31/10/2011 Inside Out Yorkshire and Lincolnshire


31/10/2011

Jamie Coulson unravels the complex and often controversial review which could lead to the closure of the Children's Heart Surgery Unit in Leeds.


Similar Content

Browse content similar to 31/10/2011. Check below for episodes and series from the same categories and more!

Transcript


LineFromTo

The NHS say it is about improving care for children, but not everyone

:00:23.:00:28.

is happy. It is my own opinion, but I have a feeling that there has

:00:28.:00:35.

been agreed determination. -- 83 determination. We speak to the

:00:35.:00:40.

parents who fear the changes could call their families apart.

:00:40.:00:45.

think it is going to be a nightmare, and might therefore asked tracking

:00:45.:00:52.

backwards and forwards, spitting the family up. -- splitting the

:00:52.:00:58.

family up. And we hear from the government's former Hearts chief,

:00:58.:01:04.

for the reasons. People had been living on a hand-to-mouth basis in

:01:04.:01:14.
:01:14.:01:23.

There is nothing more emotive than the health and welfare of children.

:01:23.:01:27.

Proposals to dramatically reduce the number of children centres

:01:27.:01:32.

offering heart surgery have sparked controversy. Some centres like the

:01:32.:01:38.

one here in Leeds could close. Tonight, we investigate the claims

:01:38.:01:41.

and counter claims being made in this increasingly bitter review.

:01:41.:01:49.

This film does include injury -- images of surgery.

:01:49.:01:59.

It has just been, just been dreadful. We have to try and cope,

:01:59.:02:06.

been Cope, -- be strong, but it is hard. She is a six year-old

:02:06.:02:12.

youngster with a hole in her heart. There is no doubt, that if she is

:02:12.:02:20.

left as she is, that her lifespan will be significantly reduced.

:02:20.:02:26.

here I am, I am here, I have not gone anywhere. OK, it's OK. Emily

:02:26.:02:31.

Taylor is one of around 3500 children who need heart surgery

:02:31.:02:35.

this year. It is a desperately worrying time for families, but for

:02:35.:02:40.

many, it could be the difference between a life and death. From the

:02:40.:02:44.

point of view of a surgeon, this operation is very satisfying,

:02:44.:02:48.

because there is a lot of surgery we do which is not curative. We

:02:48.:02:53.

cannot cure the children. Where as this is a corrective operation, and

:02:53.:02:59.

that is very satisfying. Because it is do the operation, job done,

:02:59.:03:05.

youngster is normal. But the way children's heart surgery in England

:03:05.:03:10.

is carried out is about to change. The NHS is proposing a boat -- a

:03:10.:03:14.

radical overhaul which could see some surgical centres close. The

:03:14.:03:17.

result of their review will be announced before the end of the

:03:17.:03:21.

year, but this centre in Leeds is one of those threatened. I am here,

:03:21.:03:29.

I have not got anywhere. You have got to take the positives, at the

:03:29.:03:32.

moment you are just concerned that your daughter is down there, and

:03:32.:03:40.

everything is out of your control. Well done, well done. A nice big

:03:40.:03:46.

sleep now. For Emily, her parents and thousands in their situation,

:03:46.:03:50.

the proposed changes could have an effect for years to come. Yet for

:03:50.:03:58.

now, their only focus is on the next few hours.

:03:58.:04:05.

We are gathered here today because we are victims of a gross injustice.

:04:05.:04:10.

The injustice that our children were told -- taken from us.

:04:10.:04:14.

review into children's heart services was set up in 2008, but it

:04:14.:04:17.

can trace its roots back to the scandal at Bristol Royal Infirmary

:04:17.:04:23.

in the 1990s, where but we've -- between 30 and 35 children died due

:04:23.:04:28.

to failings in care. The subsequent inquiry made 198 recommendations.

:04:28.:04:32.

