a Roman Gloucestershire was told of an

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extraordinary discovery. Buried inside the temple, a small rolled up

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demanding accursed be placed upon the wearer of a precious ring. The

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find caught the attention of eminent academic called Professor J R R

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Tolkien, a few years later, he published and now world famous book,

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The story starts atop steep hill on Severn. Sometime in the fourth

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century, a British women called Sylvie Alness made a pilgrimage

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century, a British women called to this temple. Weary from his

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travels, he used the thermal baths attached to the temple. Here in

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travels, he used the thermal baths disrobed, and carefully removed

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travels, he used the thermal baths that he left with his clothes. As he

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went into the baths. Whilst the Roman was enjoying a luxury bath

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here, back in the changing rooms, a thief stole his gold ring. To find

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out what happened next, I am being joined an archaeologist with a

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particular interest in Roman and iron age religion. So, the Roman has

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lost his ring in the temple. If iron age religion. So, the Roman has

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possesses. It has gone. It has been storing in a sacred place. It is

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assessed and it is also sacrilege. What did he do next? He probably

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engages ascribed to write on a piece of lead, this piece of lead, a

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asking him to lay at curse on the thief. It said, to the God, and

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asking him to lay at curse on the mentions the person who has been

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robbed. He has lost his right —— his ring and he would give half of it,

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the value, to the God on its return. Here's saying that anybody by this

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name should receive the curse. He may have been a pilgrim. He is

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definitely being fingered. What may have been a pilgrim. He is

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he mean by getting damaged? Anything to do with bodily fluids, going

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he mean by getting damaged? Anything the toilet, having sex, all gone.

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Silvianus buried his curse deep within the temple and set off home,

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waiting for his ring to be returned. But it never was. Before long, Roman

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rule in Britain had come to an end abandoned. In the centuries that

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followed, superstitious locals thought that the ruins and tunnels

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were home to goblins and it works. untouched for a thousand years.

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were home to goblins and it works. the site was excavated, in the late

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1920s, the curse and the stories of the works and goblins attracted

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experts. Including one Professor Tolkien. I think he was fascinated

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because we don't often have names —— names for gods. The fact that he

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lived here in this enchanted forest set Tolkien's mind away. This is

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He came here, visited this magical place and was inspired. Absolutely

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and the story started to become So what effect did all this have on

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Tolkien? At the same time that he was contributing to an academic

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report, he was writing another work about the nasty gods, cursed rings,

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He was writing in 1926 or developing started work on that famous first

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sentence, on a whole in the ground Tolkien was desperate to create

:25:54.:26:07.

sentence, on a whole in the ground already explored the possibility of

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melding earlier British history already explored the possibility of

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the invasion of the Romans into already explored the possibility of

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kind of prototype story that he already explored the possibility of

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writing and saw all those things were feeding into his imagination at

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the time and the creative process he This would eventually emerge into

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Tolkien's first novel is famously known, especially in this film.

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So what about Silvianus' stolen ring? Incredibly, it was found in

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1785 in a field in Hampshire. It went on display in this National

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Trust house and I am having a closer look. To think that this is the

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actual ring that Silvianus stall —— It is not hard to be transported to

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Middle—earth. It is just the sort of thing that might have inspired

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Tolkien. Before I got the ring back there is just one or thing I want to

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know. In The Hobbit, the bring his That is just about it for this week.

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Before we go, there is just about time to tell you about a special

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documentary about a school for on BBC One. You can keep in touch

:28:18.:28:29.

with us at the address is on screen. From all of us, thanks for watching

:28:29.:28:45.

temperature cull shows no sign in beating we look at the police trying

:28:45.:28:48.

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