One of them was to stipulate the minimum number of operations that

:04:32.:04:36.

hospitals should be carrying out to ensure that surgeon's skills are

:04:36.:04:42.

kept shop. The idea being, the more you do, the better you are. The NHS

:04:42.:04:46.

is looking to reorganise and improve children's hearts services

:04:46.:04:51.

across England. The NHS believes that to provide 24 hour care, 365

:04:51.:04:56.

days a year, each hospital needs for surgeons and each site should

:04:56.:05:00.

be performing a minimum of 400 operations per year with an optimum

:05:00.:05:08.

or 500 ft. The aim is also to provide better care closer to

:05:08.:05:13.

children's homes. To achieve this, the NHS needs to close some centres

:05:13.:05:18.

and consolidate into fewer, bigger units, supported by regional

:05:18.:05:22.

networks offering non-surgical care. There are 11 hospitals offering

:05:22.:05:27.

children's heart surgery in England, but the NHS once that cuts to six

:05:27.:05:31.

or seven. They have come up with four options for reconfiguration in

:05:31.:05:35.

which five centres remain in all scenarios, leading Newcastle, Leeds,

:05:35.:05:38.

Southampton and Leicester under threat. The Royal Brompton in

:05:38.:05:42.

London does not appear in any of the options and Oxford ceased

:05:42.:05:47.

operating earlier this year. It is how this option was reached and the

:05:47.:05:52.

press is behind it which had led to an increasingly bitter dispute. --

:05:52.:05:59.

for the process behind it. Behind me, you can see 70 parents to have

:05:59.:06:04.

packed this meeting room here at Elland room. -- Elland Road. It is

:06:04.:06:08.

right we have proper specialisms so we save more lives. For those

:06:08.:06:13.

surgical centres under threat, the last year has seen clinicians,

:06:13.:06:15.

campaigners and operate -- politicians embroiled in a battle

:06:15.:06:19.

to save their centre. If a centre have to close in the north, it

:06:19.:06:23.

should not be us, it needs to be Newcastle. There are serious

:06:23.:06:26.

concerns about the process that had been raised with me by clinicians

:06:26.:06:32.

and parents. Leeds campaigners handed in a 600,000 signature

:06:32.:06:36.

petition to Downing Street, and the Royal Brompton Hospital in London

:06:36.:06:40.

became the first NHS body ever to take the NHS to court. For many of

:06:41.:06:44.

those involved, there was growing concern about how the review was

:06:45.:06:50.

being carried out and some of the assumptions it was based on. Keep

:06:50.:06:56.

going, that's good. Very nice. Children's heart surgery is

:06:56.:06:59.

extremely complex and the surgeons who carried it out of among the

:06:59.:07:03.

most skilled in their profession. Emily's procedure to correct a hole

:07:03.:07:08.

in the hot will take four hours, but some procedures will last over

:07:08.:07:13.

15 hours. One of the key principles underpinning the review is the idea

:07:14.:07:19.

of four surgeons carried out a minimum of 400 paediatric heart

:07:19.:07:26.

surgery is % per year. There is concerns from some about where this

:07:26.:07:30.

figure has come from. There is no hard evidence that 400 cases

:07:30.:07:38.

produces better outcomes, no hard evidence. And therefore, you know,

:07:38.:07:45.

that is the fact. That is how it stands. The NHS review says that

:07:45.:07:51.

Leeds carried out 316 operations in 2010, so it short of the magic

:07:51.:07:55.

number of 400. This is the reports commissioned by the review team to

:07:56.:07:59.

look at all available it is sure to see if there is any evidence to

:07:59.:08:04.

support a minimum number of operations. It could not find one.

:08:04.:08:07.

It could find some correlation between volume and outcome, but it

:08:07.:08:13.

could not provide a cut-off point. We decided to speak to the US based

:08:13.:08:19.

author of three of the seven report considered by the review. Dr Wilkie

:08:19.:08:24.

is a paediatric surgeon based in Seattle. From your research, where

:08:24.:08:28.

can you draw the line and say, this is the minimum number of cases that

:08:28.:08:35.

a surgical centre should be dealing with? It is more complex than a cut

:08:35.:08:40.

and dried line. In the United States, we know there are centres

:08:40.:08:45.

that are relatively low behind who are -- lower than the line that a

:08:45.:08:49.

performing well and vice versa. If one has to make a decision, and one

:08:49.:08:55.

wants to base it on the data which is in existence, the number of 350

:08:55.:09:01.

cases per year for a centre which wants to be adept in all areas of

:09:01.:09:05.

congenital heart surgery is reasonable. I cannot say that a

:09:05.:09:09.

number slightly above or below that is also reasonable. But based on

:09:09.:09:12.

what we have found, that is a reasonable under. -- reasonable

:09:12.:09:18.

number. Why is this figure important? If it was lower,

:09:18.:09:23.

arguably more Donitz might remain viable under the proposals. -- more

:09:23.:09:27.

units might remain viable. This is not the first time the NHS has look

:09:27.:09:35.

at setting a minimum figure. Back in 2003, the NHS proposed three

:09:35.:09:38.

surgeons and 300 procedures per centre, but that was rejected by

:09:38.:09:42.

the then Health Minister. figure that was put to me of 300

:09:42.:09:47.

cases and three surgeons in each centre had no evidence behind it.

:09:48.:09:50.

There was no body of data that could show me that that was

:09:50.:09:56.

actually going to be more safe than the arrangements we already had in

:09:56.:10:00.

place. Without hard evidence, was there any way that you as a

:10:00.:10:06.

minister could have gone ahead with those proposals? Absolutely not. If

:10:06.:10:10.

one had gone ahead with these recommendations, and there would

:10:10.:10:17.

have been no question, an awful lot of hostility to them with local --

:10:17.:10:20.

there was an awful lot of hostility to them in the local area and you

:10:20.:10:25.

can only stand up to hostility with evidence, it you can look people in

:10:25.:10:28.

the eye and say, I am doing this because it will be better for you

:10:29.:10:32.

and your children in the long term. Professor Sir Roger Boyle

:10:32.:10:36.

represents the team carrying out the review into children's hot

:10:36.:10:40.

services. He says the figure of 400 is based on expert aperient --

:10:40.:10:47.

opinion. The basis is having enough work to keep the surgeon's skill

:10:47.:10:51.

and have enough surgeons working together to have a proper training

:10:51.:10:54.

environment, and the ability for surgeons to do the difficult cases

:10:54.:10:58.

together. The problem is, it you are asking people to make big

:10:58.:11:03.

changes, you would like it to be based on some kind of body of

:11:03.:11:07.

evidence. We will never get the evidence, because of the small

:11:07.:11:11.

number of procedures and that comes down to simple mathematics and

:11:11.:11:18.

statistics. Slightly further down. Just have a look. The first stage

:11:18.:11:22.

of the review into children's heart surgery was to assess each of the

:11:22.:11:26.

11 centres against a set of newly developed clinical standards. A

:11:26.:11:30.

hospitals were visited by a panel of experts which scored them

:11:30.:11:35.

against such things as quality of care and leadership. There was a

:11:35.:11:40.

group of people from various aspect of the health care, who came around

:11:40.:11:44.

and presentations were given and questions asked, and they went away

:11:44.:11:49.

and came up with a score. hospitals were scored and then a

:11:49.:11:54.

rank into a league table. But there has been concerns about how these

:11:54.:11:58.

schools were worked out. The NHS review team has release the details

:11:58.:12:02.

of where the centres met on the standards, but they have not

:12:02.:12:07.

released the breakdown of the schools. We cannot analyse the

:12:07.:12:13.

score, on the basis, that is all we know, and number. We cannot really

:12:13.:12:23.
:12:23.:12:25.

do anything with that. And we are We requested a breakdown of the

:12:25.:12:28.

scores using the freedom of information that, but were rejected

:12:28.:12:31.

on the basis that using what they call provisional scores in the

:12:31.:12:37.

public domain could prejudice the review. We are saying that a

:12:37.:12:42.

further option should be included, which does include Leeds but also

:12:42.:12:48.

actually includes eight centres. This counsellor is the chair of the

:12:48.:12:50.

Health Review and scrutiny committee. -- the Overview and

:12:50.:12:53.

Scrutiny Committee. She believes that transparency has been a major

:12:53.:13:00.

issue. For the fact that neither the hospitals nor the statutory

:13:00.:13:05.

bodies to scrutinise this process, in theory, get to see the breakdown

:13:05.:13:11.

of scores, it is unacceptable. Complete the unacceptable, because

:13:11.:13:16.

there cannot be any real confidence in the scoring without public

:13:16.:13:22.

scrutiny. The scoring has had an effect. And the scoring has been

:13:22.:13:27.

brought into play, into the recommendations. There is no doubt

:13:27.:13:32.

that, from the point of view of this review, and people's

:13:32.:13:38.

perceptions, the scoring has been important and this centre has been

:13:38.:13:42.

disadvantaged. There has also been concern over the accuracy of the

:13:42.:13:47.

scoring. In Leeds, one example is where it says that there is not a

:13:47.:13:51.

dedicated transition nurse to help children to adult services. But the

:13:51.:13:57.

true say that is not correct and that one does exist. We are very

:13:57.:14:01.

keenly aware of the factual accuracy is about the hospital have

:14:01.:14:06.

told us exist. -- factual inaccuracies. We have not been able

:14:06.:14:10.

to corroborate that those factual inequities have been corroborated

:14:10.:14:14.

anywhere. -- have been addressed. There is so much emphasis placed on

:14:14.:14:19.

one set of data, and we could not get access to it. Why has the

:14:19.:14:23.

breakdown of those scores not been released? I do not know. They will

:14:23.:14:27.

be released, but the joint committee primary care trusts have

:14:27.:14:33.

not seen that breakdown. The review team also say suggestions of

:14:33.:14:37.

factual inaccuracies are without merit, and there is no need to

:14:37.:14:42.

readers of the score for Leeds. This created a league table that

:14:42.:14:46.

was put in the consultation document - a very influential for

:14:46.:14:51.

the members of public who see it. Surely that should be open to some

:14:51.:14:55.

scrutiny of how those scores were given. It will be put into the

:14:55.:15:00.

public domain once the committee have considered that level of

:15:00.:15:05.

detail. Will that not be too late? I think it is only one factor that

:15:05.:15:10.

is being considered here, but it is an important one because it is a

:15:10.:15:16.

measure of quality that goes beyond just looking at survival rates.

:15:16.:15:19.

When children have a congenital heart disorder, it is likely they

:15:19.:15:22.

may have more than one thing wrong with them. In these circumstances,

:15:22.:15:26.

it is important that they have ready access to other medical care.

:15:26.:15:35.

This is called Coke location. Children with heart problems have

:15:35.:15:41.

complicated problems, so it is rare they have a hard problem that is

:15:41.:15:44.

isolated. If the additional problems become an issue, it is

:15:44.:15:48.

very, very important they have access to experts in that area to

:15:48.:15:52.

advise you and help get the best outcome for the patient. But there

:15:52.:15:58.

has been disagreement over how double location has been defined

:15:58.:16:03.

for this review. We have been told that 10 years ago, they did not

:16:03.:16:08.

even treat children like Lyle. Cookward is two years old and was

:16:08.:16:13.

born with multiple complications to his heart and lungs. He has had 11

:16:13.:16:16.

operations to date and while he is much stronger now, in the early

:16:16.:16:21.

days things were critical. He was so, so poorly about. That had he

:16:21.:16:24.

been in a hospital but did not have those facilities on site, he would

:16:24.:16:29.

not have been well enough to move to have those procedures done. The

:16:29.:16:32.

fact that he was going down a corridor to theatre, not being

:16:32.:16:37.

transferred across the city, meant those procedures could happen. They

:16:37.:16:40.

were having surgical meetings where they could bring in teams of

:16:40.:16:44.

surgical professionals - not just cardiac experts, and they could all

:16:44.:16:50.

have a discussion about what was going on. Lyle is a perfect example

:16:50.:16:56.

of that stubble location. All services under one roof. -- double

:16:56.:17:00.

location. The problems that were not related to his heart that he

:17:00.:17:04.

had, we could get the doctors at short notice around the clock, and

:17:04.:17:09.

that is a model for the future. public consultation document

:17:09.:17:12.

identifies 26 services which require mandatory double location.

:17:12.:17:16.

Five of them are absolutely critical for children's heart

:17:16.:17:20.

surgery. When they say double location, what exactly do they

:17:20.:17:25.

mean? For the purposes of this review, they are using a definition

:17:25.:17:29.

from 2008. It says that services should be housed on the same

:17:30.:17:34.

hospital site, or in a neighbouring hospital as a on the same site. So,

:17:34.:17:38.

a hospital such as Leeds General Infirmary, which has all the

:17:38.:17:43.

services under one roof comes under this category. But in Newcastle,

:17:43.:17:47.

where they are spread across several hospital sites, it also

:17:47.:17:50.

meets the criteria. The problem with this interpretation is that

:17:50.:17:54.

the man who wrote the definition has raised questions about how it

:17:54.:17:58.

has been applied. In a letter to the paediatric intensive care

:17:59.:18:03.

Society, published on the safe and sustainable website, he said it

:18:03.:18:08.

would not apply to services being available in the same city. It does

:18:08.:18:12.

not equate to a visiting surgical team being a nominal 50 minutes

:18:12.:18:16.

across town. John Thomson represents the British Congenital

:18:16.:18:19.

Cardiac Association, the largest professional group for patients

:18:19.:18:27.

with the devil heart disease. -- congenital heart disease.

:18:27.:18:31.

believe that it means having their services available under one roof,

:18:31.:18:37.

ideally, to provide input to those patients when they are needed. The

:18:37.:18:44.

S&S definition has been a little bit more loose and defines it as

:18:44.:18:47.

being not necessarily on one side, so potentially in a different

:18:47.:18:52.

hospital. Potentially on the other side of a large city. That concerns

:18:52.:18:53.

British Congenital Cardiac Association because we believe that

:18:54.:19:00.

it is so important for the outcomes of these patients do. The NHS

:19:00.:19:02.

review teams mean the definition they have applied does meet the

:19:03.:19:09.

criteria. Buildings never saved anyone's life. It is the conditions

:19:09.:19:15.

that are important and the bash at the conditions that are important

:19:15.:19:20.

and the relationships between the clinicians. Knowing who is

:19:20.:19:25.

responsible for what, so that they can get into complex situations.

:19:25.:19:28.

you are happy that if the services in the future are said across

:19:28.:19:32.

different sides in the City, that is OK? As long as they are

:19:32.:19:36.

relatively adjacent and you don't have to queue in traffic for half

:19:36.:19:40.

an hour to get across. The plans to reconfigure children's heart

:19:40.:19:43.

services will almost certainly affect some people more than others.

:19:43.:19:46.

The majority of patients will only ever need surgery once but for

:19:46.:19:53.

others, it can be a lifelong relationship.

:19:53.:19:57.

She was discharged from hospital when she was born as normal, but

:19:57.:20:01.

three weeks later she started having some seizures. When we took

:20:01.:20:05.

her into hospital, that is when they did the analysis and we went

:20:05.:20:08.

to the Leeds General Infirmary and found out she had a hard concision

:20:08.:20:14.

-- condition. So our Hussain is six years old and has problems with a

:20:14.:20:23.

heart from birth. -- Sara. He it news to Newcastle, that is two

:20:23.:20:27.

hours away for us and it would pretty much mean that one parent

:20:27.:20:31.

would be with Sara and the other would be with the other children. I

:20:31.:20:34.

think it will be a nightmare. It will be a nightmare for us,

:20:34.:20:38.

tracking backwards and forwards, splitting the family up. I don't

:20:38.:20:43.

want to think about it, to be honest. It is already a stressful

:20:43.:20:49.

time anyway and this just adds to the stress. The Hussains' fears are

:20:49.:20:54.

well-founded. A health impact assessment has clearly identified

:20:54.:20:58.

that if the surgical centre in Leeds closes, the highest number of

:20:58.:21:03.

people will suffer increased travel times. But here is the problem -

:21:03.:21:06.

some people claim the health impact assessment has been carried out too

:21:06.:21:11.

late. The precise details of how troubled times might increase for

:21:11.:21:14.

people from Yorkshire and the Humber was not available before the

:21:15.:21:19.

public consultation came to an end. You would expect a HIA to be

:21:19.:21:26.

carried out properly before the consultation begins, not to be

:21:26.:21:30.

completed after everybody - including the Overview and Scrutiny

:21:30.:21:33.

Committee - have had a chance to have a say in the process. There is

:21:33.:21:36.

no statutory obligation for a health impact assessment, but if

:21:36.:21:42.

one is carried out the NHS guidelines only required to be

:21:42.:21:45.

carried out in sufficient time for the findings to be factored in. If

:21:45.:21:49.

you are going to carry out a health impact assessment, wouldn't it be

:21:49.:21:58.

better to have it at a more advanced age -- advanced stage.

:21:58.:22:02.

we need to make sure it is part of the process but not one that

:22:02.:22:06.

preamps what you finally decide. So that when you actually come to the

:22:06.:22:11.

point of implementation, you have got the issues that have arisen

:22:11.:22:17.

clearly in mind to make sure plans address those issues. But you are

:22:17.:22:22.

happy it should not have been earlier? I am happy, yes. Define a

:22:22.:22:26.

health impact assessment has yet to be published -- the final.

:22:27.:22:30.

Additional work is being carried out on travel patterns. There is

:22:30.:22:34.

concern about how well the health impact assessment has taken account

:22:34.:22:43.

of ethnic minority families, who are twice as likely to have

:22:43.:22:50.

children with congenital heart defects. Muhammad Raja's daughter

:22:50.:22:54.

Palak has a heart condition and he feels the service has not been good

:22:54.:22:59.

enough. Communities have not been taken into any consideration or

:22:59.:23:05.

into any confidence. The S&S review team say they contacted nearly 2000

:23:05.:23:09.

organisations and a range 20 focus groups across England and Wales, to

:23:09.:23:13.

here specifically from black and minority ethnic groups. But we have

:23:13.:23:17.

spoken to the man who organised three of the five focus groups held

:23:17.:23:22.

in Yorkshire. David Odunukwe from the Leeds BME Network stepped in to

:23:22.:23:26.

help the NHS over fears the sessions they had organised were

:23:26.:23:30.

not accessible for these communities. He feels the NHS

:23:30.:23:33.

should have done more, at an earlier stage.

:23:33.:23:37.

Overall, how well would you say minority groups have been consulted,

:23:37.:23:44.

even including the work by you have carried out? Not very well. We have

:23:44.:23:49.

managed to tick the boxes, so that it is noted in London at the NHS

:23:49.:23:52.

offices, and in Parliament, that consultation has been done with

:23:52.:23:58.

more than two or three groups. When we are able to contact people at a

:23:58.:24:05.

moderate level, at a late stage, we would have been able to transform

:24:05.:24:13.

that site of the relationship. We would have been able to look at he

:24:13.:24:18.

was dealt with and who had a say. In any consultation, you would want

:24:18.:24:26.

everybody to have the opportunity to work in a democratic fashion. So

:24:26.:24:31.

I don't think it was box-ticking - I think it was an issue raised and

:24:31.:24:37.

we responded to it. The review team also point out that nearly 20% of

:24:37.:24:45.

the 75,000 responses to the public consultation came from BME groups.

:24:45.:24:48.

The I want to highlight why and what my concerns are. It is about

:24:48.:24:52.

the review and not just about one sentence. One of those who has been

:24:52.:24:56.

most vocal about the proposed changes to children's heart surgery

:24:56.:24:59.

is Stuart Andrew, the MP for Pudsey, who instigated a backbench debate

:24:59.:25:03.

on the issue. What concerns do you have about the

:25:03.:25:08.

way this review has been carried out? I think that it has not been

:25:08.:25:13.

transparent enough. I think we want a level playing field that

:25:13.:25:17.

recognises that geography is also incredibly important, but that we

:25:18.:25:21.

do have a process that brings about the best children's heart surgery

:25:21.:25:25.

that we can have in this country. Do you accept that there does need

:25:25.:25:30.

to be a changed? Absolutely. I think we'd have to be sure that we

:25:30.:25:36.

have really safe units, but let's not make a mistake in the process.

:25:36.:25:42.

A we are able to close this directly. Just a couple of minutes,

:25:42.:25:47.

probably. For Emily Taylor, the operation to fix the hole in her

:25:47.:25:51.

heart is over. It brings to an end what has been the most testing time

:25:51.:25:55.

of her life so far. Hers is just one story among thousands of

:25:55.:25:59.

children whose lives are changed each year. They are the reason that

:25:59.:26:05.

this review is being so keenly watched. I want to see real

:26:05.:26:09.

evidence that they have really considered another option, that can

:26:09.:26:15.

potentially help us keep it in Leeds. If we lose it, I think it

:26:15.:26:18.

will be a serious blow for many patients that are going to needed.

:26:18.:26:23.

I have had people banging on my door every month, asking why we

:26:23.:26:26.

haven't sorted out children's heart surgery. They say it is ridiculous

:26:26.:26:30.

to have this large number of centres to bring such a small

:26:30.:26:35.

number of procedures. Shame on you for not doing something about it

:26:35.:26:39.

before now, they say. They best outcome is that this centre stays

:26:39.:26:44.

open. I am absolutely clear about that. It not for me personally,

:26:44.:26:49.

because in the future, I won't be here. But for the community of

:26:49.:26:53.

Yorkshire and Humber, I think it is absolutely important that this unit

:26:54.:26:59.

stays open. It has been three weeks since Emily came out of hospital,

:26:59.:27:04.

and she is feeling much better. was really very happy when Maya

:27:04.:27:13.

operation was done. -- my operation. I could go home and have more fun.

:27:13.:27:16.

She went from intensive care to a high dependency unit. She was there

:27:16.:27:21.

for one night and after that she went into the ward, and she was in

:27:21.:27:26.

the ward for a couple of days. Because she did so well and

:27:26.:27:32.

recovered so quickly, they sent us home. You feel fantastic. From the

:27:32.:27:35.

emotions you have gone through before, it is just wonderful to

:27:35.:27:39.

think that it was found and that she has been treated. Now we can

:27:39.:27:44.

just get on with everything and not worry about it anymore. And get on

:27:44.:27:48.

with our lives will stop the review into children's heart services has

:27:48.:27:52.

been one of the biggest ever carried out by the NHS. The review

:27:52.:27:56.

team say no decisions have yet been made, and the results should be

:27:56.:28:01.

announced before the end of the year. I will be a bit more stronger

:28:01.:28:08.

when I get older and don't be poorly. And then I will get a

:28:08.:28:12.

really, really happy when I am older because it is all over and

:28:12.:28:22.
:28:22.:28:24.

done with. I can do anything now. I If you want to contact us about

:28:24.:28:31.

tonight's story, you can do so on Facebook or Twitter. That's it from

:28:31.:28:36.

us in Leeds. Make sure you joined us for next week's programme.

:28:36.:28:42.

In a special programme, Jamie Coulson follows six-year-old Emily Taylor through her treatment at the Children's Heart Surgery Unit in Leeds. Meanwhile, he also tries to unravel the complex and often controversial review which could lead to the Leeds unit being closed.


Download Subtitles

SRT

ASS